Re: [QUAD-L] UTI?

[Lissette Whitehead]

Yes Ned, very bad burning in my bladder and very bad chills.
Yesterday I was feeling it and I was afraid I had another UTI but it turned out 
my catheter had come out, I was all wet. I hope I didn't get a UTI from that 
incident.

Sent from my iPad

On Feb 17, 2019, at 10:55 AM, Nadeana Halamar 
mailto:nadea...@gmail.com>> wrote:

U get the burning too? The doctors here look at me like im crazy

On Wed, Feb 13, 2019, 10:05 PM Lissette Whitehead 
mailto:lissw...@hotmail.com> wrote:
Greg, UTIs are my worse nightmare. I just got over one and it's not fun, I get 
constant chills and I get all clammy and lots of burning in my lower abdomen. I 
usually go to a homeopathic doctor and he takes care of it right away, I live 
in Mexico btw. Anyway, when I can't go to the doctor, I take cipro which I 
don't like at all because it causes me IBS and when I have IBS I have bowel 
accidents and that causes me UTIs. So it can be very hard to get out of that 
cycle. Lately I've been taking a lot of keifer and greek yogurt. Probiotics 
help a lot for both IBS and UTIs. I feel great at the moment and I want to keep 
it that way. Herbal teas help too.
Hope you get better soon!


Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com




[http://i157.photobucket.com/albums/t79/LISSW/webpages/LW%20GRIP%20GLOVES/LWGG-Logo62_zps5924741a.png~original]
  
[http://i157.photobucket.com/albums/t79/LISSW/7d95ed0a-10f3-4bc9-858a-4333495379e4_zps20254f73.png~original]
 


From: Greg mailto:g...@eskimo.com>>
Sent: Tuesday, February 12, 2019 5:11 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI?

I hate UTIs, I don't do sick very well, I'm a bad patient .
Just sweating, shaky, stiff, I have a small butt sore, but its healing fine. I 
went to Urgent Care and they said yes its a UTI. The antibiotics they gave me I 
think gave me Ebola, liquefied my insides. But after 3 days they said the 
culture showed no UTI. Yet I feel worse. So I went to my doc and they think 
UTI, so culturing again and going to my old standby Cipro. Also checking my 
sore for infection and blood tests. But only UTIs have ever made me feel this 
way.
Greg

Re: [QUAD-L] UTI?

[Lissette Whitehead]

Greg, UTIs are my worse nightmare. I just got over one and it's not fun, I get 
constant chills and I get all clammy and lots of burning in my lower abdomen. I 
usually go to a homeopathic doctor and he takes care of it right away, I live 
in Mexico btw. Anyway, when I can't go to the doctor, I take cipro which I 
don't like at all because it causes me IBS and when I have IBS I have bowel 
accidents and that causes me UTIs. So it can be very hard to get out of that 
cycle. Lately I've been taking a lot of keifer and greek yogurt. Probiotics 
help a lot for both IBS and UTIs. I feel great at the moment and I want to keep 
it that way. Herbal teas help too.
Hope you get better soon!


Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com




[http://i157.photobucket.com/albums/t79/LISSW/webpages/LW%20GRIP%20GLOVES/LWGG-Logo62_zps5924741a.png~original]
  
[http://i157.photobucket.com/albums/t79/LISSW/7d95ed0a-10f3-4bc9-858a-4333495379e4_zps20254f73.png~original]
 


From: Greg 
Sent: Tuesday, February 12, 2019 5:11 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI?

I hate UTIs, I don't do sick very well, I'm a bad patient .
Just sweating, shaky, stiff, I have a small butt sore, but its healing fine. I 
went to Urgent Care and they said yes its a UTI. The antibiotics they gave me I 
think gave me Ebola, liquefied my insides. But after 3 days they said the 
culture showed no UTI. Yet I feel worse. So I went to my doc and they think 
UTI, so culturing again and going to my old standby Cipro. Also checking my 
sore for infection and blood tests. But only UTIs have ever made me feel this 
way.
Greg

Re: [QUAD-L] UTI drugs, dosage & duration

[Lori Michaelson]

Gail & Bobbie & Greg and others...

I think I already wrote an entire e-mail about this the other day but my
nemesis is pathogenic Proteus Mirabilis. When my husband was still alive he
told me all about it but he also said: "There are 4 nasty pathogenic
bacteria that you don't want in your bladder and they are Proteus
Mirabilis, Pseudomonas (and there are different strains of Pseudomonas),
Salmonella & Streptococcus."

I was first diagnosed with Proteus Mirabilis in 2006.  Keep in mind it is
different from Proteus Vulgaris. Anyway, Proteus Mirabilis is like
Pseudomonas and that it is a colonizer (and my husband says it's a
"swarmer" instead of a "swimmer" under a microscope since he used to do
that for a living). It goes away sometimes but it is a sneaky bastard.

Before my husband's passing he suspected that the P. Mirabilis had come
back because I was building up increasing amounts of sediment in my
catheter. Like Bobbie, I had been in bed with a Stage III wound and getting
up on it was extremely dangerous until I was out of the water. We had a
physician order a culture and sensitivity (ALWAYS important to get a
sensitivity or sensitivity is regardless of growth and many lab technicians
don't do that on a laziness) and, sure enough, it was present again. I then
had a CT scan and found out I had 10 bladder stones. My husband passed away
before I could have them removed.

I had been removed in August 2012 along with Rosephin IV antibiotics during
the cystoscopy to laser the bladder stones and that was successful. But
after I came home she wanted me to do a Gentamicin washed into the bladder
for 10 days which I did. The sediment refused to go away and it came back
with a vengeance so I figured the P. Mirabilis was back. So the next time I
had a culture done... sure enough it was still there. I did what my
urologist and husband suggested and that was to do a daily installation of
a ratio of white vinegar and sterile water together and hold the ratio of
the two in your bladder for as long as possible. I was doing that until my
urethra was damaged by a damn home health agency nurse at the end of
January 2016. Things only got worse and therefore now I have no urethra so
bacteria easily want to climb up into my bladder from the vaginal canal or
the anus.

That same urologist used to put me on a prophylactic antibiotic around
catheter change time and that used to help. Augmentin helped get it under
control the best guy eventually got allergic to it and had a hemolytic
response to it (liver). Sometimes that is a good suggestion and sometimes
not.  My new urologist does not favor prophylactic antibiotics since they
will just build up resistance. Augmentin is a combination of amoxicillin &
clavulanic acid so I am allergic to amoxicillin as well.

Just practical info from the net:

"Commonly prescribed antibiotics are Bactrim, Amoxicillin, Ampicilin, and
Cipro. These antibiotics are often unnecessary and may cause more problems
in the future by destroying the beneficial bacteria that prevents
pathogenic bacteria from growing. Long term use of antibiotics can also
lead to antibiotic-resistant strains of bacteria like E. coli developing in
the gut, and a UTI caused by these bacteria will be even more challenging
to eliminate and can cause more serious infections like a bladder or kidney
infection.

Biofilms will build up on the inside of Foley catheters and just increase
the ability for certain pathogenic bacteria to continue on."

I most definitely wish my husband was still here because I trust him more
than I trust most doctors no matter who they are as well as laboratory
technicians who get lazy and don't do the "full job." If there is not a
certain amount of bacteria they won't do sensitivities. Bad move!

Now I just have to hope for the best and do what I can for what works. The
rest is up to fate for many of us. The problem arose when too many people
were over using antibiotics and too many doctors were prescribing them for
this or that or the other thing when they shouldn't have. But it brings in
the $$.  :-(  People with spinal cord injuries who need x-rays, CT
scans, antibiotics, power wheelchairs, hospital beds, and hundreds of other
things keep many people rich. Sorry for the cynical view because there are
many good doctors out there.

~Lori  ☀

On Sun, Jun 4, 2017 at 8:13 PM, Gail Overton  wrote:

> Bobby --
>
> My husband has been suffering with a bunch of different UTI's over the
> past 3 years. Many of the simple bacterial ones respond to oral
> medications, but he has had pseudomonas now for 2 years and despite oral,
> intravenous, and even bladder flushes, he still has it. It hibernates for
> about a month, then comes back with a vengeance with counts over 100,000.
> Most of the time it is between 50,000 and 100,000. His infection disease
> doctor now has him on another polymycin bladder flush regimen that I doubt
> will work because she's tried it twice already. This time she is dosing him
> more 

Re: [QUAD-L] UTI drugs, dosage & duration

[greg]

Yes, my doc gave my a dose to have on hand. But don't do what I did and start the antibiotics before you get a sample. It screws it up.
I just didn't want to wait the weeknd. But pee can last awhile in the frig. Though I need to find out how long.
Growth cultures should only take 3 days. I'm told.
Reg
> In the beginning of March I had a really bad UTI that required
> infusion therapy for 5 days. This was after I gave a culture to my
> GP, results coming in 7 days later with a phone call saying "You
> need to see your infectious disease doctor right away."
> I was stuck in bed with a wound, so over the phone Dr. Allegra, my
> infectious doctor, ordered the infusion drugs after getting the
> culture results through email ... having never seeing him in person.
>
> In a follow-up visit June 2nd, 2 months later, I spoke to him
> regarding the long wait for cultural results from my GP.
> Dr. Allerga wrote out a RX, so next time I had symptoms of a UTI
> all I, or Pete, have to do would be to drop off a specimen with the
> RX at the closets Labcor. I did last week and over the phone he
> prescribed amoxicillin to be taken 3 x's a day for 5 days.
>
> Does anybody else have a Doctor who does this for them? Or
> Has anybody ever taken UTI meds like I described above ? Bobbie
>
>
> "Be the change you want to see in the world". Gandhi

RE: [QUAD-L] UTI drugs, dosage & duration

[Gail Overton]

Bobby --

My husband has been suffering with a bunch of different UTI's over the past 3 
years. Many of the simple bacterial ones respond to oral medications, but he 
has had pseudomonas now for 2 years and despite oral, intravenous, and even 
bladder flushes, he still has it. It hibernates for about a month, then comes 
back with a vengeance with counts over 100,000. Most of the time it is between 
50,000 and 100,000. His infection disease doctor now has him on another 
polymycin bladder flush regimen that I doubt will work because she's tried it 
twice already. This time she is dosing him more frequently and for longer 
duration. We have another infectious disease doctor lined up if this remedy 
doesn't work. She says he is just "colonized" but someday this bug will kill 
him when he runs out of antibiotic options..

Gail

-Original Message-
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com] 
Sent: Sunday, June 04, 2017 7:39 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI drugs, dosage & duration

In the beginning of March I had a really bad UTI that required infusion therapy 
for 5 days. This was after I gave a culture to my GP, results coming in 7 days 
later with a phone call saying "You need to see your infectious disease doctor 
right away."
I was stuck in bed with a wound, so over the phone Dr. Allegra, my infectious 
doctor, ordered the infusion drugs after getting the culture results through 
email ... having never seeing him in person.

 In a follow-up visit June 2nd, 2 months later, I spoke to him regarding the 
long wait for cultural results from my GP.
Dr. Allerga wrote out a RX, so next time I had symptoms of a UTI all I, or 
Pete, have to do would be to drop off a specimen with the RX at the closets 
Labcor. I did last week and over the phone he prescribed amoxicillin to be 
taken 3 x's a day for 5 days.

Does anybody else have a Doctor who does this for them?
Or
Has anybody ever taken UTI meds like I described above ?
Bobbie 


"Be the change you want to see in the world". Gandhi

RE: [QUAD-L] UTI bug treated with a "bomb"

[Kay at Amplified Agility]

Please be sure to be seeing someone who is helping you replace all the "good 
critters" this bomb will kill.  It will wipe out your microbiome...
https://genomemedicine.biomedcentral.com/articles/10.1186/s13073-016-0294-z 



Kay Lathrop
Program Director, Amplified Agility, LLC 
1-619-501-3752 | www.amplifiedagility.com |
4275 Executive Square, Suite 200 La Jolla, CA 92037 
  



-Original Message-
From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Saturday, March 4, 2017 2:43 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI bug treated with a "bomb"

Have anybody ever had had "bomb" IV therapy at home 🏡?

I have a super bug 🐜 being treated with Tobramycin 240mgs every 24 hours for 5 
days. It's quite fascinating, the "bomb" must be refrigerated.
A infusion nurse comes out and starts the IV then instructs Pete how to do in 
on his own ... no needles involved.
The "bomb" works through  Constant delicate pressure. Pete flushes out the 
line, then attaches the "bomb" releases a clamp and it takes 1 hour for it to 
deflate ... it is so cool 😎.
Then he flashes the line again.

Blood work was taken after the line was establish and more will be taken when I 
see my infectious disease doctor in a week.

I'm so grateful for this Technology where I don't need to be in the hospital.

If anybody would like to see a picture of the "bomb" email me and I'll send it.

Bobbie 

"Be the change you want to see in the world". Gandhi

Re: [QUAD-L] UTI bug treated with a "bomb"

[greg]

Yes I had it twice. The first time my IV kept blowing. The 2nd time they put in a pic line. Lasted the whole time.. Lots better than going to ER or Doc every day for a IV. Greg
> Have anybody ever had had "bomb" IV therapy at home 🏡?
>
> I have a super bug ðŸÅ“ being treated with Tobramycin 240mgs every
> 24 hours for 5 days. It's quite fascinating, the "bomb" must be
> refrigerated.
> A infusion nurse comes out and starts the IV then instructs Pete
> how to do in on his own ... no needles involved.
> The "bomb" works through  Constant delicate pressure. Pete flushes
> out the line, then attaches the "bomb" releases a clamp and it
> takes 1 hour for it to deflate ... it is so cool 😎.
> Then he flashes the line again.
>
> Blood work was taken after the line was establish and more will be
> taken when I see my infectious disease doctor in a week.
>
> I'm so grateful for this Technology where I don't need to be in the
> hospital.
>
> If anybody would like to see a picture of the "bomb" email me and
> I'll send it.
>
> Bobbie
>
> "Be the change you want to see in the world". Gandhi

Re: [QUAD-L] UTI

[wheelchair]

Here is something to consider.  2 sticks of Asparagus each day.   Steam it 
and consume it.   Or, you can purchase a pound of it and  steam it.  When 
soften, blend it or puree it.  Place in refrig and  take 2 tablespoons daily.  
Besides, its very healthy for you.
Best Wishes
 
 
In a message dated 4/5/2016 11:23:15 A.M. Central Daylight Time,  
g...@eskimo.com writes:

High BP is very common, just  a few months ago I had to call 911 from high 
BP, sweating, blood clots coming  out my supra pubic cath, etc. From a bad 
UTI. 
 
I use to get UTIs monthly, so  I went to a daily antibiotic, 400mg Bactrim. 
Switching to KFlex now and then.  Now I get 1 every few years. Lots of docs 
frown on it, but ask them to live  with UTIs that often. If this didn't 
work, I was going to do that bladder  augmentation. I think they turn part of 
your stomach into a bladder. Suppose  to stop UTIs.


My main issue is I just don't  drink enough. I can go all day with 1 glass 
of juice. Since my last UTI, I've  been forcing myself to drink. Everyone 
says to drink cranberry juice, I try,  but saw they did a study and it said it 
didn't help. Who knows, can't  hurt.
 
Good luck, Greg
 
 
 
>> My wife SCI C5 is  back in the hospital with AD very high BP and a
>> UTI.
>>
>> Her BP has been as  high as 200/100 and as low as 60/30 in the
>> same  day.
>>
>> Seems like  a  UTI is a common thread when things get acute.  Here
>> is the question- is  BP problems a common symptom with SCI?  Is
>> the UTI a major  cause of AD?
>>
>> Has anyone tried a  low dose of antibiotic/daily as a preventive
>> med?  What  about a concentrated cranberry tablet?
>>
>> Thanks for any  help
>>
>>
>> --
>> Living in God's  Grace
>>
>>  Ron

Re: [QUAD-L] UTI

[greg]

High BP is very common, just a few months ago I had to call 911 from high BP, sweating, blood clots coming out my supra pubic cath, etc. From a bad UTI. 
 
I use to get UTIs monthly, so I went to a daily antibiotic, 400mg Bactrim. Switching to KFlex now and then. Now I get 1 every few years. Lots of docs frown on it, but ask them to live with UTIs that often. If this didn't work, I was going to do that bladder augmentation. I think they turn part of your stomach into a bladder. Suppose to stop UTIs.
My main issue is I just don't drink enough. I can go all day with 1 glass of juice. Since my last UTI, I've been forcing myself to drink. Everyone says to drink cranberry juice, I try, but saw they did a study and it said it didn't help. Who knows, can't hurt.
 
Good luck, Greg
 
 
 
>> My wife SCI C5 is back in the hospital with AD very high BP and a
>> UTI.
>>
>> Her BP has been as high as 200/100 and as low as 60/30 in the
>> same day.
>>
>> Seems like  a UTI is a common thread when things get acute.  Here
>> is the question- is BP problems a common symptom with SCI?  Is
>> the UTI a major cause of AD?
>>
>> Has anyone tried a low dose of antibiotic/daily as a preventive
>> med?  What about a concentrated cranberry tablet?
>>
>> Thanks for any help
>>
>>
>> --
>> Living in God's Grace
>>
>> Ron

Re: [QUAD-L] UTI

[daanoo53]

I have a lot of UTIs and I have been told by infectious disease doctors at KU 
medical center that these drugs are usually not effective because we become we 
become immune to them. I have been on several daily antibiotics. I have been in 
the hospital 4 times in the hospital since November with UTIs.

Hi Dr. Ron and Sharon, I have not had the pleasure of knowing you on the list, 
it is nice to meet you.

I am not aware with your level of disability and years post.
because I have not been reading it a lot lately. I have been in the hospital 
and out so many times. Oral medications do not work on me anymore for UTIs. I 
have to go in the hospital for at least three day, Before the culture grows and 
they put me on a IV and then send me home with a midline or pic line. I then 
had home health to change the dressings and do bloodwork.
I do take a probiotic called Proural that a urologist told me to take more than 
a year ago. I order it online. I don't know if it helps, but he advised it 
after I've had 3 lithotripsy's for kidney stones. I had a fourth one in 
November 2015.
Dana C4-5 quadriplegic, 41 years post last July 26.
I have a tracheostomy button, ilio conduit it 86



Sent from my iPhone

> On Mar 25, 2016, at 5:46 PM, Dr.Ron and Sharion Austin 
>  wrote:
> 
> My wife SCI C5 is back in the hospital with AD very high BP and a UTI.
> Her BP has been as high as 200/100 and as low as 60/30 in the same day.
> Seems like  a UTI is a common thread when things get acute.  Here is the 
> question- is BP problems a common symptom with SCI?  Is the UTI a major cause 
> of AD?
> Has anyone tried a low dose of antibiotic/daily as a preventive med?  What 
> about a concentrated cranberry tablet?
> Thanks for any help
> 
> 
> -- 
> Living in God's Grace
> Ron

Re: [QUAD-L] UTI

[wheelchair]

Yes to your questions.  I hope the Uro is well informed with  Quads.  This 
is important.  If they or you have any questions, you can  contact Craig 
Hospital SCI Hotline for both medical and health issues.
 
Best Wishes
 
 
In a message dated 3/25/2016 5:47:11 P.M. Central Daylight Time,  
ronausti...@gmail.com writes:

 
My wife SCI C5 is back in  the hospital with AD very high BP and a UTI.

Her BP has been as high as  200/100 and as low as 60/30 in the same day.

Seems like  a UTI is a  common thread when things get acute.  Here is the 
question- is BP  problems a common symptom with SCI?  Is the UTI a major 
cause of  AD?

Has anyone tried a low dose  of antibiotic/daily as a preventive med?  What 
about a concentrated  cranberry tablet?

Thanks for any  help




--  

 
 
Living in God's Grace

Ron

Re: [QUAD-L] UTI

[Quad Dude]

Dr. Ron,

BP problems are common with SCI, whether it be attributed to a UTI, bowel
issue, skin sore, and positioning (laying flat or sitting upright) to name
several. When I have a bad UTI, my BP typically plummets. I spent 5 days in
the hospital last month with a bad UTI that went septic and caused septic
shock and dropped my blood pressure dangerously low.

I have been on and off of prophylactic antibiotics for UTI prevention
during the 28 years of my injury. It's always a low dose (half or less the
usual) ranging from as often as daily to as little as twice a week
depending on the urologist (I've had 3 over the years). One thing each
urologist agreed on is if you opt for taking a prophylactic antibiotic, it
should be changed periodically, perhaps every 3, 6, or at least 12 months
to prevent your body from developing resistance to it.

I have periodically used cranberry tablets in various dosages throughout my
years of injury. I frankly have no idea whether they help or not. If they
are affordable for you they cannot hurt.

The absolute best things for UTI prevention are using good sterile/hygiene
practices and a routine schedule of catheter changes and irrigation if
applicable.

I hope this helps…

Steve - C4, 28 years

P.S. I'm not a doctor, but I have stayed at a Holiday Inn (if you remember
the commercials). :-)

On Fri, Mar 25, 2016 at 6:46 PM, Dr.Ron and Sharion Austin <
ronausti...@gmail.com> wrote:

> My wife SCI C5 is back in the hospital with AD very high BP and a UTI.
> Her BP has been as high as 200/100 and as low as 60/30 in the same day.
> Seems like  a UTI is a common thread when things get acute.  Here is the
> question- is BP problems a common symptom with SCI?  Is the UTI a major
> cause of AD?
> Has anyone tried a low dose of antibiotic/daily as a preventive med?  What
> about a concentrated cranberry tablet?
> Thanks for any help
>
>
> --
> Living in God's Grace
> Ron
>

Re: [QUAD-L] UTI

[Carolyn Boyles]

I know this works for kidney stones and it may help for UTIs.

