Re: [TMIC] OT OT: Parking Update
How about a letter to the editor of your local newspaper? Most of them have a site online with a way to send a letter in via e-mail. They will usually require your name and phone number and will call you to verify that you're the one who sent a letter in, but they won't publish your phone number. Raising public awareness of issues helps sometimes. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/1/2007 12:30:58 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hi Deborah, Right now all I can do is with a laptop and cellphone from my bed or a chair, and getting to the chair isn't so easy. I have the help of the Director of the state Fair Housing/Fair Rent Association because a Senator wrote a letterto him for me. In addition to TM I have high BP and Tachycardia, and the stress of all this is not good for any of these things. I will hire an attorney if I have to, and already have spoken to one who has successfully sued condo boards. I am also looking to move from here because I am tired of the constant fight for my rights. Thank you for your suggestions. I'm getting all my ducks in a row as best I can, considering my health issues. All the best, Kevin ** See what's free at http://www.aol.com.
RE: [TMIC] June birthdays
HAPPY BIRTHDAY TO ALL YOU JUNE BABIES. :-) Wendy in NJ _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, June 01, 2007 2:31 PM To: tmic-list@eskimo.com Subject: [TMIC] June birthdays Happy Birthday to the first-of-summer kids! (If you would like to add your birthday to the list or make a correction, please send that information to [EMAIL PROTECTED]) 6-2 Crystal ([EMAIL PROTECTED]) 6-5 Tobe Kanon ([EMAIL PROTECTED]) 6-11 Irene ([EMAIL PROTECTED]) 6/11/ Marabeth ([EMAIL PROTECTED]) 6-11 Sharon Marsden ([EMAIL PROTECTED]) 6-17 Cheryl ([EMAIL PROTECTED]) 6-19 Tom in Delaware ([EMAIL PROTECTED] ) 6-19 Debbie Capen ([EMAIL PROTECTED]) 6-22 Ann Moran ([EMAIL PROTECTED]) 6-25 Errol White ([EMAIL PROTECTED] ) 6-25 Dennis Galvin ([EMAIL PROTECTED]) 6-29 Pauline ([EMAIL PROTECTED]) 6/30 Bobby Jim ([EMAIL PROTECTED]) _ See what's free at AOL.com http://www.aol.com?ncid=AOLAOF0002000503 .
RE: [TMIC] Getting Humble...
Rob This is a good example of what Jude was talking about. You are always upbeat and because you are able to work full time it seems you have it better than some of the rest of us. However, that 24/7 TM pain and the fear of loosing your balance in a crowd put you right back in my Boat. I won't try to convince you to use a cane since your description about it is right. People don't make eye contact and I feel like I joined the older generation. However, it's part of my public life for now. Yep, we put on the happy face for ourselves as well as others - just to pretend things are ok . It's nice not to have to pretend with tht TM family Patti - Michigan Robert Pall [EMAIL PROTECTED] wrote: = Dear Trudy, You have addressed and brought up my favorite topic! My greatest frustrations and anxieties have been caused by my condition! I have always felt that no one understands what i am going thru. This includes my wife,children,friends and most of my Doctors. In some cases this is because I try not to share with people and in other cases they do not understand. Unless someone has walked in our shoes they cannot understand what is in our heads. I may tell my wife my legs are hurting mewhat I really mean to say is that my legs are hurting more than what is normal for memy legs hurt 24/7and yet after 10 years she cannot or does not see the difference in what I am saying...I hope I am not looking for sympathy( although that might not hurt every now and then) simply understanding from someone who lives with me and sees me everyday. She doesnt really understand and hopefully never will. I am still terrified of crowds...I am able to walk but a small push or shove can knock me off my feet..vanity keeps me from using a cane...I guess I feel it is bad to be different and a cane makes me different and less than normal...this feeling may be rationally stupid...but I cannot help how I feel and nothing anyone in the group says is going to make me feel differently. Our condition makes our lives far more difficult and not being able to talk about it makes it even harder. I appreciate the group and I know I can talk here...even though our lives and how TM has treated us all very differently makes each of our cases unique. Knowing that even if I try (which I have) to explain how I really feel to my loved ones,friends and co-workers, they will never understand truly frustrates me! But in my experience (10 years) there is nothing we can do about it. Hard as it seems we must accept this reality and accept we can do nothing about it. If anyone thinks I am wrong and or has a better way , than I am all earsbut please do not tell me to have A POSITIVE ATTITUDE towards my condition.I am the one in this group who has always preached staying positive and not giving in to the condition.and I have not! But that does not lessen the frustrations! I am 59 and have had this condition since one week after my 50th birthdayand I still work full time.but not one day goes by where I don't long for the old me.and the older I get I accept that the cure (which is coming) is going to be to late for me.So I just do the best I can everyday.but that does not make the sadness and frustrations go away...they simply become part of your life. Rob in New Jersey From: Trudy [mailto:[EMAIL PROTECTED] Sent: Sunday, May 27, 2007 5:09 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: RE: [TMIC] Getting Humble... I