from:"Jim Lubin"

Re: [TMIC] tmic-list group

2015-08-10 Thread Jim Lubin

the archive is free so it will remain at
http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html



On Sun, Aug 9, 2015 at 7:32 PM, Barbara H. barbara...@gmail.com wrote:

 Sounds good. Will the messages at this address be archived somewhere or
 would that cost something? Every now and then I still search the archives
 for a previous conversation.

 Barbara H.

 Sent from my iPad

 On Aug 9, 2015, at 2:57 PM, Jim Lubin jlu...@makoa.org wrote:

 I started a new email listgroup on googlegroups if anyone wants to
 continue the tmic-list. You can join at

 https://groups.google.com/d/forum/tmic-list

 I think I will discontinue the tmic-list@eskimo.com before the next
 renewal in 5 months.

[TMIC] tmic-list group

2015-08-09 Thread Jim Lubin

I started a new email listgroup on googlegroups if anyone wants to continue
the tmic-list. You can join at

https://groups.google.com/d/forum/tmic-list

I think I will discontinue the tmic-list@eskimo.com before the next renewal
in 5 months.

Re: [TMIC] tmic-list group

2015-07-05 Thread Jim Lubin

wondering if it is worth continuing to pay for it. $42 every 6 months.
everyone seems to have moved to other groups.

I might be able to move all the subscribed email addresses to another, free
system using google groups, but the address would change to
tmic-l...@myelitis.org.


On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

 Hi Jim,
 There was a little bit of activity a few months ago between a few of us.
 I am on Face Book also.
 It was good to see your name today, because I was thinking about you this
 morning. I'm glad TMIC was available 11 years ago when I was diagnosed with
 TM and thank you for its availability.

 Patti - Michigan



 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:

 is anyone still using the tmic-list@eskimo.com?

[TMIC] tmic-list group

2015-07-04 Thread Jim Lubin

is anyone still using the tmic-list@eskimo.com?

[TMIC] Re: rewalk tools

2014-01-18 Thread Jim Lubin

If you are looking into a home unit, this is another company that I know of
http://www.restorative-therapies.com/home




On Fri, Jan 17, 2014 at 12:12 PM, James Berg mauiji...@gmail.com wrote:

 Just wanted to  share my explorations

 -- Forwarded message --
 From: Pete Escallier p...@argomedtec.com
 Date: Thu, Jan 16, 2014 at 9:48 AM
 Subject: RE: rewalk tools
 To: James Berg mauiji...@gmail.com


  Hello James,

 Thanks for  your inquiry about the ReWalk. The ReWalk was created for use
 by people with lower limb impairment, and has been used mostly with spinal
 cord injury patients, most of them with complete paralysis. It requires the
 ability to tolerate standing, and core strength and arm strength to use the
 arm crutches you see when viewing videos of its use. Your doctor can
 determine if this technology is appropriate.

 We have rehabilitation centers throughout the USA, and they are listed in
 our website www.rewalk.com “Locations”. Contacting these centers to
 discuss using the REWalk for rehabilitation is the best step after your
 doctor clears you. The ReWalk is only cleared by the FDA for use in rehab
 centers now, but we expect the Personal version to be cleared for market
 soon. Once available, someone interested in owning the Personal ReWalk
 would purchase it for approximately $65,000, which will include training of
 about 30 hours or more at the Rehab center to become proficient enough to
 take it home. Unfortunately, new technology is not covered by Medicare or
 other insurance carriers, and won’t be until studies are published showing
 it is an improvement to the user’s health or more cost efficient, and that
 will take several years.

 We are planning to announce to everyone when we get clearance to market
 the ReWalk in the US, and at that time, if interested, you should contact
 one of our rehab centers to first determine if the ReWalk is right for you
 and to do some training in rehab to determine if you want to purchase it.
 As we add new locations they will be added to our website, our closest
 sight to you now is in Long Beach. Please continue to check our site at
 www.rewalk.com to learn the latest on availability and where we have new
 ReWalk rehab centers.

 Best of luck,

 Pete



 *From:* James Berg [mailto:mauiji...@gmail.com]
 *Sent:* Wednesday, January 15, 2014 1:52 PM
 *To:* Contact
 *Subject:* Fwd: rewalk tools



 Please respond

 -- Forwarded message --
 From: *James Berg* mauiji...@gmail.com
 Date: Fri, Jan 10, 2014 at 5:02 PM
 Subject: rewalk tools
 To: cont...@rewalk.com

   My names is James Berg and I live on the island of Kauai in Hawaii.  I
 have viewed your video and would like more information on  your product,
 the training required, the cost, etc.

 I am 66 years old and have transverse myelitis which has left me with no
 feeling in my legs.  I have been  in this condition for 4 years.

 Please send me all the information you have so I can make a decision if
 this equipment will help me get around again.

 thank you,



 Jim

[TMIC] 2013 Rare Neuro-immunologic Disorders Symposium: Repair and Recovery, Today and in The Future.

2013-07-22 Thread Jim Lubin

2013 Rare Neuro-immunologic Disorders Symposium: Repair and Recovery, Today
and in The Future.

October 25-26, 2013 | DALLAS, TEXAS

Hosted By The Transverse Myelitis Association, University of Texas at
Southwestern  Children’s Medical Center in Dallas, TX and The Johns
Hopkins Project RESTORE in Baltimore, MD

This symposium will be focused on current strategies and research projects
addressing opportunities for recovery of function after CNS damage. The
symposium will be held on Oct 25-26, 2013 at University of Texas at
Southwestern campus in Dallas, TX.

From the first Transverse Myelitis International Symposium held in Seattle
in 1999 to the first Rare Neuro-immunologic Disorders Symposium, which was
held in Baltimore in 2004, these education programs have offered a unique
clinical and research program for patients, families and the medical and
research community. These events are extremely important and beneficial for
the exchange of information regarding research and treatment strategies, as
well as providing an opportunity to bring together the patient and medical
community.

The focus of the 2013 two-day education program is on repair, recovery and
restorative therapies.  We have framed the agenda around five themes:
rehabilitation, drug-based functional recovery, surgical repair strategies,
drug-based repair therapies and cell based repair strategies. The symposium
is open to individuals diagnosed with Transverse Myelitis, Acute
Disseminated Encephalitis, Neuromyelitis Optica, Optic Neuritis, Autoimmune
Encephalitis and other immune disorders of the central nervous system;
along with families and caregivers and the medical and research community.
Participants will also have the opportunity to enroll in a longitudinal
natural history study.

Make sure to browse through the agenda to learn more about all the
different topics being covered. You can find a summary of this year’s fees
here as well.

http://myelitis.org/2013rnds/

Early bird reduced registration fees ends July 31, 2013.

We are looking forward to seeing you in Dallas in October 2013.

[TMIC] Re: NO E-MAIL

2013-05-28 Thread Jim Lubin

you might have to subscribe again. send a message to
tmic-list-requ...@eskimo.com with the subject subscribe


On Tue, May 28, 2013 at 3:15 PM, deer...@aol.com wrote:

 **
 I HAVE NOT RECIEVED ANY E-MAIL FOR TWO WEEKS. I HOPE I AM STILL ON THE
 LIST. I HAVE BEEN A MEMBER FOR 14 YEARS. MARIE

[TMIC] Re: NO E-MAIL

2013-05-28 Thread Jim Lubin

I found this link. Everyone with an email @aol.com who is having trouble
receiving the list message should fill out the form

http://postmaster.aol.com/SupportRequest.php



On Tue, May 28, 2013 at 5:01 PM, Jim Lubin jlu...@eskimo.com wrote:

 you might have to subscribe again. send a message to
 tmic-list-requ...@eskimo.com with the subject subscribe


 On Tue, May 28, 2013 at 3:15 PM, deer...@aol.com wrote:

 **
 I HAVE NOT RECIEVED ANY E-MAIL FOR TWO WEEKS. I HOPE I AM STILL ON THE
 LIST. I HAVE BEEN A MEMBER FOR 14 YEARS. MARIE

Re: [TMIC] please remove me from the list

2012-03-15 Thread Jim Lubin



At 03:38 AM 3/14/2012, Gerry Surette wrote:
send to: tmic-list-requ...@eskimo.com
subject: unsubscribe
List-Unsubscribe:

mailto:tmic-list-requ...@eskimo.com?subject=unsubscribe

[TMIC] TMA on YouTube

2011-07-03 Thread Jim Lubin



YouTube has enabled our account for videos longer than 15 minutes,
so we are happy to announce that all symposium videos from 2001 - 2010
are now on our YouTube channel at

http://www.youtube.com/transversemyelitis

Jim Lubin
Director, Information Technology/Webmaster 
Transverse Myelitis Association
jlu...@myelitis.org

http://www.myelitis.org

http://www.myelitis.org/HowToHelp
Confidentiality Notice: This
e-mail message, including any attachments, is for the sole use of the
intended recipient(s) and may contain information that is privileged,
confidential and/or exempt from disclosure under applicable law. If you
have received this communication in error, please immediately contact the
sender and destroy the material in its entirety. Thank you.

[TMIC] 22 years!

2011-05-17 Thread Jim Lubin



22 years ago today I became a ventilator dependent quadriplegic due to
acute transverse myelitis.
Here is a video interview I did in 2005 for the Reeve Foundation 

http://youtu.be/zvsnCpXpook
If you feel so inclined to make a donation to the Transverse Myelitis
Association, use my charity badge link


http://www.makoa.org/jlubin/charitybadge


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

[TMIC] 2010 symposium videos

2011-02-13 Thread Jim Lubin


All 32 videos from the Dallas symposium are now online.
http://www.myelitis.org/rnds2010/

[TMIC] 2010 Symposium videos

2011-01-14 Thread Jim Lubin



We now have 25 videos from the 2010 Rare Neuroimmunologic Disorders
Symposium online at

http://www.myelitis.org/rnds2010
Videos can be streamed online or downloaded for viewing on your own
computer or portable device.


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

[TMIC] IMPORTANT REMINDER

2011-01-02 Thread Jim Lubin



I received an email from someone who wrote I am
distressed to see that your archives are public and anyone can search my
name and come up with some very private medical
information.
Do not post personal information that you don't want the world knowing.
The message archive is searchable by anyone with Internet
access.
The archive is at

http://www.mail-archive.com/tmic-list@eskimo.com/
If you want a message deleted send me the page url
example:

http://www.mail-archive.com/tmic-list@eskimo.com/msg06410.html
and I will try to get it deleted.
The only alternative option is to remove the archive completely. Keep in
mind that many people found help by search for their own symptoms and
finding a message someone else had posted. That was the reason the
archive has always been publicly searchable.


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] 2010 symposium videos

2010-12-29 Thread Jim Lubin



There was a The Stem Cell Horizon: Where Are We?
presentation on day 2. They haven't sent me those videos yet. Will let
you know when those are ready.
At 01:16 PM 12/29/2010, James Berg wrote:
I found the video on Tm quite
interesting. The very short discussion about stem cell theapy was
disappointing though.
On Mon, Dec 27, 2010 at 10:28 AM, Jim Lubin
jlu...@eskimo.com
wrote:


The first 14 videos from the 2010 Rare Neuroimmunologic Disorders
Symposium are now online. These are all the presentations from day 1 of
the Dallas symposium.


http://www.myelitis.org/rnds2010

The videos will stream online with Flash or HTML5 browsers
(iPad/iPhone). The videos can also be downloaded for viewing offline in
mpeg4 format.

Contact me if you have any problems.


Jim Lubin

jlu...@myelitis.org





Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

[TMIC] 2010 symposium videos

2010-12-27 Thread Jim Lubin

The first 14 videos from the 2010 Rare Neuroimmunologic Disorders 
Symposium are now online. These are all the presentations from day 1 
of the Dallas symposium.


http://www.myelitis.org/rnds2010

The videos will stream online with Flash or HTML5 browsers 
(iPad/iPhone). The videos can also be downloaded for viewing offline 
in mpeg4 format.


Contact me if you have any problems.

Jim Lubin
jlu...@myelitis.org

[TMIC] 2010 symposium videos

2010-11-29 Thread Jim Lubin



We just received the first 6 videos from the 2010 Dallas Symposium.
Rather than waiting until we receive the rest we will be posting them as
they become available.

The videos can be viewed online or downloaded in mpg4 format for
viewing on your computer, Ipod or Ipad.

http://www.myelitis.org/rnds2010

Let me know if you have any problems.

Jim Lubin
jlu...@myelitis.org


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

RE: [TMIC] TMA Member directory

2010-10-03 Thread Jim Lubin



To be listed in the directory, receive a directory and get
on the mailing list to receive the printed newsletters, fill out the form
at

http://www.myelitis.org/memberform.htm

At 07:19 AM 10/1/2010, Emily wrote:

To whoever is in charge of maintaining
the directory.we are new.please add my husbands name to the
directory:

John
Meyers



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

[TMIC] Important Announcement about the Symposium

2010-08-19 Thread Jim Lubin



We have some great news! The $225 registration cost for
Patients/Families attending the Dallas Symposium has been adjusted and
now includes up to a FAMILY of 3. So the $225 will cover a patient
and 2 FAMILY members. We are giving a break to FAMILIES wanting to
attend.
Just to clarify, the adjustment is for up to 3 attendees of the
same family. One person is $225. A patient and non-family caregiver pay
$225 each. 
We have reduced the registration fee because the CME office is
considering canceling the symposium because the numbers are too
low. The TMA is already subsidizing between $20,000-$40,000 of this
event. Lowering the fee means that the event organizers will have
to raise more money to cover the additional costs.
If you have made your travel plans but have not registered yet, please do
so immediately! It is imperative that our registration numbers
increase as quickly as possible. If you were considering coming,
but thought that you would go to a future symposium, please consider
coming to this one. If the CME office cancels the symposium because
we cant attract enough people from the TMA, it will be hard to justify
having these education programs in the future. 

Registration can be completed by visiting:

http://www.utsouthwestern.edu/RNID2010


Jim Lubin
Director, Information Technology/Webmaster 
Transverse Myelitis Association
jlu...@myelitis.org

http://www.myelitis.org

http://www.myelitis.org/HowToHelp
Confidentiality Notice: This
e-mail message, including any attachments, is for the sole use of the
intended recipient(s) and may contain information that is privileged,
confidential and/or exempt from disclosure under applicable law. If you
have received this communication in error, please immediately contact the
sender and destroy the material in its entirety. Thank you.

