Re: [CMLHope] Hi Shaun question

['Jeanie' via CMLHope]

Thank you Shaun
I’ve been fighting leukemia for 15 years this month. My hubby passed away and I 
grieved hard for him as we were married 43 years before. I’ve always wondered 
if the grief damaged my immune system. 

When your dad told what he went through having his transplant I sure was happy 
we had the chemo tki’s to help us. 

I’m on my 4th tki having relapsed on the others. It’s called Ponatinib.  It put 
me in remission in 3 months but it is a very dangerous drug. So far it’s been 
good to me. 

Thanks for thinking of me and all our group. 
❤️❤️18s
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Jan 6, 2019, at 11:06 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> My heart goes out to you.  I know my Dad would want you to keep fighting and 
> going on.  I can tell from your posts that you have a wonderful positive 
> energy that keeps you going.  Please hang there.  
> 
> Regards and 18s,
> Shaun
> 
>   Virus-free. www.avast.com
> 
>> On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope 
>>  wrote:
>> Thank you Shaun
>> I miss him too so much. Sometimes I feel like giving up and going into 
>> hospice but his words keep whispering in my ear: fight on.  
>> I love the story about the shoes. No he told me he didn’t want the book 
>> published but I know it would help a lot of people. 
>> If you change your mind let me know. 
>> What a great family he had 
>> Keep in touch 
>> Happy New Year
>> Love you so very much 
>> Jeanie 18
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> 
>>> On Dec 31, 2018, at 2:21 AM, Kathy Walls  
>>> wrote:
>>> 
>>> Please remove my wife from your group Please, she too is gone. Our 
>>> daughter plays with her phone  she does not to see these posts!  I beg you 
>>> please remove her
>>> 
>>> Sent from my iPhone
>>> 
 On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
 
 Hi Jeanie - 
 
 I miss him every day.  I'm glad he was able to still help you while he was 
 in rehab.  He was going through a lot even then, and it just goes to show 
 that he was a fighter even to the end.  My thoughts and prayers are with 
 you in beating your disease.
 
 I appreciate your feedback about his book and I agree with you.  I know 
 those stories well and I'm grateful to have his words and thoughts to hold 
 on to.  I'm not sure that he actually wanted the book published, though.  
 I think it was something more personal that he just wanted to share with 
 family and friends.  I appreciate your offer.  
 
 I wish everyone here a very healthy and happy holiday and New Year.   Take 
 care and be well!
 
 Regards and 18's
 Shaun
 
Virus-free. www.avast.com
 
> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>  wrote:
> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
> sufferings too. I miss him so much.  He was helping me with my new 
> thyroid disease while he was in rehab. 
> Have you given some thought to having his book published?  If you decide 
> to have it published I could get my daughter to help you through amazon 
> kindle. He gave me parts of the book and it was so uplifting.  You can 
> feel his love and care come through his pages 
> I especially loved the part about the pair of walking shoes. He left his 
> love on earth and I can still feel his spirit in my daily battle against 
> leukemia and other old age problems he was helping us with. 
> Good luck and keep in touch. 
> Love ya!
> Jeanie 
> 
>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>> 
>> Hi Jeanie - 
>> 
>> That's OK.  My father was getting Tylenol for his pain and Ativan for 
>> his anxiety.  He wasn't getting stronger pain medicines because it would 
>> give him hallucinations and confusion.  I read to him several times the 
>> patient's prayer and the mind of matter mantra to try to help him focus 
>> on feeling better.   I hope that brought him some comfort.
>> 
>> To everyone in this group I wish a very happy and healthy (belated) 
>> Thanksgiving. I am so grateful to see what strong support group you all 
>> have with each other and glad that my Dad was able to 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

My heart goes out to you.  I know my Dad would want you to keep fighting
and going on.  I can tell from your posts that you have a wonderful
positive energy that keeps you going.  Please hang there.

Regards and 18s,
Shaun


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thank you Shaun
> I miss him too so much. Sometimes I feel like giving up and going into
> hospice but his words keep whispering in my ear: fight on.
> I love the story about the shoes. No he told me he didn’t want the book
> published but I know it would help a lot of people.
> If you change your mind let me know.
> What a great family he had
> Keep in touch
> Happy New Year
> Love you so very much
> Jeanie 18
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Dec 31, 2018, at 2:21 AM, Kathy Walls 
> wrote:
>
> Please remove my wife from your group Please, she too is gone. Our
> daughter plays with her phone  she does not to see these posts!  I beg you
> please remove her
>
> Sent from my iPhone
>
> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> I miss him every day.  I'm glad he was able to still help you while he was
> in rehab.  He was going through a lot even then, and it just goes to show
> that he was a fighter even to the end.  My thoughts and prayers are with
> you in beating your disease.
>
> I appreciate your feedback about his book and I agree with you.  I know
> those stories well and I'm grateful to have his words and thoughts to hold
> on to.  I'm not sure that he actually wanted the book published, though.  I
> think it was something more personal that he just wanted to share with
> family and friends.  I appreciate your offer.
>
> I wish everyone here a very healthy and happy holiday and New Year.   Take
> care and be well!
>
> Regards and 18's
> Shaun
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_3334799117472742339_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Thanks so much Shaun.  I always knew he was suffering and he tick on our
>> sufferings too. I miss him so much.  He was helping me with my new thyroid
>> disease while he was in rehab.
>> Have you given some thought to having his book published?  If you decide
>> to have it published I could get my daughter to help you through amazon
>> kindle. He gave me parts of the book and it was so uplifting.  You can feel
>> his love and care come through his pages
>> I especially loved the part about the pair of walking shoes. He left his
>> love on earth and I can still feel his spirit in my daily battle against
>> leukemia and other old age problems he was helping us with.
>> Good luck and keep in touch.
>> Love ya!
>> Jeanie
>>
>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>>
>> Hi Jeanie -
>>
>> That's OK.  My father was getting Tylenol for his pain and Ativan for his
>> anxiety.  He wasn't getting stronger pain medicines because it would give
>> him hallucinations and confusion.  I read to him several times the
>> patient's prayer and the mind of matter mantra to try to help him focus on
>> feeling better.   I hope that brought him some comfort.
>>
>> To everyone in this group I wish a very happy and healthy (belated)
>> Thanksgiving. I am so grateful to see what strong support group you all
>> have with each other and glad that my Dad was able to be a part of it.  I
>> am so thankful and blessed to have had him as my father.
>>
>> Regards and 18's
>> Shaun
>>
>>
>>
>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>>
>>> Hi Shaun
>>> I know you are in a lot of grief and if you don’t feel like talking
>>> about I will understand.
>>> I have never feared death but always feared that I would be in a lot of
>>> pain while dying. My question is did they give your dad pain meds before he
>>> went into hospice?
>>> I miss him so much as he was my advisor as well as my friend.
>>> Prayers to you and yours
>>> Jeanie
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Christian
>>> 

Re: [CMLHope] Hi Shaun question

['Jeanie' via CMLHope]

Thank you Shaun
I miss him too so much. Sometimes I feel like giving up and going into hospice 
but his words keep whispering in my ear: fight on.  
I love the story about the shoes. No he told me he didn’t want the book 
published but I know it would help a lot of people. 
If you change your mind let me know. 
What a great family he had 
Keep in touch 
Happy New Year
Love you so very much 
Jeanie 18

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 31, 2018, at 2:21 AM, Kathy Walls  wrote:
> 
> Please remove my wife from your group Please, she too is gone. Our 
> daughter plays with her phone  she does not to see these posts!  I beg you 
> please remove her
> 
> Sent from my iPhone
> 
>> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
>> 
>> Hi Jeanie - 
>> 
>> I miss him every day.  I'm glad he was able to still help you while he was 
>> in rehab.  He was going through a lot even then, and it just goes to show 
>> that he was a fighter even to the end.  My thoughts and prayers are with you 
>> in beating your disease.
>> 
>> I appreciate your feedback about his book and I agree with you.  I know 
>> those stories well and I'm grateful to have his words and thoughts to hold 
>> on to.  I'm not sure that he actually wanted the book published, though.  I 
>> think it was something more personal that he just wanted to share with 
>> family and friends.  I appreciate your offer.  
>> 
>> I wish everyone here a very healthy and happy holiday and New Year.   Take 
>> care and be well!
>> 
>> Regards and 18's
>> Shaun
>> 
>>  Virus-free. www.avast.com
>> 
>>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>>>  wrote:
>>> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
>>> sufferings too. I miss him so much.  He was helping me with my new thyroid 
>>> disease while he was in rehab. 
>>> Have you given some thought to having his book published?  If you decide to 
>>> have it published I could get my daughter to help you through amazon 
>>> kindle. He gave me parts of the book and it was so uplifting.  You can feel 
>>> his love and care come through his pages 
>>> I especially loved the part about the pair of walking shoes. He left his 
>>> love on earth and I can still feel his spirit in my daily battle against 
>>> leukemia and other old age problems he was helping us with. 
>>> Good luck and keep in touch. 
>>> Love ya!
>>> Jeanie 
>>> 
 On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
 
 Hi Jeanie - 
 
 That's OK.  My father was getting Tylenol for his pain and Ativan for his 
 anxiety.  He wasn't getting stronger pain medicines because it would give 
 him hallucinations and confusion.  I read to him several times the 
 patient's prayer and the mind of matter mantra to try to help him focus on 
 feeling better.   I hope that brought him some comfort.
 
 To everyone in this group I wish a very happy and healthy (belated) 
 Thanksgiving. I am so grateful to see what strong support group you all 
 have with each other and glad that my Dad was able to be a part of it.  I 
 am so thankful and blessed to have had him as my father.
 
 Regards and 18's
 Shaun
 
 
 
> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
>  wrote:
> 
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about 
> I will understand. 
> I have never feared death but always feared that I would be in a lot of 
> pain while dying. My question is did they give your dad pain meds before 
> he went into hospice?   
> I miss him so much as he was my advisor as well as my friend. 
> Prayers to you and yours 
> Jeanie 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>> 
>> Hi Sherri,
>> 
>> This is Shaun.  My family and I greatly appreciate your heartwarming 
>> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) 
>> sends her thanks, as well.
>> 
>> Regards,
>> Shaun
>> 
>>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
>>>  wrote:
>>> Hello Shaun, 
>>> 
>>> I am so 

Re: [CMLHope] Hi Shaun question

[Kathy Walls]

Please remove my wife from your group Please, she too is gone. Our daughter 
plays with her phone  she does not to see these posts!  I beg you please remove 
her

Sent from my iPhone

> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> I miss him every day.  I'm glad he was able to still help you while he was in 
> rehab.  He was going through a lot even then, and it just goes to show that 
> he was a fighter even to the end.  My thoughts and prayers are with you in 
> beating your disease.
> 
> I appreciate your feedback about his book and I agree with you.  I know those 
> stories well and I'm grateful to have his words and thoughts to hold on to.  
> I'm not sure that he actually wanted the book published, though.  I think it 
> was something more personal that he just wanted to share with family and 
> friends.  I appreciate your offer.  
> 
> I wish everyone here a very healthy and happy holiday and New Year.   Take 
> care and be well!
> 
> Regards and 18's
> Shaun
> 
>   Virus-free. www.avast.com
> 
>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>>  wrote:
>> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
>> sufferings too. I miss him so much.  He was helping me with my new thyroid 
>> disease while he was in rehab. 
>> Have you given some thought to having his book published?  If you decide to 
>> have it published I could get my daughter to help you through amazon kindle. 
>> He gave me parts of the book and it was so uplifting.  You can feel his love 
>> and care come through his pages 
>> I especially loved the part about the pair of walking shoes. He left his 
>> love on earth and I can still feel his spirit in my daily battle against 
>> leukemia and other old age problems he was helping us with. 
>> Good luck and keep in touch. 
>> Love ya!
>> Jeanie 
>> 
>>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>>> 
>>> Hi Jeanie - 
>>> 
>>> That's OK.  My father was getting Tylenol for his pain and Ativan for his 
>>> anxiety.  He wasn't getting stronger pain medicines because it would give 
>>> him hallucinations and confusion.  I read to him several times the 
>>> patient's prayer and the mind of matter mantra to try to help him focus on 
>>> feeling better.   I hope that brought him some comfort.
>>> 
>>> To everyone in this group I wish a very happy and healthy (belated) 
>>> Thanksgiving. I am so grateful to see what strong support group you all 
>>> have with each other and glad that my Dad was able to be a part of it.  I 
>>> am so thankful and blessed to have had him as my father.
>>> 
>>> Regards and 18's
>>> Shaun
>>> 
>>> 
>>> 
 On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
  wrote:
 
 Hi Shaun
 I know you are in a lot of grief and if you don’t feel like talking about 
 I will understand. 
 I have never feared death but always feared that I would be in a lot of 
 pain while dying. My question is did they give your dad pain meds before 
 he went into hospice?   
 I miss him so much as he was my advisor as well as my friend. 
 Prayers to you and yours 
 Jeanie 
 My Motto:
 Faith and Pills
 With Love
 Jeanie
 free
 Christian 
 Dx 1/2004 CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna 9/2009
 Started Sprycel 11/2009
 Started Ponatinib 1/ 2015 15 mg
 New Doctor--Dr Martine Extermann
 Moffitt Cancer  center sept 2017
 Dr Balducci retired 
 Dr Gedia PCD
 0 CBL. ABL
 July 2018 dx with thyroid disease tsh 13
 T4-normal t3-normal
 
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
> 
> Hi Sherri,
> 
> This is Shaun.  My family and I greatly appreciate your heartwarming 
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) 
> sends her thanks, as well.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
>>  wrote:
>> Hello Shaun, 
>> 
>> I am so very sorry to hear about your dad. He was such a kind and 
>> gentile man and he will be missed by many.  I wanted to let you know 
>> that I have planted a tree in his name in Israel. May this serve as a 
>> living tribute to his memory. You and your family are in my thoughts and 
>> prayers. Marty will always be in my heart and on my mind.  My heart is 
>> broken knowing I will not receive another message from Marty and we will 
>> no longer share share photos. 
>> 
>> 
>> As long as we live, they too will live; for they are now are a part of 
>> us; as we remember them. 
>> 
>> Regards, 
>> 
>> Sherri Swanson
>> 
>> 
>> 
>> 
>> 
>>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  
>>> wrote:
>>> Hi everyone -
>>> 
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
>>> stories, kind thoughts, 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

I miss him every day.  I'm glad he was able to still help you while he was
in rehab.  He was going through a lot even then, and it just goes to show
that he was a fighter even to the end.  My thoughts and prayers are with
you in beating your disease.

I appreciate your feedback about his book and I agree with you.  I know
those stories well and I'm grateful to have his words and thoughts to hold
on to.  I'm not sure that he actually wanted the book published, though.  I
think it was something more personal that he just wanted to share with
family and friends.  I appreciate your offer.

I wish everyone here a very healthy and happy holiday and New Year.   Take
care and be well!

Regards and 18's
Shaun


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thanks so much Shaun.  I always knew he was suffering and he tick on our
> sufferings too. I miss him so much.  He was helping me with my new thyroid
> disease while he was in rehab.
> Have you given some thought to having his book published?  If you decide
> to have it published I could get my daughter to help you through amazon
> kindle. He gave me parts of the book and it was so uplifting.  You can feel
> his love and care come through his pages
> I especially loved the part about the pair of walking shoes. He left his
> love on earth and I can still feel his spirit in my daily battle against
> leukemia and other old age problems he was helping us with.
> Good luck and keep in touch.
> Love ya!
> Jeanie
>
> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> That's OK.  My father was getting Tylenol for his pain and Ativan for his
> anxiety.  He wasn't getting stronger pain medicines because it would give
> him hallucinations and confusion.  I read to him several times the
> patient's prayer and the mind of matter mantra to try to help him focus on
> feeling better.   I hope that brought him some comfort.
>
> To everyone in this group I wish a very happy and healthy (belated)
> Thanksgiving. I am so grateful to see what strong support group you all
> have with each other and glad that my Dad was able to be a part of it.  I
> am so thankful and blessed to have had him as my father.
>
> Regards and 18's
> Shaun
>
>
>
> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>>
>> Hi Shaun
>> I know you are in a lot of grief and if you don’t feel like talking about
>> I will understand.
>> I have never feared death but always feared that I would be in a lot of
>> pain while dying. My question is did they give your dad pain meds before he
>> went into hospice?
>> I miss him so much as he was my advisor as well as my friend.
>> Prayers to you and yours
>> Jeanie
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>>
>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>>
>> Hi Sherri,
>>
>> This is Shaun.  My family and I greatly appreciate your heartwarming
>> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
>> her thanks, as well.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
>> swanson.sherri...@gmail.com> wrote:
>>
>>> Hello Shaun,
>>>
>>> I am so very sorry to hear about your dad. He was such a kind and
>>> gentile man and he will be missed by many.  I wanted to let you know that I
>>> have planted a tree in his name in Israel. May this serve as a living
>>> tribute to his memory. You and your family are in my thoughts and prayers.
>>> Marty will always be in my heart and on my mind.  My heart is broken
>>> knowing I will not receive another message from Marty and we will no longer
>>> share share photos.
>>>
>>>
>>>
>>> *As long as we live, they too will live; for they are now are a part of
>>> us; as we remember them. *
>>>
>>> Regards,
>>>
>>> Sherri Swanson
>>>
>>>
>>>
>>>
>>>
>>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg 
>>> wrote:
>>>
 Hi everyone -

 This is Marty's son, Shaun, again.  Thank-you all so much for all the
 stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
 are all so grateful to know how loved he was and how he was able to touch
 so many lives in a profound way.

 Hi Wayne - please do not cancel this thread.  I am still checking in on
 it and relaying to rest 

Re: [CMLHope] Hi Shaun question

['Icandoallttc' via CMLHope]

Thanks so much Shaun.  I always knew he was suffering and he tick on our 
sufferings too. I miss him so much.  He was helping me with my new thyroid 
disease while he was in rehab. 
Have you given some thought to having his book published?  If you decide to 
have it published I could get my daughter to help you through amazon kindle. He 
gave me parts of the book and it was so uplifting.  You can feel his love and 
care come through his pages 
I especially loved the part about the pair of walking shoes. He left his love 
on earth and I can still feel his spirit in my daily battle against leukemia 
and other old age problems he was helping us with. 
Good luck and keep in touch. 
Love ya!
Jeanie 

> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> That's OK.  My father was getting Tylenol for his pain and Ativan for his 
> anxiety.  He wasn't getting stronger pain medicines because it would give him 
> hallucinations and confusion.  I read to him several times the patient's 
> prayer and the mind of matter mantra to try to help him focus on feeling 
> better.   I hope that brought him some comfort.
> 
> To everyone in this group I wish a very happy and healthy (belated) 
> Thanksgiving. I am so grateful to see what strong support group you all have 
> with each other and glad that my Dad was able to be a part of it.  I am so 
> thankful and blessed to have had him as my father.
> 
> Regards and 18's
> Shaun
> 
> 
> 
>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
>>  wrote:
>> 
>> Hi Shaun
>> I know you are in a lot of grief and if you don’t feel like talking about I 
>> will understand. 
>> I have never feared death but always feared that I would be in a lot of pain 
>> while dying. My question is did they give your dad pain meds before he went 
>> into hospice?  
>> I miss him so much as he was my advisor as well as my friend. 
>> Prayers to you and yours 
>> Jeanie 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> 
>>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>>> 
>>> Hi Sherri,
>>> 
>>> This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
>>> Thank you so very much for that.  My Mom (his wife, Rachelle) sends her 
>>> thanks, as well.
>>> 
>>> Regards,
>>> Shaun
>>> 
 On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
  wrote:
 Hello Shaun, 
 
 I am so very sorry to hear about your dad. He was such a kind and gentile 
 man and he will be missed by many.  I wanted to let you know that I have 
 planted a tree in his name in Israel. May this serve as a living tribute 
 to his memory. You and your family are in my thoughts and prayers. Marty 
 will always be in my heart and on my mind.  My heart is broken knowing I 
 will not receive another message from Marty and we will no longer share 
 share photos. 
 
 
 As long as we live, they too will live; for they are now are a part of us; 
 as we remember them. 
 
