Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

Susan, Hello, we all LOVE you.
greenie

-Original Message-
From: 'educatorsusan' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 8:50 am
Subject: Re: [CMLHope] Not getting any mail

I guess I’m a ghost because no one said “hello” to me.
Susan Rosenthal
On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope  
wrote:


Hi Susan, it's always glad to hear from friends we know with CML and real glad 
your doing so well.  Keep it going.
greene

-Original Message-
From: 'Icandoallttc' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 2:58 am
Subject: Re: [CMLHope] Not getting any mail

ThAnks for answering everyone. I am still in remission and doing good.  Did 
anyone else get a letter from Acadia health. I didn’t think anyone could mess 
with your meds unless you okayed it. Good health to all. Thanks again and bless 
you. Jeanie
On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope  
wrote:


I am here! Not been on as much lately.Last test I was in MMR, so elated about 
that. 
Great to see you on here, Greenie. And of course Jeanie, thank you for posting!
Hope you and all are doing well as we all get a wee bit older. Stay strong, 
blood buddies!!!
Hugs,Susan Zimmerman
On Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:

Good to hear from you, Greenie.        Joyce in Southern Illinois


On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope  
wrote:
That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
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Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

Hi Susan, it's always glad to hear from friends we know with CML and real glad 
your doing so well.  Keep it going.
greene

-Original Message-
From: 'Icandoallttc' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 2:58 am
Subject: Re: [CMLHope] Not getting any mail

ThAnks for answering everyone. I am still in remission and doing good.  Did 
anyone else get a letter from Acadia health. I didn’t think anyone could mess 
with your meds unless you okayed it. Good health to all. Thanks again and bless 
you. Jeanie
On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope  
wrote:


I am here! Not been on as much lately.Last test I was in MMR, so elated about 
that. 
Great to see you on here, Greenie. And of course Jeanie, thank you for posting!
Hope you and all are doing well as we all get a wee bit older. Stay strong, 
blood buddies!!!
Hugs,Susan Zimmerman
On Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:

Good to hear from you, Greenie.        Joyce in Southern Illinois


On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope  
wrote:
That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

I'm happy to hear from you Sherri, glad that your doing so good with your CML. 
The only problem with staying here year round is that it does get hot during 
the summer but then it's better then snow and cold in Northwest Indiana 40 min 
from Chicago.  I will be flying in on the 6th of Nov to see my cancer Doctor 
get blood work and my meds. Derek's widow will pick me up at Midway and take me 
there and I get a chance to see his boys. I still can't believe that he's gone, 
I'll never get over that. Now at 80 as my Aunt used to say now it's one day at 
a time. I don't like getting old can't do the things that I used to do. Please 
take care of  yourself and keep in touch.
greenie

-Original Message-
From: sherri swanson 
To: cmlhope 
Sent: Thu, Sep 19, 2019 9:19 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Greenie, 

I am so glad to hear from you. I know what you mean about the snow birds. I had 
family that lived in Florida and I would go and see them from time to time and 
if we wanted to go somewhere or do something it always had to be early so we 
didn't have to wait and we were able to get a parking space. I finally said I 
would only come in the summer so we could go and do things without the wait.  

I can hardly believe I have had CML for 17 years. It has been a shock to the 
system but I never let it get me down. I fight right back and that and Gleevec 
have worked for me. It's funny, I still get side effects from the Gleevec after 
all this time. I guess it wants me to know that it is doing its job. 

I'm glad that you are watching the grass grow and enjoying your days. I too am 
watching things grow. Hope you enjoy the photo. 

Sherri


On Thu, Sep 19, 2019 at 4:24 PM 'icandoallttc' via CMLHope 
 wrote:

Good to hear from you Greenie. Wonderful summer.  Stay safe. Jeanie

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Sep 16, 2019, at 4:51 PM, myvety2k via CMLHope  
wrote:


That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Re: Not getting any mail

[myvety2k via CMLHope]

Sherri I'm so glad that you have CML in check after 17 years.  I started STI571 
(Gleevec) the first week in Jan. 2000 and still going strong.  I was in a study 
with 200 other people in the United States before it was approved by the FDA. I 
was the only one from Indiana and the rest were from the Chicago land area.   
Hope to keep it that way.


-Original Message-
From: sherri swanson 
To: cmlhope 
Sent: Tue, Sep 17, 2019 3:35 pm
Subject: Re: [CMLHope] Re: Not getting any mail

Hi Jeanie, 

I'm still here too. Just been doing things and we, my husband and the dog moved 
this year. I'm getting to old for that moving stuff.  

My Gleevec is keeping my CML in check and has been for about 17 years. WOW, 
that's a long time. 

Hope everyone is doing well and has enjoyed the summer. 

Sherri 
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com 
 wrote:

Hi Jeanie,
I received my CML medicine from Acaria in the past with no issues. I think many 
insurance providers are requiring that patients go through mail order 
pharmacies like Acaria to save money. 

On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Merry Christmas and happy Holidays to all

[myvety2k via CMLHope]

Hi Beth, It's nice to get away from cold weather that's why we moved 9 years 
ago from Northwest Indiana.  I'll take the heat but can't stand the cold. You 
only have about 4 to 5 months of good weather up North but only 4 to 5 months 
of real hot weather in Florida.  Moved to Sebring to get away from to many 
people in South Fort Myers. To much crime, cars, people, have to go out to eat 
early so you don't have to wait 1 to 2 hours to get in. And the biggest reason 
was the house we were in had 12.9 Radon in it and that was not good for Grace 
with her COPD.  They are building so many apartments and home there so it will 
be worse.  Much slower living here, and Grace purchased me a Tracker bass boat 
so I can get back to fishing, and there are so many lake to fish in.  Anyway 
take care.
Dave Greenberg

-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:09 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough 
meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart 
and my usual thyroid issues, but I stay positive and carry on. On vacation, 
made it this year, so enjoying shelling and the beach...windy but great 
shelling!!
Love to all, and please, lets all stay together here this coming year. Zavie 
and Marty taught us well,  along with Millie and many otherscommunity and 
shared experiences mean so much
Love, and 18's to all
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:02 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Thank you so much how are you?

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope  
wrote:


hi Jeanie and Susan Z,
Wishing you both a happy and peaceful New Year filled with moments of joy and 
sweetness amidst all the healthy struggles. You are both such strong woman and 
I admire the courage you both show in navigating multiple health issues at 
once. I feel for both you..
Stay positive and now that lots of us out here are thinking of you.
Happy holidays!!
18's Beth


-Original Message-
From: rszim0702 via CMLHope 
To: cmlhope 
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
myself. Along with IBS, I have to make myself go out of the house. All of you 
keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's 
and hugs,Susan Z

On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:

 Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
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Re: [CMLHope] Hi Shaun question

[myvety2k via CMLHope]

And the same to you also Beth and my other CML friends.
greenie

-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 10:22 pm
Subject: Re: [CMLHope] Hi Shaun question

Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a 
peaceful and Joyful Thanksgiving. I know the holidays can be very grief 
inspiring when we have lost those we love both recently and in the past.. As I 
reflect upon the things I am most thankful for this holiday season, Marty is 
one of them. So are each of you who read what I right and even if you do not 
respond, say prayers for me and the rest of us.
Wishing you all a happy holiday.
!8's and love, 
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 11:59 am
Subject: [CMLHope] Hi Shaun question


Hi ShaunI know you are in a lot of grief and if you don’t feel like talking 
about I will understand. I have never feared death but always feared that I 
would be in a lot of pain while dying. My question is did they give your dad 
pain meds before he went into hospice?   I miss him so much as he was my 
advisor as well as my friend. Prayers to you and yours Jeanie 
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:


Hi Sherri,
This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her thanks, 
as well.
Regards,Shaun
On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
wrote:

Hello Shaun, 

I am so very sorry to hear about your dad. He was such a kind and gentile man 
and he will be missed by many.  I wanted to let you know that I have planted a 
tree in his name in Israel. May this serve as a living tribute to his memory. 
You and your family are in my thoughts and prayers. Marty will always be in my 
heart and on my mind.  My heart is broken knowing I will not receive another 
message from Marty and we will no longer share share photos. 


As long as we live, they too will live; for they are now are a part of us; as 
we remember them. 

Regards, 

Sherri Swanson




On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:

Hi everyone -
This is Marty's son, Shaun, again.  Thank-you all so much for all the stories, 
kind thoughts, wishes, and prayers for my Dad and our family.  We are all so 
grateful to know how loved he was and how he was able to touch so many lives in 
a profound way.  
Hi Wayne - please do not cancel this thread.  I am still checking in on it and 
relaying to rest of my family.  Just as he helped others, you all are helping 
us, and we appreciate that, so much.
Regards,Shaun
On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

Please cancel.  Subscriber is deceased.  From: cmlhope@googlegroups.com 
[mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic 
| cmlhope@googlegroups.com  | Google Groups  |  |

Topic digest 
View all topics ·   Update on Marty G - 1 Update Update on Marty G 
| Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < |

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Re: [CMLHope] Update on Marty G

[myvety2k via CMLHope]

Shaun, My name is David Greenberg and am so sorry to hear the news of your 
Father passing.  He meant so much to our group and was ALWAY'S there when we 
ALL needed him. He WILL be MISSED.


David (greenie) Greenberg



-Original Message-
From: Marty Gartenberg 
To: CMLHope 
Sent: Sun, Nov 11, 2018 1:54 am
Subject: [CMLHope] Update on Marty G




Hello everyone - 


This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to say 
that my father passed away this past week, on Wednesday, November 7th, after 
having entered hospice care the previous Friday, November 2nd.  I know many of 
you were good friends with him and that he helped a lot of people through this 
support group.


This all started with a bad fall over 7 weeks ago on September 15 in his garage 
where he fractured his left femur.  He subsequently underwent surgery to get a 
rod implanted in the bone to help it heal.  After a few weeks of physical 
therapy, a checkup showed that one of the screws needed to be adjusted, so he 
had a second surgery for that to adjust the rod, and add a plate.  After having 
more therapy, a MRSA infection was discovered in the incision wound.  He also 
contracted pneumonia.  In order to combat the infection, he had a third surgery 
on the incision to perform a debridement of the wound and was put on course of 
several antibiotics.  He was admitted to the ICU to be treated for the 
complications of the infection.


Unfortunately, all of this became just too much for him to take.  While he did 
show improvement medically, and eventually went from the ICU into a regular 
hospital room, he was in a lot of pain, which got progressively worse each day 
all over his body, and discomfort from the effects of the antibiotics.   
Eventually, he began denying his food and medication and reached a point where 
he did not want to continue to fight.  


Moving to hospice was a painful decision to make, especially knowing how much 
of a fighter my Dad was through all of the struggles he's been through in his 
life.  But, those were his wishes and we didn't want him to continue to suffer. 
 The hospice care did make him comfortable and he finally passed Wednesday 
afternoon.  After not having had his heart medicines (and others) for so many 
days, his heart rate was in the 160's, and I guess it finally gave out, but we 
don't know the exact cause.  I believe he passed peacefully, though.  He was 74 
years old.


I am so grateful and blessed to have had my Dad in my life, and I know he 
touched countless others lives all over the world.  His altruism inspired me 
throughout my life.  Please keep him in your prayers and thoughts.  


His funeral will be this Monday, November 12th at 11:00 AM, at the Beth Israel 
Memorial Chapel in Boynton Beach, Florida, followed by burial at the Eternal 
Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  My family 
and I will be sitting Shiva (a Jewish mourning ritual at home) Monday evening 
and Tuesday and Wednesday afternoon and evening.


Regards,
Shaun




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Re: [CMLHope] Please answer to see if I’m getting my mail

[myvety2k via CMLHope]

Hi Susan, so sorry to hear that you have had so many problems, it's not a fun 
thing.  My appointment I think is at 10:00 a.m. and will be with Derek's widow 
and his two sons. I don't know what she has planned for me because I only get 
to see them twice a year when I fly in to see Dr. Altman.  I will see what I 
can do.  Will let you know, would like to meet up with you again as Grace is 
staying in Sebring.  My flight leaves at 4:30 p.m. and I have to be back to 
Midway and hour and a haft before take off.  I used to fly into Midway when I 
was flying back in my single days many years ago.


greenie



-Original Message-
From: 'Susan Zimmerman' via CMLHope 
To: cmlhope 
Sent: Thu, Nov 8, 2018 9:11 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hey Greenie!


I come also on Dec. 5th to see Dr. Altman in Chicago.  Let's meet up again!  I 
am also scheduled to see Dr. Kumthekar, a
neurologist right around the same time that day.  Mine is around 1:00 Chicago 
time, so let's discuss privately.  Right now I am
going out of town for two weeksbe back after Thanksgiving.  I have seen so 
many docs lately with severe pain in lower back
and this essential tremor. Also just got put on insulin for diabetes. Very 
small dosage. None are really related to cml, but they keep me hopping.  I fell 
off the chiropractor's table on Monday and really bruised and scraped myself up 
good on my left side.  Keeps life interesting!


Sorry I am in a hurry this morningwill catch up with you all very soon!  
Thinking about you all


18's and love,
Susan Z
-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Thu, Nov 8, 2018 7:46 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit 
and runs, to many people, can't drive anywhere without someone trying to run 
you off the road, cutting in front of you, etc. The list is long. I have 
nothing against snow birds but when they come down to Fort Myers and the beach 
is near they just take over everything.  A ride to Lowes in the summer time 
takes 5 min. winter its takes 15 to 20 min. because of so many cars.  It was 
time to move and NOW I can go Bass Fishing.


greenie



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 7, 2018 1:18 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hi all
Good to hear from you. 
Has anyone heard from Marty?
Do you like Sebring Greenie?
This thyroid disease is getting me down.  I want to sleep all day and wake up 
around midnight.  It’s awful!!!
Pray that I will get it straightened out soon 
Have a safe trip Greenie and I hope you can get together with Beth. 
Love you so very much.  
Jeanie


My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope  
wrote:



i Hi Greenie, Congrats on your new home! And the bass boat So good to hear 
from you. Are you flying in on 
Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have 
dinner together Tuesday evening? I could meet you near Northwestern? I would 
love  to meet you and Grace if she is coming. Let me know...you can email at my 
email. bkbar...@aol.com


Thanks!  


18's Beth



-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Tue, Nov 6, 2018 6:07 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. 
Purchased a home there, Grace purchased me a Tracker bass boat so that I can go 
fishing, of course I'm making the payments.(smile).  Will be flying into 
Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving 
thing (Blood Work). another smile.  Will let you all know how things turn out. 
Stay warm if you live North and Cool if you live South. Take care everyone.


Greenie



-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Mon, Nov 5, 2018 12:06 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Dear Jeanie,


Just wanted to say I am here, thinking of you and everyone else... The year is 
slipping by...and next week snow flurries in Chicago. Soon it will be 
Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid 
troubles.. Hopefully they can help you get with the right meds...Ggod 
endocrinologist will guide you!!! You have had more than your share of health 
problems.. You are a real trouper!! Love your positive attitude. Remember to 
advocate for yourself. If you are not satisfied...or feel worse...keep

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[myvety2k via CMLHope]

Well my CML friends, I'm on my 18 1/2 year on Gleevec and still pumping blood.

greenie



-Original Message-
From: bkbarney via CMLHope 
To: cmlhope ; wa2yyx 
Sent: Sat, Mar 10, 2018 8:41 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic


Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else 
who am forgetting because of my chemo brain. I am here, think about everyone 
often...had a bad flu season...really starting to feel better only nowWow17 
years for both Kristen and Jeanie!! Congrats...I just hit 8 years on February 
12thTime marches on..so glad to be here with all of you...


My latest blood work came back undetectable...so I was very happy to see 
thatstill navigating the severe muscle fatigue, deterioration issues, and 
some heart sprycel related stuff..but I am truly blessed to be here...and to 
still be able to work


love to all of you out there.the glass is half full in Chicago!


18's
Beth



-Original Message-
From: 'Susan Zimmerman' via CMLHope 
To: wa2yyx ; cmlhope 
Sent: Sat, Mar 10, 2018 4:18 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic



For me it's been 13 years.
18's,
Susan F. Zimmerman



On Saturday, March 10, 2018 Marty Gartenberg  wrote:


Hi Jeanie,


Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
catching up with me? 30 years for me.
Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
along all of you people out 
there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A


18's,


Marty 



On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
 wrote:


I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough ride. 
How bout you! 

My Motto:
Faith and Pills
With Love
\uD83D\uDC2018's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL


On Mar 10, 2018, at 2:10 PM, Kristin Lieberman  
wrote:



I’m here. Celebrating my 17th year as a CML survivor!


Kristin 



Sent from my iPhone

On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:



  

  

  
cmlhope@googlegroups.com
  
  
Google Groups  
  
  

  

  
  
  Topic digest
  View all topics  
  
  
Hello -  1 Update

  
Hello
  
  

  Marty Gartenberg : Mar 09 04:12PM -0500 
   

Hello, hello... Is anyone out there?
 
18's,
 
Marty
  
  
  
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You received this message 

Re: [CMLHope] CML and Gleevec-Thankful for another year

[Myvety2k via CMLHope]

Happy New  Years to all of my CML and care takers friends.  
 
greenie
 
 
In a message dated 12/31/2017 3:14:57 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Happy New Year to all. Let's pray the new year brings in much less pain  
and a more enjoyable life. Thanks Marty for the advice about pain. I'm gonna  
talk it over with my new doctor.  Fireworks gonna keep me awake I'm sure.  
Love you so very much.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 29, 2017, at 12:25 PM, Marty Gartenberg  wrote:







On Fri, Dec 29, 2017 at 12:21 PM, Marty Gartenberg   
wrote:

Hi Jeanie,  


To answer your question about what i do for pain. It depends on what  kinds 
of pain that i am having and it's intensity and how long it lasts.  If it's 
light to moderate then i  just try to relax my mind and try  to deal with 
but severe pain must be dealt with but i try not to use any  opiates but try 
anything else that may help me but some times i have to  use some opiates 
but not for a long time.


Here is a joke for better words to use. I went to the doctor because  i 
hurt my leg every time my fingers touch my leg.


No problem says the doctor and he takes out a hammer and hits my  hand. I 
yell out why did you do that, now my hand hurt so badly, my leg  doesn't hurt 
as bad as my hand... Exactly says the doctor.


18's


Marty


PS Yes I do remember Millie

 
 

On Fri, Dec 29, 2017 at 9:33 AM, 'Jeanie' via  CMLHope 
 wrote:


Hi Elizabeth and thanks for the uplift. My dryer just decided to  hit the 
dust probably just old age like me. Hehe. Wonderful day with  beautiful 
weather.  When I would tell my doctor I was old he would  say he didn't want to 
hear about age. He is in his 70s and still going  strong.  Well he is 
retiring and I wish him all the best.  He  is Dr Balducci head of the senior 
department of Moffitt Cancer center.  What is neat is that his wife is head of 
senior department of the  veterans department of the veterans hospital that is 
located right up  the street from Moffitt.  My right hand is still hurting 
and always  wonder what is next. 




How  many here have the tradition of black eyed peas and ham hock?   Don't 
know why. My sister had 4 wheelers and I got talked into taking a  ride. I 
was scared to death.  They had 5 acres of woods and away we  went. Fun ride 
but scary none the less. 


Marty,  what do you do for pain?  Remember Milly?  She used a lot of  heat 
and cold with opiates. I think that was before they cracked down on  
opiates.   


Happy  New Year everyone!




My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 26, 2017, at 9:46 PM, Marty Gartenberg   wrote:




Hi  Elizabeth W,  


Ever think that Nick is here for a  reason? Well he is for sure. A very 
blessed healthy and happy New Year  to him, and you as well... I would like to 
teach you a word: Bashert  meaning: It's meant to be.


18's, it's meaning is  LIFE.


Marty


On Tue, Dec 26, 2017 at 9:36 PM, Nick  wrote:


Hi, Nick's been on Gleevec since 2003.  He's on 400 of  Gleevec, too.  Yes, 
he's noticed he's dropping things from his  fingers.  We're not sure just 
why, but try to not hold anything  which might break or spill.


We hope everyone had many blessings from your Christmas or  Holiday Season. 
 We have been counting the biggest  blessings  of being together another 
year, having good contact  with our families,  having a faith community, 
having food,  ability to see, hear, think, and thank God for another day.  We  
try to be good listeners and encouragers to others. Pray for each of  you as 
we read your name on the sites. Having had a wonderful  Oncologist and Staff 
who are so supportive of every patient who is  in their care.


t
This site has been a huge encouragement as Nick goes through  stages of CML 
and Gleevec..  
As ever, Elizabeth W.





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Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Sorry Marty, I guess my fingers are just to fast for my  keyboard.  I can't 
see what I'm saying cuss my eye's are in the  way.
 
greenie
 
 
In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
 
 
 
 
Mary, you got  that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary? I  
am kind of confused because I still pee the same. Did you leave out the T 
on  purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is the  
stronger of our spices? For one, and I know this for a fact because their 
Bone  Marrow is usually stronger then the male's is? Take for example a Cord 
Blood  Transplant is taken from the woman's umbilical cord right after the 
fetus is  born then cryogenic-ally frozen for future use, and can last up to 40 
years  while it is frozen. I happen to know Stephan Sprauge who had one and 
wrote a  book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 




 

Attachments area

_Preview YouTube video  Stephen Sprague  
 

 


 
 

 
 
Stephen  Sprague




 



_ (https://www.youtube.com/watch?v=TEPzUdeS7gM=0) 






 
 





On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg  <wa2...@gmail.com> 
wrote:









Mary, you  got that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary?  I 
am kind of confused because I still pee the same. Did you leave out the T  
on purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is  the 
stronger of our spices? For one, and I know this for a fact because  their 
Bone Marrow is usually stronger then the male's is? Take for example a  Cord 
Blood Transplant is taken from the woman's umbilical cord right after  the 
fetus is born then cryogenic-ally frozen for future use, and can last up  to 
40 years while it is frozen. I happen to know Stephan Sprauge who had one  
and wrote a book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 
 

On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Mary, you got that right.
 
greenie
 
 

 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life  doesn't get 
better.   


So Jeanie, you have this pain in you right little finger (we used  to call 
it our (pinkey) Hum right little finger? Well so do i. But not  my legs, 
hands and most of my bones BUT my left elbow and my neck really  hurt but 
especially my left elbow but they have a right to. All of them  except my left 
little finger. Do you know why? Well the little finger  has my friend living 
inside of it. His name is Author Right-es   But the rest were severely broken 
when i broke my neck in three  places along with my left elbow and had 
these metal plates, screws, nuts  and matching bolt put inside of me. Can you 
imagine that nuts and bolts?  Oh at times i have a pain in my butt but that 
doesn't really  count.


So maybe we should consider that we are getting older or you on  TKI's or 
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well  for the most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh  yea I 
almost forgot we can eat and drink. So let this be a lesson for  us, right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Hi all,
Have  you considered Moffitt cancer center. I go there and like it. You go  
to the blood center and get your blood checked and then in about an  hour 
they are faxed over to doctor and you see him. I go every three  months. 
I  was wonder if any of you have your bones aching?  My right little  
finger and hand ache and legs hurt sometimes at night. I've been  fighting cml 
for almost 14 years and never had this. Blood counts are  all good. Thanks 
all.  

My Motto:  
Fai

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Sorry, Marty.  My fingers are just to fast for my  keyboard.
 
greenie
 
 
In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
 
 
 
 
Mary, you got  that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary? I  
am kind of confused because I still pee the same. Did you leave out the T 
on  purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is the  
stronger of our spices? For one, and I know this for a fact because their 
Bone  Marrow is usually stronger then the male's is? Take for example a Cord 
Blood  Transplant is taken from the woman's umbilical cord right after the 
fetus is  born then cryogenic-ally frozen for future use, and can last up to 40 
years  while it is frozen. I happen to know Stephan Sprauge who had one and 
wrote a  book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 




 

Attachments area

_Preview YouTube video  Stephen Sprague  
 

 


 
 

 
 
Stephen  Sprague




 



_ (https://www.youtube.com/watch?v=TEPzUdeS7gM=0) 






 
 





On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg  <wa2...@gmail.com> 
wrote:









Mary, you  got that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary?  I 
am kind of confused because I still pee the same. Did you leave out the T  
on purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is  the 
stronger of our spices? For one, and I know this for a fact because  their 
Bone Marrow is usually stronger then the male's is? Take for example a  Cord 
Blood Transplant is taken from the woman's umbilical cord right after  the 
fetus is born then cryogenic-ally frozen for future use, and can last up  to 
40 years while it is frozen. I happen to know Stephan Sprauge who had one  
and wrote a book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 
 

On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Mary, you got that right.
 
greenie
 
 

 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life  doesn't get 
better.   


So Jeanie, you have this pain in you right little finger (we used  to call 
it our (pinkey) Hum right little finger? Well so do i. But not  my legs, 
hands and most of my bones BUT my left elbow and my neck really  hurt but 
especially my left elbow but they have a right to. All of them  except my left 
little finger. Do you know why? Well the little finger  has my friend living 
inside of it. His name is Author Right-es   But the rest were severely broken 
when i broke my neck in three  places along with my left elbow and had 
these metal plates, screws, nuts  and matching bolt put inside of me. Can you 
imagine that nuts and bolts?  Oh at times i have a pain in my butt but that 
doesn't really  count.


So maybe we should consider that we are getting older or you on  TKI's or 
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well  for the most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh  yea I 
almost forgot we can eat and drink. So let this be a lesson for  us, right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Hi all,
Have  you considered Moffitt cancer center. I go there and like it. You go  
to the blood center and get your blood checked and then in about an  hour 
they are faxed over to doctor and you see him. I go every three  months. 
I  was wonder if any of you have your bones aching?  My right little  
finger and hand ache and legs hurt sometimes at night. I've been  fighting cml 
for almost 14 years and never had this. Blood counts are  all good. Thanks 
all.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Mary, you got that right.
 
greenie
 
 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't  get 
better.   


So Jeanie, you have this pain in you right little finger (we used to call  
it our (pinkey) Hum right little finger? Well so do i. But not my legs, 
hands  and most of my bones BUT my left elbow and my neck really hurt but 
especially  my left elbow but they have a right to. All of them except my left 
little  finger. Do you know why? Well the little finger has my friend living 
inside of  it. His name is Author Right-es   But the rest were severely broken 
 when i broke my neck in three places along with my left elbow and had 
these  metal plates, screws, nuts and matching bolt put inside of me. Can you 
imagine  that nuts and bolts? Oh at times i have a pain in my butt but that 
doesn't  really count.