would strongly encourage anyone on this list to share with us whatever is going on in their life. I and many others have vented to this group. Whether it be about pain, husbands, wives, the children, the way others treat us in the stores and restaurants and just life in general. Bernard Pelow certainly shared his frustrations and pain as he watched his daughter go thru a horrendous time in her life. I think he might have been overwhelmed by e-mails... but we care... some know a great deal more (Our dear doctor F) and some are the caretakers who also need to have a place to vent or share or question...it's a bit of a risk to put yourself out there... and sometimes you're going to be misunderstood... but who else can really understand how you feel... I am truly sorry to hear that this person is in constant, intense pain... He/She is in my prayers as are all of those on our TM list! Trudy From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, May 26, 2007 4:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Getting Humble... This is a subject that I have not seen debated in the five years I have been a member of this exclusive club of amazing, diverse people brought together by a common problem...TM. I recently received an email from someone who has been on the list quite a while. This person has troubles just like the rest of us and we help one another
[TMIC] June birthdays
Happy Birthday to the first-of-summer kids! (If you would like to add your birthday to the list or make a correction, please send that information to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) .) 6-2 Crystal ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-5 Tobe Kanon ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11 Irene ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/11/ Marabeth ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11 Sharon Marsden ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-17 Cheryl ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-19 Tom in Delaware ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-19 Debbie Capen ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-22 Ann Moran ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-25 Errol White ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-25 Dennis Galvin ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-29 Pauline ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/30 Bobby Jim ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) ** See what's free at http://www.aol.com.
Re: [TMIC] Working With a Disability in California
Lynn Thanks for the explanation of how the Ticket to Work is used. Sometimes I have enough energy that I think I could try some kind of work, however, like other's on the list, my employer's long-term-disability insurance checkwould as soon as I try any type of employment. Even if I worked two hours a week I would loose my entire check - not just the difference between the LTD check and what I could earn working. So, they set themselves up. I get that check until I'm 65. My work will have to be volunteer or anything unpaid. Patti - Michigan Lynn Pouliot [EMAIL PROTECTED] wrote: = Hi Everyone, I am on ssdi and I have gone back to work. The government really worked with me to help get back to work. I got a ticket to work in the mail with my information about ssdi. This is kind of a safe way to go back to work. When you call the number on the ticket they give you names of people who will help you get back to work. I met with my career counselor to discuss what I would be able to do. I can't do what I used to (I was a medical assistant) because there is just too much walking around, but I am working in a doctor's office doing recpetionist/insurance verification. He helped me put together a resume and help find places that where looking for help. He also explain exactly how it works with the ssdi. I get my whole disability check while I am still working for 1 year regardless of how much money I make. During that year I can stop working at any time if I have to and there is no stop in my checks or new application. After that year I only get a check if my income is below a certain amount (I think it is $640) which I will definetly go over. For five years I can go back on disability if I am incapacitated by the same illness or anything caused by it without having to reapply. This is kind of a cushion to help people go back to work. I started working in september and so far I am still working. I am so happy to be doing something productive and getting out of the house. Lynn (in RI) - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, May 28, 2007 11:39 PM Subject: Re: [TMIC] Working With a Disability in California Hi Todd, If I were to get strong enough to know that I were able to make the transition back to work, it would be great. I certainly would be able to make more money than I do on disability and would feel much more productive. It's really difficult when you know though that you would be making a huge mistake if you are jeopardizing your finances if you fail. To know that your income could seize from your disability and I am not sure of how it would work with SSDI. Not sure about the posibility of having to reapply and get re-approved. I certainly hope that there aren't any people in our group that are making this mistake and getting themselves in this kind of trouble. My eight year anniversary with TM is 6/1/07, so I don't think I'm going to be getting strong enough to get back to work now. Hugs to all, Barbara A in sunny and warm Auburn, CA -- See what's free at AOL.com.
