RE: [TMIC] RE Pins and Needles
I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. As a New Yorker, my favorite color for work is black, so that didn't bother me as I already had a bunch of black cotton knit pants for dressy casual that became work wear when i got TM. Mine are different weights -- there are heavy weight cotton as well as light weight. Eddie Bauer, J.Jill, LL Bean --
Re: [TMIC] RE Pins and Needles
Pam, I just can't do dresses at all anymore, anything that moves on me just doesn't do well :) Even with leggings, I still feel the movement. Same with shoes, socks, anything from the waist down. It used to be from the chest down, so there has been some improving. T shirt material is also the best for me. love and light Gilly - Original Message - From: PAMELA S To: mingalett...@activ8.net.au Sent: Wednesday, January 04, 2012 5:51 AM Subject: RE: [TMIC] RE Pins and Needles Same for me. You nailed it on fabrics. I am like Akua on the stretch pants. If I have to wear a skirt, I use cotton tights, not hosery. I have found this more tolerable, then some type of boot with orthotic support to cover where the ankles wrinkle. This requires a longer cotton skirt, and they tend to be soft t shirt type material. I have found some legging at the Avenue Stores, which are also online that are helpful. I wear the 14-16 which is their smallest size. But, since they cater to those of us with a little size, they don't bind as bad on the tummy. I have also bought Jean leggings in a size larger that look like jeans on me. I don't tolerate heavy jeans at all. It's not just the binding it is the weight. I have good luck with dansko and santina shoes as long as there aren't any ridges/seams inside. Socks, I prefer diabetic neuropathic cotton socks, but I too turn socks inside out, so only the smooth size rubs. I do have problems with things going around my calves, because they have become huge compensating for the muscles that no longer work right. Pam -- From: mingalett...@activ8.net.au To: tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Date: Tue, 3 Jan 2012 13:59:09 +1030 I buy my shoes mostly online from Rivers. I've found they are the best for me, mule type of course and I have to make sure to check they have no fancy shmancy stitching around the innersole, that plays havoc. In winter for my good pants, I have Ponte pants from Damart, of course they might still be too thin for your climate. For the farm I have the trackies with no cuff around the bottom, they look ok for going out in too. In summer at home and with family and close friends, I wear leggings, like the gym or yoga pants made from interlock cotton. Good pants are a bit harder to come by. Silk is not a goer for me because of the swishing if it moves on me I'm almost instantly a cripple. Same with the wrong shoes or wrong material. I used to live in jeans, took me quite a while to realise they were at least doubling my pain level. Love and light, Gilly - Original Message - From: Deb Monteleone To: 'Gillian Clark' ; 'TM list' Sent: Tuesday, January 03, 2012 10:37 AM Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be
Re: [TMIC] RE Pins and Needles
most of the time i cant stand to have anything at all on my legs good to see that some get relief From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
Have y'all tried silk long johns...???Very smooth to the skin. And they make great sleepware. BobbyJim in Elvisland - Original Message - From: john snodgrass To: transverse myelitis Sent: Monday, January 02, 2012 11:08 AM Subject: Re: [TMIC] RE Pins and Needles most of the time i cant stand to have anything at all on my legs good to see that some get relief -- From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Bergmolokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30,2011 4:05 PM Subject: Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know
RE: [TMIC] RE Pins and Needles
Hi,
I loved your sentence on shoes. I have done the same thing, able to return a
lot, thank god. It’s even worse with socks, I think I tried every kind of
sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a
pair of good silk socks, depending on the day I can handle them for an hour or
so.
The shoes I found best for me are the Easy Spirit Travel time line. I must
have 12-15 pairs in different colors and materials (on top outside of shoe), at
least it gives some variety. They are also slip-ons (clogs) so I can take them
off as soon as I sit.
I can only wear one kind of pants, all cotton knit, so of course I have many
colors of same pants. I feel kind of funny wearing the same pants to work all
the time. The winters are hell as these pants are not thick or warm. At least
I have free rein when it comes to tops. So not all is bad, got to keep this
positive attitude otherwise don’t know what would happen.
I started taking Ampyra and it really has improved the speed of my walking. At
first it killed me because it seemed to increase my needles, burning, etc.
Since its purpose is to increase nerve conductivity it kind of made sense. It
hurt too much so I cut the dose in half as my neurologist said he would like me
to stick it out if I could. After a month or so, I went back to full dosage
because my walking seemed to be improving. The pain slightly more than normal
but that has reversed and I believe the pain is slightly less. My New Year’s
resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am
also trying to eat healthy. I feel better when I do.
This video from a doctor who got TM really inspired me. I had already seen a
nutritionist and started to lose some weight and this video is similar to what
I’ve already started. It is amazing how this woman healed with mostly diet
changes that effect mitochondria.
Minding Your Mitochondria is the link below to this Doctors amazing journey
with MS.
http://youtu.be/KLjgBLwH3Wc
Make it a great day,
Deb
Long Island, NY
From: Gillian Clark [mailto:mingalett...@activ8.net.au]
Sent: Sunday, January 01, 2012 7:31 PM
To: TM list
Subject: Re: [TMIC] RE Pins and Needles
Thanks for you endorsement Patti, I think that mostly the new tmers are not
understanding how important it is to pay attention to these things. My
wardrobe is now limited to clothes made from materials that hurt the least,
shoes, same quality. I just gave up trying to dress the way I used to, the
elevation in the pain level was just not worth it.
I swear I have more shoes than Imelda Millipede in my wardrobe as I try and
find that perfect pair :).