 Regards, 
 
 Sherri Swanson
 
 
 
 
 
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
> Hi everyone -
> 
> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  
> We are all so grateful to know how loved he was and how he was able to 
> touch so many lives in a profound way.  
> 
> Hi Wayne - please do not cancel this thread.  I am still checking in on 
> it and relaying to rest of my family.  Just as he helped others, you all 
> are helping us, and we appreciate that, so much.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>> Please cancel.  Subscriber is deceased.
>> 
>>  
>> 
>>  
>> 
>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>> Sent: November-14-18 5:14 AM
>> To: Digest recipients
>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 
>> topic
>> 
>>  
>> 
>> cmlhope@googlegroups.com
>> 
>> Google Groups
>> 
>> 
>> 
>> Topic digest 
>> View all topics
>> 
>> ·   Update on Marty G - 1 Update
>> 
>> Update on Marty G
>> 
>> Tracie Camlin : Nov 13 06:50AM -0600 
>> 
>> Dear Shaun and Family,
>>  
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

That's OK.  My father was getting Tylenol for his pain and Ativan for his
anxiety.  He wasn't getting stronger pain medicines because it would give
him hallucinations and confusion.  I read to him several times the
patient's prayer and the mind of matter mantra to try to help him focus on
feeling better.   I hope that brought him some comfort.

To everyone in this group I wish a very happy and healthy (belated)
Thanksgiving. I am so grateful to see what strong support group you all
have with each other and glad that my Dad was able to be a part of it.  I
am so thankful and blessed to have had him as my father.

Regards and 18's
Shaun



On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about
> I will understand.
> I have never feared death but always feared that I would be in a lot of
> pain while dying. My question is did they give your dad pain meds before he
> went into hospice?
> I miss him so much as he was my advisor as well as my friend.
> Prayers to you and yours
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>
> Hi Sherri,
>
> This is Shaun.  My family and I greatly appreciate your heartwarming
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
> her thanks, as well.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
> swanson.sherri...@gmail.com> wrote:
>
>> Hello Shaun,
>>
>> I am so very sorry to hear about your dad. He was such a kind and gentile
>> man and he will be missed by many.  I wanted to let you know that I have
>> planted a tree in his name in Israel. May this serve as a living tribute to
>> his memory. You and your family are in my thoughts and prayers. Marty will
>> always be in my heart and on my mind.  My heart is broken knowing I will
>> not receive another message from Marty and we will no longer share share
>> photos.
>>
>>
>>
>> *As long as we live, they too will live; for they are now are a part of
>> us; as we remember them. *
>>
>> Regards,
>>
>> Sherri Swanson
>>
>>
>>
>>
>>
>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg 
>> wrote:
>>
>>> Hi everyone -
>>>
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>>> are all so grateful to know how loved he was and how he was able to touch
>>> so many lives in a profound way.
>>>
>>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>>> it and relaying to rest of my family.  Just as he helped others, you all
>>> are helping us, and we appreciate that, so much.
>>>
>>> Regards,
>>> Shaun
>>>
>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>>
 Please cancel.  Subscriber is deceased.





 *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
 *Sent:* November-14-18 5:14 AM
 *To:* Digest recipients
 *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
 1 topic



 cmlhope@googlegroups.com

 Google Groups
 

 [image: Image removed by sender.]
 

 Topic digest
 View all topics

 ·   Update on Marty G
 <#m_-5400076634479963663_m_-6603616516388195345_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
 - 1 Update

 Update on Marty G
 

 Tracie Camlin : Nov 13 06:50AM -0600

 Dear Shaun and Family,

 I am so sorry for your loss. He was truly an amazing person who inspired
 and supported so many of us. His strength and courage held me up at
 times
 he didn't even know about. He will be missed. Blessings and much love to
 you and your family.

 Best Regards
 Tracie Mulvaney

 On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <

 Back to top
 <#m_-5400076634479963663_m_-6603616516388195345_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>

 You received this digest because you're subscribed to updates for 

Re: [CMLHope] Hi Shaun question

[sherri swanson]

Happy Thanksgiving to all my CML friends. May you have a blessed day with
family and friends today. And remember those we have lost.

Sherri

On Thu, Nov 22, 2018 at 6:03 AM myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> And the same to you also Beth and my other CML friends.
>
> greenie
>
>
> -Original Message-
> From: bkbarney via CMLHope 
> To: cmlhope 
> Sent: Wed, Nov 21, 2018 10:22 pm
> Subject: Re: [CMLHope] Hi Shaun question
>
> Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a
> peaceful and Joyful Thanksgiving. I know the holidays can be very grief
> inspiring when we have lost those we love both recently and in the past..
> As I reflect upon the things I am most thankful for this holiday season,
> Marty is one of them. So are each of you who read what I right and even if
> you do not respond, say prayers for me and the rest of us.
>
> Wishing you all a happy holiday.
>
> !8's and love,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Wed, Nov 21, 2018 11:59 am
> Subject: [CMLHope] Hi Shaun question
>
>
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about
> I will understand.
> I have never feared death but always feared that I would be in a lot of
> pain while dying. My question is did they give your dad pain meds before he
> went into hospice?
> I miss him so much as he was my advisor as well as my friend.
> Prayers to you and yours
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>
> Hi Sherri,
>
> This is Shaun.  My family and I greatly appreciate your heartwarming
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
> her thanks, as well.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
> swanson.sherri...@gmail.com> wrote:
>
> Hello Shaun,
>
> I am so very sorry to hear about your dad. He was such a kind and gentile
> man and he will be missed by many.  I wanted to let you know that I have
> planted a tree in his name in Israel. May this serve as a living tribute to
> his memory. You and your family are in my thoughts and prayers. Marty will
> always be in my heart and on my mind.  My heart is broken knowing I will
> not receive another message from Marty and we will no longer share share
> photos.
>
>
>
> *As long as we live, they too will live; for they are now are a part of
> us; as we remember them. *
>
> Regards,
>
> Sherri Swanson
>
>
>
>
>
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>
> Hi everyone -
>
> This is Marty's son, Shaun, again.  Thank-you all so much for all the
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
> are all so grateful to know how loved he was and how he was able to touch
> so many lives in a profound way.
>
> Hi Wayne - please do not cancel this thread.  I am still checking in on it
> and relaying to rest of my family.  Just as he helped others, you all are
> helping us, and we appreciate that, so much.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>
> Please cancel.  Subscriber is deceased.
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* November-14-18 5:14 AM
> *To:* Digest recipients
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
> topic
>
> cmlhope@googlegroups.com
> Google Groups
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> [image: Image removed by sender.]
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> Topic digest
> View all topics
> ·   Update on Marty G
> <#m_1282255373636162916_aolmail_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
> - 1 Update
> Update on Marty G
> <http://groups.google.com/group/cmlhope/t/6cc017786923e7b6?utm_source=digest_medium=email>
> Tracie Camlin : Nov 13 06:50AM -0600
>
> Dear Shaun and Family,
>
> I am so sorry for your loss. He was truly an amazing person who ins

Re: [CMLHope] Hi Shaun question

[myvety2k via CMLHope]

And the same to you also Beth and my other CML friends.
greenie

-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 10:22 pm
Subject: Re: [CMLHope] Hi Shaun question

Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a 
peaceful and Joyful Thanksgiving. I know the holidays can be very grief 
inspiring when we have lost those we love both recently and in the past.. As I 
reflect upon the things I am most thankful for this holiday season, Marty is 
one of them. So are each of you who read what I right and even if you do not 
respond, say prayers for me and the rest of us.
Wishing you all a happy holiday.
!8's and love, 
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 11:59 am
Subject: [CMLHope] Hi Shaun question


Hi ShaunI know you are in a lot of grief and if you don’t feel like talking 
about I will understand. I have never feared death but always feared that I 
would be in a lot of pain while dying. My question is did they give your dad 
pain meds before he went into hospice?   I miss him so much as he was my 
advisor as well as my friend. Prayers to you and yours Jeanie 
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:


Hi Sherri,
This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her thanks, 
as well.
Regards,Shaun
On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
wrote:

Hello Shaun, 

I am so very sorry to hear about your dad. He was such a kind and gentile man 
and he will be missed by many.  I wanted to let you know that I have planted a 
tree in his name in Israel. May this serve as a living tribute to his memory. 
You and your family are in my thoughts and prayers. Marty will always be in my 
heart and on my mind.  My heart is broken knowing I will not receive another 
message from Marty and we will no longer share share photos. 


As long as we live, they too will live; for they are now are a part of us; as 
we remember them. 

Regards, 

Sherri Swanson




On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:

Hi everyone -
This is Marty's son, Shaun, again.  Thank-you all so much for all the stories, 
kind thoughts, wishes, and prayers for my Dad and our family.  We are all so 
grateful to know how loved he was and how he was able to touch so many lives in 
a profound way.  
Hi Wayne - please do not cancel this thread.  I am still checking in on it and 
relaying to rest of my family.  Just as he helped others, you all are helping 
us, and we appreciate that, so much.
Regards,Shaun
On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

Please cancel.  Subscriber is deceased.  From: cmlhope@googlegroups.com 
[mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic 
| cmlhope@googlegroups.com  | Google Groups  |  |

Topic digest 
View all topics ·   Update on Marty G - 1 Update Update on Marty G 
| Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < |

Back to top 
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You can change your settings on the group membership page.
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to cmlhope+unsubscr...@googlegroups.com.  |

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Re: [CMLHope] Hi Shaun question

[bkbarney via CMLHope]

Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a 
peaceful and Joyful Thanksgiving. I know the holidays can be very grief 
inspiring when we have lost those we love both recently and in the past.. As I 
reflect upon the things I am most thankful for this holiday season, Marty is 
one of them. So are each of you who read what I right and even if you do not 
respond, say prayers for me and the rest of us.


Wishing you all a happy holiday.


!8's and love, 


Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 11:59 am
Subject: [CMLHope] Hi Shaun question



Hi Shaun
I know you are in a lot of grief and if you don’t feel like talking about I 
will understand. 
I have never feared death but always feared that I would be in a lot of pain 
while dying. My question is did they give your dad pain meds before he went 
into hospice?   
I miss him so much as he was my advisor as well as my friend. 
Prayers to you and yours 
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:



Hi Sherri,


This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her thanks, 
as well.


Regards,
Shaun


On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
wrote:


Hello Shaun, 



I am so very sorry to hear about your dad. He was such a kind and gentile man 
and he will be missed by many.  I wanted to let you know that I have planted a 
tree in his name in Israel. May this serve as a living tribute to his memory. 
You and your family are in my thoughts and prayers. Marty will always be in my 
heart and on my mind.  My heart is broken knowing I will not receive another 
message from Marty and we will no longer share share photos. 





As long as we live, they too will live; for they are now are a part of us; as 
we remember them. 



Regards, 



Sherri Swanson











On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:


Hi everyone -


This is Marty's son, Shaun, again.  Thank-you all so much for all the stories, 
kind thoughts, wishes, and prayers for my Dad and our family.  We are all so 
grateful to know how loved he was and how he was able to touch so many lives in 
a profound way.  


Hi Wayne - please do not cancel this thread.  I am still checking in on it and 
relaying to rest of my family.  Just as he helped others, you all are helping 
us, and we appreciate that, so much.


Regards,
Shaun


On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:



Please cancel.  Subscriber is deceased.
 
 
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
 



cmlhope@googlegroups.com 

Google Groups 






Topic digest 
View all topics 

·   Update on Marty G - 1 Update 

Update on Marty G 



Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <



Back to top 




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To unsubscribe from this group

[CMLHope] Hi Shaun question

['Jeanie' via CMLHope]

Hi Shaun
I know you are in a lot of grief and if you don’t feel like talking about I 
will understand. 
I have never feared death but always feared that I would be in a lot of pain 
while dying. My question is did they give your dad pain meds before he went 
into hospice?   
I miss him so much as he was my advisor as well as my friend. 
Prayers to you and yours 
Jeanie 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
> 
> Hi Sherri,
> 
> This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
> Thank you so very much for that.  My Mom (his wife, Rachelle) sends her 
> thanks, as well.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
>> wrote:
>> Hello Shaun, 
>> 
>> I am so very sorry to hear about your dad. He was such a kind and gentile 
>> man and he will be missed by many.  I wanted to let you know that I have 
>> planted a tree in his name in Israel. May this serve as a living tribute to 
>> his memory. You and your family are in my thoughts and prayers. Marty will 
>> always be in my heart and on my mind.  My heart is broken knowing I will not 
>> receive another message from Marty and we will no longer share share photos. 
>> 
>> 
>> As long as we live, they too will live; for they are now are a part of us; 
>> as we remember them. 
>> 
>> Regards, 
>> 
>> Sherri Swanson
>> 
>> 
>> 
>> 
>> 
>>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>>> Hi everyone -
>>> 
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
>>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We 
>>> are all so grateful to know how loved he was and how he was able to touch 
>>> so many lives in a profound way.  
>>> 
>>> Hi Wayne - please do not cancel this thread.  I am still checking in on it 
>>> and relaying to rest of my family.  Just as he helped others, you all are 
>>> helping us, and we appreciate that, so much.
>>> 
>>> Regards,
>>> Shaun
>>> 
 On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
 Please cancel.  Subscriber is deceased.
 
  
 
  
 
 From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
 Sent: November-14-18 5:14 AM
 To: Digest recipients
 Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 
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 cmlhope@googlegroups.com
 
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 ·   Update on Marty G - 1 Update
 
 Update on Marty G
 
 Tracie Camlin : Nov 13 06:50AM -0600 
 
 Dear Shaun and Family,
  
 I am so sorry for your loss. He was truly an amazing person who inspired
 and supported so many of us. His strength and courage held me up at times
 he didn't even know about. He will be missed. Blessings and much love to
 you and your family.
  
 Best Regards
 Tracie Mulvaney
  
 On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
 
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Re: [CMLHope] Hi john

[Jamie Tufariello]

On Wednesday, October 7, 2015, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi john and how are you?
> Are you in remission?
> I just found out I was in cr molecular remission in July  after 7 months
> on ponatinib.  My onc never really talked to me about it.  Strange.
> Let us know how you are.
>
> My Motto: Faith and Pills
> Jeanie 18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> --
> --
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Re: [CMLHope] Hi Everyone its been awhile

[Shannon L]

Hi Jeanie

Thankyou I don't feel young, I hope to better better soon one day at a time 
I suppose and yes I will keep doing photography it has saved my life 
besides my son and Glivec

Glad you have found another drug that works for you, you have certainly 
been on a few I hope the side affects are not too bad.

Love Shannon


On Friday, March 25, 2016 at 5:32:57 AM UTC+11, Icandoallttc wrote:
>
> Hi Shannon and great to hear from you.   So happy Gleevec is working.   It 
> quit working for me after 5 years as you probably remember.  
> I am now on one of the new generation of drugs called Ponatinib. It is 
> working for me for one year now. 
> You are still a young chick. Keep fighting and taking pictures.  Your son 
> sounds wonderful.  
> Love and happy Easter to you!!!
>
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 24, 2016, at 6:41 AM, Shannon L  
> wrote:
>
> I checked out a few posts good to see a few I remember. I hope everyone is 
> doing well.
> I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the 
> year I have just past my 18yr of CML.
> Im since on Glivec 400mg and still in remission ( with a few problems as 
> to be expected.
>
> I will have some major financial decisions to make soon but I have seen my 
> son complete high school and he is now studying for a yr at TAFE and 
> working part time now if he would only get his car licence but I will 
> probably worry more when he gets it. 
>
> I have my own photography business which I work around my health as much 
> as I can I find as I get older now 56 I do find it harder I recently had 
> the worst chest infection that I can remember.
>
> I am still dreaming of doing some travelling OS and around Australia so I 
> hope I can make this happen 
>
> I wish everyone a safe easter 
> love to all Shannon xo
>
> -- 
> -- 
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Re: [CMLHope] Hi Everyone its been awhile

['Icandoallttc' via CMLHope]

Hi Shannon and great to hear from you.   So happy Gleevec is working.   It quit 
working for me after 5 years as you probably remember.  
I am now on one of the new generation of drugs called Ponatinib. It is working 
for me for one year now. 
You are still a young chick. Keep fighting and taking pictures.  Your son 
sounds wonderful.  
Love and happy Easter to you!!!


My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 24, 2016, at 6:41 AM, Shannon L  wrote:
> 
> I checked out a few posts good to see a few I remember. I hope everyone is 
> doing well.
> I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the year 
> I have just past my 18yr of CML.
> Im since on Glivec 400mg and still in remission ( with a few problems as to 
> be expected.
> 
> I will have some major financial decisions to make soon but I have seen my 
> son complete high school and he is now studying for a yr at TAFE and working 
> part time now if he would only get his car licence but I will probably worry 
> more when he gets it. 
> 
> I have my own photography business which I work around my health as much as I 
> can I find as I get older now 56 I do find it harder I recently had the worst 
> chest infection that I can remember.
> 
> I am still dreaming of doing some travelling OS and around Australia so I 
> hope I can make this happen 
> 
> I wish everyone a safe easter 
> love to all Shannon xo
> 
> -- 
> -- 
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[CMLHope] Hi Everyone its been awhile

[Shannon L]

I checked out a few posts good to see a few I remember. I hope everyone is 
doing well.
I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the 
year I have just past my 18yr of CML.
Im since on Glivec 400mg and still in remission ( with a few problems as to 
be expected.

I will have some major financial decisions to make soon but I have seen my 
son complete high school and he is now studying for a yr at TAFE and 
working part time now if he would only get his car licence but I will 
probably worry more when he gets it. 

I have my own photography business which I work around my health as much as 
I can I find as I get older now 56 I do find it harder I recently had the 
worst chest infection that I can remember.

I am still dreaming of doing some travelling OS and around Australia so I 
hope I can make this happen 

I wish everyone a safe easter 
love to all Shannon xo

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[CMLHope] Hi Beth

['Icandoallttc' via CMLHope]

Hi Beth and so glad to hear from you but sorry you've been so sick.  Prayers 
that you will be up and running soon. 
I was worried when you went off the meds because I got ACL when I went off 
mine.  My platelets and WBC went into the millions. I have never been able to 
go off.   
Keep fighting Beth. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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Re: [CMLHope] Hi john 11th month on ponatinib

[Richard H]

Thanks.  A doctor suggested a med that was causing the problem and called 
the Dr. prescribing it to put in on an ask for.  Right now we are dealing 
mental stress and worry.  I found she is taking medication but nurses and 
therapy are suggesting a change.  She is jumping from highs to lows and 
worrying about things she has no control over.  

The good news is that her healing is progressing, just not as fast as we 
and the therapists like.

Richard h.

On Friday, November 13, 2015 at 9:19:04 AM UTC-6, Icandoallttc wrote:
>
> Hi Richard,
> I was my hubbies caregiver and we had an episode of him being very 
> grouchy.  He had been given several drugs and he finally told his doctor 
> that his wife was going to divorce him if he didn't take him off the drug. 
>  Of course I never would have but he seemed to know it was a drug causing 
> problem.  
> Have your pharmacy see if some if the drugs she takes can be causing a 
> problem.   
> Being ill is not fun and a care giver goes through the trials right along 
> with their sick love one. 
> My hubby went to heaven 17 years a go and I say "love them while you got 
> them" with all your heart. 
> Good luck to both of you. 
>
> My Motto: Faith and Pills
> Jeanie 18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Nov 13, 2015, at 12:17 AM, Richard H  
> wrote:
>
> Thanks Marty.  Joyce(my wife) read it and promised she would try to be 
> positive.  I told a therapy nurse and a floor nurse in rehab that the  
> message was in her room and after they read it it would be okay for them to 
> copy it and use it to help other patients when their depression is stopping 
> them, so they regain the positive side of life.
>
>   Richard H. 
>
> On Thursday, November 12, 2015 at 6:55:44 AM UTC-6, wa2yyx wrote:
>>
>> Hi Richard,
>>
>> Am am glad that this will help your wife, it did many times for me and my 
>> wife.
>>
>> Sorry that her healing is not as both of you expected, but sorry may not 
>> be the right word. What I mean it that when things may not be as you 
>> expected then just look at it as if there no healing at all. Our lives are 
>> always in the healing process, some just take a bit longer and some are 
>> just plain miracles. 
>>
>> Now I am not talking about someone on their death bed but just healing. 
>> Please just be patient, and look at where I am today. Remember, FOCUS, and 
>> I think that I have mentioned this many times. 
>>
>> You know that I am not immortal just trying to live my life as best as I 
>> can and there will always be some bumps along the road, but we just have to 
>> be able to deal with them as best as we can.
>>
>> I keep on mentioning those numbers 18's maybe you should really sit back 
>> and give that some serious thought. I do, each and every time that I end a 
>> post.
>>
>> I should most probably be gone by now but it is my attitude that keeps me 
>> going. And you already know that I don't give "pep talks" just honest 
>> advice at least from me to anyone else that may be helped as well as to me 
>> from anyone else.
>>
>> One more thing: I keep on saying that I am not the so called leader of 
>> this group or any other groups for that matter because we are all the 
>> leaders. If you have CML, and post even one thing that goes to either help 
>> yourself or have someone help you or anyone else then that is called being 
>> a leader.  
>>
>> 18's
>>
>> Marty
>>
>> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:
>>
>>> Thanks Marti!  This is something I need to share with my wife.  Things 
>>> are progressing with her healing but not on her schedule.  I was in need of 
>>> some help and this is perfect for this moment in time.
>>>
>>> Richard H.
>>>
>>> On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:

 Oh Jeanie, Jeanie what am I going to do with you? Everything that you 
 must be going through and I can say that I am familiar with most of this 
 stuff. Been there and done that, but I just know that your going to be 
 alright. 

