Oh I forgot to mention that you can't take any opiate pain medications while on
LDN but you can take everything else. If you have MS you can't take most of
the disease modifying drugs with LDN.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when
I have burning pain when I lay down too. It's been going on for a year. I
have been on as much as 3200 mgs. of Neurontin a day and it did nothing for
that leg pain. I take 80 mg. of Baclofen for the spasticity. I take Cymbalta
and that has helped. I took Lyrica but had a side effect that
://health.groups.yahoo.com/group/MSersLife/
- Original Message
From: Sharon Marsden [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Thursday, November 9, 2006 9:17:50 PM
Subject: [TMIC] tingling pins/needles spreading in leg
Hi everyone:
My left leg is always my weaker leg. And I always have
I've been on Cymbalta since June and it has helped but I still had severe nocturnal leg pain. I just started on Lyrica and I have seen a marked difference in my pain level. Currently I'm on 75 mg. twice a day but that will be evaluated at my next appointment. I'm so sorry your son has such severe
Hi everyone:My left leg is always my weaker leg. And I always
have numbness and strange sensations. But yesterday morning my left
foot started tingling in a different way with pins/needles. It was
uncomfortable to step down, but not painful. Now it's spreading up my
leg and is up to my upper
Thanks. Three times a day? Did you start at that dose or didthedocs increase it?
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
- Original Message
I had the EMG on my legs finally. Ihave been putting it off since January. I had already been told by one neuro that I had peripheral neuropathy and (as he abruptly walked out the door) "I can guarantee this isn't from MS because MSpain is not symmetrical".So I ditched that neuro and I went back
Hi Anne:I understand your problem. I am "fortunate" to have my SSDI as well as a retirement check each month from my employer. If I didn't have that additional income I would qualify for all kinds of help and services. But since I am so lucky I get to pay high co-pays and I have to do without some
Do you know about these? They both have programs for many different disorders or diseases and will provide meds at no cost and will also pay co-pays or will pay during the "gap" period with Medicare Part D. National Organization for Rare Disorders, Inc (NORD) in Danbury CT. 1 866-924-0100Patient
to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/- Original Message From: Sandy Heidel [EMAIL PROTECTED]To: Sharon Marsden [EMAIL PROTECTED]; L T CHERPESKI [EMAIL PROTECTED
I have something fairly new going on and I'm wondering if anyone here has any info about it. I'm having difficulty talking very loud. My "voice" hurts and when I talk very loud my upper throat, under my jaw and head hurt. I know voice modulation problems happen in MS but I'm wanting to hear from
Title: AOL Email
I would like to see the fanfare. Why don't you send it again? We've all missed you!Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/-
Krissy:That sounds just like what happens to me. I have Congnitive Dysfunction and as part of that I have memory problems and trouble with word retrieval. Hang in there. It's not fun, is it? Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse
Maybe the shooting pain in the side of the headis Trigeminal Neuralgia?Forgive me but I can't remember if the two of you who have the shooting pains in your head are considered to be possible MS or not.I was diagnosed with Trigeminal Neuralgia in the ER in Homer Alaska.Now I find out that 38%
That's when I had my TM attack. Labor Day Weekend 1997.While watching the news about Princess Diana's death.
But I didn't know it was all because women, not men, have to go through the birthing process. Thanks for the enlightenmentFrank. LOL
Sharon --from Arizona TM 1997 to MS 1998
It's
I have long had the banding or girdling around my ribs. But for the last week it's been worse than ever and I am in so much pain.I take 3200 mg. of Neurontin a day, 70 mg. of Baclofen, Cymbalta andKlonopin. I put in a call to my neuros office yesterday but have not heard from himyet.
What helps
Thanks Jim for sending this. I have a member on my MS list who has been complaining about not getting her mail from my Yahoo group. So maybe Comcast is doing the same thing with Yahoo groups.
I hope things are okay with you?
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my
I have copies of all of my MRIs except the firstset in 1997. I wish I had known then to ask forcopies because that medical facility went out of business and I was never able to track down the location of the films. My doctorsnow would really like to see those first films.The last set of MRIsI
Have you seen the latest commercial from NetZero? They say you can keep your AOL address but go with Net Zero for your internet connection. I don't have either Net Zero or AOL but since you mentioned AOL I thought I would tell you.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my
I'm wondering too. What's the deal with this? I'm not clicking anything unless I know what it is.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
-
1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
- Original Message From: Jenna Stentz [EMAIL PROTECTED]To: Natalie Boyles [EMAIL PROTECTED]; Sharon Marsden [EMAIL PROTECTED]Cc
I know someone talked about this on the list recently but I can't find it. I have a dear friend who was first dxed with TM and now with MS andher feet and lower legshave been swelling, especially onher weak side.I'm sure some of you will remember Jackie Hanan?Jackie and I met on this list years
Are there brain lesions in TM?
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer.
