...@comcast.net ;
beans...@aol.com ; hart...@comcast.net ; flynch8...@gmail.com
Subject: RE: [TMIC] Baclofen Pump
Hi Rob,
I can’t wait to hear you say your pain is greatly reduced or gone.
I had my pain pump (same pump) put in on June 5th. I was uncomfortable for
about 3 days
Hi Rob,
I can't wait to hear you say your pain is greatly reduced or gone.
I had my pain pump (same pump) put in on June 5th. I was uncomfortable for
about 3 days, then the surgical areas felt so much better. You can't do
much but hang out, I organized all my screws, bolts, nuts, etc.
Rob, so glad you are taking the plunge! I did that for my nerve implant and
it is the best thing I ever did.Good luck and keep us informed.
Janice
From: Barbara H.
Sent: Friday, March 01, 2013 10:46 AM
To: Robert Pall ; tmic
Subject: Re: [TMIC] Baclofen Pump
I'm so glad the trial
, March 03, 2013 5:27 PM
To: Barbara H.; Robert Pall; tmic
Subject: Re: [TMIC] Baclofen Pump
Rob, so glad you are taking the plunge! I did that for my nerve implant
and it is the best thing I ever did.Good luck and keep us informed.
Janice
From: Barbara H. mailto:barbara...@gmail.com
.
Hence moving on to the morphine pump trial.
Make it a great day,
Deb
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Sunday, March 03, 2013 5:27 PM
To: Barbara H.; Robert Pall; tmic
Subject: Re: [TMIC] Baclofen Pump
Rob, so glad you are taking the plunge! I did
From: Deb Monteleone
Sent: Sunday, March 03, 2013 6:47 PM
To: 'Janice Nichols' ; 'tmic'
Subject: RE: [TMIC] Baclofen Pump
Janice,
Sorry if you wrote about your nerve implant already but I can’t bring it to
mind. Seems to happen a lot to me. What does it do for you?
When I went to one
I'm so glad the trial went so well for you! I hope you have good results
with the surgery.
Barbara H.
On Fri, Mar 1, 2013 at 11:24 AM, Robert Pall robthe...@aol.com wrote:
I went for the trial for the Baclofen Pump a few weeks ago and I was
amazed at the result. After injecting a small
Hi Rob - I went for the trial also. The doc put a lot of Baclofen in my spine
and I became a paraplegic for 2.5 days, which really turned me off. I ixnayed
the pump. I take 10 mg of Baclofen, any more and I get very weak, have a hard
time standing. My neuro wanted me to get Botox shots in my
A brave decision. I hope you get a good result Rob.
Iris UK
Sent from my iPad
On 1 Mar 2013, at 16:24, Robert Pall robthe...@aol.com wrote:
I went for the trial for the Baclofen Pump a few weeks ago and I was
amazed at the result. After injecting a small dosage of Baclofen directly
Sent: Saturday, February 23, 2013 9:22 PM
Subject: RE: [TMIC] Baclofen pump
OMG Lynn!! How often must you get it filled? I would pray to God that wasnt
every month. I think my doctor said like maybe every 3 months but IDK, I
couldnt afford that. Rob I hope you can get it and NOT have that cost
To: lynnemye...@yahoo.com
Sent: Friday, February 22, 2013 9:09 PM
Subject: Re: [TMIC] Baclofen pump
Lynn, I had no
idea we would have to pay each time
the pump needed to be
refilled. Is that a standard thing? What kind of insurance do you
have? That really scares me because no one
2013 16:36:52 -0800
From: lynnemye...@yahoo.com
Subject: Re: [TMIC] Baclofen pump
To: robthe...@aol.com; tmic-list@eskimo.com
Rob I have had a pump for quite a few years now, I use it to control clonus in
my legs. The only down side I have found is the cost involved with getting the
pump filled
Rob I have had a pump for quite a few years now, I use it to control clonus in
my legs. The only down side I have found is the cost involved with getting the
pump filled. Even with insurance my co-pay is over $600 every time I have to
go in.
From: Robert
Doesnt sound like a bad decision to me, I am thrilled for you. I was to have a
baclofen/dilaudid pump placed but due to constant infections I have to be re
evaluated and reconsidered. Best of luck Rob!! So glad you had really good
results with it!!
Amy in Ohio
To: tmic-list@eskimo.com
From:
Rob you have to do what you think is best and if its the Baclofen pump then go
for it.
Good luck, keep us posted on how it goes.
Nikki.
Durham, UK.
