After my injury I sweat uncontrollably day and night. Back in 1975 my
sister and cousin and I went to visit my other sister and cousin in Saranac
Lake,
NY in February driving trough a blizzard to get there, the only source of
heat they had was a pot belly stove in a rental apartment. I slept
Hi Everybody,
If any of you are the slightest Michael Jackson fan or were you MUST
see This Is It and you must see it on the big screen - worth every cent+
It is film footage of months and month of rehearsal for his up coming
concert. It is not all about Jackson singing and
I need info or suggestions about what kind of mattress to purchase. 36 x
84 in PA
I have a roho mattress got to roho.com it set me back $2,700 ~ Bobbie
Lately if I begin talking I be come faint.
I get very dizzy while getting dressed, as I'm being turned from side to
side, and when I first sit up away from bed in the morning. I lean forward,
long sitting, till I touch my toes, this is to stretch out my back -- then I
sit up balanced and
I don't know, but what I do know is that after 10 years I finally got heavy
enough to develop a quad belly.
Welcome to the club and all it's lovely side benefits :)-
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany,
Hi Everybody,
I'm in the market to buy a GOOD digital camera not exceeding $225
like the Nikon L 100 I need guidance and pointers - do's don'ts. I can't
handle the skinny, skinny digital light cameras. I'm thinking of mounting the
camera on a trek tech OPTERA 460 pro
Bobbie Humphreys
Hi All,
I just heard on the news that Michael Jackson passed away after being
rushed to the hospital. I believe he had a heat attack, he was only 50. I
thought he was an amazing entertainer and never gave much thought of numerous
allegations. He never had a normal childhood or life and it
_Click here: Denville, New Jersey - Wikipedia, the free encyclopedia_
(http://en.wikipedia.org/wiki/Denville,_New_Jersey)
Hi All,
I've been hearing a lot of stories of not so nice people they have been
encountering, I'd like to tell you about my town Denville, New Jersey in
northern
Hi All,
I've been hearing a lot of stories of not so nice people they have been
encountering, I'd like to tell you about my town Denville, New Jersey in
northern NJ. Everybody goes out of their way to be nice and extremely helpful
like; I was crossing the street on a cross walk and this guy
I also need to get a second phone for an indeterminate amount of time. Any
suggestions?
Track phones which are pre pay, i only spend $15 every 90 days if i need
more minutes i just add them. ~ Bobbie
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Hi All,
The America Medical Association (AMA) is gathering this week to discuss
many things. One subject they voted on was that obesity is NOT a
disability, which I concur.
What do all of you think about this subject? ~ Bobbie
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Hi All,
A quad college friend of mine died when his chair got stuck on ice
when he was getting out of his van, he froze to death. This was back in the
80's pre cell phones and in Nevada at night. Bobbie
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fingertips.
I never wear pants because of the seams in the back. I ONLY wear skirts all
year round and I live in New Jersey, in the winter I wear thicker heavier
fabric skirts. The skirts are made from a pattern my Mom and I made up many
many years ago. They have an elastic waist with a yoke panel on the
What is written below is exactly the treatment plan I did for a very large
stage 3 ugly wound on my hip and it completely healed in 6 months PLUS off
loading. ~ Bobbie
...this time when he was in the hospital they discovered he needed a lot
more protein than what he was getting in his diet.
Hello All,
I recently got an email from a friend who happens to be a nun on
wheels. Anyway she sent me a message through Tagged and I responded to her
and unknowingly to me inadvertently Tagged EVERYBODY in my entire address
book on my computer. I was VERY upset at this intrusion on my
Hi All,
The trip to Saratoga from where we live only takes 3 1/2 hours, my 79
year old Mother just drove it yesterday alone, she drives up there few times
a year. It is VERY HARD to find a place that has a hospital bed and I
emailed them about renting a trapeze from a local surgical supply
Hello my friends,
You are the ONLY one's who will understand why I am upset. I realize
how very lucky I am living in an apartment for the past 26 years and have a
van that I can drive since 1980 and most of all my sweet Pete who is not only
the love of my life, my best friend but also my
Hi All,
Do you guys remember me telling you about a guy named Matt, C 4,5 quad
5 yrs post, whom I had meet while peer counseling and we became fast
friends. And that back in December 2008 he was running away to move from New
Jersey to Springfield, Illinois with a woman he had met on-line
So, I have survived 37 years as a quad - I guess I'm lucky?