So maybe we should consider that we are getting older or you on TKI's or  
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well for the  most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh yea I  
almost forgot we can eat and drink. So let this be a lesson for us,  right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com> wrote:


Hi all,
Have you considered Moffitt  cancer center. I go there and like it. You go 
to the blood center and get  your blood checked and then in about an hour 
they are faxed over to doctor  and you see him. I go every three months. 
I was wonder if any of you  have your bones aching?  My right little finger 
and hand ache and legs  hurt sometimes at night. I've been fighting cml for 
almost 14 years and  never had this. Blood counts are all good. Thanks all. 
 

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 21, 2017, at 6:56 PM, Marty Gartenberg <wa2...@gmail.com>  wrote:




Listen Greenie,  


This is what i do because of a promise that i once made to GOD. Let  me 
tell you about this.
When i was about to receive my total body radiation almost 30 years  ago,


just before they were about to close and lock that radiation  chamber door 
i got down on my knees clasped my hands in front of me and  prayed to GOD 
asking HIM if he would spare me i would help people that  were in my situation 
that i would try to help them. So far i have helped  1,286 people in the 
past 30 years, and wrote my journal about each and  every one of them. This 
will never be published because of confidentiality  reasons, but on occasion i 
will send some of them parts of my book in  order to try and help them.


Listen i am no saint just a plain human being but someone that once  made a 
promise to GOD and i am still here after many many death defying  things 
that i have gone trough. And that is why i do what i promised to  do. I hope 
that you understand why i do what i do...


There is also why i write 18's when ever i end any posts that i make,  
because that is what i believe. 18's to me represents LIFE.


If you care to send me your personal email address i would like to  send 
you something. Mine is wa2yyx@gmail,com


18's,


Marty 


On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via  CMLHope 
<cmlhope@googlegroups.com> wrote:


Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work  last month and he seems to be 
O.K. with the results.  I do have the  paper work and will scan it and send 
it out so you can check it  out.  I want to thank you so much, you have 
made me feel so much  better and I will listen to what you wrote me.  Again I 
want to  thank you.
 
Greenie
 
 

 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,  
wa2...@gmail.com  writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are  you so 
worried? When people worry about things that they have little  or no control 
over then it not only effects your mind but also your  body. I know all 
about this because that is exactly what i used to do  and i learned to direct 
my 
mind in more productive ways. Now just try  to relax and get yourself going 
in the right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source  
illuminates objects' true colors. Our LED lights have CRI values  of up to 
98, indicating that our LED lights are able to produce white  light that 
approximates halogen or incandescent lighting and natural  daylight.



It however has some effect on your kidneys  because if they are hav

Re: [CMLHope] anemia

[Myvety2k via CMLHope]

I would rather go back to Chicago for my test but the cost to  fly at this 
time of the year is very costly.  I was just their on Dec 6 and  it was 
close to $600.  I checked the fly's for month of Jan and I can fly  their for 
$40 going but at $445 back.Have to see and Oncologist  on Jan 2nd and see if I 
can get it done at Lee Health Center a few miles from my  home.
 
greenie
 
 
In a message dated 12/22/2017 4:38:43 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Pcr
Hi Greenie
Doctors at Moffitt don't do BMA. They do PCR blood  test. My doctor Dr 
Baldicci, 
Is my doctor and head of the senior oncology center  of Moffitt and they 
are't doing BMA 
So instead of drawing 2 vials blood they draw  three. 
Dr Balducci is retiring the first of the year but  there are many 
specialist there. Good luck 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 22, 2017, at 3:47 PM, Marty Gartenberg  wrote:




Hi Ana,

It's not so much the question of changing one  of her TKI's, from Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are her  kidneys? 
What 
her Creatinine level are right now? And has she had a CBC  (Complete Blood 
Count lately? Also if she did what were the results? You  already know but 
what were they actually? Can  you specify what these counts were or are?? 


One  other thing, is his or her doctor, i assume that he or she is a 
qualified  Oncologist? And are any of their specialties for-instance is  CML?
Also how many mg of Gleevec is she taking and for  how long? I know that 
you mentioned that it was for the past 14 years, but  has she ever taken a 
"vacation" from it, and if so did she have any  effects of it reappearing ?  
Has she been tested for ABL/PCR  lately and what were her results? 


Finally,  has your mother seen a Nephroloigst lately? All of these 
questions are very  important and before any doctor/s makes any decisions about 
changing  any of her TKI's you have to know exactly what these answers are 
before  anyone can give you any advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because you
have the right to ask questions  and those that you have requested 
them from have the oblation to  answer them.  


If you get the chance would you  kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty


On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg   wrote:

Hi Ana,

It's not so much the question of changing one of her TKI's, from  Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are  her kidneys? 
What 
her Creatinine level are right now? And has she had a  CBC (Complete Blood 
Count lately? Also if she did what were the results?  You already know but 
what were they actually? Can  you specify what these counts were or are?? 


One other thing, is his or her doctor, i assume  that he or she is a 
qualified Oncologist? And are any of their specialties  for-instance is CML?
Also how many mg of Gleevec is she taking and for  how long? Has she been 
tested you for ABL/PCR lately and what were her  results were her results?


Finally, has your mother seen a Nephroloigst  lately? All of these 
questions are very important and before any doctor/s  makes any decisions about 
changing any of her TKI's you have to know  exactly what these answers are 
before anyone can give you any  advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because  you
have the right to ask  questions and those that you have requested 
them from have the oblation  to answer them.  


If you get the chance would  you kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty











 

On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:


 
 
Hello, 
my mum is suffering from  very low hemoglobine and very low iron. 
any of you happen the  same? 
another question is what  do you think about bosutinib, after 14 years in 
gleevec the doc. is  thinking of changing to bosutinib 
what about side effects  

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

[Myvety2k via CMLHope]

so i know that  having only one kidney is
doing very well for me, and no more  dialysis for me anymore.

What you did mention is that  your counts are now at "My white count is find
at 5.8). Iron was  88 (50-212), Iron binding capacity was 281 (250 -
450)".  Which
are quite acceptable and very good for  you.

And speaking about your kidneys let me give you  some information. When my
kidneys started to fail i noticed that  my Hemoglobin also was dropping
especially after i began to  receive dialysis. They were at 14 then would
gradually drop to  being 9.9 and that was the magic bullet that triggered
that i  would be able to start receiving Procrit or Epogin injections  which
brought my Hemoglobin to usually 11 and it would take about  a week. Then a
few weeks later another shot and so on. The reason  why is that your kidneys
produce a *hormone that is sent to your  bone marrow that stimulates Red
Blood cells into your bone  marrow.
**Erythropoietin* (*EPO*) is a hormone produced by the  kidney that promotes
the formation of red blood cells by the bone  marrow. The kidney cells that
make *erythropoietin* are sensitive  to low oxygen levels in the blood that
travels through the  kidney.

This is what happened to me so i know what i am  talking about. Ever since i
received my kidney transplant about  two and a half years ago my Hemoglobin
has gotten to be around  14

Now i am not saying that you have any problems with  your kidneys but i am
puzzled why did your doctor mention about  CRI? As I mentioned why not go
to see a Nephrologist . Couldn't  hurt.

Another suggestion that you have already  mentioned, and because you have a
smart doctor looking after you  why spend over $600 to fly to Chicago when
you have loads of very  fine doctors in Florida especially in your area?

Now I  have given you a lot of useful information and hopefully it will  
help
you and do you know why? It's because i was there and had to  go through all
of this and i learned what i had to do, and  besides your worth it! Yes you
are. Just as was my friend Lottie.  She did a lot of research as well in her
time which i never  forgot... In fact so did Zavie,

Now finally, since AOL  is going out then you already did the right thing by
switching  over to another (FREE, I love that four letter F letter  word)
internet provider. You also may want to get another F word  like gmail just
in case as a backup.

Please, please  Greenie try to stop worrying, just take it one day at a
time. You  know it will all work  out.

18's,

Marty

On Thu, Dec  21, 2017 at 7:10 AM, Myvety2k via CMLHope <
myvet...@aol.com: Dec 21 04:28PM  -0500 

Marty, I want to thank you for your fast reply,  I hear you. I do have a 
Nephrologist and he had me get some  blood work last month and he seems to 
be 
O.K. with the results.  I do have the paper work and will scan it and send 
it out so you  can check it out. I want to thank you so much, you have 
made me  feel so much better and I will listen to what you wrote me. Again 
I  
want to thank you.

Greenie


In a message dated  12/21/2017 11:31:29 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hi Greenie, 


First of  all, you mention that you are worried. Why may i ask are you so  
worried? When people worry about things that they have little or  no 
control 
over then it not only effects your mind but also your  body. I know all 
about 
this because that is exactly what i used  to do and i learned to direct my 
mind in more productive ways.  Now just try to relax and get yourself going 
in the right  direction. 


Now you mention about CRI so read  this..


CRI (color rendering index) is a  measure of how accurately a light source 
illuminates objects'  true colors. Our LED lights have CRI values of up to 
98,  indicating that our LED lights are able to produce white light that  
approximates halogen or incandescent lighting and natural  daylight.



It however has some  effect on your kidneys because if they are having 
problems than  it is a very simple thing to just go to a Nephrologist and 
see  
what is happening and why.


As you  mentioned the normal Hemoglobin count for women should be from  
around 13 to 17 however not necessarily for men because men  don't have 
their 
time of the month as woman do, so men require a  bit less of Hemoglobin. 


Now a count of 10.7  shows that you are enemic and that can from a verity 
of  different things. One being the effects from your TKI being Gleevic  
which 
i think may be the cause, now mind you I am not a doctor  but someone that 
does a lot of research into things that i have  already been through.


Another thing would be  kidney problems which i kind of doubt because your 
doctors  haven't mentioned it. Do you know what your  


Levels of creatinine in the blood reflect  both the amount of muscle a 
person has and their amount of  kidney function. Most men with normal 
kidney 
function have  approximately 0.6 to 1.2 milligrams/deciliters (mg/dL)

[CMLHope] CCI12222017.pdf

[Myvety2k via CMLHope]

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CCI1017.pdf
Description: Adobe PDF document

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

myvet...@comcast.net   Cell phone 219-973-8717
 
greenie
 
 
 
In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Listen Greenie,  


This is what i do because of a promise that i once made to GOD. Let me  
tell you about this.
When i was about to receive my total body radiation almost 30 years  ago,


just before they were about to close and lock that radiation  chamber door 
i got down on my knees clasped my hands in front of me and prayed  to GOD 
asking HIM if he would spare me i would help people that were in my  situation 
that i would try to help them. So far i have helped 1,286 people in  the 
past 30 years, and wrote my journal about each and every one of them. This  
will never be published because of confidentiality reasons, but on occasion i  
will send some of them parts of my book in order to try and help them.


Listen i am no saint just a plain human being but someone that once made  a 
promise to GOD and i am still here after many many death defying things 
that  i have gone trough. And that is why i do what i promised to do. I hope 
that  you understand why i do what i do...


There is also why i write 18's when ever i end any posts that i make,  
because that is what i believe. 18's to me represents LIFE.


If you care to send me your personal email address i would like to send  
you something. Mine is wa2yyx@gmail,com


18's,


Marty 


On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work last  month and he seems to be 
O.K. with the results.  I do have the paper  work and will scan it and send 
it out so you can check it out.  I want  to thank you so much, you have 
made me feel so much better and I will listen  to what you wrote me.  Again I 
want to thank you.
 
Greenie
 
 

 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are you  so 
worried? When people worry about things that they have little or no  control 
over then it not only effects your mind but also your body. I know  all 
about this because that is exactly what i used to do and i learned to  direct 
my 
mind in more productive ways. Now just try to relax and get  yourself going 
in the right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source 
illuminates  objects' true colors. Our LED lights have CRI values  of up to 
98, indicating that our LED lights are able to produce white  light that 
approximates halogen or incandescent lighting and natural  daylight.



It however has some effect on your kidneys because  if they are having 
problems than it is a very simple thing to just go to a  Nephrologist and  see 
what is happening and why.


As you mentioned the normal Hemoglobin count for  women should be from 
around 13 to 17 however not necessarily for men  because men don't have their 
time of the month as woman do, so men require  a bit less of Hemoglobin.  


Now a count of 10.7 shows that you are enemic and  that can from a verity 
of different things. One being the effects from  your TKI being Gleevic which 
i think may be the cause, now mind you I am  not a doctor but someone that 
does a lot of research into things that i  have already been through.


Another thing would be kidney problems which i  kind of doubt because your 
doctors haven't mentioned it. Do you know what  your 


Levels of creatinine in the  blood reflect both the amount of muscle a 
person has and their amount of  kidney function. Most men with normal kidney 
function have approximately  0.6 to 1.2 milligrams/deciliters (mg/dL) of 
creatinine. Most women  with normal kidney function have between 0.5 to 1.1 
mg/dL  
of creatinine..


My Creatinine level was 8.2 before i started on my  dialysis and i had to 
go onto dialysis which lasted for four years. Then i  was able to get a 
kidney transplant from a 20 year old  deceased  man who was anonymous, and 
about 
two weeks later  it dropped down to 4.1 and kept dropping to where it is now 
at .8 and it  now stays there. Remember, i have only one kidney while  most 
other  people have two kidneys so i know that having only one kidney is 
doing  very well for me, and no more dialysis for me anymore.


What you did mention is that your counts are now  at   "My white  count is 
find  at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 -  
450)". Which are  quite acceptable and very good for you.


And speaking about your kidneys let me give you  some information. When my 
kidneys started to fail i noticed that my  Hemoglobin also was dropping 
especially after i began to receive dialysis.  They were at 14 then would 
gradually drop to being 9.9 and that was t

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

f research as well in 
her time  which i never forgot... In fact so did Zavie,


Now  finally, since AOL is going out then you already did the right thing 
by  switching over to another (FREE, I love that four letter F letter word)   
internet provider. You also may want to get another F word like gmail just 
in  case as a backup. 


Please, please Greenie try to stop worrying, just take  it one day at a 
time. You know it will all work out.


18's,


Marty  


On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


To all of my CML friends and care givers.
 
I took a flight to Chicago Dec. 6th to see my cancer  Doctor get blood 
work.  A week later she called me to tell me that  my Hemoglobin was down to 
10.7 and the norm is 13.0 - 17.5.  My  Hematocrit was 32.1% and the norm is 
38.0 - 50 %.
She wants me to get a Bone Marrow test here in Florida  because the airfare 
to Chicago would be $601.00. That's not going to  happen.  I'm also taking 
Folic acid for the last 6 months (1mg). Folate  is 16.7 >=5.9.
 
She sent my other cancer Doctor down here a fax as to what  she wants. I 
have and appointment set for Jan. 2 and talk to him about what  to do. (I'm 
worried). She made a note to him that I also have CRI which may  be 
Contributory.
 
So back in 2010 my counts on these two item were  Hemoglobin 13.3 and 
Hematocrit was 39.0. 
 
So back in 2015 my counts on these two items were  Hemoglobin 12.0 and 
Hematocrit was 36.1. So the counts are coming down and I  think it's from the 
Gleevec.
 
My white count is find at 5.8).  Iron was 88  (50-212), Iron binding 
capacity was 281 (250 - 450).
 
So anyone that may have some answers that may make me feel  better just hop 
right it and I will very happy to hear from  you.
 
ALSO, I don't know now to do it but AOL is no longer going  to be as of Jan 
15. My new email address is   (myvet...@comcast.net) and it's free for me 
and much  better.
 
Any feedback would be deeply appreciated.   

Thank you all and have a Very Happy and Safe  Holiday.
 
Greenie for South Fort Myers, FL.
 

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[CMLHope] Questions,

[Myvety2k via CMLHope]

To all of my CML friends and care givers.
 
I took a flight to Chicago Dec. 6th to see my cancer Doctor  get blood 
work.  A week later she called me to tell me that my  Hemoglobin was down to 
10.7 and the norm is 13.0 - 17.5.  My Hematocrit was  32.1% and the norm is 
38.0 - 50 %.
She wants me to get a Bone Marrow test here in Florida because  the airfare 
to Chicago would be $601.00. That's not going to happen.   I'm also taking 
Folic acid for the last 6 months (1mg). Folate is 16.7  >=5.9.
 
She sent my other cancer Doctor down here a fax as to what she  wants. I 
have and appointment set for Jan. 2 and talk to him about what to do.  (I'm 
worried). She made a note to him that I also have CRI which may be  
Contributory.
 
So back in 2010 my counts on these two item were Hemoglobin  13.3 and 
Hematocrit was 39.0. 
 
So back in 2015 my counts on these two items were Hemoglobin  12.0 and 
Hematocrit was 36.1. So the counts are coming down and I think it's  from the 
Gleevec.
 
My white count is find at 5.8).  Iron was 88 (50-212),  Iron binding 
capacity was 281 (250 - 450).
 
So anyone that may have some answers that may make me feel  better just hop 
right it and I will very happy to hear from you.
 
ALSO, I don't know now to do it but AOL is no longer going to  be as of Jan 
15. My new email address is  (myvet...@comcast.net) and  it's free for me 
and much better.
 
Any feedback would be deeply appreciated.  
 
Thank you all and have a Very Happy and Safe  Holiday.
 
Greenie for South Fort Myers, FL.
 

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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

That's O. K. Richard, if you have no humor in your life you  have nothing.
 
greenie
 
 
In a message dated 11/28/2017 11:22:59 P.M. Eastern Standard Time,  
rbhuffm...@gmail.com writes:

WHERE   I hope he doesn't get wet.   Sorry Greenie, I couldn't 
resist...  


Richard H

On Tuesday, November 28, 2017 at 11:29:28 AM UTC-6,  greenie wrote:  
 
Marty, you are outstanding.
 
greenie
 
 
In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, 
wa2...@gmail.com writes:

Susan, no it doesn't mean that you should be expecting a  message from AOL 
is means that you should expecting a message from GOD  wishing you well.  
 


18's,


Marty


On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:



Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Yes I'm afraid they will lose s lot of customers with so many  free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Thank you, I'll give it a try.  I don't  understand something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


DG:


I'm telling you this doesn't make any sense.  Call them  up and complain.  
We've had AOL since it first began  service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




It may be free but not my email as of the 15th  of Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We  just pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and  could never find 
any company I liked better. They are still  letting me use this email and you 
can use email free.  
I'll note that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com>  wrote:




As of December 5th I will no longer be  using AOL.  They have gone up to 
$30.00 per month and  Comcast is free for me so my new email address will  be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie)  Greenberg
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F

Re: [CMLHope] Email change

[Myvety2k via CMLHope]

 
In a message dated 11/28/2017 11:22:59 P.M. Eastern Standard Time,  
rbhuffm...@gmail.com writes:

WHERE   I hope he doesn't get wet.   Sorry Greenie, I couldn't 
resist...  


Richard H

On Tuesday, November 28, 2017 at 11:29:28 AM UTC-6,  greenie wrote:  
 
Marty, you are outstanding.
 
greenie
 
 
In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, 
wa2...@gmail.com writes:

Susan, no it doesn't mean that you should be expecting a  message from AOL 
is means that you should expecting a message from GOD  wishing you well.  
 


18's,


Marty


On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:



Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Yes I'm afraid they will lose s lot of customers with so many  free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Thank you, I'll give it a try.  I don't  understand something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


DG:


I'm telling you this doesn't make any sense.  Call them  up and complain.  
We've had AOL since it first began  service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




It may be free but not my email as of the 15th  of Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We  just pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and  could never find 
any company I liked better. They are still  letting me use this email and you 
can use email free.  
I'll note that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com>  wrote:




As of December 5th I will no longer be  using AOL.  They have gone up to 
$30.00 per month and  Comcast is free for me so my new email address will  be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie)  Greenberg
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Re: [CMLHope] Hospital for Thanksgiving.

[Myvety2k via CMLHope]

Thank you so much Beth.  The kidney problem I'll just  haft to live with 
but the lost of Derek I'm having a tuff time dealing with it  but I will get 
through it.
 
Greenie
 
 
In a message dated 11/28/2017 7:29:08 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Greenie,  


I am thinking about you too and hoping and praying that your kidneys will  
hold. It is a scary thing to have to live with fear and uncertainty. We are  
all with you.. I cannot imagine what it is like to lose a son, but I think 
you  have a great deal of soul and resiliency to survive such a lose...and I 
 imagine that you will navigate the kidney issues with the same grace you 
and  your sweetie have navigated this past year. Grief can be so isolating 
and  lonely..especially during the holidays.and so can living with a life  
threatening illness...as long as you are here, we are never alone.I am  
holding you both
and Richard..and Marty, and Susan and Jeanie and and everyone else  reading 
this


stay positive...soak in the genuine love of this grouplike the suns  
rays...


love, and 18's Beth


-Original  Message-
From: 'Susan Zimmerman' via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Tue, Nov 28, 2017 3:58  pm
Subject: Re: [CMLHope] Hospital for Thanksgiving.


Dear Richard  and Greenie,  


You two are fighters.  I know you can beat this attack on your  kidneys by 
being patient and eating and drinking what they tell you to.
So sorry, I will be praying for you both.


18's and hugs,
Susan Z



-Original  Message-
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To:  cmlhope <cmlhope@googlegroups.com>
Sent:  Tue, Nov 28, 2017 8:33 am
Subject: Re: [CMLHope] Hospital for  Thanksgiving.


 
Richard, I hope everything works out for you I am having the  same problem 
because I have stage 3 kidney disease and it's  scary.  
 
greenie
 
 
In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, 
rbhuffm...@gmail.com writes:

Well riding the tide just didn't work out.  I  was having problems Sunday 
the ninteenth with kisneys & such.   Monday Morning all fluids stopped.  My 
Son was in and watched over me  and when I did not recover on Tuesday he took 
me to Doctor for testing and  results sent me to hospital.  We still have 
not found the current  problem with Kidneys, but did have a severe infection. 
 I am slowly  recovering and back at home.  I have Cronic Kidney desiease 
beaacuse of  TOO Many Powerful drugs.  This is the first flair up and 
everything the  Drs. want to hear just aren't there for them to work with.  
Seems 
like  I am always a speciman for them to stand and scratch their chin and 
always  say "I've never seen anything like that!"   


18's
Richard H.


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Re: [CMLHope] Hospital for Thanksgiving.

[Myvety2k via CMLHope]

Thank you Susan..
 
greenie
 
 
In a message dated 11/28/2017 5:11:34 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Dear Richard and Greenie,  


You two are fighters.  I know you can beat this attack on your  kidneys by 
being patient and eating and drinking what they tell you to.
So sorry, I will be praying for you both.


18's and hugs,
Susan Z



-Original  Message-
From: Myvety2k via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Tue, Nov 28, 2017 8:33  am
Subject: Re: [CMLHope] Hospital for Thanksgiving.


 
Richard, I hope everything works out for you I am having the  same problem 
because I have stage 3 kidney disease and it's  scary.  
 
greenie
 
 
In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, 
rbhuffm...@gmail.com writes:

Well riding the tide just didn't work out.  I  was having problems Sunday 
the ninteenth with kisneys & such.   Monday Morning all fluids stopped.  My 
Son was in and watched over me  and when I did not recover on Tuesday he took 
me to Doctor for testing and  results sent me to hospital.  We still have 
not found the current  problem with Kidneys, but did have a severe infection. 
 I am slowly  recovering and back at home.  I have Cronic Kidney desiease 
beaacuse of  TOO Many Powerful drugs.  This is the first flair up and 
everything the  Drs. want to hear just aren't there for them to work with.  
Seems 
like  I am always a speciman for them to stand and scratch their chin and 
always  say "I've never seen anything like that!"   


18's
Richard H.


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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

As my X wife would always tell me (I don't have any  problems you have them 
all).  She ends up an alcoholic, divorced  and lost custody of there son 
which her lawyer husband has.  As they say  what goes around come's around.
 
 
greenie
 
 
 
 
In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Greenie,  


We are all outstanding, we just have to open up our eyes to see it.  
Remember we all have our different problems but it is the ways that we must  
deal 
with them. Life is a learning process.


18's


Marty


On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Marty, you are outstanding.
 
greenie
 
 
In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Susan, no it doesn't mean that you should be expecting a  message from AOL 
is means that you should expecting a message from GOD  wishing you well.  
 


18's,


Marty


On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:

 
 

Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Yes I'm afraid they will lose s lot of customers with so many  free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Thank you, I'll give it a try.  I don't  understand something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


DG:


I'm telling you this doesn't make any sense.  Call them  up and complain.  
We've had AOL since it first began  service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




It may be free but not my email as of the 15th  of Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We  just pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and  could never find 
any company I liked better. They are still  letting me use this email and you 
can use email free.  
I'll  note that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com>  wrote:




As of December 5th I will no longer be  using AOL.  They have gone up to 
$30.00 per month and  Comcast is free for me so my new email address will  be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie)  Greenberg
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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

Very True...
 
greenie
 
 
In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Greenie,  


We are all outstanding, we just have to open up our eyes to see it.  
Remember we all have our different problems but it is the ways that we must  
deal 
with them. Life is a learning process.


18's


Marty


On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Marty, you are outstanding.
 
greenie
 
 
In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Susan, no it doesn't mean that you should be expecting a  message from AOL 
is means that you should expecting a message from GOD  wishing you well.  
 


18's,


Marty


On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:

 
 

Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Yes I'm afraid they will lose s lot of customers with so many  free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Thank you, I'll give it a try.  I don't  understand something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


DG:


I'm telling you this doesn't make any sense.  Call them  up and complain.  
We've had AOL since it first began  service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




It may be free but not my email as of the 15th  of Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We  just pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and  could never find 
any company I liked better. They are still  letting me use this email and you 
can use email free.  
I'll  note that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com>  wrote:




As of December 5th I will no longer be  using AOL.  They have gone up to 
$30.00 per month and  Comcast is free for me so my new email address will  be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie)  Greenberg
-- 
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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

Marty, you are outstanding.
 
greenie
 
 
In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Susan, no it doesn't mean that you should be expecting a message  from AOL 
is means that you should expecting a message from GOD wishing you  well.  
 


18's,


Marty


On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope  
<cmlhope@googlegroups.com> wrote:



Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com> wrote:




Yes I'm afraid they will lose s lot of customers with so many free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com> wrote:




Thank you, I'll give it a try.  I don't  understand something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:


DG:


I'm telling you this doesn't make any sense.  Call them up  and complain.  
We've had AOL since it first began service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:




It may be free but not my email as of the 15th of  Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard  Time, 
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We just  pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and  could never find 
any company I liked better. They are still  letting me use this email and you 
can use email free.  
I'll note  that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com>  wrote:




As of December 5th I will no longer be using  AOL.  They have gone up to 
$30.00 per month and Comcast  is free for me so my new email address will be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie)  Greenberg
-- 
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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

Susan, I think you should have gotten one by  now.
 
greenie
 
 
In a message dated 11/28/2017 10:01:30 A.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:


Does this mean I should be expecting a message from AOL soon?


