Re: [QUAD-L] Hernuia?
Download the AD paper from Reeve or PVA to take with you On Aug 28, 2014, at 10:06 PM, greg wrote: Anyone here ever get a hernia? Not sure, but I might have one. The kind on your inner high thigh. In the crotch area. I have a slight bump there and when touched it sends my blood pressure way high. No sweating, but a pounding headache. Like 195/98. Once it's bothering me, if I recline my head feels like it's going to blow up. 3 out of the last 5 days. Today is ok. Doc wants me to see a General Surgeon. Have him take a look at it. For along time just touching my crotch area made me spasm bad, my chest gets real tight, but now I feel like my heart is getting squeezed by a fist and my head is blowing up. The only time this has happened before is when bowel or bladder had an issue. I just had the runs from antibiotics, so it might be that, or constipation from too much Pepto. But it's been a week now. Touching the area might be causing my stomach to spasm, I've been having gas, and that could do it, but man those headaches hurt bad. If it gets that bad again, I'm going to the ER, I just hate to go and then find out it's just gas, runs or constipation. Greg
Re: [QUAD-L] Dawn, the quad girl upstairs from me
Tell Dawn to find her own Pete. You and your husband enable this woman. On Apr 28, 2014, at 8:15 PM, Gmail wrote: BINGO, BINGS, BINGO. She waste's so much of her SSI check on BINGO week after week, month after month, year after year! Dawn has a 2002 Mimi van with 130,000K on it. I have a 2001 with about 35,000K on it. Pete's going up tonight to try and fix her bed, and if he can't I'm sure she is going to expect him to put her to bed when SHE wants to ... NOT when it's convenient for him. Bobbie Smile Everyday On Apr 28, 2014, at 7:36 PM, Patricia Brown-Tulee pl...@yahoo.com wrote: does she go out to bars or? Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Sunday, April 27, 2014 6:24 PM, Gmail bobbiehumphre...@gmail.com wrote: I've talked it you all about Dawn and her troubles with her van? Well, now she is having troubles with her bed. She has a Craftmatic, like I HAD. It isn't working right. Actually it is broken in the high position. So she asked my Pete if he would help her into bed, she can get her self undressed. Actually, she can get herself into bed all the time, but not right now. She asked Pete to come up at 3:00am! Pete said the best I can do is 2:00am she rolled her eyes and said ok, 2:00am is fine. She has NO IDEA HOW LUCKY SHE IS.Bobbie Smile Everyday
Re: [QUAD-L] bladder expansion surgery
Augment with stoma. had mine in '96 My bladdar size of walnut after years of Foley. Best thing I did. I can intermittent cath alone through my belly button complete c6 have your dad visit www.sciwire.com many people have had it done. On Mar 9, 2014, at 10:44 PM, Britt Martin wrote: hi everyone! i'm writing this on behalf of my dad, a c6-7 quad. he's going to get his bladder enlarged on the 20th of march (not sure the official name of the procedure-- but they use the intestine to expand the capacity of the bladder) but was looking to see if any of you have done this and/or if you'd be willing to talk to my dad about it beforehand? thanks! brittany
Re: [QUAD-L] please help!
It's something noxious thus causing you the sweats. You're going to have to keep a diary of some kind. maybe now your bowel routine is too much. I've been dealing with this for years and understand your frustration. it is quite debilitating. Have you been checked for bladder stones? Check your skin everywhere, your toenails, are you wearing new shoes, new socks? Does it occur a week before your period more or less? When is your first meal? Is it better lying down or sitting up? Do you have external hemorrhoids? Wrap a towel around your neck. I've gone through dozens a day that they literally drip. Keep yourself hydrated. On Apr 16, 2013, at 6:16 PM, Carla Aarssen wrote: i'm a c5 quad female, 33yrs old, 11years post injury and about a yr ago i started sweating profusely 90% of the day, doesn't matter the temp of air, sometimes i feel cold while sweating, i have goose flesh and sweat like i'm running in the desert (i wish,lol) i spent a month in hospital oly to be told i was full of shit pardon my french ...i'd have to change my bowel routine from 3x a week to daily and clean outwell, it seemed to me i continued to sweat for quite some time and it just mostly subsided but almost exactly 1yr later it's happening again, sweat is rolling down my neck right nowthe dr's are not taking me seriouslyi am no longer full of shit...what else can it be? it's not dysreflexia..in-dwelling foley cath works fineany ideas? anyone ever hear of propantheline bromide?
[QUAD-L] Am I going to spam?
Just curious as I find I get no responses to many of my e-mails. If you are so inclined could you just reply and delete the Q-List as a recipient so as not to flood anyone's box. Thank you, Liz
Re: [QUAD-L] Anybody celebrate their Quad Anniversary?
It passes. On Mar 6, 2013, at 8:37 PM, bobbie...@aol.com wrote: I was wondering if anybody goes out of their way to celebrate their anniversary? Or do you guys try to let the day pass? Bobbie Smile Everyday
Re: [QUAD-L] a question from my wife regarding family caregivers
There's a caregiver forum at www.sciwire.com Reeve Foundation and United Spinal have services for caregivers/families On Feb 22, 2013, at 11:05 AM, Dave Krehbiel wrote: I was injured at the beach about five years ago, just before my 50th birthday. I am now a C4/C5 quad who is now living at home with the combination of insurance, Medicare, Medicaid, and care by my family. My accident was a life changing experience for me and for my family, especially for my wife. She has tried to find someone to talk to about her issues, but there are precious few people who understand what it is like to be a quadriplegic or to care for a quadriplegic. For example, since I have control of my shoulder muscles and biceps, people see my arms moving and don't understand the severity of my injury. Are there any family caregivers (preferably spouses) out there who would be available to have a chat by phone with my wife? Thanks, Dave Krehbiel (301) 924-4530
[QUAD-L] Restore NYS Spinal Cord Injury Research Funding
Take action to restore research funding. This program has raised over $70 million for spinal cord injury research since its inception in 1994. Unfortunately in 2010, Governor Paterson raided the fund and put the monies into the general fund. That trend has since continued. This research funding is collected through an additional levy on moving violations in New York State. It is collected specifically for this purpose, but it's being used for other things. That's just wrong. Please help us restore the funds by reaching out to Governor Andrew Cuomo and Commissioner of Health Dr. Nivav Shah. Thank you, Paul Tobin President, United Spinal Association Read our privacy policy United Spinal Association 75-20 Astoria Blvd. East Elmhurst, NY 11370 718-803-3782 __._,_.___ Reply via web post Reply to sender Reply to group Start a New Topic Messages in this topic () RECENT ACTIVITY: New Members 42 Visit Your Group --- To learn more about the CPANYS group, please visit http://health.groups.yahoo.com/group/CPANYS Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use • Send us Feedback . __,_._,___
Re: [QUAD-L] Here comes 12-16 of snow
Yup, just add it onto Sandy. Life's grand. On Feb 8, 2013, at 1:59 PM, bobbie...@aol.com wrote: Hi All, I live 25 miles due west of NYC in Northen New Jersey. While I'm stuck in bed were going to get 12-16 of snow. I LOVE to drive my van chair in te snow … shit I'm going to miss it. OH well, I'll just have to watch it outside my window. Anybody else out there going to be in thus historic storm? Bobbie
Re: [QUAD-L] Dry Skin, Head Itching
drug reaction? On Jan 28, 2013, at 2:04 PM, wheelch...@aol.com wrote: There are skin lubes for scalp and hair. Use them daily and see if there is a difference. Best Wishes In a message dated 1/28/2013 12:55:34 P.M. Central Standard Time, g...@eskimo.com writes: I've always had dry skin, but lately my head has been itching so bad it hurts. I thought it was sun burns, but I've been wearing hats outside and we haven't had much sun the last few days. I've been using dry scalp shampoo, but no help. I know it gets rinsed well enough. I'd scratch tell it would bleed if I could reach it good. It's only the top center. Right on the part. That's why I thought it was a sun issue. Greg
[QUAD-L] Sport shooting
forget who asked but here's a link to SCI/D that hunt etc. http://sci.rutgers.edu/forum/showthread.php?t=140550
Re: [QUAD-L] Ditropan vs. Propantheline
Twicw a day? that seems very little. What cc's are you voiding? On Jan 20, 2013, at 3:51 PM, Larry Willis wrote: In the last couple of months, my ditropan seems to have lost its effectiveness. I have begun leaking urine and cold-sweating, especially at night. Waking up to a soaked bed every morning is both depressing and disgusting. I usually cath twice a day -- morning and bedtime. I am considering switching to propantheline. Is this feasible? Any downsides I should be aware of? Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Nan nlg52...@yahoo.com Date: January 20, 2013, 2:03:37 PM EST To: daa...@aol.com daa...@aol.com, g...@eskimo.com g...@eskimo.com, quad-list@eskimo.com quad-list@eskimo.com Subject: Re: [QUAD-L] Ditropan vs. Propantheline Reply-To: Nan nlg52...@yahoo.com I'll take the dry mouth to the sweating any day. I recently tried cutting the Propantheline in half, thanks to a Q-List member, and that really helped. Plus, I never mind drinking more - and when my mouth is dry I always drink more... I'm a Propantheline advocate, but what it boils down to is that we are all different. Try some to the meds that have been discussed and go with whatever works for you. :) . Nan From: daa...@aol.com daa...@aol.com To: g...@eskimo.com; quad-list@eskimo.com Sent: Friday, January 18, 2013 11:55 PM Subject: Re: [QUAD-L] Ditropan vs. Propantheline There are so many things that Medicare part D doesn't cover. My out-of-pocket has tripled. I don't even know if mine is covered because they charge my credit card. It doesn't say what it is for. Propantheline really dries out my mouth and it is uncomfortable. I have to drink all the time. It takes quite some time to wear off. Dana In a message dated 1/18/2013 4:51:19 P.M. Central Standard Time, g...@eskimo.com writes: Ditropan gave me like panic dreams. Not nightmares, but I'd wakeup startled. No idea what I was dreaming. Greg My insurance stopped covering my propantheline as of this month. Can anyone tell me if ditropan works as well? Meredith From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Thursday, January 17, 2013 5:08:14 PM Subject: Fwd: [QUAD-L] Flu Shots/vomiting I take ditropan but I have never tried propantheline. It sounds like something that would help me a lot. Do any of you take both? The ditropan dries out my mouth so bad I think my tongue is going to break off. I'll definitely mention prop. to my doc next time. Sent from my iPad Begin forwarded message: From: greg g...@eskimo.com Date: January 17, 2013, 4:07:29 PM EST To: Larry Willis lwillis82...@msn.com Subject: Re: Fwd: [QUAD-L] Flu Shots/vomiting like
Re: [QUAD-L] What's up for Thanksgiving?
I'll be grateful for my family's safety. Please prepare yourselves for any kind of disaster. A blizzard, a tornado, a power outage. As well prepared as we were we were not prepared for the havoc sandy caused. https://www.youtube.com/watch?feature=player_embeddedv=z7uGIq3Awv4
[QUAD-L] Here was will be my home
Here's a video of what Sandy did. That isn't snow it's sand. Having a dis in a disaster is mind numbing. It's as if the first dr. you met tells you you'll never walk again n a loop tape. https://www.youtube.com/watch?feature=player_embeddedv=z7uGIq3Awv4
[QUAD-L] Hurricane Sandy
I live in one of the cities destroyed. Long Beach, NY. My brand new van -gone House-destroyed. I'm angry, sad and attempting to be proactive. My chair poofed. I will be fine eventually. Pictures do not show the depth of destruction. The fear of being immobile. Power outages are still significant. My family and I are alive and that's all I can ask. I've been quite grateful for this list but I apologize in advance as my responses to some posts maybe passive aggressive as I am going through my mail for the first time since Sandy landed.
