Re: [TMIC] SSDI - Doc

[Lori Biehler]

You can find the updated nomenclature on the SSDI site in the Blue Book. You 
just need to look on the neurology section. 
Lori

Sent from my iPhone

 On Jan 4, 2014, at 7:42 PM, Pat Voorheis pjv1...@chartermi.net wrote:
 
 The link Barbara gave is the one I was thinking of. I even had a copy of it 
 in my 5 to 10 year old notebook.  The highlighted info is what gave me hope 
 when I applied.  It also has a statement about two extremities being 
 impaired.  
 
 Patti
 
 On Jan 4, 2014, at 6:06 PM, Barbara H. barbara...@gmail.com wrote:
 
 There used to be - I was poking around the site just now and couldn't find 
 it. A man named Roger (I can't remember his last name) who went by Doc on 
 here before he passed away made up a list of very specific tips for 
 applying. 
 
 There is a section on the forum for dealing with disability, and I found 
 this link there - not sure if it is Doc's but it looks helpful:
 http://myelitis.org/resources/disabilityapp.htm
 
 Something else that's odd - I don't see any link to the TMIC on the TMA web 
 site. There is a link for individual state support groups and the message 
 board, or forum, at myelitis.org/forum, but not this list. 
 
 Barbara H.
 
 
 On Sat, Jan 4, 2014 at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com 
 wrote:
 Year's ago an attorney from Texas wrote a message on how to qualify for 
 SSDI.  He gave the section of the SSDI rules that would allow many of us to 
 qualify first time.  Does anyone remember the message and how I can find it 
 again.
  
 Thanks,
 Cindy McLeroy
 

Re: [TMIC] Face book

[Lori Biehler]

LOL

Sent from my iPhone

On Jan 14, 2013, at 10:59 PM, john snodgrass jcs...@yahoo.com wrote:

 
 i had the flu shot and the pneumonia shot the same time and i still cant play 
 the violin!
 From: Dalton Garis malugss...@gmail.com
 To: Pat Cooley patticoole...@gmail.com; pjv1...@chartermi.net 
 Cc: tmic tmic-list@eskimo.com 
 Sent: Monday, January 14, 2013 9:31 PM
 Subject: Re: [TMIC] Face book
 
 I still listen and read.
 
 Because I still have TM and always will.  By the Way, that mustard cure has 
 greatly reduced seizures for me.  Now, I only get them every 10 days or so.
 
 DG
 Dalton Garis
 Flushing, Queens
 New York, USA
 Mobile: 718-838-0437
 
 From: Pat Cooley patticoole...@gmail.com
 Date: Monday, 14 January 2013 8:33 PM
 To: pjv1...@chartermi.net
 Cc: tmic tmic-list@eskimo.com
 Subject: Re: [TMIC] Face book
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800
 
 Patti I think you made the right decision.  You have to do what is best for 
 you and your family.  You need to protect your mom, hubby  grandchildren.
  
 Patti C. in Wisconsin
 
 On Mon, Jan 14, 2013 at 5:39 PM, pjv1...@chartermi.net wrote:
 I've noticed some talk of people comng back to the tmic list for discussions 
 and wondered just how many people actually look at this site anymore.  The 
 onky discussion I have is that I received my first flu shot last Wednesday 
 since my 9 years with TM.  We had two deaths from the flu in our area and I 
 had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or 
 my grandchildren.  My fears of being a carrier outweighed my fear of a 
 reaction.  I called my Neurologist and asked if he had any objection to me 
 getting the flu shot.  His answer was go ahead and get it.
 
 Patti V - Michigan
 
 
 

Re: [TMIC] Face book

[Lori Biehler]

I think that if your TM was contracted from and immunization you should not 
take anymore, yet if it wasn’t there is no harm.
Mine is idiopathic and I had not had a vaccine, who knows,

From: Linda Egli 
Sent: Tuesday, January 15, 2013 11:09 AM
To: tmic-list@eskimo.com 
Subject: Re: [TMIC] Face book

I have had TM for 9 years ,  was told by my neurologist to never get another 
flu shot or any other type of  immunization (ex: tetanus or chicken pox).  He 
thought the flu shot was what precipitated my TM.  I worry about catching the 
flu, but everyone knows not to come around me if they have any type of illness. 
 I also pretty much stay at home  avoid crowds in the winter, so far no flu.  
I agree with Gary.  I got a bad cold a few months ago  it about did me in.  I 
can't imagine what the flu would do.  I miss the old group on TM, but I just 
don't trust Facebook.  The TMIC list is my contact with other TMers. Nice to 
see some conversation on this site.
Linda E. in East Texas




From: Gary Thomas gbthomas8...@sbcglobal.net
To: Transverse Myelitis list tmic-list@eskimo.com 
Sent: Tuesday, January 15, 2013 8:25 AM
Subject: Re: [TMIC] Face book


I used to get flu shots but stopped after getting TM in 2004.  I have not had 
the flu.until this season!  I got it at around Christmas and am still not 
up to full strength (which is not that great anyway due to the fatigue I 
already had from the TM). 

So, I am rethinking, should I get the shot next year, or not?  Fortunately, I 
did not pass the flu to my 87-year-old dad who always gets the shot but forgot 
this time, or my pregnant daughter and her family visiting us while I was sick, 
or my wife who has not gotten the shot either.  I think her chiropractor is not 
for getting it.  I don't think my doctor or neurologist had anything against 
getting the shot.  I guess I'll have a year to think about it???  

The worst part about the flu was that my grandkids were here from Georgia and I 
did not get to do much with them.  

Gary in Niles, MI
  - Original Message - 
  From: Robert Pall 
  To: jcs...@yahoo.com ; tmic-list@eskimo.com 
  Sent: Tuesday, January 15, 2013 8:11 AM
  Subject: Re: [TMIC] Face book

  I get the Flu and Pneumonia shot and have never gotten the flu in the past 15 
years. And The TMIC_LIST is pretty much the only one I read...it is too bad 
that so many of our group has gone to facebook...I guess you can't stop 
progress!~

  Rob in New Jersey




  -Original Message-
  From: john snodgrass jcs...@yahoo.com
  To: transverse myelitis tmic-list@eskimo.com
  Sent: Mon, Jan 14, 2013 10:59 pm
  Subject: Re: [TMIC] Face book




  i had the flu shot and the pneumonia shot the same time and i still cant play 
the violin!

--
  From: Dalton Garis malugss...@gmail.com
  To: Pat Cooley patticoole...@gmail.com; pjv1...@chartermi.net 
  Cc: tmic tmic-list@eskimo.com 
  Sent: Monday, January 14, 2013 9:31 PM
  Subject: Re: [TMIC] Face book


  I still listen and read.

  Because I still have TM and always will.  By the Way, that mustard cure has 
greatly reduced seizures for me.  Now, I only get them every 10 days or so.

  DG
  Dalton Garis
  Flushing, Queens
  New York, USA
  Mobile: 718-838-0437

  From: Pat Cooley patticoole...@gmail.com
  Date: Monday, 14 January 2013 8:33 PM
  To: pjv1...@chartermi.net
  Cc: tmic tmic-list@eskimo.com
  Subject: Re: [TMIC] Face book
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800


  Patti I think you made the right decision.  You have to do what is best for 
you and your family.  You need to protect your mom, hubby  grandchildren.

  Patti C. in Wisconsin


  On Mon, Jan 14, 2013 at 5:39 PM, pjv1...@chartermi.net wrote:

I've noticed some talk of people comng back to the tmic list for 
discussions and wondered just how many people actually look at this site 
anymore.  The onky discussion I have is that I received my first flu shot last 
Wednesday since my 9 years with TM.  We had two deaths from the flu in our area 
and I had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, 
or my grandchildren.  My fears of being a carrier outweighed my fear of a 
reaction.  I called my Neurologist and asked if he had any objection to me 
getting the flu shot.  His answer was go ahead and get it.


Patti V - Michigan 

Re: [TMIC] Face book

[Lori Biehler]

I have had TM for 15 years and get a flu shot every year. Dr. Kerr told me it 
was fine years ago. I had the flu 3 times  the year I got TM and have never had 
it sense. 
Lori

Sent from my iPhone

On Jan 14, 2013, at 8:33 PM, Pat Cooley patticoole...@gmail.com wrote:

 Patti I think you made the right decision.  You have to do what is best for 
 you and your family.  You need to protect your mom, hubby  grandchildren.
  
 Patti C. in Wisconsin
 
 On Mon, Jan 14, 2013 at 5:39 PM, pjv1...@chartermi.net wrote:
 I've noticed some talk of people comng back to the tmic list for discussions 
 and wondered just how many people actually look at this site anymore.  The 
 onky discussion I have is that I received my first flu shot last Wednesday 
 since my 9 years with TM.  We had two deaths from the flu in our area and I 
 had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or 
 my grandchildren.  My fears of being a carrier outweighed my fear of a 
 reaction.  I called my Neurologist and asked if he had any objection to me 
 getting the flu shot.  His answer was go ahead and get it.
 
 Patti V - Michigan
 

Re: [TMIC] RE: Provigil for TM?

[Lori Biehler]

I have used provigil for 11 years, works great for TM.
Lori

-Original Message- 
From: rasbu...@roadrunner.com

Sent: Thursday, July 19, 2012 12:10 PM
To: john snodgrass ; transverse myelitis
Subject: Re: [TMIC] RE: Provigil for TM?

My neurologist prescribed for me after about a month and half after TM 
onset.  It did so help with the fatique and my head was so much more alert 
and clear.  I felt like I could take on the day! It wasn't something i had 
to take for a while to feel the effect and did not leave me jittery as 
caffeine would.

 john snodgrass jcs...@yahoo.com wrote:

thats that one that takes a while to get into your system isnt it?



From: Harlow, Diane diane.har...@maritz.com
To: Dalton Garis malugss...@gmail.com; bobberino 
elbobber...@earthlink.net; Cindy McLeroy cindymcle...@socal.rr.com; 
Susan Kleinz skle...@cox.net; celr...@aol.com celr...@aol.com

Cc: tmic-l...@eskimo.net tmic-l...@eskimo.net
Sent: Thursday, July 19, 2012 10:37 AM
Subject: [TMIC] RE: Provigil for TM?


Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with 
extreme fatigue. I have used Provigil and Nuvigil for the last year. The 
medication gives me a better quality of life. I still have fatigue, but it 
does help me make it through the day. The only struggle I have had is with 
insurance. They are very hesitant to pay, because it is a very expensive 
medication. I finally got it approved, but it took a while.


Good luck



From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?


Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by 
MS patients to counter the extreme fatigue common with MS; and our situation 
is often similar in some respects.


I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.


Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
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Re: [TMIC] In Memorium

[Lori Biehler]

I think of Doc often, it has been so long since he passed and it was such an 
unnecessary passing. I am sure he is at peace now, his pain made him a bit of a 
pain . I have no clue how to reach his sons, they emailed me for a bit after he 
died.
Lori

From: Barbara H. 
Sent: Sunday, April 01, 2012 12:00 AM
To: tmic 
Subject: [TMIC] In Memorium

As I was preparing the birthday list for this month, I saw that April was the 
birthday month of two long-time TMIC members who have passed on: Ken Oliver 
(birthday: April 1) who just passed away this last year I think, and Doc 
(Roger: I am not sure of his last name) (birthday: April 24). I don't have the 
contact information for any of their family members, but if any of you do, they 
might appreciate hearing that we were thinking of their loved ones and their 
loss and ours.

Barbara H.
http://barbarah.wordpress.com
wlEmoticon-smile[1].png

Re: [TMIC] Handicap

[Lori Biehler]

I gave up my SSDI and returned to work and am loving it. I was on SSDI for 
almost 14 years, what a waste of time. I can work and most likely could have 
worked, I just didn’t have the confidence after such a traumatic change in 
life. After a few years, recovery stopped and learning to live with TM took 
over and nothing has changed, other than attitude.

From: Robert Pall 
Sent: Wednesday, March 21, 2012 7:12 PM
To: subers...@msn.com ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Handicap

I have been disabled for almost 15 years.and I was employed 14 of them. 
Maybe I have just been lucky, but I have seen so many disabled people still 
remain employed even if it is not what they were able to do prior to the 
disability!
Rob in New Jersey



-Original Message-
From: PAMELA S subers...@msn.com
To: lbiehler lbieh...@earthlink.net; bgunny7682 bgunny7...@aol.com; TMC 
Group tmic-list@eskimo.com
Sent: Wed, Mar 21, 2012 4:31 pm
Subject: RE: [TMIC] Handicap


I thought many disabled are unemployed, not the other way around. 





From: lbieh...@earthlink.net
To: bgunny7...@aol.com; Tmic-list@eskimo.com
Subject: Re: [TMIC] Handicap
Date: Tue, 20 Mar 2012 22:18:36 -0400


Never heard that and don’t believe it, where did you hear it?

From: bgunny7...@aol.com 
Sent: Tuesday, March 20, 2012 7:14 PM
To: Tmic-list@eskimo.com 
Subject: [TMIC] Handicap

Has anybody read where the unemployed are considered disabled? You gotta be 
shittin me.

Re: [TMIC] Handicap

[Lori Biehler]

I wish they were for you also!

From: Dalton Garis 
Sent: Thursday, March 22, 2012 7:58 AM
To: Lori Biehler ; subers...@msn.com ; tmic-list@eskimo.com ; Robert Pall 
Subject: Re: [TMIC] Handicap

Yes, CONFIDENCE!

That is what we were robbed of after the TM hit us.  Very well said, Lori.

Now that I am back in the USA with its Americans with Disabilities Act, I might 
head out there again.

I just wish all these seizures were controlled by medications!

Dalton

From: Lori Biehler lbieh...@earthlink.net
Date: Thu, 22 Mar 2012 07:50:12 -0400
To: subers...@msn.com, tmic-list@eskimo.com, Robert Pall robthe...@aol.com
Subject: Re: [TMIC] Handicap
Resent-From: tmic-list@eskimo.com
Resent-Date: Thu, 22 Mar 2012 04:54:12 -0700


I gave up my SSDI and returned to work and am loving it. I was on SSDI for 
almost 14 years, what a waste of time. I can work and most likely could have 
worked, I just didn’t have the confidence after such a traumatic change in 
life. After a few years, recovery stopped and learning to live with TM took 
over and nothing has changed, other than attitude.

From: Robert Pall 
Sent: Wednesday, March 21, 2012 7:12 PM
To: subers...@msn.com ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Handicap

I have been disabled for almost 15 years.and I was employed 14 of them. 
Maybe I have just been lucky, but I have seen so many disabled people still 
remain employed even if it is not what they were able to do prior to the 
disability!
Rob in New Jersey



-Original Message-
From: PAMELA S subers...@msn.com
To: lbiehler lbieh...@earthlink.net; bgunny7682 bgunny7...@aol.com; TMC 
Group tmic-list@eskimo.com
Sent: Wed, Mar 21, 2012 4:31 pm
Subject: RE: [TMIC] Handicap


I thought many disabled are unemployed, not the other way around. 





From: lbieh...@earthlink.net
To: bgunny7...@aol.com; Tmic-list@eskimo.com
Subject: Re: [TMIC] Handicap
Date: Tue, 20 Mar 2012 22:18:36 -0400


Never heard that and don’t believe it, where did you hear it?

From: bgunny7...@aol.com 
Sent: Tuesday, March 20, 2012 7:14 PM
To: Tmic-list@eskimo.com 
Subject: [TMIC] Handicap

Has anybody read where the unemployed are considered disabled? You gotta be 
shittin me.

Re: [TMIC] Handicap

[Lori Biehler]

Never heard that and don’t believe it, where did you hear it?

From: bgunny7...@aol.com 
Sent: Tuesday, March 20, 2012 7:14 PM
To: Tmic-list@eskimo.com 
Subject: [TMIC] Handicap

Has anybody read where the unemployed are considered disabled? You gotta be 
shittin me.

Re: [TMIC] OT Fwd: Fw: BOO!!!

[Lori Biehler]

Happy Halloween, Very cute

From: bgunny7...@aol.com 
Sent: Sunday, October 23, 2011 1:22 PM
To: Tmic-list@eskimo.com 
Subject: [TMIC] Fwd: Fw: BOO!!!




--
  From: ramirezjac...@aol.com
  To: babygirl22...@gmail.com, mysin...@yahoo.com, bgunny7...@aol.com, 
brandmyste...@aim.com, chavezmona...@aol.com, cmr51...@hotmail.com, 
davidlabb...@aol.com, digidy...@gmail.com, dnny...@aol.com, 
lizandstepha...@yahoo.com, flym...@aim.com, gra...@aol.com, 
handysand...@aol.com, isus...@aol.com, weldergirl3...@aol.com, 
lucaterobre...@yahoo.com, nan...@aol.com, pencho...@aol.com, 
pennycoll...@sbcglobal.net, sheil...@sbcglobal.net
  Sent: 10/23/2011 1:16:02 P.M. Eastern Daylight Time
  Subj: Fwd: Fw: BOO!!!






From: pencho...@aol.com
To: rolltide2...@yahoo.com, sandra.kay.pep...@us.army.mil, 
sand...@gmail.com, shirleyb...@bellsouth.net, sbdun...@yahoo.com, 
ssteph...@nsdecatur.com, tam...@huntsvilletractor.com, 
joyofthel...@bellsouth.net, jw...@scottsboro.org, fredia.den...@corning.com, 
murp...@aim.com, hre2...@aol.com, sandraha...@msn.com, ramirezjac...@aol.com, 
nit...@aol.com, hste...@aol.com
Sent: 10/23/2011 9:50:02 A.M. Pacific Daylight Time
Subj: Fwd: Fw: BOO!!!


HAPPY HALLOWEEN


--
  From: emel...@sbcglobal.net
  To: pencho...@aol.com, handysand...@aol.com, broadwaymo...@aol.com, 
jbbeje...@gmail.com
  Sent: 10/23/2011 10:01:49 A.M. Central Daylight Time
  Subj: Fw: BOO!!!








   












 
 



  Greatest Halloween Card Ever ... CLICK Here 


  

   





  
  60-Year-Old Mom Looks 27
  Mom Reveals Free Wrinkle Trick That Has Angered Doctors!
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  barbara

Re: [TMIC] shingles vaccine

[Lori Biehler]

Re: [TMIC] shingles vaccineI had open heart surgery three years ago and have 
had a flu shot every year since with no problems. I have also had shingles this 
last year and I would take the vaccine in a second to avoid getting them again! 
TM attacked me over 13 years ago, it isn’t attacking me now. The damage is done 
and I hated having shingles, they really hurt on the area of my body I could 
feel and felt really nasty on the area of my body I can’t feel.
Just my 2 cents worth!

From: Akua 
Sent: Friday, October 21, 2011 11:39 PM
To: tmic-list@eskimo.com 
Subject: Re: [TMIC] shingles vaccine

AGreed!
And my TM struck twice -- I walked away the first time  after a long weekend in 
the hospital and the second time -- a month later -- i was knocked down. I 
suspect that  the steroids left me open to
greater attack from the unidentified underlying cause.


