Re: [TMIC] Amytretaline (sp)

2010-04-26 Thread Laurie Zissimos

I take Elavil 25 mgs each night and I take Lyrica 150mgs 3x daily.  The Elavil 
was prescribed for me for bladder control.  I also take Ditropan XL 20mgs at 
night.  The Ditropan and the Elavil keep me dry all night.
Laurie in Baltimore






-Original Message-
From: Pieter and Heather pieterheat...@shaw.ca
To: Regina Rummel regina...@sbcglobal.net; tmic-list@eskimo.com
Sent: Mon, Apr 26, 2010 1:35 pm
Subject: Re: [TMIC] Amytretaline (sp)


Regina,
 
OMG.I didn't realize that Amytriptilene was actually Elavil.  
I too was put on that for a short while back in the 70's for depression. 
I too felt 'right out of it' or 'stoned'.  
I couldn't take it then and guess I will just stick with the Neurontin. 
 
Heather in Calgary 

- Original Message - 
From: Regina Rummel 
To: tmic-list@eskimo.com 
Sent: Monday, April 26, 2010 10:34 AM
Subject: [TMIC] Amytretaline (sp)




Hi Jill,
 
I took it years ago for depression and OMG, it was awful!
The best way I can describe it is that I felt stoned.  It was called Elavil 
then.  In those days, they gave it to people in nursing homes to keep them 
quiet.  But everyone reacts differently, so try it and let us know what 
happens, something good I hope. 
 
I take Neurontin but decided on my own to gradually decrease the dose, and 
eventually stop taking a medication that I believe bogus.  So far, I see no 
difference in the pain and the darned TM symptoms.
 
Good luck with the Elavil.
R





Re: [TMIC] Amytretaline (sp)

2010-04-26 Thread Laurie Zissimos
you have to suck on some hard candy for the dry mouth, drinking water or other 
liquid only makes you have to pee more





-Original Message-
From: Laura Beaudin laura.beau...@gmail.com
To: Laurie Zissimos lziss...@aol.com
Cc: pieterheat...@shaw.ca; regina...@sbcglobal.net; tmic-list@eskimo.com
Sent: Mon, Apr 26, 2010 1:45 pm
Subject: Re: [TMIC] Amytretaline (sp)


Tried Ditropan and failed miserably with it...it works well, but boy, talk 
about a dry mouth!! 
 
Laura 
  You can easily judge the character of a man by how he treats those who can 
do nothing for him. -James D. Miles- 
http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER 
BEWARE!!! 
 
On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options 
http://www.practical-homeschooling.org 
 
On 26/04/2010 11:40 AM, Laurie Zissimos wrote: 
 I take Elavil 25 mgs each night and I take Lyrica 150mgs 3x daily.  The 
 Elavil was prescribed for me for bladder control. I also take  Ditropan XL 
 20mgs at night. The Ditropan and the Elavil keep me dry  all night. 
 Laurie in Baltimore 
 
 
 
 -Original Message- 
 From: Pieter and Heather pieterheat...@shaw.ca 
 To: Regina Rummel regina...@sbcglobal.net; tmic-list@eskimo.com 
 Sent: Mon, Apr 26, 2010 1:35 pm 
 Subject: Re: [TMIC] Amytretaline (sp) 
 
 Regina, 
 OMG.I didn't realize that Amytriptilene was actually Elavil. 
 I too was put on that for a short while back in the 70's for depression. 
 I too felt 'right out of it' or 'stoned'. 
 I couldn't take it then and guess I will just stick with the Neurontin. 
 Heather in Calgary 
 
 - Original Message - 
 *From:* Regina Rummel mailto:regina...@sbcglobal.net 
 *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com 
 *Sent:* Monday, April 26, 2010 10:34 AM 
 *Subject:* [TMIC] Amytretaline (sp) 
 