[TMIC] 2010 Rare Neuroimmunologic Disorders Symposium

2010-06-30 Thread Jim Lubin




The 2010 Rare Neuroimmunologic Disorders Symposium
Friday, September 24  Sunday, September 26, 2010
Hosted by the University of Texas Southwestern 

The 2010 Rare Neuroimmunologic Disorders Symposium is being hosted in
Dallas, Texas for the first time. Over the last 10 years, symposia have
been held in Baltimore, Albuquerque, Los Angeles and Seattle, bringing
together patients, families, clinicians and scientists with interests in
rare immune mediated disorders that affect the nervous system. The 2010
symposium will include two concurrent sessions, with the ability of
participants to move between them as desired. The clinical session will
feature talks geared towards patients, families and practitioners who are
seeking out a greater understanding of disease biology, current treatment
options and a preview of cutting edge research. The basic science session
will feature talks and discussions that will explore complex topics in
novel ways with a goal of stimulating cross fertilization of ideas
between different scientists.
The symposium will start Friday, September 24th in the morning and will
be hosted at the Galleria Westin Hotel in Dallas, Texas. The last session
is scheduled for midday on Sunday September 26th with the program closing
at 12:30. There is a dinner planned for Saturday, September 25th with a
keynote speech delivered by Dr. Lawrence Steinman from Stanford
University.
The clinical sessions will include talks on various neuroimmunologic
disorders, including transverse myelitis, neuromyelitis optica, acute
disseminated encephalomyelitis and pediatric multiple sclerosis. There
will be presentations on disease management, symptom management,
rehabilitation and research programs. There will be opportunities to
question presenters, work in small groups, take part in moderated
discussions, and connect with patients, families, clinicians and research
scientists.
You will need to make a reservation with the hotel and also register for
the symposium and pay a registration fee. 
The Westin Galleria Dallas
13340 Dallas Parkway
Dallas, TX 75240
Phone: (972) 934-9494
The hotel rate is $159 per night. You must identify yourself as a
participant in the Rare Neuroimmunologic Disorders Symposium to receive
the group rate. The room block is available for the dates, September
20-28, 2010; you are eligible for this rate between those dates. The
group rate is only available until August 30, 2010 and there are a
limited number of rooms, so the rate is subject to availability. In other
words, if you are planning to attend the symposium, please make your
hotel reservation as soon as possible. 
Online hotel reservations can be made at

http://tinyurl.com/rnds2010hotel
To make the reservations by phone, please call (972) 934-9494
The symposium registrations are being administered through the University
of Texas Southwestern Office of Continuing Medical Education. The
registration fees are as follows:
Physicians$425.00 
Resident/Fellows/Allied Prof$300.00 
Patients/Families f $225.00 
Graduate Students $150.00 
Registration can be completed by visiting:

http://www.utsouthwestern.edu/RNID2010 (estimate to be available July
6th)
You can fly into either Dallas Love Field or DFW (Dallas-Fort Worth).
There isnt a free shuttle service between the airport and hotel. You
will either need to take a taxi or you can make a reservation with the
Super Shuttle Service by calling: (800)258-3826 or online at:
http://www.supershuttle.com/.
Once you get to the Westin Galleria Dallas, you should have little reason
for ground transportation. There are many restaurants near the hotel and
most of your meals will be provided at the symposium in the hotel.

The symposium program agenda will be posted on the registration web site.
We are in the process of finalizing the program and presenters. If you
have never been to a symposium, we strongly encourage you to attend. We
are certain that you will leave Dallas as a more effective advocate for
your medical care. In addition to the great educational opportunity, you
will meet many other people who understand your experience in a way that
no one else does. People who meet at our symposia have developed lifelong
friendships. If you have been to our symposia in the past, then you
understand why you need to try to make it back.

Re: [TMIC] Please take me off of your list

2010-06-28 Thread Jim Lubin



At 02:22 PM 6/25/2010, jrushton wrote:
Thank
you,

Jeanne Rushton
click this and send it from the address that is subscribed.
List-Unsubscribe:

mailto:tmic-list-requ...@eskimo.com?subject=unsubscribe 


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

Re: [TMIC] OT bed question

2010-06-03 Thread Jim Lubin



I have a hospital bed with this mattress pad overlay.

http://www.parentgiving.com/shop/silicore-bed-pad/shop-parent-giving-1425.html

SILICORE® Bed Pad cushions and protects all pressure-prone areas of the
body. SPENCO® SILICORE® Fibers, unique siliconized hollow core shafts
that wont mat down, retain their loft and air flow. Washable and
dryable. Reversible with moisture-resistant nylon on the other side. Made
in USA. 78 x 36.
At 06:11 PM 6/3/2010, Akua wrote:
I didn't get to shop or choose
either -- only knew i needed
a hospital bed

Again the ability of the bed itself to move/ adjust mediates
and aids whatever mattress. I think the mattress i got is
crap i can feel the metal springs with my hands, but my body
doesn't noticesometimes i go to sleep
nearly sitting up and other times I am laying flat --- sometimes legs
slightly raised
(a fun way to exercise in bed)
that (and six pillows) is wonderful aid to going to sleep
soon after I adjust myself.
Akua



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

http://www.makoa.org/jlubin/charitybadge

[TMIC] 21st anniversary!

2010-05-17 Thread Jim Lubin



Today, May 17th, makes 21 years since I became a ventilator dependent
quadriplegic due to acute transverse myelitis. I was 21 when it happened
so it has now been half my life. I woke up that morning with a sore
shoulder. Thinking I just slept in a wrong position I went to work. After
about 30 minutes the pain in my shoulder increased and I started feeling
dizzy. I tried to stand up but could not. Someone helped me lay down. In
a short amount of time I remember a paramedic asking me my age, I tried
to answer but could not talk. I found out I had stopped breathing. The
next memory I have is waking up in the hospital unable to move or speak.

Transverse Myelitis is an inflammatory attack in the spinal cord. It is
an auto immune disorder where a persons own immune system mistakenly
attacks and destroys myelin, the insulating material that surrounds
nerves. There is no known cause or cure. It can happen to anyone at any
age.
In 2008, the Transverse Myelitis Association has established the James
Timothy Lubin Fellowship in Rare Neuroimmunologic Disorders. The purpose
of the Fellowship is to encourage the development of medical
specializations in TM, ADEM and NMO through a year of study under a
leading TM, ADEM or NMO specialist. If you think this is a worthy cause
and would like to make a tax deductible donation to support it, you can
do so using this link

http://www.myelitis.org/fellowship-donation


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] SCI Hall of Fame Voting Deadline Extended

2010-04-03 Thread Jim Lubin




Dear member of the TMA community:
Allen Rucker has been nominated for the Spinal Cord Injury Hall of Fame
in the entertainment category. As many of you know, Allen got TM
and wrote a book about his experiences, The Best Seat in the
House. Allen is a great supporter of the TMA! He was a
keynote speaker at our symposium in Seattle in 2008 and is a regular
columnist for the TMA Journal. Allen is also a regular contributor
to Ability Magazine and New Mobility Magazine. 
It would be wonderful for our community, if Allen was awarded this
honor! It would help to raise awareness about TM and the other rare
neuroimmunologic disorders and it would also raise awareness about our
Association and our community. When Allen speaks about his
experiences, he always talks about TM and he always talks about the TMA
and our community.
Please get onto the Spinal Cord Injury web site and please vote for
Allen. It would be a wonderful honor for Allen and it would be
wonderful for all of us. 
The Spinal Cord Injury (SCI) Hall of Fame voting deadline is through
April 15. Please visit
www.spinalcord.org for
the full story and the
voting
link.
You must be a member of NSCIA to vote, but membership is free  you
can sign up easily online!

Thank you!

Re: [TMIC] nerve pain

2009-12-25 Thread Jim Lubin



20 years as of May 2009.
At 06:22 PM 12/25/2009, Janice Nichols wrote:

And how long have you had TM?
Janice

From: Jim Lubin 
Sent: Friday, December 25, 2009 1:10 AM
To: Janice Nichols ;
Laura Beaudin ;
tmic-list@eskimo.com 
Subject: Re: [TMIC] nerve pain
I can not move, well except for my left hand now on occasion. 
I can feel touch everywhere, more on the left side of my body less on the
right side, but not completely normal like on my face. I have notice I
have started getting more normal feeling in my left hand the
past few weeks. I am feeling the texture of the bed sheet now.
I can not feel temperate. 
I have occasional nerve pain but not too often any more.



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] nerve pain

2009-12-24 Thread Jim Lubin



I can not move, well except for my left hand now on
occasion. 
I can feel touch everywhere, more on the left side of my body less on the
right side, but not completely normal like on my face. I have notice I
have started getting more normal feeling in my left hand the
past few weeks. I am feeling the texture of the bed sheet now.
I can not feel temperate. 
I have occasional nerve pain but not too often any more.

At 08:16 PM 12/24/2009, Janice Nichols wrote:
That helps. I just
thought that paralyzation was a complete thing - nothing gets past the
paralyzed part of the body, including pain.
What a bummer to be paralyzed AND still have nerve
pain. Life just is not fair and earth is not
heaven.
Janice
--
From: Laura Beaudin laura.beau...@gmail.com
Sent: Thursday, December 24, 2009 10:08 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] nerve pain
It's actually very rare for
someone who deals with paralysis to have no pain. Pain and spasms are
often the order of the day. Someone correct me if I'm wrong...There two
types of nervous systems, the central nervous system and the peripheral
nervous system. There are also four different types of sensation: light
touch, hot, cold and acute sensations. While the connection might be
broken to the brain, the peripheral system can still fire off
signals...they just don't want to connect together. Most will actually
have exaggerated reflexes. I'm a rare one...no reflexes, but still get
spasms..I like to keep the doc on their feet :D You could stab me and I
wouldn't react, but stroke me softly on the right foot and I'll go into
spasms and I'll feel it without problem. Just the way it works sadly and
pain will be an issue for many.
Hope this answers at least part of your question.
Laura
On Practical-Homeschooling: Quick n Crafty Ornaments!

http://www.practical-homeschooling.org

On 24/12/2009 8:38 PM, Janice Nichols wrote:
I am just curious, but when a
person is paralyzed, where does the pain
show up? Or does paralyzation only go so deep, not touching
the nerves? I hate to sound so dumb, but just can't help it. Also,
would neurontin be similar to Naltrexone?
Janice

--
From: Akua a...@artfarm.com
Sent: Thursday, December 24, 2009 4:43 PM
To: tmic-list@eskimo.com
Subject: [TMIC] nerve pain
at the risk of sounding like a
broken record
(gosh, only people of a certain age will get that metaphor)
Naltrexone moved my daily dose of hell from
a 9 out of 10 to a 1 to 3.
I was down to to meds, now three:
low dose naltrexone, nadolol ( blood pressure)
and aspirin -- all TM related
as TM left me paralyzed and
in a wheelchair. Previously
I had not a single health concern.
--





Jim
Lubin

jlu...@makoa.org
Home Page:
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] Hawaiian Silk Scarves - TMA Fund Raiser

2009-12-22 Thread Jim Lubin



These 100% Silk Chiffon scarves, bandannas and shawls feature original
designs by Punawai and are made in Hawaii. Designs feature themes such as
Hawaiian plants and endangered birds. These are the same scarves featured
in The Honolulu Advertiser article, Subtle scarves that say Hawaii
- A family shop in Hilo turns silk into wearable artworks

http://www.honoluluadvertiser.com/article/20091215/LIFE08/912150302/Subtle+scarves+that+say+Hawai+i


http://www.myelitis.org/scarf/
This is my cousin who makes these scarves. At this time the TMA web
site is the only place you can get these, without making a trip to
Hawaii. :)


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] act fast to raise money for TMA

2009-12-16 Thread Jim Lubin


For each person who joins iGive using the special link below and does just
one web search on our
site between now and noon Thursday, we'll give The Transverse Myelitis
Association a dollar.

This is the link:
http://www.igive.com/welcome/warm_reg_promo.cfm?c=3417


The details:
 - Offer active between now and 11:59 a.m., December 17, 2009 (Chicago
time).
 - New members only (never have been an iGive member previously).  All
the normal rules of membership, searching, and
purchasing apply, our site has the details.
 - Once we've given away $5,000, the offer ends.

[TMIC] Extraordinary Measures // quilt

2009-12-10 Thread Jim Lubin





http://extraordinarymeasuresthemovie.com/#/quilt


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] News about Dr Kerr and the TM Centers

2009-12-06 Thread Jim Lubin



Dr. Douglas Kerr, the founder of the first center focused on
clinical management and research of transverse myelitis (TM), will be
leaving Johns Hopkins for a position at a biotech company in the Boston
area, where he hopes to advance the development of therapies for
neurologic disorders, including multiple sclerosis (MS) and TM. Dr.
Kerr will continue to serve on the Medical Advisory Board of The
Transverse Myelitis Association and he will likely begin seeing patients
in the Boston area in mid 2010. Dr. Kerr will also continue to be
involved with the Johns Hopkins Project RESTORE, as well as collaborate
with the TM and NMO Center at the University of Texas Southwestern,
headed by Dr. Benjamin Greenberg. The stem cell research project
for TM and MS, the high dose cyclophosphamide treatment program in MS and
the functional electrical stimulation clinical trial for secondary
progressive MS will all continue at the Johns Hopkins Project
RESTORE. 

The Johns Hopkins TM Center that was established by Dr. Douglas Kerr at
Johns Hopkins will continue to be a focus for research on this disorder
and will provide clinical care to both children and adults with TM.
Dr. Carlos Pardo will become the new Director of the Johns Hopkins TM
Center. Dr. Pardo has been a clinician and researcher at the TM
Center since its inception. Dr. Pardo has provided exceptional care
to people with TM and has been very active in the TMA community,
including as a regular participant in our symposia and as a researcher
with Project RESTORE. Along with Dr. Pardo, Dr. Michael Levy will
continue his effort focusing on the clinical and research studies on the
recurrent forms of these rare neuroimmunologic disorders, such as
recurrent TM, recurrent optic neuritis (ON) and longitudinally extensive
TM. Dr. Levy also established the NMO Clinic as part of the TM
Center at Johns Hopkins in 2009. Dr. Daniel Becker, a neurologist
at the Kennedy Krieger Institute who has been caring for children and
adults with transverse myelitis, ADEM and NMO at the International Center
for Spinal Cord Injury, will continue a very close collaboration with the
JH-TM Center with his expertise in neurorehabilitation. Dr. Julius
Birnbaum, a neurologist and expert on rheumatological disorders will
continue his practice at the JH-TM Center with special clinical and
research focus on the underlying rheumatic conditions associated with
TM. 