  I had a very, very mild case of TM but it persisted. Stupidly I did not go to 
the doctor immediately but waited for weeks and weeks. I was asked the same 
questions...vaccines, bug bites...this was before I was actually diagnosed with 
TM. I was also rather surprised that my neurologist actually asked me if it was 
possible that someone could be poisoning me. That was a bit freaky to be asked 
that. Ultimately it was concluded that mine was also idiopathic. The months 
prior to my coming down with it I suffered a long bout of Bronchitis, followed 
by a miscarriage which was followed by a tooth problem that I ended up getting 
a root canal on. Who knows if any of that contributed to it. 
  Anyway, as far as a shingles vaccine? I personally would not get one. I never 
get the flu shot either or the pneumonia. No thanks. That being said, I would 
really, really hate to come down with Shingles. Yikes!

  On Fri, Oct 21, 2011 at 11:21 PM, Akua a...@artfarm.com wrote:

after they asked me about the flu shot, they asked me about bug bites.


I did a lot of tromping around, gathering weeds for papermaking and 
gardening
before TM struck,




A Lyme sufferer told me theat most Lyme goes undiagnosed and unrecognized
and suggested that my idiopathic TM might be Lyme's.


Akua


-- 

Re: [TMIC] Fwd: FW: Marine Stuns Crowd at Tea Party Rally!

[Lori Biehler]

Actually there are 4 verses and he sung the 4th verse. 

Oh, say can you see by the dawn's early light
What so proudly we hailed at the twilight's last gleaming?
Whose broad stripes and bright stars thru the perilous fight,
O'er the ramparts we watched were so gallantly streaming?
And the rocket's red glare, the bombs bursting in air,
Gave proof through the night that our flag was still there.
Oh, say does that star-spangled banner yet wave
O'er the land of the free and the home of the brave?

On the shore, dimly seen through the mists of the deep,
Where the foe's haughty host in dread silence reposes,
What is that which the breeze, o'er the towering steep,
As it fitfully blows, half conceals, half discloses?
Now it catches the gleam of the morning's first beam,
In full glory reflected now shines in the stream:
'Tis the star-spangled banner! Oh long may it wave
O'er the land of the free and the home of the brave!

And where is that band who so vauntingly swore
That the havoc of war and the battle's confusion,
A home and a country should leave us no more!
Their blood has washed out their foul footsteps' pollution.
No refuge could save the hireling and slave
From the terror of flight, or the gloom of the grave:
And the star-spangled banner in triumph doth wave
O'er the land of the free and the home of the brave!

Oh! thus be it ever, when freemen shall stand
Between their loved home and the war's desolation!
Blest with victory and peace, may the heav'n rescued land
Praise the Power that hath made and preserved us a nation.
Then conquer we must, when our cause it is just,
And this be our motto: In God is our trust.
And the star-spangled banner in triumph shall wave
O'er the land of the free and the home of the brave!


Just saying..

From: celr...@aol.com 
Sent: Monday, September 19, 2011 11:29 PM
To: bgunny7...@aol.com ; Tmic-list@eskimo.com 
Subject: Re: [TMIC] Fwd: FW: Marine Stuns Crowd at Tea Party Rally!

Thank You,  That was GREAT!!  I wasn't aware of another verse. Just goes to 
show how little we know.
Jane/Splendora Tx


In a message dated 9/19/2011 12:58:24 P.M. Central Daylight Time, 
bgunny7...@aol.com writes:




From: ramirezjac...@aol.com
To: cmr51...@hotmail.com, cpt...@yahoo.com, davidlabb...@aol.com, 
dnny...@aol.com, lizandstepha...@yahoo.com, trinaevenho...@msn.com, 
bgunny7...@aol.com, isus...@aol.com, weldergirl3...@aol.com, 
lucaterobre...@yahoo.com, marisela.ni...@fluor.com, mike_so...@yahoo.com, 
mona...@yahoo.com, sheil...@sbcglobal.net
Sent: 7/4/2011 11:52:21 A.M. Eastern Standard Time
Subj: Fwd: FW: Marine Stuns Crowd at Tea Party Rally!





--
  From: pencho...@aol.com
  To: jbbeje...@gmail.com, murp...@aol.com, emel...@sbcglobal.net, 
hre2...@aol.com, myteek...@aol.com, nit...@aol.com, ramirezjac...@aol.com, 
davidlabb...@aol.com, samwv1...@buffalo.com, cocoa...@yahoo.com, 
ashla...@comcast.net, ngra...@cfl.rr.com, tamiapple...@yahoo.com, 
jw...@scottsboro.org, joyofthel...@bellsouth.net, fredia.den...@corning.com, 
sand...@gmail.com, sandra.kay.pep...@us.army.mil
  Sent: 7/3/2011 11:24:25 P.M. Pacific Daylight Time
  Subj: Fwd: FW: Marine Stuns Crowd at Tea Party Rally!



  SECOND VERSE OF sTAR sPANGLED bANNER, HAPPY FOURTH OF JULY, STAY SAFE


From: dmann...@farmerstel.com
To: athanc...@hotmail.com, ahea...@farmerstel.com, pencho...@aol.com, 
a.manning...@gmail.com, cro...@farmerstel.com, kat...@otelco.net, 
sandraj...@aol.com
Sent: 6/25/2011 10:57:42 A.M. Central Daylight Time
Subj: FW: Marine Stuns Crowd at Tea Party Rally!


 

 




From: Jane Daniel [mailto:tfdan1...@centurylink.net] 
Sent: Monday, June 20, 2011 10:04 PM
To: @NONE
Subject: Fwd: Marine Stuns Crowd at Tea Party Rally!

 

 

WOW !!  

Without giving the video away, notice how the crowd -all by themselves 
- rise to the honor/respect/dignity of what's going on !!

 

Click HERE to view 




-


barbara

Re: [TMIC] Is Living With Illness Choosing to Give In?

[Lori Biehler]

Great article Barbara! Thanks for posting and sharing it!
Hope all is well with you and yours,
Lori

From: Barbara H. 
Sent: Tuesday, September 06, 2011 6:50 PM
To: tmic 
Subject: [TMIC] Is Living With Illness Choosing to Give In?

Just saw a really neat article on a friend's Facebook: Is Living With Illness 
Choosing to Give In?

http://invisibleillnessweek.com/2011/09/06/is-living-with-illness-choosing-to-give-in/

It's not directly TM related but I would guess many can identify with it..

Barbara H.
http://barbarah.wordpress.com

Re: [TMIC] Magnets

[Lori Biehler]

I have had a magnet bed for about 25 years. Not sure if it works, but it sure 
doesn’t hurt! Good luck selling them.

From: bgunny7...@aol.com 
Sent: Saturday, June 25, 2011 10:50 AM
To: Tmic-list@eskimo.com 
Subject: [TMIC] Magnets

It seems people are beginning to understand the magnet benefits. Ok, I'm, still 
dealing them, so, if anybody's interested, lemme know, and I'll get em for you. 
I mentioned this 15 years ago, and nobody got on board, but I'm tellin ya, they 
work.

Re: [TMIC] Got to see a glimpse of myself pre TM

[Lori Biehler]

Great video! You did an awesome job and I for one would feel very safe at your 
side! I am so glad you can get back to something you love and your letter was 
so poignant.
Thanks for such an uplifting email.
Lori 

From: Deb Monteleone 
Sent: Saturday, June 11, 2011 12:15 PM
To: TMIC 
Subject: [TMIC] Got to see a glimpse of myself pre TM

 
Hi all,

 

I don’t write much, but I did recently write about the pain and spasticity. 

 

For 18 years I practiced an art called Aikido before TM/MS hit me 3 years ago.  
I have always believed that is what helped me walk again, with cane and balance 
issues.  I wanted to get back on the mat because the movements are mostly 
circular and I figured it would help and it did.  Slowly I went from doing the 
movement using the other person for balance if needed, no throwing.  Then to 
getting my balance and throw.  Then to not having to stop in between.  It felt 
great, the pain was gone while I was moving on the mat, but when I stopped, oh 
boy, but it was worth it, I finally had a smile on my face and joy in my heart. 
 I keep trying to somehow get back to what I loved doing, although the duration 
is drastically less, like with the 3 wheel bike I bought but the feeling of 
riding down the block in the fresh air is wonderful.  

 

Don’t get me wrong, I am not always Miss positive.  Actually, I had a very big 
crying session earlier this week when I was out on my bike (having a difficult 
time this trip) an I saw my neighbor walking his dog.  It just hit me hard that 
I will never be able to have that life again which I so dearly miss.  The next 
day I am thinking how can I get back to my woodworking.  I guess we just have 
to keep going forward from whatever spot we are currently at and let ourselves 
grieve and cry when need be.

 

This is a very short video of me doing Aikido (my TM therapy).  Turns out is 
was 2 days after I had an exasperation, no wonder I said I hadn’t been feeling 
too well lately and had to stop after a short time.  It was my first 
exasperation, what did I know. 

 

Make it a great day,

Deb

http://youtu.be/V_sm-SawTP4

 

Enjoy, stay well,

Deb

Long Island, NY

 
image001.jpg

Re: [TMIC] OT - Marine Speaks Reply

[Lori Biehler]

Thanks for your service Bernie! I am a Navy vet and very, very proud of the 
Seals. I have always thought they were the best. 
This weekend we should all think of those that gave their lives and the 
families they left behind.
To all the vets on this list and to their families that supported them, you are 
in my thoughts, may you have peace in your hearts.
Lori

From: Patricia Cooley 
Sent: Friday, May 27, 2011 9:59 AM
To: 'Bernie' ; 'Sarge' ; 'TMIC' 
Subject: RE: [TMIC] OT - Marine Speaks Reply

Bernie I second that sentiment.  Bless all our service people and keep them 
safe, and Gunny please keep up with the posts.

 

 

Patti

 

From: Bernie [mailto:bpe...@austin.rr.com] 
Sent: Thursday, May 26, 2011 5:47 PM
To: Bernard Pelow; Sarge; TMIC
Subject: [TMIC] OT - Marine Speaks Reply

 

In a message dated 5/26/2011 3:26:59 P.M. Eastern Daylight Time, 
bpe...@austin.rr.com writes:

  Hey Sarge,
Very true; and those Navy Seals have balls that clank and hearts as big as 
this country! God bless them all and pray this crap comes to an end soon.
  Peace,
  Bernie

Your right Bernie. You might wanna let the unbelievers know this.

I've seen only one complaint about your post Gunny, and I agree with you. Even 
though this is a TM list, we also talk about many other things besides that 
topic, and it may be that someone is just having a bad day.  We all know what 
that is like! Regardless of that one negative response, keep on being Gunny, 
the true Marine!
Semper Fi,
Bernie

Re: [TMIC] Fwd: Marine Speaks

[Lori Biehler]

Now that is just rude, and around this time of year, you should be ashamed. 
Marines have saved lives, they are part of our armed services that have saved 
this country. 
I am proud of all my fellow service men and women. I would welcome testosterone 
over a wimp any day.
Lori

From: fr...@franksheldon.com 
Sent: Thursday, May 26, 2011 5:15 PM
To: Dalton Garis ; Jill Posner ; bgunny7...@aol.com 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] Fwd: Marine Speaks


Ya'll,

Usually I'd say, It's only the Bourbon talking.  

But with a Marine, It's only the testosterone talking.

Semper Fi

F

[TMIC] Shingles

[Lori Biehler]

Hi All,
I have a question, I have shingles and they are on my “numb” side. I didn’t go 
to the doc for about 4 days because I thought it was just a small bug bite on 
my back and by the time I went it was a mess. My question is, why do I feel 
pain? I don’t feel any pain if I am stabbed, burned, etc. and I am assuming 
that if I felt pain it would be almost unbearable from what the doctor tells 
me. To me it is uncomfortable, I cannot wear a bra because it is under the back 
of my bra and goes up under my arm, into my arm pit and along the rear of my 
arm. Eucalyptus oil seems to work OK for me at this point, I don’t like to take 
meds unless absolutely necessary, why does it hurt at all when nothing else 
does?
Lori  

Re: [TMIC] OT

[Lori Biehler]

I am so sorry, may he rest in peace and may you find peace.
Lori

From: rn11...@yahoo.com 
Sent: Wednesday, March 02, 2011 9:55 AM
To: tmic 
Subject: [TMIC] OT

  My friends,
My great-grandson Joshua James Bigelow (born 11/19/10) died of SIDS on 
2/28. We are devastated.
 Cheryl 

Re: [TMIC] help

[Lori Biehler]

I think you have to unsubscribe and then subscribe under the new email.
Lori

From: robthe...@aol.com 
Sent: Wednesday, February 23, 2011 1:53 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] help

I no longer have access to my work email which was rp...@neillsupply.com.
I just subscribed using my home email address robthe...@aol.com

Question...how do I get rid of the old address?

Rob in New Jersey

Re: [TMIC] 10th!

[Lori Biehler]

Happy Anniversary Neil!
I am thankful every day that I have met you and your family! Bad shit happens 
to good people all the time and making the best out of the bad shit is what 
makes you special.
I am happy to call you my friend.
Hope to see you and yours this summer.
Lori
PS. I am going on 13 years and I still see and feel improvement. 

From: Neil McNeil 
Sent: Thursday, February 03, 2011 8:58 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] 10th!

It’s been a long time since I have posted to the list but today is special so I 
decided to drop by and say hello. Feb 4th is my 10th anniversary of TM. It’s 
hard to believe that ten years have passed and I like to say that time flies 
when you can feel your toes!

 

As crazy as it sounds there are worse things than getting TM. Over the past ten 
years I have gained an appreciation for many things as a result of TM. I’m so 
glad to live in a country where my medical care was provided free of charge and 
I didn’t have to fight with HMO’s or sell my house to deal with medical bills. 
I’m glad I have been able to work and I’m so pleased to have met some wonderful 
people who got dealt the same hand and made the most of it.

 

My theory remains that we don’t come with a warranty and there is no sense in 
bitching and whining about what happens. When I first got TM I asked my 
neurologist “why me?” He replied “it has to be someone”. I thought that answer 
was brilliant. Someone wins the lottery and someone gets hit by lightning. Ten 
years ago I made a decision that I was going to make the most of things and I’m 
glad I did. 

 

So…hello again to those of you who have been here for a long time and also to 
those who are new. Hang in there and keep trying to wiggle those toes….it pays 
off!

 

Neil

 

(In NS)

Fw: [TMIC] I need help with member contacts. Will anybody help me?

[Lori Biehler]

This is the response I get when I email Jude, does anyone know why?

-Original Message- 
From: heyjude48...@aol.com

Sent: Saturday, January 08, 2011 8:47 AM
To: lbieh...@earthlink.net
Subject: Re: [TMIC] I need help with member contacts. Will anybody help me?

Hello, I am unavailable to read your message at this time. 

Re: [TMIC] I need help with member contacts. Will anybody help me?

[Lori Biehler]

I hope she can get this fixed, I feel for her, trying to reach out and not 
getting any responses. Hopefully she will see all this from the list and then 
can fix it. 
Lori

From: rn11...@yahoo.com 
Sent: Saturday, January 08, 2011 8:59 AM
To: Lori Biehler 
Cc: tmic-list@eskimo.com 
Subject: Re: Fw: [TMIC] I need help with member contacts. Will anybody help me?

  Lori,
  I get the same. i thought maybe she had put some kind of block on her 
email.
  Maybe someone who has her phone number could call and let her know 
why she's not getting messages.
  Cheryl in Easthampton,MA

  --- On Sat, 1/8/11, Lori Biehler lbieh...@earthlink.net wrote:


From: Lori Biehler lbieh...@earthlink.net
Subject: Fw: [TMIC] I need help with member contacts. Will anybody help 
me?
To: TMIC tmic-list@eskimo.com
Date: Saturday, January 8, 2011, 8:49 AM


This is the response I get when I email Jude, does anyone know why?

-Original Message- From: 
wlmailhtml:/mc/compose?to=heyjude48...@aol.com
Sent: Saturday, January 08, 2011 8:47 AM
To: wlmailhtml:/mc/compose?to=lbieh...@earthlink.net
Subject: Re: [TMIC] I need help with member contacts. Will anybody help 
me?

Hello, I am unavailable to read your message at this time. 
 

Re: [TMIC] Careful OT

[Lori Biehler]

I am so glad you don’t need bypass, that is terrible! I had 5 of them 2 and a 
half years ago, not fun. Stints are not so fun, just take your meds and STOP 
SMOKING!!
Exercise is now very important for you, no excuses, get back in the water and 
eat better!
Stay well,
Heart stuff really is scary, freaks me out every time I think about the surgeon 
holding my heart in his hand!
Lori

From: Barbara H. 
Sent: Thursday, January 06, 2011 4:32 PM
To: bgunny7...@aol.com 
Cc: Tmic-list@eskimo.com 
Subject: Re: [TMIC] Careful OT

Wow -- that's scary. I am glad they were able to help you before it got worse. 
Good advice!! 

Take care.

Barbara H.
http://barbarah.wordpress.com


On Thu, Jan 6, 2011 at 4:09 PM, bgunny7...@aol.com wrote:

  Monday night around 11:30 I had a horrendous Heart attack. Went to North Side 
Hospital by ambulance  where they put a stent in on a 95% clogged artery. Gotta 
go back on the 28th for them to do an 80% clogged one. So, if you smoke, STOP. 
If you eat fatty foods, STOP. If your messin up your life, STOP. This ain't no 
game. Felt like mule kicked me in the chest.

[TMIC] test

[Lori Biehler]

test

Re: [TMIC] personal problem

[Lori Biehler]

Amanda, 
I was told to take cascara segrada, it is a natural bark that I purchased in a 
health food store. That also may be the ingredient in smooth tea. This worked 
great for me, I took it every three days, just one pill though over time the 
problem got worse. My gastro told me that cascara segrada actually kills nerves 
with long term use, hence the problem is now worse. I wish I had some great 
cure for you, it is something I have dealt with for over 12 years. Don't let 
yourself go to long, you don't want to get distended bowel, if you need, use an 
enema.
Lori


From: kimharrison...@comcast.net 
Sent: Wednesday, October 13, 2010 8:05 AM
To: Amanda Diskey 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] personal problem


Amanda, my nero recomended a tea called Smooth Move you get it from vitamam 
stores, I only drink 1/2 cup everyother day and it really helps



Kim
- Original Message -
From: Amanda Diskey adis...@yahoo.com
To: tmic-list@eskimo.com
Sent: Wednesday, October 13, 2010 7:35:49 AM
Subject: [TMIC] personal problem



I don't write very often, and I normally wouldn't talk to people about 
something so personal, but I don't know who else to ask.  I have been having 
problems with constipation for a long time -- and it is only getting worse.  As 
of right now I have been unable to go to the bathroom for five days.  I have 
been taking Senokot and Miralax, plus I have been prescribed Lactulose by  my 
neurologist.  I take magnesium citrate pretty often, but it really makes me 
miserable when I take it.  My legs get really tight and shake uncontrollably 
from being dehydrated.  My stomach actually hurts today and I'm normally don't 
feel pain there.  I have been to doctors and they were no help.  It seems like 
they just take my money and run because they don't have the answer.  When I 
went to the gynecologist she actually asked me why I thought I needed to have a 
Pap smear even though I told her I hadn't had one in over two years.  She just 
didn't want to deal with me because I cannot stand up.  I get this from a lot 
of doctors -- it seems like nobody wants to deal with me.  I couldn't even find 
a regular family doctor-- a receptionist at one of the doctors offices I called 
actually told me that she didn't think the doctors there would be able to 
handle my case.  She said that if I was a regular person that was just dealing 
with colds and other normal illnesses, that would be fine, but she didn't 
think they would know what to do to help me.  Does anyone have any suggestions 
on what I could take to help me with this situation?  I am getting very 
desperate for some relief!
Thank you,
Amanda Diskey

Re: [TMIC] ? spam

[Lori Biehler]

Re: [TMIC] ? spamI received 3 from celrods in the last day and deleted them 
immediately.