Re: [QUAD-L] Sweating
it's not sweating it's autonomic dysreflexia On Oct 19, 2012, at 3:07 AM, Mandy wrote: Wow! I've heard so many medical people say quads don't sweat, and I don't sweat, myself...guess it's like everything else, though. There are no absolutes with this injury. On Oct 18, 2012, at 7:43 PM, Bobbie Humphreys bobbie...@aol.com wrote: Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sports
I used to road race, play tennis (first quad woman on East Coast). Every year I make an effort to due something new. Like many of us I've been in a chair over 25 years +. New things now aren't so adventurous as scuba diving or flying a plane. I'm happy now taking my nephew to a skateboard event. One year it was to eat in an outback. This year Sonic is on my list. I've been kayaking and surfing too. As a c5'7 you may find tennis the best sport as you can do it from whatever chair you're in and play with anyone. There are SCI/D groups that do outings. What state are you in an check with your chapter. Liz C6 complete On Aug 27, 2012, at 2:20 AM, Mandy wrote: Does anyone on this list participate in sports, and if so, what is he or she involved in? Mandy, C5-7
Re: [QUAD-L] I need a friend
Call NSCIA http://www.spinalcord.org/ They will assist you with a mentor in your area or the Reeve Foundation On May 16, 2012, at 11:09 PM, Bobbie Humphreys wrote: Everybody, I use to have a few friends how were quads, about 5 near me. We could talk to each other good or bad ~ we were there for each other. Today all have either moved away or died. Dose anybody have any ideas as to how I can find another quad friend? I REALLY need to talk to a fellow quad, and soon. I just can't stop crying. I've been stuck in bed since February and am now starting to get up, but as strange as it may sound, I find it easier to stay in bed … I get into a routine. But once I start getting up it's in drubs and drabs. When I'm up and the weather is nice, I see everyday normal people doing all the things I can't. Or hearing about where they've been or where there going to be doing. I can't make plans. Every time I make plans for the near future, the rug can be pulled out from under me at a movements notice because of a goddam sore on my butt that is super fiscal but enough to ground me. I can only ride in my van once a week because the bumps in the road cause irritation on my butt. I use to drive but now I can't … same reason as I just mentioned. Pete is doing more and I'm doing less. I'm just existing, not LIVING. I want to die! Bobbie Sent from my iPad
Re: [QUAD-L] cath irrigation
Normal for a quad perhaps. It's autonomic dyseflexia. Be careful. On Dec 26, 2011, at 4:00 PM, Lissette Whitehead wrote: I've only done it a couple of times, it gives me chills when doing it, is that normal? Lissette Whitehead 1177 Broadway Suite #18 Chula Vista, CA 91911 www.lissettesgoaltowalk.synthasite.com www.lwgraphix.yolasite.com www.lwgripgloves.com From: c5sc...@gmail.com To: quad-list@eskimo.com Subject: Re: [QUAD-L] cath irrigation Date: Mon, 26 Dec 2011 12:32:14 -0600 Yes, white vinegar. Eric W Rudd c5sc...@gmail.com - Original Message - From: Danny Hearn To: quad-list@eskimo.com Sent: Monday, December 26, 2011 12:23 PM Subject: Fw: [QUAD-L] cath irrigation - Forwarded Message From: Danny Hearn ddh...@sbcglobal.net To: gah17...@aol.com Sent: Mon, December 26, 2011 11:32:55 AM Subject: Re: [QUAD-L] cath irrigation If you are worried, you can buy sterile water from medical supply stores and etc. On more rare occasions when I think bacteria is really building up My wife will flush with ( acetic acid ) --- which is just Vinegar mix .. Some quads mix this at home, like eric said= = vinegar and water ( not sure but I think it's the white vinegar ??? correct Eric ?Dan H.** From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Sent: Mon, December 26, 2011 10:53:05 AM Subject: [QUAD-L] cath irrigation How does everyone handle cath irrigation? Do you use saline and if so how do you keep saline from germing up? GA
Re: [QUAD-L] Touchy Topic
and as women with SCI we are rarely included in any sexual studies. So we do need open communication. On Nov 18, 2011, at 11:47 PM, Nan wrote: I seem to be the only woman weighing in here, not that it should matter ... just sayin'. What the heck is all the fuss about??? Sex is a quad related subject. We are all human, sexual beings who have have to deal with the fact that our bodies now function differently. Why not discuss sex here? Maybe something shared by on person can be useful to someone else. That IS what the Q-List is for, isn't it? Thumbs up for open, honest communication! Naughty Nan
Re: [QUAD-L] When your down and out?
are you menopausal? On Sep 26, 2011, at 11:00 AM, Bobbie Humphreys wrote: Everybody, I've been REALLY bummed out lately, just can't shake it. I've been getting lost in a GREAT book The Help it's a real page Tunner I don't want to see ANYBODY or talk on the phone. I really just want to stay in bed but Pete is making me get up - October 3rd we'll be together 29 years! What do you guys do to shake the BAD blues? Bobbie Sent from my iPad
RE: [QUAD-L] Everyone please do me/us a favor
Going to agree with Wheelchair on this. The problem with most hotels now is the beds are too high and zero room for a Hoyer lift under platform beds. If you only needed it for an evening wouldn't pillows have sufficed? I commend your advocacy. _ From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Wednesday, June 15, 2011 1:56 PM To: bobbie...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Everyone please do me/us a favor First of all, I wish you success with your cause. 2nd, as the imaginary General Manager of Hilton Embassy Suites Hospitality I have to ask What size? Should it be equipped with a Trapeze and auto-remote operation. How much weight should it be able to hold? Should it be hospital chrome or powder coated? Should the hospital bed be ordered to support other adaptive devices, for breathing? Should we order special mattresses for each individual need? Because a hospital bed is not required under ADA Guidelines, it would be a courtesy or convenient item and should we charge extra for the courtesy. Consider that any air-type mattress could be subject to puncture and require an occasional repair, for the next customer. Where would we store such a bed, in between uses and ensure that it is clean and sanitized for the next user. Presently, there are several hospital beds on the commercial market place. They begin around 1500 dollars and go up to more then 6500 dollars. Can you assure us that by purchasing such a special needs bed for the general resident with disAbilities that we will not be sued for not having the proper medical bed for a hotel guest. The cost of outfitting each of our properties with just one bed could cost millions. How do we justify such a cost for something that may not be used that often. Your input is wisely solicited. The imaginary General Manager Best Wishes In a message dated 6/15/2011 12:23:16 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi Everybody, Recently I was in great need of a hotel room that was equipped with a hospital bed, I could not find one major chain hotel that could provide me with this need. I'm asking if each and everyone of you make one toll free phone call for the good of us all and then some. 888-240-6152 is the number for Hilton/Embassy Suites (they are under the same umbrella) this is the number for Guest Assistance Department, you could ask for Debora Smith or just speak to whomever answers the phone. You could say something like this; I am a person with a physical disability and want to make a suggestion that your hotel chain provide one of your rooms to be equipped with a hospital bed where the head, knees and bed rise up and down. Please keep in mind that this bed may also be used by any guest, disabled or not. You may go on to say; I would travel moe if this type of bed were in place. If anybody on this list is on any other list, I'm asking if you would please pass this plea along and also to pass it on to your friends and family. Let's make our voice heard and try and make a change for the better. Thank you all in advance, Bobbie Below is an address if you prefer to write; Guest Assistance Department Hilton Worldwide 2050 Chennault Drive Carollton, TX 75006 Sent from my iPad
RE: [QUAD-L] two quick survey questions... please reply privately
I'm sorry, why are we to give you this personal info? _ From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] Sent: Tuesday, May 31, 2011 12:46 PM To: quad-list@eskimo.com Subject: [QUAD-L] two quick survey questions... please reply privately Some time ago, I asked people on this forum how I might best help quadriplegics. The most common response: invent a money tree. I am sorry to say that I have not been successful in creating or inventing a money tree. However, I have made certain progress, and before I move forward I would like to know the following: 1) Do you receive Social Security disability? 2) Do you receive disability related benefit from your state? If you are not in United States of America, please feel free to forward any information describing your financial situation which you feel might be appropriate and helpful. Thank you, Dave Krehbiel
RE: [QUAD-L] Research breakthrough just announced in The Lancet
one word: incomplete? _ From: Nancy P [mailto:nancy...@yahoo.com] Sent: Thursday, May 19, 2011 8:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] Research breakthrough just announced in The Lancet Hi all -- I wanted you to be the first I shared this news with -- instead of trying to paraphrase, let me just give you a few paragraphs of detail. Rob Summers, a 25-year-old Portland, Oregon man, who was paralyzed below his chest with a C7/T1 injury as a result of a car accident in 2006, is standing and stepping with assistance, and voluntarily moving his legs for the first tim e since his injury. In this study, continual direct epidural electrical stimulation to the subject's lower spinal cord mimicks the signals his brain would normally send to initiate movement. This coupled with intense locomotor training is responsible for the subject's unprecedented functional recovery. The subject is able to stand supplying the muscular push himself and can remain standing, bearing his full weight, for up to four minutes at a time and up to an hour with periodic assistance. In addition to some functional recovery, relief from some of the secondary complications of complete spinal cord injury (for example, loss of bladder and sexual function) could be even more significant. Aided by a harness and some therapist assistance, he can make repeated stepping motions on a treadmill. He can also voluntarily move his toes, ankles, knees and hips on command. Read more about the study here - http://bit.ly/iSfKnH Best wishes to you all Nancy Nancy Purcell for the Christopher Dana Reeve Foundation www.christopherreeve.org
RE: [QUAD-L] How to make a P B J sandwich correctly
I think if this is your only debate in life, you're blessed. p.s. and no one puts butter on a PJ sandwich. it's sacrilegious _ From: bobbie...@aol.com [mailto:bobbie...@aol.com] Sent: Friday, March 20, 2009 5:17 PM To: quad-list@eskimo.com Subject: [QUAD-L] How to make a P B J sandwich correctly OK, so you remember we were discussing how to manage delegating food prep? Well, here is a debate I came across -- help me out here people. This is how I always made my P B J sandwich ~ first you put butter on a slice of twelve grain bread, next you put peanut butter on top of the butter, then you put the jelly on top of the peanut butter, then the other slice of bread on top. OH and of course it is to be cut in half vertically not horizontally. This is how my Aid (my sweetheart) thinks it should be done. First, white bread, then no butter at all, then peanut butter on one slice of bread, then jelly on the other slice of bread and cut into four's. I don't think so. What do you guys think? Bobbie _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/100126575x1219619459x1201345309/aol?redir=htt p:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID% 3D62%26bcd%3DMarchfooterNO62 yours in just 2 easy steps!
RE: [QUAD-L] Pressure sore
go to a wound doctor or take a picture and send it to the nurse at www.sciwire.com _ From: Veranda Escobar [mailto:vaescob...@yahoo.com] Sent: Monday, March 16, 2009 9:38 AM To: quad-list@eskimo.com Subject: [QUAD-L] Pressure sore Hi Gang, Well I'm sure everyone has spoke on this topic before,but I forgot. lol Anywho my question is what have people used that has been the quickest way to make a pressure point heal? I know being off it helps. Buttt I work a 40 hour work week so staying off my butt is to hard. I don't know how I got it because I'm always on the go. I think it was the fact I was in hospital three days I had to bug nurses to just come turn me. I also have a pressure point on my lower left heel of foot. I haven't had any pressure point in years. So does anyone know which dressing for pressure points are better. Should I go see a doc? Sorry if I sound so naive to situation, but I really don't get these. Thanks, Veranda
RE: [QUAD-L] Hypothermia
Dreamtime microwave heat body wraps from drugstore.com _ From: Raymond Kelly [mailto:kel...@hughes.net] Sent: Friday, March 13, 2009 5:00 PM To: Quad-list Subject: [QUAD-L] Hypothermia I doubt anybody has an answer to this being it is part of being a quadriplegic. Anyway I have been a quadriplegic for almost 16 years now. It seems that every year it is harder to keep warm. I remember the first year I was hurt I wore shorts and tank tops all summer just to stay cool. Now after being a quad this long this long I end up wearing sweatpants and a sweatshirt most of the summer just to stay warm. During the winter I wear sweatpants, two thermal shirts, a sweatshirt, a knit hat and have a blanket on me just to stay in the house. that doesn't even keep me warm. Even with all that and the house being about 73° I still have trouble keeping my temperature above 95°. It would be great if somebody on here had a miracle way to help this. I guess I am wondering if this is a typical quadriplegic problem for it to get worse every year. If it is it would be interesting to hear how other people cope with this.
RE: [QUAD-L] Waking up in bed
have the person come earlier? _ From: bobbie...@aol.com [mailto:bobbie...@aol.com] Sent: Friday, March 13, 2009 1:08 PM To: quad-list@eskimo.com Subject: [QUAD-L] Waking up in bed Hi All, How do you guys wake up in the morning when your still lying in bed waiting for someone to get you up? I have to wait 2 to 3 hours each morning from when I wake up till I'm up in my chair. Bobbie _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=htt p:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID% 3D62%26bcd%3DfebemailfooterNO62 yours in just 2 easy steps!
[QUAD-L] If you're in NYC
For Immediate Release VISIBLE THEATRE presents True Story Project: FAITH 12 perspectives on Faith spanning race, gender, sexuality and ability Supported by the National Endowment of the Arts and the City of New Yorks Department of Cultural Affairs Following the triumph of last years provocative and enormously engaging True Story Project: SEX, Visible Theatre continues in its mission of celebrating alternative perspectives, challenging perceptions and providing unique insight into the human condition, by presenting its fourth autobiographical storytelling work, True Story Project: FAITH, to colleges and organizations through out the tri-state area beginning in March, 2009. Including both able bodied and disabled story tellers of profoundly diverse backgrounds, the tour will culminate in a three-week run at The Parker at Algonquin Theatre in Manhattan. Shows followed by a talkback are Thursday, Friday and Saturday evenings at 8pm - May 7, 8, 9, 14, 15, 16, 21, 22, 23. Saturday, May 16th at 4pm, there will be a talk on Disability and Faith presented Chicago-based playwright and NEA Guest Artist Todd Bauer. The Algonquin Theatre is located at 123 East 24th Street, near Lexington Avenue. Suggested donation of $15 at the door. The theatre capacity is small so reservations are required. Please call 212-615-3199. Conceived by Artistic Director, Krista Smith, True Story Project: FAITH features a diverse ensemble of twelve professional actors, including actors with disabilities who write and perform their unabashedly honest autobiographical stories with the central core of faith. Much more than a consideration of spirituality and religion alone, the actors weigh issues of faith and intimacy, faith and family and faith and the body. Ensemble members include: Gregg Mozgala, David Wagner, Joe Sims, Elizabeth Treston. Dacyl Acevedo, Angela DeMatteo, Julia OBrien, Timothy Wang, Lisa Wartenberg, Todd Bauer, and Xian Horn. Directed by Krista Smith and Julia OBrien. Previous True Story Projects have been performed to great acclaim at New York University, Hunter College, Queens College, Brooklyn Tech, Kingsborough College, Queensborough College, Manhattan College, Chashama, HERE Arts Center, Blue Heron Theatre, Abingdon Theatre and at City Hall to commemorate the Americans with Disabilities Act. True Story Project: Faith will tour to venues in all five boroughs and beyond, culminating in a three week run at The Parker at Algonquin Theatre,. Visible Theatre is supported in part by the National Endowment for the Arts, New York Citys Department of Cultural Affairs, NYSCA and many other generous contributors and committed to A vision directed toward confronting issues of social exclusion and a mission to foster long-term development of provocative theatre art, Visible Theatre enfolds all bodies in its theatre training, workshops, and new play development.Susan Tenneriello, Baruch University, Theatre Journal 58:3 (October 2006). To watch a True Story Project promo, visit our website at http://www.visibletheatre.org/tsp/truestory.html To book a performance call 212-615-3199 or email visib...@mac.com
RE: [QUAD-L] Bowel Program...
incompletes are different from completes _ From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Thursday, February 05, 2009 2:56 PM To: todd.daughe...@gmail.com; quad-list@eskimo.com Subject: [QUAD-L] Bowel Program... Todd, you should have a managed bowel program. I can't recommend the best for you as I don't know your personal medical history. I don't know your level of function either. I do know what can happen to your body or anyone else's body when they fail to have a regular bowel movement. There are some purist and naturalist who feel that a person should have a bowel movement after every dinner or 3 times a day. Consider your habits before you became a C6. Your waste is toxic and you should have a bowel movement, once a day or every other day. I realize that you may need help or assistance and I don't know how often assistance is available for you. What bowel program gave you so much trouble before? What product did you use before? Duxolex? Best Wishes W In a message dated 2/5/2009 12:53:08 P.M. Central Standard Time, todd.daughe...@gmail.com writes: Are there any quads out there that don't have a bowel program? I am an incomplete c-6 and stopped doing programs after a few years because of the discomfort. I have been injured since '89 and basically just wait until I get the sensation to go, and then get to a bathroom. The problems is that I am not going on a regular basis and sometimes a week will go by between movements. I am afraid of taking any kind of stool softeners for fear of diarrhea. This is another subject but I went last year for a colon cleanse and it felt really good to know that all that excees waste is out of my body. Todd D _ Great http://pr.atwola.com/promoclk/10075x1217883258x1201191827/aol?redir=htt p://ad.doubleclick.net/clk;211531132;33070124;e Deals on Dell Laptops. Starting at $499.