- Original Message -
From: Sharon Marsden
To: tmic-list@eskimo.com
Jude: I can't remember are you on Medicare too? If so call them and see what they say about this.Tell me what state you are in and I'll see what help I can find for you. I used to work in Social Services before TM/MS hit me and I might be able to find something that would help you.
hugs)))
That's great news Kathryn! I just started on Baclofen in January and I sure wish I'd had it sooner, too.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
After I was dxedwith MS I stayed on the TMIC for a while then I left because I felt I didn't really belong and I started an MS group.The MS group is great for info and chatting and fun with other MSers but when I was in such distresslast winter I came back to TMIC. I felt at home again.(thanks
Some months after my TM attack I was walking into a doctor's office to see a different doc to rule out morediseases.(lol) Anyway this office has a longwalkway with mirrored doors at the end going into the lobby. I was wobbling alonglooking at those mirrored doors and saw a woman reflectedin the
Maybe you aren't taking enough? I take 80 mgs. a day and I take a Klonopin too. Baclofen helps me but the Klonopin combined with it makes it work better.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
Has anyone tried Cymbalta? I've been on it for about a month and my severe nighttime leg pains and my pain level has probably been cut to 1/3 of what it had been.I take 60 mgs.of Cymbaltaatbedtime, with 60 mg. of Baclofen, .5 Klonopin and 800 mg. Neurontin.It's been such a relief to get some
PROTECTED]To: [EMAIL PROTECTED]; Sharon Marsden [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Saturday, August 5, 2006 6:35:53 AMSubject: Re: [TMIC] Fwd: Anybody aware of this medicine? Pls note bold, big and underline info.
I started taking Effexor, an equivalent to Cymbalta, six weeks ago.It helped
I was hit with TMon Labor Day Weekend 1997. I sat on the couch watching the news about Princess Diana's death and wondering what was wrong with me. I thought I must have pinched a nerve or something. I became totally numb from my lower ribs on theleft side to the tips of my toes, as if I had been
Yes.My doctor gave me samples of Cymbalta. I started it about 3 weeks agoand I am seeing a difference in my leg pain. I've been having severe burning aching leg pain, especially at night. I take the Cymbalta at bedtime and I am sleepingbetter. I still have pain but it's better. Now I just have to
Was your last one done under flouroscopy? I had mine done that way and there was no bending involved. I was a basket case because I was scared to death to have it done at all. But it really wasn't as bad as I expected. I drank lots of water for several days before, the day of and the day after.
Interesting! Thanks for sending that. I'm going to share that with my MS group. I had heard there was a trial of some sort combined with Copaxone but I didn't have the details. Sharon http://health.groups.yahoo.com/group/MSersLife/ Westgold [EMAIL PROTECTED] wrote: Back to Story - HelpDrug
Hildred:If you need help please call Adult Protective Services. If you aren't being cared for then you are being abused. Tell them everything and ask for help. Good luck and please let me know what happens.Hugs))) Sharon [EMAIL PROTECTED] wrote: I understand exactly how you feel
Krissy:I have access to a tape that might help you. I run a large MS support group online and we have tapes/cds done by a former Social Security Judge in our lending library. It was taped from a seminar he did for the National MS Society chapter here in Arizona. If you want to borrow please
Welcome to MS Carol. smilingI'm sorry you have MS but I'm glad you have a diagnosis so you can start treatment.I was on Avonex for years. I did well with it with minimal side effects. It 'smoothed out' my symptoms and I felt so good that I was convinced I no longer needed it. So I quit
What do you take, or do, for spasticity? I have been waking at night with my legs stiffened out like logs. I have to consciously work at bending my knees and getting my legs to move. I take 40 to 60 mgs. of Baclofen at bedtime and another 20 during the day. Just wondering about asking for some
and other meds from the manufacturers for free on their patient assistance programs. Ah progress! lolSharon[EMAIL PROTECTED] wrote: SharonI recently signed up for Medicare D I use the generic gabapentin in place of Neurontin. It is much cheaper. I signed up under AARP. Patti Sharon Marsden
Carol:What was your TM attack like? What kind of symptoms do you have from it?SharonSharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/
Did I already ask this? I have developed a very dry mouth over the past 4 months. I started Baclofen in January. I've researched and haven't found a connection between Baclofen and dry mouth. My doc had me tested for Sjogren's and, thankfully, it was negative. I've seen research showing that
- Forwarded Message From: CDER MEDWATCH LISTSERV [EMAIL PROTECTED]To: [EMAIL PROTECTED]Sent: Tuesday, May 16, 2006 9:02:20 AMSubject: FDA MedWatch - February 2006 Safety Labeling Changes Posted MedWatch - The FDA Safety Information and Adverse Event Reporting ProgramSafety-related
And I always thought TM was worse. So go figureAlthough lately MS has been kicking my butt :) Sharon TM 1997 to MS 1998ROGER C PRATT [EMAIL PROTECTED] wrote: She somehow thinks that MS is worse. Got me???- Original Message - From: Sharon Marsden To: ROGER C
