Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics Joyce

Love >> Jeanie >> free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer ce

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics hi all

tto: >> Faith and Pills >> With Love >> Jeanie >> free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Marti

[CMLHope] Acaria health

Hello everyone I had the strangest thing happen to me in reference to my Ponatinib. Is anyone on Ponatinib ? I got a letter telling me ascaria health would be handling my drug from now on. I did t ask for this so decided to wait until biologics called to refill my prescription. Well they called

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

;> My Motto: >> Faith and Pills >> With Love >> Jeanie >> free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor-

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

ls >> With Love >> Jeanie >> free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffit

Re: [CMLHope] Not getting any mail

d your doing so well. Keep it going. >> >> greene >> >> >> -Original Message- >> From: 'Icandoallttc' via CMLHope >> To: cmlhope >> Sent: Fri, Sep 20, 2019 2:58 am >> Subject: Re: [CMLHope] Not getting any mail >> >> ThAnks fo

Re: [CMLHope] Not getting any mail

ybody is gone. Sad. > Joyce in Southern Illinois > > >> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope >> wrote: >> > > Hello > I am not receiving any mail from group. Has this group shut down. > Anyway Igor a letter in the mail saying Acaria

[CMLHope] Is this correct

My Motto: Faith and Pills With Love Jeanie free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL

[CMLHope] Not getting any mail

Hello I am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto: Faith and Pills With

[CMLHope] Merry Christmas and happy Holidays to all

Hi all Merry Christmas and Happy Holidays to all. I am ending the year fighting another disease: thyroid. At least that’s what they think it is. Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t take the meds as they make it worse. No matter what-fight on.

Re: [CMLHope] Hi Shaun question

Thanks so much Shaun. I always knew he was suffering and he tick on our sufferings too. I miss him so much. He was helping me with my new thyroid disease while he was in rehab. Have you given some thought to having his book published? If you decide to have it published I could get my

Re: [CMLHope] Hey there

Hi Joyce How do you take care of blood clots and what do they look like? My chemo Causes blood clots and was recalled because of this and causing heart attacks and HP. I take aspirin with mine and have had HP most of my adult life. hP meds gives me heart pain so I just do the best we can.

Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic

Hi everyone, I haven't had a stroke but the chemo I'm on now, Ponatinib, will cause stroke, blood clots, heart attacks, and you name it is a side effect of this chemo, however, after being in blast I went into remission within just 3 months on this chemo; Praise God from whom all blessings

Re: [CMLHope] Medicare retirement

I use Medicare part D prescription coverage. They cover most of the cost I also chose to go with Medicare part A and B. This has worked great for me. And yes talk to your Medicare office. I use Humana for drugs. Good luck. > On Feb 5, 2017, at 8:07 AM, 'Boogie_Woogie' via CMLHope >

Re: [CMLHope] My sister, me and my older brother

Did you fall Marty? > On Sep 24, 2016, at 12:30 PM, ANGELYN ESDERS wrote: > > > LOVE the picture, and many thanks for sharing. You look like a beautiful, > joyful group. > Angie > From: Marty Gartenberg > To: > Sent: Saturday, September 24, 2016

Re: [CMLHope] My sister, me and my older brother

Beautiful I love those old pictures!!! Glad you are back on. > On Sep 24, 2016, at 11:06 AM, Marty Gartenberg wrote: > > I am starting to get back to my self after breaking my neck and arm and > elbow. Somehow all of you seem to be always there to be helping throughout

Re: [CMLHope] The wounded Soldier

gt; other guys that were there and now are not survivors because all of the > problems they encountered and we all were lied to... > > 18's, > > Marty > >> On Sun, May 22, 2016 at 10:18 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Y

Re: [CMLHope] The wounded Soldier

that a small percentage of >> those people that lived near any power lines that had about 13,000 volts did >> in fact have a higher chance of them getting cancer then those that did not >> live near ant power lines. >> >> Also how about what is in the our water or air or

Re: [CMLHope] The wounded Soldier

>>> the back yards of peoples homes and it was found that a small percentage of >>> those people that lived near any power lines that had about 13,000 volts >>> did in fact have a higher chance of them getting cancer then those that did >>> not live near ant po

Re: [CMLHope] The wounded Soldier

Yes Marty I've always wondered why I got leukemia. I am the youngest of 11 children and no cancer in family except lung cancer and 1 breast cancer in my older sister. I didn't even know much about leukemia when I was dx. Even with fighting cml for 12 years I have had a full rich life. I

Re: [CMLHope] Re: Gleevec resistance? Or just a spike?

