RE: [TMIC]
My TM started in September 2010 with numbness in my feet. I thought I had sat wrong and they had just fallen asleep. By the next day the numbness had moved up to my waist and I lost bladder control. The following day I was numb up to my arm pits and having issues with my breathing. I had severe numbness in my hands and mid-section. I never experienced any pain, just deep numbness. My lesions are at C2 C3. Diane From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Monday, June 24, 2013 9:58 AM To: Janice Nichols; tmic-list@eskimo.com Subject: RE: [TMIC] Hi Janice – the onset of TM (which was changed to MS) began with tingling in left arm, the whole arm. Then left leg. I still cannot lift my left leg. No banding ever BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 24, 2013 10:39 AM To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: [TMIC] Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice Confidentiality Warning: This e-mail contains information intended only for the use of the individual or entity named above. If the reader of this e-mail is not the intended recipient or the employee or agent responsible for delivering it to the intended recipient, any dissemination, publication or copying of this e-mail is strictly prohibited. The sender does not accept any responsibility for any loss, disruption or damage to your data or computer system that may occur while using data contained in, or transmitted with, this e-mail. If you have received this e-mail in error, please immediately notify us by return e-mail. Thank you.
[TMIC] RE: Provigil for TM?
Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme fatigue. I have used Provigil and Nuvigil for the last year. The medication gives me a better quality of life. I still have fatigue, but it does help me make it through the day. The only struggle I have had is with insurance. They are very hesitant to pay, because it is a very expensive medication. I finally got it approved, but it took a while. Good luck From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Thursday, July 19, 2012 9:32 AM To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com Cc: tmic-l...@eskimo.net Subject: [TMIC] Re: Provigil for TM? Fellow sufferers; Have any of you heard of Provigil? Used for narcolepsy, it has found use by MS patients to counter the extreme fatigue common with MS; and our situation is often similar in some respects. I get this fatigue, sometimes so bad that I stumble from lunch, slurring my speech, and collapse on anything available and must be carried to a bed. Would Provigil be useful?? Who has heard of this med? Dalton H. Garis Flushing, Queens New York, USA Mobile: 718-838-0437 Landline: 917-285-2047 Confidentiality Warning: This e-mail contains information intended only for the use of the individual or entity named above. If the reader of this e-mail is not the intended recipient or the employee or agent responsible for delivering it to the intended recipient, any dissemination, publication or copying of this e-mail is strictly prohibited. The sender does not accept any responsibility for any loss, disruption or damage to your data or computer system that may occur while using data contained in, or transmitted with, this e-mail.If you have received this e-mail in error, please immediately notify us by return e-mail. Thank you.
Re: [TMIC] granddad
The days of sunshine in our lives do and will stand out forever. Congratulations Wim. Diane in Canada (who will be a great-grandma next month) - Original Message - From: wim from holland To: TMIC Sent: Thursday, March 05, 2009 7:30 AM Subject: [TMIC] granddad Just a short note from Holland. My oldest son has become a father, so I am a grandfather now. It felt like I had my own child again in my arms. She is the most beautifull girl I have ever seen since my own daugther. Here name is Tess. This little sunshine I like to share it with all of you. Life is so much nicer to live now, it is more a rich feeling I ever could inmagine. Wim from Holland -- Ook nieuwsgierig naar de nieuwe Messenger? Download 'm hier
Re: [TMIC] constipation
Regina, my dr recommended Lactulose. It is a thick liquid (like cough syrup) tastes of oranges. It is mild but it works for me every time within about 8 hrs. I don't need to use as often as in the early days of TM but I wouldn't be without it. Where I live, it is not sold on the shelf but behind the pharmacy desk. Diane in Canada - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Sunday, January 18, 2009 3:47 PM Subject: [TMIC] constipation Years ago, the doctor prescribed LACTULOSE to my mother after she had a stroke leaving her with major problems including a horrible case of constipation. He said that it doesn't irritate your bowels. Wondering if any of you even heard of it. Kevin, I would like to hear more about the herb you recommend. R
Re: [TMIC] OT: ... for PRESIDENT: OT
Dear TM-ers, may I add the following on this subject:- Although the majority of people on this list live in the U.S., I always thought of it as international. I find these discussions distracting and annoying. Diane in Canada
Re: [TMIC] is this an M.S. problem?
Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: randy rankin To: TM Group Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem .
Re: [TMIC] Thia applies to all of us This is so beautiful. I will nevercomplain again!!!!!!
Amazing !! Thanks Gerry Diane in Canada - Original Message - From: Gerry Surette [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Thursday, September 11, 2008 6:58 AM Subject: [TMIC] Thia applies to all of us This is so beautiful. I will nevercomplain again!! Subject: FW: Fw: This is so beautiful. I will never complain again!! This is awesome! http://www.youtube.com/watch?v=GF9wo9sVn2c ___ Multimediajokelist mailing list http://naftolin.com/mailman/listinfo/multimediajokelist_naftolin.com
Re: [TMIC] new friend
Hi Amanda. Hope you bounce back soon. Please keep us posted. Diane in Canada - Original Message - From: Amanda Diskey To: tmic-list@eskimo.com Sent: Tuesday, September 09, 2008 4:40 PM Subject: [TMIC] new friend my name is amanda and i am newly diagnosed with tm. i am still in the hospital in rehab. hope this gets through to the list. i could use sum friends.
