Re: [TMIC] Unidentified subject!
Dalton, I will be having my bone density test soon. I've had osteopenia since before TM and developed jaw bone problems after one of the early osteo drugs given to women years ago. I think that med was removed from the market and I have gently refused any of the new meds since. I'll have to make a decision again when my new PCP gets my report. However, I'll feel more comfortable discussing it this time, because I chose a female doctor who may also face the same decision as she ages. Keep us informed and if anything changes I'll post an update. Patti - Michigan On Jan 26, 2015, at 9:13 AM, Suerdlagpunga suerdlagpu...@gmail.com wrote: Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Okay – I am dealing with something else then.Wonder what causes this problem.Told my doc about it and he just said to stretch it out – which I do. Only lasts about a day or so at a time. Janice From: Robert Pall Sent: Wednesday, January 28, 2015 10:12 AM To: jannic...@gmail.com ; malugss...@me.com ; nmacleo...@yahoo.co.uk Cc: i.whidd...@icloud.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! Banding to me does not mean painit means tightness! Like a rubber band being pulled to its limit! The baclofen pump is used to reduce banding and spasticity. Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com Sent: Wed, Jan 28, 2015 10:30 am Subject: Re: [TMIC] Unidentified subject! Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Banding to me does not mean painit means tightness! Like a rubber band being pulled to its limit! The baclofen pump is used to reduce banding and spasticity. Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com Sent: Wed, Jan 28, 2015 10:30 am Subject: Re: [TMIC] Unidentified subject! Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Everybody, I had the baclofen Pump inserted in June 2013. Before the pump could be inserted I first had to do a trial at the hospital to determine if the pump was right for me. My neuro felt that the banding in my legs is caused by spasticity and not weakness. The reason I went with the pump is because I could not tolerate taking baclofen orally. To cut to the chase .I am considering removing the pump because the dosage required to help the banding also has caused me to have heart palpitations,nausau and a feeling of bloatedness. In addition it has made me lose my appetite causing me to lose 30 lbs. This is after my doing all possible due diligence. Therefore even though the pump has somewhat improved my banding the side effects eliminate the positives. God I hate TM Rob in NJ -Original Message- From: Sandra Melville luth...@comcast.net To: Pat p...@voorheissigns.com Cc: robthecfo robthe...@aol.com; tmic tmic-list@eskimo.com; Iris Whiddett i.whidd...@icloud.com Sent: Wed, Jan 28, 2015 1:10 pm Subject: Re: [TMIC] Unidentified subject! Everybody, Pat just reminded pointed out that I miss-spoke in my last post. Please excuse me, Baclophen is a muscle relaxant and anti-spasm med. It is NOT an anti-seizure med. One should never substitute one for the other without talking to one's doc! Dangerous effects could occur! Everybody, please don't take meds on the information of somebody on-line for just this reason-someone may mis-speak! Pat, I thank you! This message is intended for the use of the person(s) to whom it may be addressed. It may contain information that is privileged, confidential, or otherwise protected from disclosure under applicable law. If you are not the intended recipient, any dissemination, distribution, copying, or use of this information is prohibited. If you have received this message in error, please permanently delete it and immediately notify the sender. Thank you. Original message From: Sam Melville luth...@comcast.net Date:01/28/2015 9:20 AM (GMT-05:00) To: Pat p...@voorheissigns.com Cc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com Subject: Re: [TMIC] Unidentified subject! Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Everybody, Pat just reminded pointed out that I miss-spoke in my last post. Please excuse me, Baclophen is a muscle relaxant and anti-spasm med. It is NOT an anti-seizure med. One should never substitute one for the other without talking to one's doc! Dangerous effects could occur! Everybody, please don't take meds on the information of somebody on-line for just this reason-someone may mis-speak! Pat, I thank you! This message is intended for the use of the person(s) to whom it may be addressed. It may contain information that is privileged, confidential, or otherwise protected from disclosure under applicable law. If you are not the intended recipient, any dissemination, distribution, copying, or use of this information is prohibited. If you have received this message in error, please permanently delete it and immediately notify the sender. Thank you. div Original message /divdivFrom: Sam Melville luth...@comcast.net /divdivDate:01/28/2015 9:20 AM (GMT-05:00) /divdivTo: Pat p...@voorheissigns.com /divdivCc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com /divdivSubject: Re: [TMIC] Unidentified subject! /divdiv /divSome of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Hi Sam, That information in very useful, thanks. Nikki, UK Sent from my iPad On 26 Jan 2015, at 14:47, luth...@comcast.net wrote: Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston. Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association: http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923 Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you. Sam from Boston -Original Message- From: suerdlagpu...@gmail.com To: i.whidd...@icloud.com Cc: tmic-l...@eskimo.net,vasso...@gmail.com Sent: 2015-01-26 09:17:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Hi, Dalton sorry to hear that you are in so much pain. Personally, I the only experience of osteo meds is being prescribed extra CalciChew for my bones and Lidacane patches for the pain. Hope you get sorted soon. Nikki, UK Sent from my iPad On 26 Jan 2015, at 14:47, luth...@comcast.net wrote: Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston. Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association: http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923 Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you. Sam from Boston -Original Message- From: suerdlagpu...@gmail.com To: i.whidd...@icloud.com Cc: tmic-l...@eskimo.net,vasso...@gmail.com Sent: 2015-01-26 09:17:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- "Sam from Boston."Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being "MS of the spinal cord." If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpu...@gmail.comTo: i.whidd...@icloud.comCc: tmic-l...@eskimo.net,vasso...@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebraeL2and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I dont sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Drs office every 6 months, for bone health. It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton Dalton GarisFlushing, QueensNew York, USA(718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad
Re: [TMIC] Unidentified subject!
Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Iris, I found that there are several different FB pages, one is "people living with transverse myelitis" that seemed to be very helpful. You might look at that one ;-) Glad you are finding support! Cheers! Sam On Jan 26, 2015 11:33 AM, Iris Whiddett i.whidd...@icloud.com wrote:Thanks Sam, you are so right about this Group. Ive tried facebook but I dont feel it compares to the help and support and useful information always to be found here. Iris UKSent from my iPadOn 26 Jan 2015, at 14:47, luthyen@comcast.net wrote:Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston.Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you cant explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpunga@gmail.comTo: i.whiddett@icloud.comCc: TMIC-LIST@eskimo.net,vasso9.s@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton Dalton GarisFlushing, QueensNew York, USA(718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whiddett@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso9.s@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whiddett@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad
Re: [TMIC] Unidentified subject!