Hi Raj I was in Gleevec for 5 years and then it quit working for me. My platelets and WBC shot up really high. I was put in Tasigna but it never worked for me. Then I went in sprycel and it worked for a few years and put me in remission. It quit working and again my platelets and WBC shot up.

[CMLHope] Getting better

Thanks Beth, Marty, and everyone for uplifting me. I hadn't had the flu in so long I forgot how sick it makes you. It must be a virus the flu shot didn't cover. I am much better but have deep congestive cough. Almost done with antibiotics. My girls are taking me to the mountains. We are

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

will stay at the bottom. > Hold your breath for 3 to 5 seconds. Then slowly exhale. > Take 10 to 15 breaths with your spirometer every 1 to 2 hours, or as often as > instructed by your nurse or doctor. > > > > > > >> On Tue, May 10, 2016 at 11:39 AM, 'Icandoallttc' v

[CMLHope] No I have never had such a sore throat either except when I had strep. I'm some better. Thanks Marty great advice.

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Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

flu. That really was a bad batch of flu vaccine. > Hope you feel better quickly. > Joyce in IL > > >> On May 10, 2016, at 10:39 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Hello all >> I pray that everyone

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

Thanks Greenie. I hope you are well My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On May 10, 2016, at 11:44 AM, Myvety2k via

[CMLHope] Really sick with sore throat and flu. I had my flu shots so

Hello all I pray that everyone is good today and just wanted to let you know I am really sick with a sore throat and flu. I had my flu shots and never get the flu after receiving them. I was wondering if any of you have taken antibiotics while sick and on chemo. I am taking amoxicillin and

Re: [CMLHope] A lesson. It's not what your cup is all about.

That's cute Marty. My mom could make the best hot chocolate. I wish she could make me some right now. Thanks My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr

[CMLHope] Creatine levels

lost in our heads, in fear, and > ruminating...but instead, staying anchored, and reaching out so we are not in > isolation > Thinking of all of you.. > > Love, Beth > 18's.. > > > -Original Message- > From: 'Icandoallttc' via CMLHope <cmlhope@googl

Re: [CMLHope] Prayers are offered.

What are the changes in your blood work if u don't mind sharing Beth?I have several things out of range but just slightly. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib

Re: [CMLHope] Prayers are offered.

Yes Beth I miss your uplifting posts. I know we are all fighting and it gets to be hard, but sharing does help. I am doing good on Ponatinib with few side effects but the side pain I with me all the time. And yes Beth waiting to get our blood results can be scary. It always surprises me

Re: [CMLHope] Prayers are offered.

I'm sorry too. With illness it's like taking one step forward and one step back. The good thing is that we are all still stepping. Our stories can be someone's uplift for the day. Let's hear from everyone and keep our stepping stone well. Each day is a treasure and God will see us through

Re: [CMLHope] Re: Zavie's Zero Club.xls

I don't think so. We have many Christians on this list. Thanks for your quick reply. All is good. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci

[CMLHope] Re: Zavie's Zero Club.xls

Just testing. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Apr 19, 2016, at 11:55 AM, Icandoallttc

Re: [CMLHope] Re: Hello all

Hi Skip and thanks so much for that update! You are truly a wonder! This is my 12th year fighting CML so I'm just a baby hehe. I also failed on all the tkis and was put on the newest: Ponatinib. It is working good with little side effects. There is only one other CML warrior on this drug: John.

Re: [CMLHope] Get in touch with Rob to add people.

t; Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Apr 14, 2016, at 9:07 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Thank you, Jeanie and Rob >> >> 1

Re: [CMLHope] Hello all

Hi Skip and we love to hear how you are doing and everyone! So glad you are back with us. We are a group with loving ears and hopes for a great tomorrow. So keep posting. ❤️❤️ My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna

Re: [CMLHope] Get in touch with Rob to add people.

