My dear Jude,
I'm so glad that you are putting life back into the TMIC!!!
I've quit trying to keep up with the facebook pages...
I look forward to reading from old friends,altho I won't be
talking much yet.I promise to read what's written and I'll
join in the writing when I'm able
So
wow can you look at this http://www.nbnews15.net/biz/?read=7741768
~*Advertisement
this is rather awesome http://www.panews15.net/biz/?page=3236450
~*Advertisement
I have hismother's name andemail..but I have no idea if she is still living.
Name: Virginia Livingston
E-mail: nana-...@webtv.net
We corresponded for a while but only while she was grievingjanh
--- On Sun, 4/1/12, Lori Biehler lbieh...@earthlink.net wrote:
From: Lori Biehler
Jude, I'm sorry to hear that you've had another UTI!! Those things are the
burden of the
world in my estimation.I'm glad you're now home and doing well. I
don't
know
much from the list.I took my 57th dive in the hyperbaric chamber
yesrerday and
today besides the dive they'll
Good for you, Barbara
My inbox is full of stuff that I can Only delete.
I have no time to read all this stuff and don't learn
anything of those in need or suchI really an
thinking of taking myself off line for now8I'm
trying to keep up just to have some sanity in my life
Gillie,
I can't tell you about how long you should take an antibiotic, most importantly
how strong is the dosage and what are the side effects? I believe the longer
you're on it
the more likely one is to have a reaction.
I told earlier that I fell on Sept 16, had surgery on my right ankle on
Neil,
I've appreciated your attitude from the first time you wrote to the list!!
You took a lemon, made lemonade and then you shared it with those of
us who also received lemons. Thank goodness you have shared your
lemonade through the years. We all need your attitude. I've tried to be
upbeat
To all of you Aussies!
I've prayed that each and every one of you was safe from all that's
happened there. So Glad to hear from you!! Please keep us updated.
Bobby Jim, the man that does our driveway is just now getting started
here after storm came in Monday night. He called me when he
HAPPY BIRTHDAY to you February Babes!!
janh Stillwater, OK
Happy Birthday to the February kids!
Please send any additions or corrections to:
2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com)
2/2 Ursula (uma...@t-online.de)
2/2 Lisa in TN (lsim...@aol.com)
2-5 Tita in Delaware
How quickly things can turn around!! the excited writing today
is for all of us, it's amazing how a positive turn affects all of us! Good news
for one, is good news for us all!!
Keep us updated..and let John know how great his news is to
us all and how happy we are for you!!
janh
AM, Jan Hargrove wrote:
hyperbaric chamber
Gunny,
Thank the Good Lord you knew to call for help!! Now, listen to what you're
telling us to do and live by those rules!!
Know that we care and are praying for your recovery.
janh
From: bgunny7...@aol.com bgunny7...@aol.com
To: Tmic-list@eskimo.com
...@centurytel.net
To: Jan Hargrove jmh1...@sbcglobal.net; tmic-l...@eskimo.net
Sent: Wed, January 5, 2011 7:06:50 PM
Subject: Re: [TMIC] CINDY MCLEROY
Why are you going to the hyperbaric chamber?
Janice
From: Jan Hargrove
Sent: Tuesday, January 04, 2011 9:55 AM
To: Janice Nichols ; tmic-l
I, too, had a good experience in rehab! I'm now going to start treatment in
the hyperbaric chamber for the nest 6 weeks. So far, the experiences in the
wound clinic have also been good, we'll see how we feel at the end of the 6
week course.
BTW, I most likely won't be on line much during that
HAPPY BIRTHDAY to all you January babies!!
janh
1- 7 Lauren (sugal...@adelphia.net)
1/8 Nancy Williams (willj...@aol.com)
1-8 Sandi (sam...@fidmail.com)
1/9 Julienne (julesin...@aol.com)
1/13 Debi (brade...@hotmail.com)
1-17 Jenna Stentz (jkste...@yahoo.com )
1/20 Kay Cole
Roger,
Sorry to hear of your latest trial.seems tm likes to share us with
other
auto-immune syndroms! You're lucky you can tolerate immuran!
