[TMIC] Fwd: Say No to Limits on Rehab Therapy Services
---BeginMessage--- Dear Advocate, A $1900 cap on Medicare therapy services will go into effect January 1, 2013 unless we act now to extend the exceptions process. Urge your elected officials to support repeal of the caps [http://infopointhub.com/emailmarketer/link.php?M=616297N=469L=732F=T] The caps place arbitrary limits on access to medically necessary rehabilitation therapy services. These caps will return on January 1, 2013 unless Congress takes action. Take action to help protect access to critical and medically necessary therapy services. Thank you for being an activist, Paul J. Tobin, LMSW President CEO United Spinal Association Privacy policy [http://infopointhub.com/emailmarketer/link.php?M=616297N=469L=71F=T] Unsubscribe [http://infopointhub.com/emailmarketer/link.php?M=616297N=469L=40F=T] United Spinal Association 75-20 Astoria Blvd. East Elmhurst, NY 11370 i...@unitedspinal.org | 718-803-3782 ---End Message---
Re: [TMIC] What hurts
Akua, I live in a big city. Even though there are some organizations that help the disabled, it seems the big push from social workers and even nurses, is that I should go on medicaid in order to get the most services. My Parents, (gone now), and I, worked hard for many years to have a little security and comfort. Going on Medicaid means divesting all of ones assets but for the bare minimum, and having the state own your soul. No thank you! So I own my own condo that I inherited, but I live in a building that offers the bare minimum of access, and the workers are hostile to me. I struggle to make ends meet on SSDI. I even received an anonymous handwritten threatening message a few months ago, which I have discussed with the police. Nothing they can do right now. My saving grace is my aide who cooks, cleans and shops for me 4 days a week. I would move to a more accessible and friendly place if I was not so physically depleted and could afford it. You are not alone in having to make the best of a difficult situation. There is no guarantee of sensitivity even from other disabled folks, though we hope that those in similar circumstances have more understanding, it's not always the case. This group has given more support than most I've found, but misunderstandings happen, as in most relationships. Hoping you find answers and help for your needs. Kevin a...@artfarm.com wrote: What hurts, Bernie, is the *Victim-blaming* implicit in the question why do you stay and whole passive agressive if you don't like it just go somewhere else it *pushes a button* in me, of other causes and other efforts where, when one protests ill treatment, one is told *to pack up and go* And the sad, bad part is EVEN IF I WANTED TO I CAn't but the worst part is, i*f i could, i would but if i could, then i wouldn't* *want or have to...* * * *if i could marshall the resources to move, i could marshall the resources* *to make it better, to fix it…* * * but that doesn't even get to the why should i be the one to leave my home that i worked so hard to get and give up my little yard and the trees i planted and all my tools and equipment? * * * * * *
Re: [TMIC] HAPPY NEW YEAR!
Wishing you and everyone on the TMIC a Happy and Heathier New Year! Kevin Akua wrote: Wishing Everyone HEALING, HEALTH, PEACE and PROSPERITY! AKUA --
[TMIC] OT: MERRY CHRISTMAS AND HAPPY HOLIDAYS!
Dear old Building and Loan, I mean TMIC friends! (It's a Wonderful Life reference ;) I wish you all a very Merry Christmas and Happy New Year! With Love, Kevin Wolfthal
Re: [TMIC] Cody in icu
Sending prayers out now. Kevin c...@austin.rr.com wrote: Please say prayers for Cody. He is ICU on a respirator. He has had MRI, Cat scan, blood test cultures and a spinal tap. They are trying to figure out why he is not breathing on his own and his co2 level was so high. He has a UTI, but haven’t found anything else. Lungs are okay and so is his heart. I’ll update when I know more Judy
Re: [TMIC] OT Happy Birthday November Babies!
Thank you Janice!! :) It's the fatigue that keeps me inside mainly. Both from TM and my meds. Also from not sleeping well from pain. I think chronic pain causes most of the fatigue. Thanks again! Kevin Janice Nichols wrote: Happy Birthday, early!!! I was just 60 when TM hit.What is the biggest problem keeping you from wanting to get outside? You will feel better if you do get out. Janice -Original Message- From: Kevin Wolfthal Sent: Wednesday, November 09, 2011 1:32 AM To: tmic Subject: [TMIC] OT Happy Birthday November Babies! Wishing all those born in November a Happy Birthday! I'll be turning 60 this Sunday, November 13! Wow, that's scary!! I'm going to at least try and get outside, haven't been doing too well lately. All the best, Kevin Wolfthal
[TMIC] OT Happy Birthday November Babies!
Wishing all those born in November a Happy Birthday! I'll be turning 60 this Sunday, November 13! Wow, that's scary!! I'm going to at least try and get outside, haven't been doing too well lately. All the best, Kevin Wolfthal
Re: [TMIC] My son Chris OFF TOPIC
Jane, I'm so sorry for the loss of your daughter and son. Please accept my condolences at this difficult time. Kevin celr...@aol.com wrote: MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
Re: [TMIC] OFF TOPIC; my cancer marker results
Hi Cheryl, I'm so happy to hear your good new! As always, you're in my thoughts and prayers. Wishing you continued recovery! Kevin rn11...@yahoo.com wrote: Hi Everyone, Got my blood work results today. My CA2729 (a cancer marker) has gone from 112 down to 53.8 . The letrozole seems to be working! Thank you for the prayers,I really appreciate it. Cheryl
OT Re: [TMIC] Hope You're Safe
Irene just starting to hit here in Connecticut. My town in direct path. Prayers to all. Kevin Akua wrote: I freaked out yesterday when i saw the map on TV. Called friends and family in my hometown, NYC. Hope you're safe Dalton! My family in Queens has a generator and has stocked up on food. My friend in lower manhattan has decided to stay, my friend uptown has stocked. I love my hometown and pray all goes well. There has never ever been an evacuation there before. That all be well. Akua
Re: [TMIC] tm anniversary
Hi Cheryl, It's been so long..I don't remember my tm anniversary, about 23 years. HUGS Kevin rn11...@yahoo.com wrote: Hi Everyone, Well,today was my 16th anniversary with tm. Had a short cry and then went on as usual.I'm just sick of this whole thing. Cheryl in humid Easthampton,MA
[TMIC] OT Agency ripping me off
Hi all, I hope everyone is coping as well as possible with the summer heat. I would appreciate some advice with something that came up today. The agency I use for help at home, told me today that I owe them over $300 for an unpaid bill from _JUNE 2010!_ This was their billing department which has been very nasty to me before. I KNOW I am up to date in my payments and told her this. She said she is going to send me a reconciliation form so I can go through all my checks and payments from that period. When I got off the phone I called their local office that just deals with scheduling aides and is a lot easier to talk to. The woman I spoke to, who I have spoken with many times before, said she would speak with her manager and send an email off to the billing departnent. I could go to another agrncy, but the aide I have is an angel, and I trust her completely Another agency might send me a monster, and I've dealt with that before. Am I responsible for this billing bungle, assuming it's not just a scam to get more money out of me from OVER A YEAR AGO?? I can't take this additional stress. Thanks all, Kevin
Re: [TMIC] Off Topic:I had a new adventure!
