Re: [TMIC] Drug testing
Hi Gaylon, My husband who is a computer aided designer had to have a drug test. They DID NOT ask him if he was taking any meds. No one interviewed him when he had the test. They took just a sample and a week later he was told he passed. I worried he might not pass as he was on meds. He actually had the test for a part-time job and so I doubt anyone would have called him back if he had failed the test. Yahoo groups has a good tm email list. I think there is more diversity of people on it; more acceptance of different views and say, differently stated ones. I feel more comfortable there; less importance put on who's who. Natalie B On Mon, Mar 10, 2008 at 11:03 PM, Deborah Nord Capen [EMAIL PROTECTED] wrote: Since I know Lori, and I know that she has a very important job that requires a lot of brainwork, I felt that I needed to comment on this. I manage a medical clinic that also does urinalysis testing for drugs. Companies send their potential employees in to us to be tested. We interview the patient, they fill out a form on which they must disclose any medications they are taking. If the test comes up positive for illicit drugs, they need to give us valid prescriptions for their medications to prove that they are taking drugs that will mess up illicit drug test results. Privacy laws do not allow us to disclose the medications to the potential employers. Privacy laws also prevent the employer from asking the employee what medications they are taking. We are required to send on the test results; however, we evaluate the results against the prescriptions brought in to us, and our report will state that the test was a false positive due to legal meds that caused it. That should suffice for an employer, and nothing needs to be explained further to them. There are medications, such as anti-depressants, that will cause a positive result for cocaine use. So, if you are being successfully treated for depression, should you be discriminated against if you tested positive for cocaine use? I think not. I hope this clarifies the issue. Take care, Debbie [EMAIL PROTECTED] - Original Message - From: Lori Biehler To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, March 10, 2008 5:42 PM Subject: RE: [TMIC] Drug testing Well, I do work and do get tested, it is no worse than someone taking morphine, which shows up as an opiate, like heroine, so yes, it is legal and if you get discriminated against for it, they are the ones in trouble not you. I don't need either at this time, 10 years into this, I can deal just fine with no meds at all, but when I needed it, it was there and 100% legal, that is just how it is. I do believe that eating correctly for your body and exercise helps me enough to continue on with my life at a pace that works for me and my loved ones. I hope this helps you in some way. Lori From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, March 10, 2008 2:19 PM To: [EMAIL PROTECTED] Subject: Re: [TMIC] Drug testing With all due respect, That is nice fairytale thinking but you can almost bet that if you are mixed in with several applicants and all the rest do not test positive for drugs and you happen to light up the sky with your adornment of drugs in the urine test . Most likely the high probability of your app. would be set aside. After all would they really want someone that shows positive for illegal drugs that are pescribed legally? Think about it. In a message dated 3/10/2008 1:55:40 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: NO, you would not fail the drug test because Marinol is synthetic THC and they test for THC and Marinol is a LEGAL script so they won't fail you because you have the script. You will show positive for THC, but you are supposed to have that in your urine if you take Marinol. Lori From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, March 10, 2008 1:16 PM To: tmic-list@eskimo.com Subject: [TMIC] Drug testing I wonder if a person was taking the medication Marinol, would they fail a drug test while trying to apply for a job. It's Tax Time! Get tips, forms and advice on AOL Money Finance. It's Tax Time! Get tips, forms and advice on AOL Money Finance.
Re: [TMIC] Pray for Jude
If it is the gut thing, my father had it bad when he was being treated for cancer. He finally did get rid of it by eating a lot of yogurt. He almost lived on yogurt. Natalie Boyles On Feb 13, 2008 2:14 AM, [EMAIL PROTECTED] wrote: Hi Rick, Is it possible that you mean C-Diff? A gut issue where the bad bacteria is dominant over the good?? That's the analogy that I use anyway. I had it 2 years ago, and per my MD, may never quite get rid of it so need to make sure I continue to use probiotics. It takes a good while before you have any relief at all from it, and it is generally caused by too many antibiotics which kill off the good, bad and the ugly. Keep praying all! Hugs to all, Barbara A -- The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.http://music.aol.com/grammys?NCID=aolcmp0030002565
Re: [TMIC] HGH Ttherapy human growth hormone
Yes, but HGH can be very dangerous thing. Checkout LDN. Natalie On Dec 27, 2007 10:32 PM, sal r [EMAIL PROTECTED] wrote: has anyone ever thought about it for treatment? -- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.http://us.rd.yahoo.com/evt=51733/*http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ+
Re: [TMIC] scissoring legs
Oh my I can barely hop, if at all. Not sure if it is hop or a stumble. And, skipping is totally gone. It is as if my body does not comprehend what my mind is telling it to do. It is strange. I wonder why all neuros do not ask us to try it. And, I wonder why this does not show up on the nerve conduction tests. I know one neuro thought my emg test was awful, but then he finally decided I must be causing the poor results. Only one neuro thought I might have a slight nerve delay or whatever it is called. This little hop/skip thing at least makes me feel there is reason I have such difficulty. Thanks for sending in this info. Natalie B On Nov 8, 2007 7:39 PM, Louise Croyden [EMAIL PROTECTED] wrote: Hi All, I don't write in very often but I noticed your message about trying to hop. The physiotherapist I am seeing had me try to hop and to skip. I couldn't do either. Have you tried skipping yet? It definitely is a strange feeling to get all psyched up to hop off the floor and the feet just stay planted there! I asked why and she said that both hopping and skipping require very quick messages between the nerves, brain and muscles and, when we have a spinal cord injury, the responses aren't fast enough. They aren't her exact words, and it was a few months ago, but that is the gist of it. I asked if practising would help but, if I remember correctly, she didn't seem to think it would. I think she was using it more as a diagnostic tool than an exercise for me to do. Regards. Louise
Re: [TMIC] my first time to vent!
HI Randy, I really doubt very much it is you. I have been where you are and in some ways still am. My illness started while I was still in college, I started having problems before I could attain many of my life goals. It did effect my intellect and many academic undertakings that at one time would have been easy became a chore. And, I actually had a neuro sit, just last yr, sit and tell me I was not as bad off as I seemed to be. In the early yrs of my illness I was told I had conversion hysteria, was delusional or had a character disorder --- wanted attention was manipulative. I now have MRIs that show lesions on spine and brain, had optic neuritis. I have trouble walking, bladder problems, and other symptoms. Some doctors must be thick headed. Thankfully, I am now seeing a very well respected internal medicine doctor who cannot understand why I am not being treated more seriously for my symptoms, which he has stated could in no way not be real. He has said he loves puzzles and he will not give up on me. It sounds like you must have seen some of the same doctors I have. It is as if they hate to admit that one of their colleagues may have made a BIG mistake in the past and given me labels I did not deserve. I hope you do not live near Harrisburg, PA. It is not one of the best places for diagnosing neurological problems. I have been told by many friends in the medical profession that people in our area go to Johns Hopkins for neurological help. I did go there for a 2nd opinion and was told I probably had TM in past. I did not have the MRIs with the lesions to show them then and I was on steroids which masked some of my symptoms. I only went for one apptment there as I have a problem with traveling and finances. One local neuro I was seeing who said I had TM sent me to another neuro who never told me anything except kept saying I did not have MS. If you live in Harrisburg go somewhere else for help, if you can. And never check yourself in, at least not because some doctor has the problem. I actually did that way back in the 70's when the doctors had me convinced it was all in my head. If there is one thing I have found out from all the horror I have dealt with, it is to believe in yourself. I am so sorry to hear you have had to go through this hell too. Do not give up. I have read so many other horror cases on the web of people like us. Trust yourself. Natalie B On Nov 8, 2007 9:45 PM, randy rankin [EMAIL PROTECTED] wrote: I guess the old saying is true, There is a first time for everyting. I've been reading emails and rarely do I write much. So many people on this list seem to have much more on their plate to deal with than myself. Is it really just me? Am I alone in these feelings and experiences? Or should I just call up a psycologist and check myself in for a few months or years? __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] Pain
Hi Natalie, Why not try changing your family doctor. Sounds like he is stereotyping and treating you as if you were an anxious and neurotic female. The aspirin dose at that level is what they prescribe to deter heart attacks. And the Zanax, alone like that, is what they give patients when they do not know what to do with them. It keeps you calm and quiet. Your doctor does not sound like he is working very hard for his money. Don't let the doctors ignore you like this. There are lots of meds that can help with symptoms and the family doctor can prescribe them without need to see a specialist. Doctors are paid employees and owe you better work than that. Natalie B On 9/28/07, natalie mizenko [EMAIL PROTECTED] wrote: Trudy, I was sent by my dr. to a neurologist, he was thinking he might have different meds. for me. The dr. was nice but stated there to nothing else I can do for you that your dr. is not doing. I thought why did I come here for? wasted dr. trip againif I could count them in my life it would be a high total. Don't mean to be negative, but it's been like From: /Regina Rummel [EMAIL PROTECTED]/ To: /tmic-list@eskimo.com/ Subject: /[TMIC] Pain/ Date: /Wed, 26 Sep 2007 12:03:12 -0700 (PDT)/ Best idea is seeing a new neurologist. Zanax (for anxiety and nervousness) and 81mg aspirin? That's it! I'm no doctor, but sounds like you're not taking anything for pain. Good luck and let us know what the new neuro. has to say. --
Re: [TMIC] Pain
Hi Kevin, Please be careful if you are sensitive to cymbalta. I became extremely ill when taking it. I too got sick in my stomach from it and felt very ill. Had it been any worse, I would have needed to go to the emergency room. Luckily I was able to wait for its effects to wear off. I do not know if you have tried neurontin, but that is one drug I can tolerate at what is probably lower doses than most on this list take, ie 300mg 1 or 2x day or sometimes only 100mg 2x day. I have never tried Lyrica since it is very expensive and neurontin works about the same according to the literature. Most meds do not agree with me. Natalie B On 9/27/07, Kevin Wolfthal [EMAIL PROTECTED] wrote: Hi Jeanne, Lyrica made me feel sick. Nauseous and like I was going to pass out. I tried it as long as I could, hoping the side effects would pass, but I couldn't take it. Cymbalta gave me stomach problems, but I might try it one more time. I'm going to ask my doctor about it. Best wishes, Kevin jrushton wrote: Hi, Kevin! I'm interested in what problems you had with Lyrica which is what I am on. Jeanne
Re: [TMIC] my introduction to the group
Hi, I had much improvement over time and then it left. It was almost unbearable at times. Going to chiropractor helped me a lot. Actually as neuro told me to go to one. It did come back now and then, never as bad as the first time, but would go away after a while. It has now been gone for many yrs, so maybe I am safe. Natalie B On 9/15/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: In a message dated 9/11/2007 11:16:18 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I'd also love to hear if anyone else has had Lhermittes sign and if their symptoms improved over time?