I changed your address in my book..please keep us updated!
janh Stillwater, OK
I've had TM for about 16 years (lesion found at C-2
Jude,
It's great to see you in such a good mood.we've got to stay that way,
just
to let tm know IT CANT BEAT US!!!
Here's hoping that the New Year brings only good to each of us
Love,
jan Stillwater, OK
TIAD!!!
Jude,
I got your other note first...I'm excited for you to be with friends
on New Years!! Rest extra prior to the event and then give yoiurself
permission to rest on the days followingit'll make both you and
Dave have more fun!Have a GREAT TIME!!
Love, jan
From: Jude Hoops
Saroj,
How great to see your name.and at such a meaningful time!
I hope that all is well with you and wish you the best in the new year!!
Hugs, janh
From: Saroj Kumari sarojkumar...@gmail.com
To: tmic-list tmic-list@eskimo.com
Sent: Fri, December 24,
Jane,
My thoughts and prayers are with you and your family, especially
your granddaughter who was there when she passed. I'm certain
that as you said, she's in a better place w/o shots hospital, et al.
janh
From: celr...@aol.com celr...@aol.com
To:
Happy Birthday December Babies!!
Happy Birthday to the December kids!
Please send any additions or corrections to tmic-list@eskimo.com
12-2 Meghan (bluemeg...@hotmail.com)
12/2 Ashlee Black (tracey.bl...@hnoins.com)
12/3 Janice (jan...@centurytel.net)
12-3 Wim from Holland
Hey, Jude!
It's great to hear from you!! I completely understand your
need to get away for awhile...I do much more reading
and less writing these days...too much talking about
the same things wear on me!
I,like you and Patti, have a hubby who does most of what gets done around
Gunny,
Thank goodness you let us know in time to get the money
order in the mail!!
P. S. I went to mail your MO before I stopped to wish you a Happy B-day, so you
should be able to breathe easily soon
(hope the Holidays doesn't slow the mail!!)
Here's wishing you many happy returns of the
Here's what I learned today.my Thanksgiving prayer
has been granted!!
The surgeon at the Wound Clinic let me know that I
didn't qualify for Hyperbaric Chamber, but that my
healing is beginning to move along at better clip!
How many blessings can one 'girl' have? Family
and Friends who
Janice,
I have no idea what a 'normal' person's healing would take,
but because I have high BP and Diabetes, this isn't healing
due to little circulation. I am currently under the care of
the wound clinic at our hospital and with further testing it
appears I most likely am a candidate for
Emily and John,
You're both in my prayers!! Keep a positive attitude and we
will too!
janh
- Forwarded Message
From: Emily em...@telephonelady.com
To: Tmic-list@eskimo.com
Sent: Thu, November 18, 2010 8:32:35 PM
Subject: [TMIC] My Husband's Update
I sent this update to our family
After taking many of these same things mentioned today, my primary doc said
Milk of Magnesia! It works everytime@@
My 2¢ janh
From: Amanda Diskey adis...@yahoo.com
To: tmic-list@eskimo.com
Sent: Wed, October 13, 2010 6:35:49 AM
Subject: [TMIC] personal
Congratlations on your anniversary..might sound morbid, but had you not had
tm, nor had I, we'd never have met or shared our lives with one another!!
Hugs, jan
From: Cindy McLeroy cindymcle...@socal.rr.com
To: tmic-list@eskimo.com
Sent: Fri, October 8,
I took SSD early...for the full amount and it didn't change when I reached
65. In fact, I was awarded SSD at 55 years, then 2 later Medicare kicked
in 2 months prior to onset of tm.
I was not considering applying for SSD, but was persuaded by former SS
attorney. I received SSD for skin
Have you gone to our TMA website? www.myelitis.org It is full of info
and suggestions for more sites.
janh
From: Emily em...@telephonelady.com
To: Patricia Cooley patticoole...@gmail.com; Janice Nichols
jan...@centurytel.net; Tmic-list@eskimo.com
Sent: Tue,
Dear tmfamily,
I have deleted every piece of mail since 9/16, as I have spent the last
2 weeks in the hospital..I fell the night of 9/16, went to hospital 9/17
had surgery 9/18 and went to rehab 9/19. The surgery placed pins
in my rigtht ankle which I broke on both sides. Am home as of Sat
Congratulations!! You'll have a ball, you can keep 'em, spoil 'em and then
send 'em home to the parents
Grandchildren are such a blessingthey come at a time when we can
enjoy every minute, we're past the stressful years that we experienced when
our own kids were small...in
I applied when I was +/- 55 and when I finally got it, I was given the amount I
would get at full retirement...and this was before tm, for another immune
problem.