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey
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web. Get the Radio Toolbar!
Work I've done as a C 4,5,6 switchboard operator, motivational speaker,
retail sales, peer councilor, meditation instructor
I want to ask what a quadriplegic person can work after his injury to
continue his life as a normal person.
What kind of work?
**Hurry! April 15th is
The Medical Profession Speaks out on the Financial Bail-Out Package
The allergists voted to scratch it, and the dermatologists advised not to
make any rash moves.
The gastroenterologists had sort of a gut feeling about it, but the
neurologists thought the Administration had a lot of nerve,
Why was I injured? This is a heavy duty question, but I love a challenge --
so here I go. Well, my parents separated 5 days after my accident (Easter) but
that was bound to happen anyway so I don't think that was it. I truly believe
that all my niece's and nephew's are better people because of
OK, so you remember we were discussing how to manage delegating food prep?
Well, here is a debate I came across -- help me out here people. This is how I
always made my P B J sandwich ~ first you put butter on a slice of twelve
grain bread, next you put peanut butter on top of the butter, then
Hi All,
OK, I have a question about food preparation. Let's say you'd like a
peanut butter and jelly sandwich (or another kind of sandwich) that you can't
make. Do you just ask for that sandwich and except it as it is made by the
person
making it? Or do you try and instruct how you prefer
Hi All,
How do you guys wake up in the morning when your still lying in bed
waiting for someone to get you up? I have to wait 2 to 3 hours each morning
from
when I wake up till I'm up in my chair.
Bobbie
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steps!
I can't fall a sleep till 12:00 at night. I have to go to bed at 9:00pm. So I
have a long night but I sleep till 8:00am when my help comes. I'm tried all
the time.
I get into bed 7:30-8:00pm and go to sleep around 11:30pm I'll watch TV,
read or write. I wake up 8:00-9:00am then I have to
I don't know why but I thought of this, I have only had one UTI since June
2008! I had a very bad open bed sore and was treating it with topical
antibiotic, I'm sure that's the reason. My sore is 100% healed now, yeah!~
Bobbie
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Hello All,
I'm looking for Kathleen Welsh (or Walsh) from New Jersey who was born
in 1955 and broke her neck in a motorcycle accident in 1974 or 1975 after
moving to Connecticut.
Bobbie
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steps!
What is your experience and opinion of the P.I.E (bowel) machine?
What do the quad forum peeps feel? Would you mind asking?
Where would I find one on the secondary market?
**Great Deals on Dell Laptops. Starting at $499.
Below is an article I saw in Action magazine written by Amy Meisner Threet,
MSW
A Psychological thriller explores the subculture of people who
wannabe disabled.
Quid Pro Quo, a new film that opens in select cities this summer, explores
a dark side of the disabled world. It's
Hi All,
Happy New Year! Dose anybody live in Springfield, IL or nearby?
Bobbie
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steps!
I live in NW, IN. About 30-40 miles away from Chicago. Is there a reason you
asked about Springfield?
Yes, Linda, there is a very specific reason and it's a long story -- here it
goes. I'm a peer counselor here at Kessler in New Jersey and about 5 years ago
I met this guy Matt, newly
Hi All,
I was just wondering what you all are doing Thanksgiving? Pete and I are
going out to eat even though we were asked over at an Aunt uncles house. We
have been there before but the parking was a hassle, I have to go all the way
around the house to get to the lowest part of the
The Otherside of the Mountain Part 1 Part 2 skiing accident back in 1955
Jill Kinmont-Booth
Joni Diving accident back in 1967 Both stories about quad women
Also a good book My Soul Purpose by Hidi Van Phlise(sp) another quad women
stunt movie accident
**One site has it all.
Hi All,
Dose anybody know of any organization that caterer's to veterans with a
SCI? I do know about Help Hospitalized Veterans (HHV).
Bobbie
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Anybody here vote for Obama? I haven't seen any posts to that effect. I did,
I volunteered a lot for him including election day.
Bobbie
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Holiday needs. Search Now.
To those who live in cold country,
My VNA nurse was in this morning and took my BP with her very cold
BP cuff, it's so cold because she leaves it in her car overnight. So, today i
was on a mission to find a solution to keeping the cuff warm while it stays in
the car in the winter. i
Hi All,
26 years ago today I met Pete in a biker bar, we've been together ever
since. Best dam day of my life. 10 years later we got married.
