i have asked my Dr a couple of times why i have the symptoms with no lesions
and he said it was because of the nerves damaged from the TM
--- On Tue, 11/9/10, Dalton Garis malugss...@gmail.com wrote:
From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] hello out there
To: L T
yeah my DR explained it like a road patch.
you know,,if theres a hole in the pavement and the road crew puts a patch of
asphalt in it instead of replacing the whole road, you can plainly see that
there was a hole there because of the patch.
he said thats what the myelin looks like in the
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my face,one
side gets red and moist,the other stays pale and dry. No one has ever had an
explanation for this.A couple of docs even suggested that maybe I always had
this and just noticed it after tm!
Cheryl in
mixed or misunderstood signals from the brain to the body functions due to the
nerve damage.
kinda odd when i flew to fort knox KY i had to fly to PA to catch that
flight.
if i had missed the PA connection i would not have made it to fort knox.
i think the brain works the same way. if
I got tm at the thoracic level (T4-5),but when I perspire on my face,one side
gets red and moist,the other stays pale and dry.
WoW- what a stumper
I will look in my books.
Question?? On which side of your spinal cord is your lesion ( for instance my
lesion is at C5 +6 on the right,
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:
From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday,
I also have the problem for voiding. I have learned something that helps most
of the time - bending over like touching you feet. This seems to put pressure
on the bladder forcing voiding!
Life is short! Break the rules! Forgive quickly! Kiss slowly!
Love truly, Laugh uncontrollably .
And
Okay, guys, I think that we are all getting a little different answers to our
questions when talking to the doc's.I wonder if some of the answers aren't
just
spur of the moment replies, because they aren't sure and want to give an
answer. Remember how rare TM is.
Maybe Dr. Frank should
Just noticed it after TM?Give me a break. My face is really sweaty when
it hits too.
Janice
From: rn11...@yahoo.com
Sent: Wednesday, November 10, 2010 8:30 AM
To: tmic-list@eskimo.com
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level
I agree.Sure would be a money-making endeavor for a scientist.
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 9:10 AM
To: transverse myelitis
Subject: Re: [TMIC] {TMIC}sweating
mixed or misunderstood signals from the brain to the body functions due
to the nerve
I have painful arthritis in my lower back and my pain management doc says that
the TM aggravates the arthritis and the arthritis aggravates the TM.I bet
it is
the same way with you.I also get injections in my back for pain.How
often do you get an injection?
Janice
From: Carol E
I also have the residuals as Linda mentioned...burning, banding, weakness,
bladder control. Sometimes I can void normally (pre TM) and other times I have
to sit on the pot for 5 minutes to void. I feel like I am about to burst, but
nothing comes out. I wiggle and wiggle and finally a slow
Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work. Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a
real wetting problem and then I can go for a
You are right, that helps.Also, blowing your nose does too! I void
completely when I go, but apparently make a lot of urine late at nite.
Janice
From: CANDIS KALLEY
Sent: Wednesday, November 10, 2010 10:28 AM
To: tmic-list
Subject: Re: [TMIC] hello out there
I also have the problem
Hi Frank,
My lesion was across the whole cord;neurologist said it was extensive. He
thought the fact that I got to walk again was very surprising. Plus apparently
abrupt onset usually means less recovery (according to him).
Cheryl
--- On Wed, 11/10/10, fr...@franksheldon.com
mixed or misunderstood signals from the brain to the body functions due to the
nerve damage
John,
I understand that. But,the lesion being thoracic (chest) means I should only
be affected below that level-not anywhere above it. The numbness is still from
that level (T4) down,with a few
I have my thermostat set at 68 degrees. I sleep with long johns and socks.
Pretty picture, huh? I will wake up sweating on my face and turn on my ceiling
fan, then I get cold and turn off the ceiling fan and this continues through
out the night. Good thing I only sleep with pillows. And
I also have a big problem staying dry during the night. Even though I do wake
at least once during the night, and sometimes twice to go potty. I am on
oxybutynin and it works pretty well during the day, but night is another story.
I thought it was just me, but I guess it is a problem with
I have been totally confused about the sweating issue ever since TM hit me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head
and when I sweat, I sweat profusely, I mean to the point that it drips off my
nose and down the sides of my head...
I sweat no other
Sorry, I forgot
That post was from me
Kevin
N.E. Ohio (Canton)
From: rn11...@yahoo.com rn11...@yahoo.com
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level
With the exception of my face, I don't have any problems staying dry at night.
I very seldom get up during the night to go to the bathroom...maybe once a
month I have to get up. When I get up in the morning, I don't usually have the
urge and can't go even if I try. Then after 2 cups of
As well all know...we are a very special group of people. :)
Carol
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
Date: Wed, 10 Nov 2010 09:42:32 -0800
From: hwyfli...@yahoo.com
Subject: Re: [TMIC] {TMIC}sweating
To: rn11...@yahoo.com;
Let's face it, we are all screwed up from TM
Janice
From: rn11...@yahoo.com
Sent: Wednesday, November 10, 2010 10:59 AM
To: john snodgrass
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
mixed or misunderstood signals from the brain to the body functions due
to the nerve
Kevin,
Really weird;since you were hit at the lumbar level you shouldn't have
problems above that area. Did any doctor ever give you an explanation?