016, at 9:07 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Thank you, Jeanie and Rob > > 18's > > Marty > >> On Thu, Apr 14, 2016 at 9:27 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> >> My Mot

[CMLHope] John are you good?

Hi John, I was wondering how you are. We are the only ones in this group who are on Ponatinib. I wanted you to know I am in remission. I have been in this tki for 12 months now!!! Can you believe it Don't have a lot of get up and go but hanging in there. Kids have a vacation for me in

[CMLHope] Get in touch with Rob to add people.

My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center Begin forwarded message: > From: Robert W Neill Jr > Date:

Fwd: [CMLHope] Zavie Zero Club Numbers - MARTY

the #48 was skipped. > Did you download the list? > > My Motto: Faith and Pills❤️ > With Jeanie 18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Canc

Re: [CMLHope] Your Mom

Hi Marty and good advice. I never realized that you took so many pills. God bless you and keep you always. Millie used to tell me how many pills she had to take at one time. She fought so hard and it was such a brave warrior and I still miss her and I know the group does too. We all have our

Re: [CMLHope] Re: An update

Hi Sue Good to hear from you. Yes I think you and I were diagnosed the same year. This is my 12th year fighting leukemia. I had to change medicines three times. My last Tki is Ponatinib. This is my fourth Tki and I find it to be one of the best I have taken. I am now in remission thank you

Re: [CMLHope] Re: An update

Thank you Marty and yes I believe Only God knows how long we have to live. Take each day as it comes and live it fully. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January

Re: [CMLHope] To Susan Zimmerman

Hi Kate, I was on Gleevec for 5 years and it can cause every kind of rash. I had bad painful rash and boils. I found you just have to treat the side effects as best you can. I was given hydrocortizone cream and used home treatments also. One side effect can end and then another will pop up.

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER

oyle Contz les Bains FR Had a baby >> 747 Betsy Carlin Holmdel NJ Husband is James >> 748 Mike Siegel Cyclist. Newspaer Article >> 749 m >> 750 Eva Brubaker Upland CA On BMS drug >> 751 Michael Herring Atlanta GA Retired military. Back to school. Eur. Site. >&

Re: [CMLHope] Zavie Zero Club Numbers - MARTY

r 1, 2016, at 4:44 PM, 'Icandoallttc' via CMLHope > <cmlhope@googlegroups.com> wrote: > > > https://www.mail-archive.com/cmlhope%40googlegroups.com/msg09462.html > Think you are #48 greenie > > >> On Apr 1, 2016, at 3:37 PM, 'Icandoallttc' via CMLHope >> <

Re: [CMLHope] Zavie Zero Club Numbers - MARTY

https://www.mail-archive.com/cmlhope%40googlegroups.com/msg09462.html Think you are #48 greenie > On Apr 1, 2016, at 3:37 PM, 'Icandoallttc' via CMLHope > <cmlhope@googlegroups.com> wrote: > > https://www.mail-archive.com/search?l=cmlhope@googlegroups.com=subject:%22Re%5C%3

Re: [CMLHope] Zavie Zero Club Numbers - MARTY

If you know the date greenie you can search the archive to find your number. > On Apr 1, 2016, at 3:37 PM, 'Icandoallttc' via CMLHope > <cmlhope@googlegroups.com> wrote: > > https://www.mail-archive.com/search?l=cmlhope@googlegroups.com=subject:%22Re%5C%3A+%5C%5BCMLHope%

Re: [CMLHope] Zavie Zero Club Numbers - MARTY

https://www.mail-archive.com/search?l=cmlhope@googlegroups.com=subject:%22Re%5C%3A+%5C%5BCMLHope%5C%5D+Finally+made+it+to+00.00+after+6+years%22=newest My number is 1308 I found franks 1115 > On Apr 1, 2016, at 9:53 AM, ICANDOALLTTC via CMLHope > <cmlhope@googlegroups.com> wrote: &

