Re: [TMIC] Unidentified subject!
Dalton, I will be having my bone density test soon. I've had osteopenia since before TM and developed jaw bone problems after one of the early osteo drugs given to women years ago. I think that med was removed from the market and I have gently refused any of the new meds since. I'll have to make a decision again when my new PCP gets my report. However, I'll feel more comfortable discussing it this time, because I chose a female doctor who may also face the same decision as she ages. Keep us informed and if anything changes I'll post an update. Patti - Michigan On Jan 26, 2015, at 9:13 AM, Suerdlagpunga suerdlagpu...@gmail.com wrote: Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Okay – I am dealing with something else then.Wonder what causes this problem.Told my doc about it and he just said to stretch it out – which I do. Only lasts about a day or so at a time. Janice From: Robert Pall Sent: Wednesday, January 28, 2015 10:12 AM To: jannic...@gmail.com ; malugss...@me.com ; nmacleo...@yahoo.co.uk Cc: i.whidd...@icloud.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! Banding to me does not mean painit means tightness! Like a rubber band being pulled to its limit! The baclofen pump is used to reduce banding and spasticity. Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com Sent: Wed, Jan 28, 2015 10:30 am Subject: Re: [TMIC] Unidentified subject! Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Banding to me does not mean painit means tightness! Like a rubber band being pulled to its limit! The baclofen pump is used to reduce banding and spasticity. Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com Sent: Wed, Jan 28, 2015 10:30 am Subject: Re: [TMIC] Unidentified subject! Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few weeks I have severe sharp pain at the top of my rib cage where it is almost hard to breathe. Is that banding? Janice -Original Message- From: Dalton Garis Sent: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying to fall asleep. Dalton On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Everybody, I had the baclofen Pump inserted in June 2013. Before the pump could be inserted I first had to do a trial at the hospital to determine if the pump was right for me. My neuro felt that the banding in my legs is caused by spasticity and not weakness. The reason I went with the pump is because I could not tolerate taking baclofen orally. To cut to the chase .I am considering removing the pump because the dosage required to help the banding also has caused me to have heart palpitations,nausau and a feeling of bloatedness. In addition it has made me lose my appetite causing me to lose 30 lbs. This is after my doing all possible due diligence. Therefore even though the pump has somewhat improved my banding the side effects eliminate the positives. God I hate TM Rob in NJ -Original Message- From: Sandra Melville luth...@comcast.net To: Pat p...@voorheissigns.com Cc: robthecfo robthe...@aol.com; tmic tmic-list@eskimo.com; Iris Whiddett i.whidd...@icloud.com Sent: Wed, Jan 28, 2015 1:10 pm Subject: Re: [TMIC] Unidentified subject! Everybody, Pat just reminded pointed out that I miss-spoke in my last post. Please excuse me, Baclophen is a muscle relaxant and anti-spasm med. It is NOT an anti-seizure med. One should never substitute one for the other without talking to one's doc! Dangerous effects could occur! Everybody, please don't take meds on the information of somebody on-line for just this reason-someone may mis-speak! Pat, I thank you! This message is intended for the use of the person(s) to whom it may be addressed. It may contain information that is privileged, confidential, or otherwise protected from disclosure under applicable law. If you are not the intended recipient, any dissemination, distribution, copying, or use of this information is prohibited. If you have received this message in error, please permanently delete it and immediately notify the sender. Thank you. Original message From: Sam Melville luth...@comcast.net Date:01/28/2015 9:20 AM (GMT-05:00) To: Pat p...@voorheissigns.com Cc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com Subject: Re: [TMIC] Unidentified subject! Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Everybody, Pat just reminded pointed out that I miss-spoke in my last post. Please excuse me, Baclophen is a muscle relaxant and anti-spasm med. It is NOT an anti-seizure med. One should never substitute one for the other without talking to one's doc! Dangerous effects could occur! Everybody, please don't take meds on the information of somebody on-line for just this reason-someone may mis-speak! Pat, I thank you! This message is intended for the use of the person(s) to whom it may be addressed. It may contain information that is privileged, confidential, or otherwise protected from disclosure under applicable law. If you are not the intended recipient, any dissemination, distribution, copying, or use of this information is prohibited. If you have received this message in error, please permanently delete it and immediately notify the sender. Thank you. div Original message /divdivFrom: Sam Melville luth...@comcast.net /divdivDate:01/28/2015 9:20 AM (GMT-05:00) /divdivTo: Pat p...@voorheissigns.com /divdivCc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com /divdivSubject: Re: [TMIC] Unidentified subject! /divdiv /divSome of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has been successful. Patti - Michigan On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Hi Sam, That information in very useful, thanks. Nikki, UK Sent from my iPad On 26 Jan 2015, at 14:47, luth...@comcast.net wrote: Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston. Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association: http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923 Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you. Sam from Boston -Original Message- From: suerdlagpu...@gmail.com To: i.whidd...@icloud.com Cc: tmic-l...@eskimo.net,vasso...@gmail.com Sent: 2015-01-26 09:17:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Hi, Dalton sorry to hear that you are in so much pain. Personally, I the only experience of osteo meds is being prescribed extra CalciChew for my bones and Lidacane patches for the pain. Hope you get sorted soon. Nikki, UK Sent from my iPad On 26 Jan 2015, at 14:47, luth...@comcast.net wrote: Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston. Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association: http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923 Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you. Sam from Boston -Original Message- From: suerdlagpu...@gmail.com To: i.whidd...@icloud.com Cc: tmic-l...@eskimo.net,vasso...@gmail.com Sent: 2015-01-26 09:17:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time. My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff. Has anyone had experience taking any kind of osteo medicine, and what were the side effects? Thanks, Dalton Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- "Sam from Boston."Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being "MS of the spinal cord." If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpu...@gmail.comTo: i.whidd...@icloud.comCc: tmic-l...@eskimo.net,vasso...@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebraeL2and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I dont sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Drs office every 6 months, for bone health. It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton Dalton GarisFlushing, QueensNew York, USA(718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad
Re: [TMIC] Unidentified subject!
Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote: Hi, I also suffer from 'banding', the neurologist didn't speak about it but I learnt what it was from other people TM had hit. Nikki, UK Sent from my iPad On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote: Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Iris, I found that there are several different FB pages, one is "people living with transverse myelitis" that seemed to be very helpful. You might look at that one ;-) Glad you are finding support! Cheers! Sam On Jan 26, 2015 11:33 AM, Iris Whiddett i.whidd...@icloud.com wrote:Thanks Sam, you are so right about this Group. Ive tried facebook but I dont feel it compares to the help and support and useful information always to be found here. Iris UKSent from my iPadOn 26 Jan 2015, at 14:47, luthyen@comcast.net wrote:Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston.Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you cant explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here: Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpunga@gmail.comTo: i.whiddett@icloud.comCc: TMIC-LIST@eskimo.net,vasso9.s@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health. It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton Dalton GarisFlushing, QueensNew York, USA(718) 838-0437 On Jan 26, 2015, at 2:34, Iris Whiddett i.whiddett@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso9.s@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whiddett@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad
Re: [TMIC] Unidentified subject!
I have never really been bothered by banding - sometimes I can feel it, but really no problem. My worst problem is spondolosis/arthritis down low in my back that is aggravated by TM. Also, the never going down the backs of my calves. That can knock me to the floor when it hits. Otherwise, I'm pretty good. Janice -Original Message- From: Iris Whiddett Sent: Sunday, January 25, 2015 4:10 PM To: robthe...@aol.com Cc: tmic Subject: [TMIC] Unidentified subject! Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Dear Friends While things are so quiet, thought I would share with you the awful fright I suffered this week. I was aware of some discomfort in my back on Monday last, which quite quickly progressed to excruciating pain and difficulty even moving. I feared TM had taken another hit at me, this time further down my spine. Flat on my back, fearing the worst, it dawned on me that I could move my legs quite freely while prone and therefore could NOT be the b*d TM! The relief!! Total rest and anti-inflammatory medication have now seen a big improvement and I'm tending to think I did some damage hauling myself into my husband's Grand Cherokee when we went out on the Sunday. There's no chance he will swap his pride and joy for something more suitable so I've compromised ( as we women do) and ordered a step to assist - a tad undignified but, then, that went out the window when TM flew in! Regards to all Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Iris, What a scare! Did you ever find out what you did to your back?Glad you are doing much better now.I know how you feel about trying to get into a bigger car. We had to do that too after TM struck to make room for wheel chair, walker, etc.It really is hard to get in if you are short and, I cannot boost since TM, so it makes it harder.I am assuming none of us can boost any more. What about it? Can any of you still boost? I wish you continued improvement with your back and whatever you did to it to hurt it - don't do it again. Janice -Original Message- From: I.WHIDDETT Sent: Saturday, September 28, 2013 10:20 AM To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! Dear Friends While things are so quiet, thought I would share with you the awful fright I suffered this week. I was aware of some discomfort in my back on Monday last, which quite quickly progressed to excruciating pain and difficulty even moving. I feared TM had taken another hit at me, this time further down my spine. Flat on my back, fearing the worst, it dawned on me that I could move my legs quite freely while prone and therefore could NOT be the b*d TM! The relief!! Total rest and anti-inflammatory medication have now seen a big improvement and I'm tending to think I did some damage hauling myself into my husband's Grand Cherokee when we went out on the Sunday. There's no chance he will swap his pride and joy for something more suitable so I've compromised ( as we women do) and ordered a step to assist - a tad undignified but, then, that went out the window when TM flew in! Regards to all Iris UK Sent from my iPad
[TMIC] Unidentified subject!
Thanks for your third journal, Rob. What a great success story. Iris Sent from my iPad
[TMIC] Unidentified subject!
I read a the posts and reply occasionally. Hope everyone is keeping Well in the northern hemisphere. Cheers Shirley Sent from my iPhone
[TMIC] Unidentified subject!
[TMIC] Unidentified subject!
RickAshford
Re: [TMIC] Unidentified subject!