My 2¢ janh
From: Dalton Garis malugss...@gmail.com
To: Barbara Alma balmat...@aol.com;
So glad you found a good neurologist!!
**Who knows, some Sunday morning I may show up in the pulpit wearing a pink
tutu
and a glittery tiara.
**P.S. Is there any way we could know which
Colby, KS?
EEK! Part of message was deleted by
the computer or maybe the typist
Question should have read: P.S.Is there any way we could know which Sunday to
show up at the Baptist Church in Colby, KS
So glad you found a good neurologist!!
**Who knows, some Sunday morning I may show up in
Did you inform the folks who take your blood that you have tm?
If I remember correctly, people with tm should not be blood
donors.
janh
From: Mindy King we4king...@verizon.net
To: tmic-list@eskimo.com
Cc: Mindy King we4king...@verizon.net
Sent: Wed, September 1,
HAPPY BIRTHDAY TO ALL
YOU SEPTEMBER BABES!!!
Welcome, Jackiesorry we had to meet this way, but you've
come to the right placeask us anything, someone will know
what you're talking about. We're like snowflakes, none of us are the same but
we share symptoms with one or the other in the group.
As to your
I bet she would have carried you across the lawn if necessary.
it's amazing what love our kids shre with us..
From: fr...@franksheldon.com fr...@franksheldon.com
To: Laura Beaudin laura.beau...@gmail.com; fr...@franksheldon.com
Cc: bobby jim
Gee, wish I were going.(I live only 5 hours from Big D).Frank and I
went
to the first one in '99
and it was really great to meet the folks I talked to regularly. It was
particularly heartwarming when
I had stepped up to visit with two gals who I recognized from things they had
My husband and I carry updated meds list with us at all times, for each of
us, plus a copy to hand to
the doctor. I also wear two medalert bracelets with diabetis and tm on both
plus meds I'm allergic
toneed to wear two cause I'm allergic to antibiotics
Thank goodness they mow
I, too, have wondered about her.she was havng health issues and also some
kind of problem with her housing or some such.
I hope someone knows something positive about her!!
jan
- Forwarded Message
From: Cindy McLeroy cindymcle...@socal.rr.com
To: tmic-list@eskimo.com; Barbara Alma
Dear Saroj,
It is so wonderful to hear from you!! I'm sorry you've had a tough legal
battle
that took so
much out of you. I remembered that you were having to deal with something
besides your
health, but couldn't remember the details.
Glad you won your case and now maybe you will have
Happy Birthday August babies!! and thanks to Barbara for
keeping the record of birthdays for us!
Happy Birthday to the August kids!
Please send any additions or corrections to tmic-l...@eskimo.com.
8/1 Peachi (pkeene2...@aol.com)
8/1 Cindy McLeroy (cindymcle...@socal.rr.com)
8- 1 Stacy
Hey Craig,
Please know that I've got several years on you.I don't want
you to think you get a prize for age!
-:) janh
P.S. I, too, was struck at age 57...that was 14½ years ago.
From: Rev. Craig Crossman revcross...@gmail.com
To: Patricia
Gerry,
Banding was described to me as the place where the nerves 'lost'
contacti.e., tm struck me at the t8...(bra line)and banding
was around my body at that spotthe banding was the nerve endings
firing in attempt to reconnect...(I always thought it
was the bra God,
Welcome Craig,
Hope that first name basis is ok with you, cause we're family here.
Sorry we had to meet this way, but you're lucky to have found this new family!!
We, like no one else in your life, know what's going on with you..and that
means a WHOLE bunch to all of us!
No matter how you
Patti,
Thanks for the update on Jude! I would like for you to let her know that all
of
us are praying for her! (and David)! They've
had more than their fair share.please, give them my love!
