In a message dated 7/12/2007 9:27:47 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
This group and the sharing of personal problems and solutions has helped me
the most.
Members,
This sentence written by one of our TM'ers is the reason why your stories are
so important to my writing
Now there is a title for us TM'ers - hand tailoring but instead use TM
tailoring!
As usual, I hate to sound stupid,..But I don't get it. Someone please
enlighten me.
Thank You,
Jude
** See what's free at http://www.aol.com.
Hmmm...Hildred is stockpiling potty chairs in her driveway because the supply
company keeps sending her chairs that are too large for her bedroom.
Just how many Pretty Potty Planters do we need to hand Paint and Plant to
make her driveway beautiful?
Who is going to volunteer Pretty Painted
Add to the list, one towel drying rack from our esteemed atty in Texas.
C'mon you guys...you can do better than this...
I'm telling you, the prize will be worth every minute you put into the
thought and email.
Love Ya,
Jude
** AOL now offers free email
In a message dated 2/20/2007 2:01:48 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
hyperbaric medicine
I was wondering the same thing, after seeing it on tv.
Jude
New laptop still not here...too many bed sores to be up and using this
desktop.
Love ya,
Jude
Thank you Bob and Bobberino for keeping us updated and I like the way you
described what the real ebay address looks like.
By the way, did anybody miss me?
Jude
II have had extreme banding since the onset of my TM. Recently, I have had
it around my legs and thighs, brought on by two huge dicubitus ulcers on my
bum. It is a totally different feeling than spasms.
Spasms feel like tight muscles and banding feels like something is wrapping
itself around
Regarding those Puppies...
Yes, but have they ventured out of doors to see if they see their own
shadows?
Peace,
Jude
Why is it that I fall for all of this stuff? I apologize for cluttering
up the List. Sorry.
Jude
Off Topic, but important. Pass it on to your family and friends...sounds
kind of serious.
---BeginMessage---
-- Forwarded Message --
Return-Path: [EMAIL PROTECTED]
Received: from mx07.lax.untd.com (mx07.lax.untd.com [10.130.24.67])
by maildeliver14.nyc.untd.com
But when I saw the pharmacist that's been advising me, he questioned it.
Hello All,
You know, when it comes to medications, supplements and drugs that we put
into our bodies, I believe it is the Pharmacists that have it way over the
Doctors. I mean, drugs and how they affect
When I get settled in with my new Internist and decide if I want to stay
with her, I want to go to a drug rehab place and get myself taken off the
majority or all of the pills that have been prescribed to me since the onset
of my
TM.
I am sick and tired of putting all of these
Hello Mark,
How sorry I am to welcome you to the TM Internet Club, but how glad I am
that you have found us, and we, you. TM is one terrible disease that has many
diverse effects and is better in some than others. There are as many forms of
medications as there are forms of the
Hello All,
It's me again, complaining with my continuous woes. I am so sick of this!
Does anyone out there know what causes the response, in some of us, known as
spasms? I have had them, hard, from day one--around my abdomen. It feels
as though someone is fastening me into a
Am on Baclofen as well as Valium...have seen the doc and ICU. Help me,
someone.
J
But -- the point of these posts was to celebrate that there is a way to
obtain stem cells without using embryos, not to bring up all those old
arguments
again.
(http://www.mymailstamp.com/?partner=ZMzeb001)
Sage advice from a longtime member. We
There is a company, StemCalls, Inc. doing human trials in children as I
write ( I have no financial interest in this company).
Frank, do you believe that most of the research and trials will be done on
the younger patients and that we, in mid-later life, will be left out in the
Number 3 from Michigan is here to announce her participation by making a
donation for research.
Making a donation, as much as you can afford to give, not only helps Jim,
but in the long run, helps ourselves.
Remember that giving is better than receiving especially at this time
Sharing this page at Grandma Faith's Website. Check it out.
_http://members.shaw.ca/grandmafaiths/desiderataII.htm_
(http://members.shaw.ca/grandmafaiths/desiderataII.htm)
Christmas Love,
Jude
LDN (Low Dose Naltrexone) ? What is it?
I see that several of you are having good results, less pain and less
banding, but why am I hearing of it all of a sudden, and why, Natialie, was
your
doctor so reluctant in prescribing it to you? Is this drug something one can
get over
If you contact someone at Translational Pain Research
which is a department at Brigham and Women's Hospital, a part of Harvard
University in Boston and explain your pain to them, they may have some idea of
what to do to help you.