Below is our story of how we met.
I was 26, 9 years post, when I went into a local biker dive bar, rolling
distance from my parents house, to
I FEEL SO SICK STILL, VERY WEAK, NO APPETITE. I HAVE TO KNOW IF ANYONE ELSE
HAS GONE THRU THIS? AND FOR ANYONE ELSE PLS TELL ME AFTER THEIR OWN HOSPITAL
STAYS HOW LONG WAS IT BEFORE THEY EVEN FELT BETTER? I PLANNED TO GO BK TO WK
THIS WEEK, BUT WAS TO WEAK TO EVEN TRY.
Veranda,
I
unsubscribe
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OK - I have a question. Where is your coffee pot located? Mine is too high
for me to put the water in. Usually have my aide set up the pot before she
leaves. My cabinets are standard height.
We live in an accessible apartment, so the cabinets are lower and it's all
clear under the
I'm paying $3.40 in New Jersey What are you guys paying?
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Hi all,
I'm so excited about what I just did a had to share it with you guys
because I know that you all will understand. I brewed myself a cup of coffee.
It's a really miserable rainy day out here and I came home alone, and I
wanted to have a cup of coffee. I poured water in the
Hello all,
Does anybody here play game Wii? I was wondering if us quads are able to
handle the game physically?
Bobbie
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Hello all dragon people,
I just got my Dragon dictate up and running. I am enjoying it very much as a
matter of fact, I am using it right now to write this e-mail. The headset
seems to be a bit tight and I was wondering if any of you had any solutions to
loosening up the tightness of the
For me, the pain that was described was mostly alleviated after my
gallbladder was removed.
I also had my gallbladder removed AFTER I had a stroke and was unable to
speak. After it was removed the stroke symptoms alleviated. That was insanely
scary.
PAY ATTENTION TO YOUR WEIRD PAIN, IT'S
Ladies,
I was 17 when I was injured and didn't get my period for 4 months
because your body is in shock-I was told. Then I had normal, for me, periods.
When
I turned 40 I started have crying spells and being extremely exasperated, I
found out it was pre menopause. I had it for 10 years!
Hi All,
Dose it bother anybody else when someone else drops like sissor's on a
tile floor? It goes right down my spine. Even someone crumpling up a piece of
paper.
Bobbie
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If you are interested in learning more about using meditation for pain
management ~ read on.
OK, I'm new at this and I'm not sure how effective it will be through
email. But I'm willing if any of you are. It's worth a try.
Please read this section of the email before closing your
Hi All,
I've been out of the loop for a while. I just finished a six month
training program and am now a certified meditation instructor. Me and nine
other
disabled people were trained paid for by a grant from Kessler Institute. I
really love it. It has helped me with my pain level. If
Exactly, what does a Mediation Instructor do? I mean, what do you mediate?
Well, Naomi, that's a rather large question. A meditation instructor would
guide their students through a journey of a thought process. I would teach
different techniques of meditation, there are around 20
I went through the check out and the clerk decided to do me a favor and hang
my grocery bag off my JOY STICK! Oh boy! But she didn't know what the knob was
for.
Anybody else have any grocery store stories?
Bobbie
**Create a Home Theater Like the Pros. Watch the video
To those who use dragon Dictate.
As my very first time at using these programs, which should I buy?
Dragon Professional $200 or Home addition 9 $100
Bobbie
**Start the year off right. Easy ways to stay in shape.
Did Medicare cover this wheelchair and how long did you have your other
wheelchair.
Medicaid paid for it. My old one lasted me 12 years.
**Start the year off right. Easy ways to stay in shape.
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489
I got a brand new power chair 2006 my very first tilt/recline. I'm injured 34
years and this was a big treat for me.
This power chair cost $25,000!! I know vent chair
that tilt/recline/stand-up/dance and have 4-wheeldrive cost a whole lot more.
How much do some of
Hi all,
Between dragon and naturally speaking which do you guys like better? I
have windows xp and a LOT of space I've never used either of these before.
I'll have no background noise at all. Is there a dragon 1 or 2 version? If so
which is better and why.