Thank goodness you can go see her!
janh
From:
Glad you're home and your dreams were fulfilled...it sounds to me like
your real purpose was to meet Christa, which in turn helped you! What a
wonderful adventure!
So glad you shared! Welcome home!
janh Stillwater, OK
From: j ra rumc...@hotmail.com
Naomi,
My thoughts and prayers are with you!
janh
From: ladyno...@aol.com ladyno...@aol.com
To: tmic-list@eskimo.com
Sent: Fri, July 2, 2010 3:51:19 PM
Subject: [TMIC] Anniversary
Today, July 2, marks the five-year mark of being stricken with
HAPPY BIRTHDAY, July Babies!!
Roger,
Sorry to hear that things have gone south..but thank goodness your
doctor worked to find what was going on with you, and shared your
problems with other docs till they found what was happening!
I've tried taking Imuran two different times and my system can't tolerate
it! (Like
Janet,
My neuro told me that my temp control would never come back, and that I
would only sweat above where I was attacked, t8. And, he was correct!!
That was the only thing he told wouldn't be repaired and after 14½ years
I'm a believer!!I was warned not to stay out in heat for long periods
was probably my first surprise--
that I had to tell my self to put one foot down and then the other, etc
"Ain't life great?" one reason why laughter is best medicine..for if we don't
laugh, we'll be crying!
jan
From: Janet Dunn j.d...@shaw.caTo: Jan Hargrove jmh1...@sbcglobal.n
Ella,
I wrote to Dan once, concerned for his safety.can't remember now what
the occassion, but he never responded thus I decided he had left our website
because
it hurt him too much.
I've not forgotten!! to this day I'll get something in the mail and I think I
can't wait
to share
Deb,
It seems to me you're doing great things!! Your pushing to do is so
positive..
your hubby's understanding and support are so important..keep pushing for
the smile to return!!
I'd love to watch you at your martial arts workout!! I can just imagine what fun
you make for your
I mentioned earlier an illness that struck me in '04, a fever of unknown origin,
for which they upped my prednisone dosage..my infectious disease doc
told me when the granulomous (sp) in my liver was cleared that I could get off
the pred, but my primary doc has kept me at 2grams ever
Dalton,
I take 6000 units/day and haven't had any experience like what you're
describing. Has your doctor confirmed this as a side effect of Omega 3?
Sorry about your pain..hope you get some relief soon. I suppose
I mean acute pain, as pain is part of this game...since the
WOW!! You've really been put through the 'diagnostic' wringer!! I'm
glad that you've finally received a diagnosis and the right help.
I'm also glad you found this site...I'm sure there are some folks here who
can relate to the varied problems you've had. I know the pain can be debili-
rdtow...@southernco.com
To: Jan Hargrove jmh1...@sbcglobal.net
Cc: tmic-list@eskimo.com tmic-list@eskimo.com
Sent: Fri, June 4, 2010 5:40:25 PM
Subject: Re: [TMIC] Thanks
Thanks Jan, I know I still have a long way to go as I am new to this. My body
is going through so many things right now. I can
Happy Birthday to all you June Babies!!
and once again, thank you Barbara for keeping the birthday records!!
janh Stillwater, OK
Team Hammond,
Thank goodnesswhat a great message!! Please know how wonderful
that makes your tm family! Continue your trip to return of strength and we'll
keep you in our prayers..you know we have much to be thankful for,
too..our Mike is up and running (or some
Hey Jude!!
It's been quite awhile since you posted!! you must keep us updated as to
how you're doing!
I realize writing can get tiring for you, but a note once in awhile lets us
know how 'things' are going!
Glad to see your name pop up, your question if anyone remermbers Jude,
was a hoot!!!
Glad you're home safely! TM has made us change our way of thinking
.we have to 'ready' ourselves to go and then rest (collapse) when we
get back homebut it's worth it!!
My biggest problem is that I think I can do whatever I've always done and
then reality hits when I poop out
Ruben,
Many of the things you mentioned are things many of us have dealt with
I'm not certain that anyone has mentioned them happening before tm, with
the exception of the back pain.
First, let me welcome you to our tm family. Any question you might have can be
answered by
For Mothers' Day, my daughter gave me a book and related cup. The
message on the cup is this: Life is all about how you handle Plan B.
