I would like to write my story, but in some kind of relapse. My feet hurt so
bad and they never have before. Has anyone gone to a pain specialist? Thanks
Susan in Phoenix, AZ
On Apr 28, 2013, at 2:39 AM, Janet Dunn j.d...@shaw.ca wrote:
I woke up one morning in late August 2004 and my right
really surprised me.
Kudos to Greg!
Linda
- Original Message -
From: Beeclarkmailto:beecl...@aol.com
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Thursday, September 09, 2010 4:51 PM
Subject: Re: [TMIC] TRANSVERSE MYELITIS
My mistake... the episode is titled
I agree, Janice
From: Beeclark
Sent: Friday, September 10, 2010 12:22 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE MYELITIS
Not really... but as I told Greg on his Facebook, it really brought me back to
the day I contracted it. His experience was so very close to mine. He
Thanks!
What do you mean by the second half?
the second half hour?
My sister, who lives in Savannah, told me about a Transverse
Myelitis patient that lives near there. He will be on the
2nd half of Discovery Health channel. Dates are:
Saturday, Sept. 11 at 5:00pm
The story is about Greg Sapp who lives in Statesboro, GA. The show originally
aired this last Monday and will repeat next week. Here's a link about the show.
Unfortunately, those who don't have cable and don't get this particular station
won't be able to see it... and for those who can get it,
My mistake... the episode is titled The Toddler Who Stopped Walking and it
originally aired last Sunday night. I watched it and it was GREAT! It would be
wonderful if all the physicians who are not familiar with TM would watch!
Betty
In a message dated 09/09/10 15:42:43 Pacific Daylight
Yes, it is an hour show and it looks like it will be the 2nd half on TM.
Don't know what is on the first half.
Janice
--
From: Akua a...@artfarm.com
Sent: Thursday, September 09, 2010 5:32 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE
Betty, did you learn anything different from watching - meds, exercising, etc.?
Janice
From: Beeclark
Sent: Thursday, September 09, 2010 5:51 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE MYELITIS
My mistake... the episode is titled The Toddler Who Stopped Walking
Some folks will NEVER EVER NEVER learn how to use bcc's.oh well
BobbyJim
From: Lori Biehler To: 'Dex Packard' Cc: 'TMIC'
Sent: Sunday, June 28, 2009 8:47 PM
Subject: RE: [TMIC] Transverse Myelitis Network
Yes I know that, just doesn't seem
ladyno...@aol.com wrote:
From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM
Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I
I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch
- Original Message -
From: Todd Tarno
To: ladyno...@aol.com
Cc: TMIC
Sent: Sunday, June 28, 2009 3:25 PM
Subject: Re: [TMIC] Transverse Myelitis Network
If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!
From: Dex Packard [mailto:d...@centurytel.net]
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis
/17/09, ladyno...@aol.com ladyno...@aol.com wrote:
From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM
Jude,
First of all, I never said I PREFER the paraplegic
, 2009 3:25 PM
Subject: Re: [TMIC] Transverse Myelitis Network
That won't happen again.
We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of
how TM has hit you. But, you are right
...@aol.com
Cc: 'TMIC'
Subject: Re: [TMIC] Transverse Myelitis Network
Did it ever occur to you that every e-mail address you put in a message can
be copied by others?
- Original Message -
From: Lori Biehler mailto:lbieh...@earthlink.net
To: 'Dex Packard' mailto:d
/09, ladyno...@aol.com ladyno...@aol.com wrote:
From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM
Jude,
First of all, I never said I PREFER the paraplegic
hford.
From: Todd Tarno toddtm2...@sbcglobal.netTo: ladyno...@aol.comCc: TMIC tmic-list@eskimo.comSent: Sunday, June 28, 2009 5:25:50 PMSubject: Re: [TMIC] Transverse Myelitis Network
That won't happen again.