The Johns Hopkins TM Center in Baltimore (Maryland) and the newly
established TM and NMO Center at the University of Texas Southwestern in
Dallas (Texas) will become the axis of a network of TM Centers around the
country for facilitating the care and research on TM.


Jim Lubin
Director, Information Technology/Webmaster 
Transverse Myelitis Association
jlu...@myelitis.org

http://www.myelitis.org

http://www.myelitis.org/HowToHelp
Confidentiality Notice: This
e-mail message, including any attachments, is for the sole use of the
intended recipient(s) and may contain information that is privileged,
confidential and/or exempt from disclosure under applicable law. If you
have received this communication in error, please immediately contact the
sender and destroy the material in its entirety. Thank you.

[TMIC] TMA Greeting Cards Fund Raiser

2009-10-25 Thread Jim Lubin





http://www.myelitis.org/cards/
The proceeds from the sale of these items will be used to fund the
many important programs of The
Transverse Myelitis Association. 
As the neuroimmunologic disorders are rare and our membership is small,
it is extremely difficult to raise funds for our cause. We work
most diligently to focus our resources on the direct services to our
members. By using these beautiful greeting cards, you will be
supporting the important work of the TMA and also raising awareness about
acute disseminated encephalomyelitis, neuromyelitis optica, optic
neuritis and transverse myelitis.

[TMIC] I LoveChristie cookies .com contest

2009-10-14 Thread Jim Lubin



last 2 days notice but just found out about this:
The most nominated charity will receive a check for $10,000.
The runner-up wins $5,000, and the next 10 will receive $1,000
each.
Nominations must be submitted on or before October
15, 2009. The winning charities will be announced in November 2009. One
vote per email address.



http://www.ilovechristiecookies.com/contest/
Charity: The Transverse Myelitis Association
Redmond, WA 


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Netta

2009-09-20 Thread Jim Lubin



At 06:27 AM 9/20/2009, bgunny7...@aol.com wrote:
Anybody know how to get ahold of
Netta gaynor?

http://www.nettaganor.com/



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Who else knew this about Gunny..? (Richard Boyle)

2009-09-18 Thread Jim Lubin



At 09:30 AM 9/17/2009, kevin weilacher wrote:
It seems that since President
Obama lifted the ban on stem cell research nothing else has happened
because there has been a total lack of funding for continued research.
Currently, it seems that the only way anything is going to get done is if
we, ourselves takes this bull by the horns and do something for
ourselves. 
That's because there never has been a ban on stem cell research. He
lifted the ban on federal funding of stem cells from human embryonic
sources. 



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] Re: Fwd: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM LUBIN....!!!!!!!!

2009-09-15 Thread Jim Lubin



Update:
Yes I am still being able to slightly move my thumb and other finger, but
only when I have been sitting upright and even then no all the time. I
have not been having all the pain I was having like when it first
started. We tried to do a video again yesterday but when we had the
camera ready and recording I wasn't able to move it. Camera shy I guess.
:-) 
Thanks for all the prayers!
Jim
At 10:04 AM 9/15/2009, roseofr...@aol.com wrote:
M
ornin' Jim ~
 I felt I should share this with you.. I am still
in touch with some TMers that
left the list. and Deborah is one of them she started
a prayer list and 
asked me to join.which I did. When I saw your video I just had
to share it
with her. I wanted you to know that you are now on our prayer team
list.
We are so excited for you.you are very much loved you know.
:-)
 I hope you are still movingand I
sure hope your pain has subsided
I'm hoping to see an update from you soon.as I am sure everyone on
the
list is hoping for Jim.!
 Love ya, Lynn

In a message dated 9/14/2009 12:03:49 P.M. Pacific Daylight Time,
damo...@verizon.net writes:



Thatâs incredible! It seems so
small, but we know itâs s big  weâll put him on the prayer
list to keep this movement moving!


Thank you for sharing !!!


Love Deborah, your soul sister xo






From: roseofr...@aol.com
[
mailto:roseofr...@aol.com] 

Sent: Monday, September 14, 2009 11:53 AM

To: damo...@verizon.net

Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM
LUBIN







The past two weeks I started feeling a tingling in my
right lower back. When I feel this I am able to move my left thumb! It's
been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM.
When I recline the tingling stops and I can not move my thumb no matter
how much I try to.

To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU



Jim
Lubin


jlu...@eskimo.com


http://makoa.org/jim 

disAbility Resources:
http://www.makoa.org




Return-Path: damo...@verizon.net
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From: Deborah Capuano damo...@verizon.net
To: roseofr...@aol.com
References: c6c.562dc910.37dfc...@aol.com
Subject: RE: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S
JIM
LUBIN
Date: Mon, 14 Sep 2009 15:03:17 -0400
Message-id: 1c27d4c22f3b4474837ba42eb0519...@deb62e8d22365d
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In-reply-to: c6c.562dc910.37dfc...@aol.com
X-AOL-IP: 206.46.173.19
Thats incredible! It seems so
small, but we know its s big  well put him on the prayer list
to keep this movement moving!
Thank you for sharing !!!
Love Deborah, your soul sister xo



From: roseofr...@aol.com
[
mailto:roseofr...@aol.com] 
Sent: Monday, September 14, 2009 11:53 AM
To: damo...@verizon.net
Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM
LUBIN


The past two weeks I started feeling a tingling in my
right lower back. When I feel this I am able to move my left thumb! It's
been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM.
When I recline the tingling stops and I can not move my thumb no matter
how much I try to.
To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU

Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org




Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] able to move slightly

2009-08-24 Thread Jim Lubin



The past two weeks I started feeling a tingling in my right
lower back. When I feel this I am able to move my left thumb! It's been
20 yrs, 4 mos since I was paralyzed from the neck down due to TM. When I
recline the tingling stops and I can not move my thumb no matter how much
I try to.
To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] able to move slightly

2009-08-24 Thread Jim Lubin



hehe, I wonder. That is really the only thing I have been
doing differently lately is playing all those games on Facebook.
At 03:46 PM 8/24/2009, bradebi wrote:

Jim it could be all the Mafia wars you play
on facebook!!!
Debi W

---Original Message---

From: Jim Lubin
Date: 8/24/2009 1:38:52 PM
To:
tmic-list@eskimo.com
Subject: [TMIC] able to move slightly

The past two weeks I started feeling a tingling in my right lower back.
When I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos
since I was paralyzed from the neck down due to TM. When I recline the
tingling stops and I can not move my thumb no matter how much I try
to.
To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU

Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] Fwd: PBS INFO FOR CODY: THE FIRST STEP

2009-07-28 Thread by way of Jim Lubin jlu...@myelitis.org



Jim, Sandy thought you might be able to send this to the TMA
list to get help on this film being shown to as many PBS stations
as possible..not all are aware that the uplink is coming ..please pass it
on. thank you ,Shelley




From: cu...@aol.com

To: cu...@aol.com

Sent: 7/21/2009 10:19:11 P.M. Mountain Daylight Time

Subj: PBS INFO FOR CODY: THE FIRST STEP



If you're having trouble viewing this email, you may

see it online.















 

Dear friends, 

 

Some of you have asked about the showing of CODY,the
first step on PBS. Each market is different and some local PBS stations
may or may not be aware that the feed is in fact available , July
30Th! To get this information out PLEASE CALL your local PBS
station and ask them to take the feed and schedule a broadcast.


 

I am attaching the promo package to share with your local PBS
stations,please share with anyone you might know that has an interest in
disabilities, health care, and seeing this film shown in their area.


Please help us get the word out ,so others can see this powerful
documentary! 


 

Sincerely, Shelley Unser 




CODY:The First Step  



CODY Biographies 



CODY Directors Notes 



CODY Synopsis  



Production Company Information



P.O. Box 56696 |
Albuquerque, NM 87113 US 

This email was sent to
cu...@aol.com. To ensure that you continue receiving our emails,
please add us to your

address book or safe list.



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Re: [TMIC] mail blocked?

2009-06-30 Thread Jim Lubin



The list does not allow message larger than exactly 4
bytes.
I recommend using

http://skydrive.live.com 25Gb free online storage that you can use to
share files.
At 04:28 PM 6/30/2009, wim from holland wrote:
In the discussion of arts, I
send two pictures of my work to share it with you, things I learned to do
during the TM period. 

Send it twice but none of them came through. Are they blocked or
cencored, one of them was the Madonna to the painting of Edvard
Munch.

Wim from Holland

Heb jij de nieuwe Messenger nog niet?!

Download 'm hier 


Jim
Lubin

jlu...@makoa.org
Home Page:
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Facebook Page

2009-06-27 Thread Jim Lubin



It could be... I've been on Facebook for j years and haven't
used it as much as I have the last 2 weeks since starting Farm Town. Good
thing I finished putting the latest TMA newsletter online before I got
into Farm Town, I would have really had some time management problems.

I got my mom on it too, which might have been a mistake. When harvest
time happens around our diner time, guess which has been coming first?
Yup, we have been eating later every night. :-) 
At 07:01 PM 6/26/2009, Cindy McLeroy wrote:
ï»¿ 
Now when folks
wonder why the list is slow, they should go to facebook and check out
Farm Town. That must be where everyone disappears sometimes.


- Original Message - 

From: bradebi 

To: Akua ;
tmic-list@eskimo.com ;
Jim Lubin 

Sent: Friday, June 26, 2009 3:29 PM

Subject: Re: [TMIC] Facebook Page

I am too!!!...I love Farm Town!.I am
taking a break... .I am into building my Zoo right now..it is addicting
too!.

Debi







ï»¿

---Original Message---



From: Jim Lubin

Date: 6/25/2009 7:37:10 PM

To: Akua;
tmic-list@eskimo.com

Subject: Re: [TMIC] Facebook Page



there are several TM-ADEM-NMO groups on Facebook, most are linked
here


http://www.myelitis.org/support.htm

Jim 

(who has become addicted to the Farm Town game on Facebook)

At 06:43 PM 6/24/2009, Akua wrote:

I'm digging Facebook--- what about creating a fan page.

-- 



Jim
Lubin


jlu...@eskimo.com


http://makoa.org/jim 

disAbility Resources:
http://www.makoa.org









Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Facebook Page

2009-06-27 Thread Jim Lubin



Thanks Gracie. Pizza would be nice but I still need someone
to feed it to me too. :-)
Mahjongg and Pandora's Box are the ones I was hooked on for quite awhile
too. It's fun to find a game I can actually play where speedy movement of
the mouse is not a requirement.

At 05:28 PM 6/27/2009, Grace M. wrote:

Jim, 

You have me
laughing so hard now. :-) I'm the same way, though with me
it's Mahjongg and the strategy games. If your Mom ends up being too
late with dinner, just call me and I'll send over a Pizza.

You're a
peach!
Gracie

On Sat, Jun 27, 2009 at 7:40 PM, Jim Lubin
jlu...@eskimo.com
wrote:


It could be... I've been on Facebook for j years and haven't used it
as much as I have the last 2 weeks since starting Farm Town. Good thing I
finished putting the latest TMA newsletter online before I got into Farm
Town, I would have really had some time management problems. 

I got my mom on it too, which might have been a mistake. When harvest
time happens around our diner time, guess which has been coming first?
Yup, we have been eating later every night. :-) 




Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

RE: [TMIC] Facebook Page

2009-06-26 Thread Jim Lubin




Jim Lubin

http://www.facebook.com/jim.lubin

At 06:17 AM 6/26/2009, Tracey L. Black wrote:
I am addicted to Farm Town.
So is Ashlee and her brother and sister. I am up to level 26 and have
over $435,000. 
Great way to talk to people from all over the world!!

If you have a facebook, can you give me your info so that I can add you
to mine???

Tracey L. Black
Certified Insurance Service Representative
Hockley  O'Donnell Insurance Agency
Phone- 717-334-6741, x 29
Fax-717-334-3414
My hours: 9:00 a.m. - 5:00 p.m.


Thank you for providing information to us. Please be aware that no
coverage is bound and no change to your insurance program is confirmed
until verified by a licensed agent during regular business hours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained

From: Grace M.
[
mailto:grace...@gmail.com] 
Sent: Thursday, June 25, 2009 10:54 PM
To: Jim Lubin
Cc: Akua; tmic-list@eskimo.com
Subject: Re: [TMIC] Facebook Page



Hi Jim, 





I'm afraid to even start Farm Town---I KNOW I'll get
addicted...as it is, I already need to start attending Mahjong
Addicts Anonymous meetings ;-) Gracie





Jim
Lubin

jlu...@makoa.org
Home Page:
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Facebook Page

2009-06-26 Thread Jim Lubin



It's a virtual farm sim. You plow your land, plant seeds,
hire people to harvest. You gain experience point to move up levels by
planting and visiting friends farms. You can also send Farm Town gifts to
your friends. So the more friends playing the better it is. 
At 08:43 PM 6/25/2009, Janice wrote:
What is Farm
Town? Janice


- Original Message - 

From: Grace M. 

To: Jim Lubin 

Cc: Akua ;
tmic-list@eskimo.com 

Sent: Thursday, June 25, 2009 9:53 PM

Subject: Re: [TMIC] Facebook Page


Hi Jim, 






I'm afraid to even start
Farm Town---I KNOW I'll get addicted...as it is, I already need to
start attending Mahjong Addicts Anonymous meetings
;-) Gracie








Jim
Lubin

jlu...@makoa.org
Home Page:
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Facebook Page

2009-06-25 Thread Jim Lubin



there are several TM-ADEM-NMO groups on Facebook, most are
linked here

http://www.myelitis.org/support.htm
Jim 
(who has become addicted to the Farm Town game on Facebook)
At 06:43 PM 6/24/2009, Akua wrote:
I'm digging Facebook--- what
about creating a fan page.
-- 


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] Transverse Myelitis Network

2009-06-15 Thread Jim Lubin



Well, it was answered before I was even out of bed.
:-)
The only thing I have to add is that if anyone has an awareness group let
me know and I can add it to the page at

http://www.myelitis.org/support.htm

At 09:22 AM 6/15/2009, Deborah Nord Capen wrote:

I have to respectfully add to Grace's
comment below. She is absolutely correct when she states that the
groups are formed to spread awareness of TM, ADEM, NMO and the other
neuroimmunologic disorders. The TMA was not formed to hold a
monopoly on support groups. It was formed as a non-profit
organization to enable us to raise funding for research into causes and
cures, form a Medical Advisory Board of excellent physicians who support
our cause, raise awareness around the world, and help facilitate
emotional support for those who have these disorders. Without the
ability to raise money which is tax deductible for our contributors, none
of this would have happened. Without the non-profit status, we can
not request grants or funding from the NIH, NINDS or other groups for
research support.