RE: [QUAD-L] Job Accommodation
Seems we don't have all the info to judge -Original Message- From: Dan [mailto:d...@unh.edu] Sent: Saturday, January 31, 2009 12:12 PM To: quad-list@eskimo.com Subject: [QUAD-L] Job Accommodation I found this on the USDL website. I think this is an blatant example of accommodation run amuck. What do you guys think. An engineer who uses a wheelchair held a job in a manufacturing company that required employees to move throughout a campus facility inspecting various aspects of the buildings, typically using the ability to climb, scoot, and crawl into small spaces. The engineers worked in teams. One member of the team would videotape the areas that this worker could not access. The engineer then used the videotape to gather pertinent information for the task. Dan
RE: [QUAD-L] Bluetooth
I'll be waiting for their advice _ From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Saturday, January 24, 2009 10:05 AM To: missl...@optonline.net; quad-list@eskimo.com Subject: Re: [QUAD-L] Bluetooth Not that I'm aware of... but hopefully one or more of our potential OTs may know of any recent discoveries Best Wishes In a message dated 1/24/2009 8:45:47 A.M. Central Standard Time, missl...@optonline.net writes: Any blue tooth device which is on/off voice activated. Any ideas? _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=Dec emailfooterNO62 yours in just 2 easy steps!
[QUAD-L] Bluetooth
Any blue tooth device which is on/off voice activated. Any ideas?
[QUAD-L] students more clarification
. Let me be more specific in my haste and response to the new students that have recently subscribed to the quadriplegic list. As a former student in the science educational field and supervisor I felt that it was somewhat patronizing that many of us who have been paralyzed for numerous years needed advice from students when I felt it was we who would be of more assistance to them. Also, because of my supervisory experience students usually require permission from a source if we are being part of the classroom assignment. I just felt it odd that two students from the same class would appear on the list. I welcome others to this forum as it is not my position to ban anyone from any forum. I hope this puts an end to any questions or concerns. _ From: John S. [mailto:alcibiat...@yahoo.com] Sent: Wednesday, January 21, 2009 2:08 PM To: quad-list@eskimo.com Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] students That is entirely possible. Lord knows I need assistance. I'm not trying to be patronizing. If I come across that way it is only because I use narcotics. I certainly appologize if I am doing that to anyone. john. --- On Wed, 1/21/09, Elizabeth Treston missl...@optonline.net wrote: From: Elizabeth Treston missl...@optonline.net Subject: [QUAD-L] students To: quad-list@eskimo.com Cc: quad-list@eskimo.com Date: Wednesday, January 21, 2009, 9:42 AM Just a heads up. I believe it is we who could assist you. Pease don't be patronizing.
[QUAD-L] Please look at
Just a reminder the To: section of your mail. Replies to all add up to double, triple even four times the same email and some mail going to those groups not intended. Thanks.
[QUAD-L] students
Just a heads up. I believe it is we who could assist you. Pease don't be patronizing.
RE: Re: [QUAD-L] Baclofen q's....
I wonder @ this too! _ From: t crook [mailto:onemofor...@yahoo.com] Sent: Wednesday, January 21, 2009 11:10 AM To: q-list Subject: Fw: Re: [QUAD-L] Baclofen q's Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 http://www.whoopiekat.com/ WhoopieKat.com --- On Tue, 1/20/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Baclofen q's To: Steve White ste...@pinetel.com, quad-list@eskimo.com Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. mailto:alcibiat...@yahoo.com To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861 http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=422 6723src=news cl=11605466ch=4226723src=news Tim c5 c6 http://www.whoopiekat.com/ WhoopieKat.com
RE: [QUAD-L] This is interesting...
Excellent! Only live once! _ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Wednesday, June 18, 2008 8:51 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] This is interesting... Whoa! It says that she went alone! I think that is absolutely crazy. Especially in a sailboat. It is hard enough for a fully able bodied person to control such a boat let alone one that relies upon mother nature's winds. And I love the water! The risks that I take are very, very small. Definitely not paranoid -- just cautious. I definitely do not want to be one of those listed on the Darwin awards! LOL Lori 28.5 yrs post AZ On Tue, Jun 17, 2008 at 7:27 PM, [EMAIL PROTECTED] wrote: http://news.yahoo.com/s/ap/20080616/ap_on_re_eu/britain_quadriplegic_sailor _ Gas prices getting you down? Search AOL Autos for fuel-efficient used http://autos.aol.com/used?ncid=aolaut000507 cars. -- Lori C4/5 complete quad, 27 years post Tucson, AZ
RE: [QUAD-L] Wheelchair!
contact your local ILC/CIL . W/C's in most states have a lemon law. http://www.usatechguide.org/articledisplay.php?artid=16 _ From: Silas Shelburne [mailto:[EMAIL PROTECTED] Sent: Thursday, June 19, 2008 4:28 PM To: quad-list@eskimo.com Subject: [QUAD-L] Wheelchair! Hello everybody, I've got a problem with Holland Medical the company I got my new chair from, I've just had it 6 months it's still under warranty. This makes the 3rd time its torn up and it's the same problem every time, I've took it too them twice 140 mile trip. I called them today and ask if they would come and pick it up that I couldn't afford to take it to them, and I would be bed redden without my chair. Ashlee said it wasn't her problem and they wouldn't come and fix it or take it to the shop, how much is enough? Am I responsible 3 times for their encompodence? What do I need to do? Thanks Silas
RE: [QUAD-L] Continuous pressure sore problems...
where on your butt? are you always wearing the same brand of pants? check the seams. have you been pressure mapped for the right kind of cushion? have you tried Miracle mist. There was an article @ in new mobility awhile back. I'm using it now for a stage I area that seems to be helping _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, April 20, 2008 9:42 AM To: quad-list@eskimo.com Subject: [QUAD-L] Continuous pressure sore problems... I have a problem and I'm hoping somebody on the list can help me with. I have had problems with pressure sores since my injury 13 years ago. They never get really bad, mostly just to the blister stage but they are constant. The area where I get the sores all the time is always purple, I have asked doctors, nurses and people in the support groups that I attend an apparently I am the only one with a purple butt. Until recently I could lay on my side for a couple of days and they would go way. It seems like now whenever I lay on my side all I do is sweat. The more I sweat the more I want to cover myself up and the more I cover myself up the more I sweat. If I have somebody put the warm blow dryer on me it helps but only until they stop. I would love to hear what kind of mattress and what you guys do or don't do to prevent constant pressure sores? I have an SP tube so that also hinders lying on my side because my knee is always bent and it looks like it's pushing the tube. Take care and play nice Tammie Lou C6 complete quadriplegic 13 years post chippertue.com Chippertue's World http://www.chippertue.com/ In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER. NICKI Merrill Burghardt [EMAIL PROTECTED] wrote: If I do not hold my arm up, a finger becomes red with a narrowing at the hand which then is a thin red line as if a vane. Does that sound suspicious? I have a doc appointment in a month but maybe I should go to Urgent Care. Merrill _ From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 9:50 AM To: Lori Michaelson; QUADLIST Subject: Re: [QUAD-L] PAIN SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR CLOT. MY LEVEL WAS 2226! NICKI Lori Michaelson [EMAIL PROTECTED] wrote: I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK I went around for about a month with my left lower leg very swollen and very hard. I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS. A sentence said If one leg is significantly larger than the other... it could indicate a clot. All I knew was that a clot was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me. The very next morning I called my primary care physician and I went to see him. He looked at it and said I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done. Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger. DOCTORS! QUACK, QUACK! I think I'm on my 95th life because of so many negligent doctors. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote: YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0 MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS. I'M JUST THANKFUL TO BE ALIVE. NICKI Quadius [EMAIL PROTECTED] wrote: Thank goodness you made it through it. They send you home with blood clots? Quadius On 4/12/08, NICHOLE ROHLING [EMAIL PROTECTED] wrote: I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN MY RIGHT LUNG. I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM. THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY RIGHT LUNG AND A FEW IN
[QUAD-L] planes
http://www.unitedspinal.org/publications/action/2008/04/04/%e2%80%9cdo-you- want-to-fly%e2%80%9d/ http://www.unitedspinal.org/publications/action/2008/04/04/%e2%80%9cdo-you-w ant-to-fly%e2%80%9d/
RE: [QUAD-L] ~ Anybody play a Wii?
I've played tennis and bowling with the kids...it is a workout!! c6 complete _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 7:05 PM To: quad-list@eskimo.com Subject: [QUAD-L] ~ Anybody play a Wii? Hello all, Does anybody here play game Wii? I was wondering if us quads are able to handle the game physically? Bobbie _ It's Tax Time! Get tips, forms and advice on AOL http://money.aol.com/tax?NCID=aolcmp0030002850 Money Finance.
[QUAD-L] Nintendo wii
http://www.usatoday.com/tech/gaming/2007-07-24-wii-therapy_N.htm try it out at your local Best Buy or other store.
[QUAD-L] ladies bc pills
Birth control pills caused my blood clot. _ From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Sunday, April 13, 2008 9:57 PM To: Debbie Hamilton; Maria; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) Do you have any concerns with circulation and birth control? I'm afraid to death to get birth control with my paralysis. Stacy - Original Message From: Debbie Hamilton [EMAIL PROTECTED] To: Maria [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Saturday, April 12, 2008 7:14:54 PM Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) I am 49 years old. I didn't start bleeding until 14 months after my injury. And then it came back. It was awful. My husband had to deal with the mess and also my caregivers. My OB/GYN decided to put me on Depo-Provera. I get the shot every three months, and I don't have any periods at all. It has been the best thing I could have ever done! Ask your doctor about it. It's worked great for me. Debbie C4 incomplete/April 2005 - Original Message From: Maria [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, April 8, 2008 7:55:16 PM Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) I am 42 years old, and after my accident in December of 2000, I didn't have my period for seven months or so. Of course, when I would mention this to my husband back then, he would say let's not talk about it. Maybe it will never come back. Well, shortly after that it did come back. Now, I wish it would go away. Couple of things. One is that I have a 33-year-old caregiver, who had to have a total hysterectomy due to cancer. She is cancer free and we are always joking about her not having a period anymore and how I wish I didn't. Also, I never thought my husband would be putting in a tampon for me, much less showing a caregiver how to do it. I use a tampon during the bowel and shower program. Thank God we have a good sense of humor. I have to wonder if I'm looking forward to menopause. As I'm normally cold, and I wonder how the hot flashes are, besides the lack of bleeding. I guess I'll have to wait and see. Take care -- Maria C5/6 On Tue, Apr 8, 2008 at 9:41 AM, [EMAIL PROTECTED] wrote: Ladies, I was 17 when I was injured and didn't get my period for 4 months because your body is in shock-I was told. Then I had normal, for me, periods. When I turned 40 I started have crying spells and being extremely exasperated, I found out it was pre menopause. I had it for 10 years! Also, when I was first injured I would sweat like crazy. Sometimes just when I was in bed. I would have to sleep with towels all over my bed and my hair would be soaking wet. Then I went through a long spell when I only sweat when I was in my chair. I had to have my hair cut short and wear towel around my neck. I would need to change my top at least once a day. DATING WAS A CHALLENGE. I also went through college with sweat dripping on my term paper's. This was before computer's and if they got wet, I would have to type them all over again. I sweat like this from 1973 till 1988 when I had ryzodomy surgery. An uncredited side affect from the surgery was I never sweat again AT ALL. I hope this helps. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey _ Planning your summer road trip? Check out AOL Travel http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316 Guides. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
RE: [QUAD-L] Hospitals and Quads
It still is up to us Dan to be our own advocate in our care. I had to go via ambulance as I was very ill. I insured about an egg crate mattress, booties, skin care etc. It's that we know our bodies best and explaining sometimes for the 50th time when you feel like Death is breathing on your shoulder is physically and mentally draining. If you're ill and need medical assistance, of course, you should go to the doctor. Be prepared. Have the plastic coated AD card. Ensure your primary dr. or a general intern in your area knows YOU. I am grateful to be home but still the effects of the stay are with me. _ From: Dan [mailto:[EMAIL PROTECTED] Sent: Monday, March 17, 2008 3:44 PM To: Quad List Subject: Re: [QUAD-L] Hospitals and Quads Okay, enough already! I know we all have had bad experiences with hospitals, but you're all starting to sound like they are death camps. There are many of us that don't have a close relative to stay with us in a hospital - myself being one. And frankly, you are scaring the shit out of me. Being in the hospital for many people is not a pleasant experience but you have to do what you have to do. I always have a typed list of: my medical history, surgical history, current meds regimen, and prescriptions I am allergic to and those I'm not allergic to. This is given to them upon registration. So I feel at least they are aware of the basics. Please give those of us - and I can't be the only one - who will be entering the fray alone some hope, encouragement and peace of mind. Dan At 05:39 PM 3/16/2008 -0700, Lori Michaelson said something that elicited my response: I have ALWAYS had a family member (mostly my significant other or my husband) present during any hospital procedure or stay. Because they simply do not have a clue about spinal cord injuries. In fact, it's pretty scary how much they don't have a clue about anything! A very high percentage of folks die in hospitals because of negligence or malpractice that gets swept under the carpet. They explain it away somehow and there is nothing one can do after the damage is done especially if it is death. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ ---Original Message--- From: Merrill Burghardt mailto:[EMAIL PROTECTED] Date: 3/16/2008 5:02:17 PM To: quad-list@eskimo.com Subject: [QUAD-L] Hospitals and Quads Are you suggesting to have caregiver present at a procedure? In scrubs? Merrill _ From: RONALD L PRACHT [mailto:[EMAIL PROTECTED] Sent: Sunday, March 16, 2008 4:51 PM To: quad-list@eskimo.com Subject: [QUAD-L] Hospitals and Quads Anytime a quad gets any procedure done at the hospital I think it is wise to have someone there as your backup. Someone that knows your disability and the in and outs. Many of these people at the hospital have no clue about spinal injuries and have a deaf ear when you explain anything. When your life is at stake you cant be to careful. ron c7
RE: [QUAD-L] State We All Live In.