Hugs,
Susan Rosenthal

On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




Yes I'm afraid they will lose s lot of customers with so many free.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
Thank you, I'll give it a try.  I don't understand  something to do with 
AIM.
 
greenie
 
 
In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, 
cmlhope@googlegroups.com  writes:


DG:


I'm telling you this doesn't make any sense.  Call them up and  complain.  
We've had AOL since it first began service.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
It may be free but not my email as of the 15th of  Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com  writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We just  pay $4.99 a month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and could  never find 
any company I liked better. They are still letting me  use this email and you 
can use email free.  
I'll note that.  Thanks. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
As of December 5th I will no longer be using  AOL.  They have gone up to 
$30.00 per month and Comcast is  free for me so my new email address will be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie) Greenberg
-- 
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Re: [CMLHope] Hospital for Thanksgiving.

[Myvety2k via CMLHope]

Richard, I hope everything works out for you I am having the  same problem 
because I have stage 3 kidney disease and it's  scary.  
 
greenie
 
 
In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time,  
rbhuffm...@gmail.com writes:

Well riding the tide just didn't work out.  I  was having problems Sunday 
the ninteenth with kisneys & such.  Monday  Morning all fluids stopped.  My 
Son was in and watched over me and when I  did not recover on Tuesday he took 
me to Doctor for testing and results sent  me to hospital.  We still have 
not found the current problem with  Kidneys, but did have a severe infection. 
 I am slowly recovering and  back at home.  I have Cronic Kidney desiease 
beaacuse of TOO Many  Powerful drugs.  This is the first flair up and 
everything the Drs. want  to hear just aren't there for them to work with.  
Seems 
like I am always  a speciman for them to stand and scratch their chin and 
always say "I've never  seen anything like that!"   


18's
Richard H.

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[CMLHope] Fwd: Check out AIM will be discontinued on December 15, 2017 - AOL Help

[Myvety2k via CMLHope]

This is the message that I received AOL.
 
greenie
 
  

 From: myve...@aol.com
To: myvet...@aol.com
Sent: 11/27/2017 7:43:31 A.M.  Eastern Standard Time
Subj: Check out AIM will be discontinued on December  15, 2017 - AOL Help


_AIM will be discontinued  on December 15, 2017 - AOL Help_ 
(https://help.aol.com/articles/aim-discontinued)  

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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

It may be free but not my email as of the 15th of  Dec.
 
dg
 
 
In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:


Greenie and others:


AOL is freewhat are you guys talking about?  We just pay $4.99 a  month 
to receive live support.


Hugs,
Susan Rosenthal

On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com>  wrote:




I saw that Greenie. Makes me mad. I paid years ago and could never find  
any company I liked better. They are still letting me use this email and you  
can use email free.  
I'll note that.  Thanks. 

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
As of December 5th I will no longer be using AOL.   They have gone up to 
$30.00 per month and Comcast is free for me so my new  email address will be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie) Greenberg
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Re: [CMLHope] Email change

[Myvety2k via CMLHope]

I received and notice that as of Dec 15th no more  emails.  I have been 
with them from the start going way, way back.  I  know I'm going to loose a lot 
of information.  Where I live they give me  free Comcast T.V. but I have to 
pay for extra's.  Every time you turn  around something goes up, water, 
electric, car insurance, etc. it's a pain when  your on a fixed income. Not 
much you can do about it. Now Chicago want's me to  fly into Chicago every 3 
months for meds, blood work and see the  Doctor and she give's me about 2 min. 
of her time and then moves on out the  door.  It cost between $400 to $500 
to fly out of Fort Myers. Have to rent  a car, gas, eat, parking, etc. A 
bottle of water at the airport  is $4.00.   I have to see her the first of 
December I'm going to  sit her down and have a nice talk with her. I moved down 
here because they  changed my getting blood work every 3 months that's why I 
moved down here. They  called me July 25th and told it's changed to every 3 
months again. Will  thanks a lot for the good news,  I AM NOT HAPPY.
 
greenie
 
 
In a message dated 11/25/2017 2:31:29 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

I saw that Greenie. Makes me mad. I paid years ago and could never find  
any company I liked better. They are still letting me use this email and you  
can use email free.  
I'll note that.  Thanks. 

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
As of December 5th I will no longer be using AOL.   They have gone up to 
$30.00 per month and Comcast is free for me so my new  email address will be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie) Greenberg
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[CMLHope] Email change

[Myvety2k via CMLHope]

As of December 5th I will no longer be using AOL.  They  have gone up to 
$30.00 per month and Comcast is free for me so my new email  address will be
 
(myvet...@comcast.net)
 
Thanks to everyone,
 
David (greenie) Greenberg

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Re: [CMLHope] Well wishes

[Myvety2k via CMLHope]

Marty, sorry to here about you back in the hospital.   Recover quickly so 
you can get home where you belong.  Please take  care.
 
greenie
 
 
In a message dated 11/23/2017 6:31:55 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hi everyone 
Unfortunately I am back in the hospital again I have a server  infection in 
my left leg and I am on some Antibiotics now. I wish I could be  home for 
the thanksgiving holiday but I just do whatever I have to  do.
Anyway I wish all of you a happy thanksgiving
18's 
Marty 



On November 23, 2017, at 2:49 PM,  bkbarney via CMLHope 
<cmlhope@googlegroups.com>  wrote:


Warmest regards  to you Susan and  have a lovely Thanksgiving holiday with 
your  family..Laying low and cozy by the fire is lovely...I wish you better 
health  and lots of joyful moments in the New Year ahead...
Thanks for being here.  


Love to all on this Thankful holiday
18s Beth

-Original  Message-
From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
To:  cmlhope <cmlhope@googlegroups.com>
Sent:  Wed, Nov 22, 2017 4:43 pm
Subject: RE: [CMLHope] Well wishes


 
Happy Thanksgiving to all! I pray you all are well enough to  enjoy the 
holidays. Ours will be quiet and cozy by the fire. Turkey on the  menu. So glad 
I am part of this awesome and loving group.

Just got my numbers back from bcr/abl. It showed .45. Last time  was .26. 
Not doing badly but was shocked when doc asked me if I wanted to go  off med. 
(History of strokes caused by med.) First time she's asked me that!  She 
does not recommend it, so I'll stay on awhile longer and then let my body  
rest. Toxins build up and cause stress on my blood spots in brain.
18's and Happy Thanksgiving
Much love,
Susan Z.


 

On Wednesday, November 22, 2017  Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:

 
CML group, As of Dec 5th I will no longer be using  AOL.  My new email will 
be changed to  myvet...@comcast.net.
 
greenie

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[CMLHope] Email Change

[Myvety2k via CMLHope]

CML group, As of Dec 5th I will no longer be using AOL.   My new email will 
be changed to myvet...@comcast.net.
 
greenie

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Re: [CMLHope] Life

[Myvety2k via CMLHope]

Very well said,
 
Thanks Marty,
 
Dave (greenie) Greenberg
 
 
In a message dated 10/10/2017 10:16:29 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 

I was  thinking about most of us that have been through a mirage of 
illnesses, myself  included, and in thinking about it I have come to the 
conclusion 
 "why  me" syndrome. However rather saying this, even though we may be 
suffering in  our own ways why not say "why not me"?. 
In  effect anyone that has had any health disturbance/s in their lives are 
in fact  a wounded solider, however, it has also become that wounds heal and 
this makes  us go on.  
I  remember two movies that put an impression on me. One was the Shawshank  
Redemption. One of the characters, Morgan Freeman told an inmate that "you  
either get to living or get to dying. 
The  other was Forrest Gump, played by Tom Hanks. He was sitting on a bench 
at a  bus stop and was talking to a woman who was a total stranger to him. 
One of  the remarks he made, and this was after his mother had passed away. 
He said  she once taught him a lesson about life, "life is like a box of 
chocolates you  never know what you will get"  
When we  think about it the one thing that we still have is life. We also 
know that  every person in this world will have already been borne and 
eventually will  have to die, it is just how we live our lives in between those 
times that  really matters, and makes us what we are. 
Try to  be kind to most people, be compassionate, say hello every one once 
in a  while. 
Remember, that life is what you put  in to it, and get out of it.  

18's

Marty  Gartenberg
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Re: [CMLHope] Words OF WISDOM.

[Myvety2k via CMLHope]

Hi Beth, sorry it's taking me so long to reply.  We  received a call that 
we lost power for about 24 hours and were up in Northwest  Indiana so then we 
came back home to only find a very small leak in the bathroom  ceiling. Not 
everyone else was so lucky.  Lot's of roof damage and fallen  trees.
 
greenie
 
 
In a message dated 9/10/2017 9:29:11 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Greenie,  


I am behind in emails so I just read this. I am very relieved to hear  that 
you and Grace are in Indiana. I am thinking of youhope your home and  
car will be in good shape when you return. Fingers crossed. 


Sending love and prayers to you and to everyone else out there who is  
being or might be directly affected by  Irma...


Warmest regards, and 18's.


Beth


-Original  Message-
From: Marty Gartenberg <wa2...@gmail.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Fri, Sep 8, 2017 10:35  pm
Subject: Re: Re: [CMLHope] Words OF WISDOM.


 

Richard,


Yes your son only lives less then an hour away from me, and i know the  
area very well because that is where i got my kidney transplant in The  
Cleveland Clinic. Praying for him and everyone else.


18's,


Marty


On Fri, Sep 8, 2017 at 11:28 PM, Richard H  <rbhuffm...@gmail.com>  wrote:

Marti, my son lives in Weston, FL and is hunkerd down  also..  I was 
surprised you are so close to him.  He works for the  Boy Scouts so he "is 
prepared".

On Friday, September 8, 2017 at  1:50:41 PM UTC-5, wa2yyx wrote:  
Hi Greenie,  


Go West young man, go West... May i ask you what is a pure  Corvette? 
And can you still get into it comfortably? Last time i tried to get  into a 
vet I had a lot of difficulty. I am 6' + I guess that you must be  some 
ware in Florida as i am also in Boynton Beach all hunkered  down.


18's,


Marty   


On Fri, Sep 8, 2017 at 9:39 AM, myvety2k  via CMLHope 
<cml...@googlegroups.com> wrote:


 
Hi all, Grace and I are getting out of  dodge.  We are  heading for Indiana 
to stay with family.   After this is over I hope we have a home in Fort 
Myers to live in.  And my pure Corvette I hope it's still their.  Stay  safe.



greenie




In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time,  
wa2...@gmail..com writes:  



 
Hi Marcie,  


Glad that you found my story interesting. I live in Boynton Beach  about 90 
miles north of Miami.


18's,


Marty


On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie  Goodman' via CMLHope 
<cml...@googlegroups.com> wrote:


Marty,


Such a beautiful story which brought me to tears. Thanks, as  always, for 
sharing. By the way, you aren't in Miami now are  you?


Marcie 

Sent from my iPad
 
 

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg <wa2...@gmail.com> wrote:




Joyce, Jeanie and everyone here,  


I learned something a very long time ago. If you or someone  else looks out 
of a window then it is what they see that can make  a big difference in 
their lives. I wrote this story a very long  time ago and i always remembered 
it. It wasn't necessarily what  this person would see but it was something 
that was explained to  make "someone" happy for what they were able to "see"


Now over the years that followed i have seen this plagiarized  and it 
really hurt me, but i assure you that i am it's original  author. There are 
many 
details in it that i personally went  through. 



 The Window  
There  were two men in the cancer ward of Mount Sinai Hospital in New  York 
City. They were in Ward KCC-6 North, which was at that time  the cancer 
ward at that hospital. Both of these men were suffering  from the end stages of 
Leukemia. They were there basically to die.  One of these men had his bed 
right next to the only window in the  room. The other one was across the room 
and had no access to the  window. The man by the window would always tell 
the other man how  beautiful it was looking out of that window, and let him 
know what  was happening outside. He would talk about the beautiful skies,  
and how all of the little children were playing in Central Park.  He would 
tell about the green grass and the people who were having  a picnic, and the 
dogs that were running around, as well as the  ice cream truck with the man 
selling ice cream pops to the little  children, and the hot dog vendor also 
selling hot dogs with mustard  and sour kraut. He would tell the other man 
that he would be able  to see all of this for himself once he was healed. This 
went on  for about two weeks, and one morning the nurse came into the room  
as she usually did, and presented these two men with their sponge  baths. 
She first went over to the man who was by the window to  find that he had 
passed away in his sleep. She then covered him up  and left the room for a 
couple of minutes. When she returned,  there was a doctor with her. This was a 
fairly new young doctor  who would pronounce the man dead, and at that 
pa

Re: [CMLHope] Words OF WISDOM.

[Myvety2k via CMLHope]

Thanks Beth for thinking of us.
 
greenie
 
 
In a message dated 9/16/2017 5:16:36 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Greenie, So glad you had no damage. My friend in  Fort Myers, her home is 
uninhabitable.It's terrible! So relieved for both of  you!

Take care,


18's Beth 


-Original  Message-
From: Myvety2k via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Sat, Sep 16, 2017 2:23  pm
Subject: Re: [CMLHope] Words OF WISDOM.


 
Sounds like a plan.   
 
greenie
 
 
In a message dated 9/16/2017 11:00:36 A.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hi Greenie, so glad all is ok regarding your house. Maybe next  time you 
are up you will come for dinner.
Susan F. Zimmerman
"All who humble themselves before the  Lord shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11



 

On Saturday, September 16,  2017 Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:


 
Hi Susan, We only stayed 2 days because be found out that  our electric was 
out less then 24 hours so we handed home to see if we had a  house and it 
was in One Piece.  No damage, very Lucky not so for many  people.
 
greenie
 
 
In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
So glad you are coming to visit! If you want  to come over and visit our 
underground earth home, let us know!!! Would  love to see you and Grace. We 
are in Granger.

Susan and Roy Zimmerman


 

On Friday, September 8, 2017  myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:


 
 
 
Hi all, Grace and I are getting out of dodge.  We are  heading for Indiana 
to stay with family.  After  this is over I hope we have a home in Fort 
Myers to live in.   And my  pure Corvette I hope it's still their.  Stay  safe.



greenie



In  a message dated 9/7/2017 9:28:12 PM Eastern Standard Time,  
wa2...@gmail..com writes:  



 
Hi Marcie,  


Glad that you found my story interesting. I live in Boynton Beach  about 90 
miles north of Miami.


18's,


Marty


On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie  Goodman' via CMLHope 
<cmlhope@googlegroups.com> wrote:


Marty,


Such a  beautiful story which brought me to tears. Thanks, as always, for  
sharing. By the way, you aren't in Miami now are you?


Marcie 

Sent  from my iPad
 
 

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg <wa2...@gmail.com> wrote:




Joyce, Jeanie and everyone here,  


I learned something a very long time ago. If you or someone  else looks out 
of a window then it is what they see that can make a  big difference in 
their lives. I wrote this story a very long time  ago and i always remembered 
it. It wasn't necessarily what this  person would see but it was something 
that was explained to make  "someone" happy for what they were able to "see"


Now over the years that followed i have seen this plagiarized  and it 
really hurt me, but i assure you that i am it's original  author. There are 
many 
details in it that i personally went through.  



 The Window  
There were two men in the cancer ward of  Mount Sinai Hospital in New York 
City. They were in Ward KCC-6  North, which was at that time the cancer ward 
at that hospital. Both  of these men were suffering from the end stages of 
Leukemia. They  were there basically to die. One of these men had his bed 
right next  to the only window in the room. The other one was across the room  
and had no access to the window. The man by the window would always  tell 
the other man how beautiful it was looking out of that window,  and let him 
know what was happening outside. He would talk about the  beautiful skies, 
and how all of the little children were playing in  Central Park. He would 
tell about the green grass and the people who  were having a picnic, and the 
dogs that were running around, as well  as the ice cream truck with the man 
selling ice cream pops to the  little children, and the hot dog vendor also 
selling hot dogs with mustard  and sour kraut. He would tell the other man 
that he would be able to  see all of this for himself once he was healed. This 
went on for  about two weeks, and one morning the nurse came into the room 
as she  usually did, and presented these two men with their sponge baths.  
She first went over to the man who was by the window to find that he  had 
passed away in his sleep. She then covered him up and left the  room for a 
couple of minutes. When she returned, there was a doctor  with her. This was a 
fairly new young doctor who would pronounce the  man dead, and at that 
particular time, 8:40 a.m. even though he had  obviously passed away some time 
during the night. The other man  across the room with tears running down his 
cheeks became quite  depressed at seeing his roommate wheeled out of the roo

Re: [CMLHope] Words OF WISDOM.

[Myvety2k via CMLHope]

Sounds like a plan.   
 
greenie
 
 
In a message dated 9/16/2017 11:00:36 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hi Greenie, so glad all is ok regarding your house. Maybe next time  you 
are up you will come for dinner. 
Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Saturday, September 16,  2017 Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:


 
Hi Susan, We only stayed 2 days because be found out that  our electric was 
out less then 24 hours so we handed home to see if we had a  house and it 
was in One Piece.  No damage, very Lucky not so for many  people.
 
greenie
 
 
In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
So glad you are coming to visit! If you want to  come over and visit our 
underground earth home, let us know!!! Would love to  see you and Grace. We 
are in Granger.
Susan and Roy Zimmerman

 

On Friday, September 8, 2017  myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:


 
 
 
Hi all, Grace and I are getting out of dodge.  We are  heading for Indiana 
to stay with family.  After this  is over I hope we have a home in Fort 
Myers to live in.   And my pure  Corvette I hope it's still their.  Stay safe.



greenie



In  a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, 
wa2...@gmail..com  writes:  



 
Hi Marcie,  


Glad that you found my story interesting. I live in Boynton Beach  about 90 
miles north of Miami.


18's,


Marty


On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman'  via CMLHope 
<cmlhope@googlegroups.com> wrote:


Marty,


Such a beautiful story  which brought me to tears. Thanks, as always, for 
sharing. By the way,  you aren't in Miami now are you?


Marcie 

Sent  from my iPad
 
 

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg <wa2...@gmail.com> wrote:




Joyce, Jeanie and everyone here,  


I learned something a very long time ago. If you or someone else  looks out 
of a window then it is what they see that can make a big  difference in 
their lives. I wrote this story a very long time ago and  i always remembered 
it. It wasn't necessarily what this person would  see but it was something 
that was explained to make "someone" happy  for what they were able to "see"


Now over the years that followed i have seen this plagiarized and  it 
really hurt me, but i assure you that i am it's original author.  There are 
many 
details in it that i personally went through.  



 The  Window  
There were two men in the cancer ward of  Mount Sinai Hospital in New York 
City. They were in Ward KCC-6 North,  which was at that time the cancer ward 
at that hospital. Both of these  men were suffering from the end stages of 
Leukemia. They were there  basically to die. One of these men had his bed 
right next to the only  window in the room. The other one was across the room 
and had no  access to the window. The man by the window would always tell 
the  other man how beautiful it was looking out of that window, and let him  
know what was happening outside. He would talk about the beautiful  skies, 
and how all of the little children were playing in Central  Park. He would 
tell about the green grass and the people who were  having a picnic, and the 
dogs that were running around, as well as the  ice cream truck with the man 
selling ice cream pops to the little  children, and the hot dog vendor also 
selling hot dogs with mustard and  sour kraut. He would tell the other man 
that he would be able to see  all of this for himself once he was healed. This 
went on for about two  weeks, and one morning the nurse came into the room 
as she usually  did, and presented these two men with their sponge baths. She 
first  went over to the man who was by the window to find that he had 
passed  away in his sleep. She then covered him up and left the room for a  
couple of minutes. When she returned, there was a doctor with her.  This was a 
fairly new young doctor who would pronounce the man dead,  and at that 
particular time, 8:40 a.m. even though he had obviously  passed away some time 
during the night. The other man across the room  with tears running down his 
cheeks became quite depressed at seeing  his roommate wheeled out of the room, 
declared dead. He thought about  how this man would always try to make him 
happy with him describing  all of the nice things he was able to see outside. 
Later on that day  the nurse returned and made up the bed in the room that 
was now  unoccupied. The man in the other bed asked if by any chance he 
would  be able to be put by the window. The nurse was a very kind and  
compassionate woman besides being a very competent nurse, and she  wheeled him 
over. 
Although this man was unable to prop himself up to  s

Re: [CMLHope] Words OF WISDOM.

[Myvety2k via CMLHope]

Hi Susan, We only stayed 2 days because be found out that our  electric was 
out less then 24 hours so we handed home to see if we had a house  and it 
was in One Piece.  No damage, very Lucky not so for many  people.
 
greenie
 
 
In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hey Greenie,
So glad you are coming to visit! If you want to  come over and visit our 
underground earth home, let us know!!! Would love to  see you and Grace. We 
are in Granger.
Susan and Roy Zimmerman


 

On Friday, September 8,  2017 myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:


 
 
 
Hi all, Grace and I are getting out of dodge.  We  are  heading for Indiana 
to stay with family.  After this is over I  hope we have a home in Fort 
Myers to live in.   And my pure Corvette I  hope it's still their.  Stay safe.



greenie



In  a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, 
wa2...@gmail..com  writes:  



 
Hi Marcie,  


Glad that you found my story interesting. I live in Boynton Beach about  90 
miles north of Miami.


18's,


Marty


On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via  CMLHope 
<cmlhope@googlegroups.com> wrote:


Marty,


Such a beautiful story  which brought me to tears. Thanks, as always, for 
sharing. By the way, you  aren't in Miami now are you?


Marcie 

Sent  from my iPad
 
 

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg <wa2...@gmail.com> wrote:




Joyce, Jeanie and everyone here,  


I learned something a very long time ago. If you or someone else  looks out 
of a window then it is what they see that can make a big  difference in 
their lives. I wrote this story a very long time ago and i  always remembered 
it. It wasn't necessarily what this person would see  but it was something 
that was explained to make "someone" happy for what  they were able to "see"


Now over the years that followed i have seen this plagiarized and  it 
really hurt me, but i assure you that i am it's original author.  There are 
many 
details in it that i personally went through. 



 The  Window  
There were two men in the cancer ward of Mount  Sinai Hospital in New York 
City. They were in Ward KCC-6 North, which  was at that time the cancer ward 
at that hospital. Both of these men  were suffering from the end stages of 
Leukemia. They were there  basically to die. One of these men had his bed 
right next to the only  window in the room. The other one was across the room 
and had no access  to the window. The man by the window would always tell 
the other man how  beautiful it was looking out of that window, and let him 
know what was  happening outside. He would talk about the beautiful skies, and 
how all  of the little children were playing in Central Park. He would tell 
about  the green grass and the people who were having a picnic, and the 
dogs  that were running around, as well as the ice cream truck with the man  
selling ice cream pops to the little children, and the hot  dog vendor also 
selling hot dogs with mustard and  sour kraut. He would tell the other man 
that he would be able to see all  of this for himself once he was healed. This 
went on for about two  weeks, and one morning the nurse came into the room 
as she usually did,  and presented these two men with their sponge baths. She 
first went over  to the man who was by the window to find that he had 
passed away in his  sleep. She then covered him up and left the room for a 
couple 
of  minutes. When she returned, there was a doctor with her. This was a  
fairly new young doctor who would pronounce the man dead, and at that  
particular time, 8:40 a.m. even though he had obviously passed away some  time 
during the night. The other man across the room with tears running  down his 
cheeks became quite depressed at seeing his roommate wheeled  out of the room, 
declared dead. He thought about how this man would  always try to make him 
happy with him describing all of the nice things  he was able to see outside. 
Later on that day the nurse returned and  made up the bed in the room that 
was now unoccupied. The man in the  other bed asked if by any chance he 
would be able to be put by the  window. The nurse was a very kind and 
compassionate woman besides being  a very competent nurse, and she wheeled him 
over. 
Although this man was  unable to prop himself up to see the outside because 
he had recently had  his Spleen surgically removed, he tried but finding it 
was just  impossible. The next day came, and he again tried and although he 
was in  a great deal of pain he managed to very slowly prop himself up and 
peer  out of that most appealing window. He was absolutely shocked at what he  
was able to see, or to put it another way, what he was unable to see.  
There was nothing there but a brick wall! He wondered why that man would  
always 
tell him about what a beautiful world it was out 

Re: [CMLHope] Words OF WISDOM.

[Myvety2k via CMLHope]

Hi Marty, We got home a few days ago and no damage, we were  lucky.  As for 
Corvette's they are in my blood plus  CML.  I purchased my first one when I 
was 23 and it was a 1961,  then a 1962, then 2 1963 within 2 weeks, then a 
big block 1966 one of 681 made,  then a 1969 all convertibles, all 4 
speeds.Then a 1973 T-top then a 1975 T-top  and my last one a 2000 Pewter with 
a 
black top and black and gray  interior.  Six speed magnesium wheels, etc. It's 
got 117 thousand plus  miles on it and it's in perfect shape. Of course 
it's been hopped up with load  exhaust.  It will keep up with the big boys. Of 
course their have been  other classic cars.
 
Keep safe.
 
greenie 
 
 
In a message dated 9/8/2017 2:50:41 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Hi Greenie,  


Go West young man, go West... May i ask you what is a pure  Corvette? 
And can you still get into it comfortably? Last time i tried to get into  a 
vet I had a lot of difficulty. I am 6' + I guess that you must be some ware 
 in Florida as i am also in Boynton Beach all hunkered down.


18's,


Marty   


On Fri, Sep 8, 2017 at 9:39 AM, myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


 
Hi all, Grace and I are getting out of dodge.   We are  heading for Indiana 
to stay with family.  After this is  over I hope we have a home in Fort 
Myers to live in.   And my pure  Corvette I hope it's still their.  Stay safe.



greenie




In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time,  
wa2...@gmail..com writes:  



 
Hi Marcie,  


Glad that you found my story interesting. I live in Boynton Beach  about 90 
miles north of Miami.


18's,


Marty


On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman'  via CMLHope 
<cmlhope@googlegroups.com> wrote:


Marty,


Such a  beautiful story which brought me to tears. Thanks, as always, for  
sharing. By the way, you aren't in Miami now are you?


Marcie 

Sent  from my iPad
 
 

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg <wa2...@gmail.com> wrote:




Joyce, Jeanie and everyone here,  


I learned something a very long time ago. If you or someone else  looks out 
of a window then it is what they see that can make a big  difference in 
their lives. I wrote this story a very long time ago and  i always remembered 
it. It wasn't necessarily what this person would  see but it was something 
that was explained to make "someone" happy  for what they were able to "see"


Now over the years that followed i have seen this plagiarized and  it 
really hurt me, but i assure you that i am it's original author.  There are 
many 
details in it that i personally went through.  



