You can find the updated nomenclature on the SSDI site in the Blue Book. You
just need to look on the neurology section.
Lori
Sent from my iPhone
On Jan 4, 2014, at 7:42 PM, Pat Voorheis pjv1...@chartermi.net wrote:
The link Barbara gave is the one I was thinking of. I even had a copy of
LOL
Sent from my iPhone
On Jan 14, 2013, at 10:59 PM, john snodgrass jcs...@yahoo.com wrote:
i had the flu shot and the pneumonia shot the same time and i still cant play
the violin!
From: Dalton Garis malugss...@gmail.com
To: Pat Cooley patticoole...@gmail.com; pjv1...@chartermi.net
I think that if your TM was contracted from and immunization you should not
take anymore, yet if it wasn’t there is no harm.
Mine is idiopathic and I had not had a vaccine, who knows,
From: Linda Egli
Sent: Tuesday, January 15, 2013 11:09 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Face
I have had TM for 15 years and get a flu shot every year. Dr. Kerr told me it
was fine years ago. I had the flu 3 times the year I got TM and have never had
it sense.
Lori
Sent from my iPhone
On Jan 14, 2013, at 8:33 PM, Pat Cooley patticoole...@gmail.com wrote:
Patti I think you made the
I have used provigil for 11 years, works great for TM.
Lori
-Original Message-
From: rasbu...@roadrunner.com
Sent: Thursday, July 19, 2012 12:10 PM
To: john snodgrass ; transverse myelitis
Subject: Re: [TMIC] RE: Provigil for TM?
My neurologist prescribed for me after about a month
I think of Doc often, it has been so long since he passed and it was such an
unnecessary passing. I am sure he is at peace now, his pain made him a bit of a
pain . I have no clue how to reach his sons, they emailed me for a bit after he
died.
Lori
From: Barbara H.
Sent: Sunday, April 01, 2012
I gave up my SSDI and returned to work and am loving it. I was on SSDI for
almost 14 years, what a waste of time. I can work and most likely could have
worked, I just didn’t have the confidence after such a traumatic change in
life. After a few years, recovery stopped and learning to live with
I wish they were for you also!
From: Dalton Garis
Sent: Thursday, March 22, 2012 7:58 AM
To: Lori Biehler ; subers...@msn.com ; tmic-list@eskimo.com ; Robert Pall
Subject: Re: [TMIC] Handicap
Yes, CONFIDENCE!
That is what we were robbed of after the TM hit us. Very well said, Lori.
Now
Never heard that and don’t believe it, where did you hear it?
From: bgunny7...@aol.com
Sent: Tuesday, March 20, 2012 7:14 PM
To: Tmic-list@eskimo.com
Subject: [TMIC] Handicap
Has anybody read where the unemployed are considered disabled? You gotta be
shittin me.
Happy Halloween, Very cute
From: bgunny7...@aol.com
Sent: Sunday, October 23, 2011 1:22 PM
To: Tmic-list@eskimo.com
Subject: [TMIC] Fwd: Fw: BOO!!!
--
From: ramirezjac...@aol.com
To: babygirl22...@gmail.com,
Re: [TMIC] shingles vaccineI had open heart surgery three years ago and have
had a flu shot every year since with no problems. I have also had shingles this
last year and I would take the vaccine in a second to avoid getting them again!
TM attacked me over 13 years ago, it isn’t attacking me
Actually there are 4 verses and he sung the 4th verse.
Oh, say can you see by the dawn's early light
What so proudly we hailed at the twilight's last gleaming?
Whose broad stripes and bright stars thru the perilous fight,
O'er the ramparts we watched were so gallantly streaming?
And the rocket's
Great article Barbara! Thanks for posting and sharing it!
Hope all is well with you and yours,
Lori
From: Barbara H.
Sent: Tuesday, September 06, 2011 6:50 PM
To: tmic
Subject: [TMIC] Is Living With Illness Choosing to Give In?
