Thank you. It's nice to be remembered.
Roger Pratt in Kennewick, WA
From: Pat Cooley
To: Barbara H.
Cc: tmic
Sent: Monday, December 2, 2013 10:52 AM
Subject: Re: [TMIC] December Birthdays
HAPPY BIRTHDAY TO ALL THE CHRISTMAS BABIES.
On Mon, Dec 2, 201
Yes, Roger in Kennewick, WA
From: Janice Nichols
To: heyjude48...@aol.com; tmic-list@eskimo.com
Sent: Thursday, May 2, 2013 1:46 PM
Subject: Re: [TMIC] Re: Attention -The TMIC List
Sorry I am late to respond. Maybe we could
ask all who read/respond to o
's just my hope that all my TM, MS, and other
auto-immune diseases (syndromes?) friends can find ways to cope and hopefully
get better.
Roger in Kennewick, WA
From: Pat Voorheis
To: Roger & Terese Pratt
Cc: Janice Nichols ; dee jay ;
"&qu
Anne,
I have had TM for over 19 years, with a secondary attack in 2010 that resulted
in peripheral nerve damage. I am on Lyrica, Cymbalta, Zanaflex, and Tylenol PM
for the TM stuff, other meds for high cholesterol and acid reflux. While the
meds help some, I find that I just need to stay as p
Janice, My wife has worked for Social Security for the past 18 years and has
been aware of others in our area of Washington that have gotten TM as follows:
AGE: 12 - 3 people
20's - 1 person
40's - 2 people (one of them me)
Roger in Kennewick, WA
Fro
Jeff, I have had TM for 18+ years and yes I have this problem (and I am not
paraplegic, just have nerve damage). When I have asked doctors about it they
look give me a blank look, suggest Viagra and then talk about something else.
I have never heard of something that will resolve it. Maybe so
John, I love your sense of humor! - Roger in Kennewick, WA
From: john snodgrass
To: transverse myelitis
Sent: Friday, January 25, 2013 9:32 AM
Subject: Re: [TMIC] Internal Thermometer
i know the feeling..pun intended
From
This was more of a problem when I first was attacked by TM, but I still have
decreased sense of hot and cold on my right side. One thing that has been a
mystery to me is that I now seem to sweat a lot with any increase in activity.
Why this is strange is because when I first got TM I didn't sw
I too have trouble reading. I find that I tend to speed read (skim). I used
to love to read, but now I get audio books so I can slow down. - Roger in
Kennewick, WA
From: Cindy McLeroy
To: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com
C
First of all, let me say to Jude that I am really sorry to hear about Dave. My
prayers are with you.
Stress - what a difficult topic. As I mentioned in a previous e-mail, I have
gone through 3 different illnesses that I believe are all related (auto-immune
problems). All I can say is that st
My doctor has prescribed Zanaflex, which is a muscle relaxant. Check with your
doctor, but this might help. - Roger in Kennewick, WA
From: Susan Kleinz
To: I Whiddett
Cc: "heyjude48...@aol.com" ; "pjv1...@chartermi.net"
; "malugss...@gmail.com" ;
"patticoo
Thanks, Janice. - Roger in Kennewick, WA
From: Janice Nichols
To: tmic
Sent: Thursday, December 13, 2012 9:44 AM
Subject: [TMIC] Fw: AWESOME CHRISTMAS CARD
TO ALL OF MY BEST FRIENDS DEALING WITH THE SAME DISEASE I
HAVE. WE HAVE SO MUCH IN
"Here are a nice pair of socks. You'll get more for Christmas. Don't worry."
Ah,yes, the two-for-one presents. I also got told that I was lucky that they
put up all the pretty lights for my birthday.
But I always thought the having a birthday so close to Christmas was neat. -
Roger, in Kenne
Jim, I congratulate your bravery. Good luck making it happen. - Roger in Kennewick, WAFrom: Janice Nichols To: James Berg ; tmic-l...@eskimo.net Sent: Sunday, August 12, 2012 5:14 PM Subject: Re: [TMIC] Fwd: The Great Swimming/Diving Adventure
Okay – you gave it a great try. No
Yes, Happy Birthday from me, too. August is a wonderful month. Two of my kids
were born on August 3rd, 7 years and 1 hours apart. - Roger in Kennewick, WA
From: Pat Cooley
To: Barbara H.
