Dalton
You mentioned that you have muscle stffness when rising from a chair n
the same post you when you said you are now taking Lyrica instead of
gabapentin. I think I remember that as being a possible side-effect,
but shrugged it off, because it would not stop me from taking Lyrica for
Dalton--thank you so much for steering me to Lyrica. after three weeks of
450 mg a day, I guess I reached my saturation point and rather than taking
it on a schedule, I take it when my legs start to jump again and it quiets
them in about 30 minutes.
I sharpen knives as a small business and I had
Jim,
That is great. Kind of makes you giddy doesn't it.
Make it a great day,
Deb
From: James Berg [mailto:molokai...@gmail.com]
Sent: Saturday, June 11, 2011 4:07 PM
To: malugss...@gmail.com
Cc: transverse myelitis
Subject: [TMIC] Lyrica
Dalton--thank you so much for steering me
-list@eskimo.com
Subject: RE: [TMIC] Lyrica
Jim,
That is great. Kind of makes you giddy doesn¹t it.
Make it a great day,
Deb
From: James Berg [mailto:molokai...@gmail.com]
Sent: Saturday, June 11, 2011 4:07 PM
To: malugss...@gmail.com
Cc: transverse myelitis
Subject: [TMIC] Lyrica
Dalton
-
From: James Berg molokai...@gmail.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Sun, May 29, 2011 9:03 pm
Subject: [TMIC] Lyrica
I finally gave up my no drugs stand and started taking Lyica to see if it would
calm my legs. I slowly reached a point where at 150 mg, three times a day
I finally gave up my no drugs stand and started taking Lyica to see if it
would calm my legs. I slowly reached a point where at 150 mg, three times a
day (450mg total) I can see some improvement. The spasms are smaller and
the pins and needles or vibrating is less. My question is
how high a
Market Behavior
The Petroleum Institute
P.O. Box 2533, Umm al Nar
Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760
From: James Berg molokai...@gmail.com
Date: Sun, 29 May 2011 15:03:20 -1000
To: transverse myelitis tmic-list@eskimo.com
Subject: [TMIC] Lyrica
Sally, I took Lyrica and had problems with swelling in ankles and feet.I
take Gabapentin with no problem.
Janice
-Original Message-
From: kale...@sfcn.org
Sent: Friday, December 17, 2010 12:57 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Lyrica
Hi everyone!
I haven't been here
Hi everyone!
I haven't been here in quite awhile (on TMIC), but after 5 1/2 yrs with
TM, I've finally given in to taking stronger meds. I was given Lyrica
yesterday, by my podiatrist, for what he diagnosed as 'sural nerve
neuritis' in my foot. He thought it would also help the spacticity (which
, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760--
From: kale...@sfcn.org
Date: Fri, 17 Dec 2010 11:57:56 -0700 (MST)
To: tmic-list@eskimo.com
Subject: [TMIC] Lyrica
Resent-From: tmic-list@eskimo.com
Resent-Date: Fri, 17 Dec 2010 10:58:23 -0800
Hi everyone!
I
pain and the
Baclofen is for spasticity. They all work well for me.
Naomi
C-4 quadriplegic
since July 2, 2005
-Original Message-
From: pjv1...@chartermi.net
To: tmic tmic-list@eskimo.com
Sent: Tue, May 18, 2010 9:15 am
Subject: [TMIC] Lyrica, Cymbalta AND Baclofen
Rob
think I
Rob
I think I was typing my last post wile you were sending yours.
I take Lyrica and Cymbalta and must also take Baclofen for the banding and
muscle spasms.
Lyrica and Cymbalta decrease the neuro pain, but he Baclofen is the first thing
I reach for when I've over exerted and my mucles are
Congrats! That is a huge accomplishment and I am glad that you are able to
cut down and not feel any worse after the withdrawal period, how wonderful for
you!
From: Mindy King
Sent: Monday, March 15, 2010 12:45 AM
To: tmic-list@eskimo.com
Cc: Mindy King
Subject: [TMIC] Lyrica
Hi all
Mindy, that is wonderful news and speaks well of you too. Just another
sign that past the 2-year mark, improvement is still shown. Great!
Janice
From: Lori Biehler
Sent: Monday, March 15, 2010 6:53 AM
To: Mindy King ; tmic-list@eskimo.com
Subject: Re: [TMIC] Lyrica
Congrats
Hi all,
I weaned off Cymbalta 10 months ago after a major improvement in
pain, my other medication is Lyrica and I have been on it since
before TM was diagnosed as the cause of my nerve pain. I was taking
150 mg 2X a day for the majority of the last 3 years, not knowing if
it was
My neuro now tells me that my symptoms are caused by much more than TM. Namely
vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty
headache. Should I put up with this and it will pass? What were your problems
or successes with Lyrica?