 Hi Jill, 
 I took it years ago for depression and OMG, it was awful! 
 The best way I can describe it is that I felt stoned. It was 
 called Elavil then. In those days, they gave it to people in 
 nursing homes to keep them quiet. But everyone reacts 
 differently, so try it and let us know what happens, something 
 good I hope. 
 I take Neurontin but decided on my own to gradually decrease the 
 dose, and eventually stop taking a medication that I 
 believe bogus. So far, I see no difference in the pain and the 
 darned TM symptoms. 
 Good luck with the Elavil. 
 R 
 
 



Re: [TMIC] Working

2010-03-18 Thread Laurie Zissimos
Wish I could say the same.  When TM hit me in 2005, my employer told me that 
LTD may not get approved and then I would be out of a job.  Instead, they 
offered me a lesser job and a week later told me they decided to eliminate that 
job and offered me a severance. It was like the LTD was off the table at that 
point.  So I had no choice but to negotiate a severance.  The package was for 1 
year and then I filed for disability with SSA.  I got bad advice from all 
parties and now I can't pay all my bills.  Laurie in Balto.





-Original Message-
From: Janet Dunn j.d...@shaw.ca
To: 'Janice Nichols' jan...@centurytel.net; tmic-list@eskimo.com
Sent: Thu, Mar 18, 2010 3:17 pm
Subject: RE: [TMIC] Working


I am trained as a Nutritional Consultant, and I work at the local Healthfood
tore.  I am a licensed practitioner.  However, since the TM attack, I have
 very difficult time being on the floor, consulting with customers so I
ave moved to the office, where I do the invoices, and special orders. It
ould be a full time job, but I just do not have the energy.  The pocketbook
ould use the money, but the body needs the rest.  So, since money can't buy
ealth, I shall just carry on.  I am 47 and I pretend that I am semi
etired!
Go to work at 12:30 or later, and stay until 5:30.  Like I said - I am
rateful for my employer!
Janet




Re: [TMIC] Gabapentin ??

2010-01-14 Thread Laurie Zissimos

 I used to have really strange dreams when I was on Gabapentin.  I was on it 
for 2 years then my neur switched me to Lyrica for which there is no generic.  
Two years later, my neuro has now switched me to Topomax to try to help control 
the weight gain from the Gabapentin and Lyrica.  Good Luck.  Laurie from 
Baltimore.

 


 

 

-Original Message-
From: CANDISKALLEY cakal...@embarqmail.com
To: TMIC-LIST TMIC-LIST@eskimo.com
Sent: Thu, Jan 14, 2010 1:01 pm
Subject: [TMIC] Gabapentin ??


I started a week ago on Gabapentin 300 mg 1X daily but I take approx. 1/2 in 
the 
am mixed with my yogart and the other half in applesauce at night.  The 
Gabapentin does help with some of the nerve pain - when I'm awake meaning that 
it does make me sleep much more - 4 to 12 hours at a time.  I was just getting 
to the point of only sleeping 8 to 10 hours at night with a 2 to 4 hour nap.  I 
also find that I'm dreaming as I'm waking up - something that I haven't done in 
the last 4 years since TM hit.  
My neuro told me to take 1 capsule the first week, 2 the next week, then 3 from 
there on.  I called today and told the nurse that because it was making me so 
tired that I was going to stay on the 1 capsule per day until my body adjusts 
because I was sleeping way too much and not getting anything else done.  I know 
this will happen because each time I've added a med that has a sleepiness, 
fatigue effect, within a month or so my body adjusts and I go back to my 
normal sleep pattern.

I believe that I have seen others here thattake Gabapenin and wonder if they 
have had the same effects?   

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.


 


[TMIC] Age

2009-12-12 Thread Laurie Zissimos
I was 48 when I got TM, that was 4 years ago.

Will you be sharing the results when you get all the responses?