I have never really been bothered by banding - sometimes I can feel it, but really no problem. My worst problem is spondolosis/arthritis down low in my back that is aggravated by TM. Also, the never going down the backs of my calves. That can knock me to the floor when it hits. Otherwise, I'm pretty good. Janice -Original Message- From: Iris Whiddett Sent: Sunday, January 25, 2015 4:10 PM To: robthe...@aol.com Cc: tmic Subject: [TMIC] Unidentified subject! Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Dear Friends While things are so quiet, thought I would share with you the awful fright I suffered this week. I was aware of some discomfort in my back on Monday last, which quite quickly progressed to excruciating pain and difficulty even moving. I feared TM had taken another hit at me, this time further down my spine. Flat on my back, fearing the worst, it dawned on me that I could move my legs quite freely while prone and therefore could NOT be the b*d TM! The relief!! Total rest and anti-inflammatory medication have now seen a big improvement and I'm tending to think I did some damage hauling myself into my husband's Grand Cherokee when we went out on the Sunday. There's no chance he will swap his pride and joy for something more suitable so I've compromised ( as we women do) and ordered a step to assist - a tad undignified but, then, that went out the window when TM flew in! Regards to all Iris UK Sent from my iPad
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Iris, What a scare! Did you ever find out what you did to your back?Glad you are doing much better now.I know how you feel about trying to get into a bigger car. We had to do that too after TM struck to make room for wheel chair, walker, etc.It really is hard to get in if you are short and, I cannot boost since TM, so it makes it harder.I am assuming none of us can boost any more. What about it? Can any of you still boost? I wish you continued improvement with your back and whatever you did to it to hurt it - don't do it again. Janice -Original Message- From: I.WHIDDETT Sent: Saturday, September 28, 2013 10:20 AM To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! Dear Friends While things are so quiet, thought I would share with you the awful fright I suffered this week. I was aware of some discomfort in my back on Monday last, which quite quickly progressed to excruciating pain and difficulty even moving. I feared TM had taken another hit at me, this time further down my spine. Flat on my back, fearing the worst, it dawned on me that I could move my legs quite freely while prone and therefore could NOT be the b*d TM! The relief!! Total rest and anti-inflammatory medication have now seen a big improvement and I'm tending to think I did some damage hauling myself into my husband's Grand Cherokee when we went out on the Sunday. There's no chance he will swap his pride and joy for something more suitable so I've compromised ( as we women do) and ordered a step to assist - a tad undignified but, then, that went out the window when TM flew in! Regards to all Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Thanks for your third journal, Rob. What a great success story. Iris Sent from my iPad
[TMIC] Unidentified subject!
I read a the posts and reply occasionally. Hope everyone is keeping Well in the northern hemisphere. Cheers Shirley Sent from my iPhone
[TMIC] Unidentified subject!
[TMIC] Unidentified subject!
RickAshford
Re: [TMIC] Unidentified subject!
Hello to you. I hope you are having a great day. Patti On Sun, Feb 10, 2013 at 10:23 AM, Anne Shreve sthrnbll...@yahoo.com wrote: Hello! http://twistoys.com/thy/6vphpoeu65?gwk0
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Hi Deb, I had no idea you were involved with TMIC in that capacity. I never knew that about you. Surprise, surprise! I am trying to get people involved with us and am struggling to come up with things to discuss. You say that you try to make sure that topics are not talked about over and over, but it's hard to come up with things that are new. What am I supposed to do. At least there are a few more people writing in now. Or is it only that I have just come back? Have people been writing back and forth that you know of? Please let me know. I appreciate your attention. Thank you, Jude, Midhigan In a message dated 1/25/2013 8:00:48 P.M. Eastern Standard Time, dnca...@gmail.com writes: Hi Jude, No, it has nothing to do with getting spammed. I live on the computer. I do all my work on the computer, I build computers, create the websites, proofread all the TMA articles, etc. I know how to get rid of spam. It is just a matter of hitting the delete button. I have been part of the original tmic list almost since the first emails started going back and forth, back in January, 1997. I have watched people sign up with the list, I have watched people die on the list, I have to talk to people with TM on the phone and internet every single day. That is part of my job. I also have met my closest and dearest friends because of the tmic list. I have monitored the list for 16 years. When there is objectionable material, I notify the proper people, and those emails are deleted so that others who may search the archives for information will not read the objectionable material. I also know that every time an infected email enters my computer (one that has a virus), it has come from somebody on the list who has had their address book hacked. So, when these emails come in to the list, we simply unsubscribe them from the list, so that they are unable to send any more emails to the list until they get their computers fixed. Once they realize that they have not received tmic list emails, it has probably been after they have removed their viruses, and they resubscribe. So, notifying everybody on the list is really just not necessary. I just know when to sit back and not get involved and have learned from my own personal bad experiences when to back off so as not to get insulted by people who think I am “butting in” too much. I also know that some of the same problems and issues that people are experiencing have been discussed and discussed over and over, and people neglect to take advantage of all the wealth of information that has been stored in the archives from all the previous email conversations over the past 16 years, and if they are not going to read all the valuable information, rather ask the same questions over and over on the list, why bother trying to explain again? Anyway, I am sorry that I have created such a long email, but I just wanted you to understand where I am coming from, and it has nothing to do with you, just “experience” has taught me to stay in the background. Take care, Debbie From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Friday, January 25, 2013 4:05 PM To: dnca...