Re: [TMIC]An Article From www.aarp.org re M. Graves

Thank you Hildred. What a great man - he has accomplished much in his life. He is definitely an inspiration to all of us. Linda -- Original message -- From: [EMAIL PROTECTED] Hildred thought you might be interested in this page on AARP's Web site: --- Message

Re: [TMIC] Re: tmic-digest Digest V2006 #9

Harold, Grace and I have emailed each other for a long time. Suddenly last week my email to her came back to me. I don't know if she has moved - she talked about moving in with a friend in another state - but she hasn't told anyone. The last email I had from her about 10 days ago, she was doing

Re: [TMIC] osteoporosis

Hi Roger, Good to hear from you. First of all I notice you are from Kennewick WA. I live in Bothell and worked at Plaza Ins for 31 years. Did you have your insurance with Plaza and do you know Tom Allen?? Small world if you do. I actually had seizures prior to TM. I also have SjogrensSyndrome

Re: [TMIC] More Balance Info

Thanks Patti - I appreciate that. Yes I am still here and read the posts every night. Linda - Bothell, WA -- Original message -- From: [EMAIL PROTECTED] Hi I've waited patiently for you to add a comment or two. I was hoping you were still in the background. Patti -

Re: [TMIC] April Birthdays

Yes! Happy Birthday to all of you having Birthdays in April!! Wishing you good health as well. Linda (Bothell, WA) -- Original message -- From: Crystal [EMAIL PROTECTED] HAPPY BIRTHDAY TO ALL OF YOU HAVING A BIRTHDAY IN APRIL!!! Always A Friend, Crystal [EMAIL

Re: [TMIC] Shots and cramps

Well Alton, I truly apologize. Obviously I do not know how to use this list. I thought all of those posts had been sent to everyone on the list. I am truly sorry. You don't need to leave the list because of me. Linda -- Original message -- From: Alton Ryder [EMAIL

Re: [TMIC] RE:OT STEELERS VS SEAHAWKS

Jeff - NO WAY!! Linda in Bothell, WASHINGTON - GO SEAHAWKS! -- Original message -- From: jeff bernier [EMAIL PROTECTED] OK HERE IT IS,MY YEARLY PREDICTION,BY THE WAY LAST YEAR I WAS DEAD ON WITH THE SCORE. PITTS 35 SEA 28 JEFFDIPLOMACY DOES NOTWORK WHEN DEALING

Re: [TMIC] Shots and cramps

Mary Eden Finally somebody in my corner! Thank you. You know I have to root for my home team - this is the best they've done in years. I can remember about 15 years ago, you couldn't get a ticket to any of the games! Everybody had season tickets. Then the Seahawks went through many years of just

Re: [TMIC] RE:OT STEELERS VS SEAHAWKS

Jeff, well not to be "mean" or anything, but if your wallet stings a bit tomorrow you could hear a snicker clear from Seattle : - ) Linda - WASHINGTON -- Original message -- From: jeff bernier [EMAIL PROTECTED] MY WALLET IS TELLING ME SO,OR IM HOPING IT IS,IF NOT IM IN

Re: [TMIC] RE:OT STEELERS VS SEAHAWKS

Oh Frank - you are absolutely naughty - but a character non the less : - ) Linda - WASHINGTON -- Original message -- From: "[EMAIL PROTECTED]" [EMAIL PROTECTED] MY WALLET IS TELLING ME SO,OR IM HOPING IT IS,IF NOT IM IN TROUBLE. OH, MY wallet is empty. I was told

RE: [TMIC] February Birthdays

Well Deb - congratulations are in order #1 HAPPY 50th - it's a good one! #2 Big Congratulations on the upcoming Grandma - when is the baby due? #3 Congratulations for being able to go in the toilet! : - ) Have a Great Birthday - 50 is a special one Hugs Linda in Bothell, WA --

Re: [TMIC] RE:OT STEELERS VS SEAHAWKS

You got that right!!! : - ) Linda WASHINGTON -- Original message -- From: jeff bernier [EMAIL PROTECTED] LOL!!! YOU WILL NEVER LET ME FORGET IT IF IM WRONG. JEFF[EMAIL PROTECTED] wrote: Jeff - NO WAY!! Linda in Bothell, WASHINGTON - GO SEAHAWKS! --

Re: [TMIC] Novelty

Well Dex - I think that just about tops it! : - ) Linda in Bothell, WA -- Original message -- From: "Dex Packard" [EMAIL PROTECTED] HOW ABOUT KITTY LITTER CAKE?