From: Dalton Garis 
Sent: Sunday, October 10, 2010 2:26 PM
To: Patricia Cooley ; rn11...@yahoo.com ; tmic-list@eskimo.com 
Subject: Re: [TMIC] ? spam


I got celrods today, too.  

I dumped them immediately.  I don't open Buddha mail, mail without any 
subject line, and from those I don't know, and asking me to go to some link or 
to open some attachment.

Dalton



From: Patricia Cooley patticoole...@gmail.com
Date: Sun, 10 Oct 2010 13:05:18 -0500
To: rn11...@yahoo.com, tmic-list@eskimo.com
Subject: RE: [TMIC] ? spam
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 10 Oct 2010 11:05:45 -0700

Cheryl I have been wondering the same thing.  I got 2 e-mails from celrods 
today and have in the past.  There is no description as to what the sites are 
and I have not opened them either.  Neither have a I-mailed celrods back not 
knowing who it is.  If they are legit, I wish they would include a description 
or comment about the web site.  If not, then don't bother to pass it on.  I 
don't remember getting anything from pkene2002 but I will keep my eyes peeled 
for it.
 
Patti - Wisconsin
 

From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] 
Sent: Sunday, October 10, 2010 11:36 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ? spam




   Hi, 
 Does anyone know who pkeene2...@aol.com 
http://us.mc581.mail.yahoo.com/mc/compose?to=wpkeene2...@aol.com  and 
celr...@aol.com http://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.com  
are? Are they legit? 
 I've been getting emails from both of them that have addresses in the body 
of the letter,but no explanation of what they're about. I have never opened 
one. I just delete them. In the subject line it says either no subject or 
[TMIC]. If you look at who else gets it,there are insurance companies,pet care 
,etc.  Must be one of those that sends to everyone in their address book. 
   Cheryl in Easthampton,MA 


  

Re: [TMIC] off topic Fwd: REAL ESTATE SALES TAX TO GO INTO EFFECT 2013 (Part of HC Bill)

[Lori Biehler]

OK, since this is untrue, and it really should not be on here at all, I figured 
I would send along the snopes address so all could see how untrue this stuff is.
I am on this site to read about TM, and true medical health issues, not 
political untruths that are spread in this insane manner. In the future, if you 
are going to post information, please check to make sure it is true, just like 
you do for virus alerts.
http://www.snopes.com/politics/taxes/realestate.asp


From: celr...@aol.com 
Sent: Wednesday, October 06, 2010 11:08 PM
To: TMIC-LIST@eskimo.com 
Subject: [TMIC] off topic Fwd: REAL ESTATE SALES TAX TO GO INTO EFFECT 2013 
(Part of HC Bill)





--
  From: lgvbabyg...@aol.com
  BCC: celr...@aol.com
  Sent: 10/6/2010 9:47:02 A.M. Central Daylight Time
  Subj: REAL ESTATE SALES TAX TO GO INTO EFFECT 2013 (Part of HC Bill)







   


REAL ESTATE SALES TAX TO GO INTO EFFECT 2013 
(Part of HC Bill) 

Did you know that if you sell your house after 
2012 you will pay a 3.8% sales tax on it? That’s $3,800 on a $100,000 home etc. 
When did this happen? It’s in the healthcare bill. Just thought you should know.


REAL ESTATE SALES TAX 
 


  No, this is change you can believe in?

  Under the new health care bill - did you know 
that all real estate transactions will be subject to a 3.8% Sales Tax?  The 
bulk of these new taxes don't kick in until 2013 (presumably after obama’s 
re-election).  You can thank Nancy, Harry and Barack and your local Democrat 
Congressman for this one.  If you sell your $400,000 home, there will be a 
$15,200 tax.  This bill is set to screw the retiring generation who often 
downsize their homes.  Is this Hope  Change great or what?  Does this stuff 
makes your November and 2012 votes more important?

  Oh, you weren't aware this was in the obamacare 
bill? Guess what, you aren't alone. There are more than a few members of 
Congress that aren't aware of it either (result of clandestine midnight voting 
for huge bills they've never read). AND, there are a few other surprises 
lurking.

  Why am I sending you this?  The same reason I 
hope you forward this to every single person in your address book.

  People have the right to know thetruth because an 
election is coming in
  November! 
 
   

[TMIC] OT My first Grandchild

[Lori Biehler]

Hi everyone,
I figured since most write to the list with problems, I would send along some 
really happy news in our family, I am to become a grandmother in February! My 
son and his wife are expecting their first child. I cannot tell you how happy 
we are, this is what my son has always wanted, a family.
Lori

[TMIC] Entering the Golden Years

[Lori Biehler]

A friend of the couple who founded Home Instead Senior Care, Mary Maxwell was 
asked to give the invocation at the company’s 2009 Convention. Initially it 
seemed like a normal prayer, but it soon took a very funny turn. Her deadpan 
delivery and lines like …This is the first time I’ve ever been old… and it just 
sort of crept up on me … soon had the franchise owners rolling in the aisles. 
With the timing of a professional comedian, Mary shines a very funny light on 
the foibles of aging, to the delight of this audience of senior-care experts.

http://www.caregiverstress.com/2010/07/a-reminder-that-laughter-is-the-best-medicine/

Fw: [TMIC] permission needed for listserv

[Lori Biehler]

From: Lori Biehler 
Sent: Saturday, August 28, 2010 9:45 AM
To: CANDIS KALLEY 
Subject: Re: [TMIC] permission needed for listserv


The more people that learn and hear about TM, the better! Good luck!


From: CANDIS KALLEY 
Sent: Saturday, August 28, 2010 8:47 AM
To: tmic-list 
Cc: Lauri Cervantes 
Subject: Re: [TMIC] permission needed for listserv


I agree with Janice.

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: Janice Nichols jan...@centurytel.net
To: Lauri Cervantes lcervan...@kumc.edu, tmic-list@eskimo.com
Sent: Friday, August 27, 2010 11:26:48 PM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] permission needed for listserv


As far as I am concerned, it is okay to do this.I hope you realize that we 
talk about medications, TM symptoms, medicare, etc.Also, it is very much a 
support
group, so the topics vary.
Janice, in Missouri

 
From: Lauri Cervantes 
Sent: Friday, August 27, 2010 1:12 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] permission needed for listserv


I am a student of occupational therapy at the university of Kansas medical 
center and one of my assignments this semester is to subscribe to a listserv 
and prepare a paper over some of the topics I read over the course of the 
semester. I would like your permission to be a member of your listserv. You 
have my word that I will treat all members and their posts with the utmost 
respect. Thanks very much!

Lauri Cervantes, OTS 

Re: [TMIC] Vit. D article

[Lori Biehler]

Great article and I can say I feel so much better taking my 2000 UI a day! 
Everything works better and I mean everything!


From: CANDIS KALLEY 
Sent: Wednesday, August 25, 2010 9:14 AM
To: TMIC-LIST 
Subject: [TMIC] Vit. D article


I just received this and I think it is worth reading.



http://www.lifescript.com/Health/News/Reuters/2010/08/24/Vitamin_D_tied_to_cancer_autoimmune_disease_genes.aspx?utm_campaign=2010-08-25-58859utm_source=healthy-advantageutm_medium=emailutm_content=healthy-news-bites_Vitamin%20D%20tied%20to%20canFromNL=1sc_date=20100825T00

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

Re: [TMIC] update on Mike

[Lori Biehler]

Hammond Team,
You are all in my thoughts. He gave a very valiant fight and with all your 
support he knew he was very, very loved.
May you all find peace at this time and know the TM community is thinking of 
all of you.
Lori


From: Jill Hammond 
Sent: Wednesday, August 25, 2010 6:43 PM
To: d...@excellentsite.com ; Anna  Jim ; Annie ; Becky  Steve ; Beth  Greg ; 
Bob  Beverly ; 'Boyd' ; Carole Matteson ; Char Brower ; Cheryl Hammond ; Cindy 
Dunn ; Craig  Candi ; 'Craig Fiore' ; fi...@dhs.gov ; 'David and Patty Brooks' 
; 'David Gay' ; Dennis  Pam ; 'Earl Fordham' ; Elaine Boos ; Eric  Eri ; Fred 
 Susan ; Gil  Mari ; 'James Fulmer' ; Jan Hlavaty-LaPosa ; Jim and Bobbi ; 
Johanna ; Judy  Karl ; Keenan ; Kendra ; Lenny Lisa ; Lisa ; Lynn  Jade ; 
Mari ; marie swanson ; 'Mica Ward' ; Mike  Nancy ; Nancy ; Noah ; Pat 
Allegretti ; Pat and Corky ; Pat Doebele ; Pat Massey ; Paula ; PJ ; Ron ; 
'Sally' ; Sarah Bell-Schell ; 'Scott Hamilton' ; Sharon  Steve ; 'Sheri Meyer' 
; Steve  Gail ; Steve and Jo ; Susan  Ted Roth ; Tmic ; Tom  Deb ; 'vanessa 
Quinn' ; Wayne ; Zsolt  Patty 
Subject: [TMIC] update on Mike


Hello Family and Friends,

Our meeting last week with the Oncologist brought us very sad and shocking 
news.  Mike's cancer is not only back, but in the brain and spinal cord.  It is 
inoperable and the doctor's best guess was that he would have anywhere from 2 
weeks to 2 months.  The only positive thing about this news was that Mike was 
too disoriented to understand what was going on.  We came home and called in 
Hospice to help us through our ordeal.

 

Hospice came last Friday for the evaluation and to set Mike up on comfort only 
drugs.  By Sunday, I was unable to get Mike out of bed, even with help, and 
another call to Hospice brought a delivery of a hospital bed and accessories.  
By Monday, Mike was not speaking other than incoherent mumbling, except for an 
occasional name of Jill, Janel or Joel.  Today (Wednesday) Mike is unresponsive 
and it is clear from the Hospice nurse that he won't last more than 24 hours, 
if that, before he has left us for a better place.  

 

Had I known that things were going to transpire this fast, I would have sent a 
letter out sooner, but we are all still in shock that we have had barely a week 
since the news of his setback.  Too soon, we are having to say our goodbyes.

 

Please keep Mike in your hearts and prayers that he may go swiftly and easily. 

 

Love and peace,

The Hammond Team  

Re: [TMIC] about Jude (Hey Jude)

[Lori Biehler]

I am not sure I believe in God, but if there is a God, Jude is a person that 
he will take care of. She has always been so upbeat, so thoughtful and so 
full of great advice for anyone.

All my positive thoughts are going out to her.
Lori

--
From: pjv1...@chartermi.net
Sent: Wednesday, July 21, 2010 9:23 PM
To: tmic tmic-list@eskimo.com
Subject: [TMIC] about Jude (Hey Jude)

I talked with Jude's husband, David, this evening after receiving a 
message from him that she is in a hospice program.   David said she went 
to a hospice camp for ten days and came home feeling better last week. 
Then she woke up during her first night home with a headache and has gone 
down hill from there.


David said Jude has not been talkative lately, but I asked if I could 
visit with her tomorrow just to sit with her.  I'm planning to visit in 
the afternoon.


The last time I heard from Jude was the message that she sent Does anyone 
remember Jude?


Patti - Michigan

Re: [TMIC] I'm back!

[Lori Biehler]

Hi Jeron,
Amazing how well one feels when they help others!
Enjoy your time in South Africa!
Lori


From: j ra 
Sent: Monday, July 05, 2010 9:40 AM
To: Transverse Myelytis 
Subject: [TMIC] I'm back!


Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron



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Re: [TMIC] alive

[Lori Biehler]

Hey Jeron!
I knew you would love it!!! I didn't want to tell you my water experience, but 
if the water is the right temperature (temperature bothers me a lot!!!) I can 
float, kick, whatever and my body feels like TM never happened!! I get 
claustrophobic now, even snorkeling, which is strange, but it is worth it, so 
worth it.
I am glad that you are doing what you need to do for you. It was one of the 
first things that a gentleman by the name of Doc kept telling me. I tried and 
tried to be what I was before and to be the caregiver for my family, as before 
TM. After I realized that I had to do what was right for the new me, life began 
to get so much better for me.
Is this life easy with TM and all the other crap that comes along with it, no 
it isn't, but who ever said life was easy. If I didn't have TM, I may have 
something else that I couldn't cope with as well.
Just be you and do the best you can for you at any moment. Some moments that 
won't be what you want, but in reality it is all any of us can do, able bodied 
or not. We all have to accept our limitations, but we can find ways around 
them. I cannot rock climb any more, but I can sip champagne on a condole, and 
that is OK with me these days.
Good luck and congrats on the great day! Not all pain is bad and even able 
bodied people have pain when they push themselves, it is called good pain!
Lori  


From: j ra 
Sent: Friday, May 21, 2010 5:23 PM
To: Transverse Myelytis 
Subject: RE: [TMIC] alive


Hey everybody,
When I started this post, I sure as hell wasn't expecting the can of worms that 
I opened up! I got what you all said about me being selfish and trying to go it 
alonepushing my wife away and all that. When I came to the Caribbean it was 
for two reasons. 1. I needed to learn to deal with this thing of ours called 
TM, but away from everyone who knows me. I did this because I wanted to see 
myself in the mirror again and not the person that everyone feels sorry for 
because I have TM. So I moved here for a litttle while just to get some me 
time. I am not pushing my loved ones away, like most of you thought. Truth be 
told, my wife fully understands why I wanted to be alone. 2. I am trying to 
relive my past. I am trying to push myself to do the things I loved to do even 
though I have TM. I know there is no way anyone of my loved ones are approving 
of this and are all worried about me going off into the deep blue sea or 
jumping out of a plane like I used to, so it's better if I do it when they 
can't see me do it and all be worried.
So today was my first dive in years and for the first time since I had TM, I 
forgot all about it. My legs didn't hurt, my back was like brand new and it was 
amazing. Of course I got a little help from a 6 knot current to do most of the 
work under water for me (it's called a drift dive), but it was amazing. I did 
it! Adrenaline pumped through me for 32 amazing minutes and I felt alive again. 
I'm in all craploads of pain right now, but it was so worth it.
Next stop, zip-lining in St. Lucia and Sky diving in Martinique. I know I'm in 
for some serious pain, but I think I'm slowly remembering the good days. My 
goal is to remember those days and replace the bad days. I called my wife and 
told her I loved her and she said she was proud of me for taking the step to 
regaining some control of my life.
So, now.It feels great to be in painthis time it was worth it.
Thanks everyone for all the emails and all the support. I love you guys very 
muchyou are my family!
Jeron



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Re: [TMIC] alive

[Lori Biehler]

Go for it and good luck I relearned to water ski! I couldn't do it the way 
I did it before TM, I was on 2 skis this time. They were nailed together with 
wood and spikes and the rope was attached to the skis and then up to my arms. 
It took me an entire week of trying to get up and stay up for only 15 or 20 
seconds, but it was so worth it!
I totally understand where you are coming from and what you feel you need, go 
and do! Be careful out there tomorrow, you are still withdrawing from your 
meds. I went cold turkey also, over 10 years ago and would rather live with the 
pain than in a fog and after time, my psychologist taught me all sorts of self 
hypnosis techniques that really help me.
Send some of that adrenalin this way tomorrow!
Lori 


From: j ra 
Sent: Thursday, May 20, 2010 12:50 PM
To: Transverse Myelytis 
Subject: RE: [TMIC] alive


I truely appreciate everything that you each said to me about this. I guess it 
killed me a little inside when I saw what I was doing to my wife and the 
pressure she was under. I live in Brazil and I have a lot of faith in my team 
of doctors, but being a 10 on a pain scale of 1-10 everyday is so hard. I 
do see a psychiatrist and don't believe I'm suffering from depression. It's 
just that before this I lived a really adventurous lifestyle. I Sky-dived, 
scuba-dived, spear-fished, hunted, rappeledlived off adrenaline. Now I 
can't even get off the damn bed without tipping over. So, I came up with the 
idea to move to the caribbean by myself, just to see if I can dive again or do 
anything with this level of pain and get by. I am forcing myself to pick up my 
old lifestyle, but I really want to do it without meds and the look of my 
wife's face as I try to live and feel alive again. I think the only time I ever 
truely felt alive was when I first jumped out of an airplane at 12000 feet or 
when I shot my first 50 lb Grouper at 75 feet below sea level. I miss that. I 
want that again so  bad. TM took everything I loved away from me, but gave me a 
remarkable appreciation for the life I once had.
Guys, I'm just trying to do this for a couple of months.challenge myself to 
go it alone, pretend it never happened. Use a cane and get around with my pain 
for a bit and sky-dive again, hunt againmaybe this is all very dangerous, 
but I have to do it for ME! 
I know getting off meds cold turkey was a bad ideaI feel it now as I type 
this, but I hate feeling so damned drugged up all the time. So, I selfishly 
chose adrenaline, at least for another 2 months or so..believe or not, my 
wife supports the ideabecause she knows that I miss being Jeron. I refuse 
to be just a  TM patient.
Pain level today, honestly, 9 out of 10. I'm going scuba-diving in Tobago 
tomorrow with pain and a spear-gunjust to feel alive one more time.
Jeron



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Re: [TMIC] Mike

[Lori Biehler]

Gunny,
I am so sorry. There are no words, you are in my thoughts.
I know how proud you are of that military funeral. Your family truly served and 
are honored by us all.
Lori




From: bgunny7...@aol.com bgunny7...@aol.com
To: Tmic-list@eskimo.com
Sent: Fri, April 30, 2010 3:34:18 PM
Subject: [TMIC] Mike


We buried my brother today. It was a nice military funeral. Mike was in the 
Navy back in the 60's. Anyway, I wanted to thenk each and every one of you who 
supported me. I thought about sending thank you nores individually, but they 
would have become repetetive after awhile, so I thought a blanket thank you 
would suffice. Ya know, we're all connected in one way or another, but as you 
get older, and people around you start to die off, it gets a little harder to 
take. Especiallt when they're your brother or sister, and they're younger than 
you. First, you're there when they're born, then you're there when they die. 
Everything starts to come back when family is around, and the memories sometime 
become overwhelming. In any case, my heat felt thanks goes out to all of you.

Semper Fi
Gunny

Re: [TMIC] TMIC Neurontin--does it exhaust you?