Laurie in Baltimore


[TMIC] Dr Kerr

2009-12-04 Thread Laurie Zissimos
This week I learned that Dr Douglas Kerr will be leaving Johns Hopkins in 
January and relocating to Boston.  I do not know the details other than he will 
be seeing new patients beginning in mid-2010 at Harvard.  Based on the recent 
announcement by NIH and the fact that 11 of the 13  embryonic stem cell lines 
approved by NIH came from Boston Children's Hospital, that he will have a 
better opportunity for research and treatment thru this new venue.  I will miss 
him dearly and hope to travel to Boston one day to see him again as we all get 
closer to a cure for TM, MS or any other spinal cord injury that can benefit 
from stem cell therapy.


Re: [TMIC] Topamax

2009-11-12 Thread Laurie Zissimos

 Had my annual evaluation with Dr Kerr yesterday after a 2+ hour MRI.  The MRI 
preliminary report says there is no evidence for abnormal cord signal to 
suggest transverse myelitis.  I was blown away to learn that the myelin had 
all regrown after 4 years.  Of course, I still can't walk without a walker 
and that is only for ten minutes.  Then I revert to the wheel chair.  I assume 
now all I need if for the nerves to reconnect, lol.  I would be happy to 
receive comments on this report as I am still baffled about the myelin.  I 
thought the loss of myelin was the cause of the paralysis.

Dr Kerr also recommended that I start taking Topamax because I complained about 
the weight gain associated with the Lyrica.  The side effects are kind of 
scarey.  I wondered who was taking it and what their experience had been.

Looking forward to all responses.

Laurie in Baltimore

 

 

-Original Message-
From: Amanda Diskey adis...@yahoo.com
To: tmic-list@eskimo.com
Sent: Thu, Nov 12, 2009 3:14 pm
Subject: [TMIC] Fw: chiropractor


















- Forwarded Message 
From: Amanda Diskey adis...@yahoo.com
To: tmic-list@eskimo.com
Sent: Thu, November 12, 2009 3:14:13 PM
Subject: chiropractor






Does anyone here use a chiropractor or know if it is safe?  My shoulders and 
neck hurt so bad, and I was wondering if it might help me.  the lady i talked 
to also does massage which i will definitely do, but i was wondering about the 
getting adjusted part.  it seems a little scary to me though. any advice or 
thoughts?


 


thanks


amanda









  
 

=


Re: [TMIC] More on Facebook Page

2009-10-19 Thread Laurie Zissimos

 I'm on Facebook too.  I love Farmville and Cafe World.  If anyone wants to be 
my neighbor, you can find me at Laurie Lee Zissimos.  I'd love to add you as a 
friend as well.

Laurie in Baltimore, MD


 


 

-Original Message-
From: Grace M. grace...@gmail.com
To: tmic-list@eskimo.com
Sent: Mon, Oct 19, 2009 3:59 pm
Subject: [TMIC] More on Facebook Page












I too love Facebook.  Finding Krissy was great because for the first time, I've 
actually found someone else who likes my music.  Dare I say that I'm a *Tool* 
fan? (Yeh, yeh, I know that I'm too old and should be listening to Lawrence 
Welk recordings instead.)   Not to mention that Krissy and I share the same 
sense of humordry and droll.  ;-) 



 


Love ya Krissy!!!  


Gracie






















  


 


 




---Original Message---


 




From: Krissy Z


Date: 10/19/2009 11:16:16 AM


To: tmic-list@eskimo.com


Subject: Re: [TMIC] Facebook Page



 








I know it defiantly took my time on here...but i love the people and the games, 
it's fun and social at the same time. And seeing some of my TM friends there 
and having fun with them is just great! Grace and I share music, Gilly Jim Dave 
etc and I love mafia wars :)

Come on over!

~Krissy~
We are all in this together, by ourselves.