Just saw a really neat article on a friend's Facebook: Is Living
I have had a magnet bed for about 25 years. Not sure if it works, but it sure
doesn’t hurt! Good luck selling them.
From: bgunny7...@aol.com
Sent: Saturday, June 25, 2011 10:50 AM
To: Tmic-list@eskimo.com
Subject: [TMIC] Magnets
It seems people are beginning to understand the magnet benefits.
Great video! You did an awesome job and I for one would feel very safe at your
side! I am so glad you can get back to something you love and your letter was
so poignant.
Thanks for such an uplifting email.
Lori
From: Deb Monteleone
Sent: Saturday, June 11, 2011 12:15 PM
To: TMIC
Subject:
Thanks for your service Bernie! I am a Navy vet and very, very proud of the
Seals. I have always thought they were the best.
This weekend we should all think of those that gave their lives and the
families they left behind.
To all the vets on this list and to their families that supported them,
Now that is just rude, and around this time of year, you should be ashamed.
Marines have saved lives, they are part of our armed services that have saved
this country.
I am proud of all my fellow service men and women. I would welcome testosterone
over a wimp any day.
Lori
From:
Hi All,
I have a question, I have shingles and they are on my “numb” side. I didn’t go
to the doc for about 4 days because I thought it was just a small bug bite on
my back and by the time I went it was a mess. My question is, why do I feel
pain? I don’t feel any pain if I am stabbed, burned,
I am so sorry, may he rest in peace and may you find peace.
Lori
From: rn11...@yahoo.com
Sent: Wednesday, March 02, 2011 9:55 AM
To: tmic
Subject: [TMIC] OT
My friends,
My great-grandson Joshua James Bigelow (born 11/19/10) died of SIDS on
2/28. We are devastated.
I think you have to unsubscribe and then subscribe under the new email.
Lori
From: robthe...@aol.com
Sent: Wednesday, February 23, 2011 1:53 PM
To: tmic-list@eskimo.com
Subject: [TMIC] help
I no longer have access to my work email which was rp...@neillsupply.com.
I just subscribed using my
Happy Anniversary Neil!
I am thankful every day that I have met you and your family! Bad shit happens
to good people all the time and making the best out of the bad shit is what
makes you special.
I am happy to call you my friend.
Hope to see you and yours this summer.
Lori
PS. I am going on 13
This is the response I get when I email Jude, does anyone know why?
-Original Message-
From: heyjude48...@aol.com
Sent: Saturday, January 08, 2011 8:47 AM
To: lbieh...@earthlink.net
Subject: Re: [TMIC] I need help with member contacts. Will anybody help me?
Hello, I am unavailable to
I hope she can get this fixed, I feel for her, trying to reach out and not
getting any responses. Hopefully she will see all this from the list and then
can fix it.
Lori
From: rn11...@yahoo.com
Sent: Saturday, January 08, 2011 8:59 AM
To: Lori Biehler
Cc: tmic-list@eskimo.com
Subject: Re
I am so glad you don’t need bypass, that is terrible! I had 5 of them 2 and a
half years ago, not fun. Stints are not so fun, just take your meds and STOP
SMOKING!!
Exercise is now very important for you, no excuses, get back in the water and
eat better!
Stay well,
Heart stuff really is
test
Amanda,
I was told to take cascara segrada, it is a natural bark that I purchased in a
health food store. That also may be the ingredient in smooth tea. This worked
great for me, I took it every three days, just one pill though over time the
problem got worse. My gastro told me that cascara
Re: [TMIC] ? spamI received 3 from celrods in the last day and deleted them
immediately.
From: Dalton Garis
Sent: Sunday, October 10, 2010 2:26 PM
To: Patricia Cooley ; rn11...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] ? spam
I got celrods today, too.
I dumped them
OK, since this is untrue, and it really should not be on here at all, I figured
I would send along the snopes address so all could see how untrue this stuff is.
