[TMIC] Suprapubic catheter

[Jde]

 Hi all,? It's me, back from a long stay in the hospital, nursing home, and 
finally home for TLC.? Because of frequent UTI's resulting in long hospital 
stays, the docs are pushing me for a Suprapubic catheter.? My question is; 
doe's anyone out there have one? I'd like to know as much about it as possible. 
Thanks so much...TIAD Judy Hoops

Practice Random Acts of Kindness

Re: [TMIC] Suprapubic catheter

[Susan Kleinz]

Im sorry, I just don’t have any experience in this.
It is nice to hear from someone out there!
> On Dec 15, 2015, at 11:12 AM, Jde  wrote:
> 
> Hi all,  It's me, back from a long stay in the hospital, nursing home, and 
> finally home for TLC.  Because of frequent UTI's resulting in long hospital 
> stays, the docs are pushing me for a Suprapubic catheter.  My question is; 
> doe's anyone out there have one? I'd like to know as much about it as 
> possible. Thanks so much...TIAD Judy Hoops
> Practice Random Acts of Kindness

Re: [TMIC] Suprapubic catheter

[Nikki Macleod]

Hi Jude,
I have recently had a suprapubic catheter put in on 24th August after constant 
UTIs. My urologist previously had me on prophylactic antibiotics to try and 
reduce the amount of UTIs but these unfortunately did not work. I then decided 
it was time to get my catheter resited suprapubic.  Since I have only had 2 
UTIs but have battled catheter site infections as it has struggled to heal. I 
have to say though it is healing now just my body has took a lot longer. It was 
the best decision for me and I would do it again in the blink of an eye. 
Anymore questions, just ask.
Take care 
Nikki xxx

Sent from my iPad

> On 16 Dec 2015, at 00:52, Susan Kleinz  wrote:
> 
> Im sorry, I just don’t have any experience in this.
> It is nice to hear from someone out there!
>> On Dec 15, 2015, at 11:12 AM, Jde  wrote:
>> 
>> Hi all,  It's me, back from a long stay in the hospital, nursing home, and 
>> finally home for TLC.  Because of frequent UTI's resulting in long hospital 
>> stays, the docs are pushing me for a Suprapubic catheter.  My question is; 
>> doe's anyone out there have one? I'd like to know as much about it as 
>> possible. Thanks so much...TIAD Judy Hoops
>> Practice Random Acts of Kindness
> 

Re: [TMIC] tmic-list group

[Jim Lubin]

the archive is free so it will remain at
http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html



On Sun, Aug 9, 2015 at 7:32 PM, Barbara H. barbara...@gmail.com wrote:

 Sounds good. Will the messages at this address be archived somewhere or
 would that cost something? Every now and then I still search the archives
 for a previous conversation.

 Barbara H.

 Sent from my iPad

 On Aug 9, 2015, at 2:57 PM, Jim Lubin jlu...@makoa.org wrote:

 I started a new email listgroup on googlegroups if anyone wants to
 continue the tmic-list. You can join at

 https://groups.google.com/d/forum/tmic-list

 I think I will discontinue the tmic-list@eskimo.com before the next
 renewal in 5 months.

[TMIC] tmic-list group

[Jim Lubin]

I started a new email listgroup on googlegroups if anyone wants to continue
the tmic-list. You can join at

https://groups.google.com/d/forum/tmic-list

I think I will discontinue the tmic-list@eskimo.com before the next renewal
in 5 months.

Re: [TMIC] tmic-list group

[Barbara H.]

Sounds good. Will the messages at this address be archived somewhere or would 
that cost something? Every now and then I still search the archives for a 
previous conversation.

Barbara H.

Sent from my iPad

 On Aug 9, 2015, at 2:57 PM, Jim Lubin jlu...@makoa.org wrote:
 
 I started a new email listgroup on googlegroups if anyone wants to continue 
 the tmic-list. You can join at 
 
 https://groups.google.com/d/forum/tmic-list
 
 I think I will discontinue the tmic-list@eskimo.com before the next renewal 
 in 5 months.

Re: [TMIC] tmic-list group

[Gillian Clark]

Jan, hurry over, it’s a great place to be and you might be surprised just how 
many of us are there and just how many tm groups there are!

