Gary,
I hope your out-of-town siblings know and care how much you are doing to
keep your Mom and Dad comfortable in their old age. You must be
exhausted. You certainly have a full plate. Are you working also?
Pati - also in Michigan and watching the leaves faling one after another
-
this.
I wish for you the very best,
Janice
From: rn11...@yahoo.com
Sent: Wednesday, December 08, 2010 9:58 AM
To: tmic-list@eskimo.com
Subject: [TMIC] fatigue
Today I had a routine doctor's appt.@ 8:30. My sister and brother-in-law
picked me up at 8. Rode 20 min. in car ;got in right away
Today I had a routine doctor's appt.@ 8:30. My sister and brother-in-law
picked me up at 8. Rode 20 min. in car ;got in right away to office. Answered
questions,vitals checked,etc. Waited a few min. for doc. He came in discussed
my issues,showed him my right heel which split open a few days
Cheryl in Easthampton,MA
Big warm hugs, Cheryl! It's winter and cold. Tonight they said it
would go down to 12 degrees.
The days are short and getting shorter. Darkness comes early. You did
goood to be up and out so early and get all of that done. Be kind to
yourself. Rent a good
I live exhausted every day from the moment I wake up to the moment I go to bed.
I've tried all the meds my doctors suggested to no use.
Came to the conclusion that it makes no sense to subject myself to side effects
when pills are useless.
Bottom line, we live with the residuals of TM's
Hi everybody,
I just read the post I sent this morning and must apologize for it.
It's more depressing than I meant it to be.
Surely, there is lots we can do to help with fatigue.
Seriously, I'm sorry.
R
that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: Regina Rummel regina...@sbcglobal.net
To: tmic-list@eskimo.com
Sent: Tuesday, December 7, 2010 11:57:22 AM
Subject: [TMIC] Fatigue
Hi everybody,
I just read the post I sent
I take none of those meds and experience fatigue.
though for me, this may be about going from super
to normal as I can no longer drink coffee to rev me
up or keep me, nor even tea without care.
TM has given me a heightened sensitivity to
caffeine. I miss coffee a lot.
I missed my at home
this is not what anyone want to hear.
Who takes one day at a time,
Todd in CC, TX
--- On Tue, 12/7/10, Regina Rummel regina...@sbcglobal.net wrote:
From: Regina Rummel regina...@sbcglobal.net
Subject: [TMIC] Fatigue Meds
To: tmic-list@eskimo.com
Date: Tuesday, December 7, 2010, 10:04 AM
I
Subject: Fw: [TMIC] Fatigue Meds
I had the worst fatigue in the begaining, I was sleeping 20 hours a day (
only got up to eat go to the bathroom) for the first 1 years. The next
year was a little better, just sleeping 18 hours a day. The follow year
sleeping 12 hours a day.
The only thing
Janice,
Just reading about all that you are doing is making me tired.
Hugs, Barbara A in Auburn CA
-Original Message-
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com; Akua a...@artfarm.com
Sent: Sun, Sep 5, 2010 5:34 am
Subject: Re: [TMIC] Fatigue/Cycle
I
: [TMIC] Fatigue/Cycle
Sent: Sep 5, 2010 5:32 AM
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list to investigate.
Thanks for sharing that!
And don't worry worry is a waste of energy. Deep breathe,
envision all the fun you will
have in learning more, hearing more and being
a wheelchair.
Janice
--
From: Akua a...@artfarm.com
Sent: Saturday, September 04, 2010 2:46 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Fatigue/Cycle
If I can stay asleep until 11:30 am and not get up until 1, I am up until
4 am asleep by 5a.m
With baclofen, I have very little problem with sleep or leg spasms. But,
what is melatonin?
Janice
From: L T CHERPESKI
Sent: Saturday, September 04, 2010 6:11 PM
To: tmic-list@eskimo.com ; Akua
Subject: Re: [TMIC] Fatigue/Cycle
Yep, Akua, can totally relate to everything you said
Good to know.
Janice
--
From: Dalton Garis malugss...@gmail.com
Sent: Sunday, September 05, 2010 3:54 AM
To: Akua a...@artfarm.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Fatigue/Cycle
Warning to all;
Melatonin will absolutely aggravate
differently. Thanks for the
heads up
Linda
- Original Message -
From: Dalton Garismailto:malugss...@gmail.com
To: Akuamailto:a...@artfarm.com ;
tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Sunday, September 05, 2010 2:54 AM
Subject: Re: [TMIC] Fatigue/Cycle
Warning
Sep 2010 14:37:37 -0600
To: Dalton Garis malugss...@gmail.com, Akua a...@artfarm.com,
tmic-list@eskimo.com
Subject: Re: [TMIC] Fatigue/Cycle
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 5 Sep 2010 13:37:21 -0700
Dalton - I'm sorry this happened to you. Do you know others who have had
If I can stay asleep until 11:30 am and not get up until 1, I am up
until 4 am asleep by 5a.m. --
a 17 hour day -- and feel rested.