Hello to you. I hope you are having a great day. Patti On Sun, Feb 10, 2013 at 10:23 AM, Anne Shreve sthrnbll...@yahoo.com wrote: Hello! http://twistoys.com/thy/6vphpoeu65?gwk0
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Hi Deb, I had no idea you were involved with TMIC in that capacity. I never knew that about you. Surprise, surprise! I am trying to get people involved with us and am struggling to come up with things to discuss. You say that you try to make sure that topics are not talked about over and over, but it's hard to come up with things that are new. What am I supposed to do. At least there are a few more people writing in now. Or is it only that I have just come back? Have people been writing back and forth that you know of? Please let me know. I appreciate your attention. Thank you, Jude, Midhigan In a message dated 1/25/2013 8:00:48 P.M. Eastern Standard Time, dnca...@gmail.com writes: Hi Jude, No, it has nothing to do with getting spammed. I live on the computer. I do all my work on the computer, I build computers, create the websites, proofread all the TMA articles, etc. I know how to get rid of spam. It is just a matter of hitting the delete button. I have been part of the original tmic list almost since the first emails started going back and forth, back in January, 1997. I have watched people sign up with the list, I have watched people die on the list, I have to talk to people with TM on the phone and internet every single day. That is part of my job. I also have met my closest and dearest friends because of the tmic list. I have monitored the list for 16 years. When there is objectionable material, I notify the proper people, and those emails are deleted so that others who may search the archives for information will not read the objectionable material. I also know that every time an infected email enters my computer (one that has a virus), it has come from somebody on the list who has had their address book hacked. So, when these emails come in to the list, we simply unsubscribe them from the list, so that they are unable to send any more emails to the list until they get their computers fixed. Once they realize that they have not received tmic list emails, it has probably been after they have removed their viruses, and they resubscribe. So, notifying everybody on the list is really just not necessary. I just know when to sit back and not get involved and have learned from my own personal bad experiences when to back off so as not to get insulted by people who think I am “butting in” too much. I also know that some of the same problems and issues that people are experiencing have been discussed and discussed over and over, and people neglect to take advantage of all the wealth of information that has been stored in the archives from all the previous email conversations over the past 16 years, and if they are not going to read all the valuable information, rather ask the same questions over and over on the list, why bother trying to explain again? Anyway, I am sorry that I have created such a long email, but I just wanted you to understand where I am coming from, and it has nothing to do with you, just “experience” has taught me to stay in the background. Take care, Debbie From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Friday, January 25, 2013 4:05 PM To: dnca...@gmail.com Subject: Re: [TMIC] Unidentified subject! Ok, Deb, I do not understand what you're saying. Are you not going to send messages to the group anymore? Is it because you are worried about getting spammed? I have only been spammed a handful, if that, many times over all the years I've been on the computer. We really need your input on TMIC. You're a valuable person with a lot of good information to share. I will understand if you don't want to continue with us, but each person makes a difference and your words count. Your friend, Jude Here's to the nights that turned into mornings, with the friends that turned into family. (unknown) In a message dated 1/25/2013 12:33:41 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Hello Jude, First, thank you for not copying the list with my email and private concerns. Some people on the list do not have their computers properly protected with anti-virus software, thus their computers are repeatedly hacked. Also, some people have the option marked “automatically add all people to address book”, so my email address gets entered into all these anonymous computers, and when they get a virus, I (and hundreds of other people) receive an infected email. If people wish to be on the internet, they should be responsible for protecting their own computers from these infections, and when one person sends an infected email to the list, suddenly about 20 people will send an email to the list that they need to ignore all messages sent by that one person because it is infected. So, I figure that eventually people will “get it” and I don’t
Re: [TMIC] Unidentified subject!
Who are you and what is this email address for? I know you mentioned your email address, but not everyone knows who you are without your name. I think you are Cheryl, but I'm not sure. Jude In a message dated 1/24/2013 10:20:49 P.M. Eastern Standard Time, rn11...@yahoo.com writes: _http://www.polideportivoberja.es/components/com_content/wmnw.html_ (http://www.polideportivoberja.es/components/com_content/wmnw.html) rn11...@yahoo.com
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Todd, what do you know about this diet thing? Janice From: Todd Tarno Sent: Friday, August 31, 2012 6:27 AM To: cos...@yahoo.com ; rboyl...@yahoo.com ; bpe...@yahoo.com ; grace...@gmail.com ; lifeisj...@live.com ; cherp...@msn.com ; tmic-list@eskimo.com ; bgunny7...@aol.com ; balmat...@aol.com Subject: [TMIC] Unidentified subject! http://srcbc.edu.ph/pmngbl.php?iere=iere
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Sorry, I didn't send out this e-mail. From: Janice Nichols jan...@centurytel.net To: Todd Tarno toddtm2...@sbcglobal.net; cos...@yahoo.com; rboyl...@yahoo.com; bpe...@yahoo.com; grace...@gmail.com; lifeisj...@live.com; cherp...@msn.com; tmic-list@eskimo.com; bgunny7...@aol.com; balmat...@aol.com Sent: Fri, August 31, 2012 9:37:25 AM Subject: Re: [TMIC] Unidentified subject! Todd, what do you know about this diet thing? Janice From: Todd Tarno Sent: Friday, August 31, 2012 6:27 AM To: cos...@yahoo.com ; rboyl...@yahoo.com ; bpe...@yahoo.com ; grace...@gmail.com ; lifeisj...@live.com ; cherp...@msn.com ; tmic-list@eskimo.com ; bgunny7...@aol.com ; balmat...@aol.com Subject: [TMIC] Unidentified subject! http://srcbc.edu.ph/pmngbl.php?iere=iere
[TMIC] (no subject)
[TMIC] (no subject)
(http://www.facebook.com/photo.php?fbid=10150537633176880set=a.297092961879.148650.272284236879type=1ref=nf)
Re: [TMIC] (no subject)
ok that is to funny !! - Original Message - From: bgunny7...@aol.com To: jkavanag...@msn.com, hwyfli...@yahoo.com, Tmic-list@eskimo.com Sent: Monday, January 23, 2012 9:58:54 AM Subject: [TMIC] (no subject)
Re: [TMIC] (no subject)
I agree!!! Tooo funny In a message dated 1/23/2012 9:53:04 A.M. Central Standard Time, kimharrison...@comcast.net writes: ok that is to funny !! From: bgunny7...@aol.com To: jkavanag...@msn.com, hwyfli...@yahoo.com, Tmic-list@eskimo.com Sent: Monday, January 23, 2012 9:58:54 AM Subject: [TMIC] (no subject) (http://www.facebook.com/photo.php?fbid=10150537633176880set=a.297092961879.148650.272284236879type=1ref=nf)
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I KNEW THEY WERE ALIENS! From: bgunny7...@aol.com bgunny7...@aol.com To: jkavanag...@msn.com; hwyfli...@yahoo.com; Tmic-list@eskimo.com Sent: Monday, January 23, 2012 9:58 AM Subject: [TMIC] (no subject)
[TMIC] Unidentified subject!
http://www.biotechpestcontrol.in/endex.php?pgbx
[TMIC] Unidentified subject!
http://diaczun.com.ar.elserver.com/order.php?lygl
RE: [TMIC] Unidentified subject!
