Re: [TMIC] New Year Prayer for all of us
Thanks Dalton ~ we appreciate you very much! Linda (Eagle, ID) - Original Message - From: pat cooleymailto:patticoole...@gmail.com To: john snodgrassmailto:jcs...@yahoo.com Cc: Dalton Garismailto:malugss...@gmail.com ; TM listmailto:tmic-list@eskimo.com Sent: Monday, January 02, 2012 11:37 AM Subject: Re: [TMIC] New Year Prayer for all of us Thanks Dalton. On Mon, Jan 2, 2012 at 11:12 AM, john snodgrass jcs...@yahoo.commailto:jcs...@yahoo.com wrote: thanks Dalton From: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com To: TM list tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:10 AM Subject: Re: [TMIC] New Year Prayer for all of us Fellow sufferers; I offer this prayer, called the Remover of Difficulties prayer, which I have recited for decades, sometimes 400-500 times/day in times of great pain or stress, for inner calm and the expectation of better things to come from sources and directions I did not imagine. Is there any Remover of Difficulties save God? Say: Praised be God. He is God. All are His servants, and all abide by His bidding. Love, Dalton From: pat cooley patticoole...@gmail.commailto:patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.netmailto:pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.aumailto:mingalett...@activ8.net.au, TM list tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.netmailto:pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratchthat off my to do list. ___ From: James Bergmolokai...@gmail.commailto:molokai...@gmail.com To:
Re: [TMIC] ? time for scooter
So true John. Cheryl ~ time for you to take a deep breath and relax. Your job now is to enjoy the holidays and let everybody else do all the work. You've more than earned it!! Hugs, Linda (Eagle, ID) - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: rn11...@yahoo.commailto:rn11...@yahoo.com ; tmicmailto:tmic-list@eskimo.com Sent: Thursday, December 15, 2011 6:16 PM Subject: Re: [TMIC] ? time for scooter if ya gotta get a scooter ya gotta get a scooter. Just like everything else with this stuff,,ya do when ya can and when ya cant ya dont. -- From: rn11...@yahoo.commailto:rn11...@yahoo.com rn11...@yahoo.commailto:rn11...@yahoo.com To: tmic tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, December 15, 2011 8:13 PM Subject: [TMIC] ? time for scooter Hi, Today I went to my granddaughters' school for a Christmas lunch,then to my oncologist for bone strengthening infusion. I'm wiped out and my back is going crazy with spasms. I've decided to try and get a scooter;I just can't walk very much now. The walker just isn't enough now. It's been over 16 yrs with tm,and now I'm fighting the cancer too,and I'm just exhausted. I'll contact my pcp after the holidays,and see if I can get one. Cheryl
Re: [TMIC] December Birthdays
HAPPY HAPPY BIRTHDAY TO ALL DECEMBER KIDS! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: tmicmailto:tmic-list@eskimo.com Sent: Thursday, December 01, 2011 10:09 PM Subject: [TMIC] December Birthdays Happy Birthday to those born in December! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 12-2 Meghan (bluemeg...@hotmail.commailto:bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.commailto:tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.netmailto:jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.commailto:wim_from_holl...@hotmail.com) 12-4 Jan Burgess (ja...@rogers.commailto:ja...@rogers.com) 12-7 Patti in Wisconsin (patticoo...@wi.rr.commailto:patticoo...@wi.rr.com)(wpcoo...@gmail.commailto:wpcoo...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.netmailto:jorlcummi...@earthlink.net) 12-15 Alton Ryder(a-ry...@comcast.netmailto:a-ry...@comcast.net) 12-18 Rod Jenke (rktje...@chariot.com.aumailto:rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@frontier.commailto:r.c.pr...@frontier.com) 12-25 Gilly (mingalett...@activ8.net.au) 12/31 Janet (j.d...@shaw.camailto:j.d...@shaw.ca) Emoticon74.gif
Re: [TMIC] OT - Chris
Jane, Continued prayers for you and your family. May God Bless each and every one of you during this very sad time. I cannot even imagine. Just know that I care.. Linda (Eagle, ID) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Wednesday, October 19, 2011 7:48 AM Subject: [TMIC] OT - Chris I want to thank all of you for your thoughts, prayers, and money gifts. It is really appreciated. My daughter Pam died in Dec last year and my son Chris on Oct 6 this year. Both were badly controlled diabetics. With the help of my church we were able to honor Chris' wishes of being buried instead of cremated. My other two sons and daughter are taking his passing very hard. Please continue praying for us. THANK YOU AND MAY GOD BLESS YOU JANE/SPLENDORA TX
Re: [TMIC] My son Chris OFF TOPIC
oh dear Jane, I am so very sorry, from the bottom of my heart. Please know that you can always come here to your TM friends. Love and prayers, Linda (Eagle, ID) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Thursday, October 06, 2011 4:10 PM Subject: [TMIC] My son Chris OFF TOPIC MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] October Birthday List
HAPPY HAPPY BIRTHDAY BERNIE!! (Linda in Eagle,ID) - Original Message - From: Berniemailto:bpe...@austin.rr.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, October 03, 2011 3:16 AM Subject: [TMIC] October Birthday List Bernard Pelow Austin, Tx D.O.B. 10/26/1955 Emoticon74.gif
Re: [TMIC] October Birthdays
HAPPY BIRTHDAY OCTOBER BABIES! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: tmicmailto:tmic-list@eskimo.com Sent: Sunday, October 02, 2011 12:50 PM Subject: [TMIC] October Birthdays Happy Birthday to the October kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 10-3 Lauren Graham (grahamsn...@aol.commailto:grahamsn...@aol.com) 10/4 Neil McNeil (n...@hotmail.commailto:n...@hotmail.com) 10-7 Naomi (ladyno...@aol.commailto:ladyno...@aol.com) 10/08/1974 Rudy Aceves (race...@vengrp.commailto:race...@vengrp.com ) 10/8 Tim Holder (thol...@fbclr.orgmailto:thol...@fbclr.org) 10/9 Assunta Rene ( robert...@hotmail.itmailto:robert...@hotmail.it) 10/11/56 Lori B. (lbieh...@earthlink.netmailto:lbieh...@earthlink.net) 10-11 Kate (nicwi...@cox.netmailto:nicwi...@cox.net) 10-12 Diana Gray ( graymyfat...@aol.commailto:graymyfat...@aol.com) 10/14 Marieke Dufresne! (marieke...@hotmail.commailto:marieke...@hotmail.com) 10/14 Lanora (noni...@hotmail.commailto:noni...@hotmail.com) 10/16 Sandy Parker ( parkersw...@aol.commailto:parkersw...@aol.com) 10/16 Linda Cherpeski (cherp...@msn.commailto:cherp...@msn.com) 10-21 Renee A. in CT (littlem...@aol.commailto:littlem...@aol.com) 10-21 Cody Kidwell ( c...@austin.rr.commailto:c...@austin.rr.com) 10/21 Candy K (cakal...@embarqmail.commailto:cakal...@embarqmail.com) 10-23-60 Keith (leboo...@cfl.rr.commailto:leboo...@cfl.rr.com ) 10-25 Debby Jones ( ladybutl...@comcast.netmailto:ladybutl...@comcast.net) 10-26 Jim Lubin jlu...@eskimo.commailto:jlu...@eskimo.com 10/27 Robin (moldr3...@aol.commailto:moldr3...@aol.com) 10/27 Krissy ( ladykri...@comcast.netmailto:ladykri...@comcast.net) 10-28 Netta Ganor (net...@isdn.net.ilmailto:net...@isdn.net.il) 10/31 Jennifer Spence (jenniferspe...@cogeco.camailto:jenniferspe...@cogeco.ca) Emoticon74.gif
Re: [TMIC] OFF TOPIC; my cancer marker results
Hi Cheryl, That is the best news! Will keep those prayers coming. Please keep us posted on how you're doing. Linda in Eagle, ID (still hot sunny) - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: tmicmailto:tmic-list@eskimo.com Sent: Thursday, September 22, 2011 2:15 PM Subject: [TMIC] OFF TOPIC; my cancer marker results Hi Everyone, Got my blood work results today. My CA2729 (a cancer marker) has gone from 112 down to 53.8 . The letrozole seems to be working! Thank you for the prayers,I really appreciate it. Cheryl
Re: [TMIC] September birthdays
HAPPY BIRTHDAY RANDY!! - Original Message - From: celr...@aol.commailto:celr...@aol.com To: barbara...@gmail.commailto:barbara...@gmail.com ; rj_ran...@yahoo.commailto:rj_ran...@yahoo.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, September 01, 2011 9:40 PM Subject: Re: [TMIC] September birthdays HAPPY HAPPY BIRTHDAY TO ALL LOVE JANE/SPLENDORA In a message dated 9/1/2011 2:41:41 P.M. Central Daylight Time, barbara...@gmail.commailto:barbara...@gmail.com writes: If you (and anyone else) will let me know when your birthday is, I'd be glad to add it on. I don't know these things unless someone tells me. Every month I add to the birthday list Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. (Or you can send it to me privately -- I just put the TMIC address so everyone will be aware of it. If you've sent it before and I missed it, my apologies. But I'd be happy to correct that now. Barbara H. On Thu, Sep 1, 2011 at 2:37 PM, randy rankin rj_ran...@yahoo.commailto:rj_ran...@yahoo.com wrote: thanks for birthday wish. as usually, my name gets left off the list lol - 4th year in a row lol but it just reminds how old that i'm getting From: Barbara H. barbara...@gmail.commailto:barbara...@gmail.com To: tmic tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, August 31, 2011 11:01 PM Subject: [TMIC] September birthdays Happy Birthday to the September kids -- hope you each have wonderful birthdays! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. Most of you remember Pam Montz -- her birthday was 9/9, but she passed away not too long ago. I don't know if her husband kept her e-mail open (it was montzma...@aol.commailto:montzma...@aol.com), but you might keep her family in your thoughts and prayers and maybe even send a note if you feel led to do so. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.commailto:eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.commailto:judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.commailto:keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.commailto:parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.netmailto:coch6...@bellsouth.net) 9-17 Bill Wimberly- (bwimbe...@bellsouth.netmailto:bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.commailto:robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.commailto:mush...@juno.com)(mushr...@hotmail.commailto:mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.commailto:ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.commailto:a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.commailto:pge...@aol.com ) Emoticon30.gifEmoticon74.gif
Re: [TMIC] September birthdays
HAPPY BIRTHDAY WISHES TO ALL OF YOU SEPTEMBER KIDS! (in loving memory of Pam Montz ~~~ TIAD) - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: tmicmailto:tmic-list@eskimo.com Sent: Wednesday, August 31, 2011 10:01 PM Subject: [TMIC] September birthdays Happy Birthday to the September kids -- hope you each have wonderful birthdays! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. Most of you remember Pam Montz -- her birthday was 9/9, but she passed away not too long ago. I don't know if her husband kept her e-mail open (it was montzma...@aol.commailto:montzma...@aol.com), but you might keep her family in your thoughts and prayers and maybe even send a note if you feel led to do so. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.commailto:eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.commailto:judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.commailto:keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.commailto:parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.netmailto:coch6...@bellsouth.net) 9-17 Bill Wimberly- (bwimbe...@bellsouth.netmailto:bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.commailto:robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.commailto:mush...@juno.com)(mushr...@hotmail.commailto:mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.commailto:ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.commailto:a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.commailto:pge...@aol.com )
Re: [TMIC] gone to facebook
Dalton, Janice, Cheryl, John ~~ I am right here with you all. I love the TMIC ~ this is where everything good started for me 9 years ago. This is where I learned I was not all alone in this foreign body. I knew nothing about TM, my friends and family knew nothing; but this is where they came to learn what it is, what to expect and how to be supportive ~ after all, they didn't know any more than I did about this mystery disease/disorder. Facebook is fine for a lot of things, even to visit with our fellow TMers, but this is home. just my 2 cents worth, Linda in Eagle, ID - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Janice Nicholsmailto:jan...@centurytel.net ; rn11...@yahoo.commailto:rn11...@yahoo.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, August 29, 2011 8:35 PM Subject: Re: [TMIC] gone to facebook I have a Facebook account, but don't know anything about a TMIC account on Facebook. Wouldn't even know how to do it. What's wrong with this, anyway? Facebook just means you have to wait longer for answers and y0u get all this other stuff like, Anna has commented on her new picture, John just commented on Anna's comment about her new profile picture, and other useless nonsense. Hey, I miss you all. It's tough out here for all of us. Fine to go Facebook but whey eliminate the old working thing at the same time? Dalton From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net Date: Mon, 29 Aug 2011 16:44:45 -0500 To: rn11...@yahoo.commailto:rn11...@yahoo.com, tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] gone to facebook Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com Resent-Date: Mon, 29 Aug 2011 14:45:22 -0700 Cheryl, How are you doing? I am still here, just haven't been on the computer much.Am thinking of going to facebook, but will not give up the TMIC website. Janice From: rn11...@yahoo.commailto:rn11...@yahoo.com Sent: Monday, August 29, 2011 12:19 PM To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: [TMIC] gone to facebook Hi, Since it seems most of the tmic group has gone to facebook,could you cc copies of emails to me? I miss you! Cheryl
Re: [TMIC] tm anniversary
Hi Cheryl ~ I hope the short cry was cleansing ~ most of the time I think they help to keep the Big ones at bay where they belong. And you, sweet lady, have quite a load on your plate now so it's very important that you keep checking in ~ we need to know how you're doing. Linda in hot/dry Eagle, ID - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: tmicmailto:tmic-list@eskimo.com Sent: Saturday, August 13, 2011 7:08 PM Subject: [TMIC] tm anniversary Hi Everyone, Well,today was my 16th anniversary with tm. Had a short cry and then went on as usual.I'm just sick of this whole thing. Cheryl in humid Easthampton,MA
Re: [TMIC] aaaaaaaaaahh!