I'll give you links to the webpages for the items you need. I'm not 
associated with any of the mentioned companies. I did this research many 
years ago for my husband who gets kidney stones.


1. The first item you'll need is the system in which to make the tea you 
are going to drink:


http://www.amazon.com/Mr-Coffee-2-Quart-Iced-Maker/dp/B5OTXI/ref=sr_1_1?ie=UTF8&qid=1458947166&sr=8-1&keywords=mr.+coffee+iced+tea

Buy this at any retailer of your choice that sells it. Also buy the 
filters that go into the basket. They're regular paper coffee filters.


2. The second item you will need is tea, but not Lipton or most anything 
sold in grocery stores because that type of tea causes kidney stones. 
What you need is Rooibos tea. Various companies sell this such as The 
Repubic of Tea, health food stores, etc. Buy whatever flavor you would 
like to drink (without caffeine).


3. The third item is the sweetener of your choice. I'm not a fan of 
artificial sweeteners, but go with what works for you.


4. Finally, the most important item in this is ground watermelon seeds:

http://heritagestore.com/watermelon-seeds-cut-4oz-food.html 



A few other companies sell them, but this is the cheapest I have found 
them. The packets of seeds need to be refrigerated after being opened, 
but they last forever.


Brew the tea according to the instruction and add about 1/4 cup of the 
seeds to the filter basket. You will need a lot of sweetener because the 
tea by itself is very bitter. This has saved my husband from lithotripsy 
many times and has cured a few UTIs over the years.


Carolyn

Re: [QUAD-L] UTI

[greg]

I usually take Cipro, and when first tested I got a shot and Cipro, but a few 
days later after it was cultured they called and said Cipro was the wrong kind. 
They switched to Ampicillin, a big pill 4x a day, but it made me vary sick. So 
they switched it to Augmentin. I'm hoping I'll start feelig better soon.The 
Ampicillin made me feel worse than the UTI/
Greg

> Ive been there before. What are you on? Cipro works well for me.

Re: [QUAD-L] UTI

[jume9999]

Ive been there before. What are you on? Cipro works well for me. 

Meredith 

- Original Message -

From: "greg"  
To: "quad-list"  
Sent: Tuesday, October 20, 2015 9:52:04 AM 
Subject: [QUAD-L] UTI 

I got a UTI this week, first bad one in a long time. The antibiotic made me 
almost get sick. I do not do sick very well. When I feel bad, I have a hard 
time laying in bed. Twice this week I actually stayed up in my chair all night 
instead of laying down. I felt like I was going to get sick and hate that 
feeling in bed. I actually sleep almost as well in my chair. I recline over a 
big stuffed chair, with pillows on each side, so my arms don't hang down. Every 
time I wakeup I sit up for a few minutes just to move around a bit. I called 
the doc to switch pills, I just can't tak them anymore. 
Greg 

Re: [QUAD-L] UTI Hell

[wheelchair]

Test Strips have a range of 4.5- 9.0.6.5 is about  normal.  I would 
always recommend that you ask your Urologist what is best  for you, to 
determine when your acid levels are the lowest.  Once again,  what ever is best 
for 
YOU.  Usually a test is done in the mid-morning and  mid-afternoon depending 
on your liquid intake.  Once again, this is between  you and your 
Urologist.  If your urine develops too much alkaline, you  could create an 
environment to assist bacteria in populating.
I hope this helps.
Best Wishes
 
 
In a message dated 10/28/2012 12:53:29 P.M. Central Daylight Time,  
moo_on_whe...@yahoo.com writes:

 
First of all, thanks to everyone who replied to this topic. I feel  more 
informed now, which makes it easier to deal with the  situation.


Wheelchair,  I have a question for you- what kind of pH strips should I 
buy? There are  different ranges; there are tapes or sticks. :P Also, is 
"normal" pH range for  quads the same as everyone else?


Thank  you!
Mandy  c6-7 

 
 
 
  

 From: "wheelch...@aol.com"  
To: moo_on_whe...@yahoo.com 
Sent: Friday, October 19, 2012 8:58  AM
Subject: Re: [QUAD-L] UTI  Hell



 
Test, Test Test.  Document your results.
Best Wishes
 
 
In a message dated 10/19/2012 12:54:49 A.M. Central Daylight Time,  
moo_on_whe...@yahoo.com writes:

Wheelchair, I didn't know that about pomegranates. Yummy! I have heard  
tart cherry may have the same effect on the urinary tract as cranberries-  does 
that ring any bells with you? I used to take tart cherry and vitamin E  for 
inflammation when I was lifting heavy. I've started back on cherry and  
also added d-mannose.


Danny, that would figure. We can create an alkaline environment to hold  
off pseudomonas or we can create an acidic environment to hold off other UTI  
bugs. What a choice!


Bourbon...mmm now we're talkin. I'm a fan of Wild Turkey, but such a  snob 
that I prefer a single malt scotch straight from Scotchland itself. LOL  
Give me a shot of Glenlivet and a dark ale and I'm a happy girl. :)


Actually, I heard that unfiltered beer is good for preventing/warding  off 
UTIs. I live in the micro brewery capital of America. Hmm. Think someone  is 
trying to tell me something? Hehehe


Mandy c6-7


On Oct 17, 2012, at 11:00 AM, Danny Hearn <_ddh247@sbcglobal.net_ 
(mailto:ddh...@sbcglobal.net) >  wrote:




 
A few years ago I resarched on a lot of these bacteria infections  
also--one weird fact that I learned was that PSEUDAMONAS actually  thrives 
even 
better on acid invironment, pretty strange isn't it?  DanH.


 

 From: Don Price <_donprice63@yahoo.com_ (mailto:donpric...@yahoo.com) >
To: Larry Willis <_lwillis82153@msn.com_ (mailto:lwillis82...@msn.com) >; 
"_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) " 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent: Wed, October 17, 2012 11:24:14  AM
Subject: Re: Fwd:  [QUAD-L] UTI Hell



It's funny the bourbon subject came up here. I was doing a little  
'research' just this past weekend. Bulleit is my favorite, but more  research 
is 
needed.  :)
 
One note regarding bladder acidity and fruit juices: I was told in  rehab 
that citrus juices, while acidic, are NOT good for preventing UTIs.  I don't 
remember why, but I'll research that. Another thing to remember:  sugar is 
bad. If you're drinking juices, try to get the unsweetened  kind.
 
Don.






=

Re: [QUAD-L] UTI Hell

[Mandy T]

First of all, thanks to everyone who replied to this topic. I feel more 
informed now, which makes it easier to deal with the situation.

Wheelchair, I have a question for you- what kind of pH strips should I buy? 
There are different ranges; there are tapes or sticks. :P Also, is "normal" pH 
range for quads the same as everyone else?

Thank you!
Mandy c6-7 
 


 From: "wheelch...@aol.com" 
To: moo_on_whe...@yahoo.com 
Sent: Friday, October 19, 2012 8:58 AM
Subject: Re: [QUAD-L] UTI Hell
 

Test, Test Test.  Document your results.
Best Wishes
 
In a message dated 10/19/2012 12:54:49 A.M. Central Daylight Time, 
moo_on_whe...@yahoo.com writes:
Wheelchair, I didn't know that about pomegranates. Yummy! I have heard  tart 
cherry may have the same effect on the urinary tract as cranberries- does  that 
ring any bells with you? I used to take tart cherry and vitamin E for  
inflammation when I was lifting heavy. I've started back on cherry and also  
added d-mannose.
>
>
>Danny, that would figure. We can create an alkaline environment to hold  off 
>pseudomonas or we can create an acidic environment to hold off other UTI  
>bugs. What a choice!
>
>
>Bourbon...mmm now we're talkin. I'm a fan of Wild Turkey, but such a snob  
>that I prefer a single malt scotch straight from Scotchland itself. LOL Give  
>me a shot of Glenlivet and a dark ale and I'm a happy girl. :)
>
>
>Actually, I heard that unfiltered beer is good for preventing/warding off  
>UTIs. I live in the micro brewery capital of America. Hmm. Think someone is  
>trying to tell me something? Hehehe
>
>
>Mandy c6-7
>
>
>On Oct 17, 2012, at 11:00 AM, Danny Hearn   wrote:
>
>
>A few years ago I resarched on a lot of these bacteria infections  
>also--one weird fact that I learned was that PSEUDAMONAS actually  thrives 
>even better on acid invironment, pretty strange isn't it?  DanH.
>>
>>
>>
>>
>>
>> From: Don Price 
>>To: Larry Willis ; "quad-list@eskimo.com" 
>>
>>Sent: Wed, October 17, 2012 11:24:14  AM
>>Subject: Re: Fwd:  [QUAD-L] UTI Hell
>>
>>
>> 
>>It's funny the bourbon subject came up here. I was doing a little  'research' 
>>just this past weekend. Bulleit is my favorite, but more research  is 
>>needed.  :)
>> 
>>One note regarding bladder acidity and fruit juices: I was told in  rehab 
>>that citrus juices, while acidic, are NOT good for preventing UTIs. I  don't 
>>remember why, but I'll research that. Another thing to remember: sugar  is 
>>bad. If you're drinking juices, try to get the unsweetened kind.
>> 
>>Don.=

Re: [QUAD-L] UTI Hell

[Mandy]

Wheelchair, I didn't know that about pomegranates. Yummy! I have heard tart 
cherry may have the same effect on the urinary tract as cranberries- does that 
ring any bells with you? I used to take tart cherry and vitamin E for 
inflammation when I was lifting heavy. I've started back on cherry and also 
added d-mannose.

Danny, that would figure. We can create an alkaline environment to hold off 
pseudomonas or we can create an acidic environment to hold off other UTI bugs. 
What a choice!

Bourbon...mmm now we're talkin. I'm a fan of Wild Turkey, but such a snob that 
I prefer a single malt scotch straight from Scotchland itself. LOL Give me a 
shot of Glenlivet and a dark ale and I'm a happy girl. :)

Actually, I heard that unfiltered beer is good for preventing/warding off UTIs. 
I live in the micro brewery capital of America. Hmm. Think someone is trying to 
tell me something? Hehehe

Mandy c6-7

On Oct 17, 2012, at 11:00 AM, Danny Hearn  wrote:

> A few years ago I resarched on a lot of these bacteria infections 
> also--one weird fact that I learned was that PSEUDAMONAS actually thrives 
> even better on acid invironment, pretty strange isn't it? DanH.
> 
> From: Don Price 
> To: Larry Willis ; "quad-list@eskimo.com" 
> 
> Sent: Wed, October 17, 2012 11:24:14 AM
> Subject: Re: Fwd: [QUAD-L] UTI Hell
> 
>  
> It's funny the bourbon subject came up here. I was doing a little 'research' 
> just this past weekend. Bulleit is my favorite, but more research is needed.  
> :)
>  
> One note regarding bladder acidity and fruit juices: I was told in rehab that 
> citrus juices, while acidic, are NOT good for preventing UTIs. I don't 
> remember why, but I'll research that. Another thing to remember: sugar is 
> bad. If you're drinking juices, try to get the unsweetened kind.
>  
> Don.

Re: [QUAD-L] UTI Hell

[Mandy]

Sounds like you know where I'm coming from in several areas, Candle!

Unfortunately, my veins were bad pre accident. :( At least now (after a recent 
bone scan) I know of one woman on the IV team at my local hospital who got a 
good IV line on me in one stick. Granted, it was only in use for one 
injection...

I'm allergic to cranberries! Can you believe it, the one thing I'm told to 
drink a ton of and it's the only thing I'm dangerously reactive to. Grrr...

Mandy c6-7

On Oct 15, 2012, at 8:14 PM, Candle  wrote:

> The doctor actually is very concerned with me and bacteria. I don't seem to 
> get rid of them. I had MRSA three times in the last two years, hospitalized 
> twice in one month. I get UTIs quite often. So often that I am drinking 
> cranberry juice daily and even eating dried cranberries. With me, prevention 
> seems to work best. As for antibiotics, they give me constipation or very 
> loose stools. Not too much in the middle for me.
>  
> When I have constipation, nothing much seems to help. So, not sure what to 
> tell you on that, other than my doctor keeps a close eye on me and my 
> infections.
>  
> As for bad veins, I had horrible veins when I was in the hospital for a gall 
> bladder surgery. One vein bulged up as they tried to insert the IV and you 
> could see it bubble and pop. They told me that when people get ill or deal 
> with chronic health problems that the veins don't always cooperate. Since I 
> have been out of the hospital, I have had to get two blood tests and those 
> times were fine, but I wasn't sick. They were trying to determine if I needed 
> something special, but they never said if that was a PICC or port and 
> finally, they found someone who could find a decent vein.
>  
> I saw an infectious disease specialist when I had MRSA that wouldn't go away. 
> He basically monitored me and had follow up to make sure I wasn't still 
> carrying a fever and was sick. He finally gave me a clean bill of health and 
> then I didn't have to see him any longer. I think that he was watching my 
> MRSA and determining the strain which was supposed to give them the idea of 
> what antibiotic would be best.
>  
> Candle 
> "Scars remind of us where we’ve been, they don’t have to dictate where we are 
> going." ~David Rossi of Criminal Minds
> ***
> 
> From: Mandy 
> 
> I've been battling a persistent pseudomonas bladder infection on and off 
> since May. This last one has kicked my butt, leaving me weak and tired, and 
> I've tried two strong antibiotics with no results. Any time I change meds, 
> especially with antibiotics, I get constipated. The week before last (when I 
> was on Rocephin) I went 5 days without going and wanted someone to just shoot 
> me.
> 
> Anyway, after I got off that drug the BOP went back to normal, but my UA came 
> back positive again and I started another antibiotic on Friday. I haven't 
> pooped since then. 
> 
> Does anyone else have this problem with antibiotics? Does anyone else have 
> experience with pseudomonas? It was easier getting rid of the staph infection 
> I had in March. :( A quad friend recommended finding an infectious disease 
> doctor. 
> 
> The other question I had is in regards to IV drugs. I have BAD veins- the 
> last 3 hospital visits the nurses, IV team, flight crew, tried to get an IV 
> and no one was successful. I had a PICC line early on (the head of radiology 
> had to put it in...it took him 3 hours) and my doc is thinking about putting 
> either a PICC or a port in now if I need to switch to an IV med. Opinions? 
> I'm not sure which would be better/easier to put in.
> 
> Thanks,
> Mandy, c6-7
> 
> I would like to come back as a palo santo tree on the weather side of an 
> island, so that I could be, myself, a perfect witness, and look, mute, and 
> wave my arms. -Annie Dillard
> 
> 

Re: [QUAD-L] UTI Hell

[wheelchair]

Researching is good!  May you achieve you goals!
Best Wishes
 
 
In a message dated 10/17/2012 11:24:12 A.M. Central Daylight Time,  
donpric...@yahoo.com writes:

 

It's funny the bourbon subject came up here. I was doing a little  
'research' just this past weekend. Bulleit is my favorite, but more research  
is 
needed.  :)
 
One note regarding bladder acidity and fruit juices: I was told in rehab  
that citrus juices, while acidic, are NOT good for preventing UTIs. I don't  
remember why, but I'll research that. Another thing to remember: sugar is 
bad.  If you're drinking juices, try to get the unsweetened kind.
 
Don.

Re: [QUAD-L] UTI Hell

[wheelchair]

Oh in that case, travel a tad bit further for some Wild Turkey  
(Lawrenceburg) and git two bottles.  Keep in mind that both were designed  for 
sippin.  (smiling) ( I love my collection of sippin jars)
Best Wishes
 
 
In a message dated 10/16/2012 5:44:40 P.M. Central Daylight Time,  
lwillis82...@msn.com writes:

Maker's Mark is a fine premium bourbon created just a few miles from me  
here in ol' Kentucky! I doubt if drinking it would cure a UTI, but it sure  
would take your mind off it for a while.:)

Sent from my iPad

Begin forwarded message:



From: _jume@comcast.net_ (mailto:jume9...@comcast.net) 
Date:  October 16, 2012 3:54:59 PM EDT
To: Larry Willis <_lwillis82153@msn.com_ (mailto:lwillis82...@msn.com) >
Subject:  Re: [QUAD-L] UTI Hell






What is  Makers Mark?

 

From: "Larry Willis" <_lwillis82153@msn.com_ (mailto:lwillis82...@msn.com) >
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Tuesday, October 16, 2012 12:52:50 PM
Subject: Fwd: [QUAD-L]  UTI Hell

_Saw a report on the noon news today that said just released study found  
cranberry juice has zero effect on bladder health. Well, now, ain't that a  
fine howdy! I was thinking of switching to Maker's Mark anyway. I know it  
kills germs!

Sent from my iPad

Begin forwarded message:



Resent-From: _ (mailto:quad-list@eskimo.com) _quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com) 
From:  (mailto:wheelch...@aol.com) _wheelchair@aol.com_ 
(mailto:wheelch...@aol.com) 
Date: October 16, 2012  10:12:36 AM EDT
To:  (mailto:quad-list@eskimo.com) _quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com) 
Subject: Re: [QUAD-L]  UTI Hell






Now might be a good time to mention the seasonal Pomegranates, blue  
berries, and raspberry/ strawberries.
Pomegranates are in season and very healthy for one's bladder.   They also 
makes a nice snack too.
 
Best Wishes
 
 
In a message dated 10/15/2012 9:14:43 P.M. Central Daylight Time, 
_silverstreams@sbcglobal.net_ (mailto:silverstre...@sbcglobal.net)  writes:

 
The doctor actually is very concerned with me and bacteria. I  don't seem 
to get rid of them. I had MRSA three times in the last two  years, 
hospitalized twice in one month. I get UTIs quite often. So often  that I am 
drinking 
cranberry juice daily and even eating dried  cranberries. With me, 
prevention seems to work best. As for antibiotics,  they give me constipation 
or very 
loose stools. Not too much in the  middle for me. 
 
When  I have constipation, nothing much seems to help. So, not sure what to 
 tell you on that, other than my doctor keeps a close eye on me and my  
infections.
 
As  for bad veins, I had horrible veins when I was in the hospital for a  
gall bladder surgery. One vein bulged up as they tried to insert the IV  and 
you could see it bubble and pop. They told me that when people get  ill or 
deal with chronic health problems that the veins don't always  cooperate. 
Since I have been out of the hospital, I have had to get two  blood tests and 
those times were fine, but I wasn't sick. They were  trying to determine if I 
needed something special, but they never said  if that was a PICC or port 
and finally, they found someone who could  find a decent vein.
 
I  saw an infectious disease specialist when I had MRSA that wouldn't go  
away. He basically monitored me and had follow up to make sure I wasn't  
still carrying a fever and was sick. He finally gave me a clean bill of  health 
and then I didn't have to see him any longer. I think that he was  watching 
my MRSA and determining the strain which was supposed to give  them the idea 
of what antibiotic would be best.

 
Candle  
"Scars remind  of us where we’ve been, they don’t have to dictate where we 
are going."  ~David Rossi of Criminal  Minds
***



 
 

From: Mandy  <_moo_on_wheels@yahoo.com_ (mailto:moo_on_whe...@yahoo.com) > 

I've been  battling a persistent pseudomonas bladder infection on and off 
since  May. This last one has kicked my butt, leaving me weak and tired, and  
I've tried two strong antibiotics with no results. Any time I change  meds, 
especially with antibiotics, I get constipated. The week before  last (when 
I was on Rocephin) I went 5 days without going and wanted  someone to just 
shoot me.

Anyway, after I got off that drug the  BOP went back to normal, but my UA 
came back positive again and I  started another antibiotic on Friday. I 
haven't pooped since then.  

Does anyone else have this problem with antibiotics? Does anyone  else have 
experience with pseudomonas? It was easier getting rid of the  staph 
infection I had in March. :( A quad friend recommended finding an  infectious 
disease doctor. 

The other question I had is in  regards to IV drugs. I have BAD veins- the 
last 3 hospital

Re: [QUAD-L] UTI Hell

[wheelchair]

Actually, you are correct.  Cranberry, is not a cure, but a  preventive, by 
coating the lining of the bladder.  Just as Orange Juice,  and Vit C can 
create an acidic environment in the bladder.  Bacteria  doesn't do well in an 
acidic environment.  I can't really comment on the  effectiveness of 
spirits, as it takes pretty much by the time it hits the  bladder.  Why don't 
you 
test that convention and report back   (smiling)
Test strips to measure the PH is a good start
Best Wishes
 
 
In a message dated 10/16/2012 2:50:09 P.M. Central Daylight Time,  
lwillis82...@msn.com writes:

Saw a report on the noon news today that said just released study found  
cranberry juice has zero effect on bladder health. Well, now, ain't that a  
fine howdy! I was thinking of switching to Maker's Mark anyway. I know it  
kills germs!

Sent from my iPad

Begin forwarded message:



Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
From:  _wheelchair@aol.com_ (mailto:wheelch...@aol.com) 
Date:  October 16, 2012 10:12:36 AM EDT
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] UTI Hell






Now might be a good time to mention the seasonal Pomegranates, blue  
berries, and raspberry/ strawberries.
Pomegranates are in season and very healthy for one's bladder.   They also 
makes a nice snack too.
 
Best Wishes
 
 
In a message dated 10/15/2012 9:14:43 P.M. Central Daylight Time, 
_silverstreams@sbcglobal.net_ (mailto:silverstre...@sbcglobal.net)   writes:

 
The doctor actually is very concerned with me and bacteria. I  don't seem 
to get rid of them. I had MRSA three times in the last two  years, 
hospitalized twice in one month. I get UTIs quite often. So often  that I am 
drinking 
cranberry juice daily and even eating dried  cranberries. With me, 
prevention seems to work best. As for antibiotics,  they give me constipation 
or very 
loose stools. Not too much in the middle  for me. 
 
