193wdj5xob5, 0306puk.
http://jmdeuezknh.blog.com/jzy/
ld9t6h7ej6 o14vze3xym h04hza6, m83s8fx d70m6e2q. xjb8a 1h6qzolb.
LinkedIn
Marieke Dufresne requested to add you as a connection on LinkedIn:
--
Kevin,
I'd like to add you to my professional network on LinkedIn.
- Marieke Dufresne
Accept invitation from Marieke Dufresne
http://www.linkedin.com/e
I was 28 years old (2004)
Marieke
Canada
- Original Message -
From: Janice Nichols
To: tmic-list@eskimo.com
Sent: Thursday, December 10, 2009 10:35
PM
Subject: [TMIC] Age
Hey!
I have a
request. I was talking to my neuro and he was
You can get the cold ties on eBay as well as in most outdoor/camping type
stores as well as online stores...
a few examples:
I am on Facebook too, and addicted to Yoville... and various Farm games on
there too!
There are 2 Marieke Dufresne though.. my pic is of me with short hair, glasses
and a pink shirt.
Marieke
--Forwarded Message Attachment--
Date: Thu, 25 Jun 2009 22:56:16 -0400
From: we4king...@verizon.net
I wasn't going to reply to this either, but I have lost most of my feeling down
*there* as well. I was 28 when it happened and do feel cheated out of having a
normal sexual relationship with any guy now. The boyfriend I had at the time
stuck by me but after a year he gave up on the
re: Tylenol
Kevin just as a side note, Tylenol IS acetominophen. Tylenol is the brand name
for it.
Weaning off: lower the dose you take by 1/2 for a week then another 1/2 for the
next week then you stop taking it.
Technically
what you were taking should not be a problem when stopping cold
Hi all,
The Transverse Myelitis Network has nothing to do with the TMA or TMA Forums.
It was started by anotehr member here who wanted a site where we could exchange
comments/photos/messages/info in a more face-to-face way and there is also a
Chat where you can talk to others members who are
It sounds like she may have been having a heart attack. My prayers go out to
Pam's family.
Marieke
From: heyjude48...@aol.com
Date: 6/7/2009 8:14:43 PM
To: toddtm2...@sbcglobal.net; tmic-list@eskimo.com; jan...@centurytel.net
Subject: Re: [TMIC]ABOUT PAM MONTZ..PLEASE READ THIS... IT IS
Date: Sat, 30 May 2009 17:54:25 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #475
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
I stopped taking an antidepressant about 18
months after getting TM. While I have had
--Forwarded Message Attachment--
Date: Sat, 16 May 2009 12:23:52 -0700
From: hwyfli...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Next TMA symposium question
Does anyone have any knowledge as to when and where the next TMA symposium is
going to happen...?
Just curious and would
My
trunk and legs remain paralyzed but I can wiggle my toes! It has been 9
months now and who knows what could happen! Maybe they will figure out
a
cure one
day!!
Not to be a downer or negative BUT it is possible to wiggle your toes and still
NOT get the
I too have a NMES/TENS combo unit.
Not all NMES units can be used as TENS though, you have to see what the
specifications are for whatever machine you get/look into. The NMES units are
also much more expensive, so if you don't plan on using it to strengthen you
muscles then it may not be
You can ask your PT what models she has used/liked, or what they use at the
clinic and you can try one out. All NMES units have the same settings for
muscle strengthening. Some have more pre-programmed options. I suggest getting
one that does BOTH NMES and TENS. I have a combo machine which is
RE: DVT, are Deep Vein Thrombosis.
Basically, CLOTS in the vein that block it and can also break away and travel
up in your blood stream. Very dangerous as it can go to your lungs or heart or
brain and this can kill you. When you get DVT they put you on blood thinners to
get rid of them and
Barbara,
I agree with Heather.. get a second TV and/or computer. Better yet, get a
Laptop and WIFI so you can use it anywhere even outside.
Marieke (who loves her MacBook!)
Date: Tue, 28 Apr 2009 20:06:54 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #361
To:
Janice,
I sent you the 3 links from my YouTube account
Here is part 1 for others who want to see again. You can get the other 2 parts
by looking in my account or on the right next to this video.
http://www.youtube.com/watch?v=1QFmF6Bh1ggfeature=related
Marieke
Date: Sun, 26 Apr 2009 08:36:23
Hi,
I use a TENS and MNES machine (mine is combo, so I can use it either for Pain
relief with the TENS or for building muscle with the MNES settings). I got it
from a company that sells refurbished or extra medical equipement. The machine
I got is worth $800+, I got it for $230. The TENS works
When I was in rehab, there was a guy who went in the pool with his Foley and a
leg bag. You don't want to risk disconnecting it and clamping it as that may
not hold and if so you could get a nasty infection.
Ask what your MD has to say or call a rehab hospital and see what they usually
do.
The cold makes me spastic as well. I hate living where I am, the winters are
LONG and COLD! Winter starts in early November and ends in late April. Our Fall
is wet and damp, another thing that makes me spastics and so is our Spring! You
just can't win!! LOL
Marieke RN, TM @T1 since March 18
I have travelled by plane alone and with my boyfriend (now ex). Last time I
went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and
2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back).