yep, so did I !!! Maybe we should stir things up??? Linda/Eagle,ID - Original Message - From: celr...@aol.commailto:celr...@aol.com To: rumc...@hotmail.commailto:rumc...@hotmail.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Friday, July 22, 2011 6:52 PM Subject: Re: [TMIC] aahh! I DID! Jane/Splendora Tx In a message dated 7/22/2011 10:56:22 A.M. Central Daylight Time, rumc...@hotmail.commailto:rumc...@hotmail.com writes: It's so rare that it's quiet on here. I get sucked in by my own personal problems and never get the time to write because of that. I truly hope no one else has the same reason, because then no one would write anymore. This is all I have now...so.aahh! I screamed! did y'all hear me? Jeron =
Re: [TMIC] OFF TOPIC;FRUSTRATION
Bless your heart, Cheryl. I think maybe it's time you caught a break here. And I don't mean catching pinkeye. Just know this please. Your TM family is here for you ~ always. You're in my thoughts and prayers every day. Hey keep taking those deep breaths and try to relax as much as possible. (I know, easier said than done) hugs to you, strong lady Linda in Eagle, ID - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: tmicmailto:tmic-list@eskimo.com Sent: Friday, June 17, 2011 8:43 AM Subject: [TMIC] OFF TOPIC;FRUSTRATION Hi, Why do insurance companies make you send in referrals for every separate thing? You'd think they would include recommended tests,surgery,etc all under the main referral. Plus,there is no local orthopedic oncologist for me to see. I just realized late last night I need my PCP to refer me for the shoulder biopsy,and for a pathologist to read the results. Good thing I thought of it,or I'd be paying out of pocket (and my pockets are pretty empty!). Called my PCP's office and I need the doctor's name address phone # and diagnosis before they can send it to Boston. Just added stress I don't need. I'm taking deep breaths and trying to relax. On top of everything,I have pinkeye in both eyes.An itchy, gunky mess. Things have got to get better! Cheryl
Re: [TMIC] Hello
Hi Dalton, I had very mixed feelings when I read your first post. Sad in the beginning and then so happy for you ~ Maybe take some time to relax for a while and then enjoy that writing. Safe flight back to the states. Don't be a stranger now ~ we want to hear how you're doing ~ and I'm very excited about your book. hugs, Linda (Eagle, ID) - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Janice Nicholsmailto:jan...@centurytel.net ; Patricia Cooleymailto:patticoole...@gmail.com ; Akuamailto:a...@artfarm.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, June 11, 2011 7:33 AM Subject: Re: [TMIC] Hello I fly back day-after-tomorrow @ 5:00 AM. OF COURSE I WON'T FORGET YOU ALL! Love, Dalton From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net Date: Fri, 10 Jun 2011 22:13:36 -0500 To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, Patricia Cooley patticoole...@gmail.commailto:patticoole...@gmail.com, Akua a...@artfarm.commailto:a...@artfarm.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Hello Dalton, when will you be back to the states? You won't forget us, will you? Janice From: Dalton Garismailto:malugss...@gmail.com Sent: Friday, June 10, 2011 1:39 PM To: Patricia Cooleymailto:patticoole...@gmail.com ; 'Akua'mailto:a...@artfarm.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Hello You know; I go from wanting to cry to wanting to laugh in the same moment. I am so relieved not to have to prepare for those classes anymore-I was associate professor of economics and commodity price behavior-the lectures, but mostly that awful bureaucratic stuff-the accreditation material, reports, the grading and grade submissions, my annual objectives . . . So many forms to goof up and be asked to do over. This disease has made filling out any kind of form an arduous task, because I always lose my way and have to start from the beginning. They took so long. And now the only big form I have to face each year is that mother of all forms, the tax form. I am looking forward very much to writing and researching. My published book is Manna from Heaven: From Divine Speech to Economic Science. it is an analysis of economic content within the best known divinely revealed books of God. Now I am writing another one, which is almost ready, that will target Sunni Muslims with an analysis of the economics of the Divine Qur'an. (I am not Muslim; I am a Baha'i). I want to start a discussion of these things among ordinary people of all Faiths-because the way the economy is going now, it is not serving the best interests or needs of the majority of peoples in the world, and I can't imagine that God would leave us in the dark on this subject. And, what I found is that there is a tremendous amount of economic content in the divinely revealed Words of God. They haven't been economically analyzed because economics is only about 100 years old as a formalized academic discipline. Anyway, I am packing now and pretty happy. I am over the sting of being pushed out, and that quiet but palpable air of dismissiveness from bosses and some colleagues alike. Suddenly you are like a dead man walking, and they don't want to be around you. They look the other way, as if being dismissed were a contagion they must avoid. You know what I mean. As disabled persons we encounter it every day on the street, in the check-out line, and the restroom. The staff-secretaries, cleaners, janitors-are different. They come up to you and ask how you are, and say that they will miss you and are sad to see you go. I think that if when I die, such persons show up to my funeral, I will have perhaps not been too bad. Our colleagues and relatives, these must show up, so it doesn't mean much. But if ordinary workers who don't owe you anything, if they show up, then you have been not too bad as a person. So back to packing-and ice cream with almonds, walnuts, fudge sauce. Thanks everyone, you mean a lot to me. How could I have gotten along so long alone over here without your help and friendship?! Dalton From: Patricia Cooley patticoole...@gmail.commailto:patticoole...@gmail.com Date: Fri, 10 Jun 2011 09:52:32 -0500 To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, 'Akua' a...@artfarm.commailto:a...@artfarm.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: RE: [TMIC] Hello It sounds as though you have come to terms with your loss. I wish you all the luck in the world with your manuscripts. Maybe one day when you are a famous author, we can say we know him he is a friend. Keep our spirits up and good luck with your upcoming move back to the States. Keep in touch. From: Dalton Garis
Re: [TMIC] June birthdays
HAPPY BIRTHDAY TO ALL OF THE JUNE KIDS! A GREAT TIME TO BE BORN! Also, In special memory of Tom Carr and Dennis Galvin - Original Message - From: Patricia Cooleymailto:patticoole...@gmail.com To: 'Barbara H.'mailto:barbara...@gmail.com ; 'TMIC'mailto:tmic-list@eskimo.com Sent: Wednesday, June 01, 2011 7:56 AM Subject: RE: [TMIC] June birthdays HAPPY BIRTHDAY TO ALL OUR JUNE BABIES! From: Barbara H. [mailto:barbara...@gmail.com] Sent: Tuesday, May 31, 2011 11:21 PM To: TMIC Subject: [TMIC] June birthdays Happy birthday to the June kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. We also remember deceased members Tom Carr, whose birthday was June 2, and Dennis Galvin, whose birthday was June 25. 6-1 Akua (a...@artfarm.commailto:a...@artfarm.com) 6-5 Tobe Kanon (spirita...@verizon.netmailto:spirita...@verizon.net) 6/5 Mindy King (we4king...@verizon.netmailto:we4king...@verizon.net) 6/11 Marabeth (mes...@earthlink.netmailto:mes...@earthlink.net) 6-11 Sharon Marsden (dorightra...@yahoo.commailto:dorightra...@yahoo.com) 6-17 Cheryl (rn11...@yahoo.commailto:rn11...@yahoo.com) 6-19 Tom in Delaware (t-...@usa.commailto:t-...@usa.com) 6-19 Debbie Capen (dca...@earthlink.netmailto:dca...@earthlink.net) 6-22 Ann Moran (annmo...@gofree.indigo.iemailto:annmo...@gofree.indigo.ie) 6-22 Gerry (suret...@sympatico.camailto:suret...@sympatico.ca) 6-24 Lynne (lynnemye...@yahoo.commailto:lynnemye...@yahoo.com) 6-25 Errol White (eamjwh...@bigpond.commailto:eamjwh...@bigpond.com ) 6-28 Kim Harrison (kimharrison...@comcast.netmailto:kimharrison...@comcast.net) 6-29 Pauline (prha...@aol.commailto:prha...@aol.com) 6/30 Bobby Jim (elbobber...@earthlink.netmailto:elbobber...@earthlink.net)
Re: [TMIC] OT - Asking for prayers
Bernie, I'm so very sorry to hear this. Please know that Sally is in my prayers. hugs, Linda in Eagle, Idaho - Original Message - From: Berniemailto:bpe...@austin.rr.com To: Bernard Pelowmailto:bpe...@austin.rr.com ; TMICmailto:tmic-list@eskimo.com Sent: Thursday, May 26, 2011 4:56 PM Subject: [TMIC] OT - Asking for prayers To All TMIC family; I need all the prayers for my childrens mother, my ex-wife Sally. We are very good friends and have a better relationship than when we were married. Here is a short version she wrote explaining what has been happening to her. many of you know she was diagnosed with Stage IV breast cancer years ago: here is her latest condition. She needs all our prayers to survive this for any length of time. Thank you and Sincerely, Bernie Have been on a couple of different oral chemotherapies since first discovering the cancer in 2005 - Arimidex for a long time, 'til it apparently stopped working (when I had the double mastectomy in late 2008), and Xeloda, which also did not work. This week I'll have my second round of Taxotere. Couple of weeks after the first round, my hair started falling out, so now I'm shaved bald! I've lost about 80 pounds, which is skinniest Ive been in about 30 years! I look normal to myself because spent greater portion of my life closer to this weight, but my appearance is apparently shocking to those who haven't seen me in awhile. I get short of breath easily and my voice is hoarse most of the time. I've already outlived the median life expectancy of 3 years for my diagnosis (stage 4 breast cancer), so plan to keep it up as long as I can! Chemo makes me tired, so I sleep a lot. It's a funny kind of limbo... Now I see why didn't want to write this - it's depressing! How does one write about cancer in an upbeat way? Anyway, I don't spend time wringing my hands moaning. Enjoy myself doing what I want each day and I get lots of rest! That's all for now.. Pray for me and keep my in your happy thoughts.
Re: [TMIC] diagnosis
Cheryl, definitely keeping you in my thoughts and prayers. The waiting is hard; just remember we're all waiting with you. hugs, Linda in Eagle, ID - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: tmicmailto:tmic-list@eskimo.com Sent: Saturday, May 14, 2011 8:13 PM Subject: [TMIC] diagnosis I just want to thank those of you who have written regarding my diagnosis. I wish it was the 20th,so I knew the results. Cheryl
Re: [TMIC] Re: tmic-digest Digest V2011 #178
Well Dalton, I guess it's nice to have an answer, but the answer could have been nicer! Have not heard of this particular autoimmune disease, but I am going to read up on it. I'm with Janice - I hope the doctors have some good drugs to help you out on this one. You need a break, my friend. Please keep posting so we all know how you're doing. Take care ~~ Linda in Eagle, ID - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, May 07, 2011 1:45 AM Subject: [TMIC] Re: tmic-digest Digest V2011 #178 Well, friends; I now have an answer to these symptoms of attacks of contractions. I have stiff man syndrome, or stiff person SPS. It is an autoimmune disease similar to all these others, only it attacks a place in the brain that makes tie chemical that transmits signals to the voluntary muscles. People with this can get attacks from stress, loud noises, too much stimulation, or just minding their own business. It is progressive with all the muscles finally getting involved. But I may have what they call an indolent case, which means it wont progress too fast, and I can get my work completed. Nice to have a time line!!! Regards, Dalton On 5/6/11 10:43 PM, tmic-digest-requ...@eskimo.commailto:tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.commailto:tmic-digest-requ...@eskimo.com wrote:
Re: [TMIC] tornado con't
Randy, the devastation is beyond comprehension. My heart just aches for everybody. Prayers going up every day. hugs, Linda in Eagle, ID - Original Message - From: randy rankinmailto:rj_ran...@yahoo.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, May 03, 2011 9:28 AM Subject: [TMIC] tornado con't I just found out that Cathy had a stroke as result of her injuries. We really desire prayer. The family, especially the immediate family, is really going through it. The second concern is for Dale and Brenda Smith. Like most on this list, Dale has a neurological condition but I don't know what the diagnose turned out to be. He was once a skinny, athletic, healthy young man with a wife and two kids. He had a neurological reaction to medication and lost the use of everything below the waist, his speech, and most likely suffered brain damage. Dale's home was also wiped clean. He was bed ridden and could not move. The tornado blew him and his mother, a home health care nurse, across the yard, across the road and into a ditch. It then dropped large tree on top of their bodies. It was dark, no one could see. People stood up from the rubble that used to be homes and started trying to get their barrings. Two people from two different directions heard Dale's deep moaning and Brenda's unconscious screaming. I will not detail the damage that suffer because many would probably be offended that I shared. Their bodies were seriously injured in ways that you can't imagine. Dale lost a leg. Both had to have multiple surgeries to their face, head, eyes, and other places. Neither are doing well. Brenda is still unconsciously. There are many in our home area that did not survive this event. Tuscaloosa is getting national attention AS IT SHOULD. However, there were S many small communities that were impacted - one after another after another. One can simply drive 5 miles down the road to the next small community and see the same disaster. Some places were hit by 1/2 mile size F3 to F4. Others got the blunt of an F5 size as the twister changed sizes. One friend video'd the thing and promised to send it to me. There is clearly a large wedge shape tornado in the blue sky. On the right is a large twister. To the left is a smaller twister. To one's dismay, the blackness of large wedge and large twister began to come closer until they are one big black mass. Then the same happens on the left side until it is one unbelievable large mass. Then the entire screen is black and all one can see in the video is occasionally lightening inside the monster.
Re: [TMIC] Jude
Hi Jude, it's Linda ~~ It's so good to hear from - we miss you when we don’t hear from you. I'm sorry you had to endure another bad UTI, but am happy to hear you are home and doing well. There is quite a bit of activity here, and there are many people in need of support and/or prayer. Don't be a stranger ~ would love to hear from you more often. hugs, Linda in Eagle, ID (T.I.A.D.) - Original Message - From: Jude Hoopsmailto:heyjude48...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, May 03, 2011 9:43 PM Subject: [TMIC] Jude Hi it’s Jude. I am having difficulty posting to the site. Have recently been released from the hospital due to another bad UTI and am now doing well at home. I need to be kept up to date on what has been happening and how everyone is doing. I hope that all are well and wish to hear from someone out there. Love, Hope and Happiness, Jude
Re: [TMIC] May Birthdays
HAPPY BIRTHDAY TO ALL OF THE MAY KIDS. FOND MEMORIES OF JIM BELZ - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Sunday, May 01, 2011 4:38 AM Subject: [TMIC] May Birthdays Happy Birthday to all those celebrating in May! And we remember Jim Belz, who passed away a couple of years ago, I think, whose birthday was May 11. Please send any additions or corrections to 5/5 Linda Garrett (limoga43...@yahoo.commailto:limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.commailto:dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.commailto:roseofr...@aol.com) 5-12 mother...@msn.commailto:mother...@msn.com 5-19 Maureen Wroblewski Hallagan (walterhalla...@msn.commailto:walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.netmailto:ww...@optonline.net) Emoticon74.gif
Re: [TMIC] Re:getting worse
Dalton, I'm so sorry and I will keep you in my prayers. Also I agree with Cheryl. If you can possibly get back to the US where you can get a good neurologist, please please do! Thinking of you...Linda in Eagle, Idaho - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: Dalton Garismailto:malugss...@gmail.com Cc: tmicmailto:tmic-list@eskimo.com Sent: Sunday, April 10, 2011 8:07 AM Subject: [TMIC] Re:getting worse Dalton, You are in my prayers. Just don't go on working if you really aren't up to it.Getting on disability and back to the USA where you can find a good neurologist might be an option. Cheryl in sunny Easthampton,MA --- On Sat, 4/9/11, Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com Subject: Re: [TMIC] Asking group experience To: jack...@att.blackberry.net jack...@att.blackberry.net, TMIC tmic-list@eskimo.com Date: Saturday, April 9, 2011, 11:08 PM Friends; I seem to be getting worse quite quickly. pain across the back and all the skin iom my arms and legs up to just above the elbows and knees. I am also having whole-body contractions, first on the back, then on the front. Unfortunately, the neuro service here is a joke. I could use some prayers, really. I hope I can still work, but if things continue this way it will be impossible. The pain and weakness is just too tough to overcome. Actually, I am now thinking I must shift to a wheelchair, one where I can use my feet to mve around in, since my arms are now too weak for much more than typing and dresing. Thanks, for keeping me in your tooughts and prayers, Dalton Dalton Garis Abu Dhabi, UAE Mobile: +971-55-800-6619 On 4/8/11 9:35 PM, jack...@att.blackberry.netabout:/mc/compose?to=jack...@att.blackberry.net jack...@att.blackberry.netabout:/mc/compose?to=jack...@att.blackberry.net wrote: Hi Everyone! I have been reading ,haven't posted in a while. I hope Spring time is helping everyone. I would like 2 know what tests - blood work etc your dr's order for you during the year. I am on baclofen ,topamax. Still with pain especially at night. as well as back pain and shrinking in right leg. Am wheelchair bound for most part with exception of toddler table walking (last few months) tm in july 07. I read most know where t this or t that. I didn't know that until I started this group as I was never told the area of where my tm hit. I do know I have to take responsibility for me. What do I need to ask for. In my area and now medical coverage I am limited. I have learned a lot from you guys. Never realized that tm causes clinical depression. Anyone know or have experience with hpt5. Or natural supplements for depression. I was on effexor then prozac now nothing. Feeling DOWN and don't want to spiral down again just as spring is here. May have rambled a bit - thanks 4 being out there!! Sent via BlackBerry by ATT
Re: [TMIC] Re: getting worse
Sorry guys - looks like I missed this post. Dalton, I am so happy for you. So glad you are responding to the steroids. Keep us posted on how you're doing. Linda in Eagle, Id - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: rn11...@yahoo.commailto:rn11...@yahoo.com Cc: tmicmailto:tmic-list@eskimo.com Sent: Sunday, April 10, 2011 5:38 PM Subject: [TMIC] Re: getting worse Hey folks! I got my legs back and most of my coordination! from 1 gram steroid infusion. I will take four days of it and will be ok until the next attack, which hopefully won't be for a while. D. Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: rn11...@yahoo.commailto:rn11...@yahoo.com rn11...@yahoo.commailto:rn11...@yahoo.com Date: Sun, 10 Apr 2011 07:07:33 -0700 (PDT) To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com Cc: tmic tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re:getting worse Dalton, You are in my prayers. Just don't go on working if you really aren't up to it.Getting on disability and back to the USA where you can find a good neurologist might be an option. Cheryl in sunny Easthampton,MA --- On Sat, 4/9/11, Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com Subject: Re: [TMIC] Asking group experience To: jack...@att.blackberry.netmailto:jack...@att.blackberry.net jack...@att.blackberry.netmailto:jack...@att.blackberry.net, TMIC tmic-list@eskimo.commailto:tmic-list@eskimo.com Date: Saturday, April 9, 2011, 11:08 PM Friends; I seem to be getting worse quite quickly. pain across the back and all the skin iom my arms and legs up to just above the elbows and knees. I am also having whole-body contractions, first on the back, then on the front. Unfortunately, the neuro service here is a joke. I could use some prayers, really. I hope I can still work, but if things continue this way it will be impossible. The pain and weakness is just too tough to overcome. Actually, I am now thinking I must shift to a wheelchair, one where I can use my feet to mve around in, since my arms are now too weak for much more than typing and dresing. Thanks, for keeping me in your tooughts and prayers, Dalton Dalton Garis Abu Dhabi, UAE Mobile: +971-55-800-6619 On 4/8/11 9:35 PM, jack...@att.blackberry.netabout:/mc/compose?to=jack...@att.blackberry.net jack...@att.blackberry.netabout:/mc/compose?to=jack...@att.blackberry.net wrote: Hi Everyone! I have been reading ,haven't posted in a while. I hope Spring time is helping everyone. I would like 2 know what tests - blood work etc your dr's order for you during the year. I am on baclofen ,topamax. Still with pain especially at night. as well as back pain and shrinking in right leg. Am wheelchair bound for most part with exception of toddler table walking (last few months) tm in july 07. I read most know where t this or t that. I didn't know that until I started this group as I was never told the area of where my tm hit. I do know I have to take responsibility for me. What do I need to ask for. In my area and now medical coverage I am limited. I have learned a lot from you guys. Never realized that tm causes clinical depression. Anyone know or have experience with hpt5. Or natural supplements for depression. I was on effexor then prozac now nothing. Feeling DOWN and don't want to spiral down again just as spring is here. May have rambled a bit - thanks 4 being out there!! Sent via BlackBerry by ATT
Re: [TMIC] OT Epsilon Email Breach: What You Should Know - ABC News
John, thanks so much for posting this. You're right, knowledge is power. Linda C (Eagle,ID) - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, April 05, 2011 2:28 AM Subject: [TMIC] OT Epsilon Email Breach: What You Should Know - ABC News i remember seeing on the news that a bunch of companies were hacked in the past few weeks,here is something that we may want to consider when we get off the wall mail in our inboxes. perhaps we wont be so alarmed. knowledge is strength. http://abcnews.go.com/Technology/epsilon-email-breach/story?id=13291589http://abcnews.go.com/Technology/epsilon-email-breach/story?id=13291589
Re: [TMIC] Connected?