[Lori Biehler]

Neurontin was awful for me. I was on it for the first year, 1998, and tried 
again in 2002. It made me exhausted and I couldn't think straight. I always 
felt as if my brain was buzzing, just an awful feeling. I prefer the 
symptoms of the illness over those of that drug. I only took 100mg, 3 times 
a day. I think either you can handle a med or you can't and I am one that 
doesn't handle many.

Lori

--
From: pjv1...@chartermi.net
Sent: Saturday, April 17, 2010 9:54 PM
To: Neil McNeil n_...@hotmail.com; Janice Nichols 
jan...@centurytel.net; tmic-list@eskimo.com; we4king...@verizon.net; 
Jill Posner posnerj...@yahoo.com

Subject: Re: [TMIC] TMIC  Neurontin--does it exhaust you?


Jil,
That much neurontin also exhausted me, but I took fewer naps as time went 
on.. It never eliminated TM pain, however, it helped some. My biggest 
complaint about Neurontin is the time it took to work and how fast it wore 
off.  My Neuro said that was a common complaint  and suggested I try 
Lyrica.   I researched Lyrica for a year before letting my him write a 
prescription.  My biggest fear was his insistence that I could switch from 
neurontin to Lyrica overnight.   I finally made the switch exactly that 
way - overnight -  with no side effects.  I didn't swell up like a toad 
nor did I turn into one.  Lyrica works within fifteen minutes of taking 
the pill and lasts much longer.  I took 75mg every 12 hours for a year, 
then upped to 75mg every 8 hours for about 9 months.  I then asked for an 
increase to 100mg every 8 hours and have been on this dosage for over a 
year.
I understand being afraid of Lyrica, because I was petrified of it myself. 
Now I have to share the benefits I received.  It works for some, but not 
for others.


Patti - Michigan
 Jill Posner posnerj...@yahoo.com wrote:
I am new to it...am on 2400mg a day--600 mg 4 times a day.  It leaves me 
feeling like a zombie and doesn't really eliminate the pain.  Lyrica is 
in the same family so I didn't think it made sense to wind down and up 
again. And it seems to have more side effects. I don't care to be as 
bloated as a toad.


Are there other options?

Jill

Re: [TMIC] healthcare

[Lori Biehler]

Thanks Wim, it is quite exciting to see our country moving forward and making 
the health of our nation so important.


From: wim from holland 
Sent: Tuesday, March 23, 2010 7:08 AM
To: TMIC 
Subject: [TMIC] healthcare


Congratulations with your new healthcare system. It is almost a copy of the 
Dutch system. Our minister of heathcare had been a few times in America and the 
White House to excplain the benefids of the system. At the end it will makes it 
all cheaper for customer, gouverment and insuerance companies. It provides 
healthcare for everyone. For those who had not healthcare and get an accident, 
taxpayers had to pay for it. Also people because of not having healthcare 
waited much too long to see a doctor, at the end ended in a hospital with much 
higher costs, wich came at the shoulders of the taxpayers.
 
Here in Holland, because the insuerance companies demand you take the cheapest 
possible medications, the price of these is now so much lower, that Gemans and 
Belges come to Holland for the free medications, only Spain and Portugal are 
cheaper.
 
Wim from Holland



Minder SPAM in de verbeterde Windows Live Hotmail 

Re: [TMIC] Children

[Lori Biehler]

I was told it was not familial. My son has Crohn's and one of his meds lists TM 
as a possible side effect. Needless to say, I freaked and discussed this with 
Dr. Kerr and was told it was nothing to worry about.
Lori


From: Janice Nichols 
Sent: Sunday, March 21, 2010 8:29 AM
To: tmic-list@eskimo.com 
Subject: [TMIC] Children


Good Morning.  It is the first day of SPRING!

I have a question for you smarter than me TM'ers.   

In the future, do we have any information on chances for our children ending up 
with TM also? 

Janice

Re: [TMIC] Lyrica

[Lori Biehler]

Congrats! That is a huge accomplishment and I am glad that you are able to 
cut down and not feel any worse after the withdrawal period, how wonderful for 
you!


From: Mindy King 
Sent: Monday, March 15, 2010 12:45 AM
To: tmic-list@eskimo.com 
Cc: Mindy King 
Subject: [TMIC] Lyrica


Hi all, 
I weaned off Cymbalta 10 months ago after a major improvement in pain, my other 
medication is Lyrica and I have been on it since before TM was diagnosed as the 
cause of  my nerve pain.  I was taking 150 mg 2X a day  for the majority of the 
last 3 years, not knowing if it was really still helping all that much (or at 
all) and wanting to know if  I could tolerate life on a smaller dosage.


You can't just stop taking it or you'll have hell to pay (physical withdrawal), 
every time I've missed a dose I've been in agony,  so I've set about weaning 
off. first I dropped to 75mg at night  and 150 during the day. the first 4 days 
were miserable but after that I felt  no worse than I did at the higher level.  
Then I halved the day time dosage and after 4 days still felt okay.  I tried 
quitting the night dose altogether but that didn't work out so I switched to 50 
mg morning and night.  


I had hoped I could go completely unmedicated but I have to be realistic and 
feel good about my accomplishment.  1/3 of my previous dosage is a big gain, 
I'm more alert and functional on less and that is such a gift!  I have too much 
on my plate right now to lose a week to  withdrawal misery.  


I don't post much but thanks for being there when I need you.


Mindy the artisan

Re: [TMIC] Re: Hope

[Lori Biehler]

MS is defined as multi focal and multi phasal, recurrent TM is multi phasal, 
yet not multi focal. It occurs in the same area.


--
From: Laura Beaudin laura.beau...@gmail.com
Sent: Sunday, March 14, 2010 11:36 AM
To: Grace M. grace...@gmail.com
Cc: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Hope

But doesn't recurrent TM usually categorize someone as having MS or 
Devic's? I have lesions on my spine that caused the TM...but those lesions 
are there more than likely because of my MS...if I get new lesions 
(already have 2 on the spine..C6-7 and T10), then it is MS related in my 
case.


Spasms can be nasty, but surgery is usually last resort (to clip 
tendons)has botox been tried?


Laura
  You can easily judge the character of a man by how he treats those who 
can do nothing for him. -James D. Miles-

http://www.bananga.com ...empowering ourselves!
On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options
http://www.practical-homeschooling.org


On 14/03/2010 10:48 AM, Grace M. wrote:
/It is very possible that she is suffering from recurrent TM, which is 
rare, but does happen especially in the context of diseases like NMO, 
Sjogren's, SLE.  We don't have quite enough of her history to make any 
assumptions.  As for her spasms, they appear to be tonic Not your usual 
run of the mill spasms.  I have them and they are totally debilitating, 
and for me require huge doses of an anticonvulsant. (Tegretol 1500 mgs 
per day.)  Before treatment with Tegretol, I couldn't be left alone.  My 
heart goes out to her and I hope that she gets the needed funds, and 
finds relief./

//
/Grace/

RE: [TMIC] OT Prayer Request - Update

[Lori Biehler]

Hi Kevin,
My heart breaks for you. Hold on and do your best to be strong. Vent when
you need to and I am so sorry you are going through this. Why not look
through some of your pictures you took when you were a photographer? Maybe
that would help to put a smile on your face, even if for a few moments.
Lori

-Original Message-
From: Kevin Wolfthal [mailto:wolft...@optonline.net] 
Sent: Thursday, February 18, 2010 11:30 AM
To: lbieh...@earthlink.net; tm  tmic-list@eskimo.com
Subject: Re: [TMIC] OT Prayer Request - Update


Hi Lori and all,

My Mom is not doing well. She can't walk and her right hand is affected.
She is very depressed. She is in a nursing home for rehab, but is refusing
to eat. She also suffers from mild dementia, but the stroke may have made
it worse. When I call her I try to be as positive as I can, though I 
just want
to cry. I tell her she will be okay and please eat and do the things they
ask her to do. She sounded better last week, but I think her situation has
sunk in.

I sleep from exhaustion, but not well..haven't for years. To be honest, I
think I began giving up on life a few years ago. Doctors were doing nothing
for me, not even helping my pain. I am gaunt now and fairly bedridden. 
Anytime
I've tried to do something positive I hit a brick wall. I don't see any 
reason to
go on. My Mom and I have been each others only support. I do have a 
companion
I hire who helps us a few hours every night. She is an ANGEL. She is 
bringing my
Mom some Ensure tonight.

Thank you for your concern. It is more meaningful than I can express.

Kevin






Lori Biehler wrote:
 Hi Kevin,
 How is your mom doing? How are you doing? Are you sleeping OK?
 Lori

 -Original Message-
 From: Kevin Wolfthal [mailto:wolft...@optonline.net]
 Sent: Monday, February 15, 2010 6:36 PM
 To: Todd Tarno; tm  tmic-list@eskimo.com
 Subject: Re: [TMIC] OT Prayer Request


 Todd,
 Thank you and everyone for your prayers.
 Bless you,
 Kevin







 Todd Tarno wrote:

 Hey Kevin,
 I'm so sorry to hear about your mother, Olga.
 Hope she is doing better today,
 We'll will be praying for Olga and your family,
 Todd in CC, TX

 --- On *Fri, 2/12/10, Kevin Wolfthal /wolft...@optonline.net/* wrote:


  From: Kevin Wolfthalwolft...@optonline.net
  Subject: [TMIC] OT Prayer Request
  To: tmic-list@eskimo.comtmic-list@eskimo.com
  Date: Friday, February 12, 2010, 9:47 AM


  Dear Friends,

  My Mom had a stroke on Sunday. She is in the hospital. She has
  weakness on her
  right side and speech deficits. We have been each others support
  and caregivers
  for years. I feel more scared and alone than I have ever felt.

  Please say a prayer for her recovery. Her name is Olga. Thank you.

  Prayers to you all,
  Kevin

  

[TMIC] OT: Rules For Kickin' A**

[Lori Biehler]

Sounds a bit like me, except I am a Veteran!

Rules for The Non-Military 

Make sure you read #13 

 

Dear Civilians, 

'We know that the current state of affairs in our great Nation has many
civilians up in arms and 

excited to join the Military.  For those of You who can't join, you can
still lend a hand. Here are 

a few of the areas where we would like your assistance: 

 

1. The next time you see any adults talking (or wearing a hat) during the
playing of the National 

Anthem - kick their Ass. 

2. When you witness, firsthand, someone burning the American flag in protest
- 

Kick their ass. 

3. Regardless of the rank they held while they served, pay the highest
amount of 

respect to all veterans. If you see anyone doing otherwise, quietly pull
them aside and 

explain how these veterans fought for the very freedom they bask in every
second.   

Enlighten them on the many sacrifices these veterans made to make this
Nation great. 

Then hold them down while a disabled veteran kicks their Ass. 

 

4. If you were never in the military, DO NOT pretend that you were.  Wearing
battle dress 

Uniforms (BDUs) or Jungle Fatigues, telling others that you used to be
'Special Forces'.

Collecting GI Joe memorabilia, might have been okay when you were seven
years old, now, 

it will only make you look stupid and get your ass kicked. 

  

5. Next time you come across an *Air Force* member, do not ask them, 'Do you
fly a jet?'   

Not everyone in the Air Force is a pilot.  Such ignorance deserves an
ass-kicking (children are 

Exempt). 

6. If you witness someone calling the *US Coast Guard* 'non-military',
inform them of their 

mistake - and kick their ass. 

 

7. Next time Old Glory (the US flag) prances by during a parade, get on your
damn feet and 

pay homage to her by placing your hand over your heart. Quietly thank the
military member 

or veteran lucky enough to be carrying her - of course, failure to do either
of those could earn 

you a severe ass-kicking. 

8. 'Your mama wears combat boots' never made sense to me - stop saying it!
If she did, she 

would most likely be a vet and therefore would kick your ass! 

 

9. 'Flyboy' (*Air Force*), 'Jarhead' (*Marines*), 'Grunt' (*Army*), 'Squid'
(*Navy*), 'Puddle Jumpers' 

(*Coast Guard*), etc., are terms of endearment we use describing each other.
Unless you are a 

service member or vet, you have not earned the right to use them. 

Using them could get your ass kicked. 

 

10. Last, but not least, whether or not you become a member of the military,
support our troops 

and their families. Every Thanksgiving and religious holiday that you enjoy
with family and friends, 

please remember that there are literally thousands of soldiers, sailors,
Marines and airmen far from 

home wishing they could be with their families. Thank God for our military
and the sacrifices they 

make every day. Without them, our Country would get it's ass kicked. 

 

11. 'It's the Veteran, not the reporter, who has given us the freedom of the
press.' 

 

'It's the Veteran, not the poet, who has given us the freedom of speech.' 

 

'It's the Veteran, not the community organizer, who gives us the freedom to 

demonstrate.' 

 

'It's the Military who salutes the flag, who serves beneath the flag, and
whose coffin is 

draped by the flag, who allows the protester to burn the flag.' 

 

AND ONE MORE: 

 

12. If you ever see anyone singing the national anthem in Spanish - KICK
THEIR ASS. 

 

13. ONE LAST THING: 

 

If you got this email and didn't pass it on - guess what - you deserve to
get your ass kicked!   

 

I sent this to you, because I didn't want to get my ass kicked. 

 

WE LIVE IN THE LAND OF THE FREE, ONLY BECAUSE OF THE BRAVE! 

 

IN GOD WE TRUST 

 

God Bless America !   

RE: [TMIC] TM and Pilates

[Lori Biehler]

I also do not have a legion on my spinal cord at this time and Dr. Kerr was
my neurologist and he told me that I definitely have TM and that does not
matter. It is not always present in an MRI. I believe him. I have TM.

 

From: Barbara Alma [mailto:balmat...@aol.com] 
Sent: Sunday, February 14, 2010 12:40 AM
To: rj_ran...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] TM and Pilates

 

Hi Randy and all TMIC,

 

I am another one who was originally told that I had TM and am now being told
that I don't, and that's by the same doctor and another as well.  I've never
been talked to about MS though.  I had only one attack, was paralyzed from
waist to toes within 15 minutes, at lesion T8-10.  I even went to 2
different hospitals, as I wanted a second opinion, both with a TM diagnosis.

 

After about 3 yrs I was told by my first Neuro, who became my treating Neuro
that I didn't have TM.  He didn't know what caused the paralysis and no
other information as to why.  Not a spinal infarction or stroke, or anything
else.  I had trouble with my disability claim and he was the cause so I
changed Neuro's a few of years later and she had MRI's done and told me the
same thing.  MRI's have come a long way and the lesion is not there any
longer and they can't see any cause, like a bleed or anything.  She looked
for evidence of a bleed because she wanted to rule out the possibility of it
happening again and couldn't find it.

 

So guys, since I've had 2 Neuro's both tell me that I don't have TM, I
really don't care.  I'm sticking with it, and you are just stuck with me.
I'm happy here, I get the support that I need, I give it when I can, and I'm
not going anywhere.  I really don't know what caused my problems, and I
really don't care at this point.  It is what it is.  I've had this crap for
over 10 years and it's not going away.  I had TM symptoms and that's where I
started, so I'm sticking with it.  

Hugs, Barbara A in Auburn CA

 

-Original Message-
From: rj_ran...@yahoo.com
To: Grace M. grace...@gmail.com
Cc: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com
Sent: Sat, Feb 13, 2010 1:18 pm
Subject: Re: [TMIC] TM and Pilates

Janice its ok. I've actually been wondering if I should stay.  I feel very 
awkward these days. I've been told more than once that I had all the
textbook 
signs for ms and I did loose my left foot followed by my right leg then my 
bladder was told I had tm and went through the most unbelievable facial
pain. 
Had several doc all with different ideas and one that got me on my feet and 
another that got me in pt and walking again I've been hospitalized 4 times
and 
now suddenly I am told that I don't have ms and show no signs of tm. I pray
to 
God nothing comes back. I spent an entire summer pushing myself on a tread
mill 
trying to rebuild my strenght but that was after the years of trying to
cross my 
legs and do odd excercises on the bed floor and chair that the pt taught me.
It 
sure has been a mentally brain warping experience. Tx grace for calling me
fam. 
This is a great group of people and have helped me get through a lot of 
challenges as well as put up with my venting from time to time. I think we
all 
have to vent. 
--Original Message--
From: Grace M.
To: rj_ran...@yahoo.com
Cc: Janice Nichols
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] TM and Pilates
Sent: Feb 13, 2010 2:26 PM
 
Randy, 
  
You're like family here at the site and have a lot of good input to offer.
I 
think that you and I came around the same time.  
  
Janice, we don't have to currently be ill in order to participate here.  ALL
are 
welcome.  It's not an exclusive club.  
  
Respectfully, 
Grace 
 
Sent from my Verizon Wireless BlackBerry

RE: [TMIC]

[Lori Biehler]

Makes you wonder what type of people would such a thing to others. All the
people that believe in this stuff are going to get sicker! Makes me sick to
my stomach!

 

From: kevin weilacher [mailto:hwyfli...@yahoo.com] 
Sent: Saturday, February 06, 2010 9:05 AM
To: Janice Nichols; tmic-list@eskimo.com
Subject: Re: [TMIC]

 

Larneton is for a fact, a scam.
http://www.moh.govt.nz/moh.nsf/0/22459AF3D41CA288CC257676007E651F

Molistical, not sure but I would lay money on it being a scam also

 

  _  

From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Fri, February 5, 2010 9:28:05 PM
Subject: [TMIC] 

Have any of you heard of the natural meds that are to cure TM? So
far I have 2 names:

 

  Larneton   and   Molistical

 

Know anything about them?

 

Janice

 

[TMIC] Yooo...hooo....TMIC Members, where are you?

[Lori Biehler]

We are all here! It is really cold outside over most of the US, quite a
drag. 

I know I have been nesting, making soup, eating cheese and staying warm.

The cold hurts me so I do what I have to do to stay comfortable and I think
that others are doing the same.

Lori

 

 

From: Grace M. [mailto:grace...@gmail.com] 
Sent: Sunday, January 31, 2010 7:03 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Yooo...hoooTMIC Members, where are you?

 

Where is everyone?  The last msg that I got was from Frank, looking for pie
recipes.

 

Anyone out there?

RE: [TMIC] Yooo...hooo....TMIC Members, where are you?

[Lori Biehler]

I lived in Hawaii from 80-83 and I must say the weather there is the best! I 
know I would not be in any pain living in those weather conditions, and it is 
beautiful, just not where I want to be, so alas, I live in the cold and wait 
for snow, beautiful snow!

 

From: bobby jim [mailto:elbobber...@earthlink.net] 
Sent: Sunday, January 31, 2010 8:21 PM
To: CANDIS KALLEY; TMIC-LIST
Subject: Re: [TMIC] Yooo...hoooTMIC Members, where are you?

 

The nearest places where it's 70-75 year-round are Puerto Rico and Hawaii,

methinx.

 

BobbyJim

- Original Message - 

From: CANDIS KALLEY mailto:cakal...@embarqmail.com  

To: TMIC-LIST mailto:TMIC-LIST@eskimo.com  

Sent: Sunday, January 31, 2010 18:54

Subject: Re: [TMIC] Yooo...hoooTMIC Members, where are you?

