i have asked my Dr a couple of times why i have the symptoms with no lesions
and he said it was because of the nerves damaged from the TM
--- On Tue, 11/9/10, Dalton Garis malugss...@gmail.com wrote:
From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] hello out there
To: L T
in the affected areas after the
proteen is replaced at the lesions.
--- On Tue, 11/9/10, Carol E snow121...@hotmail.com wrote:
From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Tuesday, November 9, 2010, 11:04 PM
Hi Dalton
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:
From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday
.
And never regret anything that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Wednesday, November 10, 2010 11:15:06 AM
Subject: RE: [TMIC] hello out
get in on this. I would trust his answers.
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 4:02 AM
To: transverse myelitis
Subject: Re: [TMIC] hello out there
i have asked my Dr a couple of times why i have the symptoms with no
lesions and he said it was because
Sent: Wednesday, November 10, 2010 10:06 AM
To: malugss...@gmail.com ; tmic-list@eskimo.com
Subject: RE: [TMIC] hello out there
I also have the residuals as Linda mentioned...burning, banding, weakness,
bladder control. Sometimes I can void normally (pre TM) and other times I have
to sit
...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700
This is what I have been told also. My lesions can still be seen but they are
inactive (C4,5,6). I was told they are like a scar. However, I've seen posts
where
snodgrass
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote
You are right, that helps.Also, blowing your nose does too! I void
completely when I go, but apparently make a lot of urine late at nite.
Janice
From: CANDIS KALLEY
Sent: Wednesday, November 10, 2010 10:28 AM
To: tmic-list
Subject: Re: [TMIC] hello out there
I also have the problem
...@centurytel.net]
Sent: Wednesday, November 10, 2010 10:43 AM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] hello out there
Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work. Can't
-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600
Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work. Can't
seem to feel enough yet to wake up
This is a really nasty part of TM. Hate it! Janice
From: Carol E
Sent: Wednesday, November 10, 2010 11:45 AM
To: jan...@centurytel.net ; tmic-list@eskimo.com
Subject: RE: [TMIC] hello out there
With the exception of my face, I don't have any problems staying dry at night.
I very
nerves.
gotta love em.
--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:
From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: jan...@centurytel.net, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:45 PM
With the exception of my face, I don't
That happens to me also.Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 12:17 PM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
another strange thing i have experienced is i would feel something wet
like on my leg or somewhere and think ,,what the heck
Good idea. Janice
From: Barbara Alma
Sent: Saturday, November 06, 2010 10:48 PM
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Well, I guess since nobody has written in that all must be going well for
everyone. It's very good to hear this. I do think that it is a good idea to
John
Have you retired yet? If so, can you tell a difference in how you feel?
Janice
From: john snodgrass
Sent: Sunday, November 07, 2010 3:59 AM
To: transverse myelitis
Subject: Re: [TMIC] hello out there
I would say the pain is not as intense as it has been but am afraid i
Re: [TMIC] hello out thereI do too, Dalton.You have a different set of
problems that I have not heard in other TM'ers. Sure wish you would get you
act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice
From: Dalton Garis
Sent: Sunday
No, I haven't noticed that, but I have noticed strange bruising with no pain.
I prefer my situation to yours.
Janice
From: CANDIS KALLEY
Sent: Sunday, November 07, 2010 10:55 AM
To: tmic-list
Subject: Re: [TMIC] hello out there
Dalton,
So sorry that you had another bad day
Re: [TMIC] hello out thereDalton, maybe you should start bugging your doctors
again and see what else they could come up with. How can you have TM with no
demyelination?
Janice
From: Dalton Garis
Sent: Sunday, November 07, 2010 10:56 AM
To: Laura Beaudin
Cc: Barbara Alma ; tmic-list
We live and learn!Put those 6-month infusions on the calendar.Hope you
are comfortable now.
Janice
From: L T CHERPESKI
Sent: Sunday, November 07, 2010 5:33 PM
To: tmic-list@eskimo.com ; Barbara Alma
Subject: Re: [TMIC] hello out there
Have been trying to keep myself calm and quiet
Re: [TMIC] hello out thereI agree with you Linda.He needs help.
Janice
From: L T CHERPESKI
Sent: Sunday, November 07, 2010 6:43 PM
To: tmic-list@eskimo.com ; Barbara Alma ; Dalton Garis
Subject: Re: [TMIC] hello out there
Hi Dalton Everyone ~~
You're right Dalton. Many of us seem
: Re: [TMIC] hello out there
Hello all,
Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks
like some support was needed for you guys and maybe for some just lurking and
not feeling up to writing in. Believe me, I sympathize with you and your pain.
This time
.
--- On Tue, 11/9/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] hello out there
To: Dalton Garis malugss...@gmail.com, Laura Beaudin
laura.beau...@gmail.com
Cc: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Date: Tuesday
that has got to b a woman thing
I thank God everyday that I am not a woman!