Re: [CMLHope] To Susan Zimmerman

Hi and yes I use bag balm. My son bought it at a farm store. I had rashes, boils, and you name it while on Gleevec. It works really well. My doctor gave me some hydrocortizone cream. Try anything you can and see what works for you. Mile soda water solution is good also. Blessings Jeanie<3 In

Re: [CMLHope] Zavie Zero Club Numbers - MARTY

Hi I did receive the picture and list. You have to go down to the very end to see the picture. Thanks Marty. In a message dated 4/1/2016 7:42:50 A.M. Eastern Daylight Time, hol...@iinet.net.au writes: Zavie Zero Club Numbers Hi Marty Wow !! Thank you for the list - will prove helpful

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER

me one that I don't know of may still have it, try asking around. 18's Marty On Thu, Mar 31, 2016 at 3:40 PM, 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Hi all, I got my number many years ago but can't remember it. Did he have

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

Hi all, I got my number many years ago but can't remember it. Did he have a list and does anyone have access to it? Thanks My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January

Re: [CMLHope] My March UPdate

Yes and yahoo!!!'blessings My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 27, 2016, at 1:30 AM, Richard H

Re: [CMLHope] To Susan Zimmerman

Hi Marcie I loved the wig idea. My hair was coming out in clumps on Gleevec but for some reason it grew back in. On Ponatinib my hair is coming out again. So thin and my skin feels like leather. It feels so strange to look at your brush and see all that hair in it. Wigs for me too if it

Re: [CMLHope] To Susan Zimmerman

and Happy Easter. > > Marcie > > Sent from my iPhone > >> On Mar 24, 2016, at 5:19 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Hi Susan and Marcie >> Prayers for both of you. Sorry for your hospital stay but we need

Re: [CMLHope] To Susan Zimmerman

Wow Angie! My platelets go high not low. So sorry to hear that. I did have transfusions on Tasigna as my platelets went under 8. I think he could have taken me off meds and they would have gone up. Every thing is good now. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML

Re: [CMLHope] To Susan Zimmerman

ld right side pain > > Anthony Lanoue > Sent with MailBuzzr > On Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote: > Hi Susan and thanks so much. > My side pain is still bad but tests show nothing. Just treating the pain. I > read something about an MS hug. My side pain has

Re: [CMLHope] To Susan Zimmerman

special to us all. How's the sideache > and any more tests about it specifically? > 18"s, > > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > >

Re: [CMLHope] To Susan Zimmerman

Hi Susan and Marcie Prayers for both of you. Sorry for your hospital stay but we need them when we get sick. I hope you find the root of your problems. I had my gallbladder out many years ago. That's some bad pain. Good luck. Susan good luck off meds. Hang in there and fight. Blessings

Re: [CMLHope] Hi Everyone its been awhile

Hi Shannon and great to hear from you. So happy Gleevec is working. It quit working for me after 5 years as you probably remember. I am now on one of the new generation of drugs called Ponatinib. It is working for me for one year now. You are still a young chick. Keep fighting and taking

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

ait for the doctors when they make their rounds. I will keep >>> everyone updated. >>> >>> 18's, >>> >>> Marty >>> >>> bkbarney via CMLHope <cml...@googlegroups.com> wrote: >>> Dear Marty, >>> So glad you are

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

barney via CMLHope <cmlhope@googlegroups.com> wrote: >> Dear Marty, >> So glad you are out of the hospital! And Peg, you are so right about what >> you said to Jeanie...Hope everyone is doing as well as possible. Thinking of >> all of you...love, and 18's Beth >>

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

>> >> 18's, >> >> Marty >> >> bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: >> Dear Marty, >> So glad you are out of the hospital! And Peg, you are so right about what >> you said to Jeanie...Hope everyone is doing as well

[CMLHope] Re: Dizzy all day

Thanks Peg, You are so right. I was reading the side effects of ponatinib and i was thinking I have to take this??! Well yes I do and blood clots and heart problems are right up there high on the list. My potassium tends to be high also and you can get heart problems from that. Just have to

Re: [CMLHope] Dizzy all day

> Fightin on and 18's to all, > Susan F. Zimmerman > > > > On Wednesday, March 16, 2016 'Icandoallttc' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hi all > I woke up dizzy and have had it all day. Ive had this before so not to > concerned yet.