 The  Window  
There were two men in the cancer ward of  Mount Sinai Hospital in New York 
City. They were in Ward KCC-6 North,  which was at that time the cancer ward 
at that hospital. Both of these  men were suffering from the end stages of 
Leukemia. They were there  basically to die. One of these men had his bed 
right next to the only  window in the room. The other one was across the room 
and had no  access to the window. The man by the window would always tell 
the  other man how beautiful it was looking out of that window, and let him  
know what was happening outside. He would talk about the beautiful  skies, 
and how all of the little children were playing in Central  Park. He would 
tell about the green grass and the people who were  having a picnic, and the 
dogs that were running around, as well as the  ice cream truck with the man 
selling ice cream pops to the little  children, and the hot dog vendor also 
selling hot dogs with mustard and  sour kraut. He would tell the other man 
that he would be able to see  all of this for himself once he was healed. This 
went on for about two  weeks, and one morning the nurse came into the room 
as she usually  did, and presented these two men with their sponge baths. She 
first  went over to the man who was by the window to find that he had 
passed  away in his sleep. She then covered him up and left the room for a  
couple of minutes. When she returned, there was a doctor with her.  This was a 
fairly new young doctor who would pronounce the man dead,  and at that 
particular time, 8:40 a.m. even though he had obviously  passed away some time 
during the night. The other man across the room  with tears running down his 
cheeks became quite depressed at seeing  his roommate wheeled out of the room, 
declared dead. He thought about  how this man would always try to make him 
happy with him describing  all of the nice things he was able to see outside. 
Later on that day  the nurse returned and made up the bed in the room that 
was now  unoccupied. The man in the other bed asked if by any chance he 
would  be able to be put by the window. The nurse was a very kind and  
compassionate woman besides being a very competent nurse, and she  wheeled him 
over. 
Although this man was unable to prop himself up to  see the outside b

Re: Re: [CMLHope] Words OF WISDOM.

[myvety2k via CMLHope]

Hi all, Grace and I are getting out of dodge.  We are  heading for Indiana to 
stay with family.  After this is over I hope we have a home in Fort Myers to 
live in.   And my pure Corvette I hope it's still their.  Stay safe.

 
greenie
 
In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com 
writes:

 
Hi Marcie,
 
Glad that you found my story interesting. I live in Boynton Beach about 90 
miles north of Miami.
 
18's,
 
Marty

On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope 
 wrote:
Marty,
 
Such a beautiful story which brought me to tears. Thanks, as always, for 
sharing. By the way, you aren't in Miami now are you?
 
Marcie 

Sent from my iPad

On Sep 7, 2017, at 9:11 PM, Marty Gartenberg  wrote:


Joyce, Jeanie and everyone here,
 
I learned something a very long time ago. If you or someone else looks out of a 
window then it is what they see that can make a big difference in their lives. 
I wrote this story a very long time ago and i always remembered it. It wasn't 
necessarily what this person would see but it was something that was explained 
to make "someone" happy for what they were able to "see"
 
Now over the years that followed i have seen this plagiarized and it really 
hurt me, but i assure you that i am it's original author. There are many 
details in it that i personally went through.  
 
                                              The Window  
There were two men in the cancer ward of Mount Sinai Hospital in New York City. 
They were in Ward KCC-6 North, which was at that time the cancer ward at that 
hospital. Both of these men were suffering from the end stages of Leukemia. 
They were there basically to die. One of these men had his bed right next to 
the only window in the room. The other one was across the room and had no 
access to the window. The man by the window would always tell the other man how 
beautiful it was looking out of that window, and let him know what was 
happening outside. He would talk about the beautiful skies, and how all of the 
little children were playing in Central Park. He would tell about the green 
grass and the people who were having a picnic, and the dogs that were running 
around, as well as the ice cream truck with the man selling ice cream pops to 
the little children, and the hot dog vendor also selling hot dogs with mustard 
and sour kraut. He would tell the other man that he would be able to see all of 
this for himself once he was healed. This went on for about two weeks, and one 
morning the nurse came into the room as she usually did, and presented these 
two men with their sponge baths. She first went over to the man who was by the 
window to find that he had passed away in his sleep. She then covered him up 
and left the room for a couple of minutes. When she returned, there was a 
doctor with her. This was a fairly new young doctor who would pronounce the man 
dead, and at that particular time, 8:40 a.m. even though he had obviously 
passed away some time during the night. The other man across the room with 
tears running down his cheeks became quite depressed at seeing his roommate 
wheeled out of the room, declared dead. He thought about how this man would 
always try to make him happy with him describing all of the nice things he was 
able to see outside. Later on that day the nurse returned and made up the bed 
in the room that was now unoccupied. The man in the other bed asked if by any 
chance he would be able to be put by the window. The nurse was a very kind and 
compassionate woman besides being a very competent nurse, and she wheeled him 
over. Although this man was unable to prop himself up to see the outside 
because he had recently had his Spleen surgically removed, he tried but finding 
it was just impossible. The next day came, and he again tried and although he 
was in a great deal of pain he managed to very slowly prop himself up and peer 
out of that most appealing window. He was absolutely shocked at what he was 
able to see, or to put it another way, what he was unable to see. There was 
nothing there but a brick wall! He wondered why that man would always tell him 
about what a beautiful world it was out there when in fact there was nothing 
but that brick wall. At about that time the nurse came in with his sponge bath. 
He immediately without any reservation asked her why the man would always tell 
him about what was happening outside when in fact he wasn't able to see 
anything. The nurse then told him that he was correct. The man who had been by 
that window was in fact not able to see anything because he was blind.
 
 The man then realized that the other man was trying to make him feel good, and 
try to become well once again. And, as it turned out that other man did in fact 
return to health but not until he was able to receive a Bone Marrow Transplant. 
There was a donor found, his sister, and although he had to live in a plastic 

Re: [CMLHope] Gleevec

[Myvety2k via CMLHope]

Marty, glad to here your doing O. K.
 
greenie
 
 
In a message dated 8/10/2017 11:36:53 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Hi Beth and everyone  


First glad no dialysis. Been there and done all of that.


I have been in the hospital for two weeks due to a broken knee and a  tibia 
finally in rehab now for the past three weeks with two weeks left. I am  
now in PA because we are trying to sell our house up here. I feel sorry for my 
 wife Shelly because all of this in on her now. but she is a very strong  
woman.


On Oct 21 we will be leaving the rehab felicity go back to our house  and 
stay there for about a week and drive back to Florida with my wife  and son 
who will share the driving. Our daughter Meredith will be flying back  to 
Florida.just before we leave PA.


Anyway i have been reading all of your posts so i basically know what is  
going on.


Please say hello to everyone for me.


18's,


Marty  



On Wed, Aug 9, 2017 at 11:48 PM, bkbarney via CMLHope  
 wrote:

Thanks Susan,  


No dialysis. Just navigating muscle deterioration at an accelerated  rate 
which makes it hard to move, let alone exercise...just a significant  rough 
patch, but trying to navigate it the best I can. I had little to give  anyone 
for a while, but feel better able to be a contributing part of our  
community again. I know many do not write, but feel less alone just  reading..I 
just became one of those people for a time.. I will try to be  better about 
speaking up when I am struggling. 


Love to all,


18's Beth  
 



-Original  Message-
From: 'Susan Zimmerman' via CMLHope 
To: rbhuffman1 ; cmlhope 
Sent: Wed, Aug 9, 2017  6:38 pm
Subject: Re: [CMLHope] Gleevec


 
Beth, my heart goes out to you from all you've gone through  since last 
September. You have always been a great encourager to all of  us.
I am sure I speak for all in saying we missed you tremendously and  hope 
you will have no more setbacks. Obviously those kidneys are so  important to 
function properly. I hope you've not had to go on  dialysis?
Hoping and believing you continue to get better. You are so  right about 
Dr. Druker and glad you are going to see him.  Hang in  there, we really 
really love you!
Richard, trying hard not to preach! Prayers, though!
18's, xoxo
Susan Z.

 

On Tuesday, August 8, 2017  Richard H  wrote:

 
Thanks for the update.  I hope all keeps going well.  


No preaching today, you are under control and I hope you continue to  get 
better.


Richard H.

On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth  wrote:  
Dear Susan, Jeanie, Marty, Richard, Greenie  et all,   


So sorry I have not been communicative for a long while. I am coming  up 
after a really hard year physically and with many losses...sifting  through 
6000 emails...I realize how much I have missed just our groups  banter, and 
love


Hope each one of you is enjoying moments of sunshine...and holding on  to 
the love that is in our group. I rely so often on the stories of others  to 
inspire me, give me perspective...to hold hope for a better tomorrow  and to 
stand tall in the belief that "This too shall pass" as my dad used  to 
say...when things were really bad..  I had a rough year starting  last 
September 
with heart issues, then got worse in December...and stayed  struggling 
through the spring...starting to feel a bit strongerstill  vulnerable, but 
fighting spirit is back...and I am here...to see the  hummingbirds out my 
window...flox is in full bloom75 degrees  and  sunny today.so life is 
good for now...later today seeing the  cardiologist to swap medicines...then 
oncologist Friday. CPK stil supper  high so muscle continues to waste..I 
hardly recognize myself and its  affected my kidneys..all the protein going 
through them...Will get blood  work done in a couple of weeks at U of C...last 
test in June had cancer  showing...at low levels...had to go off for a drug 
holiday because of  toxicity...so only back on for three weeks. We shall see 
how I am  doingI am seeing Dr. Druker in October...he always makes me 
feel  hopeful and calmhe has a way about him that invites this...and for  
which I am always so grateful..


I know each of you has had your strugglesphysically and  
emotionally...I think of you often and pray for each of you every  
nightGreenie, 
especially you and your wife,this first year of  grieving Derek...your 
anniversary.so hard to bare...I m holding 7  clients who have lost adult 
children in my practice. I brought them  together in a group to so they could 
meet one another and share their  stories, introduce their children and share 
their grief.
 
I thought of you and wondered if something like that might be helpful  to 
you..I know there are many supports in your area through local 

Re: [CMLHope] Gleevec

[Myvety2k via CMLHope]

Welcome Ken back to the club that no one wants to be in but  glad that we 
have it so that we can all help each other out.
 
greenie
 
 
In a message dated 8/8/2017 6:57:28 A.M. Eastern Daylight Time,  
krobers...@mindspring.com writes:

Good  morning everyone,
I just discovered that this site is still active.
I  have been on Gleevec for 17 years with good results, but have had 
additional  medical challenges.
I was a member of the original participants for the  STI571(Gleevec) at 
Johns Hopkins Hospitals in Baltimore after trying  everything else on the 
market for CML with no success.
I am now 75 and  thanks to God, family, and numerous medical staff I have 
been around long  enough to have become a grandfather.
Very best wishes to everyone in their  battle with cancer.
Ken Roberson

Sent from my iPad

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Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Susan, your a sweetheart.  
 
greenie
 
 
In a message dated 8/7/2017 10:48:32 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Dear Greenie,
I do sympathize with you so much about losing your  son. I remember when 
you had to go to the funeral without your lovely wife. It  must have been very 
hard on her, too. They say grief has no definite time  frame. Praying for 
you. 
So glad we were able to meet in New Carlisle that time. You helped  Roy and 
I with the shortcut through chicago. 
Love ya more later

Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Monday, August 7, 2017  Myvety2k via CMLHope <cmlhope@googlegroups.com>  
wrote:


 
Thank you for the info Susan, hope all is well with  you.  I'm still 
waiting for a call from them to let me know  what they plan to do for me.  I'm 
sure I will here from them  within a week or so.  I'm hoping for the best after 
over 17 years in  their study.  For all you know I may be the last of the 8 
that started in  the study, I asked one time but they won't tell me. I can 
make it their ever 6  months but it would be hard for me every 3 months as 
my blood work here at  Quest is free with Humana.  The only reason I moved to 
Florida  because they made the change to once a year, Grace and I just 
could not take  the cold weather any more it was very hard on both of us.  
 
She had a stroke in Sept. of 2015 and then when Derek passed  away June 13 
of last year within 10 min. she had a heart attack after we  found out. So I 
went to the funnel by myself. I'm still having a very hard  time dealing 
with him gone their's not a day that goes by that I think about  him.  Very 
sad. I still can't look at a picture of him without breaking  down as they say 
time heals all wounds I'll just have to wait.
 
Thanks for the info.
greenie
 
 
In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Greenie, 
I recommend Moffitt also. You know I go to Dr. Altman becuz I'm  up here in 
Indiana. But my old doc was Pinilla that Jeanie recommended. They  will 
help u get your medicine. A lot less expensive to go there!!! 
Blessings, 
Susan F. Zimmerman

 

On Sunday, August 6, 2017  Myvety2k via CMLHope <cmlhope@googlegroups.com>  
wrote:


 
Jeanie thank you I wait and see what happens if things  don't work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
I would like to suggest Moffitt cancer center  here in Tampa. They will do 
everything to help you to get your meds. It's  where I go and they have 
saved my life twice.  They accept Medicare  and medicate assignment.  If you 
need help with copayment a there is  a cancer copayment company called PSI. 
They paid my copayment for several  years. You just need to start making calls 
and get the ball rolling.  However I pray they keep sending the meds. You 
and I have been  fighting this for years. 
I go to dr Balducci head of senior oncology  center in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling.  It's great/ you go in an hour 
ahead of Drs meeting for bloodwork right at  hospital and by the time you 
meet your dr your blood work is done for him.  Every three months they do a 
PCR.  They have vallet  parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com> 
 wrote:




Hi Rien,   I started a study the first week  in Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before  it was approve my the FDA. They 
changed it later to 300 mg because of  the Gleevec rash.  I got sick in 2009 
and stopped Gleevec for 26  days because of sinus infection and the Doctor 
at home put me on an  antibiotic which made me sick so I stopped for those 26 
 days.
 
 Then I started up again and  had my blood work done at Northwestern 
and started on a trip out  west.  My Cancer Doctor called me while driving and 
said," David  your blood work showed that their are cancer cells back in 
your  blood".  I told him remember I quit for 26 days and he replied  that's 
right I forgot, did you start Gleevec again I told him yes and he  said " 
well if it worked before it will work again and hung up and I  never heard from 
again.  I later received a letter from him that he  moved on to a different 
Hosp. in New York, NY. and that was the end of  that.
 
So, June 7th of this year I flew in from South Fort  Myers. FL. to Chicago 
to get my blood work see my new Doctor pick up my  drugs and 

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Thank you for the info Susan, hope all is well with you.   I'm still 
waiting for a call from them to let me know what they plan to  do for me.  I'm 
sure I will here from them within a week or so.   I'm hoping for the best after 
over 17 years in their study.  For all you  know I may be the last of the 8 
that started in the study, I asked one time but  they won't tell me. I can 
make it their ever 6 months but it would be hard for  me every 3 months as 
my blood work here at Quest is free with Humana.   The only reason I moved to 
Florida because they made the change to once a year,  Grace and I just 
could not take the cold weather any more it was very hard on  both of us.  
 
She had a stroke in Sept. of 2015 and then when Derek passed  away June 13 
of last year within 10 min. she had a heart attack after we  found out. So I 
went to the funnel by myself. I'm still having a very hard time  dealing 
with him gone their's not a day that goes by that I think about  him.  Very 
sad. I still can't look at a picture of him without breaking  down as they say 
time heals all wounds I'll just have to wait.
 
Thanks for the info.
greenie
 
 
In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Greenie, 
I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up  here in 
Indiana. But my old doc was Pinilla that Jeanie recommended. They will  
help u get your medicine. A lot less expensive to go there!!! 
Blessings, 
Susan F. Zimmerman


 

On Sunday, August 6, 2017  Myvety2k via CMLHope <cmlhope@googlegroups.com>  
wrote:


 
Jeanie thank you I wait and see what happens if things don't  work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
I would like to suggest Moffitt cancer center  here in Tampa. They will do 
everything to help you to get your meds. It's  where I go and they have 
saved my life twice.  They accept Medicare and  medicate assignment.  If you 
need help with copayment a there is a  cancer copayment company called PSI. 
They paid my copayment for several  years. You just need to start making calls 
and get the ball rolling.  However I pray they keep sending the meds. You 
and I have been  fighting this for years. 
I go to dr Balducci head of senior oncology  center in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling.  It's great/ you go in an hour 
ahead of Drs meeting for bloodwork right at  hospital and by the time you 
meet your dr your blood work is done for him.  Every three months they do a 
PCR.  They have vallet  parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com> 
 wrote:




Hi Rien,   I started a study the first week in  Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it  was approve my the FDA. They 
changed it later to 300 mg because of the  Gleevec rash.  I got sick in 2009 
and stopped Gleevec for 26 days  because of sinus infection and the Doctor 
at home put me on an antibiotic  which made me sick so I stopped for those 26 
days.
 
 Then I started up again and had  my blood work done at Northwestern 
and started on a trip out west.   My Cancer Doctor called me while driving and 
said," David your blood work  showed that their are cancer cells back in 
your blood".  I told him  remember I quit for 26 days and he replied that's 
right I forgot, did you  start Gleevec again I told him yes and he said " well 
if it worked before  it will work again and hung up and I never heard from 
again.  I later  received a letter from him that he moved on to a different 
Hosp. in New  York, NY. and that was the end of that.
 
So, June 7th of this year I flew in from South Fort  Myers. FL. to Chicago 
to get my blood work see my new Doctor pick up my  drugs and be on my way 
home.  But instead I was told their no longer  a study and you won't be 
getting the drug any longer.  That took my  breath away.  Before I left they 
then 
told me that they changed their  mind and would give me the drug and 7 month 
supply and would sent the rest  later because they were short on Gleevec..
 
Last week I received a call telling me that for me to  receive the drug 
that I would have to fly in every 3 months, that's not  going to happen with 
the cost of flights, car rental, etc., not with my  income at 78 years old.  
They called me last week and they are  suppose to have a meeting and let me 
know. 
 
When I started this study their were 8 of us out of 200  people nation way 
and that I would receive the drug STI571 for as long and  I could tolerated 
it or stay alive.  Well t

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Jeanie thank you I wait and see what happens if things don't  work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hey Greenie,
I would like to suggest Moffitt cancer center here  in Tampa. They will do 
everything to help you to get your meds. It's where I  go and they have 
saved my life twice.  They accept Medicare and medicate  assignment.  If you 
need help with copayment a there is a cancer  copayment company called PSI. 
They paid my copayment for several years. You  just need to start making calls 
and get the ball rolling.  However I pray  they keep sending the meds. You 
and I have been fighting this for  years. 
I go to dr Balducci head of senior oncology center  in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling. It's  great/ you go in an hour 
ahead of Drs meeting for bloodwork right at hospital  and by the time you 
meet your dr your blood work is done for him.  Every  three months they do a 
PCR.  They have vallet parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com> 
 wrote:



 
Hi Rien,   I started a study the first week in  Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it was  approve my the FDA. They 
changed it later to 300 mg because of the Gleevec  rash.  I got sick in 2009 
and stopped Gleevec for 26 days because of  sinus infection and the Doctor 
at home put me on an antibiotic which made me  sick so I stopped for those 26 
days.
 
 Then I started up again and had  my blood work done at Northwestern 
and started on a trip out west.  My  Cancer Doctor called me while driving and 
said," David your blood work  showed that their are cancer cells back in 
your blood".  I told him  remember I quit for 26 days and he replied that's 
right I forgot, did you  start Gleevec again I told him yes and he said " well 
if it worked before it  will work again and hung up and I never heard from 
again.  I later  received a letter from him that he moved on to a different 
Hosp. in New  York, NY. and that was the end of that.
 
So, June 7th of this year I flew in from South Fort Myers.  FL. to Chicago 
to get my blood work see my new Doctor pick up my drugs and  be on my way 
home.  But instead I was told their no longer a study and  you won't be 
getting the drug any longer.  That took my breath  away.  Before I left they 
then 
told me that they changed their mind and  would give me the drug and 7 month 
supply and would sent the rest later  because they were short on Gleevec..
 
Last week I received a call telling me that for me to  receive the drug 
that I would have to fly in every 3 months, that's not  going to happen with 
the cost of flights, car rental, etc., not with my  income at 78 years old.  
They called me last week and they are suppose  to have a meeting and let me 
know. 
 
When I started this study their were 8 of us out of 200  people nation way 
and that I would receive the drug STI571 for as long and I  could tolerated 
it or stay alive.  Well that changed.  I am  waiting for a phone call and 
I'm afraid it's not going to be good  news,  So, my question is should I take 
a chance and stop the drug and  get blood work in 3 months and see was 
happens with my blood count? I am a  basket case waiting to see what happens.
 
If you have some answers please let met know.
 
Thank you,
 
David (greenie) Greenberg
South Fort Myers, Florida
 
 
 
 
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, 
rien16...@gmail.com writes:

 
Hello!


I stopped  taking Gleevec after 13 years. I had my checkups every month, 
but only in  the first year. In the second year every two months and from now 
on every  three months for the rest of my life.
It seems  that everybody reacts in a different way. I myself had more 
bonecramps  after having stopped than while taking Gleevec; but after the first 
year  it gradually went better and now I have these cramps only a few times 
per  year during the night. The swallen eyelids completely disappeared and  
unfortunately, my face became a lot thinner. Another side-effect: my hair  
was not grey anymore after havinig stopped, it is still dark, which was  not 
the case before. After all I am glad that I took the decision, the  problems 
of the first year will disappear, so I strongly advise you to do  like I did.
Feel free  to contact me for further information.
Greetings  from the Netherlands - and let's be grateful that Gleevec 
exisits!!


Rien


2017-08-05 19:18 GMT+02:00 Vivi <vkrei...@gmail.com>:

After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would lik

Re: [CMLHope] Re: Stopping Gleevec

[Myvety2k via CMLHope]

Thank you so much on your for your in put.
 
greenie
 
 
In a message dated 8/6/2017 12:01:55 A.M. Eastern Daylight Time,  
rbhuffm...@gmail.com writes:


As you can see everyone has a different result.  I have taken breaks from 
Gleevec several times for three months to 5 1/2  years.  I am now on 200mg 
Gleevec and still detectable. So it is your  decision and your ONC is sitting 
in your corner,  be brave and see how  long you can go without treatment.  
Worst case is you will have to start  your medicine.  Many advances have been 
made since we were scared almost  to death because we have cancer... 
On Saturday, August 5,  2017 at 12:18:05 PM UTC-5, Vivi wrote:  
After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would like to stop taking Gleevec.  
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk to me about  this 
again in ten years."
Has anyone else stopped taking Gleevec after years of being "in  
remission?"  If so, how's it going?
What has changed in your life?  Have any of the obvious physical  
side-effects (leg cramps, blood in the whites of your eyes, swollen  eyelids,
abdominal fat) retreated or been reversed?
I'd appreciate any information other CMLers might have.
Best to all.   



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Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Hi Rien,   I started a study the first week in Jan.  2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it was approve  my the FDA. They 
changed it later to 300 mg because of the Gleevec rash.  I  got sick in 2009 
and stopped Gleevec for 26 days because of sinus infection and  the Doctor 
at home put me on an antibiotic which made me sick so I stopped for  those 26 
days.
 
 Then I started up again and had my  blood work done at Northwestern 
and started on a trip out west.  My Cancer  Doctor called me while driving and 
said," David your blood work showed that  their are cancer cells back in 
your blood".  I told him remember I quit for  26 days and he replied that's 
right I forgot, did you start Gleevec again I told  him yes and he said " well 
if it worked before it will work again and hung up  and I never heard from 
again.  I later received a letter from him that he  moved on to a different 
Hosp. in New York, NY. and that was the end of  that.
 
So, June 7th of this year I flew in from South Fort Myers. FL.  to Chicago 
to get my blood work see my new Doctor pick up my drugs and be on my  way 
home.  But instead I was told their no longer a study and you won't be  
getting the drug any longer.  That took my breath away.  Before I left  they 
then 
told me that they changed their mind and would give me the drug and 7  month 
supply and would sent the rest later because they were short on  Gleevec..
 
Last week I received a call telling me that for me to receive  the drug 
that I would have to fly in every 3 months, that's not going to happen  with 
the cost of flights, car rental, etc., not with my income at 78 years  old.  
They called me last week and they are suppose to have a meeting and  let me 
know. 
 
When I started this study their were 8 of us out of 200 people  nation way 
and that I would receive the drug STI571 for as long and I could  tolerated 
it or stay alive.  Well that changed.  I am waiting for a  phone call and 
I'm afraid it's not going to be good news,  So, my question  is should I take 
a chance and stop the drug and get blood work in 3 months and  see was 
happens with my blood count? I am a basket case waiting to see what  happens.
 
If you have some answers please let met know.
 
Thank you,
 
David (greenie) Greenberg
South Fort Myers, Florida
 
 
 
 
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time,  
rien16...@gmail.com writes:

 
Hello!


I stopped  taking Gleevec after 13 years. I had my checkups every month, 
but only in the  first year. In the second year every two months and from now 
on every three  months for the rest of my life.
It seems that  everybody reacts in a different way. I myself had more 
bonecramps after having  stopped than while taking Gleevec; but after the first 
year it gradually went  better and now I have these cramps only a few times 
per year during the night.  The swallen eyelids completely disappeared and 
unfortunately, my face became a  lot thinner. Another side-effect: my hair was 
not grey anymore after havinig  stopped, it is still dark, which was not 
the case before. After all I am glad  that I took the decision, the problems 
of the first year will disappear, so I  strongly advise you to do like I did.
Feel free to  contact me for further information.
Greetings  from the Netherlands - and let's be grateful that Gleevec 
exisits!!


Rien


2017-08-05 19:18 GMT+02:00 Vivi :

After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would like to stop taking Gleevec.  
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk to me about  this 
again in ten years."
Has anyone else stopped taking Gleevec after years of being "in  
remission?"  If so, how's it going?
What has changed in your life?  Have any of the obvious physical  
side-effects (leg cramps, blood in the whites of your eyes, swollen  eyelids,
abdominal fat) retreated or been reversed?
I'd appreciate any information other CMLers might have.
Best to all.   