Wrinkles, heat, cold, so many things that you learn to look out for. Things
that you would never have paid any attention to in your previous life, BTM.
Gilly
- Original Message -
From: mailto:pjv1...@chartermi.net pjv1...@chartermi.net
To: mailto:mingalett...@activ8.net.au Gillian Clark
Cc: mailto:tmic-list@eskimo.com TM list
Sent: Sunday, January 01, 2012 1:52 PM
Subject: Re: [TMIC] RE Pins and Needles
Gilly
You are right to remide us about cothes, shoes and sock contributing to our TM
pain. I think I've posted for eight straight winters that wearing blue jeans
in cold weather puts me right to bed due the the intense pain the cold material
causes. New TMers beware! It isn't just the heat that causes additional painful
sensations. The cold weather causes its own set of problems.
Patti - Michigan
On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote:
John, the sad fact is that nothing really takes it away, I have so far racked
up a bit over 10 years of it.
I must say though that I do believe it has decreased somewhat. Either that or
I'm just used to it.
I don't do meds as all they did was make me completely spaced out or zombie
like and the pain was still there. Strangely enough, just the everyday little
old aspro or Panadol help. Maybe because they concentrate on any other
unrelated pain that then lessons the tm residuals. I have no idea why, I just
know that's what happens for me.
There are other external causes. The shoes you wear, your socks (always wear
them inside out), the clothes you wear, particularly the type of material. I
found that by paying attention to these things, I can lesson (not by a whole
lot) these annoying freeze/burn feelings.
Gilly
- Original Message -
From: javascript:parent.wgMail.openComposeWindow('jcs...@yahoo.com') john
snodgrass
To: javascript:parent.wgMail.openComposeWindow('molokai...@gmail.com') James
Berg; javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
pjv1...@chartermi.net
Cc: javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com') tmic
Sent: Saturday, December 31, 2011 7:47AM
Subject: Re: [TMIC] RE Pins andNeedles
Re: [TMIC] RE Pins and Needles
have not tried that. will consider. thanks From: bobberino elbobber...@earthlink.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Cc: Dalton Garis malugss...@gmail.com; Gillian Clark mingalett...@activ8.net.au Sent: Monday, January 2, 2012 4:58 PM Subject: Re: [TMIC] RE Pins and Needles Have y'all tried silk long johns...??? Very smooth to the skin. And they make great sleepware. BobbyJim in Elvisland - Original Message - From: john snodgrass To: transverse myelitis Sent: Monday, January 02, 2012 11:08 AM Subject: Re: [TMIC] RE Pins and Needles most of the time i cant stand to have anything at all on my legs good to see that some get relief From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au; TM list tmic-list@eskimo.com Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___ From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought
RE: [TMIC] RE Pins and Needles
Hi I finally understand the increase in intenseness with the wrong material. Since this hemangioma – man oh man. I wear sweatpants to work, heavy flannel at home, and last night I put on a pair of light flannel. OMG – I just about hit the roof! Shoes – yes sirree. I am going to look at the Easy Spirit Travel line. Right now I am in clogs. Croc clogs. And mostly bare feet. And sometimes just to cool the burning, I stand barefoot on the floor at work. And it is January in Northern Canada. Ha. Janet From: Deb Monteleone [mailto:aiki...@optonline.net] Sent: January 2, 2012 5:08 PM To: 'Gillian Clark'; 'TM list' Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY
Re: [TMIC] RE Pins and Needles
I buy my shoes mostly online from Rivers. I've found they are the best for me, mule type of course and I have to make sure to check they have no fancy shmancy stitching around the innersole, that plays havoc. In winter for my good pants, I have Ponte pants from Damart, of course they might still be too thin for your climate. For the farm I have the trackies with no cuff around the bottom, they look ok for going out in too. In summer at home and with family and close friends, I wear leggings, like the gym or yoga pants made from interlock cotton. Good pants are a bit harder to come by. Silk is not a goer for me because of the swishing if it moves on me I'm almost instantly a cripple. Same with the wrong shoes or wrong material. I used to live in jeans, took me quite a while to realise they were at least doubling my pain level. Love and light, Gilly - Original Message - From: Deb Monteleone To: 'Gillian Clark' ; 'TM list' Sent: Tuesday, January 03, 2012 10:37 AM Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY
Re: [TMIC] RE Pins and Needles
Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - *From: **john snodgrass* *To: **James Berg*; *pjv1...@chartermi.net* *Cc: **tmic* *Sent: *Saturday, December 31, 2011 7:47AM *Subject: *Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratchthat off my to do list. ___ *From: *James Bergmolokai...@gmail.com *To: *pjv1...@chartermi.net *Cc: *tmic tmic-list@eskimo.com *Sent: *Friday, December 30,2011 4:05 PM *Subject: *Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, *pjv1...@chartermi.net* wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley patticoole...@gmail.com Date: Sun, 1 Jan 2012 09:45:47 -0600 To: pjv1...@chartermi.net Cc: Gillian Clark mingalett...@activ8.net.au, TM list tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, pjv1...@chartermi.net wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyricaalcohol,MJ. scratchthat off my to do list. ___ From: James Bergmolokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30,2011 4:05 PM Subject: Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