R
for you on this snowing
Sunday morning!!! Jeanne
---Original Message---
From: Regina Rummel
Date: 1/25/2009 6:45:02 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Lyrica
My neuro now tells me that my symptoms are caused by much more than TM.
Namely vasculatis. She put me on Lyrica and I
To: tmic-list@eskimo.com
Sent: Sunday, January 25, 2009 5:44 AM
Subject: [TMIC] Lyrica
My neuro now tells me that my symptoms are caused by much more than TM.
Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty
nasty headache. Should I put up
to my neuro asap but would like to have your imput
first.
PRISCILLA :)
-Original Message-
From: Regina Rummel regina...@sbcglobal.net
To: tmic-list@eskimo.com
Sent: Sun, 25 Jan 2009 7:44 am
Subject: [TMIC] Lyrica
My neuro now tells me that my symptoms are caused by much more than
TM
I never tried Neurontin, opting for lyrica first and yes I had a
headache for 4-5 days and then it subsided, balance was also messed
up for a while. really took 2 weeks for the full benefit and the
addition of Amantadine to counter the sleepiness but in combination
with cymbalta gave me
I took it for about a week, the pain was almost nil but had to cease as it
cause my hands to swell terribly and my vision was beginning to
blur...Ella
**See AOL's top rated recipes
(http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
From: LifeIsJoy [mailto:[EMAIL PROTECTED]
Sent: Monday, December 10, 2007 12:12 AM
To: 'tm'
Subject: [TMIC] lyrica
My doctor and I have discussed Lyrica for my diabetic neuropathy. I
think I will try it. Those of you who have used this medication for
TM
Jersey
From: LifeIsJoy [mailto:[EMAIL PROTECTED]
Sent: Monday, December 10, 2007 12:12 AM
To: 'tm'
Subject: [TMIC] lyrica
My doctor and I have discussed Lyrica for my diabetic neuropathy. I
think I will try it. Those of you who have used this medication for
TM
with the Lyrica.
I also find there are very minimal, if any side effects. All in all...I highly
recommend giving it a try. It is not a cure...but it makes my life a lot easier.
Best wishes and good luck,
Neil
in NS
From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Sun, 9 Dec 2007 22:12:11
-0700Subject: [TMIC
Subject: RE: [TMIC] lyrica
Cookie:
I have stated this previouslyI have now been on Lyrica (450 mg)
for about 2 years. For me this has been the most effective med I have taken
for TM in 10 years. It has helped the pins needles, numbness and excessive
banding. I have encountered no side
Hi Stacy,
I had headaches for a few days as well, but they were on the mild side. I
don't suffer from headaches as a general rule, so it was unusual to have them
for those few days. I was happy to have them stop, and think it was just the
initial Lyrica in my system since I hadn't
but he told me no at the present time...he said further MRI's will be
done to see how it is doing.
- Original Message -
From: Kevin Wolfthal [EMAIL PROTECTED]
To: Tmic-list@eskimo.com
Sent: Monday, August 20, 2007 11:56 PM
Subject: Re: [TMIC] Lyrica/Neurontin
Hi Robert,
Glad
You mention that TM may be starting in your neck area. Where was the
initial lesion?
I thought that if new lesions form, the diagnosis changes. Anyone?
Kevin,
you are right- two lesions means M.S.
F
Hi Frank,
I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg
caps of Lyrica. I was told to take one Lyrica for a week with no change in
anything. Then if successful, I can take away 400mg Neurontin and add 50 more
Lyrica once per day. This is where we will start.
I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg
caps of Lyrica. I was told to take one Lyrica for a week with no change in
anything. Then if successful, I can take away 400mg Neurontin and add 50
more
Lyrica once per day.
Sounnds good to me to decrease
Hello Gang,
After more than a year suffering through too much pain than my 5200mg/day
Neurontin could handle, I have seen a new neurologist who has started me on
Lyrica as a chance of getting my pain under control. She didn't want to
increase my Neurontin, and I wasn't really interested
IN LAS VEGAS WITH MY DAUGHTER
- Original Message -
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Monday, August 20, 2007 8:52 PM
Subject: [TMIC] Lyrica/Neurontin
Hello Gang,
After more than a year suffering through too much pain than my 5200mg/day
Neurontin
:* [TMIC] Lyrica/Neurontin
Hello Gang,
After more than a year suffering through too much pain than my
5200mg/day Neurontin could handle, I have seen a new neurologist
who has started me on Lyrica as a chance of getting my pain under
control. She didn't want to increase my
-list@eskimo.com
Sent: Monday, May 07, 2007 9:17 AM
Subject: [TMIC] Lyrica
Is anybody on Lyrica and if so, could you tell me the benefits. I was
turned down for it because it's not designed to aid in Pain caused by TM.