? Thanks for your help, any input
What is it that when an ab open's a door they think two doors are better THEN
they try and stretch their bodies to hold both doors and now it is impossible
to get through the door? All I need is one door open, a very simple easy
task. Or they very nicely open the door and stand leaning against
I got Pete, for our anniversary, a wheelchair! You know, one of those super
duper comfortable office chairs with swivels and rolls around. He bought me a
diamond and safire ring. Pete is also a BIG New Jersey Devil's fan. They just
built a brand new rink that hasn't even opened yet. I'm going
Hi All,
Pete I met when I was 9 years post. I'm C 5,6 motor cross jumping
accident 1973. We just celebrated 15 years married 25 living together. Pete
has
been my soul care giver 24/7 for well over 20 years.
I'm mentioning this to those of you not yet in a relationship. There is
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Hi All,
I love to walk to my local Bakery to get a cup of coffee. They are
always so nice to me and fix my coffee just the way I like it. I even go in the
winter. pouring rain is the only thing that stops me.
Do any of you have a cafe or Bakery that you go to often where they know
you
Hi Guys,
I've been taking Nurotin(sp) for about six months now for nerve pain.
The past week I've been getting dizzy when I turn in bed when getting dressed,
sitting up in bed, reclining in my chair and even if I sit forward like over a
table. Now none of this is every time but it's
Hi All,
I'm looking, for a friend of mine, for a used environmental control unit.
Anybody have a voice activated one lying around? Or know where I can find one?
Bobbie
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Where is the best place to but Invacare tires and armrest pads online?
Check on Ebay, you'll be surprised, for ANY parts for that matter. ~Bobbie
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Hi Everybody,
A friend of mine, Richard Holicky author of Roll Models (which,
incidentally, is available for free through the Christopher Reeve Foundation
web
site) is looking for people who are living on wheels to participate in his
latest project. Read on if your interested.
To all quads who drive,
I'm 34 years post and have been driving 33 of those years plus one year
before my accident on a motorcycle.
I'm in a new power chair just about one year and am still getting use to my
balance and driving. I'm C-5,6,7 My area where I live is fast paced and
people
This note is for Jim Lubin,
Please contact me personally, I'd like to discuss something with you.
[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED])
Bobbie
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Hi All,
My 34th anniversary is April 17th and I want to really celebrate this
year. I need some suggestions. So, any good, crazy, fun idea's?
Bobbie
** See what's free at http://www.aol.com.
Does anyone have sex with an indwelling catheter?
This sounds risky to me... am I the only one? It could be pulled out or cause
infection... yikes!
Oh yeah it can be pulled out, it happened to me. Larry pulled it out by
accident then drove me to the ER for then to put a new one back in,
Would you volunteer your life for the other 6 billion of us in the world?
Yep, in a heart beat. If I had THAT choice and not live another day as a
quad?
Bobbie
** See what's free at http://www.aol.com.
Hi people,
I started taking gabenpentin (sp) for nerve pain. It works great, all
1,200mg per day of it, but I get some wild crazy dreams and nightmare's. This
morning I woke believing I had leach's all over my body.
Anybody else take this drug and get theses dreams? I'm also wondering
I started practicing Buddhism and chanting
Me too. I've ALWAYS been a very, very positive person. My whole family is,
I was brought up with a got to be a way attitude. It has helped my immensely
through this SCI challenge I have found my self in almost 34 years now. Don't
get me wrong, I
Were you on a Stryker Frame?
Yes, I was on/in one about six weeks in 1973. Then I had neck fusion
surgery and was put in a circle bed. That hospital room was like a circus.
Before I
was on the Stryker frame with the lovely tongs in my skull I was on a regular
bed that was propped up by my
Hi all poll people,
I had to share this true story with you. I can't believe how much time
Walter spent in the hospital and rehab. Boy oh boy have times changed.
Bobbie
Excerpt from the book “From There to Here” No Limits Publication 2004
My Rides in Hearses
Walter Kimes
C 5,6
My favorite weather conditions are 65 partly sunny with a light breeze. I
LOVE very windy days if it's 80 and up.
Bobbie : )-
Hi All,
Somebody on this list was asking for the lowest seating system out
there. I asked my guys and they told me it's Motion Concepts. They DON'T sell
wheelchairs, they only sell the seating system. Call 1-888-433-6818 and ask for
a
rep in your area. Or go to www.motionconcepets.com
What happens when we die what about burial or funeral expenses, I hear it
costs a lot these days.
Well, what I did, is since I can't get life insurance, I went to my local
funeral home and set up an account. Basically, I picked out everything and made
my own arrangements and I'm making
Hi All,
Anybody out there taking Neurontin/gagapentin for nerve pain? What side
affects do you have if any? I just started taking it.