Thanks for you endorsement Patti, I think that mostly the new tmers are not understanding how important it is to pay attention to these things. My wardrobe is now limited to clothes made from materials that hurt the least, shoes, same quality. I just gave up trying to dress the way I used to, the elevation in the pain level was just not worth it. I swear I have more shoes than Imelda Millipede in my wardrobe as I try and find that perfect pair :). Wrinkles, heat, cold, so many things that you learn to look out for. Things that you would never have paid any attention to in your previous life, BTM. Gilly - Original Message - From: pjv1...@chartermi.net To: Gillian Clark Cc: TM list Sent: Sunday, January 01, 2012 1:52 PM Subject: Re: [TMIC] RE Pins and Needles Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47AM Subject: Re: [TMIC] RE Pins andNeedles wastalking with the neurologist yesterday about the buzzing,vibrating feelingthat sometimes go all the way into my chest but stays mainly in my legs andfeetwhen its not buzzing it is burning. he called it something but ifailed to write it down. Itried MJ but for me,,,it made it intensify! nothingi have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyricaalcohol,MJ. scratchthat off my to do list. ___ From: James Bergmolokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30,2011 4:05 PM Subject: Re:[TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly - Original Message - From: john snodgrass To: James Berg ; pjv1...@chartermi.net Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax,valium,Lyrica alcohol,MJ. scratch that off my to do list. -- From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
James when I first got TM I ordered vitamin supplements for TM that came from India. After taking them for a few months, my doctor found that it was affecting my liver. They were concerned and were going to do a liver biopsy . I stopped taking the vitamins and when they did a secon dblood test they found my liver was back to normal and I didn't need the biopsynormal so I will never take things that are made in foreign countries. Patti - Wisconsin On Fri, Dec 30, 2011 at 3:05 PM, James Berg molokai...@gmail.com wrote: Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
it is good to know the pros and cons of all that we seek to do,then when we succeed or fail we will not be surprised. From: pat cooley patticoole...@gmail.com To: James Berg molokai...@gmail.com Cc: pjv1...@chartermi.net; tmic tmic-list@eskimo.com Sent: Saturday, December 31, 2011 10:33 AM Subject: Re: [TMIC] RE Pins and Needles James when I first got TM I ordered vitamin supplements for TM that came from India. After taking them for a few months, my doctor found that it was affecting my liver. They were concerned and were going to do a liver biopsy . I stopped taking the vitamins and when they did a secon dblood test they found my liver was back to normal and I didn't need the biopsynormal so I will never take things that are made in foreign countries. Patti - Wisconsin On Fri, Dec 30, 2011 at 3:05 PM, James Berg molokai...@gmail.com wrote: Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
RE: [TMIC] RE Pins and Needles
Patti; Which supplement were you taking? Pam Date: Sat, 31 Dec 2011 09:33:11 -0600 Subject: Re: [TMIC] RE Pins and Needles From: patticoole...@gmail.com To: molokai...@gmail.com CC: pjv1...@chartermi.net; tmic-list@eskimo.com James when I first got TM I ordered vitamin supplements for TM that came from India. After taking them for a few months, my doctor found that it was affecting my liver. They were concerned and were going to do a liver biopsy . I stopped taking the vitamins and when they did a secon dblood test they found my liver was back to normal and I didn't need the biopsynormal so I will never take things that are made in foreign countries. Patti - Wisconsin On Fri, Dec 30, 2011 at 3:05 PM, James Berg molokai...@gmail.com wrote: Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
That's a little extreme; Vitamins are not so standardized as are prescription drugs. ProzacFluoxetineis either Fluoxetine, or it isn't; either 10 mg, or not. Not so with vitamins. In your case, the offending element was likely too much Vitamin A, which is toxic to the liver taken in large doses. The multivitamin probably had too much Vitamin A in it relative to everything else. India is one of the largest exporters of pharmaceuticals in the world. Without it millions of the world's peoples would not have access to prescription medications. A great debt is owed to them, I think, for making First-World medications available and affordable to the Third-World. Dalton From: PAMELA S subers...@msn.com Date: Sat, 31 Dec 2011 11:58:07 -0800 To: patticoole...@gmail.com, TMC Group tmic-list@eskimo.com Subject: RE: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 31 Dec 2011 12:01:17 -0800 Patti; Which supplement were you taking? Pam Date: Sat, 31 Dec 2011 09:33:11 -0600 Subject: Re: [TMIC] RE Pins and Needles From: patticoole...@gmail.com To: molokai...@gmail.com CC: pjv1...@chartermi.net; tmic-list@eskimo.com James when I first got TM I ordered vitamin supplements for TM that came from India. After taking them for a few months, my doctor found that it was affecting my liver. They were concerned and were going to do a liver biopsy . I stopped taking the vitamins and when they did a secon dblood test they found my liver was back to normal and I didn't need the biopsynormal so I will never take things that are made in foreign countries. Patti - Wisconsin On Fri, Dec 30, 2011 at 3:05 PM, James Berg molokai...@gmail.com wrote: Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
Gilly
You are right to remide us about cothes, shoes and sock contributing to
our TM pain. I think I've posted for eight straight winters that
wearing blue jeans in cold weather puts me right to bed due the the
intense pain the cold material causes. New TMers beware! It isn't just
the heat that causes additional painful sensations. The cold weather
causes its own set of problems.
Patti - Michigan
On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote:
John, the sad fact is that nothing really takes it away, I have so
far racked up a bit over 10 years of it.
I must say though that I do believe it has decreased somewhat. Either
that or I'm just used to it.
I don't do meds as all they did was make me completely spaced out or
zombie like and the pain was still there. Strangely enough, just the
everyday little old aspro or Panadol help. Maybe because they
concentrate on any other unrelated pain that then lessons the tm
residuals. I have no idea why, I just know that's what happens for me.
There are other external causes. The shoes you wear, your socks
(always wear them inside out), the clothes you wear, particularly the
type of material. I found that by paying attention to these things, I
can lesson (not by a whole lot) these annoying freeze/burn feelings.
