Re: [TMIC]

2009-06-16 Thread L T CHERPESKI
AOL EmailDear Jude, I know this email had to be very difficult for you to write. Thank you for your honesty. It is wonderful that we all have a safe haven with our TM family. Jude, many of us have said or done things that we are not proud of. I know I have! You know that I pray for you

[TMIC] Fwd: pam and fairs, ETC.

2009-06-16 Thread MontzMagic
In a message dated 6/15/2009 6:44:29 P.M. Central Daylight Time, MontzMagic writes: I JUST WANTED YOU TO KNOW THERE WERE SOME GREAT LETTERS IN HERE TODAY AND I READ THEM OUT LOUD TO PAM. CALL ME NUTS BUT I DID! MAYBE SHE SAW THEM ALL ANY WAY. I WOULD LIKE TO THINK SO. PAM ALWAYS WANTED

RE: [TMIC] Managing in winter

2009-06-16 Thread Butcher, Bernie (SFS)
I have a Hoveround (mp4) electric which I bought on Craig's list for $200.00 - it stinks, in general (tough to get on) , but I can go on the grass with it, but it's a bumpy ride. I take my battery operated weed wacker, loping shears hedge trimmer, get some things done Bbrney

Re: [TMIC] Fwd: pam and fairs, ETC.

2009-06-16 Thread Akua
Thank you thank you thank you Dan for asking about buildings' accessibility! Please keep it up! We need your help. My life would be so much better if the able-bodied cared even a little and changed a little and made a little bit easier. So I praise you for caring, adn asking and pointing

Re: [TMIC] Relationships

2009-06-16 Thread Janice
I don't believe in Karma.We are living on earth, not heaven. Therefore, life will not always be perfect. If you follow that line of thinking, Karma, then what did the little children do to deserve abuse?, etc. Karma doesn't make sense to me. Things will be perfect when we reach heaven

Re: [TMIC] Managing in winter

2009-06-16 Thread Janice
I wait until walks, etc., have been fairly cleaned off - which is pretty quick. I use my cane for short distances and hold only my husband. If necessary, we use the wheelchair - again, when it is fairly cleaned off. In Missouri we can get quite a bit of snow, so with my husband

Re: [TMIC] Janice's questions..

2009-06-16 Thread Janice
Kathy, I really appreciate your TM history. You sure were young when TM hit and it is incredible that it took so long for you to finally get diagnosed and on the right medication.I think I would be very bitter to have been treated the way you were by family and friends - unbelieveable!

Re: [TMIC] Accessibility Relationships

2009-06-16 Thread Cindy McLeroy
And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged

Re: [TMIC] Janice's questions

2009-06-16 Thread Janice
Kathy, Heat and humidity hit me the same way it does you and you did a good job describing it. I give up whatever I am doing and sit with something cold to drink and an ice pack. My husband of 41 years has been extremely understanding with our lack of sex since TM. He considers 39

[TMIC] Re: WHAT DID YOU DO???

2009-06-16 Thread Jan Hargrove
Cindy, What in the world did you do to break your leg??? jan --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts?  Supposedly they are meant for the blind so that their

Re: [TMIC] Accessibility Relationships

2009-06-16 Thread kimr1999
I HATE them and it's hard to get to the sidewalk without someone pushing me Caster wheels get caught in between the bumps. (this is sooo true)!!! -- Original message from "Cindy McLeroy" cindymcle...@socal.rr.com: -- And Sandy, how do you like the yellow medal

Re: [TMIC] Managing in winter

2009-06-16 Thread rn11...@yahoo.com
Hi,    My neighbor takes my trash out every week for me.    My ex husband plows my driveway in the winter and mows the lawn in the summer.    Plus,my youngest daughter goes food shopping and to the library for me;she and her husband do things around the house for me.My oldest daughter and her

Re: [TMIC] read receipts?