Gilly, member since 2001


From: Jan Nichols 
Sent: Monday, July 06, 2015 10:22 AM
To: Robert Hijar ; Gillian Clark ; tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

If we can get it for free, I am all for it!
Janice


From: Robert Hijar 
Sent: Sunday, July 05, 2015 7:51 PM
To: Gillian Clark ; tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

So, do tell how many of you out there are NOT on Facebook..and why 
not.??? 
As for your privacy, YOU are in charge of what you post on your timeline, and 
on the info sections.
Nobody is asking you to post anything personal you wanna keep to your selves.

So let's all move to Facebook so Jim can save a few bucks.

Bobberino, a member since 1997.


  -Original Message- 
  From: Gillian Clark 
  Sent: Jul 5, 2015 5:10 AM 
  To: tmic-list@eskimo.com 
  Subject: Re: [TMIC] tmic-list group 


  This is the first activity I’ve seen for a long time Jim, I think most of us 
are on facebook, I’m in several groups.

  Whatever happens, I’m so grateful to you for setting this group up. It was my 
saviour in the beginning of this shitty  journey and I’ve made friendships that 
have lasted for almost 14 years.

  It’s free Jim and everyone is there. I’ll follow you wherever you go.

  Love you mate,
  Gilly

  From: Jim Lubin 
  Sent: Sunday, July 05, 2015 4:18 PM
  To: tmic-list@eskimo.com 
  Cc: tmic-list@eskimo.com 
  Subject: Re: [TMIC] tmic-list group

  wondering if it is worth continuing to pay for it. $42 every 6 months. 
  everyone seems to have moved to other groups.

  I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to 
tmic-l...@myelitis.org.


  On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

Hi Jim,
There was a little bit of activity a few months ago between a few of us.  I 
am on Face Book also.  
It was good to see your name today, because I was thinking about you this 
morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
and thank you for its availability.  

Patti - Michigan




On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:


  is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[Jenny]

I’m in.

On there already, under the name Abdu’l-Hanif Al Wasi.

Dalton
 On Jul 6, 2015, at 3:40 AM, Gillian Clark mingalett...@activ8.net.au wrote:
 
 Jan, hurry over, it’s a great place to be and you might be surprised just how 
 many of us are there and just how many tm groups there are!
  
 Gilly, member since 2001
  
  
 From: Jan Nichols mailto:jannic...@gmail.com
 Sent: Monday, July 06, 2015 10:22 AM
 To: Robert Hijar mailto:elbobber...@earthlink.net ; Gillian Clark 
 mailto:mingalett...@activ8.net.au ; tmic-list@eskimo.com 
 mailto:tmic-list@eskimo.com
 Subject: Re: [TMIC] tmic-list group
  
 If we can get it for free, I am all for it!
 Janice
  
  
 From: Robert Hijar mailto:elbobber...@earthlink.net
 Sent: Sunday, July 05, 2015 7:51 PM
 To: Gillian Clark mailto:mingalett...@activ8.net.au ; tmic-list@eskimo.com 
 mailto:tmic-list@eskimo.com
 Subject: Re: [TMIC] tmic-list group
  
 So, do tell how many of you out there are NOT on Facebook..and 
 why not.???
 As for your privacy, YOU are in charge of what you post on your timeline, and 
 on the info sections.
 Nobody is asking you to post anything personal you wanna keep to your selves.
  
 So let's all move to Facebook so Jim can save a few bucks.
  
 Bobberino, a member since 1997.
 
 -Original Message- 
 From: Gillian Clark 
 Sent: Jul 5, 2015 5:10 AM 
 To: tmic-list@eskimo.com 
 Subject: Re: [TMIC] tmic-list group 
 
 This is the first activity I’ve seen for a long time Jim, I think most of us 
 are on facebook, I’m in several groups.
  
 Whatever happens, I’m so grateful to you for setting this group up. It was 
 my saviour in the beginning of this shitty  journey and I’ve made 
 friendships that have lasted for almost 14 years.
  
 It’s free Jim and everyone is there. I’ll follow you wherever you go.
  