Re: [TMIC] More money
RE: [TMIC] More moneyThanks guys. Diane - Original Message - From: Akua To: tmic-list@eskimo.com Sent: Wednesday, July 30, 2008 7:45 PM Subject: RE: [TMIC] More money I found compression stockings both on Ebay and on the web for one-tenth the price/ I left rehab with several pairs of thigh high and replace them over time with knee high sounds like having a prescription multiplied the price. The insurance/prescription places seem to charge waay more than the places i have found online like Allegro and Best Buy Medical--- and even Colonial when they have sales as well as Overstock.com and Amazon .com for a number of hygiene and car items They are the only things kinds of sock/stockings i wear Akua Hi Diane - you might want to try Dr. Leonard's (drleonards.com) that's where I get mine for about 9 dollars per pair. I have to wear them for ankle swelling - they work, but are very hard to get on off. Barney From: Diane [mailto:[EMAIL PROTECTED] Sent: Sunday, July 20, 2008 4:31 AM To: TM Subject: [TMIC] More money Just bought my first pair of compression stockings and it was $ 95. The dr wrote me a prescription for them because the pressure sores on my ankles won't heal because my feet are always swollen. Apparently, the water prevents blood from properly circulating to those areas healing is greatly slowed down. I just can't believe the amount of money I have to spend that is not covered by the Province or by our private insurane - cushions, memory foam for the bed, bandages, incontinence pads (just in case) and on and so on. They do cover my catheters - whoopie ! Diane in Canada --
[TMIC] More money
Just bought my first pair of compression stockings and it was $ 95. The dr wrote me a prescription for them because the pressure sores on my ankles won't heal because my feet are always swollen. Apparently, the water prevents blood from properly circulating to those areas healing is greatly slowed down. I just can't believe the amount of money I have to spend that is not covered by the Province or by our private insurane - cushions, memory foam for the bed, bandages, incontinence pads (just in case) and on and so on. They do cover my catheters - whoopie ! Diane in Canada
Re: [TMIC] New symptom. Yikes!
Dear Regina, Great to be in this group. You're not alone. I get the numbness sometimes pins needles on my face scalp. Drives me nuts when it hits my nostrils. My sense of smell is off too. The smell of grains sometimes makes me gag (bread, cereal, rice, etc.) Nothing shows up in my head on MRI but who knows. The neuro isn't worried about it so why should I be? The eye problem is different. You really should see your doctor about that. Wish me luck guys. My first appointment at the MS Rehab Centre today. My neuro is not happy with my 'decline'. It is my intention to throw away my walker and to mount my cane over the fireplace. Now isn't that positive of me, lol? Diane in Canada P.S. After TM, they added 'possible' MS but that was 9 yrs. ago - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Monday, July 14, 2008 8:44 AM Subject: [TMIC] New symptom. Yikes! The throbbing, itching, sort of numbness that has plagued me on the scalp, ears, left cheek... has now moved to my lips and tip of my tongue. This morning, coffee tasted weird. I've never heard anything like that mentioned anywhere from the group. My left leg is also getting weaker; I don't feel my left foot very much. Something weird is going on with my right eye. Reading and focusing is a problem. The ophthalmologist has checked everything and finds nothing to be concerned about. Limbs numb. Okay, I understand. That's TM. But the head! Do I have to look forward to a numb head? Wish I could go to the Seattle symposium, but I can't travel alone and can't get anyone to go with me. Will someone ask Dr. Kerr this question for me? Please. Thanks. R
Re: [TMIC] Question - bum pain
Candy, you're bound to get different replies on this but I have to tell you that I suffer from bum pain - and it does feel like bruising. In my case, it is the beginning of pressure sores. They start very deep will worsen if you don't take the pressure off in some way. I bought some of the special cushions they use in wheelchairs they help a bit. I have a tendency to pressure sores everywhere. The dr explained that even though I am 'mobile', I do have residual paralysis (which I knew of course). Because of that, when there is an area(s) where the blood supply is squashed from sitting/lying/leaning , the signal to and back from the brain does not occur I don't move. Pressure sores develop. I tend to get very careful when I get the sores (open or not), then I start feeling better and I forget to move again - or I don't move at all in my sleep. I've been on this roller coaster for about 5 yrs. I'm just healing from this last painful bout. The last count when I saw the dr this Winter was 18 - 15 of them below the waist. I sleep on a row of pillows. I wrap my feet with elastic bandage before I go to bed to protect the sores on my ankles. And on, and on, and on. I am very thankful that I've never had infection in my sores but I am sick of pain. I'm looking for some kind of timer that would chime every 15 min. or so to remind me to move. I've found watches that chime but the sound is so soft, I don't hear it if the TV is on and of course, it wouldn't wake me up. There are watches with alarms but I don't want to have to re-set constantly. Anybody out there know of anything that would work? Best of luck, Candy. Be careful keep moving. - Original Message - From: CANDIS KALLEY To: tmic-list Sent: Friday, July 11, 2008 5:33 PM Subject: [TMIC] Question - bum pain I'm wondering if any of you have the feeling as if your hip/pelvic bones are trying to come through your bum muscles or as if I fell on my bum and it is terribly bruised? This is the only feeling I have on my bum other than I know when my bum is touched. I had to do alot of sitting yesterday - driving to Dr. office, in the office, and drive back home. Today my bum is so sore like it is bruised. This is not the first time - it seems to happen anytime that I have to sit for long periods of time. This is the only feeling I have in bum and it really hurts! Pain pills do not help. I've laid on my sides so much that they are also hurting. I can't lay on my stomach because I have an ileostomy - my colon has been removed along with the rectum and the small intestine comes out on my left side of my lower abdomen, so laying on my stomach is out. Anyone have any suggestions? Candy K.