Jan I am so very glad the healing has started. I hope it continues until you are ALL healed. HAPPY THANKSGIVING TO YOU AND ALL. Patti - Wisconsin From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: Wednesday, November 24, 2010 4:34 PM To: Tina Ahern; Sherry Gillick; Paula Glanzner 61; billy joe; Darlene Bilyeu; Pat Buchanan; Nancy Patton; Suz (at home) Carpenter; Bev Tully; joann/jack; tmic-l...@eskimo.net Subject: [TMIC] Unidentified subject! Here's what I learned today.my Thanksgiving prayer has been granted!! The surgeon at the Wound Clinic let me know that I didn't qualify for Hyperbaric Chamber, but that my healing is beginning to move along at better clip! How many blessings can one 'girl' have? Family and Friends who care and health returning!! Here's hoping you all have a wonderful Thanksgiving!! and thanks for being there for me! Love, jan
[TMIC] Unidentified subject!
Here's what I learned today.my Thanksgiving prayer has been granted!! The surgeon at the Wound Clinic let me know that I didn't qualify for Hyperbaric Chamber, but that my healing is beginning to move along at better clip! How many blessings can one 'girl' have? Family and Friends who care and health returning!! Here's hoping you all have a wonderful Thanksgiving!! and thanks for being there for me! Love, jan
[TMIC] Unidentified subject!
http://blaine_frye.fast-man.com
[TMIC] Unidentified subject!
http://www.jkgj.mpfresh.com
[TMIC] Unidentified subject!
To Emily and her Husband. TM truely is a shock to all involved. I mean,who would ever imagine this would happen. one of my Doc's said TM was something you looked at in med school but never seen it. my neurologist said all you can do is treat the symptoms and do what you can when you can as hard as you can but if you can't then just rest until you can. He incourages physical theropy and well should because the parts effected can go to sleep,so to speak,and thats another world of hurt! tell hubby to talk with us,,you talk with us,,,we are interested more than anybody in how he is doing be it good or unpleasnt as well as how you are standing up under this new world you are in! these people have encouraged me more than I can thank them for,,just being people who truely understand what I have and am suffering. we all have the hardness of this thing and understand more than anyone elsewe live it with you! my name is John. I live in WV I am the hill-billy of the bunch ;) (computer tech for 8 years tractor driver for 5) anything before that is to old From:Emily [mailto:em...@telephonelady.com] Sent: Thursday, September 16, 2010 11:11 AM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged from the hospital last Thursday and he is now working hard at an acute rehabilitation center (3-5 hours each day). He has a very positive outlook and is “taking it one day at a time”. My question is this……is there a support group for spouses of TM? Emily
[TMIC] Unidentified subject!
My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Fw: [TMIC] Unidentified subject!
--Original Message-- From: Jackie Duval To: TMIC ReplyTo: Jackie Duval Subject: [TMIC] Unidentified subject! Sent: Sep 10, 2010 8:57 AM My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT Sent via BlackBerry by ATT
Re: [TMIC] Unidentified subject!
My right leg was/is weaker than my left also. I have had TM for over 3 years now and I know what you are saying when you feel one leg is shorter than the other.I don't think that is happening, but I catch myself feeling that way and then I really straighten up tall and the feeling goes away. I think we tend to lean one way or the other according to weaknesses.I try to always stand as straight as I can - especially when noticing the lean toward the right. Also, pain and weakness can be coming from the hamstring on the right side. Lots of stretching helps that. Hope I helped. Janice -- From: jack...@att.blackberry.net Sent: Friday, September 10, 2010 9:57 AM To: TMIC tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
RE: [TMIC] Unidentified subject!
Yes, I used to feel that way, I really did. However, I took about 3 years of Rolfing and or Massage Therapy treatments - and some of them were very painful. That really helped my legs feel and work better. In fact, I attribute my current ability to walk very well most days to all of the treatments I took. It did cost a bundle, and it did hurt a ton. However, now I don't have that feeling, I can walk quite well, and my right side seems to feel better. Although it has been 6 months since my last massage, and I can feel the thing in my body starting to reach it's tendrils out again and begin to strangle my leg and torso. Time to get going again on the massage thing. We have lost our best rolfer in town, and I am hesitant to try to find another - simply because the treatment is very intense and personal. Try massage, or as has been suggested already - stretching exercises; if you don't use it, somehow, you will lose it. Janet -Original Message- From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] Sent: September 10, 2010 7:57 AM To: TMIC Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
[TMIC] TMIC-unidentified subject
Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.
Re: [TMIC] TMIC-unidentified subject
Ain't life just great. Janice From: rn11...@yahoo.com Sent: Friday, September 10, 2010 3:29 PM To: jack...@att.blackberry.net Cc: tmic-list@eskimo.com Subject: [TMIC] TMIC-unidentified subject Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.
[TMIC] Unidentified subject!
http://puxeceji.tripod.com/qanujo.html Feol yuor libidoo gentitg hiehgr afiter our pilules! She waill groaan like carzy with yuo, after you try uor capsues! Take this taablet and ayou'll be able to teka reh as many tuimes as you watn.