- Lily Tomlin

~I'm In pretty Good Shape 
For the Shape I am in~


--- On Fri, 6/26/09, Cindy McLeroy cindymcle...@socal.rr.com wrote:



From: Cindy McLeroy cindymcle...@socal.rr.com
Subject: Re: [TMIC] Facebook Page
To: bradebi brad...@gmail.com, Akua a...@artfarm.com, 
tmic-list@eskimo.com, Jim Lubin jlu...@eskimo.com

Date: Friday, June 26, 2009, 10:01 PM



 

Now when folks wonder why the list is slow, they should go to facebook and 
check out Farm Town.  That must be where everyone disappears sometimes.




- Original Message - 


From: bradebi 



To: Akua ; tmic-list@eskimo.com ; Jim Lubin 



Sent: Friday, June 26, 2009 3:29 PM


Subject: Re: [TMIC] Facebook Page














I am too!!!...I love Farm Town!.I am taking a break... .I am into building 
my Zoo right now..it is addicting too!.


Debi


 






 


 



---Original Message---


 




From: Jim Lubin


Date: 6/25/2009 7:37:10 PM


To: Akua;  tmic-list@eskimo.com



Subject: Re: [TMIC] Facebook Page



 
there are several TM-ADEM-NMO groups on Facebook, most are linked here
http://www.myelitis.org/support.htm


Jim 
(who has become addicted to the Farm Town game on Facebook)

At 06:43 PM 6/24/2009, Akua wrote:


I'm digging Facebook--- what about creating a fan page.
-- 



Jim Lubin   
jlu...@eskimo.com
http://makoa.org/jim 

disAbility Resources: http://www.makoa.org






 










































 






































 



Re: [TMIC] weird sensations

2009-09-14 Thread Laurie Zissimos

I've experienced the vibrating as well when I have too much Lyrica.? In fact, I 
can't even talk right as my bottom lip shakes and my tongue doesn't work 
right.? It's almost like drinking too much caffien.? Very weird feeling.? 
Perhaps its the combo of Lyrica and caffien.? Only time and patience clears it 
up.



Laurie from Baltimore


-Original Message-
From: roseofr...@aol.com
To: k...@frontiernet.net; tmic-list@eskimo.com
Sent: Mon, Sep 14, 2009 11:38 am
Subject: Re: [TMIC] weird sensations




Kathleen ~

?? I had the same reaction when I was taking Topamax.

Felt like I was going to vibrate right off my bed and out the

window.? :-)? I would just stay in bed until it passed.

When I stopped taking the Topamax the vibrating stopped 

also.

?? Gunny is probably right...it's probably your Lyrica.

I would decrease my dosage and see what happens.

?? ~ Lynn



Re: [TMIC] Looking for TMr's for support groups

2009-09-14 Thread Laurie Zissimos
Laurie from Baltimore.??? FYI, I've found that some of the support group 
data is dated or incorrect.? You might have better luck contacting the 
National Org if you have a problem.? 





-Original Message-
From: Barbara H. barbara...@gmail.com
To: tmic-list@eskimo.com
Sent: Sun, Sep 13, 2009 11:05 pm
Subject: Re: [TMIC] Looking for TMr's for support groups


There is a list of established support groups for various states and countries 
here:
http://www.myelitis.org/support.htm#3

Barbara H.
http://barbarah.wordpress,com


On Sun, Sep 13, 2009 at 9:25 PM, Catherine camoa...@yahoo.com wrote:




Kevin,

That is a wonderful idea.? Why don't we all just say where we are from .. as I 
have seen here.? Several support groups may start.? Thank you for a great idea

So I will start...

Catherine, caretaker?  Central Mass.




From: kevin weilacher hwyfli...@yahoo.com
To: tmic-list@eskimo.com
Sent: Saturday, September 12, 2009 4:59:53 PM
Subject: [TMIC] Looking for TMr's from N.E. Ohio area


Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been some 
changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there is an 
Ohio support group but I believe the closest area is Columbus. Honestly, that 
is a bit too far for me to drive for support meeting get togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone help me 
out..?
I think we could benefit from something like thisespecially in light of the 
recent posting from Gilly...where she said that she just recently met another 
TM'r. How many others are out there that would like to meet another TM'r and 
you might have someone in your back yard so to speak that you don't know 
about.