Gilly
- Original Message -
From: john snodgrass
javascript:parent.wgMail.openComposeWindow('jcs...@yahoo.com')
javascript:parent.wgMail.openComposeWindow('jcs...@yahoo.com')
To: James Berg
javascript:parent.wgMail.openComposeWindow('molokai...@gmail.com') ;
pjv1...@chartermi.net
javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
Cc: tmic
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
Sent: Saturday, December 31, 2011 7:47AM
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
Subject: Re: [TMIC] RE Pins andNeedles
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
wastalking with the neurologist yesterday about the
buzzing,vibrating feelingthat sometimes go all the way into my chest
but stays mainly in my legs andfeetwhen its not buzzing it is
burning. he called it something but ifailed to write it down.
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
Itried MJ but for me,,,it made it intensify!
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
nothingi have taken to date has had any positive effect on that
symptom.
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')
creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica
alcohol,MJ.
scratchthat off my to do list.
___
From: James Bergmolokai...@gmail.com
To: pjv1...@chartermi.net
Cc: tmic tmic-list@eskimo.com
Sent: Friday, December 30,2011 4:05 PM
Subject: Re:[TMIC] RE Pins and Needles
Gerry and Pati--you can control the cost by buying your meds a River
Pharmacy--out of India--they are honest and the drug is quality
Jim
On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net
javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
wrote:
Gerry,
Many of us faced the same thing. Movement and feeling also brought
the feeling of pins and needles.
I've taken Lyrica for about three years - it helps a lot. I don't
know about side effects except the cost can empty your wallet. I
would have stuck with gabapentin, but it was unpredictable. Lyrica
starts working witin 15 minutes. Gabapenten took an hour or two to
work.
The best pan reliever is laughter and the posts I read tonight
relieved my pain for a while.
The antidepressant, Cymbalta, might help with the pins and needles.
Of course, it's another drug with a lot of side effects.
Pati - Michigan
Re: [TMIC] RE Pins and Needles
Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feetwhen its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax,valium,Lyrica alcohol,MJ. scratch that off my to do list. From: James Berg molokai...@gmail.com To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
Re: [TMIC] RE Pins and Needles
Thanks Jim'I'll look into them. I fell into the donut hole in
December 2011. I ordered my husbansds meds from Canada for five years
until he turned 65. We will both be in the donut hole in 2012.
Patti - Michigan
On Fri, Dec 30, 2011 at 4:05 PM, James Berg wrote:
Gerry and Pati--you can control the cost by buying your meds a River
Pharmacy--out of India--they are honest and the drug is quality
Jim
On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net
javascript:parent.wgMail.openComposeWindow('pjv1...@chartermi.net')
wrote:
Gerry,
Many of us faced the same thing. Movement and feeling also brought the
feeling of pins and needles.
I've taken Lyrica for about three years - it helps a lot. I don't know
about side effects except the cost can empty your wallet. I would have
stuck with gabapentin, but it was unpredictable. Lyrica starts working
witin 15 minutes. Gabapenten took an hour or two to work.
The best pan reliever is laughter and the posts I read tonight relieved
my pain for a while.
The antidepressant, Cymbalta, might help with the pins and needles. Of
course, it's another drug with a lot of side effects.
Pati - Michigan
Re: [TMIC] RE Pins and Needles
Ditto; I use them and they're great. Dalton From: James Berg molokai...@gmail.com Date: Fri, 30 Dec 2011 11:05:43 -1000 To: pjv1...@chartermi.net Cc: tmic tmic-list@eskimo.com Subject: Re: [TMIC] RE Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 30 Dec 2011 13:08:51 -0800 Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, pjv1...@chartermi.net wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
RE: [TMIC] re pins and needles
So far it is still legal in Oregon. I am aware though that people with addictions claim anything to get a script...and I'm not referring to anyone here who is looking for pain relief. As a result of the addictive stuff, I wouldn't be surprized if the government tried to put the kabash on it here. I believe MT is still getting away with it, too. There are side effects to MJ. Because it has been illegal for so long, it's been hard to document them though. Everything has side effects including sweet potato pie which would help my mood tremendously. CC: tmic-list@eskimo.com From: skle...@cox.net Subject: Re: [TMIC] re pins and needles Date: Tue, 27 Dec 2011 07:59:42 -0700 To: mingalett...@activ8.net.au okay, first time I have heard of MJ My neurologist wrote me a prescription for it!however, even though it was voted yes in Arizona, the Federal Government has put a stop on it.It works better than anything for me.And, it's true, alcohol is an analgesic and it definitely kills pain also.See you all at AA! just kidding.Susan Kleinz, PhxOn Dec 26, 2011, at 6:22 PM, Gillian Clark wrote:Dear pHran3quee, The most excellent advice as usual!!! I find that Scotch works nicely too. Seems to have less side effects than most meds too :) Of course, nothing really beats a bit of MJGilly- Original Message -From: frank@franksheldon.comTo: Gerry Surette ; tmic-list@eskimo.comSent: Tuesday, December 27, 2011 7:43 AMSubject: Re: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it? Gerry, I find that Bourbon works best to decrease pain and pins/needles. Bourbon mixed well with mint, but few medications. Happy Holidays. Oh, cutting your feet off actually intensifies the discomfort (phantom limb pain). Frank
Re: [TMIC] re pins and needles
