Kirsteen, Thanks for getting back to me and so quickly. I am being looked at by the medical folks as a hypochondriac even though my complaints are legitimate. It seems as though they either do not know what this stuff is or they aren't sure how to treat/prevent it. It's pretty sad when after being with same doctor for 15 years he decides that he cannot continue to see me and my family any more due to our losing insurance but still able to be cash patients. Stated that we would be considered new cash patients and he is not taking on any more cash patients. Anyhow, the doctor I am now with seems to be a little less narrow-minded and so I want to direct him to whatever information that he could glean to simplify both of our lives. I am sorry that your country has decided to drop funding for the research on this stuff. I was reading a bit ago that over 90% of North Americans have one of the viruses that can cause M.E. yet the doctors seem oblivious to it. Don't want to call it a conspiracy but are they truly that ignorant? I just don't know. Anyway, I will look at these links you sent me and glean as much info as possible for myself and my doctor. It is the closest diagnosis I have seen thus far. I was also wondering if there is a Yahoo Group that has members dealing with M.E. or the like? Please let me know.
Kirsteen Wright <kirsteen.falcons...@gmail.com> wrote: On Sat, Feb 23, 2008 at 4:03 PM, Scott <scottie592...@yahoo.com> wrote: Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic condition that none of my doctors can figure out. This condition M.E. sounds a lot like what I have Hi Scott You could try http://www.mechat.co.uk/ there's a lot of links there. Unfortunately, over here, the psychiatric brigade hijacked the funding for research and of course won't let go so there's very little biomedical research done on it. We're still frequently told it's all in our heads and all we need is some CBT to persuade us we're not ill and we'll be fine. Despite that we're not allowed to donate organs or blood and the changes in the brain stem are showing up on autopsies and it can now officially be given as a cause of death. If you can afford the private tests you can also show the degeneration in the mitochondria, and the ATp / Awhatsits imbalance. As there is so little real research, there are many theories about what causes it but no real proof, therefore no real treatment. Lumping M.E. in with cronic fatigue also blurs the edges since fatigue can occur in so many totally unrelated conditions from depression to post viral illness etc. When I was struck down by it (and I really was felled) I was healthy, exercised regularly, was in a challenging job I loved, ate a wholefood, mainly organic diet, carefully supplemented, practised the Silva method of postive thinking had just moved into a beautiful new flat and generally adored life. Within a couple of weeks I was virtuall housebound, frequently bedbound with horrendous vertigo and a whole catalogue of digestive, cognative and motor complaints. That was 18 months ago, in many ways I'm worse now and haven't worked since. I'm extremely limited in my abilities and any attempt to push the boundaries leads to such loss of muscle control that I can't even stay upright but have to be picked off the floor and carried to bed. On a really good day I might make it out but I'll pay for it by being bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst affected, there are a lot of people an awful lot worse off with it than me. And there has been some improvement on the cognative side. At first I couldn't read more than a paragraph or watch more tan 10 minutes of tv. Now, although I'm nowhere near the level of academic research I used to do for fun, on a good day, I can manage things like emails and sometimes watch a whole program. Just don't ask me to remember it afterwards :-) Hope you find someting useful Kirsteen Scotty (Beam me up, Captain!) --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