[TMIC] Unidentified subject!
as of Thursday I will have a new email address. Please update your contact list to below Thanks kim kimharrison...@comcast.net
[TMIC] (no subject)
I second what Janice said, you betcha. Our daughter and son were each married several years before Jim was struck with TM but I guarantee you that either one of them would have ,chosen to have their Dad in there wedding even with a stumble or two than to not have him there. I know our Jodi said of DAD that TM didn't define him,it was just a name and he was still perfect in their eyes, Cherish the memories
Re: [TMIC] (no subject)
10-4! --- On Wed, 8/18/10, celr...@aol.com celr...@aol.com wrote: From: celr...@aol.com celr...@aol.com Subject: Re: [TMIC] (no subject) To: bgunny7...@aol.com, Tmic-list@eskimo.com Date: Wednesday, August 18, 2010, 7:09 PM SO TRUE, MAKES YOU STOP AND THINK!!! THANKS GUNNY. Jane/Splendora Tx In a message dated 8/18/2010 4:07:02 P.M. Central Daylight Time, bgunny7...@aol.com writes: There are five things that you cannot recover in life: (1) The Stone...after it's thrown, (2) The Word...after it's said, (3) The Occasion..after it's missed, and (4) The Timeafter it's gone. (5) A personafter they die
[TMIC] Unidentified subject!
http://tirakoxy.chat.ru
[TMIC] Unidentified subject!
www.buv9.usdrugs-co.com
[TMIC] Unidentified subject!
www.afg8.uspillsstore-c.com
[TMIC] (no subject)
_snopes.com: Mexican Flag at Montebello High School_ (http://www.snopes.com/photos/politics/mexicoflag.asp)
RE: [TMIC] (no subject)
THANK YOU AND A VERY HAPPY NEW YEAR TO YOU AND TO EVERYONE. LET'S HOPE FOR BETTER AND MORE PAIN FREE 2010 FOR US ALL. PATTI - WISCONSIN From: celr...@aol.com [mailto:celr...@aol.com] Sent: Thursday, December 31, 2009 10:32 AM To: TMIC-LIST@eskimo.com Subject: [TMIC] (no subject) HAPPY NEW YEAR TO EVERYONE.
[TMIC] (no subject)
HAPPY NEW YEAR TO EVERYONE.
RE: [TMIC] Unidentified subject!
CHERYL - I WONDERED THE SAME THING. I DON'T INTEND TO DO ANYTHING UNTIL I KNOW THIS IS FOR REAL. I DON'T NEED ANY COMPUTER PROBLEMS EITHER. PATTI - WISCONSIN From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Tuesday, October 20, 2009 11:28 AM To: tmic-list@eskimo.com Subject: Fw: [TMIC] Unidentified subject! Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
[TMIC] Unidentified subject!
Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
Fw: [TMIC] Unidentified subject!
Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
Re: Fw: [TMIC] Unidentified subject!
i believe this is spam... ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Tue, 10/20/09, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Fw: [TMIC] Unidentified subject! To: tmic-list@eskimo.com Date: Tuesday, October 20, 2009, 12:28 PM Hi, Is this letter from the TMIC,and should I reply? I just had a problem after trying to download updates from Microsoft,and I don't want another crash. Thanks,Cheryl in Easthampton,MA. - Forwarded Message From: ESKIMO SUPPORT TEAM spam...@singnet.com.sg To: helpd...@eskimo.com Sent: Tue, October 20, 2009 12:06:27 PM Subject: [TMIC] Unidentified subject! Dear eskimo.com Subscriber, We are currently carrying-out a mantainace process to your eskimo.com account, to complete this, you must reply to this mail immediately, and enter your User Name here () And Password here (...) if you are the rightful owner of this account. This process we help us to fight against spam mails.Failure to summit your password, will render your email address in-active from our database. NOTE: If your have done this before, you may ignore this mail. You will be send a password reset messenge in next seven (7) working days after undergoing this process for security reasons. Thank you for using eskimo.com! THE eskimo.com TEAM
[TMIC] Unidentified subject!
I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109
Re: [TMIC] Unidentified subject!
*I've taken it for years and no it doesn't make a difference. MS is a totally different disease process than idiopathic TM, though MS patients can certainly present with TM. * ** *Grace* On Sat, Sep 12, 2009 at 7:53 AM, Jill Z jillybean60...@yahoo.com wrote: I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109
Re: [TMIC] Unidentified subject!
I wonder if this could work for TM? Does anyone take this blood pressure medicine and notice any difference? Maybe with some blue gatorade and blue MM's it would work better...hehe http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109 Saving this! Thanks Jill! Akua --
[TMIC] Unidentified subject!
Big E
Re: [TMIC] Unidentified subject!