Long Island, NY
_
From: Danny Hearn [mailto:[EMAIL PROTECTED]
Sent: Saturday, March 08, 2008 8:42 PM
To: Lori Michaelson; Quad List
Subject: Re: [QUAD-L] State We All Live In.
Yes, Lori---Like you, I can remember where many list members live, but not
all--It's good to get a refresher update. Me and Ron live in the same
general area of Missouri and Dana is a bit farther in Kansas City, I think,
but still in Missouri.- Like many on the list I prefer the warm
climates, But have lived in Mo. all my life and began buying a home here
before I got Paralyzed, Plus most me and Wifes family are in this area. I
have traveled to many States prior to injury and love quite a few, even tho
some are TOO cold for me now. I loved some of the warm states Like Arizona,
New Mexico and Florida, --- Also A lot of the Cold winter States are
beautiful too. such as Colorado, Montana, Idaho and Wyoming,,, But I
could not take those COLD WINTERS, the MIDWEST is cold enough for a
QUAD. LOL!
Dan H.
Lori Michaelson [EMAIL PROTECTED] wrote:
res://C:\Program%20Files\NaturallySpeaking9\Program\web_ie.dll/QMARK.GIF
res://C:\Program%20Files\NaturallySpeaking9\Program\web_ie.dll/ARROW.GIF
Someone started this poll a couple of years ago or less. I kept a separate
text file that I could land sad to see where everyone is from but I
currently can't find it. Well, this gives me another opportunity to keep a
separate list to glance at. Some of you I can remember for obvious reasons
but other times I completely forget.
Anyway, I live less than two hours south of Greg in Tucson, Arizona. But I
am from the upstate New York area.
I am wondering why there are not a handful more of other folks with spinal
cord injuries from the many different established nations that have not
stumbled upon this group like we all have in the United States one way or
another. I found it back in 1995!
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
On 3/7/08, Greg [EMAIL PROTECTED] wrote:
I'm in the Phoenix area.
Greg
_
Hi, I noticed some were talking about the State's We All Live
InBesides All the Quad Friends that reside in Other Countries, Where
do All the U.S.A. Quads now live?
I live in {Missouri-- In the Midwest.} I have not seen any quads from places
like.. Wyoming or Utah or Alabama and so on ???
Dan H.Mo. C-6 10.6 yrs. Post
RE: [QUAD-L] QUESTION: SUPRA PUBIC
when was your last uro check-up? _ From: Paul Jacobson [mailto:[EMAIL PROTECTED] Sent: Friday, March 07, 2008 9:56 PM To: Quadius; Danny Hearn Cc: Merrill Burghardt; quad-list@eskimo.com Subject: [QUAD-L] QUESTION: SUPRA PUBIC For those of you with a suprapubic, how do you know when you have a UTI. Since, you always have bacteria.even if it's good bacteria.you always are positive for a UTI. I am experiencing hourly abdominable spasms followed by sweating. Each episode lasts about 60 seconds. The tube is not clogged as I continue to pee through the catheter. Wonder what you guys think. Thanks, Paul c5/6 complete
[QUAD-L] wireless info
MyWirelessReview. com will be launched on 2/25 by the Rehabilitation Engineering Research Center for Wireless Technologies (sponsored by the Nat'l Institute on Disability Rehabilitation Research (NIDRR) of the U.S. Dept of Education Over the years RERC has heard that choosing a wireless product can be complicated and confusing. There are so many variables to consider and compare - features and functions, service plans, prices, accessories, and the hot new product on the market. Choosing one to fit your specific needs can be overwhelming. Through the Survey of User Needs, hundreds of Consumer Ad visors have told RERC that they are interested in evaluating a website designed to help consumers make these choices. the new site goes beyond simply providing information on product features by creating a forum for customers to share their experiences using wireless products. It connects you with fellow CAN members and others with abilities similar to your own. You will be able to learn about which wireless products people use, how they use them, and what they like or dislike about them. Become a Consumer Advisor at www.wirelessrerc. org or by calling Lynne Broderick 800-582-6360 (Shepherd Center/Wireless RERC, 2020 Peachtree Road, NW, Atlanta, GA 30309 Print material is also available. _ _ _ _ __._,_.___ http://us.f534.mail.yahoo.com/ym/[EMAIL PROTECTED] omSubj= Elizabeth M. Treston, M.A., CCC/SLP Speaker/Disability Consult/Education 516.316.1807 e-mail: [EMAIL PROTECTED] http://www.missliz.org/ www.missliz.org
RE: [QUAD-L] Dragon home edition or professional
Their services are free? _ From: Angie Novak [mailto:[EMAIL PROTECTED] Sent: Tuesday, January 15, 2008 3:23 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Dragon home edition or professional Bring your questions to these guys: http://www.thespeechgurus.com They'll be able to tell you what you need. You can buy it from them as well. They really are great guys, and they are the experts! -Angie Novak [EMAIL PROTECTED] wrote: To those who use dragon Dictate. As my very first time at using these programs, which should I buy? Dragon Professional $200 or Home addition 9 $100 Bobbie _ Start the year off right. Easy ways to stay in shape http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489 in the new year. _ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try http://us.rd.yahoo.com/evt=51733/*http://mobile.yahoo.com/;_ylt=Ahu06i62sR8 HDtDypao8Wcj9tAcJ it now.
RE: [QUAD-L] dragon dictate vs naturally speaking
I bought version 8 for 100.00 at bestbuy _ From: Dan [mailto:[EMAIL PROTECTED] Sent: Monday, January 07, 2008 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] dragon dictate vs naturally speaking Yikes! I just went to their web site and it costs $769.00!!! How fast can you talk using this program? Dan At 09:13 PM 1/6/2008 -0500, [EMAIL PROTECTED] said something that elicited my response: I have used Dragon 7, 8 and 9 and I really didn't find 9 being much better than 8. I was quite disappointed as they are quite pricey.. I started out with the very first Dragon for DOS and then I also had another Dragon before Dragon 7, which was not professional and did not work very hands-free. When I got a laptop and other computer that I use in bed, I needed professional for hands-free . I have purchased my Dragon 8 and Dragon 9 through know-brainer. I don't know of anybody else has had this problem, but when I try to turn on Dragon 9, it will not come on with my voice ever, even though I keep training. It is quite disgusting. Dragon 8 almost always turns on. It really is irritating when you have somebody reboot your computer and you may have to wait for it to finish rebooting, before they can turn on the microphone. I haven't checked to come on. Has anybody else had this problem. It also seems like Dragon 9 will close more than Dragon 8.. it also brings up the Dragon window which you have to click close when I say reboot Dragon using KnowBrainer, you cannot click on close, before Dragon is ready and the microphone is on. I have re-loaded the Dragon program to see it that helped. Dana Dana _ Start the year off right. Easy http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489 ways to stay in shape in the new year. _ Start the year off right. Easy http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489 ways to stay in shape in the new year.
RE: [QUAD-L] Is anyone posting on the quadlist anymore?
Are you getting the posting? You are subscribed as far as I can tell. Not received any of the postings? Even the one saying that you are here? From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, December 06, 2007 11:24 AM To: quad-list@eskimo.com Subject: [QUAD-L] Is anyone posting on the quadlist anymore? Is anyone out there? I have been trying to subscribe to the quad list as I am receiving no postings anymore. Maybe everyone left. Did everyone go to another site? Glenn A Henry _ Check out AOL Money Finance's list of the hottest products http://money.aol.com/special/hot-products-2007?NCID=aoltop000301 and top money wasters http://money.aol.com/top5/general/ways-you-are-wasting-money?NCID=aoltop000 302 of 2007.
RE: [QUAD-L] Voice-recognition experts
I use version 8 and had the same problem. DD company made me pay 100.00 to talk to an outsource person I had difficulty understanding. Turns out I had to reinstall and retrain _ From: Angie Novak [mailto:[EMAIL PROTECTED] Sent: Thursday, December 06, 2007 1:57 PM To: Quad-list@eskimo.com Subject: [QUAD-L] Voice-recognition experts Hey everybody- This applies to all of us. These guys are great! I've been working with them for several years with Dragon Dictate, Dragon NaturallySpeaking version 9, and my environmental control unit. Jon and Tim know what they're doing, and are VERY helpful. I'm so happy that they decided to open a business of their own specializing in voice recognition. They have always helped me out, and still do, whenever I have an issue. They helped me with my last one. They are very polite, respectful, knowledgeable, patient, helpful, and are determined to work with you and whatever voice recognition needs or issues you have. Including purchasing, installing, training, and customer service. From my own experience with them, if there's something going on and you have no idea why, they'll do everything they can to figure it out and fix it. They understand how people like us need voice-recognition, and needed to be working especially. I've worked with different guys who specialize in voice recognition, and none of them were as good or as genuine as Jon and Tim are. They really want your voice recognition things to work properly. Next time you need to take your voice recognition business somewhere, I highly, highly, highly recommend taking it to them. Whether you are disabled or not, you won't regret it! Here's their website address: Http://thespeechgurus.com Check them out and spread the word!- Angie Novak Ventilator dependent and quadriplegic from a spinal cord injury. _ Looking for last minute shopping deals? Find http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/c ategory.php?category=shopping them fast with Yahoo! Search.
RE: [QUAD-L] supra pubic catheter
what brand are you using now? _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, November 29, 2007 12:26 AM To: quad-list@eskimo.com Subject: [QUAD-L] supra pubic catheter Is there a catheter that bends at a 90 degree angle so you don't have to bend a regular catheter? It agitates my bladder to bend it. Luke 7yrs post _ More new features than ever. Check out the new AOL Mail http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=ao lcmp000503 !
[QUAD-L] SCI/D women only
if you've experienced menopause can you email me? sorry guys...
RE: [QUAD-L] Brother wants me in a home
ave you talked to your Independent Living Center? _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, October 10, 2007 7:50 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Brother wants me in a home BTW, how do some of you get out and live on your own? I know for one the bills and financial stuff would be less of a problem. But I need to move (which I'm all for) just to stay out of a nursing home. Again any suggestions would be great. Keith/34/c4-5/NJ _ See what's new at AOL.com http://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your Homepage http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169 .
[QUAD-L] advice on bowel program
What is your routine? Do you take meds (i.e. senna tablets, colace, what kind of suppository; when do you take them? How much fiber? Do you take narcotics? When do you go (every day, every other day etc. As a newly injured person it takes awhile to figure out what is best for you. Many use senna tabs @ 7-8 hours before their schedule.. Some add colace to keep stool soft. Some go every MWF or every other day so they aren't attached to the toilet. Is your stool hard? Is it enough for what you are consuming? _ From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, October 07, 2007 1:57 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] Please, can you give advice on bowel program I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT IT GETS RID OF THE SUPPOSITORY NICKI - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, October 06, 2007 11:19 PM Subject: [QUAD-L] Please, can you give advice on bowel program I am so sick and tired of this dominating my life. It is after 12 midnight and I am considering sleeping on the potty chair. At 8 I inserted a suppository. An hour and and half later I decided to call it quits, nothin happening. It's 9:30 and am making my way to bed. THEN I needed to get back on and did not make it. What a mess. When will this get better? I am so tired of this that I am seriously considering limiting my food intake. Starting tomorrow. Taking a shower and dressing took me 2 hours and I have spent over 3 hours doing my bowel program. It has been a year since my accident. Shouldn't I have this figured out by now? I am so frustrated and angry. Sick and tired of crying to. Thanks Shelly 1 year post C6-C7 incomplete _ http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aim/en-us/index.htm Check Out the new free AIM(R) Mail -- Unlimited storage and industry-leading spam and email virus protection.