Cc: tmic
Sent: Wednesday, August 1, 2012 7:07 AM
Subject: Re: [TMIC]
I had a terrible cramp in my shin last night in the middle of the night as a
result of my water exercises earlier in the day. I tried this and it worked
great! Roger in Kennewick, WA
From: Janice Nichols
To: Bridget Skinner ; tmic-list@eskimo.com;
msersl...@
I looked it up, and it doesn't seem to have any long-term effect. I know
chiropractors use it. It might be good for short term relief and they suggest
that heat may work as well. I'm interested as to what others may have to say.
- Roger in Kennewick, WA
Fr
My welcome back to Rick, also. It's good to hear from you, Linda, and all. My
lesion in C2-C4 and I have numbness in my hands, tremors occasionally, and
sometimes even muscle spasm type seizures. They are very disconcerting, but
usually are stopped by muscle relaxants. I have had TM for 18 y
Thanks, I need that, even if it isn't my birthday!
Roger in Kennewick, WA
From: Elizabeth Clark
To: 'tmic'
Sent: Thursday, July 5, 2012 7:22 PM
Subject: RE: [TMIC] July Birthdays
HAPPY BIRTHDAY!!...
HOW TO
STAY YOUNG ~
1. Throw out non-essential numbe
I had one full seizure and many, many mini-seizures (didn't pass out, just lots
of muscle spasms and trouble talking)for 2 years before I was diagnosed with
TM. I can still have them only very occasionally when I get really tired.
Medication does help and they usually don't happen until late e
ME TOO! Although the Lyrica makes my thinking fuzzy, I really hate the "Roman
candle" or as I put it, "The demon with the taser gun". I have tried so many
medications, and all of them either don't work or have really negative side
effects. Hot and cold effect me too, either lots of fatigue or
I wish this was only a female problem. I've had TM for 18 years. I used to have
to take pills just to be able to go, and although I have gotten enough better
not to have to take the pills, not having my bladder work right still continues
to be a problem. TM has also terminated my sexual function
Thanks, Gary. Most people have not even heard of autoimmune disorders. - Roger
in Kennewick, WA
- Original Message -
From: "Gary Thomas"
To: tmic-list@eskimo.com
Sent: Wednesday, May 9, 2012 7:36:08 AM
Subject: [TMIC] Fw: Automimmune disorders
- Original Message -
From:
James, I thought maybe you had unsubscribed. Good to hear from you. We
are all still out here, just some days are better than others and we don't
post that much anymore. Roger in Kennewick, WA
_
From: James Berg [mailto:molokai...@gmail.com]
Sent: Tuesday, March 27, 2012 1:12 P
Unfortunately, yes. Muscle spasms, including full body ones, just seem to
be part of the territory. - Roger in Kennewick, WA
_
From: James Berg [mailto:molokai...@gmail.com]
Sent: Wednesday, January 25, 2012 12:55 PM
To: transverse myelitis
Subject: [TMIC] Squeezes
Recently I ha
I just did select all, then copy, and pasted it into a word document. -
Roger in Kennewick, WA
_
From: Gary Thomas [mailto:gbthomas8...@sbcglobal.net]
Sent: Tuesday, January 24, 2012 7:59 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] 35 Things you probably don't kn
Thanks. I'll be 62 on the 23rd. Wait, what were we talking about? Oh, well, happy birthday to all the other December kids. - Roger in Kennewick, WA
- Original Message -From: "L T CHERPESKI" To: "tmic" , "Barbara H." Sent: Friday, December 2, 2011 8:59:51 PMSubject: Re: [TMIC] December Bi
John, you are sure right about no answers for fixing nerve damage (other than,
hopefully you'll get used to it). - Roger
- Original Message -
From: "john snodgrass"
To: "Jeron Rampersad" , "r c pratt"
Cc: tmic-list@eskimo.com, xbeecla...@gmail.com, skle...@cox.net
Sent: Monday,
Sometimes I think that doctors don't have a clue! - Roger in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "Elizabeth Clark" , "Susan Kleinz"
Cc: tmic-list@eskimo.com
Sent: Monday, October 31, 2011 2:33:40 PM
Subject: Re: [TMIC] CBS
I dont mean to sound pouty
You are not the only one with a weak mind. - Roger in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "PAMELA S" , pjv1...@chartermi.net, "TMC Group"
Sent: Thursday, October 20, 2011 3:14:38 AM
Subject: Re: [TMIC] shingles vaccine
I have a weak mind, I hope all
In my case, add soy ice cream. - Roger in Kennewick, WA
- Original Message -
From: rn11...@yahoo.com
To: "tmic"
Sent: Thursday, October 6, 2011 9:30:50 AM
Subject: [TMIC] OFF TOPIC;when in doubt
When in doubt eat cake.