 It's the same for me and mostly everyone that has to go through any 
 type of health problems, because they are usually frightened about what 
 will happen. 

 Now can I say that have I ever been frightened, and my answer is yes. 
 However I just have to do whatever I need to do to keep myself going and 
 so 
 far no matter what I was put through I am still running around and still 
 living, well so far I am. 

 It's the attitude of people that really matters. A lot of people may 
 not understand me or my attitude because of the way I keep my life in 
 order. If I were to wander around with everything that I have already been 
 through then How would my lief be?  I don't think that it would be as good 
 as I would like 

Re: [CMLHope] Hi john 11th month on ponatinib

[Richard H]

Thanks!!

Richard H.

On Thursday, November 12, 2015 at 11:55:03 PM UTC-6, wa2yyx wrote:
>
> Hi Joyce, this is for you.
>
> So you sound like a real sweet person, so why should you loose even a 
> grain of your sweetness because of not trying to be positive because did 
> you know that it takes a positive person to have a positive mind...
>
> Be sure to gain your attitude and smile every once in a while.
>
> 18's
>
> Marty
>
>  *Have a Happy Everything* 
>
>  *May you always know **how appreciated you are.*
>
> *May you never forget what a blessing **you've become to a world that 
> could use more people like you.*
>
> *May you reap the rewards of kindness*
>
> *May your sunshine always shine through*
>
> *May love walk by your side.*
>
> *May friendship sing in your smile*
>
>
> *May opportunity remember to knock onyour* *door and surprise you 
> once in a while.*
>
>
> *May your memories be ones that you**wouldn't trade.*
>
> *May your hopes and dreams **find ways of coming true. *
>
> *May*
> *You never forget how dearly 1 wish a Happy...'Everything' for you.*
>
>
>
>
>
>
>
>
>
>
> On Fri, Nov 13, 2015 at 12:17 AM, Richard H  > wrote:
>
>> Thanks Marty.  Joyce(my wife) read it and promised she would try to be 
>> positive.  I told a therapy nurse and a floor nurse in rehab that the  
>> message was in her room and after they read it it would be okay for them to 
>> copy it and use it to help other patients when their depression is stopping 
>> them, so they regain the positive side of life.
>>
>>   Richard H. 
>>
>> On Thursday, November 12, 2015 at 6:55:44 AM UTC-6, wa2yyx wrote:
>>>
>>> Hi Richard,
>>>
>>> Am am glad that this will help your wife, it did many times for me and 
>>> my wife.
>>>
>>> Sorry that her healing is not as both of you expected, but sorry may not 
>>> be the right word. What I mean it that when things may not be as you 
>>> expected then just look at it as if there no healing at all. Our lives are 
>>> always in the healing process, some just take a bit longer and some are 
>>> just plain miracles. 
>>>
>>> Now I am not talking about someone on their death bed but just healing. 
>>> Please just be patient, and look at where I am today. Remember, FOCUS, and 
>>> I think that I have mentioned this many times. 
>>>
>>> You know that I am not immortal just trying to live my life as best as I 
>>> can and there will always be some bumps along the road, but we just have to 
>>> be able to deal with them as best as we can.
>>>
>>> I keep on mentioning those numbers 18's maybe you should really sit back 
>>> and give that some serious thought. I do, each and every time that I end a 
>>> post.
>>>
>>> I should most probably be gone by now but it is my attitude that keeps 
>>> me going. And you already know that I don't give "pep talks" just honest 
>>> advice at least from me to anyone else that may be helped as well as to me 
>>> from anyone else.
>>>
>>> One more thing: I keep on saying that I am not the so called leader of 
>>> this group or any other groups for that matter because we are all the 
>>> leaders. If you have CML, and post even one thing that goes to either help 
>>> yourself or have someone help you or anyone else then that is called being 
>>> a leader.  
>>>
>>> 18's
>>>
>>> Marty
>>>
>>> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:
>>>
 Thanks Marti!  This is something I need to share with my wife.  Things 
 are progressing with her healing but not on her schedule.  I was in need 
 of 
 some help and this is perfect for this moment in time.

 Richard H.

 On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
>
> Oh Jeanie, Jeanie what am I going to do with you? Everything that you 
> must be going through and I can say that I am familiar with most of this 
> stuff. Been there and done that, but I just know that your going to be 
> alright. 
>
> It's the same for me and mostly everyone that has to go through any 
> type of health problems, because they are usually frightened about what 
> will happen. 
>
> Now can I say that have I ever been frightened, and my answer is yes. 
> However I just have to do whatever I need to do to keep myself going and 
> so 
> far no matter what I was put through I am still running around and still 
> living, well so far I am. 
>
> It's the attitude of people that really matters. A lot of people may 
> not understand me or my attitude because of the way I keep my life in 
> order. If I were to wander around with everything that I have already 
> been 
> through then How would my lief be?  I don't think that it would be as 
> good 
> as I would like it to be. Doesn't everyone understand why I always end 
> any 
> of my posts with 18's? It's *because of living my life*
>
> Jeanie let me remind you, and by the way 

Re: [CMLHope] Hi john 11th month on ponatinib

['Icandoallttc' via CMLHope]

Hi Richard,
I was my hubbies caregiver and we had an episode of him being very grouchy.  He 
had been given several drugs and he finally told his doctor that his wife was 
going to divorce him if he didn't take him off the drug.  Of course I never 
would have but he seemed to know it was a drug causing problem.  
Have your pharmacy see if some if the drugs she takes can be causing a problem. 
  
Being ill is not fun and a care giver goes through the trials right along with 
their sick love one. 
My hubby went to heaven 17 years a go and I say "love them while you got them" 
with all your heart. 
Good luck to both of you. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Nov 13, 2015, at 12:17 AM, Richard H  wrote:
> 
> Thanks Marty.  Joyce(my wife) read it and promised she would try to be 
> positive.  I told a therapy nurse and a floor nurse in rehab that the  
> message was in her room and after they read it it would be okay for them to 
> copy it and use it to help other patients when their depression is stopping 
> them, so they regain the positive side of life.
> 
>   Richard H. 
> 
>> On Thursday, November 12, 2015 at 6:55:44 AM UTC-6, wa2yyx wrote:
>> Hi Richard,
>> 
>> Am am glad that this will help your wife, it did many times for me and my 
>> wife.
>> 
>> Sorry that her healing is not as both of you expected, but sorry may not be 
>> the right word. What I mean it that when things may not be as you expected 
>> then just look at it as if there no healing at all. Our lives are always in 
>> the healing process, some just take a bit longer and some are just plain 
>> miracles. 
>> 
>> Now I am not talking about someone on their death bed but just healing. 
>> Please just be patient, and look at where I am today. Remember, FOCUS, and I 
>> think that I have mentioned this many times. 
>> 
>> You know that I am not immortal just trying to live my life as best as I can 
>> and there will always be some bumps along the road, but we just have to be 
>> able to deal with them as best as we can.
>> 
>> I keep on mentioning those numbers 18's maybe you should really sit back and 
>> give that some serious thought. I do, each and every time that I end a post.
>> 
>> I should most probably be gone by now but it is my attitude that keeps me 
>> going. And you already know that I don't give "pep talks" just honest advice 
>> at least from me to anyone else that may be helped as well as to me from 
>> anyone else.
>> 
>> One more thing: I keep on saying that I am not the so called leader of this 
>> group or any other groups for that matter because we are all the leaders. If 
>> you have CML, and post even one thing that goes to either help yourself or 
>> have someone help you or anyone else then that is called being a leader.  
>> 
>> 18's
>> 
>> Marty
>> 
>>> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:
>>> Thanks Marti!  This is something I need to share with my wife.  Things are 
>>> progressing with her healing but not on her schedule.  I was in need of 
>>> some help and this is perfect for this moment in time.
>>> 
>>> Richard H.
>>> 
 On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
 Oh Jeanie, Jeanie what am I going to do with you? Everything that you must 
 be going through and I can say that I am familiar with most of this stuff. 
 Been there and done that, but I just know that your going to be alright. 
 
 It's the same for me and mostly everyone that has to go through any type 
 of health problems, because they are usually frightened about what will 
 happen. 
 
 Now can I say that have I ever been frightened, and my answer is yes. 
 However I just have to do whatever I need to do to keep myself going and 
 so far no matter what I was put through I am still running around and 
 still living, well so far I am. 
 
 It's the attitude of people that really matters. A lot of people may not 
 understand me or my attitude because of the way I keep my life in order. 
 If I were to wander around with everything that I have already been 
 through then How would my lief be?  I don't think that it would be as good 
 as I would like it to be. Doesn't everyone understand why I always end any 
 of my posts with 18's? It's because of living my life
 
 Jeanie let me remind you, and by the way everyone else for that matter of 
 a poem that I have already sent. And please if you will notice the very 
 last word,
 
 18's
 
 Marty
 
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN 
 YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET 
 (MIND OVER 

Re: [CMLHope] Hi john 11th month on ponatinib

['Icandoallttc' via CMLHope]

Hi Susan and so glad to hear from you. 
I had a ct scan the first of the year and they found nothing to indicate what 
was causing my side pain. 
They did find some nodes on my lungs and the onc was more concerned over these. 
I have had this pain in my side for years but nothing shows up on testing. 
I can only have scans done when my onc sets them up at Moffitt. So I am seeing 
him the first of Dec and will get it set up then. 

I have been fighting this leukemia for 11 years now and you know how I fight it!
I love that you say I am in His hands because that is just how I feel. We don't 
understand why we go through these trials but One knows and is watching over 
us. 
I remember when I was in the hospital getting my blood cleansed.  I had this 
tube sticking out of my neck; the blood cleansing machine was taking my blood 
out, cleansing it and putting it back in.   All I could think to do was to say 
psalms 23.   I have repeated this psalm many times since.  
Keep up the good work and happy thought to you today. 




My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Nov 12, 2015, at 8:01 PM, 'Susan Zimmerman' via CMLHope 
> <cmlhope@googlegroups.com> wrote:
> 
> Hi Jeanie, 
> I know you know that you are in the palm of His hand and He is watching over 
> you. A great response for brain fog foibles is this"Yes, I am having a 
> smooth transition into senility." Might as well laugh cuz it makes others 
> laugh also.
> 
> The side pain is I'm sure hard to ignore. Why wait til January for a pet 
> scan? Seems like it will cost you less if you get it this year due to 
> deductibles, etc. Remember you are your best advocate...no one knows your 
> body like you. 
> 
> Sounds like your numbers are tolerable. I had to increase my bosulif to 200 
> mg and doing just fine so far.
> 
> May we all be thankful in this season for the many blessings we all enjoy in 
> this USA. I know I am thankful I don't have to hold down a j.o.b. anymore, 
> but enjoy retirement. While my hubby still is working his bippy off! 
> 
> 18's and blessings, Susan Z.
> 
> 
> 
> Sent from my Sprint phone
> 
> -- Original message--
> From: Marty Gartenberg
> Date: Wed, Nov 11, 2015 12:02 PM
> To: cmlhope@googlegroups.com;
> Subject:Re: [CMLHope] Hi john 11th month on ponatinib
> 
> Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be 
> going through and I can say that I am familiar with most of this stuff. Been 
> there and done that, but I just know that your going to be alright. 
> 
> It's the same for me and mostly everyone that has to go through any type of 
> health problems, because they are usually frightened about what will happen. 
> 
> Now can I say that have I ever been frightened, and my answer is yes. However 
> I just have to do whatever I need to do to keep myself going and so far no 
> matter what I was put through I am still running around and still living, 
> well so far I am. 
> 
> It's the attitude of people that really matters. A lot of people may not 
> understand me or my attitude because of the way I keep my life in order. If I 
> were to wander around with everything that I have already been through then 
> How would my lief be?  I don't think that it would be as good as I would like 
> it to be. Doesn't everyone understand why I always end any of my posts with 
> 18's? It's because of living my life
> 
> Jeanie let me remind you, and by the way everyone else for that matter of a 
> poem that I have already sent. And please if you will notice the very last 
> word,
> 
> 18's
> 
> Marty
> 
> EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. 
> TO HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF 
> YOU EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) 
> IF YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET.
> 
> WHAT WE HAVE TO LEARNTO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
> MIND. LEARN TO EXPECT ANDNOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
> INTO THE REALM OF POSSIBILITY.WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT 
> TO BE IMPOSSIBLE THEN MOVESINTO THE AREA OF POSSIBILITY.
> 
> EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
> BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES THE 
> SUCCESSFUL OUTCOME...
> 
> FOCUS...
> 
> 
> 
> 
>> On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope 
>> <cmlhope@googlegroups.com> wrote:
>> Hi John and all.  Just checking in to see how you are doing.
>> I am in my 11th 

Re: [CMLHope] Hi john 11th month on ponatinib

['Susan Zimmerman' via CMLHope]

Hi Jeanie, I know you know that you are in the palm of His hand and He is 
watching over you. A great response for brain fog foibles is this"Yes, I am 
having a smooth transition into senility." Might as well laugh cuz it makes 
others laugh also.
The side pain is I'm sure hard to ignore. Why wait til January for a pet scan? 
Seems like it will cost you less if you get it this year due to deductibles, 
etc. Remember you are your best advocate...no one knows your body like you. 
Sounds like your numbers are tolerable. I had to increase my bosulif to 200 mg 
and doing just fine so far.
May we all be thankful in this season for the many blessings we all enjoy in 
this USA. I know I am thankful I don't have to hold down a j.o.b. anymore, but 
enjoy retirement. While my hubby still is working his bippy off! 
18's and blessings, Susan Z.


Sent from my Sprint phone



-- Original message--From: Marty GartenbergDate: Wed, Nov 11, 2015 
12:02 PMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Hi john 11th month 
on ponatinib
Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be 
going through and I can say that I am familiar with most of this stuff. Been 
there and done that, but I just know that your going to be alright. 
It's the same for me and mostly everyone that has to go through any type of 
health problems, because they are usually frightened about what will happen. 
Now can I say that have I ever been frightened, and my answer is yes. However I 
just have to do whatever I need to do to keep myself going and so far no matter 
what I was put through I am still running around and still living, well so far 
I am. 
It's the attitude of people that really matters. A lot of people may not 
understand me or my attitude because of the way I keep my life in order. If I 
were to wander around with everything that I have already been through then How 
would my lief be?  I don't think that it would be as good as I would like it to 
be. Doesn't everyone understand why I always end any of my posts with 18's? 
It's because of living my life
Jeanie let me remind you, and by the way everyone else for that matter of a 
poem that I have already sent. And please if you will notice the very last word,
18's
Marty
EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO 
HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU 
EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF 
YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET.WHAT WE HAVE TO LEARNTO DO IS 
TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT ANDNOT TO 
DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY.WHEN 
YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVESINTO THE 
AREA OF POSSIBILITY.EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY 
BELIEF AT THE BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES 
THE SUCCESSFUL OUTCOME...FOCUS...


On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope 
<cmlhope@googlegroups.com> wrote:
Hi John and all.  Just checking in to see how you are doing.
I am in my 11th month of ponatinib.
I seem to be doing good. WBC have been a little high but onc didn't seem to 
care.
Now he worries about some nodes on lungs.
Might do pet scan first of year.  Have you had one?
Still have dry skin and bad pain under right ribs.  Have brain fog also.
I hope everyone is good.

My Motto: Faith and Pills
Jeanie 18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

--
--
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Re: [CMLHope] Hi john 11th month on ponatinib

[Marty Gartenberg]

Hi Richard,

Am am glad that this will help your wife, it did many times for me and my
wife.

Sorry that her healing is not as both of you expected, but sorry may not be
the right word. What I mean it that when things may not be as you expected
then just look at it as if there no healing at all. Our lives are always in
the healing process, some just take a bit longer and some are just plain
miracles.

Now I am not talking about someone on their death bed but just healing.
Please just be patient, and look at where I am today. Remember, FOCUS, and
I think that I have mentioned this many times.

You know that I am not immortal just trying to live my life as best as I
can and there will always be some bumps along the road, but we just have to
be able to deal with them as best as we can.

I keep on mentioning those numbers 18's maybe you should really sit back
and give that some serious thought. I do, each and every time that I end a
post.

I should most probably be gone by now but it is my attitude that keeps me
going. And you already know that I don't give "pep talks" just honest
advice at least from me to anyone else that may be helped as well as to me
from anyone else.

One more thing: I keep on saying that I am not the so called leader of this
group or any other groups for that matter because we are all the leaders.
If you have CML, and post even one thing that goes to either help yourself
or have someone help you or anyone else then that is called being a leader.


18's

Marty

On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:

> Thanks Marti!  This is something I need to share with my wife.  Things are
> progressing with her healing but not on her schedule.  I was in need of
> some help and this is perfect for this moment in time.
>
> Richard H.
>
> On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
>>
>> Oh Jeanie, Jeanie what am I going to do with you? Everything that you
>> must be going through and I can say that I am familiar with most of this
>> stuff. Been there and done that, but I just know that your going to be
>> alright.
>>
>> It's the same for me and mostly everyone that has to go through any type
>> of health problems, because they are usually frightened about what will
>> happen.
>>
>> Now can I say that have I ever been frightened, and my answer is yes.
>> However I just have to do whatever I need to do to keep myself going and so
>> far no matter what I was put through I am still running around and still
>> living, well so far I am.
>>
>> It's the attitude of people that really matters. A lot of people may not
>> understand me or my attitude because of the way I keep my life in order. If
>> I were to wander around with everything that I have already been through
>> then How would my lief be?  I don't think that it would be as good as I
>> would like it to be. Doesn't everyone understand why I always end any of my
>> posts with 18's? It's *because of living my life*
>>
>> Jeanie let me remind you, and by the way everyone else for that matter of
>> a poem that I have already sent. And please if you will notice the very
>> last word,
>>
>> 18's
>>
>> Marty
>>
>> *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
>> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
>> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*
>>
>> *WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES
>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING
>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN
>> WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*
>>
>> *EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
>> SUCCESSFUL OUTCOME...*
>>
>> *FOCUS...*
>>
>>
>>
>> On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>>> Hi John and all.  Just checking in to see how you are doing.
>>> I am in my 11th month of ponatinib.
>>> I seem to be doing good. WBC have been a little high but onc didn't seem
>>> to care.
>>> Now he worries about some nodes on lungs.
>>> Might do pet scan first of year.  Have you had one?
>>> Still have dry skin and bad pain under right ribs.  Have brain fog also.
>>> I hope everyone is good.
>>>
>>> My Motto: Faith and Pills
>>> Jeanie 18,s
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>>
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>
>>> You received this message because you are subscribed to the Google
>>> Groups "CMLHope" group.
>>> To post to this group, send email to 

Re: [CMLHope] Hi john 11th month on ponatinib

[Richard H]

Thanks Marty.  Joyce(my wife) read it and promised she would try to be 
positive.  I told a therapy nurse and a floor nurse in rehab that the  
message was in her room and after they read it it would be okay for them to 
copy it and use it to help other patients when their depression is stopping 
them, so they regain the positive side of life.

  Richard H. 