[QUAD-L] FYI
DBTAC- Northeast ADA Technical Bulletin: October 2007 The DBTAC- Northeast ADA Center at Cornell University provides training, technical assistance and materials on the ADA and accessible information technology throughout New York, New Jersey, Puerto Rico and the U.S. Virgin Islands. This monthly technical bulletin is part of our dissemination efforts and if you do not want to receive this document or would like others from your organization added to our list, please call 1-800-949-4232 or reply to this message. Thank you. Please Join us for the October Distance Learning Program - ADA Legal Update: Current litigation trends under the ADA The courts and federal agencies are shaping the ADA through their decisions and settlements. This session will outline the key issues that are currently before the courts as well as discuss some trends in case law at the lower courts which will have an impact on decisions at all levels, including any future cases to be argued before the Supreme Court. Speaker: Barry Taylor, Director of Legal Services, Equip for Equality, Chicago, Illinois CEU Credits: CRC Time: 1:00-2:30pm CT Date: October 17, 2007 To learn more or to register for the ADA Audio Conference please visit www.ada-audio.org http://www.ada-audio.org/ . FEMA Releases Disability Disaster Reference Guide (from NCD Bulletin - August 2007) On August 21, the Department of Homeland Security's Federal Emergency Management Agency (FEMA) released a new reference guide that outlines existing legal requirements and standards relating to access for people with disabilities. A Reference Guide for Accommodating Individuals with Disabilities in the Provision of Disaster Mass Care, Housing and Human Services is the first of a series of disability-related guidelines to be produced by FEMA for disaster preparedness and response planners and service providers. The document summarizes equal access requirements for people with disabilities within disaster mass care, housing, and human services functions. The Guide explains how applicable federal laws relate to government entities, the private sector, and religious organizations. A full copy of the Guide may be accessed at www.fema.gov/oer/reference New Jersey Institute for Technology- Disability and Employment Training Program Opportunity (from EmployME! website) On December 22, 2006, the Board of Trustees of the Henry H. Kessler Foundation in West Orange, NJ approved a two-year grant allocation totaling $946,000 to New Jersey Institute of Technology - the state's science and technology university - targeted largely towards people with physical disabilities through training and special initiatives leading to employment. The EmployME! Program is a public-private partnership to prepare unemployed and underemployed men and women with disabilities for both entry level and advanced jobs in information technology fields that are in demand in our state. Applicants can expedite the process by calling NJIT EmployME! at 973.596.3064 or applying online at http://cpe.njit.edu/EmployME New Disability Status Report for Region 2 (New York, New Jersey, and Puerto Rico) The Cornell University's Rehabilitation Research and Training Center on Disability Demographics and Statistics will release the new Disability Status Reports on November 7, 2007. The Status Reports will include the latest statistics related to disability and employment, education, earnings, poverty, and more. The Annual Disability Status Reports provide consistently measured indicators of the demographic characteristics and economic status of working age (ages 21-64) people with disabilities, based on the Census Bureau's American Community Survey (ACS). Disability Status reports for Region 2 are developed in collaboration with the DBTAC-Northeast and the new reports will be available after November 7, 2007 at the Disability Statistic Website: http://www.ilr.cornell.edu/edi/disabilitystatistics/ General Accounting Office has released a report on Lack of Data and Limited Enforcement Options, Limit Federal Oversight for surface transportation (excerpt from GAO's website) The Americans with Disabilities Act of 1990 (ADA) provides people with disabilities the legal right to access transportation and public rights-of-way, including sidewalks and street crossings. The Department of Transportation (DOT) and Department of Justice (DOJ) share responsibility for overseeing ADA compliance. GAO was asked to review federal oversight and enforcement of ADA compliance, including (1) what is known about compliance, (2) difficulties the federal government faces in overseeing and enforcing compliance, and (3) the sources of federal help and any gaps in that help. GAO's work encompassed a wide range of federal agencies and other entities, such as industry associations, transportation providers, and disability advocacy groups, as well as detailed reviews in eight cities across the country. For a copy of the full
[QUAD-L] taking down website
I would check into thatseems odd. _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, October 01, 2007 1:27 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] About the roll in shower Speaking of things legal. I was asked by the city 'fathers' to take down my website ( old Glendale Commission on http://ocgrands.com/gcopd/index-old.html Persons With Disabilities (GCOPD) ) where I had pictures of local voting places and described the shortfalls in regards to handicapped accessibility that we the mayor's commission on persons with disabilities were chartered to inspect. They claimed it was 'improper' to put city oriented research and info on a private website and could possibly lead to legal implications. When my district representative called, she wondered why we were doing that activity anyway. Talk about the left hand not knowing what the right hand is doing then cloaking it all in legaleeze mumbo jumbo. Dave In a message dated 10/1/2007 10:08:17 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: I've been on two commitees to design and build housing locally for handicapped people. One thing I learned was handicapped people are hard on bathroom floors. If you treat the entire bathroom like its the floor of the shower, cleanups and mildew are much simpler to handle. It's expensive at 1st, but you save big on disasters that you don't have. Extreme home makeovers have products they want to sell. Disability products are such a small part of the remodeling market, I'd rather bet on getting struck by lightening on a sunny day. I'd be happy to live in an apartment that I helped get built but somehow, being on the commitee would make my living there a conflict of interest. The first handicapped accesible section 8 apartments I worked on are now filthy slums where the term disability was twisted to mean alcoholic and drug addict. On my last visit there were no machines in the laundry room. they had been sold by a tennant that was mentally ill. The building security system no longer existed and the entire first floor was being run by a pimp. The city claimed they spent 20g a year on security. You guessed it, the pimp got 20g a year. The city has since sold it to a judge. (the uncle of the pimp) The second building I worked on was to be run by local presbytery under Bush's plan to let charities take over things the gov't sucks at. That is suspended untill the federal gov't finds money it isn't sending to Iraq. Sure feel bad for the crippled soldiers coming back. I'm trying to get the city interested in a building strictly for spinal cord injuries that require wheelchairs but no takers yet. As one councilman said, we already have all the good parking places! Where ever you're at, don't give up. Remember, Only lawyers believe lawyers are needed. Keep them out. They are put on earth to make sure we all believe in hell. good luck, john - Original Message From: Nichole Rohling [EMAIL PROTECTED] To: John S. [EMAIL PROTECTED]; Quadlist quad-list@eskimo.com Sent: Monday, October 1, 2007 12:05:51 PM Subject: Re: [QUAD-L] About the roll in shower DO YOU LIVE ON SOCIAL SECURITY? MAYBE THEY WOULD DO THIS ON EXTREME HOME MAKEOVER. - Original Message - From: John S. mailto:[EMAIL PROTECTED] To: Tim Thompson mailto:[EMAIL PROTECTED] ; Nichole mailto:[EMAIL PROTECTED] Rohling Sent: Monday, October 01, 2007 9:29 AM Subject: Re: [QUAD-L] About the roll in shower You really do need a shower chair, but I found these bathrooms need a copper subfloor with a special tile that drains to a universal drain in the bathroom. The tile has microgrooves to direct the water to the drain and theres very little tilt. The copper subfloor is needed because anything you do may fail in one or more places and the copper can also be designed to drain. I like putting a heated cement subfloor below the copper. Along with a vent fan the bathroom needs a small fan stirring the air for about 10 minutes after you leave it. It should be set to turn on every 12 hours if its not used. This helps stop mold and mildew from forming. john - Original Message From: Tim Thompson [EMAIL PROTECTED] To: Nichole Rohling [EMAIL PROTECTED] Sent: Sunday, September 30, 2007 9:16:11 PM Subject: Re: [QUAD-L] About the roll in shower Ha ha, You need a SHOWER CHAIR. And no, they're not elec. stunt On 9/30/07, Nichole Rohling [EMAIL PROTECTED] wrote: The only problem is me and my electric chair together weigh over 400 lbs. I have mirrors in my corner shower so I can wheel in at an angle and fix my hair and I turn sideways to put on my make-up - I don't think fiberglass or pre-fab could hold the weight without it eventually cracking. i'd like to pour concrete and have my entire bathroom concrete - Original Message - From: RONALD L PRACHT mailto:[EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, September 29, 2007 10:40 PM Subject: [QUAD-L]
RE: [QUAD-L] Psuedamonas UTI
Try and look at www.sciwire.com as the nurse maybe able to answer your question, _ From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 02, 2007 1:56 PM To: quad-list@eskimo.com Subject: [QUAD-L] Psuedamonas UTI Hi all...I have had a bad UTI for a month now, I just got the results of a Urine Culture today, and they told me I have psuedamonas bacteria infection and are going to contact my Urologist because only I.V. drugs can fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time i've had this type bacteria, that will probably require I.V. drugs once again. It is very depressing, Has anyone else had repeated serious UTI's such as Psuedamonas??? We are wondering how many times one can use the I.V. drugs for this before getting resistant to them...I don't know what options there are..I will ask my Uro Doctor but he seems to not know a lot on the subject. Thanks, Dan H.
[QUAD-L] Nominated in 2 categories!!!
Thanks for your nominations! Well they worked! So now I need to win so please vote for me as described below! Send to your friends too! See you in Washington!! I have been honored with a nomination for induction into the Spinal Cord Injury Hall of Fame in the category of Disability Activist and Emerging Leader. I am truly humbled as I feel I don't deserve it when I read the other names of the nominees. I do like winning though! The induction ceremony will be at the Kennedy Center for the Performing Arts in Washington D.C. on November 6. Please blocked::http://spinalcord.org/members/login.php?errmessage=2.+You+need+to+ log+in+to+use+this+feature+or,+you+may+have+been+idle+too+long.br click here to vote for me in the category of Disability Activist or Emerging leader (or both, LOL) If you want to vote for other categories while you are there, please do so, but you are not required to vote in every category. Voting ends at 5 pm ET on October 5, so don't delay! You must be a member of the National Spinal Cord Injury Association (NSCIA) to vote, but becoming a member is free and easy! Just sign up using the simple online form found here blocked::http://www.spinalcord.org/secure/subscribe.php?PHPSESSID=1dab01de4 c6d1c04ed1c718f82992ece . As a member, you will be showing your support not only to me, but to everyone living with spinal cord injury or disease. Thank you for your support! MissLiz Elizabeth M. Treston, M.A., CCC/SLP Speaker/Disability Consult/Education 516.316.1807 e-mail: [EMAIL PROTECTED] http://www.missliz.org/ www.missliz.org
RE: [QUAD-L] test-huh?
Did I miss something? LOL, Merrill what are you referring to? _ From: Merrill Burghardt [mailto:[EMAIL PROTECTED] Sent: Saturday, September 08, 2007 2:51 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] test I understand that this was probably a joke, and not bad either but it got me thinking. The analogy is wasted on me. Several sexual aids and alternatives are presented to the populous and this includes some brought to SCI people in educational classes which would have disapproval to many non European. To many SCI injured folks these aids have given birth to intimacy for many. Personally or unfortunately sex is not high on my list but unfortunately I lack intimacy in many forms which I would desire in my life. Viagra has been an option to me compliments of the VA In my sexual ed classes I admit in the beginning I guess I was shocked that we were directed to investigate local sex shops. Items in certain circles do have applications for many. Why are many of us , an I shocked that our parents might indulge? An open mind is a sad mind not to share. A new flag pole might add attraction to an old building, especially one of stature. Merrill _ From: Bill Jenkins [mailto:[EMAIL PROTECTED] Sent: Friday, September 07, 2007 3:17 PM To: Quad List Subject: Re: [QUAD-L] test I didn't study! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL My doctor refused to write me a prescription for Viagra. He said it would be like putting a new flagpole on a condemned building. - Original Message - From: Eric W Rudd mailto:[EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, September 07, 2007 5:59 PM Subject: [QUAD-L] test Eric W Rudd [EMAIL PROTECTED]
[QUAD-L] disregard Merill et al.
Thanks to Eric I now understand (about the test subject line). LOL, I never read anyone's signature! Guess now I will have to!
RE: [QUAD-L] Tattoos-social
www.sciwire.com has a number of topics on tattoos _ From: LTeasley [mailto:[EMAIL PROTECTED] Sent: Friday, August 24, 2007 8:15 PM To: quad-list@eskimo.com Subject: [QUAD-L] Tattoos-social Hi you guys out there in Quadville, I have a question about tattoos. Are there any of you who have got tattoos post injury below the level of your injury? I really would like to get another one (I have three already), and since there is very little space below injury level left on my skin... I've heard from some people (2) that they go dysreflexic, others say they wouldn't even try it. What do you guys think of the whole idea? Thanks for any info, Lucinda _ Choose the right car based on your needs. Check out Yahoo! http://us.rd.yahoo.com/evt=48518/*http://autos.yahoo.com/carfinder/;_ylc=X3 oDMTE3NWsyMDd2BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDY2FyLWZpbmRlcg-- Autos new Car Finder tool.
