Re: [QUAD-L] sweating profusely when laying on my side at night
A lot of this sounds way too familiar for me. I would be thinking hip bones/heads of your femur pressure points or less likely your ischeal (butt) bone. You may want to have it checked out now because if it's started something inside that's yet to show itself, there may be something that can be done before more damage is caused.. Not trying to scare you but this all sounds way too familiar… Jeff On Friday, January 12, 2024 at 09:52:44 AM PST, Eric Olson wrote: Wish I could help. You could just monitor it, but if it continues, I would assume something is going on. I don't have any sweating issues so I can't really relate.Regardless, sweating is probably not a good sign. Sorry I couldn't be more helpful On Thu, Jan 11, 2024 at 10:37 PM Michelle Harkness wrote: Hey Greg! I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel or UTI for me. Bowel and UTI are usually not constant though, they come and go for sweats, like when I'm actually pooping. I also use a magic bullet every other night and have been successful with it for 30 years! The pressure point is the only one that will have the sweating immediately stop if I reposition. I don't usually even have a breakdown of skin with the "bed sweats", it's usually if my pillow between my knee and ankle points has shifted and I have bone to bone contact, if my top leg has somehow fell forward over my bottom and stayed there for a while, or if my heels are not on a pillow and are making contact with the bed. I also use an alternating air pressure mattress, which works fairly good, but not always the best. Weirdly, I'm wondering if it could just be a bone pushing against you inside that your body is not feeling comfortable with? Especially if you're not seeing red marks anywhere. I will usually have faint red marks if any of the above happen, which go away fairly quickly. With internal stuff, like my galbladder and pancreas having an issue, they showed up in spasms, not sweats. The only other time the sweats were weird, was when I went into labor with my kiddo. The contractions mimicked my pooping contractions and made me sweat with every one - I assume that's not an issue for you though. ;) I would say to pay extra special attention to your positioning and see if anything is pressing more firmly. I usually sweat opposite - so if I'm sweating on the left, the right is most likely the problem and vice versa. I'm really wondering if one of your kidney stones just decided to present differently or get stuck somewhere else to provide your night sweats? That could potentially be a pressure point your body doesn't like as well. My hubby just had his first stone a few months ago and I legit thought he was dying! A trip to the ER, lots of pain meds and a 5 mm stone later, he was okay! Not gonna lie, I was not impressed with the stone - I always thought they were bigger! I swear there should be a whole special book on how our body gives us different signs as quads!! Best of luck figuring things out and I hope it's sooner rather than later! Michelle On Thu, Jan 11, 2024 at 10:13 PM Greg wrote: Hi all. I'm a C5 quad since a diving accident in August 1987 when I was 23. I just turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this time last year. Amazingly enough I have used the same bowel program since leaving the hospital in 1988. Every other night I lay on my left side then use a suppository (Magic Bullet by Concepts in Confidence) the following morning. Most mornings my program is finished in 2 hours, sometimes 2.5. Yes, I have been very lucky in that regard. The following night I lay on my right side. In other words, I empty my bowels every 48 hours. Also, I usually spend about 8 hours on my side each night. The last four nights I have started sweating profusely in the middle of the night. The sweating is usually limited to my neck, shoulder, side, and arm but only on the side that I'm not laying on. So when I'm laying on my left side, my right side sweats, then the following night while laying on my right side, I sweat on the left side. I have no sensation from the mid-shoulder down, but strangely enough I do feel the sweating. Re: pressure sores, occasionally I do have superficial pressure sores at the ischial tuberosity location, but nothing serious since 2004-2005 when I had a bad one that required surgery and sidelined me for almost 2 years. Since 2004 I have slept on an Invacare air mattress, and for the past 5 years it's been the Invacare MA600 system. Today my butt (and sides, hips, knees) looks good, and at 60 I don't spend a lot of time in my chair for fear of developing a pressure sore. My caregiver has been with me the entire time and knows as much about decubitus ulcers as I do. The sweating does not appear to be caused by pressure on my skin. Of course it could be something under the skin but I don't know. Another problem I have
Re: [QUAD-L] sweating profusely when laying on my side at night
Wish I could help. You could just monitor it, but if it continues, I would assume something is going on. I don't have any sweating issues so I can't really relate.Regardless, sweating is probably not a good sign. Sorry I couldn't be more helpful On Thu, Jan 11, 2024 at 10:37 PM Michelle Harkness < hotwheelsmiche...@gmail.com> wrote: > Hey Greg! > > I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel > or UTI for me. Bowel and UTI are usually not constant though, they come > and go for sweats, like when I'm actually pooping. I also use a magic > bullet every other night and have been successful with it for 30 years! > The pressure point is the only one that will have the sweating immediately > stop if I reposition. I don't usually even have a breakdown of skin with > the "bed sweats", it's usually if my pillow between my knee and ankle > points has shifted and I have bone to bone contact, if my top leg has > somehow fell forward over my bottom and stayed there for a while, or if my > heels are not on a pillow and are making contact with the bed. I also use > an alternating air pressure mattress, which works fairly good, but not > always the best. > > Weirdly, I'm wondering if it could just be a bone pushing against you > inside that your body is not feeling comfortable with? Especially if > you're not seeing red marks anywhere. I will usually have faint red marks > if any of the above happen, which go away fairly quickly. With internal > stuff, like my galbladder and pancreas having an issue, they showed up in > spasms, not sweats. The only other time the sweats were weird, was when I > went into labor with my kiddo. The contractions mimicked my pooping > contractions and made me sweat with every one - I assume that's not an > issue for you though. ;) > > I would say to pay extra special attention to your positioning and see if > anything is pressing more firmly. I usually sweat opposite - so if I'm > sweating on the left, the right is most likely the problem and vice versa. > > I'm really wondering if one of your kidney stones just decided to > present differently or get stuck somewhere else to provide your night > sweats? That could potentially be a pressure point your body doesn't like > as well. My hubby just had his first stone a few months ago and I legit > thought he was dying! A trip to the ER, lots of pain meds and a 5 mm stone > later, he was okay! Not gonna lie, I was not impressed with the stone - I > always thought they were bigger! > > I swear there should be a whole special book on how our body gives us > different signs as quads!! Best of luck figuring things out and I hope > it's sooner rather than later! > > Michelle > > On Thu, Jan 11, 2024 at 10:13 PM Greg wrote: > >> Hi all. >> >> I'm a C5 quad since a diving accident in August 1987 when I was 23. I >> just turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this >> time last year. >> >> Amazingly enough I have used the same bowel program since leaving the >> hospital in 1988. Every other night I lay on my left side then use a >> suppository (Magic Bullet by Concepts in Confidence) the following morning. >> Most mornings my program is finished in 2 hours, sometimes 2.5. Yes, I have >> been very lucky in that regard. The following night I lay on my right side. >> In other words, I empty my bowels every 48 hours. Also, I usually spend >> about 8 hours on my side each night. >> >> The last four nights I have started sweating profusely in the middle of >> the night. The sweating is usually limited to my neck, shoulder, side, and >> arm but only on the side that I'm not laying on. So when I'm laying on my >> left side, my right side sweats, then the following night while laying on >> my right side, I sweat on the left side. I have no sensation from the >> mid-shoulder down, but strangely enough I do feel the sweating. >> >> Re: pressure sores, occasionally I do have superficial pressure sores at >> the ischial tuberosity location, but nothing serious since 2004-2005 when I >> had a bad one that required surgery and sidelined me for almost 2 years. >> Since 2004 I have slept on an Invacare air mattress, and for the past 5 >> years it's been the Invacare MA600 system. Today my butt (and sides, hips, >> knees) looks good, and at 60 I don't spend a lot of time in my chair for >> fear of developing a pressure sore. My caregiver has been with me the >> entire time and knows as much about decubitus ulcers as I do. The sweating >> does not appear to be caused by pressure on my skin. Of course it could be >> something under the skin but I don't know. >> >> Another problem I have dealt with for the past 30+ years is kidney >> stones. Kidney stones have their own set of warning signs but sweating has >> never been one of them for me. I mention this because it's possible I do >> have kidney stones as I pretty much live with them all the time. Several >> times over the years I have had lithotripsy to
Re: [QUAD-L] sweating profusely when laying on my side at night
Hey Greg! I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel or UTI for me. Bowel and UTI are usually not constant though, they come and go for sweats, like when I'm actually pooping. I also use a magic bullet every other night and have been successful with it for 30 years! The pressure point is the only one that will have the sweating immediately stop if I reposition. I don't usually even have a breakdown of skin with the "bed sweats", it's usually if my pillow between my knee and ankle points has shifted and I have bone to bone contact, if my top leg has somehow fell forward over my bottom and stayed there for a while, or if my heels are not on a pillow and are making contact with the bed. I also use an alternating air pressure mattress, which works fairly good, but not always the best. Weirdly, I'm wondering if it could just be a bone pushing against you inside that your body is not feeling comfortable with? Especially if you're not seeing red marks anywhere. I will usually have faint red marks if any of the above happen, which go away fairly quickly. With internal stuff, like my galbladder and pancreas having an issue, they showed up in spasms, not sweats. The only other time the sweats were weird, was when I went into labor with my kiddo. The contractions mimicked my pooping contractions and made me sweat with every one - I assume that's not an issue for you though. ;) I would say to pay extra special attention to your positioning and see if anything is pressing more firmly. I usually sweat opposite - so if I'm sweating on the left, the right is most likely the problem and vice versa. I'm really wondering if one of your kidney stones just decided to present differently or get stuck somewhere else to provide your night sweats? That could potentially be a pressure point your body doesn't like as well. My hubby just had his first stone a few months ago and I legit thought he was dying! A trip to the ER, lots of pain meds and a 5 mm stone later, he was okay! Not gonna lie, I was not impressed with the stone - I always thought they were bigger! I swear there should be a whole special book on how our body gives us different signs as quads!! Best of luck figuring things out and I hope it's sooner rather than