Janice, I do. I want to move to Missouri and escape this place!
Date: Wed, 28 Mar 2012 07:07:47 -0400
Subject: Re: [TMIC] No mail
From: malugss...@gmail.com
To: jan...@centurytel.net; molokai...@gmail.com; tmic-list@eskimo.com
Well, OK;
I'm still having spells of epileptic fits every few
Guys-It's weird, I have the same hand problems. The neurologist says it sounds
like carpal tunnel. The ortho surgeon says it's not. I can type now, but
couldn't 7 months ago. Still can't hold a pen much. EMG shows diffuse
slowing of conduction to all nerves leading to the hands. The
Akua; I didn't even know you did art work. What kind of artwork? What's it
like? Is there a picture anywhere? I would like to see. Pam
Date: Wed, 28 Mar 2012 07:02:19 -0400
Subject: Re: [TMIC] Participation
From: malugss...@gmail.com
To: a...@artfarm.com; tmic-list@eskimo.com
When I
Hello! I don't know about everyone else, but this strange weather fluctuations
has been making it harder for me to sit and type at times. I did notice the
drop in emails though. I thought it might be affecting others, also. Pam
Date: Tue, 27 Mar 2012 10:11:59 -1000
From:
I thought many disabled are unemployed, not the other way around.
From: lbieh...@earthlink.net
To: bgunny7...@aol.com; Tmic-list@eskimo.com
Subject: Re: [TMIC] Handicap
Date: Tue, 20 Mar 2012 22:18:36 -0400
Never heard that and don’t believe it, where did you hear it?
From:
Hey Bekki, I just want to add that their are a lot of doctors who refuse to use
steroids still. If it's not in the computer data base as evidence based
medicine, they will refuse to use it, especially some of the young ones. I've
ran into this more than once. So, if you received a small
Hello all; I agree with Celrod on this. I would like to know what causes
things because of the reoccurance of symptoms after recovery for a while. I
would like to prevent them. I also notice a tendancy to autoimmune type
problems in the family tree. But, my only concern with cause is
When I worked Neuro ICU, I was always told the difference between guillainbarre
and TM was TM was descending from injury down and guillain barre was both
ascending and descending. In other words, if you lost consciousness and were
effected from the injury up, they called it guillain barre.
They also use immunoglobulins and pasmapheresis in TM patients when steroids
don't work. No proof that they work yet, same as steroids, just it works for
some and not for others, and some doctors are willing to give it a try when
nothing else works. I prefer the doc who gives things a try
Jim, I could walk all along...but by holding my legs or joints stiff and
swinging from the hip and I didn't get far. After steroids I was very weak,
and couldn't tolerate any weight or get far for about 4 months. then I had a
complete recovery over about a year except for occassional fatigue
Patti; Which supplement were you taking? Pam
Date: Sat, 31 Dec 2011 09:33:11 -0600
Subject: Re: [TMIC] RE Pins and Needles
From: patticoole...@gmail.com
To: molokai...@gmail.com
CC: pjv1...@chartermi.net; tmic-list@eskimo.com
James when I first got TM I ordered vitamin supplements for TM that
So far it is still legal in Oregon. I am aware though that people with
addictions claim anything to get a script...and I'm not referring to anyone
here who is looking for pain relief. As a result of the addictive stuff, I
wouldn't be surprized if the government tried to put the kabash on it
Dalton; I think the back injury is probably more accountable for many of your
symptoms than TM. Or maybe TM was a symptom of the back injury. Norco has
reduced acetaminophen in it with hydrocodone, but there is still a little bit.
lyrica didn't do anything for me. Neurontin or gaberpentin
I have found comfrey oil helpful. Alcohol makes it worse. Kytta-Salbe f
ointment is helpful. Baclofen doesn't do anything for me. Made me sleepy at
first and helped with back spasm, but found more and ore was needed so what the
heck, I don't want that. I don't do anything without orthotic
Anyone tried either induced hypnosis or self hynosis?
CC: tmic-list@eskimo.com
From: skle...@cox.net
Subject: Re: [TMIC] Re: Brain lock ?
Date: Tue, 29 Nov 2011 18:58:38 -0700
To: a...@artfarm.com
Yes, indeed. - if one can meditate. I just can't seem to learn it.Also, laying
down doing
spasming used to keep me awake. Not so much anymore. I have vertigo which
manifests as nausea sometimes. Only am problem was related to BIH which was
from high protein related to TM plugging up my arachnoid villa (sorry, don't
care about spelling tonight) or my brain so to speak.
CC:
And all this time I thought it was just exhaustion. You guys sound
luckyyou can take time out. These boys (or men judging by their age) don't
let me get any rest. I guess that's part of the bipolar thing, but when you're
running on empty it's pretty darn irritating.
Date: Mon, 28 Nov
I'm still here. I've just been trying to work this past month. This job will
be over next week. But, it's hard for me to do anything else when I work.
Today, I'm having a lot of trouble with my arms. Through the upper arm and
shoulders is tingling and tight. And when I put my hands
:
From: john snodgrass jcs...@yahoo.com
Subject: Re: [TMIC] shingles vaccine
To: PAMELA S subers...@msn.com, pjv1...@chartermi.net
pjv1...@chartermi.net, TMC Group tmic-list@eskimo.com
Date: Thursday, October 20, 2011, 6:14 AM
I have a weak mind, I hope all this information doesnt cause me to have
The first time I got TM I had Hep B vaccine series and a flu shot before onset.
