l s much better I'll take the #'s I got
> and run
>
> Sent from my iPhone
>
> On Jun 27, 2016, at 7:54 PM, Ricardo Gadelha <ricardodgade...@gmail.com>
> wrote:
>
> Hi folks,
> Does anyone know how to deal with fatigue that comes with nilotinib 400
> mg bid?
Hi folks,
Does anyone know how to deal with fatigue that comes with nilotinib 400 mg
bid?
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post
Less th.1% (1% = 0.01 ) means 2 log reduction
Less th. 0.1% (0.1% = 0.001) means 3 log reduction.
The goal is to achieve 3. But many people stay in 2 and keep it under
control.
Keep in mind that what matters is not the number itself but the tendency -
I mean you should see the past numbers as well
Dear Friends,
The only antidepressant that works with less side effects in my son was *
Wellbutrin.*
It seems that for the ones who take gleevec this is the only antidepressant
you should take. Talk to your doctor about that.
Bless you all.
On Wed, Apr 11, 2012 at 7:49 PM, kellyelise
All prayers are with Zavie and his family
On Sun, May 29, 2011 at 1:10 PM, Rob r...@rwneill.com wrote:
I wanted to pass along from Facebook that Zavie Miller who has been a
longtime member of this group had a stroke and had emergency brain surgery
and is in Intensive Care. Zavie and his
Jim,
Good healthy and natural diet and exercises will help a lot.
You also may try so take garlic and green tea as a supplement. talk to your
doctor about that.
On Sun, Nov 28, 2010 at 5:24 PM, mustar...@aol.com wrote:
In a message dated 9/23/2010 8:41:31 A.M. Eastern Standard Time,
Judy,
You should try benefiber for the diareea and green tea ( capsules) for the
others side effects. But first check with your doctor if it is ok. And also,
if you have to take other medications, do not take any of these at the
same you take gleevec. The best is 6 hs before take gleevec.
Check
Hi Christina, Good evening from Brazil.
Regarding your PCR results, you have to know that the number itself do not
matter. What really matters is the tendency. So, while the number is not
increasing too much - everything is ok.
Regarding your smoke adiction, this is something that you should do
I feel so sorry about all these... My friends, please, remember that the
purpose of this group is to help each other - let´s focus on this purpose.
On Fri, Jul 2, 2010 at 3:45 PM, myvet...@aol.com wrote:
WOW, what a milestone. That gives us other folks some hope. Greenie
Good luck to
pm.ru...@gmail.com wrote:
Hi Ricardo, Thanks for your reply.
Can omacetaxine be available right now since it is in approval stage
with the US FDA . Are there any other herbal remedies we can try at
home ?
On May 29, 8:06 am, Ricardo Gadelha ricardodgade...@gmail.com wrote:
My friend
My friend,
Hidroxyurea will only postpone the problem.
You should try any other drug. The injectable drug omacetaxine may achieve a
durable response.
Check the site
http://www.mdanderson.org/newsroom/news-releases/2009/drug-shows-promise-for-t315i-mutated-chronic-myeloid-leukemia.html
On Fri,
http://www.sciencedaily.com/releases/2010/01/100107114737.htm
http://www.pharmastrategyblog.com/2010/03/biosante-announce-positive-data-from-gvax-leukemia-vaccine-in-cml.html
--
Ricardo
--
[CMLHope]
A support group of http://cmlhope.com
-
You
That's simple GREAT!!! congratulations!!!
On Thu, Mar 4, 2010 at 2:18 PM, icandoall...@aol.com wrote:
Hi all,
I finally made it to 00.00 after 6 long years.
I am truly a turtle hehe.
I am doing really well on Sprycel with not many side effects.
Good luck everyone,
Jeanie3
--
[CMLHope]
My friends,
As you can read in this article, it is not mentioned drug interaction with
Green tea and Gleevec. The article mentioned a possibility of drug
interaction with velcade.
As for me, my son was having his PCR level climbing for 6 months when he was
taking paroxetine ( antidepressant)
Hi, Jeff,
Good evening from Brazil.