later! Michelle On Thu, Jan 11, 2024 at 10:13 PM Greg wrote: > Hi all. > > I'm a C5 quad since a diving accident in August 1987 when I was 23. I just > turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this time > last year. > > Amazingly enough I have used the same bowel program since leaving the > hospital in 1988. Every other night I lay on my left side then use a > suppository (Magic Bullet by Concepts in Confidence) the following morning. > Most mornings my program is finished in 2 hours, sometimes 2.5. Yes, I have > been very lucky in that regard. The following night I lay on my right side. > In other words, I empty my bowels every 48 hours. Also, I usually spend > about 8 hours on my side each night. > > The last four nights I have started sweating profusely in the middle of > the night. The sweating is usually limited to my neck, shoulder, side, and > arm but only on the side that I'm not laying on. So when I'm laying on my > left side, my right side sweats, then the following night while laying on > my right side, I sweat on the left side. I have no sensation from the > mid-shoulder down, but strangely enough I do feel the sweating. > > Re: pressure sores, occasionally I do have superficial pressure sores at > the ischial tuberosity location, but nothing serious since 2004-2005 when I > had a bad one that required surgery and sidelined me for almost 2 years. > Since 2004 I have slept on an Invacare air mattress, and for the past 5 > years it's been the Invacare MA600 system. Today my butt (and sides, hips, > knees) looks good, and at 60 I don't spend a lot of time in my chair for > fear of developing a pressure sore. My caregiver has been with me the > entire time and knows as much about decubitus ulcers as I do. The sweating > does not appear to be caused by pressure on my skin. Of course it could be > something under the skin but I don't know. > > Another problem I have dealt with for the past 30+ years is kidney stones. > Kidney stones have their own set of warning signs but sweating has never > been one of them for me. I mention this because it's possible I do have > kidney stones as I pretty much live with them all the time. Several times > over the years I have had lithotripsy to remove large stubborn kidney > stones that caused persistent UTIs, but it's not surprising for me to pass > several kidney stones, sometimes quite large, over the course of a few > weeks and I can usually tell when it's about to happen. Headaches, chills, > and muscle spasms in certain areas of my side and lower back, almost always > accompany kidney stones, and I am not experiencing any of these at the > moment. No UTI symptoms at the moment either. >
[QUAD-L] sweating profusely when laying on my side at night
Hi all. I'm a C5 quad since a diving accident in August 1987 when I was 23. I just turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this time last year. Amazingly enough I have used the same bowel program since leaving the hospital in 1988. Every other night I lay on my left side then use a suppository (Magic Bullet by Concepts in Confidence) the following morning. Most mornings my program is finished in 2 hours, sometimes 2.5. Yes, I have been very lucky in that regard. The following night I lay on my right side. In other words, I empty my bowels every 48 hours. Also, I usually spend about 8 hours on my side each night. The last four nights I have started sweating profusely in the middle of the night. The sweating is usually limited to my neck, shoulder, side, and arm but only on the side that I'm not laying on. So when I'm laying on my left side, my right side sweats, then the following night while laying on my right side, I sweat on the left side. I have no sensation from the mid-shoulder down, but strangely enough I do feel the sweating. Re: pressure sores, occasionally I do have superficial pressure sores at the ischial tuberosity location, but nothing serious since 2004-2005 when I had a bad one that required surgery and sidelined me for almost 2 years. Since 2004 I have slept on an Invacare air mattress, and for the past 5 years it's been the Invacare MA600 system. Today my butt (and sides, hips, knees) looks good, and at 60 I don't spend a lot of time in my chair for fear of developing a pressure sore. My caregiver has been with me the entire time and knows as much about decubitus ulcers as I do. The sweating does not appear to be caused by pressure on my skin. Of course it could be something under the skin but I don't know. Another problem I have dealt with for the past 30+ years is kidney stones. Kidney stones have their own set of warning signs but sweating has never been one of them for me. I mention this because it's possible I do have kidney stones as I pretty much live with them all the time. Several times over the years I have had lithotripsy to remove large stubborn kidney stones that caused persistent UTIs, but it's not surprising for me to pass several kidney stones, sometimes quite large, over the course of a few weeks and I can usually tell when it's about to happen. Headaches, chills, and muscle spasms in certain areas of my side and lower back, almost always accompany kidney stones, and I am not experiencing any of these at the moment. No UTI symptoms at the moment either. So, my question is what could be causing these cold clammy sweats? Have any of you old timers experienced this and figured it out? Is it always a pressure situation? I do remember sweating profusely on my head and face whenever I was up in my chair right before finding the bad open pressure sore on my butt back in 2004, But back then neither of us knew what a pressure sore was so we didn't know to look for something like that. We do now but again my caregiver sees no evidence of pressure on my skin anywhere. Any suggestions or help would be very much appreciated. Thanks to all of you who contribute here on the quad-list, and especially Jim Lubin for providing us with this forum all these years. Best, Greg
Re: [QUAD-L] sweating
It's so weird, but for me when I get cold I sweat, maybe it's because I bundle up, but the thing is, I'm still cold and I'm sweating, it's the most uncomfortable thing! Then my sweat gets cold and that makes it worse. I hate the cold weather. Lissette Whitehead 416 W. San Ysidro Blvd. San Ysidro, CA 92173 www.lwgripgloves.com <http://www.lwgripgloves.com> From: Shirley Bell Sent: Tuesday, January 5, 2021 3:03 PM To: Dana Wray Cc: Quad-list@eskimo.com Subject: Re: [QUAD-L] sweating Hi Dana, sweating is the worst. I have suffered with it on and off my whole 45 years. no issues that I know of, comes and goes. I use oxybutin(sp?) and long release toltaridine (same thing) at night and day. It helps. I am good lying down in bed, it starts as soon as I slide over to chair. My new trick is using my ceiling lift to get in chair. Not much sweating now for 3 weeks. good luck with it. Humidity makes it worse for me. From: Dana Wray Sent: Tuesday, January 5, 2021 1:33 AM To: Nichole Rohling Cc: Greg ; quad-list@eskimo.com Subject: Re: [QUAD-L] sweating They are no longer making a Medications I have used for decades call propanethine. 15 mg, it worked so great was sweating. Does anyone know of any other medication for sweating. My doctor is out of the office, hopefully they will know of something. I hope somebody knows of something better On Sun, Jan 3, 2021 at 3:49 PM Nichole Rohling wrote: Hemorrhoids, any small skin sores, slits/tears near your bottom? Nichole From: Greg [mailto:g...@eskimo.com] Sent: Saturday, January 2, 2021 5:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] sweating I have been sweating so bad the last few weeks. I have had lots of gas and it can cause sweating pain, but no idea why so much gas. My poo is soft and sticky and have a colostomy, but thats happened before but never this much sweating. Checked for uti, but ok. Its when sitting, laying, etc. Anyone go through this? Greg [https://ipmcdn.avast.com/images/icons/icon-envelope-tick-green-avg-v1.png]<http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail> Virus-free. www.avg.com<http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail>
Re: [QUAD-L] sweating
Hi Dana, sweating is the worst. I have suffered with it on and off my whole 45 years. no issues that I know of, comes and goes. I use oxybutin(sp?) and long release toltaridine (same thing) at night and day. It helps. I am good lying down in bed, it starts as soon as I slide over to chair. My new trick is using my ceiling lift to get in chair. Not much sweating now for 3 weeks. good luck with it. Humidity makes it worse for me. From: Dana Wray Sent: Tuesday, January 5, 2021 1:33 AM To: Nichole Rohling Cc: Greg ; quad-list@eskimo.com Subject: Re: [QUAD-L] sweating They are no longer making a Medications I have used for decades call propanethine. 15 mg, it worked so great was sweating. Does anyone know of any other medication for sweating. My doctor is out of the office, hopefully they will know of something. I hope somebody knows of something better On Sun, Jan 3, 2021 at 3:49 PM Nichole Rohling wrote: Hemorrhoids, any small skin sores, slits/tears near your bottom? Nichole From: Greg [mailto:g...@eskimo.com] Sent: Saturday, January 2, 2021 5:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] sweating I have been sweating so bad the last few weeks. I have had lots of gas and it can cause sweating pain, but no idea why so much gas. My poo is soft and sticky and have a colostomy, but thats happened before but never this much sweating. Checked for uti, but ok. Its when sitting, laying, etc. Anyone go through this? Greg
Re: [QUAD-L] sweating
They are no longer making a Medications I have used for decades call propanethine. 15 mg, it worked so great was sweating. Does anyone know of any other medication for sweating. My doctor is out of the office, hopefully they will know of something. I hope somebody knows of something better On Sun, Jan 3, 2021 at 3:49 PM Nichole Rohling wrote: > Hemorrhoids, any small skin sores, slits/tears near your bottom? > > > > Nichole > > > > *From:* Greg [mailto:g...@eskimo.com] > *Sent:* Saturday, January 2, 2021 5:42 PM > *To:* quad-list@eskimo.com > *Subject:* [QUAD-L] sweating > > > > I have been sweating so bad the last few weeks. I have had lots of gas and > it can cause sweating pain, but no idea why so much gas. My poo is soft and > sticky and have a colostomy, but thats happened before but never this much > sweating. > Checked for uti, but ok. Its when sitting, laying, etc. > Anyone go through this? > Greg >
RE: [QUAD-L] sweating
Hemorrhoids, any small skin sores, slits/tears near your bottom? Nichole From: Greg [mailto:g...@eskimo.com] Sent: Saturday, January 2, 2021 5:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] sweating I have been sweating so bad the last few weeks. I have had lots of gas and it can cause sweating pain, but no idea why so much gas. My poo is soft and sticky and have a colostomy, but thats happened before but never this much sweating. Checked for uti, but ok. Its when sitting, laying, etc. Anyone go through this? Greg
Re: [QUAD-L] sweating
I have been getting some sweating and like mild dysreflexia on and off a bit latelybut no gas. I think mine could be uti or shoulder related--my shoulders started hurting bad about nov. 1st. and the right side hurts really bad, I have been a Quad over 23 years now, so perhaps my shoulders could be getting worn out or bone on bone as some quads say can happen. Dan H** On Saturday, January 2, 2021, 05:42:29 PM CST, Greg wrote: I have been sweating so bad the last few weeks. I have had lots of gas and it can cause sweating pain, but no idea why so much gas. My poo is soft and sticky and have a colostomy, but thats happened before but never this much sweating. Checked for uti, but ok. Its when sitting, laying, etc. Anyone go through this? Greg
[QUAD-L] sweating
I have been sweating so bad the last few weeks. I have had lots of gas and it can cause sweating pain, but no idea why so much gas. My poo is soft and sticky and have a colostomy, but thats happened before but never this much sweating. Checked for uti, but ok. Its when sitting, laying, etc. Anyone go through this? Greg
Re: [QUAD-L] sweating ?