I am on this site to read about TM, and true medical health issues, not
political untruths that are spread in this insane manner. In
Hi everyone,
I figured since most write to the list with problems, I would send along some
really happy news in our family, I am to become a grandmother in February! My
son and his wife are expecting their first child. I cannot tell you how happy
we are, this is what my son has always wanted, a
A friend of the couple who founded Home Instead Senior Care, Mary Maxwell was
asked to give the invocation at the company’s 2009 Convention. Initially it
seemed like a normal prayer, but it soon took a very funny turn. Her deadpan
delivery and lines like …This is the first time I’ve ever been
From: Lori Biehler
Sent: Saturday, August 28, 2010 9:45 AM
To: CANDIS KALLEY
Subject: Re: [TMIC] permission needed for listserv
The more people that learn and hear about TM, the better! Good luck!
From: CANDIS KALLEY
Sent: Saturday, August 28, 2010 8:47 AM
To: tmic-list
Cc: Lauri
Great article and I can say I feel so much better taking my 2000 UI a day!
Everything works better and I mean everything!
From: CANDIS KALLEY
Sent: Wednesday, August 25, 2010 9:14 AM
To: TMIC-LIST
Subject: [TMIC] Vit. D article
I just received this and I think it is worth reading.
Hammond Team,
You are all in my thoughts. He gave a very valiant fight and with all your
support he knew he was very, very loved.
May you all find peace at this time and know the TM community is thinking of
all of you.
Lori
From: Jill Hammond
Sent: Wednesday, August 25, 2010 6:43 PM
To:
I am not sure I believe in God, but if there is a God, Jude is a person that
he will take care of. She has always been so upbeat, so thoughtful and so
full of great advice for anyone.
All my positive thoughts are going out to her.
Lori
--
From:
Hi Jeron,
Amazing how well one feels when they help others!
Enjoy your time in South Africa!
Lori
From: j ra
Sent: Monday, July 05, 2010 9:40 AM
To: Transverse Myelytis
Subject: [TMIC] I'm back!
Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone
and try
Hey Jeron!
I knew you would love it!!! I didn't want to tell you my water experience, but
if the water is the right temperature (temperature bothers me a lot!!!) I can
float, kick, whatever and my body feels like TM never happened!! I get
claustrophobic now, even snorkeling, which is strange,
Go for it and good luck I relearned to water ski! I couldn't do it the way
I did it before TM, I was on 2 skis this time. They were nailed together with
wood and spikes and the rope was attached to the skis and then up to my arms.
It took me an entire week of trying to get up and stay up
Gunny,
I am so sorry. There are no words, you are in my thoughts.
I know how proud you are of that military funeral. Your family truly served and
are honored by us all.
Lori
From: bgunny7...@aol.com
Neurontin was awful for me. I was on it for the first year, 1998, and tried
again in 2002. It made me exhausted and I couldn't think straight. I always
felt as if my brain was buzzing, just an awful feeling. I prefer the
symptoms of the illness over those of that drug. I only took 100mg, 3
Thanks Wim, it is quite exciting to see our country moving forward and making
the health of our nation so important.
From: wim from holland
Sent: Tuesday, March 23, 2010 7:08 AM
To: TMIC
Subject: [TMIC] healthcare
Congratulations with your new healthcare system. It is almost a copy of the
I was told it was not familial. My son has Crohn's and one of his meds lists TM
as a possible side effect. Needless to say, I freaked and discussed this with
Dr. Kerr and was told it was nothing to worry about.
Lori
From: Janice Nichols
Sent: Sunday, March 21, 2010 8:29 AM
To:
Congrats! That is a huge accomplishment and I am glad that you are able to
cut down and not feel any worse after the withdrawal period, how wonderful for
you!
From: Mindy King
Sent: Monday, March 15, 2010 12:45 AM
To: tmic-list@eskimo.com
Cc: Mindy King
Subject: [TMIC] Lyrica
Hi all,
MS is defined as multi focal and multi phasal, recurrent TM is multi phasal,
yet not multi focal. It occurs in the same area.
--
From: Laura Beaudin laura.beau...@gmail.com
Sent: Sunday, March 14, 2010 11:36 AM
To: Grace M. grace...@gmail.com
Cc:
Ensure tonight.
