Thank you for sharing, Rob. Hearing/reading all of the stories and 'meeting
all of the new people is pretty exciting to me! I have learned SO much in
the last few weeks and I am so thankful to all of you who have taken the
time to share with us!
Jeanne
-------Original Message-------
From: Robert Pall
Date: 3/26/2008 1:53:51 PM
To: Tracey L. Black; sal r; jrushton; tmic-list@eskimo.com
Subject: RE: [TMIC] UNBELIEVABLE!
Tracey:
It has been more than 10 years for me yet one thing stands out more
than anything else. In my case it was only a matter of hours going from
perfectly healthy to being paralyzed from the waist down. I was in the ICU
at a local hospital in New Jersey and the neuro treating me tells my wife
(even though it turns out she did not have a clue as to what was wrong with
me) that in all likelyhood I would never walk again. She said this to my
wife who was with my 22 year old daughter and 16 year old son. All 3 of them
broke down.....I did not hear this and I truly felt that whatever I had
would certainly get better! After a few weeks I started to get a little
better every day! I worked as hard as I could assuming that if I worked hard
enough I would certainly prove the Doctor wrong...and I did. However that
being said, at the beginning when I had no feeling at all I also had no pain
at all.When some (minimal) feeling started to come back...then the pain
started and has not left me since. I am grateful that I can now walk, but I
never imagined the price I would have to pay...which is 24/7 pain and
discomfort...which will probably be with me my entire life. I try not to
think long term because that would surely depress me.However If I was a
young person like your daughter I would look to the future with great hope
because a cure is on the horizon. How do I know....because Dr. Kerr tells me
so! Keep the faith and never lose hope!
To the group as a whole....if you remember a few weeks ago I complained
that there was to much idle chatter among the members. Over the past few
days the list has shown just how great and important it can and will be! I
thank each and everyone of you for sharing your experiences with me. That is
why I will never unsubscribe under and circumstances.THIS LIST IS VITAL!
Rob in New Jersey
From: Tracey L. Black [mailto:[EMAIL PROTECTED]
Sent: Wednesday, March 26, 2008 1:53 PM
To: sal r; jrushton; tmic-list@eskimo.com
Subject: RE: [TMIC] UNBELIEVABLE!
For my 11 year old daughter, at the time, being told that she would never
walk again was the most devastating news that anyone could ever hear. She
had the mentality, for quite a while, that since he told her that she would
never walk again, then why should she even try to get better. When she
started to see improvement in herself after she started outpatient therapy,
her attitude changed. She became so much more determined to prove him wrong.
If I had to power to rewind and go back in time to February 1, 2005, I don't
honestly think I would change a thing. It was at the point that my husband
and I were not as close as we had once been(I had actually thought about
leaving), I had gained some weight, my 3 children were constantly bickering
and no one seemed happy. One night I was driving home and I prayed that I
would like to be closer with my husband and I wanted my children to get
along better, and if God were so minded, would he please help me lose about
10 pounds. I kid you not, she went down about a week or so after that. My
husband and I became so close that it was hard to say goodbye to him when he
left the hospital at night to go home to care for our other 2 children. My
son(now 19) and other daughter(almost 11) have bonded like you wouldn't
believe and all 3 of my kids sit and talk all of the time now. Sure, they
still bicker, but nothing like they had before. They have all come to value
what they have been given and don't take anything for granted any more. As
for me, yep, you guessed it. I lost 10 pounds while Ash was in the hospital
for those 31 days! For a while after all of this happened, I was so happy
that our family was back the way I wanted it to be but I was also very
guilty feeling, thinking that I had basically asked for this to happen. For
the longest time, I wouldn't even pray. The only thing that kept going
through my head was "be careful what you wish for". I have since started
back up but still am very careful for what I pray for.
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
Thank you for providing information to us. Please beware that no coverage is
bound and no change to your insurance program is confirmed until verified by
a licensed agent during regular business hours. If you do not hear from us
within 1 business day, please re-contact us in case your information has not
been retained.
From: sal r [mailto:[EMAIL PROTECTED]
Sent: Wednesday, March 26, 2008 1:37 PM
To: jrushton; Tracey L. Black; tmic-list@eskimo.com
Subject: RE: [TMIC] UNBELIEVABLE!
the doctors told my parents my heart was gonna stop when that didnt happen
they said i will never be able to move my arms and legs again once i moved
my arms then they said i will never be able to breathe on my again when i
strarted breathing on my own they said i wouldnt be able to move my legs
again once i did theyre jaws dropped and i never seen those docs again...lol
moral of the story dont let a docor tell you...THAT YOU CANT..only you can
determine whether how bad you want it or not!!!!
jrushton <[EMAIL PROTECTED]> wrote:
You know...if it wasn't for our darned stubbornness and tenacity, most of us
would be a WHOLE lot worse, wouldn't we?? One doctor told me I would never
run again. Well, so far, I can only walk like a drunk but my goal is to run
and it probably won't be pretty but I'm going to do it!!! (Darned old
Missouri stubbornness....never leaves you...)
Jeanne
-------Original Message-------
From: Tracey L. Black
Date: 3/26/2008 12:05:23 PM
To: jrushton
Subject: RE: [TMIC] UNBELIEVABLE!
This was also the same neuro that told her, at age 11, that she would never
walk again, so she should be prepared and he looked at us and told us to
make our home handicap accessible. He didn't discuss any of this prior to
talking to her. He just walked in an announced it. Needless to say, we never
went back to see him and SHE IS WALKING!!
He has since left that hospital but is at another facility. If it were
closer to home, I would take my daughter to see him and show him how wrong
he really was.
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
Thank you for providing information to us. Please beware that no coverage is
bound and no change to your insurance program is confirmed until verified by
a licensed agent during regular business hours. If you do not hear from us
within 1 business day, please re-contact us in case your information has not
been retained.
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Wednesday, March 26, 2008 10:17 AM
To: Tracey L. Black; tmic-list@eskimo.com
Subject: RE: [TMIC] UNBELIEVABLE!
What a horrible thing to lay onto a mother during a crisis like this! So
many providers are smart enough to get their degree but not very smart in
the people department! Jeanne
-------Original Message-------
From: Tracey L. Black
Date: 3/26/2008 9:20:25 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; Robert Pall; tm
Subject: RE: [TMIC] UNBELIEVABLE!
We were actually told by one Neuro that my daughter got TM b/c I left
her drink bottled water. He said that something could have gotten into
it during the bottling process.......
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
Thank you for providing information to us. Please beware that no
coverage is bound and no change to your insurance program is confirmed
until verified by a licensed agent during regular business hours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained.
-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Wednesday, March 26, 2008 9:27 AM
To: [EMAIL PROTECTED]; Robert Pall; tm
Subject: Re: [TMIC] UNBELIEVABLE!
> UNBELIEVABLE!
I'm really sorry to tell you that I had no stress in my life, no
antibiotics, no root canals, etc.,etc, before TM hit. I did have a
"summer cold." "summer colds" can be coxaki (?) related and that has
been directly related to TM, I believe.
Almost everyone has stress...
I would make the hypothesis that TM is related to ... Eating any food,
or even better, Drinking water !!
How many of you drank water (in Tea, Coffee, Sodas, Milk, Mixed in O.J.,
Etc.) before being afflicted with T.M.???
I bet we all did!!
Love You
F
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