Cheryl, I had a weird reaction several months ago and ended up taken to the ER. My mouth, face and lips were numb, and gastro-intestinal problems. After all the tests, they found nothing wrong, even did a brain ct-scan. It passed after a few days and I never found out what caused it. Never happened before or since. I'm glad your 'experience' passed and didn't get worse. I pray that you get good treatment for your cancer. You are in my thoughts and prayers. Prayers to all, Kevin rn11...@yahoo.com wrote: Hi, Well,I had a new experience yesterday. Went to my pcp in the am for routine visit. I happened to have a sore throat,headache,and was very congested. He looked at my throat,and didn't say anything more. I figured he thought it was a virus,so he didn't give me an antibiotic. I went with my son-in-law and did some food shopping;when I got home had message to call dr's office. Spoke with the nurse who said the doc forgot to give me a script for amoxicillin and they would fax it to pharmacy. My daughter picked it up,and I took one at 3:10. The fun began at about 3:45. My hands were itchy,and no amount of scratching helped.Then my face started itching. Lips felt tingly;looked in the mirror and my face was getting very red,lips and tongue were puffy. Now I have taken amoxicillin numerous times,but knew this was an allergic reaction. Called 911 and the person had a hard time understanding me due to tongue swelling. Then called my daughter,and my sister. Daughter went to hospital,sister came to my house (she lives down the street from me). In the ambulance IV was started and benadryl given through it;that stops the reaction from getting worse. Got to hospital,had epinephrine SQ which reverses the reaction,and solu-medrol 125 mg IVP. Had to stay there for 5 hrs to be sure I didn't have a second reaction which is worse than the first. I didn't (Thank God). Came home with an epi pen in case of any further problems.a 4 day course of prednisone,and benadryl if needed for itching or rash. So,that was my adventure! I thought while in the ambulance,after all crap I've been through the past 2 months,wouldn't it be ironic to die from ONE PILL?? Because believe me,I thought I was dying. Now I await tomorrow to go to Dana Farber Cancer Institute for a second opinion on my breast cancer. It has spread to lymph nodes in the armpit and chest wall and into my shoulder;not in liver,lungs,brain,pancreas,or kidney. From what I understand,it is not curable,but treatable Please keep me in your prayers and wish me well. Sorry this was so long winded. Cheryl
Re: [TMIC] OT Unveiling
Thank you everyone for your kind thoughts and prayers. The weather could not have been more perfect for my Mother's unveiling. I read the eulogy and included some lighter memories with the sad ones and I feel that it expressed my feelings as well as a few paragraphs can. Thank you all again. Warm wishes, Kevin Patricia Cooley wrote: Kevin I will be sure to say a pray for your mom and all the moms we TMers have lost. -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Sunday, May 01, 2011 4:36 AM To: tmic-list@eskimo.com Subject: [TMIC] OT Unveiling Hello Friends, Today is the unveiling at the cemetary for the writing on the stone that my Mom shares with my Dad. Some may recall that my Mom passed March 19, 2010. I will be giving the eulogy. Perhaps some of you could say all small prayer for my Mom. Even if we all don't share the same religion, I pray for all of us, and appreciate all your prayers and good wishes. Thank you, Kevin Wolfthal
[TMIC] OT Unveiling
Hello Friends, Today is the unveiling at the cemetary for the writing on the stone that my Mom shares with my Dad. Some may recall that my Mom passed March 19, 2010. I will be giving the eulogy. Perhaps some of you could say all small prayer for my Mom. Even if we all don't share the same religion, I pray for all of us, and appreciate all your prayers and good wishes. Thank you, Kevin Wolfthal
[TMIC] new treatment for MS and maybe more
http://www.disabled-world.com/health/autoimmunediseases/ms/compound.php
Re: [TMIC] REHAB
Lynne, I never said that all nursing homes are bad. What is disturbing is that my Mother was treated poorly in the nursing home she was in, she came home black and blue all over and died the day she came home. When my Mom was in rehab and I called to see how she was doing, the nurse said: what are you worried about, she's old Is that supposed to instill confidence in a family member because it sure didn't. Nobody tied her hands to make her say that. Nobody will convince me that nursing homes are good places to be. I believe that in most cases the opposite is true. My Mother got worse there, and was also given medications that were wrong for her. Kevin lynne myers wrote: Kevin, I know first hand after years of working in nursing homes, first as a nurses aide then as an RN that falls are the biggest issue they all have. It is not that they don't care if people fall and get hurt, but with state regulations, atleast here in Michigan, it is very difficult to prevent the falls. According to our state guide lines they all have the right to fall. Preventing falls without the use of any type of restraint was one of the most time consuming and difficult parts of my job. Please understand that not all nursing homes are bad, and that alot of the people who work in them care alot about what happens to the people staying there, but alot of times their hands are tied. Lynne --- On *Wed, 1/5/11, Janice Nichols /jan...@centurytel.net/* wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] REHAB To: Kevin Wolfthal wolft...@optonline.net, Akua a...@artfarm.com, tmic-list@eskimo.com Date: Wednesday, January 5, 2011, 12:44 PM Kevin, you did all you could for your mom - don't beat yourself up about it. I would imagine there was I shift that was sloppy with patients and the others were pretty good.This was something you could not help. Janice -Original Message- From: Kevin Wolfthal Sent: Tuesday, January 04, 2011 3:36 AM To: Akua ; tmic-list@eskimo.com http://us.mc1613.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: Re: [TMIC] REHAB I am furious when I think about how my Mother was treated in rehab after her stroke. She was allowed to fall out of her wheelchair at least 3 times that I know of. They refused to belt her in the chair even though she was paralyzed on one side. When I called a nurse once to ask how my Mom was doing she said: why are you worried about her, she's old I am NOT kidding! When my Mom was brought home for hospice, she was black and blue all over. The hospice nurse was wondering why, so I told her, because the rehab let her fall out of her wheelchair three times. My Mom passed away on her one day back home. I will do anything I can to avoid that kind of care. I wish I could have done more for my Mom. Kevin
Re: [TMIC] Careful OT
Gunny, I'm sorry you are going through this and hope you are on the mend soon. Best wishes my friend, Kevin bgunny7...@aol.com wrote: Monday night around 11:30 I had a horrendous Heart attack. Went to North Side Hospital by ambulance where they put a stent in on a 95% clogged artery. Gotta go back on the 28th for them to do an 80% clogged one. So, if you smoke, STOP. If you eat fatty foods, STOP. If your messin up your life, STOP. This ain't no game. Felt like mule kicked me in the chest.
Re: [TMIC] REHAB
I am furious when I think about how my Mother was treated in rehab after her stroke. She was allowed to fall out of her wheelchair at least 3 times that I know of. They refused to belt her in the chair even though she was paralyzed on one side. When I called a nurse once to ask how my Mom was doing she said: why are you worried about her, she's old I am NOT kidding! When my Mom was brought home for hospice, she was black and blue all over. The hospice nurse was wondering why, so I told her, because the rehab let her fall out of her wheelchair three times. My Mom passed away on her one day back home. I will do anything I can to avoid that kind of care. I wish I could have done more for my Mom. Kevin Akua wrote: The closest I came to hell on earth was in rehab. I was allowed to fall twice. I was given the wrong meds daily for nearly two months, I was insulted and demeaned. I remember the nurse entering my room and finding me crying -- I was in awful electric pain --- and she told me I shouldn't be crying. She often brought he son to work. I wrote her about her gross insensitivity and she apologized. I worked hard to learn how to use the sliding board to get in and out of bed-- it was so so hard, and frightening, because an idiot had let me fall, but this mainly because if you couldn't get up, you wouldn't be attended to. Now that I'm home, I understand one of the basic challenges the idiot didn't address-- the wheelchair slides on a polished, linoleum floor. I have a bathmat with grips by my bed now, so my wheelchair, doesn't slide. this is just one of a zillion things they could have taught or worked on or shared or presented to or for me and didn't. And this was rehab, to ready me for life on my own as a paraplegic: worthless. One of the friends I made there was immobile without assistance, although unlike me, she was not paralyzed. She was left on her bedpan for an hour. I had passed aides chatting at the station, ignoring her buzzer, as i wheeled down the hall to see her. I wrote the board and management and met with management. I met with the dietitian twice, who quit about a month after i left. She told me that she was unable to get me the food that with restore my health ( fresh fruit and vegtables, fish, whole grain breads, baked potatoes). I kept in touch with several friends I made there who were still there when I left, because we all knew the importance of having people call. Only the cleaning staff helped. They advocated and interceded. I'll never forget one man who came and prayed for and over me. An investigation began when I and several other patients lost over 50 pounds. The few visits I had, folks brought food. Staff ate or discarded my (good) food. So, while I don't know about the hip pain, I can relate to the soul pain of being in a nursing home. It was like being in prison. There was a courtyard allegedly for getting air--- the door was always locked. I was awakened, whenever they felt like it, seldom consistently. Hellish to be awakened at 5 a.m. to have blood drawn by unskilled phlebotomists. Privacy was seldom observed I remember always asking for doors or curtains to be closed. If Cindy needs calls, I'm more than willing. all other things being equal, being in a nursing home is awful. Akua -- http://www.healrecover.blogspot.com http://www.akualezli.blogspot.com When I despair, I remember that all through history the way of truth and love has always won. There have been tyrants and murderers and for a time they seem invincible but in the end, they always fall - think of it, always. Mohandas Gandhi
[TMIC] O.T. Happy New Year
Wishing all TM'ers and families a Happy and Healthy 2011 ! All the best, Kevin
[TMIC] vaccines and tm
http://www.youtube.com/watch?v=2XGBNtrC0aIfeature=grec_index
[TMIC] Happy Holidays!