We applaud all those individuals who
start the support groups both online and in their geographic areas, as
without their help, transverse myelitis does not have a
face. Pretty much all of these groups have been started
by TMA members. Jim Lubin was our pioneer into this medium.
He started the first Internet support group when he became a
vent-dependent quadriplegic from TM. He also started many other
support groups, such as the vent-dependent quad list. 

We will never have enough support
groups. I myself have joined several of these groups just to see
the sharing and emotional support that goes on. It is very
heart-warming to see this happening.

I think that having all of the
support groups makes us more noticeable to the news media and the talk
shows. I don't think that any of these shows ever mentioned TM
prior to 1997. This awareness has happened because those of us with
TM are not just sitting quietly and let it consume our lives. We
are doing something about it!

Also, in my opinion, I don't think
that there is any bickering going on about this topic; I think it is just
productive conversation and helps to make all the newer subscribers aware
that these lists are all out there for their information, and let's not
forget our caregivers. They need support groups too!
Take care,
Debbie Capen
Secretary
The Transverse Myelitis Association



- Original Message - 

From: Grace M. 

To: jharpe...@aol.com


Cc:
rp...@neillsupply.com ;
jlu...@makoa.org ;
tmic-list@eskimo.com 

Sent: Monday, June 15, 2009 9:00 AM

Subject: Re: [TMIC] Transverse Myelitis Network


The Transverse Myelitis
Network is another great way for patients to communicate and compare
notes. Many of the TMIC members participate there. Our own
Marieke is one of the administrators. I advocate for NMO, and work
with Sandy Siegel and the TMA crew, and I also have my own site, of which
Mr. Siegel is extremely supportive. It's all about spreading
awareness of issues like TM, and other causes of non traumatic SCI.
There is enough room for everyone an no need to quibble. 






Respectfully, 






Grace








Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] TMA address comtinues

2009-06-08 Thread Jim Lubin




I setup this link you can use that goes through PayPal.
TMA Donation In Memory of Pam Montz

http://www.myelitis.org/PamMontz

At 02:29 PM 6/8/2009, jmh1...@sbcglobal.net wrote:

Well, I hit the wrong button and sent what I hadn't finished, but knowing
me 
helps you understand!!

Paula Lazzeri, Treasurer
10105 167th Place NE
Redmond, WA 98054-3125

I just read what I sent earlier and it sounds like I'd been imbibing for
hours

Point about Roger, was the TMA accepted my check in his memory, so
I'm
certain that they would gladly accept money in Pam's memory...

I'd better quit while I seem to be making sense!!

!!TIAD!! janh Stillwater, OK


Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

Re: [TMIC] antidepressants

2009-05-30 Thread Jim Lubin



Mindy,
I say give it a try. 
I had been on 50mg of Amitriptyline daily when I was first in the
hospital and just continued it when I came home. After being home almost
a year I wanted to decrease or discontinue any unnecessary medication I
was on. I was not depressed so didn't think I still needed an
antidepressant. So with my doctor's ok I started decreasing the amount I
was taking over several months. I started getting massive headaches when
I decreased it too fast. 
Back then I did not know that, although it is an antidepressant, it was
also used to treat neuropathic pain. Luck for me I wasn't having
neuropathic pain any longer so I didn't notice any difference after
stopping Amitriptyline. Just one less medication. 
We now know that depression is a symptom of TM (see the article
Demoralization and Depression in Multiple Sclerosis and Transverse
Myelitis by Adam Kaplin, MD PhD,

http://www.myelitis.org/newsletters/v8n1/newsletter8-1-02.htm
)
I also decreased the amount of Dantrolene I was taking for spasticity
until the spasms got to strong. I have now been on the same amounts of
baclofen (Lioresal) and dantrolene (Dantrium) for 17 years now.
Jim
At 10:42 AM 5/29/2009, Lawrence King wrote:
Dear friends.
I am continuing to feel better. Now that I look back I can see that
I have been Improving for about a month even though I'm passed the 2 year
mark. The hope it has given me above and beyond the general
coming to terms and acceptance that one should
reach by their 2 year mark, has made me decide that I am ready to get off
my antidepressant. I have read that Cymbalta is very difficult to
come off of and that other people have had good results opening the
capsules and reducing the dose incrementally themselves every few
days. I just spoke with my doctor and have her blessing in this
endeavor as she has had other patients wean off successfully doing
this.
Cymbalta saved my life and helped with the nerve pain in ways that other
antidepressants do not but I am ready to face the world again. Will
keep you all informed of my progress!

Mindy the Artist



Jim
Lubin

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] Fwd: Invitation to help us in a research study

2009-05-02 Thread Jim Lubin




Im writing to you because wed
like to be involved in a research studying which has the potential
improve medical care for our community 
Gene Talk: What do we expect from Families and their Doctors? is a
US national study sponsored and funded by the National Institute of
Health. The purpose of the study is to collect thoughts, opinions, and
beliefs from patients and providers about who has responsibility for
sharing genetic risk information within families, and when it is morally
acceptable not to share information. One of the unique things about this
study is that a quarter of the data will come from individuals who belong
to support groups like yours and mine. The investigators believe that the
opinions of people like us, who actually live with these situations, are
key to their research. The remaining quarters have been collected and are
as follows; experienced health care professionals, medical doctors, and
health care consumers inexperienced in genetic illnesses. 
The study is structured to be easily understood from the perspectives of
both health care professionals and health consumers. All data is stored
and managed by Jennifer Poat, the project manager for Gene Talk, at
Oregon Health  Science University. If you have any questions
regarding this study she welcomes your questions at
503-494-0198.
The data will be collected through an IRB-approved mailed survey. The
survey will present 12 short stories about different ways providers and
patients might react to situations that might involve sharing genetic
information with family members. Each brief story is followed by 2
questions. The entire survey takes about 15 minutes to complete.
If you would like to participate, As a first step, please go to an online
survey to fill out your contact information. Once you have done this, the
survey will be mailed to you at the address you provided in the online
survey. If you have questions, let me know, and I will get the answers
from the researchers. It is important to note that the researchers will
not have access to your email address?the website is set up so
that email address are not captured. All information will remain
confidential and that names will not be connected to answers. 
This is the link to the survey:


https://www.surveymonkey.com/s.aspx?sm=C_2fGj736r_2fLAHxJnp1YMBRQ_3d_3d


Thanks very much for your help!
Sandy

President
The Transverse Myelitis Association
ssie...@myelitis.org
http://www.myelitis.org

[TMIC] Campaign To Cure Paralysis

2009-04-10 Thread Jim Lubin


Be counted! Put yourself on the map.
http://www.campaigntocureparalysis.org/

[TMIC] Cody Unser Oscar Qualifing Runs

2009-04-09 Thread Jim Lubin




NEWS RELEASE

For Immediate Release:  April 7, 2009

 Cody Unser Documentary Oscar Qualifying Runs Scheduled in NYC and LA
(Albuquerque, NM) Christopher Productions and The Cody 
Unser First Step Foundation are proud to announce that the theatrical 
release of the documentary entitled, CODY; The First Step begins 
Oscar Qualifying runs in LA County April 17th April 23rd, 2009  and 
in New York City from May 1-May 7th, 2009.


CODY is a powerful documentary that charts the 
extraordinary story of Cody Unser who was tragically struck with 
Transverse Myelitis at the age of 12.  The disease left her paralyzed 
from the chest down. However, she refused to let that diagnosis 
define her and instead at age 13 founded the Cody Unser First Step 
Foundation to ensure that money would be raised to find a cure. For 
the last five years Cody has lobbied state legislatures and Congress 
to push for stem-cell research which offers the key to her own 
recovery.  During the film, Cody shares with the viewers her 
determination to walk again.  The film takes the viewers on an 
intimate journey with Cody detailing her daily emotional and physical 
struggles.  The film also charts where science and politics 
intersect.  Visit http://www.cufsf.org/www.cufsf.org to see the trailer.


Cody Unser said, I hope my story will shed some light 
on what it is really like to live with paralysis.  I also hope that 
the film will lead to more research dollars so that paralysisnot 
just for me, but for all people, will become a treatable and 
reversible diagnosis. I want to thank all the people who have made 
these Oscar Qualifying Runs possibleespecially Don Chalmers Ford, 
the Off Shore Super Series Powerboat Racing Association, Johns 
Hopkins Project Restore, and the Al Unser Jr. Children's Charities.


   Chris Schueler, Director/Producer of CODY said, Cody 
Unser has become an inspiration to everyone associated with the 
production.  Despite her paralysis, Cody has not only remained 
remarkably independent but has made some amazing accomplishments.  I 
am honored that Cody was willing to let our film crew into her life 
and I am confident the documentary will forever change how the public 
views people who are not disabled but rather differently abled.


Friday April 17- Thursday April 23, 2009
Laemmle's Town Center 5
17200 Ventura Blvd, Encino, CA 91316
818-981-9811

Friday May 1- Thursday May 7th, 2009
IFC Center in New York
323 Avenue of the Americas
New York, NY 10014
(212) 924-7771

RE: [TMIC] Embryonic Stem Cell Discussion

2009-04-01 Thread Jim Lubin


Oh I was mistaken, sort of. There is something called Parthenote Stem Cells

Parthenotes are eggs that have been artificially activated without 
sperm. This happens spontaneously in nature in all mammals, including 
humans, but the process is not well understood. If successfully 
activated, the egg undergoes early cell divisions similar to 
fertilized eggs, but cannot give rise to an offspring. Parthenotes 
can, however, give rise to pluripotent stem cells, as has been 
demonstrated for several animal species, including monkey and mouse. 
No human parthenote stem cells exist at this time, which is why it is 
a current focus of Bedford Foundation scientists.


http://www.bedfordresearch.org/stemcell/stemcell.php?item=stemcell_parthenotes


At 05:07 PM 3/26/2009, Jim Lubin wrote:

No, stem cells can not be extracted from an unfertilized egg alone.

At 12:35 PM 3/26/2009, Tracey L. Black wrote:
This may sound like a really stupid question, and I haven't 
researched it, but if I wanted to, could I donate some of my eggs 
to be used in stem cell for my daughter?



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] Suprapubic catheter

2009-03-29 Thread Jim Lubin

Has anyone here have a Suprapubic catheter? Someone with TM (a male) 
wrote me asking about getting one and has questions.




Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Embrionic Stem Cell Discussion

2009-03-27 Thread Jim Lubin

I never expected to change anyones views on this topic, just explain 
how I came to believe the way I feel.

Jim

At 07:31 PM 3/26/2009, Lawrence King wrote:

Jim,

I have even more respect for your view now that you have explained 
it in such a personal way.   I haven't changed my own view but I 
love getting to wear the other persons moccasins (I'm Christian and 
my best friend is Buddhist).   I'm thrilled at how well this 
discussion has gone (can we talk about race next... just kidding)


Mindy the Artist



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] stem cell (OT?)

2009-03-26 Thread Jim Lubin

Sure I would consider treatment from non hESC sources.

As for the funding act that was signed into law. No funds in this act
(which funds everything in the government between now through Sept
30, 2009) may be used for embryos for research purposes or
research in which a human embryo or embryos are destroyed, discarded,
or knowingly subjected to risk of injury or death (which is what
happens when stem cells are removed from an embryo)

It then defines the term human embryo as any organism that is
derived by fertilization or any other means from one or more human
gametes or human diploid cells. (the egg and sperm are human
gametes). That would exclude the so called leftover embryos from
federal funded research.

So just 2 days after having a big ceremonial signing of his executive
order to allow federal funding he signs a bill that restricts the
funding once again, at least through the end of the fiscal year.

At 08:18 PM 3/25/2009, Lawrence King wrote:

Jim,
I do respect your beliefs and your extensive knowledge regarding
stem cell research. I'm guessing you would consider treatment
derived from adult lines but might decline so called embryonic
lines. I'm sure we'd all be relieved if adult stem cells turned
out to be the best solution after all.

As for the Omnibus Appropriations act I admit my BFA degree doesn't
help me understand the legal language used in such bills. Could you
interpret it in common language?

Mindy the Artist

On Mar 25, 2009, at 10:27 PM, Jim Lubin wrote:

I know I am in the minority in my believes, but I do not believe in
IVF that creates embryos to begin with. If these embryos were not
being created to then there would be no so called leftover embryos.

Are you aware that President Obama signed H.R. 1105, the Omnibus
Appropriations Act, 2009, on March 11th (2 days after signing the
executive order to lift the ban on federal funding of embryonic
stem cells) that contained the following:

The text of Section 509 of the Omnibus Appropriations Act, 2009,
reads as follows:

SEC. 509. (a) None of the funds made available in this Act may be
used for(1) the creation of a human embryo or embryos for research
purposes; or (2) research in which a human embryo or embryos are
destroyed, discarded, or knowingly subjected to risk of injury or
death greater than that allowed for research on fetuses in utero
under 45 CFR 46.204(b) and section 498(b) of the Public Health
Service Act (42 U.S.C. 289g(b)). (b) For purposes of this section,
the term ''human embryo or embryos'' includes any organism, not
protected as a human subject under 45 CFR 46 as of the date of the
enactment of this Act, that is derived by fertilization,
parthenogenesis, cloning, or any other means from one or more human
gametes or human diploid cells.

Guess he should have READ the Omnibus Appropriations Act, 2009
before signing it into law...

I followed the link on
http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPublicReview/http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPu
blicReview/

to see if it was true, sure enough, it's in there

http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdfhttp://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf

If you want to read it yourself, pg 128, lines 9 - 24. there are 2
pages inserted so it is page 130 of the pdf.

At 05:25 PM 3/25/2009, Lawrence King wrote:
whether you consider them blastocysts or babies, the couples who
conceived them have already made the decision that they will never
be born and have a meaningful purpose outside the petri dish. I
truly believe the parents should have the right to decide the
fate regarding the use of their unused fertilized egg's stem cells as well.