When you haven't a clue,add ice cream.
Cheryl
Barbara, You were one of my first "friends" online. I too have had TM for
16-17 years and now I have mononeutritis multiplex, another autoimmune
condition that effects peripheral nerves. Knowing that I have friends out
there, even if we don't post that often, means a great deal to me. - Roger
Jeron, I enjoy seeing your posts on facebook, but you are right, this is the
best place for TM conversations. This is our TM family and I find it a great
support. - Roger in Kennewick, WA
- Original Message -
From: "Jeron Rampersad"
To: bpe...@austin.rr.com, cherp...@msn.com, tmic-list
You are right, the key is to keep it to "sometimes" - Roger
- Original Message -
From: "john snodgrass"
To: "Elizabeth Clark" , "Roger & Terese Pratt"
Cc: "tmic-list"
Sent: Wednesday, August 17, 2011 1:02:21 PM
Subject: Re: [
Right on!!! - Roger in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "pat cooley" , "Janice Nichols"
, "kevin weilacher"
Cc: "Roger & Terese Pratt" , "tmic-list"
Sent: Wednesday, August 17, 2011 9:20
Thanks, pushing on! - Roger in Kennewick, WA
- Original Message -
From: "Elizabeth Clark"
To: "Roger & Terese Pratt" , "tmic-list"
Sent: Tuesday, August 16, 2011 2:19:30 PM
Subject: RE: [TMIC] Definition
Roger,
It all depends on your perspective...
Guess I better just go with God. Thanks Dalton
- Original Message -
From: "Dalton Garis"
To: "Roger & Terese Pratt" , "tmic-list"
Sent: Tuesday, August 16, 2011 8:12:55 PM
Subject: Re: [TMIC] Definition
"God is dead." - Nietzsche
This is how I feel some times as an invalid (or is that invalid as in not
valid). I know it is wrong, but if Nietzshe said it, it must have been thought
many times before. Just having a bad day, I'll be more up tomorrow.
"The invalid is a parasite on society. In a certain state it is indecent
After a very enjoyable week spent in Alpine, UT with my daughter, son-in-law,
and granddaughter I went to my neurologist. He said that he thought I was
progressing really well, was walking better, and complaining less about pain.
Less than a week later, everything seemed to go to hell in a han
gs. - Roger in Kennewick, WA
- Original Message -
From: "Bernie Pelow"
To: "Roger & Terese Pratt"
Sent: Sunday, July 24, 2011 9:31:32 AM
Subject: Re: [TMIC] aahh!
Is the new disorder Guillame Barre'?
Bernie in Texas @ 110 degrees outside!