On Thursday, November 12, 2015 at 6:55:44 AM UTC-6, wa2yyx wrote:
>
> Hi Richard,
>
> Am am glad that this will help your wife, it did many times for me and my 
> wife.
>
> Sorry that her healing is not as both of you expected, but sorry may not 
> be the right word. What I mean it that when things may not be as you 
> expected then just look at it as if there no healing at all. Our lives are 
> always in the healing process, some just take a bit longer and some are 
> just plain miracles. 
>
> Now I am not talking about someone on their death bed but just healing. 
> Please just be patient, and look at where I am today. Remember, FOCUS, and 
> I think that I have mentioned this many times. 
>
> You know that I am not immortal just trying to live my life as best as I 
> can and there will always be some bumps along the road, but we just have to 
> be able to deal with them as best as we can.
>
> I keep on mentioning those numbers 18's maybe you should really sit back 
> and give that some serious thought. I do, each and every time that I end a 
> post.
>
> I should most probably be gone by now but it is my attitude that keeps me 
> going. And you already know that I don't give "pep talks" just honest 
> advice at least from me to anyone else that may be helped as well as to me 
> from anyone else.
>
> One more thing: I keep on saying that I am not the so called leader of 
> this group or any other groups for that matter because we are all the 
> leaders. If you have CML, and post even one thing that goes to either help 
> yourself or have someone help you or anyone else then that is called being 
> a leader.  
>
> 18's
>
> Marty
>
> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  > wrote:
>
>> Thanks Marti!  This is something I need to share with my wife.  Things 
>> are progressing with her healing but not on her schedule.  I was in need of 
>> some help and this is perfect for this moment in time.
>>
>> Richard H.
>>
>> On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
>>>
>>> Oh Jeanie, Jeanie what am I going to do with you? Everything that you 
>>> must be going through and I can say that I am familiar with most of this 
>>> stuff. Been there and done that, but I just know that your going to be 
>>> alright. 
>>>
>>> It's the same for me and mostly everyone that has to go through any type 
>>> of health problems, because they are usually frightened about what will 
>>> happen. 
>>>
>>> Now can I say that have I ever been frightened, and my answer is yes. 
>>> However I just have to do whatever I need to do to keep myself going and so 
>>> far no matter what I was put through I am still running around and still 
>>> living, well so far I am. 
>>>
>>> It's the attitude of people that really matters. A lot of people may not 
>>> understand me or my attitude because of the way I keep my life in order. If 
>>> I were to wander around with everything that I have already been through 
>>> then How would my lief be?  I don't think that it would be as good as I 
>>> would like it to be. Doesn't everyone understand why I always end any of my 
>>> posts with 18's? It's *because of living my life*
>>>
>>> Jeanie let me remind you, and by the way everyone else for that matter 
>>> of a poem that I have already sent. And please if you will notice the very 
>>> last word,
>>>
>>> 18's
>>>
>>> Marty
>>>
>>> *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN 
>>> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET 
>>> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*
>>>
>>> *WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES 
>>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING 
>>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN 
>>> WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*
>>>
>>> *EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
>>> SUCCESSFUL OUTCOME...*
>>>
>>> *FOCUS...*
>>>
>>>
>>>
>>> On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope <
>>> cml...@googlegroups.com> wrote:
>>>
 Hi John and all.  Just checking in to see how you are doing.
 I am in my 11th month of ponatinib.
 I seem to be doing good. WBC have been a little high but onc didn't 
 seem to care.
 Now he worries about some nodes on lungs.
 Might do pet scan first of year.  Have you had one?

Re: [CMLHope] Hi john 11th month on ponatinib

[Marty Gartenberg]

Hi Joyce, this is for you.

So you sound like a real sweet person, so why should you loose even a grain
of your sweetness because of not trying to be positive because did you know
that it takes a positive person to have a positive mind...

Be sure to gain your attitude and smile every once in a while.

18's

Marty

 *Have a Happy Everything*

 *May you always know **how appreciated you are.*

*May you never forget what a blessing **you've become to a world that could
use more people like you.*

*May you reap the rewards of kindness*

*May your sunshine always shine through*

*May love walk by your side.*

*May friendship sing in your smile*


*May opportunity remember to knock onyour* *door and surprise you once
in a while.*


*May your memories be ones that you**wouldn't trade.*

*May your hopes and dreams **find ways of coming true. *

*May*
*You never forget how dearly 1 wish a Happy...'Everything' for you.*










On Fri, Nov 13, 2015 at 12:17 AM, Richard H  wrote:

> Thanks Marty.  Joyce(my wife) read it and promised she would try to be
> positive.  I told a therapy nurse and a floor nurse in rehab that the
> message was in her room and after they read it it would be okay for them to
> copy it and use it to help other patients when their depression is stopping
> them, so they regain the positive side of life.
>
>   Richard H.
>
> On Thursday, November 12, 2015 at 6:55:44 AM UTC-6, wa2yyx wrote:
>>
>> Hi Richard,
>>
>> Am am glad that this will help your wife, it did many times for me and my
>> wife.
>>
>> Sorry that her healing is not as both of you expected, but sorry may not
>> be the right word. What I mean it that when things may not be as you
>> expected then just look at it as if there no healing at all. Our lives are
>> always in the healing process, some just take a bit longer and some are
>> just plain miracles.
>>
>> Now I am not talking about someone on their death bed but just healing.
>> Please just be patient, and look at where I am today. Remember, FOCUS, and
>> I think that I have mentioned this many times.
>>
>> You know that I am not immortal just trying to live my life as best as I
>> can and there will always be some bumps along the road, but we just have to
>> be able to deal with them as best as we can.
>>
>> I keep on mentioning those numbers 18's maybe you should really sit back
>> and give that some serious thought. I do, each and every time that I end a
>> post.
>>
>> I should most probably be gone by now but it is my attitude that keeps me
>> going. And you already know that I don't give "pep talks" just honest
>> advice at least from me to anyone else that may be helped as well as to me
>> from anyone else.
>>
>> One more thing: I keep on saying that I am not the so called leader of
>> this group or any other groups for that matter because we are all the
>> leaders. If you have CML, and post even one thing that goes to either help
>> yourself or have someone help you or anyone else then that is called being
>> a leader.
>>
>> 18's
>>
>> Marty
>>
>> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:
>>
>>> Thanks Marti!  This is something I need to share with my wife.  Things
>>> are progressing with her healing but not on her schedule.  I was in need of
>>> some help and this is perfect for this moment in time.
>>>
>>> Richard H.
>>>
>>> On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:

 Oh Jeanie, Jeanie what am I going to do with you? Everything that you
 must be going through and I can say that I am familiar with most of this
 stuff. Been there and done that, but I just know that your going to be
 alright.

 It's the same for me and mostly everyone that has to go through any
 type of health problems, because they are usually frightened about what
 will happen.

 Now can I say that have I ever been frightened, and my answer is yes.
 However I just have to do whatever I need to do to keep myself going and so
 far no matter what I was put through I am still running around and still
 living, well so far I am.

 It's the attitude of people that really matters. A lot of people may
 not understand me or my attitude because of the way I keep my life in
 order. If I were to wander around with everything that I have already been
 through then How would my lief be?  I don't think that it would be as good
 as I would like it to be. Doesn't everyone understand why I always end any
 of my posts with 18's? It's *because of living my life*

 Jeanie let me remind you, and by the way everyone else for that matter
 of a poem that I have already sent. And please if you will notice the very
 last word,

 18's

 Marty

 *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
 YOURSELF. IF 

Re: [CMLHope] Hi john 11th month on ponatinib

['Icandoallttc' via CMLHope]

Thanks Marty for the uplift.  I have to tell you I have done every uplifting 
practice in the world but when I go to the doctor for tests my blood pressure 
goes up and my heart starts pounding!!!
Only until I hear those magical words that my blood is good do I relax.  
It does help that my daughter is right by my side. 
You are truly a wonder Marty and I thank the Lord daily for you and your 
uplifts.  
And not only you but to all our cml warriors on this site. 
❤️
My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Nov 12, 2015, at 7:55 AM, Marty Gartenberg  wrote:
> 
> Hi Richard,
> 
> Am am glad that this will help your wife, it did many times for me and my 
> wife.
> 
> Sorry that her healing is not as both of you expected, but sorry may not be 
> the right word. What I mean it that when things may not be as you expected 
> then just look at it as if there no healing at all. Our lives are always in 
> the healing process, some just take a bit longer and some are just plain 
> miracles. 
> 
> Now I am not talking about someone on their death bed but just healing. 
> Please just be patient, and look at where I am today. Remember, FOCUS, and I 
> think that I have mentioned this many times. 
> 
> You know that I am not immortal just trying to live my life as best as I can 
> and there will always be some bumps along the road, but we just have to be 
> able to deal with them as best as we can.
> 
> I keep on mentioning those numbers 18's maybe you should really sit back and 
> give that some serious thought. I do, each and every time that I end a post.
> 
> I should most probably be gone by now but it is my attitude that keeps me 
> going. And you already know that I don't give "pep talks" just honest advice 
> at least from me to anyone else that may be helped as well as to me from 
> anyone else.
> 
> One more thing: I keep on saying that I am not the so called leader of this 
> group or any other groups for that matter because we are all the leaders. If 
> you have CML, and post even one thing that goes to either help yourself or 
> have someone help you or anyone else then that is called being a leader.  
> 
> 18's
> 
> Marty
> 
>> On Wed, Nov 11, 2015 at 11:41 PM, Richard H  wrote:
>> Thanks Marti!  This is something I need to share with my wife.  Things are 
>> progressing with her healing but not on her schedule.  I was in need of some 
>> help and this is perfect for this moment in time.
>> 
>> Richard H.
>> 
>>> On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
>>> Oh Jeanie, Jeanie what am I going to do with you? Everything that you must 
>>> be going through and I can say that I am familiar with most of this stuff. 
>>> Been there and done that, but I just know that your going to be alright. 
>>> 
>>> It's the same for me and mostly everyone that has to go through any type of 
>>> health problems, because they are usually frightened about what will 
>>> happen. 
>>> 
>>> Now can I say that have I ever been frightened, and my answer is yes. 
>>> However I just have to do whatever I need to do to keep myself going and so 
>>> far no matter what I was put through I am still running around and still 
>>> living, well so far I am. 
>>> 
>>> It's the attitude of people that really matters. A lot of people may not 
>>> understand me or my attitude because of the way I keep my life in order. If 
>>> I were to wander around with everything that I have already been through 
>>> then How would my lief be?  I don't think that it would be as good as I 
>>> would like it to be. Doesn't everyone understand why I always end any of my 
>>> posts with 18's? It's because of living my life
>>> 
>>> Jeanie let me remind you, and by the way everyone else for that matter of a 
>>> poem that I have already sent. And please if you will notice the very last 
>>> word,
>>> 
>>> 18's
>>> 
>>> Marty
>>> 
>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN 
>>> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET 
>>> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
>>> 
>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
>>> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
>>> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
>>> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
>>> 
>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
>>> SUCCESSFUL OUTCOME...
>>> 
>>> FOCUS...
>>> 
>>> 
>>> 
>>> 
 On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope 
 

Re: [CMLHope] Hi john 11th month on ponatinib

['Icandoallttc' via CMLHope]

Hi Beth and all
Thanks much for the uplifts.  I am so glad you are in remission. 
Do you have diarrhea?  If so I will tell you what helped me. 
At one time my potassium was real high and I had gone out of hematology 
remission. Bi started having diarrhea really bad.  My onc at the time told me 
my body was trying to get rid of the potassium. 
I love as so sick. 
I had so much psyllium on hand so started taking this once daily along with 
acidophilus. This cleared the diarrhea up fast. 
I get my seed at health food store. It is ground up and you mix it in water.  
Don't know if this will work for you.  
I now have the opposites: constipation.   I started lioness so we will see what 
happens.  
Glad you are taking a vacation.  
I had the endoscopy; no problems except for H pylori. I was supposed to do a 
treatment for that but couldn't do proton pump or clarimycin due to taking 
ponatinib.   I did take a round of amoxicillin.  
The endoscopy is easy. They put me to sleep. I opted out of colonoscopy as I 
was just to sick to take the laxatives. 
Please let us know how your test come out. 
❤️


My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Nov 11, 2015, at 1:58 PM, bkbarney via CMLHope  
> wrote:
> 
> m doing O.K., Bcr results came in yesterday at none detectedso I am going 
> on a holiday

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[CMLHope] Hi john 11th month on ponatinib

['Icandoallttc' via CMLHope]

Hi John and all.  Just checking in to see how you are doing.  
I am in my 11th month of ponatinib.   
I seem to be doing good. WBC have been a little high but onc didn't seem to 
care.  
Now he worries about some nodes on lungs. 
Might do pet scan first of year.  Have you had one?
Still have dry skin and bad pain under right ribs.  Have brain fog also.  
I hope everyone is good. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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Re: [CMLHope] Hi john 11th month on ponatinib

[Marty Gartenberg]

Oh Jeanie, Jeanie what am I going to do with you? Everything that you must
be going through and I can say that I am familiar with most of this stuff.
Been there and done that, but I just know that your going to be alright.

It's the same for me and mostly everyone that has to go through any type of
health problems, because they are usually frightened about what will
happen.

Now can I say that have I ever been frightened, and my answer is yes.
However I just have to do whatever I need to do to keep myself going and so
far no matter what I was put through I am still running around and still
living, well so far I am.

It's the attitude of people that really matters. A lot of people may not
understand me or my attitude because of the way I keep my life in order. If
I were to wander around with everything that I have already been through
then How would my lief be?  I don't think that it would be as good as I
would like it to be. Doesn't everyone understand why I always end any of my
posts with 18's? It's *because of living my life*

Jeanie let me remind you, and by the way everyone else for that matter of a
poem that I have already sent. And please if you will notice the very last
word,

18's

Marty

*EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
(MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*

*WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*

*EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
SUCCESSFUL OUTCOME...*

*FOCUS...*



On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi John and all.  Just checking in to see how you are doing.
> I am in my 11th month of ponatinib.
> I seem to be doing good. WBC have been a little high but onc didn't seem
> to care.
> Now he worries about some nodes on lungs.
> Might do pet scan first of year.  Have you had one?
> Still have dry skin and bad pain under right ribs.  Have brain fog also.
> I hope everyone is good.
>
> My Motto: Faith and Pills
> Jeanie 18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
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Re: [CMLHope] Hi john 11th month on ponatinib

[John Barrons]

Hi Jeanie and all:  I had cbc done yesterday and the counts were all stable.  I 
have been on ponatinib for about three years now. I have been taking only one 
pill  every two weeks for about six weeks. My spleen is enlarged but the doctor 
said not to worry about. So I will just continue on and see if in two weeks 
things are still stable. Glad you are doing Ok. My brain is a little foggy also 
so hopefully it has something to do with getting old. It is cool and rainy here 
but at the beginning of November we had temperatures in the70 range. 
Unbelievable!! Regards John B

Sent from my iPad

> On Nov 11, 2015, at 9:22 AM, 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi John and all.  Just checking in to see how you are doing.  
> I am in my 11th month of ponatinib.   
> I seem to be doing good. WBC have been a little high but onc didn't seem to 
> care.  
> Now he worries about some nodes on lungs. 
> Might do pet scan first of year.  Have you had one?
> Still have dry skin and bad pain under right ribs.  Have brain fog also.  
> I hope everyone is good. 
> 
> My Motto: Faith and Pills
> Jeanie 18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
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Re: [CMLHope] Hi john 11th month on ponatinib

[Richard H]

Thanks Marti!  This is something I need to share with my wife.  Things are 
progressing with her healing but not on her schedule.  I was in need of 
some help and this is perfect for this moment in time.

Richard H.

On Wednesday, November 11, 2015 at 11:02:32 AM UTC-6, wa2yyx wrote:
>
> Oh Jeanie, Jeanie what am I going to do with you? Everything that you must 
> be going through and I can say that I am familiar with most of this stuff. 
> Been there and done that, but I just know that your going to be alright. 
>
> It's the same for me and mostly everyone that has to go through any type 
> of health problems, because they are usually frightened about what will 
> happen. 
>
> Now can I say that have I ever been frightened, and my answer is yes. 
> However I just have to do whatever I need to do to keep myself going and so 
> far no matter what I was put through I am still running around and still 
> living, well so far I am. 
>
> It's the attitude of people that really matters. A lot of people may not 
> understand me or my attitude because of the way I keep my life in order. If 
> I were to wander around with everything that I have already been through 
> then How would my lief be?  I don't think that it would be as good as I 
> would like it to be. Doesn't everyone understand why I always end any of my 
> posts with 18's? It's *because of living my life*
>
> Jeanie let me remind you, and by the way everyone else for that matter of 
> a poem that I have already sent. And please if you will notice the very 
> last word,
>
> 18's
>
> Marty
>
> *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN 
> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET 
> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*
>
> *WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*
>
> *EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
> SUCCESSFUL OUTCOME...*
>
> *FOCUS...*
>
>
>
> On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope <
> cml...@googlegroups.com > wrote:
>
>> Hi John and all.  Just checking in to see how you are doing.
>> I am in my 11th month of ponatinib.
>> I seem to be doing good. WBC have been a little high but onc didn't seem 
>> to care.
>> Now he worries about some nodes on lungs.
>> Might do pet scan first of year.  Have you had one?
>> Still have dry skin and bad pain under right ribs.  Have brain fog also.
>> I hope everyone is good.
>>
>> My Motto: Faith and Pills
>> Jeanie 18,s
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
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>> "CMLHope" group.
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>> 
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>> cmlhope-u...@googlegroups.com 
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>> http://groups.google.com/group/CMLHope
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>>
>
>

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[CMLHope] Hi john

['Icandoallttc' via CMLHope]

Hi john and how are you?
Are you in remission?
I just found out I was in cr molecular remission in July  after 7 months on 
ponatinib.  My onc never really talked to me about it.  Strange.  
Let us know how you are.  

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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Re: [CMLHope] Hi john

[John Barrons]

Hi Jeanie and all: That's great news being in remission. Does that mean you are 
off ponatinib? I had my cbc last Wednesday and my platelets and white cells had 
increased as normal, so I took one ponatinib last Thursday. Now I wait until 
next Wednesday to have another cbc to see where the counts are. It certainly is 
for me a  balancing act. Otherwise I am feeling OK John B

Sent from my iPad

> On Oct 7, 2015, at 11:29 AM, 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi john and how are you?
> Are you in remission?
> I just found out I was in cr molecular remission in July  after 7 months on 
> ponatinib.  My onc never really talked to me about it.  Strange.  
> Let us know how you are.  
> 
> My Motto: Faith and Pills
> Jeanie 18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
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Re: [CMLHope] Hi john

['Icandoallttc' via CMLHope]

No I still have to take meds.  My counts go way up without the meds.   Glad you 
are doing so good!! ❤️❤️

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Oct 7, 2015, at 2:05 PM, John Barrons  wrote:
> 
> Hi Jeanie and all: That's great news being in remission. Does that mean you 
> are off ponatinib? I had my cbc last Wednesday and my platelets and white 
> cells had increased as normal, so I took one ponatinib last Thursday. Now I 
> wait until next Wednesday to have another cbc to see where the counts are. It 
> certainly is for me a  balancing act. Otherwise I am feeling OK John B
> 
> Sent from my iPad
> 
>> On Oct 7, 2015, at 11:29 AM, 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>> Hi john and how are you?
>> Are you in remission?
>> I just found out I was in cr molecular remission in July  after 7 months on 
>> ponatinib.  My onc never really talked to me about it.  Strange.  
>> Let us know how you are.  
>> 
>> My Motto: Faith and Pills
>> Jeanie 18,s 
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>> 
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> 
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Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[sherri swanson]

When I had mine done, they found ulcers and adenoma's. My GI removed the
adenoma's while I was under and I had to be rechecked every 3 months in the
beginning to be sure they didn't come back. They haven't come back but my
ulcers have. LOL

Good luck with your BMA.

On Thu, Jan 15, 2015 at 4:29 PM, bkbarney via CMLHope 
cmlhope@googlegroups.com wrote:


 good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for
 results of endoscopies, I had a small stomach ulcer..the result of taking
 NSAIDS on an empty stomach...  to battle a broken hand. it was years ago
 but Iearned my lesson.
 I never take any pain med without food.

  thinking of you. big hug,. Beth
 -Original Message-
 From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Thu, Jan 15, 2015 12:34 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Hi all and thanks so much for the updates in endoscopy.
 Did anyone have anything discovered during the procedure?
 I have had an ongoing pain in my right side.  I am hoping they can solve
 the mystery.
 Getting the Bma early in the morning.   No food or drink after midnight.
 Sure will miss my morning cup if coffee.
 They also want to do a ct scan but put that off for a couple of weeks.
 I had one done last year.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:

   You are correct about both.  One time, I had both back to back.  The
 Dr. didn't care for my remark about using clean equipment so now they
 schedule them at different times.

 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:

 Yes Jeannie, I have had an endoscopyNO problem...at least for me.
 Twilight meds, remember nothingnot even a sore throat
 afterwardsI've had two of them. several years apart. Hope yours goes as
 well as mine. Easier on the body than a colonoscopy. Good luck with the
 bone marrow biopsy Friday. glad they will take a good look at what is going
 on and can reset from there...So sorry you are so nauseated.Take good
 care...and jeannie, if you feel at all like talking, happy to listen. Feel
 free to email me at personal email and I can give you phone number.

  Beth


 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Maybe they can find out why my side is hurting.
 Blessing everyone
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   They put you to sleep for Bma.