In fact it depends on the person. My son had side effects for about 1 year
but today he is doing great.
Good healthy and natural diet and exercises will help a lot.
Ricardo.
On Wed, Nov 4, 2009 at 10:27 PM, Jeff J jj.john...@sympatico.ca wrote:
Hello All,
My friends,
Good evening from Brazil.
I have just receipt this advice and I would like to share with you:
pray as if everything depends on god and do everything as if everything
depends on you
Keep going and do everything to be healthy: exercises, diet, support group,
good doctor, good meds,
, Sep 13, 2009 at 11:19 PM, Nadia nadia...@earthlink.net wrote:
yes!!! ME. Ph+ Chronic Myeloid Leukemia. If I can help, just ask. I am
Nadia
- Original Message -
*From:* Ricardo Gadelha ricardodgade...@gmail.com
*To:* CMLHope@googlegroups.com
*Sent:* Sunday, September 13, 2009 7
I have a friend that got this kind of CML, Does someone else in this group
got the same?
--
Ricardo
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are
Hi Suzzie,
You should try acupuncture.
On Tue, Sep 1, 2009 at 5:10 PM, Suzzie suzzienovem...@yahoo.com wrote:
Hi: I have seen so many posts on different websites regarding joint
and muscle pains relating to Gleevec. I am suffering terribly with
pain, and my doctors do not want me using
That´s simply great!
On Tue, Sep 1, 2009 at 3:05 PM, Suzieq sheila.a.wat...@gmail.com wrote:
Hi all:
Just wanted to report my latest results from blood drawn two weeks
ago..still the same holding at 0.002%. No changeso, guess
this is good, huh? Fish test was negative...
I
Tony,
Good morning from Brazil.
When we have a problem today that seems to have no solution at all, just
leave it for tomorrow - cause tomorrow the problem will be the same but you
will be another person! Just try to do your best and give time to time!
cause everything is going to be all right at
Rien,
Good evening from Brazil.
My son is on gleevec since may 2007, started with 400 mg and in october
2007 changed into 600 because of not hematologic response. He was doing well
till june 2008 ( PCR 0.86 %) when his PCR started to climb again till 1.73%
in november 2008.
I argued with his onc
Margot,
In your case, after 7 years PCU, your doc say something about stop taking
gleevec?
Ricardo
On Sat, Jul 18, 2009 at 1:02 PM, Margot M. redbu...@cox.net wrote:
I remember you, Marty. I don't remember from which group--it seems
groups come and go--but enjoyed hearing from you again.
Sandra,
Good afternoon from Brazil.
My son is now 2 years on gleevec and still have 0.24% PCR. His side effects
have been treated with exercises, natural diet and 2 supplements ( 1
capsule of garlic 6 hs before gleevec and 2 capsules of gleevec a day - do
not take late afternoon).
His diet IS
Retification: its 2 capsules of green tea
On Sun, Jul 26, 2009 at 4:48 PM, Ricardo Gadelha
ricardodgade...@gmail.comwrote:
Sandra,
Good afternoon from Brazil.
My son is now 2 years on gleevec and still have 0.24% PCR. His side effects
have been treated with exercises, natural diet and 2
While the results of laboratory studies have been promising, at this time
the available scientific evidence does not support claims that green tea can
help prevent or treat any specific type of cancer in humans. Controlled,
randomized clinical trials are needed to determine its effectiveness.
Cheryl,
My son is taking imatinib and green tea capsules and is doing very well.
Have you seen the article below? Could you please give us your comments
about this article?
* **
http://www.ingentaconnect.com/content/bsc/cas/2009/0100/0002/art00023
* *Catechin, green tea component, causes
Jeannie,
In the meantime try to take 3 cups of green tea per day...this might help.
keep going
Ricardo.
On Mon, Jun 22, 2009 at 7:04 PM, icandoall...@aol.com wrote:
Hi Susan and will do if it gets any worse.