Re: [TMIC] Depressed and no one to share with but you
Hi Regina, So sorry your surgery was so disappointing. Don't give up hope. I have a cousin who for yrs could barely walk and had terrible pains. He used a scooter. He had had several back operations and most of them only made things worse. I saw him last week for the first time in many yrs and he is now walking and able to do lots of things. He walked up a huge flight of stairs, can carry things, work on ceiling fixtures. He has lots of stamina. It is amazing. The medical doctors had given up on him. He told me a chiropractor and acupuncture have brought about his recovery. Guess there is hope. He was a real basket case. Hopefully someday we may all find an answer like he did. Natalie B On 9/10/07, Regina Rummel [EMAIL PROTECTED] wrote: I'm so disapointed that the AVM surgery made no difference in my condition. Five difficult weeks in the hospital... and what for? For nothing. I'm sorry I said yes when the surgeon asked if I were willing to let him get into my spinal cord and... I think it meant untwisting tangled up spagetti like or something like that. I don't know. He was so happy with the result! I'm just as bad as before if not worse. I can't bring myself to see the neurologist. It's all so useless and hopeless. I read your emails and you seem so brave. I'm not. I think about those of us who are at the hospital as I write this, who may or may not do well. I hope to hear that they are doing well. Anyway, I think it would be a good idea if I started to write a story. A children's story. I have an idea. Are any of you writers and writing something currently? It's obious that I'm thinking and babbling aloud, not talking to you, thinking to you, babbling to you. I feel better already. So kind of you to lend me your ear. I hope you're enjoying yourselves, vacationing or what not. I'm going to bed. Stay as well as you can. I'll try to do the same. In friendship. R
Re: [TMIC] Anyone else?
LOL Larry, I use duct tape for many things but this is one I never, ever thought of. BTW, how much hair do you have on your head? Don't let it grow Natalie On 8/10/07, Larry Throne [EMAIL PROTECTED] wrote: Duct Tape! Place one end on the head board then go under the chin, back up to the head board. That way you stay on our back keep the mouth closed as well as don't hurt the shoulders. Larry in Oklahoma who is feeling better after another UTI from hell Larry Throne, MSW -- From: *Alton Ryder [EMAIL PROTECTED]* To: *natalie mizenko [EMAIL PROTECTED]* CC: *Transverse Myellitis tmic-list@eskimo.com* Subject: *Re: [TMIC] Anyone else?* Date: *Thu, 9 Aug 2007 21:07:50 -0400* Sleeping with my mouth open, I have a dry mouth every night, all year. I put a chunk of a sugar-free cough drop under my tongue before falling asleep. It is surprisingly effective. I don't use a whole cough drop - I break them into two or three large pieces with a pair of pliers. Alton, a geezer with pliers on the bedside table On Aug 9, 2007, at 7:5319 PM, natalie mizenko wrote: To the group: Has anyone ever experienced a very dry mouth, especially through the night and in the morning. Also, last night my arms were hurting me so badly, and I have not been anywhere but hom. Especially from my elbow to my wrist. I have a knot under the skin on both arms in that area. They were worse last night this morn. but today they were some better, after all I ended up taking a pain pill. This has never occurred so badly. I've been noticing the mouth, but not the arms, til last night. Natalie M. -- Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panelhttp://us.rd.yahoo.com/evt=48516/*http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7and lay it on us. -- Booking a flight? Know when to buy with airfare predictions on MSN Travel.http://g.msn.com/8HMBENUS/2755??PS=47575
[TMIC] Re: OT aspirin
Hi Frank, Do you take the regular dose aspirin or the smaller dose some recommend for heart prevention. That always has me confused, which to take. Thanks Natalie On 7/25/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Has anyone taken vitamin B6 and noticed any difference in their numbness tingling or with anything? Carol, I take B6 during the summer. It keeps the mosquitos away. I also take folic acid which may be needed to keep the bugs away. I take Folic acid to lower my homocystine level and keep me from having heart attacks and strokes, that is why I take Aspirin too. My pain is not affected by the B6. Hope this helps F
Re: [TMIC] aspartame
I have oftened wondered about this too. I have read aspartame is thought to cause pain, ms like symptoms and all sorts of horrible things. The web is filled with horror stories pertaining to aspertame. But, then the funny thing also, aspartame has a form of *phenylalanine in it and using aspartame raises the level of phenylalnine in the blood*. Some people use phenylalanine to ease pain. I think any sugar is bad for people, but I do find when I drink something with aspartame in it I hurt less. I wonder if anyone will really ever know the answers about aspartame. Natalie Boyles On 7/14/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I wonder if there is any link to the use of aspartame and the fact that some TMers have more neuropathic pain or other TM symptoms than others. As a result of reading a letter to Peter Gott MD that was published in our local newspaper about complex idiopathic neuropathy and aspartame, I just finished an hour of research on the toxity of aspartame. Oddly, aspartame was the very first subject I researched on the internet years ago.
Re: [TMIC] Amantadine
Hi Bill, Go to www.yahoo.com and do a search using the words, Amantadine fatigue. You will get lots of results that show amantadine's use in regards to fatigue. It is used a lot for fatigue by people who have ms.. Natalie Boyles On 6/27/07, Bill and Mollie Wimberly [EMAIL PROTECTED] wrote: * I was reading the post from Cindy K and looked up the medication Amantadine. No where could I find where it is used for fatigue. *
Re: [TMIC] RE: WARNING. Someone tried to send you a potential virus or unaut...
Hi Everyone, It is very highly in all probability, not a virus. Many virus programs may have found it to be a possible threat. If you look at the warning it says potential virus and unauthorized code. The card was a clickable link and that coding may have set off alarms in some virus programs. They may have seen it as a file that could execute on its own or by clicking, and then open a virus. It was only a picture of an envelope that you could click on and be sent to the birthday card. Company servers are especially sensitive. Natalie Someone tried to send you a potential virus or unauthorised code -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, June 02, 2007 12:11 PM Subject: WARNING. Someone tried to send you a potential virus or unauthorised code The MessageLabs Email Security System discovered a possible virus or unauthorised code (such as a Trojan) in an email sent to you. The email has now been quarantined and was not delivered. Please read the whole of this email carefully. It explains the statu On 6/4/07, L T CHERPESKI [EMAIL PROTECTED] wrote: I also received the notice - and yes it was the e-mail Greeting card - Original Message - *From:* [EMAIL PROTECTED] *To:* tmic-list@eskimo.com *Sent:* Monday, June 04, 2007 12:07 PM *Subject:* Fwd: [TMIC] RE: WARNING. Someone tried to send you a potential virus or unaut... I also received notice, it was the e-mail Greeting card
Re: [TMIC] Bee Venom Therapy
I took the LDN and wrote about it several times to this list. It worked well, but I could not get a doctor to prescribe the dermal type and the oral started upsetting my stomach. Since there is no cure for what we have I thought the LDN was worth a try. I had a month of feeling pretty normal. It was nice. Natalie B On 6/1/07, Akua [EMAIL PROTECTED] wrote: He mentioned in the journal taking low dose maltrexone. I checked on line at lowdosenaltrexone.orgseems it can boost the immune system. I never heard of anyone in the group taking that. I take low dose naltrexone. Have experienced some return since taking it and lessening of pain and discomfort. Such that this is it for me. The only other drug I take is oxy-b ( the generic d=for detrol la) So I tend to think it's effective since most TMers take lots of other stuff. I'm paralyzed. was told T-10 since 11/14/05. My thanks to Crystal whose web site led me to LDN a year ago. Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
Re: [TMIC] double vision and dancing eyes...