Re: [TMIC] joint pain?
I realize my response is too late for you doctor appt, however, it might help others. Joint pain is listed as a side effect on either the Baclofen, Neurontin, or Cymbalta medical data sheet that I have read. It is a good idea to reread these sheets occasionally since we might develop a symptom after we have taken the med for a long period. I too have joint pain and attribute it to the meds. Patti - Michigan Cossy Hough [EMAIL PROTECTED] wrote: = Hi all- I have been having joint pain (aches) in my hands and feet. I have an appt wih my PCP tomorrow but am wondering if anyone knows if this could be somehow related to TM? I have searched but haven't found anything except other disorders that those with TM might have. Just looking for some info Thanks! Cossy Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when. http://tv.yahoo.com/collections/222
[TMIC] June babies
Heres hoping that all of you Gemini's have a wonderful birthday. Rick
[TMIC] Renal problems
Dear list, Over these past 9 years of incontinence I have began to put alot of concern in the fact that I see so many people die of Renal Failure. I recently lost a great Aunt with Renal Failure. I do what I have to to try and have a semi-normal bowel movement at least 3 times a week. It has gotten to the point that when I sit on the pot I use a Fleet Eneima with a doucolace additive and they seem to be sometimes effective, sometimes not. Its always a guessing game. I in hope to find an answer through this line to a serious problem. If the list will permit me I would like to start my day by putting this topic up for discussion. Thank You Rick in TN
[TMIC] June birthdays, corrected
(Cheryl's address has been corrected, and Dennis Galvin's name has been removed. I apologize -- I forgot he had passed away last year. I remembered he had been ill. Tom Carr was another from the June list who has passed on. I still keep their names there -- I like to pause to remember them when I see their names. But I try to remember to remove them before sending the list to the TMIC.) Happy Birthday to the first-of-summer kids! (If you would like to add your birthday to the list or make a correction, please send that information to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) .) 6-2 Crystal ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-5 Tobe Kanon ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11 Irene ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/11/ Marabeth ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11 Sharon Marsden ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-17 Cheryl ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) (mailto:[EMAIL PROTECTED]) ) 6-19 Tom in Delaware ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-19 Debbie Capen ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-22 Ann Moran ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-25 Errol White ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-29 Pauline ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/30 Bobby Jim ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) ** See what's free at http://www.aol.com.
[TMIC] June birthdays
Happy Birthday to all you June babies!! janh
Re: [TMIC] joint pain?
