CS kills viruses.   Faith G.
  ----- Original Message ----- 
  From: Scott 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 12:25 PM
  Subject: Re: CS>EIS Immune system booster?


  Kirsteen,

  Thanks for getting back to me and so quickly. I am being looked at by the 
medical folks as a hypochondriac even though my complaints are legitimate. It 
seems as though they either do not know what this stuff is or they aren't sure 
how to treat/prevent it. It's pretty sad when after being with same doctor for 
15 years he decides that he cannot continue to see me and my family any more 
due to our losing insurance but still able to be cash patients. Stated that we 
would be considered new cash patients and he is not taking on any more cash 
patients. Anyhow, the doctor I am now with seems to be a little less 
narrow-minded and so I want to direct him to whatever information that he could 
glean to simplify both of our lives.
  I am sorry that your country has decided to drop funding for the research on 
this stuff. I was reading a bit ago that over 90% of North Americans have one 
of the viruses that can cause M.E. yet the doctors seem oblivious to it. Don't 
want to call it a conspiracy but are they truly that ignorant? I just don't 
know. Anyway, I will look at these links you sent me and glean as much info as 
possible for myself and my doctor. It is the closest diagnosis I have seen thus 
far. 
  I was also wondering if there is a Yahoo Group that has members dealing with 
M.E. or the like? Please let me know.


  Kirsteen Wright <kirsteen.falcons...@gmail.com> wrote:



    On Sat, Feb 23, 2008 at 4:03 PM, Scott <scottie592...@yahoo.com> wrote:

      Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic 
condition that none of my doctors can figure out. This condition M.E. sounds a 
lot  like what I have 

    Hi Scott

    You could try http://www.mechat.co.uk/  there's a lot of links there. 
Unfortunately, over here, the psychiatric brigade hijacked the funding for 
research and of course won't let go so there's very little biomedical research 
done on it. 

    We're still frequently told it's all in our heads and all we need is some 
CBT to persuade us we're not ill and we'll be fine. Despite that we're not 
allowed to donate organs or blood and the changes in the brain stem are showing 
up on autopsies and it can now officially be given as a cause of death. If you 
can afford the private tests you can also show the degeneration in the 
mitochondria, and the ATp / Awhatsits imbalance.

    As there is so little real research, there are many theories about what 
causes it but no real proof, therefore no real treatment. Lumping M.E. in with 
cronic fatigue also blurs the edges since fatigue can occur in so many totally 
unrelated conditions from depression to post viral illness etc.

    When I was struck down by it (and I really was felled) I was healthy, 
exercised regularly, was in a challenging job I loved, ate a wholefood, mainly 
organic diet, carefully supplemented, practised the Silva method of postive 
thinking had just moved into a beautiful new flat and generally adored life.

    Within a couple of weeks I was virtuall housebound, frequently bedbound 
with horrendous vertigo and a whole catalogue of digestive, cognative and motor 
complaints. That was 18 months ago, in many ways I'm worse now and haven't 
worked since. I'm extremely limited in my abilities and any attempt to push the 
boundaries leads to such loss of muscle control that I can't even stay upright 
but have to be picked off the floor and carried to bed. 

    On a really good day I might make it out but I'll pay for it by being 
bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst 
affected, there are a lot of people an awful lot worse off with it than me. And 
there has been some improvement on the cognative side. At first I couldn't read 
more than a paragraph or watch more tan 10 minutes of tv. Now, although I'm 
nowhere near the level of academic research I used to do for fun, on a good 
day, I can manage things like emails and sometimes watch a whole program. Just 
don't ask me to remember it afterwards :-)

    Hope you find someting useful

    Kirsteen




  Scotty (Beam me up, Captain!)



------------------------------------------------------------------------------
  Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.