I second that emotion
In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time,
rp...@neillsupply.com writes:
Jim:
Do you have any feedback on the new Transverse Myelitis Network many of us
have been invited to join. What is the difference between our present
network :the
Yes, I would like to know this as well. My insurance only cover so much, and
then im SOL.
-Original Message-
From: Hosni Al-khatib hosnialkha...@hotmail.com
To: quad-list quad-l...@eskimo.com
Sent: Tue, Jun 16, 2009 11:00 pm
Subject: [QUAD-L] financial help
Hi
I am a C 4/5
I sleep with a Chillow at night and it helps a great deal. It is a gel filled
pad for your pillow and now I dont have to keep changing pillows all night to
find a cooler feeling one.
Lynne
--- On Tue, 6/16/09, kimr1...@bellsouth.net kimr1...@bellsouth.net wrote:
From: kimr1...@bellsouth.net
I have just been dx'd with severe Osteoporis especially of the spine. I have
been on Boniva for 6+ years only because I have an ileostomy and could not
tolerate the daily or weekly meds which caused constant diarrhea. The
ileostomy also means that I do not absorb meds, vitamins and food
HAS ANYONE EVER TAKEN OR HEARD OF SAVELLA.
PLEASE LET ME KNOW.
MARIE
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Jude,
It's not that I think any one site is better than the other, and is not so much
about interaction, as information It's just that quadriplegics have more and
different issues to deal with. There is also a site for TM quads who are vent
dependent, because they have more and different
Yes, get in that chair Jude ... go for it...live life.. that is what God and
Pam would want you to do. We only have one life .. and if you have the chance
go. Your husband loves you and wants you with him. Catherine
From: ladyno...@aol.com
On May 6th of this year I was visiting friends in Thunder Bay, Ontario,
Canada (where I am originally from and lived until 1999) when both myself and
the friend I was staying with got a very bad chest cold that lasted 2 ½ weeks.
It was actually longer but just the tired run down feeling
*Hi Naomi, *
*Very well said. It's like that for NMO patients also. Although we too,
suffer from non traumatic SCI, our needs are very different than the typical
TM patient. Our treatments differ greatly---many of us are on heavy duty
anti-rejection/immunosuppressant drugs, and many
Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I
IDENTIFY more. I feel as though I offended you by saying this. There are issues
and concerns of being a quad they are not addressed in the TM site and I would
imagine it's because most people on this site are
I am on SSDI and Medicare. I have United Health Care through an AARP plan.
However, due to all of my medical problems, most of the meds that I take are
tier 2 and tier 3. I do use the generic meds when ever possible BUT tier 2 and
tier 3 drugs usually do not have generics and cost so very
I have been on Lyrica for at least 3 years...I started with 2 pills a day
(150mg each) and 2 years ago I increased it to 3 pills or 450 mg per day. I
have had TM for 12 years and have found Lyrica to be the best drug as for
helping the banding,numbness and pins and needles. The only side
As a caretaker/mother of a daughter who has had TM for 4 years now; this
saddens me to read this. I am also a member of the one Yahoo TM site b/c for me
it seems like it involves more children than adults and I can identify more
with their issues. Since my daughter was inflicted at the age of
Ihave a membershipat Costco, and at Sam's Club. Why? Because I like one store for certain items which I can't get at the other store, and vice versa. Should I quit one membership and stay "loyal" to only one of the stores? Or can I go to both stores if I like?
-Original Message- From:
AMEN Thank you Tracey for putting this so eloquently. I am here as a caregiver and I have never been afraid to ask any question. Sometimes I too, I have felt rejected .. so now I try not to take it personally. I have learned so much from all my TM Family and I thank
Before I unsubscribe I wanted to let each and every one of how much you have
helped me.
My son's fiancée was paralyzed with TM/spinal stroke almost 2 years ago. As you
know it has been quite a long road.
There is drug addiction involved as well, so a sad story with a 2 year old baby
as well.
Cindy,
This is from Jude...I am so sorry for your leg. To make a splint, cut
off one leg of your dining table, get the do it all magic gray tape and use
the table leg as a splint, cushion it with lots of dish towels, and stick
it all together with the gray tape. That should
unsubscribe
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black tracey.bl...@hnoins.com wrote:
From: Tracey L. Black tracey.bl...@hnoins.com
Subject: RE: [TMIC] Transverse Myelitis Network
To: ladyno...@aol.com, heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 1:14 PM
RobertI specifically ask my new pain management doctor about this subject.
I ask because my wife always gets after me when I want a scotch and reminds me
of the Lyrica warning label. I am on the same dosge as you 150mg 3XD and
Baclofen as well. He said no problem with a beer, a scotch or a
Lynne were do you find a chillow?
Debi
---Original Message---
From: lynne myers
Date: 06/17/09 06:33:50
To: kimr1...@bellsouth.net; tmic
Subject: Re: [TMIC]
I sleep with a Chillow at night and it helps a great deal. It is a gel
filled pad for your pillow and now I dont
OH Cody
How you have made my day. And all this time I have denied myself the
pleasure of a tall cold one.
God Bless Ya, I am a happy camper to hear this news.
Janet
TIAD but I've got today to get through.
From: Cody [mailto:c...@austin.rr.com]
Sent: June 17, 2009 4:41
Tracey,
I was shocked to read that your 11 year old daughter had TM. Bless her
heart, she has come a long way and I know that
that is only done with hard work. I am sure it was a family affair in
getting her to where she is. Bless you all.
Janice
- Original
I HAVE ALWAYS FELT VERY WELCOME BY EVERYONE ON THIS SITE, EVEN THOUGH I DO NOT
SUFFER FROM SO MANY OF THE PAIN AND SUFFERING SO MANY OF YOU DO. I DO HAVE
PAIN BUT NOTHING I CAN’T LIVE WITH SINCE I HAVE NO CHOICE. IT IS THE
COMMUNICATION WITH ALL OF YOU THAT HAS HELPED ME SO VERY MUCH. I
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