The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO)
Temperature Regulation:
http://www.apparelyzed.com/temperature.html
Temperature
Regulation
A normal, healthy human is able to maintain a constant
body temperature of approximately 98.6F despite the temperature
of the environment. In a hot
RE: ACAI for weight loss
Marketers of these products make claims that açai provides increased energy
levels, improved sexual performance, improved digestion, detoxification, high
fiber content, high antioxidant content, improved skin appearance, improved
heart health, improved sleep, and
I have my doubts as well..
http://www.cellmedicine.com/locations.asp
and what does Johns Hopkins affiliate really mean?
In any case they don't use other people's stem cells. They harvest some from
the patient themselves and purify them to be used..
I am not sure how legit their results are,
Frank: Go to the Doctor ASAP!
Marieke RN! :)
Voting will continue till 9pm EDST tonight, March 14.
Tomorrow morning I will count up the results and take the winning advice-
doctor ( with X-Ray), martinis, physiotherapy, no rugs, or foot drop apparatus.
Sleep well
pH
--Forwarded
Wim,
Gefeliciteerd!
Marieke in Canada
---Original Message---
From: wim from holland
Date: 3/10/2009 5:58:58 AM
To: TMIC
Subject: [TMIC] update granddad
I'll try again.
On this photo she had the same pose as we saw her on a photo in the womb.
Vingers in het mouth and a hand
Amanda, you can take a max dose of 100-120mg a day of Baclofen and/or ask for
Tizanidine (Zanaflex) as well. I take 100mg of Baclofen a day (20-20-20-40) and
2mg of Zanaflex at night as well. I used to take more Zanaflex throughout the
day too.
Marieke TM @T1 2004
If your lesion is high you will likely get this, whether or not you have MS
(It's just more common in MS). It is permanent though and will not go away.
Marieke
From: Jill Z
Date: 2/26/2009 9:47:34 PM
To: tmic-list@eskimo.com
Subject: [TMIC] For you MSr's
I know some of us TMr's turned
I know Gillian Clark is fine, though not sure how close or far she is from the
wildfires...
Marieke
--Forwarded Message Attachment--
Date: Sat, 14 Feb 2009 15:21:19 -0800
From: jmh1...@sbcglobal.net
To: tmic-list@eskimo.com
Subject: [TMIC] Aussie Members
Has anyone heard from our Aussie
To unsubscribe follow the directions here:
http://www.myelitis.org/tmic/
Unsubscribe from TMIC-LIST
To unsubscribe from the list, send email to tmic-list-requ...@eskimo.com, with
the Subject unsubscribe. That's all that's needed.
To unsubscribe from the digest, send email to
RE: Camp
It would be nice to have an adult Camp. The symposia is too expensive for
many, and there are no activities many people would like to try, that could be
offered at a Camp.
I also belong to another group for children and adults (and their families)
with a Brachial Plexus Injury and
Yes, depending on WHERE his lesion is/was bladder and bowel problems at a part
of any spinal cord injury, TM Included!
Marieke RN
t...@t1
Date: Thu, 29 Jan 2009 06:56:59 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #74
To: tmic-dig...@eskimo.com
--Forwarded
I am thinking of Jude and family as well.
Marieke
Date: Wed, 21 Jan 2009 15:34:28 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #40
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest Volume 2009 : Issue
I sent them an email, to their account... with links with info and pics.
Marieke
Date: Sat, 17 Jan 2009 10:11:26 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #34
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest
RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5
days. There is no reason to have it more often UNLESS you have a recurring
autoimmune disorder, ie: if your TM is recurring. No point if you had ONE
attack many years ago, it would not change anything now.
I got some
RE: SNOW... for all those of you who LIKE it, please come and TAKE OURS in
Montreal, QC!
I had to go out today and nearly wiped out on the ice! I seriously hate snow
and would love to live somewhere HOT! LOL
Marieke TM @ T1 since March 2004
Date: Fri, 12 Dec 2008 04:17:51 -0800
From:
Hi, sorry to correct you Janh, but I think either you or your neuro was
mistaken..
RE: Banding VS l'Hermitte's sign
These are two different things.
L'Hermittes sign is the name given to an electric shock-like sensation felt.
Typically, the electric shock-like sensation radiates from the neck
Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3
parts.
http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOw
http://www.youtube.com/watch?v=KA-tDVzp5QI
--Forwarded Message Attachment--
Date: Wed, 3 Dec 2008 12:57:59 -0600
From:
re: Solu-Medrol
I had it for 5 days (I think most of us had it when we had the acute attack of
TM). It can cause nightmares, and make you anxious, makes your glucose (blood
sugar) rise, so be careful of what you eat. The side effects disappear once you
stop it though. It's very effective in
What does this have to do with TRANSVERSE MYELITIS?? Please.. let's leave
politics OUT of these massages!
Marieke
Date: Tue, 14 Oct 2008 06:56:48 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #362
To: [EMAIL PROTECTED]
--Forwarded Message Attachment--
tmic-digest Digest
Add me to the October birthday list, LOL. October 14
Marieke Dufresne!