I am also very concerned about you Dalton as I read through your posts. Is there a possibility that your doctor would consider consulting with Dr. Greenberg at UT Southwestern Med Center, Dallas, Texas? I went to the Symposium Sept 24-26, 2010 held in Dallas. Our very kind and generous Jim Lubin has placed the Symposium videos on the TMA site. Have you had a chance to watch any of them? I'm just trying to find a way here to get you some much needed help. Maybe the 2 doctors could brainstorm by email/phone or whatever, and possibly agree to try another approach that would work better for you. I'm not even sure if I've explained that very well, but it certainly could not hurt if your doctor would be willing to consult with one of our specialists here in the states. There are many of our TM friends who are doing this now or have done it in the past. Your TM symptoms/residuals/relapses - not sure what to call them - are unique. You need additional help and I'm sure your doctor is frustrated. I hope at least some of this makes sense. I wish you the very best Dalton, Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: em...@telephonelady.commailto:em...@telephonelady.com ; Gary Thomasmailto:gbthomas8...@sbcglobal.net ; Janice Nicholsmailto:jan...@centurytel.net ; jack...@att.blackberry.netmailto:jack...@att.blackberry.net ; TMICmailto:tmic-list@eskimo.com Sent: Wednesday, March 09, 2011 11:19 AM Subject: Re: [TMIC] Connected? Also, The MRIs didn't find any brain lesions. Maybe in my case, due to the earlier back injuries, I am just super sensitive to any exertion at all as the bloodstream to the spinal cord is reduced? Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: em...@telephonelady.commailto:em...@telephonelady.com Reply-To: em...@telephonelady.commailto:em...@telephonelady.com Date: Wed, 9 Mar 2011 10:57:41 + To: Gary Thomas gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net, Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net, jack...@att.blackberry.netmailto:jack...@att.blackberry.net, TMIC tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Connected? My husband was originally diagnosed with tm but because he kept getting relapses they began looking into other causes of symptoms. It was later discovered that he had lyphphoma which caused a leasion (sp) on his spinal column which looked like tm. He is the only known person where lymphoma penetrated the myelin. After radiation and chemo the leasion is gone but the spinal cord damage remains. Dalton recurring incidents are not typical of tm. I hope they are checking you for MS or other possibilities regarding your very unusual symptoms. Emily Sent from my Verizon Wireless BlackBerry -- From: Gary Thomas gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net Date: Tue, 8 Mar 2011 23:25:14 -0500 To: Dalton Garismalugss...@gmail.commailto:malugss...@gmail.com; Janice Nicholsjan...@centurytel.netmailto:jan...@centurytel.net; jack...@att.blackberry.netmailto:jack...@att.blackberry.net; TMICtmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Connected? Dalton, Maybe I'm missing something, but what exactly are these attacks you describe? I don't understand what your neurologist calls cycling as far as worsening of TM symptoms. I have always understood, and have read somewhere, perhaps on this list or the TM Journal, that we have the onset of TM experiences (lesions on the spinal cord) which for most of of us is a one-time occurrence with possibly lasting symptoms, AND we have times of exacerbation brought on by physical or mental overexertion, maybe an illness such as even a cold and so on (I have worse banding from sitting too long or standing too long) which are not caused by further damage to the spinal cord but worsening of symptoms at least temporarily. So, again, Dalton, I am confused as to your attacks--could it be another lesion, could you be experiencing MS? I hope not, but just wonder what is happening--and forgive me for my curiosity. Gary in Michigan - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Janice Nicholsmailto:jan...@centurytel.net ; jack...@att.blackberry.netmailto:jack...@att.blackberry.net ; TMICmailto:tmic-list@eskimo.com Sent: Tuesday, March 08, 2011 1:58 PM Subject: Re: [TMIC] Connected? Hi; Thanks for your support. I got another attack today. It started slowly with pain in my feet and hands yesterday, which became weaker by the hour. Then it slowly worked itself up the legs and arms today, weakening me as it went. Then it hit my
Re: [TMIC] March Birthdays
HAPPY BIRTHDAY TO ALL OF YOU MARCH KIDS! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Monday, February 28, 2011 10:04 PM Subject: [TMIC] March Birthdays Happy Birthday to the March kids! And we remember long time TMIC member Mike Hammond, whose birthday was 3/8, who passed away not too long ago. 3-3 Marsha Scholes (marshab...@comcast.netmailto:marshab...@comcast.net) 03.05. Bettie Imus (bettie5...@aol.commailto:bettie5...@aol.com) 3-7 Sue Mattis (bobsue6...@adelphia.netmailto:bobsue6...@adelphia.net) 3-15 Sandra Melville (luth...@comcast.netmailto:luth...@comcast.net) 3-17 Joy S. (joyst...@aol.commailto:joyst...@aol.com) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod (celr...@aol.commailto:celr...@aol.com) 3/30 Gary (gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net) 3-31 Jan H (jmh1...@sbcglobal.netmailto:jmh1...@sbcglobal.net) Emoticon74.gifEmoticon30.gif
Re: [TMIC] OT
Thank you Jane. HAPPY VALENTINES DAY to you as well! Linda C (Eagle, ID) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: tmic-l...@eskimo.netmailto:tmic-l...@eskimo.net Sent: Monday, February 14, 2011 7:46 AM Subject: [TMIC] OT SENDING HAPPY VALENTINE GREETINGS TO ALL ON THE LIST JANE/SPLENDORA TX
Re: [TMIC] Catching up
Aww, Dalton, I'm so sorry to hear about another attack. Don't worry about doing anything; just take care of yourself. It helps to know that you're keeping in contact by reading all the posts. I've done the same thing. Please allow yourself to rest so we can see your smiling face on here again soon. Take care, Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: john snodgrassmailto:jcs...@yahoo.com ; transverse myelitismailto:tmic-list@eskimo.com Sent: Sunday, February 13, 2011 9:37 AM Subject: Re: [TMIC] Catching up Hey, folks; I haven't writing because I got another attack and have been unable to do much. But I have been reading all the posts just the same. Thanks, Dalton
Re: [TMIC] February Birthdays
HAPPY BIRTHDAY ALL! P.S. love the birthday quotes - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, February 01, 2011 5:44 PM Subject: RE: [TMIC] February Birthdays yeah happy brethday yall. that second one applies to me: Inside every older person is a younger person wondering what the hell happened ~ Cora Harvey Armstrong --- On Tue, 2/1/11, Carol E snow121...@hotmail.commailto:snow121...@hotmail.com wrote: From: Carol E snow121...@hotmail.commailto:snow121...@hotmail.com Subject: RE: [TMIC] February Birthdays To: barbara...@gmail.com, tmic-list@eskimo.com, jharpe...@aol.com Date: Tuesday, February 1, 2011, 7:38 PM Happy Birthday to all you February kids. My favorite birthday quotes: You know you are getting old when the candles cost more than the cake ~ Bob Hopehttp://www.buzzle.com/articles/bob-hope/ Inside every older person is a younger person wondering what the hell happened ~ Cora Harvey Armstrong I moved on 1/1/11. A move date I am not likely to forget. Carol in Logansport, IN (formerly from Addison, IL) -- Date: Mon, 31 Jan 2011 23:52:25 -0500 From: barbara...@gmail.com To: tmic-list@eskimo.com; jharpe...@aol.com Subject: [TMIC] February Birthdays Happy Birthday to the February kids! Please send any additions or corrections to: 2-1 Jeanne Rushton (jrush...@columbiaenergyllc.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=jrush...@columbiaenergyllc.com) 2/2 Ursula (uma...@t-online.dehttp://us.mc658.mail.yahoo.com/mc/compose?to=uma...@t-online.de) 2/2 Lisa in TN (lsim...@aol.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=lsim...@aol.com) 2-5 Tita in Delaware (te...@flash.nethttp://us.mc658.mail.yahoo.com/mc/compose?to=te...@flash.net ) 2-6 Barbara Alma (balmat...@aol.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=babbsie1...@yahoo.com) 2-9 Frank (ftrascr...@aol.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=ftrascr...@aol.com) 2/11 Mary (mster...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=mster...@yahoo.com ) 2-11 Deb Casey (casey...@myway.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=casey...@myway.com) 2/15 Jill (jillybean60...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=jillybean60...@yahoo.com) 2-17 JOAN FINK (2-17 mafi...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=mafi...@yahoo.com) 2-20 Norma (dgti...@aol.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=dgti...@aol.com) 2/26 Patti - Michigan (pjv1...@chartermi.nethttp://us.mc658.mail.yahoo.com/mc/compose?to=pjv1...@chartermi.net) 2/27 Cindy (rdavi...@san.rr.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=rdavi...@san.rr.com) Emoticon30.gifEmoticon74.gif
Re: [TMIC] TM
Hi Emily - my left leg is also the one that has been the most effected by the lesions I had in my spinal cord. - Original Message - From: Emilymailto:em...@telephonelady.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, January 18, 2011 4:53 AM Subject: RE: [TMIC] TM My husband has a 1 lift inside of his shoe that was made especially for him due to the same problem..one leg shorter than the other. The orthotic is removable so he can put it in whatever shoe he wears. The one that is shorter is the one that has been effected by the spinal cord injury. -- From: L T CHERPESKI [mailto:cherp...@msn.com] Sent: Tuesday, January 18, 2011 12:20 AM To: tmic-list@eskimo.com; Janice Nichols Subject: Re: [TMIC] TM Janice, I'm not sure if I wrote about it, but when I started another round of physical therapy several months ago, the therapist found that my left leg was one inch shorter than the right. And that really doesn't surprise me when I think about walking/wobbling with a cane for years. Our gait is slightly off The therapist worked on me from top of my neck to my toes for almost 2 hours, which didn't feel very good, but did I ever feel like a new person when she was done and I stood up!! Good luck, hope it all goes well and you find the relief you're looking for. Linda C (Eagle, ID) - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, January 17, 2011 9:14 PM Subject: [TMIC] TM Dear Friends, Some months ago, one of you wrote in asking if anyone had a problem with maybe 1 leg being shorter than the other since having TM.At the time, I had not heard of that being a possibility. I now know what whoever was talking about.My legs are still the same length and my spine is straight, but I am walking now as though one leg is slightly longer than the other. It is caused by the myelitis and they tell me with therapy, they can fix it - I hope.So, to whoever wrote in asking about that, I hope they got help for it.Something happens in the upper back hip area. Anyway, I am working on fixing this and hope no one else has this problem. Janice
Re: [TMIC] TM
I was scheduled to start PT that day, but therapist wouldn't let me start before she examined me because she saw that my gait was really off ~ She worked on me for about 2 hours, and then I started my aqua therapy and did that for about 6 months. That helped me a lot! Long drive though, so I'm looking for something closer to home. And as of today my legs are still the same length. (short! because I'm a very tall 5' 2 : ) Are you now or have you been walking with a cane? When I'm tired and have little energy, I have no business being any place except my house because I know that's really hard on my entire body. True for all or most of us, I'm sure. Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: L T CHERPESKImailto:cherp...@msn.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, January 17, 2011 10:25 PM Subject: Re: [TMIC] TM You only went 1 time to the therapist? I will be going many times to get me to walk straight again. You are right about our gait causing a lot of the problem.They seem pretty positive they can do it though. They felt it was a bunching up in my hip that was the problem. Hope we can fix it. Janice From: L T CHERPESKImailto:cherp...@msn.com Sent: Monday, January 17, 2011 11:20 PM To: tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Janice Nicholsmailto:jan...@centurytel.net Subject: Re: [TMIC] TM Janice, I'm not sure if I wrote about it, but when I started another round of physical therapy several months ago, the therapist found that my left leg was one inch shorter than the right. And that really doesn't surprise me when I think about walking/wobbling with a cane for years. Our gait is slightly off The therapist worked on me from top of my neck to my toes for almost 2 hours, which didn't feel very good, but did I ever feel like a new person when she was done and I stood up!! Good luck, hope it all goes well and you find the relief you're looking for. Linda C (Eagle, ID) - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, January 17, 2011 9:14 PM Subject: [TMIC] TM Dear Friends, Some months ago, one of you wrote in asking if anyone had a problem with maybe 1 leg being shorter than the other since having TM.At the time, I had not heard of that being a possibility. I now know what whoever was talking about.My legs are still the same length and my spine is straight, but I am walking now as though one leg is slightly longer than the other. It is caused by the myelitis and they tell me with therapy, they can fix it - I hope.So, to whoever wrote in asking about that, I hope they got help for it.Something happens in the upper back hip area. Anyway, I am working on fixing this and hope no one else has this problem. Janice
Re: [TMIC] grandson
It worked! Hey Grandpa, the new little grandbaby is precious. And his sister is a pretty little girl! A lot of love there! Congratulations! Linda - Original Message - From: wim from hollandmailto:wim_from_holl...@hotmail.com To: bernie.butc...@honeywell.commailto:bernie.butc...@honeywell.com ; jan...@centurytel.netmailto:jan...@centurytel.net ; TMICmailto:tmic-list@eskimo.com Sent: Sunday, January 16, 2011 4:42 PM Subject: RE: [TMIC] grandson Meet my new born grandson Sybren Nils, also with his sister Tess Sophie. Born on januari 2e. http://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=playresid=B5F2D6495DF39B69!124type=1Bpub=SDX.PhotosBsrc=Photomailparid=B5F2D6495DF39B69%21123authkey=2q0HLVv2rdU%24 [TMIC] grandson http://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=browseresid=B5F2D6495DF39B69!123type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=2q0HLVv2rdU%24Diavoorstelling weergevenhttp://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=playresid=B5F2D6495DF39B69!123type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=2q0HLVv2rdU%24 Alles downloadenhttp://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=downloadaszipresid=B5F2D6495DF39B69!123type=6Bpub=SDX.PhotosBsrc=Photomailauthkey=2q0HLVv2rdU%24 Meer foto's toevoegenhttp://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=uploadresid=B5F2D6495DF39B69!123type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=2q0HLVv2rdU%24 Dit online album bevat 2 foto's en blijft beschikbaar op SkyDrive tot 16-04-2011. http://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=playresid=B5F2D6495DF39B69!125type=1Bpub=SDX.PhotosBsrc=Photomailparid=B5F2D6495DF39B69%21123authkey=2q0HLVv2rdU%24 Deel zelf diavoorstellingen met Hotmailhttp://g.live.com/9wc9nl-nl/f_photos -- Subject: RE: [TMIC] grandson Date: Sun, 16 Jan 2011 17:45:21 -0500 From: bernie.butc...@honeywell.commailto:bernie.butc...@honeywell.com To: jan...@centurytel.netmailto:jan...@centurytel.net; wim_from_holl...@hotmail.commailto:wim_from_holl...@hotmail.com; tmic-list@eskimo.com While we are on the OT topic of grandchildren, Meet Colin Bernard born 8/19/10! Bernie -- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Saturday, January 15, 2011 9:16 PM To: wim from holland; TMIC Subject: Re: [TMIC] grandson Would love to see them. Hope you find a way to do it. Janice From: wim from hollandmailto:wim_from_holl...@hotmail.com Sent: Saturday, January 15, 2011 6:38 PM To: TMICmailto:tmic-list@eskimo.com Subject: [TMIC] grandson Tried to send a mail with pictures of my new born grandson. But it did not came true.
Re: [TMIC] I need help with member contacts. Will anybody help me?
Yes, this is the same message I get. And no answer on the phone. Has anybody been able to reach Jude?? This is very difficult ~~~ Linda (Eagle, Id) - Original Message - From: Lori Biehlermailto:lbieh...@earthlink.net To: TMICmailto:tmic-list@eskimo.com Sent: Saturday, January 08, 2011 6:49 AM Subject: Fw: [TMIC] I need help with member contacts. Will anybody help me? This is the response I get when I email Jude, does anyone know why? -Original Message- From: heyjude48...@aol.commailto:heyjude48...@aol.com Sent: Saturday, January 08, 2011 8:47 AM To: lbieh...@earthlink.netmailto:lbieh...@earthlink.net Subject: Re: [TMIC] I need help with member contacts. Will anybody help me? Hello, I am unavailable to read your message at this time.
Re: [TMIC] tmic list
Based on past experience with this same type of thing a while back, I think the only way this will be resolved is if we can actually get Dave (her husband) on the phone! Very very difficult to do, but I think he could take care of this for Jude. Linda (Eagle, Id) - Original Message - From: rn11...@yahoo.commailto:rn11...@yahoo.com To: tmicmailto:tmic-list@eskimo.com Sent: Saturday, January 08, 2011 4:41 PM Subject: [TMIC] tmic list Debbie Nord Capen told me that the tmic doesn't have a members list,it's the TMA that has a directory that lists members world wide. I know I had one,but my daughter and son in law are redoing my house and mine apparently got tossed out. Wasn't there someone here who visited with Jude? Maybe they could reach her personally. Cheryl
Re: [TMIC] Cindy McLeroy
Debbie, Thanks very much for Cindy's address info. Sending cards is a great idea. I know it would cheer me up. Will get one off to her today and keep her in my thoughts and prayers. Linda C (Eagle, Id) - Original Message - From: Deborah Nord Capenmailto:dca...@earthlink.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, January 06, 2011 9:36 AM Subject: [TMIC] Cindy McLeroy Hi, I just got off the phone with Cindy. She is in better spirits now that they have her infection under control, but is not out of the woods yet. She could use a lot of thoughts and prayers and even a card or two. I am sure she would love to hear from her friends on the list, so here is her address: Cindy McLeroy Fullerton Acute Care Room 231 No. Harbor Fullerton, CA 92835 She is in isolation and has to lie flat on her back or on one of her sides for the next two weeks (at least). She has no internet, no phone in her room (only her cell), so if we could cheer her up with some cards to look at, that would be so nice. Thanks! Debbie dca...@earthlink.net
Re: [TMIC] Careful OT
Oh my gosh Gunny. First of all, very thankful to hear that you got to the Hospital in time! I'm sure it was no picnic having a stent put in your clogged artery. Right Right and Right on each of the areas of our lives that need to be cleaned up, if that's what we're guilty of. I have to ask - had you been having any shortness of breath or chest pain - or any symptoms at all? I'm just so glad you're okay. You've got another artery to get taken care of, so please take it easy and follow docs orders. You're a great guy who is always willing to help us all and we love you lots. Take care! hugs, Linda (Eagle, ID) - Original Message - From: bgunny7...@aol.commailto:bgunny7...@aol.com To: Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Thursday, January 06, 2011 2:09 PM Subject: [TMIC] Careful OT Monday night around 11:30 I had a horrendous Heart attack. Went to North Side Hospital by ambulance where they put a stent in on a 95% clogged artery. Gotta go back on the 28th for them to do an 80% clogged one. So, if you smoke, STOP. If you eat fatty foods, STOP. If your messin up your life, STOP. This ain't no game. Felt like mule kicked me in the chest.