RE: [QUAD-L] VAN UPDATE
Is there any way you can get the media behind you? We have the local TV station help consumers? _ From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, August 19, 2007 4:33 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] VAN UPDATE THE DRIVER INSTRUCTOR SAID HE'S NEVER HAD PROBLEMS LIKE THIS WITH THE COMPANY. JUST MY LUCK IT ALL HAPPENED TO ME - LOL. ALL I CAN SAY IS DON'T USE INDEPENDENT DRIVING SYSTEMS OR FREEDOM WHEELS IN HOUSTON. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, August 19, 2007 3:15 PM Subject: Re: [QUAD-L] VAN UPDATE Nicki, Yes, you go right ahead and scream as much as you feel you need to. Your van ordeal has really scared me. I need to get a new van and just knowing what you've been through, makes me leery of even buying one. Good luck on getting your van back and it working properly for you. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis _ Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
RE: [QUAD-L] VAN UPDATE
CALL!! Monday morning! Why should you deal w/ others ineptitude? SCI/D does not make us saps! _ From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, August 19, 2007 5:52 PM To: Elizabeth Treston; Quadlist Subject: Re: [QUAD-L] VAN UPDATE YES AND NO. I LIVE IN OKLAHOMA AND WE DO HAVE IN YOUR CORNER ETC. PROBLEM IS THE COMPANY IS IN HOUSTON, TX. HOWEVER, A DEALER HERE IN OK ACTUALLY BIDDED ON THE WORK. I DO KNOW THE DEALER PULLED PAYMENT AFTER MY VAN WENT HAYWIRE AND THE COMPANY IN HOUSTON SAYS VAN IS READY BUT THEY WON'T DELIVER UNTIL PAYMENT IS RECEIVED. DEALDER IS CUTTING CHECK IN THE AM, FAXING THEM A COPY AND SENDING IT FED EX OVERNIGHT AM DELIVERY. IF I DON'T GET MY VAN BY WEDNESDAY I'LL BE CALLING SOMEONE! - Original Message - From: Elizabeth mailto:[EMAIL PROTECTED] Treston To: 'Nichole Rohling' mailto:[EMAIL PROTECTED] ; [EMAIL PROTECTED] ; 'Quadlist' mailto:quad-list@eskimo.com Sent: Sunday, August 19, 2007 4:26 PM Subject: RE: [QUAD-L] VAN UPDATE Is there any way you can get the media behind you? We have the local TV station help consumers? _ From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, August 19, 2007 4:33 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] VAN UPDATE THE DRIVER INSTRUCTOR SAID HE'S NEVER HAD PROBLEMS LIKE THIS WITH THE COMPANY. JUST MY LUCK IT ALL HAPPENED TO ME - LOL. ALL I CAN SAY IS DON'T USE INDEPENDENT DRIVING SYSTEMS OR FREEDOM WHEELS IN HOUSTON. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, August 19, 2007 3:15 PM Subject: Re: [QUAD-L] VAN UPDATE Nicki, Yes, you go right ahead and scream as much as you feel you need to. Your van ordeal has really scared me. I need to get a new van and just knowing what you've been through, makes me leery of even buying one. Good luck on getting your van back and it working properly for you. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis _ Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
RE: [QUAD-L] Stolen van
Did she contact the local media? _ From: RollinOn [mailto:[EMAIL PROTECTED] Sent: Monday, August 13, 2007 12:51 PM To: quad-list@eskimo.com Subject: [QUAD-L] Stolen van A person from wheelchair junkie just posted this on and asked everyone to get the word out. My power wheelchair and wheelchair van were both stolen Tuesday night, Aug 7, 2007, from the Springfield area of Western Massachusetts. We were the victims of an armed home invasion. I had taken my Mom shopping and come home about 8:00 pm. Sometime that evening, someone cut the screen door and got in. They stole cash and my van keys that were on the table. We didn't notice my van was gone until the next day. The minivan was a 1999 Ford Windstar by VMI. It had hand-controls and a steering knob. It had the folding ramp in the passenger sliding door. Also, my power wheelchair was in the van. It was a blue Invacare M91 Pronto. The police have had no luck so far in finding either the van or the chair. I don't know if the thief just wanted a ride or if he knew it was a wheelchair van before he took it. I don't know if he intends to strip it or sell it or the chair. If anyone hears anything, I have set up an email at: [EMAIL PROTECTED] Mark Jackson RollinOn No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.11.17/951 - Release Date: 8/13/2007 10:15 AM
[QUAD-L] MN guy on bridge for Wheel
http://www.cnn.com/2007/US/08/03/bridge.collapse.paraplegic/index.html Paralyzed man survives 2nd brush with death on collapsing bridge Quote: _ MINNEAPOLIS, Minnesota (CNN) -- Seven years ago, police in North Carolina covered shooting victim Marcelo Cruz with a tarp, believing he was dead. He wasn't. Cruz survived the street fight shooting, but was left paralyzed from the waist down. The Mexican native rebuilt his life, and at 26, was living in Minneapolis, driving a specially equipped van so he could get around the city. That's what he was doing Wednesday when he drove onto the Interstate 35W bridge just after 6 p.m., only to see the bridge in front of him start to shake -- and in a few short seconds, tumble down. Cruz saw 10 or 20 cars in front of him plunge into the water. He applied the brakes, but on the now-sloping bridge deck, he couldn't stop. I thought I was going to die, he told CNN. But he wasn't afraid, he said. He just thought about what he needed to do and how to do it. How to stop a car if the brakes don't do the job? Cruz swerved, and plowed his van into the concrete guard rail. It worked -- the van stopped, less than 15 feet from what was now the end of the bridge before it dropped into the Mississippi River. Now trapped in his van on the bridge -- unable get out because of the sharp angle -- Cruz said he heard a woman screaming from below. Then she stopped. I really felt hopeless because I couldn't do anything, he said. Finally, two rescue workers saw him and helped him reach safety. About 15 minutes after the bridge collapse, he called his mother, Ignacia Cruz, and told her to turn on the television. He just wanted her to know he was OK. Ignacia Cruz spoke to CNN quietly in her native Spanish. God and the Virgin Mary saved my son, because otherwise he would have tumbled into the water with all the other cars, she said. I began to cry and cry, because this was the second time he was saved. On Thursday, after surviving his second brush with death, Cruz was stoic. You really have to enjoy every day, he said, because you don't know if it's your last.
RE: [QUAD-L] Fwd: Congratulations and Thank You!
New York: Clinton (D-NY), Yea Schumer (D-NY), Yea _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, August 04, 2007 6:47 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: [QUAD-L] Fwd: Congratulations and Thank You! How did your Senator vote against this children's Bill. I always find it interesting to see! Dana _ Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
RE: [QUAD-L] Tetrapregic dancing
I like this one too http://www.youtube.com/watch?v=ybCFL-Nl-K0 -Original Message- From: KK [mailto:[EMAIL PROTECTED] Sent: Monday, July 30, 2007 12:58 PM To: quad-list@eskimo.com Subject: [QUAD-L] Tetrapregic dancing pLEASE WATCH THE VIDEO OF THIS TETRAPLEGIC HAVING A HECK OF A TIME! LUISM http://www.youtube. com/watch? v=YQKm0qc- 670
RE: [QUAD-L] Quad gut possible cure
There's been some discussion @ the TENS at www.sciwire.com Some have had improvement _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, July 27, 2007 6:15 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Quad gut possible cure In a message dated 7/27/2007 5:09:23 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Anybody tried one of these slendertones? The FDA issued a statement two years ago on the benefit or lack of benefits by anyone using a device very similar to the slendertone. Personally, I would think that you'd get the same results with a well placed TENS unit. If you are really interested in this product and what it will do for YOU, have a certified Physical Therapist discuss the merits with you. Granted, it just might work, but I don't think so. But the idea of an old TENS unit might be the answer. Best Wishes _ Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
RE: [QUAD-L] Voc rehab
Check and see if you have a One Stop Center under the dept. of Labor for jobs _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, July 27, 2007 5:35 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Voc rehab In a message dated 7/27/2007 5:22:15 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Don't expect them to find you a job. One of the topics I've learned is they do have particular companies (if you will) who will accept the handicap and try to find others that will. Diane _ Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
RE: [QUAD-L] fire
OMG!! _ From: RollinOn [mailto:[EMAIL PROTECTED] Sent: Saturday, July 28, 2007 2:15 PM To: Quad-list@eskimo.com Subject: [QUAD-L] fire Interesting day! As you I had my batteries replaced and this morning I get in my chair and I went to tilt in my chair and it started smoking and then flames and scared the out of me. He put some wires where they were cut when I tilted and my chair caught fire. Lucky I wasn't alone or I wouldn't be telling this story, I would be burnt up! My chair tech is an idiot! Mark Jackson RollinOn No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.10.22/923 - Release Date: 7/27/2007 6:01 PM
[QUAD-L] In a book
I am part of Hilary Cooper's book, Divided Portraits. You can buy it at Amazon http://www.amazon.com/Divided-Portraits-Disability-Hilary-Cooper/dp/18841676 40 or read more @ it at www.hilarycooper.com Elizabeth M. Treston, M.A., CCC/SLP Speaker/Disability Consult/Education 516.316.1807 e-mail: [EMAIL PROTECTED] http://www.missliz.org/ www.missliz.org
[QUAD-L] ADA Technical Bulletin: July 2007
DBTAC- Northeast ADA Technical Bulletin: July 2007 The DBTAC- Northeast ADA Center at Cornell University provides training, technical assistance and materials on the ADA and accessible information technology throughout New York, New Jersey, Puerto Rico and the U.S. Virgin Islands. This monthly technical bulletin is part of our dissemination efforts and if you do not want to receive this document or would like others from your organization added to our list, please call 1-800-949-4232 or reply to this message. Thank you. Please Join us for the July Distance Learning Program - ADA Update: 17 Years Later Date; July 17, 2007 Time: 2:00 pm - 3:30 pm Eastern Time Description: Back by popular demand, join representatives of the federal agencies for an update of their enforcement activities during the past 12 months. Join us as we mark the 17th Anniversary of the ADA and celebrate the on-going efforts of the federal agencies to enforce the rights of individuals with disabilities. Speakers: John http://www.adagreatlakes.org/ProgramsAndServices/AudioConferencing/Speakers /Default.asp?speakerID=john_l._wodatchreferrer=fy2007session10 L. Wodatch, Chief, Civil Rights Division, US Department of Justice Jeanne http://www.adagreatlakes.org/ProgramsAndServices/AudioConferencing/Speakers /Default.asp?speakerID=jeanne_goldbergreferrer=fy2007session10 Goldberg, Senior Attorney Advisor, Office of Legal Counsel, EEOC CEU Credits: CRC To learn more or to register for the ADA Audio Conference please visit www.ada-audio.org http://www.ada-audio.org/ . ADA Celebration with the Federal Agencies ~ July 24, 2007 in Syracuse, NY DBTAC Northeast and ARISE, Independent Living Center (www.ariseinc.org ) will be sponsoring an ADA Celebration by inviting four federal agencies to Central NY; US Department of Justice, Federal Equal Employment Opportunity Commission, Federal Access Board, and the US Department of Transportation. There will be a 90 presentation in the morning on the topic of Employment and Disability presented by DBTAC Northeast. The event will be in Syracuse, NY at the Renaissance Hotel on July 24, 2007 from 10:30 am till 4:00 pm. The fee to attend this event is $30 which includes lunch, a cake reception and all materials for the program. Please be advised that we will have seating for only 120 people, so registration will be on a first come, first serve basis. If people would like more information about the Syracuse area in regard to hotel accommodations, you can check out this website, http://www.travel-library.com/hotels/north_america/usa/new_york/syracuse/ ARISE is currently taking registration. They can be reached at 315-472-3171. ADA Program Associate Position still accepting applications The Disability Business Technical Assistance Center-Northeast ADA Center , a federally-funded grant from the National Institute on Disability and Rehabilitation Research, U.S. Department of Education is seeking a team member to provide training and training evaluation and research assistance. This five-year, 5.5 million dollar project provides training and technical assistance to businesses, employers, unions, advocacy organizations, state and local governments and other constituencies on the Americans with Disabilities Act (ADA) throughout Federal Region II, New York, New Jersey, Puerto Rico and the Virgin Islands. Responsibilities: This individual provides a range of ADA training primarily in the area of disability and employment. The person participates in research and evidence-based practice efforts throughout the Northeast Region. Application Procedure: Interested parties should submit a vita and letter of application describing her/his qualifications, research agenda, and teaching experience to: mailto:[EMAIL PROTECTED] [EMAIL PROTECTED] or Search Committee Cornell University ILR Human Resources 103 Ives Hall Ithaca, NY 14853 Federal Access Board Proposes Guidelines for Federal Outdoor Developed Areas (excerpt from Access Board's website) The Board has released for public comment new accessibility guidelines for Federal parks and recreation areas. As proposed, the guidelines address access to new or altered trails, beaches, and picnic and camping areas on sites managed by the Federal government. Achieving accessibility in outdoor environments has long been a source of inquiry due to challenges and constraints posed by terrain, the degree of development, construction practices and materials, and other factors. In developing these guidelines, the Board seeks to clarify how, and to what extent, accessibility criteria can be applied to outdoor developed areas The guidelines are available for comment until October 18, 2007. A notice published with the guidelines discusses the provisions, poses questions to the public on various issues, and includes instructions for providing comments. Comments can be submitted by email, fax, or mail. In addition, the Board will hold public
RE: [QUAD-L] Mark E Smith
the EPVA is now www.unitedspinal.org they are open to anyone with SCI/D _ From: C Child [mailto:[EMAIL PROTECTED] Sent: Wednesday, July 04, 2007 4:43 PM To: quad-list Subject: Re: [QUAD-L] Mark E Smith I am also a life time member of PVA. They do a lot for the disability community as a whole , but I have to admit that they tend to concentrate their efforts more the problems of the veteran ,and theres nothing wrong with that, that's what they were organized to do. Cullen C3 TM 5/7/97 HAVE A GREAT DAY - Original Message - From: Tim Thompson mailto:[EMAIL PROTECTED] To: RollinOn mailto:[EMAIL PROTECTED] Cc: Quad-list@eskimo.com Sent: Tuesday, July 03, 2007 4:21 PM Subject: Re: [QUAD-L] Mark E Smith Ever heard of the PVA? They represent all paralyzed Americans on the Hill. Stunt PVA Lifetime member On 6/26/07, RollinOn [EMAIL PROTECTED] wrote: Mark E. Smith has a blog in New Mobility magazine that's always interesting and his last one really got me thinking. Life at Large The Disability Dollar As A Cash Cow Jun 25 12:27 By Mark E. Smith If you have a problem, throw money at it at least when it comes to disability-related politics. Here we are on the eve of another blockbuster of a campaign season, racing toward the nonstop political pandering that is the presidential primaries, then the big election of '08. But, for those with disabilities, where are we in the political power struggle that is, which candidates are looking out for our economic and societal equity, like those looking out for virtually every other special-interest group, from tobacco companies to transgender constituents? We are nowhere to be found in the special-interest, cash-fed cow that is modern-day politics. We're still rolling around with picket signs, asking candidates and elected officials to just do the right thing, when such political tactics are, well, passé. What we need is our own formal advocacy, an AARP or NRA, that serves as our collective body, a political machine rolling through Capitol Hill, contributing cash, opening doors, shaking hands, and getting our agenda on the table. If expensive cigars and campaign contributions serve most other special-interests groups, then that's what we should do, too But, we're not in the game namely because we're not willing, as a group, to put our campaign contributions where our complaints are. We don't run with the PAC, and we're not willing to flex our monetary muscle. And I don't get it. In 2008, clout over who's elected, who's defeated, and which legislation is supported will be written on checks during 2007. So why aren't we writing checks? Some will say that we're among the poorest of minority groups, with the highest unemployment rate, that we are at an economic disadvantage in the political process. But aren't we also among the largest minority groups, 46-million strong, including 12.6-million of us with severe disabilities? Even my poor math proves that if 200,000 of us a fraction of those with disabilities kick in $10 each, that's $2-million toward a focused special-interest group. Trust me, at a $5,000 contribution per candidate and official which will typically get you access and an ear in some capacity $2-million would go a long way toward the 2008 disability agenda and beyond. Now, you're probably thinking that all this sounds fine and dandy, but who's going to organize this disability political powerhouse that's going to spread goodwill and cash throughout Washington for those with disabilities? I say we start by enlisting the help of and sending our support to those carrying the picket signs. Mark Jackson RollinOn No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.9/870 - Release Date: 6/26/2007 10:07 AM
[QUAD-L] toilet sling
Looking for a toilet sling for a Trixie lift? anyone? I checked the site and tried contacting the manufacturer but no luck.