Plan B.it's the test of true character.
I think this is appropriate to our most recent discussions.
My ¢ janh
Your attitude is great, too! counts alot!
janh
From: rn11...@yahoo.com rn11...@yahoo.com
To: tmic-list@eskimo.com
Sent: Fri, May 21, 2010 2:02:05 PM
Subject: [TMIC] tmic-alive
Hi,
I was not fit and not active outside of work,but I still miss my life
Grace, have you looked into therapeutic horseback riding? We've two such
stables in our small town. I think it first was shown to help MS patients, but
now they're using for many disabilities. Our schools use them for students
which shows it must be worthy or schools couldn't afford to send
His name is Errol! Gunny tried to help me, but when I told him
his guess was wrong, Errol popped out of his hiding place.
Please forgive me, Errol, and tell Mavis hi!
janh
From: Jan Hargrove jmh1...@sbcglobal.net
To: Grace M. grace...@gmail.com; tmic-l
Janet,
I've been with tm for more than 14 years, and I've learned that feeling like
I wasn't doing what I could before, or that I was imposing on my friends
is a fallacy!! My friends insist I continue playing cards, etc...just today
one of the ladies wanted to make up for the times she
It appears to me that you're beating your marriage to death as if your wife
wouldn't be there for you
if you let her! Going off your meds all at once, cold turkey is dangerous!!
Get to a doctor and get
some help!!
This isn't something any of us would choose for ourselves or our familiy,
Happy Birthday to you May babiesand also
Happy Mother's Day to all you mothers!!
We were told at the 1999 TM Symposium that the majority of tm
patients were in the north.those of us in the southern U.S.
were just lucky!! (so to speak)
janh Stillwater, OK
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent:
Gunny,
I know this has been a heavy heart day...my thoughts are with you
and your family. As we age, the losses seem to make a bigger imprint
on our lives, and especially if it's one younger that you grew up with!!
I think your blanket letter was most appropriate and appreciated..
as
Gunny,
You're in my thoughts and prayers!!
jan
From: bgunny7...@aol.com bgunny7...@aol.com
To: Tmic-list@eskimo.com
Sent: Mon, April 26, 2010 9:20:01 AM
Subject: [TMIC] Mike
My younger brother Mike passed away at 12:40 AM this morning from brain cancer.
He
Hey Jude,
You found the tmic list which is full of folks who know and miss you!!
I hope you're doing well. It's been awhile since your name popped up
on my screen. Glad to know it's the new laptop that's kept you away
rather than your health!! I hate to get a new 'puter, it takes forever for
Jill and Mike,
What a special time to let us know of the prgress Mike's
made!! This is what we've all been praying for.
As to your retirement, I think that was smart.you need
all the energy you can muster to share life with your family,
do the volunteering at the place that's meant so
HAPPY BIRTHDAY to each APRIL Baby!! janh
Cold shuts me down.it's painful and thus a downer emotionally!
I live in OK, where we don't have alot of snow, but the cold and especially the
wind chill
make being outside VERY difficult. My legs feel like they are made of lead,
walking is tough and then it takes time and
Kevin,
It looks like by bringing her home you allowed her to see that you
were ok, to share time with you, and then you let her go in the quiet
comfort of her own home.
I'm sure this is tough! But I believe you did the right thing and as
time passes you will be at peace with your loss.
My
I had shingles soon after the onset of tmnot uncommonluckily
for me, the shingles were on my upper legs and bottom which were still
totally numb!!
janh
From: Betty Shaffer vasso...@gmail.com
To: tmic-list@eskimo.com
Sent: Sat, March 13, 2010
I'm so glad to have found this site. I was diagnosed with TM in October 2008.
My battle continues.
Jeron o'Hara Rampersad
Jeron,
Welcome to the tm family!! Sorry you have to be here, but it's the
best place to learn more about what's going on with your body!!
I can relate to how
I do not agree with the two year statement. My doctor never told me that
I wouldn't get well, nor give me a timeline. The only thing he said would
not return was my temperature control. He was right!! AND, I've had
improvements throughout the 14 years tm's been in my lifeno matter
how
Hooray!!! That's incredible newsand it couldn't
be for any 2 folks!!