Merry Christmas a Happy Healthy New Year ! Kevin
[TMIC] Gabapentin
My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
Re: [TMIC] question
I'm still having contracture in both legs. It is painful when I try to straighten my legs more than about 60 degrees, my knees just won't allow them to straighten any further I recently completed about 3 months of painful physical therapy at home, and now I am in the process of trying to arrange wheelchair transport to an outpatient PT group. The 20 degree weather is not helping, but I have to do this. Years of being sedentary/bedridden has caused this according to the PT. I guess I just gave up when my Mom got sick and passed, but I'm trying the best I can. Best to all, Kevin
OT: Re: [TMIC] LTD IME - HELP
Candis, I could write a book about what an LTD insurance company did to me. The bottom line is, they stopped paying my benefits at the 24 month point because of ABSURD AND INCORRECT statements made on a doctor's report that I did not get to see in advance. When I confronted my doctor, he quickly filled out a form correcting the mistakes, but guess what? The insurance company wouldn't accept the new form. I fought for years, but could not afford a lawyer, so never got my benefits back. LTD's are one of the biggest scams out there in my opinion. Kevin CANDIS KALLEY wrote: After 31 months, I'm finally scheduled for an IME for my LTD on the 16th of this month! My question is for anyone who has gone through an IME. What can I expect? This NEURO assigned for the IME is board certified BUT he owns his own Neuro Center which does nothing but Workers Comp and other insurance Independent neuro exams - LOL! While he attended college in some neuro fields, I can't find where he received a degree in neurology! He did, however, attended several months of training for insurance medical examinations and receive creditials! This is a BIG case with almost $50,000 past due from Insurance and another $60,000 to the end of the end of LTD. Warning for all you newbies - if you have STD/LTD through your employers, after 2 years the insurance company will TRY to discontinue payments due to a law for mental cases! That law does not apply for physcial conditions EVEN though the insurance companies will do anything they can to NOT pay! At the beginning, I suggest that you look up a GOOD LTD lawyer and call to be prepared for problems especially after 2 years! Laws are changing all the time and the insurance Also, TELL your doctor not to send any papers to ANY ONE without telling you and letting you review BEFORE sending out the papers! Have a BIG note put on your case file to that effect! MY Neuro answered papers that allowed only YES/NO answers at the height of Season here in SW FL! Since this is mainly a retirement town, and most of his patients are on Medicare Already, he answered the YES/NO WITHOUT further explanation and sent back to insurance without my knowledge! ALWAYS before, the insurance company sent forms to me for me and the doctor to fill out. I would always have to drop off the papers and pick them up to send back. BUT to get rid of me, the insurance company sent papers directly to my doctor and none to me - not even a notice! The last set of papers was just 6 weeks after the quarterly review papers! LIKE a MIRACLE would occur after 2 1/2 years of severe TM in just 6 weeks - 2 attacks of TM affecting C4 - T1 and T10 - T12! Just a word of warning to all newer TMers! SSDI is bad enough but the LTD insurance companies are the WORST !%!$#$!#@ OF ALL! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] contracture questions
Thank you Akua and everyone for your advice on my contracture. Congratulations Akua on your good news! Kevin
Re: [TMIC] EMG
Happy Thanksgiving Pam, In my case the EMG was the test that my neurologist ultimately diagnosed my TM with. He said he couldn't see the lesion in the MRI, but he could see a slowing of nerve conduction in the EMG. So I'd have to say the EMG correlates 100 percent with my pain and numbness. Hope that helps. Take care, Kevin PAMELA S wrote: Happy Thanksgiving: I have a question for everyone. How has the EMG test results (if you had one done) correlate with the weakness and discomfort for you? Pam
[TMIC] contracture questions
Hi and Happy Thanksgiving all, The past three months or so, I've been getting physical therapy at home because I've developed contracture in my legs. I cannot straighten my legs fully, primarily from lack of use I guess. I have gotten some improvement from the PT, but now I am supposed to go for outpatient therapy because my therapist feels he's done as much as he can in the home setting. I have to say that this therapy, particularly when he stretches my legs, is probably the worst pain I've had to endure. Has anyone else experienced contracture? If so, did you get any improvement with therapy? Best regards to all, Kevin
Re: [TMIC] 6th anniversary
Hi Cheryl, I also am not looking forward to the early darkness. I don't know if I have 'SAD', but it affects me that way. I am also appalled by the fact that the physical therapists and nurses currently treating me have little to no understanding of what TM is and how it affects me. My current PT often says that my difficulty in doing the exercises is mental. Grrr... I agree, nobody really gets it' but us, the exceptional caregiver, and a few rare doctors. Thank the Lord for you all. Kevin rn11...@yahoo.com wrote: Hi, It's been 15 yrs for me,and I still mourn for the losses. Not all the time,but it is especially sad for me around this time of year. Good old seasonal affective disorder;It gets dark earlier. Plus,this week has been rainy and gloomy,so that has me down. The hardest part for me is that unless you have tm,you don't get it. The unrelenting tiredness,burning pain,numbness,tingling,tightness,etc. My sister once said she couldn't stand to have the numbness all the time. I said there isn't a choice,it's reality,and you learn to accept it. I thank God for the TMIC;I'd be adrift in a sea of loneliness without all of you. Cheryl in rainy (again) Easthampton,MA --- On *Wed, 10/6/10, kimharrison...@comcast.net /kimharrison...@comcast.net/* wrote: From: kimharrison...@comcast.net kimharrison...@comcast.net Subject: [TMIC] 10-06-04, the 6th anniversary TM came into my life. To: TMIC tmic-list@eskimo.com Date: Wednesday, October 6, 2010, 3:10 AM 10-06-04, today is the 6^th anniversary TM (Transverse Myelits) came into my life. I live in Atlanta and was on a business trip to Dallas . I would have never thought that waking up; putting my feet on the ground one Wednesday morning would have changed my life so much. I would like to say is thank you to my husband Brian, my rock that keeps me grounded. I could not have made it thru this without him by my side and support. To God for bringing Brian into my life 24 years ago, and to friends and family and my extended TM family that have stuck by me regardless of what this spinal cord disease has thrown at me. There are days that it seems like it’s been forever and I can not remember walking, running, riding a bike, ect and days that it seems like I just woke up and realized life as I knew it would never be the same. I still have days I mourn for the loss of the life style I had but at the same time blessed at how much appreciation for life has been given me. I know I am blessed that this disease did leave me one good leg that I can use a walker for short distances around the house, but need a wheel chair for distance/public use. By reading so many TM stories on this site I do not feel as alone with the pain, frustration, and just plain old bad days as I read other stories and puts my issues back in perspective. Thanks again to my TM family for always being there and sometimes that extra kick in the rear when the pity party starts! So a journey in life began, but the adventure continues Love and bless you all Kim/Atlanta TM T-10
[TMIC] changes
Hi Friends, Well, we're having another heatwave here in the northeast (CT), after almost winter weather a few weeks ago, weird. I've been trying some new things to try to feel 'human' again, and pull myself out of my depression. I started on the anti-depressant Lexapro about 3 weeks ago. No noticeable change yet, but I know it can take several weeks. At least no bad side effects like I had with Lyrica and Cymbalta. I'm also getting physical therapy at home three days a week, which is kicking my butt, (fatigue, pain), and will be starting occupational therapy for my hands. Last week, my BP was low, and still is in the 100/60 area. Before that it was 120/70. I am treated for high BP and have a call in to my doctor about this. Maybe it has to do with PT after being sedentary for so long? Anyway, I'm trying to be proactive about things..not easy for me. Wishing you all the best. Kevin
Re: [TMIC] update on Michael
Kim, Beautifully said. Kevin kimr1999 wrote: God saw Michael getting tired and a cure was not to be. So He put His arms around him and whispered come to me. With tearful eyes we watched , and saw him pass away. Although we loved him dearly, we could not make him stay. A golden heart stopped beating, hardworking hands at rest. God broke our hearts to prove to us, He only takes the best. May the peace which comes from the memories of love shared, comfort you now and in the days ahead. *From:* Jill Hammond 3jmhamm...@clearwire.net *To:* Anna Jim jnawil...@roadrunner.com; Annie annielyman1...@yahoo.com; Becky Steve mcsmi...@adelphia.net; Beth Greg g...@comcast.net; Bob Beverly b.doerfl...@gmail.com; Boyd b...@boydbryant.com; Carole Matteson carolematte...@hotmail.com; Char Brower charsreti...@hotmail.com; Cheryl Hammond i...@todaydata.com; Cindy Dunn cdunn53...@aol.com; Craig Candi bur...@comcast.net; Craig Fiore cr...@ultra6.eskimo.com; fi...@dhs.gov; David and Patty Brooks blueba...@verizon.net; David Gay raega...@yahoo.com; Dennis Pam burpee...@msn.com; Earl Fordham earl.ford...@gmail.com; Elaine Boos elaineb...@bellsouth.net; Eric Eri ericshamm...@hotmail.com; Fred Susan graceann1...@charter.net; Gil Mari cdav...@dc.rr.com; James Fulmer jedi...@gmail.com; Jan Hlavaty-LaPosa janet.hlavaty-lap...@dhs.gov; Jim and Bobbi jimbobk...@msn.com; Johanna mjber...@verizon.net; Judy Karl romocharlo...@hotmail.com; Keenan kee...@seattlegeek.net; Kendra kwa...@comcast.net; Lenny Lisa len.l...@verizon.net; Lisa l...@lisalundt.com; Lynn Jade lynn.mari...@pfpa.mil; Mari wordfromwis...@smtel.com; marie swanson swansonbythe...@comcast.net; Mica Ward m...@detech.net; Mike Nancy mmccallis...@soundandsea.com; Nancy npurcell1...@yahoo.com; Noah n...@noahconrad.com; Pat Allegretti paa...@gmail.com; Pat and Corky pjgren...@hotmail.com; Pat Doebele grandmap...@comcast.net; Pat Massey patrick.mas...@dhs.gov; Paula paula.lazz...@attachmate.com; PJ pjn...@yahoo.com; Ron ron.brook...@att.net; Sally sa...@bsorenson.com; Sarah Bell-Schell maeb...@vandals.uidaho.edu; Scott Hamilton scotthamil...@live.com; Sharon Steve pianica...@comcast.net; Sheri Meyer sheme...@cisco.com; Steve Gail crescentc...@nwi.net; Steve and Jo stevejojohn...@msn.com; Susan Ted Roth susanema...@mchsi.com; Tmic tmic-list@eskimo.com; Tom Deb t...@ddoel.com; vanessa Quinn vanessa.qu...@dhs.gov; Wayne wme...@ci.everett.wa.us; Zsolt Patty zdor...@comcast.net *Sent:* Thu, August 26, 2010 1:52:18 PM *Subject:* [TMIC] update on Michael Hello Family and Friends, Michael slipped peacefully away yesterday evening at 9:30 p.m. He is now in a much better place. Thank you for all your thoughts and prayers on his behalf. The family greatly appreciates all the support and love you have all sent our way as we struggled through this past year. with love and gratitude, The Hammond Team
[TMIC] OT: Property Tax Help
I may have posted this before, but thought it worth posting again. I just got my city property taxes cut in half. I called the tax collector some months ago, and there is a simple form to fill out for disabled property owners. This is a big difference for me as I live in CT, one of the highest taxed states. Worth checking out. I wish I had years ago. Kevin
Re: [TMIC] OT - need prayers after seeing video will understand why