Re: [TMIC] January Birthdays
HAPPY BIRTHDAY TO OUR JANUARY FRIENDS!! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com ; jharpe...@aol.commailto:jharpe...@aol.com Sent: Friday, December 31, 2010 11:41 PM Subject: [TMIC] January Birthdays Happy Birthday and Best wishes for the New Year! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 1- 7 Lauren (sugal...@adelphia.netmailto:sugal...@adelphia.net) 1/8 Nancy Williams (willj...@aol.commailto:willj...@aol.com) 1-8 Sandi (sam...@fidmail.commailto:sam...@fidmail.com) 1/9 Julienne (julesin...@aol.commailto:julesin...@aol.com) 1/13 Debi (brade...@hotmail.commailto:brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.commailto:jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nzmailto:k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.netmailto:xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.commailto:snow121...@hotmail.com 1/23 Grace (grace...@gmail.commailto:grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.commailto:w2sm...@aol.com) 1-28 Holly (r...@aol.commailto:r...@aol.com) 1-28 Sally (thenavigato...@aol.commailto:thenavigato...@aol.com) Emoticon74.gif
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
Joan, thank you for letting us know that Cindy is in the hospital. I'm saddened to hear that she is having such a rough time. She is in my thoughts and prayers daily. I will pray for total healing. Linda C (Eagle, Idaho) - Original Message - From: JOAN FINKmailto:mafi...@yahoo.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, December 26, 2010 10:35 PM Subject: [TMIC] FRIENDS OF CINDY MCLEROY Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
Re: [TMIC] Is anybody there? I;m trying to find someone who remembers meeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
Hello Dear Jude ~~ it's so good to hear from you. It's been a bit quiet here which sometimes happens around the holidays. Of course we all remember you Jude. We have some wonderful newer members so come back and get to know them. We love to hear from you. You are and have always been such an inspiration to all of us, and we miss you! I hope you'll post again and bring us up to date on how you're doing. ~~ Looking forward to hearing from you soon! love, Linda C - Original Message - From: Jude Hoopsmailto:heyjude48...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, December 21, 2010 2:44 AM Subject: [TMIC] Is anybody there? I;m trying to find someone who remembers meee
Re: [TMIC] Semper Fi OT
Thank you Gunny for sharing this Marine's beautiful Christmas Poem. (my face is sopping wet) A Big Thank You to all of the men and women who serve in the Armed Forces. May God Bless them and keep them safe. Semper Fi (Linda) - Original Message - From: bgunny7...@aol.commailto:bgunny7...@aol.com To: Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Tuesday, December 21, 2010 5:59 PM Subject: [TMIC] Semper Fi OT YouTube - Merry Christmas My Friend, A Marine's Christmas Poemhttp://www.youtube.com/watch?v=EaWEsNGye14feature=related
Re: [TMIC] Jude says HI!!
Thanks Akua - will do. Linda C - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, December 16, 2010 12:32 PM Subject: [TMIC] Jude says HI!! Jude asked that her friends email her. heyjude48...@aol.commailto:heyjude48...@aol.com She said it's hard for her to type and that she's lost her contact book with eveyone's addresses. Cheers, Akua in freezing southern finger lakes, NY paralyzed by TM 11/14/2005 --
Re: [TMIC] OT-Memorial Service
Jane, please know that you are in my thoughts and prayers. Linda (Eagle, Id) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Thursday, December 09, 2010 6:38 AM Subject: [TMIC] OT-Memorial Service Today we will have my daughter Pam's memorial service. I would like to thank you for all thought and prayers. It brings comfort to me knowing others are thinking of my family. I have five children and Pam was the middle child. My youngest son said now there is no middle. Three of the children are out of sorts with the others so we are just like any other stressed out normal dysfunctional family. Like John Lennon said:LIFE IS WHAT HAPPENS WHILE YOU ARE BUSY MAKING PLANS so live each day fully. I believe in GOD and Heaven and she will be watching for us. Pam is in a better place. See you in God's time. Jane Elrod/Splendora Tx
Re: [TMIC] December Birthdays
HAPPY BIRTHDAY TO ALL OF YOU DECEMBER KIDS!! - Original Message - From: Jan Hargrovemailto:jmh1...@sbcglobal.net To: tmic-l...@eskimo.netmailto:tmic-l...@eskimo.net Sent: Thursday, December 02, 2010 5:43 PM Subject: Fw: [TMIC] December Birthdays Happy Birthday December Babies!! Happy Birthday to the December kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com 12-2 Meghan (bluemeg...@hotmail.commailto:bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.commailto:tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.netmailto:jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.commailto:wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.commailto:ja...@rogers.com) 12-7 Patti in Wisconsin (patticoole...@gmail.commailto:patticoole...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.netmailto:jorlcummi...@earthlink.net) 12-10 Shirley from UK (shirley.up...@dsl.pipex.commailto:shirley.up...@dsl.pipex.com) 12-15 Alton Ryder(a-ry...@comcast.netmailto:a-ry...@comcast.net) 12-15 CarolAnn B.L. from South Carolina, USA (ladycame...@aol.commailto:ladycame...@aol.com) 12-18 Rod Jenke (rktje...@chariot.com.aumailto:rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@verizon.netmailto:r.c.pr...@verizon.net ) 12-25 Gilly (gilly...@y7mail.commailto:gilly...@y7mail.com) 12/31 Janet (j.d...@shaw.camailto:j.d...@shaw.ca) Emoticon74.gifEmoticon30.gif
Re: [TMIC] off topic
Jane, I am so very sorry for your loss. My heart just aches for you and your family, and I will keep all of you in my prayers. Thank you for sharing this with us - your TM Family. love and prayers, Linda (Eagle, Id) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Thursday, December 02, 2010 10:11 AM Subject: [TMIC] off topic Since you are all part of my cyber family I wanted to ask for prayer for my family and me. My daughter died yesterday. She was 41 and diabetic, on dialysis, poor health. Her daughter was with her and it was sudden. She didn't say anything just collapsed and that was it. She had been through s much all her life and now she is at rest with the Lord. Her name is Pamela Caldwell. No more needles and hospitals. Please forgive me if I offend anyone but I needed to talk. Jane/Splendora Tx
Re: [TMIC]
Hello Jude!! It's so good to hear from you - we have missed you and are always concerned when we don't hear from you. You've always been such an inspiration to all of us here in the group. Looking forward to seeing your posts once again. Welcome back. hugs, Linda -- Original Message - From: Jude Hoopsmailto:heyjude48...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, November 30, 2010 1:10 AM Subject: [TMIC] Hello Group, This is Judy Hoops (Jude) and it has been quite a while since I have written to the site. No reason why, except that maybe I needed a break from all of the talk of the “blusey” side of the disease. I try to maintain a positive attitude, but since the death of my best TM friend, Pam Montz, I needed a long break before I could once more become an active participant of the group like I used to be. For new members, I have had TM for somewhat more than eight years, can’t recall due to memory dysfunction, and other related symptoms of TM, for one being a difficulty in typing, where I used to be a whiz...maybe just a matter of continuing to do it on a regular basis. I am paralyzed from T3 (breast level with the use of my arms, Thank God.) I have horrible continuous pain from T3 on the Spinal Column to the tips of my toes. I am not able to walk, use a wheelchair to get around and spend a lot of time in bed just because of laziness. We have no children and do not have a large social group and no family to speak of. My husband wanted property so we moved out of our living area where we had resided forever, to a small, and I mean “small” village where we have 5 acres and a nice two story home, which we bought before I became ill. Now, the house makes no sense whatsoever and I am able to use only a small portion of it; my bedroom, which used to be the den, the kitchen/dining area and living room. I have spent so long in my bedroom that I have forgotten what the rest of the house looks like. It’s either that or the memory difficulties which I just two days ago began taking meds to, hopefully, reverse the dysfunction. OK, that’s all I can muster for my first time back. What’s going on with all of my old friends? Let me know. I love you all, Jude Anyway, I make use of the three rooms, but my husband does all of the cooking and eats in my room with me, and he takes care of all of the remaining household chores that I cannot do because of the constant intense pain I experience 24/7. I have pain meds, but hate to take them because they turn me into a “zombie” and it affects most of my “normal” human existence, as it is. Most of you know what I mean, the rest of you will catch on the longer you have TM and continue to read these excerpts.
Re: [TMIC] Happy Thanksgiving
What a great picture, Carol. Hope everyone had a wonderful Thanksgiving! - Original Message - From: Carol Emailto:snow121...@hotmail.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, November 25, 2010 9:26 AM Subject: [TMIC] Happy Thanksgiving Happy Thanksgiving to everyone. Carol in Addison Worrying does not empty tomorrow of its troubles; It empties today of its strengths. http://cid-d2b704177c815ce4.skydrive.live.com/redir.aspx?page=playresid=D2B704177C815CE4!167type=1Bpub=SDX.PhotosBsrc=Photomailparid=D2B704177C815CE4%21166authkey=*wYUH71B4EQ%24 Happy Thanksgiving http://cid-d2b704177c815ce4.skydrive.live.com/redir.aspx?page=browseresid=D2B704177C815CE4!166type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=*wYUH71B4EQ%24VIEW SLIDE SHOWhttp://cid-d2b704177c815ce4.skydrive.live.com/redir.aspx?page=playresid=D2B704177C815CE4!166type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=*wYUH71B4EQ%24 DOWNLOAD ALLhttp://cid-d2b704177c815ce4.skydrive.live.com/redir.aspx?page=downloadaszipresid=D2B704177C815CE4!166type=6Bpub=SDX.PhotosBsrc=Photomailauthkey=*wYUH71B4EQ%24 ADD MORE PHOTOShttp://cid-d2b704177c815ce4.skydrive.live.com/redir.aspx?page=uploadresid=D2B704177C815CE4!166type=5Bpub=SDX.PhotosBsrc=Photomailauthkey=*wYUH71B4EQ%24 This album has 1 photo and will be available on SkyDrive until 02/23/2011. Share your own slide shows with Hotmailhttp://g.live.com/9wc9en-us/f_photos
Re: [TMIC] Money
Oh Gunny, you are one funny guy!! My feminine intuition tells me you shouldn't be holdin your breath : ) HAPPY 39th BIRTHDAY!!! hugs, - Original Message - From: bgunny7...@aol.commailto:bgunny7...@aol.com To: Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Wednesday, November 24, 2010 9:59 AM Subject: [TMIC] Money Please don't send birthday cards tomorrow as it is my birthday. Please send cash or money order for my retirement fund. I'll hold my breath.
Re: [TMIC] Save the last dance
Gunny, thanks for sharing this. I loved the Drifters in the early 60's and still love their music. I listened to Save the last dance for me 3 times : ) Seemed like those days were far less complicated than today. Have a wonderful Thanksgiving AND a very Happy Birthday!!! ~~~ Linda C - Original Message - From: bgunny7...@aol.commailto:bgunny7...@aol.com To: Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Tuesday, November 16, 2010 3:22 PM Subject: [TMIC] Save the last dance Some of you may recall that I was the drummer with a group called the Edsels in the late 50's. We recorded a song called Rama Lama Ding Dong. Anyway, I was talkin with Harry Green (2nd Tenor), and Marshall Sewel (Bass) the other night, and we discussed George (Wydell) Jones who passed away two years ago. George was the lead singer with us. Marshall asked what was wrong with me using a cane, so I told him. He asked if that was anything like Polio and I told him the difference, and started complaining. He said, Ya know, Doc Had Polio. Doc who I asked. He said Doc Pomus who's real name was Jerome Felder. I never met him but Marshall had so he related this story. Doc contracted Polio as a child way back and in his early years, and was confined to a wheel chair. It seems he and his wife were at an awards ceremony where Doc was watching his wife dance with other guys that they of course knew, so Doc penned a song for her as he watched called Save the last dance for me. If anyone here is old enough, the Drifters recorded that back in the early 60's. Check out the Drifters on You Tube, click on save the last dance for me, and listen to the words. Just goes to show what you can do if you set your mind to it. He wrote a ton of other hits also, but this one especially hit home with me. Something I never knew before. I guess we never stop learning.
[TMIC] Anybody heard from Jude
Has anybody heard from Jude recently? I send her emails occasionally, but she has not responded in quite a while. I sent her a quick email today and wished her Happy Birthday as her Bday is Monday the 22nd. I sure hope she is well and enjoys her special day.Linda C
Re: [TMIC] Anybody heard from Jude
Just received an email from heyjude that I believe was automated - I am unable to read your email at this time Concerns me. Linda C - Original Message - From: L T CHERPESKImailto:cherp...@msn.com To: TMIC-LISTmailto:tmic-l...@eskimo.net Sent: Sunday, November 21, 2010 3:39 PM Subject: [TMIC] Anybody heard from Jude Has anybody heard from Jude recently? I send her emails occasionally, but she has not responded in quite a while. I sent her a quick email today and wished her Happy Birthday as her Bday is Monday the 22nd. I sure hope she is well and enjoys her special day.Linda C
Re: [TMIC] hello out there
This is what I have been told also. My lesions can still be seen but they are inactive (C4,5,6). I was told they are like a scar. However, I've seen posts where others have been told something different. Dalton, I still have all the residuals - burning, banding, weakness - it's just that some days are better than others. It's going on 9 years for me. Hope you get to feeling better! Linda in Eagle, ID - Original Message - From: Carol E To: malugss...@gmail.com ; tmic-list@eskimo.com Sent: Tuesday, November 09, 2010 9:04 PM Subject: RE: [TMIC] hello out there Hi Dalton and all, I was 1st diagnosed with TM June 2005. I had lesions from T7-T10. Every time I have new MRI's, I am always told that I have no new lesions, but they can still see the old ones which are inactive. So I would say the lesions do not go away, they are there like a scar. Carol in Addison, IL -- Date: Wed, 10 Nov 2010 07:50:59 +0400 Subject: Re: [TMIC] hello out there From: malugss...@gmail.com To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com Hey, Janice! We missed you. And I missed you. Glad to have you back with us. I have a question for everyone. A recent set of MRIs showed that my spine in the thoracic was clear with no lesions or swellings. It has been one year since the diagnosis for TM. Do these lesions clear up later on, or did somebody make a mistake somewhere? Because my everyday symptoms are still weakness and pain from fingers to just above the elbow, and from toes to above the knees with banding and burning in the torso and back. And if I exercise at all, the next day I am in for day-long spasms that leave me housebound and often unable to get around without assistance of my dear part-time maid and helper. Could someone get back to me on this? Thanks a lot. Dalton -- From: Janice Nichols jan...@centurytel.net Date: Tue, 9 Nov 2010 19:28:29 -0600 To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, tmic-list@eskimo.com Subject: Re: [TMIC] hello out there I do too, Dalton.You have a different set of problems that I have not heard in other TM'ers. Sure wish you would get you act together - scares me!!! Seriously, I hope that is the last day you will have like that. Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Sunday, November 07, 2010 10:23 AM To: Barbara Alma mailto:balmat...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] hello out there Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs, torso or speech. Every time I tried to talk I would cramp up. And Elvis was definitely being channeled in my body. Thank heavens I had the assistance of a very nice and strong maid who visits me once a week. It was her day to visit and she stayed with me and helped me to the bathroom and into and out of chairs. It was hard to sit down because I couldn’t make my body bend and I’d just slide off. But we got it under control. She had to help me drink and eat. I would grab the coffee cup handle and then could not make my hand let go. In the mean time I was so grateful for her assistance and that the Lord was taking care of me that I was also as high as a kite and proposing marriage to chairs and such. Today was the beginning of the work week here (Abu Dhabi) and I did alright. But the lecture kept going off on these tangents making it hard for my class to take useful notes. It was because my mental state was still flying around the cosmos. What is going on here? OK, I have TM in my upper spine; but what is this mental derangement stuff? I sure wish the drs could find out what is wrong with me. Dalton -- From: Barbara Alma balmat...@aol.com Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) To: tmic-list@eskimo.com Subject: [TMIC] hello out there Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] hello out there
Welcome back, Janice! Sounds like you had a wonderful time. (Sorry fellas, you might want to zone out for a minute) I'm glad your hot spells are better in the cold weather. Mine stopped immediately and never came back when TM became my special friend. One nice perk ~ Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: cherp...@msn.commailto:cherp...@msn.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com ; malugss...@gmail.commailto:malugss...@gmail.com ; Barbara Almamailto:balmat...@aol.com Sent: Tuesday, November 09, 2010 6:43 PM Subject: Re: [TMIC] hello out there Actually, I love the winter weather.At least then I don't have many hot spells. I can control that better in cold weather. Anyone else like that? Janice From: Barbara Almamailto:balmat...@aol.com Sent: Sunday, November 07, 2010 7:44 PM To: cherp...@msn.commailto:cherp...@msn.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com ; malugss...@gmail.commailto:malugss...@gmail.com Subject: Re: [TMIC] hello out there Hello all, Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks like some support was needed for you guys and maybe for some just lurking and not feeling up to writing in. Believe me, I sympathize with you and your pain. This time of year, when it's cold in many parts of the country and world, my symptoms get worse also. It seems that some of us have symptoms that are exacerbated by the cold and some by heat. The barometric pressure can affect many. Mine are much worse in the cold, and especially if it's rainy. My skin can be warm to the touch, but I can feel cold to the bone (as I say). I actually think that it may be the nerves that are cold and it is so hard to warm up again. It can be really painful. I get under the blankets and also wrap my legs in blankets, sometimes a heated one, and pray it goes away soon, but I can only do that when I'm at home. I try not to go out of the house unless absolutely necessary during this time of year, and I am sure that this is why the winter blues set in. This is something we have to be very careful of, because it can cause a lot of depression. Please be aware of this. This is another reason why it's important to keep in touch. Hugs, Barbara A in Auburn CA -Original Message- From: L T CHERPESKI cherp...@msn.com To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton Garis malugss...@gmail.com Sent: Sun, Nov 7, 2010 4:43 pm Subject: Re: [TMIC] hello out there Hi Dalton Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a trial period to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Barbara Almamailto:balmat...@aol.com Sent: Sunday, November 07, 2010 5:19 PM Subject: Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton From: L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com Date: Sun, 7 Nov 2010 16:33:40 -0700 To: tmic-list@eskimo.commailto:tmic-list@eskimo.com, Barbara Alma balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] hello out there Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me attack free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer
Re: [TMIC] hello out there
Re: [TMIC] hello out thereDalton, yes you still have all the symptoms. When I told you I did some research after you had such a horrible day, I was trying to find more information on brainstem lesions. Well I found a bunch of information, but I walked away with even more questions. Could you ask your doctor questions specifically about the brainstem lesions? Possibly these are causing most of your bad times? Linda - Original Message - From: Dalton Garis To: L T CHERPESKI ; tmic-list@eskimo.com ; Carol E Sent: Tuesday, November 09, 2010 9:19 PM Subject: Re: [TMIC] hello out there So, I have all the symptoms; But no lesions. OK, I'm stumped, except that the brainstem lesions are still there. Dalton -- From: L T CHERPESKI cherp...@msn.com Date: Tue, 9 Nov 2010 21:16:00 -0700 To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com, Carol E snow121...@hotmail.com Subject: Re: [TMIC] hello out there Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800 This is what I have been told also. My lesions can still be seen but they are inactive (C4,5,6). I was told they are like a scar. However, I've seen posts where others have been told something different. Dalton, I still have all the residuals - burning, banding, weakness - it's just that some days are better than others. It's going on 9 years for me. Hope you get to feeling better! Linda in Eagle, ID - Original Message - From: Carol E mailto:snow121...@hotmail.com To: malugss...@gmail.com ; tmic-list@eskimo.com Sent: Tuesday, November 09, 2010 9:04 PM Subject: RE: [TMIC] hello out there Hi Dalton and all, I was 1st diagnosed with TM June 2005. I had lesions from T7-T10. Every time I have new MRI's, I am always told that I have no new lesions, but they can still see the old ones which are inactive. So I would say the lesions do not go away, they are there like a scar. Carol in Addison, IL Date: Wed, 10 Nov 2010 07:50:59 +0400 Subject: Re: [TMIC] hello out there From: malugss...@gmail.com To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com Hey, Janice! We missed you. And I missed you. Glad to have you back with us. I have a question for everyone. A recent set of MRIs showed that my spine in the thoracic was clear with no lesions or swellings. It has been one year since the diagnosis for TM. Do these lesions clear up later on, or did somebody make a mistake somewhere? Because my everyday symptoms are still weakness and pain from fingers to just above the elbow, and from toes to above the knees with banding and burning in the torso and back. And if I exercise at all, the next day I am in for day-long spasms that leave me housebound and often unable to get around without assistance of my dear part-time maid and helper. Could someone get back to me on this? Thanks a lot. Dalton From: Janice Nichols jan...@centurytel.net http://jan...@centurytel.net Date: Tue, 9 Nov 2010 19:28:29 -0600 To: Dalton Garis malugss...@gmail.com http://malugss...@gmail.com , Barbara Alma balmat...@aol.com http://balmat...@aol.com , tmic-list@eskimo.com http://tmic-list@eskimo.com Subject: Re: [TMIC] hello out there I do too, Dalton. You have a different set of problems that I have not heard in other TM'ers. Sure wish you would get you act together - scares me!!! Seriously, I hope that is the last day you will have like that. Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Sunday, November 07, 2010 10:23 AM To: Barbara Alma mailto:balmat...@aol.com ; tmic-list@eskimo.com http://tmic-list@eskimo.com Subject: Re: [TMIC] hello out there Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs, torso or speech. Every time I tried to talk I would cramp up. And Elvis was definitely being channeled in my body. Thank heavens I had the assistance of a very nice and strong maid who visits me once a week. It was her day to visit and she stayed with me and helped me to the bathroom and into and out of chairs. It was hard to sit down because I couldn't make my body bend and I'd just slide off. But we got it under control. She had to help me drink and eat. I would grab the coffee cup handle and then could not make my hand let go. In the mean time I was so grateful for her assistance and that the Lord was taking care of me that I was also as high as a kite
Re: [TMIC] hello out there
Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me attack free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer~ Linda in Eagle, ID - Original Message - From: Barbara Almamailto:balmat...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, November 06, 2010 9:48 PM Subject: [TMIC] hello out there Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] hello out there
Re: [TMIC] hello out thereHi Dalton Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a trial period to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Barbara Almamailto:balmat...@aol.com Sent: Sunday, November 07, 2010 5:19 PM Subject: Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton -- From: L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com Date: Sun, 7 Nov 2010 16:33:40 -0700 To: tmic-list@eskimo.commailto:tmic-list@eskimo.com, Barbara Alma balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] hello out there Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me attack free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer~ Linda in Eagle, ID - Original Message - From: Barbara Alma mailto:balmat...@aol.commailto:balmat...@aol.com To: tmic-list@eskimo.comabout:tmic-list@eskimo.com Sent: Saturday, November 06, 2010 9:48 PM Subject: [TMIC] hello out there Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] hello out there
John - glad to hear your pain level is a little better. I had to chuckle - I'm just going to think positive and say no jinxing (is that even a word?) Be well Linda - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Sunday, November 07, 2010 2:59 AM Subject: Re: [TMIC] hello out there I would say the pain is not as intense as it has been but am afraid i will jinx myself! --- On Sun, 11/7/10, Barbara Alma balmat...@aol.commailto:balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.commailto:balmat...@aol.com Subject: [TMIC] hello out there To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Date: Sunday, November 7, 2010, 12:48 AM Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] hello out there
Our bodies really don't care for that cold weather. I hope when you warm up and are rested you'll feel much better. We haven't had any cold weather yet - and am Not looking forward to it. Take care of yourself Linda Original Message - From: kimharrison...@comcast.netmailto:kimharrison...@comcast.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, November 07, 2010 1:09 PM Subject: Re: [TMIC] hello out there was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled while someone pushed) well except for down hill then gravity took over.) The extreme cold has me hurting today but once i rest and and warm back up all should be good Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] November Birthdays
Birthday Wishes to all of our November Friends!! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Sunday, October 31, 2010 9:34 PM Subject: [TMIC] November Birthdays Happy Birthday to the November kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 11-01 Ella (elbanks...@aol.commailto:elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.commailto:jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.commailto:gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.netmailto:mag...@telus.net) 11-8 Diane (mon...@sympatico.camailto:mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.netmailto:chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.netmailto:wolft...@optonline.net) 11-17 Becky opi...@bellsouth.netmailto:opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.netmailto:dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.commailto:cos...@yahoo.com) 11-21 Pearl Bernocchi (bernoc...@aol.commailto:bernoc...@aol.com) 11/22 Judy Hoops (heyjude48...@aol.commailto:heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.commailto:bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.commailto:rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.netmailto:fla...@webtv.net)
Re: [TMIC] quiet
it has been quiet. John, sorry to hear about this. I agree with Emily about seeing a physiatrist - this could possibly prolong the retirement - it's never easy when it's not our idea. went through that myself. On a more positive note, I have been back in PT this last year - this time aqua therapy. what a change! have you tried it yet? Linda - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Saturday, October 23, 2010 4:51 PM Subject: RE: [TMIC] quiet might check on that. have to see how much i have to pay out of pocket to see a physisisiatrist. just saying that makes me dizzy~~~¸åé€ --- On Sat, 10/23/10, Emily em...@telephonelady.commailto:em...@telephonelady.com wrote: From: Emily em...@telephonelady.commailto:em...@telephonelady.com Subject: RE: [TMIC] quiet To: 'john snodgrass' jcs...@yahoo.commailto:jcs...@yahoo.com Date: Saturday, October 23, 2010, 5:02 PM Sorry to hear of your problems!! Before you quit...why don't you see a physiatrist and see if change in medications could help you function better? -Original Message- From: john snodgrass [mailto:jcs...@yahoo.com] Sent: Saturday, October 23, 2010 4:44 PM To: transverse myelitis Subject: [TMIC] quiet sure has been quiet in the group. I didn't work yesterday because of this deal and looks more and more like I'm going to have to quit alltogether. shouldnt have worked this long..unsafe! sure is disgrunteling!
Re: [TMIC] visit to Dr
Janice I'm so sorry to hear this. What's going on? hugs, Linda C - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: Jeron Rampersadmailto:rumc...@hotmail.com ; jcs...@yahoo.commailto:jcs...@yahoo.com ; Transverse Myelytismailto:tmic-list@eskimo.com Sent: Sunday, October 17, 2010 3:12 PM Subject: Re: [TMIC] visit to Dr Well, I am having a bad, bad day today and am not smiling. Janice From: Jeron Rampersadmailto:rumc...@hotmail.com Sent: Wednesday, October 13, 2010 8:50 PM To: jcs...@yahoo.commailto:jcs...@yahoo.com ; Transverse Myelytismailto:tmic-list@eskimo.com Subject: RE: [TMIC] visit to Dr Same story here, but this it was at my dentist's office. The dental assistant needed an update on my medical history and I asked, how long do you have? By the time I was through she was in tears. I felt really bad for her after, but it didn't end there. I had to list all the meds I'm on.spell the names of each drug then say what I take them for. By the time my dentist saw me, she was only too happy to say, well on a good note, you have really nice teeth! lol! Thank God I can still smile about our little friend called the TM monster. Jeron -- Date: Wed, 13 Oct 2010 17:28:52 -0700 From: jcs...@yahoo.com Subject: Re: [TMIC] visit to Dr To: tmic-list@eskimo.com well,,I kinda had to answer that one on the silly questioneer they always make me fill out. like doing a history everytime i go in there --- On Wed, 10/13/10, kimharrison...@comcast.net kimharrison...@comcast.net wrote: From: kimharrison...@comcast.net kimharrison...@comcast.net Subject: Re: [TMIC] visit to Dr To: tmic-list@eskimo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, October 13, 2010, 6:58 PM Oh My Gosh... sounds like my $50.00 bi yearly visit to the Nero... only difference is mikne ask how the poop and pee is going... LOL wow - Original Message - From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Wednesday, October 13, 2010 6:21:37 PM Subject: [TMIC] visit to Dr seen neurologist today. asked how i was I said in pain. he said im sorry upped the baclofen dosage. banged around with the nerve finder hammer. the end.
Re: [TMIC] Mike Hammond
Debbie - thank you so much for posting this. The article really touched me. I knew Mike was a wonderful man, but I did not know of his many accomplishments in life. Mike and I had emailed a number of times, and we discovered that we lived and worked not far from each other in Wash state for many years (before I moved to Idaho 4 yrs ago). I hope his wife Jill and the rest of the family are doing well. He touched many lives. Linda C - Original Message - From: Deborah Nord Capenmailto:dca...@earthlink.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, October 10, 2010 2:26 PM Subject: [TMIC] Mike Hammond I saw this great article about Mike Hammond who passed away recently, and who had been an active member on this list. http://www.heraldnet.com/article/20101010/NEWS01/710109909http://www.heraldnet.com/article/20101010/NEWS01/710109909 He was such a nice guy. I met him first at the Seattle TMA Symposium in 1999. Take care, Debbie dca...@earthlink.netmailto:dca...@earthlink.net
Re: [TMIC] spam emails - identity and content
Barbara, I think you're totally correct here. This seems to go in streaks for me, and they are always from email addresses on this site. This last batch has been worse than most. I've been getting 6 or 8 each day, but today I've only received one. So maybe this will be the end of it for a while at least. It's a huge pain Linda in Eagle, ID - Original Message - From: Barbara Almamailto:balmat...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, October 11, 2010 6:15 PM Subject: Fwd: [TMIC] spam emails - identity and content No Cheryl, This is totally hacking. We got the same type of message from different people and my husband's cousin would have never been sent if that were the case. This has nothing to do with trying to save us money. It has to do with a site getting access to someone's address list and spamming it. Pure and simple. Hugs, Barbara A in Auburn CA -Original Message- From: rn11...@yahoo.commailto:rn11...@yahoo.com rn11...@yahoo.commailto:rn11...@yahoo.com To: Barbara Alma balmat...@aol.commailto:balmat...@aol.com Sent: Mon, Oct 11, 2010 4:50 pm Subject: Re: [TMIC] spam emails - identity and content Maybe they're just trying to save people money on meds? It wouldn't do me any good;apparently to get meds from Canada,you need a script from a Canadian doc,and you have to go there the first time to see the doc. I can barely make it riding in a car for an hour! Cheryl --- On Mon, 10/11/10, Barbara Alma balmat...@aol.commailto:balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] spam emails - identity and content To: rn11...@yahoo.commailto:rn11...@yahoo.com, tmic-list@eskimo.commailto:tmic-list@eskimo.com Date: Monday, October 11, 2010, 6:47 PM The ones I got were from pkeene and celrods. I knew these names as legit, so opened the first one from each of them. These are the same as I got from my other email account and I think were from a Canadian pharmacy. I saw prices from Viagra, etc. Hugs, Barbara A in Auburn CA -Original Message- From: rn11...@yahoo.commailto:rn11...@yahoo.com rn11...@yahoo.commailto:rn11...@yahoo.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Mon, Oct 11, 2010 12:59 pm Subject: [TMIC] spam emails Has anyone else been receiving spam emails from me? When? What were they? I'm upset thinking that somehow I've passed along spam. Cheryl Cheryl, I wonder if someone has hacked into your account. I have been getting spam e-mails from you both personally and through TMIC. Barbara H. http://barbara.wordpress.comhttp://barbara.wordpress.com/
Re: [TMIC] Symposium
Re: [TMIC] SymposiumDalton, this is such good news that the seizures are now few and far between. That's wonderful. I'm sorry that when you do have one it is so bad. When they last a day, it seems only natural that you would be weak for many days to follow. That's a lot for your body to go through. Hang in there, Dalton and remember we're all in this together. take care, Linda in Eagle, ID - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Todd Tarnomailto:toddtm2...@sbcglobal.net ; TMICmailto:tmic-list@eskimo.com Sent: Monday, October 11, 2010 9:57 PM Subject: Re: [TMIC] Symposium I will, thanks; I am happy to report that the seizures have become few and far between, but when they come they usually last a day and take several days to recover from. I've gone 17 days without a seizure of any kind, just the usual muscle spasms that make control difficult sometimes. I want to thank you all for getting me through some scary times. I'm not saying they're over-this is out of my control, but you all have really helped me as nothing else has. Dalton -- From: Todd Tarno toddtm2...@sbcglobal.netabout:toddtm2...@sbcglobal.net Date: Mon, 11 Oct 2010 12:10:30 -0700 (PDT) To: TMIC tmic-list@eskimo.comabout:tmic-list@eskimo.com Cc: Dalton Garis malugss...@gmail.comabout:malugss...@gmail.com Subject: Fw: RE: [TMIC] Symposium The one thing that Linda I thought about, was Dalton's seizures and why. We know there will be more on this subject once the video is downloaded. That people with ADEM can have a lot of seizures. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. http://www.myelitis.org/adem.htmhttp://www.myelitis.org/adem.htm Please check into this Dalton, hope it's some help, Todd in CC, TX --- On Mon, 10/11/10, Deborah Nord Capen dca...@earthlink.netabout:dca...@earthlink.net wrote: From: Deborah Nord Capen dca...@earthlink.netabout:dca...@earthlink.net Subject: RE: [TMIC] Symposium To: 'Regina Rummel' regina...@sbcglobal.netabout:regina...@sbcglobal.net, tmic-list@eskimo.comabout:tmic-list@eskimo.com Date: Monday, October 11, 2010, 12:49 PM Hi Regina, The symposium was in Dallas, and about 150 TM'ers and their caregivers attended, which made it a success. I met Linda from Idaho there, Todd Tarno and Cora were there. Those were the only people that I recognized from the tmic list. It will take a few weeks for the videographers to edit the talks, but Jim will be posting them online at the TMA website as soon as they are available. What was special about this one was that about a half dozen kids with TM and their parents attended, and the kids all made fast friendships, and given lots to do by our pediatric nurse, Janet Dean, who is from Kennedy Krieger in Baltimore. It is really hard for young ones to keep still and not get bored while sitting and listening to the doctors talk about bowel/bladder management, spasticity issues, optic neuritis, and all the other issues that we face. Stay posted, I am sure that Jim will notify the list once the videos are available. Take care, Debbie From: Regina Rummel [mailto:regina...@sbcglobal.netmailto:regina...@sbcglobal.net] Sent: Monday, October 11, 2010 10:25 AM To: tmic-list@eskimo.comabout:tmic-list@eskimo.com Subject: [TMIC] Symposium I haven't heard anything about the Austin, TX symposium. Any comments? Was it productive? Can we access any reporting online like we did before?
Re: [TMIC] spammed
I posted last night but I see it got lost in cyberspace. I was spammed yesterday 8 times!! Both were from our group list, 2 from one person, 6 from another. One of them invited me to a site that included the word punkalicious - I'm thinking that's probably not a good place to visit~~~ Linda C in Eagle, ID - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Sunday, October 10, 2010 6:37 AM Subject: Re: [TMIC] spammed not because of tmic or anything else i reckon but i have received spam from myself! yes from:jcs...@yahoo.com to:jcs...@yahoo.com and this really confusses me! those bulk mailing softwares have that function in them. hate em! --- On Sun, 10/10/10, Barbara Alma balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.com Subject: [TMIC] spammed To: tmic-list@eskimo.com Date: Sunday, October 10, 2010, 12:09 AM I've gotten spammed messages from several people, some on this email account that I use for my TMIC email and also on my other one. If anyone gets spammed by my name, please let me know. Thank you. Hugs, Barbara A in Auburn CA
Re: [TMIC] AOL........