I am truly thankful that we have a variety of things to work with. just read where possibly next year we will have hydrocodone without acetaminophen in it. it will have more hydrocodone but without the liver damage. From: Dalton Garis malugss...@gmail.com To: john snodgrass jcs...@yahoo.com; Bernie bpe...@austin.rr.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 9:23 AM Subject: Re: [TMIC] re pins and needles John; Your point is well taken. I also had difficulty going on Lyrica, but I hung in there and continued with it because the pain under my skin all over my body gave me no choice. Before Lyrica, I could not sleep or work; I felt as though I were being fried with high amperages of electricity. I could only just lay there in awful pain. And since I had broken my back in an industrial accident which bent me backwards until I couldn't see below my chest, I have adjusted what I consider to be painful. The Lyrica killed the pain. As for getting off it, why would I do that? Its addiction is a mute point for me, since living pain-free is itself addictive; so that I would become immediately addicted to whatever removes this awful pain. Dalton (718) 838-0437 From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Tue, 27 Dec 2011 04:52:09 -0800 (PST) To: Bernie bpe...@austin.rr.com, Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. From: Bernie bpe...@austin.rr.com To: Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 6:25 AM Subject: Re: [TMIC] re pins and needles Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin
Re: [TMIC] re pins and needles
*Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: _http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin_*
Re: [TMIC] re pins and needles
Yes; Get a prescription for Lyrica, which specializes in relieving nerve pain such as this, for fibromyalgia, and for the phantom pain experienced after amputations. Dalton From: Gerry Surette suret...@sympatico.ca Date: Mon, 26 Dec 2011 15:18:25 -0500 To: tmic-list@eskimo.com Subject: [TMIC] re pins and needles Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 26 Dec 2011 12:21:30 -0800 my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
okay, first time I have heard of MJ My neurologist wrote me a prescription for it! however, even though it was voted yes in Arizona, the Federal Government has put a stop on it. It works better than anything for me. And, it's true, alcohol is an analgesic and it definitely kills pain also. See you all at AA! just kidding. Susan Kleinz, Phx On Dec 26, 2011, at 6:22 PM, Gillian Clark wrote: Dear pHran3quee, The most excellent advice as usual!!! I find that Scotch works nicely too. Seems to have less side effects than most meds too :) Of course, nothing really beats a bit of MJ Gilly - Original Message - From: fr...@franksheldon.com To: Gerry Surette ; tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 7:43 AM Subject: Re: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it? Gerry, I find that Bourbon works best to decrease pain and pins/needles. Bourbon mixed well with mint, but few medications. Happy Holidays. Oh, cutting your feet off actually intensifies the discomfort (phantom limb pain). Frank
Re: [TMIC] re pins and needles
I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. From: Bernie bpe...@austin.rr.com To: Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 6:25 AM Subject: Re: [TMIC] re pins and needles Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin
Re: [TMIC] re pins and needles
Susan your to funny. I have been curious about it and have been encouraged by several sources,including in this group to give it a try. perhaps since i am in so much pain it would not do me like it done me when i was a kid and just done it for fun. I was a deadbeat,deadhead,lazy butt back then because of it. now i am beat dead and a butt head,just the opposite,so perhaps I shall surf the neighborhood and find some help. From: Susan Kleinz skle...@cox.net To: Gillian Clark mingalett...@activ8.net.au Cc: TM list tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 9:59 AM Subject: Re: [TMIC] re pins and needles okay, first time I have heard of MJ My neurologist wrote me a prescription for it! however, even though it was voted yes in Arizona, the Federal Government has put a stop on it. It works better than anything for me. And, it's true, alcohol is an analgesic and it definitely kills pain also. See you all at AA! just kidding. Susan Kleinz, Phx On Dec 26, 2011, at 6:22 PM, Gillian Clark wrote: Dear pHran3quee, The most excellent advice as usual!!! I find that Scotch works nicely too. Seems to have less side effects than most meds too :) Of course, nothing really beats a bit of MJ Gilly - Original Message - From: fr...@franksheldon.com To: Gerry Surette ; tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 7:43 AM Subject: Re: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it? Gerry, I find that Bourbon works best to decrease pain and pins/needles. Bourbon mixed well with mint, but few medications. Happy Holidays. Oh, cutting your feet off actually intensifies the discomfort (phantom limb pain). Frank
RE: [TMIC] re pins and needles
Dalton; I think the back injury is probably more accountable for many of your symptoms than TM. Or maybe TM was a symptom of the back injury. Norco has reduced acetaminophen in it with hydrocodone, but there is still a little bit. lyrica didn't do anything for me. Neurontin or gaberpentin (sic) is predecessor or pregabulin Lyrica. And, there are a lot of people out there who develop nasty side effects with the stuff. I definitely doesn't work for everyone. But, the broken back fits into the category of what used to be called Causalgia or now reflex sympathetic dystrophy. And, that's a whole other animal. Date: Tue, 27 Dec 2011 07:51:59 -0800 From: jcs...@yahoo.com Subject: Re: [TMIC] re pins and needles To: malugss...@gmail.com; bpe...@austin.rr.com; tmic-list@eskimo.com I am truly thankful that we have a variety of things to work with. just read where possibly next year we will have hydrocodone without acetaminophen in it. it will have more hydrocodone but without the liver damage. From: Dalton Garis malugss...@gmail.com To: john snodgrass jcs...@yahoo.com; Bernie bpe...@austin.rr.