to replace it.
Thank you for sharing your beautiful voice with the group.
Can't wait to hear more songs done by you.
Keep up the beautiful songs,
Todd in CC, TX
--- On Mon, 10/12/09, Lawrence King we4king...@verizon.net wrote:
From: Lawrence King we4king...@verizon.net
Subject: [TMIC] OT- I sing
To: tmic
So...
Will anybody be crushed by my confession that 2 songs after this one
I sang Procol Harum's Whiter Shade of Pale?
Mindy the Artisan
On Oct 14, 2009, at 9:09 PM, roseofr...@aol.com wrote:
In a message dated 10/13/2009 7:25:38 A.M. Pacific Daylight Time,
grace...@gmail.com writes:
not be a Christian. So, your hymn,
speaking of saints and their past labors, was a blessing to me today.
Gary in Michigan
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Monday, October 12, 2009 2:34 PM
Subject: [TMIC] OT- I sing
Hi Guys,
I wondered If I
Hi Guys,
I wondered If I should send you this since it has nothing to do with
TM but I figured since we have lost a lot of tmic-list saints
recently I figured you could remember them while watching it.
thats me singing at my debut concert, the traditional hymn for all
the saints
this
week end for Rick Steele and I am suppose to say something. This
has helped inspire me.
Cindy McLeroy
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Monday, October 12, 2009 11:34 AM
Subject: [TMIC] OT- I sing
Hi Guys,
I wondered If I
Mine and a few other doctors are beginning to but she's a DO rather
than an MD. Osteopathic doctors are fully certified by the American
Medical Association but are supposed to consider body, mind and
spirit as a whole when diagnosing a persons condition, My DO was
happy to hear I was a
May you feel the loving presence of God beside you as you move
through the coming days. Jim was truly blessed to have you as his
companion through his life's journey.
Mindy the Artisan
On Sep 10, 2009, at 12:06 AM, cjb...@aol.com wrote:
Jim left his earthly pains and frustrations behind
I was on both Lyrica and 40 mg Cymbalta, I found that Cymbalta
helped with the pain though I don't suffer from banding so I can't
speak to that. It also helped with my anger and depression. As for
side effects it made me want to sleep 16 hrs a day and I had
difficulty multi-tracking my
Congratulations! do you have pictures on line somewhere that we can
see the finished product?
Mindy the Artisan
On Aug 22, 2009, at 7:35 PM, Akua wrote:
This is off Topic, but I am so full of complaints and
disappointments--- that i share and work on here-- that i wanted to
share a ray
Whoa there!
your statement regarding true TM and Paralysis is incorrect! Acute
TM means damage is done in a matter of hours or days. Sub-acute TM
means damage over weeks. The information my Neuro gave me at the
time of diagnosis stated that the rate of paralysis from TM was 50/50
I
I've not lost any friends and in fact, with the addition of all of
you and the other groups I have joined on line as a result of this
disease, my list of friends has increased tenfold. Major life
changes always cause a shift in focus and friends who no longer have
similar understandings
, Janice wrote:
Mindy, you really do great!How is the garden?Did you
suffer any ill effects from the work involved?
Let me know if you get into belly dancing - I bet you would do
great. Janice
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc
Hi folks,
I weaned off Cymbalta very slow and methodically, removing 35 more
grains per capsule every 4 days until there were only 35 left. I
took the last dose one month ago and have been doing great. There
were no ill effects during wean down and I am thrilled with my
renewed energy
I love the Cry and was very happy when it was recovered. Went
pumpkin hunting for Halloween about 10 years ago and saw a tall,
twisted and skinny pumpkin and it reminded me of the face in the
cry so I got it and made the cry jack-o-lantern. Looked
wonderful! wish I could locate the
thanks Akua,
I have to agree with you. and a better approach would have been
hi, I'm a TM survivor too, your accomplishments are really
inspirational... I can vouch for the fact that those openings are
really exhausting and the last one I did was years before TM.
On Jun 27, 2009, at
I'm on face book! to become a friend go to facebook.com/
mindy.chairweaver
Mindy the Artist
On Jun 25, 2009, at 10:33 PM, Jim Lubin wrote:
there are several TM-ADEM-NMO groups on Facebook, most are linked here
http://www.myelitis.org/support.htm
Jim
(who has become addicted to the Farm
I found going on Cymbalta very helpful even though I've remained
walking wounded the entire time. I found it lifted my mood without
interfering with my ability to address my life adjustment issues like
the older generation of antidepressants would have done. This
disease hit me hard even
I believe karma is strictly an interpersonal thing and that there are
many factors in the world which are driven by the nature of our
universe. Good and bad things happen with out regard to who it
affects. Karma had nothing to do with the plague, the 2004 tsunami,
the 1918 flu pandemic,
dear Jude, patti, Jim and Marieke,
While I haven't spent a long time thinking about getting off The
antidepressant because I had not noticed my improvements until they
reached the level of obvious and dramatic but I did weigh the pros
and cons and I was the one who asked the doctor to put
Dear friends.