 Love you mate,
 Gilly
  
 From: Jim Lubin mailto:jlu...@makoa.org
 Sent: Sunday, July 05, 2015 4:18 PM
 To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com
 Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com
 Subject: Re: [TMIC] tmic-list group
  
 wondering if it is worth continuing to pay for it. $42 every 6 months.
 everyone seems to have moved to other groups.
  
 I might be able to move all the subscribed email addresses to another, free 
 system using google groups, but the address would change to 
 tmic-l...@myelitis.org mailto:tmic-l...@myelitis.org.
  
  
 On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net 
 mailto:pjv1...@chartermi.net wrote:
 Hi Jim,
 There was a little bit of activity a few months ago between a few of us.  I 
 am on Face Book also. 
 It was good to see your name today, because I was thinking about you this 
 morning. I'm glad TMIC was available 11 years ago when I was diagnosed with 
 TM and thank you for its availability. 
  
 Patti - Michigan
 
 
 
 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org 
 mailto:jlu...@makoa.org wrote:
 
 is anyone still using the tmic-list@eskimo.com 
 mailto:tmic-list@eskimo.com?
  
 
  

Re: [TMIC] tmic-list group

[Kim Harrison]

Jim, with your knowledge and with all the TMers on here we can keep the email 
going with the free site. I know of two TMers in GA that do not have Facebook 
and only use email.
just my thoughts
Kim. TM 2004

On Mon, 7/6/15, Jenny suerdlagpu...@gmail.com wrote:

 Subject: Re: [TMIC] tmic-list group
 To: Gillian Clark mingalett...@activ8.net.au
 Cc: tmic-list@eskimo.com
 Date: Monday, July 6, 2015, 7:57 AM
 
 I’m
 in.
 On
 there already, under the name Abdu’l-Hanif Al
 Wasi.
 Dalton
 On Jul 6, 2015, at 3:40 AM, Gillian
 Clark mingalett...@activ8.net.au
 wrote:
 
 #yiv1413596228 #yiv1413596228 -- DIV
 {margin:0px;}#yiv1413596228 
 
 
 
 
 Jan, hurry over, it’s a great
 place to be and you might be surprised just 
 how many of us are there and just how many tm groups there
 are!
  
 Gilly, member since 2001
  
 
 
  
 
 From: Jan Nichols
 
 Sent: Monday, July 06, 2015 10:22
 AM
 To:
 Robert
 Hijar ; Gillian
 Clark ; tmic-list@eskimo.com
 
 Subject: Re: [TMIC] tmic-list
 group
  
 
 
 
 If we can get it for free, I am
 all for it!
 Janice
  
 
 
  
 
 From: Robert
 Hijar 
 Sent: Sunday, July 05, 2015 7:51
 PM
 To:
 Gillian
 Clark ; tmic-list@eskimo.com
 
 Subject: Re: [TMIC] tmic-list
 group
  
 
 So, 
 do tell how many of you out there are NOT on
 Facebook..and why 
 not.??? 
 As for your privacy, YOU are in
 charge of what you post on your timeline, 
 and on the info sections.
 Nobody is asking you to post
 anything personal you wanna keep to your 
 selves.
  
 So let's all move to Facebook
 so Jim can save a few bucks.
  
 Bobberino, a member since
 1997.
 
 
 -Original 
   Message- 
 From:
 Gillian Clark 
 Sent: 
   Jul 5, 2015 5:10 AM 
 To: tmic-list@eskimo.com
 
 Subject: Re: [TMIC] 
   tmic-list group 
 
  
   
   
   This is the first activity
 I’ve seen for a long time Jim, I think most of 
   us are on facebook, I’m in several groups.
    
   Whatever happens, I’m so
 grateful to you for setting this group up. It 
   was my saviour in the beginning of this shitty  journey
 and I’ve made 
   friendships that have lasted for almost 14 years.
    
   It’s free Jim and everyone is
 there. I’ll follow you wherever you 
   go.
    
   Love you mate,
   Gilly
   
   
    
   
   From: Jim Lubin
 
   Sent: Sunday, July 05, 2015 4:18
 PM
   To: tmic-list@eskimo.com
 
   Cc: tmic-list@eskimo.com
 
   Subject: Re: [TMIC] tmic-list
 group
    
   
   wondering if it is
 worth continuing to pay for it. $42 every 6 
   months. 
   everyone seems to have moved to
 other groups.
    