Bernie, I am very sorry for your ex wife and daughter's loss. Very sad. They are in my prayers. Kevin Bernard Pelow wrote: Yesterday my ex wife and daughters duplex went up in flames. It started in their neighbors part, unknown origin as of right now as to the cause. Please keep them in your prayers, Red Cross has them in a hotel for 5 days and then they are on their own. It was a total loss, and that was their car too that was melted to nothing. Both are disabled; Sara has auto immune like me, Sally my ex wife lost 2/3's of her right lung and both breasts to cancer and they are worried it is in her lymph glands. And now this... Life is cruel... http://www.youtube.com/watch?v=-N93sIqERB0
Re: [TMIC] OT: My Great Adventure
Hey Todd, You're welcome! You hit the nail on the head! It is impossible for anyone in a wheelchair to get in or out through the lobby of my building because of the stairs inside and outside. I used to struggle on them when I was more mobile with a cane or walker. There is one ramp and the door to it requires a key that only the doorman has. I am afraid to find out what would happen if I had to get outside and the doorman wasn't around! I'm working on a second video now, thanks for watching! Take care, Kevin Todd Tarno wrote: Hey Kevin, Thanks for sharing your neighborhood with us. It does take a lot just for you to get outside. There is a lot of stairs, just in front inside. Can't wait to see your next video. Keep going outside, Todd --- On *Wed, 7/14/10, Kevin Wolfthal /wolft...@optonline.net/* wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] OT: My Great Adventure To: tmic-list@eskimo.com Date: Wednesday, July 14, 2010, 4:45 PM Thought I'd share this ride in my wheelchair I video'd a few weeks ago. You can see my neghborhood. :) http://www.youtube.com/watch?v=Lh3vrVrl1wY Kevin
[TMIC] OT
Dear Friends, I hope you are all doing as well as possible, staying hydrated and avoiding getting over-heated. I'm sorry I haven't been on much lately. Going through a lot here..trying to hang onto my condo for dear life is taking a toll on me. Still grieving for my Mom.. I will try to be more active when I can. Praying for good health and miracles for us all. With Love, Kevin
[TMIC] OT: My Great Adventure
Thought I'd share this ride in my wheelchair I video'd a few weeks ago. You can see my neghborhood. :) http://www.youtube.com/watch?v=Lh3vrVrl1wY Kevin
[TMIC] OT cellphones
Just wondering if anyone with finger pain/numbness uses an iPhone and finds the touch screen easier to use than a standard pushbutton phone. Thanks, Kevin
[TMIC] Visiting Doctor
The home-visiting doctor came to my home last Wednesday. He btought another doctor who I guess is in training. I wasn't expecting him that day, but it turned out to be a pleasant exerience, well, as pleasant as a doctor's visit can be. He is going to adjust my anxiety med and possibly start me on gabapentin for pain. So far so good. Kevin
Re: [TMIC] banding
Patricia, I just started getting the banding in the past year, after 22 years of having tm. It's a girdling feeling in my upper torso. When it started I thought I was having a heart attack. I had my heart checked a few weeks ago and it's fine except for occasional tachycardia which I am treated for. The last two years have been extremely stressful. I've lost a lot of weight and have great anxiety as a result. I am guessing the banding is related. Someone mentioned eating causing banding. I've noticed a relationship between eating and banding also, but it seems to be worse when I don't eat. TM is a weird animal. My tm started with horrible foot pain. Now my feet are mostly numb, but I sometimes get the stabbing pain. Kevin Patricia Cooley wrote: Kevin I guess I am lucky I don't have banding, just horrible neurophy in my feet which drives me insane. I sure wish there was something they could do for all our pain. Patti - Wisconsin On Sat, Jun 5, 2010 at 3:28 PM, Kevin Wolfthal wolft...@optonline.net mailto:wolft...@optonline.net wrote: Does anyone find that the sensation of banding worsens during times of emotional stress? Kevin
[TMIC] banding
Does anyone find that the sensation of banding worsens during times of emotional stress? Kevin
Re: [TMIC] OT bed question
Thank you all for yor kind replies to my question about beds. I have a lot more research to do. I will try to get to a store, but I don't know if that will be possible. Kevin Barbara Alma wrote: Hi Kevin, Ahh, the subject of a bed, it's just so very personal. I've had a firm mattress for many years due to some back problems. Nothing as serious as TM, but always needed the firm support for the past 20 or so years. I currently have a firm mattress with a pillowtop. It has the reinforced steel sides, so it doesn't dent in where you sit on the edge. As others have stated, the pillowtop gives the comfort on top of the support. Everyone of us has such different needs for comfort and support here. If you have the option of going out and trying out mattresses, that is really the best way to purchase. We tried many types, including the memory foam. The memory foam didn't work for me, as I have enough trouble rolling over on a regular mattress, but absolutely cannot roll over on a memory foam mattress. On the one we have, I can grab onto the side of the bed and get an assist, and it's so much easier to roll myself over and position myself where I want to be. The height of the mattress/bed frame, etc should also be taken into account for ease of getting in and out of bed or transferring when you think of your purchase. Good luck and I hope that you find something that will give you many years of comfortable sleeping in the future. Hugs, Barbara A in Auburn CA Hi Friends, I'm sorry I haven't been on as much as I'd like. I'm trying to figure out my life now which is very different, and feel a bit lost. I was wondering if anyone could advise me. I need to buy a new bed as mine is caving in and hurting my back. I can't get out to bed shop, but I've heard that Sealy Posturepedic makes the best mattress, and someone on tv recommended medium hard? I'd like to hear your opinions. Thanks, Kevin --
[TMIC] OT bed question
Hi Friends, I'm sorry I haven't been on as much as I'd like. I'm trying to figure out my life now which is very different, and feel a bit lost. I was wondering if anyone could advise me. I need to buy a new bed as mine is caving in and hurting my back. I can't get out to bed shop, but I've heard that Sealy Posturepedic makes the best mattress, and someone on tv recommended medium hard? I'd like to hear your opinions. Thanks, Kevin
Re: [TMIC] health stuff
jill, I never took neurontin, my doctor wouldn't give it to me, no explanation. Kevin Jill Posner wrote: Yes I have had tongue numbness often and thought it was related to when I take neurontin...occurs afterwards. *From:* Kevin Wolfthal wolft...@optonline.net *To:* Laura Beaudin laura.beau...@gmail.com; tmic-list@eskimo.com *Sent:* Sun, May 16, 2010 12:29:51 AM *Subject:* Re: [TMIC] health stuff Laura, No, my dx is still TM. My brother said he gets this kind of numbness when he gets a migraine, and I did have a headache accompanying the numbness. The diarrhea makes me think it was some kind of weird virus. Kevin Laura Beaudin wrote: Kevin, Do you have an MS diagnosis? This is a rather common symptom among MS patients...numb patches here and there. I've gotten them on my tongue and scalp before, among other places. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 15/05/2010 9:07 PM, Kevin Wolfthal wrote: Hi All, Well, this has been a weird week for me re: health. Tuesday night I started getting severe diarrhea. Shortly after that my tongue started tingling and going numb, then my lips. This continued wednesday, but I had a nurse coming to visit me to check on bedsores on wednesday. She looked at my mouth but didn't feel the numbness was an emergency. By thursday the numbness was getting worse so I took an ambulance to the ER. They checked everything, blood, heart, liver, kidneys, ct-scan of brain, found nothing wrong. Said it could be related to my reflux and possible reaction to meds and OTC stomach meds I take. Also suggested it could be exacerbation of TM symptoms. Finally, maybe emotional causes. In any case, the weird numbness is gone and I'm thankful. Has anyone else had their tongue/mouth go numb? Hope everyone is doing well as possible. Kevin
[TMIC] health stuff
Hi All, Well, this has been a weird week for me re: health. Tuesday night I started getting severe diarrhea. Shortly after that my tongue started tingling and going numb, then my lips. This continued wednesday, but I had a nurse coming to visit me to check on bedsores on wednesday. She looked at my mouth but didn't feel the numbness was an emergency. By thursday the numbness was getting worse so I took an ambulance to the ER. They checked everything, blood, heart, liver, kidneys, ct-scan of brain, found nothing wrong. Said it could be related to my reflux and possible reaction to meds and OTC stomach meds I take. Also suggested it could be exacerbation of TM symptoms. Finally, maybe emotional causes. In any case, the weird numbness is gone and I'm thankful. Has anyone else had their tongue/mouth go numb? Hope everyone is doing well as possible. Kevin
Re: [TMIC] health stuff
Laura, No, my dx is still TM. My brother said he gets this kind of numbness when he gets a migraine, and I did have a headache accompanying the numbness. The diarrhea makes me think it was some kind of weird virus. Kevin Laura Beaudin wrote: Kevin, Do you have an MS diagnosis? This is a rather common symptom among MS patients...numb patches here and there. I've gotten them on my tongue and scalp before, among other places. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 15/05/2010 9:07 PM, Kevin Wolfthal wrote: Hi All, Well, this has been a weird week for me re: health. Tuesday night I started getting severe diarrhea. Shortly after that my tongue started tingling and going numb, then my lips. This continued wednesday, but I had a nurse coming to visit me to check on bedsores on wednesday. She looked at my mouth but didn't feel the numbness was an emergency. By thursday the numbness was getting worse so I took an ambulance to the ER. They checked everything, blood, heart, liver, kidneys, ct-scan of brain, found nothing wrong. Said it could be related to my reflux and possible reaction to meds and OTC stomach meds I take. Also suggested it could be exacerbation of TM symptoms. Finally, maybe emotional causes. In any case, the weird numbness is gone and I'm thankful. Has anyone else had their tongue/mouth go numb? Hope everyone is doing well as possible. Kevin
Re: [TMIC] health stuff
Jeanne, Thanks, me too! :) Kevin jrushton wrote: I haven't, Kevin. I'm sure glad the SX are gone! :) Jeanne in Dayton /---Original Message---/ /*From:*/ Kevin Wolfthal mailto:wolft...@optonline.net /*Date:*/ 05/15/10 22:07:36 /*To:*/ tmic-list@eskimo.com mailto:tmic-list@eskimo.com /*Subject:*/ [TMIC] health stuff Hi All, Well, this has been a weird week for me re: health. Tuesday night I started getting severe diarrhea. Shortly after that my tongue started tingling and going numb, then my lips. This continued wednesday, but I had a nurse coming to visit me to check on bedsores on wednesday. She looked at my mouth but didn't feel the numbness was an emergency. By thursday the numbness was getting worse so I took an ambulance to the ER. They checked everything, blood, heart, liver, kidneys, ct-scan of brain, found nothing wrong. Said it could be related to my reflux and possible reaction to meds and OTC stomach meds I take. Also suggested it could be exacerbation of TM symptoms. Finally, maybe emotional causes. In any case, the weird numbness is gone and I'm thankful. Has anyone else had their tongue/mouth go numb? Hope everyone is doing well as possible. Kevin
Re: [TMIC] My Son