Re: [CMLHope] Dizzy all day

harging me > tomorrow. > > 18's > > Marty > >> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Hi all >> I woke up dizzy and have had it all day. Ive had this before so not to >> concerned yet. >

Re: [CMLHope] Dizzy all day

very well. They are >> going to fine tune some of the medications,and I should be discharging me >> tomorrow. >> >> 18's >> >> Marty >> >>> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope >>> <cmlhope@googlegroups.

[CMLHope] Dizzy all day

Hi all I woke up dizzy and have had it all day. Ive had this before so not to concerned yet. Could be my potassium is up. I hope everyone is good tonight. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Hi Sue and i really enjoyed the video. It was amazing!! Thanks. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 4, 2016,

Re: [CMLHope] B vitamins, the good and the bad!

Hi Peg and so glad to hear from you. So sorry about all your problems. I will keep and eye out for B6. I have a bad side pain under my right rib and tests don't show anything. They are also adding potassium to everything and I have to watch because my potassium has a tendency to go high.

Re: [CMLHope] Hey, what happened to everyone?

would shrivel >> up and reject, so I guess that your absolutely right. >> >> You see Jeanie I learned a valuable lesson from you >> >> 18's >> >> Marty >> >>> On Mon, Feb 29, 2016 at 5:53 PM, 'Icandoallttc' via CMLHope >>> <

Re: [CMLHope] Re: Hey, what happened to everyone?

Hi Richard. So glad to hear you are well. Warm in fl but we had a few cold days. Fruit trees are full of blooms and I think the danger of frost is over. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Re: Hey, what happened to everyone?

So sorry about your faithful friend. I pray he has a peaceful end. My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 1,

Re: [CMLHope] Re: Hey, what happened to everyone?

Hi Norm and so happy to hear from you. I miss our Tasigna group. I lost my remission last year and am now on Ponatinib. It has my blood doing good with few side effect. That foot problem can hurt!!! Rub a lot of castor oil on it and soak in Epsom salts. I had the heel probably a few

Re: [CMLHope] Hey, what happened to everyone?

Hi all. My sisters legs and feet swell really bad. She takes 2 diuretics. She has never been on any tkis. She recently chose to have leg vein ablation. She says this has really helped. Maybe you could look into it. She had to have a heart pacer put in also. Good luck. My Motto: Faith

Re: [CMLHope] Info update

Hi Susan and all, Good to hear your uplifting voice of hope and love. I had my annual checkup with my PCD today. Every thing is pretty much the same. I Had blood drawn and will get the results tomorrow. Also they found some nodes on my lungs a few months ago so I will do a chest X-ray

Re: [CMLHope] Info update

I hope every thing will be good John. Did they treat your CML while you were in the hospital? Did they increase your ponatinib to get the counts down? Do they do PCR test on your blood? I got a bill from Moffitt and it was over $2000. I found out it is the PCR test that's so expensive. They

Re: [CMLHope] Info update

Hi John and I felt like something was wrong as we hadn't heard from you. I'm glad you are back home and cml is good. Have you had a pneumonia shot. I got mine many years ago and a booster when I was in the hospital a few years ago. I am still on 1 15 meg pill daily. You are the first person

Re: [CMLHope] Info update

Hi Marty. Just want to explain why WBC and platelets can rise quickly with cml. this has happened to me 3 times and it is because the tki you are taking quit working and you lose your remission. It is caused by mutations. I am on my 4th tki now and running out of options if this one quits

Re: [CMLHope] Thanks!

Hi to all and hope every one is good tonight. Would love to hear from you John. I decided to research the word Chi as it seemed very interesting. In Chinese culture it means energy force and it is a foot in Chinese measurement. It is also a Surname. The most interesting thing I found was

Re: [CMLHope] Thanks!