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Hi it's not me who lost their dad-- I lost mine many years ago.
 I am still so nauseas.
 Hanging in there.
 Doing Bma fri.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com
 wrote:

   Jeanie,

  I'm so sorry for your loss. You will always have them in your heart.
  I lost my parent a long time ago but I miss them as if it were
 yesterday. When I read your message, I looked at their photo and asked them
 to take good care of your dad.

  L'chaim,

  Sherri


 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

  Thank you Greenie
 I need that.
 Blessings
  Jeanie

 Sent from my iPhone

 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cml...@googlegroups.com wrote:

   Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them
 on to you.

 greenie

  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time,
 cml...@googlegroups.com writes:

 Thanks Susan.
 I'm hanging in there!!!
 Blessings.
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:

  Aw Marcie!

  I am so sorry for your loss, dear one.  I know you've been being a good
 caregiver for several years to your dad.  You will be rewarded some day for
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No
 matter what the age, the loss is huge when we are the ones left behind.  It
 was so kind of your rabbi to mention your CML battle.  I pray you stop
 having those horrible cramps, too. Traveling mercies for you all.

  And Jeanie, also know what it's like to have a bad day from hydrea.
  Many (including me) felt like they have the flu with the nausea, and I
 pray this will not last long at all.  A new day is coming, and I sure do
 hope your doc puts you on something that works! (maybe bosulif?)  Here's
 wishing you the best, dear one

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

['Icandoallttc' via CMLHope]

Hi Beth. 
Thanks for the uplift. We took aspirin for years before they told us to eat 
with them.  My dad and brother has ulcers. 
Hard to heal. 
My brother ended up having one-half his tummy out. 
I feel I might have them.  
Blessings
Jeanie❤️


Sent from my iPhone

 On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope cmlhope@googlegroups.com 
 wrote:
 
 
 good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for 
 results of endoscopies, I had a small stomach ulcer..the result of taking 
 NSAIDS on an empty stomach...  to battle a broken hand. it was years ago but 
 Iearned my lesson.
 I never take any pain med without food.
 
 thinking of you. big hug,. Beth 
 -Original Message-
 From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Thu, Jan 15, 2015 12:34 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.
 
 Hi all and thanks so much for the updates in endoscopy. 
 Did anyone have anything discovered during the procedure?
 I have had an ongoing pain in my right side.  I am hoping they can solve the 
 mystery.  
 Getting the Bma early in the morning.   No food or drink after midnight.   
 Sure will miss my morning cup if coffee. 
 They also want to do a ct scan but put that off for a couple of weeks. 
 I had one done last year. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:
 
 You are correct about both.  One time, I had both back to back.  The Dr. 
 didn't care for my remark about using clean equipment so now they schedule 
 them at different times.  
 
 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:
 Yes Jeannie, I have had an endoscopyNO problem...at least for me. 
 Twilight meds, remember nothingnot even a sore throat 
 afterwardsI've had two of them. several years apart. Hope yours goes as 
 well as mine. Easier on the body than a colonoscopy. Good luck with the 
 bone marrow biopsy Friday. glad they will take a good look at what is going 
 on and can reset from there...So sorry you are so nauseated.Take good 
 care...and jeannie, if you feel at all like talking, happy to listen. Feel 
 free to email me at personal email and I can give you phone number. 
 
 Beth
 
 
 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.
 
 Anyone have an endoscopy ? Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
 wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on 
 to you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cml...@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day for 
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
 matter what the age, the loss is huge when we are the ones left behind.  It 
 was so kind of your rabbi to mention your CML battle.  I pray you stop 
 having those horrible cramps, too. Traveling mercies for you all.
 
 And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
 (including me) felt like they have the flu with the nausea, and I pray this 
 will not last long at all.  A new day is coming, and I sure do hope your 
 doc puts you

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

['Icandoallttc' via CMLHope]

Finished Bma --waiting on doctor-- great he had to attend  computer seminar.

Every thing went very well-- was asleep about 20 minutes. 

Went down and had breakfast--coffee finally
Blessings
Jeanie

Sent from my iPhone

 On Jan 16, 2015, at 5:20 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Beth. 
 Thanks for the uplift. We took aspirin for years before they told us to eat 
 with them.  My dad and brother has ulcers. 
 Hard to heal. 
 My brother ended up having one-half his tummy out. 
 I feel I might have them. 
 Blessings
 Jeanie❤️
 
 
 Sent from my iPhone
 
 On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope cmlhope@googlegroups.com 
 wrote:
 
 
 good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for 
 results of endoscopies, I had a small stomach ulcer..the result of taking 
 NSAIDS on an empty stomach...  to battle a broken hand. it was years ago but 
 Iearned my lesson.
 I never take any pain med without food. 
 
 thinking of you. big hug,. Beth 
 -Original Message-
 From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Thu, Jan 15, 2015 12:34 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.
 
 Hi all and thanks so much for the updates in endoscopy. 
 Did anyone have anything discovered during the procedure?
 I have had an ongoing pain in my right side.  I am hoping they can solve the 
 mystery.  
 Getting the Bma early in the morning.   No food or drink after midnight.   
 Sure will miss my morning cup if coffee. 
 They also want to do a ct scan but put that off for a couple of weeks. 
 I had one done last year. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:
 
 You are correct about both.  One time, I had both back to back.  The Dr. 
 didn't care for my remark about using clean equipment so now they schedule 
 them at different times.  
 
 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:
 Yes Jeannie, I have had an endoscopyNO problem...at least for me. 
 Twilight meds, remember nothingnot even a sore throat 
 afterwardsI've had two of them. several years apart. Hope yours goes 
 as well as mine. Easier on the body than a colonoscopy. Good luck with the 
 bone marrow biopsy Friday. glad they will take a good look at what is 
 going on and can reset from there...So sorry you are so nauseated.Take 
 good care...and jeannie, if you feel at all like talking, happy to listen. 
 Feel free to email me at personal email and I can give you phone number. 
 
 Beth
 
 
 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.
 
 Anyone have an endoscopy ? Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cml...@googlegroups.com wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on 
 to you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cml...@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day 
 for that.  My heart hurts for you, so will surely be lifting  you in 
 prayer.  No matter what the age, the loss is huge when we are the ones 
 left behind.  It was so kind of your rabbi to mention your CML battle.  I

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[Marty Gartenberg]

Hi Jeanie,

Wow, your lucky for a better word to use. I had 17 of them and was never
put out OUCH x 17[?]

18's,

Marty

On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:

 Finished Bma --waiting on doctor-- great he had to attend  computer
 seminar.

 Every thing went very well-- was asleep about 20 minutes.

 Went down and had breakfast--coffee finally
 Blessings
 Jeanie[image: ]

 Sent from my iPhone

 On Jan 16, 2015, at 5:20 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:

 Hi Beth.
 Thanks for the uplift. We took aspirin for years before they told us to
 eat with them.  My dad and brother has ulcers.
 Hard to heal.
 My brother ended up having one-half his tummy out.
 I feel I might have them.
 Blessings
 Jeanie❤️


 Sent from my iPhone

 On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope 
 cmlhope@googlegroups.com wrote:


 good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for
 results of endoscopies, I had a small stomach ulcer..the result of taking
 NSAIDS on an empty stomach...  to battle a broken hand. it was years ago
 but Iearned my lesson.
 I never take any pain med without food.

  thinking of you. big hug,. Beth
 -Original Message-
 From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Thu, Jan 15, 2015 12:34 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Hi all and thanks so much for the updates in endoscopy.
 Did anyone have anything discovered during the procedure?
 I have had an ongoing pain in my right side.  I am hoping they can solve
 the mystery.
 Getting the Bma early in the morning.   No food or drink after midnight.
 Sure will miss my morning cup if coffee.
 They also want to do a ct scan but put that off for a couple of weeks.
 I had one done last year.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:

   You are correct about both.  One time, I had both back to back.  The
 Dr. didn't care for my remark about using clean equipment so now they
 schedule them at different times.

 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:

 Yes Jeannie, I have had an endoscopyNO problem...at least for me.
 Twilight meds, remember nothingnot even a sore throat
 afterwardsI've had two of them. several years apart. Hope yours goes as
 well as mine. Easier on the body than a colonoscopy. Good luck with the
 bone marrow biopsy Friday. glad they will take a good look at what is going
 on and can reset from there...So sorry you are so nauseated.Take good
 care...and jeannie, if you feel at all like talking, happy to listen. Feel
 free to email me at personal email and I can give you phone number.

  Beth


 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Maybe they can find out why my side is hurting.
 Blessing everyone
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   They put you to sleep for Bma.

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Hi it's not me who lost their dad-- I lost mine many years ago.
 I am still so nauseas.
 Hanging in there.
 Doing Bma fri.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com
 wrote:

   Jeanie,

  I'm so sorry for your loss. You will always have them in your heart.
  I lost my parent a long time ago but I miss them as if it were
 yesterday. When I read your message, I looked at their photo and asked them
 to take good care of your dad.

  L'chaim,

  Sherri


 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

  Thank you Greenie
 I need that.
 Blessings
  Jeanie

 Sent from my iPhone

 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cml...@googlegroups.com wrote:

   Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them
 on to you.

 greenie

  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time,
 cml...@googlegroups.com writes:

 Thanks Susan.
 I'm hanging in there!!!
 Blessings.
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:

  Aw Marcie!

  I am so sorry for your loss, dear one.  I know you've been being a good
 caregiver for several years to your dad.  You will be rewarded some day for
 that.  My heart hurts for you, so will surely be lifting you

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[bkbarney via CMLHope]

great news that the BMB went so easily.. I know at Moffit they put you out for 
them..up here in Chicago..they just do locals!!!  I am staying hopeful for you 
Jeannie...sending good thoughts. B



-Original Message-
From: Marty Gartenberg wa2...@gmail.com
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Jan 16, 2015 6:26 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.


Hi Jeanie,


Wow, your lucky for a better word to use. I had 17 of them and was never put 
out OUCH x 17


18's,


Marty



On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:


Finished Bma --waiting on doctor-- great he had to attend  computer seminar.


Every thing went very well-- was asleep about 20 minutes. 


Went down and had breakfast--coffee finally
Blessings
Jeanie

Sent from my iPhone

On Jan 16, 2015, at 5:20 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:



Hi Beth. 
Thanks for the uplift. We took aspirin for years before they told us to eat 
with them.  My dad and brother has ulcers. 
Hard to heal. 
My brother ended up having one-half his tummy out. 
I feel I might have them.  
Blessings
Jeanie❤️


Sent from my iPhone

On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope cmlhope@googlegroups.com 
wrote:




good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for 
results of endoscopies, I had a small stomach ulcer..the result of taking 
NSAIDS on an empty stomach...  to battle a broken hand. it was years ago but 
Iearned my lesson.
I never take any pain med without food.


thinking of you. big hug,. Beth 

-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Jan 15, 2015 12:34 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.



Hi all and thanks so much for the updates in endoscopy. 
Did anyone have anything discovered during the procedure?
I have had an ongoing pain in my right side.  I am hoping they can solve the 
mystery.  
Getting the Bma early in the morning.   No food or drink after midnight.   Sure 
will miss my morning cup if coffee. 
They also want to do a ct scan but put that off for a couple of weeks. 
I had one done last year. 
Blessings
Jeanie


Sent from my iPhone

On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:



You are correct about both.  One time, I had both back to back.  The Dr. didn't 
care for my remark about using clean equipment so now they schedule them at 
different times.  

On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:
Yes Jeannie, I have had an endoscopyNO problem...at least for me. Twilight 
meds, remember nothingnot even a sore throat afterwardsI've had two of 
them. several years apart. Hope yours goes as well as mine. Easier on the body 
than a colonoscopy. Good luck with the bone marrow biopsy Friday. glad they 
will take a good look at what is going on and can reset from there...So sorry 
you are so nauseated.Take good care...and jeannie, if you feel at all like 
talking, happy to listen. Feel free to email me at personal email and I can 
give you phone number. 


Beth



-Original Message-
From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
To: cmlhope cml...@googlegroups.com
Sent: Wed, Jan 14, 2015 4:23 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.



Anyone have an endoscopy ? Jeanie

Sent from my iPhone

On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



Maybe they can find out why my side is hurting. 
Blessing everyone 
Jeanie

Sent from my iPhone

On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



They put you to sleep for Bma. 

Sent from my iPhone

On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



Hi it's not me who lost their dad-- I lost mine many years ago. 
I am still so nauseas.   
Hanging in there. 
Doing Bma fri. 
Blessings
Jeanie


Sent from my iPhone

On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote:




Jeanie, 


I'm so sorry for your loss. You will always have them in your heart.  

I lost my parent a long time ago but I miss them as if it were yesterday. When 
I read your message, I looked at their photo and asked them to take good care 
of your dad.


L'chaim, 


Sherri






On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:


Thank you Greenie   
I need that. 
Blessings 
Jeanie

Sent from my iPhone


On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
wrote:



Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on to 
you.
 
greenie
 

In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
cml...@googlegroups.com writes:
  
Thanks Susan.  
  
I'm hanging in there!!!
  
Blessings

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[sherri swanson]

Hi Jeanie,

Yup, I've had them too. I've had 15 of them to exact. For me they were
painless. I had general anaesthesia and woke up as they were taking me to
recovery.  I have a lot of trouble with anaesthesia, so me waking up while
they were taking me to recovery was no big surprise. I once woke up during
the endoscopy itself, but I don't remember anything. LOL  I hope everything
goes well for you and they find out what is bothering.

L'chaim

Sherri

On Wed, Jan 14, 2015 at 11:43 PM, Richard H rbhuffm...@gmail.com wrote:

 You are correct about both.  One time, I had both back to back.  The Dr.
 didn't care for my remark about using clean equipment so now they schedule
 them at different times.

 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:

 Yes Jeannie, I have had an endoscopyNO problem...at least for me.
 Twilight meds, remember nothingnot even a sore throat
 afterwardsI've had two of them. several years apart. Hope yours goes as
 well as mine. Easier on the body than a colonoscopy. Good luck with the
 bone marrow biopsy Friday. glad they will take a good look at what is going
 on and can reset from there...So sorry you are so nauseated.Take good
 care...and jeannie, if you feel at all like talking, happy to listen. Feel
 free to email me at personal email and I can give you phone number.

  Beth


 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Maybe they can find out why my side is hurting.
 Blessing everyone
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   They put you to sleep for Bma.

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Hi it's not me who lost their dad-- I lost mine many years ago.
 I am still so nauseas.
 Hanging in there.
 Doing Bma fri.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com
 wrote:

   Jeanie,

  I'm so sorry for your loss. You will always have them in your heart.
  I lost my parent a long time ago but I miss them as if it were
 yesterday. When I read your message, I looked at their photo and asked them
 to take good care of your dad.

  L'chaim,

  Sherri


 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

  Thank you Greenie
 I need that.
 Blessings
  Jeanie

 Sent from my iPhone

 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cml...@googlegroups.com wrote:

   Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them
 on to you.

 greenie

  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time,
 cml...@googlegroups.com writes:

 Thanks Susan.
 I'm hanging in there!!!
 Blessings.
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:

  Aw Marcie!

  I am so sorry for your loss, dear one.  I know you've been being a good
 caregiver for several years to your dad.  You will be rewarded some day for
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No
 matter what the age, the loss is huge when we are the ones left behind.  It
 was so kind of your rabbi to mention your CML battle.  I pray you stop
 having those horrible cramps, too. Traveling mercies for you all.

  And Jeanie, also know what it's like to have a bad day from hydrea.
  Many (including me) felt like they have the flu with the nausea, and I
 pray this will not last long at all.  A new day is coming, and I sure do
 hope your doc puts you on something that works! (maybe bosulif?)  Here's
 wishing you the best, dear one.

  Love and 18's,

   Susan

 -Original Message-
 From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse

  Hi Jeanie,

  So sorry you are having a tough time. I'm praying for you to have good
 test results and a much better week.

  My 94 year old father passed away on Friday, funeral was today. During
 evening prayers our rabbi asked that everyone pray for not only my father
 and our family but for our group struggling with the impact of CML. My dad
 hated the fact that I had this illness and knew that I had such a wonderful
 online support family.

  So lots of prayers for you and all of us headed out from Baltimore all
 week!

  Much love,

  Marcie

 Sent from my iPhone

 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Hi Marty.
 I feel

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

['Icandoallttc' via CMLHope]

Hi all and thanks so much for the updates in endoscopy. 
Did anyone have anything discovered during the procedure?
I have had an ongoing pain in my right side.  I am hoping they can solve the 
mystery.  
Getting the Bma early in the morning.   No food or drink after midnight.   Sure 
will miss my morning cup if coffee. 
They also want to do a ct scan but put that off for a couple of weeks. 
I had one done last year. 
Blessings
Jeanie


Sent from my iPhone

 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:
 
 You are correct about both.  One time, I had both back to back.  The Dr. 
 didn't care for my remark about using clean equipment so now they schedule 
 them at different times.  
 
 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:
 Yes Jeannie, I have had an endoscopyNO problem...at least for me. 
 Twilight meds, remember nothingnot even a sore throat afterwardsI've 
 had two of them. several years apart. Hope yours goes as well as mine. 
 Easier on the body than a colonoscopy. Good luck with the bone marrow biopsy 
 Friday. glad they will take a good look at what is going on and can reset 
 from there...So sorry you are so nauseated.Take good care...and jeannie, 
 if you feel at all like talking, happy to listen. Feel free to email me at 
 personal email and I can give you phone number. 
 
 Beth
 
 
 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.
 
 Anyone have an endoscopy ? Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
 wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on to 
 you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cml...@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day for 
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
 matter what the age, the loss is huge when we are the ones left behind.  It 
 was so kind of your rabbi to mention your CML battle.  I pray you stop 
 having those horrible cramps, too. Traveling mercies for you all.
 
 And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
 (including me) felt like they have the flu with the nausea, and I pray this 
 will not last long at all.  A new day is coming, and I sure do hope your doc 
 puts you on something that works! (maybe bosulif?)  Here's wishing you the 
 best, dear one.
 
 Love and 18's,
 
 Susan 
 
 -Original Message-
 From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse
 
 Hi Jeanie,
 
 So sorry you are having a tough time. I'm praying for you to have good test 
 results and a much better week. 
 
 My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my father 
 and our family but for our group struggling with the impact of CML. My dad   
hated the fact that I had this illness and knew that I had such a 
 wonderful online support family. 
 
 So lots of prayers for you and all of us headed out from Baltimore all week!
 
 Much love,
 
 Marcie
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 9:33 AM

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[Marty Gartenberg]

Hi Jeanie,

I wish you good luck with your BMA. I'm praying for the best.

18's,

Marty

On Thu, Jan 15, 2015 at 1:34 PM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:

 Hi all and thanks so much for the updates in endoscopy.
 Did anyone have anything discovered during the procedure?
 I have had an ongoing pain in my right side.  I am hoping they can solve
 the mystery.
 Getting the Bma early in the morning.   No food or drink after midnight.
 Sure will miss my morning cup if coffee.
 They also want to do a ct scan but put that off for a couple of weeks.
 I had one done last year.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:

 You are correct about both.  One time, I had both back to back.  The Dr.
 didn't care for my remark about using clean equipment so now they schedule
 them at different times.

 On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:

 Yes Jeannie, I have had an endoscopyNO problem...at least for me.
 Twilight meds, remember nothingnot even a sore throat
 afterwardsI've had two of them. several years apart. Hope yours goes as
 well as mine. Easier on the body than a colonoscopy. Good luck with the
 bone marrow biopsy Friday. glad they will take a good look at what is going
 on and can reset from there...So sorry you are so nauseated.Take good
 care...and jeannie, if you feel at all like talking, happy to listen. Feel
 free to email me at personal email and I can give you phone number.

  Beth


 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Maybe they can find out why my side is hurting.
 Blessing everyone
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   They put you to sleep for Bma.

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

   Hi it's not me who lost their dad-- I lost mine many years ago.
 I am still so nauseas.
 Hanging in there.
 Doing Bma fri.
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com
 wrote:

   Jeanie,

  I'm so sorry for your loss. You will always have them in your heart.
  I lost my parent a long time ago but I miss them as if it were
 yesterday. When I read your message, I looked at their photo and asked them
 to take good care of your dad.

  L'chaim,

  Sherri


 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com wrote:

  Thank you Greenie
 I need that.
 Blessings
  Jeanie

 Sent from my iPhone

 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cml...@googlegroups.com wrote:

   Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them
 on to you.

 greenie

  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time,
 cml...@googlegroups.com writes:

 Thanks Susan.
 I'm hanging in there!!!
 Blessings.
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com wrote:

  Aw Marcie!