I am continuing to feel better. Now that I look back I can see that
I have been Improving for about a month even though I'm passed the 2
year mark. The hope it has given me above and beyond the general
coming to terms and acceptance that one should reach by their 2
year
I started on Lyrica in the spring of 2007 and added Cymbalta in the
fall 2007. It helped tremendously with the pain and my depression
but also made me sleepy. Adding Amantadine 100mg morning and noon
help counteract drowsiness but if you're not depressed I'd stay off.
Cymbalta saved my
I've had a week of less pain over all and almost no buzz when I tip
my head down ( L'hermittes' sign) have been able to use a hoe and
shovel in the garden my father (he's 81 and healthy as a horse)
helped me plant. One year ago I was in too much pain and depression
to plant things and
I recently passed my 2 year mark and today I am going to try out a
TEN's unit so wish me luck!
Mindy the Artist
On May 7, 2009, at 10:25 AM, Tami Streeter wrote:
Janice, Thank you for saying this about the 2 year mark. I am
getting close to it and found myself getting nervous and down
I lose my balance when I close my eyes too. my PT said I have lost my
somatosensation and that I need to protect my eyes because it's my
sight that is keeping me upright and 90 degrees from the horizon
line, parallel to doorways and lampposts etc... look ahead and not
down at my feet when
I'm counted. Picture included...
Mindy the Artist
On Apr 10, 2009, at 2:16 PM, Jim Lubin wrote:
Be counted! Put yourself on the map.
http://www.campaigntocureparalysis.org/
I just got this from NSCIA and thought it was worth your attention.
Mindy the Artist
Begin forwarded message:
From: NSCIA subscr...@spinalcord.org
Date: April 7, 2009 2:39:26 PM EDT
To: we4king...@verizon.net
Subject: Support Access to e-books for People with Disabilities
As part of its role
I'm not implying that at all. I just didn't go into that definition
for the sake of brevity. The light hearted comment about turning 18
meant that every child takes a tremendous amount of life support to
raise. but if you insist on a definition: I believe that any infant
who is alive
Ah Barbara,
the problem with email is that it's not a 3 dimensional form of
communication. face value is very different when you are actually
face to face!
now I see what you're referring to... In the 6 years between the
birth of my daughter and the birth of my son ideas on healthy
if
I wasn't aware of it in advance? I'm taking all the advice I can get.
Thanks
Patti - Michigan
-Original Message-
From: Lawrence King we4king...@verizon.net
To: tmic-list@eskimo.com
Cc: Lawrence King we4king...@verizon.net
Sent: Wed, 25 Mar 2009 2:38 pm
Subject: Re: [TMIC] going to DC
Jim,
I have even more respect for your view now that you have explained it
in such a personal way. I haven't changed my own view but I love
getting to wear the other persons moccasins (I'm Christian and my
best friend is Buddhist). I'm thrilled at how well this discussion
has gone
Hi Patti,
We went to DC in Jan for my father-in-laws funeral at Arlington
Natnl. Cemetery and decided it was now or never to show the kids
DC. What ever your needs are I encourage you to take this tour
bus: http://www.tourmobile.com/disability.phpand not the
other ones. I
tAs a mother who conceived (the natural way) 6 times but only gave
birth to 2 live infants I feel qualified to remind the greater
community that every successful conception does not equal a child
born even in natural circumstances, much less conceptions that occur
in a dish.
I mourned
donation? Thanks.
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Wednesday, March 25, 2009 8:25 PM
Subject: Re: [TMIC] stem cell (OT?)
Re: I donate blood (4 gallons), gave a sample to the bone
marrow registry.
if it was true, sure enough, it's in there
http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf
If you want to read it yourself, pg 128, lines 9 - 24. there are 2
pages inserted so it is page 130 of the pdf.
At 05:25 PM 3/25/2009, Lawrence King wrote:
whether you consider them blastocysts
it is as if a light goes off
and a new kind of sensitivity sets in.
Let me know where you are from and maybe I can help you find a
group near by.