@gmail.com Subject: Re: [TMIC] Unidentified subject! Ok, Deb, I do not understand what you're saying. Are you not going to send messages to the group anymore? Is it because you are worried about getting spammed? I have only been spammed a handful, if that, many times over all the years I've been on the computer. We really need your input on TMIC. You're a valuable person with a lot of good information to share. I will understand if you don't want to continue with us, but each person makes a difference and your words count. Your friend, Jude Here's to the nights that turned into mornings, with the friends that turned into family. (unknown) In a message dated 1/25/2013 12:33:41 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Hello Jude, First, thank you for not copying the list with my email and private concerns. Some people on the list do not have their computers properly protected with anti-virus software, thus their computers are repeatedly hacked. Also, some people have the option marked “automatically add all people to address book”, so my email address gets entered into all these anonymous computers, and when they get a virus, I (and hundreds of other people) receive an infected email. If people wish to be on the internet, they should be responsible for protecting their own computers from these infections, and when one person sends an infected email to the list, suddenly about 20 people will send an email to the list that they need to ignore all messages sent by that one person because it is infected. So, I figure that eventually people will “get it” and I don’t
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Who are you and what is this email address for? I know you mentioned your email address, but not everyone knows who you are without your name. I think you are Cheryl, but I'm not sure. Jude In a message dated 1/24/2013 10:20:49 P.M. Eastern Standard Time, rn11...@yahoo.com writes: _http://www.polideportivoberja.es/components/com_content/wmnw.html_ (http://www.polideportivoberja.es/components/com_content/wmnw.html) rn11...@yahoo.com
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Todd, what do you know about this diet thing? Janice From: Todd Tarno Sent: Friday, August 31, 2012 6:27 AM To: cos...@yahoo.com ; rboyl...@yahoo.com ; bpe...@yahoo.com ; grace...@gmail.com ; lifeisj...@live.com ; cherp...@msn.com ; tmic-list@eskimo.com ; bgunny7...@aol.com ; balmat...@aol.com Subject: [TMIC] Unidentified subject! http://srcbc.edu.ph/pmngbl.php?iere=iere
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Sorry, I didn't send out this e-mail. From: Janice Nichols jan...@centurytel.net To: Todd Tarno toddtm2...@sbcglobal.net; cos...@yahoo.com; rboyl...@yahoo.com; bpe...@yahoo.com; grace...@gmail.com; lifeisj...@live.com; cherp...@msn.com; tmic-list@eskimo.com; bgunny7...@aol.com; balmat...@aol.com Sent: Fri, August 31, 2012 9:37:25 AM Subject: Re: [TMIC] Unidentified subject! Todd, what do you know about this diet thing? Janice From: Todd Tarno Sent: Friday, August 31, 2012 6:27 AM To: cos...@yahoo.com ; rboyl...@yahoo.com ; bpe...@yahoo.com ; grace...@gmail.com ; lifeisj...@live.com ; cherp...@msn.com ; tmic-list@eskimo.com ; bgunny7...@aol.com ; balmat...@aol.com Subject: [TMIC] Unidentified subject! http://srcbc.edu.ph/pmngbl.php?iere=iere
[TMIC] Unidentified subject!
http://www.biotechpestcontrol.in/endex.php?pgbx
[TMIC] Unidentified subject!
http://diaczun.com.ar.elserver.com/order.php?lygl
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Jan I am so very glad the healing has started. I hope it continues until you are ALL healed. HAPPY THANKSGIVING TO YOU AND ALL. Patti - Wisconsin From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: Wednesday, November 24, 2010 4:34 PM To: Tina Ahern; Sherry Gillick; Paula Glanzner 61; billy joe; Darlene Bilyeu; Pat Buchanan; Nancy Patton; Suz (at home) Carpenter; Bev Tully; joann/jack; tmic-l...@eskimo.net Subject: [TMIC] Unidentified subject! Here's what I learned today.my Thanksgiving prayer has been granted!! The surgeon at the Wound Clinic let me know that I didn't qualify for Hyperbaric Chamber, but that my healing is beginning to move along at better clip! How many blessings can one 'girl' have? Family and Friends who care and health returning!! Here's hoping you all have a wonderful Thanksgiving!! and thanks for being there for me! Love, jan
[TMIC] Unidentified subject!
Here's what I learned today.my Thanksgiving prayer has been granted!! The surgeon at the Wound Clinic let me know that I didn't qualify for Hyperbaric Chamber, but that my healing is beginning to move along at better clip! How many blessings can one 'girl' have? Family and Friends who care and health returning!! Here's hoping you all have a wonderful Thanksgiving!! and thanks for being there for me! Love, jan
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http://blaine_frye.fast-man.com
[TMIC] Unidentified subject!
http://www.jkgj.mpfresh.com
[TMIC] Unidentified subject!
To Emily and her Husband. TM truely is a shock to all involved. I mean,who would ever imagine this would happen. one of my Doc's said TM was something you looked at in med school but never seen it. my neurologist said all you can do is treat the symptoms and do what you can when you can as hard as you can but if you can't then just rest until you can. He incourages physical theropy and well should because the parts effected can go to sleep,so to speak,and thats another world of hurt! tell hubby to talk with us,,you talk with us,,,we are interested more than anybody in how he is doing be it good or unpleasnt as well as how you are standing up under this new world you are in! these people have encouraged me more than I can thank them for,,just being people who truely understand what I have and am suffering. we all have the hardness of this thing and understand more than anyone elsewe live it with you! my name is John. I live in WV I am the hill-billy of the bunch ;) (computer tech for 8 years tractor driver for 5) anything before that is to old From:Emily [mailto:em...@telephonelady.com] Sent: Thursday, September 16, 2010 11:11 AM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged from the hospital last Thursday and he is now working hard at an acute rehabilitation center (3-5 hours each day). He has a very positive outlook and is “taking it one day at a time”. My question is this……is there a support group for spouses of TM? Emily
[TMIC] Unidentified subject!
My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Fw: [TMIC] Unidentified subject!
--Original Message-- From: Jackie Duval To: TMIC ReplyTo: Jackie Duval Subject: [TMIC] Unidentified subject! Sent: Sep 10, 2010 8:57 AM My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT Sent via BlackBerry by ATT
Re: [TMIC] Unidentified subject!
My right leg was/is weaker than my left also. I have had TM for over 3 years now and I know what you are saying when you feel one leg is shorter than the other.I don't think that is happening, but I catch myself feeling that way and then I really straighten up tall and the feeling goes away. I think we tend to lean one way or the other according to weaknesses.I try to always stand as straight as I can - especially when noticing the lean toward the right. Also, pain and weakness can be coming from the hamstring on the right side. Lots of stretching helps that. Hope I helped. Janice -- From: jack...@att.blackberry.net Sent: Friday, September 10, 2010 9:57 AM To: TMIC tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
RE: [TMIC] Unidentified subject!