When  I have constipation, nothing much seems to help. So, not sure what to 
tell  you on that, other than my doctor keeps a close eye on me and my  
infections.
 
As  for bad veins, I had horrible veins when I was in the hospital for a 
gall  bladder surgery. One vein bulged up as they tried to insert the IV and 
you  could see it bubble and pop. They told me that when people get ill or 
deal  with chronic health problems that the veins don't always cooperate. 
Since  I have been out of the hospital, I have had to get two blood tests and  
those times were fine, but I wasn't sick. They were trying to determine if  I 
needed something special, but they never said if that was a PICC or port  
and finally, they found someone who could find a decent vein.
 
I  saw an infectious disease specialist when I had MRSA that wouldn't go  
away. He basically monitored me and had follow up to make sure I wasn't  
still carrying a fever and was sick. He finally gave me a clean bill of  health 
and then I didn't have to see him any longer. I think that he was  watching 
my MRSA and determining the strain which was supposed to give  them the idea 
of what antibiotic would be best.

 
Candle 
"Scars remind of  us where we’ve been, they don’t have to dictate where we 
are going."  ~David Rossi of Criminal  Minds
***



 
 

From: Mandy <_moo_on_wheels@yahoo.com_ (mailto:moo_on_whe...@yahoo.com) >  

I've been battling a persistent pseudomonas bladder infection on  and off 
since May. This last one has kicked my butt, leaving me weak and  tired, and 
I've tried two strong antibiotics with no results. Any time I  change meds, 
especially with antibiotics, I get constipated. The week  before last (when 
I was on Rocephin) I went 5 days without going and  wanted someone to just 
shoot me.

Anyway, after I got off that drug  the BOP went back to normal, but my UA 
came back positive again and I  started another antibiotic on Friday. I 
haven't pooped since then.  

Does anyone else have this problem with antibiotics? Does anyone  else have 
experience with pseudomonas? It was easier getting rid of the  staph 
infection I had in March. :( A quad friend recommended finding an  infectious 
disease doctor. 

The other question I had is in regards  to IV drugs. I have BAD veins- the 
last 3 hospital visits the nurses, IV  team, flight crew, tried to get an IV 
and no one was successful. I had a  PICC line early on (the head of 
radiology had to put it in...it took him 3  hours) and my doc is thinking about 
putting either a PICC or a port in now  if I need to switch to an IV med. 
Opinions? I'm not sure which would be  better/easier to put in.

Thanks,
Mandy, c6-7

I would like  to come back as a palo santo tree on the weather side of an 
island, so  that I could be, myself, a perfect witness, and look, mute, and 
wave my  arms. -Annie  Dillard









=

Re: [QUAD-L] UTI Hell

[wheelchair]

Now might be a good time to mention the seasonal Pomegranates, blue  
berries, and raspberry/ strawberries.
Pomegranates are in season and very healthy for one's bladder.  They  also 
makes a nice snack too.
 
Best Wishes
 
 
In a message dated 10/15/2012 9:14:43 P.M. Central Daylight Time,  
silverstre...@sbcglobal.net writes:

 
The doctor actually is very concerned with me and bacteria. I don't  seem 
to get rid of them. I had MRSA three times in the last two years,  
hospitalized twice in one month. I get UTIs quite often. So often that I am  
drinking 
cranberry juice daily and even eating dried cranberries. With me,  
prevention seems to work best. As for antibiotics, they give me constipation  
or very 
loose stools. Not too much in the middle for me. 
 
When  I have constipation, nothing much seems to help. So, not sure what to 
tell you  on that, other than my doctor keeps a close eye on me and my  
infections.
 
As  for bad veins, I had horrible veins when I was in the hospital for a 
gall  bladder surgery. One vein bulged up as they tried to insert the IV and 
you  could see it bubble and pop. They told me that when people get ill or 
deal  with chronic health problems that the veins don't always cooperate. 
Since I  have been out of the hospital, I have had to get two blood tests and 
those  times were fine, but I wasn't sick. They were trying to determine if I 
needed  something special, but they never said if that was a PICC or port 
and finally,  they found someone who could find a decent vein.
 
I  saw an infectious disease specialist when I had MRSA that wouldn't go 
away. He  basically monitored me and had follow up to make sure I wasn't still 
carrying  a fever and was sick. He finally gave me a clean bill of health 
and then I  didn't have to see him any longer. I think that he was watching 
my MRSA and  determining the strain which was supposed to give them the idea 
of what  antibiotic would be best.

 
Candle 
"Scars remind of us  where we’ve been, they don’t have to dictate where we 
are going."  ~David Rossi of Criminal Minds
***



 
 

From: Mandy   

I've been battling a  persistent pseudomonas bladder infection on and off 
since May. This last one  has kicked my butt, leaving me weak and tired, and 
I've tried two strong  antibiotics with no results. Any time I change meds, 
especially with  antibiotics, I get constipated. The week before last (when 
I was on Rocephin)  I went 5 days without going and wanted someone to just 
shoot  me.

Anyway, after I got off that drug the BOP went back to normal, but  my UA 
came back positive again and I started another antibiotic on Friday. I  
haven't pooped since then. 

Does anyone else have this problem with  antibiotics? Does anyone else have 
experience with pseudomonas? It was easier  getting rid of the staph 
infection I had in March. :( A quad friend  recommended finding an infectious 
disease doctor. 

The other question I  had is in regards to IV drugs. I have BAD veins- the 
last 3 hospital visits  the nurses, IV team, flight crew, tried to get an IV 
and no one was  successful. I had a PICC line early on (the head of 
radiology had to put it  in...it took him 3 hours) and my doc is thinking about 
putting either a PICC  or a port in now if I need to switch to an IV med. 
Opinions? I'm not sure  which would be better/easier to put in.

Thanks,
Mandy, c6-7

I  would like to come back as a palo santo tree on the weather side of an 
island,  so that I could be, myself, a perfect witness, and look, mute, and 
wave my  arms. -Annie  Dillard

Re: [QUAD-L] UTI Hell

[Candle]

The doctor actually is very concerned with me and bacteria. I don't seem to get 
rid of them. I had MRSA three times in the last two years, hospitalized twice 
in one month. I get UTIs quite often. So often that I am drinking cranberry 
juice daily and even eating dried cranberries. With me, prevention seems to 
work best. As for antibiotics, they give me constipation or very loose stools. 
Not too much in the middle for me. 
 
When I have constipation, nothing much seems to help. So, not sure what to tell 
you on that, other than my doctor keeps a close eye on me and my infections.
 
As for bad veins, I had horrible veins when I was in the hospital for a gall 
bladder surgery. One vein bulged up as they tried to insert the IV and you 
could see it bubble and pop. They told me that when people get ill or deal with 
chronic health problems that the veins don't always cooperate. Since I have 
been out of the hospital, I have had to get two blood tests and those times 
were fine, but I wasn't sick. They were trying to determine if I needed 
something special, but they never said if that was a PICC or port and finally, 
they found someone who could find a decent vein.
 
I saw an infectious disease specialist when I had MRSA that wouldn't go away. 
He basically monitored me and had follow up to make sure I wasn't still 
carrying a fever and was sick. He finally gave me a clean bill of health and 
then I didn't have to see him any longer. I think that he was watching my MRSA 
and determining the strain which was supposed to give them the idea of what 
antibiotic would be best.

Candle 
"Scars remind of us where we’ve been, they don’t have to dictate where we are 
going." ~David Rossi of Criminal Minds
***
 


 From: Mandy   
I've been battling a persistent pseudomonas bladder infection on and off since 
May. This last one has kicked my butt, leaving me weak and tired, and I've 
tried two strong antibiotics with no results. Any time I change meds, 
especially with antibiotics, I get constipated. The week before last (when I 
was on Rocephin) I went 5 days without going and wanted someone to just shoot 
me.

Anyway, after I got off that drug the BOP went back to normal, but my UA came 
back positive again and I started another antibiotic on Friday. I haven't 
pooped since then. 

Does anyone else have this problem with antibiotics? Does anyone else have 
experience with pseudomonas? It was easier getting rid of the staph infection I 
had in March. :( A quad friend recommended finding an infectious disease 
doctor. 

The other question I had is in regards to IV drugs. I have BAD veins- the last 
3 hospital visits the nurses, IV team, flight crew, tried to get an IV and no 
one was successful. I had a PICC line early on (the head of radiology had to 
put it in...it took him 3 hours) and my doc is thinking about putting either a 
PICC or a port in now if I need to switch to an IV med. Opinions? I'm not sure 
which would be better/easier to put in.

Thanks,
Mandy, c6-7

I would like to come back as a palo santo tree on the weather side of an 
island, so that I could be, myself, a perfect witness, and look, mute, and wave 
my arms. -Annie Dillard

Re: [QUAD-L] UTI Hell

[Don Price]

I agree completely with Glenn: not every UTI needs to be treated with 
antibiotics. Flush your system out with water and try natural cures like 
vitamin C and D. Mannose sugar first. I only go to the last resort 
[antibiotics] when I absolutely have to.
 
Also, you should take a good PRObiotic with antibiotics. The probiotics 
introduce the good bacteria back into your digestive tract. This should help 
keep you regular while on antibiotics.
 
Good luck!
Don
c5-6  30 years.

 


 From: "gah17...@aol.com" 
To: moo_on_whe...@yahoo.com 
Cc: quad-list@eskimo.com 
Sent: Monday, October 15, 2012 12:45 PM
Subject: Re: [QUAD-L] UTI Hell
  

 
Hello, 

If your Dr. is not experienced with a lot of UTI's, the first thing they 
want to put you on is antibiotics. 

If your symptoms are minimal, let your body fight it naturally.  I 
have had pse... many times 
but my body usually takes care of it. 

Just because your urine tests positive doesn't mean you need to go on 
antibiotics.  Indwelling foley, 46 years and been done the road. 

Glenn Henry

G.A.Henry 
Radio
100 Mill Street
Washington Boro, PA 17582 

In a message dated 10/15/2012 1:57:08 A.M. Eastern Daylight Time, 
moo_on_whe...@yahoo.com writes: 
I've  been battling a persistent pseudomonas bladder infection on and off since 
May.  This last one has kicked my butt, leaving me weak and tired, and I've 
tried  two strong antibiotics with no results. Any time I change meds, 
especially  with antibiotics, I get constipated. The week before last (when I 
was on  Rocephin) I went 5 days without going and wanted someone to just shoot  
me.
>
>Anyway, after I got off that drug the BOP went back to normal, but 
  my UA came back positive again and I started another antibiotic on Friday. I 
  haven't pooped since then. 
>
>Does anyone else have this problem with 
  antibiotics? Does anyone else have experience with pseudomonas? It was easier 
  getting rid of the staph infection I had in March. :( A quad friend 
  recommended finding an infectious disease doctor. 
>
>The other question I 
  had is in regards to IV drugs. I have BAD veins- the last 3 hospital visits 
  the nurses, IV team, flight crew, tried to get an IV and no one was 
  successful. I had a PICC line early on (the head of radiology had to put it 
  in...it took him 3 hours) and my doc is thinking about putting either a PICC 
  or a port in now if I need to switch to an IV med. Opinions? I'm not sure 
  which would be better/easier to put in.
>
>Thanks,
>Mandy, c6-7
>
>I 
  would like to come back as a palo santo tree on the weather side of an 
island, 
  so that I could be, myself, a perfect witness, and look, mute, and wave my 
  arms. -Annie Dillard

Re: [QUAD-L] UTI Hell

[Gah17582]

Hello,
 
If your Dr. is not experienced with a lot of UTI's, the first thing they  
want to put you on is antibiotics.
 
If your symptoms are minimal, let your body fight it naturally.  I  have 
had pse... many times
but my body usually takes care of it.
 
Just because your urine tests positive doesn't mean you need to go on  
antibiotics.  Indwelling foley, 46 years and been done the road.

Glenn Henry

G.A.Henry  Radio
100 Mill Street
Washington Boro, PA 17582  

 
In a message dated 10/15/2012 1:57:08 A.M. Eastern Daylight Time,  
moo_on_whe...@yahoo.com writes:

I've  been battling a persistent pseudomonas bladder infection on and off 
since May.  This last one has kicked my butt, leaving me weak and tired, and 
I've tried  two strong antibiotics with no results. Any time I change meds, 
especially  with antibiotics, I get constipated. The week before last (when 
I was on  Rocephin) I went 5 days without going and wanted someone to just 
shoot  me.

Anyway, after I got off that drug the BOP went back to normal, but  my UA 
came back positive again and I started another antibiotic on Friday. I  
haven't pooped since then. 

Does anyone else have this problem with  antibiotics? Does anyone else have 
experience with pseudomonas? It was easier  getting rid of the staph 
infection I had in March. :( A quad friend  recommended finding an infectious 
disease doctor. 

The other question I  had is in regards to IV drugs. I have BAD veins- the 
last 3 hospital visits  the nurses, IV team, flight crew, tried to get an IV 
and no one was  successful. I had a PICC line early on (the head of 
radiology had to put it  in...it took him 3 hours) and my doc is thinking about 
putting either a PICC  or a port in now if I need to switch to an IV med. 
Opinions? I'm not sure  which would be better/easier to put in.

Thanks,
Mandy, c6-7

I  would like to come back as a palo santo tree on the weather side of an 
island,  so that I could be, myself, a perfect witness, and look, mute, and 
wave my  arms. -Annie Dillard

Re: [QUAD-L] UTI Hell

[jume9999]

Mandy, 

I always get constipated with antibiotics, pain pills, etc. Milk of Magnesia or 
smooth move tea always works for me. For repeated infection that I know we all 
deal with, I drink acidic warm water in the morning or dandelion tea ( great 
for the liver and kidneys Too!) and tastes great. Also, I take olive leaf pills 
every day every other month, it is also an antifungal. Good luck to you. Take 
care. 

Meredith 

- Original Message -
From: "Mandy"  
To: "quadlist"  
Sent: Sunday, October 14, 2012 10:57:01 PM 
Subject: [QUAD-L] UTI Hell 

I've been battling a persistent pseudomonas bladder infection on and off since 
May. This last one has kicked my butt, leaving me weak and tired, and I've 
tried two strong antibiotics with no results. Any time I change meds, 
especially with antibiotics, I get constipated. The week before last (when I 
was on Rocephin) I went 5 days without going and wanted someone to just shoot 
me. 

Anyway, after I got off that drug the BOP went back to normal, but my UA came 
back positive again and I started another antibiotic on Friday. I haven't 
pooped since then. 

Does anyone else have this problem with antibiotics? Does anyone else have 
experience with pseudomonas? It was easier getting rid of the staph infection I 
had in March. :( A quad friend recommended finding an infectious disease 
doctor. 

The other question I had is in regards to IV drugs. I have BAD veins- the last 
3 hospital visits the nurses, IV team, flight crew, tried to get an IV and no 
one was successful. I had a PICC line early on (the head of radiology had to 
put it in...it took him 3 hours) and my doc is thinking about putting either a 
PICC or a port in now if I need to switch to an IV med. Opinions? I'm not sure 
which would be better/easier to put in. 

Thanks, 
Mandy, c6-7 

I would like to come back as a palo santo tree on the weather side of an 
island, so that I could be, myself, a perfect witness, and look, mute, and wave 
my arms. -Annie Dillard 

Re: [QUAD-L] UTI Hell

[Eric W Rudd]

I would definitely suggest a port.  I had mine in 2000 for a bone infection 
I have good veins but was getting vancomycin as an outpatient.  Just make 
sure to keep it flushed.




Eric W Rudd
c5sc...@gmail.com
-Original Message- 
From: Mandy

Sent: Monday, October 15, 2012 12:57 AM
To: quadlist
Subject: [QUAD-L] UTI Hell

I've been battling a persistent pseudomonas bladder infection on and off 
since May. This last one has kicked my butt, leaving me weak and tired, and 
I've tried two strong antibiotics with no results. Any time I change meds, 
especially with antibiotics, I get constipated. The week before last (when I 
was on Rocephin) I went 5 days without going and wanted someone to just 
shoot me.


Anyway, after I got off that drug the BOP went back to normal, but my UA 
came back positive again and I started another antibiotic on Friday. I 
haven't pooped since then.


Does anyone else have this problem with antibiotics? Does anyone else have 
experience with pseudomonas? It was easier getting rid of the staph 
infection I had in March. :( A quad friend recommended finding an infectious 
disease doctor.


The other question I had is in regards to IV drugs. I have BAD veins- the 
last 3 hospital visits the nurses, IV team, flight crew, tried to get an IV 
and no one was successful. I had a PICC line early on (the head of radiology 
had to put it in...it took him 3 hours) and my doc is thinking about putting 
either a PICC or a port in now if I need to switch to an IV med. Opinions? 
I'm not sure which would be better/easier to put in.


Thanks,
Mandy, c6-7

I would like to come back as a palo santo tree on the weather side of an 
island, so that I could be, myself, a perfect witness, and look, mute, and 
wave my arms. -Annie Dillard 

Re: [QUAD-L] UTI Hell

[Danny Hearn]

Hi,  Mandy-- I used to have a nightmare with pseudamonas alsobut on my last 
infection a few years ago my doctor put me on fortaz IV  through a  pic line- 
after using FORTAZ-  to treat my last infection---several years have gone by 
with no more problems !  (knock on wood ) hope things get better for ya !   Dan 
H.*





From: Mandy 
To: quadlist 
Sent: Mon, October 15, 2012 12:57:46 AM
Subject: [QUAD-L] UTI Hell

I've been battling a persistent pseudomonas bladder infection on and off since 
May. This last one has kicked my butt, leaving me weak and tired, and I've 
tried 
two strong antibiotics with no results. Any time I change meds, especially with 
antibiotics, I get constipated. The week before last (when I was on Rocephin) I 
went 5 days without going and wanted someone to just shoot me.

Anyway, after I got off that drug the BOP went back to normal, but my UA came 
back positive again and I started another antibiotic on Friday. I haven't 
pooped 
since then. 


Does anyone else have this problem with antibiotics? Does anyone else have 
experience with pseudomonas? It was easier getting rid of the staph infection I 
had in March. :( A quad friend recommended finding an infectious disease 
doctor. 


The other question I had is in regards to IV drugs. I have BAD veins- the last 
3 
hospital visits the nurses, IV team, flight crew, tried to get an IV and no one 
was successful. I had a PICC line early on (the head of radiology had to put it 
in...it took him 3 hours) and my doc is thinking about putting either a PICC or 
a port in now if I need to switch to an IV med. Opinions? I'm not sure which 
would be better/easier to put in.

Thanks,
Mandy, c6-7

I would like to come back as a palo santo tree on the weather side of an 
island, 
so that I could be, myself, a perfect witness, and look, mute, and wave my 
arms. 
-Annie Dillard

Re: [QUAD-L] UTI Hell

[wheelchair]

Do you have PH test strips to check the ph of your urine?  This alone  will 
alert you.  Are you creating the perfect environment for  infections?  Are 
you consuming or flooding your bladder with water each 24  hours.  Keep in 
mind, you are only mentioning the results, but not the  potential causes...
I wish you the best!
Best Wishes
 
 
In a message dated 10/15/2012 12:57:08 A.M. Central Daylight Time,  
moo_on_whe...@yahoo.com writes:

I've  been battling a persistent pseudomonas bladder infection on and off 
since May.  This last one has kicked my butt, leaving me weak and tired, and 
I've tried  two strong antibiotics with no results. Any time I change meds, 
especially  with antibiotics, I get constipated. The week before last (when 
I was on  Rocephin) I went 5 days without going and wanted someone to just 
shoot  me.

Anyway, after I got off that drug the BOP went back to normal, but  my UA 
came back positive again and I started another antibiotic on Friday. I  
haven't pooped since then. 

Does anyone else have this problem with  antibiotics? Does anyone else have 
experience with pseudomonas? It was easier  getting rid of the staph 
infection I had in March. :( A quad friend  recommended finding an infectious 
disease doctor. 

The other question I  had is in regards to IV drugs. I have BAD veins- the 
last 3 hospital visits  the nurses, IV team, flight crew, tried to get an IV 
and no one was  successful. I had a PICC line early on (the head of 
radiology had to put it  in...it took him 3 hours) and my doc is thinking about 
putting either a PICC  or a port in now if I need to switch to an IV med. 
Opinions? I'm not sure  which would be better/easier to put in.