Thanks,
Kevin













Re: [TMIC] Digital Removal

2009-09-01 Thread Laurie Zissimos

 Thanks to all who responded to my bowel question.? I appreciate all of the 
advice including the humor.? Besides, if we can't have any fun what's the 
point.? Laurie in Baltimore


 


 

-Original Message-
From: Janice jan...@centurytel.net
To: tmic-l...@eskimo.net
Sent: Tue, Sep 1, 2009 2:04 am
Subject: [TMIC] Digital Removal
















For all of you that responded and those of you that just read 
and laughed, I feel like a real dummy! But, having 
said


that, it is a rule with this group that ANY questions are 
answered to the best of our ability.??? Admittedly, most 
are


more intelligent.Hopefully, will do 
better in the future.


?


Thanks for all those who answered delicately!


?


Janice

 



[TMIC] Fwd: Bowel Question

2009-08-30 Thread Laurie Zissimos










For about a week now, I feel the need to have a bowel movement each time I 
stand up.? Up to this point, I have had to use a variety of stool softeners, 
laxatives and fiber pills to have a bowel movement.? Anyone have any ideas what 
it could be?? Laurie in Baltimore




 



Re: [TMIC] Fwd: Bowel Question

2009-08-30 Thread Laurie Zissimos

 I'm 52 and I have had TM for 3.5 years.? I'm a T-10 (originally a T-7) and 
with intense PT, I have been able to regain 70% functionality.? I get around 
with a walker in the house and for short jaunts like a doctors appt or a 
restaurant.? For longer journey's I have to use the wheel chair.? I am on 
Lyrica for the pain and Ditropan XL for bladder control. I have tried stool 
softeners, laxatives, fiber, Miralax and Calm Cure.? Last week I stopped all of 
it because I felt I was taking too much medicine and wasn't getting the right 
results.? Hope that helps.? Laurie in Baltimore


 


 

-Original Message-
From: fr...@franksheldon.com fr...@franksheldon.com
To: Laurie Zissimos lziss...@aol.com; tmic-list@eskimo.com
Sent: Sun, Aug 30, 2009 4:55 pm
Subject: Re: [TMIC] Fwd: Bowel Question










I feel the need to have a bowel movement each time I stand up. 

Verry Interesting !!

I usually get that feeling when I sit down.

Are you regular?  What meds are you using for your intestines and bowels now?  
How old are you?  Do you enjoy italian food?

Excuse Me, I know better, but get asking questions and have trouble stopping 
whether I'm sitting or standing.

Maybe you should see your local medical doctor, and have a rectal exam and 
stool 
examination for blood.

TTFN

pHranq3ue




 



Re: [TMIC] EASY STAND

2009-08-18 Thread Laurie Zissimos

 Akua - I also have one at home.? I am a T-7 with TM for 3.5 yrs and I have had 
my bike for about 1.5 years.? It's great because as Cody said it is simple to 
operate.? If you can't use the handle bar grips, someone can stand in front of 
you and do the pushing.? Your legs and hips still get a work out, just not your 
upper body.? Insurance paid for mine also, but the price was $11,000.?? Laurie 
in Baltimore


 


 

-Original Message-
From: Cody c...@austin.rr.com
To: TMIC tmic-list@eskimo.com; Akua a...@artfarm.com
Sent: Mon, Aug 17, 2009 10:47 pm
Subject: Re: [TMIC] EASY STAND
