Yes, I used to feel that way, I really did. However, I took about 3 years of Rolfing and or Massage Therapy treatments - and some of them were very painful. That really helped my legs feel and work better. In fact, I attribute my current ability to walk very well most days to all of the treatments I took. It did cost a bundle, and it did hurt a ton. However, now I don't have that feeling, I can walk quite well, and my right side seems to feel better. Although it has been 6 months since my last massage, and I can feel the thing in my body starting to reach it's tendrils out again and begin to strangle my leg and torso. Time to get going again on the massage thing. We have lost our best rolfer in town, and I am hesitant to try to find another - simply because the treatment is very intense and personal. Try massage, or as has been suggested already - stretching exercises; if you don't use it, somehow, you will lose it. Janet -Original Message- From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] Sent: September 10, 2010 7:57 AM To: TMIC Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
[TMIC] TMIC-unidentified subject
Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.
Re: [TMIC] TMIC-unidentified subject
Ain't life just great. Janice From: rn11...@yahoo.com Sent: Friday, September 10, 2010 3:29 PM To: jack...@att.blackberry.net Cc: tmic-list@eskimo.com Subject: [TMIC] TMIC-unidentified subject Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.
[TMIC] Unidentified subject!
http://puxeceji.tripod.com/qanujo.html Feol yuor libidoo gentitg hiehgr afiter our pilules! She waill groaan like carzy with yuo, after you try uor capsues! Take this taablet and ayou'll be able to teka reh as many tuimes as you watn.
[TMIC] Unidentified subject!
as of Thursday I will have a new email address. Please update your contact list to below Thanks kim kimharrison...@comcast.net
[TMIC] Unidentified subject!
http://tirakoxy.chat.ru
[TMIC] Unidentified subject!
www.buv9.usdrugs-co.com
[TMIC] Unidentified subject!
www.afg8.uspillsstore-c.com
RE: [TMIC] Unidentified subject!
CHERYL - I WONDERED THE SAME THING. I DON'T INTEND TO DO ANYTHING UNTIL I KNOW THIS IS FOR REAL. I DON'T NEED ANY COMPUTER PROBLEMS EITHER. PATTI - WISCONSIN From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Tuesday, October 20, 2009 11:28 AM To: tmic-list@eskimo.com Subject: Fw: [TMIC] Unidentified subject! Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
[TMIC] Unidentified subject!
Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
Fw: [TMIC] Unidentified subject!
Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
Re: Fw: [TMIC] Unidentified subject!
i believe this is spam... ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Tue, 10/20/09, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Fw: [TMIC] Unidentified subject! To: tmic-list@eskimo.com Date: Tuesday, October 20, 2009, 12:28 PM Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
[TMIC] Unidentified subject!
I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109
Re: [TMIC] Unidentified subject!
*I've taken it for years and no it doesn't make a difference. MS is a totally different disease process than idiopathic TM, though MS patients can certainly present with TM. * ** *Grace* On Sat, Sep 12, 2009 at 7:53 AM, Jill Z jillybean60...@yahoo.com wrote: I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109
Re: [TMIC] Unidentified subject!
I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109 Saving this! Thanks Jill! Akua --
[TMIC] Unidentified subject!
Big E
Re: [TMIC] Unidentified subject!
What about Big E?? Janice - Original Message - From: Eugene Streeter streeter...@aol.com To: tmic-list@eskimo.com Sent: Thursday, June 11, 2009 7:07 AM Subject: [TMIC] Unidentified subject! Big E
Re: [TMIC] Unidentified subject!
A warm welcome to you Lynne. Larry is right. You will find this group to be very understanding, full of love and support and nothing embarrasses us! We've pretty much talked about everything here. This is a safe haven. I hope you'll feel comfortable and just jump in with any questions or concerns you may have. Looking forward to getting to know you. Hugs, Linda (in Eagle, Idaho) - Original Message - From: Larry Thronemailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 28, 2008 10:48 AM Subject: RE: [TMIC] Unidentified subject! Lynne, As we say around here, glad you found us, sorry you had too. Welcome home. You will find this bunch wonderfully helpfull and underestanding. Don't hesitale asking any questions. You can get a lot of love and support here, all you have to do is ask. Larry in Oklahoma who is going out to mow. Date: Sun, 28 Sep 2008 06:38:39 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
[TMIC] Unidentified subject!
Thanks to all of you who replied to me. Sorry I didnt type more information in introduction, was a long weekend for me and need a few days to recover. I live in Southern Michigan. Lynne
[TMIC] Unidentified subject!
At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
RE: [TMIC] Unidentified subject!
Lynne, As we say around here, glad you found us, sorry you had too. Welcome home. You will find this bunch wonderfully helpfull and underestanding. Don't hesitale asking any questions. You can get a lot of love and support here, all you have to do is ask. Larry in Oklahoma who is going out to mow. Date: Sun, 28 Sep 2008 06:38:39 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
Re: [TMIC] Unidentified subject!
**It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
Fwd: [TMIC] Unidentified subject!
**It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---BeginMessage--- Top of the Morning! I wish all of you a Happy St. Patrick's Day. It has been extremely quiet. Has anyone out there tried any type of alternative medicine or find that any vitamins or supplements help with any symptoms? Linda in Pa **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---End Message---
RE: [TMIC] Unidentified subject!
Top o' the mornin's to yal. Southern Irish, hahaha. I was wondering if any of you know if low blood pressure can cause a spinal stroke? From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, March 16, 2008 12:15 PM To: TM Subject: [TMIC] Unidentified subject! Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
Re: [TMIC] Unidentified subject!
Things are quiet here for a little while. this happens sometimes. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Monday, March 17, 2008 8:39 PM Subject: [TMIC] Unidentified subject! Wondering if everyone's computer got stolen!! Everytime I log on nobody has anything to say. Everybody ok? Must be out running sprints! I wish we all could -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1332 - Release Date: 3/17/2008 10:48 AM
RE: [TMIC] Unidentified subject!
Everyone must be out doing the town for St. Paddy's day. Date: Mon, 17 Mar 2008 20:41:32 -0600From: [EMAIL PROTECTED]: Re: [TMIC] Unidentified subject!To: [EMAIL PROTECTED]; tmic-list@eskimo.com Things are quiet here for a little while. this happens sometimes. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Monday, March 17, 2008 8:39 PM Subject: [TMIC] Unidentified subject! Wondering if everyone's computer got stolen!! Everytime I log on nobody has anything to say. Everybody ok? Must be out running sprints! I wish we all could No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1332 - Release Date: 3/17/2008 10:48 AM
[TMIC] Unidentified subject!
Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
Re: [TMIC] Unidentified subject!