Thanks,
Mandy, c6-7

I  would like to come back as a palo santo tree on the weather side of an 
island,  so that I could be, myself, a perfect witness, and look, mute, and 
wave my  arms. -Annie Dillard

Re: [QUAD-L] UTI

[Quadius]

I did that for about three or four years, but I've even had to reduce that
down to every other day.
On Tue, May 31, 2011 at 6:53 PM,  wrote:

>  That bowl of oatmeal each morning was suppose to absorb most of those
> meds and help with the bowel program.
> Best Wishes
>
>  In a message dated 5/31/2011 5:51:21 P.M. Central Daylight Time,
> quad...@gmail.com writes:
>
> I have almost got my bowels back in order.  It seems I was taking in too
> much fiber, in addition to an antacid, omeprazole, which was really messing
> up my bowels.
>
> I had to cut down on my veggie burgers/chicken/sausage and almost eliminate
> the Metamucil.  I was using Metamucil in order to give me some consistency
> in my movement, but this was over stimulating my bowels.
>
> I use 2 tablespoons of mineral oil and one small amount of Mylax (spelling)
> about six hours before I do my bowel regimen.  My bowel regimen still takes
> forever, but at least I feel pretty decent in between bowel movements.
> Quadius
>
> On Sat, Mar 26, 2011 at 9:11 PM, Lissette Whitehead 
> wrote:
>
>> Thank you so much for the input Joan, I will take your
>> advice into consideration.
>>
>> Regards,
>>
>>
>> Lissette Whitehead
>> 1177 Broadway Suite #4
>> Chula Vista, CA 91911
>>
>> www.lissettesgoaltowalk.synthasite.com
>> www.lwgripgloves.com
>>
>>
>>
>>
>> --
>> From: poaj...@sbcglobal.net
>>
>> To: quad-list@eskimo.com
>> Subject: RE: [QUAD-L] UTI
>> Date: Sat, 26 Mar 2011 07:46:55 -0700
>>
>>
>>   I began having some serious problems with bowel care about three months
>> ago.  Would go several days with nothing, bloating and gas.  I had been
>> putting off a colonoscopy because of the hassle.  J
>>
>> Discussing this with my Dr. and he suggested, especially since I was
>> totally cleaned out, that I take 1 tablespoon of Benefiber and 1 tablespoon
>> of Miramax daily, and then experiment with those amounts to find the best
>> for me.  We have finally settled on 2 tablespoons of Benefiber per day and 1
>> tablespoon of Miramax.  He was also very insistent that I use only those two
>> Brands and not a generic version.  My bowel care is back to 10-15 minutes
>> daily with the occasional 30 minutes.
>>
>> No more serious bloating, gas, were or feeling as though I was stuffed
>> into a too tight sausage skin.  We don’t do anything except digital
>> stimulation as I have a phobia about suppository use after seeing my mother
>> suffer in her later years from overuse of suppositories for constipation.
>>
>> Because I have a severe lactose intolerance I need to be very careful when
>> eating out so I will occasionally have problems from that, because it can
>> really mess up and my whole system.  Why don’t you talk to your Dr., Or go
>> see a gastroenterologist and see if there is not a simple solution?
>>
>> Good luck, it consumes so much of our time anyway but it is a relief to
>> not be waking up in the middle of the night with horrible cramps and mild AD
>> every single night.
>>
>> Joan
>>
>>
>

Re: [QUAD-L] UTI

[wheelchair]

That bowl of oatmeal each morning was suppose to absorb most of those meds  
and help with the bowel program.
Best Wishes
 
 
In a message dated 5/31/2011 5:51:21 P.M. Central Daylight Time,  
quad...@gmail.com writes:

I have  almost got my bowels back in order.  It seems I was taking in too 
much  fiber, in addition to an antacid, omeprazole, which was really messing 
up my  bowels.

I had to cut down on my veggie burgers/chicken/sausage and  almost 
eliminate the Metamucil.  I was using Metamucil in order to give  me some 
consistency in my movement, but this was over stimulating my  bowels.

I use 2 tablespoons of mineral oil and one small amount of  Mylax 
(spelling) about six hours before I do my bowel regimen.  My bowel  regimen 
still 
takes forever, but at least I feel pretty decent in between  bowel movements.
Quadius

On Sat, Mar 26, 2011 at 9:11 PM, Lissette Whitehead  
<_lissw_75@hotmail.com_ (mailto:lissw...@hotmail.com) >  wrote:

Thank you so much for the input Joan, I will take your   
advice into consideration.


Regards,


Lissette Whitehead
1177 Broadway Suite  #4
Chula Vista, CA  91911  

_www.lissettesgoaltowalk.synthasite.com_ 
(http://www.lissettesgoaltowalk.synthasite.com/) 
_www.lwgripgloves.com_ (http://www.lwgripgloves.com/) 




 


From: _poajoan@sbcglobal.net_ (mailto:poaj...@sbcglobal.net)   

To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 

Subject: RE: [QUAD-L]  UTI
Date: Sat, 26 Mar 2011 07:46:55 -0700  
 




 
 
I began having some  serious problems with bowel care about three months 
ago.  Would go  several days with nothing, bloating and gas.  I had been 
putting off  a colonoscopy because of the hassle.  J 
Discussing this with my  Dr. and he suggested, especially since I was 
totally cleaned out, that I  take 1 tablespoon of Benefiber and 1 tablespoon of 
Miramax daily, and then  experiment with those amounts to find the best for 
me.  We have  finally settled on 2 tablespoons of Benefiber per day and 1 
tablespoon of  Miramax.  He was also very insistent that I use only those two 
Brands  and not a generic version.  My bowel care is back to 10-15 minutes  
daily with the occasional 30 minutes. 
No more serious bloating,  gas, were or feeling as though I was stuffed 
into a too tight sausage  skin.  We don’t do anything except digital 
stimulation as I have a  phobia about suppository use after seeing my mother 
suffer in 
her later  years from overuse of suppositories for constipation. 
Because I have a severe  lactose intolerance I need to be very careful when 
eating out so I will  occasionally have problems from that, because it can 
really mess up and my  whole system.  Why don’t you talk to your Dr., Or go 
see a  gastroenterologist and see if there is not a simple solution? 
Good luck, it consumes so  much of our time anyway but it is a relief to 
not be waking up in the  middle of the night with horrible cramps and mild AD 
every single  night. 
Joan

Re: [QUAD-L] UTI

[Quadius]

I have almost got my bowels back in order.  It seems I was taking in too
much fiber, in addition to an antacid, omeprazole, which was really messing
up my bowels.

I had to cut down on my veggie burgers/chicken/sausage and almost eliminate
the Metamucil.  I was using Metamucil in order to give me some consistency
in my movement, but this was over stimulating my bowels.

I use 2 tablespoons of mineral oil and one small amount of Mylax (spelling)
about six hours before I do my bowel regimen.  My bowel regimen still takes
forever, but at least I feel pretty decent in between bowel movements.
Quadius

On Sat, Mar 26, 2011 at 9:11 PM, Lissette Whitehead wrote:

>  Thank you so much for the input Joan, I will take your
> advice into consideration.
>
> Regards,
>
>
> Lissette Whitehead
> 1177 Broadway Suite #4
> Chula Vista, CA 91911
>
> www.lissettesgoaltowalk.synthasite.com
> www.lwgripgloves.com
>
>
>
>
> --
> From: poaj...@sbcglobal.net
>
> To: quad-list@eskimo.com
> Subject: RE: [QUAD-L] UTI
> Date: Sat, 26 Mar 2011 07:46:55 -0700
>
>
> I began having some serious problems with bowel care about three months
> ago.  Would go several days with nothing, bloating and gas.  I had been
> putting off a colonoscopy because of the hassle.  J
>
> Discussing this with my Dr. and he suggested, especially since I was
> totally cleaned out, that I take 1 tablespoon of Benefiber and 1 tablespoon
> of Miramax daily, and then experiment with those amounts to find the best
> for me.  We have finally settled on 2 tablespoons of Benefiber per day and 1
> tablespoon of Miramax.  He was also very insistent that I use only those two
> Brands and not a generic version.  My bowel care is back to 10-15 minutes
> daily with the occasional 30 minutes.
>
> No more serious bloating, gas, were or feeling as though I was stuffed into
> a too tight sausage skin.  We don’t do anything except digital stimulation
> as I have a phobia about suppository use after seeing my mother suffer in
> her later years from overuse of suppositories for constipation.
>
> Because I have a severe lactose intolerance I need to be very careful when
> eating out so I will occasionally have problems from that, because it can
> really mess up and my whole system.  Why don’t you talk to your Dr., Or go
> see a gastroenterologist and see if there is not a simple solution?
>
> Good luck, it consumes so much of our time anyway but it is a relief to not
> be waking up in the middle of the night with horrible cramps and mild AD
> every single night.
>
> Joan
>
>

RE: [QUAD-L] UTI

[Lissette Whitehead]

Thank you so much for the input Joan, I will take your advice into 
consideration.
Regards,


Lissette Whitehead
1177 Broadway Suite #4
Chula Vista, CA 91911
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com




From: poaj...@sbcglobal.net
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] UTI
Date: Sat, 26 Mar 2011 07:46:55 -0700



I began having some serious problems with bowel care about three months ago.  
Would go several days with nothing, bloating and gas.  I had been putting off a 
colonoscopy because of the hassle.  JDiscussing this with my Dr. and he 
suggested, especially since I was totally cleaned out, that I take 1 tablespoon 
of Benefiber and 1 tablespoon of Miramax daily, and then experiment with those 
amounts to find the best for me.  We have finally settled on 2 tablespoons of 
Benefiber per day and 1 tablespoon of Miramax.  He was also very insistent that 
I use only those two Brands and not a generic version.  My bowel care is back 
to 10-15 minutes daily with the occasional 30 minutes.No more serious bloating, 
gas, were or feeling as though I was stuffed into a too tight sausage skin.  We 
don’t do anything except digital stimulation as I have a phobia about 
suppository use after seeing my mother suffer in her later years from overuse 
of suppositories for constipation.Because I have a severe lactose intolerance I 
need to be very careful when eating out so I will occasionally have problems 
from that, because it can really mess up and my whole system.  Why don’t you 
talk to your Dr., Or go see a gastroenterologist and see if there is not a 
simple solution?Good luck, it consumes so much of our time anyway but it is a 
relief to not be waking up in the middle of the night with horrible cramps and 
mild AD every single night.Joan

Re: [QUAD-L] UTI

[DAANOO]

I'm so happy for you Joan.
Miralax is great and I use if I have problems  also.. I also have started 
eating dried prunes by Sunsweet.
Dana
 
The hospital always give prune juice with milk of mag mix together and then 
 Miralax for blockages each day..
 
I've never tried Benifiber, but another fiber drink I can't remember the  
name of, in the past. Have you noticed those yogurts and bars you can get 
with  fiber in them. I have never tried. I do eat bran chex, which they 
suggested in  the hospital. I also like oatmeal which is also a good fiber I 
believe. They  have a new one with fruit and almonds slivers that is really 
good. 
I also eat  activa like they suggested after my UTI sepsis. They said to the 
two of them, as  I was still on antibiotic that I finish this week.
 
Dana

RE: [QUAD-L] UTI

[Joan Anglin]

I began having some serious problems with bowel care about three months ago.
Would go several days with nothing, bloating and gas.  I had been putting
off a colonoscopy because of the hassle.  J

Discussing this with my Dr. and he suggested, especially since I was totally
cleaned out, that I take 1 tablespoon of Benefiber and 1 tablespoon of
Miramax daily, and then experiment with those amounts to find the best for
me.  We have finally settled on 2 tablespoons of Benefiber per day and 1
tablespoon of Miramax.  He was also very insistent that I use only those two
Brands and not a generic version.  My bowel care is back to 10-15 minutes
daily with the occasional 30 minutes.

No more serious bloating, gas, were or feeling as though I was stuffed into
a too tight sausage skin.  We don't do anything except digital stimulation
as I have a phobia about suppository use after seeing my mother suffer in
her later years from overuse of suppositories for constipation.

Because I have a severe lactose intolerance I need to be very careful when
eating out so I will occasionally have problems from that, because it can
really mess up and my whole system.  Why don't you talk to your Dr., Or go
see a gastroenterologist and see if there is not a simple solution?

Good luck, it consumes so much of our time anyway but it is a relief to not
be waking up in the middle of the night with horrible cramps and mild AD
every single night.

Joan

RE: [QUAD-L] UTI

[Lissette Whitehead]

I used to see a homeopathic doctor in Mexico and he treated my UTI over 2 years 
ago and I've been UTI free ever since. I gotta go see him again because it 
looks like I'm having trouble with my digestive tract, I get abdominal pain 
almost every morning and on Monday right after the pain started my blood 
pressure wentup so high, I thought I was gonna die.  Anyone has had a 
similarexperience before? My belly is really swollen, it feels like it's fullof 
gas and it hurts.
Thanx!

Lissette Whitehead
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com




From: wheelch...@aol.com
Date: Fri, 25 Mar 2011 18:34:38 -0400
Subject: Re: [QUAD-L] UTI
To: quad-list@eskimo.com








Cream of Tartar, is also used to suppress a toothache too.
Thanks
Best Wishes
 

In a message dated 3/25/2011 4:18:36 P.M. Central Daylight Time, 
swl...@gmail.com writes:
you 
  should go to The Care Cure Forums (http://sci.rutgers.edu/forum/index.php) 
and 
  search for "Cream of Tartar."  A lot of people swear by it.


  On Fri, Mar 25, 2011 at 7:09 AM, Shahidul  wrote:

  Hi,

Anyone ever tried homeopathic remedy for 
urinary tract infection.

Please take care 
  :-)

Alam

  

Re: [QUAD-L] UTI

[wheelchair]

Cream of Tartar, is also used to suppress a toothache too.
Thanks
Best Wishes
 
 
In a message dated 3/25/2011 4:18:36 P.M. Central Daylight Time,  
swl...@gmail.com writes:

you  should go to The Care Cure Forums 
(_http://sci.rutgers.edu/forum/index.php_ 
(http://sci.rutgers.edu/forum/index.php) ) and  search for "Cream of 
Tartar."  A lot of people swear by it.

On Fri, Mar 25, 2011 at 7:09 AM, Shahidul <_msalam7@gmail.com_ 
(mailto:msal...@gmail.com) > wrote:

Hi,

Anyone ever tried homeopathic remedy for  urinary tract infection.

Please take care  :-)

Alam

Re: [QUAD-L] UTI

[Fragile]

you should go to The Care Cure Forums (
http://sci.rutgers.edu/forum/index.php) and search for "Cream of Tartar."  A
lot of people swear by it.

On Fri, Mar 25, 2011 at 7:09 AM, Shahidul  wrote:

> Hi,
>
> Anyone ever tried homeopathic remedy for urinary tract infection.
>
> Please take care :-)
>
> Alam
>

Re: [QUAD-L] UTI

[Shahidul]

Thank you very much W. Of course for the tips about apple cider vinegar and
raw honey. I have them in my shelf and I am not using them. So foolish!
Please take care :-)

Alam


On Fri, Mar 25, 2011 at 8:48 PM,  wrote:

>  Thanks Alam.  Oh TV ADs, never lie.  Rarely do TV Ads embellish the value
> of their products.  I'm sure that if they are advertised on TV or the
> Internet they will work, because the only time you know that they don't is
> when you are reading this in a hospital bed with a bladder infection.  I'm a
> firm believer in apple cider vinegar and raw honey.  I'm a big fan of raw
> cranberry relish.  I drink lots of orange juice too.
> What is tv offering in the way of homeopathic relief or prevention in your
> neighborhood.  Thanks my friend.
> Best Wishes
>
>  In a message dated 3/25/2011 9:38:11 A.M. Central Daylight Time,
> msal...@gmail.com writes:
>
> Dear W,
>
> In my place, I heard in the TV ads, homeopathic doctors prescribing for
> uti's. Though I haven't tried them yet. I heard these meds are not harmful
> at all.
>
> I have recurrent uti's, which are treated through antibiotics. antibiotics
> kill bad uti bacterias and good bacterias as well. I wish I could have
> another option. I was wondering if homeopathic meds can do the job or may
> be, just prevent uti.
>
> Please take care :-)
>
> Alam
>
> On Fri, Mar 25, 2011 at 7:17 PM,  wrote:
>
>>  Greetings Alam.  UTI can lead to a bladder infection, if not taken
>> seriously.  When you mention homeopathic remedy, over the counter preps
>> (OTC) or suggesting something else?  Let us know.
>>
>> Best Wishes
>>
>>  In a message dated 3/25/2011 8:11:06 A.M. Central Daylight Time,
>> msal...@gmail.com writes:
>>
>> Hi,
>>
>> Anyone ever tried homeopathic remedy for urinary tract infection.
>>
>> Please take care :-)
>>
>> Alam
>>
>>
>

Re: [QUAD-L] UTI

[wheelchair]

Thanks Alam.  Oh TV ADs, never lie.  Rarely do TV Ads embellish  the value 
of their products.  I'm sure that if they are advertised on TV or  the 
Internet they will work, because the only time you know that they don't is  
when 
you are reading this in a hospital bed with a bladder infection.  I'm  a 
firm believer in apple cider vinegar and raw honey.  I'm a big fan of raw  
cranberry relish.  I drink lots of orange juice too.
What is tv offering in the way of homeopathic relief or prevention in your  
neighborhood.  Thanks my friend.
Best Wishes
 
 
In a message dated 3/25/2011 9:38:11 A.M. Central Daylight Time,  
msal...@gmail.com writes:

Dear  W,

In my place, I heard in the TV ads, homeopathic doctors prescribing  for 
uti's. Though I haven't tried them yet. I heard these meds are not harmful  at 
all.

I have recurrent uti's, which are treated through antibiotics.  antibiotics 
kill bad uti bacterias and good bacterias as well. I wish I could  have 
another option. I was wondering if homeopathic meds can do the job or may  be, 
just prevent uti.

Please take care :-)

Alam

On Fri, Mar 25, 2011 at 7:17 PM, <_wheelchair@aol.com_ 
(mailto:wheelch...@aol.com) > wrote:


Greetings Alam.  UTI can lead to a bladder infection, if not taken  
seriously.  When you mention homeopathic remedy, over the counter  preps (OTC) 
or 
suggesting something else?  Let us know.
 
Best Wishes
 

 

 
In a message dated 3/25/2011 8:11:06 A.M. Central Daylight Time, 
_msalam7@gmail.com_ (mailto:msal...@gmail.com)  writes:

Hi,

Anyone ever tried homeopathic remedy for urinary  tract infection.

Please take care  :-)

Alam

Re: [QUAD-L] UTI

[Shahidul]

Dear W,

In my place, I heard in the TV ads, homeopathic doctors prescribing for
uti's. Though I haven't tried them yet. I heard these meds are not harmful
at all.

I have recurrent uti's, which are treated through antibiotics. antibiotics
kill bad uti bacterias and good bacterias as well. I wish I could have
another option. I was wondering if homeopathic meds can do the job or may
be, just prevent uti.

Please take care :-)

Alam

On Fri, Mar 25, 2011 at 7:17 PM,  wrote:

>  Greetings Alam.  UTI can lead to a bladder infection, if not taken
> seriously.  When you mention homeopathic remedy, over the counter preps
> (OTC) or suggesting something else?  Let us know.
>
> Best Wishes
>
>  In a message dated 3/25/2011 8:11:06 A.M. Central Daylight Time,
> msal...@gmail.com writes:
>
> Hi,
>
> Anyone ever tried homeopathic remedy for urinary tract infection.
>
> Please take care :-)
>
> Alam
>
>

Re: [QUAD-L] UTI

[wheelchair]

Greetings Alam.  UTI can lead to a bladder infection, if not taken  
seriously.  When you mention homeopathic remedy, over the counter  preps (OTC) 
or 
suggesting something else?  Let us know.
 
Best Wishes
 
 
In a message dated 3/25/2011 8:11:06 A.M. Central Daylight Time,  
msal...@gmail.com writes:

Hi,

Anyone ever tried homeopathic remedy for urinary tract  infection.

Please take care  :-)

Alam

RE: [QUAD-L] UTI antibiotics to use and treatment

[Yannik Anglehart]

Hi again,

I tried Cipro a long time ago and the doctors stopped it because I'm intolerant 
so it make me puke and gave me diarrhea. The gave me another medication as a 
solution, like gentamicin for example or Bactrim, Septra, Macrobid, ect. Also, 
I've been having a lot of bad experiences with antibiotics because they gave us 
lots of side effects sometimes. Specialy, if you have been taking antibiotics 
for a long period of time, not only you become resistant (meds don't take 
effect as much anymore), you're starting to kill the good bacterias in your 
intestin so it can give you diarrhea and bloated stomach, even a Clostridium 
Difficile which is not a good feeling, similar to diarrhea and bloated stomach. 
Anyway, make sure to eat some yogurt to build your flore of good bacteria in 
the intestin, it will prevent having a C Difficile and more. I hope it help a 
bit.

 

Yannik 
 




From: daa...@aol.com
Date: Sun, 5 Sep 2010 15:46:06 -0400
Subject: Re: [QUAD-L] UTI antibiotics to use and treatment
To: yanni...@hotmail.com; quad-list@eskimo.com




Yannik,
Thank you for your response.. I'm also having a lot of spasms, diarrhea, 
bloated stomach after I started taking the Cipro. I have taken it many times 
with no problems. I don't know if that is a side effect of the Cipro or the UTI 
infection. I have had bowel with a lot of other infections. Has anyone else.
 
I have had pseudomonas in my lungs and I was told it would never go away?
 

In a message dated 9/5/2010 12:23:22 P.M. Central Daylight Time, 
yanni...@hotmail.com writes:
 
Hi,
About medications for UTI, it really depends on the colonization of bacteria 
that you have in your bladder at the time of your symptoms. I used to have a 
lot of pseudomonas in my bladder at a time and the doctors were giving me 
gentamicin IV and my last infections, for some reason, there was a lot of 
staphylococcus (SARM) in it so I was giving Antibiotic again but by pill this 
time, Bactrim. I think it all depends to the doctor that is treating you and 
the kind of bacteria present in your bladder a that time. Each type of bacteria 
has a few different antibiotic as a solution to treat it, well at least most. I 
hope it help a bit.
 
Thanks,
 
Yannik




From: daa...@aol.com 
Sent: Wednesday, September 01, 2010 11:12 PM
To: quad-list@eskimo.com 
Subject: [QUAD-L] UTI antibiotics to use and treatment


My Nurse Took a Culture in the Stoma Last Week. The Pharmacy Called and Said 
They Were Sending a Penicillin, Which I Have Been Allergic to for Years and 
Would Have Died If I Had Not Gotten to ER in Time for Drugs to Open up My 
Airway.
 
Then They Changed It to Bactrim. Today I Became Really Cold and Chilling with a 
Fever. I Called the On-Call Doctor and they gave me Cipro. They always give me 
generic drugs.
 