They do all kinds of Pain Research for chronic pain
I wish that we, in Michigan were closer to you
Carol, but it's 5 hrs. driving from my front door to downtown Chicago. I do
not have the energy to begin a group in Michigan and we are spread pretty
far apart across the State, but maybe somebody out there is willing to pick up
the
The Scooter Store is advertised on television all of the time. They sound
like they stand behind their product and will help people with paperwork, etc.
They take Social Security benefit packages and will come to the home with
scooters to make sure the person gets the best scooter
Hi Leila,
1. Because of the fact that some cases of TM have thought to have been
caused by viruses, I do not think it is wise to induce even minute doses of
viruses into my already compromised body. I will not and have not gotten a
flu shot since becoming ill with TM.
2.
Title: AOL Email
Grace and I were very close at one
time. I don't know what happened, but she quit answering or
acknowledging my emails some time ago.
I still try every once in a while, but to no avail. Has
anyone had luck? Will others
Title: AOL Email
This is pretty
funny!
---BeginMessage---
--
And the next time you get ready to forward something, think about this!
I must send my thanks to whoever sent me the one about rat poop in the glue
on envelopes because I now have to use a wet
Title: AOL Email
Hi Sandy and Terry,
How fortunate that everything went well with the surgery and
that you are feeling so good, Terry. Hey_send one of those steaks my
way, I need the protein.
What is osteonecrosis? Is it as it
Title: AOL Email
Your 2 cents is worth a nickel any ole'
day!There is so much to think about, and so many medications/supplements
to take. I take pills round the clock so that I won't have too much
in my system at one time. Take all of my
Title: AOL Email
Why is it that I hear over and over from
TMIC members, that they have not been told the whole truth about their
dx's andmedications, because their doctors have such limited basic
medical understandings of certain illnesses?
Title: AOL Email
Thank you my dear Natalie. I needed
to hear that! Sometimes, I feel so fragile and don't know how
careful I have to be now, I don't know what to do. Guess I'd better
get myself to the Orthopedic and see what he will make to protect
Title: AOL Email
I don't know what to say at this point,
because my pain patches haven't been working that well and she thinks it
may be the change from Neurontin to Lyrica.
At the same time, she is taking me off of the Fentanyl patch
Title: AOL Email
Wow Margie,
While our pain is not "all in our heads" there is something
to be said for the brain/body connection.
We, with diseases of continual pain among other things, fall
prone to a deep depression caused by
Title: AOL Email
Hi Lynn, my dear
friend...
When I first switched to Lyrica it took me about three times
before I was able to make it through the whole regime of titering off of
the Neurontin while getting onto the Lyrica. The pain was
Title: AOL Email
I feel like I am acting like a big bitch
(sorry if I offended anyone) . How do people find their way onto the
TMIC List? Don't they know where to go to find out how to
unsubscribe?
I am so tired of emailing people to
Title: AOL Email
Please don't let my witchy email turn you
off. This site is made up of wonderful caring and sharing people
dedicated to helping one another, and normally I am one of
them.
I am having a bad night and will write a
Title: AOL Email
Lynn,
You are so kind. I have made myself
feel like an ass, again. I was feeling "twitchy" and took it out on
"unsubs."
Thanks for doing a job that no one thanks you
for.
Peace,
Jude
Title: AOL Email
Good evening all,
Thanks for the words of encouragement at a time when I might
not deserve it.
Actually, things are looking up for me for a change. I
go in this week to have the last cast taken off and a new
Title: AOL Email
Kathleen,
It's so sad to hear that another one of us is experiencing
family difficulties when it comes to our having TM. I just "lost"
the member of my family, my eldest niece, to whom I felt the most
close.
Title: AOL Email
If Frank walked into a bar with his own German
beer mug at his side, he would be known as:
Frank stein
Jude
Title: AOL Email
Hello my Christian
friends,
I was recently introduced to a site where I believe God has
taken a part in it's development. I have had the pleasure of
partaking of one of the CD"s sold in their online store (a very small
Title: AOL Email
Mary Eden has not posted in a while, and
neither has Grace, who had moved in with a friend in
Chicago.
When I don't post it is usually because I am in a bad way,
either physically, mentally or both.
Title: AOL Email
Wow, I was gone from the List for a short
time and World War III !