-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
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-- 

 

Re: [CMLHope] ZAVIE MILLERS ZERO LIST

[Myvety2k via CMLHope]

Thank you so much for your reply.
 
greenie
 
 
In a message dated 7/21/2017 8:15:52 A.M. Eastern Daylight Time,  
s...@iinet.net.au writes:

 
CML HOPE  
Hi All  
FACEBOOK has a FORUM  
A Facebook reunion  group has been started for Zavie's Zero Club members 
which has been going  since 2016

https://www.facebook.com/groups/1673390782910601/ 
ZAVIE - CML ZERO CLUB  MEMBERS - WHERE ARE YOU 
There are 161 current  members who were all members of the ZAVIE ZERO’s  
We have been updating  the Register that Zavie Miller has –  
Found hundreds of  names  
>From Number 1 to  Number 1381  

NOTE: 

Ms  Fran Mauri Comment in 2010  

1366  Entries (zero number presentations)  
947  valid Email Addresses  
260  Invalid Email Addresses [European Addresses?] 
149  No email Addresses  

 

>From  2010 to 2011 there were 9 Zero numbers presented to #  1375 

>From  2011 to 2012 there were 6 Zero number presented to # 1381   

#  1381 is the last Number of the Zavie Zero Club  Member List   

  

 
Your Comments DAVID   
Hi everyone, I have  this copy of Zavie's list if you notice their is a 
number 47 and 49 but no  48. Years back Zavie sent me the list and he gave 
mi 
number 48 which is  missing. I even put in on the side of my Glenview Naval 
Air Station hat.  So I don't know why it's missing on this list. So enjoy 
the  list.\ 
Your name is not  missing from the Zavie Zero List (Register)  - Latest 
updated was June  2017 





47  
Joyce  
Ward  
Pickerington  
OH  
Early  chronic, 0 at 3 mos. Heart attack, 1/20 in  jun03   
48  
David  
Greenberg  (Greenie)  
South  Fort Myers  
FL  

49  
Dave  
Schulz  
Detroit  
MI  
Had  an auto. transplant. 
Cheers 
Sue Hurt   

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Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic

[Myvety2k via CMLHope]

Thank you,
 
greenie
 
 
In a message dated 6/1/2017 11:12:58 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hi Greenie
I will be praying for your trip. Life is hard when  we have to face the 
death of our loved ones. 
I got married young and never in a million  years
Thought I would have to live my older years
With a terminal disease and a widow.  My  hubby
Went to Heaven in 1998. He had diabetes and heart  disease.   He just went 
to sleep one night
And never woke up. 
But we have to live on the best we can. Other  people need us so hang in 
their and enjoy your
Family. 
Love you so very much 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 1, 2017, at 8:25 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com> 
 wrote:



 
Lee, I don't take any kind of pain medication.   Yesterday I moved a flower 
pot for my wife and pulled a muscle in my lower  side of my back and you 
know how painful that can be but it will go away in  a few days. We put some 
ben-gay on it and that helped somewhat.   

The things that we can't due when we get old.  Need  to think first, then 
act before we do things.  I'm flying into Chicago  June 7th to see my Cancer 
Doctor, get my blood work see my son's wife  and grand kids, one of my 
friends that I used to work with at Inland Steel  is going to pick me up and 
drive me around.  Have lunch with them all  and then he will drop me off at the 
airport to fly back that night.   Flying out of RSW the first flight and 
flying out of Chicago on the last  flight.  It's going to be a long day.  As 
the say, you got to do  as you got to do.  Derek's turned 31 on May 28th last 
year and passed  away on the13th.  Not looked forward to that date.
 
greenie
 
 
In a message dated 5/31/2017 11:21:31 P.M. Eastern Daylight Time, 
rbhuffm...@gmail.com writes:



On Friday, April 21, 2017 at 6:34:40 AM UTC-5, Lee  wrote:  
 

I'm still here, too! I was wondering where everyone went!  Hopefully, 
everyone is healthy and just taking a break! Greenie, in case  you are taking 
Ibuprofen (for arthritis and pain) you should let your  doctor know. He or she 
might want you to discontinue it. It drastically  lowers kidney function. 


Have a nice weekend, all!


18's 
Lee 

On Apr 21, 2017, at 6:13 AM, cml...@googlegroups.com  wrote:




 
_cmlhope@googlegroups.com_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
_Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview)

(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overvie
w)  
 
Topic  digest 
_View all topics_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
  
 
*   _Fun thing to do_ 
(mip://1a5f5ca8/default.html#EB130C85-430C-4B64-B867-D7F620A83AC0@aol.com_group_thread_0)
  - 8  Updates 

_Fun thing to do _ 
(http://groups.google.com/group/cmlhope/t/277496fc63bbdb52?utm_source=digest_medium=email)
 
myve...@aol.com: Apr 20  08:14AM -0400 

Hi Group, is anyone home. Their  seems to no posts anymore? I noticed that 
my name is off  Zavie's list and he gave me number 48 and it's gone. Hope  
all is well with everyone.

greenie


In a  message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time,  
pksc...@gmail.com  writes:


For 32 years. I commuted two  hours each day in the Toronto traffic 
(exposure to benzine)  and then sat in front of a computer terminal all day 
long  
(prolonged exposure to electromagnetic radiation).
Had I  known then, what I know now, I would have chosen a healthier  
occupation.
Also, in my younger years, I used leaded  gasoline to wash the grease off 
my hands after working on my  beat up cars.




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Marty Gartenberg <wa2...@gmail.com>:  Apr 20 09:02AM -0400 

Hi Greenie,

I'm  still here, in fact i am always here. I think that everyone is  not
posting because of the holidays and are busy at this time  of the year.

So, how are you doing? I hope that you  are doing well. Ever since my
accident i have been trying to  recover 

Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic

[Myvety2k via CMLHope]

atter what you  go through, ain't life great!
You bet it is! Remember I'm still  pushing those 18's.

18's,

Marty
myve...@aol.com: Apr 20  11:42AM -0400 

Wow, I didn't know about the accident.  Well, I'm glad things are going 
better for you. I'm doing O. K.  I'm at 41 on my GFR which is not great but 
the Doctor told me to  keep drinking a lot of water and I've increased that 
also. I  have blood work in Chicago on the first of June, see the Doctor,  
etc. Check in with my late son's wife and kids and then catch  the last 
plane 
out of Chicago to Fort Myers. It will be a long  day but I'll be doing 
just find. Creatinine is at 1.6 dropped  from 2.02 so that's another plus. 
PLEASE be careful and take  care of yourself. We all need you to solve all 
of 
our problems.  

Cheers,

greenie


In a message dated  4/20/2017 9:02:51 A.M. Eastern Daylight Time, 
wa2...@gmail.com  writes:

Hi Greenie, 


I'm still  here, in fact i am always here. I think that everyone is not  
posting because of the holidays and are busy at this time of the  year.


So, how are you doing? I hope that you  are doing well. Ever since my 
accident i have been trying to  recover but it is a very slow process. I 
broke my 
neck in three  places as well as my arm and shattered my  elbow.


I was in a coma for many weeks and  when I finally got up to find i had 
hole in my neck connected to  a respirator with my head in a sort of globe 
I 
didn't know what  happened to me. They told me that i had plates, screws, 
nuts 
and  bolts in both my neck and arm. Had to go to a nursing home and had  
months of therapy.


But i am still still  recovering. I gained a lot of being myself in these 
past nine  months.


I'm walking I'm talking I'm eating  again and I am off of Dialysis and got 
a kidney transplant and a  prostate operation almost two and a half years 
ago 
and being  able to pee is very good. And the best part is that I can 
still  drive my wife at night. Even went on a cruise on March 26th, and  
our 
41st anniversary was on March 28th while we were on the  cruise. 


The way I look at things no matter  what you go through, ain't life great! 
You bet it is! Remember  I'm still pushing those 18's.  


18's,


Marty

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Marty Gartenberg <wa2...@gmail.com>: Apr  20 02:30PM -0400 

Greenie,

The one thing  that you did mention was the fact that your kidney  function
dropped. Hey I have a suggestion for you. If your not  diabetic then start
drinking cranberry juice. It washes your  kidneys out and it wouldn't
surprise me if your kidney function  dropped even lower. But either way you
should still drink more  water which you already know  about.

18's,

Marty

On Thu,  Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope <
myve...@aol.com: Apr 20  03:23PM -0400 

Yes, Marty I am doing the cranberry  juice. 

Thanks,

greenie


In a message dated  4/20/2017 2:30:38 P.M. Eastern Daylight Time, 
wa2...@gmail.com  writes:


Greenie,


The  one thing that you did mention was the fact that your kidney  function 
dropped. Hey I have a suggestion for you. If your not  diabetic then start 
drinking cranberry juice. It washes your  kidneys out and it wouldn't 
surprise 
me if your kidney function  dropped even lower. But either way you should 
still drink more  water which you already know  about.


18's,


Marty


On  Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope 
<cml...@googlegroups.com>  wrote:


Wow, I didn't know about the accident.  Well, I'm glad things are going 
better for you. I'm doing O. K.  I'm at 41 on my GFR which is not great but 
the Doctor told me to  keep drinking a lot of water and I've increased that 
also. I  have blood work in Chicago on the first of June, see the Doctor,  
etc. Check in with my late son's wife and kids and then catch  the last 
plane 
out of Chicago to Fort Myers. It will be a long  day but I'll be doing 
just find. Creatinine is at 1.6 dropped  from 2.02 so that's another plus. 
PLEASE be careful and take  care of yourself. We all need you to solve all 
of 
our problems.  

Cheers,

greenie




In a message dated  4/20/2017 9:02:51 A.M. Eastern Daylight Time, 
wa2...@gmail.com  writes:





Hi Greenie,  


I'm still here, in 

Re: [CMLHope] Re: Fun thing to do

[Myvety2k via CMLHope]

Yes, Marty I am doing the cranberry juice. 
 
Thanks,
 
greenie
 
 
In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:


Greenie,


The one thing that you did mention was the fact that your kidney function  
dropped. Hey I have a suggestion for you. If your not diabetic then start  
drinking cranberry juice. It washes your kidneys out and it wouldn't surprise 
 me if your kidney function dropped even lower. But either way you should 
still  drink more water which you already know about.


18's,


Marty


On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Wow, I didn't know about the accident.  Well, I'm  glad things are going 
better for you.  I'm doing O. K. I'm at 41 on my  GFR which is not great but 
the Doctor told me to keep drinking a lot of  water and I've increased that 
also.  I have blood work in Chicago on  the first of June, see the Doctor, 
etc.  Check in with my late son's  wife and kids and then catch the last plane 
out of Chicago to Fort  Myers.  It will be a long day but I'll be doing 
just find.   Creatinine is at  1.6 dropped from 2.02 so that's another plus. 
PLEASE  be careful and take care of yourself.  We all need you to solve all of 
 our problems.  
 
Cheers,
 
greenie
 
 
 
 
In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, 
wa2...@gmail.com  writes:



 
 
Hi Greenie,  


I'm still here, in fact i am always here. I think that everyone is  not 
posting because of the holidays and are busy at this time of the  year.


So, how are you doing? I hope that you are doing well. Ever since my  
accident i have been trying to recover but it is a very slow process. I  broke 
my 
neck in three places as well as my arm and shattered my  elbow.


I was in a coma for many weeks and when I finally got up to find i  had 
hole in my neck connected to a respirator with my head in a sort of  globe I 
didn't know what happened to me. They told me that i had plates,  screws, nuts 
and bolts in both my neck and arm. Had to go to a nursing  home and had 
months of therapy.


But i am still still recovering. I gained a lot of being myself in  these 
past nine months.


I'm walking I'm talking I'm eating again and I am off of Dialysis and  got 
a kidney transplant and a prostate operation almost two and a half  years 
ago and being able to pee is very good.  And the best part is  that I can 
still drive my wife at night. Even went on a cruise on March  26th, and our 
41st anniversary was on March 28th while we were on the  cruise. 


The way I look at things no matter what you go through, ain't life  great! 
You bet it is! Remember I'm still pushing those 18's. 


18's,


Marty



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Re: [CMLHope] Re: Fun thing to do

[Myvety2k via CMLHope]

Hi Group, is anyone home. Their seems to no posts anymore? I  noticed that 
my name is off Zavie's list and he gave me number 48 and it's  gone.  Hope 
all is well with everyone.
 
greenie
 
 
In a message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time,  
pksch...@gmail.com writes:


For 32 years. I commuted two hours each day in the Toronto  traffic 
(exposure to benzine) and then sat in front of a computer terminal all  day 
long 
(prolonged exposure to electromagnetic radiation).
Had I known  then, what I know now, I would have chosen a healthier 
occupation.
Also, in  my younger years, I used leaded gasoline to wash the grease off 
my hands after  working on my beat up cars.




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Re: [CMLHope] Fun thing to do

[Myvety2k via CMLHope]

Benzine, That's the one.  I had a side business painting  Corvette's and 
body work for over 30 years.  Paints, thinners, etc. will do  it every time.  
No Cancer anywhere in my family but me.  Should have  had a different side 
line then painting cars.
 
greenie
 
 
In a message dated 2/7/2017 3:10:31 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
Hi Joyce,


Just that you know benzine is listed of  possible cause of cancer. Him 
being a former smoker, that was the best idea he  could have had.



18's,


Marty


On Tue, Feb 7, 2017 at 2:24 PM, Joyce Mesnarich  wrote:

Good idea Jeannie.  My husband is  the CML patient.  He also was a smoker 
for many years but had quit  about 20 years before diagnosis.  We owned a 
petroleum delivery  company.  And in that capacity he would ingest the benzene 
fumes all  day…..for 33 years.  This is what we think caused his CML.  
Very interesting reading these emails.
Joyce in So Illinois (Not Chicago)  
 


On Feb 6, 2017, at 10:09 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

I walked between 5 diesel buses for half an  hour on a trip once, deciding 
which bus I should get on.  Have always  wondered about the benzene in the 
diesel fuel.not good.  This was  about a year before detection.

18's,
Susan F. Zimmerman



-Original  Message-
From: ANGELYN ESDERS 
To: cmlhope 
Sent: Mon, Feb 6, 2017  8:08 pm
Subject: Re: [CMLHope] Fun thing to do


 
 
I was a  smoker. How many of us were smokers?


One day at a  supermarket I was in the direct line of fire when an old lady 
on a scooter  hit a display of Javex. It splashed all over 
me.completely ruined my  clothes...and I had to drive home on that VERY HOT 
summer 
day(two hr  drive) in clothing soaked with Javex. Apparently it absorbs through 
 
the skin. I felt very ill the next day.   I have always  wondered..


I was cleaning calcium deposits off of seashells using CLR.  It worked very 
well. I did not wear gloves. I have always  wondered.


Angie




 
 
  

 From: 'Jeanie' via CMLHope  
To: cmlhope@googlegroups.com 
Sent: Monday, February 6, 2017 6:08  PM
Subject: [CMLHope] Fun  thing to do


Let's all make s list of  all the things we were doing when we got CML.  
Things that we didn't  normally do or that were done every day. Mine were:
Exposure to  pesticides
Dental X-rays more than normal
Donating blood
Deep  grief over loss of hubby
Thanks group.  

My Motto:
Faith  and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started  Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel  11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer  Center 

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Re: [CMLHope] Disability and retirement

[Myvety2k via CMLHope]

Yes, and I'm still getting to this day.
 
greenie
 
 
In a message dated 2/2/2017 3:52:34 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Hi Greenie
Did you still get your pension check?

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Feb 2, 2017, at 11:35 AM, Myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



 
Hi Lee, I retired in 1995 at the age of 55.  I worked  for a close friend 
of mine at his Ford Dealership until I found out the I  had CML two weeks 
before Xmas, that was 1999.  My Cancer Doctor told my  wife at that time to 
apply for SS and was approved within two weeks.   At that time I was getting a 
pension check from the company that I  retired from.  By the way my Cancer 
Doctor wrote a letter to go  along with my letter to SS.
 
Of course things may have changed by now I'm not sure but  give it a try.
 
greenie
 
 
 
In a message dated 2/2/2017 8:09:15 A.M. Eastern Standard Time, 
cmlhope@googlegroups.com  writes:

Good  morning to all. My husband, who was diagnosed with CML eight years 
ago, is  newly retired. He won't be eligible for social security for another 3 
 years. Does anyone know if it is possible to collect disability during  
retirement? Also, when he is able to collect social security, will he be  able 
to collect both? I would love your feedback and advice.  

Blessings and 18's to you all! 
Lee Erstein


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Re: [CMLHope] Disability and retirement

[Myvety2k via CMLHope]

Hi Lee, I retired in 1995 at the age of 55.  I worked for  a close friend 
of mine at his Ford Dealership until I found out the I had CML  two weeks 
before Xmas, that was 1999.  My Cancer Doctor told my wife at  that time to 
apply for SS and was approved within two weeks.  At that time  I was getting a 
pension check from the company that I retired from.   By the way my Cancer 
Doctor wrote a letter to go along with my letter to  SS.
 
Of course things may have changed by now I'm not sure but give  it a try.
 
greenie
 
 
 
In a message dated 2/2/2017 8:09:15 A.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Good  morning to all. My husband, who was diagnosed with CML eight years 
ago, is  newly retired. He won't be eligible for social security for another 3 
years.  Does anyone know if it is possible to collect disability during 
retirement?  Also, when he is able to collect social security, will he be able 
to collect  both? I would love your feedback and advice. 

Blessings and 18's to you  all! 
Lee Erstein


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Re: [CMLHope] Change on date

[Myvety2k via CMLHope]

Thank you Marty.
 
I saving this post.
 
greenie
 
 
In a message dated 1/26/2017 3:30:16 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
Greenie,


I wrote something a very long time ago, and I have  passed it along many 
times. I'm not quite sure if you ever got  it.


So I will now pass it along once again. Pay attention the the  very last 
word...

EXPECT THE BEST, MIND OVER MATTER.  SUCCESS IS A FUNCTION OF SELF 
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST  FIRST LEARN TO BELIEVE IN 
YOURSELF. 
IF YOU EXPECT THE WORSE THEN THAT IS  EXACTLY WHAT YOU WILL GET (MIND OVER 
MATTER) IF YOU EXPECT THE BEST THEN THAT  IS WHAT YOU WILL GET. 
WHAT  WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
MIND.  LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
INTO THE  REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
THOUGHT TO BE  IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. 
EVERY GREAT THING EVENTUALLY  BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
BEGINNING OF A DOUBTFUL UNDERTAKING  IS THE ONE THING THAT INSURES THE 
SUCCESSFUL OUTCOME... 
FOCUS... 

18's, 

Marty



On Thu, Jan 26, 2017 at 1:26 PM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Marty, all of us as a group always help each other out,  it's been that way 
from day one.  You going back 27 years, me 18  years.  Being able to talk 
to someone that's been through it for the  new be's helps them also. Just 
reading your reply has made my day and I feel  so much better.  My out look has 
changed also about this problem that  I'm having. All of us have voiced at 
one time or another so were all in the  same boat.
 
Thanks again, and have a nice day.
 
greenie
 
 
 
 
In a message dated 1/26/2017 12:58:49 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

 
 
 
 
 
 
Greenie,


Greenie, I am no saint just someone that likes  to pay it forward, as I 
once made a promise to GOD.  Like i said,  don't get all bent out of shape 
about this, and by the way everything else  in your life as. Do you want to 
know 
why? It only hurts  you...


I remember when i first got diagnosed and had a blood  test i would wait in 
the waiting room and i would severely sweat and  sometimes start to shake 
my whole body until i got the results  back.


Now that i think back to "yesteryear" being 27 years  ago why did i ever do 
that? When someone worries then so does their minds.  I once mentioned that 
to myself and others as well. Your mind is a very  powerful tool because 
your mind also controls your  body...


Try not to anticipate things... Just go get your  kidneys checked out.


Why do you think that i always end any  of my posts with 18's? It's for 
life Greenie, and others as  well!


Marty 

 







On Thu, Jan 26, 2017 at 12:21 PM, Myvety2k via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Marty, You are are a Saint.  Thank you, I have  been so worried about all 
of this.  Your post has made me feel so  much better.
 
Thank you again,
 
Greenie
 
 

 
In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
Hi Greenie,


I see that you Creatinine level went  from   1.82 to 2.02. If my math 
serves me correct then we are  looking at a 0.2 raise. this is not earth 
shaking 
however you should  keep an eye on it. I think that you making an 
appointment with a Nephrologist  is the right thing to do.


It  could be a lot of things causing this including some of your  
medications 

Don't  get to bent out of shape over this you just listen to your new  new  
Nephrologistphroligist  



18's,


Marty




















On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Hi Marty,  I had some blood work done last  week and it's not the best.  In 
one month my creatinine level  went from 1.82 to 2.02.  My interest is 
sending me to a  Nephrology next week. Had a Ultrasound also it showed no 
stones 
but  it showed that I had bilateral renal cortical  thinning. The report 
showed that my folate was 8.7   and normal is 5.4.  I've been drinking water 
and cranberry  juice also.  I have seeing my interest tomorrow.  Will  keep 
in touch.
 
Greenie
 
 
In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard  Time, 
wa2...@gmail.com  writes:

 
Hi Jeanie,


I think that I have already given you information about what  may help your 
kidneys. However if I didn't then let me repeat  myself. One cup of 
caffeinated coffee and one coke caffeinated is  now two caffeinated drinks that 
you 
drink most every day and you  don't unnecessary need any caffeine in your 
life, or as little as  possible, and on top of that you aren't crazy about 
drinking  water.


If you must drink caffeinated coffee and coke then it is a  very simple 
thing to change. Just starting drinking caffeine  free. And while your at it 
something that will help your kidneys  is cranberry juice.


I am ta

Re: [CMLHope] Oh Yea, Greenie I have one more thing to say...

[Myvety2k via CMLHope]

Marty, this post is up lifting.  Your right think  positive.
 
greenie
 
 
In a message dated 1/26/2017 4:12:52 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 



18's,


Marty

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Re: [CMLHope] Change on date

[Myvety2k via CMLHope]

Marty, all of us as a group always help each other out, it's  been that way 
from day one.  You going back 27 years, me 18 years.   Being able to talk 
to someone that's been through it for the new be's helps them  also. Just 
reading your reply has made my day and I feel so much better.   My out look has 
changed also about this problem that I'm having. All of us have  voiced at 
one time or another so were all in the same boat.
 
Thanks again, and have a nice day.
 
greenie
 
 
 
 
In a message dated 1/26/2017 12:58:49 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
 
 
 
Greenie,


Greenie, I am no saint just someone that likes to  pay it forward, as I 
once made a promise to GOD.  Like i said, don't get  all bent out of shape 
about this, and by the way everything else in your life  as. Do you want to 
know 
why? It only hurts you...


I remember when  i first got diagnosed and had a blood test i would wait in 
the waiting room  and i would severely sweat and sometimes start to shake 
my whole body until i  got the results back.


Now that i think back to "yesteryear" being  27 years ago why did i ever do 
that? When someone worries then so does their  minds. I once mentioned that 
to myself and others as well. Your mind is a very  powerful tool because 
your mind also controls your body...


Try  not to anticipate things... Just go get your kidneys checked  out.


Why do you think that i always end any of my posts with  18's? It's for 
life Greenie, and others as well!


Marty 

 







On Thu, Jan 26, 2017 at 12:21 PM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Marty, You are are a Saint.  Thank you, I have been  so worried about all 
of this.  Your post has made me feel so much  better.
 
Thank you again,
 
Greenie
 
 

 
In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

 
 
 
Hi Greenie,


I see that you Creatinine level went from  1.82 to 2.02. If my math serves 
me correct then we are looking at a  0.2 raise. this is not earth shaking 
however you should keep an eye on it.  I think that you making an appointment 
with a Nephrologist  is the right thing to do.


It  could be a lot of things causing this including some of your 
medications  

Don't  get to bent out of shape over this you just listen to your new  new  
Nephrologistphroligist  



18's,


Marty




















On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Hi Marty,  I had some blood work done last week  and it's not the best.  In 
one month my creatinine level went from  1.82 to 2.02.  My interest is 
sending me to a Nephrology next week.  Had a Ultrasound also it showed no 
stones 
but it showed that I  had bilateral renal cortical thinning. The report 
showed  that my folate was 8.7  and normal is 5.4.  I've been  drinking water 
and cranberry juice also.  I have seeing my interest  tomorrow.  Will keep in 
touch.
 
Greenie
 
 
In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
Hi Jeanie,


I think that I have already given you information about what may  help your 
kidneys. However if I didn't then let me repeat myself. One  cup of 
caffeinated coffee and one coke caffeinated is now two  caffeinated drinks that 
you 
drink most every day and you don't  unnecessary need any caffeine in your 
life, or as little as  possible, and on top of that you aren't crazy about 
drinking  water.


If you must drink caffeinated coffee and coke then it is a very  simple 
thing to change. Just starting drinking caffeine free. And  while your at it 
something that will help your kidneys is cranberry  juice.


I am taking to you because you have to remember that my kidneys  failed and 
I was on dialysis for four years then finally I had a  kidney transplant.


And Jeanie I know what happened to me, let's not make it a repeat  
performance for you. I love everyone on this site and I know that  everyone on 
this 
site also loves me so do whatever you need to try and  stay healthy 
including no caffeine, drink water with non caffeinated  iced tea mix, just 
keep a 
pitcher with lemon slices in it and  keep in the fridge. You can even add a 
very small amount of some  vanilla extract in it. 


Finally let me tell you something having dialysis was like a  torture to 
me, I am talking to you and everyone from my heart. So just  try and make some 
life changing things in this New Year, you will  be happy that you did. 


Remember...


18's,


Marty  


On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Lots of water. I drink 1 cup caffeine coffee daily.  Fill  up a large 
pitcher and drink it through the day.  Add juice  favor if that helps.   Good 
luck. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/

Re: [CMLHope] Change on date

[Myvety2k via CMLHope]

Marty, You are are a Saint.  Thank you, I have been so  worried about all 
of this.  Your post has made me feel so much  better.
 
Thank you again,
 
Greenie
 
 
In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
Hi Greenie,


I see that you Creatinine level went from1.82 to 2.02. If my math 
serves me correct then we are looking at a 0.2 raise.  this is not earth 
shaking 
however you should keep an eye on it. I think that  you making an 
appointment with a Nephrologist  is the right thing to do.


It  could be a lot of things causing this including some of your 
medications  

Don't  get to bent out of shape over this you just listen to your new new  
Nephrologistphroligist  



18's,


Marty




















On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via CMLHope  
<cmlhope@googlegroups.com> wrote:


Hi Marty,  I had some blood work done last week and  it's not the best.  In 
one month my creatinine level went from 1.82 to  2.02.  My interest is 
sending me to a Nephrology next week. Had a  Ultrasound also it showed no 
stones 
but it showed that I had bilateral  renal cortical thinning. The report 
showed that my folate was  8.7  and normal is 5.4.  I've been drinking water 
and cranberry  juice also.  I have seeing my interest tomorrow.  Will keep in  
touch.
 