It's supposed to be for pain caused by Diabetes which to me would be
diabetic
Gunny,
I have been on Lyrica for nearly a year now. Without it I wouldn't be able
to function. I tried Neurotin, and the whole gang of other pain medicines.
Lyrica was the only thing that worked for me. I don't understand why your
doctor would not prescribe it for you. The pain that
: Monday, May 07, 2007 10:18 AM
To: Tmic-list@eskimo.com
Subject: [TMIC] Lyrica
Is anybody on Lyrica and if so, could you tell me the benefits. I was
turned down for it because it's not designed to aid in Pain caused by
TM. It's supposed to be for pain caused by Diabetes which to me would
From: "[EMAIL PROTECTED]" [EMAIL PROTECTED]To: [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Saturday, October 28, 2006 10:37:32 PMSubject: Re: [TMIC] Lyrica and my EMG results-- my update
I'm taking 75 mg three times a day at 10, 2, and 6pm.
Priscilla in TN
I started at 50mg three times a day, then increased it after a couple of weeks. I didn't wean off neurontin but started lyrica immediately after stopping neurontin with no problems.
Priscilla in spooky TN
I had the EMG on my legs finally. Ihave been putting it off since January. I had already been told by one neuro that I had peripheral neuropathy and (as he abruptly walked out the door) "I can guarantee this isn't from MS because MSpain is not symmetrical".So I ditched that neuro and I went back
I'm taking 75 mg three times a day at 10, 2, and 6pm.
Priscilla in TN
There have been extensive discussions about Lyrica on this list and I didn't
pay much attention because it didn't concern me personally. My neuro
has now started me on it and I have a couple of questions about dosage
and side-effects. If some of you who are on Lyrica could write me
directly, we
I was on 2400mg of Neurontin
a day. New neuro switched me to 2 -75mg. of Lyrica and 4-10mg of Baclophen and
3- 300mg of neurontin. My legs have since become completely numb! So much so
that I fell and wound up with a hair-line fracture of the knee. In four years I
haven't fallen that
Trudy,
My husband just recently started taking Lyrica and had the opposite result.
After a few weeks of taking it, he has regained some sensation in his feet. He
hasn't been able to feel his feet for almost 2 years and he could feel 3 of his
toes last week. I can't say that it's a direct
I have also just begun taking Lyrica. I've had
TM 4 years, am able to use a walker to get around. I have been on 2400mg. of
Neurontin. I told my new neuro that I was concerned about my memory loss... Of
course turning 60 doesn't help. So I am to take 75mg. (lyrica) twice a
day and start
Message-From: Alan Junghans [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Thu, 11 May 2006 08:11:53 -0500Subject: [TMIC] Lyrica Progress
Just a little update on how my experience is going so far.
I have just switched over to 2 - 75mg twice daily. I do feel a little groggy this morning
Hi Everybody
I thought I would tell you about my nephew,he has Fibro, it
been 13 years. He has started taking Lyrica, 75 mgs, just 3 days ago and after
his first dose, at night, the next day his dull headache was gone. The second
day he had a little bit of the headache but today he doesn't,
in Austin
- Original Message -
From:
[EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: Thursday, February 23, 2006 8:36
PM
Subject: Re: [TMIC] Lyrica
In a message dated 2/23/2006 4:57:35 PM Central Standard Time, [EMAIL PROTECTED] writes:
I have been on Lyrica
I have been on Lyrica for over two months now. I
was taking Neurontin and Baclofen. I quit the neurontin and Baclofen a couple of
years ago and started taking Effexor which worked pretty good for my pain. I
also tried the Marinol but it made me feel to lethargic so I quit that pretty
quick.
Hi Priscilla,
Welcome back - I hope you will regularly write and keep us informed on how you are doing. I'm glad you discovered Neurontin was the cause of the diarrhea - it's not a nice thing to have to dealwith that when you have TM! Lyrica is a great med. I also take Cymbalta - I like it as
I don't write often, but I read the posts every day. I am 63 and I have had TM since May of 2001. I can walk short distances like from my front door down the sidewalk to a car, and then my legs get weak, and I have to sit a while. I have very little use of my fingers, hands, and arms which makes
/2006 4:27:52 PM
Subject: Re: [TMIC] Lyrica
Have you tried the support knee hi's? I just happend to have a
pair that I purchased years ago and put them on today. Really seems to
help. I do not mean the prescription kind but the kind that you can
buy anywhere.
Ann
, Karyne
Tyler Jenke ; 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com
Cc: [EMAIL PROTECTED]
Sent: Thursday, January 12, 2006 7:58 PM Subject:
Re: [TMIC] Lyrica (Tequila)
Actually I've never had tequila but it does sound
interesting.