  I am so sorry for your loss, dear one.  I know you've been being a good
 caregiver for several years to your dad.  You will be rewarded some day for
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No
 matter what the age, the loss is huge when we are the ones left behind.  It
 was so kind of your rabbi to mention your CML battle.  I pray you stop
 having those horrible cramps, too. Traveling mercies for you all.

  And Jeanie, also know what it's like to have a bad day from hydrea.
  Many (including me) felt like they have the flu with the nausea, and I
 pray this will not last long at all.  A new day is coming, and I sure do
 hope your doc puts you on something that works! (maybe bosulif?)  Here's
 wishing you the best, dear one.

  Love and 18's,

   Susan

 -Original Message-
 From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com
 To: cmlhope cml...@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse

  Hi Jeanie,

  So sorry you are having a tough time. I'm praying for you to have good
 test results and a much better week.

  My 94 year old father passed away on Friday, funeral was today. During
 evening prayers our rabbi asked that everyone pray for not only my father
 and our family but for our group struggling with the impact of CML. My dad
 hated the fact that I had this illness and knew that I had such a wonderful
 online support family.

  So lots of prayers for you and all of us headed

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[bkbarney via CMLHope]

good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for 
results of endoscopies, I had a small stomach ulcer..the result of taking 
NSAIDS on an empty stomach...  to battle a broken hand. it was years ago but 
Iearned my lesson.
I never take any pain med without food.


thinking of you. big hug,. Beth 

-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Jan 15, 2015 12:34 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.



Hi all and thanks so much for the updates in endoscopy. 
Did anyone have anything discovered during the procedure?
I have had an ongoing pain in my right side.  I am hoping they can solve the 
mystery.  
Getting the Bma early in the morning.   No food or drink after midnight.   Sure 
will miss my morning cup if coffee. 
They also want to do a ct scan but put that off for a couple of weeks. 
I had one done last year. 
Blessings
Jeanie


Sent from my iPhone

On Jan 15, 2015, at 12:43 AM, Richard H rbhuffm...@gmail.com wrote:



You are correct about both.  One time, I had both back to back.  The Dr. didn't 
care for my remark about using clean equipment so now they schedule them at 
different times.  

On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:
Yes Jeannie, I have had an endoscopyNO problem...at least for me. Twilight 
meds, remember nothingnot even a sore throat afterwardsI've had two of 
them. several years apart. Hope yours goes as well as mine. Easier on the body 
than a colonoscopy. Good luck with the bone marrow biopsy Friday. glad they 
will take a good look at what is going on and can reset from there...So sorry 
you are so nauseated.Take good care...and jeannie, if you feel at all like 
talking, happy to listen. Feel free to email me at personal email and I can 
give you phone number. 


Beth



-Original Message-
From: 'Icandoallttc' via CMLHope cml...@googlegroups.com
To: cmlhope cml...@googlegroups.com
Sent: Wed, Jan 14, 2015 4:23 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.



Anyone have an endoscopy ? Jeanie

Sent from my iPhone

On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



Maybe they can find out why my side is hurting. 
Blessing everyone 
Jeanie

Sent from my iPhone

On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



They put you to sleep for Bma. 

Sent from my iPhone

On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:



Hi it's not me who lost their dad-- I lost mine many years ago. 
I am still so nauseas.   
Hanging in there. 
Doing Bma fri. 
Blessings
Jeanie


Sent from my iPhone

On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote:




Jeanie, 


I'm so sorry for your loss. You will always have them in your heart.  

I lost my parent a long time ago but I miss them as if it were yesterday. When 
I read your message, I looked at their photo and asked them to take good care 
of your dad.


L'chaim, 


Sherri






On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
cml...@googlegroups.com wrote:


Thank you Greenie   
I need that. 
Blessings 
Jeanie

Sent from my iPhone


On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
wrote:



Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on to 
you.
 
greenie
 

In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
cml...@googlegroups.com writes:
  
Thanks Susan.  
  
I'm hanging in there!!!
  
Blessings. 
  
Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
  

Sent from my iPhone
  

On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
cml...@googlegroups.com   wrote:


  

Aw Marcie! 



I am so sorry for your loss, dear one.  I know you've been being a good 
caregiver for several years to your dad.  You will be rewarded some day for 
that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
matter what the age, the loss is huge when we are the ones left behind.  It 
was so kind of your rabbi to mention your CML battle.  I pray you stop 
having those horrible cramps, too. Traveling mercies for you all.




And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
(including me) felt like they have the flu with the nausea, and I pray this 
will not last long at all.  A new day is coming, and I sure do hope your 
doc puts you on something that works! (maybe bosulif?)  Here's wishing you 
the best, dear one.




Love and 18's,






Susan 


-Original Message-
From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com
To: cmlhope cml...@googlegroups.com
Sent: Sun, Jan 11, 2015 10:59 pm
Subject: Re: [CMLHope] Jeanie's relapse




Hi Jeanie

[CMLHope] Hi all finally going in for an endoscopy next week.

['Icandoallttc' via CMLHope]

Maybe they can find out why my side is hurting. 
Blessing everyone 
Jeanie

Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson.sherri...@gmail.com 
 wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on 
 to you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cmlhope@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day 
 for that.  My heart hurts for you, so will surely be lifting you in 
 prayer.  No matter what the age, the loss is huge when we are the ones 
 left behind.  It was so kind of your rabbi to mention your CML battle.  
 I pray you stop having those horrible cramps, too. Traveling mercies for 
 you all.
 
 And Jeanie, also know what it's like to have a bad day from hydrea.  
 Many (including me) felt like they have the flu with the nausea, and I 
 pray this will not last long at all.  A new day is coming, and I sure do 
 hope your doc puts you on something that works! (maybe bosulif?)  Here's 
 wishing you the best, dear one.
 
 Love and 18's,
 
 Susan 
 
 -Original Message-
 From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse
 
 Hi Jeanie,
 
 So sorry you are having a tough time. I'm praying for you to have good 
 test results and a much better week. 
 
 My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my 
 father and our family but for our group struggling with the impact of 
 CML. My dad hated the fact that I had this illness and knew that I had 
 such a wonderful online support family. 
 
 So lots of prayers for you and all of us headed out from Baltimore all 
 week!
 
 Much love,
 
 Marcie
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Marty. 
 I feel so bad today!!!
 Thinks it's from the hydrea. 
 I will print that out and keep it close. 
 I love psalms also. 
 Keep praying. 
 Jeanie 18's
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Jeanie, I know that your feeling low right now but things will work 
 out for you. You must have this in your heart and I know that you do. 
 FOCUS.
 
 This was something that was given to me by one of my close friends 
 when I had to live in that plastic bubble for all of those many 
 months. I would read it all the time and I am now passing it on to 
 you, and it is being sent to you from my heart because I remember my 
 doubts but then again I also remember my strengths.
 
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO 
 BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT 
 YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS 
 WHAT YOU WILL GET.
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES 
 OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING 
 EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE 
 THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF 
 POSSIBILITY.
 EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT 
 THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES 
 THE SUCCESSFUL OUTCOME...
 FOCUS...
 
 Yes Jeanie you just keep on focusing because you are much more 
 powerful then you think.
 
 Now you know why I keep on sending 18's.
 
 18's,
 
 Marty
 
 On Sat, Jan 10, 2015 at 

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[bkbarney via CMLHope]

Yes Jeannie, I have had an endoscopyNO problem...at least for me. Twilight 
meds, remember nothingnot even a sore throat afterwardsI've had two of 
them. several years apart. Hope yours goes as well as mine. Easier on the body 
than a colonoscopy. Good luck with the bone marrow biopsy Friday. glad they 
will take a good look at what is going on and can reset from there...So sorry 
you are so nauseated.Take good care...and jeannie, if you feel at all like 
talking, happy to listen. Feel free to email me at personal email and I can 
give you phone number. 


Beth



-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jan 14, 2015 4:23 pm
Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.



Anyone have an endoscopy ? Jeanie

Sent from my iPhone

On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:



Maybe they can find out why my side is hurting. 
Blessing everyone 
Jeanie

Sent from my iPhone

On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:



They put you to sleep for Bma. 

Sent from my iPhone

On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:



Hi it's not me who lost their dad-- I lost mine many years ago. 
I am still so nauseas.   
Hanging in there. 
Doing Bma fri. 
Blessings
Jeanie


Sent from my iPhone

On Jan 13, 2015, at 4:06 AM, sherri swanson swanson.sherri...@gmail.com wrote:




Jeanie, 


I'm so sorry for your loss. You will always have them in your heart.  

I lost my parent a long time ago but I miss them as if it were yesterday. When 
I read your message, I looked at their photo and asked them to take good care 
of your dad.


L'chaim, 


Sherri






On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:


Thank you Greenie   
I need that. 
Blessings 
Jeanie

Sent from my iPhone


On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cmlhope@googlegroups.com 
wrote:



Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on to 
you.
 
greenie
 

In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
cmlhope@googlegroups.com writes:
  
Thanks Susan.  
  
I'm hanging in there!!!
  
Blessings. 
  
Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
  

Sent from my iPhone
  

On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
cmlhope@googlegroups.com   wrote:


  

Aw Marcie! 



I am so sorry for your loss, dear one.  I know you've been being a good 
caregiver for several years to your dad.  You will be rewarded some day for 
that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
matter what the age, the loss is huge when we are the ones left behind.  It 
was so kind of your rabbi to mention your CML battle.  I pray you stop 
having those horrible cramps, too. Traveling mercies for you all.




And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
(including me) felt like they have the flu with the nausea, and I pray this 
will not last long at all.  A new day is coming, and I sure do hope your 
doc puts you on something that works! (maybe bosulif?)  Here's wishing you 
the best, dear one.




Love and 18's,






Susan 


-Original Message-
From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Sun, Jan 11, 2015 10:59 pm
Subject: Re: [CMLHope] Jeanie's relapse




Hi Jeanie,




So sorry you are having a tough time. I'm praying for you to have good test 
results and a much better week. 




My 94 year old father passed away on Friday, funeral was today. During 
evening prayers our rabbi asked that everyone pray for not only my father 
and our family but for our group struggling with the impact of CML. My dad 
hated the fact that I had this illness and knew that I had such a wonderful 
online support family. 




So lots of prayers for you and all of us headed out from Baltimore all week!




Much love,




Marcie

Sent from my iPhone


On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:



  
  
Hi Marty. 
  
I feel so bad today!!!
  
Thinks it's from the hydrea. 
  
I will print that out and keep it close. 
  
I love psalms also. 
  
Keep praying. 
  
Jeanie 18's 
  

Sent from my iPhone
  

On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com   wrote:


  


Jeanie, I know that your feeling low right now but things will work out 
for you. You must have this in your heart and I know that you do. 
FOCUS. 



This was something that was given to me

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

['Icandoallttc' via CMLHope]

Anyone have an endoscopy ? Jeanie

Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson.sherri...@gmail.com 
 wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them 
 on to you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cmlhope@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day 
 for that.  My heart hurts for you, so will surely be lifting you in 
 prayer.  No matter what the age, the loss is huge when we are the ones 
 left behind.  It was so kind of your rabbi to mention your CML battle.  
 I pray you stop having those horrible cramps, too. Traveling mercies 
 for you all.
 
 And Jeanie, also know what it's like to have a bad day from hydrea.  
 Many (including me) felt like they have the flu with the nausea, and I 
 pray this will not last long at all.  A new day is coming, and I sure 
 do hope your doc puts you on something that works! (maybe bosulif?)  
 Here's wishing you the best, dear one.
 
 Love and 18's,
 
 Susan 
 
 -Original Message-
 From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse
 
 Hi Jeanie,
 
 So sorry you are having a tough time. I'm praying for you to have good 
 test results and a much better week. 
 
 My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my 
 father and our family but for our group struggling with the impact of 
 CML. My dad hated the fact that I had this illness and knew that I had 
 such a wonderful online support family. 
 
 So lots of prayers for you and all of us headed out from Baltimore all 
 week!
 
 Much love,
 
 Marcie
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Marty. 
 I feel so bad today!!!
 Thinks it's from the hydrea. 
 I will print that out and keep it close. 
 I love psalms also. 
 Keep praying. 
 Jeanie 18's
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com 
 wrote:
 
 Jeanie, I know that your feeling low right now but things will work 
 out for you. You must have this in your heart and I know that you do. 
 FOCUS.
 
 This was something that was given to me by one of my close friends 
 when I had to live in that plastic bubble for all of those many 
 months. I would read it all the time and I am now passing it on to 
 you, and it is being sent to you from my heart because I remember my 
 doubts but then again I also remember my strengths.
 
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO 
 BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY 
 WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT 
 IS WHAT YOU WILL GET.
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR 
 STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU 
 BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO 
 BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE 
 AREA OF POSSIBILITY.
 EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT 
 THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES 
 THE SUCCESSFUL OUTCOME...
 FOCUS...
 
 Yes Jeanie you just keep 

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[Richard H]

Yes I have had several. They are painless, and the new equipment shows the 
full color.  

Richard H.

On Wednesday, January 14, 2015 at 4:23:29 PM UTC-6, Icandoallttc wrote:

 Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

 They put you to sleep for Bma. 

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com 
 javascript: wrote:

 Jeanie, 

 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.

 L'chaim, 

 Sherri


 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie

 Sent from my iPhone

 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
 javascript: wrote:

  Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them 
 on to you.
  
 greenie
  
  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cml...@googlegroups.com javascript: writes:

 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

  Aw Marcie! 

 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day for 
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
 matter what the age, the loss is huge when we are the ones left behind.  It 
 was so kind of your rabbi to mention your CML battle.  I pray you stop 
 having those horrible cramps, too. Traveling mercies for you all.

 And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
 (including me) felt like they have the flu with the nausea, and I pray this 
 will not last long at all.  A new day is coming, and I sure do hope your 
 doc puts you on something that works! (maybe bosulif?)  Here's wishing you 
 the best, dear one.

 Love and 18's,

  Susan 

 -Original Message-
 From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com javascript:
 To: cmlhope cml...@googlegroups.com javascript:
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse

  Hi Jeanie,

 So sorry you are having a tough time. I'm praying for you to have good 
 test results and a much better week. 

 My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my father 
 and our family but for our group struggling with the impact of CML. My dad 
 hated the fact that I had this illness and knew that I had such a wonderful 
 online support family. 

 So lots of prayers for you and all of us headed out from Baltimore all 
 week!

 Much love,

 Marcie

 Sent from my iPhone

 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

  Hi Marty. 
 I feel so bad today!!!
 Thinks it's from the hydrea. 
 I will print that out and keep it close. 
 I love psalms also. 
 Keep praying. 
 Jeanie 18's 

 Sent from my iPhone

 On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com 
 javascript: wrote:

  Jeanie, I know that your feeling low right now but things will work out 
 for you. You must have this in your heart and I know that you do. FOCUS. 

 This was something that was given to me by one of my close friends when I 
 had to live in that plastic bubble for all of those many months. I would 
 read it all the time and I am now passing it on to you, and it is being 
 sent to you from my heart because I remember my doubts but then again I 
 also remember my strengths.

  EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN 
 YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET 
 (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
 MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
 INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
 

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[Joyce Mesnarich]

I have had 4 or 5 endoscopies.  They put you completely out so you don't have 
to try to swallow the tube or anything like that.  Two times I had a mild sore 
throat afterwards for about a day.  The other times I didn't even have that.  
You will have to have someone to drive you home.  Any other questions?
  Joyce in IL




On Jan 14, 2015, at 4:23 PM, 'Icandoallttc' via CMLHope wrote:

 Anyone have an endoscopy ? Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 They put you to sleep for Bma. 
 
 Sent from my iPhone
 
 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie
 
 
 Sent from my iPhone
 
 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson.sherri...@gmail.com 
 wrote:
 
 Jeanie, 
 
 I'm so sorry for your loss. You will always have them in your heart.  
 I lost my parent a long time ago but I miss them as if it were yesterday. 
 When I read your message, I looked at their photo and asked them to take 
 good care of your dad.
 
 L'chaim, 
 
 Sherri
 
 
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 Thank you Greenie   
 I need that. 
 Blessings 
 Jeanie
 
 Sent from my iPhone
 
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them 
 on to you.
  
 greenie
  
 In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cmlhope@googlegroups.com writes:
 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Aw Marcie!
 
 I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day 
 for that.  My heart hurts for you, so will surely be lifting you in 
 prayer.  No matter what the age, the loss is huge when we are the ones 
 left behind.  It was so kind of your rabbi to mention your CML battle.  
 I pray you stop having those horrible cramps, too. Traveling mercies 
 for you all.
 
 And Jeanie, also know what it's like to have a bad day from hydrea.  
 Many (including me) felt like they have the flu with the nausea, and I 
 pray this will not last long at all.  A new day is coming, and I sure 
 do hope your doc puts you on something that works! (maybe bosulif?)  
 Here's wishing you the best, dear one.
 
 Love and 18's,
 
 Susan 
 
 -Original Message-
 From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse
 
 Hi Jeanie,
 
 So sorry you are having a tough time. I'm praying for you to have good 
 test results and a much better week. 
 
 My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my 
 father and our family but for our group struggling with the impact of 
 CML. My dad hated the fact that I had this illness and knew that I had 
 such a wonderful online support family. 
 
 So lots of prayers for you and all of us headed out from Baltimore all 
 week!
 
 Much love,
 
 Marcie
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Marty. 
 I feel so bad today!!!
 Thinks it's from the hydrea. 
 I will print that out and keep it close. 
 I love psalms also. 
 Keep praying. 
 Jeanie 18's
 
 Sent from my iPhone
 
 On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Jeanie, I know that your feeling low right now but things will work 
 out for you. You must have this in your heart and I know that you do. 
 FOCUS.
 
 This was something that was given to me by one of my close friends 
 when I had to live in that plastic bubble for all of those many 
 months. I would read it all the time and I am now passing it on to 
 you, and it is being sent to you from my heart because I remember my 
 doubts but then again I also remember my strengths.
 
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF 
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO 
 BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY 
 WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT 
 IS WHAT YOU WILL GET.
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR 
 STATES OF MIND. LEARN TO EXPECT 

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

[Richard H]

You are correct about both.  One time, I had both back to back.  The Dr. 
didn't care for my remark about using clean equipment so now they schedule 
them at different times.  

On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote:

 Yes Jeannie, I have had an endoscopyNO problem...at least for me. 
 Twilight meds, remember nothingnot even a sore throat 
 afterwardsI've had two of them. several years apart. Hope yours goes as 
 well as mine. Easier on the body than a colonoscopy. Good luck with the 
 bone marrow biopsy Friday. glad they will take a good look at what is going 
 on and can reset from there...So sorry you are so nauseated.Take good 
 care...and jeannie, if you feel at all like talking, happy to listen. Feel 
 free to email me at personal email and I can give you phone number.  

  Beth


 -Original Message-
 From: 'Icandoallttc' via CMLHope cml...@googlegroups.com javascript:
 To: cmlhope cml...@googlegroups.com javascript:
 Sent: Wed, Jan 14, 2015 4:23 pm
 Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week.

  Anyone have an endoscopy ? Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 2:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

   Maybe they can find out why my side is hurting. 
 Blessing everyone 
 Jeanie

 Sent from my iPhone

 On Jan 14, 2015, at 10:57 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

   They put you to sleep for Bma. 

 Sent from my iPhone

 On Jan 14, 2015, at 10:56 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

   Hi it's not me who lost their dad-- I lost mine many years ago. 
 I am still so nauseas.   
 Hanging in there. 
 Doing Bma fri. 
 Blessings
 Jeanie


 Sent from my iPhone

 On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com 
 javascript: wrote:

   Jeanie, 

  I'm so sorry for your loss. You will always have them in your heart.  
  I lost my parent a long time ago but I miss them as if it were 
 yesterday. When I read your message, I looked at their photo and asked them 
 to take good care of your dad.

  L'chaim, 

  Sherri
  
  
 On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

  Thank you Greenie   
 I need that. 
 Blessings 
  Jeanie

 Sent from my iPhone
   
 On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope cml...@googlegroups.com 
 javascript: wrote:

   Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them 
 on to you.
  
 greenie
  
  In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
 cml...@googlegroups.com javascript: writes:

 Thanks Susan.  
 I'm hanging in there!!!
 Blessings. 
 Jeanieemoji_u1f41f.pngemoji_u1f41f.pngemoji_u1f41f.png

 Sent from my iPhone

 On Jan 11, 2015, at 11:17 PM, 'Susan Zimmerman' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

  Aw Marcie! 