Re: [TMIC] Question - bum pain
Forgot to add and I so agree with Michelle re taking an Advil or any kind of pain killer. If there is pain, you will remember to move more often. Diane in Canada - Original Message - From: Diane To: CANDIS KALLEY ; tmic-list Sent: Friday, July 11, 2008 6:27 PM Subject: Re: [TMIC] Question - bum pain Candy, you're bound to get different replies on this but I have to tell you that I suffer from bum pain - and it does feel like bruising. In my case, it is the beginning of pressure sores. They start very deep will worsen if you don't take the pressure off in some way. I bought some of the special cushions they use in wheelchairs they help a bit. I have a tendency to pressure sores everywhere. The dr explained that even though I am 'mobile', I do have residual paralysis (which I knew of course). Because of that, when there is an area(s) where the blood supply is squashed from sitting/lying/leaning , the signal to and back from the brain does not occur I don't move. Pressure sores develop. I tend to get very careful when I get the sores (open or not), then I start feeling better and I forget to move again - or I don't move at all in my sleep. I've been on this roller coaster for about 5 yrs. I'm just healing from this last painful bout. The last count when I saw the dr this Winter was 18 - 15 of them below the waist. I sleep on a row of pillows. I wrap my feet with elastic bandage before I go to bed to protect the sores on my ankles. And on, and on, and on. I am very thankful that I've never had infection in my sores but I am sick of pain. I'm looking for some kind of timer that would chime every 15 min. or so to remind me to move. I've found watches that chime but the sound is so soft, I don't hear it if the TV is on and of course, it wouldn't wake me up. There are watches with alarms but I don't want to have to re-set constantly. Anybody out there know of anything that would work? Best of luck, Candy. Be careful keep moving. - Original Message - From: CANDIS KALLEY To: tmic-list Sent: Friday, July 11, 2008 5:33 PM Subject: [TMIC] Question - bum pain I'm wondering if any of you have the feeling as if your hip/pelvic bones are trying to come through your bum muscles or as if I fell on my bum and it is terribly bruised? This is the only feeling I have on my bum other than I know when my bum is touched. I had to do alot of sitting yesterday - driving to Dr. office, in the office, and drive back home. Today my bum is so sore like it is bruised. This is not the first time - it seems to happen anytime that I have to sit for long periods of time. This is the only feeling I have in bum and it really hurts! Pain pills do not help. I've laid on my sides so much that they are also hurting. I can't lay on my stomach because I have an ileostomy - my colon has been removed along with the rectum and the small intestine comes out on my left side of my lower abdomen, so laying on my stomach is out. Anyone have any suggestions? Candy K.
Re: [TMIC] from Gary Thomas
Great story of hope. Thanks Gary Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: TMIC List Sent: Wednesday, July 09, 2008 9:42 AM Subject: [TMIC] from Gary Thomas Here is an article which is in today's South Bend (Indiana) Tribune Health section. It is about a teen boy in Elkhart, IN, who has TM. Gary, Niles, MI http://www.southbendtribune.com/apps/pbcs.dll/article?AID=/20080708/Lives/533203569/1047/Lives
Re: [TMIC] Rash
For Bobby: If you are wheelchair bound, is it possible that the rash is caused by sweating and/or lack of air. I'm not in a wheelchair but I do have a lot of down time and I am very careful to keep the area dry with talc or just plain corn starch. Otherwise, I get a rash. (On a lighter note, if I spend the day at home alone, I get lots of air !!) Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, June 18, 2008 3:25 PM Subject: [TMIC] Rash Bobby at [EMAIL PROTECTED] asked me to forward this question to the list: In a message dated 6/1/2008 3:26:00 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: could you please forward this i have a rash b/t my legs. been to the dermatologist. he gave me 2 creams, and steroids. i've been on antibiotics since oct. any suggestions? -- Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.