Cheryl
--- On Wed, 11/10/10, kevin weilacher hwyfli...@yahoo.com wrote:
From: kevin weilacher hwyfli...@yahoo.com
Subject: Re: [TMIC]
Nope, he's just as confused as I am... lol
I was under the impression that most people were affected below the area of
their lesions too
My neurologist..( and he's good, don't get me wrong) has called me his medical
mystery because of all the odd things that have occurred with me.
Kevin
I have found that sleeping in a cotton summer gown all winter with the ceiling
fan on low helps a lot.We have our thermostat set at 60 at nite.If I
wear
something heavier, or use too warm a blanket, I wake up sweating.I have
also found that when I bring up the blanket from my feet
Ditto! Janice
From: kevin weilacher
Sent: Wednesday, November 10, 2010 11:42 AM
To: rn11...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit me
My lesions are L4, L5 and S1 and now since TM,
This is a really nasty part of TM. Hate it! Janice
From: Carol E
Sent: Wednesday, November 10, 2010 11:45 AM
To: jan...@centurytel.net ; tmic-list@eskimo.com
Subject: RE: [TMIC] hello out there
With the exception of my face, I don't have any problems staying dry at night.
I very
Nothing like a sense of humor!!Janice
From: Carol E
Sent: Wednesday, November 10, 2010 11:47 AM
To: hwyfli...@yahoo.com ; tmic-list@eskimo.com
Subject: RE: [TMIC] {TMIC}sweating
As well all know...we are a very special group of people. :)
Carol
Worrying does not empty
that is rather confusing.
then again so is TM
i believe,,,now it's just my openion,that the information they give us that
they feel is concrete is information that is common to many.
more than likely there are exceptions to every case
--- On Wed, 11/10/10, Carol E
kinda sounds scary~~~
--- On Wed, 11/10/10, kevin weilacher hwyfli...@yahoo.com wrote:
From: kevin weilacher hwyfli...@yahoo.com
Subject: Re: [TMIC] {TMIC}sweating
To: rn11...@yahoo.com rn11...@yahoo.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:42 PM
I have
another strange thing i have experienced is i would feel something wet like on
my leg or somewhere and think ,,what the heck,,then i would do what comes
naturally,put my hand there, and it would be dry where it felt wet.
even felt sweat going down my side when nothing would be there.
good ole
and almost treated as such,,,mutants
--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:
From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] {TMIC}sweating
To: hwyfli...@yahoo.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:47 PM
As well all
couldnt have hapened to a better bunch though--- On Wed, 11/10/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.netSubject: Re: [TMIC] {TMIC}sweatingTo: rn11...@yahoo.com, "john snodgrass" jcs...@yahoo.comCc: tmic-list@eskimo.comDate: Wednesday, November 10,
my temp changes from 3 am to 4 am,my furnace doing as it always does but at 3 i
am warm and at 4 i am freezing with covers
--- On Wed, 11/10/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] {TMIC}sweating
To: Carol E
I have been reading all your posts about sweating, and I guess I am an odd
case. I don't have any problems with hot weather. I have always sweat more
in my hair than anywhere else, even before TM. My problem is the cold. I
am always cold so I guess that is why the hot weather doesn't affect me
Patti,
It's true, your internal thermostat is out of whackeven though my head
sweats...my legs can't stand the cold, or even cool weather.
My feet are also problematic...they get cold very easy and stay cold for a
long,
long time.
Kevin
N.E. Ohio (Canton)
I sure believe that! (Internal thermostat not working properly).
Carol
From: patticoole...@gmail.com
To: jan...@centurytel.net; hwyfli...@yahoo.com; rn11...@yahoo.com;
tmic-list@eskimo.com
Subject: RE: [TMIC] {TMIC}sweating
Date: Wed, 10 Nov 2010 12:31:56 -0600
I have been
After 13+ year the only thing that really increases my discomforts is
rain and or high humidity. Hot and cold have no more effect on me now
than before TM. It just continues to show that despite our similarities
no two of us are exactly the same.
Rob in New Jersey
That happens to me also.Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 12:17 PM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
another strange thing i have experienced is i would feel something wet
like on my leg or somewhere and think ,,what the
Mine certainly isn't! Janice
From: Patricia Cooley
Sent: Wednesday, November 10, 2010 12:31 PM
To: 'Janice Nichols' ; 'kevin weilacher' ; rn11...@yahoo.com ;
tmic-list@eskimo.com
Subject: RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an
I am that way too. My legs can't tell temperature, but I can put an afghan
over them and it feels good.Janice
From: kevin weilacher
Sent: Wednesday, November 10, 2010 12:45 PM
To: Patricia Cooley ; Janice Nichols ; rn11...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC]
re bladder problems I also had such difficulties voiding; until I went to my
urologist. he prescrice flomax. which has helped. having had chroinc mylelopaty
I know the pain and disscomfort bladder problems can cause
Date: Wed, 10 Nov 2010 08:43:08 -0800
From: tmic-digest-requ...@eskimo.com
You're not alone.