AkuaYes I am paralized from T-3/4. It helps 
with maintaining muscle and bone strength in my legs and my arms, blood flow 
and 
blood pressure, range of motion in my hips, and it helps me mentally to know I 
am doing something positive. It helps me with my arms and hips because?the 
standing ?frame allows my legs to move back and forth as I move the hand 
grips/glides?back and forth in the top of the frame. Basically the hand 
grips on top are connected to the foot shoes on the bottom of the 
frame?with a resistance cannister in between, The reisstance cannisters 
look like shock abssorbers?and you can dial in the the amount of resistance 
you want. I know all of this may sound complicated but it is a pretty simple 
operation. I transfer onto the seat from my wheelchair without using my sliding 
board.?I think they sell for around $5K. My insurance company paid for it 
and I have had it for eight years. I am glad you ask about it because I have 
been kinda lazy lately.?You can see a picture of mine at the following web 
site http://www.easystand.com/evolv-glider/index.cfm.. Let me know if you have 
any more questions.Cody in 
Austin?



  
- Original Message - 

  
From: 
  Akua 

  
To: Cody 

  
Sent: Monday, August 17, 2009 8:15 
  PM

  
Subject: Re: [TMIC] EASY STAND

  



  
are you paralyzed?

  
Does this help

  
In what way?

  



  
Thanks

  



  
AkuaI have one if you have 
questions, I will try to answer themCody in Austin


- Original Message -


From: Akua


To: tmic-list@eskimo.com


Sent: Monday, August 17, 2009 11:36 AM


Subject: [TMIC] EASY STAND






Anyone use an easy stand or equivalent?


www.easystand.com


--


  



  



-- 


  
http://www.akuadesigns.etsy.com
http://www.artfarmpaperwworks.etsy.com

  
http://www.akua.artfire.com
http://Akuadesigns.ShopHandmade.com
http://en.dawanda.com/shop/AkuaDesigns
http://www.artfarm.com

  
http://www.absolutearts.com/portfolios/a/akualezli/

  
http://www.zencrochet.blogspot.com/
http://www.healrecover.blogspot.com
http://www.akuahaiku.blogspot.com
http://www.akualezli.blogspot.com
http://imagecarve.blogspot.com/
http://lowgourmet.blogspot.com

  




 



[TMIC] Medicare Question

2009-08-05 Thread Laurie Zissimos
Thanks to all of you who wrote me about my Medicare concerns. You will be happy 
to know that? I finally contacted my SSDI representative at the Railroad 
Retirement Board and he clarified the following information for me.

1.? He recommended that I take Part B now along with Part A that will be 
effective Sept 1, 2009.
2.? He said that as long as I have secondary insurance (my COBRA with Blue 
Cross), not supplemental, that the COBRA is my primary insurance and the 
Medicare will be secondary. 
3.? As soon as I turn 65, the Medicare A and B will be my primary and the COBRA 
or any other private insurance will be my secondary and my supplemental until 
it goes away.
4.? At that time, I will have to select a Part B plan from those that are 
available in my area.? I may also want to purchase private insurance for 
supplemental benefits.
5.? At that time, I can also sign up for Part D.
5.? The Advantaged Plans are considered to be Part C or Part B and Part D 
combined.? They are better than the original Part B and D and cost more as 
well, but they include things that would otherwise be picked up with a 
supplemental insurance.? 

I hope this is not confusing to understand, LOL, and perhaps some of you may 
find it helpful.? Thanks again.

Laurie


Fwd: [TMIC] healthcare

2009-08-04 Thread Laurie Zissimos

 see below


 


 

-Original Message-
From: Laurie Zissimos lziss...@aol.com
To: rn11...@yahoo.com
Sent: Tue, Aug 4, 2009 6:31 pm
Subject: Re: [TMIC] healthcare











 Maybe you can help me.? I was diagnosed with TM in Dec 2005 and went on SSDI? 
a year and a half later.? This September I have to enroll in Medicare and I 
don't know whether or not to get Part B/D at this time.? I am on my husband's 
COBRA until January unless I file for an extension which I may do since I have 
that option being disabled.? It's pretty expensive, but Its Blue Cross and they 
have covered almost all of my medical exp since the diagnosis.? Our Blue Cross 
plan is a PPO so we don't need precerts/pre auths.? It makes it much easier 
seeing specialists.? He also has another plan through a part time employer but 
I don't think the benies are that great.? My first question is whether or not I 
should sign up for Part B, Part B Advantaged, or Part B and D.? I am trying not 
to lose the BlueCross, but I also don't know which of the new health coverages 
would be primary, secondary or other.? Is Medicare always considered primary or 
is it secondary??? Laurie