Jim Lubin
mailto:jlu...@eskimo.comjlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Jim Lubin
jlu...@makoa.org
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] stem cell (OT?)

2009-03-26 Thread Jim Lubin

Sure I would consider treatment from non hESC sources.

At 08:18 PM 3/25/2009, Lawrence King wrote:

As for the Omnibus Appropriations act I admit my BFA degree doesn't
help me understand the legal language used in such bills. Could you
interpret it in common language?

Mindy the Artist

On Mar 25, 2009, at 10:27 PM, Jim Lubin wrote:

The text of Section 509 of the Omnibus Appropriations Act, 2009,
reads as follows:

Guess he should have READ the Omnibus Appropriations Act, 2009
before signing it into law...

I followed the link on
http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPublicReview/http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPu
blicReview/

to see if it was true, sure enough, it's in there

http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdfhttp://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf

If you want to read it yourself, pg 128, lines 9 - 24. there are 2
pages inserted so it is page 130 of the pdf.

Jim Lubin
mailto:jlu...@eskimo.comjlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] stem cell (OT?)

2009-03-26 Thread Jim Lubin


Here it is. Worth watching.

Stem Cells and Neuroregeneration  The Future
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
http://video.google.com/videoplay?docid=-25453169972889015
http://www.myelitis.org/rnds2008/stem_cels_MN_and_GRP_2008.pdf

At 09:27 AM 3/25/2009, jrushton wrote:
Thanks, Debbie!!  If you don't watch/listen to anything else from 
that Symposium, you should truly look for that part!  It is SO 
important because we have ALL been led astray and he makes it so 
easy to understand and he is the expert along with his staff!!!  He 
is also one of the main ones trying so hard to get this passed in 
order to save those like you and I from living with our 
disabilities.  Had it been available at our onset, we may have had a 
chance to be one of the 'lucky' ones and had this simple procedure 
done.  I wish there was a way to show just that one section of the 
Symp...  Is there, Debbie?  It is so misunderstood that there will 
be those that could be helped but will refuse only because of the 
misunderstanding.  Jeanne in Dayton



---Original Message---

From: mailto:dca...@earthlink.netDeborah Nord Capen
Date: 3/25/2009 11:10:57 AM
To: 
mailto:gbthomas8...@sbcglobal.netgbthomas8...@sbcglobal.net; 
mailto:westg...@interlog.comWestgold; 
mailto:adis...@yahoo.comAmanda 
Diskey;  mailto:tmic-list@eskimo.comtmic-list@eskimo.com

Subject: Re: [TMIC] stem cell (OT?)

I will make just a short statement regarding this, as I do not wish 
to become involved in a debate.  Dr. Kerr has stated in all of his 
talks that the BIGGEST mistake in the very beginning was to even 
give it the name embryonic stem cells.  They are NOT 
embryos.  They are NOT aborted fetuses.  They are blastocysts - 
only two cells that could not ever survive outside of a petri dish 
on their own.  Because the scientists made this mistake in the 
beginning of giving it the name embryonic stem cell, all of the 
right-to-life people came out and attacked this research from the git-go.


If you view the talks from all of our symposia at 
http://www.myelitis.org/events.htmhttp://www.myelitis.org/events.htm 
and listen carefully to Dr. Kerr's talks on stem cell research, you 
will have better knowledge of this.


Regarding the idea of going out of the country to receive 
treatments, Dr. Kerr has also discussed this.  The research is 
there, but the follow-up on the patients is lacking, so they have no 
record of how the patients did AFTER they left the country to go back home.


Take care,
Debbie



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Embrionic Stem Cell Discussion

2009-03-26 Thread Jim Lubin

They are just going to throw those unused blastocysts away only 
because someone is making the choice to do so. After they are created 
they remain frozen indefinitely until a decision is made by someone 
to remove them from their frozen state.


I've seen the argument be made that they are going to die anyway so 
why not use them to help others, such as organ donation. I started 
thing about that reasoning a few years ago. As someone who is only 
being kept alive by a ventilator breathing for me I began thinking 
that someone could decide that if I was taken off the ventilator I 
would die anyway so why not use my organs to better someone else's 
life. Someone might decide that my heart, my liver, my lungs would be 
better used by someone else who might be more important or more 
productive, less of a burden cost wise, to society. I am not an organ donor.


Remember the Terri Schiavo case in 2005? It was a big topic on the 
vent-users list. Her husband claimed she was in a Persistent 
vegetative state, her family said she was not. The media kept saying 
they want to remove her from life support. She was not on life 
support, she had a feeding tube. Big difference. A ventilator is life 
support. Her feeding tube was removed and she was starved to death 
because nutrition was withheld. It was very scary to everyone who is 
on life support they way people were fighting to get her feeding tube 
removed. If people felt so strongly about her being removed what about us?


I believe that human life begins at conception and that those 
blastocytes should be protected until natural death. Use them what 
they were created for or keep them frozen (i.e. on life support). I 
don't think these blastocytes should have been created in the first 
place, if a couple can't have a baby without intervention then it's 
not meant to be. That's just what I believe. Obviously it's legal so 
the world doesn't operate the way I believe.


Jim

At 10:24 AM 3/26/2009, Westgold wrote:
They just throw those unused blastocytes in the garbage, they end up 
in some medical waste dump somewhere.  Would you rather than that, 
than see those cells being used to help cure a lot of horrible 
diseases?  You say that you support organ donation -- isn't giving 
these blastocytes a chance to help save somoene's life similar to 
organ donation?  Don't you think they would rather do some good with 
whatever life they have, rather than just be thrown in a dump?



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: Fw: [TMIC] stem cell (OT?)

2009-03-25 Thread Jim Lubin

The problem I have with defining life as Gunny has as not beginning 
until 28 days after conception (the joining of the male sperm and the 
female egg) is that once conception occurs the zygote contains all of 
the genetic information (DNA) necessary to become a child. Half of 
the genetic information comes from the mother's egg and half from the 
father's sperm. The zygot continues to divide, creating an inner 
group of cells with an outer shell. This stage is called a 
blastocyst. The inner group of cells will become the embryo, while 
the outer group of cells will become the membranes that nourish and protect it.


To me it makes sense the life begins at conception, as a single 
cell zygote, since at that point it contains everything to make a 
unique, individual and continues to divide on it's own. It happens 
without brain.


Embryonic stem cell come from the blastocyst stage 45 days post 
fertilization, at which time they consist of 50150 cells.


Every biology reference I have found talks about the beginning of 
life being the union of the two gametes, the male and female 
reproductive cells of any species.


Jim

I suggest reading, Declaration On The Production And The Scientific 
And Therapeutic Use Of Human Embryonic Stem Cells

http://www.vatican.va/roman_curia/pontifical_academies/acdlife/documents/rc_pa_acdlife_doc_2824_cellule-staminali_en.html




- Original Message -
From: mailto:bgunny7...@aol.combgunny7...@aol.com
To: mailto:gbthomas8...@sbcglobal.netgbthomas8...@sbcglobal.net
Sent: Wednesday, March 25, 2009 11:18 AM
Subject: Re: [TMIC] stem cell (OT?)

In a message dated 3/25/2009 11:06:05 AM Eastern Daylight Time, 
mailto:gbthomas8...@sbcglobal.netgbthomas8...@sbcglobal.net writes:
Our former president, George W. Bush, so direspectfully referred to 
on this list as dumdum, was simply against the use of our tax 
money for embryonic stem cell research in consideration for those 
opposed, on moral grounds, to the use of aborted fetuses. Stem cell 
research  was not stopped.  It has widely been proclaimed  (even on 
this list) that adult stem cell research has actually been more 
successful than embryonic cell research


Not necessarily aborted fetus's. Embryonic stem cells can be grown 
in a petri dish simply by marrying a male sperm with a female egg. 
It has nothing to do with an abortion at all. Adult stem cells have 
already been programmed, which are taken from an adult human, to 
make that persons body. When taken, they are cleaned by a process 
known as plasma pheresis, then reinjected into that same person. An 
embryonic stem cell has NOT been programmed to make anything yet. It 
can be coaxed to do so where an adult cannot. An embryo is 
considered just that because it does not become a fetus until it is 
infused with blood. That process doesn't happen until twenty eight 
days after conception, and, it has no brain. Taking that into 
consideration, it is not alive. It can become so if implanted into a 
female uterus, but not until. So, in all actuality, it just sits in 
that petri dish doing absolutely nothing. I hope this gives you 
better insight as to what an embryonic stem cell is.


Gunny



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] stem cell (OT?)

2009-03-25 Thread Jim Lubin

The text of Section 509 of the Omnibus Appropriations Act, 2009,
reads as follows:

Guess he should have READ the Omnibus Appropriations Act, 2009
before signing it into law...

I followed the link on
http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPublicReview/http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPu
blicReview/

to see if it was true, sure enough, it's in there

http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdfhttp://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf

If you want to read it yourself, pg 128, lines 9 - 24. there are 2
pages inserted so it is page 130 of the pdf.

At 05:25 PM 3/25/2009, Lawrence King wrote:
whether you consider them blastocysts or babies, the couples who
conceived them have already made the decision that they will never
be born and have a meaningful purpose outside the petri dish. I
truly believe the parents should have the right to decide the fate
regarding the use of their unused fertilized egg's stem cells as well.

Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] Rampathon

2009-02-02 Thread Jim Lubin



Rampathon, a program of the Master Builders Care Foundation and the 
Remodelors Council, builds free wheelchair ramps for disabled 
low-income homeowners in King and Snohomish counties (WA). Since 
1993, Master Builders Association members have built more than 200 
free wheelchair ramps for community neighbors in need.


For more information, contact the Master Builders Care Foundation at 
(425) 451-7920.

http://Rampathon.com



Jim Lubin
jlu...@eskimo.com
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] 2009 College Scholarships for Students with Parents with Disabilities

2009-01-17 Thread Jim Lubin



Please post and distribute widely.


2009 College Scholarships for Students with
Parents with Disabilities Announcement

All application materials must be completed and postmarked by Monday 
March 16, 2009.


Through the Looking Glass and its National Center for Parents with 
Disabilities and their Families are pleased to announce new 
scholarships specifically for high school seniors and college 
students who have parents with disabilities.  These scholarships are 
part of Through the Looking Glass' new federal grant  (New National 
Center for Parents with Disabilities and their 
Familieshttp://lookingglass.org/ncpd/index.php). Please note that 
these are new awards and have different application procedures than 
in the past.  There are two separate scholarship awards, and each has 
separate eligibility requirements:


1. High School Seniors.  To be eligible, a student must be a high 
school graduate (or graduating senior) by Summer 2009, planning to 
attend college in Fall 2009 and have at least one parent with a 
disability. Five separate $1000 awards will be given out in Fall 
2009. Individuals may submit only one application per award period.


2. College Students. To be eligible, a student must be currently 
enrolled in a college or university, be 21 years of age or younger as 
of  March 16, 2009, and have at least one parent with a disability. 
Five separate $1000 awards will be given out in Fall 2009. 
Individuals may submit only one application per award period.


Selection criteria for all scholarships include academic performance, 
community activities and service, letters of recommendation and an 
essay describing the experience of growing up with a parent with a disability.


These Scholarships are also part of a research study on young adult 
children of parents with disabilities.  As explained in the Consent 
Form in the Application, you may be willing to participate in an 
optional survey about young adult children of parents with 
disabilities.  The additional information you submit on this survey 
will not affect your scholarship chances and will not be disclosed to 
anyone outside the project researchers; all identifying information 
will be removed.  If you consent to participate in this optional 
survey, we will email you the survey after we have received your 
completed application.



Thanks,

Scholarships Coordinator
Through the Looking Glass

The National Center for Parents with Disabilities and their Families
2198 Sixth Street, Suite 100
Berkeley, CA 94710
(800) 644-2666 (voice)
(800) 804-1616 (TDD/TTY)
FAX: (510) 848-4445

Website: 
http://www.lookingglass.orghttp://www.lookingglass.org//http://www.lookingglass.org/

Re: [TMIC] Holiday Gifts that Give Back

2008-11-17 Thread Jim Lubin

I should also mention GoodShop by GoodSearch. Some stores pay a 
higher percentage through there.

http://www.goodsearch.com/?charityid=607112

For Amazon.com, use this link http://astore.amazon.com/myelitis
or click the Amazon graphic on this page http://www.myelitis.org/store.htm
it pays a higher percentage, 6% on most items.


At 07:39 PM 11/16/2008, L T CHERPESKI wrote:

Hi Jim,

I'm glad you posted this reminder.  For the last 2 weeks, at my 
leisure, I have been Christmas and Birthday shopping through 
iGive.  It's so convenient and most of all it benefits the TMA!


Take care Jim

Linda in Eagle, ID

- Original Message -
From: mailto:[EMAIL PROTECTED]Jim Lubin
To: mailto:tmic-list@eskimo.comtmic-list@eskimo.com ; 
mailto:[EMAIL PROTECTED][EMAIL PROTECTED] 


Sent: Sunday, November 16, 2008 6:04 PM
Subject: [TMIC] Holiday Gifts that Give Back

Why brave the holiday crowds at the traditional shopping malls when
you can shop at all your favorite brand name stores like Pottery
Barn, Lands' End, the GAP, Best Buy, and eBay all from the comfort of
your home computer while at the same time benefiting the Transverse
Myelitis Association?

Shop through http://www.iGive.com/tmahttp://www.iGive.com/tma When 
you shop at any of over

700 participating stores, a portion of each purchase comes back to us
in the form of a donation check. Register at iGive, shop at your
favorite stores and choose us as your chosen organization. It is free
for you, free for us, and you pay the same (or less!). Save money,
save time, and send gifts that give twice. What could be better than
that? See for yourself! Click here 
http://www.iGive.com/tmahttp://www.iGive.com/tma and start shopping!

[TMIC] DVDs of the 2008 Symposium

2008-11-16 Thread Jim Lubin



You can order the 13 dvd set of every presentation from the 2008 RND 
Symposium for $85 + $6 shipping.


http://www.myelitis.org/rnds2008/RNDS2008-orderform.pdf

The videos can also be viewed online through the links on this page at no cost.
http://www.myelitis.org/rnds2008/index.htm

[TMIC] Holiday Gifts that Give Back

2008-11-16 Thread Jim Lubin

Why brave the holiday crowds at the traditional shopping malls when 
you can shop at all your favorite brand name stores like Pottery 
Barn, Lands' End, the GAP, Best Buy, and eBay all from the comfort of 
your home computer while at the same time benefiting the Transverse 
Myelitis Association?