I've noticed over the years that I get a 'head pressure' associated with sweat causing pains. The pressure is slightly different sometimes, which points at certain issues. Primary pains are back, catheter and butt wound. Each has very slightly different head/sweat inducing effects. Aaron Mann On Thu, Aug 20, 2020 at 8:35 PM Greg wrote: > Can any of you figure out what's wrong when you are sweaing, by how bad > you are sweating and or where you are sweating? > > Sometimes I can tell when it's a blocked catheter or something else. > Normaly I sweat mostly on my right face, neck, forehead. When its my cath > it all over and harder. > > Greg >
[QUAD-L] sweating ?
Can any of you figure out what's wrong when you are sweaing, by how bad you are sweating and or where you are sweating? Sometimes I can tell when it's a blocked catheter or something else. Normaly I sweat mostly on my right face, neck, forehead. When its my cath it all over and harder. Greg
[QUAD-L] Sweating
What I have taken for sweating for years 15 mg https://www.progressnp.com/wp-content/uploads/sites/29/2017/03/DN-Propantheline-lsw.pdf
Re: [QUAD-L] Sweating
I hope he's ok. I'm not on Facebook so please keep us in the loop On Fri, May 31, 2019 at 1:28 AM Jim Lubin wrote: > Quad-list, I just saw this message on facebook from Greg's mom: > > Just a quick note to let all of you wonderful friends of Greg know that he > is currently in intensive care due to severe complications from his bone > infection. Please send him good thoughts and prayers. > Joanne, Greg's mom >
Re: [QUAD-L] Sweating
Quad-list, I just saw this message on facebook from Greg's mom: Just a quick note to let all of you wonderful friends of Greg know that he is currently in intensive care due to severe complications from his bone infection. Please send him good thoughts and prayers. Joanne, Greg's mom
[QUAD-L] Sweating
I'm been having the sweating issue for almost 2 months now, but mine is sweating whenever i sit up in my chair. though i found the cause. I had a sore growing under the skin on my butt. It tunneled and broke open. I was put on 2 IV antibiotics, but last night I had to call 911. I was so dizzy, BP was 62/50. The meds gave me such a stomachache I wasn't drinking. Got dehydrated. One of the IVs they need to check blood levels for kidneys, mine was way too high, was toxic. I have to stop for a few days. But they are going to put me on a IV just for extra fluids. I'm going to see if I can do that monthly after too. I've called 911, 4 or 5 times now for dehydration. I'm always sitting outside in AZ. And just don't drink enough. Greg
Re: [QUAD-L] Sweating
Greg, when I sweat, it is the same as you describe and mostly during bowel routines. Dan H.*** On Tuesday, April 23, 2019, 8:12:54 PM CDT, Greg wrote: When you sweat from A.D. do you sweat in same areas no matter the cause? I sweat either on my forehead, right temple, back of neck, or all 3 areas. But, I found no pattern. As far as Bladder is forehead, Bowels are temple, etc. Anyone notice a different sweating location caused by different causes? Greg
[QUAD-L] Sweating
When you sweat from A.D. do you sweat in same areas no matter the cause? I sweat either on my forehead, right temple, back of neck, or all 3 areas. But, I found no pattern. As far as Bladder is forehead, Bowels are temple, etc. Anyone notice a different sweating location caused by different causes? Greg
[QUAD-L] Sweating
You would think after 36 years as a quad, my family would understand, when I sweat, I'M NOT OVERHEATED! I keep sweating and they keep saying, "Its probably too hot outside." I keep saying "Its not that kind of sweating." Oh well,they mean well. Greg
[QUAD-L] Sweating
I am going crazy sweating on the back of my neck. First I thought is was because of a small sore on my butt. But its not. Then I thought UTI, but no. It seems to be my colostomy, but only when I'm going while sitting up. Reclining stops it. I've had it for years now, never caused an issue. From liquid to rock, never caused sweating. I guess its time to see someone about it. Everything is working fine, but sweating while going. Anyone ever have this issue? Thx Greg
Re: [QUAD-L] Sweating iPad holder
My sweating is sometimes for no reason but other times it’s because my my tubing is not draining the urine from my ileo conduit. I wanted to share with you something I just found on the Internet and it works great for iPad. It hooks onto your desk and it stretches very far out so you can get under it comfortably to use it CTA Digital PAD-HASM Heavy-Duty Articulating Tablet Security Arm * I don’t know if I can send a picture. * *Dana * To anybody if you give me your email address. I know you will be pleased with this product. I love it. On Mon, Mar 4, 2019 at 6:23 PM Greg wrote: > I've checked everything. Even though my butt wound is small, more like a > skin sheer, just the skin rubbed off a tiny spot. I've been seeing a > wound doc just in-case it was the cause. He doesn't think so, even when > he pokes and prods I don't sweat. > > Bladder makes me sweat more than anything, but no UTI. I don't think a > draining issue, because I can sweat just seconds after sitting up. > Sometimes hours after, it comes and goes. > > Thinking bowel, but everything is moving fine. I am having a lot of gas, > that can be painful. But when ever I sweat a lot, it seems to cause some > gas. My Uro says uti's, etc can cause abdomen area spasms and that can > cause gas. > > The back of my neck is just wet today. Driving me nuts. Can't get into > my Uro until the 25th. He just left on vacation. But if not better soon, > I'll see if I can see someone else. > > Greg > >
Re: [QUAD-L] Sweating
I've checked everything. Even though my butt wound is small, more like a skin sheer, just the skin rubbed off a tiny spot. I've been seeing a wound doc just in-case it was the cause. He doesn't think so, even when he pokes and prods I don't sweat. Bladder makes me sweat more than anything, but no UTI. I don't think a draining issue, because I can sweat just seconds after sitting up. Sometimes hours after, it comes and goes. Thinking bowel, but everything is moving fine. I am having a lot of gas, that can be painful. But when ever I sweat a lot, it seems to cause some gas. My Uro says uti's, etc can cause abdomen area spasms and that can cause gas. The back of my neck is just wet today. Driving me nuts. Can't get into my Uro until the 25th. He just left on vacation. But if not better soon, I'll see if I can see someone else. Greg
Re: [QUAD-L] Sweating
I've had that granulation tissue trimmed back a couple times. It's usually not a problem other than causing some bleeding with catheter changes. I've had problems in the past with my bladder not draining simply because, when you sit up the distance between the catheter stoma and leg strap gets shorter, causing the catheter to bend in funky ways. Just moving the leg strap farther down towards my knee usually solves the problem. Just a thought On Mon, Mar 4, 2019 at 2:16 PM Randy Anderson wrote: > Hello > I'm 21 years post with a SP site. I also have had a protrusion around the > catheter for quite a few years. We call it the "proud flesh" or "the meat". > I believe the sticks you referred to have silver nitrate on them and uses a > chemical reaction to cauterize the proud flesh. > In the past I've never had much luck with it. I've had better luck when > one of my other urologists use to burn it off (imagine a wood-burning set) > but it's never stayed away completely. Mine will believe periodically and > usually it's at the proud flesh site. > As for the sweating, I certainly wouldn't rule out skin issues or anything > else but for me I'm guessing that your urine is backing up and when you lay > back the obstruction shifts and allows the urine to flow again. When you > sit back up you feel better because the bladder is empty. Sometimes the > obstruction can be a kink in the tubing or catheter. Sometimes it can be > sediment or "floaty pieces" of skin/bladder lining in the urine. When you > lay back sometimes this takes care of the problem and sometimes it doesn't > and the bladder fills up again, and you need to repeat the reclining again > and so on. > Whatever the obstruction is it may not be blocking the flow of urine > completely but slowing it to the point where it takes quite a while before > it fills the bladder to the point that it irritates you to the point of > dysreflexia. > But again, don't rule out what the other causes may be. > Randy > > On Mon, Mar 4, 2019 at 11:57 AM Eric Olson wrote: > >> Hmm...sweating is never a good sign for me anyway. Best to check the >> usual suspects. Since it gets worse when you sit up, could it be another >> butt sore that hasn't yet broken through the surface? >> >> On Mon, Mar 4, 2019 at 11:10 AM Greg wrote: >> >>> I am just sweating when I sit up. I recline and it goes away. But can't >>> find the cause. No UTI, my butt sore, very tiny, has healed up fine. My >>> cushion is fine. Crotch is fine. The only thing I can think of is my SP >>> Cath, the skin around it is "prouding". Where the skin kind of flares back. >>> We use these sticks that cauterizes the skin. But thats never caused this >>> sweating before. >>> >>> I'm trying to get back in to my Uro to get my bladder scoped. Its beet >>> awhile, might as well check for issues in the bladder too. >>> >>> Frustrating... >>> >>> Greg >>> >>
Re: [QUAD-L] Sweating
Hello I'm 21 years post with a SP site. I also have had a protrusion around the catheter for quite a few years. We call it the "proud flesh" or "the meat". I believe the sticks you referred to have silver nitrate on them and uses a chemical reaction to cauterize the proud flesh. In the past I've never had much luck with it. I've had better luck when one of my other urologists use to burn it off (imagine a wood-burning set) but it's never stayed away completely. Mine will believe periodically and usually it's at the proud flesh site. As for the sweating, I certainly wouldn't rule out skin issues or anything else but for me I'm guessing that your urine is backing up and when you lay back the obstruction shifts and allows the urine to flow again. When you sit back up you feel better because the bladder is empty. Sometimes the obstruction can be a kink in the tubing or catheter. Sometimes it can be sediment or "floaty pieces" of skin/bladder lining in the urine. When you lay back sometimes this takes care of the problem and sometimes it doesn't and the bladder fills up again, and you need to repeat the reclining again and so on. Whatever the obstruction is it may not be blocking the flow of urine completely but slowing it to the point where it takes quite a while before it fills the bladder to the point that it irritates you to the point of dysreflexia. But again, don't rule out what the other causes may be. Randy On Mon, Mar 4, 2019 at 11:57 AM Eric Olson wrote: > Hmm...sweating is never a good sign for me anyway. Best to check the > usual suspects. Since it gets worse when you sit up, could it be another > butt sore that hasn't yet broken through the surface? > > On Mon, Mar 4, 2019 at 11:10 AM Greg wrote: > >> I am just sweating when I sit up. I recline and it goes away. But can't >> find the cause. No UTI, my butt sore, very tiny, has healed up fine. My >> cushion is fine. Crotch is fine. The only thing I can think of is my SP >> Cath, the skin around it is "prouding". Where the skin kind of flares back. >> We use these sticks that cauterizes the skin. But thats never caused this >> sweating before. >> >> I'm trying to get back in to my Uro to get my bladder scoped. Its beet >> awhile, might as well check for issues in the bladder too. >> >> Frustrating... >> >> Greg >> >