2009-06-16 Thread Jill Z
I get them with correspondence from my daughter's school.  I guess they want to confirm which parents read the email --- On Mon, 6/15/09, Grace M. grace...@gmail.com wrote: From: Grace M. grace...@gmail.com Subject: Re: [TMIC] read receipts? To: jharpe...@aol.com Cc: k...@frontiernet.net,

[TMIC] Re: WHAT DID YOU DO???

2009-06-16 Thread Cindy McLeroy
You'll be sorry you asked, it's kind of a long story. I had time to kill on Sat before I went to a party, all dressed and ready to go. I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with

Re: [TMIC] Re: WHAT DID YOU DO???

2009-06-16 Thread Jill Z
My doc just told me it's VERY VERY important to take 3,000-5,000 IU of Vitamin D plus omega oils (either fish or flax) every day.  Also anyone over 45 should be taking a baby asprin everyday.  Fewer broken bones when we get older because the vitamin D helps the body absorb calcium which is

[TMIC] Update on my honey

2009-06-16 Thread CJBJWB
This is a red letter day. Today is the first day that I can say I really believe the words I've been professing each day. I believe he is going to make it. They put a trach in today and he was breathing good and looking sexy again. I even got a couple kisses and a mouthed I love you before

Re: [TMIC]

2009-06-16 Thread Janice
Jan, Have you gained complete control of your legs - no cane and good balance? I am right with you on the lack of temperature control and I hate it! Janice - Original Message - From: Jan Hargrove To: rn11...@yahoo.com Cc: tmic-list@eskimo.com Sent:

[TMIC] Update on my honey-Jim,

2009-06-16 Thread kimr1999
From Carol This is a red letter day. Today is the first day that I can say I really believe the words I've been professing each day. I believe he is going to make it. They put a trach in today and he was breathing good and looking sexy again. I even got a couple kisses and a mouthed I love

Re: [TMIC]

2009-06-16 Thread Janice
I bet that looks funny seeing someone dressed like that playing in the snow! Bet it feels good though. My husband has learned to dress warm in the winter in the house because we keep it really cool. When our friends come over, they automatically grab the afghans!

Re: [TMIC]

2009-06-16 Thread Janice
Kim, what do you have your thermostat set at in summer? We keep ours at 71 degrees and I have ceiling fans in every room. I really seem to need to have to have air movement as much as cool air.Janice - Original Message - From: kimr1...@bellsouth.net To: bradebi

Re: [TMIC]

2009-06-16 Thread Janice
Debi, Do you use fans? Air movement is really important for me. Janice - Original Message - From: bradebi To: transverse myelitis ; kimr1...@bellsouth.net ; Janice Sent: Monday, June 15, 2009 2:50 PM Subject: Re: [TMIC] I would be more like you in

Re: [TMIC]

2009-06-16 Thread kimr1999
AC is set at 74 right now just in the living room we have 1 ceiling fan and 4 floor fans and yep, still warm bedroom has 2 ceiling fans and 3 floor fans and have to sleep on top of the sheets -- Original message from "Janice" jan...@centurytel.net: --  Kim,

Re: [TMIC]

2009-06-16 Thread kimr1999
yes seems so... yesterday was burning up... went to pool after work then was hot all night need to go to the pool for weight, blood pressure issues but later the heat is terrible -- Original message from "Janice" jan...@centurytel.net: --  How long does the hot

Re: [TMIC] Update on my honey

2009-06-16 Thread Trudy Ogilvie
YES! YES! YES! Enjoy every single second of this red letter day! dance in the momentfor Dance is the hidden language of the soul.Blessings and continued prayers! Trudy On Tue, Jun 16, 2009 at 10:39 PM, cjb...@aol.com wrote: *This is a red letter day. Today is the first day that I can say I

Re: [TMIC]

2009-06-16 Thread Janice
AOL Email Jude, how in the world could we hate you for being honest? Your husband loves you very much. If not, why would he come and get you to bring you home?Why would he have contemplated suicide being without you? Why would he bother to treat you so well in taking care of

Re: [TMIC]