Janet, I pray for you and your son and for a cure for these diseases soon. Hang in there..I'm trying to. Kevin Janet Dunn wrote: Hello all you fellow TM’rs. It is with such a heavy heart, and with tears rolling down my face that I write this. My 15 year old son, who has struggled with his legs for a year now, undiagnosed, has finally been diagnosed. While it is not life threatening, it is TM. I am so sad. I do not know what to think. When I was diagnosed he is the only child of my four that asked if it was hereditary, and I said no. He replied “Good, then I won’t get it.” Now they strongly think he has it. I am so sad. So hurt – probably angry if I allow that emotion. I worry about his future. I know he can be productive, but really – two people in the same family having this beast of a disease? What are the chances? The only common denominator, other than the gene pool, is that he was in the same vehicle accident that I was in 8 years ago. And he was on the same side of the truck that I was on, in the back seat. Why so long to manifest? I don’t know. He has seen me and my trials, so he knows what is ahead. Does anyone know if this beastly condition can be hereditary? He is already talking about not having children in case it is. I am so sad, so discouraged. I know that he is lucky – he can walk with a cane – for that I am thankful. He has not gone to school for a year because of the pain, and the exhaustion. I know that Tracy out there has an eleven year old daughter with it. I am just wondering if anyone else has two family members afflicted with this thing? I simply cannot stop the tears. It is one thing for me, at 47, to face life with this, but to have my son have it too, at 15 is almost too much. Thanks for listening. Janet
Re: [TMIC] OT Bed sores
Hi Laura, Thank you for your kind words. Thanks also for the info. I have pretty good insurance..I'll look into that bed. All the best, Kevin Laura Beaudin wrote: Hi Kevin, I'm sure the pain of a lost one never goes away, but it's also a part of life (sadly)...with time, other things start taking precedent, but the wonderful memory of your mother will always be there. How good is your insurance? I know that there are mattresses that are made almost entirely out of gel to avoid this problem...they are costly though, around $4000, but wonderful for those with bedsore problems.You could argue the point that you want to maintain your independence and this can help you. Talk to your doctor, or even better, an OT about this and first step, try to get a prescription. Im sorry, I can't remember the name of it now. ...just found it, it's called intellibed: http://www.intellibed.com/ Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 29/04/2010 2:49 PM, Kevin Wolfthal wrote: Hi All, Still coping with the loss of my Mom..but I don't expect that will ever stop. Thank you all again for the kindness you gave me.. I am wondering if anyone has any advice regarding avoiding bed sores. I am in bed a lot and am comcerned about this. I turn often, but still get some redness in spots. I have a nurse who uses Neosporin on them and will be seeing a doctor soon. I'm wondering if a mattress pad would help? Thanks, Kevin
Re: [TMIC] OT Bed sores
Peggy, I wish you, and everyone on the tmic, could have met my Mom. She truly was, and still is to me, a special person. Thank you, Kevin pwi1991...@aol.com wrote: hang in there, my prayers are with you There is none so amazing as God Peggy Wilson In a message dated 4/29/2010 1:49:33 P.M. US Mountain Standard Time, wolft...@optonline.net writes: Hi All, Still coping with the loss of my Mom..but I don't expect that will ever stop. Thank you all again for the kindness you gave me.. I am wondering if anyone has any advice regarding avoiding bed sores. I am in bed a lot and am comcerned about this. I turn often, but still get some redness in spots. I have a nurse who uses Neosporin on them and will be seeing a doctor soon. I'm wondering if a mattress pad would help? Thanks, Kevin
Re: [TMIC] Mike
I can relate to everything you say here Gunny. I am finding the old family memories overwhelming right now also. Family vacations, little trips to the beach, telling a silly joke that made my Mom laugh. It is too hard to think about these things..but I can't help it, and all I can do is sigh or cry. I hope the memories become easier for both of us as time passes. I'm sure your brother knew, and knows that you love him. Kevin bgunny7...@aol.com wrote: We buried my brother today. It was a nice military funeral. Mike was in the Navy back in the 60's. Anyway, I wanted to thenk each and every one of you who supported me. I thought about sending thank you nores individually, but they would have become repetetive after awhile, so I thought a blanket thank you would suffice. Ya know, we're all connected in one way or another, but as you get older, and people around you start to die off, it gets a little harder to take. Especiallt when they're your brother or sister, and they're younger than you. First, you're there when they're born, then you're there when they die. Everything starts to come back when family is around, and the memories sometime become overwhelming. In any case, my heat felt thanks goes out to all of you. Semper Fi Gunny
[TMIC] OT Bed sores
Hi All, Still coping with the loss of my Mom..but I don't expect that will ever stop. Thank you all again for the kindness you gave me.. I am wondering if anyone has any advice regarding avoiding bed sores. I am in bed a lot and am comcerned about this. I turn often, but still get some redness in spots. I have a nurse who uses Neosporin on them and will be seeing a doctor soon. I'm wondering if a mattress pad would help? Thanks, Kevin
Re: [TMIC] Mike
Gunny, You and your Brother are in my thoughts and prayers. Kevin bgunny7...@aol.com wrote: My younger brother Mike passed away at 12:40 AM this morning from brain cancer. He was 58.
[TMIC] ot: thank you all
Wanted to thank everyone who kindly sent me messages of condolence. I'm still trying to accept my loss. Doesn't seem real still. I wake up every night around 4am with bad dreams. I had an aide staying 24/7 until last night, but can't afford it for now. Will still have an aide in afternoon and evenings. Glad you are all here. I pray those who are in hospital, and pray for you all for relief. With Love, Kevin
Re: [TMIC] OT My Mom
Dear Friends, I wish I could reply to you all individually, I know you will understand. I am struggling to accept the loss of my Mom. It doesn't seem real or possible. I wish she did not have to spend her last six weeks in hospitals that did nothing to help her suffering..we thought we were doing the best thing for her. On her last day, she was home with me, a hospice nurse, and an aide. I hoped she would rally..but she wanted to go. She went in her sleep. I am glad I got to tell her I loved her..many times, and hold her hand. When she was in her room, she pointed to the picture of her and my Dad on the wall..she could barely speak at this point. I now know she was telling me she wanted to be with him..and she is. Thank you all for your kind expressions of sympathy and comfort. Much Love, Kevin
[TMIC] OT My Mom
My Mom passed sometime during the night Friday night. I am struggling to absorb this. At least I had a few hours with her before she passed because she was brought home from the hospital during the day Friday. I told her I loved her many times. She was in such a weakened state she could barely nod, but she knew who I was and what I was saying. I thought..hoped I'd have a little more time with her, but at least she is not suffering anymore. Thank you all for your kindness during this difficult time. It is painful. Kevin
[TMIC] OT Hospice
Has anyone had hospice for a family member in the home? We want to try and bring my Mom home from the hospital with hospice and a 24 hour nurse. She is refusing to eat and we are hoping her being home will help comfort her. Kevin
Re: [TMIC] OT Hospice
We were told my Mom won't last 2 weeks if she continues refusing food and drink. Her stroke put her in a clinical depressaion. It's heartbreaking. Kevin Todd Tarno wrote: Hey Kevin, My heart dropped when I saw Hospice, but after reading your e-mail why you're getting Hospice, I think it's a great ideal. She will be closer to the things she loves, like you, her home and her music. You both really need this time together right now. Please keep us updated, Todd in CC, TX --- On *Tue, 3/16/10, Kevin Wolfthal /wolft...@optonline.net/* wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] OT Hospice To: tmic-list@eskimo.com tmic-list@eskimo.com Date: Tuesday, March 16, 2010, 9:01 PM Has anyone had hospice for a family member in the home? We want to try and bring my Mom home from the hospital with hospice and a 24 hour nurse. She is refusing to eat and we are hoping her being home will help comfort her. Kevin
[TMIC] re OT my Mom..update
My Mom is in a deep depression..refusing food and hydration..barely communicative. The doctors are trying different medications. I'm scared. Please keep your prayers and good thoughts coming. Bless you all.. Kevin
[TMIC] my Mom - Update
My Mom is still refusing to eat. I sent our health companion Kedra to the nursing home to sit with her and try to get her to eat. She always liked Kedra. If her depression doesn't lift, she may be moved to a geriatric psychiatric unit. I am going to try to visit her, but I don't know if I can yet. Please keep the prayers coming. Prayers to you all, Kevin
Re: [TMIC] OT Prayer Request - Update
Hi Lori and all, My Mom is not doing well. She can't walk and her right hand is affected. She is very depressed. She is in a nursing home for rehab, but is refusing to eat. She also suffers from mild dementia, but the stroke may have made it worse. When I call her I try to be as positive as I can, though I just want to cry. I tell her she will be okay and please eat and do the things they ask her to do. She sounded better last week, but I think her situation has sunk in. I sleep from exhaustion, but not well..haven't for years. To be honest, I think I began giving up on life a few years ago. Doctors were doing nothing for me, not even helping my pain. I am gaunt now and fairly bedridden. Anytime I've tried to do something positive I hit a brick wall. I don't see any reason to go on. My Mom and I have been each others only support. I do have a companion I hire who helps us a few hours every night. She is an ANGEL. She is bringing my Mom some Ensure tonight. Thank you for your concern. It is more meaningful than I can express. Kevin Lori Biehler wrote: Hi Kevin, How is your mom doing? How are you doing? Are you sleeping OK? Lori -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Monday, February 15, 2010 6:36 PM To: Todd Tarno; tm tmic-list@eskimo.com Subject: Re: [TMIC] OT Prayer Request Todd, Thank you and everyone for your prayers. Bless you, Kevin Todd Tarno wrote: Hey Kevin, I'm so sorry to hear about your mother, Olga. Hope she is doing better today, We'll will be praying for Olga and your family, Todd in CC, TX --- On *Fri, 2/12/10, Kevin Wolfthal /wolft...@optonline.net/* wrote: From: Kevin Wolfthalwolft...@optonline.net Subject: [TMIC] OT Prayer Request To: tmic-list@eskimo.comtmic-list@eskimo.com Date: Friday, February 12, 2010, 9:47 AM Dear Friends, My Mom had a stroke on Sunday. She is in the hospital. She has weakness on her right side and speech deficits. We have been each others support and caregivers for years. I feel more scared and alone than I have ever felt. Please say a prayer for her recovery. Her name is Olga. Thank you. Prayers to you all, Kevin
Re: [TMIC] OT Prayer Request
Todd, Thank you and everyone for your prayers. Bless you, Kevin Todd Tarno wrote: Hey Kevin, I'm so sorry to hear about your mother, Olga. Hope she is doing better today, We'll will be praying for Olga and your family, Todd in CC, TX --- On *Fri, 2/12/10, Kevin Wolfthal /wolft...@optonline.net/* wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] OT Prayer Request To: tmic-list@eskimo.com tmic-list@eskimo.com Date: Friday, February 12, 2010, 9:47 AM Dear Friends, My Mom had a stroke on Sunday. She is in the hospital. She has weakness on her right side and speech deficits. We have been each others support and caregivers for years. I feel more scared and alone than I have ever felt. Please say a prayer for her recovery. Her name is Olga. Thank you. Prayers to you all, Kevin
[TMIC] OT Prayer Request
Dear Friends, My Mom had a stroke on Sunday. She is in the hospital. She has weakness on her right side and speech deficits. We have been each others support and caregivers for years. I feel more scared and alone than I have ever felt. Please say a prayer for her recovery. Her name is Olga. Thank you. Prayers to you all, Kevin
Re: [TMIC] OT Prayer Request
Connecticut celr...@aol.com wrote: WHAT STATE ARE YOU IN?