How can he tell its not the muscles or nerves? Did he do tests? You have something wrong, as bouncy, double vision ain't right. I have read that you can have lesions, but they may not be visible on even today's high tech mri machines. It wasn't until I had mri's on the newest of machines with certain parameters and dye used that my lesions showed. Ask for more tests, mris, tests for muscles disorders. Sad thing, even if they find our lesions most times they cannot help us anyhow, except to help us deal with it all. Yes, I have had symptoms like yours, but they went away all by themselves. Hope yours disappear like mine did. No, I still do not know for sure what caused mine. Best Wishes Natalie B On 5/26/07, Oma Haidarzada [EMAIL PROTECTED] wrote: I'm writing this email to find out if anyone had the following symptoms as i do: my vision continuously bounces up and down and I have double vision also. It is not because of the meds because I have already cut down on the meds. It is not a lesion since I had an MRI done indicating nothing is there. It's not my muscles since the doctor said the connection of the eyes are fine. Has anyone had the same symptoms and if so can you please inform me of what I can do? Much Thanks, Sal- -- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. http://us.rd.yahoo.com/evt=48224/*http://sims.yahoo.com/
Re: [TMIC] difficulty eating
Hi, I was wondering if any of you have had this problem. Sometimes I am more numb than usual and at these times I have problems with eating. I will be eating and suddenly I can no longer swallow. I then must vomit up the food that I have been eating. Never figured out from how far down the food is coming; seems it is food that has not gotten to my stomach. Once I am not so numb, I do not have this problem anymore. I have had some tests for swallowing, but never went back for some other tests. I will be seeing a doctor next week. But, I was just wondering how usual this was for others with TM. thanks in advance Natalie B
Re: [TMIC] OT: Some Better Pet Foods Tainted
I am sending this since I know many of us have pets that help them deal with their TM or related illnesses. I lost a very dear and close companion dog to cancer much too early in her life. I have lost several dogs in recent yrs to cancer. I fed Nutro Natural Choice thinking I was giving them the best. Natalie Boyles - Nutro Natural Choice Pet Food Class Action *PRESS RELEASE* *FOR IMMEDIATE RELEASE* *CONTACT: Russell Keith * *Monday, May 14, 2007 (305) 358-6555* *Nationwide Class Action Lawsuit Filed Against Pet Food Companies and Retailers For Misleading Consumers Regarding the Contents of Pet Food * *Premium Pet Food Marketed and Sold as Complete and Balanced Has Historically Contained Such Items as Euthanized Dogs and Cats, Restaurant Grease, Hair, Hooves, and Diseased Animals, and Other Inedible Garbage * *[**MIAMI**, **FLORIDA**] A cat and dog owner from **Michigan** and two cat and dog owners from **Florida** have filed a nationwide class action against food industry giants Mars, Inc., Proctor and Gamble Co., Colgate Palmolive Company, **Del Monte Foods**, Co., and Nestle U.S.A. Inc. These manufacturers have a combined approximate 70% of the market share in the $16 billion dollar a year pet food industry. The suit also names as Defendants Nutro Products, Inc., **Menu Foods**, **Wal-Mart Stores**, Inc. **Target Corp**., Publix Supermarkets, Inc., Winn Dixie Stores, Inc., as manufacturers and marketers of their own brand pet food and retailers **PETCO Animal Supplies**, Inc., Pet Supermarket, Inc., and **Petsmart Inc**.* *The Plaintiffs maintain that these companies have spent $300 million a year in making false and misleading marketing statements regarding the contents of their pet food to the dog and cat loving American public. While these Defendants tout their pet food products as choice cuts of prime beef, chunks of chicken, fish, fresh wholesome vegetables and whole grains to induce consumers to buy them, the Plaintiffs contend the food is actually made from inedible slaughterhouse waste products of the human food chain such as spines, heads, tails, hooves, hair, and blood. Rendering companies who process this waste have also added other inedible waste such as euthanized cats and dogs from veterinarian offices and animal shelters, road kill, zoo animals, rancid restaurant grease, toxic chemicals and additives. Additionally, dead animals and those declared unfit for human consumption due to disease and illness are also placed in the mix. * *The lawsuit was filed in United States District Court for the Southern District of Florida by attorney Catherine J. MacIvor of the 23 attorney ** Miami** litigation law firm of Maltzman **Foreman, PA**. The case is pending before the Honorable Cecilia Altonaga. Class Counsel, Catherine J. MacIvor says that The melamine debacle is not the only serious problem with pet food. The number and frequency of lethal pet food recalls in the last few years clearly shows the seriousness and extent of this problem. * *The lawsuit alleges that pet food companies market their products as wholesome, choice cuts of meat, natural and complete and balanced diets even though they are fully aware that this food is largely carbohydrates and sugars combined with toxic preservatives and additives with very little to no meat at all. The lawsuit seeks damages to consumers for the false representations made in the Defendants' advertising as well as punitive damages.* *Sadly, MacIvor said, the Defendant pet food companies and retailers recognized that American pet owners love their cats and dogs like members of their family. The Defendants deceptive advertising specifically marketed premium healthy food to the American public knowing that they want to buy the best food that they can for their loved one and knowing that the food consists largely of garbage, chemicals, additives, diseased meat and even residual pentobarbital from euthanized animals. * *The 58 page lawsuit outlines in grotesque detail the actual manner in which most commercial pet food in the **United States** is made. The lawsuit also attaches and cites numerous news stories and research articles outlining the real content of the Defendant's pet foods and the misleading and deceptive advertising undertaken by the Defendants.* *The Defendants targeted in the Complaint produce pet foods under a wide array of brands and names including: Pedigree(r), Sheba(r), Goodlife Recipe(r), Royal Canine, Iams(r), Eukanuba(r), Science Diet(r), Prescription Diet(r), 9 Lives(r), Amore(r), Gravy Train(r), Kibbles-n-Bits(r) and Nature's Recipe(r), Snausages(r), Milk Bone(r), Pup-Peroni(r), Meaty Bone(r), Canine's Carry Outs(r), Jerky Treats(r), Wagwells(r), Alpo(r), Beneful(r), Beggin' Strips(r), Dog, Cat, Puppy and Kitten Chow(r), Fancy Feast(r), Friskies(r), Mighty Dog(r), Deli-Cat(r), Pro Plan(r), Purina One(r), Natural Choice(r) Dog and Cat Products, Max(r) Dog Products, Max(r) Cat Gourmet Classics, Natural Choice(r
Re: [TMIC] OT OT: RANT WARNING
Contact(call) a state or federal Senator of HR office. I was having a problem with our local Social Security Office. I contacted my districts Federal House Representative and in no time at all the problem was resolved. Someone on the Representatives staff looked into the matter, contacted the parties involved and I did not need to do a thing. So, I would think either a state or federal Senator or Rep should be able to help you. I never knew they would go to so much trouble for just an unknown like me, but they did. Good luck, and hang in there. Natalie Boyles Harrisburg, PA On 5/19/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Kevin, call your state's attorney general's office, and tell them your story. They should be able to help you. You shouldn't have to pay for a parking space. good luck F
Re: Fw: [TMIC] computer desk, wheelchair friendly
I found one at Office Max.It is nice sized. I think it was a Souders but not sure. Guess would need to take the wheelchair along or measure. It will not work unless the wheelchair armrests are the lower half type(not sure how to explain that). Office Max had a lot of desks I think would work. I am only 5'4 so might make a difference. Natalie On 5/9/07, Wayne Rabalais [EMAIL PROTECTED] wrote: My son also has TM and we had been looking for a desk. We contacted a school that has wood shop. It is just his height and wide enough for his computer,scanner and a few other things. They put a small piece of wood in the back of the desk so that his computer stays on. Maybe you could ask one of the schools in your area or if you know of someone that is good working with wood. Good luck. rebecca - Original Message - *From:* [EMAIL PROTECTED] *To:* tmic-list@eskimo.com *Sent:* Wednesday, May 09, 2007 1:45 AM *Subject:* [TMIC] computer desk, wheelchair friendly Does anyone know of a brand, model, store, etc, where one could get a computer desk that works well with a wheel chair? I have a friend with MS who is looking for one. We live in Hawaii, but if he knew of a specific brand or model, he might be able to either order it or get a store to order it for him. Let me know if you have any ideas. Thanks, Sally
Re: [TMIC] Another Symptom
Okay you guys, you sound like my husband and he is healthy --- I wonder. He flaps his arms and jerks his legs in his sleep so badly, I must leave the bed. If you find an answer to this dilemma please let me know about it. I am tired of being beaten. Natalie On 5/3/07, Alton Ryder [EMAIL PROTECTED] wrote: I have something similar. Sometimes, when I am lying down during the day and I start to nod off, both arms will fly forward and the left leg might jerk towards my head. Not always, but it always wakes me. It doesn't happen when I go to bed. If either hand is holding something, that hand will not participate. Alton, who thought this unique and now no longer