Jan - so very sorry for all that you're going through. Keep up with that p.t. so you can get your strength back. We miss you and hope the healing goes well. thinking of you, Linda C - Original Message - From: Jan Hargrovemailto:jmh1...@sbcglobal.net To: tmic-listmailto:tmic-list@eskimo.com Sent: Sunday, October 03, 2010 3:31 PM Subject: [TMIC] AOL Dear tmfamily, I have deleted every piece of mail since 9/16, as I have spent the last 2 weeks in the hospital..I fell the night of 9/16, went to hospital 9/17 had surgery 9/18 and went to rehab 9/19. The surgery placed pins in my rigtht ankle which I broke on both sides. Am home as of Sat 10/2 and most happy to be hereI'm tired and only moving by wheelchair which will be replaced by scooter next week. I deleted more than 1700 emails, which included all from youall...I'll catch up with what's going on as I gain strength. This is not all bad news. I've not shared what's been happening to me since Feb...at that time I had an illness, not flu,but flu-like. My doc said it most likely was a virus that would wear out in time. I was down long enough that I began to lose some of my mobility. On the other hand I began to regain feelings that hadn't been there since tm came to stay (19996). I wondered if the pains I began to have were there all along, but I couldn't feel them. As I lost more mobility, I came to depend more and more on my 4 prong and my walker. My walker was part of reason I broke my anklethat and my clumsiness!! With rehab I have begun to regain the strength I'll need to become a member of walking wounded again. Home Care, esp.p.t., will continue for at least next 60 days. This is all for now, it's taken two sessions to get this written..later... janh image/jpeg
Re: [TMIC] Neuro Visit today
So Akua do I understand this correctly - you never got your meds and the pharma never heard from your doc's office yesterday?? g - I hope you set your alarm last night called them the minute they opened this a.m. Certainly this service was included in that $500.00 attention fee, don't you think. Your body needs those meds - you've already waited too long. This transportation debacle is another thing entirely. I know it was discussed previously, but it is beyond my understanding why this issue isn't resolved. Better yet, why IS there an issue in the first place!! So wrong. I wish I could be there to help you...Please post! Linda who is still thinking positive thoughts - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, September 21, 2010 10:56 PM Subject: Re: [TMIC] Neuro Visit today Thanks, Linda! insult to injury when i checked with the pharma at 3 ( when they mail scrip) they had yet to hear from the doctor's office and to explain a bit further this was the school bus company that provides at its will paratransit as there is no paratransit in my town. The doctor refused to re-up my script without a visit and I was unable to get transport for my last appointment hence the six week without anything wait. So messing up the transport/disgruntling the driver is not a good thing, because they do not have to take me anywhere, ever, and for the most part, don't. Akua - you have been through so much cripity crap it makes me mad. I'm aware of what $500.00 attention is. I've got my fingers everything else crossed that these meds help you and quickly. You need to get some good rest the next couple of days after what you went through today. Hang in there. Thinking very positive thoughts for you. Linda in Eagle, ID --
Re: [TMIC] Neuro Visit today
Re: [TMIC] Neuro Visit todayHurry USPS! I'm so looking forward to hearing how much better you feel once those meds enter your body! I know you are a very positive person and living on good thoughts is a good thing. That's what helps us all get through each day~~~ Linda - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, September 22, 2010 12:53 PM Subject: Re: [TMIC] Neuro Visit today So Akua do I understand this correctly - you never got your meds and the pharma never heard from your doc's office yesterday?? They had not. They did AFTER I called both twice to be sure the meds were transmitted. I still have to wait as the (any) compounding pharmacy is far away, so I now have to wait on USPS to deliver the drugs. The neuro would not give me both at once so I still have nothing at all to address my TM symptoms: burning pain, squeezing pain, cold stabbing pain and spasms. Thanks for the good thoughts. I live on good thoughts. Akua g - I hope you set your alarm last night called them the minute they opened this a.m. Certainly this service was included in that $500.00 attention fee, don't you think. Your body needs those meds - you've already waited too long. This transportation debacle is another thing entirely. I know it was discussed previously, but it is beyond my understanding why this issue isn't resolved. Better yet, why IS there an issue in the first place!! So wrong. I wish I could be there to help you...Please post! Linda who is still thinking positive thoughts - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, September 21, 2010 10:56 PM Subject: Re: [TMIC] Neuro Visit today Thanks, Linda! insult to injury when i checked with the pharma at 3 ( when they mail scrip) they had yet to hear from the doctor's office and to explain a bit further this was the school bus company that provides at its will paratransit as there is no paratransit in my town. The doctor refused to re-up my script without a visit and I was unable to get transport for my last appointment hence the six week without anything wait. So messing up the transport/disgruntling the driver is not a good thing, because they do not have to take me anywhere, ever, and for the most part, don't. Akua - you have been through so much cripity crap it makes me mad. I'm aware of what $500.00 attention is. I've got my fingers everything else crossed that these meds help you and quickly. You need to get some good rest the next couple of days after what you went through today. Hang in there. Thinking very positive thoughts for you. Linda in Eagle, ID -- --
Re: [TMIC] Neuro Visit today
Akua - you have been through so much cripity crap it makes me mad. I'm aware of what $500.00 attention is. I've got my fingers everything else crossed that these meds help you and quickly. You need to get some good rest the next couple of days after what you went through today. Hang in there. Thinking very positive thoughts for you. Linda in Eagle, ID - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, September 21, 2010 2:29 PM Subject: [TMIC] Neuro Visit today hell to be up so early. I was unable to sleep before 4 something am and awoke at 8 to get out of bed at 8:30 am to wash and be dressed by 10 for the bus that came at 10:30 for the 11 am appointment. Six weeks without meds for the ravaging pain. You don't have to apologize the bus guy said. Yes I do, thanking him for his kindness after the Dr.'s office told him it would only be a half hour and I was there for an hour and twenty minutes. Purple pen, pad, crochet hook and yarn helped me wait for $500 attention. She wrote a script for Marinol and hopefully my naltrexone will arrive in a couple of days from the city-- there's no place reasonable closer. The pharmacy in Canandaigua charges twice as much, the one in PA charges three times as much (60 vs twenty) to grind up one pill to make my many. I'm disoriented from fatigue. Akua --
Re: [TMIC] Dallas Symposium
Looking forward to meeting you Debbie! Safe travel, Linda - Original Message - From: Deborah Nord Capenmailto:dca...@earthlink.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 19, 2010 11:01 PM Subject: [TMIC] Dallas Symposium I am leaving for the symposium in Dallas in a few days. I hope to meet many of you there! Take care, Debbie
Re: [TMIC] Re: tmic-digest Digest V2010 #475
Kim, I'm laughing because you just said it all!! Pretty much covers everything. I go to the doctor in the snow wearing totally open sandals - can't feel the snow, but I can sure feel socks or shoes! Awful burning. The first time my doctor saw me in sandals in the snow he looked at me with his mouth open ready to speak, then he just smiled. The look on his face was priceless, and I never said a word about my shoes or lack thereof. Just roll with the tide Linda - Original Message - From: kimharrison...@comcast.netmailto:kimharrison...@comcast.net To: Janice Nicholsmailto:jan...@centurytel.net Cc: transverse myelitismailto:tmic-list@eskimo.com ; john snodgrassmailto:jcs...@yahoo.com Sent: Saturday, September 18, 2010 6:06 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2010 #475 I hate sheets on my legs, pants bother them (feels like ants and running all over them) can not not werar shoes socks or slippers makes my feet burn worse makes winter and summer fun they burn worse in asphalt and freeze in the winter but he save alot on shoes! - Original Message - From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net To: john snodgrass jcs...@yahoo.commailto:jcs...@yahoo.com, kimharrison...@comcast.netmailto:kimharrison...@comcast.net Cc: transverse myelitis tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 18, 2010 10:53:17 AM Subject: Re: [TMIC] Re: tmic-digest Digest V2010 #475 Hey, at least we are alive to feel our bodies!I drive my husband nuts when I tell him all the feelings I have during a day's time.He just can not imagine these sensations. Janice From: john snodgrassmailto:jcs...@yahoo.com Sent: Saturday, September 18, 2010 6:27 AM To: kimharrison...@comcast.netmailto:kimharrison...@comcast.net Cc: transverse myelitismailto:tmic-list@eskimo.com Subject: Re: [TMIC] Re: tmic-digest Digest V2010 #475 I have heard of different areas that could not stand to be touched. makes me wonder about these nerves of ours,just what kind of battle they are fighting with and what kind of mixed up signals they are sending to our brain. I remember my neurologist said that the virus that started mine was gone and my own autoimmune system was eating away at my nerves in the area affected and he had to stop that with steroids. had to eat a lot of protean to repair the myelin sheath around the spinal cord that was damaged. that worked. got my coat back on but over damaged wires! sure wish i could find a repair manual. evidently the Doc's didn't get one either! anyone have any nerve pliers? -- From: kimharrison...@comcast.net kimharrison...@comcast.net To: tmic-list@eskimo.com Cc: tmic-dig...@eskimo.com Sent: Fri, September 17, 2010 8:54:21 PM Subject: [TMIC] Re: tmic-digest Digest V2010 #475 my feet burn so badly that I can put lotion on them and it melts as it runs down my feet, i can't take anything toucing my feet - Original Message - From: tmic-digest-requ...@eskimo.com To: tmic-dig...@eskimo.com Sent: Friday, September 17, 2010 4:03:09 PM Subject: tmic-digest Digest V2010 #475
Re: [TMIC] New to TM
Hi Emily, a very warm welcome to both you and your hubby. You have come to the right place for support, information about meds, symptoms and pretty much anything else. We talk freely about anything and everything. Most of us have experienced it or are currently. We have a lot of spouses/caregivers who are a very important part of this TM family. It's great to hear your hubby has a positive outlook. Determination will be very helpful in his recovery. Again, welcome, and keep posting so we know how both of you are doing. Linda - Original Message - From: Emilymailto:em...@telephonelady.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, September 16, 2010 10:10 AM Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged from the hospital last Thursday and he is now working hard at an acute rehabilitation center (3-5 hours each day). He has a very positive outlook and is taking it one day at a time. My question is this..is there a support group for spouses of TM? Emily Life is not measured by the number of breaths that we take but by the moments that take our breath away. image001.jpg
Re: [TMIC] another wonderful night
Ella's right on John. Most of us know all too well exactly how you felt. It's awful! I'm glad you didn't try to go to work. Your body needed the rest. Back to normal? The only thing I can say about that is that all of us seem to have a new normal ~ big sigh~ Remember we're all in this together. Hang in there and keep posting Linda - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, September 14, 2010 8:36 AM Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: [TMIC] Jude
I talked to Jude August 22nd and she was actually doing quite well. The best I've heard her sound in a very long time. She said to tell the TM Family she loves all of us and thinks of us often. Her new computer still isn't set up - or at least it wasn't at the time I spoke with her. She does have a sore on the bottom of her foot that it not healing, and her doctor mentioned gangrene - so we need to keep her in our thoughts and prayers. Really miss hearing from her. Linda (Eagle, ID) - Original Message - From: celr...@aol.commailto:celr...@aol.com To: tmic-l...@eskimo.netmailto:tmic-l...@eskimo.net Sent: Thursday, September 09, 2010 2:06 PM Subject: [TMIC] Jude Has anyone heard anything about Jude. She stays in my thoughts.
Re: [TMIC] TRANSVERSE MYELITIS
I agree with you Betty. Greg did an excellent job and I wish all physicians would watch it. Some of my family watched the show - many of them cried - To see another person go through what I did many years ago was a real eye-opener. One of my sisters-in-law works in the medical field here in Idaho and she has seen 4 people in the last year or so with the diagnosis of TM. One was air lifted to a larger hospital here where I live. If you want to see something interesting, take a look in the TMA Members Directory and see how many people in your state or province have TM. The numbers really surprised me. Kudos to Greg! Linda - Original Message - From: Beeclarkmailto:beecl...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, September 09, 2010 4:51 PM Subject: Re: [TMIC] TRANSVERSE MYELITIS My mistake... the episode is titled The Toddler Who Stopped Walking and it originally aired last Sunday night. I watched it and it was GREAT! It would be wonderful if all the physicians who are not familiar with TM would watch! Betty In a message dated 09/09/10 15:42:43 Pacific Daylight Time, Beeclark writes: The story is about Greg Sapp who lives in Statesboro, GA. The show originally aired this last Monday and will repeat next week. Here's a link about the show. Unfortunately, those who don't have cable and don't get this particular station won't be able to see it... and for those who can get it, be aware, if you try to program your DVR to record - I believe the show is be labeled The Girl Who Stopped Walking - Greg's part of the show is in the second story being highlighted: Mystery Diagnosis on Discovery Health Channel (Monday) will be about a man with TM. http://savannahnow.com/news/2010-09-05/local-man-featured-mystery-diagnosishttp://savannahnow.com/news/2010-09-05/local-man-featured-mystery-diagnosis Betty (in Northern California) In a message dated 09/09/10 13:27:49 Pacific Daylight Time, jan...@centurytel.net writes: My sister, who lives in Savannah, told me about a Transverse Myelitis patient that lives near there. He will be on the 2nd half of Discovery Health channel. Dates are: Saturday, Sept. 11 at 5:00pm and Monday, Sept. 13 at 3:00pm Should be interesting and am glad that TM is getting some recognition. Janice
Re: [TMIC] Medications
Re: [TMIC] MedicationsHi Dalton, I can really relate. Had them for years, and years with no explanation. Mine were not as severe as yours - I would have no warning of any kind - had them at out of town business functions (lovely), at work, waiting for a bus in downtown Seattle - I even got to spend one of my birthdays in the hospital all day because of a seizure at my office that morning. Then when TM hit they became more frequent and presented much worse. Finally got answers from a great neurologist who was on call while I was in the hospital. Was put on Lamictal and have been seizure-free since then. What drugs has your doctor given you so far? And maybe I shouldn't ask this, but I will anyway - do you have confidence in this doctor??? Have you worn an EEG machine around your waist for the 24-hour evaluation? Had brain scan? Hang in there. Someone will find an answer. Please keep posting updates. Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Janice Nicholsmailto:jan...@centurytel.net ; j.d...@shaw.camailto:j.d...@shaw.ca ; tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Barbara Almamailto:balmat...@aol.com Sent: Friday, September 10, 2010 10:12 PM Subject: Re: [TMIC] Medications No, never. The seizures will end my career if I don't get them under control. I came back better and everyone was impressed. If they see me getting them again they will indeed replace me by next semester. Dalton -- From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net Date: Fri, 10 Sep 2010 22:18:15 -0500 To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, j.d...@shaw.camailto:j.d...@shaw.ca, tmic-list@eskimo.commailto:tmic-list@eskimo.com, Barbara Alma balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] Medications Not to my knowledge.But, if it works on the spasms, that is part of your problem taken care of. Did you have seizures before TM? Janice From: Dalton Garis mailto:malugss...@gmail.commailto:malugss...@gmail.com Sent: Friday, September 10, 2010 12:22 PM To: Janice Nichols mailto:jan...@centurytel.netmailto:jan...@centurytel.net ; j.d...@shaw.caabout:j.d...@shaw.ca ; tmic-list@eskimo.comabout:tmic-list@eskimo.com ; Barbara Alma mailto:balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] Medications Does it work for seizures?? Dalton -- From: Janice Nichols jan...@centurytel.netabout:jan...@centurytel.net Date: Fri, 10 Sep 2010 10:20:03 -0500 To: Dalton Garis malugss...@gmail.comabout:malugss...@gmail.com, j.d...@shaw.caabout:j.d...@shaw.ca, tmic-list@eskimo.comabout:tmic-list@eskimo.com, Barbara Alma balmat...@aol.comabout:balmat...@aol.com Subject: Re: [TMIC] Medications Remember you can work up to the amount you need. If you start with the zomby-business, cut back and see if that will work for you.Or, just take it a little before bedtime. That is what I do. Janice From: Dalton Garis mailto:malugss...@gmail.commailto:malugss...@gmail.com Sent: Friday, September 10, 2010 5:31 AM To: Janice Nichols mailto:jan...@centurytel.netmailto:jan...@centurytel.net ; j.d...@shaw.caabout:j.d...@shaw.ca ; tmic-list@eskimo.comabout:tmic-list@eskimo.com ; Barbara Alma mailto:balmat...@aol.commailto:balmat...@aol.com Subject: Re: [TMIC] Medications OK; I'll suggest it to my neuro. He has been steering me away from the heavy-duty meds because I already take 40 mg of Prozac (have for 20 years) and he is afraid it will zomby-ize me. Dalton -- From: Janice Nichols jan...@centurytel.netabout:jan...@centurytel.net Date: Thu, 9 Sep 2010 22:22:34 -0500 To: j.d...@shaw.caabout:j.d...@shaw.ca, tmic-list@eskimo.comabout:tmic-list@eskimo.com, Barbara Alma balmat...@aol.comabout:balmat...@aol.com Subject: Re: [TMIC] Medications Resent-From: tmic-list@eskimo.comabout:tmic-list@eskimo.com Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700 There's that word again - spasms.I swear by baclofen.Had to change the number taken and the times of the day when to take them, but once that was figured out, I could sleep.Sorry to sound like a broken record and I realize that we are all different too.Sure wish it would work on you guys the way it works for me. Janice From: Barbara Alma mailto:balmat...@aol.commailto:balmat...@aol.com Sent: Thursday, September 09, 2010 10:16 PM To: j.d...@shaw.caabout:j.d...@shaw.ca ; tmic-list@eskimo.comabout:tmic-list@eskimo.com Subject: Re: [TMIC] Medications Hydrocodone: I personally do not get any relief from my nerve pain, burning/freezing or hyper sensitivity. I take it for other pain,
Re: [TMIC] Thirteen Things Your Burglar Won't Tell You