[TMIC] re OT Prayer Request
Thank you all for your prayers. My Mom has been moved to a nursing home for rehab tonight. I am exhausted from dealing with hospitals from my sick bed. You are all kind. I wish I could thank you individually. Please know you are all in my prayers and thoughts. Kevin
[TMIC] OT: Threatened
Two weeks ago my Mom got sick at home. I called 911 and she was taken to hospital. She's doing better now and is in a rehab home for PT. Today a woman I don't know came here and said that the hospital called her because my Mother falls a lot at home and they are concerned about her. My Mother doesn't fall a lot. The woman threatened me to clean up our clutter, (yes there is clutter but it doesn't prevent our movement), or else a social agency will come next and remove us!! She left her card. She is an MSW at a nursing home. Coincidentally, it's the same home family members have been pushing us into. Something weird about all this. I think I need legal help. Kevin
Re: [TMIC] OT: Threatened
Hi Barbara, My Mom wouldn't tell people she falls a lot. The paramedics that came for her wrote something down that caused this. It is odd that the woman that came today represents the same nursing home my family has been trying to force us into for 3 years. I just spoke with a woman who is a state disability advocate. She saw a strong conflict of interest with the above fact, and gave me a number for legal assistance. Also, I HAVE benn having the clutter cleaned up already with help, and told the woman this. I have stuff near my bed so I can get it when I need it since I am mostly bedridden now. Yes there's some papers, but it's not garbage and not hoarding. A social services agent who represents a nursing home. Good scam. Hugs, Kevin Barbara Alma wrote: Hi Kevin, I wish I could tell you something warm and fuzzy, but someone has stirred the pot. I am so sorry you are going through this. Somebody has stated that your mom falls a lot. Your mom may have told somebody between the hospital and the rehab that she falls or it may have been told by your other family members, but nonetheless, the social services has this in their files and has made the home visit. It sounds like you have a huge problem. It may be the best thing for you to try to get help from the people who come in and help you and your mom to clean up the clutter if it is more than you can handle yourself. You are being very heavily scrutinized at this time and I don't think it'll go away unless you can satisfy them. Hugs, Barbara A in Auburn CA -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Tue, Jan 19, 2010 1:05 pm Subject: [TMIC] OT: Threatened Two weeks ago my Mom got sick at home. I called 911 and she was taken to hospital. She's doing better now and is in a rehab home for PT. Today a woman I don't know came here and said that the hospital called her because my Mother falls a lot at home and they are concerned about her. My Mother doesn't fall a lot. The woman threatened me to clean up our clutter, (yes there is clutter but it doesn't prevent our movement), or else a social agency will come next and remove us!! She left her card. She is an MSW at a nursing home. Coincidentally, it's the same home family members have been pushing us into. Something weird about all this. I think I need legal help. Kevin
Re: [TMIC] OT: Threatened
Thank you for your kind words. I spoke with a disability advocate who said it sounds like my civil rights are being violated. rj_ran...@yahoo.com wrote: Kevin that just burns me up reading that. I hate to hear what you're family is having to deal with. Hope someone can give the right advice aand course of action. --Original Message-- From: Kevin Wolfthal To: tmic-list@eskimo.com Subject: [TMIC] OT: Threatened Sent: Jan 19, 2010 4:05 PM Two weeks ago my Mom got sick at home. I called 911 and she was taken to hospital. She's doing better now and is in a rehab home for PT. Today a woman I don't know came here and said that the hospital called her because my Mother falls a lot at home and they are concerned about her. My Mother doesn't fall a lot. The woman threatened me to clean up our clutter, (yes there is clutter but it doesn't prevent our movement), or else a social agency will come next and remove us!! She left her card. She is an MSW at a nursing home. Coincidentally, it's the same home family members have been pushing us into. Something weird about all this. I think I need legal help. Kevin Sent from my Verizon Wireless BlackBerry
Re: [TMIC] OY Nursing Homes
To throw the burden, (my Mom and me) in the trashbin. Janice Nichols wrote: Not to be nosy, but why were they trying to do that? Janice -- From: Kevin Wolfthal wolft...@optonline.net Sent: Thursday, January 07, 2010 4:54 PM To: tmic-list@eskimo.com Subject: [TMIC] OY Nursing Homes Has anyone had family members try to force you into a nursing home against your will? it may be the most dehumanizing experience one can have, How did you handle it? Kevin
[TMIC] OY Nursing Homes
Has anyone had family members try to force you into a nursing home against your will? it may be the most dehumanizing experience one can have, How did you handle it? Kevin
[TMIC] Merry Christmas!
Merry Christmas! Kevin
Re: [TMIC] OT: sorry...and thank you all
Dear Patti and everyone, I want to thank you all for your kind replies. A lot of my bathroom issues are stress related, besides tm and the stress it causes. I am trying to get a handle on the stress..easier said than done. I greatly appreciate all of your suggestions. Wishing everyone Happy Holidays! Kevin Patricia Cooley wrote: Kevin: I went through the same thing when I first came home from the hospital. I don't know if it was a result of some of my meds, but I have found that if I take a daily acidophilus tablet each morning I am O.K. I am also the type of person that when I become stressed out about anything, it affects my digestive system so I try not to become too stressed, if that is possible. I hope you can find some solution to your problem. Patti - Wisconsin -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Wednesday, December 23, 2009 6:16 AM To: tmic-list@eskimo.com Subject: [TMIC] OT: sorry... Forgive me for bothering the board again. I have nowhere else to turn right now, and I know you have all experienced most everything. Along with my recent anxiety has come digestive problems. Getting to the bathroom has also become harder because my mobility is worse. I am getting a new wheelchair for that reason. Constipation and terrible gas. Of course, this makes my tm symptoms and anxiety worse. I tried prune juice which has helped before, not this time. Gas-X helps a little. I welcome all thoughts. Kevin
[TMIC] OT: sorry...
Forgive me for bothering the board again. I have nowhere else to turn right now, and I know you have all experienced most everything. Along with my recent anxiety has come digestive problems. Getting to the bathroom has also become harder because my mobility is worse. I am getting a new wheelchair for that reason. Constipation and terrible gas. Of course, this makes my tm symptoms and anxiety worse. I tried prune juice which has helped before, not this time. Gas-X helps a little. I welcome all thoughts. Kevin
Re: [TMIC] asking for prayers
Barbara, Prayers are on their way. Kevin Barbara Alma wrote: Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday. He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA
Re: [TMIC] need advice
Hey Todd, Regarding my anxiety, giving my Mother CPR no doubt added to my existing anxiety and worry. There is only so much stress an indvidual can take. RE: your cane, I think you need to speak with a different Kevin, lol Kevin Todd Tarno wrote: Hey Kevin, You might need to up your doses of xanaz. With doing CPR on your mother, could add anxiety on top of your TM. I'm hopping to get you my measurements very soon. I use a walker right now, but looking forward when I will be able to use your cane with the right measurements. Hope you're having a better day, today, Todd in Corpus Christi, TX --- On *Fri, 12/18/09, Kevin Wolfthal /wolft...@optonline.net/* wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] OT need advice To: tmic-list@eskimo.com Date: Friday, December 18, 2009, 12:27 PM Hi friends, I have been having bad anxiety lately. I've had it a long time, but not this bad. i take xanax, which helps sometimes, but lately not so much. It's gotten worse since I had to give my Mom CPR last year. She is doing better..but I am in constant stress and worry now. Combined with my TM symptoms, it's overwhelming. I try breathing exercises sometimes, but still can't shake this. How do you deal with anxiety? Thanks, Kevin
[TMIC] OT need advice
Hi friends, I have been having bad anxiety lately. I've had it a long time, but not this bad. i take xanax, which helps sometimes, but lately not so much. It's gotten worse since I had to give my Mom CPR last year. She is doing better..but I am in constant stress and worry now. Combined with my TM symptoms, it's overwhelming. I try breathing exercises sometimes, but still can't shake this. How do you deal with anxiety? Thanks, Kevin
Re: [TMIC] OT need advice
Thanks everyone for your responses. I have tried Cymbalta, could not tolerate the side effects. Also tried Effexor and Lyrica, same problem. I am highly sensitive to many medications, chemicals, smells. Another TM symptom? Appreciate all the responses. Kevin Mindy King wrote: I'm with those who are encouraging you to try Cymbalta. It saved my life period! and I successfully weaned off it when I found it no longer necessary. Mindy the Artisan On Dec 18, 2009, at 4:26 PM, rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com wrote: Feeling u. Been there many many times. I wonder how many others. --Original Message-- From: Kevin Wolfthal To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: [TMIC] OT need advice Sent: Dec 18, 2009 1:27 PM Hi friends, I have been having bad anxiety lately. I've had it a long time, but not this bad. i take xanax, which helps sometimes, but lately not so much. It's gotten worse since I had to give my Mom CPR last year. She is doing better..but I am in constant stress and worry now. Combined with my TM symptoms, it's overwhelming. I try breathing exercises sometimes, but still can't shake this. How do you deal with anxiety? Thanks, Kevin Sent from my Verizon Wireless BlackBerry the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net mailto:we4king...@verizon.net
Re: [TMIC] Age
37-1988 -Original Message- From: Janice Nichols Sent: Dec 11, 2009 12:35 AM To: tmic-list@eskimo.com Subject: [TMIC] Age Hey! I have a request. I was talking to my neuro and he was curious to know the ages that my website friends were when they were hit with TM.Do you all mind sending me that info - even if you only read messages and don't usually respond?I would like to get as many ages to him as possible. I told him you all were a pretty cooperative group! Thanks guys Janice, Missouri
Re: [TMIC] OT Good news!