 

I'm here - now!  I was asleep for 4 hours but I'm up now.   Before my nap,  I 
was wondering the same thing.  This cold weather is a killer, at least for me.  
I had these fronts.  I still want some place that is 72 - 74 all year round.  
Too cold or too hot is pure misery, at least for me.

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: Grace M. grace...@gmail.com
To: tmic-list@eskimo.com
Sent: Sunday, January 31, 2010 7:02:39 PM GMT -05:00 US/Canada Eastern
Subject: [TMIC] Yooo...hoooTMIC Members, where are you?

Where is everyone?  The last msg that I got was from Frank, looking for pie 
recipes.

 

Anyone out there?

RE: [TMIC] Yooo...hooo....TMIC Members, where are you?

[Lori Biehler]

Yup, yet that being said, I would rather hurt in the cold snow, than hurt in
the freezing rain! For some reason, no clue why, it hurts more in the cold,
cold rain than in the snow, even though it is colder when it snows! This
winter is much better for me than last winter.

 

From: kimr1999 [mailto:kimr1...@bellsouth.net] 
Sent: Sunday, January 31, 2010 8:28 PM
To: L T CHERPESKI; tmic-list@eskimo.com; Grace M.; Janice Nichols
Subject: Re: [TMIC] Yooo...hoooTMIC Members, where are you?

 


well since were on tht cold... this winter has been the worst pain I have
had to date. Anone else?

--- On Sun, 1/31/10, Janice Nichols jan...@centurytel.net wrote:


From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] Yooo...hoooTMIC Members, where are you?
To: L T CHERPESKI cherp...@msn.com, tmic-list@eskimo.com, Grace M.
grace...@gmail.com
Date: Sunday, January 31, 2010, 8:25 PM

I am here and you are right, it is so quiet. I sent Frank a couple
of pie recipes that we really like.I think he needs to try them all out

before he puts them in his book.   What subject does anyone want to
talk or comment about?

Janice

PS   I am trying to add color to our lives!

 

 

From: L http://us.mc1804.mail.yahoo.com/mc/compose?to=cherp...@msn.com  T
CHERPESKI 

Sent: Sunday, January 31, 2010 6:36 PM

To: tmic-list@eskimo.com
http://us.mc1804.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com  ;
Grace M. http://us.mc1804.mail.yahoo.com/mc/compose?to=grace...@gmail.com


Subject: Re: [TMIC] Yooo...hoooTMIC Members, where are you?

 

Hi Grace,

 

I'm here - but you're right - extremely quiet.  TOO quiet..

 

And Frank - if you were asking for anything except pie recipes, I could help
you out.  I learned many moons ago that I am not capable of making a good
pie!!  I'm sure you'll get some good replies when everyone wakes up.

 

Linda

- Original Message - 

From: Grace M.
http://us.mc1804.mail.yahoo.com/mc/compose?to=grace...@gmail.com  

To: tmic-list@eskimo.com
http://us.mc1804.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com  

Sent: Sunday, January 31, 2010 5:02 PM

Subject: [TMIC] Yooo...hoooTMIC Members, where are you?

 

Where is everyone?  The last msg that I got was from Frank, looking for pie
recipes..

 

Anyone out there?

 

RE: [TMIC] Fw: Forget all other emails but this one!!!! MOST EFFECTIVE

[Lori Biehler]

This is not a political site! I am highly offended that this was posted on this 
site OT or not and has been going around for years. The dates have all been 
changed. I thought this site was for TM, OT in itself is bogus, but this is 
over the line.

-Original Message-
From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Sunday, January 24, 2010 11:06 PM
To: Ed; tmic-list@eskimo.com; Janice Rehmer
Subject: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE








  Sent: Wednesday, November 18, 2009 6:02 PM
 Subject: FW: Forget all other emails but this one MOST EFFECTIVE


 I thimk THIS NEEDS TO MAKE THE ROUNDS AS MANY AS IT TAKES TO GETOUR 
 COUNTRY BACK




 Party affiliation does NOT matter .. we're all in this together!

 I promise you I am going to do exactly what's been so wisely 
 suggested below.

 Now I cant wait for November 2010 

 Keep this one going.





   Subject: FW: : This actually makes sense.
   Date: Thu, 5 Nov 2009 14:36:47 -0600









 Certainly an option very worthy of your 
 consideration!
 Pass It On For Our Country
 And the memory of our Founding Fathers

 At least read this.  Form your own opinion, even 
 if you disagree with this issue, but at least read it.   You and I owe 
 that to our country

 All I ask is that you consider the suggestion 
 here.

 The entire Congress of the United States is 
 corrupt.  And I mean both Houses and I mean both major parties.

  I realize that a few Members of each House are 
 trustworthy, but, as a group
  they are absolutely the most corrupt bunch to 
 ever disgrace our Nation.

 In November of 2010 the entire House of 
 Representatives will stand for re-election;
 all 435 of them.  One third of the Senate, a 
 total of 33 of them, will also stand for re-election.
 Vote every incumbent out.

  And I mean every one of them.  No matter their 
 Party affiliation.
 Let's start all over in the House of 
 Representatives with 435 people who have absolutely no experience in 
 running that body, with no political favors owed to anyone but their own 
 constituents.  Let's make them understand that they work for us.
 They are answerable to us and they simply have to 
 run that body with some common sense.

 Two years later, in 2012, vote the next third of 
 the incumbents in the Senate out.

  We can do the same thing in 2014 and, by that 
 time we will have put all new people in that body as well.

 We, the People, have got to take this Country 
 back and we HAVE to do it peacefully.

  That's what the Framers of our Constitution 
 envisioned.

 I am also suggesting term limits on the NEW 
 BUNCH -- 8 YEARS FOR REPRESENTATIVES   two terms that’s all.
 AND
 12 YEARS  [2 terms]   FOR SENATORS.
 NO EXCEPTIONS.  THE LONGER THEY STAY IN OOFICE 
 THE MORE POWER THEY GET AND THEY LOVE IT AND WILL DO ANYTHING TO GET 
 RE-ELECTED.

 WE HAVE TERM LIMITED THE PRESIDENT –
 NOW LET'S TERM LIMIT THE LEGISLATORS.

 And we do away with their Special Retirement 
 system and their health program (they should have same health programs 
 everyone else in America does). When they are through serving their 
 country they go back to being private citizens.  They should view their 
 service as a privilege; after all it was designed to be a part time job 
 to represent the voice of the people, NOT the special interest groups and 
 those who can do favors for them.

 If they don’t like this proposal then don’t run 
 for office…

   Please, if you love this Country,
 send this (as I have done)
  to  absolutely everyone whose email address
 appears in your address book.

  This thing can permeate this Country in no time.
 Let's make it happen.

  VOTE THE POWER ABUSERS OUTLET'S TAKE 
 AMERICA BACK !

 IF YOU LIKE THE WAY THINGS ARE GOING IN OUR 
 COUNTRY,
 THEN DO NOTHING.





   .












   No virus found in this outgoing message
   Checked by PC Tools AntiVirus (6.1.0.25 - 6.13550).
   http://www.pctools.com/free-antivirus/


 --
   Hotmail: Trusted email with 

RE: [TMIC] (ot) I sing whiter shade of pale

[Lori Biehler]

Beautiful! Thank you!

 

From: Mindy King [mailto:we4king...@verizon.net] 
Sent: Friday, January 22, 2010 3:57 PM
To: tmic-list@eskimo.com
Cc: Mindy King
Subject: [TMIC] (ot) I sing whiter shade of pale

 

As promised last fall, I finally edited and posted whiter shade of pale to
Youtube and Darkness , Darkness as well
a Whiter Shade of Pale http://www.youtube.com/watch?v=8dmryC1-w1A
Darkness, Darkness.mov  http://www.youtube.com/watch?v=BXvC2LA3Ao4   

Mindy the Artisan

 

RE: [TMIC] Medical Marijuana

[Lori Biehler]

I did smoke it and know of others that stated that was the only way to get the 
pain relief, no clue why. I sure do wish the pharmaceutical companies would 
research what chemicals in the plant help us and the best way to deliver those 
chemicals. It is not the THC that relieves pain, it just helps you not to care 
you are in pain. It may help in combination with another chemical but I don’t 
know anyone that took marinol that had the pain relief that those of us that 
smoked had. It took the neurological pain away, all of it and it was wonderful.

Marinol is really great for those on chemo that need to eat, if they can keep 
down a pill. It works really well increasing ones appetite.

Lori

 

From: Barbara Alma [mailto:balmat...@aol.com] 
Sent: Thursday, January 14, 2010 2:29 AM
To: lbieh...@earthlink.net; tmic-list@eskimo.com
Subject: Re: [TMIC] Medical Marijuana

 

What I was saying is that the MJ helps me sleep, but doesn't touch my pain.  At 
least not at the amount I use it or in the way I do.  Then, I am assuming that 
the ones who get relief are doing so by smoking.

Hugs, Barbara A in Auburn CA

 

-Original Message-
From: Lori Biehler lbieh...@earthlink.net
To: 'Barbara Alma' balmat...@aol.com; tmic-list@eskimo.com
Sent: Wed, Jan 13, 2010 5:43 am
Subject: RE: [TMIC] Medical Marijuana

I am not sure what you are asking. I did not have a problem sleeping so I am 
not the best one to answer. I can tell you that I do have a problem sleeping 
now and it has helped, but my sleep problem is not pain at this time.

Lori

 

From: Barbara Alma [ mailto:balmat...@aol.com? mailto:balmat...@aol.com] 
Sent: Tuesday, January 12, 2010 11:25 PM
To:  mailto:tmic-list@eskimo.com tmic-list@eskimo.com
Subject: Re: [TMIC] Medical Marijuana

 

Seems that those who smoke it get a lot of pain relief.  Do you get pain relief 
with the sleepy effects?  Maybe I just finally am just so relaxed that am able 
to sleep, and it generally takes about 45 minutes or more for the effect to 
take place.

Hugs, Barbara A in Auburn CA

 

-Original Message-
From: Janice Nichols  mailto:jan...@centurytel.net jan...@centurytel.net
To: Grace M.  mailto:grace...@gmail.com grace...@gmail.com;  
mailto:lbieh...@earthlink.net lbieh...@earthlink.net;  
mailto:tmic-list@eskimo.com tmic-list@eskimo.com
Sent: Tue, Jan 12, 2010 8:02 pm
Subject: Re: [TMIC] Medical Marijuana

Where do you get it?  Janice

 

 

From:  mailto:grace...@gmail.com Grace M. 

Sent: Tuesday, January 12, 2010 9:46 PM

To:  mailto:lbieh...@earthlink.net lbieh...@earthlink.net ;  
mailto:tmic-list@eskimo.com tmic-list@eskimo.com 

Subject: Re: [TMIC] Medical Marijuana

 

Hello Lori,  

 

I don't need much either---just a few hits if it is of good quality. 

 

Grace

On Tue, Jan 12, 2010 at 10:37 PM, Lori Biehler  
mailto:lbieh...@earthlink.net lbieh...@earthlink.net wrote:

In a pill form it is called marinol. That is basically synthetic THC and I was 
prescribed it in ’99 and it didn’t really take the pain away. It did make me 
sleep and hungry. I smoked it instead and that took the pain away, helped the 
spasticity in my muscles, and left me feeling pretty good. I did not need to 
smoke a lot to get relief.

 

From: Janice Nichols [mailto: mailto:jan...@centurytel.net 
jan...@centurytel.net] 
Sent: Tuesday, January 12, 2010 10:26 PM 


To: Robert Pall; TMIC
Subject: Re: [TMIC] Medical Marijuana

 

If you got it from the medical profession, would it be in pill form?   Have 
you ever tried it or know anyone who has?How does it help and for how long?

Janice

 

 

From:  mailto:rp...@neillsupply.com Robert Pall 

Sent: Tuesday, January 12, 2010 6:45 AM

To:  mailto:tmic-list@eskimo.com TMIC 

Subject: [TMIC] Medical Marijuana

 

New Jersey is on the verge of becoming the next state (probably this week) to 
legalize medical marijuana. Question…..have any of you tried it and if so has 
it provided you with relief? I know how I would answer but perhaps other 
members will shed a different light on the subject….as for me I am delighted! 
Now I just have to get my Dr. to prescribe it!

Rob in New Jersey 

 

RE: [TMIC] Medical Marijuana

[Lori Biehler]

I am not sure what you are asking. I did not have a problem sleeping so I am 
not the best one to answer. I can tell you that I do have a problem sleeping 
now and it has helped, but my sleep problem is not pain at this time.

Lori

 

From: Barbara Alma [mailto:balmat...@aol.com] 
Sent: Tuesday, January 12, 2010 11:25 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Medical Marijuana

 

Seems that those who smoke it get a lot of pain relief.  Do you get pain relief 
with the sleepy effects?  Maybe I just finally am just so relaxed that am able 
to sleep, and it generally takes about 45 minutes or more for the effect to 
take place.

Hugs, Barbara A in Auburn CA

 

-Original Message-
From: Janice Nichols jan...@centurytel.net
To: Grace M. grace...@gmail.com; lbieh...@earthlink.net; tmic-list@eskimo.com
Sent: Tue, Jan 12, 2010 8:02 pm
Subject: Re: [TMIC] Medical Marijuana

Where do you get it?  Janice

 

 

From: Grace M. mailto:grace...@gmail.com  

Sent: Tuesday, January 12, 2010 9:46 PM

To: lbieh...@earthlink.net ; tmic-list@eskimo.com 

Subject: Re: [TMIC] Medical Marijuana

 

Hello Lori,  

 

I don't need much either---just a few hits if it is of good quality. 

 

Grace

On Tue, Jan 12, 2010 at 10:37 PM, Lori Biehler lbieh...@earthlink.net wrote:

In a pill form it is called marinol. That is basically synthetic THC and I was 
prescribed it in ’99 and it didn’t really take the pain away. It did make me 
sleep and hungry. I smoked it instead and that took the pain away, helped the 
spasticity in my muscles, and left me feeling pretty good. I did not need to 
smoke a lot to get relief.

 

From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Tuesday, January 12, 2010 10:26 PM 


To: Robert Pall; TMIC
Subject: Re: [TMIC] Medical Marijuana

 

If you got it from the medical profession, would it be in pill form?   Have 
you ever tried it or know anyone who has?How does it help and for how long?

Janice

 

 

From: Robert Pall mailto:rp...@neillsupply.com  

Sent: Tuesday, January 12, 2010 6:45 AM

To: TMIC mailto:tmic-list@eskimo.com  

Subject: [TMIC] Medical Marijuana

 

New Jersey is on the verge of becoming the next state (probably this week) to 
legalize medical marijuana. Question…..have any of you tried it and if so has 
it provided you with relief? I know how I would answer but perhaps other 
members will shed a different light on the subject….as for me I am delighted! 
Now I just have to get my Dr. to prescribe it!

Rob in New Jersey 

 

RE: [TMIC] Medical Marijuana

[Lori Biehler]

I have used it for many, many years. Dr. Kerr knew and agreed, along with
every other neuro I have ever seen. It works so much better than marinal and
you do not need to smoke or eat enough to get high to feel the pain
relief. I myself don't mind the feeling if I over indulge, some do. I am not
sure which chemical in the plant stops the pain, but it is instant, at least
it is for me.

Lori

 

From: Robert Pall [mailto:rp...@neillsupply.com] 
Sent: Tuesday, January 12, 2010 7:45 AM
To: TMIC
Subject: [TMIC] Medical Marijuana

 

New Jersey is on the verge of becoming the next state (probably this week)
to legalize medical marijuana. Question...have any of you tried it and if so
has it provided you with relief? I know how I would answer but perhaps other
members will shed a different light on the subject..as for me I am
delighted! Now I just have to get my Dr. to prescribe it!

Rob in New Jersey 

RE: [TMIC] Medical Marijuana

[Lori Biehler]

All I can say is that it didn't affect my fatigue. Marinol or synthetic THC
did nothing for my pain, it did affect my fatigue and gave me the munchies
all the time! I would think it would depend on how much you used.

 

 

From: rj_ran...@yahoo.com [mailto:rj_ran...@yahoo.com] 
Sent: Tuesday, January 12, 2010 8:11 AM
To: Robert Pall; fr...@franksheldon.com; TMIC
Subject: Re: [TMIC] Medical Marijuana

 

How does it impact fatique issues? Not meant to be sarcastic but I'm
curious. 

Sent from my Verizon Wireless BlackBerry

  _  

From: Robert Pall rp...@neillsupply.com 

Date: Tue, 12 Jan 2010 08:07:26 -0500

To: fr...@franksheldon.com; TMICtmic-list@eskimo.com

Subject: RE: [TMIC] Medical Marijuana

 

Frank...I took Marinal for a couple of years and all it did was make me
hungry!

 

Rob in New Jersey

 

  _  

From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] 
Sent: Tuesday, January 12, 2010 8:06 AM
To: Robert Pall; TMIC
Subject: Re: [TMIC] Medical Marijuana

Robert,

 

I use SATIVEX: An extraction from Cannibis, made in Britain, sold only in
CANADA, but coming soon to the USA.  ThisSATIVEX is a spray under the
tongue. It lasts about eight hours, has very little euphoria.  It costs
about $640 Canadian for about 3 months spply (204 doses)

 

I love it because I am able to travel with no problems at customs or with
police as SATIVEX is a prescription medication.

 

Frank

RE: [TMIC] Medical Marijuana

[Lori Biehler]

In a pill form it is called marinol. That is basically synthetic THC and I
was prescribed it in '99 and it didn't really take the pain away. It did
make me sleep and hungry. I smoked it instead and that took the pain away,
helped the spasticity in my muscles, and left me feeling pretty good. I did
not need to smoke a lot to get relief.

 

From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Tuesday, January 12, 2010 10:26 PM
To: Robert Pall; TMIC
Subject: Re: [TMIC] Medical Marijuana

 

If you got it from the medical profession, would it be in pill form?
Have you ever tried it or know anyone who has?How does it help and for
how long?

Janice

 

 

From: Robert Pall mailto:rp...@neillsupply.com  

Sent: Tuesday, January 12, 2010 6:45 AM

To: TMIC mailto:tmic-list@eskimo.com  

Subject: [TMIC] Medical Marijuana

 

New Jersey is on the verge of becoming the next state (probably this week)
to legalize medical marijuana. Question...have any of you tried it and if so
has it provided you with relief? I know how I would answer but perhaps other
members will shed a different light on the subject..as for me I am
delighted! Now I just have to get my Dr. to prescribe it!

Rob in New Jersey 

[TMIC] 2010

[Lori Biehler]

Hey all, 

OK, I received my TMA newsletter and I must say that always puts me in a
good mood and helps me to readjust my level of discontent with the world. We
are all so blessed! We can read our email, we can send our email! Most or
many of us can go about our daily lives and check on line when we have time,
when we are not living our lives. I am grateful for my recovery.

I am not whole, I am not who I was 12 years ago, but I am a whole person and
I am a productive person and that is a good thing. I love and I am loved and
that is the most important thing in this life. 