Re: [TMIC] thanks for rollator suggestions!
Hi Kevin, All your emails about a rollator have me thinking of getting one. I do not go many places anymore, just stay around home. And, I do have problems getting around at home too. I found a video of the Hugo at the link below. It does fold and looks real nice. I am glad you brought up the question of the Hugo as I guess I should give one a try. Natalie http://www.hugoanywhere.com/
Re: [TMIC] Swelling legs - Larry
*Life Gear, Motorized Oxycycle* I found it at the site below has it for $99 http://www.allegromedical.com/browse/ProductDetail.do?pid=211013utm_source=YSMutm_medium=ppcutm_term=lifegear+motorized+oxycycleengine=yahoo!8880keyword=lifegear+motorized+oxycycleOVRAW=Life%20Gear%2C%20Motorized%20OxycycleOVKEY=lifegear%20motorized%20oxycycleOVMTC=advancedysmwa=BbLBHS-1zT5KPeGcZLUfYpjIjILKSaKMtlzaZkpPzncLSeI0PzQQ2WWzk6FTmnbG Natalie* *
Re: [TMIC] OT pet food recall at more stores than walmart
Hi, the dog food recall is not only for dog food at walmart. It is for brands found at pet stores, feed stores and more. Here is the link that lists all of of the foods. On the news they said to check often for updates. http://www.menufoods.com/recall/ Recalled Dog Product Information Recall Information 1-866-895-2708 1. Americas Choice, Preferred Petshttp://www.menufoods.com/recall/Dog/Americas%20Choice_Preferred%20Pet.htm 2. Authority http://www.menufoods.com/recall/Dog/Authority.htm 3. Award http://www.menufoods.com/recall/Dog/Award.htm 4. Best Choice http://www.menufoods.com/recall/Dog/Best%20Choice.htm 5. Big Bet http://www.menufoods.com/recall/Dog/Big%20Bet.htm 6. Big Red http://www.menufoods.com/recall/Dog/Big%20Red.htm 7. Bloom http://www.menufoods.com/recall/Dog/Bloom.htm 8. Wegmans Bruiser http://www.menufoods.com/recall/Dog/Bruiser.htm 9. Cadillac http://www.menufoods.com/recall/Dog/Cardillac.htm 10. Companion http://www.menufoods.com/recall/Dog/Companion.htm 11. Demoulas Market Baskethttp://www.menufoods.com/recall/Dog/Demoulas%20Market%20Basket.htm 12. Eukanuba http://www.menufoods.com/recall/product_euk.html 13. Food Lion http://www.menufoods.com/recall/Dog/Food%20Lion.htm 14. Giant Companionhttp://www.menufoods.com/recall/Dog/Giant%20Companion.htm 15. Great Choicehttp://www.menufoods.com/recall/Dog/Great%20Choice.htm 16. Hannaford http://www.menufoods.com/recall/Dog/Hannaford.htm 17. Hill Country Farehttp://www.menufoods.com/recall/Dog/Hill%20Country%20Fare.htm 18. Hy-Vee http://www.menufoods.com/recall/Dog/Hy-Vee.htm 19. Iams http://www.menufoods.com/recall/product_iams.html 20. Laura Lynn http://www.menufoods.com/recall/Dog/Laura%20Lynn.htm 21. Loving Mealshttp://www.menufoods.com/recall/Dog/Loving%20Meals.htm 22. Meijers Main Choicehttp://www.menufoods.com/recall/Dog/Meijer%27s%20Main%20Choice.htm 23. Mighty Dog Pouchhttp://www.menufoods.com/recall/product_mightydog.html 24. Mixables http://www.menufoods.com/recall/Dog/Mixables.htm 25. Nutriplan http://www.menufoods.com/recall/Dog/Nutriplan.htm 26. Nutro Max http://www.menufoods.com/recall/Dog/Nutro%20Max.htm 27. Nutro Natural Choicehttp://www.menufoods.com/recall/Dog/Nutro%20Natural%20Choice.htm 28. Nutro Ultrahttp://www.menufoods.com/recall/Dog/Nutro%20Ultra.htm 29. Nutro http://www.menufoods.com/recall/Dog/Nutro.htm 30. Ol'Roy Canadahttp://www.menufoods.com/recall/Dog/Ol%27Roy%20Canada.htm 31. Ol'Roy US http://www.menufoods.com/recall/Dog/Ol%27Roy%20US.htm 32. Paws http://www.menufoods.com/recall/Dog/Paws.htm 33. Pet Essentialshttp://www.menufoods.com/recall/Dog/Pet%20Essentials.htm 34. Pet Pride - Good n Meatyhttp://www.menufoods.com/recall/Dog/Pet%20Pride%20-%20Good%20n%20Meaty.htm 35. Presidents Choicehttp://www.menufoods.com/recall/Dog/Presidents%20Choice.htm 36. Price Chopperhttp://www.menufoods.com/recall/Dog/Price%20Chopper.htm 37. Priority Canadahttp://www.menufoods.com/recall/Dog/Priority%20Canada.htm 38. Priority UShttp://www.menufoods.com/recall/Dog/Priority%20US.htm 39. Publix http://www.menufoods.com/recall/Dog/Publix.htm 40. Roche Brothershttp://www.menufoods.com/recall/Dog/Roche%20Brothers.htm 41. Save-A-Lot http://www.menufoods.com/recall/Dog/Save_A_Lot.htm 42. Schnucks http://www.menufoods.com/recall/Dog/Schnucks.htm 43. Shep Dog http://www.menufoods.com/recall/Dog/Shep%20Dog.htm 44. Springsfield Prizehttp://www.menufoods.com/recall/Dog/Springsfield%20Prize.htm 45. Sprout http://www.menufoods.com/recall/Dog/Sprout.htm 46. Stater Brothershttp://www.menufoods.com/recall/Dog/Stater%20Brothers.htm 47. Weis Total Pethttp://www.menufoods.com/recall/Dog/Weis%20Total%20Pet.htm 48. Western Family UShttp://www.menufoods.com/recall/Dog/Western%20Family%20US.htm 49. White Rose http://www.menufoods.com/recall/Dog/White%20Rose.htm 50. Winn Dixie http://www.menufoods.com/recall/Dog/Winn%20Dixie.htm 51. Your Pet http://www.menufoods.com/recall/Dog/Your%20Pet.htm On 3/19/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I READ ITS AT SOME WALMART STORES.
Re: [TMIC] OT Dog Cat Food Recall
This is such a large recall, I thought some of you might want to know about it. Please read if you have dog or cat and feed wet/canned food. There is additional link to all the different effected brands in the article. Looks like it covers most brands sold. Natalie Boyles http://news.yahoo.com/s/ap/20070316/ap_on_bi_ge/pet_food_recall
Re: [TMIC] fine print and old eyes
If you use ie or like me use foxfire browser you can make things larger by going to view on the tool bar of the browser and increasing the text size. I must do this and I also use nothing higer than 800x600 resolution. If you use higher resolution you will for sure strain your eyes. I have never seen how people can use above 800x600 and enjoy using a computer - just my opinion though. Natalie On 1/26/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: To make print larger or smaller you hold down the control key and roll the scroll button on your mouse. i don't have a mouse... maybe under preferrences... i can do this F
Re: [TMIC] medications and supplements
HI Jenna, I have heard of using glyconutrients and phytonutrients. I have read they have helped people with illnesses such as fibro, ms and other auto-immune problems. There is a lot of literature out there on this - scientific and medical. You can lead a horse to water but you cannot make him drink, as they say. Thanks for having the thougthfulness to share with us. I guess I am trusting and like to see the good side of most things. But, in this instance I have also heard of all this before and know of others who have been helped so do believe you; believe the experts. It is good to be open to new things; especially when they make you better. You are the winner here, so do not worry what others think. Natalie Boyles On 1/18/07, Jenna Stentz [EMAIL PROTECTED] wrote: Frank, Do you really think I am lying? It's not who I am. I have medical proof of where I was and where I am through 2 of my Dr's. I see my neuro at the end of the month and can't wait to see what my improvement has been from his perspective. I'll let you know what he has to say! Jenna * *
Re: [TMIC] medications and supplements
The product they are selling is the very thing that saved my now 12 yr old dog from double hip replacement and the effects of severe arthritis. Dog people have been using this kind of supplement for yrs, so have horse owners. Guess now they have found it works for people too. If you have not tried it dont knock it. At least be a bit more polite to the people who have found it to work for them. This list is getting rude. It must be the winter blues, as I know we are usually nicer and more open minded. Natalie B Hi -- There are several books out about anti-inflammtories now, and you can read all about them and how they work at this site http://www.HealthIsRightAroundTheCorner.com , click on Product Info at the side. and google has many other sites about them. I am taking this for my arthritis, and it really helps me.
Re: [TMIC] medications and supplements
Hi Frank,
These are perna green mussels. They are given to dogs with arthritis and
joint disease.The suppliment is glycoflex. It is just a well know fact among
vets, dog owners, breeders. It works. You need to do a little research. If
you do not know much about dog showing and breeding perhaps that is why you
have never heard of it. It may be out of your range of knowledge.
Perna contains a natural mineral balance similar to that of the human. It
is made up of 61% protein, 13% carbohydrates, 12%
glycosaminoglycanshttp://www.peteducation.com/article.cfm?cls=1articleid=1423(GAGs),
5% lipids (including eicosatetraenoic acids, or ETAs), 5% minerals,
and 4% water. Perna mussel also contains
glucosaminejavascript:popupWin1('/dictionary_term.cfm?term=glucosaminecls=0',
50, 50,
350, 300), a GAG precursor and one of the building blocks of cartilage.
Glucosamine, GAGs (unbranched chains of complex sugars) and ETAs (a type of
Omega-3 fatty acids) are the compounds in the mussel believed to contribute
to its beneficial effects. ETAs are the key ingredients that help in the
anti-inflammatory activity and thereby the reduction of joint pain. GAGs are
the main components of cartilage and the synovial fluid found in joints.
http://www.peteducation.com/article.cfm?cls=0cat=1448articleid=1557
Natalie
On 1/18/07, frank @ franksheldon. com [EMAIL PROTECTED] wrote:
The product they are selling is the very thing that saved my now 12 yr
old
dog from double hip replacement and the effects of severe arthritis
I don't believe these products are related to glucosamine/chondroitin
sulfate that you, your dog and my girl-friend take.
If anyone can show me a relation between the two, please do.
I get really upset when people take advantage of sick people in order to
earn money.