Jeron, It's easy to get caught into our own personal problems. I have
contracted a 2nd autoimmune desease, this one in the peripheral nerves, and
haven't really gotten a handle on the pain yet. Whine, whine. Now I feel a
little better. - Roger, in Kennewick, WA
- Original Message -
I wish I couldn't empathise. - Roger in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "transverse myelitis"
Sent: Monday, May 23, 2011 7:13:45 AM
Subject: RE: [TMIC] Bladder/Spasms
sad part about my nerves coming alive is that it turned numbness into pain.
pain that i c
It all depends on the weather. Weather I hurt or weather I don't. (But I
usually do.) - Roger in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "James Berg" , "Dalton Garis"
Cc: "transverse myelitis" , tmic-digest-requ...@eskimo.com
Sent: Wednesday, April 27, 2011 9:47:
Just wait until you get the gremlin with the stun gun that keeps shocking your
feet. One day I'm going to get him in my sites and blow him away.
- Roger in kennewick, WA
- Original Message -
From: "john snodgrass"
To: "transverse myelitis"
Sent: Wednesday, April 13, 2011 7:27:38 AM
Su
Yes they are taxed, but not as much as regular income. I am on SSD.
- Roger Pratt in Kennewick, WA
- Original Message -
From: "john snodgrass"
To: "transverse myelitis"
Sent: Friday, April 8, 2011 2:07:57 PM
Subject: [TMIC] disbaled social security benefits
to anyone receiving disabl
Jude, I too am sorry that you've been back in the hospital, but it is good to
see your post on the list. I too have had a difficult year. After 16 years
with Transverse Myelitis I developed a new autoimmune disease, Mononeuritis
Multiplex that attacks peripheral blood vessels and nerves. I've h
I've had TM for about 16 years (lesion found at C-2 through C-4). Last
February I started having new symptoms, swollen feet, fingers going numb, more
pain in my hands, feet and legs. My regular neuro did lots of MRIs thinking it
was TM recurring. She finally sent me to a neuro that specialize
I second this message, and just hope none of you get a second autoimmune
disease like I did this year.
Roger, Kennewick, WA
- Original Message -
From: rn11...@yahoo.com
To: tmic-list@eskimo.com
Sent: Friday, December 31, 2010 10:12:53 AM
Subject: [TMIC] O.T. Happy New Year
HAPPY NEW YE
Saroj, So good to see your name again. All my best to you and all my TM
friends.
Roger, Kennewick, WA
- Original Message -
From: "Saroj Kumari"
To: "tmic-list"
Sent: Thursday, December 23, 2010 10:13:34 PM
Subject: [TMIC] Merry Christmas & A HAPPY NEW YEAR
Hi all my friends
Wis
My e-mail has changed to r.c.pr...@frontier.com
Thanks for the birthday good wishes,
Roger Pratt from Kennewick, WA
- Original Message -
From: "Barbara H."
To: "TMIC"
Sent: Thursday, December 2, 2010 5:11:04 AM
Subject: [TMIC] December Birthdays
Happy Birthday to the December kids!
Best of luck, Dalton!
- Roger in Kennewick, WA
- Original Message -
From: "Dalton Garis"
To: "L T CHERPESKI" , "Janice Nichols"
, "j dunn" , tmic-list@eskimo.com,
"Barbara Alma"
Sent: Monday, September 13, 2010 6:08:32 AM
Subject: Re: [TMIC] Medications
I am now going to be tested fo
Hi, Roger Pratt here. I haed "seizures" for two years before I was diagnosed
with TM. Once I was diagnosed, they said that they were "spasms, muscle
tremors, results from pain, etc., etc." and that I really didn't have epilepsy,
which was good because I had been allergic to every seizure medic
I seem to have a slight dificiency which my doctors can't explain.
Roger in kennewick, WA
- Original Message -
From: "Carol E"
To: tmic-list@eskimo.com
Sent: Wednesday, September 1, 2010 7:53:33 PM
Subject: [TMIC] Iron Defensiency
Does anyone have iron deficiency as a result of the TM or
For me it is also the numbness and constant pain. I'm sure the medications
don't help either. I think my brain is on constant overload. (Now what was
I saying?)
Roger, in Kennewick, WA
_
From: fr...@franksheldon.com [mailto:fr...@franksheldon.com]
Sent: Sunday, August 29, 2010
Craig,
Following is a list of all the drugs I take:
Heart Related These are because of high cholesterol and triglycerides
(sp?)
Tricor145mg (at breakfast)
Zetia
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