Hey yourself Steve!! Good to hear from you, and it sounds like you had a fine time celebrating Saint Pattys day. It's been a little quiet on the site - do you think everybody is STILL celebrating??? Enjoy the rest of your weekend. Linda in Idaho - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: TMmailto:tmic-list@eskimo.com Sent: Sunday, March 16, 2008 1:15 PM Subject: [TMIC] Unidentified subject! Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
Re: [TMIC] Unidentified subject!
I also take Lyrica 150mg bid for pain and burning and such. This replaced the tegratol I was taking. I have taken Lyrica for about 11/2 years and find it works much better. Prior to switching I had leg pain all the time. Now only when very tired. Lynn P (t-4-5) in RI - Original Message - From: Janet Dunn To: [EMAIL PROTECTED] ; 'TM' Sent: Monday, March 10, 2008 1:57 AM Subject: RE: [TMIC] Unidentified subject! I have found that Lyrica works very well for that, at 75mg b.i.d. I am up to 150 twice a day now, and that is even better. Janet t4-t5 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: March 9, 2008 5:58 PM To: TM Subject: [TMIC] Unidentified subject! Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa.
[TMIC] Unidentified subject!
I would like to try the Lyrica instead of the neurotine. But my drug plan says they have to authorize it before I can Get it. I'm not sure how I go about that to make sure they do not give me a problem. And say that the neurotine or generic brand that I am taking is the same or does the same and it's not as expensive. Because these drug plans are supposed to help us. But I'm sure everyone knows they seem to give us problems about the drugs we need. Especially the more costly ones. And those are the ones that seem to work best. Thank You Steve Jabs in Pa
RE: [TMIC] Unidentified subject!
Lyrica...I take 150mg 3x per day. Rob in New Jersey From: Janet Dunn [mailto:[EMAIL PROTECTED] Sent: Monday, March 10, 2008 1:57 AM To: [EMAIL PROTECTED]; 'TM' Subject: RE: [TMIC] Unidentified subject! I have found that Lyrica works very well for that, at 75mg b.i.d. I am up to 150 twice a day now, and that is even better. Janet t4-t5 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: March 9, 2008 5:58 PM To: TM Subject: [TMIC] Unidentified subject! Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa.
Re: [TMIC] Unidentified subject!
Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Cannabinoids !!
Re: [TMIC] Unidentified subject!
Hi Steve I switched from Neurontin to Lyrica six months ago. I start getting relief within 15 minutes of taking the Lyrica and it lasts longer than the Neurontin, however, it still doesn't stop all of the burning. Patti - Michigan Heather Pieter [EMAIL PROTECTED] wrote: Steve, Some people have switched to Lyrica from the Neurontin/Gabapentin. Some find it works better and some switch back to the Neurontin. I know there are other meds out there that some people use too so I'm sure they will chime in here to let you know. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Sunday, March 09, 2008 6:58 PM Subject: [TMIC] Unidentified subject! Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1322 - Release Date: 3/9/2008 12:17 PM
[TMIC] Unidentified subject!
Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa.
Re: [TMIC] Unidentified subject!
Steve, Some people have switched to Lyrica from the Neurontin/Gabapentin. Some find it works better and some switch back to the Neurontin. I know there are other meds out there that some people use too so I'm sure they will chime in here to let you know. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Sunday, March 09, 2008 6:58 PM Subject: [TMIC] Unidentified subject! Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1322 - Release Date: 3/9/2008 12:17 PM
RE: [TMIC] Unidentified subject!
I have found that Lyrica works very well for that, at 75mg b.i.d. I am up to 150 twice a day now, and that is even better. Janet t4-t5 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: March 9, 2008 5:58 PM To: TM Subject: [TMIC] Unidentified subject! Just seeing if anybody knows of a medication that works better than neurotine for the burning. (nerve pain) Thanks Steve Jabs from Pa.
RE: [TMIC] Unidentified subject!
I agree. Go to a nursing home spend a little time with some of those folks. Talk with the staff. Most of them have family, they just never go visit. Out of sight, out of mind! Date: Thu, 6 Mar 2008 23:38:14 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Unidentified subject! I agree with you Larry. Stress does kill but not only the stress, I think any major illness also makes others, not only strangers but also love ones nearest you, look at themselves and realize how vulnerable they and their own lifes' are to the unknown and it really scares them! Whenever faced with adversity of any kind comes the fight or flight response. Sorry to say, I think most people choose the flight response - our society is known as the throw away society. - Original Message -From: Larry Throne [EMAIL PROTECTED]To: [EMAIL PROTECTED], TM tmic-list@eskimo.comSent: Thursday, March 6, 2008 9:07:51 PM (GMT-0600) America/ChicagoSubject: RE: [TMIC] Unidentified subject! Steve, Sorry to hear that you've experienced marital problems. With TM or any other life altering event there is a lot of stress. Stress kills. It kills people, marriages, hope, understanding and love. Your right that being a good father is the important thing. But you've got to remember that requires taking care of your self. Have you thought about seeking help? Seeing a therapist? Is there a single parents group in your area? Your church? Many years ago I was writing a paper on persons with spinal cord injury and relationships. I don't remember the exact numbers but I was surprised to find out that when it is the male that is injured, the relationship usually ends within the first 18 months. Something like 70% of the time. But when it is the female, only about 8% of the relationships end during the same time frame. Hmm I know that doesn't help much but it does show that it may not have been you. It was the TM. Get out, find someone that cares. Your the captain of your boat. Larry in Oklahoma who is so thankful it didn't snow! From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Fri, 7 Mar 2008 00:13:02 +Subject: [TMIC] Unidentified subject! Just wondering if due to TM if anybody has had problems in there marriage. Because I got a divorce a year ago. And today my kids told me that mommy has a boyfriend. And it hurts really bad, But there's nothing I can do about it! I know i'm feeling sorry for myself. I've gottin good at that over the past years! But as long as my kids are happy and i'm a good father that is the important part. Right? Steve Jabs from Pa
RE: [TMIC] Unidentified subject!