   I might be able to move all the
 subscribed email addresses to another, 
   free system using google groups, but the address would
 change to tmic-l...@myelitis.org.
    
   
    
   On Sat, Jul 4, 2015
 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net
 wrote:
 
   
 
 Hi Jim,
 There was a little bit of
 activity a few months ago between a few of 
 us.  I am on Face Book also.  
 It was good to see your name
 today, because I was thinking about you 
 this morning. I'm glad TMIC was available 11 years
 ago when I was diagnosed 
 with TM and thank you for its availability.  
  
 Patti - Michigan
 
 
 
 
 On Jul 4, 2015, at 1:02 PM, Jim Lubin
 jlu...@makoa.org
 
 wrote:
 
 
 
   
   is anyone still
 using the tmic-list@eskimo.com?
 
 
    
    
 
 

Re: [TMIC] tmic-list group

[Jan Nichols]

Great place to be where  -  on Facebook or the old address (Eskimo)
Jan


From: Gillian Clark 
Sent: Monday, July 06, 2015 2:40 AM
To: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

Jan, hurry over, it’s a great place to be and you might be surprised just how 
many of us are there and just how many tm groups there are!

Gilly, member since 2001


From: Jan Nichols 
Sent: Monday, July 06, 2015 10:22 AM
To: Robert Hijar ; Gillian Clark ; tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

If we can get it for free, I am all for it!
Janice


From: Robert Hijar 
Sent: Sunday, July 05, 2015 7:51 PM
To: Gillian Clark ; tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

So, do tell how many of you out there are NOT on Facebook..and why 
not.??? 
As for your privacy, YOU are in charge of what you post on your timeline, and 
on the info sections.
Nobody is asking you to post anything personal you wanna keep to your selves.

So let's all move to Facebook so Jim can save a few bucks.

Bobberino, a member since 1997.


  -Original Message- 
  From: Gillian Clark 
  Sent: Jul 5, 2015 5:10 AM 
  To: tmic-list@eskimo.com 
  Subject: Re: [TMIC] tmic-list group 


  This is the first activity I’ve seen for a long time Jim, I think most of us 
are on facebook, I’m in several groups.

  Whatever happens, I’m so grateful to you for setting this group up. It was my 
saviour in the beginning of this shitty  journey and I’ve made friendships that 
have lasted for almost 14 years.

  It’s free Jim and everyone is there. I’ll follow you wherever you go.

  Love you mate,
  Gilly

  From: Jim Lubin 
  Sent: Sunday, July 05, 2015 4:18 PM
  To: tmic-list@eskimo.com 
  Cc: tmic-list@eskimo.com 
  Subject: Re: [TMIC] tmic-list group

  wondering if it is worth continuing to pay for it. $42 every 6 months. 
  everyone seems to have moved to other groups.

  I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to 
tmic-l...@myelitis.org.


  On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

Hi Jim,
There was a little bit of activity a few months ago between a few of us.  I 
am on Face Book also.  
It was good to see your name today, because I was thinking about you this 
morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
and thank you for its availability.  

Patti - Michigan




On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:


  is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[amy shultz]

I am on FB too and hardly see much activity here anymore. I wouldn't think its 
worth it, but that my opinion. So glad to hear from you Jim. Hope you are doing 
well and staying healthy!!! But Im not going anywhere, I rarely go to the FR 
pages anymore and infact Ive unjoined a few. Keep us informed!!  Thanks Jim!!








Sent from Windows Mail





From: Jan Nichols
Sent: ‎Monday‎, ‎July‎ ‎6‎, ‎2015 ‎7‎:‎37‎ ‎PM
To: Gillian Clark, Tmic







Great place to be where  -  on Facebook or the old address (Eskimo)

Jan

 



 


From: Gillian Clark 

Sent: Monday, July 06, 2015 2:40 AM

To: tmic-list@eskimo.com 

Subject: Re: [TMIC] tmic-list group

 
 



Jan, hurry over, it’s a great place to be and you might be surprised just how 
many of us are there and just how many tm groups there are!