Re: [TMIC] age at incident
So young. I was 58. I was dx'd with definitive ATM and 'possible' MS. My neuro said that statistically, the later in life you develop neurological disease, the lower your chances of developing full blown MS. I was never sure if he was trying to raise my morale or if he did have those statistics. Whatever the reason, it helped a lot with the initial shock of having to live life differently. Besides, the sun is shining. Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 9:50 AM Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton -- Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
[TMIC] June
Happy birthday June babies ! Diane in Canada
Re: [TMIC] Bruising
I'm going to look into that, Bernie - Thanks. Diane - Original Message - From: Butcher, Bernard G (NY80) [EMAIL PROTECTED] To: Diane [EMAIL PROTECTED]; [EMAIL PROTECTED]; Regina Rummel [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Monday, April 28, 2008 7:25 AM Subject: RE: [TMIC] Bruising My feet swell up too. I wear compression socks - they help a lot. Very tough to get on - and off. BERNARD BUTCHER -Original Message- From: Diane [mailto:[EMAIL PROTECTED] Sent: Thursday, April 24, 2008 6:47 PM To: [EMAIL PROTECTED]; Regina Rummel; tmic-list@eskimo.com Subject: Re: [TMIC] Bruising Good grief, Frank! I'm so glad you mentioned this. I have an awful time with my feet swelling. I was worried about poor circulation but my dr says no. I don't eat salt. I drink a lot of water. I try to walk as much as these (Stupid Stupider) legs of mine will allow. When I sit, I put my feet up. I've been on the verge of hiring someone to rub them every night. Wow. Thnx. Diane in Canada From: [EMAIL PROTECTED] To: Regina Rummel [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Thursday, April 24, 2008 4:22 PM Subject: Re: [TMIC] Bruising My feet seem to be getting bigger. The bruising remained. The swelling may be from the affects of TM on your blood vessels. My legs swell slowly during the day because of nerve damage in my spinal cord. Good Luck F
Re: [TMIC] Bruising
Good grief, Frank! I'm so glad you mentioned this. I have an awful time with my feet swelling. I was worried about poor circulation but my dr says no. I don't eat salt. I drink a lot of water. I try to walk as much as these (Stupid Stupider) legs of mine will allow. When I sit, I put my feet up. I've been on the verge of hiring someone to rub them every night. Wow. Thnx. Diane in Canada From: [EMAIL PROTECTED] To: Regina Rummel [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Thursday, April 24, 2008 4:22 PM Subject: Re: [TMIC] Bruising My feet seem to be getting bigger. The bruising remained. The swelling may be from the affects of TM on your blood vessels. My legs swell slowly during the day because of nerve damage in my spinal cord. Good Luck F
Re: [TMIC] Re: tmic-digest Digest V2008 #178
Good morning. I'm on 450 mg/day of Lyrica. I still have a great deal of pain but the Lyrica takes the edge off. I was on Gabapentin for a while but it wasn't helping at all. I have never taken Neurontin so I can't compare. Diane in Canada - Original Message - From: harold [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Tuesday, April 22, 2008 8:27 AM Subject: [TMIC] Re: tmic-digest Digest V2008 #178 I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
Re: [TMIC] Questions
1. Yes 2. No 3. N/A Diane in Canada - Original Message - From: jrushton To: tmic Sent: Saturday, April 19, 2008 1:31 PM Subject: [TMIC] Questions Hi, everyone (again!) I have three questions for those who would be willing to respond: 1) Did you ever have chicken pox? 2) Did you ever suffer from shingles? 3) Did you have a flare-up of shingles prior to your being stricken with TM? These are a few of the theories with TM and I'm just curious to see if any of 'us' have experienced any or all of these. Jeanne in Dayton
Re: [TMIC] queston
Me too Linda. Guess that nerve network has a mind of its own. There are times though that I do find an answer if I take my emotional temperature or remind myself that I did a bit more than usual yesterday. There always seems to be a price to pay for anything I do. Most annoying - like TODAY !! Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Friday, April 04, 2008 6:48 PM Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa -- Planning your summer road trip? Check out AOL Travel Guides.
Re: [TMIC] Premature?
16 pounds ? I'd like to meet your mother. I was 9 lbs I had all the same diseases as you plus scarlet fever in my 20s. Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Tuesday, April 01, 2008 7:11 AM Subject: Re: [TMIC] Premature? NO, I WAS 16 POUNDS 4 OUNCES. WHEN I WAS GROWING UP THERE WERE NO VACCINES EXCEPT POLIO, THEREFORE I HAD IT ALL-CHICKEN POX, 3-DAY MEASLES, GERMAN MEASLES, MUMPS, AND WHEN I WAS 16 I HAD MONO. LINDA IN PA -- Create a Home Theater Like the Pros. Watch the video on AOL Home.
Re: [TMIC] UNBELIEVABLE!
UNBELIEVABLE!Here's another one. I too was going through some heavy-duty stress in my personal life. TM hit me during a bad flu. It was a really powerful virus. Hubby had it before me and got double pneumonia. I just kept getting sicker and sicker, saw my family doctor twice, went to Emergency twice. I kept saying to everyone Something's wrong. This is more than the flu. All the doctors just kept sending me home saying it was a bad virus. Late in the third week, my bladder shut down and I lost all feeling below the waist - couldn't walk. They finally admitted me to hospital with suspected Guillain-Barre. My wonderful neuro was called in made a quick dx of TM that was later confirmed with all the tests including a spinal tap. I have always suspected that stress had weakened my immune system opened this can of worms. Diane in Canada - Original Message - From: Robert Pall To: tm Sent: Tuesday, March 25, 2008 5:27 PM Subject: [TMIC] UNBELIEVABLE! OK.Is this list good or not! So far having approx. 10 responses..9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the cause..perhaps we have!!! Rob in New Jersey
Re: [TMIC] It's okay...