Cossi/Patti I'm late too but here's my bit. I too have joint pain iinflammation. The only med I was on that might have caused the problem is Lipitor. The dr took me off it for 2 mo. - twice. Didn't help. Two fam. drs, my neuro and two rheumatologists have poked tested everything they could. None of them have found the answer. They have eliminated Lupus and every disease they could think of. I do not have arthritis or rheumatism. I just get these very painful attacks that can last for months. I just finished my 10th week of physio and have made great progress. The inflammation in my right hip had spread from knee to waist and that leg was so weak, I was falling 7-8 times/day. I'm happy to report that I've only fallen once in the last week. Last year, the inflammation was in my shoulders and 2 yrs. before that in both hips. I am a medical mystery, lol. Just wish it didn't hurt so darn much. Diane in Canada - From: [EMAIL PROTECTED] To: Cossy Hough [EMAIL PROTECTED]; TM mailing list tmic-list@eskimo.com I realize my response is too late for you doctor appt, however, it might help others. Joint pain is listed as a side effect on either the Baclofen, Neurontin, or Cymbalta medical data sheet that I have read. It is a good idea to reread these sheets occasionally since we might develop a symptom after we have taken the med for a long period. I too have joint pain and attribute it to the meds. Patti - Michigan Cossy Hough [EMAIL PROTECTED] wrote: Hi all- I have been having joint pain (aches) in my hands and feet. I have an appt wih my PCP tomorrow but am wondering if anyone knows if this could be somehow related to TM? I have searched but haven't found anything except other disorders that those with TM might have. Just looking for some info Thanks! Cossy
Re: [TMIC] Bee Venom Therapy
I had two hives of bees up till 5 years before TM... I sold them to a friend. Maybee the bees were protective !!! F
Re: [TMIC] Renal problems
Rick, et al, I was first afflicted with TM in august 2000. I'm a walking wounded, on no opioids. In 2002, I started having problems with urination. The urologist said my prostate felt Good. ( I guess that's one reason she was a urologist) I had a cystometrogram that was consistant with bladder spastic/ flaccid syndrome. This has remained un changed. In 2006, I started having irregular frequency of B.M.s, then occassional constipation, then in Oct 06, a run of 7 days of obstipation. CAT scan was normal, Colonoscopy was normal. I now use prunes regularly. Has anyone else notices increasing constipation since T.M.??? F
[TMIC] email address
please note my address is [EMAIL PROTECTED] Thank you Tobe - Shape Yahoo! in your own image. Join our Network Research Panel today!
RE: [TMIC] Renal problems
Actually my daughter has experience the complete opposite. She seems to have bouts of diarrhea quite often. She is on a bowel program and it works most of the time, but she seems to get diarrhea more often than I think she should, unless it is hormonal, she is 13.. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, June 01, 2007 4:33 PM To: [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: Re: [TMIC] Renal problems Rick, et al, I was first afflicted with TM in august 2000. I'm a walking wounded, on no opioids. In 2002, I started having problems with urination. The urologist said my prostate felt Good. ( I guess that's one reason she was a urologist) I had a cystometrogram that was consistant with bladder spastic/ flaccid syndrome. This has remained un changed. In 2006, I started having irregular frequency of B.M.s, then occassional constipation, then in Oct 06, a run of 7 days of obstipation. CAT scan was normal, Colonoscopy was normal. I now use prunes regularly. Has anyone else notices increasing constipation since T.M.??? F
Re: [TMIC] Renal problems
In response to Rick's topic, Renal Failure, I am not even sure what it is and what it involves. I mean I can tell by the name what organs are affected, what brings renal faiilure about and what can we do to be more health conscious? What I would like to know as well, is there anyone out there who has to do digital bowel stimulation and removal while lying on one's side in bed? That is the way that I have to do it and it is gross! Not to mention, tiring. Peace and Prayers, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
Re: [TMIC] Renal problems
Frank, I thought constipation was a 'common' with TM (?) I'm affected that way too. The first couple of yrs after TM (1999) was murder. It got a little better aftr I started walking again and added a lot of fruit and other roughage. I'm still not normal but I suffer less. I've come to stop expecting a BM every day as before. The most negative thing is the residual paraysis. The muscles used to 'expel' do not work. I've come to depend on a combo of diet and gravity. Diane in Canada P.S. I also have to cath. - Original Message - From: [EMAIL PROTECTED] Rick, et al, Has anyone else notices increasing constipation since T.M.??? F
Re: Re: [TMIC] Rectal problems