Greenie
 
 
In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

 
Hi Jeanie,


I think that I have already given you information about what may help  your 
kidneys. However if I didn't then let me repeat myself. One cup of  
caffeinated coffee and one coke caffeinated is now two caffeinated drinks  that 
you 
drink most every day and you don't unnecessary need any caffeine  in your 
life, or as little as possible, and on top of that you aren't  crazy about 
drinking water.


If you must drink caffeinated coffee and coke then it is a very  simple 
thing to change. Just starting drinking caffeine free. And  while your at it 
something that will help your kidneys is cranberry  juice.


I am taking to you because you have to remember that my kidneys  failed and 
I was on dialysis for four years then finally I had a  kidney transplant.


And Jeanie I know what happened to me, let's not make it a repeat  
performance for you. I love everyone on this site and I know that  everyone on 
this 
site also loves me so do whatever you need to try and  stay healthy 
including no caffeine, drink water with non caffeinated iced  tea mix, just 
keep a 
pitcher with lemon slices in it and keep in the  fridge. You can even add a 
very small amount of some vanilla extract in  it. 


Finally let me tell you something having dialysis was like a torture  to 
me, I am talking to you and everyone from my heart. So just try and  make some 
life changing things in this New Year, you will be happy  that you did. 


Remember...


18's,


Marty  


On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via  CMLHope 
<cmlhope@googlegroups.com>  wrote:


Lots of water. I drink 1 cup caffeine coffee daily.  Fill up a  large 
pitcher and drink it through the day.  Add juice favor if  that helps.   Good 
luck. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 14, 2016, at 8:39 AM, myvety2k via CMLHope 
<cmlhope@googlegroups.com>  wrote:



Marty,  Do you have any suggestions that could help me lower my  creatinine 
level.  When we receive the message from Derek's wife  that he had a heart 
attack and passed away 5 min. later Grace had a  heart attack and had to 
rush her to the hospital.  After Grace  had her attack I started getting my 
regular heartbeat back that  started back in my mid-forties so I made an 
appointment with my  cardiologists he did the 21 day monitor, stress test and 
EKG 
and  everything came back O.K. He told my no more caffeine, no coffee. I do  
drink one small cup in the morning and one Coca-cola non-caffeine free  
each day.  I'm not big on drinking water which I know I should be  or maybe I 
need to change my diet, etc.  Hopefully you can give  me some answers.   If 
anyone wants to hope in on this email be my  guess.

Thanks Marty,

greenie

In a message  dated 12/14/2016 8:19:53 AM Eastern Standard Time, 
wa2...@gmail.com writes:


 
 
 
Hi Greenie,
 
You don't ever have to apologize to me or anyone else for that  matter. 
Sometimes I realize that I made a mistake and I guess that I  would have to 
apologize at least twice a week maybe more, so I would  be writing apologies at 
least twice a week and maybe more.
 
You always take care of yourself.
 
18's,
 
Marty
 
 


On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via  CMLHope 
<cmlhope@googlegroups.com>  wrote:

I made and error on the date that I had my  blood work, It was on 
12-07-2016.  Sorry about  that.

greenie  
-- 
-- 
[CMLHope]

Re: [CMLHope] Change on date

[Myvety2k via CMLHope]

Hi Marty,  I had some blood work done last week and it's  not the best.  In 
one month my creatinine level went from 1.82 to  2.02.  My interest is 
sending me to a Nephrology next week. Had a  Ultrasound also it showed no 
stones 
but it showed that I had bilateral  renal cortical thinning. The report 
showed that my folate was  8.7  and normal is 5.4.  I've been drinking water 
and cranberry juice  also.  I have seeing my interest tomorrow.  Will keep in  
touch.
 
Greenie
 
 
In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
Hi Jeanie,


I think that I have already given you information about what may help  your 
kidneys. However if I didn't then let me repeat myself. One cup of  
caffeinated coffee and one coke caffeinated is now two caffeinated drinks that  
you 
drink most every day and you don't unnecessary need any caffeine in your  
life, or as little as possible, and on top of that you aren't crazy about  
drinking water.


If you must drink caffeinated coffee and coke then it is a very simple  
thing to change. Just starting drinking caffeine free. And while your at  it 
something that will help your kidneys is cranberry juice.


I am taking to you because you have to remember that my kidneys failed  and 
I was on dialysis for four years then finally I had a kidney  transplant.


And Jeanie I know what happened to me, let's not make it a repeat  
performance for you. I love everyone on this site and I know that  everyone on 
this 
site also loves me so do whatever you need to try and stay  healthy 
including no caffeine, drink water with non caffeinated iced tea mix,  just 
keep a 
pitcher with lemon slices in it and keep in the fridge. You  can even add a 
very small amount of some vanilla extract in it. 


Finally let me tell you something having dialysis was like a torture to  
me, I am talking to you and everyone from my heart. So just try and make some  
life changing things in this New Year, you will be happy that you  did. 


Remember...


18's,


Marty  


On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via CMLHope  
<cmlhope@googlegroups.com> wrote:


Lots of water. I drink 1 cup caffeine coffee daily.  Fill up a  large 
pitcher and drink it through the day.  Add juice favor if that  helps.   Good 
luck. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 14, 2016, at 8:39 AM, myvety2k via CMLHope 
<cmlhope@googlegroups.com> wrote:



Marty,  Do you have any suggestions that could help me lower my creatinine  
level.  When we receive the message from Derek's wife that he had a  heart 
attack and passed away 5 min. later Grace had a heart attack and had  to 
rush her to the hospital.  After Grace had her attack I started  getting my 
regular heartbeat back that started back in my mid-forties so I  made an 
appointment with my cardiologists he did the 21 day monitor,  stress test and 
EKG 
and everything came back O.K. He told my no more  caffeine, no coffee. I do 
drink one small cup in the morning and one  Coca-cola non-caffeine free each 
day.  I'm not big on drinking water  which I know I should be or maybe I 
need to change my diet, etc.   Hopefully you can give me some answers.   If 
anyone wants to hope in  on this email be my guess.

Thanks  Marty,

greenie

In a message dated 12/14/2016 8:19:53  AM Eastern Standard Time, 
wa2...@gmail.com writes:


 
 
 
Hi Greenie,
 
You don't ever have to apologize to me or anyone else for that  matter. 
Sometimes I realize that I made a mistake and I guess that I  would have to 
apologize at least twice a week maybe more, so I would be  writing apologies at 
least twice a week and maybe more.
 
You always take care of yourself.
 
18's,
 
Marty
 
 


On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via  CMLHope 
<cmlhope@googlegroups.com> wrote:

I made and error on the date that I had my  blood work, It was on 
12-07-2016.  Sorry about  that.

greenie  
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Re: Re: [CMLHope] Re: Fw: Jingle Bells (1940s style)

[myvety2k via CMLHope]

Your welcome.

In a message dated 12/28/2016 7:10:00 PM Eastern Standard Time, joy...@htc.net 
writes:
 Thanks so much Greenie.  It was exciting and beautiful.  So much 
better than seeing fights and shootouts at the mall.  
           Joyce in Southern IL 
On Dec 26, 2016, at 10:55 PM, Richard H  wrote:Thanks 
Greenie!!  I Enjoyed the gift.  

On Monday, December 26, 2016 at 6:32:40 AM UTC-6, greenie wrote:

 Hi my CML friends, I'm passing this along a day late.  Sorry about that 
but you need to check this this out.

greenie
  




    Jingle Bells like you have never heard it before!  
FANTASTIC!! 
    https://www.youtube.com/embed/ khQN5ylb3H0?rel=0 USAF Band 
WWII Holiday Flashback - YouTubewww.youtube.comTry watching this video on 
www.youtube.com, or enable JavaScript if it is disabled in your browser. 
 

 




 






 
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[CMLHope] Fwd: Fw: Jingle Bells (1940s style)

[myvety2k via CMLHope]

 Hi my CML friends, I'm passing this along a day late.  Sorry about that 
but you need to check this this out.

greenie
  




    Jingle Bells like you have never heard it before!  
FANTASTIC!! 
    https://www.youtube.com/embed/ khQN5ylb3H0?rel=0 USAF Band 
WWII Holiday Flashback - YouTubewww.youtube.comTry watching this video on 
www.youtube.com, or enable JavaScript if it is disabled in your browser. 
 

 




 






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Re: [CMLHope] Happy Holidays!!!!!!!

[myvety2k via CMLHope]

Thank you Richard, and a thank you and to everyone else. And a Big Yes on that 
cure of CML.  Be safe driving as well.

greenie



In a message dated 12/18/2016 11:56:13 PM Eastern Standard Time, 
rbhuffm...@gmail.com writes:
 I wish all members a happy Holiday season to end this year of 2016.  
While we have our holiday names different, may they be meaningful to each of 
us.  May the Joys of this year be celebrated, and the unpleasant parts be 
put to rest as we face the future of a New Year 2017.  My Glass is held high 
in tribute celebrating our future and hopes for the cure to be found for CML.

18's as always for life.

Richard H.
 
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Re: Re: [CMLHope] Blood work results

[myvety2k via CMLHope]

Hi Beth, I like going on cruising, Grace and I over the last 16 years have on 
on 9.  We were going to go this Dec 5th but had to cancel because Grace has 
had a few health problems so next year.

greenie

In a message dated 12/16/2016 8:52:20 AM Eastern Standard Time, 
cmlhope@googlegroups.com writes:
 Hi GreenieI'm 78 so we grew up in in same era. What a fun time.  So 
sorry about your son The pain never goes away. I'm headed out on a Christmas 
cruise.  If you are there Norm I'm thinking of you.  We are going all 
over starting with Key West and over to Mexico. I'm going with my daughter and 
granddaughter. Fun in the sun. We are taking a wheel chair to make the tours 
easier for me.  Be good all. 

My Motto:
Faith and PillsWith Love18'sDx 1/2004 CML LeukemiaStarted Gleevec 
2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 
1/2015Doctor Balducci Moffitt Cancer Center 
On Dec 14, 2016, at 12:12 PM, myvety2k via CMLHope <cmlhope@googlegroups.com> 
wrote:

Hi Beth, I will say that for being 77 1/2 years old my heart is in good shape. 
 Had all of the tests 6 months ago and doing find.  And being on Gleevec 
for almost 17 years I'm find.

Thank you,

greenie

In a message dated 12/14/2016 11:20:41 AM Eastern Standard Time, 
cmlhope@googlegroups.com writes:
 Dear Greenie, Another thought...please make sure, this is the Jewish mom 
in me to be sure.that your heart is working well...sometimes we blame 
everything on our chemo's...if it's a new symptom, and you have been on a med 
for a long time, it could be something else that is causing  symptoms...are 
you short of breath when you walk up stairs, tire more easily when you take a 
long walk? Have you had a stress test anytime??? or recently???  Remember, 
the blow to you when you have the kind of loss you have sustained is felt not 
just emotionally, but in the body as well..it is not uncommon to have health 
issues post such a trauma I know you have an amazing spirit just 
worried about you.. Take good care!

Beth


-Original Message-
From: myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Dec 14, 2016 6:23 am
Subject: [CMLHope] Blood work results


Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida





 
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Re: Re: [CMLHope] Blood work results

[myvety2k via CMLHope]

Hi Beth,  Not a problem would be happy to get together.  Cell phone 
number 219-973-8717  Land line  239-561-0098.

greenie

In a message dated 12/14/2016 12:33:21 PM Eastern Standard Time, 
cmlhope@googlegroups.com writes:
 What great memories Marty And thanks Greenie for letting me know you 
are O.K.,   I will be down by you Greenie next week...leaving this 
Saturday for the week. So, if you would like to get together..would love to 
meet you!email.bkbar...@aol.com. Take care, Beth


-Original Message-
From: Marty Gartenberg <wa2...@gmail.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Dec 14, 2016 10:46 am
Subject: Re: [CMLHope] Blood work results

Hi Beth, You being a Jewish mother I'll bet you were brought up by a Jewish 
mother who always used at least two Jewish staples. One being Schmaltz and the 
other graveness. In those times we used to live into our 40s or 50s then 
plots...   Although my father lived until 88 and enjoyed both of these 
Jewish staples. Oy Vei... When I was a kid it was Schmaltz on fresh hot 
rye bread with Caraway seeds imbedded in it. My father was a baker for more 
then fifty years. Brings back those taste buds, doesn't it... Not to mention 
those crispy critters, graveness 18's, Marty
On Wed, Dec 14, 2016 at 11:20 AM, bkbarney via CMLHope 
<cmlhope@googlegroups.com> wrote:
Dear Greenie, Another thought...please make sure, this is the Jewish mom in 
me to be sure.that your heart is working well...sometimes we blame 
everything on our chemo's...if it's a new symptom, and you have been on a med 
for a long time, it could be something else that is causing  symptoms...are 
you short of breath when you walk up stairs, tire more easily when you take a 
long walk? Have you had a stress test anytime??? or recently???  Remember, 
the blow to you when you have the kind of loss you have sustained is felt not 
just emotionally, but in the body as well..it is not uncommon to have health 
issues post such a trauma I know you have an amazing spirit just 
worried about you.. Take good care!

Beth


-Original Message-----
From: myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Dec 14, 2016 6:23 am
Subject: [CMLHope] Blood work results


Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida





 
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Re: Re: [CMLHope] Blood work results

[myvety2k via CMLHope]

Hi Beth, I will say that for being 77 1/2 years old my heart is in good shape. 
 Had all of the tests 6 months ago and doing find.  And being on Gleevec 
for almost 17 years I'm find.

Thank you,

greenie

In a message dated 12/14/2016 11:20:41 AM Eastern Standard Time, 
cmlhope@googlegroups.com writes:
 Dear Greenie, Another thought...please make sure, this is the Jewish mom 
in me to be sure.that your heart is working well...sometimes we blame 
everything on our chemo's...if it's a new symptom, and you have been on a med 
for a long time, it could be something else that is causing  symptoms...are 
you short of breath when you walk up stairs, tire more easily when you take a 
long walk? Have you had a stress test anytime??? or recently???  Remember, 
the blow to you when you have the kind of loss you have sustained is felt not 
just emotionally, but in the body as well..it is not uncommon to have health 
issues post such a trauma I know you have an amazing spirit just 
worried about you.. Take good care!

Beth


-Original Message-
From: myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Dec 14, 2016 6:23 am
Subject: [CMLHope] Blood work results


Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida





 
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Re: Re: [CMLHope] Blood work results

[myvety2k via CMLHope]

Marty you are a prince, thank you for your email I had eight or nine olives a 
few weeks ago and they must have had a ton of sodium in them and I paided the 
price so that's a no, no.

Thanks for your fast reply,

greenie



In a message dated 12/14/2016 8:57:48 AM Eastern Standard Time, 
wa2...@gmail.com writes:
  So, David (greenie) Greenberg, hey now that's what I call a catchy 
name... You say that your Creatnine has slightly gone up, well I think it 
has a lot to do with Gleevec and I think that you had better stop eating those 
Polish Sausages. Salt is a big part of retaining water, and as we get older so 
does our kidney function.  Believe me I know. When I was much younger I 
would think that I was invincible and twenty some odd years later Mother nature 
slapped me in my face and told me not to eat that crap that I was putting 
down my throat. But of course I didn't listen and ended up on dialysis and four 
years later with a kidney transplant.   But I notice that you have 
become accustomed to trying to stop salt in your diet, and that is a very big 
plus for yourself. Also if your not diabetic try drinking Cranberry juice, it 
really cleans your kidneys out. Now just to be honest with you, every once 
in a while I like to eat Polish Sausages, and I pay dearly the next day. When I 
was on a cruise about twenty years ago I would like to eat Creaser salad, only 
this time the waiter brought over a bowl of anchovies and I put them on that 
salad. The next day I suffered with my legs stuffed with water, and the very 
worst part of it was the gout attack. I had to do to the ships doctor and get a 
shot of Prednisone. NEVER AGAIN!!! So my dear friend stop harassing your 
kidneys, you will feel much better for it...  18's Marty   
  
On Wed, Dec 14, 2016 at 7:23 AM, myvety2k via CMLHope 
<cmlhope@googlegroups.com> wrote:

Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida






 
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Re: Re: [CMLHope] Change on date

[myvety2k via CMLHope]

Marty,  Do you have any suggestions that could help me lower my creatinine 
level.  When we receive the message from Derek's wife that he had a heart 
attack and passed away 5 min. later Grace had a heart attack and had to rush 
her to the hospital.  After Grace had her attack I started getting my 
regular heartbeat back that started back in my mid-forties so I made an 
appointment with my cardiologists he did the 21 day monitor, stress test and 
EKG and everything came back O.K. He told my no more caffeine, no coffee. I do 
drink one small cup in the morning and one Coca-cola non-caffeine free each 
day.  I'm not big on drinking water which I know I should be or maybe I need 
to change my diet, etc.  Hopefully you can give me some answers.   If 
anyone wants to hope in on this email be my guess.

Thanks Marty,

greenie

In a message dated 12/14/2016 8:19:53 AM Eastern Standard Time, 
wa2...@gmail.com writes:
 Hi Greenie, You don't ever have to apologize to me or anyone else for 
that matter. Sometimes I realize that I made a mistake and I guess that I would 
have to apologize at least twice a week maybe more, so I would be writing 
apologies at least twice a week and maybe more. You always take care of 
yourself. 18's, Marty  
On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via CMLHope 
<cmlhope@googlegroups.com> wrote:
I made and error on the date that I had my blood work, It was on 12-07-2016. 
 Sorry about that.

greenie
 
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[CMLHope] Change on date

[myvety2k via CMLHope]

I made and error on the date that I had my blood work, It was on 12-07-2016. 
 Sorry about that.

greenie

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[CMLHope] Blood work results

[myvety2k via CMLHope]

Hi Group,  I have some good news and then some not so good news.  I 
received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts 
are NOT detected.  The bad news is that my creatinine level and gone up from 
1.56 to 1.82.  I have always been on the high side going back to 1998.  
It was 1.3 back then.  It was 1.58 in 6/01/2016.

The other item is I'm retaining water in my feet and lower legs.  Had some 
Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and 
calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose 
not use saw and when we go out for dinner I tell them NO SALT on anything but 
the sausage caught me by surprise.

So Marty if you read this email me back or anyone and tell me what my options 
are because I am lost on what to do..   Have not heard from Doctor yet 
because she probably hasn't received a fax yet from Quest.  Otherwise I 
doing find.  Always get cramps that's been from day one when I started 
Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 
and RBC is 3.61 and it's been low ever since i started Gleevec.  

So other then that I want everyone to drive safe and have a Happy Holiday and a 
Happy New Year.

David (greenie) Greenberg
Sunny  Fort Myers, Florida





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Re: [CMLHope] Got a brand new Hip!

[Myvety2k via CMLHope]

Thank you Marty
 
 
In a message dated 12/5/2016 3:54:17 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
Hi David (greenie),


I am so sorry to hear about your son passing. My condolences to you and  
your family


18's


Marty


On Mon, Dec 5, 2016 at 7:27 AM, Myvety2k via CMLHope  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


Dear Susie, I just found out about your Mom and I so sorry  here have to 
read about her passing..  I know I lost my son Derek this  June 13th from a 
heart attack and only 31 years old.  Their's not a day  that goes by that I 
don't think of him.. I know I will never get over it, so  you have my blessing.
 
David (greenie) Greenberg
 
 
In a message dated 12/4/2016 9:52:18 P.M. Eastern Standard Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

Dear Susie-Q,  


So  much has gone on with you!  Nothing can replace your  mom, and I'm so 
sorry for your loss.  


I am just reading this even though you posted a week ago.  I get  at least 
200 emails a day so sometimes they don't get read quickly.   But I always 
keep my cml group's emails for later.  As you know I  believe in the power of 
prayer, so will lift you up to the Father for  complete healing in both 
hips.  My husband has the same thing but he  is using a natural product from 
Youngevity to rebuild his cartilage and it  seems to be working.  He has bad 
days, but is avoiding surgery with  it.  I hope your other hip doesn't give 
you any trouble - EVER


18's and hugs,.


Susan Z




-Original  Message-
From: 'Marcie Goodman' via CMLHope <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >
To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Sun, Nov 27, 2016  9:30 pm
Subject: Re: [CMLHope] Got a brand new Hip!


 
Suzie, please accept my condolences on the loss of your beloved  mother. 
I'm so sorry but I'm sure that your wonderful memories will be a  comfort and 
blessing to you always. 


Marcie 

Sent  from my iPhone

On Nov 27, 2016, at 8:17 PM, Suzieq <_sheila.a.watson@gmail.com_ 
(mailto:sheila.a.wat...@gmail.com) > wrote:




Hello to my CML Survivors!  


Hope everyone had a very nice Thanksgiving.  I know it's  been a while 
since I posted anything,  but I haven't been on line  very much for a few 
weeks. 
 I come today to let y'all know that I  had to have a total hip replacement 
of my left hip which was done on  October 20th and was in the hospital 
(St.Louis) for 5 days till they  moved me to a hospital closer to our home for 
almost 2 weeks of  Rehab.  I have one more week of restrictions left and then 
I'm  home-free! Yea!!!  This has been about the worst (I should say the  
longest) recovery from surgery that I have ever faced.  I am not a  patient 
person,  but I have obeyed & not being doing the things  I was told not to do. 
 The reason for the replacement,  it was  bone on bone (the two weeks 
leading up to surgery were the most painful  I have ever experienced).  I had a 
major case of Arthritis  according to the Orth. Surgeon of which he cleaned 
out as best he could  while in there.  He did say that I would probably have 
to have the  other one replaced later on down the road (of which I thought 
to myself,  it will have to be a long time down the road as far as I am  
concerned, lol),  but it's not bothering me for now so we will  leave it alone. 
 
He was very surprised that I have such a case of  Osteo Arthritis as my age 
(63).  Seems the left side has been the  worse.  Not only was it in the 
hip,  but it's in the left  Sacroiliac Joint just as bad.  The right side has a 
bit,  just not as bad.  He made me go off the Gleevec for 30 days  starting 
7 days prior to the operation.  That long wasn't mentioned  in the 
beginning,  I thought it was going to only be 15 days,  but he said to stay off 
of 
it for the full 30 days.  I am  hoping all will be well when I see my Hem/Onc 
on the 19th.sure hate  to lose my "non-detected",  but even so,  
shouldn't take too  long before it's back to 0.  


Oh,  and one more thing..I had my surgery on  Thursday and my Mom 
passed away Saturday night at 11:15 (Florida time).  Needless to say,  no way 
was I able to travel the 1025 miles  (one way) to be with my oldest brother 
and for the funeral.  I  still grieve for her.  I am now very thankful that 
I had last  spring with her when I went down to care for her once she came 
out of  the hospital.  Got to spend 2 & 1/2 months as her total  caregiver 
until we placed her back in the rehab/residential home where  she wanted to 
go.  She knew I was going in for surgery and she knew  it went well.  I told 
my husband I feel she planned her death  perfectly cause she knew I would 
put off the surgery no matter how bad  my pain was and come down there to be 
with her. She never wanted to be a  "burden" to us and she always was 
worrying 

Re: [CMLHope] Got a brand new Hip!

[Myvety2k via CMLHope]

Dear Susie, I just found out about your Mom and I so sorry  here have to 
read about her passing..  I know I lost my son Derek this June  13th from a 
heart attack and only 31 years old.  Their's not a day that  goes by that I 
don't think of him.. I know I will never get over it, so you have  my blessing.
 
David (greenie) Greenberg
 
 
In a message dated 12/4/2016 9:52:18 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Dear Susie-Q,  


So  much has gone on with you!  Nothing can replace your mom,  and I'm so 
sorry for your loss.  


I am just reading this even though you posted a week ago.  I get at  least 
200 emails a day so sometimes they don't get read quickly.  But I  always 
keep my cml group's emails for later.  As you know I believe in  the power of 
prayer, so will lift you up to the Father for complete healing in  both 
hips.  My husband has the same thing but he is using a natural  product from 
Youngevity to rebuild his cartilage and it seems to be working.  He has bad 
days, but is avoiding surgery with it.  I hope your  other hip doesn't give you 
any trouble - EVER


18's and hugs,.


Susan Z




-Original  Message-
From: 'Marcie Goodman' via CMLHope  
To: cmlhope  
Sent: Sun, Nov 27, 2016 9:30  pm
Subject: Re: [CMLHope] Got a brand new Hip!


 
Suzie, please accept my condolences on the loss of your beloved mother.  
I'm so sorry but I'm sure that your wonderful memories will be a comfort and  
blessing to you always. 


Marcie 

Sent from my iPhone

On Nov 27, 2016, at 8:17 PM, Suzieq <_sheila.a.watson@gmail.com_ 
(mailto:sheila.a.wat...@gmail.com) >  wrote:




Hello to my CML Survivors!  


Hope everyone had a very nice Thanksgiving.  I know it's been a  while 
since I posted anything,  but I haven't been on line very much  for a few 
weeks. 
 I come today to let y'all know that I had to have a  total hip replacement 
of my left hip which was done on October 20th and was  in the hospital 
(St.Louis) for 5 days till they moved me to a hospital  closer to our home for 
almost 2 weeks of Rehab.  I have one more week  of restrictions left and then 
I'm home-free! Yea!!!  This has been  about the worst (I should say the 
longest) recovery from surgery that I have  ever faced.  I am not a patient 
person,  but I have obeyed &  not being doing the things I was told not to do.  
The reason for the  replacement,  it was bone on bone (the two weeks 
leading up to surgery  were the most painful I have ever experienced).  I had a 
major case of  Arthritis according to the Orth. Surgeon of which he cleaned 
out as best he  could while in there.  He did say that I would probably have 
to have  the other one replaced later on down the road (of which I thought to 
myself,  it will have to be a long time down the road as far as I am 
concerned,  lol),  but it's not bothering me for now so we will leave it alone. 
 
He was very surprised that I have such a case of Osteo Arthritis as my  age 
(63).  Seems the left side has been the worse.  Not only was  it in the hip,  
but it's in the left Sacroiliac Joint just as bad.  The right side has a 
bit,  just not as bad.  He made me go  off the Gleevec for 30 days starting 7 
days prior to the operation.  That long wasn't mentioned in the beginning,  
I thought it was  going to only be 15 days,  but he said to stay off of it 
for the full  30 days.  I am hoping all will be well when I see my Hem/Onc on 
the  19th.sure hate to lose my "non-detected",  but even so,  shouldn't 
take too long before it's back to 0.  