RE: [QUAD-L] cushion
Every arse is different. Get yours pressured mapped. It's simple. They slide a black cloth between you and cushion and any pressure shows up red on a computer screen -Original Message- From: Dylan [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 30, 2007 11:45 PM To: Quad-List Subject: [QUAD-L] cushion Hi Fellow Quads, I'm about to get a new cushion with my new chair. I am asking you quads, particularly c5/6 or above complete (and if there are any of u out there who, like me, are thin/tall and have a hard time putting on weight, it would be helpful), who can give me some input/advice on a worthy cushion to meet my needs. I wish I could have one with a pressure gauge and perhaps even a sort of pressure mapping device built in. That would be awesome. The best cushion I have had to date has been the high profile Quatro Roho. Any advice or suggestions? Thank you in advance for your time, Dylan
RE: [QUAD-L] About wheelchair users keeping their heads down in public
I did not see the original post on this issue? Could you provide the story? _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, May 24, 2007 7:55 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] About wheelchair users keeping their heads down in public Amen Ron. Amen W In a message dated 5/23/2007 10:39:56 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hi, I can hardly believe a magazine devoted to disabled persons would give advice to keep your head down in public and dont speak, but if this is true people need to boycott the magazine. Obviously the publishers are prejudice themselves and in the business for a profit only. I encourage new disabled individuals I meet to keep their head up and make eye contact. Using a wheelchair doesnt mean a person is unable to get respect or engage in a conversation. We are american citizens the same as any other walking person out there, and in turn are entitled to the same rights. Ron c7 _ See what's free at AOL.com http://www.aol.com?ncid=AOLAOF0002000503 .
[QUAD-L] fyi
DBTAC- Northeast ADA Technical Bulletin: May 2007 The DBTAC- Northeast ADA Center at Cornell University provides training, technical assistance and materials on the ADA and accessible information technology throughout New York, New Jersey, Puerto Rico and the U.S. Virgin Islands. This monthly technical bulletin is part of our dissemination efforts and if you do not want to receive this document or would like others from your organization added to our list, please call 1-800-949-4232 or reply to this message. Thank you. Please Join us for the May Distance Learning Program - ADA Restoration Act: Legislative Update Date; May 15, 2007 Time: 2:00 pm - 3:30 pm Eastern Time Congressmen Sensenbrenner, Jr (R-WI) and Hoyer (D-MD) introduced a bi-partisan bill that would restore protections for individuals intended to be covered by the Americans with Disabilities Act of 1990 in September, 2006. This piece of legislation was not passed before the end of the 109th Congress. It is anticipated that this piece of legislation will once again be introduced during the new 110th Congress and under very different circumstances given the outcome of the 2006 elections. The ADA Restoration Act as it is currently known is intended to restore the ADA to its original intent and address several decisions made by the US Supreme Court over the past 16 years. Join this session to learn about the history and intent of the ADA Restoration Act and the future of legislation that may affect the civil rights of individuals with disabilities. Speaker: Andrew http://www.adagreatlakes.org/ProgramsAndServices/AudioConferencing/Speakers /Default.asp?speakerID=andrew_j._imparatoreferrer=fy2007session7 J. Imparato, President and Chief Executive Officer, American Association of Persons with Disabilities (AAPD) (Additional speakers may be added) CEU Credits: CRC Access Board's New Information on Bus and Van Guidelines (from Access Board) As part of an effort to update its guidelines for transportation vehicles covered by the Americans with Disabilities Act (ADA), the Board has released for public comment draft revisions to sections covering buses and vans. Published in 1991, these guidelines cover a range of vehicles in addition to buses and vans, including various types of rail cars, trams, and other modes of public transportation. Revisions to these other sections will be released as drafts are completed. For more information, please go to http://www.access-board.gov/news/vehicle-draft1.htm. Are you prepared for the outcome of the lawsuit involving Target's web site? This blog entry from eTrafficJams.com and posted on April 12th, 2007, sends a warning message to all businesses that they should be thinking about and creating a plan for accessibility. Prompted by a lawsuit by National Federation of the Blind, its California affiliate, and a blind University of California, Berkeley student against Target, the blogger sends a warning to web developers: 'The Americans with Disabilities Act (ADA) will undoubtedly affect websites in the near futureFailing to plan is planning to fail.? Take advantage of this probable turn of events and get your clients working with you to move through recommended changes slowly and methodically. New clients are out there waiting for a tip from you about this issue. Your client's disabled users (read: paying customers) will appreciate it too.' Read the entire blog entry at http://www.etrafficjams.com/blog/seo/seo-preparedness-for-americans-with-dis abilities-act/ . There are many other articles that support the notion that accessible web content contributes to Search Engine Optimization (favorable placement in search engine results). Read SEO Accessibility Prevent Lawsuits, Increase Visibility written by Mike Banks Vale and submitted to webpronews.com on March 19, 2007 ( http://www.webpronews.com/blogtalk/2007/03/19/seo-accessibility-prevent-laws uits-increases-visibility ). Employment and Disability Institute (EDI) on-line The Employment and Disability Institute is pleased to announce the inauguration of their new virtual classroom-ediONLINE. This new on-line series of courses and public offerings focus on effective employment, workplace and disability practice and are delivered using web-conferencing as well as real-time transcription. This series is geared toward: * managers * practitioners * advocates and * policy makers in the disability field in order to improve and enhance effectiveness in supporting employment outcomes and greater economic self-sufficiency for people with disabilities. ediONLINE courses bridge the gap between policy and practice by providing you with practical applications, hands-on learning, leading-edge skills, and knowledge that you can immediately apply to your work. Courses will cover the following topical areas: Work Incentive Knowledge and Utilization; Work Incentives Planning; Federal Benefit Programs; SSA Advocacy and
RE: [QUAD-L] Dizzy Miss Lizzy
105 over 70 or 70 over 105? _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, May 11, 2007 9:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] Dizzy Miss Lizzy Hi Guys, I've been taking Nurotin(sp) for about six months now for nerve pain. The past week I've been getting dizzy when I turn in bed when getting dressed, sitting up in bed, reclining in my chair and even if I sit forward like over a table. Now none of this is every time but it's beginning to cramp my style. I saw my visiting nurse today BP was 70 over 105 which is kinda normal for me. She suggested increasing my salt intake like with Gatorade or potato chips but don't go nuts. She left me a phone message so when I got home at 8:30 tonight I called he and left her this fowling message: Hi Jinifer, I just wanted to let you know that I got an extra large jug of Gatorade, drank about half of it then I ate a salt bagel and a half of a bag of potato chips. I'm just doing what you told me. Bye Anybody else here have trouble with dizziness? Bobbie _ See what's free at AOL.com http://www.aol.com?ncid=AOLAOF0002000503 .
[QUAD-L] fyi
DBTAC- Northeast ADA Technical Bulletin: May 2007 The DBTAC- Northeast ADA Center at Cornell University provides training, technical assistance and materials on the ADA and accessible information technology throughout New York, New Jersey, Puerto Rico and the U.S. Virgin Islands. This monthly technical bulletin is part of our dissemination efforts and if you do not want to receive this document or would like others from your organization added to our list, please call 1-800-949-4232 or reply to this message. Thank you. Please Join us for the May Distance Learning Program - ADA Restoration Act: Legislative Update Date; May 15, 2007 Time: 2:00 pm - 3:30 pm Eastern Time Congressmen Sensenbrenner, Jr (R-WI) and Hoyer (D-MD) introduced a bi-partisan bill that would restore protections for individuals intended to be covered by the Americans with Disabilities Act of 1990 in September, 2006. This piece of legislation was not passed before the end of the 109th Congress. It is anticipated that this piece of legislation will once again be introduced during the new 110th Congress and under very different circumstances given the outcome of the 2006 elections. The ADA Restoration Act as it is currently known is intended to restore the ADA to its original intent and address several decisions made by the US Supreme Court over the past 16 years. Join this session to learn about the history and intent of the ADA Restoration Act and the future of legislation that may affect the civil rights of individuals with disabilities. Speaker: Andrew http://www.adagreatlakes.org/ProgramsAndServices/AudioConferencing/Speakers /Default.asp?speakerID=andrew_j._imparatoreferrer=fy2007session7 J. Imparato, President and Chief Executive Officer, American Association of Persons with Disabilities (AAPD) (Additional speakers may be added) CEU Credits: CRC Access Board's New Information on Bus and Van Guidelines (from Access Board) As part of an effort to update its guidelines for transportation vehicles covered by the Americans with Disabilities Act (ADA), the Board has released for public comment draft revisions to sections covering buses and vans. Published in 1991, these guidelines cover a range of vehicles in addition to buses and vans, including various types of rail cars, trams, and other modes of public transportation. Revisions to these other sections will be released as drafts are completed. For more information, please go to http://www.access-board.gov/news/vehicle-draft1.htm. Are you prepared for the outcome of the lawsuit involving Target's web site? This blog entry from eTrafficJams.com and posted on April 12th, 2007, sends a warning message to all businesses that they should be thinking about and creating a plan for accessibility. Prompted by a lawsuit by National Federation of the Blind, its California affiliate, and a blind University of California, Berkeley student against Target, the blogger sends a warning to web developers: 'The Americans with Disabilities Act (ADA) will undoubtedly affect websites in the near futureFailing to plan is planning to fail.? Take advantage of this probable turn of events and get your clients working with you to move through recommended changes slowly and methodically. New clients are out there waiting for a tip from you about this issue. Your client's disabled users (read: paying customers) will appreciate it too.' Read the entire blog entry at http://www.etrafficjams.com/blog/seo/seo-preparedness-for-americans-with-dis abilities-act/ . There are many other articles that support the notion that accessible web content contributes to Search Engine Optimization (favorable placement in search engine results). Read SEO Accessibility Prevent Lawsuits, Increase Visibility written by Mike Banks Vale and submitted to webpronews.com on March 19, 2007 ( http://www.webpronews.com/blogtalk/2007/03/19/seo-accessibility-prevent-laws uits-increases-visibility ). Employment and Disability Institute (EDI) on-line The Employment and Disability Institute is pleased to announce the inauguration of their new virtual classroom-ediONLINE. This new on-line series of courses and public offerings focus on effective employment, workplace and disability practice and are delivered using web-conferencing as well as real-time transcription. This series is geared toward: * managers * practitioners * advocates and * policy makers in the disability field in order to improve and enhance effectiveness in supporting employment outcomes and greater economic self-sufficiency for people with disabilities. ediONLINE courses bridge the gap between policy and practice by providing you with practical applications, hands-on learning, leading-edge skills, and knowledge that you can immediately apply to your work. Courses will cover the following topical areas: Work Incentive Knowledge and Utilization; Work Incentives Planning; Federal Benefit Programs; SSA Advocacy and
RE: [QUAD-L] Husbands
http://www.paralysis.org/site/c.erJMJUOxFmH/b.1297513/k.1C01/Caregivers.htm _ From: Debbie Hamilton [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 17, 2007 7:07 PM To: Quad-list@eskimo.com Subject: [QUAD-L] Husbands As I have told you all, I am a C4, my accident was just two years ago. I am 48, I have a husband I've been married to for 24 years, I raised three boys one is still at home. My husband is having a terrible time with my accident, he has been doing a lot of my care. I have hired home health to get me up and also have someone coming in for part of the day. I don't wanna lose him, I haven't found any support groups for him, are there any online? Any suggestions? Thanks Debbie _ Ahhh...imagining that irresistible new car smell? Check out new http://us.rd.yahoo.com/evt=48245/*http:/autos.yahoo.com/new_cars.html;_ylc= X3oDMTE1YW1jcXJ2BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDbmV3LWNhcnM- cars at Yahoo! Autos.
