I have the same issues with my temperature control. It even gets worse when I 
get any kind of infection, then the swings really get bad. The best thing for 
me has been my ceiling fan with a remote control that I had installed in almost 
every room when they built the house in 2003. You can do the same with a floor 
fan from Walmart with the remote control. I keep that remote on my nightstand 
and use it several times during some nights.
     The fan is also great for drying your body after a sponge bath in the bed. 
I wouldn't do without it.........Cody in Austin



Sent from my BlackBerry� wireless device

-----Original Message-----
From: Sharon M <[EMAIL PROTECTED]>

Date: Sat, 29 Nov 2008 10:38:30 
To: <tmic-list@eskimo.com>
Subject: [TMIC] Too Cold


I, too, have the temp issues.� I don't know if that's TM or MS, as MS has temp 
control problems too.� With MS it is usually heat issues.

When I get cold it takes forever to warm up again!� At night I have a have a 
hard time getting the right blankets. If my legs get too hot they will ache and 
it causes bladder spasms.� That's what happened to me last night.� The wood 
stove was too hot before bed and I was miserable all night with pain and 
bladder spasms.� Does that happen to anyone else?� 

I'm sorry, Jude, to hear how bad it is for you.� 

hugs

Sharon






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Jude, 
�
Temperature control is the only thing that my doc said would not return!.......
that said, I have found that silk underwear is the best thing to help.....Silk
is nice to your skin and light weight, so you need fewer heavy blankets!!
�
I get my silks from Winter Silks, which has a 20% off sale right now.� The
web site is:�� www.wintersilks.com
�
Hope this helps!
�
Hugs, 
�
janh in OK


--- On Sat, 11/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:










Hi All,
�
Is anyone else out there suffering from that bone-chilling cold that settles 
deeply into your bones and nothing you do helps to warm you up?
�
I began to get cold earlier in the evening and have had Dave put mega blankets 
on me until they are so heavy I can barely lift them.� I now have a queen sized 
silk blanket doubled on top of all of my other covers on my small hospital bed.
�
This kind of cold came with the Transverse Myelitis and I don't believe it will 
ever go away.� At least there is no kind of medication to warm me up that I 
know of.� Does anyone out there have a clue?
�
I know that some of you have also felt this chilling cold.� What do you do to 
combat it?� It is ridiculous the lengths I go to in order to be able to sleep, 
but am so uncomfortable that I can't.
�
At least I am tired enough to give it a go...
Jude
�





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� Grace,� 
�
Please know that ALL of us are sending vibes to help you make it over
this hump. With all of us pushing, you know that this too shall pass!
You're in our prayers.
�
Hugs,
janh in OK

�
Sorry for being out of touch, but have relapsed.��It is my vision this time.� 
We did an emergency chemo and three days�of IV SoluMedrol and I'll be repeating 
chemo on Devcember 8th.� My vision has not improved much, and I am very 
disheartened.
�
I just had an MRI of the cord, brainstem and brain, about three months ago and 
everything was stable---so, this really hit me out of the blue.
�
Why couldn't it have been simple MS?� Why this?�� We have recently had several 
deaths among our��Devic's Advocacy members and have several more that are in 
terrible shape.� My heart just can't cope with it anymore.� I HATE this.
�
Grace
�
�
I don't have the temp. control issue but I wonder if taking�capsaicin capsules 
might help those who do warm up from the inside I understand you need to build 
up your dosage if you try it.

 Mindy the Artist  
On Nov 29, 2008, at 11:05 AM, Jan Hargrove wrote:
� Jude,  � Temperature control is the only thing that my doc said would not 
return!....... that said, I have found that silk underwear is the best thing to 
help.....Silk is nice to your skin and light weight, so you need fewer heavy 
blankets!! � I get my silks from Winter Silks, which has a 20% off sale right 
now.� The web site is:�� www.wintersilks.com � Hope this helps! � Hugs,  � janh 
in OK
 
--- On Sat, 11/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
 
        Hi All, � Is anyone else out there suffering from that bone-chilling 
cold that settles deeply into your bones and nothing you do helps to warm you 
up? � I began to get cold earlier in the evening and have had Dave put mega 
blankets on me until they are so heavy I can barely lift them.� I now have a 
queen sized silk blanket doubled on top of all of my other covers on my small 
hospital bed. � This kind of cold came with the Transverse Myelitis and I don't 
believe it will ever go away.� At least there is no kind of medication to warm 
me up that I know of.� Does anyone out there have a clue? � I know that some of 
you have also felt this chilling cold.� What do you do to combat it?� It is 
ridiculous the lengths I go to in order to be able to sleep, but am so 
uncomfortable that I can't. � At least I am tired enough to give it a go... 
Jude �


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