Oh,  and one more thing..I had my surgery on Thursday  and my Mom 
passed away Saturday night at 11:15 (Florida time).  Needless to say,  no way 
was I able to travel the 1025 miles (one  way) to be with my oldest brother 
and for the funeral.  I still grieve  for her.  I am now very thankful that 
I had last spring with her when I  went down to care for her once she came 
out of the hospital.  Got to  spend 2 & 1/2 months as her total caregiver 
until we placed her back in  the rehab/residential home where she wanted to 
go.  She knew I was  going in for surgery and she knew it went well.  I told 
my husband I  feel she planned her death perfectly cause she knew I would put 
off the  surgery no matter how bad my pain was and come down there to be 
with her.  She never wanted to be a "burden" to us and she always was worrying 
about me  with the CML even though I told her that I was just fine,  that 
it was  not a problem, that the Gleevec was doing it's job and all was well.  
Since I wasn't able to be there,  I told my brother that maybe we  could 
maybe have a special Memorial Service for her back in the hometown in  
Kentucky where most of the family still lives later sometime after the 1st  of 
the 
year.  Everyone seemed to be okay with that.  


Okay,  I hope you all have a very Merry Christmas & the  Happiest New Year! 


Suzieq 


-- 
-- 
[CMLHope]
A 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

[Myvety2k via CMLHope]

Wish I could say the same but, the throat that's a  bummer.  I know the 
feeling.
 
greenie
 
 
In a message dated 10/20/2016 10:40:26 A.M. Eastern Daylight Time,  
esd...@rogers.com writes:

 
I had wicked  cramps from Gleevec.15 years ago. A heavy yawn once got 
me cramps in my  throata very unpleasant feeling!
Over the  years the cramps all over my body diminished and disappeared.
HURRAY!


 
 
  

 From: Myvety2k via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope@googlegroups.com 
Sent: Thursday, October 20, 2016 8:38  AM
Subject: Re: [CMLHope]  Digest for cmlhope@googlegroups.com - 2 updates in 
1 topic



 
Gleevec gave me and still dose give me cramps, I use a bar  of Dial Gold 
soap and put it down along my legs.  It dose  help.
 
greenie
 
 
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Yes I had terrible cramps on Gleevec.  Even had trigger finger.  Had to get 
up in the middle if night to walk out leg cramps. I too was put  on 
Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep 
on 
fighting warriors.  Blessings 

My Motto:   
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >  wrote:




Gleevec has a big history of muscle cramps, especially in the  hands and 
the legs.   Gleevec also has side affects that include skin  that is thin, 
white rings around the eyes, water retention around the eyes  to name just a 
few.   I moved from Gleevec to Sprycel years ago and  all the Gleevec issues 
disappeared.  It was a wonderful change.   I suggest you review it with your 
oncologist.  I am under care of the  University of Michigan Cancer Center, 
Dr. Talpaz.  

On Fri, Sep 30, 2016 at 12:42 PM, NICK  WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) >  wrote:


 
We're  happy to hear you're on the mend, Marty.  
It's been good to read other persons updates in their lives of  CML and 
family changes, etc.  Sending sympathy to those whose  family members have died 
within the past few months.  It's been so  tough on each CMLer as we age or 
our family members are diagnosed with  other types of cancers.


Nick's  got a Zauve's O Club number, but it's been a while since we've 
posted  it.  Does anyone have a list?


Wondered  if any other persons with CML on Gleevec are experiencing 
multiple  muscle cramps?
Or  have large muscle wasting?
Thanks,  Elizabeth Woods Nick's wife




 
 
On Friday, September 30, 2016 5:18  AM, "_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) "  <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >  wrote:




 
 
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(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
   _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview)

(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview
)  
 
_Topic digest  _ () 
_View all topics_ (https://groups.google.com/forum/?utm_so
urce=digest_medium=email#!forum/cmlhope/topics)  
 
*   _Angie, your card_ 
(https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0)
  - 2 Updates 

 () _Angie, your card _ 
(http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest_medium=email)
 
ANGELYN ESDERS  <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep  30 
12:20AM 

You are most welcome.I fractured my 9th  vertebra a month ago. I have had 
to give up almost everything I  do. I understand pain.May we BOTH be dancing 
on tabletops by this  time next year!Angie

From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >
To:  _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   
Sent: Thursday, September 29, 2016 12:05 AM
Subject:  [CMLHope] Angie, your card

Hi Angie, you were so thoughtful  to send me a get well card, and I wanted 
to thank you for your  kindness.
18's,
Marty-- 
-- 
[CMLHope]
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

[Myvety2k via CMLHope]

Gleevec gave me and still dose give me cramps, I use a bar of  Dial Gold 
soap and put it down along my legs.  It dose help.
 
greenie
 
 
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had  to get 
up in the middle if night to walk out leg cramps. I too was put on  
Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep 
on 
fighting warriors.  Blessings 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >  wrote:




Gleevec has a big history of muscle cramps, especially in the  hands and 
the legs.   Gleevec also has side affects that include skin  that is thin, 
white rings around the eyes, water retention around the eyes  to name just a 
few.   I moved from Gleevec to Sprycel years ago and all  the Gleevec issues 
disappeared.  It was a wonderful change.  I  suggest you review it with your 
oncologist.  I am under care of the  University of Michigan Cancer Center, 
Dr. Talpaz.  

On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) > wrote:


 
We're  happy to hear you're on the mend, Marty.  
It's been good to read other persons updates in their lives of CML  and 
family changes, etc.  Sending sympathy to those whose family  members have died 
within the past few months.  It's been so tough on  each CMLer as we age or 
our family members are diagnosed with other types  of cancers.


Nick's  got a Zauve's O Club number, but it's been a while since we've 
posted  it.  Does anyone have a list?


Wondered if  any other persons with CML on Gleevec are experiencing 
multiple muscle  cramps?
Or  have large muscle wasting?
Thanks,  Elizabeth Woods Nick's wife




 
 
On Friday, September 30, 2016 5:18  AM, "_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) " <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >  wrote:




 
 
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(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
   _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview)

(https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview
)  
 
Topic digest 
_View all topics_ 
(https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics)
  
 
*   _Angie, your card_ 
(https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0)
  - 2 Updates 

_Angie, your card _ 
(http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest_medium=email)
 
ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep 30 
12:20AM  

You are most welcome.I fractured my 9th vertebra a  month ago. I have had 
to give up almost everything I do. I  understand pain.May we BOTH be dancing 
on tabletops by this time  next year!Angie

From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  
Sent: Thursday,  September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your  card

Hi Angie, you were so thoughtful to send me a get well  card, and I wanted 
to thank you for your  kindness.
18's,
Marty-- 
-- 
[CMLHope]
A support  group of http://cmlhope.com/
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Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >: Sep 29 
08:45PM -0400  

Angie,

There is a saying in the Aramaic  Hebrew language Alivay Meaning Thank you
GOD for what you have  done for me.

Also I am not looking to dance on any  tabletops because both of us would
probably fall off and break  something. Lets just both of us dance on the
floor  together.

Oh Angie don't worry we will get  there.

18's

Marty

_Back to top_ 
(https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#digest_top)
  

You  

Re: [CMLHope] My sister, me and my older brother

[Myvety2k via CMLHope]

Marty, glad you back, I think you play the  lottery.
 
greenie
 
 
In a message dated 9/25/2016 10:17:59 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 


I was buying a new car and signed all of the paperwork, went outside to  
check everything and didn't see the cement stations in front of the car,  
tripped on it. Knocked my out but I felt the terrible pain. EMS came and put  
me 
in a neck collar got me to the hospital and I was in a coma for a long  
time. Finally woke up and the operation was finished. Two large bolts two  
inches long were placed near my spinal column where the  vertebra  were 
completely cracked in half to try to mend them  together. 


In spite of what happened to me the surgeon told me when I got up I  almost 
died but for less then a millimeter my spinal would have been severed  
leaving me paralyzed from the head down. I was on the operating table and he  
didn't at first know what would happen to me. He had to send someone out  
looking for those special bolts and was able to get them from a  special 
surgical supply. Very lucky there were only two of them left and  would take a 
few 
days to get more . 


After he showed me CT scans of them drilled into the bones in my  neck, and 
he had called on some of his associates because he was very proud of  his 
work. The next time I visit him a said that he would try to get me copies.  
When and if I do get them I will copy and paste them to this site. Oh by the  
way I never bought the new car, at least not yet.


GOD was guiding his hands, how lucky am I?


18's


Marty   


On Sun, Sep 25, 2016 at 9:17 AM, 'Icandoallttc' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


Did you fall Marty? 




On Sep 24, 2016, at 12:30 PM, ANGELYN ESDERS <_esders@rogers.com_ 
(mailto:esd...@rogers.com) > wrote:




 


LOVE the picture, and many thanks for sharing. You look like a  beautiful, 
joyful group.
Angie


 
 
  

 From: Marty Gartenberg  <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >
To: 
Sent: Saturday, September 24, 2016  11:06 AM
Subject:  [CMLHope] My sister, me and my older brother



 
I am starting to get back to my self after breaking my neck and arm  and 
elbow. Somehow all of you seem to be always there to be helping  throughout my 
life, and I will not ever forget every single one of you  precious people. 
I hope that this picture comes through.  It is more  then 66 years old.





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Re: [CMLHope] Just checking in

[Myvety2k via CMLHope]

Marty, Marty, Marty, I'm so happy your back.  I sure am  thinking all good 
thoughts for you.
 
greenie
 
 
In a message dated 9/10/2016 2:47:40 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
Hi Beth,


sorry to hear about Mr.Hands. They are so precious and when pass on it  
feels like a knife cut your heart open.


This took me almost one hour to write because as you probably know I fell  
and broke my neck and trying to get back to myself.


1'8s


Marty


On Sat, Sep 10, 2016 at 12:37 PM, bkbarney via CMLHope  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:

Dear Norm,  


\Long time know hear from you!!! It was wonderful to catch up and be  
reminded of your history...I hope that you can retire well when the time  
comes. 
Good news about your son...I remember you sharing about Mr.  Hansso 
sadMr Buster sounds like  a stitch..hopefully he both  trainable and 
lovable. What an amazing thing that you have been on Tasigna  for 12 years...I 
know 
you have had your ups and downs...but it is still  inspiring to hearso 
thanks... I needed the inspiration today..and  Marty...we are all 
here..cheering you on! 


for everyone out there today who might read this...all the usual  suspects, 
as well as those who read but don't post...thanks for being  here...


my news is that I got bitten by a poisonous spider in the leg... blew  
up...huge red swollen..then antibiotics for the infection which I had a bad  
arthritic reaction to..I think personally it was an interaction with  
sprycel...but anyway, I have so much pain the last three days in my knees  and 
legs.. 
I can hardly walk...so, off the antibiotic today..and hopefully  the 
infection will get better with time...or they will put me on a new one  to 
try...always something...but I still am blessed..and happy for my  
sprycel..keeps 
me here...enjoying the sunsets..and the coming fall...and my  17 year old 
pouch.. Graciejust adore here to pieces... so understand  Norm, your 
comments about Hans.


Love to all, 18's Beth
 
 





-Original  Message-
From: Norm <_norm5674@hotmail.com_ (mailto:norm5...@hotmail.com) >
To: CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Sat, Sep 10, 2016  9:14 am
Subject: [CMLHope] Just checking in


 
Just wanted to check in with the group.
I miss Millie too.  We both owned dachshunds.
We lost Mr. Hans to lymphoma earlier this year  which was one of the 
hardest things I have ever had to do.
It was the  first time in my life that I had the responsibility for ending 
his  suffering. The vet was just awesome with his gentleness, understanding 
and  care. Mr. Hans was 12.
It was harder than making funeral arrangements for  my mother, she was 
still living at the time which makes it easier I  suppose.
My mother had a great sense of humor. When we returned to her  hospice care 
room she woke up and remarked that we were not gone  long.
She had a great laugh when I told her that all they wanted to know  was 
paper or plastic.
We got a new dachshund from a rescue organization.  His name is Buster and 
he seems to like reading. He has devoured about 5  books from our coffee 
table and tears through the pages. I really liked some  of those books and he 
thought they were quite tasty. Bad Buster.

For  those that are new or do not know my history:
I was dropped on my head  when I was a baby and cracked my skull.
When I was in the fourth grade, I  rode my bicycle into an intersection and 
was hit by a speeding car driven by  a 14 year old girl that was being 
chased by her brother. She hit me then a  tree. The tree died.
I t was a teenager during the late 60s and early  70s.
I lost a kidney to cancer in 99.
Diagnosed with CML on April  fools day 2003 with a WBC of 250,000. Started 
Gleevec and chemo with  apherisis.
Remission until the fall of 2004.
Entered a phase 1  clinical trial for AMN107 which became Tasigna in early 
December. My blood  counts bottomed out and the drug was withheld for about 
a month.
January  of 2005 I entered the blast phase and the drug company allowed the 
doctors  at MDACC to restart the drug.
Had to have blood and platelets infused a  number of times before my counts 
started coming back up.
While in the  hospital I determined that one eye was not as bright as the 
other and found  out I had cataracts which turned out to not be the cause but 
it was an issue  with my retinas.
I saw 5 different eye specialist and the best they could  come up with was 
a leukemic cell intrusion into my eyes. I had radiation  treatment on my 
eyes. It turned out it was not a leukemic cells issue but  wet macular 
degeneration.
Started Avastin shots in my right eye and by  that time had lost my central 
vision in my left eye due to the scarring from  the leakage.
Vision is now fixed with contact lens correction of 20/400  left and 20/200 
right. I still work, but do not tell anyone I am still  driving (much 
better than those idiots on 

Re: [CMLHope] Re: About Marty

[Myvety2k via CMLHope]

Thank you so much for your comment on Derek, and to the rest  of the group. 
 Still hard to believe he's gone.
 
greenie
 
 
In a message dated 9/8/2016 12:11:21 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Ditto  from me. Thank you so much for  checking on Marty. Glad to know his 
story..and that his amazing spirit is  still intact to inspire all of us. 
HOPe everyoneis doing OK. Greenie ,  thinking of you and your wife as you live 
through the loss of your son. While  there are no words adequate to express 
my sadness for you, I want you to know  I and all of us here, continue to 
think of you each day. Take good care.  


Love, Beth


-Original  Message-
From: Myvety2k via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Thu, Sep 8, 2016 9:38 am
Subject:  Re: [CMLHope] Re: About Marty


 
Thank you so much for checking out how Marty is doing for  all of us.
 
greenie
 
 
In a message dated 9/8/2016 6:35:42 A.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:



> On Sep 7, 2016, at 6:04 PM, LadyRx <_LadyRx@aol.com_ 
(mailto:lad...@aol.com) > wrote:
> 
>  Because everyone has been worried about our suddenly absent friend, 
Marty, I  decided to look him up and call. Our dear friend is recovering from a 
fall  in which he broke his neck in three places and broke some bones in his 
 shoulder. Due to complications from surgery, he developed pneumonia and 
was  in the hospital. After recuperating from that and being in a rehab 
facility,  he is at home now. He seems to have a very positive attitude.  What 
an  
amazingly kind, warm, intelligent man he is! He sends warmest regards to 
all  and looks forward to reconnecting with everyone when he's able to do so.  
> 18's for our friend, Marty!

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Re: [CMLHope] Re: About Marty

[Myvety2k via CMLHope]

Thank you so much for checking out how Marty is doing for all  of us.
 
greenie
 
 
In a message dated 9/8/2016 6:35:42 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:



> On Sep 7, 2016, at 6:04 PM, LadyRx   wrote:
> 
> Because everyone has been  worried about our suddenly absent friend, 
Marty, I decided to look him up and  call. Our dear friend is recovering from a 
fall in which he broke his neck in  three places and broke some bones in his 
shoulder. Due to complications from  surgery, he developed pneumonia and 
was in the hospital. After recuperating  from that and being in a rehab 
facility, he is at home now. He seems to have a  very positive attitude.  What 
an 
amazingly kind, warm, intelligent man he  is! He sends warmest regards to 
all and looks forward to reconnecting with  everyone when he's able to do so. 
> 18's for our friend,  Marty!

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Re: [CMLHope] Haven't gotten any e-mail notifications

[Myvety2k via CMLHope]

I'm doing find thanks for checking.
 
greenie
 
 
In a message dated 9/5/2016 7:06:24 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

I  haven't received any notifications in my e-mail for the past 3 weeks or 
so.  Just checking to see if the group is still active. If so, please leave 
a  comment.

Thank you!

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Re: [CMLHope] Re: Ferone treatment

[Myvety2k via CMLHope]

Hi group,  I was on Interferon for 3 months and by the  end of that time I 
was ready to jump out of and airplane without a parachute  that's how bad it 
was.
 
In stand of water boarding give them a few weeks of interferon  they will 
be glad to them anyone anything anyone want's to know.
 
greenie
 
 
 
In a message dated 8/12/2016 3:58:38 P.M. Eastern Daylight Time,  
perkuss...@msn.com writes:

Sorry, It is interferone treatments. My onc is concerned the  other 
treatments will also cause fluid retention. He said the interferone  treatment 
has 
caused CML to go into remission in some cases. I would rather  try something 
with less side effects. I did not get along well with Gleevec  and was on 
dasatinib (Sprycel) for 8 years until I had the heart and lung  problem. It 
had very little side effects until recently. 

On  Thursday, August 11, 2016 at 11:49:42 AM UTC-5, perk wrote:  
I was placed on Sprycel in 2008. While this treatment contained  my WBC, it 
caused fluid retention around my heart and lungs. My onc was  to try a 
ferone treatment. Has anyone had any experience with this form of  treatment. 
It 
is an injection and he said common side effects were  flu-like symptoms. 


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Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

Thank you Susan for your post I will let Grace know and will  keep in touch 
with you.
 
greenie
 
 
In a message dated 8/6/2016 9:03:18 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

 
Hi Greenie, 
So good to hear from you.  You've been a busy man!!! I sure would have 
liked to see you when you came up  to nwest indiana. Tell Grace hello. Next 
time 
dont forget to let me know. 

Again, so very sorry for the  loss of your son. I pray you are having more 
good days than bad after this  terrible loss. God bless. 
Hugs and 18's, 
Susan Z 

Sent from my  Sprint phone

 
 

-- Original  message-- 
From: Myvety2k via  CMLHope 
<cmlhope@googlegroups.com> 
Date: Sat, Aug 6, 2016  8:30 AM 
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) ; 
Subject:Re: [CMLHope]  Haven't heard from John either. 



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Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

Thanks Jeanie.
 
greenie
 
 
In a message dated 8/7/2016 7:12:40 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hi Greenie
I lost my young grandson,19, in a gun shot accident  a couple years ago so 
I feel your loss.  He was my baby and we were so  close.  But as you say 
life goes on and live on the good memories.  He was a chef and would cook me 
meals so delicious.  
You will never forget the day you got that phone  call.  It devastated my 
daughter and to this day she can't talk about  it. 
Take care of yourself and Grace.  Life hands  us both good and bad. 
I like to read the book, Job in the Old Testament  when I get down.  See if 
it will help you. 
Blessings Jeanie ♥️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 6, 2016, at 6:54 PM, Myvety2k via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:



 
Yes, your right about Marty, I'm hoping all is well with  him it's not like 
him to not reply to all of us.  I'll keep thinking  about him and he will 
be O. K...
 
greenie
 
 
In a message dated 8/6/2016 6:52:31 P.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:

Hi Jeanie, nice to hear from you.  Yes, it's hard  thinking about Derek, 
still can't believe he's gone.  But, life goes  on. You and all of my CML 
friends take care.
 
greenie
 
 
In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:

So sorry for your loss.  I have 2 sons and know the pain you  both are 
having.  
So glad to hear from you.  Something's  wrong with Marty but don't know 
what.  And John hasn't checked in  for a long time. 
Just keep living each day and enjoy each  other.  My hubby passed 18 years 
ago. I always thought we would  spend our old age together. So love each 
other and show it daily. Love  Jeanie 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:



 
Hi Group, After my son Derek passed away on June  13th and when we found 
out Grace had a heart attack within 5 min and  had to get her over to the 
Hosp. and was their for 4 days she is doing  O. K. But I had to fly up to 
Chicago by myself to go to the  Funeral.  Then two weeks later when Grace could 
travel we flew up  to Chicago again for 4 days.  Two weeks later we had to go 
back  for a week and on the return flight we had to sit at the airport for 5 
 hours and the trip was 2 1/2 hours.  The next day I had to see my  
Urologist for my 6 month visit and found out a few days later that my  PSA was 
way 
over the 4.4 which is high.
 
So I waited for a week and when back for some blood  work and the results 
came back 2.9, that's good.  Found out that  sitting on your rear end for 
that long a time can cause the counts to  go up so the bottom line is Men don't 
sit on your rear in before going  in to have your PSA checked.
 
On wise everything else is O. K.  So now Grace  and I drove up to Northwest 
Indiana to help her son move into a new  house that needs some work and the 
was a 2 day drive.  Won't do  that again.  To much travel, every city had 
road work better to  fly and rent a car.  So everyone take care.
 
greenie
 
In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time,  
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:


Hi all
Not well at all today.  Just hanging  in there.  Does anyone know John who 
was on Ponatinib like me??  Haven't heard from him.  
Pain in side much worse.   I was on  oxycodone but took myself off due to 
terrible side effect.  However it did help the pain.  
Taking my morning walk.  Making it  from chair to chair hehe. 
Let's hear from everyone today
My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




Beth, Susan Z. and Jeanie:  


Thank you for your good wishes.  I do follow you all but  I have just not 
posted.


Hugs,
Susan




On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth  wrote:  
Susan,  


I am so deeply happy for you! thanks for sharing such good  news. Love, Beth


-Original  Message-
From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ 
(javascript:) >
To:  cmlhope <_cml...@googlegroups.com_ (javascript:) >
Sent:  Wed, Aug 3, 2016 7:54 

Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

Yes, your right about Marty, I'm hoping all is well with him  it's not like 
him to not reply to all of us.  I'll keep thinking about him  and he will 
be O. K...
 
greenie
 
 
In a message dated 8/6/2016 6:52:31 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hi Jeanie, nice to hear from you.  Yes, it's hard  thinking about Derek, 
still can't believe he's gone.  But, life goes on.  You and all of my CML 
friends take care.
 
greenie
 
 
In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

So sorry for your loss.  I have 2 sons and know the pain you both  are 
having.  
So glad to hear from you.  Something's wrong  with Marty but don't know 
what.  And John hasn't checked in for a long  time. 
Just keep living each day and enjoy each other.  My hubby passed 18 years 
ago. I always thought we would spend our old  age together. So love each 
other and show it daily. Love  Jeanie 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:



 
Hi Group, After my son Derek passed away on June 13th  and when we found 
out Grace had a heart attack within 5 min and had to get  her over to the 
Hosp. and was their for 4 days she is doing O. K. But I  had to fly up to 
Chicago by myself to go to the Funeral.  Then two  weeks later when Grace could 
travel we flew up to Chicago again for 4  days.  Two weeks later we had to go 
back for a week and on the return  flight we had to sit at the airport for 5 
hours and the trip was 2 1/2  hours.  The next day I had to see my 
Urologist for my 6 month visit  and found out a few days later that my PSA was 
way 
over the 4.4 which is  high.
 
So I waited for a week and when back for some blood work  and the results 
came back 2.9, that's good.  Found out that sitting  on your rear end for 
that long a time can cause the counts to go up so the  bottom line is Men don't 
sit on your rear in before going in to have your  PSA checked.
 
On wise everything else is O. K.  So now Grace and  I drove up to Northwest 
Indiana to help her son move into a new house that  needs some work and the 
was a 2 day drive.  Won't do that  again.  To much travel, every city had 
road work better to fly and  rent a car.  So everyone take care.
 
greenie
 
In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:


Hi all
Not well at all today.  Just hanging in  there.  Does anyone know John who 
was on Ponatinib like me??Haven't heard from him.  
Pain in side much worse.   I was on  oxycodone but took myself off due to 
terrible side effect.  However  it did help the pain.  
Taking my morning walk.  Making it from  chair to chair hehe. 
Let's hear from everyone today
My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




Beth, Susan Z. and Jeanie:  


Thank you for your good wishes.  I do follow you all but I  have just not 
posted.


Hugs,
Susan




On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth  wrote:  
Susan,  


I am so deeply happy for you! thanks for sharing such good  news. Love, Beth


-Original  Message-
From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ 
(javascript:) >
To:  cmlhope <_cml...@googlegroups.com_ (javascript:) >
Sent:  Wed, Aug 3, 2016 7:54 pm
Subject: [CMLHope] How Am I  Doing?

Jeanie and others:

I am doing great...I  hope I just sent in my 10 month (since October 2, 
2015) TKI-free  6 week PCR test. My fingers are crossed.

When we don’t hear  from Marty, we know that something is going  on.

Hugs,
Susan Rosenthal

-- 
--  
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Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

Hi Jeanie, nice to hear from you.  Yes, it's hard  thinking about Derek, 
still can't believe he's gone.  But, life goes on.  You and all of my CML 
friends take care.
 
greenie
 
 
In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

So sorry for your loss.  I have 2 sons and know the pain you both  are 
having.  
So glad to hear from you.  Something's wrong  with Marty but don't know 
what.  And John hasn't checked in for a long  time. 
Just keep living each day and enjoy each other.  My hubby passed 18 years 
ago. I always thought we would spend our old  age together. So love each 
other and show it daily. Love  Jeanie 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:



 
Hi Group, After my son Derek passed away on June 13th and  when we found 
out Grace had a heart attack within 5 min and had to get her  over to the 
Hosp. and was their for 4 days she is doing O. K. But I had to  fly up to 
Chicago by myself to go to the Funeral.  Then two weeks later  when Grace could 
travel we flew up to Chicago again for 4 days.  Two  weeks later we had to go 
back for a week and on the return flight we had to  sit at the airport for 5 
hours and the trip was 2 1/2 hours.  The next  day I had to see my 
Urologist for my 6 month visit and found out a few days  later that my PSA was 
way 
over the 4.4 which is high.
 
So I waited for a week and when back for some blood work  and the results 
came back 2.9, that's good.  Found out that sitting on  your rear end for 
that long a time can cause the counts to go up so the  bottom line is Men don't 
sit on your rear in before going in to have your  PSA checked.
 