F
Re: [TMIC] TM Spasms
I have gotten much relief from spasms ( spine, legs, arms, abdomen, whole body) using LDN. I had extremely bad spasms. I had to take neurontin, valium, and darvocet and just go to bed. I have only had very mild ones since being on the LDN. I hardly ever need to take neurontin, valium or the darvocet now. Natalie On 1/16/07, Heather Pieter [EMAIL PROTECTED] wrote: Jude, Sorry to hear that are having such troubles. I only take Baclofen for the spasms. I was on Zanaflex along with the Baclofen when I first came home from the hospital 3 years ago. Sounds like you may have to see your doctor. Heather in Calgary - Original Message - *From:* [EMAIL PROTECTED] *To:* TMIC-LIST@eskimo.com *Sent:* Tuesday, January 16, 2007 5:29 PM *Subject:* [TMIC] TM Spasms *Hello All,* ** *It's me again, complaining with my continuous woes. I am so sick of this!* ** *Does anyone out there know what causes the response, in some of us, known as spasms? I have had them, hard, from day one--around my abdomen. It feels as though someone is fastening me into a lace up corset where they put one foot in the middle of your back and pull as hard as they can before going on to the next set of laces.* ** *I have no idea what has set off this particular set of spasms, but I have had them steady, day and night, without stopping for almost one month. I am taking Baclofen and Valium which are not cutting the spasms one bit. I do a lot of cry-babying on this list because that is what it is here for, but I am normally pretty stoic and can take a lot of pain.* ** *Has anyone here on the List had continual spasms like this? I'd like to know what they did for them. Please find me some relief and solace. Please keep me in your Prayers and I will do the same for you one day.* ** *Thanks,* *Jude* -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.16.13/632 - Release Date: 1/16/2007 4:36 PM
Re: [TMIC] low dose naltrexone
Hi Bob, I wrote to the list in Nov about LDN. I am still taking it and still having some improvement while on it. If you go to http://www.remedyfind.com/treatments/0/2165/ there are first hand accounts about LDN from people who have various illnesses. Also, here is a site that should help you. And, the owner is very good about answering questions about LDN. http://www.freewebs.com/crystalangel6267/index.htm Good luck in your searching. Natalie B http://remedy.com On 1/5/07, ROBERT DIEHL [EMAIL PROTECTED] wrote: back in nova posting about low dose naltrexone was listed..i did some print outs about it and gave them to my dr...he was going to look into it...has anybody else done any research about the LDN as they call it?? has anybody else tried it to see if it helps??i go to my dr next week and am looking for any additional info to give him about anyone else using it BOB from PATM since 04/04. HAVE A GOOD DAY EVERYONE
[TMIC] TMIC: OT - cannot reach Paula Harris
Sorry to write here everyone, but Paula has written to me 2x and I have tried to get back to her several times with different email accounts I have and none can get through to her. Perhaps she will get these. Her emails to me were in response to emails I sent to TMIC list. Natalie Replies to Paula that Bounced: 1st Email - Hi Paula, LDN stands for Low Dose Naltrexone. Naltrexone is a medicine used to treat alcohol addiction. It is now being used in low doses to treat other diseases. There is a website for LDN, http://www.lowdosenaltrexone.org/. This explains its uses, research being done on it, etc. A lot of people have been having good results with it. However, sometimes there is a period of mild side efffects, but nothing most people cannot wait out. I have been on it about 2wks and see a lot of improvement. I have had a few side effects and have had to change the time or dose of the LDN. But, I think it is well worth the trouble of trying to find a good dose for myself. If you need any other information let me know. I can send you some links. Hope you are doing a bit better each day. Best Wishes, Natalie Boyles 2nd bounced email: Hi Paula, Neither of the two, Revia or Nodict, are low dose. Both are Naltrexone, which comes in 50mg tabs. To get the LDN, usually a pharmacist will compound the 50mg Naltrexone tab or get pure Naltrexone powder and make capsules in doses of 1.5 or 3.0 or 4.5mg. The compounded Naltrexone is the low dose naltrexone or LDN. Some people, myself included, take the 50mg tab and dissolve it in 50ml of distilled water. THen we take 1.5 or 3.0 or 4.5ml of that. 1ml = 1mg The Nodict and Revia are other companies names for Naltrexone. Natalie
Re: [TMIC] Re: tmic-digest Digest V2006 #278
Hi Pam, I sent the following link in my last email. I am sending it again, as this is where you will find answers to your questions. http://www.lowdosenaltrexone.org/ * Latest News — November 2006 *http://www.lowdosenaltrexone.org/ldn_latest_news.htm * 2006 LDN Conference Multimedia *http://www.lowdosenaltrexone.org/events.htm * New! Clinical Animal Trials *http://www.lowdosenaltrexone.org/ldn_trials.htm [image: What is LDN?]http://www.lowdosenaltrexone.org/index.htm#What_is_low_dose_naltrexone [image: What You Can Do]http://www.lowdosenaltrexone.org/index.htm#What_you_can_do [image: Contact Us] http://www.lowdosenaltrexone.org/contact_us.htm [image: LDN and HIV/AIDS] http://www.lowdosenaltrexone.org/ldn_and_hiv.htm [image: LDN and Cancer] http://www.lowdosenaltrexone.org/ldn_and_cancer.htm [image: LDN and MS] http://www.lowdosenaltrexone.org/ldn_and_ms.htm [image: LDN and Autoimmune Disease] http://www.lowdosenaltrexone.org/ldn_and_ai.htm [image: Further QA about LDN]http://www.lowdosenaltrexone.org/further_q_and_a.htm * What Others Are Saying About LDN *http://www.lowdosenaltrexone.org/others.htm * The LDN for MS Research Fund http://www.lowdosenaltrexone.org/research_funding.htm + The Developing Nations Project + http://www.lowdosenaltrexone.org/developing_nations.htm * Natalie On 11/29/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I ASKED MY DOCTOR ABOUT IT ALONG TIME AGO WELL 3 OF THEM AND THEY SAID NO WAY IN MY CASE. WELL WE OR ALL DIFFERENT, AND I DO HAVE PROBLEMS WITH MANY DRUGS AND I ONLY TAKE WHAT HELPS ME. WHAT CONFUSES ME IS ITS OK TO GIVE TO PATIENTS WITH CHROHNS DISEASE WHOM I KNOW A LADY WHO LIVED HERE AND GOT IT BUT SINCE KATRINA HAS NOT COME BACK. I WISH I COULD LOCATE HER AND FIND OUT WHY THEY CAN GET A SCRIPT BUT MOST OTHER DOCTORS WILL NOT GIVE YOU ONE. RESEARCH MUST OF BEEN DONE I WOULD THINK. IF IT WORKS THEN I AM GLAD FOR YOU. KEEP US IN FORMED. SINCERELY PAM
Re: [TMIC] TM Question
Hi All, Sharon mentions starting LDN for her MS. Well, it can also be used for TM. I started it a week ago. I have TM, not MS. I was to the pt of not being able to do very much. I had much trouble walking, with my bladder, numbness, awful spasms. I could not go anywhere I was a wreck. I was beginning to wonder how I would take care of myself, my home, my dogs. I was going to ask all of you how you cared for yourselves, as I was have more and more trouble doing it. I was wondering if I would need to get help with meals and all. Well with help of the LDN, I went shopping yesterday, only one store, but that is a great improvement. I am not so stiff and numb. I have had only a few spasms. My bladder is working better or guess should say not so much. I have more feeling in my body; not all those awful numb areas. I have tried the baclofen, the neurontin, a lot of things.They did not work or made me sick or both. None really helped much. My doctor is checking into LDN, but I did not wait for him. I got tired of waiting for my doctors. I got the LDN online. It is working and I am HAPPY to be feeling human again. For more info on LDN just do a web search you will find lots of info. I got mine from www.riverpharmacy.com. LDN is better than magic, :), it works with many and I wish I had know about it yrs ago. Natalie B On 11/28/06, Sharon Marsden [EMAIL PROTECTED] wrote: I have burning pain when I lay down too. It's been going on for a year. I have been on as much as 3200 mgs. of Neurontin a day and it did nothing for that leg pain. I take 80 mg. of Baclofen for the spasticity. I take Cymbalta and that has helped. I took Lyrica but had a side effect that brought me more intense pain so I'm off of it. I have recently started on 3 mg. a day of LDN (Low Dose Naltrexone) for MS treatment. I've been surprised that there has been a real, true improvement in the noctural leg pain. I can sleep better! I do think the LDN is the reason for the lower pain level in my legs. Good luck and I hope you find your own magic treatment. hugs))) *Sharon --from Arizona *TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: TMIC-LIST@eskimo.com Sent: Sunday, November 26, 2006 6:06:41 PM Subject: [TMIC] TM Question I have had TM for six months. I have it from the waist down and was initially paralyed from the waist down. I am now walking on a walker and semi on a heme cane. However, I get these strange sensations from the nerves in my legs and when I am laying down a burning sensation in my thighs that really hurts. Have any of you experienced this and is this medication for it?
Re: [TMIC] Question two
Hi, I sent the link to the pharmacy, because that is the pharmacy I used to get LDN, well actually 50mg tabs of Naltrexone. I have been trying to get a prescription for it from a doctor since August, but I have not had success. My family doctor is still reading up on it, the neuro I saw this summer could possibly be waiting for his hospital to finish their testing on rats(lucky rats). In the meantime, I went on line last week and bought LDN without a prescription. And, yes, it is a prescription drug.And, no you do not need a prescription at riverpharmacy.com. I have read on the web where people have been using LDN since at least 2004 for neurological problems and other illnesses. No one came and told me either, I just found it out, by luck. --- No, You cannot get it from just any pharmacy, sorta. LDN stands for Low Dose Naltrexone. Naltrexone is a drug for addiction - alcohol or drugs. It comes in 50mg doses. With LDN you use only 1.5mg/ml - 4.5 dose. So, to get the low dose it must be compounded by a pharmacist. Or, you can do like I do and take the 50mg tab and dissolve it in distilled water and measure out with a syringe(the 50mg tab you can get it from any pharmacy) . This is the URL for the LDN homepage: http://www.lowdosenaltrexone.org/ This has the information you need to understand all this. Also, below I have put another link. This site also will help you.Someone who knows much more about this than I did mention LDN on the list a month or so go and she did not get much of a response. I did not write about this any earlier to the TM list, as I have only been taking it since last week. The first night I took it ( it is taken once a day before bedtime), I felt so good I could not believe it. My spasms were gone and I could feel my body (I am numb and stiff all of the time).. I could not run around the house, but I actually felt like I might be able to give it a good try. Usually I am not sure if my feet are next to each other or on top of each other when I lie in bed, but I could after the first dose. Most of the good effects did not last more than a few hours. THe 2nd night I became agitated, hyper from the dose. I did not take any for 2 days. The next dose I took was a lower dose and ws fine. I have been slowly improving and raising my dose to 3mg. I did not say anything before as I did not want to give any false hopes to anyone.Nor did I what to get my own hopes up. But, people with MS and many other illnesses have been having unbelievable results with this. Of course, there are those who do not have success. LDN is a FDA prescription drug, but there have been no clinical studies here in the USA for its use for humans with other illnesses (except for Crohn's and one presently going on for Fibromyalgia in Mechanicsburg, PA). Since it is so cheap it is taking and has taken a long time for any group to get around to testing it for diseases other than addiction.Drug companies would lose big bucks if it were found that LDN worked better than their expensive drugs. But, an approved FDA drug can be prescibed for another illness if you can get a doctor to do it. All this is explained on LDN homepage. I guess many doctors are waiting for human trial results. Have to ask the doctors that question. I do not know why we have not been hearing about this on the TM list. All I care about is that I have had a chance to try it. And, I did want to let other list members know about it.And, I did want listers to hear about it from someone they know, like me so you might give it a look. I just am not a doctor and I do not want to play one. So, I guess I did not give much info my first email. It sounds too good to be true, but it seems for many it is like a miracle. I hope if any of you try it you have good results. Sorry if this is long, hope it makes some sense. I care about all of you and maybe this will help some of you. God Bless, Natalie B http://ldn.proboards3.com/index.cgi? -- This is a LDN message board. On this page you will find more links. There is also a low dose naltrexone list on yahoo groups you can join. On 11/28/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: LDN (Low Dose Naltrexone) ? What is it? I see that several of you are having good results, less pain and less banding, but why am I hearing of it all of a sudden, and why, Natialie, was your doctor so reluctant in prescribing it to you? Is this drug something one can get over the counter? If so, why, the doctor in the first place? Why give us the name of a specific pharmacy? It seems as though it might be found in any good drug store. Of course, now I want to try it because, like Lyrica, a few people feel better when taking it. Then, after a month or so the same people are going back to their previous medications. Like I did a month or so ago. I get so confused and don't know what to think... Peace To All, Jude
Re: [TMIC] Scooter recommendations?
