RE: [TMIC] question
I had trouble with the bowl, after 6 month TM. Went in the hospital for a week, I was complete filled up, and to less came out. After It was done, I was put on Lactulose, every day use. The spasme went much better. I still am on use of Lactolose, it has been 12 years now. Wim Date: Sun, 9 Aug 2009 17:16:01 -0400 From: wolft...@optonline.net To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin _ Nieuws, entertainment en de laatste roddels. Je vind het op MSN.nl! http://nl.msn.com/
[TMIC] hoping and praying for All
I received so many e-mails after I asked for opinions and that is what I got.After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca
Re: [TMIC] hoping and praying for All
You and Dennis are going in my Prayer Pot, Rebecca, and yes, you have a family of friends here that are a blessed group of people. Jeanne in Dayton WA ---Original Message--- From: Rebecca Date: 8/10/2009 9:48:37 AM To: Undisclosed-Recipient:, Subject: [TMIC] hoping and praying for All I received so many e-mails after I asked for opinions and that is what I got After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca 01_tile.jpg01_side.gif
RE: Fwd: [TMIC] healthcare
Thanks for the information Lori, I'm just going by what the reception told me at the MRI place. They had already had me into a hospital gown but in my IV and then told me that, if I had Medicare, it would be my primary and that I had to have a nurse on site for Medicare to pay. I had to leave the MRI place in my hospital gown with my IV still in and go to the hospital to have my MRI there. This was a nightmare, lol Todd in CC, TX --- On Thu, 8/6/09, Lori Biehler lbieh...@earthlink.net wrote: From: Lori Biehler lbieh...@earthlink.net Subject: RE: Fwd: [TMIC] healthcare To: 'Todd Tarno' toddtm2...@sbcglobal.net, tmic-list@eskimo.com, 'Laurie Zissimos' lziss...@aol.com Date: Thursday, August 6, 2009, 2:23 PM Sorry Todd, I have been on Medicare for 10 years and it is my secondary. Not sure of your circumstance, but it is not ALWAYS primary. I am on SSDI and am not over 65. Lori From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Thursday, August 06, 2009 3:12 PM To: tmic-list@eskimo.com; Laurie Zissimos Subject: Re: Fwd: [TMIC] healthcare Hi Laurie, I found out the hard way that Medicare is ALWAYS primary. I too, tried to keep my COBRA Medicare, but when I went to get a MRI, they told me that Medicare was primary. When I tried to get back my COBRA payments, they wouldn't return the payments and didn't want to pay for my medications for that month. So, I had to tell them either return my COBRA payments or pay for my medications, which are over $3,000 a month. They paid for the medications. Thanks goodness. I don't remember what Part B is. I do think you will need Part D for medications. Since you already using Blue Cross and you like them. I would stay with them with Part D. I would talk to Blue Cross to see they can help you find a plan that works for you. Hope this helps a little, Todd in CC, TX --- On Tue, 8/4/09, Laurie Zissimos lziss...@aol.com wrote: From: Laurie Zissimos lziss...@aol.com Subject: Fwd: [TMIC] healthcare To: tmic-list@eskimo.com Date: Tuesday, August 4, 2009, 5:46 PM see below -Original Message- From: Laurie Zissimos lziss...@aol.com To: rn11...@yahoo.com Sent: Tue, Aug 4, 2009 6:31 pm Subject: Re: [TMIC] healthcare Maybe you can help me. I was diagnosed with TM in Dec 2005 and went on SSDI a year and a half later. This September I have to enroll in Medicare and I don't know whether or not to get Part B/D at this time. I am on my husband's COBRA until January unless I file for an extension which I may do since I have that option being disabled. It's pretty expensive, but Its Blue Cross and they have covered almost all of my medical exp since the diagnosis. Our Blue Cross plan is a PPO so we don't need precerts/pre auths. It makes it much easier seeing specialists. He also has another plan through a part time employer but I don't think the benies are that great. My first question is whether or not I should sign up for Part B, Part B Advantaged, or Part B and D. I am trying not to lose the BlueCross, but I also don't know which of the new health coverages would be primary, secondary! or other. Is Medicare always considered primary or is it secondary?? Laurie -Original Message- From: rn11...@yahoo.com rn11...@yahoo.com To: tmic-list@eskimo.com Sent: Tue, Aug 4, 2009 6:14 pm Subject: [TMIC] healthcare Hi, I have been on social security disability since 1996,5 months after getting tm.I was 49 (now I'm 63).I have a medicare hmo health plan.I have had this since cobra ran out.I pay $173 a month.My dr visits are $10,a specialist $20.I have a deductable of $100 per day if hospitalized (for the 1st 8 days).It also includes the part d to help pay for meds,but I get many of my meds at walmart for $10 for a 90 day supply.The others I get for 90 days through express scripts.I'm sure that on Jan 1st the cost will go up and the benefits will change. I pay out of pocket over $4000 a year for insurance and meds.Thank God I had long term disability insurance when tm hit me.I get a total of 60% of what I was earning in 1995. I live in Mass.,where you must have some type of medical insurance,or you pay a penalty when you file taxes.My ex husband paid $600 this year for not having health insurance last year. I finally got him to get medicare when he turned 65 in March.Now if I could convince him to insure his house! Well,I don't post often,but I'm sure wordy when I do! My best wishes to everyone, Cheryl in HOT Easthampton,MA.