We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of y
Sent: Sunday, June 28, 2009 8:52:18 PM
Subject: Re: [TMIC] Transverse Myelitis Network
Good grief, Rick. Todd was not at all griping or insinuating anything. He wrote
a very gracious response to the previous e-mails in this thread.
Barbara H.
In a message dated 6/28/2009 9:19:53 P.M. Eastern
@eskimo.com; Tracey
L. Black
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black tracey.bl...@hnoins.com wrote:
From: Tracey L. Black tracey.bl...@hnoins.com
Subject: RE: [TMIC] Transverse Myelitis Network
To: ladyno...@aol.com, _heyjude48
I second that emotion
In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time,
rp...@neillsupply.com writes:
Jim:
Do you have any feedback on the new Transverse Myelitis Network many of us
have been invited to join. What is the difference between our present
network :the
-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:24 am
Subject: Re: [TMIC] Transverse Myelitis Network
Naomi,
?
Why do you think that you get more out of one group than the other?? Is there
more interaction?? More topics of interest??
?
I still am loyal
*Hi Naomi, *
*Very well said. It's like that for NMO patients also. Although we too,
suffer from non traumatic SCI, our needs are very different than the typical
TM patient. Our treatments differ greatly---many of us are on heavy duty
anti-rejection/immunosuppressant drugs, and many
...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network
Then what is holding you back?? Why don't you simply quit this site and use the
other one that you say you prefer?? What's the big deal?
?
Jude
?
In a message dated 6/15/2009 2:11:29 P.M
do not hear from us within
1 business day, please re-contact us in case your information has not been
retained
From: ladyno...@aol.com [mailto:ladyno...@aol.com]
Sent: Wednesday, June 17, 2009 1:03 PM
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Transverse Myelitis
- From: ladyno...@aol.com Sent: Jun 17, 2009 9:23 AM To: heyjude48...@aol.com, tmic-list@eskimo.com Subject: Re: [TMIC] Transverse Myelitis Network
Jude,
It's not that I think any one site is better than the other, and is not so much about interaction, as information It's just that quadriplegics
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black tracey.bl...@hnoins.com wrote:
From: Tracey L. Black tracey.bl...@hnoins.com
Subject: RE: [TMIC] Transverse Myelitis Network
To: ladyno...@aol.com, heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 1:14 PM
Message -
From: Jill Z
To: ladyno...@aol.com ; heyjude48...@aol.com ; tmic-list@eskimo.com ; Tracey
L. Black
Sent: Wednesday, June 17, 2009 6:05 PM
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black
IT IS A BETTER ONE FOR US ALL.
PATTI - WISCONSIN
From: Jill Z [mailto:jillybean60...@yahoo.com]
Sent: Wednesday, June 17, 2009 6:05 PM
To: ladyno...@aol.com; heyjude48...@aol.com; tmic-list@eskimo.com; Tracey L.
Black
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy
I was wondering this, too. I got an invite but no information and anything
I clicked on just took me back to the same invitation.
The TMIC is plenty for me and the forum (_http://www.myelitis.org/forum/_
(http://www.myelitis.org/forum/) ) is there for people who want more. The
forum is kind of
*The Transverse Myelitis Network is another great way for patients to
communicate and compare notes. Many of the TMIC members participate there.
Our own Marieke is one of the administrators. I advocate for NMO, and work
with Sandy Siegel and the TMA crew, and I also have my own site, of
: Re: [TMIC] Transverse Myelitis Network
The Transverse Myelitis Network is another great way for patients to
communicate and compare notes. Many of the TMIC members participate there.
Our own Marieke is one of the administrators. I advocate for NMO, and work
with Sandy Siegel and the TMA
...@aol.com_ (mailto:jharpe...@aol.com)
Cc: _rp...@neillsupply.com_ (mailto:rp...@neillsupply.com) ;
_jlu...@makoa.org_ (mailto:jlu...@makoa.org) ; _tmic-l...@eskimo.com_
(mailto:tmic-list@eskimo.com)
Sent: Monday, June 15, 2009 9:00 AM
Subject: Re: [TMIC] Transverse Myelitis Network
The Transverse Myelitis Association
- Original Message -
From: Grace M.