Might find it here on Ibot site. http://www.ibotnow.com/ibot/reimbursement.html Natalie B On 11/27/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: This may be a side topic, but, Does anyone know the requirements for getting help paying for an IBot?? Other than a rich uncle. F
Re: [TMIC] Be Careful When Exercising
Dear Jude, You are not insane. This is how it is. I have had TM or something, heck one doctor says yes, one says maybe you have had it and another looks at me like I am some freak of nature. We unfortunately seem to have acquired an illness/s that very little is know about. Doctors cannot even agree that there is such a thing a TM. One doctor I saw said there is MS, no TM, only MS.If you have what we call TM it is really MS. And, no you cannot sue them or they will avoid you like the plague. And, if you do not get better and you keep trying for more answers they will get annoyed. They do not know the reasons for why we are as we are nor do they most times know what to do for us. There are millions of people out there with strange illnesses and people dying everyday from all kinds of things. Life is precious, but cheap. If we are lucky enough, perhaps sometime an answer will be found in our lifetime. If not, well, we just need to be brave and bear it all. At least we all here have found each other and it helps to know that none of us are alone.We have each other to shout to when we can nolonger bear what is happening. You hang in there. We hear you and you make sense; at least to me. You make a lot of sense. Natalie B On 10/28/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Why is it that I hear over and over from TMIC members, that they have not been told the whole truth about their dx's andmedications, because their doctors have such limited basic medical understandings of certain illnesses? We are either over or under medicated, given the wrong medications and/or dx's, lied to- either directly or by omission- by doctors who are supposed to be educated specialists,not to mention the fact that we are spoken to as if we were children, incapable of understanding the most basic information or in such doctor-ese that we are incapable of understanding simply for the fact that we are not as educated as the medical community. And, if legal recourse is valid and available regarding our chronic mistreatment by doctors and specialists, and we take advantage of it, why are we are then at the mercy of the very people we are suing andblacklisted so that we are neveragain able to receive medical treatment in any state, county, or town in the USA? I feel as though I have been misdiagnosed or at the least, uninformed, about the side effects of being a non-weight-bearing individual. And in answer to my inquiries I receive shrugs of the shoulders from my doctors. Why? Towards what end? What is the deal??? Am I acting like a crazy person? Does anyone else out there feel the same way as I do? Thank you all who respond. What does a person have to do to be told the truth? Can anyone out there help me? Sincerely, Jude
Re: [TMIC]
I was wondering if anyone has found their blood pressure has been higher when taking neurontin. Natalie Boyles On 9/29/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I take 600mg 4 times daily and absolutely know that it works for me.I was taking it every 8 hours and the pain became too intense before it was time to take the next pill so I asked my Neuro if I couldincrease to every 6 hours. He had no problem with 2400mg daily.He said I could go up to 3600mg if needed.Sometimes I need to take my pills as early as five hours apart, but that's when I pushed myself a little too much or when there are big weather changes.I sometimes think it would be nice to be drug free, but it's more important to have a life with less pain.Neurontin doesn't remove all pain, but it dulls it enough to let me function.Don't give up on something that helps! Patti- Michigan Wayne Rabalais [EMAIL PROTECTED] wrote: BlankI have a question about neurotin. I've been on 18mg for over 1 yr.Now I am cutting back and I think I hurt everywhere. The dr. gives me vague answers so I'm asking all of you. Does the neurotin help with the pain?The pain changes from sharp pains in my legs and back to just pain of hurting. I feel like going back up on the neurotin. With some of you that have experience could you help?
Re: [TMIC] Re: Brain stuff or not
LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.He only gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that.Sounds like a scene out of Gone from the Wind. Why Brett,I think she is haven a case of the vapors. This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: You should tread lightly F.In defense of women, is there a difference between men who are in pain and men who are a PAIN? Patti [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: neurotic housewife? Your problem is that you're a female. Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process. I know that doesn't help. Have you tried taking your husband with you to the doctor's?? Good Luck F
Re: [TMIC] p.s. Hard lessons to learn
Medicareof course has its own guidelines as to what they cover and how much they pay.Medicare pays 80% of its ap proved fees. And, AARP supplimental pays 20% of the medicare approved fees. I have not had any problem with having my bills paid, and I have had a lot of tests, and lots of consults. I have been very happy with AARP, and it is for me at least a lot cheaper than Blue/Cross Blue/Shield supplimental was and every bit as good, perhaps better . The AARP plan I have, does not cover presciptions, although AARP has Plan D. That I have through Humana. I do have to pay Medicares annual deductible, but for a bit more I could get an AARP plan that would pay that. I would recommend AARP and Humana. I pay around $119/mon for AARP and around $17/mon for humana. That to me is really good. Of course I pay the medicare monthly premium also, forget what it is, comes off my check each month(is on medicare website). Guess I should say that I came to the conclusion to use AARP and humana after requesting information frommany of the plans I was eligible for. I went to the medicare website and read through all the plans. Then I picked out what I thought were the best and most affordable looking and sent to them for literature. The medicare site has a lot of information, but to get the full details you need to contact the companies. It is a lot of work, so it is best to start as soon as you can. All and all though, there are so many plans, and some states have different ones, so one probably can never be sure if they have the best plan for them. There are just too many out there, and until you actually would try them, I doubt you can really tell how good they all. But, what I have is working. Good luck with your decision. I hope this helps. Natalie Boyles Hugs to you too ;) On 9/17/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Hi Natalie, Just wondering something about the insurance thing, as my husband is retiring next year and I need to look at insurance options for the future. How well does Medicare and AARP cover in combination for your expenses? Can you fill us all in please? Thank you, Barbara A Oops, sending all hugs as well :)
Re: [TMIC] p.s. Hard lessons to learn
Hi Michelle, As you see we really are a nice group, all of us, and I am sorry about the other emails. Probably a bad pain day. When I became disabled I got help from my state government. I do not know if all states are the same, but in Pennsylvania there is a state department that I imagine one could say oversees insurance companies in the state. And, if you call them they will also help advice you about some of your options. I too went with BlueCross/Blue Shield as it seems they must insure anyone. Eventually, I went on disability and so now have Medicare and AARP for my supplemental insurance. I have lesions on my spine and brain, but the doctors cannot decide just what all is going on. Yesterday, I had another test for lymes and am hoping that may be part of my problem. Natalie Boyles On 9/15/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I did a lot of searching for insurance companies after my 29 months of COBRA continuance ran out.My husband is also self employed, our insurance always came through my employment.See if your state has a Blue Cross/Blue Shield program.It was the insurance program that we chose for my husband, however, it does not have RX coverage.I was unable to find anything for him with RX coverage.No one understands the worries that this causes until they face it themselves.His doctor has given him drug samples and I just started buying one of his perscriptions from Canada.We were fully insured for 37 years and now we are asking for help. Patti Michigan [EMAIL PROTECTED] wrote: We also are not currently insurance carriers so this is obviously a HUGE stress for us!!We lost our insurance a year ago due to not having my husbands business organized with proper books and had no records to show the state our income causing us to loose our medial.So now we are in crisis mode and trying to find out if insurance companies cover preexisting conditions.And of course we will have to try and apply for any grievance programs for all the current accruing hospital and doctor bills.And life goes on.;-) Michelle Chavez Bothell, WA
Re: [TMIC] Re: tmic-digest Digest V2006 #185
It is not totally a matter of large writing and being able to see better. It is also a matter of dexterity and going from caps to small letters which using all caps avoids. I figure if this small concession lets another less fortunate TMer enjoy the list, I am for all caps. I guess I have a lot of tolerance. I am even trying my best to be tolerant of your intolerance. I thank you for this chance to practice tolerance toward intolerant people. Natalie Boyles On 9/14/06, Krissy Z [EMAIL PROTECTED] wrote: yeah I was there when they wrote itand it seems most of those old emails agree with me...I was just saying something that's been stated before...you can always make the type bigger rather than use caps tooI don't meant to start a flame war to me, this has been brought up by others in the past on this list. Natalie Boyles [EMAIL PROTECTED] wrote: Hi Krissy, I am sending a link to the list. It helps with telling why some people use caps. http://www.mail-archive.com/search/[EMAIL PROTECTED]query=writing+in+caps The caps are nothing personal. It is easier for some TMer's to type in caps as they have trouble typing due to their health problems. Natalie Boyles On 9/13/06, Krissy Z [EMAIL PROTECTED] wrote: I've been quiet for a while about this, but you think you could cool the Caps lock? In the internt world its considered yelling :( hard to read too alot of times...ty.. [EMAIL PROTECTED] wrote: TO HEY JUDE, I GOT AND SAW YOUR TELLING US YOU WHERE LEAVING AND THAT YOU WHERE COMING BACK , I DID NOT MISS WHAT YOU WROTE. PAM THE COFFEE BEAN!!! WOW WHAT A GREAT EXAMPLE OF HOW LIFE WORKS. I AM VERY STRONG AND I USUALLY CAN HANDLE THINGS. BUT I AM NOT MISS PERFECT I DO GET ANGRY AND WONDER WHY I AND THE REST OF US GOT TM. I AM SO MUCH BETTER OFF THAN OTHERS SO I THINK OF THAT. IT ALWAYS COULD BE WORSE. I WILL TRY TO BE A COFFEE BEAN BUT I KNOW I WILL HAVE DAYS WHEN I AM NOT JUST HUMAN AND GET UPSET BY THINGS THAT HAPPEN TO ME AND LOVED IONES AND FRIENDS, I WILL PASS THIS ON I THINK ITS REALLY A GOOD WAY TO EXPLAIN HOW LIFE WORKS. MANY THANKS PAM How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. Do you Yahoo!?Next-gen email? Have it all with the all-new Yahoo! Mail.