Date: Wed, 1 Oct 2008 07:40:10 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #352
To: [EMAIL PROTECTED]
--Forwarded Message Attachment--
tmic-digest Digest Volume 2008
Hi all,
RE: Discovery Health Show.. I put it up on YouTube for any who want to watch
it. It is in 3 parts.
http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOwfeature=related
http://www.youtube.com/watch?v=KA-tDVzp5QIfeature=related
And I too use TENS. I use it
You need to see a doctor ASAP if you have not had a bowel movement in 2
weeks... GO to the ER now, if you can't get to your doctor today/tomorrow. This
can be very serious.
Marieke RN, TM @T1 since March 18, 2004
Forwarded Message Attachment--
Date: Mon, 14 Jul 2008 12:16:29 -0400
From:
Neurontin = trade name
gabapentin = generic name
Same drug
Marieke RN
TM @ T1, 2004
--Forwarded Message Attachment--
Date: Mon, 7 Jul 2008 07:48:52 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: RE: [TMIC]
I
RE: House episode where Amber dies:
It wasn't the Amantadine that killed her per se though, it is because it is
excreted (gotten rid of) in the kidneys and her kidneys were damaged from the
bus crash. Since her kidneys could not filter out the drug it built up in her
system and turned toxic.
re: Zanaflex.
I have been on it for 4 years, I am on quite high doses of it and it helps,
though I wish I did not havr to take it at all. It really lowers my blood
pressure and worsens my orthostatic hypotension. If you increase your dosage be
sure to do it slowly over a period of up to 3
re: Chicken pox/shingles
Yes, mild case as a child
Yes, very mild case 2.5 months before TM hit
No
Date: Sat, 19 Apr 2008 16:12:33 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #178
To: [EMAIL PROTECTED]
--Forwarded Message Attachment--
tmic-digest Digest
Topics:
[TMIC] med question - meloxicam and [ randy rankin [EMAIL PROTECTED] ]
[TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne [EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 17:02:03 -0700
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC
re: Gaylon Nurisng School
Hi,
I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally
paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO)
brace. I take meds 4x a day, for spasticity, neuro pain, low BP, bowels,
bladder... AND I will be graduating
re Jude... My mom had open heart surgery last year and ended up with an MRSA
infection that attacked the bone (which is called osteomyeltis btw), she had 2
courses of vancomycin, and then 3 rounds of oral meds b/c there was one pocket
that was still filling up with pus and whatnot. MRSA is
re Premature: I was 3 months premaure.. teeny tiny at 2 lbs 5 ounces
Marieke (TM at T1, since March 18th 2004)
Date: Tue, 1 Apr 2008 11:43:46 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #145
To: [EMAIL PROTECTED]
--Forwarded Message Attachment--
tmic-digest Digest
Hi Michelle,
You say that your daughter lost her eyesight? It sounds more like she has ADEM,
or NMO rather than TM, which is similar, but can affect the eyes as well. Has
anyone looked into that?
I hope that you are able to get some answers.
Best wishes,
Marieke
(TM @ T1 since March 2004)
re: Cranberry and Coumadin.
As long as your INR is within the range it is supposed to be in then there is
no problem. Continue doing as you are and advise your MD that this is what you
have been doing for 2 yrs with no problems, but if the INR were to get too high
then you should cut down/stop
Hello all,
I do not post often to this email group (mostly post on the TMA site itself). I
just wanted to share some good news! I got a letter from school (I am in my
3rd and last yr of nursing school) stating that I won the Gail Hodson Award for
Nursing. It's based on clinical
You are welcome...
marieke
From: Regina Rummel [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] Marieke's Spinal Cord Injury Info
Date: Thu, 9 Aug 2007 14:35:38 -0700 (PDT)
The info is great, so easy to read and understand. The graphics are also
great!
Thank you.
R
Hi Natalie,
About the dry mouth, what meds are you on? Many of them have this as a side
effect, especially Ditropan (for the bladder).
Marieke
From: natalie mizenko [EMAIL PROTECTED]
To: Transverse Myellitis tmic-list@eskimo.com
Subject: [TMIC] Anyone else?
Date: Thu, 9 Aug 2007 16:53:19
Hi,
I should introduce myself too. I am 31, I was 28 when I got TM in March
2004. I was paralyzed from the breastbone down too, at T1. I spent 10 weeks
at the Montreal General as I managed to get C.Diff and had some GI problems
after that that had to be sorted out before I was strong enough
The doctor and nurse shortage is worse in Quebec as they are the LOWEST paid
in all of Canada. They are recruited to work in Ontario (nurses are highest
paid there) and the USA especially. And yes, most MDs do not want to be GPs
as they are the lowest paid specialty. I have 4-5 friends who
No, a power chair is controlled by a set speed (the one you choose), it will
not act like a manual chair.
Marieke
From: Kevin Wolfthal [EMAIL PROTECTED]
To: Tmic-list@eskimo.com
Subject: Re: [TMIC] Wheelchairs
Date: Sat, 04 Aug 2007 17:07:22 -0400
Oops, I meant speed of descent. My
59 matches
Mail list logo