Sent from my iPad
On 17 Feb 2013, at 11:33, amy shultz mic...@hotmail.com wrote:
Doesnt sound like a bad decision to me, I am thrilled for you. I
Only time will tell you if the decision was right or not. I had the same
feelings before I had my nerve implant put in, but it could not have been a
better decision. If you do not try it,
you would always wonder how much it would have helped you.This way, you
will know. Trying
Sorry I didn't respond sooner. I have had my pump for a few years now. It
works very well to control the spasms without the brain fog I got from taking
the baclofen orally. At this point it is regulated well enough that I only
have to get it filled twice a year because they were able to
I've had a pump for 11 years. I'm on my second.
It works very well; when the reservoir is low my legs start yanking during the
day.
I also take 16 mg of tizanidine PRN at bedtime if I'm twitching, maybe twice a
week.
Do a Google search for intrathecal pump.
A;ton
- Original Message
I do not use the pump, but sure rely on Baclofen to calm the spasms in my legs.
You will get more input.
Janice
From: Emily
Sent: Saturday, November 12, 2011 12:27 PM
To: 'tmic'
Subject: [TMIC] Baclofen Question
Do any of you have the Baclofen pump? If so, does it help? How does it
Susan, what times of the day/evening do you take your Baclofen?
Janice
From: Susan Kleinz
Sent: Saturday, November 12, 2011 5:21 PM
To: Janice Nichols
Cc: em...@telephonelady.com ; 'tmic'
Subject: Re: [TMIC] Baclofen Question
I have not used the baclofen pump, but a good friend of mine,
who
i have been on baclofen for over 2 years. i am supposed to take 100mg a day but
usually just take 80.
the people that make the stuff say to take no more than 80 but my neuro told me
to take 100.
mine is a 20 mg pill.
sometimes it makes me a little sleepy.
it has helped with the spasms in
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Wednesday, November 24, 2010 9:42 AM
To: transverse myelitis
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years. i am supposed to take 100mg a
day but usually just take 80.
the people that make the stuff
Hi Rob,
I've been taking 30 mg twice a day since I was in rehab (8/95)It does not
help my banding at all.It does stop my spasms.I tried to cut down the dosage
once,and my legs went nuts i.e. kicking,shaking.
I don't notice any bad effects from it. I do have times when my legs
buckle,but
can now honestly say that I no longer remember what it felt like before
TM...sad!!
Rob in New Jersey
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Wednesday, November 24, 2010 9:42 AM
To: transverse myelitis
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years
I only take 40 mg/day.
Hugs, Barbara A in Auburn CA
-Original Message-
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Wed, Nov 24, 2010 6:42 am
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years. i am supposed to take
My dosage via intrathecal pump has been 730 ugm per day for about two years.
Alton
Bladder problems??
Don't we all have some abnormality from TM. I have a flaccid/spastic bladder-
It fills with an enormous amount of urine, then takes two or three times to
empty. Also, When I have to urinate, I have to really urinate- no waiting
F
, the baclofen really helps.
Janice
--
From: Patricia Cooley patticoole...@gmail.com
Sent: Saturday, July 10, 2010 10:09 AM
To: pjv1...@chartermi.net; 'tmic' tmic-list@eskimo.com
Subject: RE: [TMIC] Baclofen Dosage
I HAVE A QUESTION TO ALL OF YOU
Sent: Saturday, July 10, 2010 12:23 PM
To: Patricia Cooley patticoole...@gmail.com; pjv1...@chartermi.net;
'tmic' tmic-list@eskimo.com
Subject: Re: [TMIC] Baclofen Dosage
Patti - Wisconsin,
I take it to help with the muscles spasms and it helps relax the muscles
in my legs.
Apparently it helps
'
tmic-list@eskimo.com
Sent: Sunday, July 11, 2010 5:22 PM
Subject: Re: [TMIC] Baclofen Dosage
Heather, your comment about the bladder reminds me. I wanted to ask
how many of us still have bladder problems after years of
TM.I certainly do. Will you guys please comment?
Janice
[mailto:jan...@centurytel.net]
Sent: Sunday, July 11, 2010 5:23 PM
To: Pieter and Heather; Patricia Cooley; pjv1...@chartermi.net; 'tmic'
Subject: Re: [TMIC] Baclofen Dosage
Heather, your comment about the bladder reminds me. I wanted to ask how
many of us still have bladder problems after years of
TM
I take 2 baclofens, 10 mg each, in the evening shortly before bedtime.I
have always had a certain amount of confusion
so no big deal for me!