Thanks for the uplift.try
Jeanie3
In a message dated 6/21/2009 9:12:11 A.M. Eastern
Jeff,
In fact, the side effects depends not only by the drug but by the person.
The rule of thumb is if you're fine with your drug just keep going.
There are a lot of people that deal fine with gleevec ( like my son) - for
these cases I think that the good advice is just keep going. But there are
Jody,
In the beginning of the treatment ( first year) my son had many side effects
but now he is fine and doing well. I guess the body needs at least a year to
be used to that.
Keep going 'cause everything is going to be all right.
blessings from Brazil,
Ricardo.
ps: do not forget to have a
Check
http://www.ingentaconnect.com/content/bsc/cas/2009/0100/0002/art00023
It seems that this is an evidence that it is good to take green tea while on
Gleevec.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
Dear Jody,
Good night from Brazil.
My son was diagnosed in may 2007 when he was 17. It was like visiting
hell... I was more than devastated - really bad We had bad times with
side effects and everything else.
But now, he is doing good!!! he has a normal life with CML!!! your son can
do the
to
1,02% in 27/jan/2009
It seems that paroxetine and gleevec do not get along!!!
THANK YOU KELLY GOD BLESS YOU
Ricardo.
-- Forwarded message --
From: Ricardo Gadelha ricardodgade...@gmail.com
Date: Nov 3, 2008 4:02 PM
Subject: Re: Wellbutrin
To: Kelly kellyeli
That's simply GREAT!!
On 2/11/09, Suzzie suzzienovem...@yahoo.com wrote:
Hi Everyone: I finally got my PCR results back, and I am at
0.000. My lab does not break anything else down. It just gives me a
response of Negative for any Cancer.
Thats good enough for me. This makes
It is important not take any medication at the moment you take gleevec. The
best is take 6hs before take gleevec or at least as far as you could from
the time you take gleevec.
On 2/9/09, Ana Burgos anab...@hotmail.com wrote:
My mother has taken this antibiotic , Moxifloxacino, for 5 days,
do
That's wonderful
God bless you
On 2/4/09, icandoall...@aol.com icandoall...@aol.com wrote:
Hi all,
I just got my blood test back and it was perfect;
Tasigna is working.
I'm so happy.
Blessings to all,
Jeanie3
--
Great Deals on Dell Laptops.
Daniel,
In my opinion the best option is not take any antidepressant. But if you
need to, it seems that only wellbutrin has no interaction with gleevec.
You should talk to your doc.
Good luck,
Ricardo
On 1/23/09, daniel danieleadk...@gmail.com wrote:
hi all,
anyone with experience taking
Hi Everyone,
Good afternoon from Brazil.
I know that life is hard for us but I think we're always moving forward.
I wish you all a very Merry Christmas and that 2009 bring you blessings and
happiness.
Ricardo.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of
Jeanie,
I will pray for you and I´m sure you will be all right.
Keep going.
Ricardo.
On Sun, Dec 7, 2008 at 2:42 PM, [EMAIL PROTECTED] wrote:
Hi all,
I'm getting my transfusion tomorrow.
Pray that it will go good.
It's not bad, you have your own little cubicle with a TV, and you can order
Roberta,
You should look for some university or institution in Italy that has some
research for CML. They may help you to get tasigna and also about this taste
problem.
Ricardo.
On 11/24/08, Roberta Pinalli [EMAIL PROTECTED] wrote:
Dear all,
my mum was diagnosed in August 2007. She started
Suzieq,
I've found this on
http://www.mdanderson.org/departments/cimer/display.cfm?id=001116EB-C143-4A96-83D0A67730CA971Emethod=displayFull
for
Garlic:
Human studies report the use of four to 12.3 milligrams of garlic oil by
mouth daily. Some sources report that steam-distilled oils, oil from
Suzie,
You should try garlic and green tea. Talk to your Doctor about that. My son
get better after he startes to take these.
Ricardo.