Thank you! Great information that I will also pass along. Linda - Original Message - From: Beeclarkmailto:beecl...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com ; transversemyelitissupp...@yahoogroups.commailto:transversemyelitissupp...@yahoogroups.com Sent: Saturday, September 11, 2010 5:43 PM Subject: [TMIC] Thirteen Things Your Burglar Won't Tell You Good advice for everyone's safety! THIRTEEN THINGS YOUR BURGLAR WON'T TELL YOU 1. Of course I look familiar. I was here just last week cleaning your carpets, painting your shutters, or delivering your new refrigerator. 2. Hey, thanks for letting me use the bathroom when I was working in your yard last week. While I was in there, I unlatched the back window to make my return a little easier. 3. Love those flowers. That tells me you have taste... and taste means there are nice things inside. Those yard toys your kids leave out always make me wonder what type of gaming system they have. 4. Yes, I really do look for newspapers piled up on the driveway. And I might leave a pizza flyer in your front door to see how long it takes you to remove it. 5. If it snows while you're out of town, get a neighbor to create car and foot tracks into the house. Virgin drifts in the driveway are a dead giveaway. 6. If decorative glass is part of your front entrance, don't let your alarm company install the control pad where I can see if it's set. That makes it too easy. 7. A good security company alarms the window over the sink. And the windows on the second floor, which often access the master bedroom – and your jewelry. It's not a bad idea to put motion detectors up there too. 8. It's raining, you're fumbling with your umbrella, and you forget to lock your door – understandable. But understand this: I don't take a day off because of bad weather. 9. I always knock first. If you answer, I'll ask for directions somewhere or offer to clean your gutters. (Don't take me up on it.) 10 . Do you really think I won't look in your sock drawer? I always check dresser drawers, the bedside table, and the medicine cabinet. 11. Here's a helpful hint: I almost never go into kids' rooms. 12. You're right: I won't have enough time to break into that safe where you keep your valuables. But if it's not bolted down, I'll take it with me. 13. A loud TV or radio can be a better deterrent than the best alarm system. If you're reluctant to leave your TV on while you're out of town, you can buy a $35 device that works on a timer and simulates the flickering glow of a real television. (Find it at http://www.faketv.com/http://www.faketv.com/) -- 8 MORE THINGS A BURGLAR WON'T TELL YOU: 1. Sometimes, I carry a clipboard. Sometimes, I dress like a lawn guy and carry a rake. I do my best to never, ever look like a crook. 2. The two things I hate most: loud dogs and nosy neighbors. 3. I'll break a window to get in, even if it makes a little noise. If your neighbor hears one loud sound, he'll stop what he's doing and wait to hear it again... If he doesn't hear it again, he'll just go back to what he was doing. It's human nature. 4. I'm not complaining, but why would you pay all that money for a fancy alarm system and leave your house without setting it? 5. I love looking in your windows. I'm looking for signs that you're home, and for flat screen TVs or gaming systems I'd like. I'll drive or walk through your neighborhood at night, before you close the blinds, just to pick my targets. 6. Avoid announcing your vacation on your Facebook page. It's easier than you think to look up your address. 7. To you, leaving that window open just a crack during the day is a way to let in a little fresh air. To me, it's an invitation. 8. If you don't answer when I knock, I try the door. Occasionally, I hit the jackpot and walk right in. Sources: Convicted burglars in North Carolina, Oregon, California, and Kentucky; security consultant Chris McGoey, who runs http://www.crimedoctor.com/andhttp://www.crimedoctor.com/and; Richard T. Wright, a criminology professor at the University of Missouri-St. Louis, who interviewed 105 burglars for his book Bu rglars on the Job -- PROTECTION FOR YOU AND YOUR HOME: If you don't have a gun, here's a more humane way to wreck someone’s evil plans for you. (I guess I can get rid of the baseball bat.): WASP SPRAY A friend who is a receptionist in a church in a high risk area was concerned about someone coming into the office on Monday to rob them when they were counting the collection. She asked the local police department about using pepper spray and they recommended
Re: [TMIC] Neurologist visit
Rev Craig, so glad you had a productive visit with your new neurologist. You asked about your meds. Many TMers have used most of these meds at one time or another. However, that Ropinirole threw me for a loop as I've never heard of it, so I researched it. Did your doctor give you an entire pamphlet on the medication or did she just briefly tell you about it? I ask because I've really never seen a drug quite like this. All drugs have side effects, and this one has its fair share. But what really shocked me was the very long section called: What special precautions should I follow? You really do need to read ALL of this - please. It's very important. And you're right, you never know, you may just show up in the pulpit wearing a pink tutu and a glittery tiara! We'd like a picture of that please : ) Has anyone else here used this drug called Ropinirole or googled it? Please post if you have. Good luck to you Craig. You have a great attitude - and a great sense of humor to go along with it. Linda (Eagle, ID) - Original Message - From: Rev. Craig Crossmanmailto:revcross...@gmail.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, September 08, 2010 2:29 PM Subject: [TMIC] Neurologist visit Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] back to the first bend in the road
Re: [TMIC] back to the first bend in the roadDalton, I am so sorry that your seizures are back. I ditto what Janice said. You found magnesia phosphorica and it worked for a bit. Now it's time for another drug to show its face. Thinking positive thoughts Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: Dalton Garismailto:malugss...@gmail.com ; john snodgrassmailto:jcs...@yahoo.com ; transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, September 07, 2010 5:54 PM Subject: Re: [TMIC] back to the first bend in the road Dalton, I am really sorry about this latest disappointed.Don't give up hope for something showing up that will work. You never know. Janice From: Dalton Garismailto:malugss...@gmail.com Sent: Tuesday, September 07, 2010 7:58 AM To: Janice Nicholsmailto:jan...@centurytel.net ; john snodgrassmailto:jcs...@yahoo.com ; transverse myelitismailto:tmic-list@eskimo.com Subject: Re: [TMIC] back to the first bend in the road Friends; The seizures are back. They reappeared over the last 24 hours. Now, they are as they were. I took the magnesia phosphorica as before; but this time there was no-zero-effect. Another dead end, it seems. But it was fun while it lasted. Hope is a great thing. Dalton Dalton H. Garis, Ph.D. Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- -- From: Janice Nichols jan...@centurytel.netabout:jan...@centurytel.net Date: Mon, 6 Sep 2010 23:02:37 -0500 To: Dalton Garis malugss...@gmail.comabout:malugss...@gmail.com, john snodgrass jcs...@yahoo.comabout:jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.comabout:tmic-list@eskimo.com Subject: Re: [TMIC] be careful Oh My Gosh!!!You are lucky to still be here.Kids will be kids. Janice From: Dalton Garis mailto:malugss...@gmail.commailto:malugss...@gmail.com Sent: Monday, September 06, 2010 10:59 PM To: Janice Nichols mailto:jan...@centurytel.netmailto:jan...@centurytel.net ; john snodgrass mailto:jcs...@yahoo.commailto:jcs...@yahoo.com ; transverse myelitis mailto:tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] be careful Drain-O and aluminum foil! D. -- From: Janice Nichols jan...@centurytel.netabout:jan...@centurytel.net Date: Mon, 6 Sep 2010 22:00:35 -0500 To: john snodgrass jcs...@yahoo.comabout:jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.comabout:tmic-list@eskimo.com Subject: Re: [TMIC] be careful Resent-From: tmic-list@eskimo.comabout:tmic-list@eskimo.com Resent-Date: Mon, 6 Sep 2010 20:00:30 -0700 John, what the heck did you put in those bottles!!! Janice From: john snodgrass jcs...@yahoo.comabout:jcs...@yahoo.com Sent: Monday, September 06, 2010 5:44 PM To: transverse myelitis tmic-list@eskimo.comabout:tmic-list@eskimo.com Subject: [TMIC] be careful this may not have anything to do with TM but has everything to do with everybody. when i was a kid,we used to take a coke bottle and put this stuff in it and put a baloon over it. the chemical reaction would blow up the baloon .we would then tie off the baloon and it would float up in the sky. didnt know what we were doing for fun could be used to make a bomb! the link to snopes is an actual link and not an advert.looked at it myself.this occured in April i think. John Subject: NOT A JOKE - VERY SERIOUS ^ KIDS NEED TO KNOW TOO. To: Date: Monday, September 6, 2010, 1:22 PM NOT A JOKE - VERY SERIOUS ^ GOOD FOR THE KIDS TO KNOW TOO. Pass this on to everybody you know. Anybody that sees a plastic bottle in their yard would think nothing of picking it up to throw it away. Looks like these things are starting to pop up around the U.S. Check the Snopes web site below, it's pretty scary. Important warning! NOT A JOKE! Pay attention to this. 1. A plastic bottle with a cap (Like a normal water bottle). 2. A little Drano. 3. A little water. 4. A small piece of foil. 5. Disturb it by moving it; and BOOM (Less than 30 seconds)!! 6. No fingers left and other serious effects to your face, eyes, etc. People are finding these bombs in mailboxes and in their yards, just waiting for someone to pick it up intending to put it in the trash. It takes about 30 seconds to blow after you move the thing. See SNOPES belowit's true.
Re: [TMIC] Fatigue/Cycle
Dalton - I'm sorry this happened to you. Do you know others who have had the same reaction? I have not had any reaction and my pharmacist didn't mention it - I didn't see it mentioned when I googled Melatonin either. It's good to know that like any other med it can affect all of us differently. Thanks for the heads up Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Akuamailto:a...@artfarm.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 05, 2010 2:54 AM Subject: Re: [TMIC] Fatigue/Cycle Warning to all; Melatonin will absolutely aggravate depression and will wash out anti depression medications. You will not notice it at first but in about a week you will have backed into a cave looking out. Dalton --Original Message-- From: Akua To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Sent: Sep 5, 2010 5:32 AM O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua -- Dalton Garis Abu Dhabi +971-050-668-5760
Re: [TMIC] changes
Hi Barbara, Great information you gave Kevin. You suggested group therapy and that you had done it yourself. Are you talking about for depression? If so I can see how that would be very beneficial to physically be with others who share the same or similar depression issues. Is this what you meant and if so how did you get involved in a group therapy? Sorry if this is obvious to everyone else except me - I just haven't heard of it. Thanks Linda - Original Message - From: Barbara Almamailto:balmat...@aol.com To: wolft...@optonline.netmailto:wolft...@optonline.net ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, September 02, 2010 10:34 PM Subject: Re: [TMIC] changes Hello Kevin, How have you been? It looks like you are finally getting some services and some medications. Looks like you are on the right track. I'm so thrilled to hear that you are getting physical therapy and the anti-depression meds. Who knows how much better you'd be if you would have gotten this long ago, but at least you are getting them now. It's hard work, but I hope that you will see some reward from the therapy. If you can get strong enough to get out again, a group therapy may be a good situation for you. I did that for quite some time prior to moving here and it helped me so much with my depression. I should do it again, as I find myself slipping every now and then, like several times a year, and not pulling myself out too easily. It's hard to start, but once you do, you'll find that you don't want to miss it. I found that I felt that I was helping others and in turn it felt like I was helping myself. Very much like the TMIC, but you get to do it in person, so you get that human contact that is necessary for us to thrive. Hugs, Barbara A in Auburn CA -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Wed, Sep 1, 2010 11:55 am Subject: [TMIC] changes Hi Friends, Well, we're having another heatwave here in the northeast (CT), after almost winter weather a few weeks ago, weird. I've been trying some new things to try to feel 'human' again, and pull myself out of my depression. I started on the anti-depressant Lexapro about 3 weeks ago. No noticeable change yet, but I know it can take several weeks. At least no bad side effects like I had with Lyrica and Cymbalta. I'm also getting physical therapy at home three days a week, which is kicking my butt, (fatigue, pain), and will be starting occupational therapy for my hands. Last week, my BP was low, and still is in the 100/60 area. Before that it was 120/70. I am treated for high BP and have a call in to my doctor about this. Maybe it has to do with PT after being sedentary for so long? Anyway, I'm trying to be proactive about things..not easy for me. Wishing you all the best. Kevin
Re: [TMIC] Fatigue/Cycle
Yep, Akua, can totally relate to everything you said. Since TM, I have had such trouble with my sleep, or lack thereof, that I find myself crying at the drop of a hat - Sleeping pills don't work for me. However, many people have told me about their positive experience with Melatonin. Out of sheer desperation, I talked to my pharmacist about it. He reviewed my meds and told me it would be ok to take. After 3 days I actually slept 9 hours, then 8 hours and it's been pretty consistent since. The most I was sleeping before was 3 or 4 hours, wake up and not get back to sleep for another 2 hours and only for an hour if I was lucky - and then it wasn't even a restful sleep. I have to take a nap every day. Basically no quality of life because I was so so tired all the time from not sleeping. I'm all set to go to the Symposium in Dallas and I am already worried about the long air travel, the long days at the Symposium itself and how in the world I will be able to handle all of it. Linda - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 04, 2010 1:46 PM Subject: [TMIC] Fatigue/Cycle If I can stay asleep until 11:30 am and not get up until 1, I am up until 4 am asleep by 5a.m. -- a 17 hour day -- and feel rested. If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable to fall asleep until 2 am and exhausted when i have to wake up at 8 am -- a 12 hour day This may be apropos of nada, but I wonder if others find that recasting/reshaping their sleep/wake cycles, grants more energy, buys more time. --
Re: [TMIC] Fatigue/Cycle
I hope this information might help others who are having sleep disturbances. If anybody has or is taking Melatonin maybe you could give us your input. Yes, I'm very excited to be in the presence of those who understand. Will be learning and having fun at the same time. Sounds pretty good to me. - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 04, 2010 7:32 PM Subject: Re: [TMIC] Fatigue/Cycle O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua --
Re: [TMIC] September Birthdays
HAPPY BIRTHDAY SEPTEMBER KIDS and Happy Birthday in memory of Pam Montz Sept 9 TIAD! Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Tuesday, August 31, 2010 9:43 PM Subject: [TMIC] September Birthdays Happy Birthday to the September kids! Hope you have a great day! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com 9/3 Buddy Cohen (buddyco...@cs.commailto:buddyco...@cs.com) 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.commailto:eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.commailto:judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.commailto:keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.commailto:parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.netmailto:coch6...@bellsouth.net) 9-17 Michael (mis...@austin.rr.commailto:mis...@austin.rr.com) 9-17 Bill Wimberly- (bwimbe...@bellsouth.netmailto:bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.commailto:robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.commailto:mush...@juno.com)(mushr...@hotmail.commailto:mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.commailto:ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.commailto:a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.commailto:pge...@aol.com )
Re: [TMIC]
I've been getting them also. I just delete them. Should I be doing something more?? Thanks, Linda - Original Message - From: Todd Tarnomailto:toddtm2...@sbcglobal.net To: TMICmailto:tmic-list@eskimo.com Cc: rn11...@yahoo.commailto:rn11...@yahoo.com Sent: Thursday, September 02, 2010 12:26 PM Subject: Re: [TMIC] Hey Cheryl, Someone has heck into your e-mail address is sending spam e-mail daily. I too, have e-mailed her about this problem haven't gotten any reply. Even if we spam her e-mail address, we still might get the e-mails because it cc TMIC. What has other people done with these e-mails? Todd in CC, TX --- On Thu, 9/2/10, rn11...@yahoo.commailto:rn11...@yahoo.com rn11...@yahoo.commailto:rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Re: [TMIC] To: Stacy Harim imwheelin1...@hotmail.com Cc: tmic-list@eskimo.com Date: Thursday, September 2, 2010, 12:42 PM I'm sorry Stacy,I sent a reply without a message. When I click on this site my web protection shows a warning that it is a spyware/malware source.So be careful. Cheryl --- On Thu, 9/2/10, Stacy Harim imwheelin1...@hotmail.com wrote: From: Stacy Harim imwheelin1...@hotmail.com Subject: [TMIC] To: tayodick...@hotmail.com, tmic-list@eskimo.com, anthony.sta...@verizon.net Date: Thursday, September 2, 2010, 9:08 AM http://www.rqe5.medxdrugx.comhttp://www.rqe5.medxdrugx.com/
Re: [TMIC] Must report setback
Re: [TMIC] Must report setbackDalton, I'm glad you have an appointment in a few days and that you're feeling better today. Please keep us posted. Linda C - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Janice Nicholsmailto:jan...@centurytel.net ; Jan Hargrovemailto:jmh1...@sbcglobal.net ; jack...@att.blackberry.netmailto:jack...@att.blackberry.net ; TMICmailto:tmic-list@eskimo.com Sent: Wednesday, September 01, 2010 10:09 PM Subject: Re: [TMIC] Must report setback I have an appointment in a few days. I am better today. Don't know what happened. Totally weak. Got better as the day went by and I had to work through it, moving and resting, moving and resting. Today I am much better. Thanks! Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- -- From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net Date: Wed, 1 Sep 2010 14:22:36 -0500 To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, Jan Hargrove jmh1...@sbcglobal.netmailto:jmh1...@sbcglobal.net, jack...@att.blackberry.netmailto:jack...@att.blackberry.net, TMIC tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback I am really sorry to hear this.Have you contacted your doctor - if so, what does he say about it? Janice From: Dalton Garis mailto:malugss...@gmail.commailto:malugss...@gmail.com Sent: Wednesday, September 01, 2010 1:13 AM To: Janice Nichols mailto:jan...@centurytel.netmailto:jan...@centurytel.net ; Jan Hargrove mailto:jmh1...@sbcglobal.netmailto:jmh1...@sbcglobal.net ; jack...@att.blackberry.netabout:jack...@att.blackberry.net ; TMIC mailto:tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback Friends; Today awoke extremely weak, and out of breath with the least expenditure of effort. By 10:00 had lost a lot of muscle coordination and all strength. Just went from sitting in one chair to another. Sweating profusely. But still no seizures. Dalton Garis
