**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
---BeginMessage---
Hi there,
I had mono (didn't know it was called Epstein Barre) when I was 40. My doctor
Please let me know if you get this? Sounds like I might be having trouble
getting to you, again!
Thanks! Jeanne in Dayton, WA
Hi, Jenna! I'm worried about you so thought I would send a note to see how
you are today? That darned thyroid can cause all sorts of problems and
losing your hair is one of them. Are you able to help it at all with meds?
Please let us know how you're doing.
We care,
Jeanne in Dayton, WA
AS I'm paralyzed, skin care is critical.
I use mainly baby stuff-- Johnson's baby creme,
Johnson's softlotion is my favorite scent, but also
like Johnson's baby lotion.
I shower
with Johnson's softwash.
I also use on occasion, zinc oxide creme
and 1% hydrocortisone by Walmart.
Akua
I have
Just a fast topic for discussion. In my case TM is like a box of
chocolates...you never know what you are going to get!
It seems to me that how I feel from day to day is never the same!
Some days are just terrible and some days are not so bad. I cannot point
to the weather because
I'm hearing all sorts of good things about Johnson's and I see that Walgreen
s has some great sales on them, if you happen to have the store in your area
Jeanne in Dayton, WA
---Original Message---
From: Akua
Date: 3/24/2008 9:39:28 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC]
I know exactly how you feel. I 've had tm since the age 0f 21 have been able
to function until 2001 when I had a relapse. I too am 60 years young. My
plete count has gone way down a side effect of TM after numerous treatments
i now have itp. I have gone through three treatments of
Gerry! I was just getting ready to ask if anyone had heard from you! You
have really gone thru some rough times and now they are going to remove your
spleen? Your advise is good...thank you! You are in my prayers..Jeanne in
Dayton, WA
---Original Message---
From: Gerry Surette
many thanks; The procedure itself is not painful; the bone marrow retival
for biopsy is uncomfortable. the side effects though of three days for five
hours each day is to say the least NEVER AGAIN I had a high fever chills
etc; on top of my leg and feet spasms. It was certainly a memerable week
My lesion is T6 -T10 and I am extremely sensitive at my banding area and from
there to the toes my feelings are opposite (cold feels freezing and hot feels
cool). That area is also hypersensitive but not as bad as bannding area. On
my chest and left arm I get splotches about nickle size that
You can be as emotional as you want, any time you want!! I think most of us
try to be 'up' and 'positive' as often as we can but there comes a time when
our old bodies just plain get bone tired and then it's time to take the time
for ourselves to rest, both physically and emotionally.
When I
Jeanne:
What a wonderful e mail. You are so right in your thinking! I truly
believe that only someone who has TM can appreciate what we are going
thru. I have often said to my wife that I wish she could have my TM for
just 5 minutes. Then perhaps she could or would understand the horror of
Have you ever just felt that no matter how positive you are, it just doesnt
help? this may sound funny but at this point in my life, before i keep going i
am very thankful for the recovery i have made so farbut like i was saying
have u ever seen those cartoons where they put a carrot in
Me, too, by gum!!! BUT, it is okay to have those days where we need to curl
up in bed, rest our body and soul and then get up and start all over again!
j
---Original Message---
From: Robert Pall
Date: 3/24/2008 1:40:04 PM
To: jrushton; Gerry Surette; tmic-list@eskimo.com
Subject:
Sal:
I do understand and my heart goes out to you because I am where you
are. I have tried so hard to no avail. this the first time in my life
that I got sick and no one said don't worry...you will get better.
What I try to do is limit the time that I feel sorry for
myself..simply because
WE all feel that way; you are not alone; by the way Please forgive me for
saying this but one aspect of TM is depression; you sound as if you are
experiencing some of this ARE you perhaps taking any depreesive medication;
It is part and parcel of TM We are one family experiencing all that you
Jeanne,
It is okay to have a 'Pity Party for One' at times. Sort of clears the air. I
do that every once in a while myself and I'm sure that more of us do it as well.
Heather in Calgary
- Original Message -
From: jrushton
To: Gerry Surette ; tmic-list@eskimo.com
Sent:
Rob,
I have never counted the days since I got TM. I just go by years. For me it
is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a
ball and not uncurl for a long time. Positive attitude is what we need but as
I said to Jeanne it is okay to have a little 'Pity
I remember when I was in ICU and we were just two months from a trip we had
been planning to go to Costa Rica. Even in ICU as I lay there totally
paralyzed from the chest down, a tube down my throat because nothing was
working in my digestive system nor my potty parts so they had to pump my
When i feel as you do I Have a perfect solution; Have a nice warm bubble
bath; I have rpoblems with my circulation; mt feet are usually purple; I
light a candle drop myself in an empty bath; { I have rpoblems
distinguishing hot and cold) let the water flow over me. Move my legs to
increase the
Heather, you made us laugh over the 4000 days! Funny you should call it a
Pity Party' because that is exactly what I call it, too!! We are way too
smart!!! j
---Original Message---
From: Heather Pieter
Date: 3/24/2008 2:29:48 PM
To: Robert Pall; jrushton; Gerry Surette;
Yes, I am, Gerry! I was on Lexapro 10mg. for a long time for PMS and when
the TM happened I was off of it while they did all of the testing so I asked
the doctor if I could stay off and he said, No, you will need it more now
than before. It is one of the main side effects of TM. So, it is
Hi Everyone,
Today's mail shows just what the list is all about.Someone vents,others
respond and a warm feeling is generated throughout.