Laura, The couple we were using were not from any agency. I hired them during a crisis situation last year when my Mom suddenly became ill and had to go into a nursing home. They are a doorman in my building and his girlfriend. In the beginning they seemed nice. Then I found out she was on SSI for emotional problems and they became abusive. There was nobody to complain to, and they threatened my Mother and me more than once. Don't forget that some of us are more vulnerable than others. I'm glad your help has worked out for you. Kevin Laura Beaudin wrote: I find that in the city I live, a lot of people complain about the caregivers hired by the government for the homecare programs. I've had nothing but pleasant encounters with them...ok, except for the first team which I complained about and they are no longer dispatched here. I think a large problem is that people don't speak up when something is not up to par. They can't read our minds and new PCA's often need guidance to help them get their job to the way we like it. Good communication right from the beginning avoids trouble later on. Laura On 05/12/2009 2:04 PM, Kevin Wolfthal wrote: Well, I think the powers that be finally gave my Mom and me a break. I hired someone from Companions and Homemakers, and she just finished. She is WONDERFUL! Efficient, friendly, kind, and just a lovely person. She's coming back tomorrow and I hope this isn't too good to be true. Just when you give up hope in humanity.. Kevin
Re: [TMIC] OT Good news!
Akua, Thank you and everyone else who sent kind replies! Kevin Akua wrote: I am so glad this worked out for you!!! Akua Well, I think the powers that be finally gave my Mom and me a break. I hired someone from Companions and Homemakers, and she just finished. She is WONDERFUL! Efficient, friendly, kind, and just a lovely person. She's coming back tomorrow and I hope this isn't too good to be true. Just when you give up hope in humanity.. Kevin
[TMIC] OT Good news!
Well, I think the powers that be finally gave my Mom and me a break. I hired someone from Companions and Homemakers, and she just finished. She is WONDERFUL! Efficient, friendly, kind, and just a lovely person. She's coming back tomorrow and I hope this isn't too good to be true. Just when you give up hope in humanity.. Kevin
[TMIC] OT: Companions and Homemakers
I am looking for a replacement for the couple who are supposed to be helping my Mother and me. I've been checking a business called 'Companions and Homemakers'. Is anyone familiat with them? Thanks, Kevin
Re: [TMIC] OT: Companions and Homemakers
Laura Thanks! Already checked with the BBB and they have no complaints against them for the past three years. I am really interested in hearing from people who use them. I'll try your other suggestions, thanks. Kevin Laura Beaudin wrote: I'd start by checking with the BBB and local nursing homes to see what people have to say about them. Google them and the word review as well to see what is online about them. If they are local, be sure to enter your city and state into that search. Laura On 02/12/2009 2:38 PM, Kevin Wolfthal wrote: I am looking for a replacement for the couple who are supposed to be helping my Mother and me. I've been checking a business called 'Companions and Homemakers'. Is anyone familiat with them? Thanks, Kevin
Fwd: Re: [TMIC] OT: Companions and Homemakers
---BeginMessage--- Akua, Now we really need new help. These people verbally abused my Mother and me tonight. I think that was the last straw. I live in Fairfield County, Connecticut. Thanks, Kevin Akua wrote: I haven't. Where are you located --- there's another network I could ask. Akua I am looking for a replacement for the couple who are supposed to be helping my Mother and me. I've been checking a business called 'Companions and Homemakers'. Is anyone familiat with them? Thanks, Kevin ---End Message---
Re: [TMIC] OT: Companions and Homemakers
Akua, It's sad how those who are most in need of assistance are often treated most badly. I have also recently had a horrendous experience with a wheelchair provider of being totally ignored for months. I appreciate your kind offer of help. :) Kevin Akua wrote: Kevin, I am so sorry! I don't know why those designated to help are often the worst humans. It has been so for me. Today I spoke to the owner of the medical supply place, telling her how I had put in an order two months ago for wheelchair wheels. She began the twenty questions, so in disbelief she was that her employees in this city had neglected me. When I began to remember names and even described how one employee brow beat me about my equipment-- there's no such thing as solid tires-- well I'm sitting with a wheelchair with solid tires, I had said and how yes, someone had come to my house to measure and CONFIRM what i had named and described--- then the owner said o so and so is very outspoken and there's no record of your order in our computer system and i told her how sadly I was used to impolite behavior, but I found it unfathomable that it was two months later and my new tires and new armrest were not yet here and installed. That's just today's story. to say i know how burdensome and difficult it can be. I'll check with my friend who has a home in CT. Best to you and your mother, Akua Akua, Now we really need new help. These people verbally abused my Mother and me tonight. I think that was the last straw. I live in Fairfield County, Connecticut. Thanks, Kevin Akua wrote: I haven't. Where are you located --- there's another network I could ask. Akua I am looking for a replacement for the couple who are supposed to be helping my Mother and me. I've been checking a business called 'Companions and Homemakers'. Is anyone familiat with them? Thanks, Kevin
[TMIC] Question
Someone sent me this email. Does it make sense to anyone? Transverse myelitis ... Transverse myelitis Have you considered the following: TM is usually caused by Antiphospholipid Syndrome /Hughes Syndrome (also known as APLS APS). If it is you may find relief in the other treatments for it. Second, have you gone to a Pain Management doctor? For years I was never informed of such but for Neurologists. Not all Neuros are also Pain Management. They will run diagnostics and properly treat the pain. Otherwise, you can order overseas through a trusted pharmacy I've used for years at http://www.yasminpharmacy.com/ and look for Tramadol. Its not considered a controlled substance and its legal. If the site is down, keep trying. The bandwidth gets used up easily and it is shopping season. Its all legal. :) I hope something here helps. I do have APLS so I dread the potential. I will pray for you. :o) Cheers! I'm mainly wondering about the APLS/APS as I've never heard of them, and the Tramadol. Make sense to anyone? Kevin
Re: [TMIC] Question
Thanks all. I would never order drugs overseas. The whole thing sounds like an oddball scheme. Kevin
Re: [TMIC] strange year
Wim, Please accept my condolences for your losses. Kevin
Re: [TMIC] THE SWINE FLU DECEPTION: SECRET EVIDENCE OF VACCINE DANGERS EXPOSED
Cheerleader suffers neurological illness after flu shot: http://www.youtube.com/watch?v=IlCccUyxDrA Krissy Z wrote: 2 more links: http://www.dailymail.co.uk/health/article-1206988/Swine-flu-vaccine-linked-deadly-breathing-disease.html http://www.foxnews.com/story/0,2933,539880,00.html ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ Cc: tmic-list@eskimo.com Date: Friday, October 23, 2009, 12:37 AM *H1N1 VACCINE URGENT ALERT* *Critical information that some Drug Manufacturers and the Government have NOT told you... and obviously don't want you to know! **Learn and understand, in-depth, what will be crucial for you and your family's health and wellbeing in the coming months, as they bring forth 250,000,000 vaccines for the US population between Oct. -- December 2009.* *The Swine Flu Deception: Secret Evidence of Vaccine Dangers Exposed* http://www.sixwise.com/redirect/view.aspx?email=roseofr...@aol.comReturnURL=http://www.sixwise.com/Newsletters/2009/October/04/Swine-Flu-Vaccination-ALERT.htm Current Historic Facts You Need to Know PLUS Simple Options to Seriously Consider *Some people may feel a need to take it.** Others may have to take it! **But mandatory to take it?!** What are your options?** Ways to stay safe... **No matter what!* *This time it’s personal!* *Read In-Depth Report Now! http://www.sixwise.com/redirect/view.aspx?email=roseofr...@aol.comReturnURL=http://www.sixwise.com/Newsletters/2009/October/04/Swine-Flu-Vaccination-ALERT.htm*
[TMIC] OT: Companions and Homemakers
Is anyone familiar with a home-care service called Companions and Homemakers? I called them today and they sounded decent for light cooking, cleaning and laundry. Just wondering if anyone has used them and how they were? Thanks, Kevin
Re: [TMIC] OT In-home assisted living
We don't pay $200 a day, we could NEVER pay that much. What I said was that professional help charges $200 a day. We have family in the area but they are not available. Thanks for the suggestions. bgunny7...@aol.com wrote: $200 a day! Hell, I'll come there for $100. First off, do these people have a key to your house? If so, I would get it back. The key could be copied so, get the locks changed. There is a program called Meals on wheels that delivers food. Apparently, you don't have any family nearby, or do you? I have friends that come by and clean periodically, but you might wanna check your local paper for people to do that. Also, check your Job and family services to see if they offer anything like that.
