Are you sure it is not from the effects formaldehyde
poisoning, similar to that experienced by the Katrina
victims in their new FEMA trailers?
Dan
You wrote:
"had just moved into a beautiful new flat"
Kirsteen Wright wrote:
On Sat, Feb 23, 2008 at 4:03 PM, Scott <scottie592...@yahoo.com> wrote:
Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
condition that none of my doctors can figure out. This condition M.E.
sounds a lot like what I have
Hi Scott
You could try http://www.mechat.co.uk/ there's a lot of links there.
Unfortunately, over here, the psychiatric brigade hijacked the funding for
research and of course won't let go so there's very little biomedical
research done on it.
We're still frequently told it's all in our heads and all we need is some
CBT to persuade us we're not ill and we'll be fine. Despite that we're not
allowed to donate organs or blood and the changes in the brain stem are
showing up on autopsies and it can now officially be given as a cause of
death. If you can afford the private tests you can also show the
degeneration in the mitochondria, and the ATp / Awhatsits imbalance.
As there is so little real research, there are many theories about what
causes it but no real proof, therefore no real treatment. Lumping M.E. in
with cronic fatigue also blurs the edges since fatigue can occur in so many
totally unrelated conditions from depression to post viral illness etc.
When I was struck down by it (and I really was felled) I was healthy,
exercised regularly, was in a challenging job I loved, ate a wholefood,
mainly organic diet, carefully supplemented, practised the Silva method of
postive thinking had just moved into a beautiful new flat and generally
adored life.
Within a couple of weeks I was virtuall housebound, frequently bedbound with
horrendous vertigo and a whole catalogue of digestive, cognative and motor
complaints. That was 18 months ago, in many ways I'm worse now and haven't
worked since. I'm extremely limited in my abilities and any attempt to push
the boundaries leads to such loss of muscle control that I can't even stay
upright but have to be picked off the floor and carried to bed.
On a really good day I might make it out but I'll pay for it by being
bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst
affected, there are a lot of people an awful lot worse off with it than me.
And there has been some improvement on the cognative side. At first I
couldn't read more than a paragraph or watch more tan 10 minutes of tv. Now,
although I'm nowhere near the level of academic research I used to do for
fun, on a good day, I can manage things like emails and sometimes watch a
whole program. Just don't ask me to remember it afterwards :-)
Hope you find someting useful
Kirsteen
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