When I asked about renal failure Gunny informed me that renal failure is actually a kidney problem. So my medical Ignorance showed up again. I was refering to having problems with bowel incontinance. I appoligize for the mistake and I hope noone was confused as I was. Sorry, Rick I made a correction in the subject area of this e-mail. I think that is the rectal area back there. From: [EMAIL PROTECTED] Date: 2007/06/01 Fri PM 05:30:49 EDT To: [EMAIL PROTECTED], Tmic-list@eskimo.com Subject: Re: [TMIC] Renal problems In response to Rick's topic, Renal Failure, I am not even sure what it is and what it involves. I mean I can tell by the name what organs are affected, what brings renal faiilure about and what can we do to be more health conscious? What I would like to know as well, is there anyone out there who has to do digital bowel stimulation and removal while lying on one's side in bed? That is the way that I have to do it and it is gross! Not to mention, tiring. Peace and Prayers, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
Re: [TMIC] Bee Venom Therapy
He mentioned in the journal taking low dose maltrexone. I checked on line at lowdosenaltrexone.orgseems it can boost the immune system. I never heard of anyone in the group taking that. I take low dose naltrexone. Have experienced some return since taking it and lessening of pain and discomfort. Such that this is it for me. The only other drug I take is oxy-b ( the generic d=for detrol la) So I tend to think it's effective since most TMers take lots of other stuff. I'm paralyzed. was told T-10 since 11/14/05. My thanks to Crystal whose web site led me to LDN a year ago. Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
Re: [TMIC] June birthdays
6-1 Today is Mine! Akua ([EMAIL PROTECTED]) Happy Birthday to the first-of-summer kids! (If you would like to add your birthday to the list or make a correction, please send that information to mailto:tmic-list@eskimo.com[EMAIL PROTECTED]) 6-2 Crystal (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-5 Tobe Kanon (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-11 Irene (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6/11/ Marabeth (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-11 Sharon Marsden (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-17 Cheryl (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-19 Tom in Delaware (mailto:[EMAIL PROTECTED][EMAIL PROTECTED] ) 6-19 Debbie Capen (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-22 Ann Moran (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-25 Errol White (mailto:[EMAIL PROTECTED][EMAIL PROTECTED] ) 6-25 Dennis Galvin (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6-29 Pauline (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) 6/30 Bobby Jim (mailto:[EMAIL PROTECTED][EMAIL PROTECTED]) Akua -- http://www.healrecover.blogspot.com http://www.akualezli.blogspot.com
Re: [TMIC] Renal problems
Dear Franque et al, For four years I had diarrhea every time I ate a meal; the doctor said I had Crohn's disease, but I was in denial of having that and ignored him. Then I changed meds--from a high dosage of neurontin to lyrica and cymbalta. Now I have chronic constipation and I think the meds are to blame. I haven't been back to that doctor and don't plan to. Priscilla in TN ** See what's free at http://www.aol.com.
RE: [TMIC] Spoon Theory
Thank you for this! Akua Someone posted this on the TMIC awhile back and I copied it. For those of you who haven't seen it, here it is: The Spoon Theory Written by a woman named ëChristineí My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing. As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a! cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know? I started to ramble on about pills, and aches and pains, but she kept pursuing, and didn't seem satisfied with my answers. I was a little surprised as being my roommate in college and friend for years; I thought she already knew the medical definition of Lupus. Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no one healthy can truly understand. She asked what it felt like, not physically, but what it felt like to be me, to be sick. As I tried to gain my composure, I glanced around the table for help or guidance, or at least stall for time to think. I was trying to find the right words. How do I answer a question I never was able to answer for myself? How do I explain every detail of every day being ef! fected, and give the emotions a sick person goes through with ! clarity. I could have given up, cracked a joke like I usually do, and changed the subject, but I remember thinking if I donít try to explain this, how could I ever expect her to understand. If I canít explain this to my best friend, how could I explain my world to anyone else? I had to at least try. At that moment, the spoon theory was born. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. I looked at her in the eyes and said ìHere you go, you have Lupusî. She looked at me slightly confused, as anyone would when they are being handed a bouquet of spoons. The cold metal spoons clanked in my hands, as I grouped them together and shoved them into her hands. I explained that the difference in being sick and being healthy, is having to make choices or to consciously think about things when the rest of the world doesnít! have to. The healthy have the luxury of a life without choices, a gift most people take for granted. Most people start the day with unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects of their actions. So for my explanation, I used spoons to convey this point. I wanted something for her to actually hold, for me to then take away, since most people who get sick feel a ìlossî of a life they once knew. If I was in control of taking away the spoons, then she would know what it feels like to have someone or something else, in this case Lupus, being in control. She grabbed the spoons with excitement. She didnít understand what I was doing, but she is always up for a good time, so I guess she thought I was cracking a joke of some kind like I usually ! do when talking about touchy topics. Little did she know how s! erious I would become? I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of spoons. But when you have to now plan your day, you need to know exactly how many ìspoonsî you are starting with. It doesnít guarantee that you might not lose some along the way, but at least it helps to know where you are starting. She counted out 12 spoons. She laughed and said she wanted more. I said no, and I knew right away that this little game would work, when she looked disappointed, and we hadn't even started yet. Iíve wanted more spoons for years and havenít found a way yet to get more, why should she? I also told her to always be conscious of how many she had, and not to drop them because she can never forget she has Lupus. I asked her to list off the tasks of her day, including the most simp! le. As, she rattled off daily chores, or just fun things to do; I explained how each one would cost her a spoon. When she jumped right into getting ready for work as her first task of the morning, I cut her off and took away a spoon. I practically jumped down
[TMIC] Metamucil
Hi everybody --I'd like to put in a good word for good-ole Metamucil, it's a miracle product. Many people do not realize it, but *whatever* your bowel problems are, it will help you. If your movements are too soft, it will firm them up. If they're too hard and you have constipation, it will soften them. It's such a great product!! You might have to take it 2-3 times a day, but it's pretty cheap. Be sure you get the Smooth texture one, the regular is horrible -- and be sure that the water you mix it in is fridge-cold, otherwise it will just gum up before you can drink it. Mix drink immediately. The only problem with taking Metamucil is that you can't take it within a couple hours of any medication or supplements. Anything that's in your stomach when you take it can get caught up in it and get swept out of the body. So you have to arrange your schedule so you take it either an hour before or a couple hours after any medications. (And if you need to lose weight, take it right after you eat, it will sweep many calories out with it.) take care -- Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, June 01, 2007 8:27 PM Subject: Re: [TMIC] Renal problems Dear Franque et al, For four years I had diarrhea every time I ate a meal; the doctor said I had Crohn's disease, but I was in denial of having that and ignored him. Then I changed meds--from a high dosage of neurontin to lyrica and cymbalta. Now I have chronic constipation and I think the meds are to blame. I haven't been back to that doctor and don't plan to. Priscilla in TN -- See what's free at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.6/828 - Release Date: 6/1/2007 11:22 AM
Re: [TMIC] Bee Venom Therapy
I took the LDN and wrote about it several times to this list. It worked well, but I could not get a doctor to prescribe the dermal type and the oral started upsetting my stomach. Since there is no cure for what we have I thought the LDN was worth a try. I had a month of feeling pretty normal. It was nice. Natalie B On 6/1/07, Akua [EMAIL PROTECTED] wrote: He mentioned in the journal taking low dose maltrexone. I checked on line at lowdosenaltrexone.orgseems it can boost the immune system. I never heard of anyone in the group taking that. I take low dose naltrexone. Have experienced some return since taking it and lessening of pain and discomfort. Such that this is it for me. The only other drug I take is oxy-b ( the generic d=for detrol la) So I tend to think it's effective since most TMers take lots of other stuff. I'm paralyzed. was told T-10 since 11/14/05. My thanks to Crystal whose web site led me to LDN a year ago. Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
[TMIC] Thanks to everyone
I have to take the time at the end of a very busy day to give a big thanks to everyone on the tmic list for all of the special love and human care we all show for each other on a daily basis. There are so many help groups that claim to really care, and maybe they do. But in my 9 years as a member of this very special family, it never ceases to amaze me how much true love and tender care we as a close knit family on a daily basis show .We all may be sick and hurt but our hearts are filled with the purest love imagineable. For this no matter if you believe in a higher power or not, you prove to my God that love for mankind exists right here. That may not get us to heaven or where ever we think we will end up when we leave here. But our daily works prove that Love for fellow man is not just a saying. I is real and it resides at [EMAIL PROTECTED] We all deserve a big pat on the back. I truly appreciate your answers to my needs. Truly a blessed man. I remain Rick Ashford. Go! d Bless you all.