2009-06-16 Thread Janice
Turn that AC down!!! I see you are definitely into the air movement like I am. Sure helps.I also wear a patch on my are to help with overheating.. It is clonidine - so far it doesn't work. I need to talk to my doc to see what plan B is. Janice - Original Message -

Re: [TMIC]

2009-06-16 Thread kimr1999
Plan "B" is for me to moce into an IGGLOO! -- Original message from "Janice" jan...@centurytel.net: --  Turn that AC down!!! I see you are definitely into the "air movement" like I am. Sure helps. I also wear a patch on my are to help with overheating.. It is

Re: [TMIC]

2009-06-16 Thread Janice
Have you tried sleeping with cold packs under your neck? Might help Janice - Original Message - From: kimr1...@bellsouth.net To: Janice ; bradebi ; transverse myelitis Sent: Tuesday, June 16, 2009 10:06 PM Subject: Re: [TMIC] yes seems so... yesterday was

Re: [TMIC] Update on my honey

2009-06-16 Thread Akua
Hooray! Many Blessings, Akua --

Re: [TMIC]

2009-06-16 Thread kimr1999
no but will give it a try -- Original message from "Janice" jan...@centurytel.net: --  Have you tried sleeping with cold packs under your neck? Might help Janice - Original Message - From: kimr1...@bellsouth.net To: Janice ; bradebi ; transverse

Re: [TMIC] Re: WHAT DID YOU DO???

2009-06-16 Thread Janice
Cindy, Did you break your legs that many times since TM or during your lifetime? Sure sorry it happened and hope it heals quickly. Word of advice - Leave The Cleaning To The Cleaning Ladies Although I admit I would have tried to clean it too. Heal quickly, Janice - Original

Re: [TMIC]

2009-06-16 Thread bradebi
That's what I am saying...how are we to know the difference...My DH says it is Menopause hyped up with TM!!...who knows!      ---Original Message--- From: kimr1...@bellsouth.net Date: 6/15/2009 6:41:01 PM To: bradebi; transverse myelitis; Janice Subject: Re: [TMIC] OK, I am

Re: [TMIC]

2009-06-16 Thread Catherine
I need air movement or I feel like I can't breathe. Believe it or not I sleep with oxygen sometimes I wake up feeling like I am suffocating. Need air movement. CatherineFrom: Janice jan...@centurytel.netTo: bradebi brad...@gmail.com; transverse myelitis

Re: [TMIC]

2009-06-16 Thread bradebi
Well everyone thinks its funny to see...but we live in a small house and the house stays hot to me...so I go out to cool off...LOL      From: Janice Date: 6/16/2009 7:56:49 PM To: bradebi; transverse myelitis Subject: Re: [TMIC] I bet that looks funny seeing someone dressed like

Re: [TMIC] Re: WHAT DID YOU DO???

2009-06-16 Thread Cindy McLeroy
Janice, Before I had TM (age 47 in 1992) I had severe Osteoporis so I already had thin bones. Not being weight bearing for all these years doesn't help which is why I have to be (no should be) so careful. I take all the appropriate meds, but when I do something stupid, I go all the way.

Re: [TMIC]

2009-06-16 Thread bradebi
Yes I have to have a fan on me all the time. Debi      ---Original Message--- From: Janice Date: 6/16/2009 8:01:24 PM To: bradebi; transverse myelitis; kimr1...@bellsouth.net Subject: Re: [TMIC] Debi, Do you use fans? Air movement is really important for me.

Re: [TMIC]

2009-06-16 Thread bradebi
No it comes at any time I can be just sitting here at the computer or watching TV. Debi      ---Original Message--- From: Janice Date: 6/16/2009 8:03:08 PM To: kimr1...@bellsouth.net; bradebi; transverse myelitis Subject: Re: [TMIC] How long does the hot sensation last?

Re: [TMIC]

2009-06-16 Thread bradebi
LOL...can I come too?! Debi      . ---Original Message--- From: kimr1...@bellsouth.net Date: 6/16/2009 8:43:27 PM To: Janice; bradebi; transverse myelitis Subject: Re: [TMIC] Plan B is for me to moce into an IGGLOO!