  I am so sorry for your loss, dear one.  I know you've been being a good 
 caregiver for several years to your dad.  You will be rewarded some day for 
 that.  My heart hurts for you, so will surely be lifting you in prayer.  No 
 matter what the age, the loss is huge when we are the ones left behind.  It 
 was so kind of your rabbi to mention your CML battle.  I pray you stop 
 having those horrible cramps, too. Traveling mercies for you all.

  And Jeanie, also know what it's like to have a bad day from hydrea. 
  Many (including me) felt like they have the flu with the nausea, and I 
 pray this will not last long at all.  A new day is coming, and I sure do 
 hope your doc puts you on something that works! (maybe bosulif?)  Here's 
 wishing you the best, dear one.

  Love and 18's,

   Susan 
  
 -Original Message-
 From: 'Marcie Goodman' via CMLHope cml...@googlegroups.com javascript:
 To: cmlhope cml...@googlegroups.com javascript:
 Sent: Sun, Jan 11, 2015 10:59 pm
 Subject: Re: [CMLHope] Jeanie's relapse

  Hi Jeanie,

  So sorry you are having a tough time. I'm praying for you to have good 
 test results and a much better week. 

  My 94 year old father passed away on Friday, funeral was today. During 
 evening prayers our rabbi asked that everyone pray for not only my father 
 and our family but for our group struggling with the impact of CML. My dad 
 hated the fact that I had this illness and knew that I had such a wonderful 
 online support family. 

  So lots of prayers for you and all of us headed out from Baltimore all 
 week!

  Much love,

  Marcie

 Sent from my iPhone

 On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
 cml...@googlegroups.com javascript: wrote:

   Hi Marty. 
 I feel so bad today!!!
 Thinks it's from the hydrea. 
 I will print that out and keep it close. 
 I love psalms also. 
 Keep praying. 
 Jeanie 18's 

 Sent from my iPhone

 On Jan 11, 2015, at 8:05 AM, Marty Gartenberg wa2...@gmail.com 
 javascript: wrote:

   Jeanie, I know that your feeling low right now

Re: [CMLHope] Hi

[ICANDOALLTTC]

Good luck Marty with everything.
Blessings,
Jeanie3

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Hi

[Marty Gartenberg]

Thank you and the very same to you Jeanie.

18's

Marty

Good luck Marty with everything.
Blessings,
Jeanie3




On Sat, Jul 27, 2013 at 4:10 PM, icandoall...@aol.com wrote:

 **
 Good luck Marty with everything.
 Blessings,
 Jeanie3

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[CMLHope] Hi

[C.M. Houtz]

Hello to everyone.  I didn't get on here yesterday as I was sick to my stomach 
(from what I don't know), and still have it a little today, but not as bad.  I 
did see my Oncologist and he was able to get the results of my biopsy.  Well, 
it is cirrhosis of the liver and so we have to deal with it.  Since I've been 
on Tasigna for 6 years he is confused as this would normally happen during the 
first year on the drug, so we have to find out how to deal with it.  He's going 
to call the people that make the drug and see what they can find out.  
Meanwhile, I'm off of the Tasigna until further notice.  He did blood work, so 
he'll call me with the results when he gets them.  He is also going to put me 
on the list for a liver transplant.  I didn't think they would consider that at 
my age, and with my other health issues, but he says that they will.  He works 
for Geisinger Hospital, which is huge in this area and they do lots of advanced 
things, so we shall see.  I went to their new cancer clinic in Pottsville, and 
it was nice and brand new, so it was a pleasant experience.  

Your prayers, etc. will be appreciated.  I just have to deal with what is.  
That's what we all do, so nothing new..! 

Talk to you soon.
Many hugs,
Millie

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Re: [CMLHope] Hi

[Marty Gartenberg]

Millie,

Sorry to hear about your liver problems. Yes they do transpalnts even if
you have CML. Just so you know the liver would probably come from a cadaver
also you can get part of a living persons liver so if you know anyone that
has the same blood type as you do and they are willing to donate to you
then you should have them tested. Unlike a bone marrow transplant which
basically doesn't require a blood type match, a solid organ does.

I am in the same position as you are but for a kidney transplant  I may
have a donor back in Florida. I will be going back there in the middle of
September and I should know more once I return.

I wish you the very best of luck

18's times 18's for you

Marty


On Tue, Jul 16, 2013 at 10:59 AM, C.M. Houtz ho...@ptd.net wrote:

 **
 *Hello to everyone.  I didn't get on here yesterday as I was sick to my
 stomach (from what I don't know), and still have it a little today, but not
 as bad.  I did see my Oncologist and he was able to get the results of my
 biopsy.  Well, it is cirrhosis of the liver and so we have to deal with
 it.  Since I've been on Tasigna for 6 years he is confused as this would
 normally happen during the first year on the drug, so we have to find out
 how to deal with it.  He's going to call the people that make the drug and
 see what they can find out.  Meanwhile, I'm off of the Tasigna until
 further notice.  He did blood work, so he'll call me with the results when
 he gets them.  He is also going to put me on the list for a liver
 transplant.  I didn't think they would consider that at my age, and with my
 other health issues, but he says that they will.  He works for Geisinger
 Hospital, which is huge in this area and they do lots of advanced things,
 so we shall see.  I went to their new cancer clinic in Pottsville, and it
 was nice and brand new, so it was a pleasant experience.  *
 **
 *Your prayers, etc. will be appreciated.  I just have to deal with what
 is.  That's what we all do, so nothing new..! *
 **
 *Talk to you soon.*
 *Many hugs,*
 *Millie*

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[CMLHope] Hi Marty

[C.M. Houtz]

Hi MartyWhat do you think of this warm humid weather in PA.  Not a lot 
different then in Florida these days.  I know that you're having some issues 
with your health and I'm hoping that they are ones that you can deal with.  You 
have had so much over the past years and it seems like we can't deal with 
anymore at times, but we do.  I go for my biopsy on Friday morning, leaving 
here around 6:30 to arrive in Allentown at St. Lukes by 8:00 A.M.  With the 
traffic at that hour, we have to leave that early.  Probably will hit the rush 
hour coming home too as they plan on keeping me in bed there for at least 4 
hours, and the procedure will take an hour or more, plus the prep, etc. so it 
will be about 6 hours that my son will have to wait for me.  I feel for him, 
but he says he doesn't mind.  My legs and ankles are so swollen, so I am 
doubling my water pills tomorrow and hope that helps.  I usually double them on 
Mon. Wed. and Friday, but since I'll be there all day on Fridayor a good 
part of it, I'll double it tomorrow and hope to be able to get shoes on Friday 
morning.  We all have fights on our hands and why should it be any different 
for me?  I just try to deal with what isand that's the best I can do.

You take care, my friend, and stay well...or as well as you can.  I do keep all 
of you in my daily prayers and hope that it helps.  Can't hurt!!  Wish I 
could be with my little ones, but can't make that 2 and a half hour trip at 
present.  Hopefully, when this is all over with I'll be able to go see them.  
My son brings them when he can, but his job, family, and all of the kids 
sports, camps, etc. keep him running.  He is also one of the leaders for his 
son's boy scout troop.  Rick is an eagle scout, and after collage was offered a 
job with the Boy Scouts of America, but turned it down.  At any rate he keeps 
busy.

Hope to see you on line soon.  Hope you and your wife have a great summer.
18's to you both,
Millie

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Re: [CMLHope] Hi Marty

[Marty Gartenberg]

Dear Millie,

I wish you good luck with your upcoming tests. Funny you should mention
Monday, Wednesday and Friday. Those are my dialysis days. You and I and
just about everyone here simply has to do whatever we all need to do. Stay
alive but also try to live our lives as best we can.

It sounds like you have a good son. May GOD bless him and you.

18's,

Marty


On Wed, Jul 3, 2013 at 7:37 PM, C.M. Houtz ho...@ptd.net wrote:

 **
 *Hi MartyWhat do you think of this warm humid weather in PA.  Not a
 lot different then in Florida these days.  I know that you're having some
 issues with your health and I'm hoping that they are ones that you can deal
 with.  You have had so much over the past years and it seems like we can't
 deal with anymore at times, but we do.  I go for my biopsy on Friday
 morning, leaving here around 6:30 to arrive in Allentown at St. Lukes by
 8:00 A.M.  With the traffic at that hour, we have to leave that early.
 Probably will hit the rush hour coming home too as they plan on keeping me
 in bed there for at least 4 hours, and the procedure will take an hour or
 more, plus the prep, etc. so it will be about 6 hours that my son will have
 to wait for me.  I feel for him, but he says he doesn't mind.  My legs and
 ankles are so swollen, so I am doubling my water pills tomorrow and hope
 that helps.  I usually double them on Mon. Wed. and Friday, but since I'll
 be there all day on Fridayor a good part of it, I'll double it tomorrow
 and hope to be able to get shoes on Friday morning.  We all have fights on
 our hands and why should it be any different for me?  I just try to deal
 with what isand that's the best I can do.*
 **
 *You take care, my friend, and stay well...or as well as you can.  I do
 keep all of you in my daily prayers and hope that it helps.  Can't
 hurt!!  Wish I could be with my little ones, but can't make that 2 and
 a half hour trip at present.  Hopefully, when this is all over with I'll be
 able to go see them.  My son brings them when he can, but his job, family,
 and all of the kids sports, camps, etc. keep him running.  He is also one
 of the leaders for his son's boy scout troop.  Rick is an eagle scout, and
 after collage was offered a job with the Boy Scouts of America, but turned
 it down.  At any rate he keeps busy.*
 **
 *Hope to see you on line soon.  Hope you and your wife have a great
 summer.*
 *18's to you both,*
 *Millie*

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[CMLHope] CMLHope hi

[Suzan Collins]

hey check this out http://bit.ly/XLPYNZ

Suzan

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[CMLHope] CMLHope hi

[Suzan Collins]

check this out http://bit.ly/1132AmD

Suzan

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Re: [CMLHope] HI I am a new member...

[Rob]

Welcome to the group.

Rob

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Re: [CMLHope] HI I am a new member...

[Bkbarney]

Thank you Rob...it's a life line...Beth

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Re: [CMLHope] HI I am a new member...

[C.M. Houtz]

Hi Beth...

The worst side effects I had on Gleevec were constant diarrhea and that wasn't 
any fun.  It seemed to help to avoid certain foods, but was always a problem.  
On Tasigna, I have the opposite problem, but much easier to control.  I have 
arthritis and I believe that some of the bone and muscle pain I have comes from 
being on these drugs, but not much I can do about that either.  I wish I could 
help  you, my friend.  I know that you are having problems.  My liver enzymes 
are elevated some, but still okay, and my sugar was only 57 this morning, so 
I'm wondering about that too.  I am going to ask my doctor about that when I 
see her at the end of the month.  I know it can affect my liver and want to see 
if injecting myself, rather then the pill form, would help that.  I never had 
problems until I went on Tasigna, but have to try to deal with them.  I don't 
think that the doctors are aware of all of the side effects that this drug 
brings.  If I find out anything that will help, I'll let you know.  Try to stay 
positive, Beth, and I pray things get better for you.  Take care, and write 
anytime.  You can always  use my e-mail address  ho...@ptd.net  I know that we 
all need someone to talk to.

Many hugs,
Millie
  - Original Message - 
  From: bkbar...@aol.com 
  To: cmlhope@googlegroups.com 
  Sent: Thursday, July 22, 2010 12:37 AM
  Subject: Re: [CMLHope] HI I am a new member...


  Dear Millie,

  Having a bad day, thought I would reach out to you. Worried about side 
effects that are getting worse...liver enzymes 4xnormal, sugars very 
highwonder what kinds of side effects from Gleevec you endured before 
switching to Tasigna...the swelling was what brought me off of Gleevec as 
wellbut in a much shorter time2.5 months.I have beren on Tasigna for 
the past 8-9 weeks.so hopefull,y still adjusting and things will get 
better

  Take care. Beth

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Re: [CMLHope] HI I am a new member...

[Bkbarney]

Thanks Millie...I am a bit of a mess today...yoru support is so welcome!!!

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Re: [CMLHope] Hi group

[TEDBDD]

Thanks!  Tom
 
 
In a message dated 6/30/2010 2:49:30 P.M. Eastern Daylight Time,  
jl...@rogers.com writes:

omacetaxine

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Re: [CMLHope] Hi group

[Ted]

Hi there
I am a sophomore in china.  I diagnosed with CML on Feb 18th,2010.
And i started to take Gleevic since Feb 21st.
Fortunately now everything is ok and the drugs work on me quit well   
but the price of Gleevic is too high for an average people in china.



Sent from my iPhone

在 Jun 30, 2010，8:59 AM，john barrons jl...@rogers.com 写到：

Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec,  
and sprycel. Now I am on HHT and I understand that ariad is the next  
good one. There are many others being workedJohn

- Original Message -
From: myvet...@aol.com
To: cmlhope@googlegroups.com
Sent: Tuesday, June 29, 2010 11:42 AM
Subject: Re: [CMLHope] Hi group

Thanks Jeanie.

In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, icandoall...@aol.com 
 writes:
Hi Greenie and sorry for your problems.  If you know  my story  
you know that Gleevec quit working for me after 5 years.  I started  
taking Tasigna and it only worked for 8 months and I am now on  
Sprycel, the last drug out there for CML.
Don't worry, you can get help for the other drugs if you have to  
take them. I worried every time I had to change drugs but they  
always get paid for.

Let us hope it was just a bloop in the test and pray for the best.
Good luck,
Jeanie3

In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, myvet...@aol.com 
 writes:
Hi, I've noticed the same thing about less mail.  I had blood work  
at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called  
me to let me know that cancer cells were showing up in my blood.   
I've been in a study beginning Feb 5, 2000 and now after all these  
years I'm having problems.  She wants me back June 30 for more blood  
work, if their is no change then she wants to do a BMB.  Of course  
she told me not to worry, yea sure.  She said, their are other drugs  
out their that we can use.  But she didn't know that I get my  
Gleevec for free from Northwestern.  That I'm grand fathered in for  
life.  Some of these Doctors have no idea what's going on, their in  
their own little world and don't have cancer. They just go to work  
each day, spend 3 min. with you in a room and out the door. Their  
are some good Doctor's out their that will listen but this one I  
have now, she's got to go.  I'm going to ask for a different one on  
my next visit.  Sorry lady, don't mean to hurt your feelings but you  
just don't understand.


Greenie
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[CMLHope] Hi Greenie

[Judy L]

I went on the interferon intolerant trials in 12/00 at Dana Farber. I
am still on 400mgs and I have never been pcr 0. Instead, I bounce
around a little.  Since we moved to FL, my local onc has been sending
me to MDA. When Gleevec was approved, my free supply stopped. I had
good insurance then, so I paid $12 for a 3 mo supply. When I hit 65,
Novartis finished the year out with free meds and then referred me to
patient assistance, so the meds are still free. I am sure the other
drug companies have programs too. I am busy now,  ( thanks Gleevec!)
so I rarely have time to post. But I do try to read the digests.Good
luck to you!

Judy L

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Re: [CMLHope] Hi group

[TEDBDD]

John...what is HHT...I googled it and got lots of hits...but none related  
to CML.  Tom in KY
 
 
In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time,  
jl...@rogers.com writes:

Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and  
sprycel. Now I am on HHT and I understand that ariad is the next good one.  
There are many others being workedJohn

- Original Message - 
From:  _myvet...@aol.com_ (mailto:myvet...@aol.com)  
To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  
Sent: Tuesday, June 29, 2010 11:42  AM
Subject: Re: [CMLHope] Hi group


Thanks Jeanie.
 
 
In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, 
_icandoall...@aol.com_ (mailto:icandoall...@aol.com)  writes:

Hi Greenie and sorry for your problems.  If you  know my story you know 
that Gleevec quit working for me after 5  years.  I started taking Tasigna and 
it only worked for 8 months and  I am now on Sprycel, the last drug out 
there for CML.
Don't worry, you can get help for the other drugs if you  have to take 
them. I worried every time I had to change drugs but they  always get paid for.
Let us hope it was just a bloop in the test and pray for  the best.
Good luck,
Jeanie3
 
 
In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time,  
myvet...@aol.com writes:

Hi, I've noticed the same thing about less mail.   I had blood work at 
Northwestern Hosp. in Chicago June 2nd. and my new  Doctor called me to let me 
know that cancer cells were showing up in my  blood.  I've been in a study 
beginning Feb 5, 2000 and now after  all these years I'm having problems.  She 
wants me back June 30 for  more blood work, if their is no change then she 
wants to do a BMB.   Of course she told me not to worry, yea sure.  She 
said, their are  other drugs out their that we can use.  But she didn't know 
that I  get my Gleevec for free from Northwestern.  That I'm grand fathered  in 
for life.  Some of these Doctors have no idea what's going on,  their in 
their own little world and don't have cancer. They  just go to work each day, 
spend 3 min. with you in a room and out the  door. Their are some good 
Doctor's out their that will listen but this  one I have now, she's got to go.  
I'm going to ask for a different  one on my next visit.  Sorry lady, don't 
mean to hurt your feelings  but you just don't understand.  
 
Greenie


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Re: [CMLHope] Hi Greenie

[Myvety2k]

Hi Judy, We are planning to move to Naples, FL. by Oct. or  Nov.  My 
brother lives in Naples during the winter and Indiana in the  summer. Do you 
mine 
telling me where in FL. you live?  Thanks your  reply.   Greenie
 
 
In a message dated 6/30/2010 8:43:37 A.M. Central Daylight Time,  
gibb...@gmail.com writes:

I went  on the interferon intolerant trials in 12/00 at Dana Farber. I
am still on  400mgs and I have never been pcr 0. Instead, I bounce
around a  little.  Since we moved to FL, my local onc has been sending
me to  MDA. When Gleevec was approved, my free supply stopped. I had
good  insurance then, so I paid $12 for a 3 mo supply. When I hit 65,
Novartis  finished the year out with free meds and then referred me to
patient  assistance, so the meds are still free. I am sure the other
drug companies  have programs too. I am busy now,  ( thanks Gleevec!)
so I rarely have  time to post. But I do try to read the digests.Good
luck to  you!

Judy L

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Re: [CMLHope] Hi group

[Myvety2k]

Good question Tom, I was thinking the same thing.greenie
 
 
In a message dated 6/30/2010 9:41:33 A.M. Central Daylight Time,  
ted...@aol.com writes:

John...what is HHT...I googled it and got lots of hits...but none related  
to CML.  Tom in KY
 
 
In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time,  
jl...@rogers.com writes:

Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and  
sprycel. Now I am on HHT and I understand that ariad is the next good one.  
There are many others being workedJohn

- Original Message - 
From:  _myvet...@aol.com_ (mailto:myvet...@aol.com)  
To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  
Sent: Tuesday, June 29, 2010 11:42  AM
Subject: Re: [CMLHope] Hi group


Thanks Jeanie.
 
 
In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, 
_icandoall...@aol.com_ (mailto:icandoall...@aol.com)  writes:

Hi Greenie and sorry for your problems.  If you  know my story you know 
that Gleevec quit working for me after 5  years.  I started taking Tasigna and 
it only worked for 8 months  and I am now on Sprycel, the last drug out 
there for CML.
Don't worry, you can get help for the other drugs if  you have to take 
them. I worried every time I had to change drugs but  they always get paid for.
Let us hope it was just a bloop in the test and pray  for the best.
Good luck,
Jeanie3
 
 
In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time,  
myvet...@aol.com writes:

Hi, I've noticed the same thing about less  mail.  I had blood work at 
Northwestern Hosp. in Chicago June  2nd. and my new Doctor called me to let me 
know that cancer cells were  showing up in my blood.  I've been in a study 
beginning Feb 5,  2000 and now after all these years I'm having problems.  She 
 wants me back June 30 for more blood work, if their is no change then  she 
wants to do a BMB.  Of course she told me not to worry, yea  sure.  She 
said, their are other drugs out their that we can  use.  But she didn't know 
that I get my Gleevec for free from  Northwestern.  That I'm grand fathered in 
for life.  Some of  these Doctors have no idea what's going on, their in 
their  own little world and don't have cancer. They just go to work  each day, 
spend 3 min. with you in a room and out the door. Their are  some good 
Doctor's out their that will listen but this one I have now,  she's got to go.  
I'm going to ask for a different one on my next  visit.  Sorry lady, don't 
mean to hurt your feelings but you just  don't understand.  
 