Second round of symptoms was after tetanus shot. This last flare up or
reoccurance was that since I was a diabetic nurse working first line in the
H1N1 epidemic I had H1N!. Then pneumovax because I was a
You know...I'm not going to get this shot. But, shingles is what led to my
mothers cardiomyapathy and congestive heart failure.
Date: Wed, 19 Oct 2011 10:35:34 -0400
From: pjv1...@chartermi.net
To: tmic-list@eskimo.com
Subject: [TMIC] shingles vaccine
Our local newspaper has a medical column
And find me a nice guy while you all are at it.
Date: Sat, 15 Oct 2011 19:35:20 -0700
From: pkeen...@yahoo.com
Subject: Re: [TMIC] is it too early? (off topic)
To: tmic-list@eskimo.com; rumc...@hotmail.com
Go for it! I think you are lucky to have someone who will go out with you,
despite
Hello Andrea; I know you are going to get lots of responses. I just lost the
person who was my partner to death. However; I had been married before, and he
didn't tolerate my problems well. Yes, people do look at you and say, but you
look healthy. I've had this problem since 1992, with
. See if you local paper would start a column of
people in need. Not financial, but physical labor needs. The paper might
run it in their want ad columns free of charge to the person seeking help as a
charitable endavor.
Patti - Michigan
On Thu, Oct 6, 2011 at 8:38 PM, PAMELA S wrote
No kidding! Akua; if I lived close by I would vacuum your floor. I can do
that now. Pam
Date: Thu, 6 Oct 2011 04:39:41 -0700
From: jcs...@yahoo.com
Subject: Re: [TMIC] Pyrrhic Victory?
To: a...@artfarm.com; tmic-list@eskimo.com
it is a sad thing that this is done in regulated areas as well
Hey everybody; I've done this site on and off since the beginning. I do like
the facebook thing. I like the quick banter when I'm going nuts for social
stimulation. I've just taken a temporary job as a school nurse. They needed
someone fast and they agreed to try and accomodate me, but it
Okay, it's my hands and my feet and my legs!But, I got so sick of being
called crazy when I tried to describe it. 20 years later it still drives me
nuts, and I don't drink, I'm not using morphine etc. etc. etc. I Do wish
caregivers had to experience just one hour of it. FYI...if you
Hello all; I've been quiet but reading folks posts. Too tired last few months
to keep up with much. But, I really want to reiterate this. There is a state
board in each state for RN's. Professional conduct is a rule despite what the
employing organization might tell them to do. If they
Patti; In this day and age, you should always feel free to complain.
Transperency is now required for all hospitals. The patient and their family
needs to say something when they see such things. I know that I would want to
know if I were the nurse taking care of that patient. Many nurses
I would like all of you to put locations for these homes so the rest of us can
avoid them for ourselve and families. I don't want to be in one like this. Pam
Date: Tue, 4 Jan 2011 10:28:13 -1000
Subject: Re: [TMIC] REHAB
From: molokai...@gmail.com
To: a...@artfarm.com
CC:
You know, on my last job we had a lot of stem cell transplants for Cancer.
They only came to my unit when there were complications. I know there is a lot
of hope held out for this treatment, but some of the things I have seen with
the complications have been horrible. When it doesn't work
I've fallen down the stairs several times these past few years. But, I count
my blessings I'm able to go down the stairs. My hips are constantly bruised
where I fall into things, but I am so lucky I am walking there in the first
place. My PT gets aggrevated at me for doing too much, and my
Someone posted a link a couple of months ago for some research done in England
about TM linked to autoimmune disease. I can't find it. Can someone reshoot
that link for me? Please? Pam
I take neurontin on and off since 92 (another name for gabapentin.) I got used
to it and it doesn't make me tired, but it was less effective over time.I
get tired just from activity. And, I'm determined to stay active. It's just
became harder and harder. Alot of diabetics I have cared
The majority of people I've known who see an IME receive a decision that they
are perfectly capable of working full time unless they are obviously
incapacitatedd in a wheel chair. They work for the insurance company. I'm a
little cynical on the subject. Talk to an attorney.
Date: Fri,
Happy Thanksgiving: I have a question for everyone. How has the EMG test
results (if you had one done) correlate with the weakness and discomfort for
you? Pam
Hello; When reading James post, I thought maybe I should ask everybody about
this. I now use cpap at night. I only knew I wasn't sleeping because of the
pain in my legs. I knew that when I fell asleep jerking or something would
wake me up in a few minutes. So I went for a sleep study.
Hello John; In answer to your question, I was diagnosed in 1992 with pretty
good recovery except a straight catheter and extreme fatigue with any viral
infection. A few years ago I started getting weaker. In 2000 I had trouble
with BIH from the high protein in my spinal fluid. Now all of
From: subers...@msn.com
To: jcs...@yahoo.com
Subject: RE: [TMIC] burning spine
Date: Sun, 31 Oct 2010 15:06:57 -0700
Hello John; I am new to this site, but I feel the burning. I also feel it
around my rib cage along dermatones. As a result, when I fist had the
transverse myelitis,
39 matches
Mail list logo