What about Big E?? Janice - Original Message - From: Eugene Streeter streeter...@aol.com To: tmic-list@eskimo.com Sent: Thursday, June 11, 2009 7:07 AM Subject: [TMIC] Unidentified subject! Big E
[TMIC] (no subject)
Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] (no subject)
Sandy, Was thinking about Terry today. Realizing he has surgery tomorrow. Please let us know how he makes out. Heather in Calgary - Original Message - From: parkersw...@aol.com To: tmic-list@eskimo.com Sent: Monday, April 20, 2009 2:01 PM Subject: [TMIC] (no subject) Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
Re: [TMIC] (no subject)
Good to have you back.How was Mexico? Janice - Original Message - From: parkersw...@aol.com To: tmic-list@eskimo.com Sent: Monday, April 20, 2009 3:01 PM Subject: [TMIC] (no subject) Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
[TMIC] (no subject)
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Re: [TMIC] (no subject)
it came through fine in Ohio **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
RE: [TMIC] (no subject)
Trudy, I just changed providers and clinics because of the nurse. I could not get return calls on labs, cultures, prescriptions, nothing I would be waiting all day for a call back and then when I would call at the end of the day, she hadn't even listened to her morning messages! I had to wait 6 months for Lamisil (yes, 6 months) where the fungus was 'in my system' per the provider and I was the one that had to take care of finally getting the insurance approval and all of the paperwork done that the nurse normally takes care of. Having been a lead nurse, this is totally unacceptable and lacks total patient care! I even tried to talk to the doctor but couldn't even get through to her! Not too many of us can pay for an office call just to go in and discuss a provider's incompetent nurse. SO frustrating!!! I had a horrible UTI which can be bad for a non-TM person but some of us can t even feel it when we have the symptoms so they often times will be really bad before we even know we have it! I made an appt. with the new clinic and one of the doctors from the first clinic saw me and when he said he would send a copy of the culture to Dayton, I quietly told him I was not going back. He looked up and asked me if I would mind telling him why and I did. I was very nice and explained the facts and he patted my hand and thanked me saying I was not the first to do this. I told him a nurse could make or break a provider which he agreed. He said he was going to have a 'closed door' talk with my provider when he got back to his clinic. WHEW!!! Was that a bit of venting, or what??? I even surprised myself!! Jeanne in Dayton ---Original Message--- From: Trudy OGILVIE Date: 10/16/2008 9:28:07 PM To: jrushton; [EMAIL PROTECTED]; tmic Subject: RE: [TMIC] (no subject) It's been a miserable week for me also. Still waiting on the results of a CT scan of the kidney, which was done because something was seen on the ultrasound and he needed a better look and that was last Friday. Finally, I called today and was told the nurse would definitely get back to me tonight. I also asked for a copy of the ultrasound and the CT scan. yes, of course said the kind receptionist I'll mail it tomorrow! No phone call and I'll let you know when the mail arrives! I hate to be so cynical but I think with the economic situation the way it is things could get worse! But you never know. things could get better! Have a nice day! Trudy Date: Thu, 16 Oct 2008 06:41:29 -0500 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) I know, Linda..in fact we all do. Trying to find a provider that can even take the time to sit down and talk to you, let alone figure out all of these symptoms and findings is almost impossible! They can treat our symptoms with meds but answering all of our questions is another things. I do find the specialists do have more time but we would have to go to a different one for each of the 'things' we have going on!! Plus, I don't know about you but we just don't have the money to pay what the insurance doesn't cover!! You've got all of us with prayers and encouragement, Linda... Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 10/16/2008 6:44:51 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) I don't know Jean, I am just very frustrated. I had a cat scan done last month and I have an enlarged lymph node in my lung along with 1 cyst in my spleen, a few in my liver, and a few in my kidneys. I have had a lot of wheezing and coughing. I was on prednisone and an antibiotic again and felt great for a few weeks, but seem to be declining again I was looking at nuerosarcoidosis and other types of sarcoidodsis and I seem to have a lot of what I was reading. I just wish some doctor could explain to me what the heck is wrong with me!! Linda in Pa New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! _ Stay organized with simple drag and drop from Windows Live Hotmail. http://windowslive.com/Explore/hotmail?ocid=TXT_TAGLM_WL_hotmail_10200817.jpg
Re: [TMIC] (no subject)
The reason I am curious about sarcoid is I got out my initial brain MRI from 6 years ago and it was one of the differential diagnosis. I have 9 spots on my brain and a lesion -T4-T5 in my spinal cord. Forty days in and still progressing the neuro finally put me on predinsone. It seemed to stop the progression. Sarcoid can come back. I have been on prednisone 2 times this year due to sinus infection that was making all my other problems worse. I felt great for about 3 weeks then slowly feeling worse. Just need to know whether there is a connection between all these cysts and my neurological problems. **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] (no subject)
I don't know Jean, I am just very frustrated. I had a cat scan done last month and I have an enlarged lymph node in my lung along with 1 cyst in my spleen, a few in my liver, and a few in my kidneys. I have had a lot of wheezing and coughing. I was on prednisone and an antibiotic again and felt great for a few weeks, but seem to be declining again I was looking at nuerosarcoidosis and other types of sarcoidodsis and I seem to have a lot of what I was reading. I just wish some doctor could explain to me what the heck is wrong with me!! Linda in Pa **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] (no subject)
I know, Linda..in fact we all do. Trying to find a provider that can even take the time to sit down and talk to you, let alone figure out all of these symptoms and findings is almost impossible! They can treat our symptoms with meds but answering all of our questions is another things. I do find the specialists do have more time but we would have to go to a different one for each of the 'things' we have going on!! Plus, I don't know about you but we just don't have the money to pay what the insurance doesn't cover!! You've got all of us with prayers and encouragement, Linda... Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 10/16/2008 6:44:51 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) I don't know Jean, I am just very frustrated. I had a cat scan done last month and I have an enlarged lymph node in my lung along with 1 cyst in my spleen, a few in my liver, and a few in my kidneys. I have had a lot of wheezing and coughing. I was on prednisone and an antibiotic again and felt great for a few weeks, but seem to be declining again I was looking at nuerosarcoidosis and other types of sarcoidodsis and I seem to have a lot of what I was reading. I just wish some doctor could explain to me what the heck is wrong with me!! Linda in Pa New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! 17.jpg
Re: [TMIC] (no subject)
It is just a theory. I am trying to figure out what it is. It was my family physician that sent me for a cat scan and MRI. He has not talked to me about the findings. Very frustrating **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
RE: [TMIC] (no subject)
It's been a miserable week for me also. Still waiting on the results of a CT scan of the kidney, which was done because something was seen on the ultrasound and he needed a better look and that was last Friday. Finally, I called today and was told the nurse would definitely get back to me tonight. I also asked for a copy of the ultrasound and the CT scan. yes, of course said the kind receptionist I'll mail it tomorrow! No phone call and I'll let you know when the mail arrives! I hate to be so cynical but I think with the economic situation the way it is things could get worse! But you never know. things could get better! Have a nice day! Trudy Date: Thu, 16 Oct 2008 06:41:29 -0500 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) I know, Linda..in fact we all do. Trying to find a provider that can even take the time to sit down and talk to you, let alone figure out all of these symptoms and findings is almost impossible! They can treat our symptoms with meds but answering all of our questions is another things. I do find the specialists do have more time but we would have to go to a different one for each of the 'things' we have going on!! Plus, I don't know about you but we just don't have the money to pay what the insurance doesn't cover!! You've got all of us with prayers and encouragement, Linda... Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 10/16/2008 6:44:51 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) I don't know Jean, I am just very frustrated. I had a cat scan done last month and I have an enlarged lymph node in my lung along with 1 cyst in my spleen, a few in my liver, and a few in my kidneys. I have had a lot of wheezing and coughing. I was on prednisone and an antibiotic again and felt great for a few weeks, but seem to be declining again I was looking at nuerosarcoidosis and other types of sarcoidodsis and I seem to have a lot of what I was reading. I just wish some doctor could explain to me what the heck is wrong with me!! Linda in Pa New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! _ Stay organized with simple drag and drop from Windows Live Hotmail. http://windowslive.com/Explore/hotmail?ocid=TXT_TAGLM_WL_hotmail_102008
[TMIC] (no subject)
Anybody out there ever had sarcoidosis??? Linda in Pa **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] Unidentified subject!