They Gave Me a New Doctor When My Previous Doctor Became a Hospitalist..
 
What are all of you given for UTIs and do any of you have iIleo- conduit. It 
seems like I can read more than I should.
 

My previous nursing agency was not doing me cultures the right way. They 
couldn't find another nurse to replace her when she went to another job. The 
agency would not give her the right kind of red catheters to check my ostomy 
stoma. I then had to wait several weeks to see my doctor because she would not 
write new orders until she saw me and she was going to be out of town. And she 
did not give the orders to the new agency. I don't think they know the needs a 
quadriplegic.
 
I would appreciate any suggestions and information.
Dana
 
 

  

Re: [QUAD-L] UTI antibiotics to use and treatment

[DAANOO]

 
Yannik,
Thank you for your response.. I'm also having a lot of spasms,  diarrhea, 
bloated stomach after I started taking the Cipro. I have taken it many  times 
with no problems. I don't know if that is a side effect of the Cipro or  
the UTI infection. I have had bowel with a lot of other infections. Has anyone 
 else.
 
I have had pseudomonas in my lungs and I was told it would never go  away?
 

In a message dated 9/5/2010 12:23:22 P.M. Central Daylight Time,  
yanni...@hotmail.com writes:


Hi,
About medications for UTI, it really depends on the colonization of  
bacteria that you have in your bladder at the time of your symptoms. I used to  
have a lot of pseudomonas in my bladder at a time and the doctors were giving  
me gentamicin IV and my last infections, for some reason, there was a lot 
of  staphylococcus (SARM) in it so I was giving Antibiotic again but by pill 
this  time, Bactrim. I think it all depends to the doctor that is treating 
you and  the kind of bacteria present in your bladder a that time. Each type 
of  bacteria has a few different antibiotic as a solution to treat it, well 
at  least most. I hope it help a bit.
 
Thanks,
 
Yannik
 



From: _daa...@aol.com_ (mailto:daa...@aol.com)  
Sent: Wednesday, September 01, 2010 11:12 PM
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com)  
Subject: [QUAD-L] UTI antibiotics to use and  treatment




My Nurse Took a Culture in the Stoma Last Week. The Pharmacy Called and  
Said They Were Sending a Penicillin, Which I Have Been Allergic to for Years  
and Would Have Died If I Had Not Gotten to ER in Time for Drugs to Open up 
My  Airway.
 
Then They Changed It to Bactrim. Today I Became Really Cold and Chilling  
with a Fever. I Called the On-Call Doctor and they gave me Cipro. They always 
 give me generic drugs.
 
They Gave Me a New Doctor When My Previous Doctor Became a  Hospitalist..
 
What are all of you given for UTIs and do any of you have iIleo- conduit.  
It seems like I can read more than I should.
 

My previous nursing agency was not doing me cultures the right way.  They 
couldn't find another nurse to replace her when she went to another job.  The 
agency would not give her the right kind of red catheters to check my  
ostomy stoma. I then had to wait several weeks to see my doctor because she  
would not write new orders until she saw me and she was going to be out of  
town. And she did not give the orders to the new agency. I don't think they  
know the needs a quadriplegic.
 
I would appreciate any suggestions and information.
Dana
 
 



 

Re: [QUAD-L] UTI antibiotics to use and treatment

[Yannik Anglehart]

Hi,
About medications for UTI, it really depends on the colonization of bacteria 
that you have in your bladder at the time of your symptoms. I used to have a 
lot of pseudomonas in my bladder at a time and the doctors were giving me 
gentamicin IV and my last infections, for some reason, there was a lot of 
staphylococcus (SARM) in it so I was giving Antibiotic again but by pill this 
time, Bactrim. I think it all depends to the doctor that is treating you and 
the kind of bacteria present in your bladder a that time. Each type of bacteria 
has a few different antibiotic as a solution to treat it, well at least most. I 
hope it help a bit.

Thanks,

Yannik


From: daa...@aol.com 
Sent: Wednesday, September 01, 2010 11:12 PM
To: quad-list@eskimo.com 
Subject: [QUAD-L] UTI antibiotics to use and treatment


My Nurse Took a Culture in the Stoma Last Week. The Pharmacy Called and Said 
They Were Sending a Penicillin, Which I Have Been Allergic to for Years and 
Would Have Died If I Had Not Gotten to ER in Time for Drugs to Open up My 
Airway.

Then They Changed It to Bactrim. Today I Became Really Cold and Chilling with a 
Fever. I Called the On-Call Doctor and they gave me Cipro. They always give me 
generic drugs.

They Gave Me a New Doctor When My Previous Doctor Became a Hospitalist..

What are all of you given for UTIs and do any of you have iIleo- conduit. It 
seems like I can read more than I should.


My previous nursing agency was not doing me cultures the right way. They 
couldn't find another nurse to replace her when she went to another job. The 
agency would not give her the right kind of red catheters to check my ostomy 
stoma. I then had to wait several weeks to see my doctor because she would not 
write new orders until she saw me and she was going to be out of town. And she 
did not give the orders to the new agency. I don't think they know the needs a 
quadriplegic.

I would appreciate any suggestions and information.
Dana

Re: [QUAD-L] UTI antibiotics to use and treatment

[DAANOO]

 


Thank you.
 
Thank you for responding Eric. A ileo-conduit is a urinary diversion they  
use the last 6 inches of the small intestine to make the stoma and they 
bring  the ureters into that stoma that put urine in the ostomy bag instead of 
a 
 bladder. I received in 86 when chemotherapy was not working with by 
bladder  cancer. They did not want to make a artificial bladder, because of my 
level of  care. You have to characterize yourself from what I could understand 
by his  description.
 
Dana.


In a message dated 9/1/2010 9:34:11 P.M. Central Daylight Time,  
c5sc...@gmail.com writes:

  
Back when i always battled them, my docs always required a culture to  know 
what drug to use.  I've used Cipro alot, Bactrim some, Levaquin  some, 
never heard of penicillin being used.
 
Have no idea what illeo-conduit is lol.
 
Eric W Rudd
_c5sc...@gmail.com_ (mailto:c5sc...@gmail.com) 

- Original Message - 
From:  _daa...@aol.com_ (mailto:daa...@aol.com)  
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Wednesday, September 01, 2010  9:12 PM
Subject: [QUAD-L] UTI antibiotics to  use and treatment


My Nurse Took a Culture in the Stoma Last Week. The Pharmacy Called and  
Said They Were Sending a Penicillin, Which I Have Been Allergic to for Years  
and Would Have Died If I Had Not Gotten to ER in Time for Drugs to Open up  
My Airway.
 
Then They Changed It to Bactrim. Today I Became Really Cold and  Chilling 
with a Fever. I Called the On-Call Doctor and they gave me Cipro.  They 
always give me generic drugs.
 
They Gave Me a New Doctor When My Previous Doctor Became a  Hospitalist..
 
What are all of you given for UTIs and do any of you have iIleo-  conduit. 
It seems like I can read more than I should.
 

My previous nursing agency was not doing me cultures the right way.  They 
couldn't find another nurse to replace her when she went to another  job. The 
agency would not give her the right kind of red catheters to check  my 
ostomy stoma. I then had to wait several weeks to see my doctor because  she 
would not write new orders until she saw me and she was going to be out  of 
town. And she did not give the orders to the new agency. I don't think  they 
know the needs a quadriplegic.
 
I would appreciate any suggestions and information.
Dana
 
 




 

Re: [QUAD-L] UTI antibiotics to use and treatment

[Eric W Rudd]

Back when i always battled them, my docs always required a culture to know what 
drug to use.  I've used Cipro alot, Bactrim some, Levaquin some, never heard of 
penicillin being used.

Have no idea what illeo-conduit is lol.

Eric W Rudd
c5sc...@gmail.com
  - Original Message - 
  From: daa...@aol.com 
  To: quad-list@eskimo.com 
  Sent: Wednesday, September 01, 2010 9:12 PM
  Subject: [QUAD-L] UTI antibiotics to use and treatment


  My Nurse Took a Culture in the Stoma Last Week. The Pharmacy Called and Said 
They Were Sending a Penicillin, Which I Have Been Allergic to for Years and 
Would Have Died If I Had Not Gotten to ER in Time for Drugs to Open up My 
Airway.

  Then They Changed It to Bactrim. Today I Became Really Cold and Chilling with 
a Fever. I Called the On-Call Doctor and they gave me Cipro. They always give 
me generic drugs.

  They Gave Me a New Doctor When My Previous Doctor Became a Hospitalist..

  What are all of you given for UTIs and do any of you have iIleo- conduit. It 
seems like I can read more than I should.


  My previous nursing agency was not doing me cultures the right way. They 
couldn't find another nurse to replace her when she went to another job. The 
agency would not give her the right kind of red catheters to check my ostomy 
stoma. I then had to wait several weeks to see my doctor because she would not 
write new orders until she saw me and she was going to be out of town. And she 
did not give the orders to the new agency. I don't think they know the needs a 
quadriplegic.

  I would appreciate any suggestions and information.
  Dana

Re: [QUAD-L] UTI Help

[Fragile]

According to many people @ CareCure, a teaspoon of Cream of tartar in
a glass of water works wonders.

On 5/25/10, Merrill  wrote:
> In the past I have spent hundreds of dollars looking for over the counter
> UTI cures.  One of my favorites that I believe works is online called ' UTi
> RELIEF ".  It is marketed in tablet as a female item but as a male I find
> resolve in 24 ours.  Acting ingredient is Phenazopyridine Hydrochloride.
> Urine turns red but has cleared up many a bad times.
>
>
>
> Colloidal Silver is expensive but has also worked.   Much info on google.
>
>
>
> Merrill
>
>

Re: [QUAD-L] uti infections that require IV drugs

[Quadius]

I had a significant amount of bladder stones removed about two years ago and
since then I have had two or three minor UTIs.  I went for an extended
period of time without needing treatment for a UTI prior to getting the
bladder stones, but when I had them, I was consistently getting UTIs until
they were removed.

Irrigation does help, but make sure you do not infect your bladder when you
are doing this.  Make sure whoever is doing it has washed their hands
thoroughly and is wearing gloves.

Also it is important when washing the stoma to have a person clean in a
circular motion trying to clean outward.  That way you do not have anything
entering the stoma site.

I would also pay heed to John's suggestion about backflow.  I had a problem
with this during my first couple of years and once I rigged up some
solutions so my urine would consistently drained down it significantly
minimize my UTIs.
Quadius
PS I have had my suprapubic or almost 14 years now.

On Tue, Jan 27, 2009 at 6:34 PM, Danny Hearn  wrote:

> THANKS LORI--- MY NEW UROLOGIST IS OUT FOR AT LEAST 2 MORE DAYS, ONE OF HIS
> FELLOW DOCTORS TOLD ME MY CULTURE SHIOWED I HAD PSEUDOMONAS AND I MAY BE
> ABLE TO GET 2 SHOTS A DAY IN THE BUTT OR GET IV DRUGS---HE TOLD ME I CAN
> WAIT FOR MY DOCTOR TO GET BACK AND SEE IF I'M DOING WORSE OR ?? HE TOLD ME
> IT IS EXTREMELY HARD TO KNOW WHEN TO TREAT AND DEPENDS ON SYMPTOMS AND ETC.
> ( HAVE YOU EVER HAD THE SO CALLED SHOTS? I NEVER KNEW THIS WAS EVEN
> AVAILABLE DID YOU?   DANNY H.

Re: [QUAD-L] uti infections that require IV drugs

[Lori Michaelson]

Nope, never heard of getting shots.  S I did a Google search
on "injections for pseudemonas utis" and found this --
http://www.springerlink.com/content/w23444xg25202712/ The last sentence
under *Summary* seems to say yes for that.  Never heard of that drug
either.

My last IV therapy drug to fight two pathogens was ZOSYN.

John is correct when he said Drs may not want to remove a stone with an
infection present.  That was my dilemma but I HAD little choice as I had 8
ROCKS in my bladder and they HAD to come out since :
A) They were causing all my previous UTIs over thge previous 6 yrs and
B) They can "hang on" to the bugs and so NEEDED to come out.

My urologist was hesitant to do the outpatient surgery when I had pathogens
present but went ahead with large doses of IV antibiodics during surgery and
oral ones 10 days-2weeks after surgery. This was May 2006.

In July or August of 2006 both my Dr and I were distressed when I got
another bad UTI with a pathogen being the bug.  BACK on at-home IV
antibiodics.  Yes - I was scared.  Thought the surgery would solve my
problem.

*I* only treat (if you remember) when I have a fever.  Fever = BAD NEWS.

Knock on wood I've not had any in a long time.  I hate to say that -- jinx
myself.

I still check my urine Ph on occassion with the U/A strips as that was my
problem for awhile after summer 2006 and it's been at a good number (6.5)
and eliminated bananas from my diet as they were making my urine too
alkaline (7+ Ph readings - uncool and bacteria friendly).

Best,
Lori (keep in touch)


I'd suggest working with one Dr though

On Tue, Jan 27, 2009 at 4:34 PM, Danny Hearn  wrote:

>   THANKS LORI--- MY NEW UROLOGIST IS OUT FOR AT LEAST 2 MORE DAYS, ONE OF
> HIS FELLOW DOCTORS TOLD ME MY CULTURE SHIOWED I HAD PSEUDOMONAS AND I MAY BE
> ABLE TO GET 2 SHOTS A DAY IN THE BUTT OR GET IV DRUGS---HE TOLD ME I CAN
> WAIT FOR MY DOCTOR TO GET BACK AND SEE IF I'M DOING WORSE OR ?? HE TOLD ME
> IT IS EXTREMELY HARD TO KNOW WHEN TO TREAT AND DEPENDS ON SYMPTOMS AND ETC.
> ( HAVE YOU EVER HAD THE SO CALLED SHOTS? I NEVER KNEW THIS WAS EVEN
> AVAILABLE DID YOU?   DANNY H.
>
> --- On *Tue, 1/27/09, Lori Michaelson * wrote:
>
> From: Lori Michaelson 
> Subject: Re: [QUAD-L] uti infections that require IV drugs
> To: ddh...@sbcglobal.net, quad-list@eskimo.com
> Date: Tuesday, January 27, 2009, 5:23 PM
>
>
>  I THINK you recall my history Danny since you & I have had these similar
> battles.
> I was treated twice.  Summer of 2005  (one bug alone--forgot whether it was
> Proteus Mirabilis or Psedemonas but I'm pretty sure it was the prior) then
> Summer of 2006 (both BIG BAD BUGS -- PROTEUS MIRABILIS & PSEUDEMONAS).  Both
> times requiring I.V. antibiodics.  SCARY with TWO pathogens running rampant
> and AFTER bladder stone removal.  :-(   But IV antibiodics took care of
> THEM.  The earlier the better with how aggressive these pathogens are.
>
> It's irrelevant how fast stones grow when an infection is present.  Cuz, no
> matter what, one has the infection.
>
> Pseudemonas is one of THE BIG BAD PATHOGENS.  Very uncool to "wait and see"
> as it "grows and spreads and encapsulates."  Been over this ground before of
> discussing it here.
>
> What does your "newer" Urologist think?  Not that Drs CAN always think :-)
> but it's up to him for treatment or looking out for your best interest.  If
> he doesn't think Pseudemonas isn't a big deal -- he's a fool.  If you HAVE
> the infection -- *preventatives* (H2O intake, Cranberry juice or tablets,
> more Vitamin C) won't DO anything.
>
> Lori Michaelson
> Age - 44
> C4/5 complete quad, 29 years post
> Tucson, AZ
>
>
>
> On Tue, Jan 27, 2009 at 11:10 AM, Danny Hearn wrote:
>
>>   *HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC
>> DRUG TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT
>> TIMES IN THE PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I
>> HAVE IT AGAIN AND NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE
>> REMOVED EXACTLY 2 YEARS AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE
>> I'M NOT SURE HOW FAST A STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT
>> RESISTANCE TO IV ANTIBIOTICS--- NOT SURE HOW MANY TIMES A PERSON CAN GET
>> REPEAT TREATMENTS ? ANY IDEA'S ? I'M GOING TO TRY AND HOLD OFF TREATMENT FOR
>> A BIT TO SEE IF MY SYMPTOMS GET WORSE... RIGHT NOW IT'S JUST INCREASED
>> SPASMS OF BODY AND SPASMS AND PAIN IN MY BLADDER. I HAVE A SUPRA-PUBIC
>> CATHETER.*
>> * THANKS TO ANY REPLY'S   DAN H. C-6
>> 11.5 YR. POST*
>>
>
>


-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

RE: [QUAD-L] uti infections that require IV drugs

[Steve Oldaker]

Hi Dan,

 

I went through a period of more than a year of UTIs seemingly back-to-back.
I was initially treated with oral antibiotics, then injectables, then via
IV. I would get an infection, be treated, then a week or two later be
infected yet again, sometimes with the same bug, sometimes another. I
ultimately was referred to Mayo Clinic in Jacksonville where after extensive
testing they put me on a maintenance dosage of Bactrim (half the normal
dosage of the antibiotic) for four months. That was about 11 months ago and
I have not had a single UTI since then.

 

Steve, - C4, 20 years

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Tuesday, January 27, 2009 1:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] uti infections that require IV drugs

 


HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC DRUG
TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT TIMES IN
THE PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I HAVE IT
AGAIN AND NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE REMOVED
EXACTLY 2 YEARS AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE I'M NOT
SURE HOW FAST A STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT RESISTANCE TO
IV ANTIBIOTICS--- NOT SURE HOW MANY TIMES A PERSON CAN GET REPEAT TREATMENTS
? ANY IDEA'S ? I'M GOING TO TRY AND HOLD OFF TREATMENT FOR A BIT TO SEE IF
MY SYMPTOMS GET WORSE... RIGHT NOW IT'S JUST INCREASED SPASMS OF BODY AND
SPASMS AND PAIN IN MY BLADDER. I HAVE A SUPRA-PUBIC CATHETER.

 THANKS TO ANY REPLY'S   DAN H. C-6  11.5
YR. POST

 

Re: [QUAD-L] uti infections that require IV drugs

[John S.]

Dear Dan,
Just curious, do you have a lot of house plants. Pseudomonas is a bacteria that 
is always in soil and on many plant leaves. Often, it manages to survive anti 
biotics that should have wiped it out. I had to take IV anti biotics and get 
rid of all my living plants to end that bug. Whoever cleans around your 
catheter needs to avoid plants, too. It is a very tough bacteria and will 
travel and survive conditions it shouldn't be able to. 
You really need to get rid of it even if it requires IV anti biotics because it 
can cause sepsis if left untreated. You may very well have a stone, but the 
doctor may not want to remove a stone while you have an infection. Stones can 
form in very short time periods. Your bones are decalcifying like an astronaut. 
Unfortunately, calcium leaves the body through the kidneys and you are at risk 
of kidney and bladder stones.
I've had the opposite experience. I rarely get UTI's with an external catheter, 
but I have not been catheterized since 1996. 
Do you flush your bladder with sterile water between changing it? While I have 
never tried it, maybe colloidal silver would be more effective if used with the 
flush. 
Now, my theory on backflow. The catheters do not have anti-backflow valves 
where they connect to leg bag and bed bag lines that also lack anti backflow 
valves. The anti-backflow valves are in the bags. There is nothing preventing 
the lines to the bag from flowing back into you along with the bacteria that is 
growing in it and if it was just cleaned with clorox, just how good is that 
when it enters your bladder?
My solution is to attach a 500cc leg bag to the catheter when it is first put 
in and attach your leg bag and bed bag lines. This puts an anti backflow valve 
at the end of your catheter and you can see how much urine or cleaning solution 
flows back from the lines when it is stopped in the 500cc bag. Lets face it, it 
only takes a fraction of a drop to reinfect you. 
Do not let people change your catheter that can't keep the job sterile. Exam 
gloves are not acceptable and sterile gloves over a year old are just exam 
gloves. You can call the manufacturer and find out when a batch was made and 
shipped. 
Yes, you build up resistance to anti biotics so it is important to avoid 
infections. STOP SHAKING HANDS!

I  wish you all the best,
john




From: Danny Hearn 
To: quad-list@eskimo.com
Sent: Tuesday, January 27, 2009 1:10:12 PM
Subject: [QUAD-L] uti infections that require IV drugs


HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC DRUG 
TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT TIMES IN THE 
PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I HAVE IT AGAIN AND 
NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE REMOVED EXACTLY 2 YEARS 
AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE I'M NOT SURE HOW FAST A 
STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT RESISTANCE TO IV ANTIBIOTICS--- 
NOT SURE HOW MANY TIMES A PERSON CAN GET REPEAT TREATMENTS ? ANY IDEA'S ? I'M 
GOING TO TRY AND HOLD OFF TREATMENT FOR A BIT TO SEE IF MY SYMPTOMS GET 
WORSE... RIGHT NOW IT'S JUST INCREASED SPASMS OF BODY AND SPASMS AND PAIN IN MY 
BLADDER. I HAVE A SUPRA-PUBIC CATHETER.
 THANKS TO ANY REPLY'S   DAN H. C-6  11.5 YR. 
POST 


  

Re: [QUAD-L] uti infections that require IV drugs

[Danny Hearn]

THANKS LORI--- MY NEW UROLOGIST IS OUT FOR AT LEAST 2 MORE DAYS, ONE OF HIS 
FELLOW DOCTORS TOLD ME MY CULTURE SHIOWED I HAD PSEUDOMONAS AND I MAY BE ABLE 
TO GET 2 SHOTS A DAY IN THE BUTT OR GET IV DRUGS---HE TOLD ME I CAN WAIT FOR MY 
DOCTOR TO GET BACK AND SEE IF I'M DOING WORSE OR ?? HE TOLD ME IT IS EXTREMELY 
HARD TO KNOW WHEN TO TREAT AND DEPENDS ON SYMPTOMS AND ETC. ( HAVE YOU EVER HAD 
THE SO CALLED SHOTS? I NEVER KNEW THIS WAS EVEN AVAILABLE DID YOU?   DANNY 
H.