My two cents...I agree. It's OK to have the pity party. I have a recipe that never fails me in trying times. I sit where I can see a clock and I give myself 15 minutes to cry, rant or scream - fifteen minutes a day, always at the same time. The rest of the time, I chase away negative thoughts. I continue the 15 min. sessions for as many days as I need. Amazingly, after a few days, I have no more tears left and I start to feel a bit silly because I need fewer and fewer minutes to think about myself and my pain and my disability. Life is good again - difficult but good. Diane in Canada - Original Message - From: Heather Pieter To: Robert Pall ; jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 3:29 PM Subject: Re: [TMIC] It's okay... Rob, I have never counted the days since I got TM. I just go by years. For me it is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a ball and not uncurl for a long time. Positive attitude is what we need but as I said to Jeanne it is okay to have a little 'Pity Party for One' every now and again. Now I'm going to figure out what 4000 days computes to. Have a good day Heather in Calgary - Original Message - From: Robert Pall To: jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 12:39 PM Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitudewe either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being
Re: [TMIC] Sweating
I'm so glad someone started this conversation. Nobody (doctors) has explained to me why these symptoms appear except to say that no, I don't have Lupus etc. I get a fever before the sweating and the only place I sweat is the back of my head. It just pours and I have to put a towel around my neck. The only place I have the freeze burning is a patch between my shoulder blades. I don't post very often so I should tell you I'm 9 yrs into TM and 'possible' MS. I can walk unassisted about 30 ft. I have a cane and have been using a walker more and more in the last 2 yrs. Saw my neuro last week he's not happy with the downhill status so he's sending me for some rehab work. The backsliding has been gradual so he doesn't think we're looking at MS. My last MRI showed no change. Diane in Canada - Original Message - From: Jan Hargrove To: [EMAIL PROTECTED] ; tmic-list Sent: Thursday, March 20, 2008 10:58 PM Subject: Re: [TMIC] Sweating Cheryl, My neurogolist told me that the only thing that wouldn't return is my temperature con- trol He was correct..I sweat from my breasts up.I was paralyzed at the t-8, I was a completeI freeze in the winter, cause I also have the freeze burning in my legs, 24/7and in the summer, I have to watch and not stay out in the heat very long cause I could have a heat stroke...I sweat profusely!!. Maybe this help with your question..janh [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Hi, I am affected a the T4-T5 level also,but I don't sweat on one side of my face since getting tm. I also only blush on one side. No one has ever been able to explain it. Cheryl in cold,cloudy Easthampton,Mass. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] Another unidentified becomes identified!
Welcome to TMIC Rita. One thing I retained from the time of onset is what you described about your arm feeling cold but not to the touch, except I get it in my feet. There is pain when I touch my left arm. One thing nobody has been able to explain is the pain on my scalp ears. It takes me forever to find a comfortable position to sleep. I am thankful tho because I couldn't bear to be touched at all for about a year. Even my clothes hurt. Sure glad that improved - I've got 10 grandkids to hug. In answer to one of your questions, my TM onset followed a bad bout of flu. Diane in Ottawa, Canada (10 in. of snow so far today another 15 in the forecast. Yikes!) - Original Message - From: [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 08, 2008 4:25 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
[TMIC] Sorry - Just testing
Re: RE: [TMIC] ot
This interesting. Wonder how many of us are affected in multiple levels ??? TM hit me at L-1/L-2 and I was paralyzed from the waist down. I learned to walk again for short distances 25-30 ft. with a cane or walker. However, I had other symptoms above the waist and my neuro has confirmed that there are minute lesions the whole length of my spine. None of these symptoms cause disability - they're just annoying. All in all, I am thankful TM was caught early before severe damage occurred. Diane in Canada - Original Message - From: natalie mizenko To: Transverse Myellitis Sent: Sunday, June 10, 2007 10:32 AM Subject: Re: RE: [TMIC] ot Sally, I was wondering what type of affect you have on your body in T6-T8? Numbness, pain? Are you able to walk. I've always wondered when folks get TM in 2 or 3 levels of the spine how it is. If you don't mind, I'm just trying to educate myself on TM. I have it from T12 down and in a w/c. Did you have Rehab in your state? I had to go from Arkansas to Texas for 7 weeks total. Thanks, Natalie [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I live in Hawaii where it's usually in the 80's - or in cool weather, in the 70's (I know, spoiled, aren't I!) The only weather that bothers me is when it's cold - like when I went to California when it was in the 50's at night. I wore 3 pair of socks and 2 pair of sweat pants to bed. Even in Hawaii, I often wear socks around the house in the cool weather (we don't normally wear shoes in the house here, but leaves our shoes at the door). Sally (T6 - T8, 2005) -- Got a little couch potato? Check out fun summer activities for kids.
Re: [TMIC] ot
Heat also makes my fatigue worse and often leads to a flare. I do not feel the cold unless I am unwell. Diane in 90oF. today. - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Friday, June 08, 2007 11:43 AM Subject: Re: [TMIC] ot Extremes of heat OR cold affect me badly. Heat makes my fatigue worse, and generally feel weak. Cold causes my pain to be worse. Kevin
Re: [TMIC] joint pain?