Re: [TMIC] Re: tmic-digest Digest V2006 #185
Hi Krissy, I am sending a link to the list. It helps with telling why some people use caps. http://www.mail-archive.com/search/[EMAIL PROTECTED]query=writing+in+caps The caps are nothing personal. It is easier for some TMer's to type in caps as they have trouble typing due to their health problems. Natalie Boyles On 9/13/06, Krissy Z [EMAIL PROTECTED] wrote: I've been quiet for a while about this, but you think you could cool the Caps lock? In the internt world its considered yelling :( hard to read too alot of times...ty.. [EMAIL PROTECTED] wrote: TO HEY JUDE, I GOT AND SAW YOUR TELLING US YOU WHERE LEAVING AND THAT YOU WHERE COMING BACK , I DID NOT MISS WHAT YOU WROTE. PAM THE COFFEE BEAN!!! WOW WHAT A GREAT EXAMPLE OF HOW LIFE WORKS. I AM VERY STRONG AND I USUALLY CAN HANDLE THINGS. BUT I AM NOT MISS PERFECT I DO GET ANGRY AND WONDER WHY I AND THE REST OF US GOT TM. I AM SO MUCH BETTER OFF THAN OTHERS SO I THINK OF THAT. IT ALWAYS COULD BE WORSE. I WILL TRY TO BE A COFFEE BEAN BUT I KNOW I WILL HAVE DAYS WHEN I AM NOT JUST HUMAN AND GET UPSET BY THINGS THAT HAPPEN TO ME AND LOVED IONES AND FRIENDS, I WILL PASS THIS ON I THINK ITS REALLY A GOOD WAY TO EXPLAIN HOW LIFE WORKS. MANY THANKS PAM How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates.
Re: [TMIC] No Mail
LOL, I did not even notice/know you were gone, . Did I miss some good drama. Darn. You will have to do it again. :) Natalie On 9/11/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: It sounds like many of you are not now nor have not gotten email since Thursday... Does that mean that nobody knows about my big comeback? And I did it with such fanfare! By the way, did anyone get the email I sent about my leaving the List? Did anyone miss me while I was gone? If no one got email then my markedly morose missing mainly went unnoticed by the majority...(there ought to be many more m words in that terrible what-ever-it-is) for it to be entertaining but that's my 2 cents of TM troubles. So, to those of you who got the twenty or so emails, did anything of note (besides my leaving and subsequent returning) happen of which we ought to be appraised? God Loves Us All, Jude
Re: [TMIC] Lipoma/hemangioma of the spine
Hi, I have been off line for a few days. I have a hemangioma at T9, which is where my supposed lesion is(about now, I could have Voodoo Septia and would not know - this is a joke). I have a lot of painat T9off and on and numbness, which sometimes extents farther down my body. But, at my recent visit to MS Hershey Medical Center, Dr Tenser the neurologist I saw never even looked at my new spinal mris, so never got to discuss this with him. He took my brain mris and put a few to the overhead light and said looked ok to him. He did a brief neurological exam, told me I would not need to return. He does not believe there is such a thing as TM, outright said so. He says you either have MS or I guesshe thinks you havenothing. It was a most interesting visit. I now am no better off than before I saw him. Well, he said the things the radiologist found on my brain mri were what they told everyone - possible lupus, or vasulitis or collagen disease, lymes or early demyelinating disease. So, all of you out there, guess we should not bother to pay to have our mri's read, since it is all a bunch of lies. VBG Natalie Boyles On 8/18/06, Jill Z [EMAIL PROTECTED] wrote: Hi Everyone, Have any of you ever heard ofa lipoma or a hemangioma of the spine? One of my friends at work has this and has numbness in her arms, constant painand has memory problems etc. Sounds a little like us but her legs and bladder and bowles etc are fineJust thought I'd see if anyone is familiar with this too... Thanks, Jill in Chicago
Re: [TMIC] Brain lesions in TM???
Hi Sharon, I have more than a few brain lesions and some are where they would be in MS. But, radiologist and 2 neuros say I do not have MS.I would need to have more brain lesions in each of the places where I do now. So, guess there are brain lesions in TM. But, now I have found that my TM diagnosis is not definite. Doctors are not sure, but think that I may have had some espisodes of it, since all symptoms and occurances sound like TM. Most people have lesions on their brain, so I am told and have read on web;and it is not a big deal unless they are in certain places and there are enough of them. Natalie On 8/20/06, Sharon Marsden [EMAIL PROTECTED] wrote: Are there brain lesions in TM? Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/
Re: [TMIC] ACCEPTANCE/MAYBE EVEN GIVING UP
Hi, I had a mylegram also,mine was in 1974, at the Harrisburg Hospital. My spinal cord looked black for yrs. on x-rays. The doctorsdid comment, but they do not say anything anymore. I guess the last time was about 5yrs ago when I had an mri. I do not know if the dye is still there, but guess it is, since it had been there for so long. My health is a wreck, butI cannot seem to find a doctor who knows what to do.TodayI am going to a neuro about the last mris of my spine and brain, as they were not good. I wonder if the dye is part of my problem. I have never heard about what you say. Sorry you have this. How did they figure out that the black dye had hardened? Did they do a test? Natalie Boyles - Original Message - From: Anne Shreve To: TMIC-List@eskimo.com Sent: Monday, July 24, 2006 1:44 AM Subject: [TMIC] ACCEPTANCE/MAYBE EVEN GIVING UP Hi everyone, I've never said the word "give up" or even thought about writing it. But what do you do when you had tm in 75 at the age of 21, was in the hospital for a little over 3 months where the neuro performed a mylogram (I hope I spelled that right) did not draw all the dye out of my spinal column, but went on to completely recover over a period of about a year. I had no residual effects other than a little problem with urination. Now if you look at a MRI or X-Ray of my spine all you can see are black dots, large and small, that have attached themselves over the years to my spine. My neuro said that over the years they had hardened just like "cement". I have no myelin to speak of at all. No surgeon will touch me. The doctor at the first pain management center was going to give me some sort of pain blocking agent that would have been injected into the spinal area, but, you guessed it, his words were, "I would not even think of attempting this procedure because it could easily paralyze you from the neck down". I was diagnosed with MS and sent to another pain management center where I underwent cruelling tests for 3 days. I was then put on a pain medication regement and made comfortable. I'm not paralyzed, however, I cannot walk one step or stand any longer than it takes me to get out of this hospital bed and get into the power chair. After the tm in 75, I worked again, sometimes 3 jobs at a time, because I was lead singer in a country rock band, remarried in 85 and had another child in 87. But near the end of 94, November to be exact, I felt such pain and then extreme weakness in my legs. By 96 I was using a walker and then the next year I remember getting up to walk to the mailbox with the walker. I opened the door and for the first time I looked at the mailbox and was afraid. My legs were already trembling with weakness standing there at the front door. I don't think I have MS, I just think the doc had no other answers. I'm not in my "pity pool" tonight. I'm just telling it like it happened. I love and appreciate each and every one of you, but maybe now you can understand why I don't get it when you all say "had TM since ..". Thanks for letting me share with you all. God Bless, Anne Shreve, North Carolina Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
Re: [TMIC] Questing and Rambling
I was a college student in the early days of my illness. It took me a while, but I learned it is best to learn to laugh at yourself. The comments are quickly said and just as quickly forgotten by the one who says them. They many times do not even realize they could be hurtful. The words can only hurt if you let them. If you do not let the comments bug you, most times the comments become fewer; people get to know you and respect you. - Original Message - From: Terry McLaughlin [EMAIL PROTECTED] To: Kevin Wolfthal [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Saturday, July 22, 2006 1:47 AM Subject: [TMIC] Questing and Rambling I'll preface this by saying that I may be speaking to a limited audience since I am a college student and one of the walking wounded. Have any of you even been in a situation like this: You've had a couple of drinks, but nothing to put you in the intoxicated state, yet when you happen to get up to either get another drink, or go to the restroom, some a-hole makes a comment like woah buddy when you happen to stumble a little bit--even though the stumbling is not at all alcohol related? I've had this happen a few times and it really gets on my nerves that someone has to be a big mouth and make a scene about something they have no clue about. I stumble a little and take some time to get my balance when I stand up after sitting a long time, and I don't need to be reminded by someone about this fact. Drives me up a wall. Just needed to vent, and a bit tipsy at the moment if I might add. Have a great weekend everyone! -Terry
Re: [TMIC] Social Security woes
I had to go to a lawyer to get my ss. They charged 30% of back money owed me. They did all the paper work, contacting doctors and of course writing to everyone and arranging everything. They also were at my hearing and presented my case. Since I did not feel well, it was nice to have the lawyers take over all the work and most of the worry. There are some lawyers who specialize in ss benefits. The interview is free; at least mine was. You might want to check with one of them. Natalie - Original Message - From: Krissy Z To: TM List Sent: Friday, June 30, 2006 11:15 AM Subject: Re: [TMIC] Social Security woes well, i went to the tm.org site and to that resources link and the tips for SS applying...and on those links were a link for tips and when I clicked it it took me to some other site that had tips and tricks and advice. I also signed up there and they called me, so they are going to help me appeal and represent me at the hearing if need be. They said they take 25% of any back pay.Which I guess if I hired a lawyer, would be close to the same if not more.Now I need to try and get a letter drafted, and have my dr sign it. Not quite sure I am good at the wording tho I have a phone interview with them next week, and I am also going to direct them to the TM web site. so what do you all think? In a message dated 6/28/2006 4:03:14 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Well, got my decision back from SS, and they of course have declined it. Krissy I got declined for my medicaid and they said I could work. When this happened a dr wrote a letter for me and sent it in to them. Just before my court appeal I got a letter saying I had been approved. One has to have the right wording for them to read, I got my SSI the first time, this was after I got medicaid. Frank is right about writing the letter up and having the dr read it and make any changes to it. Most drs have not time and some just have no idea how to write a letter so SS knows how disabled you really are. If you can't sit to work you are out of work, I am like that, can't sit for very long and that is my main problem. It has been like this since I got TM in 4-99. I hope you can get things done right so you can get your disability soon. I think once they rule on your case it is quicker once you get the wording right. Take care and I will pray you can get your SS soon. Love to all Sally NCKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.