--- On Tue, 1/27/09, Lori Michaelson  wrote:

From: Lori Michaelson 
Subject: Re: [QUAD-L] uti infections that require IV drugs
To: ddh...@sbcglobal.net, quad-list@eskimo.com
Date: Tuesday, January 27, 2009, 5:23 PM



I THINK you recall my history Danny since you & I have had these similar 
battles.  

I was treated twice.  Summer of 2005  (one bug alone--forgot whether it was 
Proteus Mirabilis or Psedemonas but I'm pretty sure it was the prior) then 
Summer of 2006 (both BIG BAD BUGS -- PROTEUS MIRABILIS & PSEUDEMONAS).  Both 
times requiring I.V. antibiodics.  SCARY with TWO pathogens running rampant and 
AFTER bladder stone removal.  :-(   But IV antibiodics took care of THEM.  The 
earlier the better with how aggressive these pathogens are.
 
It's irrelevant how fast stones grow when an infection is present.  Cuz, no 
matter what, one has the infection.
 
Pseudemonas is one of THE BIG BAD PATHOGENS.  Very uncool to "wait and see" as 
it "grows and spreads and encapsulates."  Been over this ground before of 
discussing it here.
 
What does your "newer" Urologist think?  Not that Drs CAN always think :-) but 
it's up to him for treatment or looking out for your best interest.  If 
he doesn't think Pseudemonas isn't a big deal -- he's a fool.  If you HAVE the 
infection -- preventatives (H2O intake, Cranberry juice or tablets, more 
Vitamin C) won't DO anything.
 
Lori Michaelson
Age - 44
C4/5 complete quad, 29 years post
Tucson, AZ


 
On Tue, Jan 27, 2009 at 11:10 AM, Danny Hearn  wrote:






HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC DRUG 
TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT TIMES IN THE 
PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I HAVE IT AGAIN AND 
NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE REMOVED EXACTLY 2 YEARS 
AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE I'M NOT SURE HOW FAST A 
STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT RESISTANCE TO IV ANTIBIOTICS--- 
NOT SURE HOW MANY TIMES A PERSON CAN GET REPEAT TREATMENTS ? ANY IDEA'S ? I'M 
GOING TO TRY AND HOLD OFF TREATMENT FOR A BIT TO SEE IF MY SYMPTOMS GET 
WORSE... RIGHT NOW IT'S JUST INCREASED SPASMS OF BODY AND SPASMS AND PAIN IN MY 
BLADDER. I HAVE A SUPRA-PUBIC CATHETER.
 THANKS TO ANY REPLY'S   DAN H. C-6  11.5 YR. 
POST

Re: [QUAD-L] uti infections that require IV drugs

[Lori Michaelson]

Typo by me below.  I wrote:

"If he doesn't think Pseudemonas isn't a big deal -- he's a fool."

I MEANT to say:

"If he doesn't think Pseudemonas *is* a big deal -- he's a fool."

Lori



On Tue, Jan 27, 2009 at 4:23 PM, Lori Michaelson wrote:

> I THINK you recall my history Danny since you & I have had these similar
> battles.
> I was treated twice.  Summer of 2005  (one bug alone--forgot whether it was
> Proteus Mirabilis or Psedemonas but I'm pretty sure it was the prior) then
> Summer of 2006 (both BIG BAD BUGS -- PROTEUS MIRABILIS & PSEUDEMONAS).  Both
> times requiring I.V. antibiodics.  SCARY with TWO pathogens running rampant
> and AFTER bladder stone removal.  :-(   But IV antibiodics took care of
> THEM.  The earlier the better with how aggressive these pathogens are.
>
> It's irrelevant how fast stones grow when an infection is present.  Cuz, no
> matter what, one has the infection.
>
> Pseudemonas is one of THE BIG BAD PATHOGENS.  Very uncool to "wait and see"
> as it "grows and spreads and encapsulates."  Been over this ground before of
> discussing it here.
>
> What does your "newer" Urologist think?  Not that Drs CAN always think :-)
> but it's up to him for treatment or looking out for your best interest.  If
> he doesn't think Pseudemonas isn't a big deal -- he's a fool.  If you HAVE
> the infection -- *preventatives* (H2O intake, Cranberry juice or tablets,
> more Vitamin C) won't DO anything.
>
> Lori Michaelson
> Age - 44
> C4/5 complete quad, 29 years post
> Tucson, AZ
>
>
>
> On Tue, Jan 27, 2009 at 11:10 AM, Danny Hearn wrote:
>
>>   *HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC
>> DRUG TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT
>> TIMES IN THE PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I
>> HAVE IT AGAIN AND NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE
>> REMOVED EXACTLY 2 YEARS AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE
>> I'M NOT SURE HOW FAST A STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT
>> RESISTANCE TO IV ANTIBIOTICS--- NOT SURE HOW MANY TIMES A PERSON CAN GET
>> REPEAT TREATMENTS ? ANY IDEA'S ? I'M GOING TO TRY AND HOLD OFF TREATMENT FOR
>> A BIT TO SEE IF MY SYMPTOMS GET WORSE... RIGHT NOW IT'S JUST INCREASED
>> SPASMS OF BODY AND SPASMS AND PAIN IN MY BLADDER. I HAVE A SUPRA-PUBIC
>> CATHETER.*
>> * THANKS TO ANY REPLY'S   DAN H. C-6
>> 11.5 YR. POST*
>>
>
>


-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

Re: [QUAD-L] uti infections that require IV drugs

[Lori Michaelson]

I THINK you recall my history Danny since you & I have had these similar
battles.
I was treated twice.  Summer of 2005  (one bug alone--forgot whether it was
Proteus Mirabilis or Psedemonas but I'm pretty sure it was the prior) then
Summer of 2006 (both BIG BAD BUGS -- PROTEUS MIRABILIS & PSEUDEMONAS).  Both
times requiring I.V. antibiodics.  SCARY with TWO pathogens running rampant
and AFTER bladder stone removal.  :-(   But IV antibiodics took care of
THEM.  The earlier the better with how aggressive these pathogens are.

It's irrelevant how fast stones grow when an infection is present.  Cuz, no
matter what, one has the infection.

Pseudemonas is one of THE BIG BAD PATHOGENS.  Very uncool to "wait and see"
as it "grows and spreads and encapsulates."  Been over this ground before of
discussing it here.

What does your "newer" Urologist think?  Not that Drs CAN always think :-)
but it's up to him for treatment or looking out for your best interest.  If
he doesn't think Pseudemonas isn't a big deal -- he's a fool.  If you HAVE
the infection -- *preventatives* (H2O intake, Cranberry juice or tablets,
more Vitamin C) won't DO anything.

Lori Michaelson
Age - 44
C4/5 complete quad, 29 years post
Tucson, AZ



On Tue, Jan 27, 2009 at 11:10 AM, Danny Hearn  wrote:

>   *HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC
> DRUG TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT
> TIMES IN THE PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I
> HAVE IT AGAIN AND NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE
> REMOVED EXACTLY 2 YEARS AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE
> I'M NOT SURE HOW FAST A STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT
> RESISTANCE TO IV ANTIBIOTICS--- NOT SURE HOW MANY TIMES A PERSON CAN GET
> REPEAT TREATMENTS ? ANY IDEA'S ? I'M GOING TO TRY AND HOLD OFF TREATMENT FOR
> A BIT TO SEE IF MY SYMPTOMS GET WORSE... RIGHT NOW IT'S JUST INCREASED
> SPASMS OF BODY AND SPASMS AND PAIN IN MY BLADDER. I HAVE A SUPRA-PUBIC
> CATHETER.*
> * THANKS TO ANY REPLY'S   DAN H. C-6  11.5
> YR. POST*
>

Re: [QUAD-L] uti infections that require IV drugs

[Danny Hearn]

Hi  - Ron-- yes I do all the things you mentioned, plus today i'm going to 
start trying colloidal silver again ( not sure if it works, but many say so ) . 
No i did not get the mri that was scheduled for last friday---they want to 
reschedule later on when i'm not having bladder or kidney related uti 
problems.    thanks, Dan H.

--- On Tue, 1/27/09, RONALD L PRACHT  wrote:

From: RONALD L PRACHT 
Subject: Re: [QUAD-L] uti infections that require IV drugs
To: quad-list@eskimo.com
Date: Tuesday, January 27, 2009, 1:49 PM







thats a tough situation dan with the repeat infections, i know that infections 
kinda go in cycles...you might have 3 then nothing for a long while. I dont 
have a superpubic so im not much help in this instance. Only thing I could add 
is make sure your drinking plenty, taking your vitamin c, possibly cranberry 
pills. Try reading on the net in forums about others with superpubics. Did you 
ever go and get your mri...if so what were the findings?
 
ron c7 

--- On Tue, 1/27/09, Danny Hearn  wrote:

From: Danny Hearn 
Subject: [QUAD-L] uti infections that require IV drugs
To: quad-list@eskimo.com
Date: Tuesday, January 27, 2009, 12:10 PM







HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC DRUG 
TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT TIMES IN THE 
PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I HAVE IT AGAIN AND 
NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE REMOVED EXACTLY 2 YEARS 
AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE I'M NOT SURE HOW FAST A 
STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT RESISTANCE TO IV ANTIBIOTICS--- 
NOT SURE HOW MANY TIMES A PERSON CAN GET REPEAT TREATMENTS ? ANY IDEA'S ? I'M 
GOING TO TRY AND HOLD OFF TREATMENT FOR A BIT TO SEE IF MY SYMPTOMS GET 
WORSE... RIGHT NOW IT'S JUST INCREASED SPASMS OF BODY AND SPASMS AND PAIN IN MY 
BLADDER. I HAVE A SUPRA-PUBIC CATHETER.
 THANKS TO ANY REPLY'S   DAN H. C-6  11.5 YR. 
POST

Re: [QUAD-L] uti infections that require IV drugs

[RONALD L PRACHT]

thats a tough situation dan with the repeat infections, i know that infections 
kinda go in cycles...you might have 3 then nothing for a long while. I dont 
have a superpubic so im not much help in this instance. Only thing I could add 
is make sure your drinking plenty, taking your vitamin c, possibly cranberry 
pills. Try reading on the net in forums about others with superpubics. Did you 
ever go and get your mri...if so what were the findings?
 
ron c7 

--- On Tue, 1/27/09, Danny Hearn  wrote:

From: Danny Hearn 
Subject: [QUAD-L] uti infections that require IV drugs
To: quad-list@eskimo.com
Date: Tuesday, January 27, 2009, 12:10 PM







HI ALL-- I WAS WONDERING IF ANY OF YOU HAVE HAD REPEAT IV ANTIBIOTIC DRUG 
TREATMENT FOR BLADDER INFECTIONS?  I HAVE BEEN TREATED 3 DIFFERENT TIMES IN THE 
PAST FOR PSEDOMONAS UTI'S .  JUST TODAY I WAS INFORMED THAT I HAVE IT AGAIN AND 
NO ORAL DRUGS CAN HELP ME.  I HAD MY 1ST BLADDER STONE REMOVED EXACTLY 2 YEARS 
AGO-SO NOT SURE IF I COULD HAVE ANOTHER, BECAUSE I'M NOT SURE HOW FAST A 
STONE CAN DEVELOPE? I'M GETTING WORRIED ABOUT RESISTANCE TO IV ANTIBIOTICS--- 
NOT SURE HOW MANY TIMES A PERSON CAN GET REPEAT TREATMENTS ? ANY IDEA'S ? I'M 
GOING TO TRY AND HOLD OFF TREATMENT FOR A BIT TO SEE IF MY SYMPTOMS GET 
WORSE... RIGHT NOW IT'S JUST INCREASED SPASMS OF BODY AND SPASMS AND PAIN IN MY 
BLADDER. I HAVE A SUPRA-PUBIC CATHETER.
 THANKS TO ANY REPLY'S   DAN H. C-6  11.5 YR. 
POST

Re: [QUAD-L] UTI *PREVENTION*

[Danny Hearn]

Never tried this baking soda thing---have you or others done this??  Dan H.

Lori Michaelson <[EMAIL PROTECTED]> wrote:   
  I know that we have covered this topic to death but there are oftentimes 
lurkers or newcomers or even some old timers (like myself) who end up having to 
help themselves when the medical field has failed us.
   
  For those of you that remember... I was having a very hard time keeping my 
urine more acidic --   Therefore I kept having bad UTIs over and over again.  I 
had no idea why and my urologist had no idea either.  So I finally ended up 
finding on the Internet that my daily intake of potassium was causing my urine 
to be more alkaline rather than acidic.  And therefore much much much much much 
more easier for bacteria to grow.  
  I stopped eating a banana a day and that took care of it!  
   
  I felt that my urologist should know that potassium has a great efect on the 
kidneys and bladder but she did not.  
   
  So, I have solved my problem and doubt I will be doing the following.  But I 
wanted to bring it to everyone's attention FYI (below) :
   
  Also, keep in mind that drinking cranberry juice, taking vitamin C and even 
the following suggestion is not going to make an infection go away if the 
bacteria is already there with symptoms, etc..  They are only preventatives!  
The Dr's advice is after a UTI is present but SHE KNOWS it's really a 
preventative.
   
  So here's what I found today:
   
  ANTIBACTERIAL STRATEGIES :
If a urine culture indicates that you have a UTI, your doctor will probably 
prescribe antibiotics. In addition to taking the medication, here's what you 
can do to relieve symptoms and prevent future recurrences. 
  Fix yourself a baking soda cocktail.   
"At the first sign of symptoms, mix half a teaspoon of baking soda in an 
eight-ounce glass of water and drink it," says Kristene E. Whitmore, M.D., 
chief of urology and director of the Incontinence Center at Graduate Hospital 
in Philadelphia. The baking soda raises the pH (acid-base balance) of 
irritating, acidic urine. This raises the PH in your urinary tract so the 
bacteria can't survive.
  OR
  1) A mixture of 1/2 tsp baking soda in eight ounce glass of water can be very 
helpful as a UTI preventative or during the first signs of urinary tract 
infection. The presence of baking soda in your system raises the acid-base 
balance of the acidic urine. Or 1 teaspoon into a liter of water.  IF you have 
a diagnosed, symptomatic UTI -- take 
the antibiotics that are necessary to treat the family of bacteria that is 
present.
  Lori Michaelson
  Age - 44
  C4/5 complete quad, 28 years post
  Tucson, AZ

Re: [QUAD-L] UTI and ETC> Help Aids

[John S.]

We are getting 12" of snow in Cincy.
Well, It is like the vans. I never had one. I haven't had a real UTI since '88. 
I sure never liked SP but had it for 2 years.  
I have 3 bed bags hanging on my bed because it is very likely nobody will make 
it in a foot of snow. 
You can double and triple leg bags but not the kind with screw valves. Slide 
the yellow utility hose over the end of the lever valves and other end to the 
next bag. Leave the valve open. 
I wish you the best.
john

- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:03:41 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids

 In a message dated 3/7/2008 10:55:35 PM Eastern Standard Time, 
[EMAIL PROTECTED] writes:
How do you attatch your leg bag and bed bag?  The leg bag where it 
  empties is either losens to empty or has a lever to pull to empty it.  At 
  least mine do.

this is where i got confused. my foley is attached to leg bag for day. it's 
then switched to a night bag that clips to the bed with an extension for 
night,,,which is where i'm headed!
nite all!
dianna



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Re: [QUAD-L] UTI and ETC> Help Aids

[Stacy Harim]

I understand.  It's just a matter of finding them.  I got them a few times when 
I had a homehealth nurse coming in but since my sore is finally gone (woohoo), 
I don't need them to come anymore.  I get legbags from appledrug and that is 
the only pharmacy in my area that carries medical supplies such as catheters, 
leg bags, etc.

Stacy


- Original Message 
From: John S. <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:20:48 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids


They have nice cheap 8 oz. bags with lines that have metal clips shutting them. 
You remove the line from the bottom and simply attach a short length of yellow 
foam line to the bag where the nasty green line was. 
You attach your regular bed bag or leg bag to the drain end of the small bag. I 
have to get a cam and make a video. I've never had trouble connecting bags to 
bags.
Let me know if that is any help?

best wishes,
 john


- Original Message 
From: Stacy Harim <[EMAIL PROTECTED]>
To: John S. <[EMAIL PROTECTED]>; quad-list@eskimo.com
Sent: Friday, March 7, 2008 10:55:04 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids


How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.
 
Stacy
 


 
- Original Message 
From: John S. <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids


Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use "sterile" gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john


- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC> Help Aids


Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is >> Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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Re: [QUAD-L] UTI and ETC> Help Aids

[John S.]

They have nice cheap 8 oz. bags with lines that have metal clips shutting them. 
You remove the line from the bottom and simply attach a short length of yellow 
foam line to the bag where the nasty green line was. 
You attach your regular bed bag or leg bag to the drain end of the small bag. I 
have to get a cam and make a video. I've never had trouble connecting bags to 
bags.
Let me know if that is any help?

best wishes,
 john

- Original Message 
From: Stacy Harim <[EMAIL PROTECTED]>
To: John S. <[EMAIL PROTECTED]>; quad-list@eskimo.com
Sent: Friday, March 7, 2008 10:55:04 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids

How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.
 
Stacy
 


 
- Original Message 
From: John S. <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids

Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use "sterile" gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john

- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC> Help Aids

Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is >> Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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Re: [QUAD-L] UTI and ETC> Help Aids

[Stacy Harim]

I wear my bed bag all of the time unless I'm going somewhere.  I spend a lot of 
the day in bed anyhow due to back pain so I dont see a point in going through 
the process although I do it by myself as far as changing and rinsing them out. 
 I do get a lot of infections so am going to do some research on Methylamine 
Mandelate.  I've never heard of it before so wouldn't hurt to find out more 
about it

Stacy



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:03:41 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids


In a message dated 3/7/2008 10:55:35 PM Eastern Standard Time, [EMAIL 
PROTECTED] writes:
How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.
this is where i got confused. my foley is attached to leg bag for day. it's 
then switched to a night bag that clips to the bed with an extension for 
night,,,which is where i'm headed!
nite all!
dianna






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Re: [QUAD-L] UTI and ETC> Help Aids

[DiannaL767]

 
In a message dated 3/7/2008 10:55:35 PM Eastern Standard Time,  
[EMAIL PROTECTED] writes:

How do you attatch your leg bag and bed bag?  The leg bag where it  empties 
is either losens to empty or has a lever to pull to empty it.  At  least mine 
do.


this is where i got confused. my foley is attached to leg bag for day. it's  
then switched to a night bag that clips to the bed with an extension for  
night,,,which is where i'm headed!
nite all!
dianna



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Finance.  (http://money.aol.com/tax?NCID=aolprf000301)

Re: [QUAD-L] UTI and ETC> Help Aids

[Stacy Harim]

How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.

Stacy




- Original Message 
From: John S. <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC> Help Aids


Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use "sterile" gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john


- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC> Help Aids


Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is >> Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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RE: [QUAD-L] UTI and ETC> Help Aids

[Jim Lubin]

How much Vitamin C do you take? I take 1000mg x 3 daily. Haven't had 
a UTI in about 15 years. Only had a cold once about 8 years ago.


Jim
C2 vent dependent quad due to acute transverse myelitis in 1989.

At 08:51 AM 3/7/2008, Danny Espinoza wrote:

I have a Supra-Pubic Catheter and get infections about once every 2 
months "it really sucks". I take  Vitamin C and  Cranberry Pills and 
cant figure out how to stop them either! L






Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [QUAD-L] UTI and ETC> Help Aids

[John S.]

Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use "sterile" gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john
 
- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC> Help Aids

Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is >> Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
   Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
 






  

Never miss a thing.  Make Yahoo your home page. 
http://www.yahoo.com/r/hs

Re: [QUAD-L] UTI and ETC> Help Aids

[wheelchair]

Your cultures should reveal the source if its hygiene related. Washing and  
cleaning around the area is important and sweating in that area should be  
contolled.
Best Wishes
 
 
In a message dated 3/7/2008 10:40:19 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I  have a Supra-Pubic Catheter and get infections about once every  2 months “
it really sucks”. I take  Vitamin C and  Cranberry Pills  and cant figure out 
how to stop them either! L 
Danny  Espinoza  24/m/California




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RE: [QUAD-L] UTI and ETC> Help Aids

[Danny Espinoza]

I have a Supra-Pubic Catheter and get infections about once every 2 months
"it really sucks". I take  Vitamin C and  Cranberry Pills and cant figure
out how to stop them either! L

 

Danny Espinoza 24/m/California

Occupation before accident - Network engineer / SR. Network security
engineer

Broke c2,c6,c7 and doner  bone at c2

TBI from blood going to central cortex from spinal cord

off a vent "woohoo" however only one diaphragm works right now "due to

asymmetric SCI"

 

http://secureminds.us/

 

 

 

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 8:02 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI and ETC> Help Aids

 

Hello  Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple
Cider Vinegar   I get UTI 's all the Time  and the only One of these I
have not Tried is >> Collodial Silver. { I stay faithfull on the cranberry
and vitamin C } but never go long without bad UTI trouble.   I have a
Supra-Pubic Catheter and doctors say there will always be infection trouble,
But don't some of you with indwelling Catheters go long periods between
serious UTI infections???  It's hard to be able to live in pain but always
worry about infection killing you.