I am cold-- right now at home have one two shirts, hat, sweater. Will
make some hot water to warm up.
Thermostat is at 74 and had my house insulated this summer.
I sleep with three shirts, sweater, two hats, as well as layers of blankets.
One part is Tm another part is what
Hi Cheryl,
I don't write in often but when you mentioned that you should only be affected
below the level of the lesion I thought I should respond. My TM episode hit me
5 years ago at T12/L1. However, the damage from the TM attack left me with
neuropathic problems right to the top of my
Rob,
There again, heat and high humidity...and changes in barometric pressure (I can
tell a storm coming a day in advance..lol) give me fits...
You are so right though, one thing I have noticed in all the posts I have read
since TM hit me (May 2008) is how different TM affects so many of
You sleep with TWO hats? I think you were just seeing if anyone was reading
your notes.
Alton
On Nov 10, 2010, at 3:17 PM, Akua wrote:
I sleep with three shirts, sweater, two hats, as well as layers of blankets.
here is another strange twist,
since the weather has cooled off considerably i have had a bad time.
however,when i get in a hot shower my muscles spaz out like i have run 10 miles.
cant win for spazing.
--- On Wed, 11/10/10, Patricia Cooley patticoole...@gmail.com wrote:
From: Patricia Cooley
had another strange thing today,,my knees were freezing,,,everything else was
ok but the knees even felt cold to the touch.
im not even gonna ask what else can get strange with this mystery
--- On Wed, 11/10/10, kevin weilacher hwyfli...@yahoo.com wrote:
From: kevin weilacher
i have to watch my emotions when i see the dates many of you have fought with
this thing.
my mind keeps looking for some healing.
that may just happen,but after almost 3 years,doesn't look likely.
--- On Wed, 11/10/10, Robert Pall rp...@neillsupply.com wrote:
From: Robert Pall
I am most annoyed when people tell me how i should advocate for myself.
One can only ask for what one knows to ask for.
I knew I needed a blood test and insisted on it last spring from which
the doctor told me that i was anemic, and Vitamind D deficient.
Thanks doc, for bothering to find that
glad you did.
since i was told that my attack was low, iasked why was i numb from the top of
my head to the bottom of my right foot.
coincedent was the answer.
i didnt buy that but didnt argue.
--- On Wed, 11/10/10, Louise Croyden louisecroy...@cogeco.ca wrote:
From: Louise Croyden
Some of these nite-sweats are related to the medications. Before TM I
sweated at night because I took medications for other conditions. It didn¹t
get worse when I got TM so I would sugest we look at the medications for an
answer to at least some of these nite-sweat problems.
Dalton
From:
My head is also cold all the time; and I have a wet patch on mu=y left leg.
It will suddenly feel as if it is wet, but it is only in the nerves. But I
wear a hat almost all the time now.
Dalton
From: Alton Ryder a-ry...@comcast.net
Date: Wed, 10 Nov 2010 16:34:16 -0500
To: Akua
When I get out of the shower, my legs are at their strongest.Lasts about 20
minutes. Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 4:38 PM
To: Patricia Cooley
Cc: transverse myelitis
Subject: RE: [TMIC] {TMIC}sweating
here is another strange
One of my husbands first symptoms was night sweats. The first time it
happened I thought he had wet the bed because I couldn't believe that
someone could sweat that much. This continued off and on for about 4 months
before any other symptoms occurred. He was treated with steroids and the
night
I remember thinking this is for the rest of my life.I said this over and
over to myself, still in a kind of disbelief that this had happened to me.
It is a constant battle
with the body, new problems developing periodically, but I am still here and I
am the same person that I was
Re: [TMIC] {TMIC}sweatingI think that may be part of the problem too, but lack
of control of body temperatures is a part of TM too.
Janice
From: Dalton Garis
Sent: Wednesday, November 10, 2010 9:53 PM
To: kevin weilacher ; rn11...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC]
Re: [TMIC] {TMIC}sweatingThat is interesting.Maybe I need to request that I
get on steroids.
Janice
From: Emily
Sent: Wednesday, November 10, 2010 10:09 PM
To: tmic-list@eskimo.com
Subject: RE: [TMIC] {TMIC}sweating
One of my husbands first symptoms was night sweats. The first time it
Wow, that is so much like me. When I was discharged from the hospital in
2009 after having been there 4 months, I was frantic. I had been discharged
with a rental chair and to a new apartment (previous residence was an
inaccessible townhouse) and newly single.
I remember the desperation of trying
Okay, what in the is the Zumba craze?
Janice
From: Laura Beaudin
Sent: Wednesday, November 10, 2010 10:42 PM
To: Janice Nichols
Cc: john snodgrass ; transverse myelitis
Subject: Re: [TMIC] {TMIC}sweating
Wow, that is so much like me. When I was discharged from the hospital in 2009
It's a newer form of aerobics that uses dance. These videos were made by my
cousin.
http://www.youtube.com/watch?v=mWMB0X2lhkU
http://www.youtube.com/watch?v=Q0OWcFFHYYk
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Wed, Nov 10, 2010 at 9:47 PM,
62 matches
Mail list logo
