...@comcast.net ;
beans...@aol.com ; hart...@comcast.net ; flynch8...@gmail.com
Subject: RE: [TMIC] Baclofen Pump
Hi Rob,
I can’t wait to hear you say your pain is greatly reduced or gone.
I had my pain pump (same pump) put in on June 5th. I was uncomfortable for
about 3 days
Hi Rob,
I can't wait to hear you say your pain is greatly reduced or gone.
I had my pain pump (same pump) put in on June 5th. I was uncomfortable for
about 3 days, then the surgical areas felt so much better. You can't do
much but hang out, I organized all my screws, bolts, nuts, etc.
Rob, so glad you are taking the plunge! I did that for my nerve implant and
it is the best thing I ever did.Good luck and keep us informed.
Janice
From: Barbara H.
Sent: Friday, March 01, 2013 10:46 AM
To: Robert Pall ; tmic
Subject: Re: [TMIC] Baclofen Pump
I'm so glad the trial
, March 03, 2013 5:27 PM
To: Barbara H.; Robert Pall; tmic
Subject: Re: [TMIC] Baclofen Pump
Rob, so glad you are taking the plunge! I did that for my nerve implant
and it is the best thing I ever did.Good luck and keep us informed.
Janice
From: Barbara H. mailto:barbara...@gmail.com
.
Hence moving on to the morphine pump trial.
Make it a great day,
Deb
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Sunday, March 03, 2013 5:27 PM
To: Barbara H.; Robert Pall; tmic
Subject: Re: [TMIC] Baclofen Pump
Rob, so glad you are taking the plunge! I did
From: Deb Monteleone
Sent: Sunday, March 03, 2013 6:47 PM
To: 'Janice Nichols' ; 'tmic'
Subject: RE: [TMIC] Baclofen Pump
Janice,
Sorry if you wrote about your nerve implant already but I can’t bring it to
mind. Seems to happen a lot to me. What does it do for you?
When I went to one
I went for the trial for the Baclofen Pump a few weeks ago and I was amazed
at the result. After injecting a small dosage of Baclofen directly into my
spinal, with 1/2 hour the spasticity in my legs was greatly reducedand it
continued to lessen over the next 2 hours. The entire trial
I'm so glad the trial went so well for you! I hope you have good results
with the surgery.
Barbara H.
On Fri, Mar 1, 2013 at 11:24 AM, Robert Pall robthe...@aol.com wrote:
I went for the trial for the Baclofen Pump a few weeks ago and I was
amazed at the result. After injecting a small
;
flynch8...@gmail.com
Subject: [TMIC] Baclofen Pump
I went for the trial for the Baclofen Pump a few weeks ago and I was amazed
at the result. After injecting a small dosage of Baclofen directly into my
spinal, with 1/2 hour the spasticity in my legs was greatly reducedand it
continued
A brave decision. I hope you get a good result Rob.
Iris UK
Sent from my iPad
On 1 Mar 2013, at 16:24, Robert Pall robthe...@aol.com wrote:
I went for the trial for the Baclofen Pump a few weeks ago and I was
amazed at the result. After injecting a small dosage of Baclofen directly
Sent: Saturday, February 23, 2013 9:22 PM
Subject: RE: [TMIC] Baclofen pump
OMG Lynn!! How often must you get it filled? I would pray to God that wasnt
every month. I think my doctor said like maybe every 3 months but IDK, I
couldnt afford that. Rob I hope you can get it and NOT have that cost
To: lynnemye...@yahoo.com
Sent: Friday, February 22, 2013 9:09 PM
Subject: Re: [TMIC] Baclofen pump
Lynn, I had no
idea we would have to pay each time
the pump needed to be
refilled. Is that a standard thing? What kind of insurance do you
have? That really scares me because no one
2013 16:36:52 -0800
From: lynnemye...@yahoo.com
Subject: Re: [TMIC] Baclofen pump
To: robthe...@aol.com; tmic-list@eskimo.com
Rob I have had a pump for quite a few years now, I use it to control clonus in
my legs. The only down side I have found is the cost involved with getting the
pump filled
Pall robthe...@aol.com
To: tmic-list@eskimo.com
Sent: Tuesday, February 12, 2013 11:31 AM
Subject: [TMIC] Baclofen pump
I have just seen a new neuro who recommended the baclofen pump. He had me do a
trial where he inserted a needle into my spine and injected a small dose of
baclofen. Almost
: robthe...@aol.com
Date: Sat, 16 Feb 2013 19:25:45 -0500
Subject: [TMIC] Baclofen Pump
After doing the trial last week and having really good results, I have decided
to go ahead with the Baclofen Pump. I have scheduled an appointment with the
surgeon in 2 weeks.