RE: [QUAD-L] Husbands
http://www.wellspouse.org/ _ From: Debbie Hamilton [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 17, 2007 7:07 PM To: Quad-list@eskimo.com Subject: [QUAD-L] Husbands As I have told you all, I am a C4, my accident was just two years ago. I am 48, I have a husband I've been married to for 24 years, I raised three boys one is still at home. My husband is having a terrible time with my accident, he has been doing a lot of my care. I have hired home health to get me up and also have someone coming in for part of the day. I don't wanna lose him, I haven't found any support groups for him, are there any online? Any suggestions? Thanks Debbie _ Ahhh...imagining that irresistible new car smell? Check out new http://us.rd.yahoo.com/evt=48245/*http:/autos.yahoo.com/new_cars.html;_ylc= X3oDMTE1YW1jcXJ2BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDbmV3LWNhcnM- cars at Yahoo! Autos.
RE: [QUAD-L] BINGO.....UTI STONES
Truly your dr. should tell you and you should ask him/her these questions directly. Make sure they know @ autonomic dysreflexia. _ From: Jessica Ann Gordon [mailto:[EMAIL PROTECTED] Sent: Friday, April 13, 2007 3:10 PM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED] Subject: Re: [QUAD-L] BINGO.UTI STONES urinary stones are probably in your bladder and have either passed through your kidney or formed in your bladder. they use a laser to break them apart then remove what they can and you will pass the smaller pieces when you catheterize. i had no pain or down time following the procedure. they will insert a tube through your urethra into the bladder and pass the instruments through the tube. it sounds awful but the tube isn't much bigger than a catheter. good luck and hope u start feeling better thursday! =jessica On Apr 13, 2007, at 1:28 PM, Veranda Escobar wrote: HEY GUY'S LAST WEEK I TOLD YOU'LL ABOUT MY UTI PROBLEM. MANY OF YOU SUGGESTED TO GO SEE IF I HAD STONES. AND YES I DO. THEY SAID URINARY STONES. IS THAT THE SAME AS KIDNEY? THEY SAID THEY WILL LAZER THEM. CAN ANYONE TELL ME THE DOWN TIME AFTER THIS PROCEDURE? AND WHAT EXACTLY DO THEY DO? I AM IN SO MUCH PAIN SURGERY ISN'T UNTIL THURSDAY. V _ Ahhh...imagining that irresistible new car smell? Check out new http://us.rd.yahoo.com/evt=48245/*http:/autos.yahoo.com/new_cars.html;_ylc= X3oDMTE1YW1jcXJ2BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDbmV3LWNhcnM- cars at Yahoo! Autos.
RE: [QUAD-L] Kidney stones~UTI
You may want to irrigate then _ From: Veranda Escobar [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 04, 2007 4:23 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Kidney stones~UTI I cath myself. I have a stoma. [EMAIL PROTECTED] wrote: Do you have a Foley catheter? Naomi C-4 quad since July 2, 2005 Transverse Myelitis _ See what's free at AOL.com http://www.aol.com/?ncid=AOLAOF0002000503 . _ Expecting? Get great news right away with email http://us.rd.yahoo.com/evt=49982/*http:/advision.webevents.yahoo.com/mailbe ta/newmail_tools.html Auto-Check. Try the Yahoo! http://us.rd.yahoo.com/evt=49982/*http:/advision.webevents.yahoo.com/mailbe ta/newmail_tools.html Mail Beta.
RE: [QUAD-L] Dylan's seizures
A head trauma or just a spinal cord trauma? I've ever had a seizure or have heard of a chemical build-up. _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, March 24, 2007 3:26 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Dylan's seizures My neurologist told me that it is a result of having a trauma, after I had my first couple seizures. I started my medication after testing and have never had a seizure since. I take 50 mg Tegratol twice a day. What do others take? I started medication about two years ago after my few seizures. Dana _ AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com?ncid=AOLAOF0002000339 AOL.com.
[QUAD-L] another site
I visit a few sites for pwd's. I saw this advertised in new mobility www.skipslist.org
[QUAD-L] professor x-FYI
Might be of interest to folks in the New York area: 90.7 FM and WFUV.org, a 50-thousand watt National Public Radio affiliate station in New York City has just completed an enlightening half-hour documentary on disabled musicians called Musical Abilities. The program features a host of musicians, including quadriplegic singer-songwriter Vic Chesnutt and the rock band Def Leppard's one-armed drummer, Rick Allen. Musical Abilities also features insight from Joseph Straus, a Professor of Music Theory at the City University of New York. To coincide with the May release of the documentary, Vic Chesnutt is giving an exclusive live performance on Wednesday, May 9th at the Flom Auditorium on the Rose Hill Campus of Fordham University in the Bronx. Vic was discovered by Michael Stipe of the band R-E-M. You can learn more about him at vicchesnutt. com. The Flom is an intimate theater with 100 seats and we'd like to invite interested parties to attend at NO CHARGE. Guests are invited to arrive at 7 pm for refreshments. The performance begins at 8 pm sharp. This is an RSVP-ONLY event. If you're interested in attending please contact WFUV's Assistant News/Public Affairs Director George Bodarky at 718-817-5561 or [EMAIL PROTECTED] org by April 18th. The concert will be recorded for broadcast along with the documentary on Wednesday May 23rd at 8:30 pm on 90.7 FM and WFUV.org
RE: [QUAD-L] low blood pressure
Are you wearing an abdominal binder? _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, March 17, 2007 9:20 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] low blood pressure In a message dated 3/17/2007 9:00:54 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I know that when I have sleep deprivation I'll blank out and have to put my chair back; my blood pressure is sometimes as low as 80/38. I want to know if I need a certain vitamin or mineral or what can I do to avoid this problem.? This is Mike I'm a quad C-5inc, 46 yrs old. Any feedback would be appreciated. If your blanking out, you should see your Dr. Sometimes my pain pills effect me like that in the morning. My doc said it was normal for quads to have low blood pressure but not blanking out! Diane _ AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com?ncid=AOLAOF0002000339 AOL.com.
RE: [QUAD-L] Off-topic -- not sure what to do
Theres been some topics @ exs and kids at www.sciwire.com http://www.sciwire.com/ for more insight _ From: RollinOn [mailto:[EMAIL PROTECTED] Sent: Sunday, March 18, 2007 5:53 PM To: 'LTeasley'; quad-list@eskimo.com Subject: RE: [QUAD-L] Off-topic -- not sure what to do First off Lucinda Im sorry you have this to deal with on top of everything else. Second, what a jerk to put this on you 5 days after your accident and actions tell me a lot about his character. The good thing is you have a healthy 16 yr old son, I have a 15 yr old son myself so I understand. I really think asking your son where he wants to live would be the best thing to do first but I think having a trusting 3rd party ask him would be best I had custody of my son before my accident and after 2 ½ yrs of recovery and nursing homes hes back and has been here with me 5 yrs now but there was no fighting involved. The fact that he might have to help a little is not an issue in my book, if anything its good for him and would probably be more than glad to lend a hand if asked at all, I try not to ask for anything and give him as much freedom as any 15yr old has. My son has a very normal life theres baseball, football, Xbox, girls, girls and did I mention girls lol! You should be able to find a lawyer to do this free and Id check with non profits that deal with disabled first because most of them either have a lawyer on retention or on the board of directors and would be glad to take this case. Best of Luck, Mark _ From: LTeasley [mailto:[EMAIL PROTECTED] Sent: Saturday, March 17, 2007 10:41 PM To: quad-list@eskimo.com Subject: [QUAD-L] Off-topic -- not sure what to do Hey everybody, I am in a bit of a pickle and I'm not sure how to handle the situation. Approximately 5 days after I was in my accident, my son's father filed for custody. The only thing I can remember is laying there, with a halo on, in a semi-drug-induced coma, thinking I didn't want my son to become a ward of the state. So of course I allowed my power of attorney to sign over papers. Now a little over a year and a half later I am in my own place and he is refusing to let my son stay here anymore than every other weekend citing that the parental roles are now reversed. My ex says that I should be caring for and supporting our son but if he is at home with me he would be caring for and supporting me due to my situation (can I remind you my son is 16). He had been getting up on his own for school since he was in 7th grade and there is a bus stop three blocks away. He is not involved in or expected to be involved in my cares when he is with me, I have PCA's for that. My ex also mentioned that he does not want another disruption to our sons routine (not that he didn't have to get used to one when I got in my accident). Prior to my accident my son and I were joined at the hip and has mentioned that he would like to stay here more than every other weekend. Being dependent on SSDI there's not a lot of money for an attorney. Oh, and did I mention my ex and I were in the middle of a child support battle when I got in my accident? He was hoping to get his payments reduced. Help, I've called legal aid and they don't even have room to put my name on a waiting list. Any comments or suggestions would be greatly appreciated. Thank you and I apologize for the lengthy post. Journey well through life, Lucinda _ Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.13/725 - Release Date: 3/17/2007 12:33 PM -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.13/725 - Release Date: 3/17/2007 12:33 PM
[QUAD-L] Medicare Legislation
ATAP has received a request from the ITEM Coalition FOR IMMEDIATE ACTION. Congressmen Jim Langevin (D-RI) and Jim Ramstad (R-MN) are preparing to introduce the Medicare Independent Living Act . This bill will eliminate the Medicare restriction for in the home use that pertains to individuals with long term mobility needs. As many of you are aware, this is an outdated restriction on the coverage of mobility devices. In essence, if a person who has mobility problems can move around their home without a mobility device, but requires the device to go to work, school, or anywhere outside the home, this person is not eligible for a mobility device through Medicare. In preparation for the introduction of this bill in a few weeks, the Congressmen have circulated a letter to their colleagues requesting cosponsorship of the measure. The ITEM Coalition is requesting that you contact your Representative toll-free using the Capitol switchboard (1.877.224.0041) and ask he/she to become an original cosponsor of the Medicare Independent Living Act, a bipartisan piece of legislation designed to remove Medicare's unfair restriction on in the home usage for mobility devices. There have been many attempts at removing this restriction in the last several years. To date none have been successful. You will recall the most recent attempt last summer when CMS issued new regulations regarding the procurement and reimbursement of mobility devices. Despite numerous comments from individuals and organizations around the country recommending this elimination, CMS chose to take no action in this matter and left the restriction intact. If you have any further questions regarding this matter, please contact the ITEM Coalition directly at 202.349.4260. Thanks. This message, and any attachments, may contain confidential information and is intended only for the individual(s) named. If you are not an intended recipient you are not authorized to disseminate, distribute, or copy this email. Please notify the sender immediately if you have received this email by mistake and delete this email from your system.
RE: [QUAD-L] Messages In Triplets
When someone replies if they don't delete eeryon'es name other than q-list you will get multiple responses. _ From: Merrill Burghardt [mailto:[EMAIL PROTECTED] Sent: Thursday, March 15, 2007 3:20 PM To: quad-list@eskimo.com Subject: [QUAD-L] Messages In Triplets My computer gives me 3 copies of messages am I also sending everyone here 3 copies? Merrill
[QUAD-L] TV shows online
I love 24 but wait till it comes on DVD so I can watch it all. I hate waiting week to week. The fox link is just clips. Where can you watch the entire episode?
Re: [QUAD-L] Anesthesia or no anesthesia?
I went under anesthesia due to AD when I had stones. I did not have AD after but my chest hurt for a few days. Good luck. - Original Message - From: Lori Michaelson To: Eric Olson ; Quad Sent: Wednesday, April 19, 2006 7:17 PM Subject: [QUAD-L] Anesthesia or no anesthesia? Hey Eric, I have thought about that [no anesthesia] 'before' in my mind and actually mentioned it to my husband outwardly and verbally today. I don't know why I forgot to ask the urologist. I do not have any feeling on the outside below the chest either but whenever there is any type of manipulation [especially trauma to the bladder for what has to be done with theseLARGE stones in there] I would be jumpingand spasming right off of the table. Not to mention sending my autonomic nervous system through the roof! I imagine that the anesthesia, along with the anesthesiologist, controls all of this. I did ask the doctor how much they load you up on antibiotics during and after the surgery. She said that they definitely will give me IV antibiotics during the procedure. And then afterward I would be on a full dose of antibiotics orally for about a week. And then finally she would cut down the dose andthen wean off of them completely. I still do want to get an answer from the doctor directly, however, to see why they want you under anesthesia. Because in my situation [or anyone else like me] it would seem that the body would react convulsively even under the anesthesia. But I don't know so I will ask. I am sure that I will get a textbook answer but I will try. Lori ---Original Message--- From: Eric Olson Date: 04/19/06 13:19:48 To: Lori Michaelson Cc: Quad Subject: Re: [QUAD-L] OH WELL - SURGERY for BIG BLADDER STONES Personally, I would ask to have the procedure without anesthesia. I'm unable to feel below injury level so anesthesia isn't necessary. Just start an IV so medications to control AD can be administered. Eric Lori Michaelson wrote: After Nikki told me that all they did was use an epidural on her to remove her bladder stones I was hoping I could choose the same route. Unfortunately not. The urologist called me this morning.She told me that she spoke to the chief anesthesiologist about whether or not he would do a spinal/epidural on me. He said no because the anesthesia medicineCOULD/WOULD gostraight UPWARDinto the spine and it could easily SWOOSH upwards into my spine via spinal fluidand into my shunt. Since the anesthesia medicine is obviously a paralyzing medicine ... it paralyzes all muscles including lung muscles.And my shunt goes into my lung cavity. I really don't want to go all the way under anesthesia but it looks like that is what I am going to have to do. She said that she would have her personal scheduler call me within a week or so to get it scheduled. Again, I am not so much worried about the procedure itself but the after effects that will trigger autonomic dysreflexia for a long time post procedure. Lori C4/5 Complete Tucson, AZ AGE - 41