Janice
--
From: pjv1...@chartermi.net
Sent: Saturday, July 10, 2010 6:22 AM
To: tmic
I HAVE A QUESTION TO ALL OF YOU TAKING BACLOFEN. WHY DO YOU TAKE IT AND WHAT
DOES IT HELP. I MENTIONED TO MY NEURO AND HE SAID IT WOULDN'T BE OF ANY
BENEFIT TO ME. SINCE I MOVED AND WILL HAVE TO CONNECT WITH A DIFFERENT NEURO,
I WILL DISCUSS IT WITH HIM WHEN I DO.
THANKS FOR YOUR HELP.
@eskimo.com
Sent: Saturday, July 10, 2010 9:09 AM
Subject: RE: [TMIC] Baclofen Dosage
I HAVE A QUESTION TO ALL OF YOU TAKING BACLOFEN. WHY DO YOU TAKE IT AND
WHAT DOES IT HELP. I MENTIONED TO MY NEURO AND HE SAID IT WOULDN'T BE OF
ANY BENEFIT TO ME. SINCE I MOVED AND WILL HAVE TO CONNECT
I was on the max dosage of oral Baclofen before the pump and was not getting
relief from the spasms, just felt like a had major brain fog all the time.
--- On Wed, 5/19/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] baclofen pump
it.
Janice
From: lynne myers
Sent: Thursday, May 20, 2010 8:58 AM
To: tmic
Subject: Re: [TMIC] baclofen pump
I was on the max dosage of oral Baclofen before the pump and was not
getting relief from the spasms, just felt like a had major brain fog all the
time.
--- On Wed, 5/19
I've had a pump for nine years and swear by it. Replaced it last December
concerned that the battery might be nearly exhausted.
My spasticity mostly manifested as a knee jerk - untreated, it would slam into
the underside of the kitchen table. The pump has stopped that. Completely.
Downside -
I've had a pump for nine years and swear by it. Replaced it last December.
My spasticity mostly manifested as a knee jerk - untreated, it would slam into
the underside of the kitchen table. The pump has stopped that. Completely.
Downside - refills every one to two months depending on capacity,
I have had a Baclofen pump for a 3 years now. Although it does relieve some of
my spasms and clonus they are not able to turn the dose up high enough to get
the desired relief with out affecting my bladder function. I wish before I had
it inserted I had checked to see what it was going to
I have been very pleased with the amount of baclofen I take in pill form.
It really has helped with knee-jerking spasms.
Janice
From: lynne myers
Sent: Wednesday, May 19, 2010 7:44 AM
To: dennis rabalais ; tmic
Subject: Re: [TMIC] baclofen pump
I have had a Baclofen pump for a 3
The pump looks like a steel hockey puck with a rubber window in the center and
a cannula connection on the side. To refill it the doctor sticks a thin needle
through the skin through the rubber window into the pump’s drug reservoir.
Between the needle and the syringe is a micron filter to block
Dennis, I had a baclofen pump put in in July 2006, one year after I diagnosed
with TM. My PMR doctor, at the time, talked me into getting it. At the time I
was walking on a platform walker, over 500 feet at a time. This was good for
me, since my TM left me paralyzed on the right side and a
Hello Jill. I take both of them at night to help me sleep. The neurontin
subdues the pain and the baclofen relaxes the spasms. I used to take them both
during the day but found the fatigue too overwhelming. I don't have any side
effects other than the fatigue, which is a bonus at bedtime ;-)We
Maybe you aren't taking enough? I take 80 mgs. a day and I take a Klonopin too. Baclofen helps me but the Klonopin combined with it makes it work better.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
I take Tizanidine - 10mg
before bed - works great!
2mg at lunch
BERNARD
BUTCHER
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Friday, August 04, 2006 4:07 PMTo:
tmic-list@eskimo.comSubject: [TMIC] baclofen 30 MG A
DAY
HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE
] ; tmic-list@eskimo.com
Sent: Saturday, August 05, 2006 5:29
PM
Subject: Re: [TMIC] baclofen 30 MG A
DAY
I did not have real bad spasms but wastaking Valium
every time I got spasms and it worked.My new neurologist
prescribed Dantrolene for stiffness. Firstone 25 mg. per day, now
I take a medication called tranxene, but only as needed. My spasms
haven't been too bad for a while now. (I've had TM for 12 years or so.)
Hope you can find something that will work for you! - Roger in Kennewick,
WA
- Original Message -
From:
[EMAIL PROTECTED]
To:
In a message dated 2/4/2006 1:16:38 PM Central Standard Time,
[EMAIL PROTECTED] writes:
Hi
Cheryl and JudeMy torso and back cry out for Baclofen too! I have
weened myself t0 40mg daily and have been considering trying 30mg daily.
Jude, do you take baclofen and add the valium when you
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