 Thanks All!!
Dan H. - Saint Louis, Mo. c-6

   

RE: [QUAD-L] UTI Prevention & Van Insurence

[David K. Kelmer]

The Vitamin C is used to keep the urine acidic level (pH 5.5 or below) so the 
Methenamine can work correctly.  
http://www.mayoclinic.com/health/drug-information/DR202354
   
  Thanks for the tip on the herb.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  
Merrill Burghardt <[EMAIL PROTECTED]> wrote:
v\:* {behavior:url(#default#VML);}  o\:* {behavior:url(#default#VML);}  
w\:* {behavior:url(#default#VML);}  .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }The Methylamine as I was 
told is an acidifier which is more effective taken with larger doses of vitamin 
C.  Work or not I could not say but I have used it for fifteen years.  
Cranberry test I’ve read were only done with juice, powered has not been 
substantiated.  There is an herb spelled something like Sativa.  The spelling 
might be way off here but apparently it is hundreds time sweeter than sugar so 
bacteria leaves go of the bladder wall and clings on to the sweeter Sativia.  
I’ve used it but stopped after gaining weight.  My new Supra Pubic as of April 
has been the longest I have gone UTI free/
   
  Merrill
   
  
-
  
  From: David K. Kelmer [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 10, 2007 11:31 AM
To: Danny Hearn; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] UTI Prevention & Van Insurence

   
Hi Dan,

 

Have you ever tried using Methenamine (meth-EN-a-meen)?  It belongs to the 
family of medicines called anti-infectives.  It is used to help prevent and 
treat infections of the urinary tract.  You might want to check into it.

 

 

With Love,


CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post

 

 

Texas, USA

  

Danny Hearn <[EMAIL PROTECTED]> wrote:


   Yes John my doctors told me that also...that if you have an 
indwelling such as a supra-pubic catheter you usually have 2 or 3 types of 
infection always but they hate to treat unless you are having bad symptoms or 
problems, cause they don't want us getting immune to anti-biotics. 
Dan

[EMAIL PROTECTED] wrote: 
If you have a supra-pubic cath or an in dwelling Foley of any kind for more 
than a few days, you have a UTI. It is a matter of how bad it is and how well 
you tolerate infections. On that level, you should have bacterial infections 
most of the time. If any of you get a viral infection, the doctor may want you 
in the hospital but there's not a lot they can do. (When were you ever made 
comfortable in a hospital.) You can be super clean and a real fanatic, but your 
skin is covered with bacteria it is trying to keep out. For this ! reason, most 
infections are stafflococous. If you have kids around then you get a higher 
rate of strep infections. (can't say they didn't give you anything.) If you 
think you can delay treating the infection, your kidneys can become history to 
an aggressive bug in under a day. Fortunately, us quads get pretty ill while 
the infection is still chewing on our bladder and start anti biotic in time. A 
UTI is worse if it is shutting your kidneys down. I
 can usually tell a lot by how easy it is to get mad. If I get po'ed because 
people don't park between the lines, I'm probably pretty sic! k.

I personally don't go to hospitals. I can be ignored and miserable without 
going anywhere and I have cable tv for when I'm awake at 4 am. I just promise 
to call 911 if I think I'm going to die. They can always send a nurse with the 
plague du jour if need be. 

Next time you catch a bug remember, it caught you! Don't get me wrong, do 
all you can to stay clean. Lots of reasons to keep clean!

Please don't think UTI's aren't serious because I like to joke. Once your 
kidneys go, you get a new catheter so you can get your blood dialysed and not 
die of septicemia as fast.

 

john

C-5 post 31

Cincy, OH 

   

Re: [QUAD-L] UTI Prevention & Van Insurence

[David K. Kelmer]

Hi Dan,
   
  Have you ever tried using Methenamine (meth-EN-a-meen)?  It belongs to the 
family of medicines called anti-infectives.  It is used to help prevent and 
treat infections of the urinary tract.  You might want to check into it.
   
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
   
  Texas, USA


Danny Hearn <[EMAIL PROTECTED]> wrote:

 Yes John my doctors told me that also...that if you have an 
indwelling such as a supra-pubic catheter you usually have 2 or 3 types of 
infection always but they hate to treat unless you are having bad symptoms or 
problems, cause they don't want us getting immune to anti-biotics. 
Dan

[EMAIL PROTECTED] wrote: If you have a supra-pubic cath or an in dwelling 
Foley of any kind for more than a few days, you have a UTI. It is a matter of 
how bad it is and how well you tolerate infections. On that level, you should 
have bacterial infections most of the time. If any of you get a viral 
infection, the doctor may want you in the hospital but there's not a lot they 
can do. (When were you ever made comfortable in a hospital.) You can be super 
clean and a real fanatic, but your skin is covered with bacteria it is trying 
to keep out. For this ! reason, most infections are stafflococous. If you have 
kids around then you get a higher rate of strep infections. (can't say they 
didn't give you anything.) If you think you can delay treating the infection, 
your kidneys can become history to an aggressive bug in under a day. 
Fortunately, us quads get pretty ill while the infection is still chewing on 
our bladder and start anti biotic in time. A UTI is worse if it is
 shutting your kidneys down. I can usually tell a lot by how easy it is to get 
mad. If I get po'ed because people don't park between the lines, I'm probably 
pretty sic! k.
  I personally don't go to hospitals. I can be ignored and miserable without 
going anywhere and I have cable tv for when I'm awake at 4 am. I just promise 
to call 911 if I think I'm going to die. They can always send a nurse with the 
plague du jour if need be. 
  Next time you catch a bug remember, it caught you! Don't get me wrong, do all 
you can to stay clean. Lots of reasons to keep clean!
  Please don't think UTI's aren't serious because I like to joke. Once your 
kidneys go, you get a new catheter so you can get your blood dialysed and not 
die of septicemia as fast.
   
  john
  C-5 post 31
  Cincy, OH 
 

RE: [QUAD-L] UTI Prevention & Van Insurence

[poajoan]

Wow!! I think I am very glad that I have stayed with intermittent
catheterization. It's going on 16 1/2 years, and I do get very tired of
having to schedule many things around my cath schedule, but I have never had
a serious UTI -- and listening to you guys I never want one. The most
serious one that I had I got while I was in the hospital for a brown recluse
spider bite. And that was 15 1/2 years ago. Since then, I have averaged a
mild one once a year, which has responded to 10 days of Cipro. I am sure I
usually have a mild UTI, but I am not symptomatic. After eight years of no
health insurance, I was finally eligible for Social Security when I reached
65 -- that was a great birthday present. So last year, I went through the
entire kidney, bladder, colonoscopy, and whatever else they can think of
series of tests. Luckily, everything seemed to be working correctly, and my
urologist finally said, as he had some news for me, "everything looks so
good that I don't really believe you are a quad". Corniest joke I've heard
in a long time, but it was welcome news.

 

So, until something else has to be done, I think I'll stay with intermittent
catheterization. Because as they say, if it ain't broke don't fix it. My
heart goes out to all of you who have so many bladder and kidney problems. I
have been blessed with very good health, and with the exception of these
darn wounds that I am working on, I stay in good health.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 02, 2007 1:32 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] UTI Prevention & Van Insurence

 

If you have a supra-pubic cath or an in dwelling Foley of any kind for more
than a few days, you have a UTI. It is a matter of how bad it is and how
well you tolerate infections. On that level, you should have bacterial
infections most of the time. If any of you get a viral infection, the doctor
may want you in the hospital but there's not a lot they can do. (When were
you ever made comfortable in a hospital.) You can be super clean and a real
fanatic, but your skin is covered with bacteria it is trying to keep out.
For this ! reason, most infections are stafflococous. If you have kids
around then you get a higher rate of strep infections. (can't say they
didn't give you anything.) If you think you can delay treating the
infection, your kidneys can become history to an aggressive bug in under a
day. Fortunately, us quads get pretty ill while the infection is still
chewing on our bladder and start anti biotic in time. A UTI is worse if it
is shutting your kidneys down. I can usually tell a lot by how easy it is to
get mad. If I get po'ed because people don't park between the lines, I'm
probably pretty sic! k.

I personally don't go to hospitals. I can be ignored and miserable without
going anywhere and I have cable tv for when I'm awake at 4 am. I just
promise to call 911 if I think I'm going to die. They can always send a
nurse with the plague du jour if need be. 

Next time you catch a bug remember, it caught you! Don't get me wrong, do
all you can to stay clean. Lots of reasons to keep clean!

Please don't think UTI's aren't serious because I like to joke. Once your
kidneys go, you get a new catheter so you can get your blood dialysed and
not die of septicemia as fast.

 

john

C-5 post 31

Cincy, OH 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thu, 1 Feb 2007 9:34 PM
Subject: Re: [QUAD-L] UTI Prevention & Van Insurence

Maybe the UTI was fostered by the yogurt.  Sometimes food rich in calcium or
minerals are deposited in the urine and slowdown draining of urine.  The
slowdown could in turn foster UTI.  I have read that most UTIs are caused
from a bug in our stool.  I had always been extremely careful getting
cleaned off after bowel care and accidents but then when I learned that most
UTIs are caused by bug in stool I became extreme, somewhat over-the-top
about cleanliness.  It helped. Changing sheets and washing more frequently
might help.  Dan T.


[EMAIL PROTECTED] wrote: 

Hi All,

 I have not had a UTI since August and I swear it's from taking
cranberry pills and eating a yogurt EVERYDAY.

  When I got my new van in 2001 I had my conversion company give me an
itemized list of their work and gave it to my State Farm agent so everything
is insured. I pay $1,200 and I drive. I haven't had an accident since 1981
and I've never gotten a ticket.

  Bobbie

 

  _  

size=2 width="100%" align=center> 

 
<http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol> Check out the new AOL. Most
comprehensive set of free safety and security tools, free access to millions
of high-quality videos from across the web, free AOL Mail and more.

Re: [QUAD-L] UTI Prevention & Van Insurence

[Danny Hearn]

   Yes John my doctors told me that also...that if you have an 
indwelling such as a supra-pubic catheter you usually have 2 or 3 types of 
infection always but they hate to treat unless you are having bad symptoms or 
problems, cause they don't want us getting immune to anti-biotics. 
Dan

[EMAIL PROTECTED] wrote:If you have a supra-pubic cath or an in dwelling 
Foley of any kind for more than a few days, you have a UTI. It is a matter of 
how bad it is and how well you tolerate infections. On that level, you should 
have bacterial infections most of the time. If any of you get a viral 
infection, the doctor may want you in the hospital but there's not a lot they 
can do. (When were you ever made comfortable in a hospital.) You can be super 
clean and a real fanatic, but your skin is covered with bacteria it is trying 
to keep out. For this ! reason, most infections are stafflococous. If you have 
kids around then you get a higher rate of strep infections. (can't say they 
didn't give you anything.) If you think you can delay treating the infection, 
your kidneys can become history to an aggressive bug in under a day. 
Fortunately, us quads get pretty ill while the infection is still chewing on 
our bladder and start anti biotic in time. A UTI is worse if it is
 shutting your kidneys down. I can usually tell a lot by how easy it is to get 
mad. If I get po'ed because people don't park between the lines, I'm probably 
pretty sic! k.
  I personally don't go to hospitals. I can be ignored and miserable without 
going anywhere and I have cable tv for when I'm awake at 4 am. I just promise 
to call 911 if I think I'm going to die. They can always send a nurse with the 
plague du jour if need be. 
  Next time you catch a bug remember, it caught you! Don't get me wrong, do all 
you can to stay clean. Lots of reasons to keep clean!
  Please don't think UTI's aren't serious because I like to joke. Once your 
kidneys go, you get a new catheter so you can get your blood dialysed and not 
die of septicemia as fast.
   
  john
  C-5 post 31
  Cincy, OH 
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thu, 1 Feb 2007 9:34 PM
Subject: Re: [QUAD-L] UTI Prevention & Van Insurence

.AOLPlainTextBody {  margin: 0px;  font-family: Tahoma, Verdana, 
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0px;  height: 0px;  }img.placeholder {  width: 275px;  height: 
206px;  background: #F4F4F4 center center no-repeat;  border: 1px solid 
#DADAD6 !important;}Maybe the UTI was fostered by the yogurt.  
Sometimes food rich in calcium or minerals are deposited in the urine and 
slowdown draining of urine.  The slowdown could in turn foster UTI.  I have 
read that most UTIs are caused from a bug in our stool.  I had always been 
extremely careful getting cleaned off after bowel care and accidents but then 
when I learned that most UTIs are caused by bug in stool I became extreme, 
somewhat over-the-top about cleanliness.  It helped. Changing sheets and 
washing more frequently might help.  Dan T.


[EMAIL PROTECTED] wrote: Hi All,
   I have not had a UTI since August and I swear it's from taking cranberry 
pills and eating a yogurt EVERYDAY.
When I got my new van in 2001 I had my conversion company give me an 
itemized list of their work and gave it to my State Farm agent so everything is 
insured. I pay $1,200 and I drive. I haven't had an accident since 1981 and 
I've never gotten a ticket.
Bobbie



-
  Check out the new AOL. Most comprehensive set of free safety and security 
tools, free access to millions of high-quality videos from across the web, free 
AOL Mail and more.

Re: [QUAD-L] UTI Prevention & Van Insurence

[delimited4]

If you have a supra-pubic cath or an in dwelling Foley of any kind for more 
than a few days, you have a UTI. It is a matter of how bad it is and how well 
you tolerate infections. On that level, you should have bacterial infections 
most of the time. If any of you get a viral infection, the doctor may want you 
in the hospital but there's not a lot they can do. (When were you ever made 
comfortable in a hospital.) You can be super clean and a real fanatic, but your 
skin is covered with bacteria it is trying to keep out. For this reason, most 
infections are stafflococous. If you have kids around then you get a higher 
rate of strep infections. (can't say they didn't give you anything.) If you 
think you can delay treating the infection, your kidneys can become history to 
an aggressive bug in under a day. Fortunately, us quads get pretty ill while 
the infection is still chewing on our bladder and start anti biotic in time. A 
UTI is worse if it is shutting your kidneys down. I can us!
 ually tell a lot by how easy it is to get mad. If I get po'ed because people 
don't park between the lines, I'm probably pretty sick.
I personally don't go to hospitals. I can be ignored and miserable without 
going anywhere and I have cable tv for when I'm awake at 4 am. I just promise 
to call 911 if I think I'm going to die. They can always send a nurse with the 
plague du jour if need be. 
Next time you catch a bug remember, it caught you! Don't get me wrong, do all 
you can to stay clean. Lots of reasons to keep clean!
Please don't think UTI's aren't serious because I like to joke. Once your 
kidneys go, you get a new catheter so you can get your blood dialysed and not 
die of septicemia as fast.
 
john
C-5 post 31
Cincy, OH 
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thu, 1 Feb 2007 9:34 PM
Subject: Re: [QUAD-L] UTI Prevention & Van Insurence


Maybe the UTI was fostered by the yogurt.  Sometimes food rich in calcium or 
minerals are deposited in the urine and slowdown draining of urine.  The 
slowdown could in turn foster UTI.  I have read that most UTIs are caused from 
a bug in our stool.  I had always been extremely careful getting cleaned off 
after bowel care and accidents but then when I learned that most UTIs are 
caused by bug in stool I became extreme, somewhat over-the-top about 
cleanliness.  It helped. Changing sheets and washing more frequently might 
help.  Dan T.


[EMAIL PROTECTED] wrote: 
Hi All,
 I have not had a UTI since August and I swear it's from taking cranberry 
pills and eating a yogurt EVERYDAY.
  When I got my new van in 2001 I had my conversion company give me an itemized 
list of their work and gave it to my State Farm agent so everything is insured. 
I pay $1,200 and I drive. I haven't had an accident since 1981 and I've never 
gotten a ticket.
  Bobbie

Check out the new AOL.  Most comprehensive set of free safety and security 
tools, free access to millions of high-quality videos from across the web, free 
AOL Mail and more.

Re: [QUAD-L] UTI Prevention & Van Insurence

[Dan Tessiatore]

Maybe the UTI was fostered by the yogurt.  Sometimes food rich in calcium or 
minerals are deposited in the urine and slowdown draining of urine.  The 
slowdown could in turn foster UTI.  I have read that most UTIs are caused from 
a bug in our stool.  I had always been extremely careful getting cleaned off 
after bowel care and accidents but then when I learned that most UTIs are 
caused by bug in stool I became extreme, somewhat over-the-top about 
cleanliness.  It helped.  Changing sheets and washing more frequently might 
help.  Dan T.


[EMAIL PROTECTED] wrote:  Hi All,
   I have not had a UTI since August and I swear it's from taking cranberry 
pills and eating a yogurt EVERYDAY.
When I got my new van in 2001 I had my conversion company give me an 
itemized list of their work and gave it to my State Farm agent so everything is 
insured. I pay $1,200 and I drive. I haven't had an accident since 1981 and 
I've never gotten a ticket.
Bobbie

Re: [QUAD-L] UTI

[Tim Syfert]

I've had excellent success staying uti free with colloidal silver (a natural antibiotic). I drink about 1-2 oz. per day. This website has a good price for it. I've bought a couple of gallons from them before. I make my own now.     http://www.csprosystems.com/     TimDerrick <[EMAIL PROTECTED]> wrote:  I just obtained another uti.  I believe the uti's are coming from not emptying my bladder all the way.     I use a condom catheter all the time but i straight
 cath every morning and night to completely empty my bladder.  Well, last friday and monday night my aide them nights had a broken finger and i did not get the bladder empty.  Now, Thursday/Friday, i have a uti.     Does anyone think this would cause it?  Or is it just circumstances?     Thanks,  Derrick C-5   - Original Message -   From: [EMAIL PROTECTED]   To: [EMAIL PROTECTED] ; quad-list@eskimo.com   Sent: Friday, October 13, 2006 6:18 PM  Subject: [QUAD-L] Bladder Thumping some can while others can't  Bladder thumping is kinda an artform.  Some can while others can't.  Some have tighten muscles, while others don't.  Be prepared for that day when thumping won't help you empty or relieve your bladder and.. best wishes 
 W        n a message dated 10/13/2006 1:35:08 P.M. Central Daylight Time, [EMAIL PROTECTED] writes:Do any of you tap around your bladder to cause muscle contractions? I have done this since erehab. It causes the muscles to contract and the sphincter to release the urine in several flows. Because of it I can use an external catheter and avoid all the infections from indwelling catheters. It is just a gentle serious of taps on the tummy and then the bladder muscles contract and empty it.  By the way, the sediment is usually caused when you have a bladder that is not emptying. This allows bacteria to grow in the bladder, often causing stones to form which in turn cause more bacteria to grow. I'm still
 a proponent of anti-infectives and large doses of vitamin C.  For those of you on anti biotics, try that new Dan-active from Dannon between doses and see if it really helps avoid the constipation and the runs that are so common with anti biotic use. I personnally just use acidophalous capsules between any anti biotics that I take     john  
		Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Re: [QUAD-L] UTI + hemorroid

[DeLiMiTeD4]

Derrick, Ask your doctor about Mandelamine and high dose vitamin C. (anti-infective instead of anti biotics) Your residual is too high to stop catheterizing. Have you tryed bladder thumping? You need a more effective stool softener or your going to have a colostomy. Mirilax, or glycolax and take a stress formula multi-vitamin with iron. The hard part is moving around more. 
 
Good luck 
john
 
 
In a message dated 10/14/2006 2:26:52 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

i have residual of 300cc's of urine left after voiding/pissing..
I void at 600cc's.
I have had problems ever since my injury 9 years ago.
 
I drink plenty of fluids.
No urologists wants me to take an everyday antibiotic but i get a uti every 3 months or less.
I end up with taking Cipro mostly.
 
I have a bleeding hemorrhoid that has my blood down so low that I'm in a need of a transfusion.
The doc tells me if they cut them that there is a great chance i will lose control of my sphincter muscle.
Not a good thing imop.
 
Has anyone had this sugery?
derrick
 

- Original Message - 
From: [EMAIL PROTECTED] 
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Saturday, October 14, 2006 1:25 PM
Subject: Re: [QUAD-L] UTI


I think straight cathing causes your uti's. If you don't have a residual of 150cc's or more then your just introducing bacteria to your bladder. I only catheterize for specimens and I rarely get 100 cc's. My UTI's always seem to occur after they need a specimen. 
 
john
 
In a message dated 10/14/2006 9:01:52 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:

 

I just obtained another uti.
I believe the uti's are coming from not emptying my bladder all the way.
 
I use a condom catheter all the time but i straight cath every morning and night to completely empty my bladder.
Well, last friday and monday night my aide them nights had a broken finger and i did not get the bladder empty.
Now, Thursday/Friday, i have a uti.
 
Does anyone think this would cause it?
Or is it just circumstances?
 
Thanks,
Derrick C-5

 

Re: [QUAD-L] UTI + hemorroid

[DeLiMiTeD4]

Once I started using the glyco-lax my hemmoroid problems were solved!
 
I'd do a commercial for them. I cant help thinking of Johnny Cash singing "Ring of Fire" when I take it. 
Wish I had my pot back so I didn't have to take narcotics so much.
 
john 31 years post C-5 Addicted to pharmacuticals. Dependant on a dissintegrating healthcare system. 
 
 
 
In a message dated 10/14/2006 2:47:26 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Hi  Derrick...Straight cathing and any type of indwelling catheters does increase the chance of UTI's but as far as the hemorrids go, my doctor prescribed a tube creme, I think its called PROCTOZOLI used to bleed a lot and have a bad time but we now use that if hemorroids are getting bad or bleeding-- since using that as needed after bowel routine is done, My problems with that have been fine for about 2 years now.Dan H.