I welcome 2010 as a new year that will help me to strengthen and make my
life better. That does not mean that I will walk better, that means that I
will learn how to use what I have better.

This may upset a few, but I do not believe in God, I believe in humans, in
our drive and our determination. I believe that if you do the best you can,
you will be the best you can be.
Lori

RE: [TMIC] TM video on You Tube

[Lori Biehler]

That is really good! Thanks!

 

From: kimr1999 [mailto:kimr1...@bellsouth.net] 
Sent: Thursday, December 31, 2009 9:33 PM
To: TMIC
Subject: [TMIC] TM video on You Tube

 


 

http://www.youtube.com/watch?v=e9H0fSaTbKA

 

TM video Greg just posted on You Tube.. it's really good... pass it on to
everyone you know

 

Re: [TMIC] Age

[Lori Biehler]

1998 42
-Original Message- From: Janice Nichols Sent: Dec 11, 2009 12:35 AM To: tmic-list@eskimo.com Subject: [TMIC] Age 
Hey!

I have a request. I was talking to my neuro and he was curious to know the ages
that my website friends were when they were hit with TM. Do you all mind sending
me that info - even ifyou only read messages and don't usuallyrespond? I would like
to get as many ages to him as possible. I told him you all were a pretty cooperative group!

Thanks guys
Janice, Missouri

RE: [TMIC] Death

[Lori Biehler]

TM affects everyone differently. I was diagnosed with diabetes, type II,
within a year of TM and it made me stop and realize that I had to take the
best care of myself as I could. I eat completely differently than I used to.
I had heart surgery last year, and my cholesterol was not high, nor did I
have high blood pressure. I smoked, plain and simple. My sugar is totally
under control, my total cholesterol is 119 and my hdl is higher than my ldl.
I do drink wine, my favorite vice, and that is about all I do that my docs
may frown upon. I was told that once you have a spinal cord injury, you must
take the best care of yourself that you can because you are more susceptible
to other diseases, that being said, it doesn't mean that we all can't live a
very long, productive life, we just have to work harder at it.
I go to a gym, and have a personal trainer. I cannot do what able bodied
people do, but I continue to try and find that if I don't go, I feel worse.
I fatigue much easier. I don't enjoy exercise, it is a necessary evil for
me. It not only helps with my muscles, it helps to control my stress and my
sugar. I say if you can move it, do it!
I also eat food that is nutritious and low on the glycemic index. I try and
eat nothing that is not healthy. I do eat chocolate and snacks, they are
controlled and good quality. I do realize that it is more expensive to eat
this way, I just eat less and find that I get as much as my body needs.
I don't get colds or sick often. I think I have only had 5 colds in the last
11+ years that I have had TM and that number may be high.
Lori

RE: [TMIC] Swine flu vaccine

[Lori Biehler]

Hi all,

I saw Dr. Kerr for years and I think I recall at the second symposium, one
of the doctors stating that he would never take the flu shots, nor would
have his children get them. Dr. Kerr never advised me to have the flu shot,
nor did he advise against it. I don't think it is something he can discuss
because of where he works and how he gets paid.

I did have a pneumonia shot this year because of my heart surgery, yet was
advised by my neuro here and my internist to inform them immediately of any
neurological symptoms. 

I will not have the flu shot, and especially not the swine flu shot. I have
been advised against them both by my current team of doctors and I do
believe they have my interests at heart, not any drug company.

Once again, every person is different and what my doctors advise me, is not
necessarily true for anyone else. Everyone should ask their doctors and then
make their own decision for their health. I do believe that there are some
that get TM from vaccines, it is one of the risk factors stated. Luck of the
draw, 1 in every 100, 000 is pretty good odds, though it sucks if you are
the one!

Lori

 

From: Tracey L. Black [mailto:tracey.bl...@hnoins.com] 
Sent: Wednesday, September 02, 2009 1:26 PM
To: roseofr...@aol.com; jan...@centurytel.net; cakal...@embarqmail.com;
tmic-list@eskimo.com
Subject: RE: [TMIC] Swine flu vaccine

 

Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine
and the Swine Flu Vaccine? I am just curious to see if he would tell
everyone to get it or if he would tell everyone with TM to stay away from
it... 

I really don't want to have my daughter, Ashlee, get either vaccine b/c of
her having TM. I don't want my other children to get the shots either b/c I
don't want to chance another child with TM.

 

Tracey L. Black

Certified Insurance Service Representative

Hockley  O'Donnell Insurance Agency

Phone- 717-334-6741, x 29

Fax-717-334-3414

My hours:  9:00 a.m. - 5:00 p.m.

 

 

Thank you for providing information to us. Please be aware that no coverage
is bound and no change to your insurance program is confirmed until verified
by a licensed agent during regular business hours. If you do not hear from
us within 1 business day, please re-contact us in case your information has
not been retained

 

From: roseofr...@aol.com [mailto:roseofr...@aol.com] 
Sent: Wednesday, September 02, 2009 1:21 PM
To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Swine flu vaccine

 

I am totally convinced it was the preservative (Thimerosol) in the

vaccine that caused my TMand my neuro concurs.

It's a very difficult thing to actually prove since there are so many

things that can cause TM.

I remember the day I got the shotthe nurse was extolling the virtues

of that vaccine...telling me how it was going to prevent me from getting

ALL of the strains of flu viruses out there .

After I got the shot she handed me a copy of the paperwork

I had signed..when I got home I read it and one of the side effects

listed was Transverse Myelitis.  That day I didn't know what TM was so

didn't think much of it until I was hit, paralyzed and diagnosed.

Wish I'd read the paperwork FIRST but we tend to believe whatever

our health care providers tell us.  

 

My suggestion to anyone considering getting the swine flu vaccine or the

seasonal flu vaccine is this:  insist on a preservative-free vaccine.

   ~ Lynn

 

 

 

 

 

In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time,
jan...@centurytel.net writes:

Lyn,

Are you saying that your flu shot gave you TM?Have they proven that?

Janice

- Original Message - 

From: roseofr...@aol.com 

To: cakal...@embarqmail.com ; tmic-list@eskimo.com 

Sent: Tuesday, September 01, 2009 11:40 AM

Subject: Re: [TMIC] Swine flu vaccine

 

I'm with Laura and Candy.

I wound up paralyzed from the flu shot I

received 12 years ago so I won't be getting

the swine flu vaccine either...!

 

By the way, I haven't had the flu or a cold for 12 years.

I take supplements and really keep up my levels

of Vitamin D3that stuff is a gold mine and it's

not expensive.

The reason people get the flu in the winter is not

because of the cold weatherit's because they don't

get enough sunshinethat's what it takes for our

bodies to make vitamin D3.  

   Hugs,  Lynn

 


  _  


 

 

  _  

RE: [TMIC] able to move slightly

[Lori Biehler]

Hi Jim,

I am s happy for you! I hate that you feel pain when you are able to
move your hand, but the fact that you can now move that hand at will when
you feel that right side pain is so great! Congratulations!

Lori

 

From: Jim Lubin [mailto:jlu...@eskimo.com] 
Sent: Monday, August 24, 2009 4:26 PM
To: tmic-list@eskimo.com
Subject: [TMIC] able to move slightly

 

The past two weeks I started feeling a tingling in my right lower back. When
I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I
was paralyzed from the neck down due to TM. When I recline the tingling
stops and I can not move my thumb no matter how much I try to.

To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is the
video http://www.youtube.com/watch?v=Tw__9ZDv_hU




Jim Lubin   
jlu...@eskimo.com
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org http://www.makoa.org/ 

RE: [TMIC] healthcare

[Lori Biehler]

Catherine,

I am not sure why they aren't paying anything, mine pays all my co-pays,
etc. after I pay the deductable, which is under $200.00 a year. At first I
was paying all my co-pays and since I didn't owe any money to my doctors or
hospitals, they didn't bill medicare. I pay no co-pays, nothing and they
first bill my primary, then they send the EOB to Medicare and Medicare sends
me my statement and that is that.

I had open heart surgery last September and my bills were well over 200K and
I paid a total of 32 bucks! My primary paid their portion and Medicare
picked up the rest.

Lori

 

From: Catherine [mailto:camoa...@yahoo.com] 
Sent: Thursday, August 06, 2009 3:59 PM
To: Transverse Mylitis Group
Subject: Fwd: [TMIC] healthcare

 

 

 

- Forwarded Message 
From: Catherine camoa...@yahoo.com
To: Todd Tarno toddtm2...@sbcglobal.net
Sent: Thursday, August 6, 2009 3:58:15 PM
Subject: Re: Fwd: [TMIC] healthcare

Hi Todd,

I found out the hard way that Medicare is my secondary insurance.  Needless
to say they have paid for nothing!  Yet I pay that $99.00 charge each and
every month for nothing.  I wonder how many others have experienced this.

Catherine

 

  _  

From: Todd Tarno toddtm2...@sbcglobal.net
To: tmic-list@eskimo.com; Laurie Zissimos lziss...@aol.com
Sent: Thursday, August 6, 2009 3:11:52 PM
Subject: Re: Fwd: [TMIC] healthcare


Hi Laurie,

I found out the hard way that Medicare is ALWAYS primary.

I too, tried to keep my COBRA  Medicare, but when I went to get a MRI, they
told me that Medicare was primary.  When I tried to get back my COBRA
payments, they wouldn't return the payments and didn't want to pay for my
medications for that month.  So, I had to tell them either return my COBRA
payments or pay for my medications, which are over $3,000 a month.  They
paid for the medications.  Thanks goodness.

I don't remember what Part B is.

I do think you will need Part D for medications.  Since you already using
Blue Cross and you like them.  I would stay with them with Part D.  I would
talk to Blue Cross to see they can help you find a plan that works for you.

Hope this helps a little,

Todd in CC, TX

--- On Tue, 8/4/09, Laurie Zissimos lziss...@aol.com wrote:


From: Laurie Zissimos lziss...@aol.com
Subject: Fwd: [TMIC] healthcare
To: tmic-list@eskimo.com
Date: Tuesday, August 4, 2009, 5:46 PM

see below

 

 

-Original Message-
From: Laurie Zissimos lziss...@aol.com
To: rn11...@yahoo.com
Sent: Tue, Aug 4, 2009 6:31 pm
Subject: Re: [TMIC] healthcare

Maybe you can help me.  I was diagnosed with TM in Dec 2005 and went on SSDI
a year and a half later.  This September I have to enroll in Medicare and I
don't know whether or not to get Part B/D at this time.  I am on my
husband's COBRA until January unless I file for an extension which I may do
since I have that option being disabled.  It's pretty expensive, but Its
Blue Cross and they have covered almost all of my medical exp since the
diagnosis.  Our Blue Cross plan is a PPO so we don't need precerts/pre
auths.  It makes it much easier seeing specialists.  He also has another
plan through a part time employer but I don't think the benies are that
great.  My first question is whether or not I should sign up for Part B,
Part B Advantaged, or Part B and D.  I am trying not to lose the BlueCross,
but I also don't know which of the new health coverages would be primary,
secondary! or other.  Is Medicare always considered primary or is it
secondary??  Laurie

 

 

-Original Message-
From: rn11...@yahoo.com
http://us.mc822.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com
rn11...@yahoo.com
http://us.mc822.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com 
To: tmic-list@eskimo.com
http://us.mc822.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com 
Sent: Tue, Aug 4, 2009 6:14 pm
Subject: [TMIC] healthcare


Hi,

   I have been on social security disability since 1996,5 months after
getting tm.I was 49 (now I'm 63).I have a medicare hmo health plan.I have
had this since cobra ran out.I pay $173 a month.My dr visits are $10,a
specialist $20.I have a deductable of $100 per day if hospitalized (for the
1st 8 days).It also includes the part d to help pay for meds,but I get many
of my meds at walmart for $10 for a 90 day supply.The others I get for 90
days through express scripts.I'm sure that on Jan 1st the cost will go up
and the benefits will change.

   I pay out of pocket over $4000 a year for insurance and meds.Thank God I
had long term disability insurance when tm hit me.I get a total of 60% of
what I was earning in 1995.

  I live in Mass.,where you must have some type of medical insurance,or you
pay a penalty when you file taxes.My ex husband paid $600 this year for not
having health insurance last year. I finally got him to get medicare when he
turned 65 in March.Now if I could convince him to insure his house!

   Well,I don't post often,but I'm sure wordy when I do!

   My best wishes to everyone,

 Cheryl in HOT 

RE: [TMIC] healthcare

[Lori Biehler]

There is a SHIP, Senior Health Insurance Program, office in every county or
district. Medicare can give you the number if you call them, the drag is
they are all manned by volunteers, so if there are no volunteers, or
educated volunteers in the services they offer, you have nowhere to turn. I
have never had a problem getting the answers I needed from 1 800 Medicare. I
did need to file a protest against one provider that refused to bill
Medicare as my secondary because they did not have the software necessary
and it worked great. They now have the software, were fined and every person
that had Medicare as a Secondary was paid back from the provider.
Sad that there is no one in your area to help you.
Lori

-Original Message-
From: Akua [mailto:a...@artfarm.com] 
Sent: Thursday, August 06, 2009 7:43 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] healthcare

Aren't there social service offices that are supposed to be well 
versed on these services available to help people make these serious 
decisions with Medicare plans, etc?

Social services are inefficient and uninformed where I am. I have 
been sent-- by social services-- to organizations that don't exist, 
received information that is ten years out of date, or just wasted my 
time.

Most of my bad treatment and nearly all of my disappointment is from 
social services. Every encounter
has been energy draining. They raise my expectations, collect checks 
for allegedly servicing me and do nothing.My latest horror was 
with the public nurse-- occupational therapy and physical therapy.
OT gave me exercises ( say wha?) PT brought a salesman to my house to 
estimate the cost for fixing my wheelchair--- 100s of dollars I don't 
have. Now the PT person gets $140/hr in other words, they got 
paid and nothing, nothing in my life is changed and no need was 
addressed... and they consider my case closed.

I am trying to start a paratransit service because none exists in my 
county. Think anyone would help me, nevermind offer the service with 
20% of the county disabled?! I began to keep a list of who I talked 
to, so I could rattle off who I had talked to. It's an impressively 
sad list.

I'm too often the educator and informer, vs. the one being helped 
and I'm the one paralyzed in the wheelchair.
  Perhaps in other parts of the world, but not here.
Akua


   It seems that each county office should have these available to 
their population since it can be so complex.  Here in California, 
different private plans are available depending on the county 
you live in, as well as the fees for them.  It seems that my mother 
in-law changes plans every few years.  She's learned to be pretty 
savvy about it, but it takes time to learn.

Hugs, Barbara A


-- 

RE: [TMIC] OT/Healthcare

[Lori Biehler]

Not sure how you think they control my health care, they have done everything 
and anything I have asked and done it well! Ask anyone who is retired, gee my 
best friend for the last 42 years has CLL and had a bone marrow transplant 18 
months ago and she is so thankful for medicare, she is alive and thriving and 
not broke! 

If you don’t have experience in the Medicare or VA system, maybe you should ask 
those that do and listen to what they say instead of just propaganda.

I believe in my government, no matter who is the president, that is why I live 
here. I served so that anyone can say what they will, it also give me the right 
to say what I want. I say if you don’t like our country, leave it! I say 
everyone should have the right to good health benefits. 

I like the education in this country, controlled by our government. I like 
having roads that I can drive on comfortably, oh yeah, run by the government. 
How anyone can say their government screws everything up when they can go and 
do as they please amazes me. 

I was stationed in Guantanamo during the ‘”cold war” and I would never want to 
be anywhere that wasn’t free and I thank my government every day that they 
exist. They screw up, so do I, such is life. There isn’t a better one anywhere 
and we should all try and make it so our country can thrive once again.

TM is not easy to live with and without SSDI, a SOCIAL PROGRAM, I would be 
screwed as would many others. Without Medicare, another SOCIAL PROGRAM, I would 
not have the great health coverage I have. I am grateful, and thankful and wish 
everyone could share in it. 

My last word on the subject.

Peace Out!

From: Patricia Cooley 
Date: Mon, 3 Aug 2009 12:13:21 -0500
To: 'CANDIS KALLEY'cakal...@embarqmail.com; 'tmic-list'tmic-list@eskimo.com
Subject: RE: [TMIC] OT/Healthcare

I GUESS I DISAGREE WITH YOU.  IF YOU ARE ON MEDICARE, THE GOVERNMENT ALREADY 
CONTROLS YOUR HEALTHCARE.  AND YOU KNOW WHAT A MESS THAT IT.   IF YOU LOOK AT 
CANADA AND THE UK, YOU SEE HOW YOU HAVE TO WAIT MONTHS FOR TESTS LIKE BREAST 
BYOPSY, ETC..  YOU ALSO HAVE TO WAIT MONTHS TO SEE A SPECIALSIST.  THE 
GOVERNMENT IS ALREADY TALKING ABOUT CUTTING BACK ON MEDICARE FOR SENIORS.  THE 
SENIORS ARE AN EXPENDABLE PART OF THE POPULATION.  I AM NOT SAYING THAT THE 
HEALTHCARE SYSTEM DOESN’T NEED WORK, BUT YOU KNOW THE GOVERNMENT ALWAYS SCREWS 
THINGS UP.  ALSO, I DON’T KNOW WHY THEY HAVE TO RUSH THROUGH A PROGAM THAT NO 
ONE HAS READ OR EVEN UNDERSTANDS.  MANY OF THE COUNTRIES THAT HAVE GOVERNMENT 
HEALTHCARE ADMIT IS A MESS AND ARE TRYING TO CHANGE IT.

 

PATTI

 

From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] 
Sent: Monday, August 03, 2009 11:25 AM
To: tmic-list
Subject: Re: [TMIC] OT/Healthcare

 

The insurance lobbiest are a problem BUT the insurance companies are paying out 
millions to run scare ads AGAINST a public health plan!  That really upsets me 
because too many people believe those ads.

 

Did you hear that the insurance companies are spreading the rumor, egged on by 
the Republicans, that the government is sending people out to ask the seniors 
how they want to die?  The truth is that in the reform bill, doctors will be 
paid when consulting patients on a living will - which I believe everyone 
should have!  This is just one truth which is a half-truth - a tactic that 
occurs too often.

Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: Regina Rummel regina...@sbcglobal.net
To: CANDIS KALLEY cakal...@embarqmail.com
Sent: Monday, August 3, 2009 11:40:09 AM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] OT/Healthcare

Candy,

I am on medicare and pay AARP supplement $154.50 monthly.  I don't have a 
problem as seniors are well covered with Medicare.   But what about the general 
population and single moms such as was your situation...   No wonder so many 
just forget about getting health insurance.  My daughter has a good job with 
great coverage.  But she won't let go of her Blue Cross (close to $600 monthly) 
that she doesn't need, because she has a pre-existing condition, and the 
economy being what it is, what if she loses her job?  She couldn't get coverage 
now.

 

My vote, as yours, is also for public health plan.  Your remarks speak for the 
urgent need for reform.  I am concerned about the $1.3 million healthcare 
lobbyist will be spending to influence our legislators.