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 9:23 AM Subject: Re: [TMIC] re pins and needles John; Your point is well taken. I also had difficulty going on Lyrica, but I hung in there and continued with it because the pain under my skin all over my body gave me no choice. Before Lyrica, I could not sleep or work; I felt as though I were being fried with high amperages of electricity. I could only just lay there in awful pain. And since I had broken my back in an industrial accident which bent me backwards until I couldn't see below my chest, I have adjusted what I consider to be painful. The Lyrica killed the pain. As for getting off it, why would I do that? Its addiction is a mute point for me, since living pain-free is itself addictive; so that I would become immediately addicted to whatever removes this awful pain. Dalton(718) 838-0437 begin_of_the_skype_highlighting(718) 838-0437 end_of_the_skype_highlighting From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Tue, 27 Dec 2011 04:52:09 -0800 (PST) To: Bernie bpe...@austin.rr.com, Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. From: Bernie bpe...@austin.rr.com To: Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 6:25 AM Subject: Re: [TMIC] re pins and needles Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin
Re: [TMIC] re pins and needles
I agree with Dalton-Lyrica is my drug of choice. But please understand that you will not appreciate what Lyrica does until it builds up a level in your system and that takes about two weeks. Bacofen, neurotin etc, etc did nothing for me even in large doses. I hate narcotics but have found that a couple glasses of wine in the evening makes for a pleasant nights sleep. On Tue, Dec 27, 2011 at 9:35 AM, PAMELA S subers...@msn.com wrote: Dalton; I think the back injury is probably more accountable for many of your symptoms than TM. Or maybe TM was a symptom of the back injury. Norco has reduced acetaminophen in it with hydrocodone, but there is still a little bit. lyrica didn't do anything for me. Neurontin or gaberpentin (sic) is predecessor or pregabulin Lyrica. And, there are a lot of people out there who develop nasty side effects with the stuff. I definitely doesn't work for everyone. But, the broken back fits into the category of what used to be called Causalgia or now reflex sympathetic dystrophy. And, that's a whole other animal. -- Date: Tue, 27 Dec 2011 07:51:59 -0800 From: jcs...@yahoo.com Subject: Re: [TMIC] re pins and needles To: malugss...@gmail.com; bpe...@austin.rr.com; tmic-list@eskimo.com I am truly thankful that we have a variety of things to work with. just read where possibly next year we will have hydrocodone without acetaminophen in it. it will have more hydrocodone but without the liver damage. -- *From:* Dalton Garis malugss...@gmail.com *To:* john snodgrass jcs...@yahoo.com; Bernie bpe...@austin.rr.com; TMIC tmic-list@eskimo.com *Sent:* Tuesday, December 27, 2011 9:23 AM *Subject:* Re: [TMIC] re pins and needles John; Your point is well taken. I also had difficulty going on Lyrica, but I hung in there and continued with it because the pain under my skin all over my body gave me no choice. Before Lyrica, I could not sleep or work; I felt as though I were being fried with high amperages of electricity. I could only just lay there in awful pain. And since I had broken my back in an industrial accident which bent me backwards until I couldn't see below my chest, I have adjusted what I consider to be painful. The Lyrica killed the pain. As for getting off it, why would I do that? Its addiction is a mute point for me, since living pain-free is itself addictive; so that I would become immediately addicted to whatever removes this awful pain. Dalton (718) 838-0437 begin_of_the_skype_highlighting(718) 838-0437 end_of_the_skype_highlighting From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Tue, 27 Dec 2011 04:52:09 -0800 (PST) To: Bernie bpe...@austin.rr.com, Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. -- *From:* Bernie bpe...@austin.rr.com *To:* Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com *Sent:* Tuesday, December 27, 2011 6:25 AM *Subject:* Re: [TMIC] re pins and needles *Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin*
Re: [TMIC] re pins and needles
jeepers Pamthat stopped my ears up! dr told me that the tm would aggravate the arthritis in my spine and that the arthritis would aggravate the tm. and the bees aggravate the birds and the birds aggravate the bees. but chocolate and peanut butter go well together. From: PAMELA S subers...@msn.com To: jcs...@yahoo.com; malugss...@gmail.com; bpe...@austin.rr.com; TMC Group tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 2:35 PM Subject: RE: [TMIC] re pins and needles Dalton; I think the back injury is probably more accountable for many of your symptoms than TM. Or maybe TM was a symptom of the back injury. Norco has reduced acetaminophen in it with hydrocodone, but there is still a little bit. lyrica didn't do anything for me. Neurontin or gaberpentin (sic) is predecessor or pregabulin Lyrica. And, there are a lot of people out there who develop nasty side effects with the stuff. I definitely doesn't work for everyone. But, the broken back fits into the category of what used to be called Causalgia or now reflex sympathetic dystrophy. And, that's a whole other animal. Date: Tue, 27 Dec 2011 07:51:59 -0800 From: jcs...@yahoo.com Subject: Re: [TMIC] re pins and needles To: malugss...@gmail.com; bpe...@austin.rr.com; tmic-list@eskimo.com I am truly thankful that we have a variety of things to work with. just read where possibly next year we will have hydrocodone without acetaminophen in it. it will have more hydrocodone but without the liver damage. From: Dalton Garis malugss...@gmail.com To: john snodgrass jcs...@yahoo.com; Bernie bpe...@austin.rr.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 9:23 AM Subject: Re: [TMIC] re pins and needles John; Your point is well taken. I also had difficulty going on Lyrica, but I hung in there and continued with it because the pain under my skin all over my body gave me no choice. Before Lyrica, I could not sleep or work; I felt as though I were being fried with high amperages of electricity. I could only just lay there in awful pain. And since I had broken my back in an industrial accident which bent me backwards until I couldn't see below my chest, I have adjusted what I consider to be painful. The Lyrica killed the pain. As for getting off it, why would I do that? Its addiction is a mute point for me, since living pain-free is itself addictive; so that I would become immediately addicted to whatever removes this awful pain. Dalton (718) 838-0437begin_of_the_skype_highlighting(718) 838-0437 end_of_the_skype_highlighting From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Tue, 27 Dec 2011 04:52:09 -0800 (PST) To: Bernie bpe...@austin.rr.com, Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. From: Bernie bpe...@austin.rr.com To: Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 6:25 AM Subject: Re: [TMIC] re pins and needles Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin
Re: [TMIC] re pins and needles
perhaps i stopped taking it prematurely. i stopped after one week. then again wouldn't i have to wean myself off of everything else first to know if something else worked? From: James Berg molokai...@gmail.com To: PAMELA S subers...@msn.com Cc: jcs...@yahoo.com; malugss...@gmail.com; bpe...@austin.rr.com; TMC Group tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 2:56 PM Subject: Re: [TMIC] re pins and needles I agree with Dalton-Lyrica is my drug of choice. But please understand that you will not appreciate what Lyrica does until it builds up a level in your system and that takes about two weeks. Bacofen, neurotin etc, etc did nothing for me even in large doses. I hate narcotics but have found that a couple glasses of wine in the evening makes for a pleasant nights sleep. On Tue, Dec 27, 2011 at 9:35 AM, PAMELA S subers...@msn.com wrote: Dalton; I think the back injury is probably more accountable for many of your symptoms than TM. Or maybe TM was a symptom of the back injury. Norco has reduced acetaminophen in it with hydrocodone, but there is still a little bit. lyrica didn't do anything for me. Neurontin or gaberpentin (sic) is predecessor or pregabulin Lyrica. And, there are a lot of people out there who develop nasty side effects with the stuff. I definitely doesn't work for everyone. But, the broken back fits into the category of what used to be called Causalgia or now reflex sympathetic dystrophy. And, that's a whole other animal. Date: Tue, 27 Dec 2011 07:51:59 -0800 From: jcs...@yahoo.com Subject: Re: [TMIC] re pins and needles To: malugss...@gmail.com; bpe...@austin.rr.com; tmic-list@eskimo.com I am truly thankful that we have a variety of things to work with. just read where possibly next year we will have hydrocodone without acetaminophen in it. it will have more hydrocodone but without the liver damage. From: Dalton Garis malugss...@gmail.com To: john snodgrass jcs...@yahoo.com; Bernie bpe...@austin.rr.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 9:23 AM Subject: Re: [TMIC] re pins and needles John; Your point is well taken. I also had difficulty going on Lyrica, but I hung in there and continued with it because the pain under my skin all over my body gave me no choice. Before Lyrica, I could not sleep or work; I felt as though I were being fried with high amperages of electricity. I could only just lay there in awful pain. And since I had broken my back in an industrial accident which bent me backwards until I couldn't see below my chest, I have adjusted what I consider to be painful. The Lyrica killed the pain. As for getting off it, why would I do that? Its addiction is a mute point for me, since living pain-free is itself addictive; so that I would become immediately addicted to whatever removes this awful pain. Dalton (718) 838-0437begin_of_the_skype_highlighting(718) 838-0437 end_of_the_skype_highlighting From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Tue, 27 Dec 2011 04:52:09 -0800 (PST) To: Bernie bpe...@austin.rr.com, Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles I personally had no good experience with it. I had no bad experience with it. Just another one of those trials for me that didnt help out Somewhere I read where someone else loved it. From: Bernie bpe...@austin.rr.com To: Dalton Garis malugss...@gmail.com; TMIC tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 6:25 AM Subject: Re: [TMIC] re pins and needles Not trying to scare off anyone considering taking this medication, but one has to be very careful with Lyrica, it has some very nasty side effects. Make sure your doctor starts you on a low dose and that you and your doctor monitor yourself very closely for these. Make a list of all of them and keep it handy. I was put on Lyrica and it made my life horrendous with a lot of misery until they could get me off of it. One also has to be weened off Lyrica, abrupt stopping of the taking of this medication can actually kill you. Here are a couple of links that tells you about Lyrica for you and your doctor to consider:: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH327/ http://en.wikipedia.org/wiki/Pregabalin
Re: [TMIC] re pins and needles
Susan, I guess I don’t want the drowsiness it causes.What times of the day do you take your baclofen? I don’t have trouble with tennis shoes, just my dressier shoes.Of course, I don’t wear heals, but all of a sudden I am having spasming with my flats. We don’t have a Foot Solutions.Does they have shoes besides tennis shoes? Janice From: Susan Kleinz Sent: Monday, December 26, 2011 7:11 PM To: Janice Nichols Cc: Gerry Surette ; tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles why don't you want to take more baclofen during the day? Does it make you drowsy? I take it 3 times a day. Also, I have orthodics (sp?) that I put in all my shoes. otherwise, I have lots of problems. I only wear good, supportive shoes. Even spent big bucks at Foot Solutions, but what a difference. Wishing you all the very best for 2012. Sincerely, Susan Kleinz Phx, AZ On Dec 26, 2011, at 3:09 PM, Janice Nichols wrote: Gerry, In the last 6 months or so, I have noticed that feeling (or spasming) on the bottoms of my feet.It makes it difficult to walk.Also, certain shoes make the spasming a problem too.I am assuming that if I take more baclofen during the day that it will improve.Just don’t want to. Is this what you are talking about? Janice From: Gerry Surette Sent: Monday, December 26, 2011 2:18 PM To: tmic-list@eskimo.com Subject: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