Shop through http://www.iGive.com/tma When you shop at any of over 
700 participating stores, a portion of each purchase comes back to us 
in the form of a donation check. Register at iGive, shop at your 
favorite stores and choose us as your chosen organization. It is free 
for you, free for us, and you pay the same (or less!). Save money, 
save time, and send gifts that give twice. What could be better than 
that? See for yourself! Click here http://www.iGive.com/tma and start shopping!

[TMIC] Paralympics Athletes living with Transverse Myelitis

2008-09-07 Thread Jim Lubin


Beijing Paralympics Athletes living with Transverse Myelitis

United States
Sarah Castle (Wheelchair Basketball)
http://www.olympicspirit.us/paralympics/39341_46582.htm
http://paralympics.teamusa.org/athlete/athlete/1929
Anjali Forber-Pratt (Wheelchair Track)
http://paralympics.teamusa.org/athlete/athlete/2209
http://anjaliforberpratt.com/content/about
Amanda McGrory (Wheelchair Track  Basketball)
http://paralympics.teamusa.org/athlete/athlete/2217
Kerri Morgan (Wheelchair Track)
http://paralympics.teamusa.org/athlete/athlete/2218
Steven Toyoji (Wheelchair Track  Basketball)
http://paralympics.teamusa.org/athlete/athlete/2205

Great Britain
Gordon Reid (Wheelchair Tennis)

Australia
Greg Ball (Cycling)
http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39
Madison de Rozario (Wheelchair Track)
http://www.madid.com.au/bio.htm
http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337


Watch online
http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000KEY=SPID=13327SPSID=107765

http://www.cbc.ca/sports/paralympics/

http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Symposium

2008-07-23 Thread Jim Lubin


I had a great time. Met a lot of people.

I'm putting the power point presentations online. We should have the 
videos hopefully by September. Check this page

http://www.myelitis.org/events.htm

One lady who was taking pictures has put them online here
http://www.camerabean.com/gallery/5462339_XZG6y#333954917_BuaYk

Jim

At 06:49 AM 7/23/2008, Regina Rummel wrote:

I would like to hear comments regarding the symposium in Seattle.
Anyone?



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Question - bum pain

2008-07-12 Thread Jim Lubin


Have you tried a mattress overlay?

Do a search for Isotonic topper pad. I tried one and thought it 
felt great but I sunk into it so much that it was difficult for the 
nurse to turn me.


I now use a Sierra Gel Mattress Overlay. very comfotable.

The Sierra Gel Mattress Overlay incorporates a series of gel 
bladders encapsulated between high-density polyurethane sculptured 
foam and support base. This combination creates a therapeutically 
advanced yet cost effective support surface. Optimal environment for 
prevention/treatment of pressure sores. One-Piece construction 
requires no assembly. Easy to clean, non-shear/low friction surface. 
Elastic corner straps to secure overlay to mattress. Base foundation 
is a high-density solid one-piece foam constructed core. Convoluted 
high-density polyurethane foam topper. Cover material in Unitek, a 
soft nylon urethane coated OFX non-vapor permeable material. Bladders 
contain an aqueous non-toxic gel solution. Size hospital twin. 
Components conform to CAL TECH 117 and all infection control 
standards. Medicare Reimbursable Code HCPCS EO185 applies to standard 
size. Size: 34W x 76L x 3H
In my wheelchair I use a Roho High Profile Quadtro Select Cushion. 
For me it works much better than the gel cushion. I'm in my 
wheelchair about 15 hours a day.




At 02:33 PM 7/11/2008, CANDISKALLEY wrote:

I'm wondering if any of you have the feeling as if your hip/pelvic 
bones are trying to come through your bum muscles or as if I fell on 
my bum and it is terribly bruised?  This is the only feeling I have 
on my bum other than I know when my bum is touched.


I had to do alot of sitting yesterday - driving to Dr. office, in 
the office, and drive back home.  Today my bum is so sore like it is 
bruised.  This is not the first time - it seems to happen anytime 
that I have to sit for long periods of time.  This is the only 
feeling I have in bum and it really hurts!  Pain pills do not help.


I've laid on my sides so much that they are also hurting.  I can't 
lay on my stomach because I have an ileostomy - my colon has been 
removed along with the rectum and the small intestine comes out on 
my left side of my lower abdomen, so laying on my stomach is out.


Anyone have any suggestions?

Candy K.



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] TMA Newsletter

2008-07-07 Thread Jim Lubin


Just a reminder, the newsletter is mailed to all members in the US.
It's also online at http://www.myelitis.org/newsletters/index.html
I'm still working on the web version pages but the pdf version is ready.
Jim

At 06:40 AM 7/7/2008, Lori Biehler wrote:

Hi all,
I felt so compelled to write after reading the first few pages of 
the newsletter. Normally when the newsletter arrives, it sits on my 
desk for a bit and then I slowly read through it and it takes quite 
a while for me to finish it. This time, I set it on the desk and 
this morning I decided to start reading and I couldn't put it down.

The story and the letters were so inspiring.
This TM affliction affects all of us in totally different ways, yet 
there are so many inspiring stories that we can all learn so much 
from. To imagine that a gentleman in prison was able to love and 
nurture an animal and receive so much of a loving, rewarding 
experience blows my mind! For Pauline to have found such a perfect 
match for her, is totally unbelievable! These people have come 
together and learned and grown so much from this experience, it 
makes me tear up just thinking about it all. I do wish I were better 
with the written word and could put all my thoughts and feelings 
down on paper like they all did.
For anyone out there that is on the fence about going to the 
upcoming symposium, go! It is a life changing experience and you 
will meet some of the most awesome people.
For Pauline and Sandy, the picture of Pauline and Kazu, they look so 
great together, it is one of those meant to be moments in my life. 
Thank you so much for sharing this with all of us.

Lori

[TMIC] TMA Inkjet Laser Toner Cartridge Recycling

2008-06-26 Thread Jim Lubin


Important information about the TMA recycling program.

The recycling company we had partner with since 2005 was forced to 
suspend our program due to rising shipping cost. They will not 
process cartridges received after June 30, 2008. If you have any of 
the baggies do not use them anymore.


Thank you to everyone who has been participating. To date the 
Transverse Myelitis Association has received $9694 from recycling 
toner cartridges and inkjet cartridges to be used toward research for 
and education of neuroimmunologic diseases of the central nervous 
system, which include: Transverse Myelitis (TM), Neuromyelitis Optica 
(Devic's Disease), Acute Disseminated Encephalomyelitis (ADEM) and 
Optic Neuritis.


We have now partnered with the FundingFactory Recycling Program to 
collect used cell phones and empty printer cartridges so we can 
continue our fund raising efforts. For information see our web site at

http://www.myelitis.org/recycle/

Thank you for your support!

Re: [TMIC] Jim and the TMA

2008-06-07 Thread Jim Lubin

I did not start the Transverse Myelitis Association (TMA). It was 
started by Deanne Gilmur. Deanne's daughter was diagnosed with 
transverse myelitis when she was eighteen months old. Deanne started 
the Transverse Myelitis Association in 1994.


I started the Transverse Myelitis Internet Club (TMIC) in 1996. I 
also had a web page at 
http://www.eskimo.com/~jlubin/disabled/myelitis.html that I put up in 
1994 with whatever information I found. If you want to see the 
original page it is at http://www.eskimo.com/~jlubin/disabled/myelitis_old.htm


I started a web site for the TMA in 1997 on one of my AOL 
sub-accounts at http://members.aol.com/tmassocwa .I also joined the 
TMA as an board member of the non-profit organization at that time.


In 1998 the TMA obtained the Internet domain address myelitis.org. At 
that point I transferred the TMIC and web site from my personal 
accounts to the TMA.


At 05:01 PM 6/7/2008, [EMAIL PROTECTED] wrote:
 TMA supports Doug through Symposiums, and education. IDC supports 
Doug for research to end this mess. I guess I shoulda explained this better.


For some of the new comers and persons like myself who might need 
reminding, or never knew the difference...Gunny began the IDC 
(International Disability Coalition} and Jim Lubin started the TMA.


These are two separate forces with the same end in mind for we TM 
victims and we ought to be thankful they are both out there giving 
our world a hand up, lift us up and keep us noticed.  One of these 
days things are going to change for the better


Peace and Prayers,
Jude




Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Jim and the TMA

2008-06-07 Thread Jim Lubin

I did not start the Transverse Myelitis Association (TMA). It was 
started by Deanne Gilmur. Deanne's daughter was diagnosed with 
transverse myelitis when she was eighteen months old. Deanne started 
the Transverse Myelitis Association in 1994.


I started the Transverse Myelitis Internet Club (TMIC) in 1996. I 
also had a web page at 
http://www.eskimo.com/~jlubin/disabled/myelitis.html that I put up in 
1994 with whatever information I found. If you want to see the 
original page it is at http://www.eskimo.com/~jlubin/disabled/myelitis_old.htm


I started a web site for the TMA in 1997 on one of my AOL 
sub-accounts at http://members.aol.com/tmassocwa .I also joined the 
TMA as an board member of the non-profit organization at that time.


In 1998 the TMA obtained the Internet domain address myelitis.org. At 
that point I transferred the TMIC and web site from my personal 
accounts to the TMA.


At 05:01 PM 6/7/2008, [EMAIL PROTECTED] wrote:
 TMA supports Doug through Symposiums, and education. IDC supports 
Doug for research to end this mess. I guess I shoulda explained this better.


For some of the new comers and persons like myself who might need 
reminding, or never knew the difference...Gunny began the IDC 
(International Disability Coalition} and Jim Lubin started the TMA.


These are two separate forces with the same end in mind for we TM 
victims and we ought to be thankful they are both out there giving 
our world a hand up, lift us up and keep us noticed.  One of these 
days things are going to change for the better


Peace and Prayers,
Jude



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] OT/ TM List

2008-06-06 Thread Jim Lubin

Yes that was the first message posted. That was the summer I was 
stuck in bed waiting for a new wheelchair.


At 07:29 AM 6/6/2008, [EMAIL PROTECTED] wrote:
According to the archives 
(http://www.myelitis.org/tmic/#archivehttp://www.myelitis.org/tmic/#archive), 
the very first post was Aug. 18, 1996. So the list will be twelve 
years old this August. Is that correct, Jim?


Barbara H.
http://barbarah.wordpress.com/http://barbarah.wordpress.com/

In a message dated 6/6/2008 10:25:36 AM Eastern Daylight Time, 
[EMAIL PROTECTED] writes:
I think we should celebrate the birthday of the TM list. Jim 
Lubin might be able to tell us the day the list went up on the 
Internet. For all that we have

learned and shared I think we need to toast to the List
Trudy
Fairfax, Va
TM/2002






--
Get trade secrets for amazing burgers. 
http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302Watch 
Cooking with Tyler Florence on AOL Food.



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

RE: [TMIC] OT-House

2008-05-21 Thread Jim Lubin

Her liver was damaged in the accident and couldn't filter it out of 
her blood. That what caused the problem. At least that is how I 
remember it. :-)


At 07:20 AM 5/20/2008, Butcher, Bernard G (NY80) wrote:

Really? wow - I take Amantadine twice per day.
My neuro said it was for fatigue

BERNARD BUTCHER



--
From: Lynn Pouliot [mailto:[EMAIL PROTECTED]
Sent: Tuesday, May 20, 2008 10:16 AM
To: Carol; tmic-list@eskimo.com
Subject: Re: [TMIC] OT-House

It was amantadine.  A medication that helps to lessen flu symptoms 
if taken right away.  I believe it is also given to people who can't 
get a flu shot to prevent the flu.


Lynn (in RI)
- Original Message -
From: mailto:[EMAIL PROTECTED]Carol
To: mailto:tmic-list@eskimo.comtmic-list@eskimo.com
Sent: Tuesday, May 20, 2008 7:17 AM
Subject: [TMIC] OT-House

What was the medication that Amber took that caused her death?

Carol in Culver, IN



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] RE: tmic-digest Digest V2008 #218

2008-05-21 Thread Jim Lubin


That's right, it was her kidneys that were damaged in the crash.

At 10:15 AM 5/21/2008, marieke dufresne wrote:

RE: House episode where Amber dies:

It wasn't the Amantadine that killed her per se though, it is 
because it is excreted (gotten rid of) in the kidneys and her 
kidneys were damaged from the bus crash. Since her kidneys could not 
filter out the drug it built up in her system and turned toxic.


Marieke (now an RN!.. well Grad Pending License. LOL)



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] 19 year TM Anniversary - my thanks to TMIC

2008-05-21 Thread Jim Lubin

Whenever I hear this I tell people it's because the one-third of the 
people who do recover usually just want to forget it happened and 
don't join support groups. That's why you mainly read about those 
with poor outcomes.


At 03:02 AM 5/21/2008, [EMAIL PROTECTED] wrote:
When I first got my TM my family told me to please, not to go onto 
the TM website for the time being.  That the info on the site was 
not optimistic and the people on the TMIC even had some pretty poor outcomes.



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] 19 year TM Anniversary

2008-05-17 Thread Jim Lubin

On May 17, 1989, I became paralyzed from the neck down and dependent 
on a ventilator to breathe due to Transverse Myelitis. I was 21.


I woke up with a pain in my shoulder. Went to work and about 30 mins 
later the pain got very intense. I suddenly could not stand then 
stopped breathing. I later found out that my heart stopped and it 
took awhile for them to stabilize me to even transport me to the 
hospital a few blocks away. The doctors had no idea what had happened 
to me. initial thought were possibly a stroke, lyme disease, or 
Guillain-Barre Syndrome. I was in and out during that time, could not 
talk, only remember bits. After about 2 weeks I had a MRI and was 
given the diagnoses of Acute Transverse Myelitis.


I was in ICU until July 31 then transfered to rehab. In rehab I was 
treated as a person with a spinal cord injury. I had physical therapy 
which consisted of giving me range of motion and practice driving my 
sip and puff operated wheelchair. In speech therapy and occupational 
therapy I learned morse code to access the computer. I practiced 
typing and played tetris and chess. In October, I was able to leave 
the hospital for the first time and went to see the Batman movie. I 
started going to movies about once a week. The nurses always tried to 
get the other patients to go out when I went because I was the only 
vent dependent high level quadriplegic and enjoyed going out. Others 
were paraplegics, having problems dealing with their condition. I was 
in rehab until January 31st.