 





 



-Original Message-

From: rn11...@yahoo.com rn11...@yahoo.com

To: tmic-list@eskimo.com

Sent: Tue, Aug 4, 2009 6:14 pm

Subject: [TMIC] healthcare





















Hi,




?? I have been on social security disability since 1996,5 months after getting 
tm.I was 49 (now I'm 63).I have a medicare hmo health plan.I have had this 
since cobra ran out.I pay $173 a month.My dr visits are $10,a specialist $20.I 
have a deductable of $100 per day if hospitalized (for the 1st 8 days).It 
also?includes the part d to help pay for meds,but I get many of my meds at 
walmart for $10 for a 90 day supply.The others I get for 90 days through 
express scripts.I'm sure that on Jan 1st the cost will go up and the benefits 
will change.




?? I pay out of pocket over $4000 a year for insurance and meds.Thank God I had 
long term disability insurance when tm hit me.I get a total of 60% of?what I 
was earning in 1995.




? I live in Mass.,where you must have some type of medical insurance,or you pay 
a penalty when you file taxes.My ex husband paid $600 this year for not having 
health insurance last year. I finally got him to get medicare when he turned 65 
in March.Now if I could convince him to insure his house!




?? Well,I don't post often,but I'm sure wordy when I do!




?? My best wishes to everyone,




 Cheryl in HOT Easthampton,MA.




?? 




?? 











  



 


 



 



Re: [TMIC] Re: [QUAD-L] 35 year anniversary

2009-08-01 Thread Laurie Zissimos

 Heyjude - I've only been a TM for 3 yrs and have been reading the emails for a 
couple of weeks deciding whether or not I want to join in.?? I've been quite 
surprised by some of the things I've read and applaud you even though you were 
slightly off point.? Maybe someone can tell me what I am missing because so far 
this site seems like a fraternity with way too many personal messages clogging 
up the email cyber waves.? Curious?? lz


 


 

-Original Message-
From: heyjude48...@aol.com
To: lilroamin...@verizon.net; TMIC-List@eskimo.com
Sent: Sat, Aug 1, 2009 1:05 am
Subject: [TMIC] Re: [QUAD-L] 35 year anniversary


















  

  



  

  
Will you people whom do not have 
  TM along with being? quads? please create a site of your own 
  and use it.? You are breaking into a site for people who have a 
  disease called Transverse Myelitis, and unless you have it, I feel you 
  ought not be here because you will never understand the things we talk 
  about.? Some of the topics you will be able to relate to, simply 
  because you are paralyzed or have a similar disability, but you ought to 
  create a site for Quads all of your own.

  
?

  
I am sorry for saying these 
  things.? I wish I didn't feel the way I do.? Those of you with 
  Transverse Myelitis, stay...the rest of you, please begin your own web 
  site and do not clutter up the TM Site.? It very well may confuse a 
  person with new TM who needs a place to go to find solace, to vent their 
  anger, to find the exact same people who have the same problems as they 
  do.? 

  
?

  
This a TRANSVERSE MYELITIS 
  site...not simply for paraplegics, quadriplegics, or people with diseases 
  similar to ours.? Unless you have Transverse Myelitis, you do not 
  belong here.

  
?

  
I am sorry that I feel this 
  way.? I don't even know why I feel so strongly about this.? It 
  seems that I am the only person on our site who feels this way since no 
  once has written in to back me up.

  
?

  
Regardless, I feel that you ought 
  to have your own site and that means that it is time for you to create 
  your own site, and move on.;? Please respect our 
  site.

  
?