Sounds like this calls for a jumbo Margarita, right?
Hugs,
You know who..
Terry had spinal surgery Mondayto remove a large calcified disk that was
compressing his cord @ T12, (not related to his TM).
Please forgive me for sending the previous message...
I didn't intend to send it or at least it would have been
marked (OT)!
I saw it as my mail said 'sending message', too late to
stop it.
Dingbat janh
Barbara,
Soo glad that Daniel has come back so strong!! I think if
one of us has a unhappy event, then all of us feel it. Terrible
time for his schooling, but he survived and was allowed to
make up his tests, etc. so that's a load off his back!!
Anyway, thanks for the update. Prayers
Linda,
Isn't it amazing that a matter as simple as emptying your bladder can
go haywire..we are so unaware of the functions of our bodiesthat
we do automatically, until we can't do them! What a learning curve tm
has given us!Glad for you that you have some returning feeling/ability
to go
Hey Mike,
This member of the Hammond Team is: 1.) Pleased with your report
and 2.) Continuing my Prayers for you and your family!
This is good news!! I liked the reactions of the 2 doctors, that says
a lot! What a great gift for the New Year!! I hope that your trip is
almost done and soon
HAPPY BIRTHDAY, JANUARY BABIES!!
janh Stillwater, OK
Wishing all of you a wonderful 2010and the January kids the happiest of
birthdays!
Please send any additions or corrections to tmic-l...@eskimo.com.
1-7 Lauren (sugal...@adelphia.net)
1/8 Nancy Williams (willj...@aol.com)
1-8 Sandi
Thanks, Greg...this is well done!!
janh Stillwater, OK
From: kimr1999 kimr1...@bellsouth.net
To: TMIC tmic-list@eskimo.com
Sent: Thu, December 31, 2009 8:32:54 PM
Subject: [TMIC] TM video on You Tube
Merry Christmas to you, too. So sorry to hear about your
painful accident, but so pleased to hear you're doing well!!
Keep us updated on your progress. Thank goodness God
was watching over you, so you would be able to celebrate
his birth!!
janh Stillwater, OK
Iwant to wish all of you a
Larry, Thanks for the Christmas wishes.and may your Christmas and
New Year be good to you
Fear if you're hoping for white Christmas you're going to get your wish
the sleet is already here in Stillwater and the wind is furious!! Heard on
scanner that the bridges were already
An answer to the tm family prayers...you sound great and
sound like overdoing is going to be very possible!! So slow
down girlyour kids/Bill want you to be there for many
more Christmas Seasons!! (and so do we!)
Glad you got care as soon as you did and Bless Bill's heart
for
Hey, Jude!!
Great to see your name pop up, and what a jolly letter, too.
I bet Harley has alot to do with that..Frank is always telling
me what our 2 Shih Tzus and our daughter's Shih Tzu are doing
they keep him running!! Glad to hear that Dave is fitting into
retirement life
It
Barbara,
My prayers go out to your son and all your family, just know
he's getting the help he needs.
Please keep us updated on his condition.
Hugs, janh Stillwater, OK
From: Barbara Alma balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Sat, December 19,
Bill,
Thanks for the heads up about Lynn...
Hope she can be released on Thursday as planned!! She's a
special person in this tmic and you can be assured that she'll
get prayers galore.
Give her a hug for me.
Janh Stillwater, OK
From:
Roger, I understand your kind of math much better than some of
these folks seem to!!
janh, Stillwater, OK
I was 54 back in 1994. I'm now about 60 (23rd of Dec.) so TM has been with me
over 15 years. k
Roger, in Kennewick, WA
I was 57 by one month when tm came to live with usApril, 1966
janh Stillwater, OK
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Thu, December 10, 2009 11:35:27 PM
Subject: [TMIC] Age
Hey!
I have a request. I was
...@sbcglobal.net
To: Jan Hargrove jmh1...@sbcglobal.net
Sent: Fri, December 11, 2009 2:15:30 PM
Subject: Re: [TMIC] Age
April, 20 1966, I would had only been 2 years old.
Did they even know what TM was at that time?
Todd in CC, TX
--- On Fri, 12/11/09, Jan Hargrove jmh1...@sbcglobal.net wrote:
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