 

Gilly, member since 2001

 



 


From: Jan Nichols 

Sent: Monday, July 06, 2015 10:22 AM

To: Robert Hijar ; Gillian Clark ; tmic-list@eskimo.com 

Subject: Re: [TMIC] tmic-list group

 
 



If we can get it for free, I am all for it!

Janice

 



 


From: Robert Hijar 

Sent: Sunday, July 05, 2015 7:51 PM

To: Gillian Clark ; tmic-list@eskimo.com 

Subject: Re: [TMIC] tmic-list group

 
 

So, do tell how many of you out there are NOT on Facebook..and why 
not.??? 
As for your privacy, YOU are in charge of what you post on your timeline, and 
on the info sections.

Nobody is asking you to post anything personal you wanna keep to your selves.

 

So let's all move to Facebook so Jim can save a few bucks.

 

Bobberino, a member since 1997.


-Original Message- 
From: Gillian Clark 
Sent: Jul 5, 2015 5:10 AM 
To: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group 




This is the first activity I’ve seen for a long time Jim, I think most of us 
are on facebook, I’m in several groups.

 

Whatever happens, I’m so grateful to you for setting this group up. It was my 
saviour in the beginning of this shitty  journey and I’ve made friendships that 
have lasted for almost 14 years.

 

It’s free Jim and everyone is there. I’ll follow you wherever you go.

 

Love you mate,

Gilly



 


From: Jim Lubin 

Sent: Sunday, July 05, 2015 4:18 PM

To: tmic-list@eskimo.com 

Cc: tmic-list@eskimo.com 

Subject: Re: [TMIC] tmic-list group

 
 

wondering if it is worth continuing to pay for it. $42 every 6 months. 
everyone seems to have moved to other groups.

 

I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to 
tmic-l...@myelitis.org.

 


 

On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:



Hi Jim,

There was a little bit of activity a few months ago between a few of us.  I am 
on Face Book also.  

It was good to see your name today, because I was thinking about you this 
morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
and thank you for its availability.  

 

Patti - Michigan





On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:





is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] tmic-list group

[Jim Lubin]

wondering if it is worth continuing to pay for it. $42 every 6 months.
everyone seems to have moved to other groups.

I might be able to move all the subscribed email addresses to another, free
system using google groups, but the address would change to
tmic-l...@myelitis.org.


On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

 Hi Jim,
 There was a little bit of activity a few months ago between a few of us.
 I am on Face Book also.
 It was good to see your name today, because I was thinking about you this
 morning. I'm glad TMIC was available 11 years ago when I was diagnosed with
 TM and thank you for its availability.

 Patti - Michigan



 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:

 is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] tmic-list group

[Gillian Clark]

This is the first activity I’ve seen for a long time Jim, I think most of us 
are on facebook, I’m in several groups.

Whatever happens, I’m so grateful to you for setting this group up. It was my 
saviour in the beginning of this shitty  journey and I’ve made friendships that 
have lasted for almost 14 years.

It’s free Jim and everyone is there. I’ll follow you wherever you go.

Love you mate,
Gilly

From: Jim Lubin 
Sent: Sunday, July 05, 2015 4:18 PM
To: tmic-list@eskimo.com 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

wondering if it is worth continuing to pay for it. $42 every 6 months. 
everyone seems to have moved to other groups.

I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to 
tmic-l...@myelitis.org.


On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

  Hi Jim,
  There was a little bit of activity a few months ago between a few of us.  I 
am on Face Book also.  
  It was good to see your name today, because I was thinking about you this 
morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
and thank you for its availability.  

  Patti - Michigan




  On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:


is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[suerdlagpunga]

  Specifically,My legs are going. Hips are bad. No possibility for getting new ones because with 7 fused vertebrae from L-2 on up I am forced to do all my bending in the‎ hips.So other treatment options are in order.Could use some advice.Thanks in advance,DaltonSentfrommyBlackBerry10smartphone.From: MalugssuakSent: Sunday, July 5, 2015 7:59 AMTo: Gillian ClarkCc: tmic-list@eskimo.comSubject: Re: [TMIC] tmic-list groupGood to hear from our old friends again.Actually, I could use the activity as I am experiencing new problems and challenges and could use advice.See ya,DaltonOn Jul 5, 2015, at 6:10 AM, Gillian Clark mingalett...@activ8.net.au wrote:



This is the first activity I’ve seen for a long time Jim, I think most of 
us are on facebook, I’m in several groups.