Bobbie
I've had roho high profile for over 9 years but if low is just as good, I may
get one because it's so hard getting legs under restaurant tables and every
inch lower would help.
Stay with the high profile, it's working for you. And get a low rider power
chair. Research, research,
Hi guys,
A close friend of mine was just fine two weeks ago. She gad been
complaining about her back bothering her. Her back pain got SO BAD that she
went to
the ER, something she herself, has never done. After being admitted and put on
IV pain meds and going for MRI's X-rays CAT scans.
Hi All,
OK, check this out. I read the editor's note in United Spinal Association
and he had a plea for us all to do a random act of kindness, and to write him
about it. So, this is something that REALLY happened to me and I'm enclosing
it with my random act of kindness.
Let me know what
Hey Everybody,
Would you guys mind if I send a few things I've written? Or when I
write something new, which I'm always doing, would you be interested in reading
and revising or giving input to my short stories, poems or essays?
Bobbie
Hi All
OK, I rewrote this. let me know if it's any better. Thanks guys ~
Bobbie ~
A Love That Inspires
by Bobbie Humphreys
Imagine a kind of
Hi all,
I just wrote this short skit I don't know what to call it, for a writing
class. Could you read it and tell me what dose and doesn't work in it. Either
a word or phrase.
Thanks, Bobbie
A Celebration
Is anyone aware of the efficacy of Cymbalta or Lyrica, especially in regards
to neuropathic pain? Any opinion or experiences about either one would be
appreciated. Peter 25yrs
I took 50mgs of Lyrica once a day at night for nerve pain for one month. I
stopped because I was constantly groggy,
Just curious if anybody would know if there is a list out there of hotels
that have rooms in which one might use a lift (Hoyer) in order to transfer.
Try renting one at a sugical supply company in the town your visting.
Bobbie
Hi All,
I have not had a UTI since August and I swear it's from taking cranberry
pills and eating a yogurt EVERYDAY.
When I got my new van in 2001 I had my conversion company give me an
itemized list of their work and gave it to my State Farm agent so everything is
insured. I pay $1,200
Good luck with it and happy trails.
Go not where the path my lead, go instead where there is no path and leave
a trail
Hi all,
I signed up to participate in a study, at Kessler, where they are
looking in to using a driving simulator with existing SCI drivers. They want to
see
if a simulator would be helpful in evaluating newbe SCI for driving.
What do you guys think of this concept?
Bobbie C
Hey what if a Roho had a pressure mapping system built in. That would be
cool, expensive too.
Bobbie
I have a roho mattress, works great. No need for power.
Bobbie
Hi All,
I was emailing Dan from the q-list here regarding a quad friend who
lives in the same town as me. Do you guys also have quad friends who live near
by?
I feel VERY lucky to have Maryann C 4,5 50 lives 10 miles away, John C 4,5
51 lives 3 miles away, Dawn C 6,7 31 lives three
PLEASE LOOK - THIS IS FABULOUS!
http://fcmx.net/vec/get.swf?i=003702
Anybody else taking Lyrica for pain? It's helping me out a lot.
Bobbie
New Rule: Stop giving me that pop-up ad for classmates.com !
There's a reason you don't talk to people for 25 years. Because you don't
particularly like them! Besides, I already know what the captain of the
football team is doing these days: mowing my lawn.
New Rule: Don't eat anything that's
I hope women see their gyno regularly and if not why not?
Over 40 have mammogram
I do not have a gyno. I have never had a pap smear or a mammogram. I'm 51,
33 yrs post. I only go to a GP if I have a cold or UTI.
Why don't I go decease hunting? Because I don't want to live a long life
as a
My understanding is that no one really severs their spinal cord.
I completely SEVERED my spinal cord AND dislocated C 5
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey
When did Huston pass away?
I got to know Houston pretty good onm the list but never got a chance to meet
him.
I hope he went peacefully, I really liked Houston.
Hi all,
I'm looking for a pre pay cell phone with big buttons NO CONTRACT. I
just want to make phone calls, I don't want to text message or take pictures
JUST
make a VERY simple phone call.
Anybody know of any phones, please let me know. Someone did send me a link
for a jitterbug
Hi All,
I learned something new about cell phones I never knew and thought I'd
pass on the information.
On ANY cell phone ANY company if you need info regarding your cell phone
just dial 611. It works.
Bobbie
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