There hasn't been this much excitement on the List for
ages! Not since Kevin and I got into it over something equally
stupid and caused a huge ruckus!
Title: AOL Email
Hi Newbi,
Why don't you start with the tale of how you became put in a
wheelchair? That might make a difference as far as to which type of
group you would get the best benefit from.
There are tons of groups out
Title: AOL Email
Thank you Kathryn,
I hope you didn't mind me calling you Kate. I was just
going by your email name.
You know, even though there's not much we can do for one
another it's so important to just write a word or two
Title: AOL Email
In a message dated 8/9/2006 9:00:56 AM Central Standard Time,
[EMAIL PROTECTED] writes:
Sometimes I think what's the use of even going to the Dr. My lesion is at the C 2-3
level. I can't take the heat since TM came along. I
Title: AOL Email
I am not going to get to everyone on my
email list today. I've been at it for over an hour and am not doing
well now.
But...I want to say "Thank you" to everyone who sent such
sweet and kind uplifting messages of hope
Title: AOL Email
Hi All and Frank,
As usual, I need some advice and help. I am so darn mad
I almost cannot stand it! (actually, can't STAND it, at all)
LOL
I think that most of you know I have been waiting and waiting
to
Title: AOL Email
What state do you
live in? (besides the state of frustration?) It might make a difference in what
advice any of us might be able to give you to find you
help
Sorry
about that. I live in Michigan and have Blue
Title: AOL Email
Hi Guys,
There is also a lidocaine patch as a prescription medication
that works well for me, but is no longer covered by my insurance
company.
That might be a good way to give it a try. The only
thing I
Title: AOL Email
There are too many of you Birthday Babies
out there to send individual card to, so ...
Title: AOL Email
Thank you Jim Lubin for a well thought
out and documented opinion regarding the controversial topic of stem cell
research.
You, if any one of us, are in the position to debate this
issue as you have so much information
Title: AOL Email
Jim Lubin wrote: You are
not removing stem cells from something that has already died
When a woman has an abortion, do the stem cells die
immediately? I am obviously ignorant on the subject and most likely
have
Title: AOL Email
I have read that flying can be hard on we
TM'ers. Have any of you experienced exaggerated pain or any other
difficulties while in airplanes traveling in the wild blue
yonder?
Thinking about how to get to the Bar-B-Que!
Title: AOL Email
Hi All,
It's me, with my usual "dumb question of the
week." What is the name and address of the TM site where we go
totrade items. I have a lot to donate and need an extra long
reacher at this time.
Thank
Title: AOL Email
Ok, I apologize for not verifying
for myself the truth regarding the "Swiffer"
incident.
Apparently I was wrong in assuming that my
sister-in-law knew what she was talking about. She has since been
advised
Title: AOL Email
Hi There,
I know that you have lots more experience with Snopes than I
do, Jan. In fact today is the first time I've ever been to the site
and must say that I find it quite interesting. I suppose that one
could look up
Title: AOL Email
Title: AOL Email
Isn't it strange? I have not had
hiccups, sneezed, coughed, or have been able to cry since I got TM.
It must have something to do with the level of
demarcation. Every time I want to cry, I start yawning and cannot
Title: AOL Email
This came from a friend of mine who says
it's the truth.
Jude
---BeginMessage---
Water and Wine EducationWATER.. It has been
scientifically proven that if we drink 1 litre of water each day, at the end
of
Title: AOL Email
Wow, after reading all of the responses
regarding weaning off of Neurontin to get on Lyrica, I know what was wrong
with me. The muscle pain was so intense and the headaches have gone
on now for two weeks. As soon as I got back on
Title: AOL Email
Alton,
After thinking about it for a bit, I remembered that I have
been advised to have every doctor who might have anything to do with my
health care to write a letter to my insurance company explaining why an
Title: AOL Email
I use gabapentin as well since my
insurance company wouldn't pay for neurontin after a few months.
I had the terrific pain after going off of the gabapentin
when trying to go onto Lyrica.
Jude
Title: AOL Email
Hi Michelle,
I began taking Lyrica and within a very short period of time,
like an hour or so, I began getting so hot I thought I would burn
up! I wasn't sure what the cause of it was, and it took a good hour
to go
Title: AOL Email
The fatigue is caused by many sequela of the demyelinating of the
nerves
Hi Frank,
I was speaking of fibromyalgia being an immune suppressing
disease...must not have been clear enough.