Re: [QUAD-L] Sweating
Hmm...sweating is never a good sign for me anyway. Best to check the usual suspects. Since it gets worse when you sit up, could it be another butt sore that hasn't yet broken through the surface? On Mon, Mar 4, 2019 at 11:10 AM Greg wrote: > I am just sweating when I sit up. I recline and it goes away. But can't > find the cause. No UTI, my butt sore, very tiny, has healed up fine. My > cushion is fine. Crotch is fine. The only thing I can think of is my SP > Cath, the skin around it is "prouding". Where the skin kind of flares back. > We use these sticks that cauterizes the skin. But thats never caused this > sweating before. > > I'm trying to get back in to my Uro to get my bladder scoped. Its beet > awhile, might as well check for issues in the bladder too. > > Frustrating... > > Greg >
[QUAD-L] Sweating
I am just sweating when I sit up. I recline and it goes away. But can't find the cause. No UTI, my butt sore, very tiny, has healed up fine. My cushion is fine. Crotch is fine. The only thing I can think of is my SP Cath, the skin around it is "prouding". Where the skin kind of flares back. We use these sticks that cauterizes the skin. But thats never caused this sweating before. I'm trying to get back in to my Uro to get my bladder scoped. Its beet awhile, might as well check for issues in the bladder too. Frustrating... Greg
Re: [QUAD-L] Sweating on right side
I had severe problems with this. It turned out to be a particularly bad kidney stone that doctors are not picked up on from x-rays. After surgery to remove it, I didn't have any more problems. Regards, Ed Tessier - President | M: 909-994-5900 | O: 909-623-0535 Jeved Management, Inc. | 281 S. Thomas St. #505Ph M: 909-994-5900 | O: 909-623-0535 | www.jeved.com
Re: [QUAD-L] Sweating on right side
Hello Larry Do you by chance use a CPAP. I've had trouble with stomachaches and a bloated belly. I think it may be from the CPAP. If I sleep without it I seem to do better. I sleep with it on 7, which is in very high. I would like to turn it down to 6 that they want me to go to a sleep clinic again first. On Wed, May 31, 2017 at 8:27 PM, Larry Willis <lwillis82...@gmail.com> wrote: > I have stomach pain just about every night. Then I wake up with cold > sweats. I can only sleep on my left side. I have suspected pain medicine > for a long time. Antacids seem to help. I think my biggest problem is > bloating and constipation. We just can't win, can we? > > Sent from my iPad > > Begin forwarded message: > > *Resent-From:* quad-list@eskimo.com > *From:* jume9...@comcast.net > *Date:* May 30, 2017 at 7:19:44 PM EDT > *To:* quad-list <quad-list@eskimo.com> > *Subject:* *Re: [QUAD-L] Sweating on right side* > > I have been getting the sweats and my doc thinks i have a kidney stone, > that could possibly be your issue Greg but as far as the stomach thing it > could be an ulcer if you are taking anti-inflammatory meds? > > Meredith > > -- > *From: *"greg" <g...@eskimo.com> > *To: *"quad-list" <quad-list@eskimo.com> > *Sent: *Tuesday, May 30, 2017 1:07:55 PM > *Subject: *Re: [QUAD-L] Sweating on right side > > I am right now. I thought a UTI but meds didn't help. Now I'm off for an > x-ray to try and find the cause. I asume its that. > Sweats and stomach pain. > Greg > > > Ive been sweating on my right side pretty bad. I believe its from > > taking pain meds because when I pop the antacids it gets better. > > Anybody deal with mild ulcer/stomach irritation due to meds? > > > > > > Quad 98 > >
Fwd: [QUAD-L] Sweating on right side
I have stomach pain just about every night. Then I wake up with cold sweats. I can only sleep on my left side. I have suspected pain medicine for a long time. Antacids seem to help. I think my biggest problem is bloating and constipation. We just can't win, can we? Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: jume9...@comcast.net > Date: May 30, 2017 at 7:19:44 PM EDT > To: quad-list <quad-list@eskimo.com> > Subject: Re: [QUAD-L] Sweating on right side > > I have been getting the sweats and my doc thinks i have a kidney stone, that > could possibly be your issue Greg but as far as the stomach thing it could be > an ulcer if you are taking anti-inflammatory meds? > > Meredith > > From: "greg" <g...@eskimo.com> > To: "quad-list" <quad-list@eskimo.com> > Sent: Tuesday, May 30, 2017 1:07:55 PM > Subject: Re: [QUAD-L] Sweating on right side > > I am right now. I thought a UTI but meds didn't help. Now I'm off for an > x-ray to try and find the cause. I asume its that. > Sweats and stomach pain. > Greg > > > Ive been sweating on my right side pretty bad. I believe its from > > taking pain meds because when I pop the antacids it gets better. > > Anybody deal with mild ulcer/stomach irritation due to meds? > > > > > > Quad 98 >
Re: [QUAD-L] Sweating on right side
I have been getting the sweats and my doc thinks i have a kidney stone, that could possibly be your issue Greg but as far as the stomach thing it could be an ulcer if you are taking anti-inflammatory meds? Meredith - Original Message - From: "greg" <g...@eskimo.com> To: "quad-list" <quad-list@eskimo.com> Sent: Tuesday, May 30, 2017 1:07:55 PM Subject: Re: [QUAD-L] Sweating on right side I am right now. I thought a UTI but meds didn't help. Now I'm off for an x-ray to try and find the cause. I asume its that. Sweats and stomach pain. Greg > Ive been sweating on my right side pretty bad. I believe its from > taking pain meds because when I pop the antacids it gets better. > Anybody deal with mild ulcer/stomach irritation due to meds? > > > Quad 98
Re: [QUAD-L] Sweating on right side
I am right now. I thought a UTI but meds didn't help. Now I'm off for an x-ray to try and find the cause. I asume its that. Sweats and stomach pain. Greg > Ive been sweating on my right side pretty bad. I believe its from > taking pain meds because when I pop the antacids it gets better. > Anybody deal with mild ulcer/stomach irritation due to meds? > > > Quad 98
[QUAD-L] Sweating on right side
Ive been sweating on my right side pretty bad. I believe its from taking pain meds because when I pop the antacids it gets better. Anybody deal with mild ulcer/stomach irritation due to meds? Quad 98
Re: [QUAD-L] Sweating
Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks
Re: [QUAD-L] Sweating
Sweating is such an issue with quads, most of us take Propantheline and it helps. Meredith - Original Message - From: wheelch...@aol.com To: hosnialkha...@hotmail.com, quad-list@eskimo.com Sent: Thursday, July 4, 2013 8:38:15 AM Subject: Re: [QUAD-L] Sweating Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks
Re: [QUAD-L] Sweating
I sweat because of Autonomic-Dysreflexia (AD) when I'm in pain somewhere in the insensate part(s) of my body. I only sweat from my head, in different parts, depending where on my body the pain is. If my lower extremities, the sweating is on the opposite side of my head. The intensity of the sweat is directly related to the level of pain. Most of my head will be red in color, except the sweaty parts, which go pale white (yes, it's a sight!). I can soak a towel in under a minute when it's real bad. I always have small towels handy, including a spare in my van. My body temp usually stays at my normal 98.1F when I sweat. I do not sweat at all if/when my body (core) gets hot (without pain). Sometimes, when it's chilly, my sweating can bring my temp down enough to make me cold and shivering ...which is when i seek a radiant heat source. For me, sitting in the sun can help if the sweating is mild. If it's intense, I find that a little marajuana can make a huge difference. It doesn't stem it forever, but can stop it outright for a good while. MJ is almost legal in Massachusetts (a ticket noone pays for having under 1oz), and they're gearing-up to open medical MJ dispensaries (it was voted-in last fall). I already started asking my primary care phys for a recommendation in February. Happy Independence Day everyone! bob From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Thursday, July 4, 2013 12:04 PM Subject: Re: [QUAD-L] Sweating Sweating is such an issue with quads, most of us take Propantheline and it helps. Meredith From: wheelch...@aol.com To: hosnialkha...@hotmail.com, quad-list@eskimo.com Sent: Thursday, July 4, 2013 8:38:15 AM Subject: Re: [QUAD-L] Sweating Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks
Re: [QUAD-L] Sweating
Gail, we value caregivers opinions and we value our caregivers too!! Meredith - Original Message - From: Gail Holmes fgdhol...@cox.net To: jume9...@comcast.net Sent: Thursday, July 4, 2013 11:09:27 AM Subject: Re: [QUAD-L] Sweating Autonomic dysreflexia, ( A.D. due to any noxious stimuli causes sweating in quads. It can be a sock that's too tight or more commonly bowel / urinary tract problems. I'm not a quad but rather a caregiver and don't think I'm supposed to post. Sent from my iPhone On Jul 4, 2013, at 11:04 AM, jume9...@comcast.net wrote: Sweating is such an issue with quads, most of us take Propantheline and it helps. Meredith - Original Message - From: wheelch...@aol.com To: hosnialkha...@hotmail.com, quad-list@eskimo.com Sent: Thursday, July 4, 2013 8:38:15 AM Subject: Re: [QUAD-L] Sweating Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: blockquote Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks /blockquote
Re: [QUAD-L] Sweating
When I was first injured I would sweat whenever I was sitting in my chair. No matter what I sat on or what position I was in ...I just sweat EVERY SINGLE DAY for closet 15 years. I sat in a manual chair for the first 4 1/2 years then started using a power chair - didn't matter I still sweat, it didn't matter hat time of year and I live in New Jersey. I went to college, dated I did everything and anything sweating, I figured I was going to sweat anyway so what the hell. Then I started getting VERY BAD leg spazams AND sweating. The spazams use to throw me out of my chair. I was checked out by every Doctor imaginable. Finally, I had a ryzodomy, which is a surgical procedure where a neurologist cuts the nerves in your back which stops the spazams. In my case,it happened to stop the sweating as well. When I told the Doctor that I don't sweat anymore he said ... Consider it a bonus. He couldn't explain it. EVERYBODY IS DIFFERENT!! Bobbie Sent from my iPad On Jul 4, 2013, at 12:04 PM, jume9...@comcast.net wrote: Sweating is such an issue with quads, most of us take Propantheline and it helps. Meredith From: wheelch...@aol.com To: hosnialkha...@hotmail.com, quad-list@eskimo.com Sent: Thursday, July 4, 2013 8:38:15 AM Subject: Re: [QUAD-L] Sweating Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks
Re: [QUAD-L] Sweating
Hi Wheelchair, That is so true that sweating is usually a warning signal of a UTI or some kind of skin pressure that is happening to your body that you don't know about. I always check about UTI. I don't always get temperatures with UTIs. Dana In a message dated 7/4/2013 10:41:23 A.M. Central Daylight Time, wheelch...@aol.com writes: Sweating for some is quite normal. For others, it might be a sign of an internal infection that is forcing increased temperatures and sweats. Has your normal temperature increased ? Has your normal blood pressure increased? What's your record for UTI's? Best Wishes In a message dated 7/4/2013 10:32:07 A.M. Central Daylight Time, hosnialkha...@hotmail.com writes: Hi My Friends I Want To Ask You ... 1-What Cause Sweating For a Quadriplegic,When He Is In The Wheelchair ? 2-After How long You Start Sweating,When You Are In The Wheelchair ? 3-What's Your Advice - Solution - For It ? Thanks