Re: [TMIC] Vision

Oh Frank - what can I say - respectfully Linda : - ) -- Original message -- From: "[EMAIL PROTECTED]" [EMAIL PROTECTED] none of us have all the answers to anything. And I certainly am one of those! Dear Linda, et al, I would respectfully disagree. I have

Re: [TMIC] Vision

Diane, You are a naughty one- but I say You Go Girl!! Linda -- Original message -- From: Diane [EMAIL PROTECTED] Had to giggle at this. When I think 'age', my tongue just won't stay in my cheek. I stick it right out !!! Diane in Canada Heather Pieter wrote:

Re: [TMIC] Shots and cramps

Uh Jeff - I was born and raised in SEATTLE, WASHINGTON - yes in SEAHAWKS territory and I WILL have a good day when you tell me YOU have stocked up on kleenex Oh what the heck - hugs to you anyway : - ) Linda GO SEAHAWKS!!! -- Original message -- From: jeff bernier

RE: [TMIC] RE:FLU SHOT PLEASE READ

Cindy, I so agree with you - it has been years since I have had a flu shot and after reading all the information on the TM site, I will never have another one! Hugs Linda in Bothell, WA -- Original message -- From: "Thomas L. Griffiths" [EMAIL PROTECTED] Hi! I was hit

Re: [TMIC] new member

Hi Dennis, Welcome aboard. Please feel free to tell us your story, ask any questions - and like Jeff said - we've all had one symptom or another. Hopefully we can help you with some questions you may have. Or at least offer support! Hugs Linda in Bothell, WA -- Original message

Re: [TMIC] Shots and cramps

Hi Mike in Marysville, WA - this is Linda in rainy, soggy, mold and mildewing, need life jackets and a boat Bothell, WA-We are practicallyneighbors! I'm sorry I can't answer your questions regarding the cramping; however I have also heard that quinine water does help. And yes, other than that

Re: [TMIC] Osteonecrosis

Hi Sandy, I am so very sorry to hear about Terry. And boy I can certainly understand why your shoulders are not as big as they used to be. How much can one carry. Please tell Terry that he is in our thoughts and prayers. I certainly hope the doctors have some good answers/solutions for this. It

Re: [TMIC] myoclonic jerks

Patti, I love it! What a sense of humor you have! Hugs Linda in still rainy Bothell, WA - soon we will need life jackets and a boat -- Original message -- From: [EMAIL PROTECTED] Thanks for the info on clonus. Was I the only one who laughed when I read the term

Re: [TMIC] Is It TM or Not / forgot this

Sally - thank you - right on! My doctors have told me they are striving for QUALITY of life for me and are doing everything in their power to accomplish this. My daughter, son-in-law and little 2 yr old granddaughter were here for 2 weeks over the holidays. They live just outside Wash DC (we live

Re: [TMIC] Intravenous Methotrexate Rituximab.

Hi Grace, I was on intravenous Methotrexate for 3 yrs. I tolerated it fairly well, with an anti-nausea drug that cost $54.00 per pill (no kidding) but only had to take it once a week. My doctor changed things a bit though about 6 months ago - he put me in Imuran instead. Hugs Linda in Bothell, WA

Re: [TMIC] Fw: Back from hospital.

Hi again Grace, I am sooo glad you took action right away with the eye issue. That is nothing to mess around with. Sorry you were in the hospital, but also glad you went right away to stave off further damage. Hugs and Blessings Linda -- Original message -- From:

Re: [TMIC] JUST TO GET CAUGHT UP

Hi Jeff, Welcome back to the TMIC list. My name is Linda and I have actually only been on the list since 2004, but was lurking in the background for a while before I introduced myself. This is a great place to meet and make new friends who completely understand what we go through - and also a

Re: [TMIC] Lyrica

Hi Priscilla, Welcome back - I hope you will regularly write and keep us informed on how you are doing. I'm glad you discovered Neurontin was the cause of the diarrhea - it's not a nice thing to have to dealwith that when you have TM! Lyrica is a great med. I also take Cymbalta - I like it as

Re: [TMIC] EARTHLINK NORTON

Bobberino - I agree - although I think cretins is "mild" compared to what I'm thinking : - ) I'm still having trouble as well, however, my computer says that my Norton Anti Virus is enabled! But I keep getting these big messages that say my coverage has expired. I'm not spending any more time on

Re: [TMIC] Re: lyrica

Hi Marie, My name is Linda and I was on Lyrica for a month. My doctor gave me a month supply to try. I slowly titered up on it, and I could not believe the difference. Almost all of my burning, pain, tingling, freezing, hot pain all at one time - it was all gone. When the doctor wrote the

Re: [TMIC] mechanisms of pain

Hi Jude, You are welcome. I'm glad your insurance company is paying for the Lyrica. I don't know who started the conversation, but I do remember many months ago several people mentioned a new drug was coming out in Aug 2005 that was suppose to replace neurontin and be better. Shortly after that

Re: [TMIC] mechanisms of pain

Diane - oh I feel so bad for you. The cold between the shoulders - When you get that cold, is it even possible to get warm or even close to warm again?? You will be in my thoughts. Feel better Linda in Bothell, WA Frank - now you are a completely different story. I cannot even begin to imagine

Re: [TMIC] ladies I need help

There's our naughty Frank. I have been wondering where you've been hiding. (You needn't tell us - let us use our imaginations) Actually I think removing the eyeball sounds like a very good solution. I will give it a try myself. Glad to have you back - have missed your humor! Hugs Linda in

Re: [TMIC] Thank You All...I am much Blessed.