Thank you for your concern. It is more meaningful than I can express.
Kevin
Lori Biehler wrote:
Hi Kevin,
How is your mom doing? How are you doing? Are you sleeping OK?
Lori
-Original Message-
From: Kevin Wolfthal [mailto:wolft...@optonline.net]
Sent: Monday
Sounds a bit like me, except I am a Veteran!
Rules for The Non-Military
Make sure you read #13
Dear Civilians,
'We know that the current state of affairs in our great Nation has many
civilians up in arms and
excited to join the Military. For those of You who can't join, you can
still
I also do not have a legion on my spinal cord at this time and Dr. Kerr was
my neurologist and he told me that I definitely have TM and that does not
matter. It is not always present in an MRI. I believe him. I have TM.
From: Barbara Alma [mailto:balmat...@aol.com]
Sent: Sunday, February 14,
Makes you wonder what type of people would such a thing to others. All the
people that believe in this stuff are going to get sicker! Makes me sick to
my stomach!
From: kevin weilacher [mailto:hwyfli...@yahoo.com]
Sent: Saturday, February 06, 2010 9:05 AM
To: Janice Nichols;
We are all here! It is really cold outside over most of the US, quite a
drag.
I know I have been nesting, making soup, eating cheese and staying warm.
The cold hurts me so I do what I have to do to stay comfortable and I think
that others are doing the same.
Lori
From: Grace M.
I lived in Hawaii from 80-83 and I must say the weather there is the best! I
know I would not be in any pain living in those weather conditions, and it is
beautiful, just not where I want to be, so alas, I live in the cold and wait
for snow, beautiful snow!
From: bobby jim
Yup, yet that being said, I would rather hurt in the cold snow, than hurt in
the freezing rain! For some reason, no clue why, it hurts more in the cold,
cold rain than in the snow, even though it is colder when it snows! This
winter is much better for me than last winter.
From: kimr1999
This is not a political site! I am highly offended that this was posted on this
site OT or not and has been going around for years. The dates have all been
changed. I thought this site was for TM, OT in itself is bogus, but this is
over the line.
-Original Message-
From: Janice Nichols
Beautiful! Thank you!
From: Mindy King [mailto:we4king...@verizon.net]
Sent: Friday, January 22, 2010 3:57 PM
To: tmic-list@eskimo.com
Cc: Mindy King
Subject: [TMIC] (ot) I sing whiter shade of pale
As promised last fall, I finally edited and posted whiter shade of pale to
Youtube and
was saying is that the MJ helps me sleep, but doesn't touch my pain. At
least not at the amount I use it or in the way I do. Then, I am assuming that
the ones who get relief are doing so by smoking.
Hugs, Barbara A in Auburn CA
-Original Message-
From: Lori Biehler lbieh...@earthlink.net
.
Grace
On Tue, Jan 12, 2010 at 10:37 PM, Lori Biehler lbieh...@earthlink.net wrote:
In a pill form it is called marinol. That is basically synthetic THC and I was
prescribed it in ’99 and it didn’t really take the pain away. It did make me
sleep and hungry. I smoked it instead
I have used it for many, many years. Dr. Kerr knew and agreed, along with
every other neuro I have ever seen. It works so much better than marinal and
you do not need to smoke or eat enough to get high to feel the pain
relief. I myself don't mind the feeling if I over indulge, some do. I am not
All I can say is that it didn't affect my fatigue. Marinol or synthetic THC
did nothing for my pain, it did affect my fatigue and gave me the munchies
all the time! I would think it would depend on how much you used.
From: rj_ran...@yahoo.com [mailto:rj_ran...@yahoo.com]
Sent: Tuesday,
In a pill form it is called marinol. That is basically synthetic THC and I
was prescribed it in '99 and it didn't really take the pain away. It did
make me sleep and hungry. I smoked it instead and that took the pain away,
helped the spasticity in my muscles, and left me feeling pretty good. I did
Hey all,
OK, I received my TMA newsletter and I must say that always puts me in a
good mood and helps me to readjust my level of discontent with the world. We
are all so blessed! We can read our email, we can send our email! Most or
many of us can go about our daily lives and check on line when
That is really good! Thanks!