[TMIC] Thoughts and Prayers
Rebbecca,Since Jeanne gave me such a wonderful idea of having a "prayer pot" I too will be putting you and Dennis in mine.I am glad to hear things are improving.Thoughts and Prayers,Catherine
Re: [TMIC] hoping and praying for All
Absolutely! I have used one for many years, now. I write the names on a little piece of paper, some every day and some days there is one special name on it. Sometimes I put more than one in a day. Mine is a basket with a lid that sits on it tipped a little to the side and I just add the paper. It never seems to fill up...strange, huh??? Hugs for now...Jeanne ---Original Message--- From: Catherine Date: 8/10/2009 2:54:21 PM To: jrushton Subject: Re: [TMIC] hoping and praying for All Jeanne, What a great idea, a Prayer pot! I hope you won't mind, today I am going to start one too. Thoughts and Prayers, Catherine From: jrushton jrush...@columbiaenergyllc.com To: Rebecca wrabal...@gt.rr.com; tmic tmic-list@eskimo.com Sent: Monday, August 10, 2009 11:03:26 PM Subject: Re: [TMIC] hoping and praying for All You and Dennis are going in my Prayer Pot, Rebecca, and yes, you have a family of friends here that are a blessed group of people. Jeanne in Dayton WA ---Original Message--- From: Rebecca Date: 8/10/2009 9:48:37 AM To: Undisclosed-Recipient:, Subject: [TMIC] hoping and praying for All I received so many e-mails after I asked for opinions and that is what I got After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca 01_tile.jpg01_side.gif
Re: [TMIC] question
Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving? your bowels regularly for any reason, can make other symptoms? worse, such as spasms?? ? Kevin? ?
Re: [TMIC] question
Janice I eat ice...when I am having a flash I drink the Pepsi then eat the ice..all this while I am drenched with sweat and I plop down in front of the fan..it is a wonderful feeling isn't it!? Debi ---Original Message--- From: Janice Date: 8/9/2009 8:50:37 PM To: Janet Dunn; 'Kevin Wolfthal'; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Do you also have problems with just sitting in your air-conditioned room, doing nothing, and all of a sudden you can feel yourself getting uncomfortably warm? Or with some activity - like making a bed - and you start dripping with sweat?I live in Missouri and the summers are really hot, the winters really cold - but it doesn't really matter. I still get hit with this. My doc says there is not a lot that can be done without causing other problems.I wear a patch on my arm - clonidine - and that is about all they can do for me, but it doesn't do much good.I just have to quit whatever I am doing, sit down and drink something cold.After a while, I get better.I'm a mess! Janice - Original Message - From: Janet Dunn j.d...@shaw.ca To: 'Kevin Wolfthal' wolft...@optonline.net; tmic-list@eskimo.com Sent: Sunday, August 09, 2009 7:38 PM Subject: RE: [TMIC] question Yes, I have noticed that. It also makes the bladder issues worse. Glad I am not alone in this. I also, being a person from a northern climate, do not know how you down in the warmth stand the heat. Too much heat and my burning bands drive me nuts. Too much cold and I have trouble walking. Maybe I need to be in a bubble. Janet -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: August 9, 2009 2:16 PM To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Spiral_notebook.jpg
Re: [TMIC] question
Hi, Ann, I don't know about the pain but I do know that when you become constipated and your stool stays in your bowel, your body will absorb the fluids which makes the stool even harder and more uncomfortable and more difficult to extract. Having the TM aggravates the issue with all of our nerve problems especially for those of us who have no feeling in that area. Each one of us has to find our own answer to the constipation problem or we will continue suffering. It's not healthy to have that stuff stay in our system, either. Not fun, is it? Jeanne ---Original Message--- From: anndil...@aol.com Date: 8/10/2009 4:48:59 PM To: wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin 01_tile.jpg01_side.gif
Re: [TMIC] question
I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry
Re: [TMIC] question
I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves
Re: [TMIC] question
Funny how when you are a nurse you can talk about things like this as if you are talking about the weather! ::)) ---Original Message--- From: Trudy Ogilvie Date: 8/10/2009 9:07:04 PM To: rj_ran...@yahoo.com Cc: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves 01_tile.jpg01_side.gif