  
Thank you 
  quads,

  
I love you,

  
Jude...Wait a minute.? I just went back to see where you had 
  addressed your email and it is addressed to a site that is not this 
  one.? I wonder why all of your mail is being sent to out site.?? 
  

  
?

  
Please accept my apology for all 
  of the things I have said.? I am so sorry.? Why didn't one of 
  you come on board to correct me? 

  
?

  
With my deepest 
  regrets,

  
Jude, (big 
  mouth)

  

  
In a message dated 7/28/2009 3:53:14 P.M. Eastern Daylight Time, 
  lilroamin...@verizon.net writes:

  



  

  



  

Hey Dana 
  quadriplegics on 35 yrs. I'm only at 10yrs July 31. I, too, have 
  been pretty healthy.( I'm a c6-7 quad.?I can't stay still for 
  long plus I do get in a manual as often as possible mainly for 
  excercise and to keep my weight down. I went from 205 to 125 now 
  holding at 130. I've broken my right leg 3 times ( shoot almost 
  can't keep count) LOL Mainly from trying things, but if you don't 
  try, how will you know if you can, right.) For those of you who 
  don't know me.

  
By the way I'm about to be a 
  grandma, my daughter is 7 mos and its a girl (woohoo) I'm so 
  excited.

  
?

  
Oh Dana by the way What I'm worried 
  the most about the?medicare/medicaid?is they 
  (government)want to stop in-home care.

  
One thing I have heard is The 
  Governor of Texas is really looking into the healthcare, like he 
  did the stimulus thing. He didn't take all the money only enough 
  to help the unemployment and welfare n few other things. What I 
  don't understand with the Healthcare is with its hard enough with 
  getting things with medicare/ medicaid?I hope and pray they 
  don't screw it up worse.

  
?

  
Regina

  

Life's greatest 
  accomplishments are those that at first seem impossible and
No 
  one can know what they can do until they try.

--- On 
  Mon, 7/27/09, dav...@aol.com dav...@aol.com 
  wrote:


  

From: 
dav...@aol.com dav...@aol.com
Subject: Re: [QUAD-L] 
35 year anniversary
To: quad-l...@eskimo.com
Date: Monday, 
July 27, 2009, 10:25 AM





congrats 

Re: [TMIC] Regrets from Jude

2009-08-01 Thread Laurie Zissimos

 How many emails does it take to say i'm sorry.? This is why i am frustrated 
with all of the personal messages being transmitted on this site.? 


 


 

-Original Message-
From: heyjude48...@aol.com
To: TMIC-LIST@eskimo.com
Sent: Sat, Aug 1, 2009 2:29 am
Subject: [TMIC] Regrets from Jude


















  

  



  

  
To all on the TM 
  List,

  
?

  
Whether you have been on this list 
  for a short time or a very long time, I address my comments to you and I 
  promise not to take up too much of your time.

  
?

  
Ever since I joined this List, I 
  have had a tendency to make remarks and write email that has resulted in 
  hurting someone's feelings.? I have deeply offended some of the 
  persons whom I most respect in the World, and have never meant to do 
  so.

  
?

  
I don't know what is wrong with 
  me.? I promise you that I will get help with this continuing 
  issue.? I have a friend whom is a psychologist and she says that she 
  will help me with whatever I need.

  
?

  
As I have asked you 
  before...please forgive my heartfelt apology.? I feel like I have 
  been such an ass to make the comments that I have in some of my 
  emails.

  
?

  
I will find elsewhere to go, but 
  before I do, there are people I must take the time to 
  thank.

  
?

  
Elle, you know that you are the 
  first person I ever exchanged email with shortly after I became changed 
by 
  Transverse Myelitis.? I must thank you for the unwaivering? 
  friendship, the ongoing love, phone calls, email cards and cards when I 
  was in the hospital.? Without you and the Prayers you offered up in 
  my name, I never would have lived through that long and mighty illness. 
  

  
?

  
I love you,

  
Jude