[QUAD-L] Sweating Issues
Well, after months and months of sweating every time I sit all the way up, I think I found the problem. I tried everything I could think of. No shoes, no socks, adding air to cushion, taking out air, lowering/raising leg rests, going no abdomen binder, loosening lateral supports, looser underwear/sweats, even taking out my supra pubic for 30 min. I finely tried using my other cushion though it's the same Quatro Roho. I have been fine for 2 days (knock on wood). No idea why it's different. They both have the same amount of air in them. Tried locked and unlocked. I used that cushion for a long time with no issues. I would have sworn it was an internal issue, or SP issue. I had lots of abdomen pain, abdomen spasming. But any time I have AD it causes lots of gas, so that was the pain. I hope it stays ok, Greg
Re: [QUAD-L] Sweating Issues
Hey, whatever work, I'm glad your more comfortable. HUGS. Bobbie On Nov 19, 2012, at 3:55 PM, greg g...@eskimo.com wrote: Well, after months and months of sweating every time I sit all the way up, I think I found the problem. I tried everything I could think of. No shoes, no socks, adding air to cushion, taking out air, lowering/raising leg rests, going no abdomen binder, loosening lateral supports, looser underwear/sweats, even taking out my supra pubic for 30 min. I finely tried using my other cushion though it's the same Quatro Roho. I have been fine for 2 days (knock on wood). No idea why it's different. They both have the same amount of air in them. Tried locked and unlocked. I used that cushion for a long time with no issues. I would have sworn it was an internal issue, or SP issue. I had lots of abdomen pain, abdomen spasming. But any time I have AD it causes lots of gas, so that was the pain. I hope it stays ok, Greg
Fwd: [QUAD-L] Sweating Issues
Hey Greg. Man I am glad you found the cause of your sweating, even if you don't understand it. I think a lot of quad crap is beyond understanding. I do know from extensive experience that cold sweat is a gift from hell. Good luck, my friend, and keep us informed. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Bobbie Humphreys bobbie...@aol.com Date: November 19, 2012, 4:23:45 PM EST To: greg g...@eskimo.com Cc: quad-list@eskimo.com quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating Issues Hey, whatever work, I'm glad your more comfortable. HUGS. Bobbie On Nov 19, 2012, at 3:55 PM, greg g...@eskimo.com wrote: Well, after months and months of sweating every time I sit all the way up, I think I found the problem. I tried everything I could think of. No shoes, no socks, adding air to cushion, taking out air, lowering/raising leg rests, going no abdomen binder, loosening lateral supports, looser underwear/sweats, even taking out my supra pubic for 30 min. I finely tried using my other cushion though it's the same Quatro Roho. I have been fine for 2 days (knock on wood). No idea why it's different. They both have the same amount of air in them. Tried locked and unlocked. I used that cushion for a long time with no issues. I would have sworn it was an internal issue, or SP issue. I had lots of abdomen pain, abdomen spasming. But any time I have AD it causes lots of gas, so that was the pain. I hope it stays ok, Greg
Re: [QUAD-L] Sweating Issues
Oh Greg, sounds just like my last sweating episode this fall. I have a corn on my toe and when I put padded cushions on my commode chair it stopped. BUT, I also had 6 acupuncture treatments AND I PUT AIR IN MY CUSHION AT THE SAME TIME,. so GO FIGURE, IT IS THE SCREWIEST THING AND NOBODY BUT US QUADS CAN UNDERSTAND. SORRY ABOUT THE CAP LOCK ON, SIGH have a great Thanksgiving everyone! Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Monday, November 19, 2012 3:55 PM Subject: [QUAD-L] Sweating Issues Well, after months and months of sweating every time I sit all the way up, I think I found the problem. I tried everything I could think of. No shoes, no socks, adding air to cushion, taking out air, lowering/raising leg rests, going no abdomen binder, loosening lateral supports, looser underwear/sweats, even taking out my supra pubic for 30 min. I finely tried using my other cushion though it's the same Quatro Roho. I have been fine for 2 days (knock on wood). No idea why it's different. They both have the same amount of air in them. Tried locked and unlocked. I used that cushion for a long time with no issues. I would have sworn it was an internal issue, or SP issue. I had lots of abdomen pain, abdomen spasming. But any time I have AD it causes lots of gas, so that was the pain. I hope it stays ok, Greg
Re: [QUAD-L] Sweating
Wow! I've heard so many medical people say quads don't sweat, and I don't sweat, myself...guess it's like everything else, though. There are no absolutes with this injury. On Oct 18, 2012, at 7:43 PM, Bobbie Humphreys bobbie...@aol.com wrote: Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
Thanks Bobbie, but what is a Rydodomy? - Original Message - From: Bobbie Humphreys bobbie...@aol.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 6:43:23 PM Subject: Re: [QUAD-L] Sweating Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith - Original Message - From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. blockquote he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. blockquote I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. /blockquote -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com ; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7 /blockquote
Re: [QUAD-L] Sweating. - Ryzodomy
Ryzodomy, there are a few of us on the list who've had one, is when a nuro-surgeon cuts the nerves. As for me, it was done at T - 12 to stop the spasms which prevented me from driving and would throw me out of my chair. Maybe some of the other's who had one would write why they had one? Also try typing Ryzodomy on your favorite search.Bobbie Sent from my iPad On Oct 19, 2012, at 10:43 AM, jume9...@comcast.net wrote: Thanks Bobbie, but what is a Rydodomy? From: Bobbie Humphreys bobbie...@aol.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 6:43:23 PM Subject: Re: [QUAD-L] Sweating Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating. - Ryzodomy
Hi Bobbie, I just got this email after I sent mine and asked about cutting the sweat gland. MY neurosurgeon said it was dangerous. Can you tell us more about what happened and your recovery after. Thanks Best, Shirley Bell - Original Message - From: Bobbie Humphreys To: jume9...@comcast.net Cc: quad-list Sent: Friday, October 19, 2012 3:47 PM Subject: Re: [QUAD-L] Sweating. - Ryzodomy Ryzodomy, there are a few of us on the list who've had one, is when a nuro-surgeon cuts the nerves. As for me, it was done at T - 12 to stop the spasms which prevented me from driving and would throw me out of my chair. Maybe some of the other's who had one would write why they had one? Also try typing Ryzodomy on your favorite search.Bobbie Sent from my iPad On Oct 19, 2012, at 10:43 AM, jume9...@comcast.net wrote: Thanks Bobbie, but what is a Rydodomy? From: Bobbie Humphreys bobbie...@aol.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 6:43:23 PM Subject: Re: [QUAD-L] Sweating Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith -- From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron -- From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. -- From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
it's not sweating it's autonomic dysreflexia On Oct 19, 2012, at 3:07 AM, Mandy wrote: Wow! I've heard so many medical people say quads don't sweat, and I don't sweat, myself...guess it's like everything else, though. There are no absolutes with this injury. On Oct 18, 2012, at 7:43 PM, Bobbie Humphreys bobbie...@aol.com wrote: Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating. - Ryzodomy
Shirley, My recovery was instant. I was up out of bed the very next DAY! Up and driving a few days after .… less than a week - I was more concerned than the Doctor was. When I went to see the Sergon in his office for a follow-up visit, one week later, I drove. When I told him that the surgery stopped my sweating he said .… consider it a bonus, I can't explain why. my only side affect was my left foot drops more than the other, still dose, since 1988 but it doesn't prevent me from wearing any of my shoes.Bobbie Sent from my iPad On Oct 19, 2012, at 4:28 PM, shirley bell sbell...@cox.net wrote: Hi Bobbie, I just got this email after I sent mine and asked about cutting the sweat gland. MY neurosurgeon said it was dangerous. Can you tell us more about what happened and your recovery after. Thanks Best, Shirley Bell - Original Message - From: Bobbie Humphreys To: jume9...@comcast.net Cc: quad-list Sent: Friday, October 19, 2012 3:47 PM Subject: Re: [QUAD-L] Sweating. - Ryzodomy Ryzodomy, there are a few of us on the list who've had one, is when a nuro-surgeon cuts the nerves. As for me, it was done at T - 12 to stop the spasms which prevented me from driving and would throw me out of my chair. Maybe some of the other's who had one would write why they had one? Also try typing Ryzodomy on your favorite search.Bobbie Sent from my iPad On Oct 19, 2012, at 10:43 AM, jume9...@comcast.net wrote: Thanks Bobbie, but what is a Rydodomy? From: Bobbie Humphreys bobbie...@aol.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 6:43:23 PM Subject: Re: [QUAD-L] Sweating Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
Well MY non-stop sweating for 15 years was NOT autonomic dysreflexia, I've had it, even had a stroke from it. Bobbie Sent from my iPad On Oct 19, 2012, at 5:04 PM, Elizabeth Treston missl...@optonline.net wrote: it's not sweating it's autonomic dysreflexia On Oct 19, 2012, at 3:07 AM, Mandy wrote: Wow! I've heard so many medical people say quads don't sweat, and I don't sweat, myself...guess it's like everything else, though. There are no absolutes with this injury. On Oct 18, 2012, at 7:43 PM, Bobbie Humphreys bobbie...@aol.com wrote: Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating. - Ryzodomy
No, he just cut at T-12 he didn't touch the sweet glands at all. Bobbie Sent from my iPad On Oct 19, 2012, at 5:55 PM, shirley bell sbell...@cox.net wrote: thanks Bobbie,but did he say they cut your sweat as well as the nerve to the spasm? Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Bobbie Humphreys To: shirley bell Cc: quad-list@eskimo.com Sent: Friday, October 19, 2012 5:12 PM Subject: Re: [QUAD-L] Sweating. - Ryzodomy Shirley, My recovery was instant. I was up out of bed the very next DAY! Up and driving a few days after .… less than a week - I was more concerned than the Doctor was. When I went to see the Sergon in his office for a follow-up visit, one week later, I drove. When I told him thatthe surgery stopped my sweating he said .… consider it a bonus, I can't explain why. my only side affect was my left foot drops more than the other, still dose, since 1988 but it doesn't prevent me from wearing any of my shoes.Bobbie Sent from my iPad On Oct 19, 2012, at 4:28 PM, shirley bell sbell...@cox.net wrote: Hi Bobbie, I just got this email after I sent mine and asked about cutting the sweat gland. MY neurosurgeon said it was dangerous. Can you tell us more about what happened and your recovery after. Thanks Best, Shirley Bell - Original Message - From: Bobbie Humphreys To: jume9...@comcast.net Cc: quad-list Sent: Friday, October 19, 2012 3:47 PM Subject: Re: [QUAD-L] Sweating. - Ryzodomy Ryzodomy, there are a few of us on the list who've had one, is when a nuro-surgeon cuts the nerves. As for me, it was done at T - 12 to stop the spasms which prevented me from driving and would throw me out of my chair. Maybe some of the other's who had one would write why they had one? Also try typing Ryzodomy on your favorite search.Bobbie Sent from my iPad On Oct 19, 2012, at 10:43 AM, jume9...@comcast.net wrote: Thanks Bobbie, but what is a Rydodomy? From: Bobbie Humphreys bobbie...@aol.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 6:43:23 PM Subject: Re: [QUAD-L] Sweating Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent
Re: [QUAD-L] Sweating
It is sweating caused by AD. The most common symptoms of autonomic dysreflexia are sweating, pounding headache, tingling sensation on the face and neck, blotchy skin around the neck and goose bumps. Not all the symptoms always appear at once, and their severity may vary. In untreated and extreme cases of autonomic dysreflexia, it can lead to a stroke and death. From: Elizabeth Treston missl...@optonline.net To: quadlist quad-list@eskimo.com Sent: Friday, October 19, 2012 5:04 PM Subject: Re: [QUAD-L] Sweating it's not sweating it's autonomic dysreflexia On Oct 19, 2012, at 3:07 AM, Mandy wrote: Wow! I've heard so many medical people say quads don't sweat, and I don't sweat, myself...guess it's like everything else, though. There are no absolutes with this injury. On Oct 18, 2012, at 7:43 PM, Bobbie Humphreys bobbie...@aol.com wrote: Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
[QUAD-L] Sweating
I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI . Anyone take Hormone replacements? Meredith - Original Message - From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. blockquote I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. /blockquote -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com ; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Fwd: [QUAD-L] Sweating
Sweating is usually a sign of pain or discomfort somewhere in the body. Obviously, you may not actually feel it, but your body does (auto.dysreflx.) Could be anything from a bent toe to uti. I've had rounds of it for several days and never figured out the cause. I do know that ditropan helps me a great deal. One of the most common causes is bladder spasms. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: jume9...@comcast.net Date: October 18, 2012 5:45:34 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Sweating I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
Mine are just at night and get worse in winter.strange. Could it be as I said in a previous post menapause and is anyone on HRT? Please advise ladies. Meredith - Original Message - From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Thursday, October 18, 2012 3:28:05 PM Subject: Fwd: [QUAD-L] Sweating Sweating is usually a sign of pain or discomfort somewhere in the body. Obviously, you may not actually feel it, but your body does (auto.dysreflx.) Could be anything from a bent toe to uti. I've had rounds of it for several days and never figured out the cause. I do know that ditropan helps me a great deal. One of the most common causes is bladder spasms. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: jume9...@comcast.net Date: October 18, 2012 5:45:34 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Sweating blockquote I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith - Original Message - From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. blockquote he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip /blockquote -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. blockquote I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. /blockquote -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com ; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7 /blockquote
Re: [QUAD-L] Sweating
Sweating is always a symptom of pain for me, bowel, bladder/kidney, sores. I never sweat when hot, nor when going through menopause. I usually try to rule out every possible cause of pain, one thing at a time. Btw ... I sleep on my stomach. On the rare occasion that I lay on my back for any length of time, I sweat. Just my experience. Nan C5/6, 44 years post From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 7:01 PM Subject: Re: [QUAD-L] Sweating Mine are just at night and get worse in winter.strange. Could it be as I said in a previous post menapause and is anyone on HRT? Please advise ladies. Meredith From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Thursday, October 18, 2012 3:28:05 PM Subject: Fwd: [QUAD-L] Sweating Sweating is usually a sign of pain or discomfort somewhere in the body. Obviously, you may not actually feel it, but your body does (auto.dysreflx.) Could be anything from a bent toe to uti. I've had rounds of it for several days and never figured out the cause. I do know that ditropan helps me a great deal. One of the most common causes is bladder spasms. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: jume9...@comcast.net Date: October 18, 2012 5:45:34 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Sweating I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
I was not allowed HRT during menopause because I'd had a clot in my leg right after my accident, 44 years ago. From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Thursday, October 18, 2012 7:01 PM Subject: Re: [QUAD-L] Sweating Mine are just at night and get worse in winter.strange. Could it be as I said in a previous post menapause and is anyone on HRT? Please advise ladies. Meredith From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Thursday, October 18, 2012 3:28:05 PM Subject: Fwd: [QUAD-L] Sweating Sweating is usually a sign of pain or discomfort somewhere in the body. Obviously, you may not actually feel it, but your body does (auto.dysreflx.) Could be anything from a bent toe to uti. I've had rounds of it for several days and never figured out the cause. I do know that ditropan helps me a great deal. One of the most common causes is bladder spasms. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: jume9...@comcast.net Date: October 18, 2012 5:45:34 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Sweating I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 6 5mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
Re: [QUAD-L] Sweating
Meredith, Since day one when I was injured use to sweat day and night. I'd wake-up in bed and all the towels I had to sleep with would be soaking went ..… I mean you could wring out the towel. Then ALL day long my hair would be dripping wet I'd HAVE to wear a towel around my neck and change it at least 3 times a day, my blouse too. This happened during the winter as well, I can't even describe how cold I'd get. I went to college like this AND dated a Lot and met my husband too. Anyway, all the Doctor's said it was just nerve damage and there was nothing that could be done to stop the sweating. Then 15 YEARS post I had to have a Ryzodomy because of uncontrollable spasms. The surgery stopped the spasms AND the sweating! That's my story. Bobbie Sent from my iPad On Oct 18, 2012, at 5:45 PM, jume9...@comcast.net wrote: I have a lot of issues with sweating at night, don't know if it is hormonal, quad related, vicodin related or a UTI. Anyone take Hormone replacements? Meredith From: diannal...@aol.com To: r pracht r.pra...@sbcglobal.net, quad-list@eskimo.com Sent: Thursday, October 18, 2012 1:03:45 PM Subject: Re: [QUAD-L] Pain Management my doc says 3 a day (oxycodone) 5 mg. and no more. i may go to pain management after i talk to the spine specialist. they make me feel like i'm a drug seeker. he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: diannal767 diannal...@aol.com Sent: Thu, Oct 18, 2012 1:00 pm Subject: Re: [QUAD-L] Pain Management he started me on 65mg of oxycodone to start and I still take 3 1mg of lorezapam per day. i will adjust and figure things out as i go, but so glad hes open to work with me. well worth the trip ron From: diannal...@aol.com diannal...@aol.com To: quad-list@eskimo.com Sent: Wed, October 17, 2012 8:49:41 PM Subject: Re: [QUAD-L] Pain Management Hi Ron, If you don't mind me asking, what did they start you out on? I'm seeing a new spine specialist at the end of the month. I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT quad-list@eskimo.com; quad-list quad-list@eskimo.com Sent: Wed, Oct 17, 2012 6:20 pm Subject: Re: [QUAD-L] Pain Management cool Ron, glad they helped you,Dan H. From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Wed, October 17, 2012 4:18:23 PM Subject: [QUAD-L] Pain Management I went to pain management today and they helped me. Gave me what I needed and is willing to work with me. Thank God! I feel validated as a human being. ron c7
RE: [QUAD-L] Sweating
I had to look up the Ryzodomy procedure because the only one I was familiar was the procedure used on cerebral palsy. Is that what you had? I also had severe sweating and quite a few spasms for the first 12 to 14 years, and an often had AD over very little. Luckily for me, my spasms have been reduced to minimum and that is usually when I hit a bump while driving and I never have the severe sweating anymore, and only have AD when my cath tube is pinched, or I happen to cut myself usually on my arms driving around the trees in the garden. And sometimes not even then, because one of the grandchildren will say Grams you’re bleeding again! Then I look down and see blood pooled in the arm rest of my chair, not my favorite thing. Joan
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Wow, how Wonderful for the invitation. Thanks! Lindaf - Original Message - From: hellodav...@aol.com To: quad-list@eskimo.com Sent: Sunday, September 20, 2009 7:00:45 PM GMT -06:00 US/Canada Central Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I have lots of room. 3 unused bedrooms. Come on down, bring a friend. It was 103 today. AZDAVE -Original Message- From: linda...@comcast.net To: wheelch...@aol.com Cc: Quad-list@eskimo.com; vaescob...@yahoo.com Sent: Sun, Sep 20, 2009 2:13 pm Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Hi W, Thankyou for the welcoming back, it's getting cooler out which means indoors time. You guys that live in warm weather are so darn lucky. Do any of you guys have any guest rooms?ha! Bad timing for Enemeze, I just order a box of bullets. I tried the enemeze before without much difference than the bullets. Linda
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
AZ AZDAVE -Original Message- From: Quadius quad...@gmail.com To: hellodav...@aol.com Sent: Mon, Sep 21, 2009 6:22 pm Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR what state are you in? Quadius On Sun, Sep 20, 2009 at 8:00 PM, hellodav...@aol.com wrote: I have lots of room. ?3 unused bedrooms. ?Come on down, bring a friend. ? It was 103 today. AZDAVE -Original Message- From: linda...@comcast.net To: wheelch...@aol.com Cc: Quad-list@eskimo.com; vaescob...@yahoo.com Sent: Sun, Sep 20, 2009 2:13 pm Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Hi W, Thankyou for the welcoming back, it's getting cooler out which means indoors time. You guys that live in warm weather are so darn lucky. Do any of you guys have any guest rooms?ha! Bad timing for Enemeze, I just order a box of bullets. I tried the enemeze before without much difference than the bullets. Linda ?
