Re: [TMIC] allodynia - Lynn

2007-05-13 Thread Deb Casey
My pain has increased over the 4 yrs. i've had TM. At first I had no pain at all, and had regained almost all function. Another episode left me with increasing pain on my right side and especially in my right foot - my big toebut my body strength has been increasing on the left side of my

[TMIC] Thanks! OT: Spread The Sharing

2007-04-15 Thread Deb Casey
What a wonderful idea. and over 5000 meals donated already! Thanks for sharing this website with us!--- On Tue 04/10, lt; [EMAIL PROTECTED] gt; wrote:From: [mailto: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Tue, 10 Apr 2007 16:05:48 EDTSubject: [TMIC] OT: Spread The Sharing I was just watching

Re: [TMIC] (no subject)

2006-12-23 Thread Deb Casey
HAPPY HOLIDAYS! WISHING YOU THE BEST IN THE NEW YEAR... LOVE, DEB C IN MI.--- On Fri 12/22, lt; [EMAIL PROTECTED] gt; wrote:From: [mailto: [EMAIL PROTECTED]: [EMAIL PROTECTED], [EMAIL PROTECTED]: Fri, 22 Dec 2006 22:27:02 ESTSubject: Re: [TMIC] (no subject) Merry Christmas and Happy

[TMIC] #2 from Michigan!

2006-12-23 Thread Deb Casey
I've fallen behind on my email - just read about Jim and the donation race! so here's #2 from Michigan. I'll keep reading the email to see how many other states have been heard from... don't count us out Deborah, we're just slow...--- On Sun 12/17, lt; [EMAIL PROTECTED] gt; wrote:From:

RE: [TMIC] Scooter recommendations?

2006-11-26 Thread Deb Casey
I have a jazzy. a plain jane model,1 motor, 2 batteries, key for on/off, toggle for forward/backward, speed control dial. the battery lasts for over 12 hrs. and recharges overnight. the only drawback is 3 wheels - 4 wheels would be better for less tipping hazard. cost is around $700. it breaks

Re: [TMIC] Re: [QUAD-L] What a trip!

2006-11-24 Thread Deb Casey
Jim, I agree with Barb! It was amazing to read about your trip. I remember when I talked with you about travelling, and was thankful to hear that you were able to travel successfully - and it didn't surprise me that you were brave enough to embark on a trip after the last fiasco! You made our

[TMIC] RE: OT - petitions Bernard is right!

2006-11-24 Thread Deb Casey
Bernard is right on this, do not sign any petitions or forward them. I just want to add that if you feel strongly about the matter that is being petitioned you should email your gov't. reps personally and they do listen to email.:)a voice heard from in Mi.--- On Wed 11/22, Bernard Pelow lt;

RE: [TMIC] Baclofen and Neurontin??

2006-11-23 Thread Deb Casey
Hello Jill. I take both of them at night to help me sleep. The neurontin subdues the pain and the baclofen relaxes the spasms. I used to take them both during the day but found the fatigue too overwhelming. I don't have any side effects other than the fatigue, which is a bonus at bedtime ;-)We

RE: [TMIC] Weaning off Neurontin

2006-10-21 Thread Deb Casey
I weaned myself off the neurontin because of the fatigue. I couldn't take it anymore. I'd rather feel the pain. I did it over a period of 2 weeks and didn't have any problem. I don't know if I'm going to try the Lyrica. I have lesions on both sides of my spinal cord so I have one side that is

RE: [TMIC] cymbalta question

2006-10-21 Thread Deb Casey
Hi Margie. My advice: don't refuse a drug because it may have added benefits. =) I say this because I also take a drug for my bladder spasms (unbearable!) it's Imipramine and it also is used for depression. With this and the Ditropan my bladder/bowel conditions are manageable. I'm sure that if

RE: [TMIC] lifts for power wheelchairs

2006-10-15 Thread Deb Casey
Good morning Alton from frosty Michigan! I purchased a BRAUN lift and love it. The place that did the installation also has a maintenance program we bought. I have 3 ways to manipulate it, a remote, a keypad in the van, and a set of magnet controls embedded in the rear panel in case of emergency.

Re: [TMIC] today's feat

2006-10-08 Thread Deb Casey
Thanks everyone for your input. I will think about getting a minivan instead of the car. I didn't hear from anyone who was still driving a car, everyone I heard from drove some type of van,and using a lift or ramp. I guess I am safer, and so too is probably everyone else on the road with me! :-)

RE: Fwd: [TMIC] today's feat

2006-10-07 Thread Deb Casey
Hello Alton. I know this a pretty late response but I just wanted to say hello and hope that you are feeling better.I'm also having alot of trouble with my shoulders - I guess I am asking quite a bit more of them now and they are complaining because they don't like their new job as legs. If you

Re: [TMIC] Problems with being paralyzed

2006-02-27 Thread Deb Casey
Those who know how frightening something that looks so benign can be. Oh I know exactly how you feel! I've been there a number of times! I always feel like so frightened and embarrassed, even though I know I don't need to be. Like when I had to yell in my office bldg. because I had slid off the