A warm welcome to you Lynne. Larry is right. You will find this group to be very understanding, full of love and support and nothing embarrasses us! We've pretty much talked about everything here. This is a safe haven. I hope you'll feel comfortable and just jump in with any questions or concerns you may have. Looking forward to getting to know you. Hugs, Linda (in Eagle, Idaho) - Original Message - From: Larry Thronemailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 28, 2008 10:48 AM Subject: RE: [TMIC] Unidentified subject! Lynne, As we say around here, glad you found us, sorry you had too. Welcome home. You will find this bunch wonderfully helpfull and underestanding. Don't hesitale asking any questions. You can get a lot of love and support here, all you have to do is ask. Larry in Oklahoma who is going out to mow. Date: Sun, 28 Sep 2008 06:38:39 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
[TMIC] Unidentified subject!
Thanks to all of you who replied to me. Sorry I didnt type more information in introduction, was a long weekend for me and need a few days to recover. I live in Southern Michigan. Lynne
[TMIC] Unidentified subject!
At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
RE: [TMIC] Unidentified subject!
Lynne, As we say around here, glad you found us, sorry you had too. Welcome home. You will find this bunch wonderfully helpfull and underestanding. Don't hesitale asking any questions. You can get a lot of love and support here, all you have to do is ask. Larry in Oklahoma who is going out to mow. Date: Sun, 28 Sep 2008 06:38:39 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
[TMIC] (no subject)
Anybody out there have any problems with chronic sinus infections??? Second time this year I am on Prednisone and antibiotics. It is getting old. Linda in Pa **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514)
Re: [TMIC] (no subject)
In February I had my yearly MRI and it showed severe sinus problems. Everything is blocked. The ENT put me on Prednisone and an antibiotic. It cleared up, but this summer I am having a lot of problems again. I am back on the same regimen again. My family Doc said something about getting the sinuses irrigated. I had some tests done last week and am waiting to hear from him. I get worried because I was having a lot of sinus problems when I first got hit with TM 6 years ago. Over 5 years my sinuses were fine, now all of a sudden here I go again. I need to find out why. Just a little frustrated. Linda in Pa **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514)
Re: [TMIC] (no subject)
Although I am not sure if your doctor has more in mind or not, the Neti Pot is great. I have allergy induced asthma, and hate to take meds year around when I already take so much with my meds for my TM, so I only take my asthma stuff when needed. I am a proud Neti Pot user, and actually have gotten many to use it as well. We get a lot of pollen from our oak tree, and it seems to sit in my nose and throat and work it's way up into my sinuses. The Neti works so well, and you get some immediate relief. Even with a sinus infection, you get some relief right away. I don't know of any medication that will give you that. I highly recommend it, and hope it'll help you. GL and Hugs, Barbara A In a message dated 09/15/08 08:42:56 Pacific Daylight Time, LinLeftwi writes: In February I had my yearly MRI and it showed severe sinus problems. Everything is blocked. The ENT put me on Prednisone and an antibiotic. It cleared up, but this summer I am having a lot of problems again. I am back on the same regimen again. My family Doc said something about getting the sinuses irrigated. I had some tests done last week and am waiting to hear from him. I get worried because I was having a lot of sinus problems when I first got hit with TM 6 years ago. Over 5 years my sinuses were fine, now all of a sudden here I go again. I need to find out why. Just a little frustrated. Linda in Pa Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.
[TMIC] no subject
Heres something new. Sandy made me co-represenative in Tennessee. I like that. More later. Rick
[TMIC] no subject
[TMIC] no subject
Dear friends. I am happy to say I'm back online. Please send me an e-mail to verify that I'm back on line. thanks. Rick PS if you don't mind.