I've been paralyzed most of my life. Wow how time flies.




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Incredible Site

2008-04-26 Thread Jim Lubin

I bought on of her Fabric Origami Cranes. It's pretty neat. I have it 
hanging under my computer monitor so I can see it.


Jim

At 10:36 AM 4/26/2008, Deborah Nord Capen wrote:

Hello Everybody,
I am posting this message at the request of a very sweet lady that I 
met in Montana last fall.  She has TM and has such a positive 
attitude and outlook on life.


Uyen has set up a website where she has listed items that she has 
created, mostly Asian artwork and beautiful articles of 
clothing.  Any purchases made through her website, she is donating 
10% to The Transverse Myelitis Association to raise funds for 
research.  What an incredible lady!


Please take the time to check her website.
http://www.etsy.com/shop.php?user_id=5653104http://www.etsy.com/shop.php?user_id=5653104

Take care,
Debbie
mailto:[EMAIL PROTECTED][EMAIL PROTECTED]




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Seattle Symposium Hotel Reservation Number Change

2008-04-22 Thread Jim Lubin

Just to clarify the discount group rates, $199 for Wed. and Thurs. 
and then $139 for Fri. And Sat, which averages out to $169 per night 
for 4 nights.


At 11:56 AM 4/21/2008, Jim Lubin wrote:
The symposium will be held at the Redmond Marriott Town Center.  You 
can begin making your reservations at the hotel today!  To receive 
our special rate, please ask for the Rare Disorders Symposium rate 
when you call (approximately $170 without taxes).


To make your reservation at the special group rate, you need to 
contact Katina Alley, 425-498-4024, she works from 8am-4pm Monday- Friday PDT.


Email address if that is easier for the international attendees 
[EMAIL PROTECTED]


We cannot guarantee you either a room in the Marriott or the group 
rate, if you make your reservations after June 1, 2008.  The program 
will begin on Wednesday evening, July 16th and will be completed 
with the dinner banquet on Saturday evening, July 19th.


See this web site for symposium Agenda, hotel information and registration:

http://www.myelitis.org/2008SeattleSymposiumhttp://www.myelitis.org/2008SeattleSymposium

[TMIC] Seattle Symposium Hotel Reservation Number Change

2008-04-21 Thread Jim Lubin

The symposium will be held at the Redmond Marriott Town Center.  You 
can begin making your reservations at the hotel today!  To receive 
our special rate, please ask for the Rare Disorders Symposium rate 
when you call (approximately $170 without taxes).


To make your reservation at the special group rate, you need to 
contact Katina Alley, 425-498-4024, she works from 8am-4pm Monday- Friday PDT.


Email address if that is easier for the international attendees 
[EMAIL PROTECTED]


We cannot guarantee you either a room in the Marriott or the group 
rate, if you make your reservations after June 1, 2008.  The program 
will begin on Wednesday evening, July 16th and will be completed with 
the dinner banquet on Saturday evening, July 19th.


See this web site for symposium Agenda, hotel information and registration:

http://www.myelitis.org/2008SeattleSymposiumhttp://www.myelitis.org/2008SeattleSymposium



Jim Lubin
Director, Information Technology/Webmaster
Transverse Myelitis Association
[EMAIL PROTECTED]
http://www.myelitis.org
http://www.myelitis.org/HowToHelp

Confidentiality Notice: This e-mail message, including any 
attachments, is for the sole use of the intended recipient(s) and may 
contain information that is privileged, confidential and/or exempt 
from disclosure under applicable law. If you have received this 
communication in error, please immediately contact the sender and 
destroy the material in its entirety.  Thank you.

[TMIC] 2008 Rare Neuroimmunologic Disorders Symposium

2008-03-26 Thread Jim Lubin

The web site for the 2008 Rare Neuroimmunologic Disorders Symposium 
is now ready.


http://www.myelitis.org/rnds2008/http://www.myelitis.org/rnds2008/






Jim Lubin
Director, Information Technology/Webmaster
Transverse Myelitis Association
[EMAIL PROTECTED]
http://www.myelitis.org
http://www.myelitis.org/HowToHelp

Confidentiality Notice: This e-mail message, including any 
attachments, is for the sole use of the intended recipient(s) and may 
contain information that is privileged, confidential and/or exempt 
from disclosure under applicable law. If you have received this 
communication in error, please immediately contact the sender and 
destroy the material in its entirety.  Thank you.

Re: [TMIC] Need a little help!!

2008-03-25 Thread Jim Lubin



For a doctor, since there is no directory of doctors knowledgeable in 
TM, doctors affiliated with the National MS Society are suppose to be 
familiar with TM. They have a directory on their site.


http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_treatment_locationshttp://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_treatment_locations 



At 11:43 AM 3/25/2008, Robert Pall wrote:

Do any members in the New York City or New Jersey area know of a 
good Neuro who is familiar with TM and its treatments? For the past 
9 years the only neuro I have seen is Dr. Kerr (once annually). I 
think it might be beneficial to find a local neuro that I can see on 
a more regular basis or God forbid in case of an emergency.


Thanks

Rob in New Jersey

PS: I am over my very short self pity episode! Thanks to all of the 
people in the group that never fail to help !



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] A New Vision to Restore SIGHT - Friday, April 11, 2008

2008-01-29 Thread Jim Lubin



A New Vision to Restore SIGHT

Cutting edge research is helping many regain and restore lost vision.
Some of today's top scientist are ready to tell you how.
LEARN the FACTS


Sponsored by
The Greater Lebanon
Valley Lions Club

6:00 PM Friday
April 11, 2008


The Lantern Lodge
Convention Center, Myerstown PA.

Dinner Donation  -  $50/person
Orange Roughy or Pork Loin Roast

For more information
http://www.LionEvents.org


Limited seating - Reservations
must be made by March 20, 2008


Colin J. Barnstable, D.Phil.
Chairman, Neural and Behavioral Science
Penn State College of Medicine

Douglas Kerr, M.D.
Associate Professor of Neurology, Molecular Microbiology and Immunology
Director of the Johns Hopkins Transverse Myelitis Center

Thomas W. Gardner, M.D., M.S.
Penn State College of Medicine

Mark C. Maria, M.D.
Fava  Maria Eye Associates

[TMIC] A New Vision to Restore SIGHT - Friday, April 11, 2008

2008-01-29 Thread Jim Lubin



A New Vision to Restore SIGHT

Cutting edge research is helping many regain and restore lost vision.
Some of today's top scientist are ready to tell you how.
LEARN the FACTS


Sponsored by
The Greater Lebanon
Valley Lions Club

6:00 PM Friday
April 11, 2008


The Lantern Lodge
Convention Center, Myerstown PA.

Dinner Donation  -  $50/person
Orange Roughy or Pork Loin Roast

For more information
http://www.LionEvents.org


Limited seating - Reservations
must be made by March 20, 2008


Colin J. Barnstable, D.Phil.
Chairman, Neural and Behavioral Science
Penn State College of Medicine

Douglas Kerr, M.D.
Associate Professor of Neurology, Molecular Microbiology and Immunology
Director of the Johns Hopkins Transverse Myelitis Center

Thomas W. Gardner, M.D., M.S.
Penn State College of Medicine

Mark C. Maria, M.D.
Fava  Maria Eye Associates


Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] California Symposium

2008-01-28 Thread Jim Lubin

Parking for people not staying at the hotel will be $10 per car, for 
self parking (once in, once out), Valet parking is an additional $17.


http://www.myelitis.org/california2008/


At 11:15 AM 1/28/2008, Deborah Nord Capen wrote:

Hello List,
Just a reminder about the TMA California Symposium.

The symposium will be on Saturday, February 23.  It will be one day 
only.  The cost for registration is $50.00.   Our wonderful doctors 
from Johns Hopkins will be there for you to meet.  The famous 
celebrated author Allen Rucker who wrote The Best Seat In The 
House will be there to autograph your book.  If you have not yet 
purchased your book, he will be happy to sell you his newly released 
paperback version of the book, AND autograph that book as well.  If 
you have not yet met Allen, you will be in for a treat.  He is a 
really cool guy.


If you do not pre-register, the cost to register at the door will be 
$60.00.  This is because the Conference center is charging us extra 
money if we give them last-minute increased numbers to set up more 
seating and last-minute orders for more food, so I recommend that 
you either go to the website at 
http://www.myelitis.orgwww.myelitis.org and register online with 
your credit card, or print the page that you can fill out and mail 
with a check to Paula Lazzeri at the address that is on the form.


Looking forward to seeing all of you that live in the area next month!

Debbie
mailto:[EMAIL PROTECTED][EMAIL PROTECTED]
Debbie
mailto:[EMAIL PROTECTED][EMAIL PROTECTED]



Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] TMA So. California Symposium

2008-01-17 Thread Jim Lubin


Information is now setup at http://www.myelitis.org/california2008/
I setup a link to pay the registration fee using PayPal.

At 09:06 PM 1/12/2008, Deborah Nord Capen wrote:
The arrangements have been finalized, the contracts have been 
signed.  We are going to have a one-day symposium in Southern 
California!  Chitra Krishnan, Dr. Kerr, Dr. Kaplin, Dr. Pidcock, and 
Dr. Levy will all be at the Paradise Pier hotel, next door to the 
Disneyland Hotel in Anaheim, California on Saturday, February 23 for 
one day only!


We have reserved a block of rooms for those of you who want to 
travel in and spend the night to see our wonderful doctors and hear 
them speak.  The rooms are available on Friday and Saturday nights 
for $165.00 a night plus taxes.  The registration fee for the 
Saturday conference is only $50.00, which will cover the cost of the 
continental breakfast, the lunch and the meeting room.  We had to do 
a lot of negotiating to get this super price.


The details will be up on the website at 
http://www.myelitis.orgwww.myelitis.org by Wednesday, but if you 
can't wait, please email me and I can give you the details sooner.


Please, if you live near Southern California, seriously consider 
coming and meeting our doctors who have been working so hard for all 
of us to make our lives so much easier for all of us.


Take care,
Debbie Capen
mailto:[EMAIL PROTECTED][EMAIL PROTECTED]




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Living with TM videos on YouTube

2008-01-01 Thread Jim Lubin

If you scroll down to the Video Log 2 section and click on see 
more, I'm in the Hands Free Computing video done by the 
Christopher Reeves Paralysis Foundation. That one is in English but 
my segment was smaller.


http://www.youtube.com/transversemyelitis


At 05:50 PM 12/31/2007, Jenna wrote:

Wow Jim, that is so cool.  Now we need a video of you in english too!



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Living with TM videos on YouTube

2008-01-01 Thread Jim Lubin


try this link
http://www.youtube.com/profile_video_blog?user=transversemyelitis
3rd one down.

At 01:40 PM 1/1/2008, Westgold wrote:
Hi everybody.  I just went there, and Video Log 2 has somebody else 
now, a photographer talking about his TM, he didn't give his name. 
Is it someone on this list?  I didn't see the Hands-Free Computing, 
but sure would like to.  Can someone tell me how to find it?  I've 
never used YouTube before, can we search for things by name, etc?  thanks --


I pray that your all have a better year in 2008.  In Toronto we have 
a gorgeous fresh layer of clean white snow today -- looks like a 
great fresh start.

take care -- Michelle
- Original Message -
From: mailto:[EMAIL PROTECTED]Jim Lubin
To: mailto:[EMAIL PROTECTED]Jenna ; 
mailto:tmic-list@eskimo.comtmic-list@eskimo.com

Sent: Tuesday, January 01, 2008 1:34 PM
Subject: Re: [TMIC] Living with TM videos on YouTube

If you scroll down to the Video Log 2 section and click on see 
more, I'm in the Hands Free Computing video done by the 
Christopher Reeves Paralysis Foundation. That one is in English but 
my segment was smaller.


http://www.youtube.com/transversemyelitis


At 05:50 PM 12/31/2007, Jenna wrote:

Wow Jim, that is so cool.  Now we need a video of you in english too!



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org




--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.516 / Virus Database: 269.17.13/1206 - Release Date: 
1/1/2008 12:09 PM



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] Living with TM videos on YouTube

2007-12-31 Thread Jim Lubin



I started a TMA Channel on YouTube and linked video interviews of 
people living with TM.


http://www.youtube.com/transversemyelitishttp://www.youtube.com/transversemyelitis 



If anyone feels so inclined to make one, let me know so I can link it.

There are video interviews made for Project Restore.

The video interview I did for a Korean science and technology tv 
show. They came to my house 2 years ago and filmed me using my 
computer and wheelchair.

[TMIC] GivingExpress® program from American Express.

2007-11-10 Thread Jim Lubin

Earn double Membership Rewards® points when you 
donate online through the GivingExpress® program from American Express.


American Express Cardmembers who are enrolled in 
the Membership Rewards program can earn double 
Membership Rewards points by making their 
contributions online at the GivingExpress program through December 31, 2007.


http://amex.justgive.org/nonprofits/donate.jsp?ein=91-1780467

Terms and Conditions (MUST BE INCLUDED IN ANY PRINTED COMMUNICATION)

* Terms and Conditions for the Membership Rewards 
program apply. Visit membershiprewards.com/terms 
for more information. Participating partners and 
available rewards are subject to change without 
notice. Bonus Points: To be eligible to earn 
bonus points, you must be enrolled in the 
Membership Rewards program at the time of 
purchase and you must charge your purchase on an 
eligible, enrolled American Express Card. Bonus 
points will be credited to your Membership 
Rewards account 6-8 weeks after your first 
purchase appears on your monthly billing 
statement. 50,000 maximum bonus points per account. Bonus ID 0549


Please note: American Express will deduct a 
transaction fee of 2.25% from your donation to 
cover processing costs. The charities will 
receive your donation amount, minus the 2.25% 
American Express processing fee, from our partner 
JustGive. This transaction fee is similar to or 
less than the processing fee the charity would 
pay if you were to charge your donation with your 
American Express Card through any other means 
(i.e., over the phone to the charity, through the 
charity's website, etc.). You will not be charged 
any additional fees for using the American 
Express Donation Site and your dollar donations 
are tax deductible to the extent allowed by law.

[TMIC] IMPORTANT REMINDER

2007-10-30 Thread Jim Lubin

I received an email from someone who wrote I am distressed to see 
that your archives are public and anyone can search my name and come 
up with some very private medical information.


Do not post personal information that you don't want the world 
knowing. The message archive is searchable by anyone with Internet access.