 

 

  _  

From: CANDIS KALLEY cakal...@embarqmail.com
To: tmic-list tmic-list@eskimo.com
Sent: Monday, August 3, 2009 7:35:01 AM
Subject: Re: [TMIC] OT/Healthcare

Regina,  interesting that you are asking the question of single payer health 
care.  Are you on Medicare?  Do you or your family have VA coverage?

 

If in doubt of Congress getting lobby money from Insurance Co., here's an 
interesting website:

http://www.opensecrets.org/indivs/search.php?name=state=zip=employ=insurancecand=c2010=Ysort=Ncapcode=r8r83submit=Submit

 

I have 3 personal stories to share with my 

RE: [TMIC] Veins -- cause or effect of MS

[Lori Biehler]

Very interesting, considering I had 5 bypasses last fall, with no high
cholesterol nor high blood pressure. Could it be a vein problem?
Cardiovascular disease? Hmmm, makes me wonder!

 

From: jharpe...@aol.com [mailto:jharpe...@aol.com] 
Sent: Monday, July 20, 2009 7:46 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Veins -- cause or effect of MS

 

My son sent me a link to this article about finding linking vein problems to
MS. Too early yet to say if it is cause or effect or what it might all mean,
but I am just passing it along for your interest.

 

 http://www.metafilter.com/83205/The-wane-in-veins-draining-the-brain
http://www.metafilter.com/83205/The-wane-in-veins-draining-the-brain

 

Barbara H.

 

  _  

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http://pr.atwola.com/promoclk/100126575x1221323041x1201367261/aol?redir=htt
p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=Jul
yExcfooterNO62  Yours in Just 2 Easy Steps!

RE: [TMIC] arts page

[Lori Biehler]

You are truly talented! They are beautiful!

Thanks for sharing them!

Lori

 

From: wim from holland [mailto:wim_from_holl...@hotmail.com] 
Sent: Sunday, July 05, 2009 9:19 AM
To: TMIC
Subject: [TMIC] arts page

 

In my TM time, already 12 years now I started painting as a hobby. Took a
few years lessons but the man fall in love and went to Letvia. Because the
photo's were not a succes to send them to you, I put them on a page at the
internet.
 
The page is: http://members.tele2.nl/jw.deenik05/.
 
Wim from Holand

  _  

Haal meer uit je Hotmail met Internet Explorer 8. Download nu
http://www.microsoft.nl/ie8 

RE: [TMIC] Class Reunions

[Lori Biehler]

Good Morning Janice,

I would go and I would put a smile on my face and have a blast. Everyone has
something in their life, yours is just a bit more visible now. It has made
you a stronger and better person, something to be very proud of.

Have a great time!

Lori

 

From: Janice [mailto:jan...@centurytel.net] 
Sent: Wednesday, July 01, 2009 11:47 PM
To: transverse myelitis
Subject: [TMIC] Class Reunions

 

I have another question for you all that want to answer:

 

I will be having another class reunion shortly and graduating from the
hometown high school, I was usually one of about 15 that

helped to plan it.We had around 500 in our graduating class.Anyway,
I am debating whether or not to be a part of the

planning or even attending the reunion.This is the first reunion since I
got clobbered with TM.  I still have to use a cane and 

would maybe need my wheelchair.I was fairly well known and I am afraid I
would be answering questions all nite about TM. My question is:

 Would you let TM keep you from attending a reunion?Be honest.   If
you were faced with this decision this weekend,

what would you do?

 

Janice 

RE: [TMIC] Transverse Myelitis Network

[Lori Biehler]

If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis Network

 

I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch

 

 

 

- Original Message - 

From: Todd Tarno mailto:toddtm2...@sbcglobal.net  

To: ladyno...@aol.com 

Cc: TMIC mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 3:25 PM

Subject: Re: [TMIC] Transverse Myelitis Network

 


That won't happen again.

 

We do enjoy reading ALL of your e-mails.

I'm sadden that I'm unable to answer a few of your e-mails because of how TM
has hit you.  But, you are right that this site doesn't have many quads,
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take
just to write an e-mails.  Both of you DO write wonderful long e-mails.  I
do treasure each  everyone of your e-mails. 

I have trouble keeping up with this site, 

more power to you to do more than one sit.

Just know ya'll do have a FAN,

Todd in Corpus Christi, TX



--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM

Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic site. I said
I IDENTIFY more. I feel as though I offended you by saying this. There are
issues and concerns of being a quad they are not addressed in the TM site
and I would imagine it's because most people on this site are not
quadriplegics. I go where I can find the information that helps me. If I did
not want to be on this site, I could simply delete it from my contacts.
There is nothing holding me back. I have asked questions on here regarding
autonomic dysflexia, only to have no one respond. Because I later found out
that it's a medical condition for quadriplegics, so I went to the
paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses
these sites, HE CREATED THEM! Where is his hostility?? He knew that there
would be a need for additional information, and that's all it is, is
additional information.

I have been a member of this site, since I came home from the hospital in
2006, but I am always looking for any and all information that could be of
help to me (as I'm sure all of us would be). There are people that use this
site that are also members on the Yahoo Transverse Myelitis site. Should
they just pick one or the other.

I have met many people through this site, one who has become my best friend
who has TM. I would not trade that for anything, but your e-mail makes me
feel as though I am unwelcomed or a traitor of sorts. This brings me to
tears. As I have poured my heart out on this site (reluctant to make my
personal problems public), but felt comfortable enough to share with others
who are, also suffering with relationship problems, pain and depression.
That won't happen again.




-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use
the other one that you say you prefer?  What's the big deal?

 

Jude

 

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time,
ladyno...@aol.com
http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com  writes:

I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members
of the TM site.

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

 


  _  


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RE: [TMIC] Transverse Myelitis Network

[Lori Biehler]

Yes I know that, just doesn't seem really important when one deals with
really sick people or people reaching out for help. I pick my battles.

Enough said.

Peace Out!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 9:41 PM
To: Lori Biehler; 'Todd Tarno'; ladyno...@aol.com
Cc: 'TMIC'
Subject: Re: [TMIC] Transverse Myelitis Network

 

Did it ever occur to you that every e-mail address you put in a message can
be copied by others? 

 

 

 

- Original Message - 

From: Lori Biehler mailto:lbieh...@earthlink.net  

To: 'Dex Packard' mailto:d...@centurytel.net  ; 'Todd
mailto:toddtm2...@sbcglobal.net  Tarno' ; ladyno...@aol.com 

Cc: 'TMIC' mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 6:18 PM

Subject: RE: [TMIC] Transverse Myelitis Network

 

If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis Network

 

I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch

 

 

 

- Original Message - 

From: Todd Tarno mailto:toddtm2...@sbcglobal.net  

To: ladyno...@aol.com 

Cc: TMIC mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 3:25 PM

Subject: Re: [TMIC] Transverse Myelitis Network

 


That won't happen again.

 

We do enjoy reading ALL of your e-mails.

I'm sadden that I'm unable to answer a few of your e-mails because of how TM
has hit you.  But, you are right that this site doesn't have many quads,
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take
just to write an e-mails.  Both of you DO write wonderful long e-mails.  I
do treasure each  everyone of your e-mails. 

I have trouble keeping up with this site, 

more power to you to do more than one sit.

Just know ya'll do have a FAN,

Todd in Corpus Christi, TX



--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM

Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic site. I said
I IDENTIFY more. I feel as though I offended you by saying this. There are
issues and concerns of being a quad they are not addressed in the TM site
and I would imagine it's because most people on this site are not
quadriplegics. I go where I can find the information that helps me. If I did
not want to be on this site, I could simply delete it from my contacts.
There is nothing holding me back. I have asked questions on here regarding
autonomic dysflexia, only to have no one respond. Because I later found out
that it's a medical condition for quadriplegics, so I went to the
paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses
these sites, HE CREATED THEM! Where is his hostility?? He knew that there
would be a need for additional information, and that's all it is, is
additional information.

I have been a member of this site, since I came home from the hospital in
2006, but I am always looking for any and all information that could be of
help to me (as I'm sure all of us would be). There are people that use this
site that are also members on the Yahoo Transverse Myelitis site. Should
they just pick one or the other.

I have met many people through this site, one who has become my best friend
who has TM. I would not trade that for anything, but your e-mail makes me
feel as though I am unwelcomed or a traitor of sorts. This brings me to
tears. As I have poured my heart out on this site (reluctant to make my
personal problems public), but felt comfortable enough to share with others
who are, also suffering with relationship problems, pain and depression.
That won't happen again.




-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use
the other one that you say you prefer?  What's the big deal?

 

Jude

 

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time,
ladyno...@aol.com
http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com  writes:

I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members
of the TM site.

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

 


  _  


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eExcfooterNO62  Yours

RE: [TMIC] Balance

[Lori Biehler]

PT needs to be done for each person, at their ability level. If you can only
move a toe, move that toe. If you can't move anything, than I don't know
what they do for you. No one should ever tell anyone what PT to do or not to
do. If you feel better after moving some, and your doctor says it is OK for
you, than do it. I myself do exercise at a gym and started out in PT over 9
years ago. It has helped me so much and not only helps my mobility, it helps
keep my bones strong, etc. I saw Dr. Kerr starting when he opened his
practice and he advocates exercise and always has told me if you can do it,
go for it. 

Exercise hurts healthy people, building muscle hurts, that is just how it
is. You get tired, but so do healthy people. I like to sleep, so if I sleep
a bit longer and more soundly on gym day, more power to me. Others I know
that exercise feel the same way and would never stop, it helps us a ton.

If you feel better using your legs for a few hours, use them, maybe in time
you will feel better using them for a bit longer, or it will easier for you
to use them during your 2 hours. Either way, anything that helps you feel
better and is good for you is great to keep up!

Lori

 

From: Trudy Ogilvie [mailto:mother...@gmail.com] 
Sent: Thursday, April 16, 2009 11:12 PM
To: fr...@franksheldon.com
Cc: Pieter and Heather; tmic-list@eskimo.com
Subject: Re: [TMIC] Balance

 

So does this mean you think that PT is meaningless? Why do my legs feel
better after a work out than when I get up from my chair after 2 hours of
answering e-mail, paying the bills, throwing out all the junk mail and
making doctor appointments. Do you honestly feel that it's a waste of
time???  Seriously my friend, I am interested  in your opinion in whether PT
is worth the effort.

I thought you once said that exercise was very important for us??

I could be wrong, it's happened maybe once before  :) 

Trudy

P.S. You never did announce the winner of what to do about your falling down
and really injuring yourself but I'll forgive you I guess it was
much more serious than you thought originally.  I am so sorry you wound up
in the hospital.   I hope you are doing better.


 

On Tue, Apr 14, 2009 at 4:12 PM, fr...@franksheldon.com
fr...@franksheldon.com wrote:


 Lack of Proprioception

Proprioception is the ability to know where each and every part of your body
is spatially.

Before TM I typed 70 words per minute with few mistakes.  I took the typing
course in junior high school, then decided to be an English Major in
College, and just got better and better. I took a 23 year breather while
practicing medicine, then got back into writing (Typing) only to be struck
down with TM 15 months later, Aug 2000.  Within several months my typing was
down to 5, five, words per minutes with constant mistakes.  My fingers had
lost the ability to fly out and down to hit the right key.  I had, have, to
look at my fingers, so don't see my mistakes on the screen.

Practice does not make my finger do any better.

I hope that helps

F

 

RE: [TMIC] Exercise

[Lori Biehler]

OK, great idea. I started exercising in 1999 and cannot tell you how much it
has helped me. I have better mobility, lost unwanted weight and have more
strength then before TM. It is not a cure all, that must be emphasized.
First you should talk to your doctor about how much and what types of
exercises you should do. I started with a P/T guy and he took me to a gym
and showed me exactly how to build muscle in someone with a spinal cord
injury. I followed his instructions and continue to do them. I did take 18
months off because of my heart issues, and now that my heart surgery has
been completed and I am almost through the cardiac rehab program, I am back
to lifting weight and trying to improve my endurance once again.

I would suggest to everyone to do what they are advised to do. It is so hard
to continue in the beginning, yet the benefits you reap after a few months
are so great, you will want to continue. I still do not ever wake up and say
yippee I get to go work out! I really am not someone that did this before
TM, and I now realize how much it helps you and the only one you hurt is
yourself when you don't do what you can for yourself. Please don't listen to
anyone that is not licensed telling how and what to use, you can really hurt
yourself, speak to a professional. 

Lori

 

From: ptpatti200...@aol.com [mailto:ptpatti200...@aol.com] 
Sent: Saturday, January 10, 2009 2:11 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Exercise

 

Last week someone asked for some incentive to start excercising and Alton's
was the only post that was directed to the list.  I would like to know what
others do and why.  

 

Let's get some positive discussion going.

 

Patti - MIchigan

 

  _  

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RE: [TMIC] Rick Ashford

[Lori Biehler]

Right on!

 

From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] 
Sent: Thursday, January 08, 2009 7:07 PM
To: Tmic-list@eskimo.com
Subject: [TMIC] Rick Ashford

 

Ya know, when Rick held a fund raiser for the Coalition, he did it out the
goodness of his heart, not only to support the IDC, but to support Dr. Kerr
which we do, in his research. He put me up at his house, fed me, and asked
nothing in return. He and his were my family away from home. Now he's asking
for help for that same family that helped me. We'll Damnit, guess what, I'm
gonna help the guy. I'm sure as hell not gonna give advice on how to dispose
of a body. This irks the shit outa me, that people can be that callous. If
you can send a donation to help the guy, then send it. If you can't then
don't, but for Christ sake, don't advise him how to shitcan his own kid.
That's it. If you don't like what I say or the way I put it, tough shit.
Write me direct with your sarcastic  remarks. Don't put it out to the list
to show your ignorance. I can handle it.

 

Gunny





  _  

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[TMIC] Test

[Lori Biehler]

Test

[TMIC] Caregivers and life

[Lori Biehler]

First let me thank all of you that let me know that I am getting through to
the list. Seems I could receive posts, yet earthlink addresses weren't going
through. Jim has it all fixed now, thank you Jim.
All the caregiver posts of late were very interesting to me and opened my
eyes to the different stages we all go through.
I can pretty much care for myself, yet at times do need help with certain
things. When TM hit me, it was really hard for my husband and I to find a
comfortable place for our relationship. I didn't know where I would fit in
his life and he didn't know what he could do, if anything for me. It was a
really rough couple of years, but we persisted and made it through fine.
8 weeks ago, I had 5 bypasses done. This was a huge surprise to us both, I
didn't realize I was sick, and truly thought I had acid reflux for the last
year and a half. I am an extremely lucky lady, no heart attack, no heart
damage, just really clogged arteries. I must say that this time, we fell
right into step and he has been so great. This surgery was really hard for
me to go through. I had some problems during my hospital stay and the
restrictions placed on me when I returned home changed all of our lives. I
could not be left alone for a month, so my daughter quit her job so I
wouldn't be alone during the day. I could not drive until this week,
yippee!!! It put so many things in perspective for me. My husband took such
good care of me and never let me forget how much he loved me and wanted me
around.
If you have a caregiver, communicate with them, don't assume they know how
you feel or what you want. We all have only one life and it can be taken
from us so quickly. Let those you love know how much you love them and how
much you appreciate them.
Lori

[TMIC] TMA Newsletter

[Lori Biehler]

Hi all,

I felt so compelled to write after reading the first few pages of the
newsletter. Normally when the newsletter arrives, it sits on my desk for a
bit and then I slowly read through it and it takes quite a while for me to
finish it. This time, I set it on the desk and this morning I decided to
start reading and I couldn't put it down.

The story and the letters were so inspiring. 

This TM affliction affects all of us in totally different ways, yet there
are so many inspiring stories that we can all learn so much from. To imagine
that a gentleman in prison was able to love and nurture an animal and
receive so much of a loving, rewarding experience blows my mind! For Pauline
to have found such a perfect match for her, is totally unbelievable! These
people have come together and learned and grown so much from this
experience, it makes me tear up just thinking about it all. I do wish I were
better with the written word and could put all my thoughts and feelings down
on paper like they all did.

For anyone out there that is on the fence about going to the upcoming
symposium, go! It is a life changing experience and you will meet some of
the most awesome people.

For Pauline and Sandy, the picture of Pauline and Kazu, they look so great
together, it is one of those meant to be moments in my life. Thank you so
much for sharing this with all of us.

Lori

RE: [TMIC] Drug testing

[Lori Biehler]

NO, you would not fail the drug test because Marinol is synthetic THC and
they test for THC and Marinol is a LEGAL script so they won't fail you
because you have the script. You will show positive for THC, but you are
supposed to have that in your urine if you take Marinol. 

Lori

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 10, 2008 1:16 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Drug testing

 

  I wonder if a person was taking the medication Marinol, would they fail a
drug test while trying to apply for a job.





  _  

It's Tax Time! Get http://money.aol.com/tax?NCID=aolprf000301
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RE: [TMIC] Drug testing

[Lori Biehler]

Well, I do work and do get tested, it is no worse than someone taking
morphine, which shows up as an opiate, like heroine, so yes, it is legal and
if you get discriminated against for it, they are the ones in trouble not
you. I don't need either at this time, 10 years into this, I can deal just
fine with no meds at all, but when I needed it, it was there and 100% legal,
that is just how it is.

I do believe that eating correctly for your body and exercise helps me
enough to continue on with my life at a pace that works for me and my loved
ones.

I hope this helps you in some way.

Lori

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 10, 2008 2:19 PM
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] Drug testing

 

  With all due respect, That is nice fairytale thinking but you can almost
bet that if you are mixed in with several applicants and all the rest do not
test positive for drugs and you happen to light up the sky with your
adornment of drugs in the urine test .  Most likely the high probability of
your app. would be set aside.

  After all would they really want someone that shows positive for illegal
drugs that are pescribed legally? Think about it.

 

In a message dated 3/10/2008 1:55:40 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:

NO, you would not fail the drug test because Marinol is synthetic THC and
they test for THC and Marinol is a LEGAL script so they won't fail you
because you have the script. You will show positive for THC, but you are
supposed to have that in your urine if you take Marinol. 

Lori

 


  _  


From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 10, 2008 1:16 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Drug testing

 

  I wonder if a person was taking the medication Marinol, would they fail a
drug test while trying to apply for a job.

 


  _  


It's Tax Time! Get tips, forms and
http://money.aol.com/tax?NCID=aolprf000301  advice on AOL Money 
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  _  

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RE: [TMIC] marinol use

[Lori Biehler]

Gaylon,

I used Marinol on and off 1999 until around 2002 I think. It made me tired,
hungry and non functioning if I took it during the day. I equate it to
eating laced brownies in my youth, but too many of them. Smoking weed works
very well for me, but I only need to take one or two tokes and do not get
stoned to relieve the burning freezing and the muscle stiffness. I do
think that it works wonders when used appropriately.

Lori

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, March 08, 2008 5:18 PM
To: tmic-list@eskimo.com
Subject: [TMIC] marinol use

 

I've been researching Marinol andYes it appears that Marinol is the
alternative to the weed smoking situation.  I wonder if Marinol gives the
same euphoria effect as the actual intake of weed smoke?  