On 11/19/08, Suzieq [EMAIL PROTECTED] wrote:
Hm.well, saw the nurse practitioner once again this
time..not doctor. We had a nice chat and a
My friends from US,
Congratulations for the elections! I hope you'll have a better life with the
new President.
God bless you all.
Ricardo.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You
Sandy,
Good morning from Brazil.
My son was diagnosed last year while he was 17 yr old. It's not easy to live
with Gleevec but we have no option so far. He is doing ok with it. BMT is
very risky and if your son is doing ok with Gleevec, I think that you should
keep him on it.
Blessings,
Ricardo
:
Hi Ricardo,
Thanks so much for your feedback...it is greatly appreciated!!
Just out of curiosity, does your son have a matched donor?
Thanks,
Sandy C
On Tue, Nov 4, 2008 at 4:53 AM, Ricardo Gadelha
[EMAIL PROTECTED] wrote:
Sandy,
Good morning from Brazil.
My son was diagnosed last
Ít's always nice to hear some improvements on Bethany's health.
She is young and she will overcome all this.
We pray for her.
blessings from Brazil to you, Bethany.
On 11/2/08, Suzieq [EMAIL PROTECTED] wrote:
Hello everyone:
I wrote this the other day and for some reason it didn't go
HI Jeanie,
Right it does work!
Keep going,
Ricardo
On 11/1/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi all,
I have been off the Tasigna for a week now.
It's good not to have to take a pill, but don't want to stay off too long.
It knocked my blood for a loop after only a few days.
My
Daniel,
I think that you should stay on gleevec. But you should try a good diet. My
son has had fatigue too and he is doing better since he started to take
garlic capsules and green tea. You should read the book anti-cancer ( David
Servan).
keep going,
Ricardo.
On Thu, Oct 30, 2008 at 7:47 PM,
Jeanie,
In fact, I think that this means that Tasigna is doing its job very well
and may be you need just adjust the dose.
On 10/26/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
In a message dated 10/19/2008 6:57:40 A.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Hi all,
I had to
on SSRIs (paroxetine, fluoxetine, etc.). Wellbutrin is a
different type of antidepressant but extremely effective. I hope this
helps.
Good luck Ricardo to you and your family,
Kelly
On Oct 16, 2:21 pm, Ricardo Gadelha [EMAIL PROTECTED]
wrote:
Hi friends,
My son is using *imatinib* 600mg
Hi John,
Thank you for your support.
My son is already in the best CML hospital in Brazil.
In fact, his doctor has been awarded by Novartis ( the lab which makes
Gleevec).
The problem is the Psychiatrist, and we've changed for another one who
works in the same hospital.
Now I think that we're in
That's simply great!!
I feel very good when I read your story.
Keep going.
Ricardo
On 10/16/08, IAintFinishedYet [EMAIL PROTECTED] wrote:
Hey Group. . .
After being diagnosed in the Accelerated Phase in November, 2003 with
800,000+ per Million. . .I began my Survival on Gleevec.
I became
to make sure that the PCR results have no
bias due to paroxetine.
On 10/16/08, Ricardo Gadelha [EMAIL PROTECTED] wrote:
Hi friends,
My son is using *imatinib* 600mg/day. And he was doing well till june
2008.
dec 07 - 36%
abril 08- 4%
june 08 - 0,82%
From june to september the PCR
Friends,
Thank you all.
we always have to keep going.
Ricardo.
On 10/17/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi SusieQ,
Thanks for the input.
I think we all worry about those test.
I am trying not to focus on the test, but how I am feeling.
Don't worry, they have new drugs if
Friends,
Thank you very much for your support. We're going to wait for the next month
PCR.
Ricardo.
On 10/14/08, C.M. Houtz [EMAIL PROTECTED] wrote:
*I'm so sorry to hear about your son and will keep him in my prayers.
It's one thing to go through this as an adult, but having one of our
Hi friends,
My son´s PCR started to climb: it went from 0,82% in june to 0,96% in
september.
Ricardo.