Never heard the little ditty either. I'd
really have
I tried Lyrica for about ten days. At the end of that time my walking
was such that I did not know which way my legs would take me. Lyrica had
the same effect on me that Baclofin (sp) did. I took the Lyrica in
November. I am now walking better but my legs still feel like wooden solders and
.
- Original Message -
From:
To: tmic-list@eskimo.com
Sent: 1/12/2006 7:51:56 AM
Subject: [TMIC] Lyrica
I tried Lyrica for about ten days. At the end of that time my walking was such that I did not know which way my legs would take me. Lyrica had the same effect on me that Baclofin (sp
Have you tried the support knee hi's? I just happend to have a pair
that I purchased years ago and put them on today. Really seems to
help. I do not mean the prescription kind but the kind that you can buy
anywhere.
Ann in Virginia
Wow - someone else who didn't have luck with Lyrica. My legs got so weak I couldn't stand/walk alone. They still don't feel as strong as they did before the Lyrica (if you could say the word strong). I'm back to accupuncture (which really seems to be the best thing right now), riding my
That is the best med for Terry... Helps me a bit, too, (when
he's suffering)...
Sandy
I DON'T KNOW WHY A BIT
OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME
THING,
PROTECTED] ; tmic-list@eskimo.com
Sent: Thursday, January 12, 2006 10:53 AM
Subject: [TMIC] Lyrica (Tequila)
That is the best med for Terry... Helps me a bit, too, (when
he's suffering)...
Sandy
I DON'T KNOW WHY A BIT
OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME
THING,
I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME
THING, FROM WHAT YOU ALL ARE POSTING, BESIDES, IT HAS MORE FAVORABLE SIDE
EFFECTS.
I love it.
F
@eskimo.com
Cc: [EMAIL PROTECTED]
Subject: Re: [TMIC] Lyrica
(Tequila)
Ah yes, tequila the mexican gawds'
elixir of choice.
Great stuff, but stay away from the
cheapies... they burn too much going down.
The premium stuff is superb.
It helps me forget the daily
-list@eskimo.com
Cc: [EMAIL PROTECTED]
Sent: Friday, January 13, 2006 11:44
AM
Subject: RE: [TMIC] Lyrica
(Tequila)
Yum!
We must all be careful
though while consuming so as not to live up to the little
ditty:
One tequila, two tequila,
three tequila, FLOOR!
' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com
Cc: [EMAIL PROTECTED]
Sent: Thursday, January 12, 2006 6:14
PM
Subject: RE: [TMIC] Lyrica
(Tequila)
Yum!
We must all be careful
though while consuming so as not to live up to the little
ditty:
One tequila, two tequila
even better
- Original Message -
From:
Gillian
Clark
To: TM list
Sent: Thursday, January 12, 2006 6:20
PM
Subject: Re: [TMIC] Lyrica
(Tequila)
oh Karyne,
with a little bit of careful planning it can be
"one tequila,
two tequila, three tequila
I also took the Lyrica and could not tolerate it. Definitely caused
muscle weakness in legs.
Did not have any trouble getting approval for it from Anthem here in
Virginia. Physician had to write and as soon as he did drug was
approved. Just wish I could take it. Would certainly be nice to
Hi Debbie,
I have Regence Blue Shield. Funny thing, when I was giving myself high doses of methotrexate shots, they were willing to pay for my anti-nausea drug which $54.00!!! per pill!!
My neurologist says he won't give up. He will go some research on other drugs, write another letter to
Hi Mary Eden,
I don't know the cost of Lyrica, but it has been suggested to me that I do exactly that and I will call the drug rep about it. I think it is pretty expensive, as there is no generic form yet. So I've heard.
I will find out though.
Thanks - Hugs to you
Linda in Bothell, WA
I have not posted in a long time because I really had nothing to say. Now I do! I saw Dr. Kerr around 6 weeks ago. He prescribed Lyrica at that time. It took a few weeks to build up to my prescribed dosage. At first I had some poor side effects such as cramping and constipation. I contacted Dr.
Rob,
I'm so glad you have had such success with Lyrica. My neuro gave me a month supply to see ifit agreed with me and helped me. Well I had no side effects and it was the first time in almost 4 years with TM that I have had any relief from the constant burning, tingling etc. So my neuro called
Ann
I started taking it 2 weeks ago in small doses. I haven't felt any huge improvement but I have had NO SIDE EFFECTS- which for me is huge! I'm hoping as I increase the dosage it will help more.
Margie in IL
On Fri, 11 Nov 2005 21:19:26 EST, AnnDillon wrote
Is anyone talking
- Original Message -
From:
[EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Sunday, November 06, 2005 12:25
PM
Subject: [TMIC] Lyrica
Was so excited - saw my neurologist on this past Wednesday and he put me
on Lycia. He gave me a couple of samples. Went
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