Cossi/Patti I'm late too but here's my bit. I too have joint pain iinflammation. The only med I was on that might have caused the problem is Lipitor. The dr took me off it for 2 mo. - twice. Didn't help. Two fam. drs, my neuro and two rheumatologists have poked tested everything they could. None of them have found the answer. They have eliminated Lupus and every disease they could think of. I do not have arthritis or rheumatism. I just get these very painful attacks that can last for months. I just finished my 10th week of physio and have made great progress. The inflammation in my right hip had spread from knee to waist and that leg was so weak, I was falling 7-8 times/day. I'm happy to report that I've only fallen once in the last week. Last year, the inflammation was in my shoulders and 2 yrs. before that in both hips. I am a medical mystery, lol. Just wish it didn't hurt so darn much. Diane in Canada - From: [EMAIL PROTECTED] To: Cossy Hough [EMAIL PROTECTED]; TM mailing list tmic-list@eskimo.com I realize my response is too late for you doctor appt, however, it might help others. Joint pain is listed as a side effect on either the Baclofen, Neurontin, or Cymbalta medical data sheet that I have read. It is a good idea to reread these sheets occasionally since we might develop a symptom after we have taken the med for a long period. I too have joint pain and attribute it to the meds. Patti - Michigan Cossy Hough [EMAIL PROTECTED] wrote: Hi all- I have been having joint pain (aches) in my hands and feet. I have an appt wih my PCP tomorrow but am wondering if anyone knows if this could be somehow related to TM? I have searched but haven't found anything except other disorders that those with TM might have. Just looking for some info Thanks! Cossy
Re: [TMIC] Renal problems
Frank, I thought constipation was a 'common' with TM (?) I'm affected that way too. The first couple of yrs after TM (1999) was murder. It got a little better aftr I started walking again and added a lot of fruit and other roughage. I'm still not normal but I suffer less. I've come to stop expecting a BM every day as before. The most negative thing is the residual paraysis. The muscles used to 'expel' do not work. I've come to depend on a combo of diet and gravity. Diane in Canada P.S. I also have to cath. - Original Message - From: [EMAIL PROTECTED] Rick, et al, Has anyone else notices increasing constipation since T.M.??? F
Re: [TMIC] bladder and UTI
Linda, I have the same problem + catherization - no feeling. I pay close attention to odour, colour pressure above the pelvic bone. Any change is my signal to see my dr. Diane in Canada who just got over still another UTI. Linda wrote: I've been reading all the post's concerning UTI and the bladder, etc. My question is.(and this may be a really DUMB one) How do you know if you have UTI if you can not feel, do not feel normal from the waist down? What I mean is, I have feeling, I can walk, but when it comes to FEELING, I do not have it(such as relations with my husband), etcI am almost at my 4 year mark, I was completely paralyzed from the waist down, I have come a long way, but I do have a neurogenic bladder, I am on detrol, and I try to go to the bathroom every 2 hours and I have been told to double void. Would I be able to have the sensations that goes along with UTI, such as burning? I don't think I have this, but sometimes the stream is so little, I know that I am not emptying completely. Linda Garrett Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2/min or less.
Re: [TMIC] Re: Brain stuff or not
So true, lol. Last year, my hubby was on a real downer went to see his dr who pronounced the problem as a 'burn-out. Bet if I had seen him, he would have called it depression. Diane in Canada [EMAIL PROTECTED] wrote: neurotic housewife? Your problem is that you're a female. Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process.
[TMIC] Lyrica
There have been extensive discussions about Lyrica on this list and I didn't pay much attention because it didn't concern me personally. My neuro has now started me on it and I have a couple of questions about dosage and side-effects. If some of you who are on Lyrica could write me directly, we won't fill everybody's mailbox. Thanks. Diane in Canada
Re: [TMIC] Accupressure
Patti, you would love the show I put on sometimes. I hiccup, cough, sneeze all in a row and it repeats for a few minutes. What a riot! Dr says it is caused by spasms in the chest wall. Just glad it doesn't head south. Diane in Canada [EMAIL PROTECTED] wrote: I haven't had the hiccups since TM. Patti
Re: [TMIC] Oprah show
Cheryl, I wrote to Montel about 2 years ago and never got a reply. Worth trying again. Diane in Canada "[EMAIL PROTECTED]" wrote: Hi, Since Oprah has ignored all requests sent in the past,has anyone approached the Montel Williams show?Since he has MS,maybe he would be interested in having a show on TM.Just a thought. Cheryl in cloudy Easthampton,Mass. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1/min.
Re: [TMIC] Fwd: Questions????