Now that I have made the decision
Subject: [TMIC] Baclofen Pump
After doing the trial last week and having really good results, I have
decided to go ahead with the Baclofen Pump. I have scheduled an appointment
with the surgeon in 2 weeks.
Now that I have made the decisioncan anybody tell me why it might be the
wrong
and keep us posted.
Janice
From: Robert Pall
Sent: Saturday, February 16, 2013 6:25 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Baclofen Pump
After doing the trial last week and having really good results, I have decided
to go ahead with the Baclofen Pump. I have scheduled an appointment
After doing the trial last week and having really good results, I have decided
to go ahead with the Baclofen Pump. I have scheduled an appointment with the
surgeon in 2 weeks.
Now that I have made the decisioncan anybody tell me why it might be the
wrong one?
Thanks
Rob in New Jersey
I have just seen a new neuro who recommended the baclofen pump. He had me do a
trial where he inserted a needle into my spine and injected a small dose of
baclofen. Almost immediately I felt the banding in my legs improve and my
walking was much better as well. I guess I am just worried about
.
Lynne
--- On Sat, 11/12/11, Emily em...@telephonelady.com wrote:
From: Emily em...@telephonelady.com
Subject: [TMIC] Baclofen Question
To: 'tmic' tmic-list@eskimo.com
Date: Saturday, November 12, 2011, 1:27 PM
Do any of you have the Baclofen pump? If
so, does it help? How does
-
From: Emily em...@telephonelady.com
To: 'tmic' tmic-list@eskimo.com
Sent: Sat, 12 Nov 2011 18:27:33 - (UTC)
Subject: [TMIC] Baclofen Question
Do any of you have the Baclofen pump? If
so, does it help? How does it work? The neurologist is talking about my
husband using this method of taking
Do any of you have the Baclofen pump? If so, does it help? How does it
work? The neurologist is talking about my husband using this method of
taking Baclofen because the spasticity in his legs is preventing him from
being able to stand and is interfering with his physical therapy. Your
input
I do not use the pump, but sure rely on Baclofen to calm the spasms in my legs.
You will get more input.
Janice
From: Emily
Sent: Saturday, November 12, 2011 12:27 PM
To: 'tmic'
Subject: [TMIC] Baclofen Question
Do any of you have the Baclofen pump? If so, does it help? How does
Susan, what times of the day/evening do you take your Baclofen?
Janice
From: Susan Kleinz
Sent: Saturday, November 12, 2011 5:21 PM
To: Janice Nichols
Cc: em...@telephonelady.com ; 'tmic'
Subject: Re: [TMIC] Baclofen Question
I have not used the baclofen pump, but a good friend of mine,
who
Need a little help. I am presently weaning myself off of Cymbalta (hated
it!) and am down to 30 mg from 60 mg and I will be off of the Cymbalta
within about 2 more weeks. Once I am finished with the Cymbalta I am
going to retry ( I tried it more than 10 years ago) Baclofen. The Neuro
gave me a
in my legs but not a whole lot with the banding
in my right side.
if i do not take it I not only have more pain with spasms but i jerk a lot.
John in WV
--- On Wed, 11/24/10, Robert Pall rp...@neillsupply.com wrote:
From: Robert Pall rp...@neillsupply.com
Subject: [TMIC] Baclofen
To: tmic-list
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Wednesday, November 24, 2010 9:42 AM
To: transverse myelitis
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years. i am supposed to take 100mg a
day but usually just take 80.
the people that make the stuff
...@neillsupply.com
Subject: [TMIC] Baclofen
To: tmic-list@eskimo.com
Date: Wednesday, November 24, 2010, 9:34 AM
Need a little help. I am presently weaning myself off of Cymbalta (hated it!)
and am down to 30 mg from 60 mg and I will be off of the Cymbalta within about
2 more weeks. Once I am
can now honestly say that I no longer remember what it felt like before
TM...sad!!