From: kimr1999 [mailto:kimr1...@bellsouth.net]
Sent: Thursday, December 31, 2009 9:33 PM
To: TMIC
Subject: [TMIC] TM video on You Tube
http://www.youtube.com/watch?v=e9H0fSaTbKA
TM video Greg just posted on You Tube.. it's really good... pass it on to
1998 42
-Original Message- From: Janice Nichols Sent: Dec 11, 2009 12:35 AM To: tmic-list@eskimo.com Subject: [TMIC] Age
Hey!
I have a request. I was talking to my neuro and he was curious to know the ages
that my website friends were when they were hit with TM.
TM affects everyone differently. I was diagnosed with diabetes, type II,
within a year of TM and it made me stop and realize that I had to take the
best care of myself as I could. I eat completely differently than I used to.
I had heart surgery last year, and my cholesterol was not high, nor did I
Hi all,
I saw Dr. Kerr for years and I think I recall at the second symposium, one
of the doctors stating that he would never take the flu shots, nor would
have his children get them. Dr. Kerr never advised me to have the flu shot,
nor did he advise against it. I don't think it is something he
Hi Jim,
I am s happy for you! I hate that you feel pain when you are able to
move your hand, but the fact that you can now move that hand at will when
you feel that right side pain is so great! Congratulations!
Lori
From: Jim Lubin [mailto:jlu...@eskimo.com]
Sent: Monday, August 24,
Catherine,
I am not sure why they aren't paying anything, mine pays all my co-pays,
etc. after I pay the deductable, which is under $200.00 a year. At first I
was paying all my co-pays and since I didn't owe any money to my doctors or
hospitals, they didn't bill medicare. I pay no co-pays,
There is a SHIP, Senior Health Insurance Program, office in every county or
district. Medicare can give you the number if you call them, the drag is
they are all manned by volunteers, so if there are no volunteers, or
educated volunteers in the services they offer, you have nowhere to turn. I
have
Not sure how you think they control my health care, they have done everything
and anything I have asked and done it well! Ask anyone who is retired, gee my
best friend for the last 42 years has CLL and had a bone marrow transplant 18
months ago and she is so thankful for medicare, she is alive
Very interesting, considering I had 5 bypasses last fall, with no high
cholesterol nor high blood pressure. Could it be a vein problem?
Cardiovascular disease? Hmmm, makes me wonder!
From: jharpe...@aol.com [mailto:jharpe...@aol.com]
Sent: Monday, July 20, 2009 7:46 PM
To:
You are truly talented! They are beautiful!
Thanks for sharing them!
Lori
From: wim from holland [mailto:wim_from_holl...@hotmail.com]
Sent: Sunday, July 05, 2009 9:19 AM
To: TMIC
Subject: [TMIC] arts page
In my TM time, already 12 years now I started painting as a hobby. Took a
few
Good Morning Janice,
I would go and I would put a smile on my face and have a blast. Everyone has
something in their life, yours is just a bit more visible now. It has made
you a stronger and better person, something to be very proud of.
Have a great time!
Lori
From: Janice
If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!
From: Dex Packard [mailto:d...@centurytel.net]
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis
Yes I know that, just doesn't seem really important when one deals with
really sick people or people reaching out for help. I pick my battles.
Enough said.
Peace Out!
From: Dex Packard [mailto:d...@centurytel.net]
Sent: Sunday, June 28, 2009 9:41 PM
To: Lori Biehler; 'Todd Tarno'; ladyno
PT needs to be done for each person, at their ability level. If you can only
move a toe, move that toe. If you can't move anything, than I don't know
what they do for you. No one should ever tell anyone what PT to do or not to
do. If you feel better after moving some, and your doctor says it is OK
OK, great idea. I started exercising in 1999 and cannot tell you how much it
has helped me. I have better mobility, lost unwanted weight and have more
strength then before TM. It is not a cure all, that must be emphasized.