Re: [TMIC] no subject
Hi Rick, Nice to see you back on line. Everyone has been very very quiet for several days. I know it is very very warm here in Calgary and I'm sure a lot of people are enjoying the nice weather everywhere we are on line. I do know that Jude wrote and she is very very ill. Here is her last e-mail sent yesterday. Heather in Calgary I am too sick to email right now. I may have to stop the pure oxygen machine for now. I have just slept for three days and cannot eat a thing. Peace Be With You, Judy Hoops 6067 E. Frances Rd. Mt. Morris, MI 48458 Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. No virus found in this incoming message. Checked by AVG. Version: 8.0.101 / Virus Database: 270.4.2/1523 - Release Date: 6/28/2008 7:00 AM - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, June 29, 2008 6:13 PM Subject: [TMIC] no subject Dear friends. I am happy to say I'm back online. Please send me an e-mail to verify that I'm back on line. thanks. Rick PS if you don't mind. -- No virus found in this incoming message. Checked by AVG. Version: 8.0.101 / Virus Database: 270.4.3/1525 - Release Date: 6/29/2008 3:09 PM
[TMIC] (no subject)
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RE: [TMIC] (no subject)
Linda, I don't have the banding all the time. Mostly it is when I am tired, stressed, or not feeling well. Some times it is just there for no apparent reason but during those times it seems more tolerable than when I am tired, stressed, or not feeling well. I am T-4/ T-9 and early on, I didn't sweat in that range or below. That's pretty normal for paralysis. That is why it is so dangerous for para's and quad's to be out in the heat. We can't turn on the bodies air conditioner.(Sweat) That might explain the (greasy sensation) around the affected areas. I don't remember ever having that sensation. I do remember as my feeling was coming back I itched horribly. A nurse pored corn flower on me and that seemed to help? Anyhow, that's my two cents. Hope everyone has a beautiful day! Happy Spring! Larry in Oklahoma where it is busting out in green today after 4.5 inches of rain the other day. From: [EMAIL PROTECTED]: Thu, 20 Mar 2008 08:37:54 -0400Subject: Re: [TMIC] (no subject)To: [EMAIL PROTECTED]: tmic-list@eskimo.com Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home.
Re: [TMIC] (no subject)
Hi Linda, I don't seem to sweat below my lesion at T8 - T10. I think that was mentioned on the TM Forum at one point and Marieke said that with spinal chord injuries a person doesn't sweat below the lesion. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Thursday, March 20, 2008 6:37 AM Subject: Re: [TMIC] (no subject) Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things. Anybody have a problem with not sweating in affected areas? Linda in Pa -- Create a Home Theater Like the Pros. Watch the video on AOL Home. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1336 - Release Date: 3/20/2008 9:48 AM
Re: [TMIC] (no subject)
Thanks for the response. My feet are hot all the time!!! It is hard in the winter when I have to wear shoes. I could not wear a pair of heels to save my life. I have tried in the shoe store and have to hold on or I will fall over! I am so glad for the response, at least there is one other person who has the grease line, whatever it is. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
[TMIC] (no subject)
Hi, Linda! This is what makes this site such a wonder! I, too, have the greasy line' around the band but had never attributed it to anything! I have a real problem with full blown sweating above the T4 level right up to the top of my head which I had never had problems with before! Plus!! I have to lather lotions and creams on my legs and feet. Strange, huh? My left side is the very worse when it comes to spasms, coldness, and pain but it is by far the strongest. It was the first side to become paralyzed. The right side had hypersensitivity from the start and still has touch sensations but feels dead inside as the left side also does. The right side is also the one that drags. But when I drive it does come to the rescue as it controls the gas and brake. I rarely use the hand control. I did this for a year as I tried to return to work 40 miles away. Isn't that just amazing? I still feel like I am full of wet sand from the chest down even tho I can move around pretty well. I walk like a drunk so it's a good thing to carry a cane when we go somewhere otherwise I get funny looks and chuckles behind hands (that's true!)!!! It's too bad there aren't neurologists and providers reading all of our info They could sure benefit from it! Jeanne in Dayton where it is a beautiful Spring-like morning in the Blue Mountains! ---Original Message--- From: [EMAIL PROTECTED] Date: 3/20/2008 7:38:35 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] (no subject) Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was ascending so was the grease line. It was around my waist and moved upward until it stopped around T4-T5. Another strange thing I experienced was a few weeks in, I had to rub off a lot of dead skin on both legs. Very Weird! It doesn't sound like any one else had these things Anybody have a problem with not sweating in affected areas? Linda in Pa Create a Home Theater Like the Pros. Watch the video on AOL Home.
[TMIC] (no subject)
Hello out there, Just had a question to ask. My first neuro was 77 years old. He talked about a grease line on my body. As the numbness crept up my body I could feel the line around me, but he never explained it to me. Anybody out there know anything about this? It took weeks before I got to my worst and never had any medication or IV therapy. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Unidentified subject!
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Fwd: [TMIC] Unidentified subject!
**It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---BeginMessage--- Top of the Morning! I wish all of you a Happy St. Patrick's Day. It has been extremely quiet. Has anyone out there tried any type of alternative medicine or find that any vitamins or supplements help with any symptoms? Linda in Pa **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---End Message---
RE: [TMIC] Unidentified subject!
Top o' the mornin's to yal. Southern Irish, hahaha. I was wondering if any of you know if low blood pressure can cause a spinal stroke? From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, March 16, 2008 12:15 PM To: TM Subject: [TMIC] Unidentified subject! Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
Re: [TMIC] Unidentified subject!
Things are quiet here for a little while. this happens sometimes. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Monday, March 17, 2008 8:39 PM Subject: [TMIC] Unidentified subject! Wondering if everyone's computer got stolen!! Everytime I log on nobody has anything to say. Everybody ok? Must be out running sprints! I wish we all could -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1332 - Release Date: 3/17/2008 10:48 AM
RE: [TMIC] Unidentified subject!
Everyone must be out doing the town for St. Paddy's day. Date: Mon, 17 Mar 2008 20:41:32 -0600From: [EMAIL PROTECTED]: Re: [TMIC] Unidentified subject!To: [EMAIL PROTECTED]; tmic-list@eskimo.com Things are quiet here for a little while. this happens sometimes. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: TM Sent: Monday, March 17, 2008 8:39 PM Subject: [TMIC] Unidentified subject! Wondering if everyone's computer got stolen!! Everytime I log on nobody has anything to say. Everybody ok? Must be out running sprints! I wish we all could No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1332 - Release Date: 3/17/2008 10:48 AM
[TMIC] Unidentified subject!
Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