Rob in New Jersey
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Wednesday, November 24, 2010 9:42 AM
To: transverse myelitis
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years
I only take 40 mg/day.
Hugs, Barbara A in Auburn CA
-Original Message-
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Wed, Nov 24, 2010 6:42 am
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years. i am supposed to take
My dosage via intrathecal pump has been 730 ugm per day for about two years.
Alton
Bladder problems??
Don't we all have some abnormality from TM. I have a flaccid/spastic bladder-
It fills with an enormous amount of urine, then takes two or three times to
empty. Also, When I have to urinate, I have to really urinate- no waiting
F
, the baclofen really helps.
Janice
--
From: Patricia Cooley patticoole...@gmail.com
Sent: Saturday, July 10, 2010 10:09 AM
To: pjv1...@chartermi.net; 'tmic' tmic-list@eskimo.com
Subject: RE: [TMIC] Baclofen Dosage
I HAVE A QUESTION TO ALL OF YOU
Sent: Saturday, July 10, 2010 12:23 PM
To: Patricia Cooley patticoole...@gmail.com; pjv1...@chartermi.net;
'tmic' tmic-list@eskimo.com
Subject: Re: [TMIC] Baclofen Dosage
Patti - Wisconsin,
I take it to help with the muscles spasms and it helps relax the muscles
in my legs.
Apparently it helps
'
tmic-list@eskimo.com
Sent: Sunday, July 11, 2010 5:22 PM
Subject: Re: [TMIC] Baclofen Dosage
Heather, your comment about the bladder reminds me. I wanted to ask
how many of us still have bladder problems after years of
TM.I certainly do. Will you guys please comment?
Janice
[mailto:jan...@centurytel.net]
Sent: Sunday, July 11, 2010 5:23 PM
To: Pieter and Heather; Patricia Cooley; pjv1...@chartermi.net; 'tmic'
Subject: Re: [TMIC] Baclofen Dosage
Heather, your comment about the bladder reminds me. I wanted to ask how
many of us still have bladder problems after years of
TM
@eskimo.com
Subject: RE: [TMIC] Baclofen Dosage
I HAVE A QUESTION TO ALL OF YOU TAKING BACLOFEN. WHY DO YOU TAKE IT AND
WHAT DOES IT HELP. I MENTIONED TO MY NEURO AND HE SAID IT WOULDN'T BE OF
ANY BENEFIT TO ME. SINCE I MOVED AND WILL HAVE TO CONNECT WITH A
DIFFERENT NEURO, I WILL DISCUSS
PM
To: tmic-list@eskimo.com ; jan...@centurytel.net
Subject: Fwd: [TMIC] Baclofen Dosage
Janice,
I don't take Baclofen - the Neurologist that was on-call at the hospital when
TM first visited me prescribed Neurontin [generic = Gabapentin] and Norco
[generic = Hydrocodone]. At first I
I take 10mg Baclofen every 8 hours. This amount causes the least amount of
mental confusion and drowsiness.
Patti - Michigan
@eskimo.com
Subject: [TMIC] Baclofen Dosage
I take 10mg Baclofen every 8 hours. This amount causes the least amount
of mental confusion and drowsiness.
Patti - Michigan
.
PATTI - WISCONSIN
-Original Message-
From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net]
Sent: Saturday, July 10, 2010 6:22 AM
To: tmic
Subject: [TMIC] Baclofen Dosage
I take 10mg Baclofen every 8 hours. This amount causes the least amount of
mental confusion and drowsiness
@eskimo.com
Sent: Saturday, July 10, 2010 9:09 AM
Subject: RE: [TMIC] Baclofen Dosage
I HAVE A QUESTION TO ALL OF YOU TAKING BACLOFEN. WHY DO YOU TAKE IT AND
WHAT DOES IT HELP. I MENTIONED TO MY NEURO AND HE SAID IT WOULDN'T BE OF
ANY BENEFIT TO ME. SINCE I MOVED AND WILL HAVE TO CONNECT
I was on the max dosage of oral Baclofen before the pump and was not getting
relief from the spasms, just felt like a had major brain fog all the time.
--- On Wed, 5/19/10, Janice Nichols jan...@centurytel.net wrote:
From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] baclofen pump
it.