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Hi W, Thankyou for the welcoming back, it's getting cooler out which means indoors time. You guys that live in warm weather are so darn lucky. Do any of you guys have any guest rooms?ha! Bad timing for Enemeze, I just order a box of bullets. I tried the enemeze before without much difference than the bullets. Linda
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
No problem. My friend has several extra case of Tnemeze and at 1/2 price its cheaper then anything else. Did ya notice that Warrior is on the Mayor's Commission in your City? Best Wishes In a message dated 9/20/2009 4:14:34 P.M. Central Daylight Time, linda...@comcast.net writes: Hi W, Thankyou for the welcoming back, it's getting cooler out which means indoors time. You guys that live in warm weather are so darn lucky. Do any of you guys have any guest rooms?ha! Bad timing for Enemeze, I just order a box of bullets. I tried the enemeze before without much difference than the bullets. Linda
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I have lots of room. ?3 unused bedrooms. ?Come on down, bring a friend. ? It was 103 today. AZDAVE -Original Message- From: linda...@comcast.net To: wheelch...@aol.com Cc: Quad-list@eskimo.com; vaescob...@yahoo.com Sent: Sun, Sep 20, 2009 2:13 pm Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Hi W, Thankyou for the welcoming back, it's getting cooler out which means indoors time. You guys that live in warm weather are so darn lucky. Do any of you guys have any guest rooms?ha! Bad timing for Enemeze, I just order a box of bullets. I tried the enemeze before without much difference than the bullets. Linda ?
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Hiya Linda, Great to see you posting again.. I've got a friend who is selling their excess supply of Emeneeze 30 count in sealed containers for $25 a container plus shipping. Just a heads up while the supply lasts for those using the product. Glad to see you back. Best Wishes In a message dated 9/15/2009 1:55:15 P.M. Central Daylight Time, linda...@comcast.net writes: Hi, I too have had a problem with UTI's did take an antibiotic profalactily. I will start them again. I also take Propantheline to stop the profuse sweating. Lindaf
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Hi, I too have had a problem with UTI's did take an antibiotic profalactily. I will start them again. I also take Propantheline to stop the profuse sweating. Lindaf
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
what antobotic is it that u take daily for uti From: Merrill merril...@cox.net To: quad-list@eskimo.com Sent: Tuesday, September 1, 2009 4:33:23 PM Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill From:Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI’s every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI’s in 4 years. Greg Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I don't have a bladder problem. i've been a quad for 33 years and my bones are similar to chalk but the nerves feel obligated to send pain signals to my spine where it biuilds up untill it is feeding the excess impulses into the autonomic nervous system where it interupts with the autonomic system causing my organs and glandular system to freak out. Any thing you can imagine having done without thinking of doing it, you can still do because the autonomic system controls it. those moments when you feel fright or fear and theres no reason. AD just sent a signal that released a hormone from a gland that no longer gets impulses from your brain. The upper part of your spine seems to get the electro chemical signal to you sympathetic, or Autonomic nervous system in some manor that has only been recently understood. This excess signal from pain that was on its way to the brain to say ouch is now flooding your Autonomic system as and causing spasms, mood swings, profuse sweating, rapid heartbeat, high blood pressure, dry mouth, convulsions,m etc A painful UTI will cause the sweating as you said. I Think we can sweat from any pain caused from low back fractures. or even a broken toe. Lyrica and neurontin and cymbalta are designed to interupt communication between the central nervous system and the Autonomic nervous system. I'm not dissin your theory. I'm just saying that I broke so many bones and did so much internal damage along with breaking my neck that figuring out whats causing it has taken back seat to stoping it. i'm argueing with a doctor now about a high diabetes test. It was done while was in pain and when I stopped thge pain my sugar level returned to normal when I took the Lyrica. I've checked it with my new meter and its normal. The office test showed 470. Out of pain its 85-92. It isn't on any definition of AD. He isnt that sure of my insistance in the hormone release can cause a pancreatic malfuntion. I'm curious about anyone else testing sugar while in pain? It causes everything else to malfunction. I got a free glucose meter now. Best Wishes, john From: donald scott rollingl...@yahoo.com To: quad-list@eskimo.com Sent: Monday, August 31, 2009 12:41:27 PM Subject: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I'm down to 19 pills a day, a lot of them are vitamins, some are antidepressants/anti-anxiety, and then I have muscle relaxants and Lyrica Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Tuesday, September 01, 2009 5:07 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR WOW! i came home from rehab on 32 different drugs. i have got down to 2 (spasm)...do u not have spasms? IF i 4get my pills, my legs remind me. Eric W Rudd c5sc...@gmail.com - Original Message - From: hellodav...@aol.com To: quad-list@eskimo.com Sent: Tuesday, September 01, 2009 5:58 PM Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Both my mom and dad died from medical over-treatment. Mom took so many arthritis meds, they weakened her stomach so when they 'scoped' her they poked a hole. At 83 she never recovered heart failed. Dad went nuts after taking a anti-depressant at 10 times the 'normal' dose. He died of heart failure. Cudos John for knowing better than the ER folks. A very BOLD call.!!! AZDAVE (p.s. I'm off all Rx drugs.)
RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I used to have a major problem with urinary tract infections, I have a supra-pubic catheter. My infectious disease doctor and I decided to take another course of action instead of taking antibiotics daily. Now I use a silver impregnated supra-pubic catheter and my infections happen less often. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Merrill [mailto:merril...@cox.net] Sent: Tuesday, September 01, 2009 2:33 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill _ From: Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI's every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI's in 4 years. Greg _ Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Greg, What is the antibiotic? Merrill _ From: Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI's every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI's in 4 years. Greg _ Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
In the 80's I had an indwelling catheter and took antibiotics daily to prevent infections. I was taking macrodantin. After about 7 months I was having trouble breathing and i was not producing any urine. Ambulance took me to the hospital were they increased the macrodantin by IV and began treating me for heart failure. I asked to see the PDR and a nurse complied. the side effects were identical to what was happening to me. I had them remove the IV medicine packs and refused any more antibiotics. Within 6 hours I was urinating big time. 2 liters in 4 hours. Within a day my heart had returned to normal and my breathing was incredibly easier. You can become septic from antibiotics that are taken over long periods of time. It is important to understand how each works and drugs that can turn to poison when your system no longer removes them. I ditched that urologist and went to a different one who got me into bladder training. It may never happen to others, but I wanted to relate the importance of being able to recognize antibiotic poisoning and toxic reactions. I'm allergic to any drug in the macrodantin and keflex families. My point is obvious I guess. just always get the pharmacy PDR info on any drug and e careful. I was within hours of dying when I started to refuse treatment against medical advice (RTAMA) from a doctor that was furious with me and insisting that I needed an even larger dose of what was killing me. The next day a resident came in my room and told me my stubbornness kept me from the morgue. I honestly feel that many of us using CMS medical treatment are not getting the treatment given to those with beefy insurance policies. I hope this changes but I will always read the fine print as should we all. If I had died it would have been listed as heart attack due to Renal failure. I always wonder how many of us die from the treatment we get from people we trusted to do no harm. Ultimately, it is up to each of us to read and ask questions about our health care and use our judgment. Doctors aren't gods and mistakes happen all to often. I hope what you take works for you as long as you need it. I don't mean to scare or frieghten you or any one else. I just want to relate an experience I had because I did everything my doctor said without question. KNOW YOUR ENEMA! BEST TO ALL, john From: Merrill merril...@cox.net To: quad-list@eskimo.com Sent: Tuesday, September 1, 2009 5:33:23 PM Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill From:Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI’s every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI’s in 4 years. Greg Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Both my mom and dad died from medical over-treatment. Mom took so many arthritis meds, they weakened her stomach so when they 'scoped' her they poked a hole. At 83 she never recovered heart failed. Dad went nuts after taking a anti-depressant at 10 times the 'normal' dose. He died of heart failure. Cudos John for knowing better than the ER folks. A very BOLD call.!!! AZDAVE (p.s. I'm off all Rx drugs.) In a message dated 9/1/2009 3:49:41 P.M. US Mountain Standard Time, alcibiat...@yahoo.com writes: In the 80's I had an indwelling catheter and took antibiotics daily to prevent infections. I was taking macrodantin. After about 7 months I was having trouble breathing and i was not producing any urine. Ambulance took me to the hospital were they increased the macrodantin by IV and began treating me for heart failure. I asked to see the PDR and a nurse complied. the side effects were identical to what was happening to me. I had them remove the IV medicine packs and refused any more antibiotics. Within 6 hours I was urinating big time. 2 liters in 4 hours. Within a day my heart had returned to normal and my breathing was incredibly easier. You can become septic from antibiotics that are taken over long periods of time. It is important to understand how each works and drugs that can turn to poison when your system no longer removes them. I ditched that urologist and went to a different one who got me into bladder training. It may never happen to others, but I wanted to relate the importance of being able to recognize antibiotic poisoning and toxic reactions. I'm allergic to any drug in the macrodantin and keflex families. My point is obvious I guess. just always get the pharmacy PDR info on any drug and e careful. I was within hours of dying when I started to refuse treatment against medical advice (RTAMA) from a doctor that was furious with me and insisting that I needed an even larger dose of what was killing me. The next day a resident came in my room and told me my stubbornness kept me from the morgue. I honestly feel that many of us using CMS medical treatment are not getting the treatment given to those with beefy insurance policies. I hope this changes but I will always read the fine print as should we all. If I had died it would have been listed as heart attack due to Renal failure. I always wonder how many of us die from the treatment we get from people we trusted to do no harm. Ultimately, it is up to each of us to read and ask questions about our health care and use our judgment. Doctors aren't gods and mistakes happen all to often. I hope what you take works for you as long as you need it. I don't mean to scare or frieghten you or any one else. I just want to relate an experience I had because I did everything my doctor said without question. KNOW YOUR ENEMA! BEST TO ALL, john From: Merrill merril...@cox.net To: quad-list@eskimo.com Sent: Tuesday, September 1, 2009 5:33:23 PM Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill From: Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI’s every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI’s in 4 years. Greg Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