[TMIC] OT In-home assisted living
Not sure if this has come up on the TMIC before. Wondering if anyone uses help in your own home. Looking for light cooking, laundry and cleaning. How did you find your help? Do any government agencies subsidize the cost? Do you trust your help? I'm asking because my Mom and I have a couple we pay, but they lie, often don't show up, and steal. We even give them a car to use and we pay all expenses. But we can't afford $200 a day, which is what I'm told professional help costs. Thanks for all help. Kevin
[TMIC] OT taxes
Maybe this is common knowledge, but thought I'd share it anyway. I recently found out that there are tax breaks for disabled and elderly regarding property taxes in my city. I believe it will cut about a thousand dollars a year or more off of my city taxes. Just required getting my income info to my local tax assessor and signing a form. Anyway, it's worth checking out. Kevin
[TMIC] Neurontin
I have not tried Neurontin for my pain because every neurologist I've been to refused to give it to me when I asked about it. I don't know why. The pain in my hands and feet is getting so bad that if I can't get some relief I'm not sure what I will do. For those taking Neurontin, have you had any bad side effects? I tried Lyrica and Cymbalta but could not tolerate the side effects. I know many people on the tmic use Neurontin successfully. I am becoming bedridden from pain, I have to try something, but I also have to find a doctor who will work with me, obviously. Thanks, Kevin
Re: [TMIC] OT: ALS Stem Cell Treatment
I thought he was. Do you know if human trials have started? Kevin bgunny7...@aol.com wrote: Yeah, Doug's workin on that also
[TMIC] OT: ALS Stem Cell Treatment
Stem cell trial for ALS treatment gets FDA OK http://www.chicagotribune.com/news/chi-ap-mi-lougehrigs-study,0,6362978.story
Re: [TMIC] Wheelchair questions
Hi Jude, Yes, I've been putting many hours and days of research into power wheelchairs. I tried one in my condo yesterday, but even the Pride Go-Chair, a small chair, was too big for our tiny bathroom. I'm going to try a Jazzy 1113 next. It's supposed to have a small turning circle. i will probably have to have the door to our bathroom removed for a little more turning room. Thanks for thinking of me. I hope you are doing ok. Kevin heyjude48...@aol.com wrote: *Hi Kevin, It's Jude...* ** *I'm sure you have done this already but have you thoroughly researched the Internet for what you need. I wish I could help you with this one. I have two chairs and would gladly give it to someone with needs, but Dave says that I need to keep it for a back-up and he is probably right.* ** *Take care of yourself,* *Jude* thed 8/13/2009 9:54:13 P.M. Eastern Daylight Time, wolft...@optonline.net writes: Thanks to everyone who replied regarding my wheelchair quesrions! I wish I could get a scooter for cost and portability, but I really need a small mid-wheel drive chair to get around the tight spaces of my condo. Unfortunately I will have to pay for this chair out of pocket because I got a larger chair through insurance a few years ago and they won't cover another one so soon. The Pride Go-Chair looks like it will be the best one for my needs. I am having trouble with Maxim Mobility not returning my calls..the providers around here are not so great in my experience. Thanks again, Kevin Patricia Cooley wrote: KEVIN I PURCHASED A PRIDE GO GO ELITE SCOOTER IN APRIL. I LOVE IT. I HAVE USED IT FOR SHOPPING, AND ATTENDING OUTSIDE FUNCTIONS LIKE OUR STATE FAIR. IT IS EASILY DISASSEMBLED AND WOULD FIT IN THE TRUNK OF ANY CAR. THE HEAVIEST ITEM IS THE BATTERY WHICH IS 28 LBS. MY DAUGHTER CAN TAKE IT APART IN ABOUT A MINUTE. I BOUGHT MINE NEW FOR $1300.00, BUT YOU CAN ALSO GET THEM USED. A GOOD FRIEND OF MINE BOUGHT A USED ONE SEVERAL MONTHS AGO. I DID NOT WANT A POWER WHEELCHAIR BECAUSE THEY ARE TOO HEAVY AND I ONLY USE MY SCOOTER WHEN I AM OUT NOT IN THE HOUSE. IF YOU GOOGLE POWER SCOOTERS, YOU WILL HAVE MANY LISTED. PATTI - WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Tuesday, August 11, 2009 8:55 PM To: tmic-list@eskimo.com Subject: [TMIC] Wheelchair questions I am wondering who uses Power Wheelchairs on the TMIC? I cannot use a manual wheelchair because my hands are bad. Would you mind posting which chair you use, what you like or don't like about it, is it good for indoor or outdoor use or both? I am considering a Pride Go-Chair mainly because it is small and comes apart for travel. (note: this is not the same as a Go-Go Scooter) Also, is anyone familiar with the wheelchair provider Maxim Mobility in New Haven, CT? Good or bad? Thanks! Kevin
Re: [TMIC] OT: No COLA
I should have said, for those on social security, but it's tied into medicare. Catherine wrote: Kevin, I agree ... I think it is the end of many other services as well. Catherine *From:* Kevin Wolfthal wolft...@optonline.net *To:* tmic-list@eskimo.com *Sent:* Wednesday, August 26, 2009 10:53:58 PM *Subject:* [TMIC] OT: No COLA For anyone on Medicare, no COLA, (Cost Of Living Increase) for the next 2 years. This is going to hurt millions of sick and elderly people. Is this how the new healthcare plan is being financed? I think it's the beginning of the end of Medicare. http://www.google.com/hostednews/ap/article/ALeqM5iTrgrpJ1JxUsdwo-WbKS7wAGqBXwD9A8QG3G0 start: -00-00 end: -00-00
Re: [TMIC] Wheelchair questions
Jude, Yes, my small suv, a Subaru Forester, does not have a wide enough hatch opening for a powerchair that does not come apart. Thanks for the info. Kevin heyjude48...@aol.com wrote: *Kevin,* ** *Is it mandatory that the wheelchair you are looking for is able to come apart for traveling?* ** *I have a great chair, but it does not come apart, weighs about 500 pounds so a van is necessary.* ** *I will have Dave give me the info of the other power chair that I have that does break down. It's real easy to take apart and put in the car or trunk.* ** *Love,* *Jude* In a message dated 8/11/2009 9:55:21 P.M. Eastern Daylight Time, wolft...@optonline.net writes: I am wondering who uses Power Wheelchairs on the TMIC? I cannot use a manual wheelchair because my hands are bad. Would you mind posting which chair you use, what you like or don't like about it, is it good for indoor or outdoor use or both? I am considering a Pride Go-Chair mainly because it is small and comes apart for travel. (note: this is not the same as a Go-Go Scooter) Also, is anyone familiar with the wheelchair provider Maxim Mobility in New Haven, CT? Good or bad? Thanks! Kevin
Re: [TMIC] Wheelchair questions
Thanks to everyone who replied regarding my wheelchair quesrions! I wish I could get a scooter for cost and portability, but I really need a small mid-wheel drive chair to get around the tight spaces of my condo. Unfortunately I will have to pay for this chair out of pocket because I got a larger chair through insurance a few years ago and they won't cover another one so soon. The Pride Go-Chair looks like it will be the best one for my needs. I am having trouble with Maxim Mobility not returning my calls..the providers around here are not so great in my experience. Thanks again, Kevin Patricia Cooley wrote: KEVIN I PURCHASED A PRIDE GO GO ELITE SCOOTER IN APRIL. I LOVE IT. I HAVE USED IT FOR SHOPPING, AND ATTENDING OUTSIDE FUNCTIONS LIKE OUR STATE FAIR. IT IS EASILY DISASSEMBLED AND WOULD FIT IN THE TRUNK OF ANY CAR. THE HEAVIEST ITEM IS THE BATTERY WHICH IS 28 LBS. MY DAUGHTER CAN TAKE IT APART IN ABOUT A MINUTE. I BOUGHT MINE NEW FOR $1300.00, BUT YOU CAN ALSO GET THEM USED. A GOOD FRIEND OF MINE BOUGHT A USED ONE SEVERAL MONTHS AGO. I DID NOT WANT A POWER WHEELCHAIR BECAUSE THEY ARE TOO HEAVY AND I ONLY USE MY SCOOTER WHEN I AM OUT NOT IN THE HOUSE. IF YOU GOOGLE POWER SCOOTERS, YOU WILL HAVE MANY LISTED. PATTI - WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Tuesday, August 11, 2009 8:55 PM To: tmic-list@eskimo.com Subject: [TMIC] Wheelchair questions I am wondering who uses Power Wheelchairs on the TMIC? I cannot use a manual wheelchair because my hands are bad. Would you mind posting which chair you use, what you like or don't like about it, is it good for indoor or outdoor use or both? I am considering a Pride Go-Chair mainly because it is small and comes apart for travel. (note: this is not the same as a Go-Go Scooter) Also, is anyone familiar with the wheelchair provider Maxim Mobility in New Haven, CT? Good or bad? Thanks! Kevin
[TMIC] Wheelchair questions
I am wondering who uses Power Wheelchairs on the TMIC? I cannot use a manual wheelchair because my hands are bad. Would you mind posting which chair you use, what you like or don't like about it, is it good for indoor or outdoor use or both? I am considering a Pride Go-Chair mainly because it is small and comes apart for travel. (note: this is not the same as a Go-Go Scooter) Also, is anyone familiar with the wheelchair provider Maxim Mobility in New Haven, CT? Good or bad? Thanks! Kevin