The archive is at http://www.mail-archive.com/tmic-list@eskimo.com/

If you want a message deleted send me the page url
example: http://www.mail-archive.com/tmic-list@eskimo.com/msg06410.html
and I will try to get it deleted.

The only alternative option is to remove the archive completely. Keep 
in mind that many people found help by search for their own symptoms 
and finding a message someone else had posted. That was the reason 
the archive has always been publicly searchable.




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

RE: [TMIC] Dear Group

2007-07-14 Thread Jim Lubin


At 11:40 AM 7/12/2007, Tim Holder (Work) wrote:
God never makes a mistake.  I don't believe he sent this to 
us.  But, I am convinced that it filtered through His fingers.  He 
allowed it to happen for a specific reason.  If there were not a 
point to this disease in your (my) life for His glory, it wouldn't 
have happened.


having TM got me to stop bitting my finger nails. :)



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] Fwd: Southwest Virginia Support Group

2007-07-08 Thread Jim Lubin






The Southwest Virginia Support Group
Transverse Myelitis Association

Will meet at Shoney's Restaurant
Dublin, Virginia   I-81 Exit 98
Saturday. July 14, 2007
2:30 p.m.

Please contact
Drema O'Dell  group leader
mailto:[EMAIL PROTECTED][EMAIL PROTECTED]
540-980-0286

[TMIC] SW Neuroimmunologic Disorders symposium

2007-06-20 Thread Jim Lubin

I just put the video presentations online from the Southwest 
Symposium on Neuroimmunologic Disorders, April  26-28, 2007. It was 
sponsored by The Cody Unser First Step Foundation  The New Mexico 
Governor's Commission on Disabilities.

The videos are linked on http://www.myelitis.org/swnds2007/

1
Conference Goals and Welcome Address
Paul B. Roth, MD, and Leslie A. Morrison, MD
University of New Mexico, Albuquerque, NM


2
Rare Neuroimmunologic Disorders: An Overview
Benjamin M. Greenberg, MD MHS
Assistant Professor, Department of Neurology, Johns Hopkins School of Medicine
Co-Director, Johns Hopkins Transverse Myelitis Center


3
Accute Therapies: Steroids, IVIG, Plasma Exchange, Cytoxan
Benjamin M. Greenberg, MD, MHS
Johns Hopkins University. Baltimore, MD


4
Distinguishing Pediatric MS from TM and ADEM
Gregory N. Barnes, MD, PhD
Assistant Professor of Neurology and Pediatrics
Divisions of Child Neurology and Epilepsy
Vanderbilt University School of Medicine


5
Conception, Pregnancy, and Labor in Women with Demyelinating Disease
Benjamin M. Greenberg, MD, MHS
Donna Chattin, RN
Johns Hopkins University, Baltimore, MD


6
Clinical Significance of Demyelinating Lesions of the Central Nervous System
Elaine S. Edmonds, MD, PhD
University of New Mexico. Albuquerque. NM


7
Stem cell technologies - Current state, future promise.
Oswald Steward, PhD
Director of Reeve-Irvine Research Center at UCI


8
Depression in Tranverse Myelitis and Multiple Sclerosis
Adam I. Kaplin, MD, PhD
Johns Hopkins University, Baltimore, MD


9
Rare Presentations of Multiple Sclerosis
Corey C. Ford, MD, PhD
University of New Mexico, Albuquerque, NM


10
Concepts Neuroprotection and Neuro Repair
Corey C. Ford, MD, PhD
University of New Mexico, Albuquerque, NM


11
Moderated Discussion
Oswald Steward, PhD; Gregory N. Barnes, MD, PhD; Adam I. Kaplin, MD, 
PhD; Leslie A. Morrison, MD; Chitra Krishnan, MHS



12
Transverse Myelitis: Clinical and Immunologic Considerations
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD



13
Stem Cells and Neurologic Diseases
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD


14
Pediatric ADEM and Transverse Myelitis
Leslie A. Morrison, MD
University of New Mexico, Albuquerque, NM


15
Rehabilitation Pathways to Pain Management
Denise Taylor, MD
University of New Mexico, Albuquerque. NM


16
The Role of Primary Care Physician in Rare Neuroimmunologic Disorders
Alyson P. Thal
Corrales Family Practice, Corrales, NM


17
Predicting Neuromyelitis Optica in Patients with Transverse Myelitis
Biljana Berench, MD, MPH
Department of Neurology, University of New Mexico


18
Evaluation and Treament of Sexual Dysfunction in Neuroimmunologic Disorders
Adam I. Kaplin, MD, PhD
Johns Hopkins University, Baltimore, MD


19
Arts  Athletics Beyond Limits
Junior Wheelchair Sports, Recreation and Arts Programs
The UNM Carrie Tingley Hospital Rehabilitation Team
Carrie Tingley Hospital, Albuquerque. NM


20
Promoting a Lifestyle of Health and Fitness in Children and 
Adolescents with Motor Impairments

The UNM Carrie Tingley Hospital Rehabilitation Team
Carrie Tingley Hospital, Albuquerque. NM


21
Kennedy Krieger Institute, Baltimore, MD


22
Neurorestorative Principles of Rehabilitation
John W. McDonald, III, MD, PhD
Kennedy Krieger Institute, Baltimore, MD



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] The miracle cure that stems from self generated cells

2007-06-14 Thread Jim Lubin




http://www.newkerala.com/news5.php?action=fullnewsid=38849http://www.newkerala.com/news5.php?action=fullnewsid=38849 


The miracle cure that stems from self generated cells

By T. S. V. Hari, Chennai, June 14: People who suffer from complete 
paralysis of the lower half of the body could get a second lease of 
life, thanks to a path breaking stem cell treatment being offered by 
a hospital here.


The Lifeline Multi-Speciality Hospital (LMSH) has nearly perfected 
the art of making paraplegics walk again and managed to instill many 
of them with the confidence to lead a normal life.


The Lifeline Institute of Stem Cell Therapy and Research (LISTR) - 
the research and development division of LMSH - has discovered that 
autologous (self generated) bone marrow fluids containing stem cells 
can achieve what was deemed impossible in medical history by 
technologically advanced countries like the US.


This can lead to stem cell treatments sans the controversial flip 
side of stem cells harvested from stillborn foetuses


Not long ago, Hollywood star Christopher Reeves, who had portrayed 
Superman, had spent the last part of his prematurely snuffled out 
life bound to a wheelchair because his paralysis couldn't be cured.


Using the money provided by the late movie icon to improve the lot 
of paraplegics throughout the world, we have turned four ordinary 
people who faced a dismal future into supermen, said J. S. Raj 
Kumar, the chairman of LMSH.


All four of these men had no hope after having been rendered immobile 
by accidents and rare medical disorders.


Now one of them, 25-year-old Akbar Ali, who was brought to LMSH in a 
coma on a stretcher from Dubai last year, betrays virtually no sign 
of the debilitating condition. Encouraged by his complete recovery, 
his parents are now searching for a bride for him.


We harvest between 100 and 200 ml of stem cells in fluid form from 
the afflicted patients themselves and inject them into their spinal 
cords carefully to bring about this 'miracle' that has been cleared 
by statutory health bodies not only in India, but also in all major 
premier medical institutions abroad including the US.


We have the highest global rate of success of 34 percent after 
sustained treatment to 50 select patients, said Raj Kumar.


Two 19-year old patients - Prabhdeep Singh, a musician from Punjab 
who lost the power to move after a motor accident, and Srinivas, an 
aspiring accountant from Chennai who suffered from Transverse 
Myelitis (a devastating inflammation of the spinal cord that can 
cause irreversible paralysis), have also found hope.


I had no feeling from the chest downwards after the mishap. Now I 
can walk with a little help, said Singh, whose legs were encased in 
braces and moved with the assistance of attendants and a metal contrivance.


Srinivas has regained bladder control and is able to feel sensations 
in the lower part of his abdomen.


In spite of preferring younger patients who will heal quicker and 
better, Raj Kumar's treatment has worked wonders for 46-year-old A. 
R. K. Reddy, an engineer who was employed in a multinational company 
till he fell on his back from a height of 11 feet about two months 
ago. He suffered multiple fractures to his lumbar spine and was 
rendered completely immobile.


Today, after stem cell therapy, Reddy is able to stand and move using 
a walker, and has regained bladder control and sensation in the lower body.


The stem cell therapy isn't the last horizon for paraplegics alone.

LISTR, which has tied up with Japan's Nichi Centre for Regenerative 
Medicine (NCRM), has found that stem cell cure can possibly be a 
viable alternative for liver transplants and cardiac bypass surgeries.


Stem cell therapy can cure disabled livers, rejuvenate tired hearts, 
and make the pancreas of chronic diabetes patients secrete insulin to 
reduce dependency on injections and pills for a lifetime, said Raj Kumar.


Another wonderful aspect of the treatment is its cost. Only about 
Rs.150,000 is needed for stem cell therapy while other regular 
treatments like transplants can cost up to twenty times more but have 
a success rate of below 15 percent.


Of the 50 patients under intensive treatment, 17 have shown marked 
improvement. Inspired by their recovery, another 100 are in the queue 
to benefit from the miraculous stem cell therapy.


--- IANS

Re: [TMIC] Grocery delivery for all!

2007-06-13 Thread Jim Lubin


Here's the link to Groceries at Amazon.com using the TMA code.

http://www.amazon.com/b?%5Fencoding=UTF8node=16310101tag=myelitislinkCode=ur2camp=1789creative=9325

or even easier to remember
http://www.myelitis.org/store.htm


At 12:37 PM 6/13/2007, Westgold wrote:
Hello everybody -- I knew I could find something to help 
*everybody*, I just had to do a little thinking.  Forgive me, I 
forgot that I represent this company, I could have given you this 
link when we first started talking about this, but it slipped my 
almost-60 mind sigh


Everybody, no matter where you live, can get groceries through this 
link... please feel free to pass it along to your friends.  Or you 
can place orders for others who do not have a computer.


http://www.amazon.com/b?%5Fencoding=UTF8node=16310101tag=shoppingangel-20linkCode=ur2camp=1789creative=9325

They carry 22,000 non-perishable items, and shipping is free.  You 
might still be able to find a fruit store or butcher shop in your 
city who will bring you perishables, but at least you won't have to 
lose weight for lack of Special K, canned fruit, tuna, canned meats, etc.


I have to be honest, I do rep this company, and will make $3 each 
time someone opens an account -- if you would rather not go through 
my link, just go to Amazon.com and click on Groceries.


Take care everybody -- thanks -- Michelle



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Pain or no Pain

2007-06-11 Thread Jim Lubin

I had awful pain the first 2 months, so much so that I wanted to die 
so the pain would end. Decreased pain the next 3 month. Less pain the 
next 6 months or so, then none since. I haven't had any recovery 
since the first 5 months either.


Jim

At 07:34 AM 6/11/2007, Regina Rummel wrote:
Most of us suffer awful pain.  But is it possible that some of us do 
not have any pain?  I don't mean little aches here and there, I mean 
real, excruciating pain.

Can you be diagnosed with TM, and have no pain?  Is that possible?
Regina



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Metamucil

2007-06-05 Thread Jim Lubin


Michelle,
Where did you learn that from and can you tell me where I can read 
that? I have been taking Metamucil at the same time I take my 
medications and vitamins for the pass 18 years, ever since I was in rehab.


At 05:56 PM 6/1/2007, Westgold wrote:
The only problem with taking Metamucil is that you can't take it 
within a couple hours of any medication or supplements.  Anything 
that's in your stomach when you take it can get caught up in it and 
get swept out of the body.  So you have to arrange your schedule so 
you take it either an hour before or a couple hours after any 
medications. (And if you need to lose weight, take it right after 
you eat, it will sweep many calories out with it.)



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] Metamucil

2007-06-05 Thread Jim Lubin


That's very interesting! Guess I better read the label. Thanks for the info!

At 05:11 PM 6/5/2007, Westgold wrote:
Hi Jim -- It states right on the bottle not to take within 2 hours 
of any meds -- and I had a dr who told me that also about 20 years 
ago.  If you put some in a glass of water and watch what happens to 
it over the next half hour --- you'll see how it could grab anything 
else that's in your stomach at the same time and enrobe it in cement 
and whisk it out of there undigested. (Drop a vitamin pill into the 
test glass at the same time  see.)  That's why it helps people lose 
weight if you take it right after a meal, it grabs some of the 
food.  Ask your dr about it.  I think you'll find that you get more 
of your medication  vitamins if you take them at some other time.


take care -- Michelle
- Original Message -
From: mailto:[EMAIL PROTECTED]Jim Lubin
To: mailto:[EMAIL PROTECTED]Westgold ; 
mailto:[EMAIL PROTECTED][EMAIL PROTECTED] ; 
mailto:tmic-list@eskimo.comtmic-list@eskimo.com

Sent: Tuesday, June 05, 2007 5:09 PM
Subject: Re: [TMIC] Metamucil

Michelle,
Where did you learn that from and can you tell me where I can read 
that? I have been taking Metamucil at the same time I take my 
medications and vitamins for the pass 18 years, ever since I was in rehab.



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

[TMIC] Visit our mall!

2007-05-12 Thread Jim Lubin



I wanted to personally tell you about a new online shopping mall that 
Transverse Myelitis Association has created as a better way to raise 
the money my group needs.


We get a percentage of anything you buy in our mall. You'll find 
hundreds of well-known stores where you can buy just about anything 
you need. And you'll find lots of sales, specials and deals you might 
only find in our mall.


Would you help me by visiting our mall today? Just click on this link 
to get there: http://www.visitourmall.com/myelitis I hope you will 
visit our mall whenever you need to buy anything.


Thanks so much,


http://www.visitourmall.com/myelitis/


Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [TMIC] TM Pregnancy

2007-04-16 Thread Jim Lubin

there's a whole section on Obstetric issues in the next journal. 
Since you asked now, you can read it online here: 
http://www.myelitis.org/newsletters/journal-2-toc.htm



At 03:55 AM 4/16/2007, Jill Z wrote:

Hi Everyone,
I was wondering if there was anyone out there that has been pregnant 
and had a child since they've had TM?  Was your pregnancy 
normal?  Did you have any times where the TM got worse?  I have a 
pretty mild case and am contemplating 1 more child.

Thanks for all your help!
Jill


http://www.greatamericanbeanbag.comwww.greatamericanbeanbag.com



Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

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