-- Forwarded message --
From: Ricardo Gadelha [EMAIL PROTECTED]
Date: Jun 21, 2008 2:43 AM
Subject: My son Status
To: CMLHope@googlegroups.com
Hi friends,
Just to let you know
Suzzie,
I feel the same when I'm in a stress... so I think that if you try to think
good things ( meditation, yoga, etc), do some exercises and eat health food,
you will be ok.
On 9/21/08, Suzzie [EMAIL PROTECTED] wrote:
Hi: It has been getting so frustrating with my mind just blanking out
Millie,
Try to subscribe again.
Ricardo.
On 10/11/08, C.M. Houtz [EMAIL PROTECTED] wrote:
*I just put a new computer on linesame e-mail address, etc. and now
I'm not receiving any of the CML messages. Can someone tell me what to do?
I feel alone when I don't read the messages from
Hi all,
Good night from Brazil,
I'm reading the brazilian version of this book and I suggest you all to read
this book.
When I will finish it I 'll try to write a summary with some advices that
the author states.
I thinlk that the main issue about this book is that some natural foods that
can help
Jeanie,
Everything is going to be all right.
I pray for you.
Keep going.
Ricardo.
On 9/30/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi all,
I got some bad news today.
The Doctor called and said I need a transfusion.
My hemg was 7.7. My counts other than that all went back to normal.
Jeanie,
I feel so sorry about thatbut as far as I know there are several
treatments that can get you out of this.YOU ARE GOING TO OVERCOME THIS!
Keep going,
Ricardo.
On 9/16/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi all,
I got some bad news today.
My Chronic CML has gone into
Jeanie,
I think you should talk to your doc about that. My CML son pain lasts for 2
days max.
Anyway, if it is going better and better - even if slowly - dont worry.
keep going,
Ricardo
On 9/14/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
Hi all,
I had my BMA on 9/11. They put me to sleep,
Hi Eri,
What are the last results of PCR test ( dates and values)?
On 9/5/08, Eri [EMAIL PROTECTED] wrote:
Hello all--
Been a long time since posting on anything having to do with CML,
because my husband had been doing so well, first with Gleevec (despite
the diarrhea) (we joked he was
The best way to deal with insonia is do exercises in the evening - it's
hard, but if your body is tired, even against your mind, you will sleep!
On 8/26/08, judy [EMAIL PROTECTED] wrote:
Hello Sorry to butt in but the talk about sleeping pills.! I didn't
think it was a side effect of
Laquita,
Good morning from Brazil.
Thanks to you and your son we have that
http://CMLHope.Comhttp://cmlhope.com/and CML hope group.
I'm just writing to you to wish you a happy birthday.
From Brazil with love hope to you.
God bless you all.
Keep going,
Ricardo.
Suzzie,
I see your point - I'm like you...anxious. but just try to listen Bob Marley
song Every little thing gonna be all right
I pray for you.
keep going,
Ricardo.
On 8/5/08, Susan Armour [EMAIL PROTECTED] wrote:
Hi: I am starting to get familiar with some of you. I went for my PCR
this
Vaccine - One possibility is that instead of Gleevec or other drugs,
someone with CML would get a series of initial shots and then booster shots
every so often (once a month? once every several months? longer? -- no one
knows.) The second possibility is a cure, where a series of shots would
We always try to figure out what caused this cancer
Could be many things or all the things together...industrial food,
medications, x-ray,cosmetics, radiation, cigarretes, etc... could be even
something that our parents did...who knows???
I think that this will not help us - there are already
Donna,
You should talk to your Doctor about your concerns.
If you are not confident with him, you should see another doctor.
If Jim is getting worse you should change the medication or increase the
dose, but this is a doctor decision.
I think that you have to share your concerns with your doctor
Germaine,
That's great
God bless you and keep going,
Ricardo
On 7/2/08, gbengston [EMAIL PROTECTED] wrote:
My name is Germaine I have been fighting CML for almost 5 years now.
When I was diagnosed it was devastating. Being a wife and mom I
thought of my family first. I went into a major
Nancy,
I woud like to give you my condolences.