Hi Jude, Oh my, you having been going through a rough time. I hope and pray for you that this will heal quickly and you will be back to your old self again - hey - or even better! Wouldn't that be nice! Hugs and Blessings Linda in Bothell, WA -- Original message --

Re: [TMIC] Surprise

Well thanks Dex - we needed to hear that! I always think when the Christmas season is past, spring is not far away - and that is a great joy - new birth, new life - flowers! Linda in Bothell, WA -- Original message -- From: "Dex Packard" [EMAIL PROTECTED] Guess

Re: [TMIC] Happy Holidays!

Krissy - thank you. I loved these and forwarded to many people! MERRY CHRISTMAS TO YOU AND TO ALL OF OUR TM FAMILY AND THEIR CAREGIVERS. Linda in Bothell, WA -- Original message -- From: "Krissy" [EMAIL PROTECTED] *Krissy/Lady K

Re: [TMIC] OT: Back from TX

Barbara, Welcome home. Glad you are safe and sound. I know this will be a difficult time for you - and yes, you will be teary-eyed and that's ok! Your comfort is in knowing that you will meet again some day - there will be no pain, no sickness - only beauty. Blessings to you and your family

Re: [TMIC] Hi Everyone

Hi Everyone, Yep, I am exactly the same way. Bite off more than I can chew. Before TM I did everything - very active - this fatigue has to be one of the hardest parts of TM for me. My mind tells me "yes - go for it" my body has ideas of its own. Therefore, I have half-done things all the time -

Re: [TMIC] Fw: Prednisone/Neuro/Devic's

Alton, God Bless you. I have written Grace personally - I want to thank you for being so direct and right to-the-point! You're great. Linda in Bothell, WA -- Original message -- From: Alton Ryder [EMAIL PROTECTED] Grace, call your doctor pronto. You need an

Re: [TMIC] OT a perfect snowfall

Alton, thanks for sharing with us. It sounds beautiful over your way! Linda in clear, cold Bothell, WA -- Original message -- From: Alton Ryder [EMAIL PROTECTED] Today started when I left the house at 6:30 to pick up my son and take him to Concord, NH. There was a

[TMIC] TMIC Lyrica

Hi Debbie, I have Regence Blue Shield. Funny thing, when I was giving myself high doses of methotrexate shots, they were willing to pay for my anti-nausea drug which $54.00!!! per pill!! My neurologist says he won't give up. He will go some research on other drugs, write another letter to

[TMIC] TMIC Lyrica

Hi Mary Eden, I don't know the cost of Lyrica, but it has been suggested to me that I do exactly that and I will call the drug rep about it. I think it is pretty expensive, as there is no generic form yet. So I've heard. I will find out though. Thanks - Hugs to you Linda in Bothell, WA

[TMIC] TMIC Lyrica

Rob, I'm so glad you have had such success with Lyrica. My neuro gave me a month supply to see ifit agreed with me and helped me. Well I had no side effects and it was the first time in almost 4 years with TM that I have had any relief from the constant burning, tingling etc. So my neuro called

[TMIC] TMIC This is what our group is all about

Hi Sally, Thank you for sharing your love and encouragement with all of us. You are so right, there are so many who are struggling with TM ills now it is heartwrenching. This list is so precious as it has brought us all together as a Family. We can completely understand what each person is going

[TMIC] TMIC A Thanksgiving Wish

Mary Eden, Thank you for sharing the wonderful Thanksgiving Wish. That was great! Wishes for a very Happy Thanksgiving to all! Hugs Linda in Bothell, WA

[TMIC] Question re Imuran/Prednisone etc

Grace, Frank is right! Please contact your doctor NOW. You should not mess around with a "cold" for 3 weeks! I am on Imuran as well (and a myriad of other drugs) and my doctor has told me to call him if I get I fever, cold, UTI - anything - CALL NOW. PLEASE. Love you Linda in Bothell, WA

[TMIC] TMIC no subject

Hi Gary, Again, welcome to the TM Family. This is a great place to be. You will find some very kind and supportive people here. And we also have pretty good senses of humor! I don't know much about the pain stimulators, but since you have such unbearable pain, can't you leave it on 24 hours a