First you should talk to your doctor about how much and what types of
Right on!
From: bgunny7...@aol.com [mailto:bgunny7...@aol.com]
Sent: Thursday, January 08, 2009 7:07 PM
To: Tmic-list@eskimo.com
Subject: [TMIC] Rick Ashford
Ya know, when Rick held a fund raiser for the Coalition, he did it out the
goodness of his heart, not only to support the IDC, but
Test
First let me thank all of you that let me know that I am getting through to
the list. Seems I could receive posts, yet earthlink addresses weren't going
through. Jim has it all fixed now, thank you Jim.
All the caregiver posts of late were very interesting to me and opened my
eyes to the different
Hi all,
I felt so compelled to write after reading the first few pages of the
newsletter. Normally when the newsletter arrives, it sits on my desk for a
bit and then I slowly read through it and it takes quite a while for me to
finish it. This time, I set it on the desk and this morning I decided
NO, you would not fail the drug test because Marinol is synthetic THC and
they test for THC and Marinol is a LEGAL script so they won't fail you
because you have the script. You will show positive for THC, but you are
supposed to have that in your urine if you take Marinol.
Lori
_
Well, I do work and do get tested, it is no worse than someone taking
morphine, which shows up as an opiate, like heroine, so yes, it is legal and
if you get discriminated against for it, they are the ones in trouble not
you. I don't need either at this time, 10 years into this, I can deal just
Gaylon,
I used Marinol on and off 1999 until around 2002 I think. It made me tired,
hungry and non functioning if I took it during the day. I equate it to
eating laced brownies in my youth, but too many of them. Smoking weed works
very well for me, but I only need to take one or two tokes and do
Please do not be offended by some that don't understand how they hurt
others.
You are always welcome on this site, and your religious beliefs are yours
alone and you are welcome to practice them in our country.
I am a Vietnam era veteran, and I enlisted to protect our country and what
it stands
.
Lori
_
From: sal r [mailto:[EMAIL PROTECTED]
Sent: Monday, October 29, 2007 6:29 PM
To: Lori Biehler
Subject: RE: [TMIC] wobble boards
i am in a wheelchair, and am standing by hbolding on to something do u think
any of the equip your talking about would work for me?
Lori
I use a wobble board and started with one that the fin was only and inch or
two. The one I use now has a 6 inch fin. Also the soft balls with a halo
around them are great. I don't know what they are called, but they really
help to build the ankle muscles and calf muscles. I do notice that even
Candis,
I received LTD from a private carrier and also SDI.
The payments you receive from your carrier may or may not be taxable. It all
depends on if you paid the premiums for the LTD, and if your company paid
them, if you paid income tax on the premium amount that the company paid on
your
Hi Pam,
I don't know whether to say you are lucky to know what caused your TM, so
you can avoid anything that will make you sick, or what to say. I don't have
any type of rheumatoid illness and in December I was tested fully for a ton
of illnesses. It ruled out everything they can think of and I
Hello to Jenna and the list,
I really hate reading all this crap being spilled about how this cannot work
for you or how you want to make money. I will tell the list how I feel and
how I have been doing and what is helping me.
I have been on the list since, 1999 and usually in the background
That is so great Bob, thanks for sharing.
Lori
_
From: ROBERT COOK [mailto:[EMAIL PROTECTED]
Sent: Monday, December 04, 2006 9:44 AM
To: TMIC
Subject: [TMIC] TM SURVIVORS
SPECIAL POEM FOR TM SURVIVORS
A row of bottles on my shelf
Caused me to analyze myself.
One
Ami,
Kessler Rehab hospital is in West Orange, NJ. It is where Chris Reeves
rehabbed. I believe that would be about 3 hours away from where you are.
Lori
_
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Tuesday, November 14, 2006 9:40 PM
To: tmic-list@eskimo.com
Subject:
Would someone please
send me Gunny's email address?
Thanks,
Lori
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