Great information. Thanks to Roger and to Terese!Roger, why did you say "Mine is just relieved that this isn't MS"? Sharon TM 1997 to MS 1998ROGER C PRATT [EMAIL PROTECTED] wrote: My wife works for Social Security and she says: Hi Sally, As a disability claims representative,
So how are you feeling now? How's the pain level now? Sharon[EMAIL PROTECTED] wrote: Thanks everyone who encouraged me to see a chiropractor! I finally went yesterday, and am really encouraged. (My neuro had told me not to go.) I consider myself especially lucky to have found one who
What can the endocrinologist help with (besides telling me to stop caffeine)? (FINGERS IN EARS) I can't HEAR you!Sharon. who is a confirmed coffee addict TM 1997 to MS 1998 [EMAIL PROTECTED] wrote: I had a bone density test two weeks ago and now have an appointment with an
Hi Sally:You worked for the state? Were you on short-term or long term disability through your employer? And now it's running out? I was also a state employee (Arizona). If you apply for SSDI will you also receive retired/disabled income from your state employment? I don't know anything about
Frank:I just saw something about Sativex being in trials in UK. But you get it now? How can you get it filled at a US pharmacy? You must be in a medical marijuana state. How would a person not in such a state do this?Thanks Sharon (Arizona) TM 1997 to MS 1998"[EMAIL PROTECTED]" [EMAIL
Hey BobbyJim:I'm afraid of it. I was pretty convinced I would try it but the latest comments from the doctor who was instrumental in the creation of the drug changed my mind. I'll have to see if I can find it for you if you are interested.I want to try something else because MS is kicking
I'm SO glad to hear such a positive story! What a relief for you.When I first moved to Alaska I was hit with a sinus infection (and the resulting vertigo) andpicked a doctor out of the phone book. I thought "oh man... he's probably not gonna know anything about MS or the other stuff I have
Hello to all of you! I want to thank you all again for making me feel welcome back here at TMIC. I was so distraught when I re-joined and your kindness really made the difference for me.I'm sleeping better at night now. TheBaclofen has been increased to 40 mg. at bedtime and I can take another
I missed the part telling how much you have lost. PLEASE! lol This is interesting because my 36 year old daughter is a big gal like me. She started taking fish oil about a year ago and she's probably lost 100 pounds! She said she hasn't gone on a diet at all. H I'm gonna get me some
It doesn't make me groggy. If I still drove I would be more careful with that statement though. lol I take 3400 mg. a day. I have to have something to help with the pain of Trigeminal Neuralgia besides the regular MS/TM type stuff.SharonKrissy Z [EMAIL PROTECTED] wrote: my dose is the
I was under the impression that the seizure risk only applied if a person was taking the medication for seizures. SharonKrissy Z [EMAIL PROTECTED] wrote: Well, I was under the impression I was on a low dosage, since I take only half of it, (300 mg) once a night. both dr;s have said I was on
I also have tablets. It's the brand name Neurontin. I have had capsules before though too. I can't remember how my generics came. I've been getting Neurontin brand for free from the manufacturer but now I have insurance again so I'll be getting generics.SharonLanora Hodgson [EMAIL PROTECTED]
Frank:That's scary. Thank you forsharing your knowledge on this subject. What other medication would do the same for me? (not the seizures but the benefits LOL)Sharon"[EMAIL PROTECTED]" [EMAIL PROTECTED] wrote: I was under the impression that the seizure risk only applied if a
away.Destiny is no matter of chance. It is a matter of choice. It is not a thing to be waited for, it is a thing to be achieved. ·.»§« ·´¯`·.,¸*¸,.·´¯`·.»§«·.»§« ·´¯`·.,¸*¸,.·´¯`·.»§«·. Sharon Marsden [EMAIL PROTECTED] wrote:I ! was under the impression that the seizure risk only applied
I have cried and cried (and smiled a bunch, too) after reading the responses here on TMIC to my first post several days ago. I'm sending hugs back to each of you. Thank you, thank you, thank you! I know that you folks here understand the pain and difficulties. I'm so glad I came back to TMIC!
My best friend had the baclofen pump. Shannon also had MS. She had both the baclofen pump and a pain pump. She said it helped her a lot but she was still in terrible spasms--body wrenching spasms--that scared the heck out of me. She did believe in the baclofen pump and said it was a great thing. I
Thanks for sharing your opinionson Neurontin (even though you weren't writing to me...lol). But, I know it has helped me. I also have Trigeminal Neuralgia andNeurontin has helped with that. I've done without it and there is definitely a difference with it. Sharon"[EMAIL PROTECTED]" [EMAIL
to taxes that may be imposed upon the taxpayer.- Original Message - From: Sharon Marsden To: Sent: 2/21/2006 4:21:36 PM Subject: [TMIC] New here but old here, tooHello to all:I doubt anyone here will remember me but I used to belong to this group years ago. I
Hello to all:I doubt anyone here will remember me but I used to belong to this group years ago. I was diagnosed with TM after a major attack the Labor Day weekend when Princess Diana died (1997). Then thefollowing year I wasdiagnosed with MS and, feeling I didn't belong here any longer,Ileft
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