Steve, Sorry to hear that you've experienced marital problems. With TM or any other life altering event there is a lot of stress. Stress kills. It kills people, marriages, hope, understanding and love. Your right that being a good father is the important thing. But you've got to remember that requires taking care of your self. Have you thought about seeking help? Seeing a therapist? Is there a single parents group in your area? Your church? Many years ago I was writing a paper on persons with spinal cord injury and relationships. I don't remember the exact numbers but I was surprised to find out that when it is the male that is injured, the relationship usually ends within the first 18 months. Something like 70% of the time. But when it is the female, only about 8% of the relationships end during the same time frame. Hmm I know that doesn't help much but it does show that it may not have been you. It was the TM. Get out, find someone that cares. Your the captain of your boat. Larry in Oklahoma who is so thankful it didn't snow! From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Fri, 7 Mar 2008 00:13:02 +Subject: [TMIC] Unidentified subject! Just wondering if due to TM if anybody has had problems in there marriage. Because I got a divorce a year ago. And today my kids told me that mommy has a boyfriend. And it hurts really bad, But there's nothing I can do about it! I know i'm feeling sorry for myself. I've gottin good at that over the past years! But as long as my kids are happy and i'm a good father that is the important part. Right? Steve Jabs from Pa
Re: [TMIC] Unidentified subject!
I agree with you Larry. Stress does kill but not only the stress, I think any major illness also makes others, not only strangers but also love ones nearest you, look at themselves and realize how vulnerable they and their own lifes' are to the unknown and it really scares them! Whenever faced with adversity of any kind comes the fight or flight response. Sorry to say, I think most people choose the flight response - our society is known as the throw away society. - Original Message - From: Larry Throne [EMAIL PROTECTED] To: [EMAIL PROTECTED], TM tmic-list@eskimo.com Sent: Thursday, March 6, 2008 9:07:51 PM (GMT-0600) America/Chicago Subject: RE: [TMIC] Unidentified subject! Steve, Sorry to hear that you've experienced marital problems. With TM or any other life altering event there is a lot of stress. Stress kills. It kills people, marriages, hope, understanding and love. Your right that being a good father is the important thing. But you've got to remember that requires taking care of your self. Have you thought about seeking help? Seeing a therapist? Is there a single parents group in your area? Your church? Many years ago I was writing a paper on persons with spinal cord injury and relationships. I don't remember the exact numbers but I was surprised to find out that when it is the male that is injured, the relationship usually ends within the first 18 months. Something like 70% of the time. But when it is the female, only about 8% of the relationships end during the same time frame. Hmm I know that doesn't help much but it does show that it may not have been you. It was the TM. Get out, find someone that cares. Your the captain of your boat. Larry in Oklahoma who is so thankful it didn't snow! From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: Fri, 7 Mar 2008 00:13:02 + Subject: [TMIC] Unidentified subject! Just wondering if due to TM if anybody has had problems in there marriage. Because I got a divorce a year ago. And today my kids told me that mommy has a boyfriend. And it hurts really bad, But there's nothing I can do about it! I know i'm feeling sorry for myself. I've gottin good at that over the past years! But as long as my kids are happy and i'm a good father that is the important part. Right? Steve Jabs from Pa
Re: [TMIC] Unidentified subject!
Boy of boy Candis, you hit the nail right on the head. Fight of Flight response, for sure, and I think you're also right about most people choosing the flight response. Years ago I used to go to Lupus group meetings at one of the hospitals in downtown Seattle. My husband actually went with me once, and the next time I went all the ladies came up to me and said you're still married? - ALL of their husbands left! There were about 45 or so of us who went regularly and we were all in our 30's and 40's. I was absolutely shocked. Linda in Eagle, Idaho where it is actually springtime for the last 2 weeks. Yeah - Original Message - From: CANDIS KALLEYmailto:[EMAIL PROTECTED] To: Larry Thronemailto:[EMAIL PROTECTED] Cc: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; TMmailto:tmic-list@eskimo.com Sent: Thursday, March 06, 2008 9:38 PM Subject: Re: [TMIC] Unidentified subject! I agree with you Larry. Stress does kill but not only the stress, I think any major illness also makes others, not only strangers but also love ones nearest you, look at themselves and realize how vulnerable they and their own lifes' are to the unknown and it really scares them! Whenever faced with adversity of any kind comes the fight or flight response. Sorry to say, I think most people choose the flight response - our society is known as the throw away society. - Original Message - From: Larry Throne [EMAIL PROTECTED] To: [EMAIL PROTECTED], TM tmic-list@eskimo.com Sent: Thursday, March 6, 2008 9:07:51 PM (GMT-0600) America/Chicago Subject: RE: [TMIC] Unidentified subject! Steve, Sorry to hear that you've experienced marital problems. With TM or any other life altering event there is a lot of stress. Stress kills. It kills people, marriages, hope, understanding and love. Your right that being a good father is the important thing. But you've got to remember that requires taking care of your self. Have you thought about seeking help? Seeing a therapist? Is there a single parents group in your area? Your church? Many years ago I was writing a paper on persons with spinal cord injury and relationships. I don't remember the exact numbers but I was surprised to find out that when it is the male that is injured, the relationship usually ends within the first 18 months. Something like 70% of the time. But when it is the female, only about 8% of the relationships end during the same time frame. Hmm I know that doesn't help much but it does show that it may not have been you. It was the TM. Get out, find someone that cares. Your the captain of your boat. Larry in Oklahoma who is so thankful it didn't snow! From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: Fri, 7 Mar 2008 00:13:02 + Subject: [TMIC] Unidentified subject! Just wondering if due to TM if anybody has had problems in there marriage. Because I got a divorce a year ago. And today my kids told me that mommy has a boyfriend. And it hurts really bad, But there's nothing I can do about it! I know i'm feeling sorry for myself. I've gottin good at that over the past years! But as long as my kids are happy and i'm a good father that is the important part. Right? Steve Jabs from Pa
Re: [TMIC] Unidentified subject!