Whatever happens, I’m so grateful to you for setting this group up. It was 
my saviour in the beginning of this shitty journey and I’ve made 
friendships that have lasted for almost 14 years.

It’s free Jim and everyone is there. I’ll follow you wherever you go.

Love you mate,
Gilly




From: Jim Lubin 
Sent: Sunday, July 05, 2015 4:18 PM
To: tmic-list@eskimo.com 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group


wondering if it is worth continuing to pay for it. $42 every 6 
months. 
everyone seems to have moved to other groups.

I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to tmic-l...@myelitis.org.



On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

  
  Hi Jim,
  There was a little bit of activity a few months ago between a few of 
  us. I am on Face Book also. 
  It was good to see your name today, because I was thinking about you this 
  morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
  and thank you for its availability. 
  
  Patti - Michigan
  On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org 
  wrote:
  

is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[Malugssuak]

Good to hear from our old friends again.

Actually, I could use the activity as I am experiencing new problems and 
challenges and could use advice.

See ya,

Dalton

 On Jul 5, 2015, at 6:10 AM, Gillian Clark mingalett...@activ8.net.au wrote:
 
 This is the first activity I’ve seen for a long time Jim, I think most of us 
 are on facebook, I’m in several groups.
  
 Whatever happens, I’m so grateful to you for setting this group up. It was my 
 saviour in the beginning of this shitty  journey and I’ve made friendships 
 that have lasted for almost 14 years.
  
 It’s free Jim and everyone is there. I’ll follow you wherever you go.
  
 Love you mate,
 Gilly
  
 From: Jim Lubin mailto:jlu...@makoa.org
 Sent: Sunday, July 05, 2015 4:18 PM
 To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com
 Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com
 Subject: Re: [TMIC] tmic-list group
  
 wondering if it is worth continuing to pay for it. $42 every 6 months.
 everyone seems to have moved to other groups.
  
 I might be able to move all the subscribed email addresses to another, free 
 system using google groups, but the address would change to 
 tmic-l...@myelitis.org mailto:tmic-l...@myelitis.org.
  
  
 On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net 
 mailto:pjv1...@chartermi.net wrote:
 Hi Jim,
 There was a little bit of activity a few months ago between a few of us.  I 
 am on Face Book also. 
 It was good to see your name today, because I was thinking about you this 
 morning. I'm glad TMIC was available 11 years ago when I was diagnosed with 
 TM and thank you for its availability. 
  
 Patti - Michigan
 
 
 
 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org 
 mailto:jlu...@makoa.org wrote:
 
 is anyone still using the tmic-list@eskimo.com 
 mailto:tmic-list@eskimo.com?
  
 
  

Re: [TMIC] tmic-list group

[Jan Nichols]

Just keep me informed of any address changes.   Always glad to hear from my 
friends.
Janice


From: Malugssuak 
Sent: Sunday, July 05, 2015 6:59 AM
To: Gillian Clark 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group

Good to hear from our old friends again. 

Actually, I could use the activity as I am experiencing new problems and 
challenges and could use advice.

See ya,

Dalton

  On Jul 5, 2015, at 6:10 AM, Gillian Clark mingalett...@activ8.net.au wrote:

  This is the first activity I’ve seen for a long time Jim, I think most of us 
are on facebook, I’m in several groups.

  Whatever happens, I’m so grateful to you for setting this group up. It was my 
saviour in the beginning of this shitty  journey and I’ve made friendships that 
have lasted for almost 14 years.

  It’s free Jim and everyone is there. I’ll follow you wherever you go.

  Love you mate,
  Gilly

  From: Jim Lubin 
  Sent: Sunday, July 05, 2015 4:18 PM
  To: tmic-list@eskimo.com 
  Cc: tmic-list@eskimo.com 
  Subject: Re: [TMIC] tmic-list group

  wondering if it is worth continuing to pay for it. $42 every 6 months. 
  everyone seems to have moved to other groups.

  I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to 
tmic-l...@myelitis.org.