Sorry to hear thatI just would like to say this:
We all are here for a finite period of time
all of us will pass one day...
I'm 46 years old now and those 46 years lasts like the time of blink my eyes
and more 46 years will be gone in another
Hi Kelly,
I suggest you to talk to your Doctor about this product
http://www.omron-healthcare.com/sitepreview.php?SiteID=285PHPSESSID=e71666b8816f6b9da837956d02e00357
This unit has a number of automatic and manual modes and is a great
substitute for a reall massage.
There are several models and I
Hi friends,
Just to let you know that today I've got my son's PCR: 0,82% what means a 2
log reduction.
I'm so happy for that - he was 5% in april - so his LMC is under control.
Now I'm fighting to keep his young mind ok - not easy job for a young boy
(19 y) that can't do the same things as the
Hi Suzieq,
I just took this from
http://www.cmlsupport.com/cmlgleevecsideeffectsguide.htm. :
*Eye Bleeds*
*The problem:* The normally white area of eye looks extremely bloodshot and
filled with blood. This can be frightening, but most patients have reported
that it's less dangerous than it
Hi Millie,
nowadays we have these options of medications and they're still find other
options and many trials are beeing performed.
So, that's the way it is. I feel confident that you'll be ok with tasigna.
Keep going,
Ricardo.
On 6/13/08, C.M. Houtz [EMAIL PROTECTED] wrote:
*Hi Everyone,*
*I've got this in **
http://www.shinto.nl/shinto_books/Extracts/Sasaki%20Masando%20-%20shinto%20and%20aikido.htm
*http://www.shinto.nl/shinto_books/Extracts/Sasaki%20Masando%20-%20shinto%20and%20aikido.htm
*:*
life is in the way we live from moment to moment. Among the many other
things I
Congrats!!!
Keep going,
Ricardo.
On 6/13/08, Carl Davies [EMAIL PROTECTED] wrote:
Dear Group:
After three months on Sprycel I have reached molecular remission, PCR Zero,
and FISH Zero.
I had to switch from Gleevec due to acquiring the G250E mutation.
So far no really serious
Laquita,
Thank you for sharing.
Let's keep going.
Ricardo.
On 6/10/08, Laquita [EMAIL PROTECTED] wrote:
Good Morning fellow CMLers,
Ricardo you sent such a beautiful message.
I post very little these days as I am very busy with
caring for my husband who also has health problems.
I
Thanks Giora,
I realize that so many research are taking place in so many directions that
somehow, somewhere, they will find some kind of cure for CML.
Keep going!
Ricardo
On 6/12/08, Giora [EMAIL PROTECTED] wrote:
Author
Essers, Marieke, ISREC, School of life sciences, EPFL, Epalinges,
Perry,
Congratulations
keep going.
Ricardo
On 6/10/08, Perry [EMAIL PROTECTED] wrote:
Brief update and confirmation that Gleevec is great!
Dx 5/31/2007; Gleevec 400 since circa June 7, 2007. 5/27/2008 BMB:
FISH negative for Philadelphia chromosome. Hurrah! Now I wait to
hear
*Hi my CML friends,*
**
*So far all is life. *
*Some gets blindness, some gets diabetes, some gets tuberculoses, some gets
other kinds of diseases.*
*And they're living with that.*
**
*We've got CML in our lives. Some are dealing with CML for more than 14
years and still keeps going.*
**
*We can
Hi Pat,
I think you should do exercises and also talk to your doctor if you can take
glivec 4 times a day ( I mean four 100mg pills a day every 6 hours or so,
instead of 400 mg once) . In that way you could eat just a small amount of
food while taking only 100mg pill.
I think that you should
Hi Everyone,
I'm Ricardo and I live in Brazil. My son was diagnosed LMC last year by may
9th ( 52 counts). He is on Glivec since may 25th. The first 6 months
were terrible to deal with the side effects - this 2008 the side effects
diminished. Today is his aniversary ( 19 years old) and I'm
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