Steve This is great news that gives us all reason to celebrate. Thanks for sharing it with us. Patti - Michigan [EMAIL PROTECTED] wrote: I found out good news today. I had heart problems due to a form of vasculitis on top of the TM. Had an echo done on my heart today. Doctor said my heart is back to normal and he is going to ween me off the heart meds. One thing down now for the next. Everyone out there hey, We have to be positive about things it pays off in the long run!! Hope everyone is having a good week Steve Jabs from Pa
Re: [TMIC] Unidentified subject! for all
Hi Steven, It's the one year anniversary of my TM attack and I was affected at C4-C5. I guess it would qualify as a semi acute attack as my symptoms developed slowly and I never lost mobility or even urinary/bowel control though it does take more effort these days, what I did develop was neuropathic pain from the chest down: feels like I'm being electrocuted 24/7. My pain has never improved and is not likely to and my balance is poor. To avoid burning sensation I have given up all soda and limit juice to a small cup a day. I find I can handle coffee if I drink a lot of water. I also take vitamin C at night to acidify the urine and reduce my chances of developing an infection. Hope this helps.. Mindy the Artist On Mar 2, 2008, at 9:31 PM, Larry Throne wrote: Welcome to the family Steven! You'll find a lot of love and understanding here. Where are you from? Maryland? From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: Mon, 3 Mar 2008 00:06:18 + Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM. [EMAIL PROTECTED] Mindy King www.chairweaver.com (740) 662-2001
Re: [TMIC] Unidentified subject! for all
Mindy, I have exactly the same affliction as you do !! C4-C5, right side of spinal cord, pain from shoulders down, Left side worse (secondary to Brown- Sequard Syndrome- Google if need be)., handa have the worst pain. Poor balance, decreased proprioception (I can't type as fast as before). Wow !! Frank
Re: [TMIC] Unidentified subject! for all
I also have this electric pain and I have had it long before my dx of TM. I tell doctors about this and they just look at me like I am an idiot. I've not hear of other TM'rs talk about this type of pain before. It is my single most disturbing aspect of the condition. This week, while I was working with students (I teach) I had an intense shock hit me in my lower back and across my gluts left and right from my spine - it hit so hard that I yelled out - which shocked everyone - I was about to explain when it hit again - and again and agian - all i could do was sit down and griemence. I usually get these in my chest and I've had them since about 19years of age. my neuro psyc says that I am a hypercondriac. - well, call me whatever - just get rid of the d*( pain! Have you learned WHY the electric pain - obviously no one has told you how to get rid of it - but i sure would like to find that out too thanks for sharing Lawrence King [EMAIL PROTECTED] wrote: Hi Steven, It's the one year anniversary of my TM attack and I was affected at C4-C5. I guess it would qualify as a semi acute attack as my symptoms developed slowly and I never lost mobility or even urinary/bowel control though it does take more effort these days, what I did develop was neuropathic pain from the chest down: feels like I'm being electrocuted 24/7. My pain has never improved and is not likely to and my balance is poor. To avoid burning sensation I have given up all soda and limit juice to a small cup a day. I find I can handle coffee if I drink a lot of water. I also take vitamin C at night to acidify the urine and reduce my chances of developing an infection. Hope this helps.. Mindy the Artist On Mar 2, 2008, at 9:31 PM, Larry Throne wrote: Welcome to the family Steven! You'll find a lot of love and understanding here. Where are you from? Maryland? From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: Mon, 3 Mar 2008 00:06:18 + Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM.[EMAIL PROTECTED] Mindy King www.chairweaver.com (740) 662-2001 - Never miss a thing. Make Yahoo your homepage.
[TMIC] Unidentified subject!
I found out good news today. I had heart problems due to a form of vasculitis on top of the TM. Had an echo done on my heart today. Doctor said my heart is back to normal and he is going to ween me off the heart meds. One thing down now for the next. Everyone out there hey, We have to be positive about things it pays off in the long run!! Hope everyone is having a good week Steve Jabs from Pa
RE: [TMIC] Unidentified subject! for all
I'm at C4-C5 too. Regarding the typing, I use voice recognition software (Dragon Naturally Speaking) It allows me to do my job without missing a beat. Rick B Date: Tue, 4 Mar 2008 16:20:12 -0500 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! for all Mindy, I have exactly the same affliction as you do !! C4-C5, right side of spinal cord, pain from shoulders down, Left side worse (secondary to Brown- Sequard Syndrome- Google if need be)., handa have the worst pain. Poor balance, decreased proprioception (I can't type as fast as before). Wow !! Frank _ Shed those extra pounds with MSN and The Biggest Loser! http://biggestloser.msn.com/
Re: [TMIC] Unidentified subject!
Hello Steven, Welcome to 'the family'. After 5 years you probably have a lot of questions so ask away, we're all ears and ready to help. Ella in Ohio **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
[TMIC] Unidentified subject!
My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM.[EMAIL PROTECTED]
RE: [TMIC] Unidentified subject!
Welcome to the family Steven! You'll find a lot of love and understanding here. Where are you from? Maryland? From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Mon, 3 Mar 2008 00:06:18 +Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM.[EMAIL PROTECTED]
Re: [TMIC] Unidentified subject!
Hi Steven, It is good to have you write although having TM is the reason you did so. I, too, am affected from my chest down (I think my lesion is at C-3) but did not lose my breathing. My neurologist said my lesion location was very close to having put me on a ventilator. My bladder also has been affected but is manageable. I used a cane briefly but no longer do. April, 2004 was my onset date. I'm sure you will meet others on this list with various degrees of symptoms-I consider myself very fortunate compared to several. I, too have the burning you spoke of and also have fatigue. We are glad you wrote. Gary in MIchigan - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, March 02, 2008 7:06 PM Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM. [EMAIL PROTECTED]
Re: [TMIC] Unidentified subject!
Hi Steven, Welcome to the TM Family I'm glad you found us, and I think you will find that we all have a lot in common. I have had TM for 6 years now and was also affected from my chest down, lesions at C 4,5 6. I have gotten most of the feeling back and I do use a cane. I have bladder problems too - I have to self-cath several times a day. I still have great hopes that I won't have to do that forever! And that burning - isn't it awful. If I might ask, where are your lesions and what medications do you take to help with the symptoms you are dealing with? You were very fortunate to be treated by Dr. Kerr. Do you live close enough that you are still able to see him on a regular basis? I'm just full of questions. We're glad you wrote and looking forward to hearing from you soon. Linda in Idaho - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, March 02, 2008 8:28 PM Subject: Re: [TMIC] Unidentified subject! Hi Steven, It is good to have you write although having TM is the reason you did so. I, too, am affected from my chest down (I think my lesion is at C-3) but did not lose my breathing. My neurologist said my lesion location was very close to having put me on a ventilator. My bladder also has been affected but is manageable. I used a cane briefly but no longer do. April, 2004 was my onset date. I'm sure you will meet others on this list with various degrees of symptoms-I consider myself very fortunate compared to several. I, too have the burning you spoke of and also have fatigue. We are glad you wrote. Gary in MIchigan - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, March 02, 2008 7:06 PM Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM. [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
[TMIC] Unidentified subject!