;)
--- On Tue, 11/9/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] hello out there
To: cherp...@msn.com, tmic-list@eskimo.com, malugss
balmat...@aol.com,
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
I do too, Dalton.You have a different set of problems that I have not
heard in other TM'ers. Sure wish you would get you act together - scares
me!!!
Seriously, I hope that is the last day you will have like
.
Carol in Addison, IL
Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com
Hey, Janice!
We missed you. And I missed you. Glad to have you back with us.
I have a question
days are better than others. It's going on 9 years for me. Hope you
get to feeling better!
Linda in Eagle, ID
- Original Message -
From: Carol E
To: malugss...@gmail.com ; tmic-list@eskimo.com
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out
: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800
This is what I have been told also. My lesions can still be seen but they
are inactive (C4,5,6). I was told they are like a scar. However, I've seen
posts where others have been told
6:43 PM
Subject: Re: [TMIC] hello out there
Actually, I love the winter weather.At least then I don't have many hot
spells. I can control that better in cold weather. Anyone else like that?
Janice
From: Barbara Almamailto:balmat...@aol.com
Sent: Sunday, November 07, 2010 7:44
, the less chance I will get hot.
Janice
From: L T CHERPESKI
Sent: Tuesday, November 09, 2010 10:26 PM
To: tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara Alma ; Janice Nichols
Subject: Re: [TMIC] hello out there
Welcome back, Janice! Sounds like you had a wonderful time. (Sorry fellas
Re: [TMIC] hello out thereDalton, yes you still have all the symptoms. When I
told you I did some research after you had such a horrible day, I was trying to
find more information on brainstem lesions. Well I found a bunch of
information, but I walked away with even more questions. Could you
~
Linda
- Original Message -
*From:* Janice Nichols jan...@centurytel.net
*To:* cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara
Alma balmat...@aol.com
*Sent:* Tuesday, November 09, 2010 6:43 PM
*Subject:* Re: [TMIC] hello out there
Actually, I love the winter
OK, Barb,
I don't have anything new to report. Into my tenth year! Who would have
thought?
I always read the list but feel fairly far removed from the newly diagnosed
now. Still, I'm always more than willing to help.
hugs
Gilly
From Kanmantoo
South Australia
- Original Message -
i have been attempting to journalize the weather and my pain on a 1-10 scale.
and it seams as if when the barametric pressure is up I hurt more.
--- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote:
From: Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
To: cherp
Message -
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Monday, November 8, 2010 7:55:37 AM
Subject: Re: [TMIC] hello out there
i have been attempting to journalize the weather and my pain on a 1-10 scale.
and it seams as if when the barametric
I would say the pain is not as intense as it has been but am afraid i will jinx
myself!
--- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote:
From: Barbara Alma balmat...@aol.com
Subject: [TMIC] hello out there
To: tmic-list@eskimo.com
Date: Sunday, November 7, 2010, 12:48 AM
Well, I
Barb I guess everyone is busy with the weekend. No news is good news.
Hopefully, everyone is doing as well as can be expected with TM. I know I
always look forward to all the posts.
Take care all.
Patti - Wisconsin
From: Barbara Alma [mailto:balmat...@aol.com]
Sent: Saturday,
Actually;
I had a day-long attack of spasms yesterday which left me unable to control
either my hands and arms, legs, torso or speech. Every time I tried to talk
I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong
Dalton,
Have you been properly screened for MS?
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis malugss...@gmail.com wrote:
Actually;
I had a day-long attack of spasms yesterday which left me unable to
.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: Dalton Garis malugss...@gmail.com
To: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Sent: Sunday, November 7, 2010 11:23:44 AM
Subject: Re: [TMIC] hello out there
Actually;
I had a day-long
was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled while
someone pushed) well except for down hill then gravity took over.) The extreme
cold has me hurting today but once i rest and and warm back up all should be
good
Well, I guess since nobody has written in
Have been trying to keep myself calm and quiet as I am in a full blown flare.
I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping
they were approved last Friday and will be scheduled this week. I have
Recurring TM and Rituxan has kept me attack free the last 2 years -
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800
Have been trying to keep myself calm and quiet as I am in a full blown
flare. I'm 2 months past my Rituxan infusions, which
Re: [TMIC] hello out thereHi Dalton Everyone ~~
You're right Dalton. Many of us seem to be having additional challenges right
now. Could be why we've been so quiet on the list
After I read your post about the horrific day you had, I did a little research,
and I think I came back even
@eskimo.com
Sent: Sunday, November 07, 2010 2:59 AM
Subject: Re: [TMIC] hello out there
I would say the pain is not as intense as it has been but am afraid i
will jinx myself!
--- On Sun, 11/7/10, Barbara Alma
balmat...@aol.commailto:balmat...@aol.com wrote:
From: Barbara
...@comcast.netmailto:kimharrison...@comcast.net
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Sunday, November 07, 2010 1:09 PM
Subject: Re: [TMIC] hello out there
was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled
while
through all of this. Hang in there and keep
posting.
Linda
- Original Message -
From: Dalton Garis
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there
Seems as if everyone went down at the same time
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