What is
Title: AOL Email
Having had fibromyalgia and CFIDS for so
many years before TM, I am used to the overwhelming fatigue. For me,
it is nothing new that came with the disease.
Over the years, morethan one doctor has told me that
the
Title: AOL Email
Boy, there are so many conflicting reports about
Lyrica. Some people love it and others don't think it does any
good. Some people think they get a lot of side effects and others
don't.
I have a bottle sitting in my
In a message dated 5/17/2006 8:36:17 AM Central Standard Time,
[EMAIL PROTECTED] writes:
When TM first came to take up residence, most of my symptoms
were in my left arm and lower trunk and legs. But there was one very very
sensitive spot right on top of my head (made getting
In a message dated 5/12/2006 5:22:48 PM Central Standard Time,
[EMAIL PROTECTED] writes:
- Original Message -
From: Grace
To: Krissy Z ; [EMAIL PROTECTED]
; TM
List
Sent: Friday, May 12, 2006 17:20
Subject: Re:] Permission To Feel/Emotions.
From what I have
In a message dated 5/9/2006 3:56:39 PM Central Standard Time,
[EMAIL PROTECTED] writes:
But I am also farting alot! I bend over, I fart. I lean , I
fart.I thought it was just me, yogurt and cannibis. maybe we
need to move around a lot more.I tend to fart after sitting a long
time.I
but the subject of FARTING is near anddear to
my heart.
Well, no...it's nearer to your butt than your
heart...
In a message dated 5/8/2006 7:20:32 AM Central Standard Time,
[EMAIL PROTECTED] writes:
ok, along with this have you discovered that foods effect you differently
now too?
LIke if I eat too many carbs in the afternoon I get very sleepy. Or the
pasta sauces/mexican foods are giving
In a message dated 4/30/2006 7:57:36 PM Central Standard Time, ACA ROE
writes:
Hi, I am new to
this list. Just a little background. 7 mos ago I was on the golf
course (I have been playing golf for the last 9 years and tennis at least 5
days a week for the last 25 years) when I had
In a message dated 5/1/2006 12:10:42 PM Central Standard Time,
[EMAIL PROTECTED] writes:
A
wonderful suggestion Sandy. Have Jim Lubin on Oprah. Wow.
Could that happen??Heather in CalgarySpring is greening up
here too.- Original Message - From: "Sandy Heidel"
[EMAIL
In a message dated 4/26/2006 8:52:39 PM Central Standard Time,
[EMAIL PROTECTED] writes:
I think you so much for letting us know about Grace. We will
not bother you with emails, but if you could let us know if any change in
Grace condition.
Thanks Hp
I am happy to forward
She is, at long last, here with me, where she
belongs,safe and loved. Please just let her get to you when she gets
to you, for she has had more to distract her than you can imagine. It's
clear that you care for her, and there can't be too much of that.
Grace's friend
emailed me this
Also; for me, I've found that I also feel
so embarrassed - like I don't want anyone who I used to know, to see me
how I am now; and just want to hide out at home.
Hello Kate,
My name is Jude and I am a T4, complete paralytic. My fourth
anniversary is in June, so not that far away. I am in
My question is this---why does cord insult
itslf cause depression regardless of degree of disability?
Don't you think that the root of the depression comes from
the basic loss of our "selves" as we used to describe our existence
andplace in our world?
Everything changes. We are no longer
Happy Birthday to all of the
April born babies out there in TMIC land. May you have the best of everything in
the coming year and forever more.
Peace
Hello to all: When I went to see Dr. Kerr,
I offered myself forresearch--and got into two studies.
Hi
Cora,
Kudos to you for following through
and actually doing something physical to
advance the science of stem cell research.
What kinds of studies will you be involved in?
How
This is from a friend of mine who is
completely reliable.
Love Ya,
Jude
---BeginMessage---
Ladies,
Did a quick check on this--the OPP mentioned in the e-mail is the Ontario
Provincial Police and *677 DOES contact them, as does 911, but this does not
work anywhere else (unfortunately).
To those of you who use AOL, are you
having any problems bringing up your welcome screen or buddy lists or any other
windows?
I am getting half-sized windows that refuse to enlarge
when I click on the full page button.
My email is terribly hard to read as I have to keep
going back and
Cindy McL... The emails I send you keep coming
back and I don't know why. Please send me an email address that
works.