Kelli, I don't want to give everybody on the TM list a mental picture of me cathing, but here goes. I'm 6 years into TM and I still have trouble cathing on the toilet. Here's my secret: I am just tall enough that I can slide onto and sit on the bathroom vanity. I use a standing mirror to aim the catheter and just let it empty in the sink. Only my hubby knew I did this until I told my urologist. He laughed and said that about 75% of his female cathing patients do that. In the first year, which I spent mostly in bed, I used a male (longer) catheter and aimed it into a pail. I did it half-sitting with a mirror. As for gaining strength and mobility.so much depends on how long TM has been there. I came a long way after the first year and find there are things I do now that I couldn't do a year ago. Good luck, Diane in Canada [EMAIL PROTECTED] wrote: Subject: Questions Date: Wed, 15 Mar 2006 22:58:35 EST From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]Hello guys ...and gals Jeri wanted me to ask if this is something that is normal for spaziums (sp) .. She will try to move her leg or foot with all her might ..and everytime it will cause her to spaz.. now then if she is trying to move it a certain direction then she spaz.. and it moves there in a spazium Like a delayed reaction Now another question.. how do you gals self cath...any magic ideals ..her hands are not strong enough. Her movement , Moblility is back a 100 percent but the strengh of a 75 year old person...will her strengh in her hands improve with thereapy.. Can feel the need to poop but cant tell if it is a poop or gas I told that is everybody...lol.Bladder seems to be holding a lot to me sometimes 500 to 800 now cathing every 3 hours to a 275 to 400 what is the norm..how often do most of yall go that is still having to do it ...Thanks for all the support I read every night before I go to bed ,no matter what time it is or how tired I am..THANKS SOO MUCHKelli
[TMIC] Might help
Someone just passed this on to me and I thought it might be helpful to those of us who have trouble reading small print. Make sure your cursor is at the beginning of the text. Press Ctrl and turn the wheel in the middle of your mouse. The print will appear larger or smaller depending on which way you turn the wheel. It worked really well in wordprocessed documents but I couldn't get it going in e-mail text. Maybe you'll have better luck. In any case, give it a try. Diane in Canada
Re: [TMIC] to chiro or not to chiro
Heather, I see a licensed massage therapist. If she only works on the general aches and pains, it's so worth it. Our insurance covers to a max of $500 a year with a doctor's referal but I tend to go beyond that (until my wallet feels tight). Diane Heather Pieter wrote: Diane,I'm not into chiro but glad it is helping you. However I do want to ask about your weekly massage. Is it Massage Therapy or just a massage. I think there is a difference but not sure about it. Just wondering. I have been going to look at my health benefits from my company. I'm on LTD but still covered by the health plan. Was thinking that either Massage Therapy or massage could help me. My low back prior to TM bothered me with disc problems and sciatica down the right leg which is also my weak one. I find that besides the TM I still have pain from the disc problem from time to time. LIke yourself carrying myself differently against the pain and the weakness also affects other muscle groups and I was hoping for some relief there as well.ThanksHeather in Calgary - Original Message - From: Diane To: BobbyJim Cc: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, March 06, 2006 4:34 PM Subject: Re: [TMIC] to chiro or not to chiro I have also been seeing a chiropractor (for the last 2 months). He has helped me immensely. The spasms in my lower back are so severe that all the surrounding tissue (hard and soft) is affected - I had bursitis in both hips, inflammation around my tail bone and hamstring and 7 areas of pinched (scrunched) nerve ends. The chiro has reduced almost all the peripheral pain. As for the spasms, well...that's not his area of expertise. But he has given me back my life as it was 2 years ago. I have to add that I felt a chiro was my last resort. The neuro and my family doctor couldn't seem to help. I tried a homeopath for about a year and that didn't help. Then I tried Dit-Da medecine (Chinese, acupressure cupping) and that was a waste of money too. My only revervation with the chiro was that he not crack my neck and he hasn't. He is, however, working on the soft tissue that has been affected from poor posture I seem to have acquired against the pain. All in all, a good experience. I am also having a weekly massage. Diane in Canada (6yrs TM) BobbyJim wrote: Me missus, the one with MS, has gone to a chiro with no problems.I guess it all depends on the quality of the chiro and his-her treatment.I've been going to the same one since June and my sciatica is gone as is almost my lumbago.No probs whatsoever. Regards, Bobberino in Elvisland No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 268.2.0/275 - Release Date: 3/6/2006
Re: [TMIC] 2 questions---1 for the ladies
Hi Jill, Re lesions going away :- I was very lucky that a large lesion (just below the waist) disappeared some time in my 2nd year of TM. Didn't make any difference in my symptoms but it sure felt great to hear the news. Diane in Canada Jill Z wrote: I'm pretty new to the TM thing and seem to be making a good recovery so far but I was wondering if:#1 - Do any of the women notice their symptoms are a little worse before their periods or ovulation?#2 does anyone ever get a pressure like feeling in their head? It's not a headache but just feels like pressure?I have low blood pressure too by the way 110/60.I'm 35 yrs old and have a lesion at T11-12Also, has anyone ever heard of these lesions going away???Any advice would be appreciated.Thanks,Jill
Re: [TMIC] dizziness
Me too on the fizziness since TM. If it's really bad, I take Gravol. I keep children's liquid Gravol on hand. Almost instant relief - works a lot faster than the adult pills or suppositories. There are times when I get dizzy standing up or moving too quickly - that I know is my BP plumetting. It's a different feeling. Diane in Canada [EMAIL PROTECTED] wrote: In a message dated 2/13/2006 2:45:42 PM Central Standard Time, [EMAIL PROTECTED] writes: I've had dizziness since TM. It never occurred to me to ask whether it was part of TM or not -- I just assumed it was since it came with TM onset, and, like most of my other symptoms, has gotten better but still flares up from time to time. I've had balance problems since TM onset, so I just connected the dizzniess to that -- but that's just guessing on my part.(Got a chuckle when I made a typo and put "fizziness" at first instead of dizziness. :-) )Barbara H. I get "fizziness" on a regular basis. Glad you brought it up...Jude
Re: [TMIC] Vision
Had to giggle at this. When I think 'age', my tongue just won't stay in my cheek. I stick it right out !!! Diane in Canada Heather Pieter wrote: Besides TM we have so much to look forward to as we age - don't we?? (said with tongue in cheek) Heather in Calgary - Original Message - From: ROBERT COOK [EMAIL PROTECTED] To: TMIC tmic-list@eskimo.com Sent: Friday, February 03, 2006 7:46 AM Subject: Re: [TMIC] Vision DARE I GO THERE? ME THINKS NOT.