If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it
takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable
to fall asleep until
: [TMIC] Fatigue/Cycle
If I can stay asleep until 11:30 am and not get up until 1, I am up
until 4 am asleep by 5a.m. --
a 17 hour day -- and feel rested.
If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it
takes time) I am exhausted by 4 p.m. in bed by 10 p.m
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list to investigate.
Thanks for sharing that!
And don't worry worry is a waste of energy. Deep breathe,
envision all the fun you will
have in learning more, hearing more and being in the presence of
those who understand!
I
to me.
- Original Message -
From: Akuamailto:a...@artfarm.com
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Saturday, September 04, 2010 7:32 PM
Subject: Re: [TMIC] Fatigue/Cycle
O Linda!
Glad you've found a solution!
I'm adding melatonin to my list
I just read several notes discussing the fatigue some folks have and how using
the walkers, canes and such still makes it difficult to get around. I realize
that to a lot a people walking is very important, BUT...have any of you thought
of getting the small 4 wheeled scooters? They are light,
It is probably too late to be writing this since my neuro appt. is in the
morning but I wanted to ask: has anyone had any type of meds that actually
helped with fatigue?
I read on this list from several still talking about their fatigue so I know it
is a problem with many as it is me.
I am
I take 100mg provigal 2x daily. Works fairly well but is not a magic potion by any stretch of the word.
Larry in Oklahoma where I guess I am fighting a uti, I feel horrible!
Larry Throne, MSW
From: [EMAIL PROTECTED]To: "TMIC List" tmic-list@eskimo.comSubject: [TMIC] fatigueDate: Sun, 24
.
I do believe that fatigue is just another symptom of TM.
Candy K.
-Original Message-
From: Larry Throne [EMAIL PROTECTED]
Sent: Jun 24, 2007 6:42 PM
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] fatigue
I take 100mg provigal 2x daily. Works fairly well
Gary,
The thing that was mentioned earlier was L-Carnitine. I've been using it for a
few weeks, but it's hard to tell since I've got some other things going on
right now (pain) that is keeping me from being very functional. But there have
been a few days when I thought it might be helping. I
Title: AOL Email
The fatigue is caused by many sequela of the demyelinating of the
nerves
Hi Frank,
I was speaking of fibromyalgia being an immune suppressing
disease...must not have been clear enough.
What is
I sure don't know--but I am going to the Symposium---I'll try to find
out--You going? Cora in OKla.
I noticed that this summer at the 2nd International Rare Neuroimmunolic
Symposium there is going to be a session on Fatigue in TM and similar
disorders.
In the meantime I just wondered if
more than one doctor has told me that the fatigue is brought
on by the immune deficiency part of the diseases.
T.M. is caused by an auto-immune process, where the immune system attacks the
spinal cord. To my knowledge there is no immune deficiency associated with
this
Exactly Frank---demyelinization (sp?) is demyelinization. Overactive immune sytem---not immunodeficiency.
You know it amazes me whenever I go to some of the Devic's sites---relapsing Devic's having such a poor prognosis---that people truly have no idea of the nature of their disease. There's
.-Original Message-From: Krissy Z [EMAIL PROTECTED]To: TMIC List tmic-list@eskimo.comSent: Mon, 29 May 2006 17:58:32 -0700 (PDT)Subject: Re: [TMIC] fatigue
but i thought myelin was our nerve insulator? we have loss of myelin so hence we react to colddidn't think it was fatigue as well
Title: AOL Email
Having had fibromyalgia and CFIDS for so
many years before TM, I am used to the overwhelming fatigue. For me,
it is nothing new that came with the disease.
Over the years, morethan one doctor has told me that
the
Hello Judy,
You have voiced exactly what my own neuros have told me over this last year. Recently at one of the Devic's sites, someone mentioned Provigil as a possibledrug forfighting fatigue. The thing is, with every drug there are side effects. and unless you are willing to bear down and grit
I was wondering if someone can explain (in "laymen's"
terms) what causes fatigue from TM?
I noticed that this summer at the 2nd International Rare
Neuroimmunolic Symposium there is going to be a session on Fatigue in TM and
similar disorders.
In the meantime I just wondered if someone can
An explanation in an MS book (recommended for TM people to refer to for exercises) talked about the missing myelin which made nerve transmission slower, which therefore required more energy (since the myelin on the nerves makes nerve transmission more efficient). Although I'm not sure if in TM the
but i thought myelin was our nerve insulator? we have loss of myelin so hence we react to colddidn't think it was fatigue as wellI had fatigue at first but no longer have it, and I take my vitamins and herbal supplements and also my rehab at home exercises. Sure I get stiff and achy in my
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