Re: [QUAD-L] UTI + hemorroid

[Danny Hearn]

Hi  Derrick...Straight cathing and any type of indwelling catheters does increase the chance of UTI's but as far as the hemorrids go, my doctor prescribed a tube creme, I think its called PROCTOZOLI used to bleed a lot and have a bad time but we now use that if hemorroids are getting bad or bleeding-- since using that as needed after bowel routine is done, My problems with that have been fine for about 2 years now.Dan H.Derrick <[EMAIL PROTECTED]> wrote:  i have residual of 300cc's of urine left after voiding/pissing..  I void at 600cc's.  I have had problems ever since my injury 9 years
 ago.     I drink plenty of fluids.  No urologists wants me to take an everyday antibiotic but i get a uti every 3 months or less.  I end up with taking Cipro mostly.     I have a bleeding hemorrhoid that has my blood down so low that I'm in a need of a transfusion.  The doc tells me if they cut them that there is a great chance i will lose control of my sphincter muscle.  Not a good thing imop.     Has anyone had this
 sugery?  derrick   - Original Message -   From: [EMAIL PROTECTED]   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com   Sent: Saturday, October 14, 2006 1:25 PM  Subject: Re: [QUAD-L] UTI 
 I think straight cathing causes your uti's. If you don't have a residual of 150cc's or more then your just introducing bacteria to your bladder. I only catheterize for specimens and I rarely get 100 cc's. My UTI's always seem to occur after they need a specimen.      john     In a message dated 10/14/2006 9:01:52 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I just obtained another uti.  I believe the uti's are coming from not emptying my bladder all the way. 
    I use a condom catheter all the time but i straight cath every morning and night to completely empty my bladder.  Well, last friday and monday night my aide them nights had a broken finger and i did not get the bladder empty.  Now, Thursday/Friday, i have a uti.     Does anyone think this would cause it?  Or is it just circumstances?     Thanks,  Derrick C-5 
  

Re: [QUAD-L] UTI + hemorroid

[Derrick]

i have residual of 300cc's of urine 
left after voiding/pissing..
I void at 600cc's.
I have had problems ever since my 
injury 9 years ago.
 
I drink plenty of fluids.
No urologists wants me to take an 
everyday antibiotic but i get a uti every 3 months or less.
I end up with taking Cipro 
mostly.
 
I have a bleeding hemorrhoid that has 
my blood down so low that I'm in a need of a transfusion.
The doc tells me if they cut them that 
there is a great chance i will lose control of my sphincter muscle.
Not a good thing imop.
 
Has anyone had this 
sugery?
derrick
 

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Saturday, October 14, 2006 1:25 
  PM
  Subject: Re: [QUAD-L] UTI
  
  
  I think straight cathing causes your uti's. If you don't have a residual 
  of 150cc's or more then your just introducing bacteria to your bladder. I only 
  catheterize for specimens and I rarely get 100 cc's. My UTI's always seem to 
  occur after they need a specimen. 
   
  john
   
  In a message dated 10/14/2006 9:01:52 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:
  
 

  I 
  just obtained another uti.
  I believe the uti's are coming 
  from not emptying my bladder all the way.
   
  I use a condom catheter all the 
  time but i straight cath every morning and night to completely empty my 
  bladder.
  Well, last friday and monday 
  night my aide them nights had a broken finger and i did not get the 
  bladder empty.
  Now, Thursday/Friday, i have a 
  uti.
   
  Does anyone think this would 
  cause it?
  Or is it just 
  circumstances?
   
  Thanks,
  Derrick 
C-5

 
  

Re: [QUAD-L] UTI

[DeLiMiTeD4]

I think straight cathing causes your uti's. If you don't have a residual of 150cc's or more then your just introducing bacteria to your bladder. I only catheterize for specimens and I rarely get 100 cc's. My UTI's always seem to occur after they need a specimen. 
 
john
 
In a message dated 10/14/2006 9:01:52 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:

 

I just obtained another uti.
I believe the uti's are coming from not emptying my bladder all the way.
 
I use a condom catheter all the time but i straight cath every morning and night to completely empty my bladder.
Well, last friday and monday night my aide them nights had a broken finger and i did not get the bladder empty.
Now, Thursday/Friday, i have a uti.
 
Does anyone think this would cause it?
Or is it just circumstances?
 
Thanks,
Derrick C-5

 

Re: [QUAD-L] UTI

[wheelchair]

One could speculate, until the cows came home, and still would be guessing 
about your UTI.
 
Consider this... as your bladder shrinks, it can become more prone to 
infection then when the bladder is at full size.
 
Think of your bladder as a very large swimming pool. Granted, you need more 
chemicals to keep the water clear and clean, but it will also take longer for 
the water to become populated with bacteria and mold.
 
Smaller swimming pools are much more difficult to maintain just because of 
their size and the amount of water they hold.  Small pools, get dirty 
faster and produce more bacteria and that requires more and often cleaning and 
maintenance.
 
When your bladder was the size of a large softball, it could maintain 
bacteria for a much longer period, before producing those painful effects.
 
When your bladder shrinks to the size of a walnut... it really doesn't take 
a lot of bacteria to cause problems.
 
In the meantime. take your meds and get better!
W
 
 
 
 
 
 
In a message dated 10/13/2006 7:33:35 P.M. Central Daylight Time, 
[EMAIL PROTECTED] writes:
 
 
 
 
 
 

  I just 
  obtained another uti.
  I believe the uti's are coming from 
  not emptying my bladder all the way.
   
  I use a condom catheter all the time 
  but i straight cath every morning and night to completely empty my 
  bladder.
  Well, last friday and monday night my 
  aide them nights had a broken finger and i did not get the 
  bladder empty.
  Now, Thursday/Friday, i have a 
  uti.
   
  Does anyone think this would cause 
  it?
  Or is it just 
  circumstances?
   
  Thanks,
  Derrick 
C-5

 

Re: [QUAD-L] UTI

[Derrick]

I just obtained another 
uti.
I believe the uti's are coming from not 
emptying my bladder all the way.
 
I use a condom catheter all the time 
but i straight cath every morning and night to completely empty my 
bladder.
Well, last friday and monday night my 
aide them nights had a broken finger and i did not get the 
bladder empty.
Now, Thursday/Friday, i have a 
uti.
 
Does anyone think this would cause 
it?
Or is it just 
circumstances?
 
Thanks,
Derrick C-5
 

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Friday, October 13, 2006 6:18 
  PM
  Subject: [QUAD-L] Bladder Thumping 
  some can while others can't
  
  
  Bladder thumping is kinda an artform.  Some can while others 
  can't.  Some have tighten muscles, while others don't.  Be prepared 
  for that day when thumping won't help you empty or relieve your bladder 
  and.. best wishes
  W
   
   
  n a message dated 10/13/2006 1:35:08 P.M. Central Daylight Time, [EMAIL PROTECTED] writes:
  
Do any of you tap around your bladder to cause muscle contractions? I 
have done this since erehab. It causes the muscles to contract and the 
sphincter to release the urine in several flows. Because of it I can use an 
external catheter and avoid all the infections from indwelling catheters. It 
is just a gentle serious of taps on the tummy and then the bladder muscles 
contract and empty it.
By the way, the sediment is usually caused when you have a bladder that 
is not emptying. This allows bacteria to grow in the bladder, often causing 
stones to form which in turn cause more bacteria to grow. I'm still a 
proponent of anti-infectives and large doses of vitamin C.
For those of you on anti biotics, try that new Dan-active from Dannon 
between doses and see if it really helps avoid the constipation and the runs 
that are so common with anti biotic use. I personnally just use acidophalous 
capsules between any anti biotics that I take
 
john
  
   

Re: [QUAD-L] UTI

[David K. Kelmer]

Hi Glenn,     His Urologist is probably right.  Get all the tests done before he makes any decisions.  It may turn-out to be something that can be fixed without surgery.  If not, I'd think the Uro would clearly explain all of his options before proceeding.       With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  A quad friend of mine is having problems with frequent UTIs.  He uses an indwelling catheter and has for 35 years.  Of course using an indwelling catheter that long has caused some severe erosion of the skin.  He has not had any urological exams in the past five years.     Over the last three months he has a lot of leaky age and bloody discharge from outside of the bladder.  I finally talked him into going to the urologist and the urologist is concerned about a tumor.  He will be going in for an exam and alter sound of his kidneys and a few weeks.  The urologist mentioned that the option of urinary diversion is a possibility, but when he asked for further information, that Dr. simply said let's just see what we have.     I told him I would try and get some information from the
 Internet, but have not found much.  Any success or horror stories to pass on to him?     Thanks,     GA

Re: [QUAD-L] UTI

[Miss Liz]

It's called a Mithronoff and augment.
 
look at www.sciwire.com for more 
info
 
I had it done in '96 self cath independently
c6 complete

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  
  To: quad-list@eskimo.com 
  Sent: Sunday, July 16, 2006 6:11 PM
  Subject: [QUAD-L] UTI
  
  A quad friend of mine is having problems with frequent UTIs.  He 
  uses an indwelling catheter and has for 35 years.  Of course using an 
  indwelling catheter that long has caused some severe erosion of the 
  skin.  He has not had any urological exams in the past five years.
   
  Over the last three months he has a lot of leaky age and bloody discharge 
  from outside of the bladder.  I finally talked him into going to the 
  urologist and the urologist is concerned about a tumor.  He will be going 
  in for an exam and alter sound of his kidneys and a few weeks.  The 
  urologist mentioned that the option of urinary diversion is a possibility, but 
  when he asked for further information, that Dr. simply said let's just see 
  what we have.
   
  I told him I would try and get some information from the Internet, but 
  have not found much.  Any success or horror stories to pass on to 
  him?
   
  Thanks,
   
  GA

Re: [QUAD-L] uti

[DAANOO]

Hi Ray,
 
I'm sorry you can't get the IV at home and train your aid to do.  
That's what they did when I had Pseudomonas of the lungs.  I guess it 
depends on the state and the insurance.  I was told I would have to go to 
nursing home , if I didn't have insurance, because it was three times a day , 
two different IV's.  The VNA showed by a panel, the medication was some 
company that deals with infusion therapy. My nurse told me once you have 
Pseudomonas, it gets colonized, and it will always show up although your 
symptoms are gone and you feel good.
I had to have two sets.  It was longer than a month.  Then 
another month of the same drug through my breathing treatment. Leviquin would 
not work.
 
Has anyone ever gotten IV's at home on Medicare.  I don't know what 
the new Medicare D will do, because my insurance is primary, Medicare D. is 
secondary, because my stepmom is still working.  It would be interesting to 
know.
I hope you feel better soon Ray. I know how it is a drag to be sick and 
dragging to the hospital every day.
 
I'm just getting over another bronchitis, and it took three antibiotics to 
get over and over six weeks.
 
Dana
 
correct 
me if I misunderstood Ray, but it sounds like you're going to the hospital as an 
outpatient to get the IV?  Sounds like a reasonable treatment to me.  
So sorry you are so sick, you must be miserable. 

Peace,

River

On Jun 16, 2006, at 3:24 PM, David K. Kelmer wrote:

  Hi Ray,
   
  And doctors wonder why they get sued so much, and are disliked by most 
  off their patients!
   
  With Love,
  CtrlAltDel aka 
  DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA
  [EMAIL PROTECTED] wrote:
  

Hi everybody, I know everyone gets tired of talking uti's I've done pretty good seeing I've only had a couple in the last 
couple yrs, anyway this one been 
hanging on for the last few months just recently got a new urolgist (my old one moved) I explained that oral antibiotics don't work with me but he put me on cipro and macrobid for 14 days twice a day, 
he had me change my cath half way 
through so he could check that was about five days after i started! finished 
today get home and his office had left a message tha! t the re sults 
show oral antibiotics won't 
work with this bug but that there is four iv ones that will and wants 
me to go to hospital to get 10 days of treatments about a hr a day his office said, i'm waiting for the hospital to 
call so i can schedule my question is dose this sound like standard procedure? Thx Ray c-5 c-6 AZ 5yrs 
post

Check out AOL.com today. Breaking news, video 
search, pictures, email and IM. All on demand. Always 
  Free.=

RE: [QUAD-L] uti

[Greg]

I had 1 UTI that was so bad that I needed an IV. I was
lucky that my insurance let a nurse come to my house each day.

It was in a small ball, made so it did not need to stay
hanging above you. It just laid on my lap for an hour each day.

Greg

 

 

---

Hi everybody, I know everyone gets tired of talking uti's
I've done pretty good seeing I've only had a
couple in the last couple yrs,
anyway this one been hanging on for the last few months just recently got a new
urolgist (my old one moved) I explained that oral antibiotics don't
work with me but he put me on cipro
and macrobid for 14 days twice a
day, he had me change my cath
half way through so he could check that was about five days after i started!
finished today get home and his office had left a message tha! t the re sults
show oral antibiotics
won't work with this bug but that there is four iv ones that
will and wants me to go to hospital to get 10 days of treatments about a hr
a day his office said, i'm
waiting for the hospital to call so i can schedule my question is dose this
sound like standard procedure?
Thx Ray c-5 c-6 AZ 5yrs
post

 

Re: [QUAD-L] uti

[River Wolfe]

correct me if I misunderstood Ray, but it sounds like you're going to the hospital as an outpatient to get the IV?  Sounds like a reasonable treatment to me.  So sorry you are so sick, you must be miserable.Peace,RiverOn Jun 16, 2006, at 3:24 PM, David K. Kelmer wrote:Hi Ray,     And doctors wonder why they get sued so much, and are disliked by most off their patients!     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  Hi everybody, I know everyone gets tired of talking uti's I've done pretty good seeing I've only had a couple in the last couple yrs, anyway this one been hanging on for the last few months just recently got a new urolgist (my old one moved) I explained that oral antibiotics don't work with me but he put me on cipro and macrobid for 14 days twice a day, he had me change my cath half way through so he could check that was about five days after i started! finished today get home and his office had left a message tha! t the re sults show oral antibiotics won't work with this bug but that there is four iv ones that will and wants me to go to hospital to get 10 days of treatments about a hr a day his office said, i'm waiting for the hospital to call so i can schedule my question is dose this sound like standard procedure? Thx Ray c-5 c-6 AZ 5yrs postCheck out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

Re: [QUAD-L] uti

[David K. Kelmer]

Hi Ray,     And doctors wonder why they get sued so much, and are disliked by most off their patients!     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  Hi everybody, I know everyone gets tired of talking uti's I've done pretty good seeing I've only had a couple in the last couple yrs, anyway this one been hanging on for the last few months just recently got a new urolgist (my old one moved) I explained that oral
 antibiotics don't work with me but he put me on cipro and macrobid for 14 days twice a day, he had me change my cath half way through so he could check that was about five days after i started! finished today get home and his office had left a message tha! t the re sults show oral antibiotics won't work with this bug but that there is four iv ones that will and wants me to go to hospital to get 10 days of treatments about a hr a day his office said, i'm waiting for the hospital to call so i can schedule my question is dose this sound like standard procedure? Thx Ray c-5 c-6 AZ 5yrs postCheck out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

Re: [QUAD-L] uti

[DeLiMiTeD4]

Usually They send a nurse to give the IV antibiotics. In Cincinnati, public trans for handicapped is not reliable enough to get people to most places at a pre schedualed time. It is such a joke that it is rarely even considered. But public trans gets a massive amount of money each year from the feds for operating anything. 
 
john
 
 
In a message dated 6/15/2006 8:02:27 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Hi everybody, I know everyone gets tired of talking uti's I've done pretty good seeing I've only had a couple in the last couple yrs, anyway this one been hanging on for the last few months just recently got a new urolgist (my old one moved) I explained that oral antibiotics don't work with me but he put me on cipro and macrobid for 14 days twice a day, he had me change my cath half way through so he could check that was about five days after i started! finished today get home and his office had left a message tha! t the re sults show oral antibiotics won't work with this bug but that there is four iv ones that will and wants me to go to hospital to get 10 days of treatments about a hr a day his office said, i'm waiting for the hospital to call so i can schedule my question is dose this sound like standard procedure? Thx Ray c-5 c-6 AZ 5yrs post

Re: [QUAD-L] uti

[Lori Michaelson]

 
Oh wow!
 
I have had personal experience with this over the last couple years [with the worst bugs].   First, ask them what the bug IS.
 
I do not want to be pessimistic but a hospital stay means big  for the doctor and his colleagues.  The first urologist I went to see ordered several completely unnecessary tests.  But "the average Joe or Janet" would not always question this.  The second urologist I went to was much more logical but, it was a third urologist that has been the most helpful.
 
Last summer I was treated at-home with IV antibiotics.  There are home infusion companies that will do this when doctored ordered.
 
After you find out what the bug is  however hard it may be ... I suggest getting a second opinion.  The last-place us quads want to be is in a hospital because it is a breeding ground for infections.
 
Beside me,  DAN has had the chronic urinary tract infections.  And he spent some time in the hospital on IV antibiotics.  That "should be" a last resort.
 
Lori C4/5 Complete , 26 years post

Tucson, AZ 
AGE - 41
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 6/15/2006 5:02:16 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] uti
 

Hi everybody, I know everyone gets tired of talking uti's I've done pretty good seeing I've only had a couple in the last couple yrs, anyway this one been hanging on for the last few months just recently got a new urolgist (my old one moved) I explained that oral antibiotics don't work with me but he put me on cipro and macrobid for 14 days twice a day, he had me change my cath half way through so he could check that was about five days after i started! finished today get home and his office had left a message tha! t the re sults show oral antibiotics won't work with this bug but that there is four iv ones that will and wants me to go to hospital to get 10 days of treatments about a hr a day his office said, i'm waiting for the hospital to call so i can schedule my question is dose this sound like standard procedure? Thx Ray c-5 c-6 AZ 5yrs post

Re: [QUAD-L] UTI Pounding headaches while peeing

[Jkrocks]

 

When I used to get UTIs, I would only have voting headaches when I was 
trying to urinate otherwise, the only symptoms I would have is severe shakes and 
sweats.
 
Jim

Re: [QUAD-L] UTI Pounding headaches while peeing

[David K. Kelmer]

Hi Johnny,     The pounding headache is probably caused by AD.  The AD should ease-up once the UTI starts to clear up.  Levaquin works pretty fast so the headaches should ease-up soon.  Stay strong.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  Does anybody know how long the pounding headaches last when you start medication for a bad urinary infection,And does Lavaquin work on it?Thanks Johnny  

Re: [QUAD-L] UTI

[B. Kimberlin]

When I was a new injury I tried it, but my current doctor will not allow this procedure.  My urologists also thinks this is highly irregular.  I use simple saline for irrigation.Billy[EMAIL PROTECTED] wrote:


   My doc said I can try to irrigate bladder with vinager and water ( acetic acid ) is proper namehas anyone here tried that ??
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Re: [QUAD-L] UTI

[Quietstream25322]

   My doc said I can try to irrigate bladder with vinager and 
water ( acetic acid ) is proper namehas anyone here tried that 
??

Re: [QUAD-L] UTI

[Eric Olson]

I always wondered about doing bladder irrigations with mannose.  Anyone 
ever do that? 

Brian Stocker wrote:
d mannose powder which i take 3 times/day helps me to avoid uti's
Brian
Lana Baugh wrote:
3. If your oral antibiotic isn't working you can "instill" the 
antibiotic directly into the bladder. It's easy. We have done it 
several times. The doc said she didn't mention it because she didn't 
think we had a nurse that could do it. First time around a nurse 
helped after that the doc just worked with us. A pharmacy can mix up 
the antibiotic into sterile water or if you don't have a pharmacy 
that will do that the doc can just write up an RX  for a vial of an 
antibiotic and you can mix it at home with sterile water.  To do it 
you just need to have an empty bladder, a 30 mm syringe with out 
needle. a cath in the bladder, sterile gloves- draw out the 
prescribed amount of fluid and instill the antibiotic into the 
bladder through the cath. We have a protocol so we can keep every 
thing sterile. Gabe had a bacteria that I guess only infects the 
lungs. He was on antibiotic for three months. We did the instillation 
and it kicked the bugs a
 

Re: [QUAD-L] UTI

[Brian Stocker]

d mannose powder which i take 3 times/day helps me 
to avoid uti's

Brian
Lana Baugh wrote:
My son, Gabe has a C4-5 injury. He is nine years post. He is straight 
cathed about every four hours. He had a lot of bladder problems, 
spasms, infections and pain.The doc was great however, she never 
mentioned several things to us because she didn't think it was necessary 
or that we didn't have access to the care.So we had to research and dig 
and I hope these things can be helpful to you.
 
1. If your generic ditropan-or what ever you take isn't working well, it 
might be that you need name brand. Helped Gabe.
 
2.If your bladder spasm meds aren't working maybe you have built up a 
tolerance and need to switch for a couple months then go back to the 
med. Gabe builds up a tolerance every 2-3 years.
 
3. If your oral antibiotic isn't working you can "instill" the 
antibiotic directly into the bladder. It's easy. We have done it several 
times. The doc said she didn't mention it because she didn't think we 
had a nurse that could do it. First time around a nurse helped after 
that the doc just worked with us. A pharmacy can mix up the antibiotic 
into sterile water or if you don't have a pharmacy that will do that the 
doc can just write up an RX  for a vial of an antibiotic and you can mix 
it at home with sterile water.  To do it you just need to have an empty 
bladder, a 30 mm syringe with out needle. a cath in the bladder, sterile 
gloves- draw out the prescribed amount of fluid and instill the 
antibiotic into the bladder through the cath. We have a protocol so we 
can keep every thing sterile. Gabe had a bacteria that I guess only 
infects the lungs. He was on antibiotic for three months. We did the 
instillation and it kicked the bugs a
 
I hope these ideas help.
 
Lana, mom