To: jharpe...@aol.com
Cc:
rp...@neillsupply.com ;
jlu...@makoa.org ;
tmic-list@eskimo.com
Sent: Monday, June 15, 2009 9:00 AM
Subject: Re: [TMIC] Transverse Myelitis Network
The Transverse Myelitis
Network is another
VERY well said, Debbie!
**Download the AOL Classifieds Toolbar for local deals at your
fingertips.
(http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members of
the TM site.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to
forget our caregivers. They need support groups too!Take care,Debbie CapenSecretaryThe Transverse Myelitis Association
- Original Message -
From: Grace M.
To: jharpe...@aol.com
Cc: rp...@neillsupply.com ; jlu...@makoa.org ; tmic-list@eskimo.com
Sent: Monday, June 15, 2009 9:00 AM
Subject:
Hi Betty,
Ella is good people to know and converse with, especially if you have
questions or problems. I am like Ella in that I have a constant buzzing
feeling throughout my body which is similar to when one of your extremities
falls asleep. I hate it...
Love You,
Jude
In
Welcome, Betty and you have come to a wonderful group of people who will
soon become friends! Just keep reading and you will soon learn all sorts of
different things about TM from physical to emotional and everything in
between. The banding you talk about is a real issue to some of us. Mine is
Betty,
Welcome to the group.
My lesion was C-5-7 and my symptoms seem very much the same as yours as far as
numbness and banding.
I like how you put that you need your eyes to see where your feet (and seat)
are. How true!
It is always a bit amusing to lose a slipper while walking through the
Jeanne,
My banding was at my bra line, too..I always said
it was the bra God paying me back for hating bras!!
The banding is rare now, after 13 years the 29th of
this month.but it does raise its head once in a
while just to prove 'he' can still wreak havoc
jan
p.s. Welcome,
Welcome Betty,
One symptom I'd say we all have is definitely the banding yet other
symptoms do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have
the
numbness but a buzzing feeling that is uncomfortable without meds. Ask us
anything you wish and you will get an answer. Have
I don't have the banding. I did at the onset of TM but not any longer.
From: alle...@aol.com [mailto:alle...@aol.com]
Sent: April-19-09 1:58 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] transverse myelitis
Welcome Betty,
One symptom I'd say we all have is definitely the banding yet
Hi Betty
Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6.
I also have balance problems and just gave in to using a walker during a short
vacation. I was surprised that I was able to walk and enjoy looking at
something besides my feet. I hadn't thought about the
...@gmail.com
Sent: Sunday, April 19, 2009 6:33 PM
Subject: Re: [TMIC] transverse myelitis
Hi Betty
Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at
C4-C6. I also have balance problems and just gave in to using a walker
during a short vacation. I was surprised that I was able
-
From: pjv1...@chartermi.net
To: tmic-list@eskimo.com; Betty Shaffer vasso...@gmail.com
Sent: Sunday, April 19, 2009 6:33 PM
Subject: Re: [TMIC] transverse myelitis
Hi Betty
Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at
C4-C6. I also have balance problems
and I am
sure you will see your problems
written out by someone else - many times with solutions.Glad you have
joined us.Janice
- Original Message -
From: jrushton
To: Betty Shaffer ; tmic
Sent: Sunday, April 19, 2009 9:15 AM
Subject: Re: [TMIC] transverse
We haven't had to pay for anything, other than a few deductibles and
co-pays b/c the secondary insurance that we have for her doesn't work
with the rehab that we took her to in Baltimore.
Tracey L. Black
Certified Insurance Service Representative
Hockley O'Donnell Insurance Agency
Phone -
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