Re: [TMIC] New Neurologist
All the notes,history, and other things you state have always been required and given at my neuro apptments. I even brought one of them the info about TM from the TM website. In fact, I have noticed doctors at least the specialist I have gone to are very insistent that they have all past reports and I must always fill out pages of history ahead of time for them. Natalie - Original Message - From: [EMAIL PROTECTED] To: Natalie Boyles [EMAIL PROTECTED]; [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.com Sent: Wednesday, June 28, 2006 11:42 AM Subject: Re: [TMIC] New Neurologist But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us? Natalie, Maybe so, also I am very prepared for my encounters with my physicians- partially through the info I receive here from all of you. I make notes- actually have an Agenda for my appointments. I arrive with list of current meds, doses and frequency; have an interval history since last appointment (put together from daily notes of symptoms, problems,etc), have a list of new meds (like Lyrica that I tried after my last appointment), also list of tests that might be done (like liver because of my lipitor). Someone once said that we need to be professional patients and advocates for ourselves. F
Re: [TMIC] New Neurologist
I do/did wonder why some doctors have their patients have yearly mri's or wonder maybe why some patients are able to have access to yearly mri's. I went to Johns Hopkins and my mri's were over yr old, but they did not do new ones. Hope this does not sound too bad. But do you, Frank, think that perhaps as a doctor you may get better treatment than some of us. I did finally get a new mri after 5yrs, but seems it may have come too late. Wonder if this means I should sue. (not a question, just thinking) Some of us may want better care, even ask for it, but it ain't always there. I am at a loss as to how the medical system works. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC List tmic-list@eskimo.com Sent: Monday, June 26, 2006 9:48 AM Subject: Re: [TMIC] New Neurologist Gary, I was afflicted in 2000, and have no further episodes, but continue to get MRIs every year even though there has been no changes in MRI since 2000. they just want to make sure that MS is not creeping in to the picture F
Re: [TMIC] RE: tmic-digest Digest V2006 #80
"Most people have gone to too many drs. with no real results as far as I am concerned. Be interested in hearing your take on this. Take care, Rosalie" I think you may have hit it on the head; same for ms. My first neuro sent me to a rheumatologist, then a rheumatologist sent me to a neuro, then neuro to rheumo, now neuro to better neuro. I just want to know how bad and exactly what is going on with my body. I then plan on going online and treating myself with alternative medicine. In my case, I think that may be all that is left. Please do not follow my example though. I have been slowly getting worse since 1965. And, pt took me from limping to hardly being able to walk, so that did not work either. --- I am good at computer games though. :) Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, June 26, 2006 4:34 PM Subject: Re: [TMIC] RE: tmic-digest Digest V2006 #80 Hi Bernie, I live in Woodbury and am seeing a neuro from North Shore Manhasset Hosp. I was taken ill this past Sept. As of yet not really diagnosed. First thought it was GM, then TM or a spinal cord stroke. This Neuro (Jeffrey Nelson) took on my case after all the neuros in the hosp. threw up there hands. His greatest advice to me was get off your butt and do therapy. There is no cure for any of this, so get out there and work your butt off at therapy. 8 mos. later I am able to get around with a walker but not well. Just now considering a power chair and getting a special minivan. After reading all the back and forth e mails from everyone on this list, I have come to the realization that the drs. really do not know what to do with this.
Re: [TMIC] Swelling in knees and NSAIDS
WOW Thanks so much for sending this. I told my late rheumatologist I had problems with NSAIDS. He said, NO, WAY and basically laughed at me. I hope he has become more educated by now. Natalie - Original Message - From: [EMAIL PROTECTED] To: Grace [EMAIL PROTECTED]; tmic-list-at-eskimo.com tmic-list@eskimo.com Sent: Thursday, June 22, 2006 8:16 PM Subject: [TMIC] Swelling in knees and NSAIDS I read an interesting article in Arthritis Today Magazine (July-August 2006 issue) in my doctor's waiting room that might be connected to the swelling that Grace wrote about and the water retention and painful swelling that I have been experiencing. The following is paraphrased: Q: When I took NSAIDS on two occasions I experienced so much joint swelling that I had to have my knees drained. My rheumatologist said NSAIDS restrict blood flow through my kidneys. Can you explain? A: NSAIDS like aspirin, ibuprofen ( Advil, Motrin), naproxen (Aleve, Naprosyn), can restrict blood flow through the kidneys. However, when this happens you would typically have fluid retention throughout the body; swelling might occur in just the lower extremities, such as the ankles due to gravity. Patients may also experience weight gain and increased blood pressure. I suspect the localized swelling you experienced in your knees was not caused by an effect on your kidneys. Rather, it may have occurred as a result of your immune system reacting to the presence of aspirin and ibuprofen. While some people have a systemic allergic reaction to aspirin and NSAIDS, resulting in hives or difficulty breathing, it is possible for a more localized reaction to occur, which could have been the case for you. Given your history of intolerance, avoid using any of these drugs in the future. My appointment was to beg for help with pain. I quit taking the antidepressant Elavil a month ago due to food cravings and weight gain and wanted to discuss Cymbalta or Effexor for both depression and pain relief. (I'm going to give Effexor a try.) My neuropathy pain increased as the Elavil wore off: then I started taking Aleve along with Neurontin and Baclofen. My doctor agreed with this article. He said NSAIDS can cause swelling in some people and that swelling might be partially responsible for the increase in pain. He suggested that I stay away from NSAIDS and use Tylenol (acetaminophen) instead. I hope stumbling across this article helps me and others with water retention problems. (Heat and humidity move over and share the bench with NSAIDS.)
Re: [TMIC] Question re: Lyrica
Title: AOL Email Hi Jude and listers, Thank you everyone for the info on lyric and the other things that work. Sorry to hear Jude, that you and others also had a bad day. And yes, today is another one, but I dragged myself out and hobbled along with my cane. I must have looked pretty bad, as a clerk in the grocery store came over to me and put me to the head of the line. Here I thought I was doing pretty well, ggg. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-LIST@eskimo.com Sent: Thursday, June 22, 2006 11:53 AM Subject: Re: [TMIC] Question re: Lyrica In a message dated 6/21/2006 2:45:05 PM Central Standard Time, [EMAIL PROTECTED] writes: days like that. Dear Natalie, I'm sorry that you had such a bad day and am praying now that you are feeling in better shape. It's strange, but I have spoken with lots of people who didn't feel well yesterday. I canceled my orthopedic appointment because I was so spasmed that I felt like a straight board. Today is no different... It is a lovely day outside and I am wondering if getting out of this damn bed and spending some time in the chair communing with Mother Nature might do me some good. Take care of you, Jude
Re: [TMIC] Question re: Lyrica
I just figured Lyrica was another drug similar to neurontin. But, from what I have been reading it appears this drug is better tolerated. So, for those taking it, could you let me know if it makes you feel like your drugged and spacey or not? I hate my spasms, but cannot find anything, that I can take all of the time. Neurontin works for me, but when I take it I have no brain. And, I have problems with other drugs or doctor will not prescribe or on an on. Would be nice to find something that would work and still permit me to function, mentally. Yesterday, I spent half the day in bed spasing away until the valium, darvocet and neurontin took effect. Hate days like that. Natalie
Re: [TMIC] What do you take or do for spasticity?
I also take valium for my spasms. I had problems with many other meds and find valium does not effect me adversely. It also helps with the pain; guess it relaxes me. I have been using it for over 5yrs. I only take it when my spasms are really bad though. I like to save it for the worst of times, since it is addicting and can lose its effect if abused. But, it works for me. I gave up trying to feel normal or find the magic drug that would work all the time. So most times have some pain and spasms. I think I got used to having a bit of each. It seems natural now. My one family doctor gave valium to his cancer patients for pain relief. And, isn't that what they give you before an operation sometimes and you feel like you do not have a care in the world? My doctor says I can take 10mg 3x day as needed. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; Sharon Marsden [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Monday, June 12, 2006 10:19 PM Subject: Re: [TMIC] What do you take or do for spasticity? Valium. Hmmm. I only take 30 mg baclofen daily, but think it is causing achey muscles. Not spasticity, not muscle spasms, but my muscles ache in my upper back and left arm. I wonder if valium would work for the muscle spasms without causing the additional achey feeling. Patti [EMAIL PROTECTED] wrote: Sharon, Valium is the only thing ever prescribed to me these past two plus years since the onset of TM. I just take it when I have spasms, which are not as bad as they were the first couple of months. By the way, I am going to see a neuro next week, one I've never seen before, and maybe be prescribed something for fatigue and will be asking, when it is prescribed, for input about it from those on this list. Gary in Michigan - Original Message - From: Sharon Marsden To: tmic-list@eskimo.com Sent: Monday, June 12, 2006 1:59 PM Subject: [TMIC] What do you take or do for spasticity? What do you take, or do, for spasticity? I have been waking at night with my legs stiffened out like logs. I have to consciously work at bending my knees and getting my legs to move. I take 40 to 60 mgs. of Baclofen at bedtime and another 20 during the day. Just wondering about asking for some Valium or something. I'm getting some Valium anyway this week but just for taking before my MRIs on Thursday. I'm claustrophobic but can get through the MRIs with Valium and relaxation techniques. I'm having MRIs of my brain to to check for more lesions and of my c spine to check the area of my neck that was broken in 2002. Just looking for suggestions and ideas here. Sharon Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] question
Hi, I found a good explanation for this here - http://experts.about.com/q/Oncology-General-Cancer-978/White-Matter-Disease.htm Some of us go on to have white matter disease. The white matter contains the nerves that are covered with myelin. The white matter of the brainis white,due to the myelin being white.In TM the problem is with themyelin of the spine.Do some searches with the words, "white matter", "brain lesions" , "brain foci", "demyelinating diseases", "demyelinating diseases spine". I have spent the past couple months doing online searches, so I could better understand my mri results. Some doctors, for some reason, skip a detailed explanation, which is so very unfair to the patient. And, if anyone is like me, they usually do not ask enough questions for "whatever" the reason. You must ask/demand the doctor give you a good and reasonable explanation. Ask to see reports and have them explained. Ignorance is not bliss; don't let anyone tell you differently. Natalie - Original Message - From: Jennifer Mercer To: tmic-list@eskimo.com Sent: Monday, May 29, 2006 12:15 AM Subject: [TMIC] question Hi, all... my dh was diagnosed with TM a little over a year ago... recently he has also been diagnosed with "white matter disease" in his brain. are any of you familiar with this? is it common in TM? I have been researching online, but cannot get any clear answers.thank you for any info you can offer..Jennifer