I've had tm since 8/13/95 and this group has helped so much.I don't post
often,but I read all the letters and get strength from them.
been there had that; M y experience in ICU was over the xmas holidays. the
ICU nurse was a god send. I was laying in bed. with tons of monitors; a
catater up my penis paralyis from the lung cage down. My heart had stopped
when they had tried to do a milogram. All of a sudden with two intravnous
You are welcome as sunshine!! Jeanne
---Original Message---
From: [EMAIL PROTECTED]
Date: 3/24/2008 3:21:35 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Today's mail
Hi Everyone,
Today's mail shows just what the list is all about.Someone vents,others
respond and a warm feeling
I think we all probably have a lot of 'potty-oops' stories, many humorous
As a nurse, they are like talking about the weather! My little grandson
told me while I was in the hospital, Hey, Nanny!!! Let's all go to
Disneyland together and we'll all wear Nanny diapers then we'll never have
to
I JUST GOT OFF THE PHONE WITH JUDE. THE DOCTOR SAID HE DID NOT THINK IT
WOULD KILL HER DEPENDING ON THE TUNNELING.SHE HOPES HE IS NOT LYING TO HER. WE
GOT DISCONNECTED BUT HER DINNER WAS THERE.
SO HOPEFULLY SOME TRUE GOOD NEWS.SHE DOES HAVE MSRA AND STAPH IN HER BONES.
HER BUTTUCKS ON BOTH
It's been a long time since I have written but I check the list often
because I do not want to lose touch with this group.My computer crashed so I
switched over to a Mac and a new e-mail address, I have my darling grandson,
Declan and my oldest son (I have two adult boys and two adult girls) will
HI ROB,
I AGREE. I HAD 2 BAD MONTHS BUT SEEM TO BE ON THE UPSWING. EVERYDAY
IS A NEW ADVENTURE. SOMETIMES IT IS GOOD TO VENT AND WE ALL KNOW HOW THIS
CRAZY THING GOES, SO DON'T APOLOGIZE, WE ALL FEEL THE SAME WAY.
hi, ive had tm for almost 3 yrs now...the reason behind the carrot comment i
made was because i have made alot of recovery like i said im very thankful but
i have downbeat nystagmus, which is a very annoying condition so besides
getting a rare condition like ADEM i also get DBN on top of
My two cents...I agree. It's OK to have the pity party. I have a
recipe that never fails me in trying times. I sit where I can see a clock and
I give myself 15 minutes to cry, rant or scream - fifteen minutes a day, always
at the same time. The rest of the time, I chase away
Great idea, Diane!!! I do have to say that having a disability has its good
points, though! By golly, when we get into the airport there is hardly a
time when someone doesn't physically take me in my wheelchair right to the
front of the line and walk me through! Plus the handicapped rooms at the
Oh, Trudythat is so beautiful! Thanks you so much for sharing with us.
Jeanne
---Original Message---
From: Trudy Ogilvie
Date: 3/24/2008 7:25:27 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Hello Again
It's been a long time since I have written but I check the list often
because
You know what??? You can darn well vent all you want! We are here to hold
you up when you need us as you would probably do the very same thing for us
and know that we will also have those days when we are trying to keep all of
our feelings and emotions under control.
A lot of us are still
Hi, Ella! The banding sure isn't much fun, is it? I'm reading that a whole
lot of us have the same thing along with the temperature problems. My legs
feel like they're in buckets of ice water and when it gets too bad they
start spasming which is so painful. I do find that the Lyrica really
Can someone please explain what the splotches are?
jrushton [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url (#default#vml)
} v\:* { BEHAVIOR: url (#default#vml) }
FLAVOR00-NONE--- 0.00 ; Hi, Ella! The
banding sure isn't much fun, is
What a wonderful thing you have done for Jude by sharing all of this with us
I read all of the way through and I feel so bad for her. I had to laugh
when I read about her bracelet! She does have so much support from her TMIC
friends and it's too sad about her in-laws. We choose our friends,
Hello everyone,
I have a lot of trouble typing as my hands are paralyzed, and I can only use my
thumb, so I don't post often.? From the very beginning of this condition, I
have been very positive, and I have felt God's presence with me constantly.
Some members of my church tell me I have
Patti and Pam,
Thank you so much for keeping us up to date on our Jude. After reading what
you have both written, it seems that there may still be some hope for Jude
to make it through this. I know I'll keep her in my thoughts and prayers.
It still amazes me how people who are there to
Barbara has a pointI remember when i was in CCU, during the night hours
when no family was allowedthat was the most scariest for me...I remember
crying for hours cuz i needed my trache (sp?) suctioned cuz i was having a
difficult time taking air in but the nurses would just stare and
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