Re: [TMIC] mechanisms of pain
Funny that the subject of hot/cold comes up now. I've been having a flare this past week and the cold is driving me crazy. The worst for me is in my back - I call it my patch. It feels like someone is holding a bag of ice between my shoulder blades and I'm so cold, I shake. Like some of you, it wakes me up several times during the night .and I have to cath. Very thankful for the Remeron that helps me get back to sleep. Crazy TM. Diane in Canada (who's even colder than outside) [EMAIL PROTECTED] wrote: I have the same thing, but I have it in my arms, hands and trunk too. My left hand is the worst going back and forth from very cold to very hot. my skin actually gets cold and hot.
[TMIC] January
A very happy new year to everyone and happy birthday to the January babies. Diane in Canada
[TMIC] Devic's
This one is for Grace is she's still here. UK JJ member 'Nunney' has Devic's / NMO, which a rare MS variant. There are only 50 people in the UK diagnosed with it. The neurologists from the Walton Centre in Liverpool have told Nunney that if she can get together a worldwide database of 600 cases, they'll be able to get funding for research into the condition. Diane in Canada http://www.devic.org.uk/
Re: [TMIC] Lipitor
Lipitor saved my life (maybe). I have type 2B cholesterol (familial). In my 40's, it started to climb rapidly my dr put me on 3 meds one after another. Still, it kept climbing the dr was almost panicking at the speed of increase. I won't give you the #s in Cdn count. Lipitor came on the market about then he put me on it immediately. Within six months and to this day (over 15 yrs.), my cholesterol count is below normal. A success story here, anyway. I have had zero side effects. Diane Gillian Clark wrote: My doctor has just prescribed Lipitor-atorvastatin calcium- to decrease my cholesterol. For about the first time in my life, I have actually read up on it and all the side effects. Can only say "NOT HAPPY JAN" I know that there is a wealth of info on this list so please please please help. I'm not taking one tablet until I hear from you. Hugs Gilly Adelaide South Australia tm 21/08/01 www.originaltouchofgilly.com
Re: [TMIC] good news? bad news?
I had one of those. Fun (ho-hum). You're right about the socks. Didn't get mine wet but my legs got a bit of a splash. Results: geeyou're bladder doesn't work!! Diane in Canada [EMAIL PROTECTED] wrote: Well, it was not a bladder infection or a uti...basically it's just my nerves..in short..the TM. Krissy, You're gona get a cystometrogram!! The put a catheter in your bladder, sensors on your muscles Down There, and a sensor inside your But and hookm up a bag of daline to fill your bladder, and everything gets hooked to a computer. It's not much fun. My warning- TAKE OFF YOUR SOCKS- no matter what they tell you, unless you like driving home in wet socks Good Luck F
Re: [TMIC] TMIC location list
Me too, please. Diane in Canada Todd Tarno wrote: Can I get someone to send me the latest TMIC location list,that has members name, location, and their e-mail address.I deleted mine by mistake.Thanks for your help time, Todd-41 Corpus Christi, TXTM HIV meds April 2002HIV+ HBV September 1989Herpes Shingles 1988
Re: [TMIC]MMs
Stop it you guys with the MMs. I had to go our to get a prescription and yup, I bought myself a little bag of MMs. I haven't had MMs in year, lol. Diane in Canada [EMAIL PROTECTED] wrote: In a message dated 10/25/2005 11:32:22 PM Eastern Standard Time, [EMAIL PROTECTED] writes: (Last week I lost weight, so this week I thought maybe I should add some *vitamins* to my diet: MM'sbest vitamins made!)Hope your husband feels better!Take careLinda in Bothell, WA A few minutes after I read the above, I read this in another e-mail:"According to a recent article I just read on nutrition, they said eating right doesn't have to be complicated. Nutritionists say there is a simple way to tell if you're eating right. Colors. Fill your plates with bright colors. Greens, reds, yellows. In fact, I did that this morning. I had an entire bowl of MM's. It was delicious! I never knew eating right could be so easy."LOL!! I wish!Barbara H.
Re: [TMIC] OT: Pomegranate: The Anti-Arthritis Fruit
Add a loaf of bread, a jug of wine and thou and we'll all come over. Diane [EMAIL PROTECTED] wrote: I use green olives stuffed with SPAM along with just a dropp of dry vermouth. The SPAM has many secrets, known only to a very few corporate executives pH
Re: [TMIC] sequel(TMIC)
My 2 cents - my neuro has me dx'd as probable MS but says that the odds are that because of my age (63) and the age of onset (57), I'm unlikely to have another serious neurological occurence. Somethin' to hang on to. Diane in Canada BobbyJim wrote: Well, from what I've read here and there, age has nothing to do with when one comes down with either TM or MS. Hmm.Maybe you need to come on down to Memphis, or go to Vanderbilt in Nashville to get a good medical opinion.Bobberino in still very warm Elvisland,(and it's now mid-October... dang it global warming, anyone).From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Thursday, October 13, 2005 11:57 AM Subject: Fwd: [TMIC] sequel(TMIC) I asked my new neuro if I should be checked for MS (TMer since 2001)this year and he said I was too old (I'm 63) to get MS. He also said there was no need for me to come for annual checkups! Is that true? He was a jerk and I'm looking for a new doctor.Peachy in TN