Take care,
Cindy McLeroy
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Friday, February 27, 2009 9
today is my 2 year anniversary of contracting TM.
Mindy the Artist
of
sensitivity sets in.
Let me know where you are from and maybe I can help you find a
group near by.
Take care,
Cindy McLeroy
- Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Friday, February 27, 2009 9:21 PM
Subject: Re: [TMIC] For you MSr's
Thanks
Thanks Jan,
I don't dump my medical history on the unsuspecting anymore either.
my 14 year old daughter can read me but she's still at that stage
where she hates doing chores and hasn't figured how picking up or
doing a few dishes could help mom out on bad days and relieve some of
the
- Eagle, ID
Original Message -
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Thursday, February 26, 2009 10:36 PM
Subject: Re: [TMIC] For you MSr's
I have L'hermettes sign on top of the sensation that I have my
finger stuck in a light socket 24/7. Imagine
I have L'hermettes sign on top of the sensation that I have my finger
stuck in a light socket 24/7. Imagine that, electrocution with
electric bursts... but I don't have MS.
Mindy the Artist
TM March 1, 2007
C4-C5
On Feb 26, 2009, at 10:47 PM, Jill Z wrote:
I know some of us TMr's turned
I never tried Neurontin, opting for lyrica first and yes I had a
headache for 4-5 days and then it subsided, balance was also messed
up for a while. really took 2 weeks for the full benefit and the
addition of Amantadine to counter the sleepiness but in combination
with cymbalta gave me
Cute it's not just cute! it made my day!
Mindy the Artist
On Jan 24, 2009, at 3:31 PM, Todd Tarno wrote:
This is a 16 mins movie, that is cute.
http://budurl. com/SmilesYouTub e
--- On Thu, 1/22/09, TODD TARNO toddnbi...@sbcglobal.net wrote:
From: TODD TARNO toddnbi...@sbcglobal.net
I just returned from the mall, Crawled under the stage used in
yesterdays concert to visit the Lincoln Memorial a few days ago after
seeing my father in law buried at Arlington National Cemetery. I am
back home in Ohio but I almost wish we could have stayed. I have
been visiting the
My Deepest sympathies Rick, I also lost a family member- my father-
in-law December 20th.
Mindy the Artist
On Jan 4, 2009, at 12:46 AM, ashfo...@att.net wrote:
Dear Friends, This is Rick, I hope you all a Happy New Year,sad to
say and believe but I lost my oldest son to a car
Like any of us with our medical and prescription costs have roughly
$2000 to spare! (throw away!!)
Mindy the Artist
On Dec 5, 2008, at 3:18 PM, robert hennessy wrote:
Hello,
Sorry I didn't inform you about my traveling to UK for a program,
am presently in London and i am stranded here
Yes Grace,
you're our own celebrity! we'll keep your 15 minutes of fame going
for quite a while. Hope you're doing better!
Mindy the Artist
On Dec 3, 2008, at 7:11 PM, Grace M. wrote:
Hi Patti,
Marieke and Heather are right. That was me on the Discovery
Channel. Recurrent LETM
I don't have the temp. control issue but I wonder if taking capsaicin
capsules might help those who do warm up from the inside I understand
you need to build up your dosage if you try it.
Mindy the Artist
On Nov 29, 2008, at 11:05 AM, Jan Hargrove wrote:
Jude,
Temperature control is
Grace,
my thoughts and prayers are with you. I have witnessed how you have
been instrumental in helping others in their affliction and wish the
same could happen for you. you are one of my hero's on this list!
Mindy the Artist
On Nov 26, 2008, at 12:08 PM, Grace M. wrote:
Sorry for
3 things I have learned never to discuss with other people:
politics, religion, and the great pumpkin Linus
I'm in Athens, Ohio and I've been told there is another TM survivor
in town but my PT wouldn't give me his contact info and I don't know
if she ever gave him mine. I was told
, the support group leader will contact you and give
you the information.
Or, you can go to the website at www.myelitis.org and look up
support groups, and find the contact name in the Ohio support group
link.
Hope this helps.
Take care,
Debbie
- Original Message -
From: Lawrence King
The guidelines need to include political messages We are one group
united by our common factor TM. but when a member spouts political
rhetoric we are divided into the right and the left. There are tons
of groups devoted to this type of political banter but only one for
TM sufferers!
as pertaining to TM.
Again, though, I agree we should not have to listen to (read) other
general political opinions, warnings, etc, when our main attention
should be on TM and closely related topics.