I take baclofen in the AM, afternoon, and bedtime...if I wake up with spasms, I take another. NAOT has a pair of Mary Janes, with a velcroe buckle. My orthodics work because the sole comes out of the shoe. They are the only ones I have found, so far. You have to buy expensive shoes, where the sole comes out. Also, you need one size larger if using orthodics. (plus, I have a brace that fits in my shoe and extends up to my knee for balance.)\ I can now walk balanced. Susan On Dec 27, 2011, at 5:09 PM, Janice Nichols wrote: Susan, I guess I don’t want the drowsiness it causes.What times of the day do you take your baclofen? I don’t have trouble with tennis shoes, just my dressier shoes. Of course, I don’t wear heals, but all of a sudden I am having spasming with my flats. We don’t have a Foot Solutions.Does they have shoes besides tennis shoes? Janice From: Susan Kleinz Sent: Monday, December 26, 2011 7:11 PM To: Janice Nichols Cc: Gerry Surette ; tmic-list@eskimo.com Subject: Re: [TMIC] re pins and needles why don't you want to take more baclofen during the day? Does it make you drowsy? I take it 3 times a day. Also, I have orthodics (sp?) that I put in all my shoes. otherwise, I have lots of problems. I only wear good, supportive shoes. Even spent big bucks at Foot Solutions, but what a difference. Wishing you all the very best for 2012. Sincerely, Susan Kleinz Phx, AZ On Dec 26, 2011, at 3:09 PM, Janice Nichols wrote: Gerry, In the last 6 months or so, I have noticed that feeling (or spasming) on the bottoms of my feet.It makes it difficult to walk.Also, certain shoes make the spasming a problem too.I am assuming that if I take more baclofen during the day that it will improve.Just don’t want to. Is this what you are talking about? Janice From: Gerry Surette Sent: Monday, December 26, 2011 2:18 PM To: tmic-list@eskimo.com Subject: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it? Gerry, I find that Bourbon works best to decrease pain and pins/needles. Bourbon mixed well with mint, but few medications. Happy Holidays. Oh, cutting your feet off actually intensifies the discomfort (phantom limb pain). Frank
Re: [TMIC] re pins and needles
Hello Gerry and TMIC members, How about warming up your feet? In my experience warmth but not excessive heat can alleviate the conditions if not 'cure it' as such. Good luck. Let me know how you get on. Ryota On 27/12/11 9:18 AM, Gerry Surette wrote: my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
my own experience was when i had the buzz in my feet,when i warmed them up it felt like they were sunburn. From: Ryota Nishino write2ry...@gmail.com To: tmic-list@eskimo.com Sent: Monday, December 26, 2011 4:21 PM Subject: Re: [TMIC] re pins and needles Hello Gerry and TMIC members, How about warming up your feet? In my experience warmth but not excessive heat can alleviate the conditions if not 'cure it' as such. Good luck. Let me know how you get on. Ryota On 27/12/11 9:18 AM, Gerry Surette wrote: my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
Gerry, In the last 6 months or so, I have noticed that feeling (or spasming) on the bottoms of my feet.It makes it difficult to walk.Also, certain shoes make the spasming a problem too.I am assuming that if I take more baclofen during the day that it will improve.Just don’t want to. Is this what you are talking about? Janice From: Gerry Surette Sent: Monday, December 26, 2011 2:18 PM To: tmic-list@eskimo.com Subject: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
Re: [TMIC] re pins and needles
Dear pHran3quee, The most excellent advice as usual!!! I find that Scotch works nicely too. Seems to have less side effects than most meds too :) Of course, nothing really beats a bit of MJ Gilly - Original Message - From: fr...@franksheldon.com To: Gerry Surette ; tmic-list@eskimo.com Sent: Tuesday, December 27, 2011 7:43 AM Subject: Re: [TMIC] re pins and needles my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it? Gerry, I find that Bourbon works best to decrease pain and pins/needles. Bourbon mixed well with mint, but few medications. Happy Holidays. Oh, cutting your feet off actually intensifies the discomfort (phantom limb pain). Frank
RE: [TMIC] re pins and needles
I have found comfrey oil helpful. Alcohol makes it worse. Kytta-Salbe f ointment is helpful. Baclofen doesn't do anything for me. Made me sleepy at first and helped with back spasm, but found more and ore was needed so what the heck, I don't want that. I don't do anything without orthotic supports in my shoes. Even a dress shoe for only a few minutes must have good support. I avoid uneven ground, and use hiking sticks if it it necessary since my ankles flip flop. I wear an ankle brace if I'm going to be on my feet much. And, I take requip every single night without fail. This doesn't get rid of it entirely, but it works better than anything else I've tried. Bottom line though, the more I walk or am up, the more I spasm and tingle and burn. If I don't get up, I don't live.Pam Date: Mon, 26 Dec 2011 13:29:35 -0800 From: jcs...@yahoo.com Subject: Re: [TMIC] re pins and needles To: write2ry...@gmail.com; tmic-list@eskimo.com my own experience was when i had the buzz in my feet,when i warmed them up it felt like they were sunburn. From: Ryota Nishino write2ry...@gmail.com To: tmic-list@eskimo.com Sent: Monday, December 26, 2011 4:21 PM Subject: Re: [TMIC] re pins and needles Hello Gerry and TMIC members, How about warming up your feet? In my experience warmth but not excessive heat can alleviate the conditions if not 'cure it' as such. Good luck. Let me know how you get on. Ryota On 27/12/11 9:18 AM, Gerry Surette wrote: my feet became unanalyzed recently I now experience pins and needles under my feet. is there anything that can be done to neutralize it?