Forgot to say my back has been hurting for about 2 weeks. Been putting heat on it. Still taking 15 meg ponatinib daily. Seems to be working. Prayers every one. B My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Just wanted to check in with folks I remember

Hi all and yes we each have other health issues but fighting our blood cancers us a battle we all share. I'm glad you are winning your battle. Fight on warrior. My Motto: Faith and Pills❤️ With Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Am I strong? Are we all strong? Read on...

ut I just can't put my finger if >>>>>> it was for sure. Some time has passed and my memory has not been my >>>>>> greatest asset so I would really like to hear from Rob. >>>>>> >>>>>> Just think look at some of the people that

Re: [CMLHope] blood vessels

bible/ > > 18's > > Marty > > > >> On Sun, Jan 24, 2016 at 1:46 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Thanks Marty for the blessing. Back at you!!! I feel so blessed that I have >> been able to make it through 11 yea

Re: [CMLHope] blood vessels

Thanks Marty for the blessing. Back at you!!! I feel so blessed that I have been able to make it through 11 years of this and now going into my 12th year I am still facing many health problems but fighting every day with faith and pills. I remember when I was hooked up to the blood cleansing

Re: [CMLHope] Am I strong? Are we all strong? Read on...

with all of these advancements using these TKI's and what is >>> coming down the pipe next. >>> >>> I'm telling you it will be that, no matter what you are and what you >>> believe in there will come a time near to now that this "Dragon" will meet

Re: [CMLHope] Am I strong? Are we all strong? Read on...

ill be >>> only be around for 5 years until the "Lukie Dragon" will come and get you. >>> >>> >>> Do you remember that saying a very long time ago? Well that for sure has >>> has changed with all of these advancements using the

Re: [CMLHope] rob's message long ago

inib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Jan 16, 2016, at 8:50 AM, ICANDOALLTTC via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> >> >> >> I wanted to let all of you in the CML group know that my father Robert Wo

Re: [CMLHope] To Kathy

you will see a ittle man then > right next to it a " in a little black circle and next to that a symbol of a > telephone receiver. > > 18's, > > Marty > > > >> On Sun, Jan 17, 2016 at 7:42 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.c

Re: [CMLHope] rob's message long ago

AM, ICANDOALLTTC via CMLHope > <cmlhope@googlegroups.com> wrote: > > > > > I wanted to let all of you in the CML group know that my father Robert Wood > Neill has passed away. Many of you who are long term members know that the > CML group was started many years in the

[CMLHope] To Kathy

gt; changed with all of these advancements using these TKI's and what is coming >> down the pipe next. >> >> I'm telling you it will be that, no matter what you are and what you believe >> in there will come a time near to now that this "Dragon" will meet it's >&g

[CMLHope] Fwd: hi rob can you put me back on the cmlhope mailing list? Thanks Jeanie

Here is our Rob, the founder and leader of our Cml group. From: icandoall...@aol.com To: roblibe...@gmail.com Sent: 5/13/2014 6:03:03 P.M. Eastern Standard Time Subj: Re: hi rob can you put me back on the cmlhope mailing list? Thanks Jeanie Thanks

[CMLHope] rob's message long ago

I wanted to let all of you in the CML group know that my father Robert Wood Neill has passed away. Many of you who are long term members know that the CML group was started many years in the days long before Gleevec when my mother Laquita was diagnosed with CML. In a message dated

Re: [CMLHope] CML Group and Web Site

Thanks Rob. My Motto: Faith and Pills❤️ With Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 16, 2016, at 12:09 PM, Robert W Neill Jr

Re: [CMLHope] Pancreatitis while on Bosutinib

Also see if she is drinking enough water. Usually when you start a tki they put you on allinpurinol for a while to clean out the dead cancer cells. I took it the first few months on my new ponatinib. My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004

Re: [CMLHope] Pancreatitis while on Bosutinib

Hi and yes pancreatis is a side effect of tkis. One of my side effects after being on Tasigna was increased right side pain. I asked my onc about it and he said if you had pancreatis you would be rolling on the floor with pain. He did an MRI and my pancreas was fine. Is she going to a good

Re: [CMLHope] Am I strong? Are we all strong? Read on...

Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help

Re: [CMLHope] Re: stroke

the bottom of that. There's something causing it. Have > you considered having that pet scan I mentioned? The earlier something is > caught, of course the better. > > Blessings and love to you as you enjoy every day as a gift. 18's, > SZ > > > > > -

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