Thank you Sweetie,
Jude
"Tongue in Cheek
Leaves More Room
for
Foot in
Mouth"
You know, I believe that there is something phishy
going on here. And, we are all phalling phor it, "hook, line and
sinker".
I mean this could be a whale of a story! Here we
are carping at one another, phloundering about like the proverbial phish out of
water and over what?
This this has
In a message dated 3/12/2006 12:34:11 PM Central Standard Time,
[EMAIL PROTECTED] writes:
Wow
Diane,It works terrific. What a wonderful thing to know. Works fine
for me with the e-mail message you sent.Thanks,Heather in
chilly, snowy Calgary where I'm just staying in today and
In a message dated 3/10/2006 4:07:33 PM Central Standard Time,
[EMAIL PROTECTED] writes:
Hi there,
Hmm, my salmon/fish oil capsules 1000 mg do
not say anything about Omega-anything. Nothing on the container at
all. I bought mine at a drugstore. Is this a good or bad
thing?
In the middle of the night I sat up and slid over on the bed to
remove a pad that was all wrinkled up under me. When I slid to the side, I
lost my grip on the bed rail and fell backwards over the edge of the
bed.
Being paralyzed from T4 on down means that I have no control over
the
In a message dated 2/24/2006 2:30:28 PM Central Standard Time,
[EMAIL PROTECTED] writes:
I was also told by both my dr's
that Lyrica and Neurontin were in the same class and basically treated the
same thing. I was told by them also that I am on a low dosage (and as a
matter of fact
In a message dated 2/23/2006 12:34:59 AM Central Standard Time,
[EMAIL PROTECTED] writes:
Hi all
I told my other group about Lyrca and Robyn has tried it. Well
it sure worked for her and I didn't get the mgs she was on. When she posts
about this I will send it over to you all.
In a message dated 2/21/2006 8:50:54 PM Central Standard Time,
[EMAIL PROTECTED] writes:
what
about neurontin ?Alton Ryder
[EMAIL PROTECTED] wrote:
Try
Zanaflex/tizanidine for spasms. Rather inexpensive now that it's
generic.Alton, who has given up on his baclofen
Hi All,
It's scatterbrained Jude again. I was sent a card this
morning entitled "I Like You" and thought I saved it in my AOL mailbox,
but now I cannot find it and am lost without it.
I wanted to share the card with some of my friends because it
is the most unique and hilarious card I have
It's
final, it's true...
3 more months in casts!!! I want to have a pity party
but I'm afraid nobody will come.
On a positive note, there is bone growing, although not as
dense as normal.
Then, after the casts finally come off, I will be fitted for
braces or some kind of protective boots
I guess I'm confused about the brain
lesions!
Hi,
I was at the Johns Hopkins
TM site yesterday reading some of the papers written by several prominent
docs.
The consensus is that with
MS, there are lesions on the brain and that with TM, there are lesions on
the spine and none in the
In a message dated 2/14/2006 3:00:51 PM Central Standard Time,
[EMAIL PROTECTED] writes:
I walk with
a walker around the house. I'm able to stand to brush my teeth in the
morning and at night time. But there are times that I'm too tried to
stand. So, I'm looking for a small chair
In a message dated 2/13/2006 7:49:36 AM Central Standard Time,
[EMAIL PROTECTED] writes:
Hi Everyone,
Most of you know all about Cole, now 5 years old
an incomplete Quad, got TM at 6 months of age.
He has been having some chest pain lately, it is
becoming more of a concern for
In a message dated 2/13/2006 2:45:42 PM Central Standard Time,
[EMAIL PROTECTED] writes:
I've had dizziness since TM. It never occurred to me to ask
whether it was part of TM or not -- I just assumed it was since it came with
TM onset, and, like most of my other symptoms, has gotten
Frank,
your write. Those people their are making really bad
errors. They're spelling is atrocious.
You're friend,
Jude
---BeginMessage---
sandy,
what drives me up the wall are the words:
there, they're, their
your, you're
f
---End Message---
In a message dated 2/11/2006 1:46:14 PM Central Standard Time,
[EMAIL PROTECTED] writes:
Dear pHran3que (witha silent 3),
If you really want to know, the pH of alcohol is reported to be
5.5. Hopefully that will work well with your setting reset box that
youhave plugged into
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