[TMIC] RE: tmic-digest Digest V2009 #783
I had that problem with my bowels few years ago I mentioned it to my neuro and he prescribed oxybutynin 5 mg take two tablets at bedtime preperfably the same time every night. it took about 48 hours for it to take effect just an idea Gerry in thunderstorms in Montreal Date: Mon, 10 Aug 2009 19:30:36 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #783 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 783 Today's Topics: Re: [TMIC] question [ jrushton jrush...@columbiaenergy ] Re: [TMIC] question [ rj_ran...@yahoo.com ] Re: [TMIC] question [ Trudy Ogilvie mother...@gmail.com ] --Forwarded Message Attachment-- Date: Tue, 11 Aug 2009 03:12:47 -0500 From: jrush...@columbiaenergyllc.com To: anndil...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] question Hi, Ann, I don't know about the pain but I do know that when you become constipated and your stool stays in your bowel, your body will absorb the fluids which makes the stool even harder and more uncomfortable and more difficult to extract. Having the TM aggravates the issue with all of our nerve problems especially for those of us who have no feeling in that area. Each one of us has to find our own answer to the constipation problem or we will continue suffering. It's not healthy to have that stuff stay in our system, either. Not fun, is it? Jeanne ---Original Message--- From: anndil...@aol.com Date: 8/10/2009 4:48:59 PM To: wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin --Forwarded Message Attachment-- Date: Mon, 10 Aug 2009 22:14:42 + From: rj_ran...@yahoo.com To: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry --Forwarded Message Attachment-- Date: Mon, 10 Aug 2009 22:06:56 -0400 From: mother...@gmail.com To: rj_ran...@yahoo.com CC: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves attachment: 01_side.gif
Re: [TMIC] question
It is something we all have to live with; something we all have to work out with pain and suffering. Lol. When my bowel is full, I can't empty my bladder either! Learned a long time ago what Dr. Kerr meant by digital disimpaction! Cora in Ok Sent from my BlackBerry® wireless handheld -Original Message- From: jrushton jrush...@columbiaenergyllc.com Date: Tue, 11 Aug 2009 07:30:04 To: Trudy Ogilviemother...@gmail.com; tmictmic-list@eskimo.com Subject: Re: [TMIC] question Funny how when you are a nurse you can talk about things like this as if you are talking about the weather! ::)) ---Original Message--- From: Trudy Ogilvie Date: 8/10/2009 9:07:04 PM To: rj_ran...@yahoo.com Cc: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves 01_side.gif
Re: [TMIC] hoping and praying for All
Jeanne, Only you could have thought to have a prayer pot!I think you must be very organized. Hope you are doing well. janice - Original Message - From: jrushton To: Catherine ; tmic Sent: Tuesday, August 11, 2009 2:20 AM Subject: Re: [TMIC] hoping and praying for All Absolutely! I have used one for many years, now. I write the names on a little piece of paper, some every day and some days there is one special name on it. Sometimes I put more than one in a day. Mine is a basket with a lid that sits on it tipped a little to the side and I just add the paper. It never seems to fill up...strange, huh??? Hugs for now...Jeanne ---Original Message--- From: Catherine Date: 8/10/2009 2:54:21 PM To: jrushton Subject: Re: [TMIC] hoping and praying for All Jeanne, What a great idea, a Prayer pot! I hope you won't mind, today I am going to start one too. Thoughts and Prayers, Catherine -- From: jrushton jrush...@columbiaenergyllc.com To: Rebecca wrabal...@gt.rr.com; tmic tmic-list@eskimo.com Sent: Monday, August 10, 2009 11:03:26 PM Subject: Re: [TMIC] hoping and praying for All You and Dennis are going in my Prayer Pot, Rebecca, and yes, you have a family of friends here that are a blessed group of people. Jeanne in Dayton, WA ---Original Message--- From: Rebecca Date: 8/10/2009 9:48:37 AM To: Undisclosed-Recipient:, Subject: [TMIC] hoping and praying for All I received so many e-mails after I asked for opinions and that is what I got.After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca 01_side.gif01_tile.jpg
Re: [TMIC] question