John you are so right. The same thing happened to me, twice. The first time I had a uti and the er doc had me take Keflex which I'm allergic to. After I told him that he said ok we'll give you something stronger by iv - that something was Keflex! I asked what was going on. He said most people are only allergic to a drug orally. You'll be fine. I could feel my body swelling and no urine in my bag. I told him this and he says - that's because you have a uti!?! After the iv was empty, I said ok I'm leaving. The second time the er doc said I had a uti that had gone septic. They admitted me and started iv antibiotics. Doc said I would be in the hospital 4 or 5 days. I felt fine so I said I'll give you 2 days. After the second day he said I was doing much better but I should stay a couple of more days. I said no thank you so against RTAMA, I went home. My rule of thumb is, if I start to feel worse the longer I stay in a hospital, that means I'll do better at home. The last time I was in the hospital I didn't follow my rule of thumb. I went in for an adjustment of my vent. I was released 5 days later weak as a kitten. I hardly ate the whole time and lost half my body weight. On the day I was to be released the intern came in and said I would have to stay longer because they found something strange in my blood - like I had ingested antifreeze. What the Hell was she talking about?! Then when rounds came along she told the resident that they found Ketones in my blood - Ketones for Gods sake. Was she an idiot? I hadn't eaten for 5 days and she couldn't figure that one out?!? I looked at the resident and he explained to her why I had Ketones in my blood/urine. I left that day. But I learned a valuable lesson - never trust the docs - always question why and then make up your own mind. Dan At 06:49 PM 9/1/2009, John S. said something that elicited my response: In the 80's I had an indwelling catheter and took antibiotics daily to prevent infections. I was taking macrodantin. After about 7 months I was having trouble breathing and i was not producing any urine. Ambulance took me to the hospital were they increased the macrodantin by IV and began treating me for heart failure. I asked to see the PDR and a nurse complied. the side effects were identical to what was happening to me. I had them remove the IV medicine packs and refused any more antibiotics. Within 6 hours I was urinating big time. 2 liters in 4 hours. Within a day my heart had returned to normal and my breathing was incredibly easier. You can become septic from antibiotics that are taken over long periods of time. It is important to understand how each works and drugs that can turn to poison when your system no longer removes them. I ditched that urologist and went to a different one who got me into bladder training. It may never happen to others, but I wanted to relate the importance of being able to recognize antibiotic poisoning and toxic reactions. I'm allergic to any drug in the macrodantin and keflex families. My point is obvious I guess. just always get the pharmacy PDR info on any drug and e careful. I was within hours of dying when I started to refuse treatment against medical advice (RTAMA) from a doctor that was furious with me and insisting that I needed an even larger dose of what was killing me. The next day a resident came in my room and told me my stubbornness kept me from the morgue. I honestly feel that many of us using CMS medical treatment are not getting the treatment given to those with beefy insurance policies. I hope this changes but I will always read the fine print as should we all. If I had died it would have been listed as heart attack due to Renal failure. I always wonder how many of us die from the treatment we get from people we trusted to do no harm. Ultimately, it is up to each of us to read and ask questions about our health care and use our judgment. Doctors aren't gods and mistakes happen all to often. I hope what you take works for you as long as you need it. I don't mean to scare or frieghten you or any one else. I just want to relate an experience I had because I did everything my doctor said without question. KNOW YOUR ENEMA! BEST TO ALL, john From: Merrill merril...@cox.net To: quad-list@eskimo.com Sent: Tuesday, September 1, 2009 5:33:23 PM Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill -- From: Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTIâs every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try
Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
WOW! i came home from rehab on 32 different drugs. i have got down to 2 (spasm)...do u not have spasms? IF i 4get my pills, my legs remind me. Eric W Rudd c5sc...@gmail.com - Original Message - From: hellodav...@aol.com To: quad-list@eskimo.com Sent: Tuesday, September 01, 2009 5:58 PM Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Both my mom and dad died from medical over-treatment. Mom took so many arthritis meds, they weakened her stomach so when they 'scoped' her they poked a hole. At 83 she never recovered heart failed. Dad went nuts after taking a anti-depressant at 10 times the 'normal' dose. He died of heart failure. Cudos John for knowing better than the ER folks. A very BOLD call.!!! AZDAVE (p.s. I'm off all Rx drugs.)
[QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI's every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI's in 4 years. Greg _ Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
RE: [QUAD-L] Sweating in the chair
Hi Everyone! I had this sweating problem but couldn't take Lyrica *because of* the Neurontin I was taking. The doc (a quad himself) prescribed Cymbalta instead. It worked great! One problem I developed was that after a while I started getting extremely sleepy around 6-7:00pm everyday no matter when I took the Cymbalta. I mean like scary sleepy! asleep in my chair watching TV during dinner with my wife and mother-in-law (YES, I KNOW there's a joke in there... it's just too easy! Ha!). We had to stay an extra 2 hrs until we were sure I was awake enough to drive home (Another joke coming... I'm holding back). I decided to slowly get myself off it. Luckily, the sweating problem has continued to stay away ever since! That was a year ago! I still have to take 200mg ibuprofen each morning or it comes back after a couple days. If you're sweating ONLY when you sit, I might suggest 1) a bone density scan and 2) checking lower lumbar and sacral vertabrae for compression fractures and other tiny cracks/breaks. I don't know about the rest of you, but I DO know the reason I was sweating... I did have a compression fracture in one of my lower lumbar vertabrae and a sacral one. It was from thinning bones and repeated trauma from transfers to/from my chair. I had a procedure done called sacroplasty where they use a CT Scan to find the compression points and inject a fast-hardening cement into the bones to spread them a little (lack of a better term) and then stabilize them once they're apart. I was sweating before that and for a while after the procedure... perhaps it was because it took a while for all the nearby inflammation to settle down. Nobody ever was sure why it stopped. That was the best thing anyone could ever determine/guess. Having to continue with ibuprofen seems to back that idea up. Best wishes to All! Sincerely, --Tod Daniel Espinoza static...@roadrunner.com wrote: That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
RE: [QUAD-L] Sweating in the chair
That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
Re: [QUAD-L] Sweating in the chair
Danny and John, What dosage of Lyrica do you take? On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.comwrote: That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia. I had a Traumatic_brain_injuryhttp://en.wikipedia.org/wiki/Traumatic_brain_injuryfrom blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragmhttp://en.wikipedia.org/wiki/Thoracic_diaphragmworks right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury. http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx *From:* John S. [mailto:alcibiat...@yahoo.com] *Sent:* Saturday, August 29, 2009 1:38 PM *To:* quad-list@eskimo.com *Subject:* Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
Re: [QUAD-L] Sweating in the chair
150 mg each morning john From: Fragile swl...@gmail.com To: quad-list@eskimo.com Sent: Sunday, August 30, 2009 1:58:30 PM Subject: Re: [QUAD-L] Sweating in the chair Danny and John, What dosage of Lyrica do you take? On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.com wrote: That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic. I had a Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator woohoo however only half of my diaphragm works right now due to an asymmetric spinal cord injury. http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From:John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
RE: [QUAD-L] Sweating in the chair
I take 50 mg in the morning at 9 AM, 50 mg at 4 PM and 100 mg at 10 PM Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Sunday, August 30, 2009 3:30 PM To: Fragile; quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair 150 mg each morning john _ From: Fragile swl...@gmail.com To: quad-list@eskimo.com Sent: Sunday, August 30, 2009 1:58:30 PM Subject: Re: [QUAD-L] Sweating in the chair Danny and John, What dosage of Lyrica do you take? On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.com wrote: That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal http://en.wikipedia.org/wiki/Spinal_cord_injury cord injury. http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
Re: [QUAD-L] Sweating in the chair
I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
Re: [QUAD-L] Sweating in the chair
Congrats John! =D Dan
RE: [QUAD-L] Sweating in the chair
I know Lyrica can help with many types of things, but have you had your hips x-rayed, or butt looked at good. Maybe you just get sore getting up, or maybe your getting pain from an injury you don't know about. Hips can get lots of different types of injuries. I had a butt sore under my skin and never knew it until I had an MRI on my hip. It showed a big fluid filled area although it never broke through. I was having problems with spasms while sitting up. Hopefully Lyrica will solve your problem. It's better than other pain meds. Greg _ I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
Re: [QUAD-L] Sweating in the chair
Yes, hips are toast with osified (sp) bone. Spine has spurs that are jutting out into both nerves and muscle. I haven't tossed out the narcotics as I'm pretty addicted. I have not stopped the pain but its no longer triggering the AD. I don't know if it will last but I'm enjoying it while I can. Best to all, john From: Greg g...@eskimo.com To: John S. alcibiat...@yahoo.com; quad-list@eskimo.com Sent: Saturday, August 29, 2009 7:03:43 PM Subject: RE: [QUAD-L] Sweating in the chair I know Lyrica can help with many types of things, but have you had your hips x-rayed, or butt looked at good. Maybe you just get sore getting up, or maybe your getting pain from an injury you don’t know about. Hips can get lots of different types of injuries. I had a butt sore under my skin and never knew it until I had an MRI on my hip. It showed a big fluid filled area although it never broke through. I was having problems with spasms while sitting up. Hopefully Lyrica will solve your problem. It’s better than other pain meds. Greg I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
[QUAD-L] ~ sweating
true. And that is one of the major reason to rid the body of it as soon as possible. W In a message dated 8/20/2006 3:31:41 PM Central Daylight Time, [EMAIL PROTECTED] writes: One pee's! john In a message dated 8/19/2006 3:22:38 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Ironic that sweating is natures way of removing some of the toxins that build up in your body, in addition to its cooling. What do you think happens to those toxins when one doesn't sweat? W
[QUAD-L] sweating
That is physically amazing! I thought women didn't sweat or fart, lol. W In a message dated 8/18/2006 9:14:23 PM Central Daylight Time, [EMAIL PROTECTED] writes: If I have a problem with my bowels or bladder I will sweat slightly behind my neck, but I never sweat any where else ever.RhondaC4-5 complete (15 years post)
