Cheryl, I hope you recover from your “day out” quickly. This is a nasty
disease, but at least it is not terminal.I have 2 friends that will
probably be celebrating their
last Christmas this year and they know it. Just hang on til you start feeling
better.You are strong and can do
Cheryl in Easthampton,MA
Big warm hugs, Cheryl! It's winter and cold. Tonight they said it
would go down to 12 degrees.
The days are short and getting shorter. Darkness comes early. You did
goood to be up and out so early and get all of that done. Be kind to
yourself. Rent a good
Regina, I think that each and everyone of us understands about the fatigue.
As I've said, I've tried so many things - old remedies that I used before TM
that would boast me up to do all my own house repairs, house cleaning, laundry,
yard work while working 40 to 70 hours a week. New
I take none of those meds and experience fatigue.
though for me, this may be about going from super
to normal as I can no longer drink coffee to rev me
up or keep me, nor even tea without care.
TM has given me a heightened sensitivity to
caffeine. I miss coffee a lot.
I missed my at home
I agree with Todd. The fatigue - it is awful. One day at a time. Today
all I did was drive 2.5 hrs to a bigger city, and then turned around and
attempted to drive home. Fell asleep with my eyes wide open, so I pulled
into a Wal Mart parking lot, and slept. One day at a time. Stress = more
Janice,
Just reading about all that you are doing is making me tired.
Hugs, Barbara A in Auburn CA
-Original Message-
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com; Akua a...@artfarm.com
Sent: Sun, Sep 5, 2010 5:34 am
Subject: Re: [TMIC] Fatigue/Cycle
I
: [TMIC] Fatigue/Cycle
Sent: Sep 5, 2010 5:32 AM
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list to investigate.
Thanks for sharing that!
And don't worry worry is a waste of energy. Deep breathe,
envision all the fun you will
have in learning more, hearing more and being
I find that getting up around 7:30am, having my coffee and watching the
Today show for about an hour and then having a fairly
busy morning, fixing lunch for hubby and I, resting for a few hours, fixing
dinner for us and a quiet evening then bed at 10:30pm,
read for about an hour before sleep
With baclofen, I have very little problem with sleep or leg spasms. But,
what is melatonin?
Janice
From: L T CHERPESKI
Sent: Saturday, September 04, 2010 6:11 PM
To: tmic-list@eskimo.com ; Akua
Subject: Re: [TMIC] Fatigue/Cycle
Yep, Akua, can totally relate to everything you said
Good to know.
Janice
--
From: Dalton Garis malugss...@gmail.com
Sent: Sunday, September 05, 2010 3:54 AM
To: Akua a...@artfarm.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Fatigue/Cycle
Warning to all;
Melatonin will absolutely aggravate
differently. Thanks for the
heads up
Linda
- Original Message -
From: Dalton Garismailto:malugss...@gmail.com
To: Akuamailto:a...@artfarm.com ;
tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Sunday, September 05, 2010 2:54 AM
Subject: Re: [TMIC] Fatigue/Cycle
Warning
Sep 2010 14:37:37 -0600
To: Dalton Garis malugss...@gmail.com, Akua a...@artfarm.com,
tmic-list@eskimo.com
Subject: Re: [TMIC] Fatigue/Cycle
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 5 Sep 2010 13:37:21 -0700
Dalton - I'm sorry this happened to you. Do you know others who have had
Yep, Akua, can totally relate to everything you said. Since TM, I have had
such trouble with my sleep, or lack thereof, that I find myself crying at the
drop of a hat - Sleeping pills don't work for me. However, many people have
told me about their positive experience with Melatonin. Out of
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list to investigate.
Thanks for sharing that!
And don't worry worry is a waste of energy. Deep breathe,
envision all the fun you will
have in learning more, hearing more and being in the presence of
those who understand!
I
to me.
- Original Message -
From: Akuamailto:a...@artfarm.com
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Saturday, September 04, 2010 7:32 PM
Subject: Re: [TMIC] Fatigue/Cycle
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list
I take 100mg provigal 2x daily. Works fairly well but is not a magic potion by any stretch of the word.
Larry in Oklahoma where I guess I am fighting a uti, I feel horrible!
Larry Throne, MSW
From: [EMAIL PROTECTED]To: "TMIC List" tmic-list@eskimo.comSubject: [TMIC] fatigueDate: Sun, 24
.
I do believe that fatigue is just another symptom of TM.
Candy K.
-Original Message-
From: Larry Throne [EMAIL PROTECTED]
Sent: Jun 24, 2007 6:42 PM
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] fatigue
I take 100mg provigal 2x daily. Works fairly well
Gary,
The thing that was mentioned earlier was L-Carnitine. I've been using it for a
few weeks, but it's hard to tell since I've got some other things going on
right now (pain) that is keeping me from being very functional. But there have
been a few days when I thought it might be helping. I
I sure don't know--but I am going to the Symposium---I'll try to find
out--You going? Cora in OKla.
I noticed that this summer at the 2nd International Rare Neuroimmunolic
Symposium there is going to be a session on Fatigue in TM and similar
disorders.
In the meantime I just wondered if
more than one doctor has told me that the fatigue is brought
on by the immune deficiency part of the diseases.
T.M. is caused by an auto-immune process, where the immune system attacks the
spinal cord. To my knowledge there is no immune deficiency associated with
this
.-Original Message-From: Krissy Z [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Mon, 29 May 2006 17:58:32 -0700 (PDT)Subject: Re: [TMIC] fatigue
but i thought myelin was our nerve insulator? we have loss of myelin so hence we react to colddidn't think it was fatigue as well
Hello Judy,
You have voiced exactly what my own neuros have told me over this last year. Recently at one of the Devic's sites, someone mentioned Provigil as a possibledrug forfighting fatigue. The thing is, with every drug there are side effects. and unless you are willing to bear down and grit
An explanation in an MS book (recommended for TM people to refer to for exercises) talked about the missing myelin which made nerve transmission slower, which therefore required more energy (since the myelin on the nerves makes nerve transmission more efficient). Although I'm not sure if in TM the
but i thought myelin was our nerve insulator? we have loss of myelin so hence we react to colddidn't think it was fatigue as wellI had fatigue at first but no longer have it, and I take my vitamins and herbal supplements and also my rehab at home exercises. Sure I get stiff and achy in my
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