Hi Everyone, Has anyone ever taken the vaccination for yellow fever? I am planning a trip to Brazil and hear there is an outbreak of yellow fever there. I am so frustrated, I don't know what to do. Thanks guys, Tobe Brooklyn NY - Never miss a thing. Make Yahoo your homepage.
Re: [TMIC] Unidentified subject!
sorry everyone for the duplicate posts. have never had that happen before ??? Linda - Original Message - From: L T CHERPESKImailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com ; randy rankinmailto:[EMAIL PROTECTED] ; L T CHERPESKImailto:[EMAIL PROTECTED] Sent: Thursday, November 01, 2007 9:30 PM Subject: Re: [TMIC] Unidentified subject! Hi Randy, I hope everything went well with all of the tests you had Monday. When you feel up to it, please post and let us know how you are. You're in our thoughts. Linda - Original Message - From: L T CHERPESKImailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com ; randy rankinmailto:[EMAIL PROTECTED] Sent: Saturday, October 27, 2007 11:13 PM Subject: Re: [TMIC] Unidentified subject! Hi Randy You are in my thoughts and prayers. I know it's hard, but try to remember to relax. And let us know how everything goes. We're all here for you. Linda - Original Message - From: randy rankinmailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, October 27, 2007 6:46 PM Subject: [TMIC] Unidentified subject! I go for several tests on monday - CT/MRi of lumbar, brain check, lumbar pucture - always hate going through all these things but my neuro things i need to do it - so keep me in your thoughts/prayers __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] Unidentified subject!
Hi Randy, I hope everything went well with all of the tests you had Monday. When you feel up to it, please post and let us know how you are. You're in our thoughts. Linda - Original Message - From: L T CHERPESKImailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com ; randy rankinmailto:[EMAIL PROTECTED] Sent: Saturday, October 27, 2007 11:13 PM Subject: Re: [TMIC] Unidentified subject! Hi Randy You are in my thoughts and prayers. I know it's hard, but try to remember to relax. And let us know how everything goes. We're all here for you. Linda - Original Message - From: randy rankinmailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, October 27, 2007 6:46 PM Subject: [TMIC] Unidentified subject! I go for several tests on monday - CT/MRi of lumbar, brain check, lumbar pucture - always hate going through all these things but my neuro things i need to do it - so keep me in your thoughts/prayers __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[TMIC] Unidentified subject!
I go for several tests on monday - CT/MRi of lumbar, brain check, lumbar pucture - always hate going through all these things but my neuro things i need to do it - so keep me in your thoughts/prayers __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] Unidentified subject!
Hi Randy You are in my thoughts and prayers. I know it's hard, but try to remember to relax. And let us know how everything goes. We're all here for you. Linda - Original Message - From: randy rankinmailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, October 27, 2007 6:46 PM Subject: [TMIC] Unidentified subject! I go for several tests on monday - CT/MRi of lumbar, brain check, lumbar pucture - always hate going through all these things but my neuro things i need to do it - so keep me in your thoughts/prayers __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] Unidentified subject!
Frank, I used to love Amways products. Soap, cleaning aids, just everything. Their degreaser was fantastic. Bought it for years, But once we moved, couldn't find a salesman. I'd buy it in a heartbeat if I knew where to find it. Grace
Re: [TMIC] Unidentified subject!
I'd buy it in a heartbeat if I knew where to find it. Grace, Try the white pages, under Amway. Or try the Amway Web Site F
Re: [TMIC] Unidentified subject!
You scare the heck out of me! Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Unidentified subject!
OK, I apologize for being so hasty for answering before even reading what all the talk was about. I really am sorry...I was recently called a syndrome all on my own and maybe I am. What is the name of the product, I missed the initial email? Peace, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
[TMIC] Unidentified subject!
i am a 26 year old guy who wants to talk (preferebly) to a female. I was 20 when i was stricken with TM. I managed to graduate from college in 5 years with a B.S. in Psychology. I'm not having much luck finding a job. The daily struggles I have accepted, but sometimes I get frustrated. Please help _ Discover sweet stuff waiting for you at the Messenger Cafe. Claim your treat today! http://www.cafemessenger.com/info/info_sweetstuff.html?ocid=TXT_TAGHM_SeptHMtagline2
Re: [TMIC] Unidentified subject!
Hello Robert everybody. I have been wanting to talk to you all about this topic Robert brought up. As you know, I do not have TM, I joined this list because my closest friend has it. I have sarcoidosis and very bad arthritis, and I am practically housebound. I haven't been able to go out to work since 1981, and have been forced to make a living from home (sitting down). I tried a lot of different things, including writing for magazines, writing books, and I had a mail order business for 25 years. But I didn't make that much money until I started working on the internet about 9 years ago. It took me a while to figure it all out, but now I am making almost $10,000 a month on the web. I would be very happy to help any of you get a good business started, and teach you exactly how to do it. I'm a very good sponsor, and very sensitive to your situation since I am disabled too. I don't know how some of you live on disability payments, that wouldn't even be enough to pay my rent. I have been doing more than one business, but one is *really* hot right now, so I am concentrating on it. To come in the regular way, where you would earn a minimum of $500 for each person you bring in, the cost to get started would be $720. If you cannot swing that, I do need some helpers, people to make phone calls for me, to invite guests to a live call where they can learn about the opportunity. I already have two helpers, but I can use an unlimited number. I pay a commission of 50% of whatever the person pays me to come in -- so that would be $250, $750 or $1750 for you when someone you find signs up with me. You wouldn't have to pay anything to be my helper, but you would have to have a flat-rate long distance plan, as you'll be calling people all over north America. The best one I could find was from Sprint, only $20 a month for unlimited north American calls. If you don't like making phone calls, I have a couple other businesses where you wouldn't have to do that, but I wouldn't be able to bring you into any of those for no upfront money. But I'll be very happy to help anyone who would like to get a good internet business going -- If you are interested, please drop me a line at [EMAIL PROTECTED] . take care -- Michelle - Original Message - From: robert hennessy [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, August 31, 2007 5:18 PM Subject: [TMIC] Unidentified subject! i am a 26 year old guy who wants to talk (preferebly) to a female. I was 20 when i was stricken with TM. I managed to graduate from college in 5 years with a B.S. in Psychology. I'm not having much luck finding a job. The daily struggles I have accepted, but sometimes I get frustrated. Please help _