Re: [TMIC] ot: medicare question
Same here, Kevin. It was explained to me by many people that I should set it up this way. I know it is confusing. Linda - Original Message - From: Jan Hargrovemailto:jmh1...@sbcglobal.net To: Kevin Wolfthalmailto:wolft...@optonline.net ; tmic-listmailto:tmic-list@eskimo.com Sent: Friday, August 27, 2010 9:59 AM Subject: Re: [TMIC] ot: medicare question If you have Blue Cross for your primary insurance, what do you use to pay the part that BC doesn't cover? i.e., I have Medicare A Band the drug insbut I have a secondary that pays what Medicare doesn't payso I have no out of pocket after original deductibles at the first of each year. I know that different insurances do things its own way, so what my ins pays may differ from other plans.but I just think you must have something that covers co-pay et al Hope I didn't confuse you as much as I did myself!! janh -- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Fri, August 27, 2010 10:27:37 AM Subject: [TMIC] ot: medicare question Dear Friends, I am looking for ways to cut my expenses so I can continue to live where I am. I have never used Medicare, but have been paying about $100 a month for it for about 10 years out of my SSDI. Blue Cross is my primary insurance. I am thinking of dropping Medicare for now to save money. I was told I could always reapply for it later, that it takes about 3 months to get it back. I would like opinions on whether there could be negative repercussions to dropping it for now. As I mentioned, I've never used it in 10 years. Kevin
Re: [TMIC] Symposium/Dallas Sept 24-26
Keep Todd in line? What are the chances of that!! : ) Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: L T CHERPESKImailto:cherp...@msn.com ; toddtm2...@sbcglobal.netmailto:toddtm2...@sbcglobal.net ; TM Listmailto:tmic-list@eskimo.com Sent: Sunday, August 15, 2010 6:16 AM Subject: Re: [TMIC] Symposium/Dallas Sept 24-26 Linda, I want to hear all about the symposium. Keep Todd in line too! Janice From: L T CHERPESKImailto:cherp...@msn.com Sent: Saturday, August 14, 2010 4:03 PM To: toddtm2...@sbcglobal.netmailto:toddtm2...@sbcglobal.net ; TM Listmailto:tmic-list@eskimo.com Subject: RE: [TMIC] Symposium/Dallas Sept 24-26 Todd, so happy you guys will be there. I'll be flying approx 8 hours because I have to take two planes. Oh well - big nap coming up when I arrive. Looking forward to meeting you. Linda -- Date: Sat, 14 Aug 2010 13:59:10 -0700 From: toddtm2...@sbcglobal.netmailto:toddtm2...@sbcglobal.net Subject: Re: [TMIC] Symposium/Dallas Sept 24-26 To: tmic-list@eskimo.commailto:tmic-list@eskimo.com I'm and my partner/caregiver will be making the 8 hour drive into Dallas, staying with a friend and then on the way back home, my cousin's wedding is the following weekend in Austin. Making it a nice fun trip, Todd in Corpus Christi, TX --- On Sat, 8/14/10, L T CHERPESKI cherp...@msn.com wrote: From: L T CHERPESKI cherp...@msn.com Subject: [TMIC] Symposium/Dallas Sept 24-26 To: TMIC-LIST tmic-l...@eskimo.net Date: Saturday, August 14, 2010, 3:34 PM I'm just throwing this out there. Are any of you planning to go to the upcoming Symposium in Dallas? I had a doctor appt yesterday and took a copy of the agenda to my doc. He actually sat there and read the info, smiled and was very impressed that this was being offered and that I plan to attend. I'm due for my Rituxan infusions and he said I could hold off having them, just in case some of the doctors have come up with a better/different plan. I realize how fortunate I am to have a doctor who listens and is open to new ideas. Re: the Symposium - I do know that Louise is coming clear from Australia! Looking forward to meeting as many of the TM family as possible. Linda (Eagle, ID)
Re: [TMIC] Update on Mike
Hello dear Jill and the Hammond Team, I am so, so sorry to hear this latest news. Thank you for keeping us updated - we really appreciate you keeping us in the loop. Will keep all of you in my thoughts and prayers. Much love to you and the family, Linda (Eagle, ID) previously Bothell, WA - Mike I had talked about that some time ago. - Original Message - From: Jill Hammondmailto:3jmhamm...@clearwire.net To: Anna Jim mailto:jnawil...@roadrunner.com; Annie mailto:annielyman1...@yahoo.com; Becky Stevemailto:mcsmi...@adelphia.net ; Beth Gregmailto:g...@comcast.net ; Bob Beverly mailto:b.doerfl...@gmail.com; 'Boyd'mailto:b...@boydbryant.com ; Carole Mattesonmailto:carolematte...@hotmail.com ; Char Browermailto:charsreti...@hotmail.com ; Cheryl Hammondmailto:i...@todaydata.com ; Cindy Dunnmailto:cdunn53...@aol.com ; Craig Candimailto:bur...@comcast.net ; 'Craig Fiore'mailto:cr...@ultra6.eskimo.com ; fi...@dhs.govmailto:fi...@dhs.gov ; 'David and Patty Brooks'mailto:blueba...@verizon.net ; 'David Gay'mailto:raega...@yahoo.com ; Dennis Pammailto:burpee...@msn.com ; 'Earl Fordham'mailto:earl.ford...@gmail.com ; Elaine Boosmailto:elaineb...@bellsouth.net ; Eric Erimailto:ericshamm...@hotmail.com ; Fred Susanmailto:graceann1...@charter.net ; Gil Marimailto:cdav...@dc.rr.com ; 'James Fulmer'mailto:jedi...@gmail.com ; Jan Hlavaty-LaPosa mailto:janet.hlavaty-lap...@dhs.gov; Jim and Bobbi mailto:jimbobk...@msn.com; Johanna mailto:mjber...@verizon.net; Judy Karlmailto:romocharlo...@hotmail.com ; Keenanmailto:kee...@seattlegeek.net ; Kendra mailto:kwa...@comcast.net; Lenny Lisamailto:len.l...@verizon.net ; Lisa mailto:l...@lisalundt.com; Lynn Jademailto:lynn.mari...@pfpa.mil ; Mari Garymailto:wordfromwis...@smtel.com ; marie swansonmailto:swansonbythe...@comcast.net ; 'Mica Ward'mailto:m...@detech.net ; Mike Nancymailto:mmccallis...@soundandsea.com ; Nancymailto:npurcell1...@yahoo.com ; Noah mailto:n...@noahconrad.com; Pat Allegrettimailto:paa...@gmail.com ; Pat and Corkymailto:pjgren...@hotmail.com ; Pat Doebelemailto:grandmap...@comcast.net ; Pat Massey mailto:patrick.mas...@dhs.gov; Paula mailto:paula.lazz...@attachmate.com; PJ mailto:pjn...@yahoo.com; Ron mailto:ron.brook...@att.net; 'Sally'mailto:sa...@bsorenson.com ; Sarah Bell-Schell mailto:maeb...@vandals.uidaho.edu; 'Scott Hamilton'mailto:scotthamil...@live.com ; Sharon Steve mailto:pianica...@comcast.net; 'Sheri Meyer'mailto:sheme...@cisco.com ; Steve Gail mailto:crescentc...@nwi.net; Steve and Jomailto:stevejojohn...@msn.com ; Susan Ted Rothmailto:susanema...@mchsi.com ; Tmicmailto:tmic-list@eskimo.com ; Tom Deb mailto:t...@ddoel.com; 'vanessa Quinn'mailto:vanessa.qu...@dhs.gov ; Wayne mailto:wme...@ci.everett.wa.us; Zsolt Pattymailto:zdor...@comcast.net Sent: Tuesday, August 17, 2010 9:16 AM Subject: [TMIC] Update on Mike Hello Family and Friends, Sorry to send this information over mass email, but it's the fastest way to keep everyone informed. Over the last couple of weeks, Mike has been very disoriented, sleeping a lot and losing weight. The MRI test that he had earlier this week indicates that the cancer has spread to the brain. We are meeting w/the Oncologist today and hopefully get more answers and find out what our course of treatment will be. I'll keep you informed as soon as we can. Keep us in your prayers..Love, The Hammond Team
RE: [TMIC] Miracle of Miracles!
Great news! Hydrotherapy is amazing for the entire body. Go for it! What dosage of Amitriptyline will you be on? I took it at one time and had to titre up very slowly. It was very helpful for what was going on with my body at the time, but I couldn't handle the higher dosage. I had horrible nightmares. Again, we're all different. I sincerely hope you find relief with your new cocktail of meds. Please keep us posted. Linda (Eagle, ID) Date: Thu, 12 Aug 2010 15:13:24 -0700 From: jcs...@yahoo.com Subject: Re: [TMIC] Miracle of Miracles! To: revcross...@gmail.com CC: tmic-list@eskimo.com that is a very good report. --- On Thu, 8/12/10, Rev. Craig Crossman revcross...@gmail.com wrote: From: Rev. Craig Crossman revcross...@gmail.com Subject: [TMIC] Miracle of Miracles! To: tmic-list@eskimo.com Date: Thursday, August 12, 2010, 5:14 PM I went to the clinic today and saw my nurse practitioner. Turns out she had taken quite bit of time to study up on TM; something my former doctor never bothered to do. So we were able to discuss intelligently my symptoms, my meds, and treatment options. What a difference! She upped my hydrocodone from 5mg to 10mg, scheduled me for PT (including hydrotherapy) and she added Amitriptyline HCL. This should help me sleep and also help with depression. Has anyone had any experience with this drug? What can I expect? God bless those who care and take the time to educate themselves about what we face. There are not many of them, but if you find one they are like gold. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
[TMIC] Symposium/Dallas Sept 24-26
I'm just throwing this out there. Are any of you planning to go to the upcoming Symposium in Dallas? I had a doctor appt yesterday and took a copy of the agenda to my doc. He actually sat there and read the info, smiled and was very impressed that this was being offered and that I plan to attend. I'm due for my Rituxan infusions and he said I could hold off having them, just in case some of the doctors have come up with a better/different plan. I realize how fortunate I am to have a doctor who listens and is open to new ideas. Re: the Symposium - I do know that Louise is coming clear from Australia! Looking forward to meeting as many of the TM family as possible. Linda (Eagle, ID)
RE: [TMIC] Symposium/Dallas Sept 24-26
Todd, so happy you guys will be there. I'll be flying approx 8 hours because I have to take two planes. Oh well - big nap coming up when I arrive. Looking forward to meeting you. Linda Date: Sat, 14 Aug 2010 13:59:10 -0700 From: toddtm2...@sbcglobal.net Subject: Re: [TMIC] Symposium/Dallas Sept 24-26 To: tmic-list@eskimo.com I'm and my partner/caregiver will be making the 8 hour drive into Dallas, staying with a friend and then on the way back home, my cousin's wedding is the following weekend in Austin. Making it a nice fun trip, Todd in Corpus Christi, TX --- On Sat, 8/14/10, L T CHERPESKI cherp...@msn.com wrote: From: L T CHERPESKI cherp...@msn.com Subject: [TMIC] Symposium/Dallas Sept 24-26 To: TMIC-LIST tmic-l...@eskimo.net Date: Saturday, August 14, 2010, 3:34 PM I'm just throwing this out there. Are any of you planning to go to the upcoming Symposium in Dallas? I had a doctor appt yesterday and took a copy of the agenda to my doc. He actually sat there and read the info, smiled and was very impressed that this was being offered and that I plan to attend. I'm due for my Rituxan infusions and he said I could hold off having them, just in case some of the doctors have come up with a better/different plan. I realize how fortunate I am to have a doctor who listens and is open to new ideas. Re: the Symposium - I do know that Louise is coming clear from Australia! Looking forward to meeting as many of the TM family as possible. Linda (Eagle, ID)
Re: [TMIC] Fw: Military tribute from Kiss !
Wow! Sent shivers down my back. My husband was in the Navy and served in Viet Nam. A BIG THANK YOU to all of our military. God Bless each and every one of you. And yes ~H - RAH! Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, July 31, 2010 6:29 PM Subject: [TMIC] Fw: Military tribute from Kiss ! Here's to our TM'ers from any military background. Thank you! Janice http://www.youtube.com/watch?v=5MtdIO23MKMhttp://www.youtube.com/watch?v=5MtdIO23MKM I only have one thing to add: H - RAH! Kiss's Military Salute... Do not delete this email the music will blow your mind. I always thought Gene Simmons the band KISS were a bunch of strange people. But it seems I have been wrong on this issue. This was filmed in Iraq at a USO tour of a US Marine Base. Play it and spread it to every single person you know... ( http://www.youtube.com/watch?v=5MtdIO23MKM
Re: [TMIC] August Birthdays
HAPPY BIRTHDAY AUGUST KIDS! (Great time of the year to be born!) - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Saturday, July 31, 2010 10:22 PM Subject: [TMIC] August Birthdays Happy Birthday to the August kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 8/1 Peachi (pkeene2...@aol.commailto:pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.commailto:cindymcle...@socal.rr.com) 8- 1 Stacy Firth (safi...@dow.commailto:safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.commailto:lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.commailto:sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.commailto:mrs_gok...@yahoo.com 8-11 Michelle Maricic (mmari...@aol.commailto:mmari...@aol.com) 11th August 1950 Dalida S. Ortiz de Garcia (py...@yahoo.commailto:py...@yahoo.com) 8-16- phyllisj...@webtv.netmailto:phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil (sbras...@aol.commailto:sbras...@aol.com) 8-17 Kim (jnks...@huntel.netmailto:jnks...@huntel.net) 08/18 Corinne Cookie Knox (horsecookies...@wmconnect.commailto:horsecookies...@wmconnect.com) 8-19 Saroj (sarojkumar...@gmail.commailto:sarojkumar...@gmail.com) 8-21 Barbara H. (jbarbara...@gmail.commailto:jbarbara...@gmail.com) 8/22 - Debi (debdo...@aol.commailto:debdo...@aol.com) 8-23 Cole (neilandwe...@rogers.commailto:neilandwe...@rogers.com) 8-29 Lisa Baker (Judy's daughter) (judybak...@juno.commailto:judybak...@juno.com 8-29 Kathleen (kkar...@dacor.netmailto:kkar...@dacor.net ) 8/30 Lynn Pouliot (lpoul...@cox.netmailto:lpoul...@cox.net) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.commailto:rjohnson1...@rogers.com )
Re: [TMIC] Test
You're on! No problem Linda C (Idaho) - Original Message - From: Bill and Mollie Wimberlymailto:bwimbe...@bellsouth.net To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, July 29, 2010 4:35 AM Subject: [TMIC] Test Let me know if you receive this. Thanks Bill
Re: [TMIC] Jude (hey Jude) Talked on Phone
Thanks for all your help, Patti. I used to talk to Jude on her cell phone, but not sure if she uses it either. I have sent her many emails, like many of you, and she never responded. However, since she is feeling so much better I sent her one the other day. Hopefully soon she will be well enough to post to the group. She has always had so much to give. Miss her. Linda (Eagle, ID) - Original Message - From: pjv1...@chartermi.netmailto:pjv1...@chartermi.net To: tmicmailto:tmic-list@eskimo.com Sent: Monday, July 26, 2010 8:23 PM Subject: [TMIC] Jude (hey Jude) Talked on Phone Prayers, antibiotics, food and fluids have all helped Jude recover from her latest UTI. I talked with her tonight on the telephone and I'm amazed how well she sounds. Jude does not remember my visit last week. She was surprised when her husband told her I had visited. That's how sick she was. Jude remembers writing to the tmic and asking Does anyone remember jude, but she doesn't remember getting any responses. I told her to give it a try again, because we are answering and writing, but she doesn't respond to us. She might have Dave set up the laptop tomorrow. I'm going to send her a note and put something in the subject line so she recognizes me and opens my post. Jude answered when I called on her home phone. I don't know if she uses the cell phone or not. I'm going to check in on her and see if I can get some addresses on her laptop. Maybe we can get her back to helping us with her experience and intelligence. Patti - Michigan Blessings to all Patti - Michigan
Re: [TMIC] RE: tmic-digest Digest V2010 #316
Hello Rev Craig and a big warm welcome! My name is Linda and I have had TM for a little over 8 years. Lesions at C4, 5 6. Am able to get around with a cane. You have received a lot of very good information and support from the group, which is why we're all here - to share our experiences and offer support to each other. One thing I wanted to say. In the articles about TM a 2-year guideline has been used in reference to recovery. I think many of us will agree that we are still seeing improvements after many years. I certainly am, even though they may seem small, they are huge to me. Please keep posting so we know how you're doing. Bless you Linda (Eagle, ID) - Original Message - From: Rev. Craig Crossmanmailto:revcross...@gmail.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, July 26, 2010 5:16 PM Subject: [TMIC] RE: tmic-digest Digest V2010 #316 I had multiple MRI's over a four day period plus nerve conductance tests and another neuro test which showed the greatest impairment in my arms. I was blessed with a doctor who told me nothing but the truth; that there is no cure (yet) for TM and that only symptoms can be treated. And he gave me some reading material to study. One of the articles said that 80% of those diagnosed with TM end up needing a wheelchair. But I determined to be part of the 20% that don't. After I broke my back 11 years ago and had a partial spinal cord injury I was in a wheelchair for a bit over a year while I learned how to walk again. So being in one does not worry me - I managed before and I'll manage now. The hardest part was learning how to drive using hand controls. From: tmic-digest-requ...@eskimo.com [mailto:tmic-digest-requ...@eskimo.com] Sent: Monday, July 26, 2010 6:00 PM To: tmic-dig...@eskimo.com Subject: tmic-digest Digest V2010 #316
Re: [TMIC] about Jude (Hey Jude)
Thanks Patti for the update on Jude. The last time I heard from Jude was the same time - her post to TMIC. I did email her immediately but again no response, no answer on the phone either. Prior to that I spoke with Jude on the phone - she was not well. I hope you're able to visit with Jude today and will let her know how much we love and miss her. She's had a hard road. Linda - Eagle, ID - Original Message - From: pjv1...@chartermi.netmailto:pjv1...@chartermi.net To: tmicmailto:tmic-list@eskimo.com Sent: Wednesday, July 21, 2010 7:23 PM Subject: [TMIC] about Jude (Hey Jude) I talked with Jude's husband, David, this evening after receiving a message from him that she is in a hospice program. David said she went to a hospice camp for ten days and came home feeling better last week. Then she woke up during her first night home with a headache and has gone down hill from there. David said Jude has not been talkative lately, but I asked if I could visit with her tomorrow just to sit with her. I'm planning to visit in the afternoon. The last time I heard from Jude was the message that she sent Does anyone remember Jude? Patti - Michigan
RE: [TMIC] OT - need prayers after seeing video will understand why
Bernie, I'm having trouble even finding words. Please know that you, Sara and Sally will be in my thoughts and prayers. hugs, Linda Date: Sun, 18 Jul 2010 03:03:23 -0500 From: bpe...@austin.rr.com To: tmic-list@eskimo.com Subject: [TMIC] OT - need prayers after seeing video will understand why Yesterday my ex wife and daughters duplex went up in flames. It started in their neighbors part, unknown origin as of right now as to the cause. Please keep them in your prayers, Red Cross has them in a hotel for 5 days and then they are on their own. It was a total loss, and that was their car too that was melted to nothing. Both are disabled; Sara has auto immune like me, Sally my ex wife lost 2/3's of her right lung and both breasts to cancer and they are worried it is in her lymph glands. And now this... Life is cruel... http://www.youtube.com/watch?v=-N93sIqERB0
Re: [TMIC] Anniversary
Oh Naomi this truly saddens me that you have these pressure sores and all the special stuff that goes along with them. Boy, I'd be right there with you on the claustrophobic anxiety attack. Lots of positive thoughts for a speedy recovery coming your way. Please keep posting so we know how you're doing. Bless you..Linda - Original Message - From: ladyno...@aol.commailto:ladyno...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Friday, July 02, 2010 2:51 PM Subject: [TMIC] Anniversary Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Have a Blessed Day, Naomi