Gary in Michigan
- Original Message -
From: kevin weilacher
To: Lawrence King ; tmic
testing 123,
is the group getting this? I am having trouble posting.
Mindy the Artist
1. yes. 40 years ago, got TM 1 year ago
2. no
3. no
But my Husband had chicken Pox and shingles and a second flare-up of
shingles around my one year TM anniversary, but I suppose none of that
counts!
Mindy the Artist
On Apr 19, 2008, at 1:31 PM, jrushton wrote:
Hi, everyone (again!)
I
Welcome back Jude!
Our pastor Invites anyone with prayer concerns to kneel at the prayer
rail during the pastoral and Lords prayer every Sunday. I have always
been shy about doing this but I have missed your words of wisdom and
out of concern for your treatment and well being I decided to go
You can find the very same tests your doctor uses at your local drug
store. they are on the shelf and not behind the counter.
Mindy the ArtistOn Apr 7, 2008, at 8:59 PM, Trudy OGILVIE wrote:
I was wondering if anyone knows of a Home kit that could tell you if
you have a UTI. Since the
than a week and you want to keep urine alkaline rather
than acidic so avoid cranberry, citrus and vitamin C supplements during
treatment
Mindy King
www.chairweaver.com
(740) 662-2001
On Apr 7, 2008, at 11:16 PM, Lawrence King wrote:
You can find the very same tests your doctor uses at your
welcome back Naomi! I have just survived my one year TM anniversary.
I am also C4-C5 but my damage is only central neuropathy syndrome.
Everything still works but I feel as though I am being electrocuted
from the chest down 24/7 what a strange disease this is!!!
Mindy the artist
On Mar
Naomi,
I wouldn't call it a happy anniversary but I've decided it's still
good to be alive. There is some question as to whether I can call my
sensations Central Pain Syndrome or not because I don't have the
three forms of pain defined, which include things like intolerance to
hot and cold
I found this on Jude's hospitals web site:
If you have a quality or patient safety concern, please contact your
physician, nurse, nurse manager, or another member of your healthcare
team who will work with you to resolve your concern. If you feel the
issue is not resolved, call the Genesys
Michigan Department of Community Health
Any person may file a complaint about a health facility with the
Michigan Department of Community Health, Bureau of Health Systems,
Division of Operations, Complaint Investigations Unit, P.O. Box 30664,
Lansing, Michigan 48909. If you need assistance or
It's:
Judy Hoops
Room 4159
Genesys Health System
One Genesys Parkway
Grand Blanc, MI 48439
Mindy the Artist
Hi Steven,
It's the one year anniversary of my TM attack and I was affected at
C4-C5. I guess it would qualify as a semi acute attack as my symptoms
developed slowly and I never lost mobility or even urinary/bowel
control though it does take more effort these days, what I did develop
was
God bless us everyone!
Mindy the Artisan
On Dec 25, 2007, at 7:30 PM, LifeIsJoy wrote:
Me, three……..Cookie in Arizona
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, December 24, 2007 7:10 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Merry Christmas!
Hey all, firstly, thanks all of you for the words of encouragement
when I introduced myself and good news, my general practitioner has
prescribed physical therapy for me! She said that it might make my
Neuro unhappy and I laughed and said he dismissed me, remember! you've
got carte blanche
Hi All,
I have just been officially diagnosed with TM and my Neurologist has
dismissed me as his patient. He does not expect my shivering sensation
and Lhermitte’s sign to improve any further because I have passed the
6-month mark since the attack took place.
I had hoped to talk him into
Barb,
Thank you for the hug! I have held up pretty well all day since the
appointment but was just now about to break down in puddles i will
share your letter with my PCP and since I have a few weeks to prepare
for my next appointment a little research into what it takes to get
therapy out
Thanks Jude... and the other folks who have welcomed me into this
community. I have been lurking and learning about how to cope with TM
since July and I have to say you are an amazing group of people. I
don't have much wisdom to offer (okay, I did email Frank about Hen3ry
and Tom Lehrer as
Hello everyone,
I guess I’m ready to introduce myself. I just got the results of my
3rd MRI and the evidence clearly supports my June 25th 2007 TM
diagnosis. My attack happened around the 7th of March 2007. It
started with numbness and tingling in my legs for a few of days with
the sense
The comedic songwriter's name is Tom Lehrer, I wondered if you were
familiar with him when I saw the numbers in your name. Here's the
quote from an evening wasted with Tom Lehrer
I am reminded at this point of a fellow I used to know whose name was
Henry, only to give you an idea of what a
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