On wise everything else is O. K.  So now Grace and I  drove up to Northwest 
Indiana to help her son move into a new house that  needs some work and the 
was a 2 day drive.  Won't do that again.   To much travel, every city had 
road work better to fly and rent a car.   So everyone take care.
 
greenie
 
In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:


Hi all
Not well at all today.  Just hanging in  there.  Does anyone know John who 
was on Ponatinib like me??Haven't heard from him.  
Pain in side much worse.   I was on  oxycodone but took myself off due to 
terrible side effect.  However  it did help the pain.  
Taking my morning walk.  Making it from  chair to chair hehe. 
Let's hear from everyone today
My Motto:   
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




Beth, Susan Z. and Jeanie:  


Thank you for your good wishes.  I do follow you all but I  have just not 
posted.


Hugs,
Susan




On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth  wrote:  
Susan,  


I am so deeply happy for you! thanks for sharing such good news.  Love, Beth


-Original  Message-
From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ 
(javascript:) >
To:  cmlhope <_cml...@googlegroups.com_ (javascript:) >
Sent:  Wed, Aug 3, 2016 7:54 pm
Subject: [CMLHope] How Am I  Doing?

Jeanie and others:

I am doing great...I hope  I just sent in my 10 month (since October 2, 
2015) TKI-free 6 week PCR  test. My fingers are crossed.

When we don’t hear from Marty, we  know that something is going on.

Hugs,
Susan  Rosenthal

-- 
-- 
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A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
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To post to this group, sen

Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

Hi Group, After my son Derek passed away on June 13th and when  we found 
out Grace had a heart attack within 5 min and had to get her over to  the 
Hosp. and was their for 4 days she is doing O. K. But I had to fly up to  
Chicago by myself to go to the Funeral.  Then two weeks later when Grace  could 
travel we flew up to Chicago again for 4 days.  Two weeks later we  had to go 
back for a week and on the return flight we had to sit at the airport  for 5 
hours and the trip was 2 1/2 hours.  The next day I had to see my  
Urologist for my 6 month visit and found out a few days later that my PSA was  
way 
over the 4.4 which is high.
 
So I waited for a week and when back for some blood work and  the results 
came back 2.9, that's good.  Found out that sitting on your  rear end for 
that long a time can cause the counts to go up so the bottom line  is Men don't 
sit on your rear in before going in to have your PSA  checked.
 
On wise everything else is O. K.  So now Grace and I  drove up to Northwest 
Indiana to help her son move into a new house that needs  some work and the 
was a 2 day drive.  Won't do that again.  To much  travel, every city had 
road work better to fly and rent a car.  So everyone  take care.
 
greenie
 
In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:


Hi all
Not well at all today.  Just hanging in there.  Does anyone know John who 
was on Ponatinib like me??   Haven't  heard from him.  
Pain in side much worse.   I was on oxycodone  but took myself off due to 
terrible side effect.  However it did help the  pain.  
Taking my morning walk.  Making it from chair  to chair hehe. 
Let's hear from everyone today
My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




Beth, Susan Z. and Jeanie:  


Thank you for your good wishes.  I do follow you all but I have  just not 
posted.


Hugs,
Susan




On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote:  
Susan,  


I am so deeply happy for you! thanks for sharing such good news.  Love, Beth


-Original  Message-
From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ 
(javascript:) >
To:  cmlhope <_cml...@googlegroups.com_ (javascript:) >
Sent:  Wed, Aug 3, 2016 7:54 pm
Subject: [CMLHope] How Am I  Doing?

Jeanie and others:

I am doing great...I hope I  just sent in my 10 month (since October 2, 
2015) TKI-free 6 week PCR test.  My fingers are crossed.

When we don’t hear from Marty, we know that  something is going on.

Hugs,
Susan Rosenthal

-- 
--  
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A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
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Re: [CMLHope] Haven't heard from John either.

[Myvety2k via CMLHope]

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Re: [CMLHope] Fatigue side effect testing nilotinib

[Myvety2k via CMLHope]

Hang in their Beth.
 
greenie
 
 
In a message dated 7/13/2016 1:36:11 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Dear Jeanie,  


Hope you are feeling better...and staying positive! Sorry it took so long  
for me to write back to you and everyone. I got really sickvirus that  
morphed into a bacterial infection...it was scary...103 fever for close to a  
week. I am at week five, and finally feel about 80 percent better. My BCR 
Abl  results came back not showing on June 6th and on June 8th I got sick..so 
I  went off sprycel for a drug holiday during this illnessnow preparing 
to  re-uptake meds this weekend. I did another BCR-ABl one month 
later..last  week..still waiting to see the results of that one..wondering if 
this 
illness  could have any effect on cancer. We will find out...


Otherwise, status quo, very high CPK, exhausted all the time from  it...but 
choosing not to go on high dose steroids or immune suppressing drugs  at 
this time...so, while I may change my mind in the future, for now...I  remain 
positive and trying to fight the good fight. If CPK goes over 1000 then  it 
starts kidney damage and thus, I will have no choice but to do one of the  
above interventions. 


that's my story, trying to stay cool, and feel better from this virus and  
get back to work. I have 6000 emails waiting...unbelievable...I lost 6 weeks 
 in a blink! 


Hope life has calmed down for those struggling this summer and that we  all 
can find some joy in the weeks to come!  I hear there are some sweet  
movies out guaranteed to make you smile...so I am going to look into  
this...:)


Warmest regards and 18'as Beth.

-Original  Message-
From: 'Jeanie' via CMLHope  
To: cmlhope  
Sent: Tue, Jul 12, 2016 11:04  am
Subject: Re: [CMLHope] Fatigue side effect testing nilotinib


 
Anyone there.  Testing

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <_ricardodgadelha@gmail.com_ 
(mailto:ricardodgade...@gmail.com) > wrote:




Thank you all for the feedback. I am trying acupunture and  guaraná.
Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope"  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > escreveu:


When I was first in Gleevec I wanted to go visit my daughter.   She called 
and I told her I was too tired to pack.  She said don't  pack get some rest. 
 So my advise to you is don't do anything you  don't have to do.  Rest as 
much as you can.  Your body is  fighting a horrible disease and its tired. 
Listen to your body.  Try  to exercise some it don't over due.  Good luck.  

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 27, 2016, at 8:39 PM, kathy walls <_candles@originalsbykate.com_ 
(mailto:cand...@originalsbykate.com) > wrote:




I hear you!!! I had the fatigue the whole time I was on the  drug.  When I 
changed drugs because of the multitude of side  effects I had the fatigue 
lessened dramatically. I'm on gleevec 200mg  daily and while I'm not 
considered in remission I feel s much better  I'll take the #'s I got and 
run

Sent from my iPhone

On Jun 27, 2016, at 7:54 PM, Ricardo Gadelha <_ricardodgadelha@gmail.com_ 
(mailto:ricardodgade...@gmail.com) > wrote:




Hi folks,
Does anyone know how to deal with fatigue  that comes with  nilotinib 400 
mg bid?

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Re: [CMLHope] New BCR-ABL test in

[Myvety2k via CMLHope]

Glad to read about your report Richard H.
 
greenie
 
 
In a message dated 7/13/2016 12:03:21 A.M. Eastern Daylight Time,  
rbhuffm...@gmail.com writes:

 
 
I have another Good Report foe this 6 month  test.  My count is ..1% or 
less.  Great News for me.  I am  still t checking weekly for low hemoglobin and 
still have times that I use  Procrit to build it back up.   

18's

Richard H.

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Re: [CMLHope] About John Hopkins Cancer Update

[Myvety2k via CMLHope]

Thank you Joyce and everyone else who has made  comments.
 
Love all of you folks,
 
greenie
 
 
In a message dated 6/16/2016 10:59:28 P.M. Eastern Daylight Time,  
joy...@htc.net writes:

Greenie,   
Glad to know Grace is home.  I’m sure it is hard for her not to go  with 
you.  But we have to listen to the doctors.  May God grant you  his peace and 
strength at this time.
 Joyce in IL




On Jun 16, 2016, at 3:52 AM, Myvety2k via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:

 
 
Thank you Joyce and to everyone else.  Grace came  home yesterday afternoon 
and she is O. K. but needs to rest.  Doctor  told her she's not to go  to 
Chicago with me.
 
greenie
 
 
In a message dated 6/16/2016 2:41:46 A.M. Eastern Daylight Time, 
_joyway@htc.net_ (mailto:joy...@htc.net)   writes:

Greenie,  
So sorry to hear about your son.  I hope Grace is back at home  and 
recovering.  It is very hard to lose a child.  You are in my  thoughts and 
prayers.
Joyce in IL





On Jun 14, 2016, at 12:05 PM, 'Jeanie' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:


 
Thanks Marty,
My hubby died in 1998 in his sleep right beside me. We had been  married 
almost 43 years and dated for a year and half before we got  married. He had 
his first heart attack when he was 52. It was a very  hard loss.  
But life goes on and we must live it the very best we  can. 
Thanks. ❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 14, 2016, at 12:25 PM, Marty Gartenberg <_wa2yyx@gmail.com_ 
(mailto:wa2...@gmail.com) >  wrote:




But Jeanie, you now can see what my father taught me and  just look right 
into your heart and mind... By the way Jeannie, your  heart and your mind are 
very powerful tools.  


Sorry about the loss of your "Hubby"


18's


Marty


On Tue, Jun 14, 2016 at 11:26 AM, 'Jeanie' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


So true Marty. When I lost my Hubbie I could feel him  everywhere.  I even 
saw him standing at the refrigerator door  where I had seen him so many 
times.  Love will sustain you and  yours.  ❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

 
 

On Jun 14, 2016, at 10:59 AM, Marty Gartenberg <_wa2yyx@gmail.com_ 
(mailto:wa2...@gmail.com) > wrote:




 
I am so sorry to hear about the tragic loss of your son.  Please try to 
take care of Grace. It seems that life has it's  twists and turns. but Grace 
will get through with this, just so  much aggravation and grief.


My deepest condolences to you, Grace, and your  daughter-in-law and the 
rest of your family and friends 


I still remain sending out my 18's and there is a good  reason. My father 
once taught me that when a loved one passes on  that the loved person may no 
longer be  physically  there, but that person will always be there in your 
hearts  and minds. Please take comfort in that.


My prayers are with you.


18's


Marty


On Mon, Jun 13, 2016 at 10:52 PM, Myvety2k  via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


With heavy heart I received word from my  daughter-in-law this afternoon th
at my 31 year son Derek passed  away from a heart attack, he was at the gym 
working out. Grace  and I are lost for words and I had to take Grace to the 
hosp.  from chest pains put she will be alright but will have to stay  their 
for a few days before they let her come home.
 
greenie
 
 
In a message dated 6/13/2016 6:07:27 P.M. Eastern Daylight  Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

Our food today is full of junk. You would have to grow  everything yourself 
and use no fertilizer or pesticides.   You can't even buy gum or toothpaste 
without artificial  sweetener.  I was a health nut before I got cancer.   
Go figure.  I think moderation is the key and variety.  Try to get organic if 
possible.   Blessings. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 10, 2016, at 2:04 PM, 'Susan Zimmerman' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




I still know that every bit of Marty's article is  true re. avoiding 
carcinogens. Snopes is not always right.  Any naturopathic doc would agree w 
the 
article. 
Susan F. Zimmerman
"All who humble themselves  before the Lord shall be given every blessing, 
and shall  have wonderful peace." Ps.37:11


 
__

Re: [CMLHope] About John Hopkins Cancer Update

[Myvety2k via CMLHope]

Thank you Joyce and to everyone else.  Grace came home  yesterday afternoon 
and she is O. K. but needs to rest.  Doctor told her  she's not to go  to 
Chicago with me.
 
greenie
 
 
In a message dated 6/16/2016 2:41:46 A.M. Eastern Daylight Time,  
joy...@htc.net writes:

Greenie,   
So sorry to hear about your son.  I hope Grace is back at home and  
recovering.  It is very hard to lose a child.  You are in my  thoughts and 
prayers.
Joyce in IL





On Jun 14, 2016, at 12:05 PM, 'Jeanie' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:


 
Thanks Marty,
My hubby died in 1998 in his sleep right beside me. We had been married  
almost 43 years and dated for a year and half before we got married. He had  
his first heart attack when he was 52. It was a very hard loss.  
But life goes on and we must live it the very best we can. 
Thanks. ❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 14, 2016, at 12:25 PM, Marty Gartenberg <_wa2yyx@gmail.com_ 
(mailto:wa2...@gmail.com) > wrote:




But Jeanie, you now can see what my father taught me and just  look right 
into your heart and mind... By the way Jeannie, your heart and  your mind are 
very powerful tools.  


Sorry about the loss of your "Hubby"


18's


Marty


On Tue, Jun 14, 2016 at 11:26 AM, 'Jeanie' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


So true Marty. When I lost my Hubbie I could feel him  everywhere.  I even 
saw him standing at the refrigerator door where  I had seen him so many 
times.  Love will sustain you and yours.  ❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

 
 

On Jun 14, 2016, at 10:59 AM, Marty Gartenberg <_wa2yyx@gmail.com_ 
(mailto:wa2...@gmail.com) > wrote:




 
I am so sorry to hear about the tragic loss of your son.  Please try to 
take care of Grace. It seems that life has it's twists  and turns. but Grace 
will get through with this, just so much  aggravation and grief.


My deepest condolences to you, Grace, and your daughter-in-law  and the 
rest of your family and friends 


I still remain sending out my 18's and there is a good reason. My  father 
once taught me that when a loved one passes on that the loved  person may no 
longer be  physically there, but  that person will always be there in your 
hearts and minds. Please take  comfort in that.


My prayers are with you.


18's


Marty


On Mon, Jun 13, 2016 at 10:52 PM, Myvety2k via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


With heavy heart I received word from my  daughter-in-law this afternoon 
that my 31 year son Derek passed away  from a heart attack, he was at the gym 
working out. Grace and I are  lost for words and I had to take Grace to the 
hosp. from chest pains  put she will be alright but will have to stay their 
for a few days  before they let her come home.
 
greenie
 
 
In a message dated 6/13/2016 6:07:27 P.M. Eastern Daylight  Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

Our food today is full of junk. You would have to grow  everything yourself 
and use no fertilizer or pesticides.  You  can't even buy gum or toothpaste 
without artificial  sweetener.  I was a health nut before I got cancer.  Go 
 figure.  I think moderation is the key and variety.  Try  to get organic 
if possible.  Blessings. 

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 10, 2016, at 2:04 PM, 'Susan Zimmerman' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




I still know that every bit of Marty's article is  true re. avoiding 
carcinogens. Snopes is not always right. Any  naturopathic doc would agree w 
the 
article. 
Susan F. Zimmerman
"All who humble themselves  before the Lord shall be given every blessing, 
and shall have  wonderful peace." Ps.37:11


 

On  Friday, June 10, 2016 'Susan Rosenthal' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:

Before sending anything to anyone, I always  check this site first:

http://www.snopes.com/medical/disease/cancerupdate.asp

Have  a wonderful day

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Re: [CMLHope] About John Hopkins Cancer Update

[Myvety2k via CMLHope]

With heavy heart I received word from my daughter-in-law this  afternoon 
that my 31 year son Derek passed away from a heart attack, he was at  the gym 
working out. Grace and I are lost for words and I had to take Grace to  the 
hosp. from chest pains put she will be alright but will have to stay their  
for a few days before they let her come home.
 
greenie
 
 
In a message dated 6/13/2016 6:07:27 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Our food today is full of junk. You would have to grow everything  yourself 
and use no fertilizer or pesticides.  You can't even buy gum or  toothpaste 
without artificial sweetener.  I was a health nut before I got  cancer.  Go 
figure.  I think moderation is the key and variety.  Try to get organic if 
possible.  Blessings. 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Jun 10, 2016, at 2:04 PM, 'Susan Zimmerman' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:




I still know that every bit of Marty's article is true re.  avoiding 
carcinogens. Snopes is not always right. Any naturopathic doc would  agree w 
the 
article. 
Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Friday, June 10, 2016  'Susan Rosenthal' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:

Before sending anything to anyone, I always check this  site first:

http://www.snopes.com/medical/disease/cancerupdate.asp

Have  a wonderful day

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Re: [CMLHope] Cancer Update from Johns Hopkins

[Myvety2k via CMLHope]

Thanks Marty, I passed to on to my wife she's the  cook.
 
greenie
 
 
In a message dated 6/9/2016 9:28:23 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
 
 
Marty Gartenberg  <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >  
 














 
 
Johns  HopkinsUpdate 
AFTER YEARS OF TELLING PEOPLE  CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', 
BEING THE KEY WORD) TO ELIMINATE  CANCER,JOHNS HOPKINS IS FINALLY STARTING 
TO TELL YOU THERE  IS AN ALTERNATIVE WAY . 
Cancer Update from Johns Hopkins  :  
1. Every person has  cancer cells in the body. These cancer cells do not 
show up in the  standard tests until they have multiplied to a few billion. 
When doctors tell  cancer patients that there are no more cancer cells in 
their bodies after  treatment, it just means the tests are unable to detect the 
cancer cells  because they have not reached the detectable size. 
2. Cancer cells occur between 6 to  more than 10 times in a person's 
lifetime. 
3. When the person's  immune system is strong the cancer cells will be 
destroyed and  prevented from multiplying and forming tumors. 
4. When a person has cancer it  indicates the person has nutritional 
deficiencies. These  could be due to genetic, but also to environmental,  food  
and lifestyle factors. 
5. To overcome the multiple  nutritional deficiencies,changing diet to eat 
more  adequately and healthy, 4-5 times/day and by  including supplements 
will strengthen the immune  system.  Surgery  can also cause cancer cells to 
spread to other sites. An effective way to  battle cancer is to starve the 
cancer cells by not feeding it with the foods  it needs to multiply. 
*CANCER CELLS FEED  ON:  
a. Sugar substitutes like  NutraSweet, Equal, Spoonful, etc are made with 
Aspartame and it is  harmful. A better natural substitute would be Manuka 
honey or  molasses, but only in very small amounts. Table salt has a chemical 
added to  make it white in color. Better alternative is Bragg's aminos or sea 
 salt. 
c. Cancer cells thrive in an acid  environment. A meat-based diet is acidic 
and it is best to  eat fish, and a little other meat, like  chicken. Meat 
also contains livestock antibiotics, growth hormones and  parasites, which 
are all harmful, especially to people with  cancer.  
d. A diet made of  80% fresh vegetables and juice, whole grains, seeds, 
nuts  and a little fruits help put the body into an alkaline  environment. 
About 20% can be from cooked food including beans.  Fresh vegetable juices 
provide live enzymes that are easily absorbed and reach  down to cellular 
levels 
within 15 minutes to nourish and enhance growth of  healthy cells. To obtain 
live enzymes for building healthy cells try and drink  fresh vegetable 
juice (most vegetables including bean sprouts) and eat some  raw vegetables 2 
or 
3 times a day. Enzymes are destroyed  at temperatures of 104 degrees F (40 
degrees C)..Cancer is a disease of the  mind, body, and  spirit. A proactive 
and positive spirit will help the cancer  warrior be a survivor. Anger, 
un-forgiveness and  bitterness put the body into a stressful and acidic  
environment.
Learn to have a loving and forgiving spirit. Learn to relax  and enjoy 
life. Cancer cells cannot thrive in an oxygenated environment.  Exercising 
daily, and deep breathing  help to get more oxygen down to the cellular level. 
Oxygen therapy  is another means employed to destroy cancer cells. 
1. No plastic containers  in micro. 
2. No water bottles in  freezer. 
3. No plastic wrap in  microwave. 
Johns Hopkins has recently sent  this out in its news letters. This 
information is being circulated at Walter  Reed Army Medical Center as well. 
Dioxin 
chemicals cause cancer, especially  breast cancer.Dioxins are highly 
poisonous to the cells of  our bodies. Don't freeze your plastic bottles with 
water in them as this  releases dioxins from the plastic. Recently, Dr Edward 
Fujimoto, Wellness  Program Manager at Castle Hospital , was on a TV program 
to explain this  health hazard. He talked about dioxins and how bad they are 
for us. He said  that we should not be heating our food in the microwave 
using plastic  containers. This especially applies to foods that contain fat. 
He said that  the combination of fat, high heat, and plastics releases dioxin 
into the food  and ultimately into the cells of the body. Instead, he 
recommends using glass,  such as Corning Ware,
Pyrex or ceramic containers for heating food. You get  the same results, 
only without the dioxin. So such things as TV dinners,  instant ramen and 
soups, etc., should be removed from the container and heated  in something 
else. 
Paper isn't bad but you don't know what is in the paper.  It's just safer 
to use tempered glass, Corning Ware, etc. He reminded us that  a while ago 
some of the fast food restaurants moved away from the foam  containers to 
paper The dioxin problem is one of the reasons.  
Please share this  with your whole email list.  

Re: [CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

Thank you Richard H.
 
greenie
 
 
In a message dated 6/7/2016 11:29:02 P.M. Eastern Daylight Time,  
rbhuffm...@gmail.com writes:

Fantastic!!!  Looks great on paper.  Keep on keepin'  on..  


Richard H.

On Tuesday, June 7, 2016 at 9:32:34  AM UTC-5, greenie wrote:  
 
Well Hi again,  I think I got it right this time so I  will try again.  
Page 5 I know about the test results just passing it  on.
 
greenie
 
 
In a message dated 6/7/2016 10:12:34 A.M. Eastern Daylight Time, 
_cml...@googlegroups.com_ (javascript:)   writes:

O. K. that didn't work I will have to scan the reports  to my computer then 
pass them on.   Sorry about  that.
 
greenie
 
 
In a message dated 6/7/2016 10:04:02 A.M. Eastern Daylight Time, 
_cml...@googlegroups.com_ (javascript:)   writes:

_MyNMs MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=6)  
 
Hi Group, I received some results from Northwestern  this morning from 
years passed and I have to clue what they mean.   Marty or anyone please clue 
me 
in.
 
Thank you,
 
greenie
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Re: [CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

Thank you very much for your feed back, and you have a very  good day.  
Makes me feel a ease.
 
greenie
 
 
In a message dated 6/7/2016 9:24:47 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 


Hi Greenie, 


Lets you and I compare some of our counts


First, your MMR has been achieved. Good!


My MMR hasn't been measured for many years because I no longer have  CML




BCR-ABL1 Good


Mine hasn't been measured because I no longer have CML


MCV is 101 Standard Range should be 88-99 No big deal Still Good!


The way my lab measures MCV is that the standard range is from between  
79-97. My MCV as of one week ago came in at 104. Yes a bit high but nothing to  
be concerned with.


As far as me and MCV that is measured every two weeks because of some  
other things from The Cytomegalovirus that I have had, but I was just taken  
off 
of The Valcyte (Very expensive) and hopefully it won't come  back, but 
since my kidney donor was CMV Positive and before receiving his  kidney I have 
been for my whole life CMV Negative  so there could  potentially be at any 
time could come back.


Your Red Blood Count is 3.86 Standard Range should be 4.0-5.8 So also  this 
means that you are slightly Anemic, but as long as you have enough energy  
also depending on what your Hemoglobin is, then it shouldn't present a  
problem.


My Red count is 3.9 the standard range should be 3.77 to  5.28. 


I hope that I have explained exactly what some of your blood counts  should 
be.


You know what, you seem to be a healthy person so may I suggest that you  
stay our of the paths of speeding busses. And, I will try doing the  same珞 


18's,


Marty


On Tue, Jun 7, 2016 at 5:28 PM, Myvety2k via CMLHope  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


Hi Marty,  Here is and attachment of my test results  from Northwestern in 
Chicago from last Wednesday.
 
greenie
 
 
In a message dated 6/7/2016 4:03:04 P.M. Eastern Daylight Time, 
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

 
Hi,


About your NMs test results, unfortunately there is only a My Chart  asking 
for your user name and password, After that which of course I was  not able 
to get into it. What I can give you information about is  about some of the 
tests that are being done but not necessarily for your  situation.


The only thing that I can provide is in the web site below, but most  or 
probably all of it may be beyond the average persons  comprehension.


Good luck


18's,


Marty  


http://www.nmslabs.com/test-catalog-new


On Tue, Jun 7, 2016 at 2:37 PM, Myvety2k via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


Thank you, Thank you, glad to hear that.
 
greenie
 
 

 
In a message dated 6/7/2016 1:09:13 P.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

Great great news  
Blessings and 18's, 
Susan F. Zimmerman
"All who humble themselves before the  Lord shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Tuesday,  June 7, 2016 Myvety2k via CMLHope <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >  wrote:


 
Well Hi again,  I think I got it right this  time so I will try again.  
Page 5 I know about the test results  just passing it on.
 
greenie
 
 
In a message dated 6/7/2016 10:12:34 A.M. Eastern Daylight Time,  
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

O. K. that didn't work I will have to scan the  reports to my computer then 
pass them on.   Sorry about  that.
 
greenie
 
 
In a message dated 6/7/2016 10:04:02 A.M. Eastern Daylight  Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  writes:

_MyNMs MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=6)  
 
Hi Group, I received some results from  Northwestern this morning from 
years passed and I have to clue  what they mean.  Marty or anyone please clue 
me 
 in.
 
Thank you,
 
greenie
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Re: [CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

Thank you, Thank you, glad to hear that.
 
greenie
 
 
In a message dated 6/7/2016 1:09:13 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Great great news  
Blessings and 18's, 
Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Tuesday, June 7, 2016  Myvety2k via CMLHope <cmlhope@googlegroups.com>  
wrote:


 
Well Hi again,  I think I got it right this time so I  will try again.  
Page 5 I know about the test results just passing it  on.
 
greenie
 
 
In a message dated 6/7/2016 10:12:34 A.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:

O. K. that didn't work I will have to scan the reports to  my computer then 
pass them on.   Sorry about that.
 
greenie
 
 
In a message dated 6/7/2016 10:04:02 A.M. Eastern Daylight Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:

_MyNMs MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=6)  
 
Hi Group, I received some results from Northwestern this  morning from 
years passed and I have to clue what they mean.  Marty  or anyone please clue 
me 
in.
 
Thank you,
 
greenie
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Re: [CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

O. K. that didn't work I will have to scan the reports to my  computer then 
pass them on.   Sorry about that.
 
greenie
 
 
In a message dated 6/7/2016 10:04:02 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

_MyNMs  MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=6)  
 
Hi Group, I received some results from Northwestern this  morning from 
years passed and I have to clue what they mean.  Marty or  anyone please clue 
me 
in.
 
Thank you,
 
greenie
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[CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

_MyNMs  MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=4)  
 
This report a know about the test results I through I would  pass it on.  
My red count has been low from day one, but the other one's  are the norm.
 
greenie

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[CMLHope] Check out MyNMs MyChart - Test Details

[Myvety2k via CMLHope]

_MyNMs  MyChart - Test Details_ 
(https://mychart.nm.org/mychart/inside.asp?mode=labdetail=5)  
 
This one was from my trip last week to Chicago.
 
greenie

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