  Their is no way my Young Neurologist doctor would ever perscribe me
Marinol cause he want even give any pain medication scripts. Cause of
possible dependency and addictive problems with such medicines is what he
told me.

  The medical association must be preaching the none perscribing of
narcotics and other pain medicines very strongly to the New up and coming
doctors.





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RE: OT Re: [TMIC] Obama

[Lori Biehler]

Please do not be offended by some that don't understand how they hurt
others.

You are always welcome on this site, and your religious beliefs are yours
alone and you are welcome to practice them in our country.

I am a Vietnam era veteran, and I enlisted to protect our country and what
it stands for. People of all races, religions, sexual orientation, etc. are
what our country is about.

Lori 

 

  _  

From: sal r [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, February 19, 2008 4:15 PM
To: Cossy Hough; [EMAIL PROTECTED]; Tmic-list@eskimo.com
Subject: Re: OT Re: [TMIC] Obama

 

thankyou very much Cossy...i liked your comment because this article made me
very offended because i am muslim and people on tmic i thought suppose to be
a family.i am very bothered now

Cossy Hough [EMAIL PROTECTED] wrote: 

With the separation of church and state it shouldn't
matter. I am offended by the discriminatory tone in
this article, especially the idea that we are fighting
Islam. Are we not a nation of many faiths and
beliefs? Those differences are our backboneI make
my voting decisions based on factual issues, not on
racism or religious discrimination. 

Check your facts, too: 

http://en.wikipedia.org/wiki/Obama

He's a Christian..

--- [EMAIL PROTECTED] wrote:

 Think about this long and hard people. I found this 
 article I have attached, 
 it's Worth the read. I have to ask myself, if Obama
 is elected President, 
 will he take the oath of office on a bible or the 
 koran?
 _Media Matters - Schlussel: Should Barack Hussein
 Obama be president when 
 we a_ (http://mediamatters.org/items/20061225) 
 
 
 
 **Ideas to please picky eaters. Watch
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RE: [TMIC] wobble boards

[Lori Biehler]

Hi Sal,

Honestly I don't know. I have had TM for about 9 years and didn't start to
do any PT exercise until I had started to use a walker occasionally. I think
they started me on a trampoline, a small one that had a permanent bar across
it and a PT therapist was always by my side. It took years to get onto a
board and be able to hold it steady, but as long as I could move, I always
believed that I could get stronger and I did. Before my current illness, my
strength was better than a healthy female of my age group. I had 4+
strength, though now I am sure it is not there. As soon as they have me
straightened out again, I know it will come back in a few months with hard
work.

Good luck, you should work with a therapist to get started, they can tell
you what is working and what is the best way for you to go. Taking advice
from someone that doesn't know your body isn't the right way to go.

Lori

 

  _  

From: sal r [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 29, 2007 6:29 PM
To: Lori Biehler
Subject: RE: [TMIC] wobble boards

 

i am in a wheelchair, and am standing by hbolding on to something do u think
any of the equip your talking about would work for me?

Lori Biehler [EMAIL PROTECTED] wrote: 

I use a wobble board and started with one that the fin was only and inch or
two. The one I use now has a 6 inch fin. Also the soft balls with a halo
around them are great. I don't know what they are called, but they really
help to build the ankle muscles and calf muscles. I do notice that even
after 8 years of exercising for the damage done by my TM, if I don't
exercise for a few months, I go way back and need to build again. I stopped
exercising in May due to other health issues I am having and boy has my body
changed. We are hoping it will be safe for me to start again in the next
month or so and I can't wait!

Lori

 

  _  

From: sal r [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 29, 2007 2:18 PM
To: tm
Subject: [TMIC] wobble boards

 

has anybody tried a wobble board to help with their balance?

 __
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

 

 __
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Tired of spam? Yahoo! Mail has the best spam protection around 
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RE: [TMIC] wobble boards

[Lori Biehler]

I use a wobble board and started with one that the fin was only and inch or
two. The one I use now has a 6 inch fin. Also the soft balls with a halo
around them are great. I don't know what they are called, but they really
help to build the ankle muscles and calf muscles. I do notice that even
after 8 years of exercising for the damage done by my TM, if I don't
exercise for a few months, I go way back and need to build again. I stopped
exercising in May due to other health issues I am having and boy has my body
changed. We are hoping it will be safe for me to start again in the next
month or so and I can't wait!

Lori

 

  _  

From: sal r [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 29, 2007 2:18 PM
To: tm
Subject: [TMIC] wobble boards

 

has anybody tried a wobble board to help with their balance?

 __
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

RE: [TMIC] SSDI

[Lori Biehler]

Candis,

I received LTD from a private carrier and also SDI.

The payments you receive from your carrier may or may not be taxable. It all
depends on if you paid the premiums for the LTD, and if your company paid
them, if you paid income tax on the premium amount that the company paid on
your behalf.

My LTD company did not take any of my SSDI. Each policy and each company is
different. The norm is they reduce the amount of your LTD payment by the
amount your SSDI pays.

I hope this helps you. If you have any questions, feel free to ask.

Lori

 

  _  

From: Candis Kalley [mailto:[EMAIL PROTECTED] 
Sent: Friday, May 18, 2007 11:15 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [TMIC] SSDI

 

I am talking about SSDI as in disability.  

 

I already have Disability Insurance from my work.  The Insurance company has
a set of lawyers to push to get SSDI and also to push SSDI through because
the Insurance company will get all monies from the back pay of SSDI.  From
the  point where SSDI starts paying regularl, the Insurance co. will only
pay the difference between the policy amount and what I get from SSDI.

 

It has been almost 3 months since I first started the process along with the
lawyers.  I was surprised to see the money deposited because it has only
been 10 days since I sent in the 2nd set of questions.

 

 

 

Candis Kalley

[EMAIL PROTECTED]

EarthLink Revolves Around You.

 

 

- Original Message - 

From: [EMAIL PROTECTED] 

To: [EMAIL PROTECTED] 

Cc: tmic-list@eskimo.com; [EMAIL PROTECTED]

Sent: 5/18/2007 4:17:57 AM 

Subject: Re: [TMIC] SSDI

 

Are you talking about SS (as in retirement) or SSDI (as in for disability)?
If it's SSDI, they only pay monthly, after the 5th month of being disabled,
but you don't qualify until they're satisfied that you're disabled for one
year or that the disability is permanent.  However, they will start paying
your regular SS payment while you're waiting to be deemed 'qualified'.

I ask b/c I'm trying to understand in terms of where I am in my applications
- and wondering if I've missed something.

Sally

RE: [TMIC] Re: tmic-digest Digest V2007 #22

[Lori Biehler]

Hi Pam,

I don't know whether to say you are lucky to know what caused your TM, so
you can avoid anything that will make you sick, or what to say. I don't have
any type of rheumatoid illness and in December I was tested fully for a ton
of illnesses. It ruled out everything they can think of and I was told that
I am an extremely healthy 50 year old woman with above normal strength, yet
my CNS is affected in such strange ways. Temperature control is an issue
that I struggle with constantly and exercise does not help that. I did get
my strength back, plus some, but using it the way I want, well that is
something I work on all the time and it is getting better. It is a long
process because I don't build muscle like an able bodied person, but I do
build it and can maintain it as long as I exercise.

I wish you well and hope that you will find many things that help you feel
better and function at the level you are striving for.

Lori

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, January 19, 2007 1:53 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Re: tmic-digest Digest V2007 #22

 


TO LORRI JENNA AND KATHRYN,,

  I AM GLAD THAT WHAT YOU DO HELPS. I HATE THE MEDS AND THE SIDE
EFFECTS.

OUR BODIES OR ALL DIFFERENT AND WE ALL REACT DIFFERENTLY.

MY SITUATION IS MORE COMPLICATED. I KNOW I HAVE A AUTO IMMUNE DISEASE A FORM
OF LUPUS THAT MAKES MY BLOOD CLOT. A CLOT WENT TO MY SPINE AND IF I GET A
INFECTION MY SPINE IS ATTACKED AND MY LEGS CAN STOP MOVING.

I CANNOT TAKE A ONE A DAY MULTI VITAMIN TO MUCH VITAMIN K, IT THROWS OFF MY
PT AND INR COUNT. I HAVE TO WATCH WHAT I EAT SOME FOODS HAVE TO MUCH VITAMIN
K ALSO.

I JUST STARTED B-12 SHOTS I WILL SEE IF THAT HELPS ME. THE FISH OIL I WAS
TAKING BUT SAME OLD STORY TO MUCH VITAMIN K. I LOVE GREEN TEA NOW I CANNOT
HAVE THAT. I DO DRINK CRANBERRY JUICE OR TAKE THE PILLS. A NURSE IN MY
DOCTORS OFFICE WAS SELLING SOME OF THE THINGS YOU WHERE TALKING ABOUT. SHE
GAVE ME A TAPE AND TOLD ME NOT TO TELL ANYONE. I WATCHED THE TAPE AND IF I
WHERE TO TAKE WHAT SHE WANTED ME TO IT WOULD OF REALLY THRU MY BLOOD COUNTS
OFF.

I WAS HESITANT TO TELL MY DOCTOR BUT WHEN I WENT TO THE HEALTH STORE AND
REALLY READ UP ON SOME THINGS THAT YOUR TAKING COULD REALLY HARM ME.

I TOLD MY DOCTOR AND HE WAS FURIOUS. HE SAID SHE WAS DOING IT TO OTHER
PATIENTS AND THEY COULD NOT HAVE HER HARM ANY OF HIS PATIENTS. I DID NOT
EVEN HAVE TO TELL HIM HER NAME. I GAVE HIM THE TAPE I WAS THE FIRST ONE SHE
GAVE A TAPE TO, THE OTHERS JUST PAMPHLETS. WELL THEY FIRED HER. I FELT BAD
BUT SHE DOES NOT KNOW ME AND MY SITUATION. I ALSO EXERCISE AND I LOVE IT. I
WAS A DANCER AND TAUGHT TILL TM HIT ME AT 41 I AM NOW 55. I HAVE A SMALL GYM
IN MY HOUSE SO I WORK OUT AND I LIKE POOL PT THE BEST. I DO NOT TAKE PAIN
PILLS BUT I LIVE IN PAIN ALL THE TIME. I USE RELAXATION TAPES SIT IN NICE
WHIRLPOOL AND JUST RELAX I LITE CANDLES LISTEN TO MUSIC. I HAVE THE CANDLES
THAT HAVE NO REAL FLAME. THEY OR GREAT I GET THEM FROM QVC. 

I TRY THINGS THAT I KNOW IS SAFE FOR ME. I WISH I COULD TRY SOME NATURAL
THINGS THAT WORKED. I HAVE NEVER SMOKED IN MY LIFE AND I WOULD NOT START
NOW. I WANT TO FUNCTION AND KNOW WHATS GOING ON IN MY LIFE. WE ALL HERE IN
LA OR STILL GOING THRU A ROUGH TIME AND THE STRESS WAS GREAT. MOST OF MY
FAMILY IS GONE THEY LOST EVERYTHING AND I GET DOWN BUT IT COULD BE WORSE I
ALWAYS SAY. NOW THE SAINTS IS THE FOCUS HERE. IT WOULD REALLY BRING SUCH JOY
TO EVERYONE AND ALSO HELP OUR CITY. I LIVE 30 MINUTES OUTSIDE OF NEW ORLEANS
BUT GREW UP THERE.

I WISH YOU ALL THE BEST AND WHAT EVER HELPS YOU I SAY GO FOR IT. I TRY
DIFFERENT THINGS BUT I HAVE TO ASK MY DOCTORS BEFORE I TAKE ANYTHING. I AM
DECREASING MY NEURONTIN. I TAKE 900 MGS A DAY I WOULD LIKE TO GET OFF OF IT
ALL TOGETHER. I HOPE I CAN I DO HAVE NEUROPATHIC PAIN.THIS IS MY DILEMA. I
DO KNOW WHAT CAUSED ME TO GET TM AND I AM VERY GRATEFUL FOR THAT. 

PLEASE EVERYONE DO WHAT HELPS YOU AND KEEP US INFORMED. I AM INTERESTED IN
ANYTHING THAT CAN MAKE ME BETTER THAN I AM.

   GOOD LUCK TO YOU ALL

 SINCERELY PAM 

 

RE: [TMIC] medications and supplements

[Lori Biehler]

Hello to Jenna and the list,

I really hate reading all this crap being spilled about how this cannot work
for you or how you want to make money. I will tell the list how I feel and
how I have been doing and what is helping me.

I have been on the list since, 1999 and usually in the background these past
few years. After Doc died, I really had a hard time with some people on the
list and that was my problem, not anyone on the lists fault. Just some
things I had to get over.

I was struck with TM in July of 1998 and I have been a patient of Dr. Kerr's
since 2000, when his practice began and he agrees 100% with my treatment
plan for me, not for everyone, but for me. I was on baclofen, neurontin,
marinol, etc. I think I have tried them all and the side effects from all of
them made me feel terrible. I am a very lucky lady with my progress and my
lack of progress. My TM hit at C2 and at T3 and T6. If you were to see me, I
look totally normal and am able to do so many things that even two years ago
I couldn't. What do I do? Well, I don't take any meds at all. I hate the
nasty feeling as I call it, but I prefer to feel that and function. Does
smoking a bit of weed make it go away? Oh yes, instantly, but I prefer not
to live my life stoned. Marinol made me stoned, even on the smallest dose,
so that was my choice and I am not against anyone smoking for any reason,
their choice, and their body. As for my procreoception and lack of muscle
strength, well I exercise and for me, the worse and weaker I feel, the more
I work out. I have above normal strength now for a woman of my age and it
has helped me immensely. I read on here all the time to take it easy and let
your body heal, well I believe that after the initial 6 months or so,
working until fatigue is not a bad thing. I don't work to fatigue every time
I work out, but I do about once a month and after a nap, I am fine. I do
feel muscle pain at certain points and to me, that is a good feeling. I know
if I feel muscle soreness on my left, my right side worked also. It has
worked for and continues to do so. Building muscle hurts the able bodied,
why should we be different?

I also see a neuro in NJ and after 8 years, my babinsky, not sure if that is
spelled correctly, is no longer positive and he can't explain it. I have to
tell you that my neuro here is a Doogie Howser type of man. He is extrememly
young, and Columbia trained, so he isn't a slouch and he concurs with
everything I do. I do take B12, and my B12 levels are totally normal, yet
after a shot, my nerve pain goes almost totally away and medically, there is
no reason for this. Do I care that there is no reason? No way, as far as I
am concerned, it helps me that is all that matters.

I also read on here that we shouldn't boost our immune system, well I am not
so sure about that. Again, this is my opinion and how I live and believe. So
many of us are idiopathic, I don't know that I have an autoimmune disease
because TM is a symptom, not a disease. I believe that possibly my immune
system was whacked, not weak, so I keep mine very strong with the food I eat
and don't eat. I don't want it weak, I want mine strong and working and this
works for me. There are other supplements that I take as needed, such as
lycine, but I won't go into the list on here because we all have different
issues and different needs.

Jenna, go for it. If it works for you, I want to thank you for telling us
all about it. I find it extremely interesting and because it helps you, it
interests me. I prefer anything natural over meds. I do believe that some
people absolutely need medication, but I also believe that there are many,
many other things out there that can help us also and we all can make our
own decisions as to what we need and want and the more information we share
with each other the better for everyone.

Well, I am done and off my bully pulpit.

Lori

 

  _  

From: Jenna Stentz [mailto:[EMAIL PROTECTED] 
Sent: Thursday, January 18, 2007 12:20 PM
To: Kathryn Keen; TM List
Subject: Re: [TMIC] medications and supplements

 

Good Afternoon all,

 

I apologize if you misunderstood.  I was not attempting to sell something.
That was not my intention.  I have not posted about this since my
improvement had really been taking off in September, for fear someone would
misunderstand.  My improvement has been so substantial that I felt sharing
this could help some of you suffering from TM symptoms.

 

I have not implied this will cure anything, only that my experience with
glyconutrients is that it provides the necessary nutrients for my body that
has allowed my cells to properly communicate and my body has begun to
repair.  I really wanted to share my experience with these technologies
since lately there have been so many posts on the list from people in so
much pain and suffering from the symptoms of TM and MS and I no longer have
these symptoms.  They are not being masked by drugs anymore they are
actually gone.  I feel like I 

RE: [TMIC] TM SURVIVORS

[Lori Biehler]

That is so great Bob, thanks for sharing.

Lori

 

  _  

From: ROBERT COOK [mailto:[EMAIL PROTECTED] 
Sent: Monday, December 04, 2006 9:44 AM
To: TMIC
Subject: [TMIC] TM SURVIVORS

 

 

 

 

SPECIAL POEM FOR TM SURVIVORS


A row of bottles on my shelf
Caused me to analyze myself.
One yellow pill I have to pop
Goes to my stommach so my bowels stop.
A little white one that I take
Goes to my hands so they won't shake.
The blue ones that I use a lot
Tell me I'm happy when I'm not.
The purple pill goes to my brain
 And  tells me that I have no pain.
The capsules tell me not to wheeze
Or cough or choke or even sneeze.
The red ones, smallest of them all
Go to my blood so I won't stumble or fall.
! The orange ones, very big and bright
Prevent my leg cramps in the night.
Such an array of brilliant pills
Helping to cure all kinds of ills.
But what I'd really like to know...
Is what tells each one where to go!

 

If you can read this, thank a teacher - 

and, since it is in English, thank a soldier. 

RE: [TMIC] I need all of your help!!

[Lori Biehler]

Ami,

Kessler Rehab hospital is in West Orange, NJ. It is where Chris Reeves
rehabbed. I believe that would be about 3 hours away from where you are.

Lori

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, November 14, 2006 9:40 PM
To: tmic-list@eskimo.com
Subject: [TMIC] I need all of your help!!

 

Hey everyone!! Its Ami.  Sorry I haven't posted in a while.  Thinks are
going ok for Mike.  Not a huge amount of progress, but every little bit
moves us one step closer to recovery.  He has been moved from a spinal cord
rehab facility to a nursing home.  Here lies the problem.  The home is not
(as you can well imagine) giving him the therapy he so desperately needs.
Last week he visited his doctor at Johns Hopkins who wrote a letter
insisting he be moved to a chronic care facility for rehab.  This is where
you all come in.

 

I am not the most knowledgable person when it comes to the internet.  I have
googled spinal cord rehab facilities.  He moved from Kernan Hospital in
Baltimore, so him going back there is out of the question.  We are looking
for somewhere in south central pa, western maryland or northern west
virginia (anywhere within a 100 mile radius of Hagerstown, MD).  If any of
you could help me comprise a list of centers that we could possibly move him
to, I will be so grateful.

 

Hope this message finds all of you in high spirits!

 

God Bless all of you,

 

Ami


 

  _  

Netscape.  Just the Net You Need.

[TMIC] Gunny's Address

[Lori Biehler]

Would someone please 
send me Gunny's email address? 
Thanks,
Lori