RE: [TMIC] February Birthdays

2006-02-04 Thread Deb Casey
You can add me! Deb Casey, 2/11/56... it's the big 5-0 for me! and I'm going to be a grandma!My big wish for 50 was to go to Hawaii. Now my goal is to go in the toilet. Life sure is full of changes! --- On Wed 02/01, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:From: [EMAIL PROTECTED

RE: [TMIC] Shots and cramps

2006-02-04 Thread Deb Casey
Hi Mike in Marysville. I am wondering why you go off the baclofen? I suffer from cramps, really bad ones in my calfs and on my right side. the neuro increased my baclofen and neurontin, so that I'm taking another dose of each at night before bed. I don't take the baclofen at lunch, it makes me

RE: [TMIC] Osteonecrosis

2006-02-01 Thread Deb Casey
Hi, Sandy. Sorry to hear about the trouble Terry is having. So far my bone density test results have been ok, but I'm down to 7.5 mg every other day. I have broken quite a few bones though, but they've told me that is common.I've been trying to wean off of the pred. for quite a while. It

RE: [TMIC] loss of bowel control

2006-01-22 Thread Deb Casey
Hi Sue. I don't what your situation is, but mine is partially paralyzed from midchest down. My neurologist has told me that bowel training is what we need to do, which is trying to be very scheduled in your bowel movements. I try to do mine every other day. he suggested every day but I hate it,

RE: [TMIC] QUESTION FOR THE LADIES

2005-12-05 Thread Deb Casey
Hi Ella. yes I did have something similar and they gave me powder, a prescription powder. If it doesn't itch and no bumps, you could try gold bond powder, or one of the other medicated powders, I bet cornstarch would work.This I learned, too - you have to smooth it on, don't leave any extra. I

RE: [TMIC] OT Hildred needs us

2005-11-27 Thread Deb Casey
Thank you Bernie. I emailed Hildred quite a few monthes ago and didn't receive a response, and your letter from her explains all of that. She does sound in need of support!I will email her and let her know we all think about her and miss her.Thanks again, DebC in Mi.--- On Sun 11/27, Bernie

[TMIC] Re: Good News!

2005-11-07 Thread Deb Casey
Congrats Grace! What wonderful news! I hope that with the easing of financial worries you will begin to feel much better. I didn't realize from the descriptions what you guys were discussing, because my urodynamics have always been on a bed, I would guess because I'm a non-walker.This is where

RE: [TMIC] I HAVE BEEN AWOL!

2005-11-04 Thread Deb Casey
Welcome back! The book idea is very cool. Gunny's book was a great read, and I know yours will be too. I've always enjoyed writing, I find it very cathartic - a really cheap therapist :) good luck with itDebC in Mi. --- On Sun 10/30, Michael Carroll [EMAIL PROTECTED] wrote:From: Michael Carroll

RE: [TMIC] OT- Bras

2005-11-04 Thread Deb Casey
Frank, You are a wonder! We love history too, and we love you!--- On Mon 10/31, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [mailto: [EMAIL PROTECTED]To: [EMAIL PROTECTED], TMIC-list@eskimo.comDate: Mon, 31 Oct 2005 09:50:30 -0500Subject: [TMIC] OT- BrasI believe the

RE: [TMIC] Update

2005-11-04 Thread Deb Casey
Wow, sounds like you've found a keeper! I see my new neuro on Monday. My first neuro has gone into neuro-muscular research and he set me up with my new dr. who is specializing in ms. Let us know how the brain mri goes.I've never had my brain done either. I'd be very interested to know what he

RE: [TMIC] BREAKING BONES

2005-11-04 Thread Deb Casey
maybe not authority, but certainly common sense with knowledge of anatomy.Thank you for that explanation. It makes sense. I agree with the last 2 points :) bones do make an awful sound when they break, and so thankful that I couldn't feel them!--- On Fri 11/04, ROBERT COOK [EMAIL PROTECTED]

RE: Fw: [TMIC] Spill

2005-11-04 Thread Deb Casey
would like to see me again in 6 months. I can always call and make an appointment to see him sooner if I have any further questions or concerns. Thought someone out there may be interested in hearing about my visit. Heather in Calgary - Original Message - From: Deb Casey To: [EMAIL

RE: [TMIC] Fw: Imuran Question/Frank

2005-10-30 Thread Deb Casey
I am taking 200 mgs. imuran per day, we did it in increments of 50 as we reduced the pred. by 5's. I'm currently at 10mg pred eod. I have to get my liver levels checked every month. I have no side effects so far, other than weight and hair loss. Unfortunately, the hair loss is from the top of my

RE: [TMIC] From a caregiver

2005-10-09 Thread Deb Casey
It's all a 50-50 proposition: one needs care and the other is willing to give it, and that's about it. So as long as you do your 50%, I can do the other 50 standing on my head. So there. To those of you with a monster for a caregiver, tell him-her to go get a life. I think knowing that it is a