Janet, I also have fatigue. I thought it was just my body not getting stronger to be back to normal yet. But, after hearing you guys talk about it, I figured out I must have it too. If I am fairly busy in the morning, I can count on needing to sit with my legs up for a good portion of the afternoon. Also, the band you are talking about just under the breast. I complained to my doc about that and he said it was spasms. What he told me to do was stretch my body as far as I could get myself straight and even leaning backwards. You need to stretch out that sharp pain. It does help me, but jeepers I hate that pain. Janice - Original Message - From: Janet Dunn To: 'jrushton' ; 'tmic' Sent: Monday, August 10, 2009 12:13 AM Subject: RE: [TMIC] question Hey Jeanne When you say that the pain starts worsening at T4 (which is where mine is) and you know the rest is coming, what do you mean by that? I am finding lately that the fatigue is awful. I spent yesterday morning garage saleing, and then the afternoon was naptime. Today, I could hardly drag my butt out of bed, and I did a little yard work this afternoon, and then back to bed. The band is like a jagged razor blade, under my breast. I just get so tired, and so sore. That is what frustrates me. And yes, the constant work at keeping the plumbing working. Yikes that makes me crazy. One thing changes in your routine, and you are down for the count for days. Enough of that. Janet
Re: [TMIC] question
Kevin, I hear you about keeping the house cool.In the winter and sometimes in the summer with the AC on, our friends know to grab the afgfans for warmth. Janice - Original Message - From: Kevin Wolfthal wolft...@optonline.net To: Janet Dunn j.d...@shaw.ca; tmic-list@eskimo.com Sent: Sunday, August 09, 2009 11:47 PM Subject: Re: [TMIC] question Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also can't take extremes of heat or cold. I even have to turn on my AC in the winter if it's too hot in my room. Wierd. Kevin Janet Dunn wrote: Yes, I have noticed that. It also makes the bladder issues worse. Glad I am not alone in this. I also, being a person from a northern climate, do not know how you down in the warmth stand the heat. Too much heat and my burning bands drive me nuts. Too much cold and I have trouble walking. Maybe I need to be in a bubble. Janet -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: August 9, 2009 2:16 PM To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin
Re: [TMIC] question
Jeanne, That is the way the body heat hits me too. I absolutely hate it!!I can't be in a room without the fans going too. What a mess! Janice - Original Message - From: jrushton To: Kevin Wolfthal ; tmic Sent: Monday, August 10, 2009 10:30 AM Subject: Re: [TMIC] question Kevin, I think the only thing we can do is just literally treat the symptoms and we have many I will break out in a sweat from above the spinal cord injury where water will just fall off of my face. I think it's past 'sweating' but nothing at all below the T4 level where the TM got me!!! What a study we could be!! Jeanne ---Original Message--- From: Kevin Wolfthal Date: 8/9/2009 11:47:41 PM To: Janet Dunn; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also can't take extremes of heat or cold. I even have to turn on my AC in the winter if it's too hot in my room. Wierd. Kevin Janet Dunn wrote: Yes, I have noticed that. It also makes the bladder issues worse. Glad I am not alone in this. I also, being a person from a northern climate, do not know how you down in the warmth stand the heat. Too much heat and my burning bands drive me nuts. Too much cold and I have trouble walking. Maybe I need to be in a bubble. Janet -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: August 9, 2009 2:16 PM To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin 01_side.gif01_tile.jpg
Re: [TMIC] question
I hate this hot feeling so much - do you realize how many baths and shampoo's I take in a week's time?I am so looking forward to fall and winter. I really seem to do better then. I also suck on those frozen koolaid sticks that kids like in the summer. I sit in front of a fan with it! Love it.It really does help me. Janice - Original Message - From: bradebi To: Janet Dunn ; 'Kevin Wolfthal' ; tmic-list@eskimo.com ; Janice Sent: Monday, August 10, 2009 4:58 PM Subject: Re: [TMIC] question Janice I eat ice...when I am having a flash I drink the Pepsi then eat the ice..all this while I am drenched with sweat and I plop down in front of the fan..it is a wonderful feeling isn't it!? Debi ---Original Message--- From: Janice Date: 8/9/2009 8:50:37 PM To: Janet Dunn; 'Kevin Wolfthal'; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Do you also have problems with just sitting in your air-conditioned room, doing nothing, and all of a sudden you can feel yourself getting uncomfortably warm? Or with some activity - like making a bed - and you start dripping with sweat?I live in Missouri and the summers are really hot, the winters really cold - but it doesn't really matter. I still get hit with this. My doc says there is not a lot that can be done without causing other problems.I wear a patch on my arm - clonidine - and that is about all they can do for me, but it doesn't do much good.I just have to quit whatever I am doing, sit down and drink something cold.After a while, I get better.I'm a mess! Janice - Original Message - From: Janet Dunn j.d...@shaw.ca To: 'Kevin Wolfthal' wolft...@optonline.net; tmic-list@eskimo.com Sent: Sunday, August 09, 2009 7:38 PM Subject: RE: [TMIC] question Yes, I have noticed that. It also makes the bladder issues worse. Glad I am not alone in this. I also, being a person from a northern climate, do not know how you down in the warmth stand the heat. Too much heat and my burning bands drive me nuts. Too much cold and I have trouble walking. Maybe I need to be in a bubble. Janet -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: August 9, 2009 2:16 PM To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Spiral_notebook.jpg
Re: [TMIC] question
By all means, all pain counts and we all seem to have it in different places! I worked in the nurse's office in one of our high schools for 19 years.I loved it - every day was completely different. What do you teach? Janice - Original Message - From: rj_ran...@yahoo.com To: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Sent: Monday, August 10, 2009 5:14 PM Subject: Re: [TMIC] question I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry
Re: [TMIC] question
I think being around doc's so much and having a great group like this that you can talk to about anything, makes it so much easier to talk about. No matter what the subject is! Janice - Original Message - From: jrushton To: Trudy Ogilvie ; tmic Sent: Tuesday, August 11, 2009 7:30 AM Subject: Re: [TMIC] question Funny how when you are a nurse you can talk about things like this as if you are talking about the weather! ::)) ---Original Message--- From: Trudy Ogilvie Date: 8/10/2009 9:07:04 PM To: rj_ran...@yahoo.com Cc: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves 01_side.gif01_tile.jpg
[TMIC] That banding feeling
Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
[TMIC] Oxy-B
Interesting oxyb--- dries me up, dries me out, helps with urine... never thought of it for bowels... But the recentr eports of it's affect on memory and brain function have scared me off of it. Akua I had that problem with my bowels few years ago I mentioned it to my neuro and he prescribed oxybutynin 5 mg take two tablets at bedtime preperfably the same time every night. it took about 48 hours for it to ta --
Re: [TMIC] That banding feeling
I was told that I had m.s. within 5 minutes after meeting the first neuro in 2oo5. The t.m. diagnosis came almost a year later after colon then bladder stopped working but tm WAS what hit me n 05 according to the neuro. The info confused the hell out of me. I was hit with trigeminal neurologia and brain stem demylination last fall. MS seems to be the underlyning factor with each wierd thing. It might be why I recovered so well from tm. But I have to worry with future attacls and problems. --Original Message-- From: laura.eich...@gmail.com To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Sent: Aug 10, 2009 11:55 PM Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura Sent from my Verizon Wireless BlackBerry
RE: [TMIC] That banding feeling
Hi I just have TM. Ha, just have. What a thing to say. I have TM. And I have no evidence of MS or anything else. And the banding has been helped by lyrica. But the burning/razor blade feeling has not been helped. And my legs ache. Like chewing on a piece of tinfoil ache. All the time. Drives me crazy. Glad that you only have a very mild case of TM. I was told by a neurologist in Vancouver that if you are going to have another TM attack it will occur within 5 years. This is my 5 year anniversary month. Yay me. Janet From: laura.eich...@gmail.com [mailto:laura.eich...@gmail.com] Sent: August 10, 2009 8:56 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