Greenie


-- 
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Re: [CMLHope] Hi group

[john barrons]

Hi HHT is homoharringtonin.There are several trial groups around. It is a self 
injected drug based on a 28 day cycle. I am on the drug for 5 days out of the 
28. The drug keeps my counts in range although I am still 100% phillies
  - Original Message - 
  From: myvet...@aol.com 
  To: cmlhope@googlegroups.com 
  Sent: Wednesday, June 30, 2010 12:42 PM
  Subject: Re: [CMLHope] Hi group


  Good question Tom, I was thinking the same thing.   greenie

  In a message dated 6/30/2010 9:41:33 A.M. Central Daylight Time, 
ted...@aol.com writes:
John...what is HHT...I googled it and got lots of hits...but none related 
to CML.  Tom in KY

In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time, 
jl...@rogers.com writes:
  Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and 
sprycel. Now I am on HHT and I understand that ariad is the next good one. 
There are many others being workedJohn
- Original Message - 
From: myvet...@aol.com 
To: cmlhope@googlegroups.com 
Sent: Tuesday, June 29, 2010 11:42 AM
Subject: Re: [CMLHope] Hi group


Thanks Jeanie.

In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, 
icandoall...@aol.com writes:
  Hi Greenie and sorry for your problems.  If you know my story you 
know that Gleevec quit working for me after 5 years.  I started taking Tasigna 
and it only worked for 8 months and I am now on Sprycel, the last drug out 
there for CML.
  Don't worry, you can get help for the other drugs if you have to take 
them. I worried every time I had to change drugs but they always get paid for.
  Let us hope it was just a bloop in the test and pray for the best.
  Good luck,
  Jeanie3

  In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, 
myvet...@aol.com writes:
Hi, I've noticed the same thing about less mail.  I had blood work 
at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let 
me know that cancer cells were showing up in my blood.  I've been in a study 
beginning Feb 5, 2000 and now after all these years I'm having problems.  She 
wants me back June 30 for more blood work, if their is no change then she wants 
to do a BMB.  Of course she told me not to worry, yea sure.  She said, their 
are other drugs out their that we can use.  But she didn't know that I get my 
Gleevec for free from Northwestern.  That I'm grand fathered in for life.  Some 
of these Doctors have no idea what's going on, their in their own little world 
and don't have cancer. They just go to work each day, spend 3 min. with you in 
a room and out the door. Their are some good Doctor's out their that will 
listen but this one I have now, she's got to go.  I'm going to ask for a 
different one on my next visit.  Sorry lady, don't mean to hurt your feelings 
but you just don't understand.  

Greenie

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  A support group of http://cmlhope.com
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Re: [CMLHope] Hi group

[john barrons]

Hi: HHt was called homoharringtonin but it is now called omacetaxine. You find 
many sites relating to cml
  - Original Message - 
  From: ted...@aol.com 
  To: cmlhope@googlegroups.com 
  Sent: Wednesday, June 30, 2010 10:41 AM
  Subject: Re: [CMLHope] Hi group


  John...what is HHT...I googled it and got lots of hits...but none related to 
CML.  Tom in KY

  In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time, 
jl...@rogers.com writes:
Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and 
sprycel. Now I am on HHT and I understand that ariad is the next good one. 
There are many others being workedJohn
  - Original Message - 
  From: myvet...@aol.com 
  To: cmlhope@googlegroups.com 
  Sent: Tuesday, June 29, 2010 11:42 AM
  Subject: Re: [CMLHope] Hi group


  Thanks Jeanie.

  In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, 
icandoall...@aol.com writes:
Hi Greenie and sorry for your problems.  If you know my story you know 
that Gleevec quit working for me after 5 years.  I started taking Tasigna and 
it only worked for 8 months and I am now on Sprycel, the last drug out there 
for CML.
Don't worry, you can get help for the other drugs if you have to take 
them. I worried every time I had to change drugs but they always get paid for.
Let us hope it was just a bloop in the test and pray for the best.
Good luck,
Jeanie3

In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, 
myvet...@aol.com writes:
  Hi, I've noticed the same thing about less mail.  I had blood work at 
Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let me 
know that cancer cells were showing up in my blood.  I've been in a study 
beginning Feb 5, 2000 and now after all these years I'm having problems.  She 
wants me back June 30 for more blood work, if their is no change then she wants 
to do a BMB.  Of course she told me not to worry, yea sure.  She said, their 
are other drugs out their that we can use.  But she didn't know that I get my 
Gleevec for free from Northwestern.  That I'm grand fathered in for life.  Some 
of these Doctors have no idea what's going on, their in their own little world 
and don't have cancer. They just go to work each day, spend 3 min. with you in 
a room and out the door. Their are some good Doctor's out their that will 
listen but this one I have now, she's got to go.  I'm going to ask for a 
different one on my next visit.  Sorry lady, don't mean to hurt your feelings 
but you just don't understand.  

  Greenie

-- 
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Re: [CMLHope] Hi group

[ICANDOALLTTC]

Hi Greenie and sorry for your problems.  If you know my  story you know 
that Gleevec quit working for me after 5 years.  I started  taking Tasigna and 
it only worked for 8 months and I am now on Sprycel, the last  drug out 
there for CML.
Don't worry, you can get help for the other drugs if you have  to take 
them. I worried every time I had to change drugs but they always get  paid for.
Let us hope it was just a bloop in the test and pray for the  best.
Good luck,
Jeanie3
 
 
In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time,  
myvet...@aol.com writes:

Hi, I've noticed the same thing about less mail.  I had  blood work at 
Northwestern Hosp. in Chicago June 2nd. and my new Doctor called  me to let me 
know that cancer cells were showing up in my blood.  I've  been in a study 
beginning Feb 5, 2000 and now after all these years I'm having  problems.  She 
wants me back June 30 for more blood work, if their is no  change then she 
wants to do a BMB.  Of course she told me not to worry,  yea sure.  She 
said, their are other drugs out their that we can  use.  But she didn't know 
that I get my Gleevec for free from  Northwestern.  That I'm grand fathered in 
for life.  Some of these  Doctors have no idea what's going on, their in 
their own little world  and don't have cancer. They just go to work each day, 
spend 3 min. with  you in a room and out the door. Their are some good 
Doctor's out their that  will listen but this one I have now, she's got to go.  
I'm going to ask  for a different one on my next visit.  Sorry lady, don't 
mean to hurt  your feelings but you just don't understand.  
 
Greenie

-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Hi group

[Myvety2k]

Thanks Jeanie.
 
 
In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time,  
icandoall...@aol.com writes:

Hi Greenie and sorry for your problems.  If you know my  story you know 
that Gleevec quit working for me after 5 years.  I started  taking Tasigna and 
it only worked for 8 months and I am now on Sprycel, the  last drug out 
there for CML.
Don't worry, you can get help for the other drugs if you  have to take 
them. I worried every time I had to change drugs but they always  get paid for.
Let us hope it was just a bloop in the test and pray for the  best.
Good luck,
Jeanie3
 
 
In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time,  
myvet...@aol.com writes:

Hi, I've noticed the same thing about less mail.  I  had blood work at 
Northwestern Hosp. in Chicago June 2nd. and my new Doctor  called me to let me 
know that cancer cells were showing up in my  blood.  I've been in a study 
beginning Feb 5, 2000 and now after all  these years I'm having problems.  She 
wants me back June 30 for more  blood work, if their is no change then she 
wants to do a BMB.  Of  course she told me not to worry, yea sure.  She 
said, their are other  drugs out their that we can use.  But she didn't know 
that I get my  Gleevec for free from Northwestern.  That I'm grand fathered in 
for  life.  Some of these Doctors have no idea what's going on, their in  
their own little world and don't have cancer. They just go to work  each day, 
spend 3 min. with you in a room and out the door. Their are some  good 
Doctor's out their that will listen but this one I have now, she's got  to go.  
I'm going to ask for a different one on my next visit.   Sorry lady, don't 
mean to hurt your feelings but you just don't  understand.  
 
Greenie


-- 
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Re: [CMLHope] Hi group

[Myvety2k]

Hi, I've noticed the same thing about less mail.  I had  blood work at 
Northwestern Hosp. in Chicago June 2nd. and my new Doctor called  me to let me 
know that cancer cells were showing up in my blood.  I've been  in a study 
beginning Feb 5, 2000 and now after all these years I'm having  problems.  She 
wants me back June 30 for more blood work, if their is no  change then she 
wants to do a BMB.  Of course she told me not to worry, yea  sure.  She 
said, their are other drugs out their that we can use.  But  she didn't know 
that I get my Gleevec for free from Northwestern.  That I'm  grand fathered in 
for life.  Some of these Doctors have no idea what's  going on, their in 
their own little world and don't have cancer. They  just go to work each day, 
spend 3 min. with you in a room and out the door.  Their are some good 
Doctor's out their that will listen but this one I have now,  she's got to go.  
I'm going to ask for a different one on my next  visit.  Sorry lady, don't 
mean to hurt your feelings but you just don't  understand.  
 
Greenie
 
 
In a message dated 6/22/2010 4:39:21 P.M. Central Daylight Time,  
margoo...@aol.com writes:

Hi  Greenie:

This is Marcie in Baltimore.  I have not received any  undesirable mail 
from you either.  I'm a relative newcomer to the  group.  The main thing 
I notice is that there seems to be less  traffic between all of us.  
Hope everyone is doing well.  I was  dx in March '09, 400 mg Gleevec, 
did well until February '10 and got  bumped up to 600 mg.  Getting used 
to the higher dose was just like  starting out new, very difficult, but 
my numbers are greatly  improved.  I have needed red cell infusions due 
to the Gleevec and I  just found out that my throid is out of whack, 
unrelated to the CML.   All in all, I am so grateful to have an illness 
that is manageable.   Best wishes to all of you and thanks for always 
being so supportive of our  group.


-Original Message-
From: C.M. Houtz  ho...@ptd.net
To: cmlhope@googlegroups.com
Sent: Tue, Jun 22,  2010 4:53 pm
Subject: Re: [CMLHope] Hi group


Hi GreenieHope  that this finds you wellor as well as any of us 
can be.  I  haven't received any xxx rated mail from you.  In fact my 
mail is  working just fine.  I get most of the things sent out, if not  
all.  I went on facebook, but got off fast as I was getting  unsolicited 
mail from different men, and this 71 year old lady doesn't  need that.  
I actually didn't put my information out on it, but  decided it wasn't 
something I wanted to participate in.  I never did  connect with any of 
the CML people.  Oh wellHope that this gets  through to you okay.  
Millie

- Original Message  -
From: myvet...@aol.com
To: CMLHope@googlegroups.com
Sent:  Saturday, June 19, 2010 7:53 AM
Subject: [CMLHope] Hi group


For  some odd reason some sort of unwanted mail is going out to people 
in my  address book.  Some of the mail is mail that I wouldn't sent to  
anyone.  I don't know how this happened but I must have received some  
spam, etc. I've reformatted my computer but that has not helped. I have  
friends that send me mail that I would not send out to anyone if you  
know what I mean. I've send them back telling them Not to send me  
anything that xxx rated.  I hope that nothing like this has gone out  to 
our CML web site. I seen to have stopped getting any mail from our CML  
site and I don't know  why.

greenie

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[CMLHope] Hi group

[Myvety2k]

For some odd reason some sort of unwanted mail is going out to people in my 
 address book.  Some of the mail is mail that I wouldn't sent to  anyone.  
I don't know how this happened but I must have received some spam,  etc. 
I've reformatted my computer but that has not helped. I have friends that  send 
me mail that I would not send out to anyone if you know what I mean. I've  
send them back telling them Not to send me anything that xxx rated.  I hope  
that nothing like this has gone out to our CML web site. I seen to have 
stopped  getting any mail from our CML site and I don't know why. 
 
greenie

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[CMLHope]
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Re: [CMLHope] Hi group

[Martin Gartenberg]

Hi Greenie,

What you may have on your computer is either malware or spyware. You
mentioned that you have reformatted your computer, and if your talking about
your hard drive then that should have taken care of the problem, but it
wasn't really necessary.

If it wasn't your hard drive that was reformatted then I still say that you
need to have a good spyware and malware program like spy hunter or something
like that, then you should scan your computer.

If it was the hard drive you formatted then I would think that someone got
hold of your user name and password and is playing games.

If this is the case then you need to change either your user name or
password or even better, both of them.

You also mentioned that you are not getting anything from the CML website.
If you can get this message then please respond  to me so that you know it
is working.

Good luck,

Marty

On Sat, Jun 19, 2010 at 7:53 AM, myvet...@aol.com wrote:

  For some odd reason some sort of unwanted mail is going out to people in
 my address book.  Some of the mail is mail that I wouldn't sent to anyone.
 I don't know how this happened but I must have received some spam, etc. I've
 reformatted my computer but that has not helped. I have friends that send me
 mail that I would not send out to anyone if you know what I mean. I've send
 them back telling them Not to send me anything that xxx rated.  I hope that
 nothing like this has gone out to our CML web site. I seen to have stopped
 getting any mail from our CML site and I don't know why.

 greenie

 --
 [CMLHope]
 A support group of http://cmlhope.com
 -

 You received this message because you are subscribed to the Google Groups
 CMLHope group.
 To post to this group, send email to CMLHope@googlegroups.com
 To unsubscribe from this group, send email to
 cmlhope-unsubscr...@googlegroups.com
 For more options, visit this group at
 http://groups.google.com/group/CMLHope

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Re: [CMLHope] Hi group

[C.M. Houtz]

Hi GreenieHope that this finds you wellor as well as any of us can be.  
I haven't received any xxx rated mail from you.  In fact my mail is working 
just fine.  I get most of the things sent out, if not all.  I went on facebook, 
but got off fast as I was getting unsolicited mail from different men, and this 
71 year old lady doesn't need that.  I actually didn't put my information out 
on it, but decided it wasn't something I wanted to participate in.  I never did 
connect with any of the CML people.  Oh wellHope that this gets through to 
you okay.  Millie
  - Original Message - 
  From: myvet...@aol.com 
  To: CMLHope@googlegroups.com 
  Sent: Saturday, June 19, 2010 7:53 AM
  Subject: [CMLHope] Hi group


  For some odd reason some sort of unwanted mail is going out to people in my 
address book.  Some of the mail is mail that I wouldn't sent to anyone.  I 
don't know how this happened but I must have received some spam, etc. I've 
reformatted my computer but that has not helped. I have friends that send me 
mail that I would not send out to anyone if you know what I mean. I've send 
them back telling them Not to send me anything that xxx rated.  I hope that 
nothing like this has gone out to our CML web site. I seen to have stopped 
getting any mail from our CML site and I don't know why. 

  greenie

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Re: [CMLHope] Hi group

[margood18]

Hi Greenie:

This is Marcie in Baltimore.  I have not received any undesirable mail 
from you either.  I'm a relative newcomer to the group.  The main thing 
I notice is that there seems to be less traffic between all of us.  
Hope everyone is doing well.  I was dx in March '09, 400 mg Gleevec, 
did well until February '10 and got bumped up to 600 mg.  Getting used 
to the higher dose was just like starting out new, very difficult, but 
my numbers are greatly improved.  I have needed red cell infusions due 
to the Gleevec and I just found out that my throid is out of whack, 
unrelated to the CML.  All in all, I am so grateful to have an illness 
that is manageable.  Best wishes to all of you and thanks for always 
being so supportive of our group.



-Original Message-
From: C.M. Houtz ho...@ptd.net
To: cmlhope@googlegroups.com
Sent: Tue, Jun 22, 2010 4:53 pm
Subject: Re: [CMLHope] Hi group


Hi GreenieHope that this finds you wellor as well as any of us 
can be.  I haven't received any xxx rated mail from you.  In fact my 
mail is working just fine.  I get most of the things sent out, if not 
all.  I went on facebook, but got off fast as I was getting unsolicited 
mail from different men, and this 71 year old lady doesn't need that.  
I actually didn't put my information out on it, but decided it wasn't 
something I wanted to participate in.  I never did connect with any of 
the CML people.  Oh wellHope that this gets through to you okay.  
Millie


- Original Message -
From: myvet...@aol.com
To: CMLHope@googlegroups.com
Sent: Saturday, June 19, 2010 7:53 AM
Subject: [CMLHope] Hi group


For some odd reason some sort of unwanted mail is going out to people 
in my address book.  Some of the mail is mail that I wouldn't sent to 
anyone.  I don't know how this happened but I must have received some 
spam, etc. I've reformatted my computer but that has not helped. I have 
friends that send me mail that I would not send out to anyone if you 
know what I mean. I've send them back telling them Not to send me 
anything that xxx rated.  I hope that nothing like this has gone out to 
our CML web site. I seen to have stopped getting any mail from our CML 
site and I don't know why.

 
greenie

--
[CMLHope]
A support group of http://cmlhope.com
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Groups CMLHope group.

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To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at 
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[CMLHope] Hi Millie, my onc just put me on Tasigna; need your input

[ICANDOALLTTC]

 
Hi Millie,
I just got back from my Onc's office visit.
He put me on Tasigna; I was wanting Sprycel, but this is what  he recommended.
I need to know what to expect.  Did you clean out the  Gleevec before 
starting the Tasigna?
As you can see, I'm a little nervous about the new  drug.
He wants EKG every week.
Thanks for all you input.
Blessings,
Jeanie3
In a message dated 9/17/2008 2:06:00 P.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

Hi Jeanie.Just on  my way out to take my Tasigna, but it can wait a 
moment.  I then will  start supper and that will give me time to wait the extra 
hour.  It's not  difficult, once I started.  No, I didn't need the EKG's every 
day, but  probably once a week, for a while.  They just did another one 
yesterday,  but it's been a while since I had one.  Everything is great with  
that.  
I've noticed a few things since on the new med.  I don't have  the weight gain, 
or the swelling (water), and don't miss it at all.  On  Gleevec I had 
diarrhea and that seems to be gone too.  I feel my life is  so much better.  
Please 
let me know what your doctor decides for  you.  As I said before, I don't know 
why he switched me.just said the  Gleevec wasn't working as well as he 
wanted it too.
 
You're in my thoughts  and prayers.
Millie

- Original Message - 
From:  [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED])  
To: [EMAIL PROTECTED] (mailto:CMLHope@googlegroups.com)  
Sent: Wednesday, September 17, 2008  4:52 PM
Subject: [CMLHope] Re: CML HAS GONE  INTO ACCELERATED PHASE to millie



Hi Millie and thanks so much for your prayers and  uplifting note.
Did you go into accelerated phase when he switched  you?
On the Tasigna, did you have to have cardiograms  daily?
Yes, that would be hard; I remember taken an antibiotic  that had to be taken 
on an empty stomach; hard to time it.
I am just waiting for my Dr to call and tell me what he  wants to do.
I think they are still doing cytogenics on the test and  they aren't ready 
yet.
I'm 70, and am still hanging in there.
I noticed my left leg was swelling today, and that has  never happened to me 
before.  I do know some of our cml'ers have  swelling.
Also the front of leg is hurting.
Blessings to you and your e-mail has helped me so  much.
Jeanie3
 
 
In a message dated 9/16/2008 1:48:48 P.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

Hi  Jeanie3
 
I've been reading  some of the messages  you've posted and know that you are 
having a  time with it all.  Just recently my meds had to be changed.  You  
might laugh, but my Onc. of 15 yrs and I have decided that I don't need to  
know 
everything and it works best for me.  If it's something I must  know, he'll 
tell me.  All I know is that my Gleevec wasn't working  for me anymore.  He 
switched me to Tasigna and , although I worried a  lot about the side effects, 
things have worked out for me.  I'm not  having nearly as many side affects and 
that's a good thing.  The  hardest part about taking it is doing it every 12 
hours and trying to fit  my meals in so that I can do this.  It has ended up 
that I have to  set the alarm for 5:00 A.M. and take my meds then, and that's 
fine.   You can't eat 2 hours prior, or an hour after taking the meds.  At  any 
rate this has worked out for me.  I'm due to take it in about 15  min. and 
then will start working on my supper for the day.  I do have  a heart condition 
too...I have a Pace Maker..just had a new one put in a  few months ago.  All in 
all am doing well for a 69 yr. old.  I  am in a wheel chair and walker, do to 
other problems, but am not giving up  the fight.  
 
You take care and  know that we're all out there keeping up with what you're 
dealing with and  always hoping for the best.  None of can give up.
 
My thoughts and  Prayers to you,
Millie






 



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[CMLHope] hi potassium in blood?

[ICANDOALLTTC]

Hi all,
I just found out I have high potassium counts in my  blood.
My dr was concerned and called in a prescription.
Has anyone else had this?
Thanks and Blessings.
Also my WBC was 15 not good.
Jeanie3



**It's only a deal if it's where you want to go. Find your travel 
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[CMLHope] Hi Rob

[Joseph Cancemi]

I saw your post on the 
new treatment about to be approved for Gleevec resistent cml 
patients.

What is that new drug 
called?

Thanks, 


JC
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