[TMIC] TMIC I HAVE BEEN AWOL

Hello Michael, Welcome back! My name is Linda and I am new in the TM family during the 18 months you were AWOL : - ) We would love to hear your TM story - trials and tribulations. I'm sure your knowledge will be very helpful to all of us. I have had TM for 3.5 years and my lesion is at C 4,5

[TMIC] TMIC OT COPPER BRACELET

Hi Sally, I have not used the copper bracelet myself, but I do know many people who do - and I've heard they're great. You mentioned you worked at a horse farm - I assume you don't anymore? My job for the last 31 years was writing Mortality and Major Medical insurance for horses - mostly show

[TMIC] FW Imuran Question for Frank

Hi Deb, Thank you for the chuckle! Since I can't really "feel" my legs to shave them, my doctor told me NOT to - and on top of that, she said "we doctors have seen it all" - which I believe they have. And I think you are right - it was a MAN who originally suggested women should shave their

[TMIC] TMIC OT/NUNS

Oh my, that was a good one! Linda

[TMIC] TMIC - Question re relapse

Hi Mary, How are you feeling? Have you gone to your doctor yet or called him? We are all concerned about you, so when you are feeling better please send us a little note. Hugs and Blessings Linda in Bothell, WA

[TMIC] Epidural Steroid Injections

Hi All, I'm almost afraid of what I might find out, but I need to ask anyway Has anyone had an Epidural Steroid Injection close to the site of your lesion(s)? I had to go to a neurosurgeon because I am having such pain from my lesion, which I was told has been at C 5-6 and I just learned it is

[TMIC] New drug LYRICA

Hi Patti, I started out on 50mg capsules. (samples my neuro gave me) When I called for a prescription, they asked me if I wanted the 50mg, 75mg or 100mg. I chose the 75mg - but you can go up to 100mg which is nice - since we're all different with our pain levels. Be sure to start out slow - my

[TMIC] New Drug LYRICA

Hi Cindy, What an ordeal to go through - 3 attacks in 3 years. Goodness. I'm so glad you're on Imuran- it's a great immunosuppressant drug that is supposed to help us so that we don't have another attack! It is awesome that you have gone so long *attack free* Hugs to you Linda in Bothell, WA

[TMIC] TMIC iGive

Hi Mary Eden, Last night I did sign up for the iGive. It was very easy, and I had an email from them instantly. Lots of stores to choose from too. It's a great idea all around! Take care - hope all is well with you Linda in Bothell, WA

[TMIC] New Drug LYRICA

Hi Cindy, Good to hear from you - I'm not sure if we have *met* but I look forward to getting to know you. RE: LYRICA - This is what both my Rheumatologist and my neurologist told me. This new drug has been found to be much more effective for neuropathic pain than neurontin, AND it is taken in

[TMIC] MMs

Oh Barbara - you are too funny. At least you had your *vitamins* for the day! Good girl : - ) Linda in Bothell, WA

[TMIC] TMIC Sequel

Hi Sue, I am so sorry about your recent diagnosis of MS, and after 5 years with TM. I can also understand your depression and fatigue and overwhelming feelings. It is hard to understand and even harder to *accept* I'm glad you admitted that you are in denial for the time being. That just makes

[TMIC] New Drug LYRICA

Hi Sally, I'm sorry to hear that Lyrica caused weight gain with your husband. I have not had ANY side effects with this drug, and I am now at maximum dose, after gradually working myself up to it. I know a lot of people said neurontin caused weight gain also. I did not have that side effect with

Re: [TMIC] shop online to benefit TMA

Thanks Jim. What a good idea. Timing couldn't be better with the Holidays approaching. Linda -- Original message -- I just want to remind everyone who shops online that when you go to your favorite store by starting at iGive.com, a percentage of your order will get

[TMIC] Question - relapse

Hi Mary, Is it possible for you to call your neurologist and tell him what is going on? Instead of waiting until 11/3/05. He might want you to go in for another MRI just to make sure there are no changes going on. Please do call - it may relieve some of the anxiety - we all get it when "changes"

[TMIC] New Drug LYRICA

Hi All, Saw my neurologist last week and he gave me a sample bottle of the new drug LYRICA. He started me out on one at night for 3 days, then one in the a.m. and p.m. for 3 days, then one three times a day - still taking the neurontin. Then I go back the middle of Nov to let him know how it's

[TMIC] I'm Back

Hi Elisabeth, Just checking up on up to see how you are doing. I know you are probably not up to sitting at the computer yet, but wanted to let you know we are all thinking of you. The last we heard, you had an appointment on the 2nd because something was still wrong. Our thoughts and prayers