Janice
From: lynne myers
Sent: Thursday, May 20, 2010 8:58 AM
To: tmic
Subject: Re: [TMIC] baclofen pump
I was on the max dosage of oral Baclofen before the pump and was not
getting relief from the spasms, just felt like a had major brain fog all the
time.
--- On Wed, 5/19
I've had a pump for nine years and swear by it. Replaced it last December
concerned that the battery might be nearly exhausted.
My spasticity mostly manifested as a knee jerk - untreated, it would slam into
the underside of the kitchen table. The pump has stopped that. Completely.
Downside -
I've had a pump for nine years and swear by it. Replaced it last December.
My spasticity mostly manifested as a knee jerk - untreated, it would slam into
the underside of the kitchen table. The pump has stopped that. Completely.
Downside - refills every one to two months depending on capacity,
: dennis rabalais dennis_rabalais20...@yahoo.com
Subject: [TMIC] baclofen pump
To: tmic-list@eskimo.com
Date: Tuesday, May 18, 2010, 3:57 PM
hi my name is dennis. i have had tm since 2002. i am getting a baclofen pump
put in. has anyone in this group have had one? if so, has it worked? i am
I have been very pleased with the amount of baclofen I take in pill form.
It really has helped with knee-jerking spasms.
Janice
From: lynne myers
Sent: Wednesday, May 19, 2010 7:44 AM
To: dennis rabalais ; tmic
Subject: Re: [TMIC] baclofen pump
I have had a Baclofen pump for a 3
The pump looks like a steel hockey puck with a rubber window in the center and
a cannula connection on the side. To refill it the doctor sticks a thin needle
through the skin through the rubber window into the pump’s drug reservoir.
Between the needle and the syringe is a micron filter to block
-Original Message-
From: dennis rabalais dennis_rabalais20...@yahoo.com
To: tmic-list@eskimo.com
Sent: Tue, May 18, 2010 3:57 pm
Subject: [TMIC] baclofen pump
hi my name is dennis. i have had tm since 2002. i am getting a baclofen pump
put in. has anyone in this group have had one
hi my name is dennis. i have had tm since 2002. i am getting a baclofen pump
put in. has anyone in this group have had one? if so, has it worked? i am a
little bit nervous.
dennis,
texas
-0800 (PST)Subject:
[TMIC] Baclofen and Neurontin??
Hi Everyone,Thanks for the input on the epidural injection. Well I didn't
receive it today but I'm supposed to next Saturday. The doc prescribed
Neruontin and Baclofen for my pinched nerve? I've never taken any of these for
TM or anything else
Hi Everyone,
Thanks for the input on the epidural injection. Well I didn't receive it
today but I'm supposed to next Saturday. The doc prescribed Neruontin and
Baclofen for my pinched nerve? I've never taken any of these for TM or
anything else, but I know alot of you are on them. Can you
http://health.groups.yahoo.com/group/MSersLife/
- Original Message From: [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Friday, August 4, 2006 1:07:22 PMSubject: [TMIC] baclofen 30 MG A DAY
HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE what are you guys taking
I take Tizanidine - 10mg
before bed - works great!
2mg at lunch
BERNARD
BUTCHER
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Friday, August 04, 2006 4:07 PMTo:
tmic-list@eskimo.comSubject: [TMIC] baclofen 30 MG A
DAY
HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE
] ; tmic-list@eskimo.com
Sent: Saturday, August 05, 2006 5:29
PM
Subject: Re: [TMIC] baclofen 30 MG A
DAY
I did not have real bad spasms but wastaking Valium
every time I got spasms and it worked.My new neurologist
prescribed Dantrolene for stiffness. Firstone 25 mg. per day, now
-list@eskimo.com
Sent: Friday, August 04, 2006 1:07
PM
Subject: [TMIC] baclofen 30 MG A
DAY
HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE what are
you guys taking ?? THANKS SOO MUCH
In a message dated 2/4/2006 1:16:38 PM Central Standard Time,
[EMAIL PROTECTED] writes:
Hi
Cheryl and JudeMy torso and back cry out for Baclofen too! I have
weened myself t0 40mg daily and have been considering trying 30mg daily.
Jude, do you take baclofen and add the valium when you
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