  On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

Hi Jim,
There was a little bit of activity a few months ago between a few of us.  I 
am on Face Book also.  
It was good to see your name today, because I was thinking about you this 
morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
and thank you for its availability.  

Patti - Michigan




On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:


  is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[Robert Hijar]

So, do tell how many of you out there are NOT on Facebook..and why not.???As for your privacy, YOU are in charge of what you post on your timeline, and on the info sections.Nobody is asking you to post anything personal you wanna keep to your selves.So let's all move to Facebook so Jim can save a few bucks.Bobberino, a member since 1997.-Original Message-
From: Gillian Clark <mingalett...@activ8.net.au>
Sent: Jul 5, 2015 5:10 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] tmic-list group





This is the first activity I’ve seen for a long time Jim, I think most of 
us are on facebook, I’m in several groups.

Whatever happens, I’m so grateful to you for setting this group up. It was 
my saviour in the beginning of this shitty journey and I’ve made 
friendships that have lasted for almost 14 years.

It’s free Jim and everyone is there. I’ll follow you wherever you go.

Love you mate,
Gilly




From: Jim Lubin 
Sent: Sunday, July 05, 2015 4:18 PM
To: tmic-list@eskimo.com 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] tmic-list group


wondering if it is worth continuing to pay for it. $42 every 6 
months. 
everyone seems to have moved to other groups.

I might be able to move all the subscribed email addresses to another, free 
system using google groups, but the address would change to tmic-l...@myelitis.org.



On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:

  
  Hi Jim,
  There was a little bit of activity a few months ago between a few of 
  us. I am on Face Book also. 
  It was good to see your name today, because I was thinking about you this 
  morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM 
  and thank you for its availability. 
  
  Patti - Michigan
  On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org 
  wrote:
  

is anyone still using the tmic-list@eskimo.com? 

Re: [TMIC] tmic-list group

[Barbara H.]

That makes sense to use a free service, especially with this one not being 
terribly active. 

Barbara H.

Sent from my iPad

 On Jul 5, 2015, at 2:48 AM, Jim Lubin jlu...@makoa.org wrote:
 
 wondering if it is worth continuing to pay for it. $42 every 6 months.
 everyone seems to have moved to other groups.
 
 I might be able to move all the subscribed email addresses to another, free 
 system using google groups, but the address would change to 
 tmic-l...@myelitis.org.
 
 
 On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote:
 Hi Jim,
 There was a little bit of activity a few months ago between a few of us.  I 
 am on Face Book also.  
 It was good to see your name today, because I was thinking about you this 
 morning. I'm glad TMIC was available 11 years ago when I was diagnosed with 
 TM and thank you for its availability.  
 
 Patti - Michigan
 
 
 
 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:
 
 is anyone still using the tmic-list@eskimo.com?
 

Re: [TMIC] tmic-list group

[Nikki Macleod]

Hi Jim,

Yes I am, although I tend to go on Facebook. Nice to hear from someone again.

Nikki
Durham, UK 


Sent from my iPad

 On 4 Jul 2015, at 18:02, Jim Lubin jlu...@makoa.org wrote:
 
 is anyone still using the tmic-list@eskimo.com?
 

[TMIC] tmic-list group

[Jim Lubin]

is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] tmic-list group

[Robert Hijar]

I haven't used the tmic list for eons, because almost all my TM and MS e-pals are now on facebook.Bobberino-Original Message-
From: Nikki Macleod <nmacleo...@yahoo.co.uk>
Sent: Jul 4, 2015 2:44 PM
To: Jim Lubin <jlu...@makoa.org>
Cc: "tmic-list@eskimo.com" <tmic-list@eskimo.com>
Subject: Re: [TMIC] tmic-list group

Hi Jim,Yes I am, although I tend to go on Facebook. Nice to hear from someone again.NikkiDurham, UKSent from my iPadOn 4 Jul 2015, at 18:02, Jim Lubin jlu...@makoa.org wrote:is anyone still using the tmic-list@eskimo.com?

[TMIC] still using?

[Gary Thomas]

Hi Jim.  In answer to your question, Is anyone still using the TMIC list?   I 
Guess not.  I haven't been getting any email from it and I am partly the reason 
since I haven't been using it myself, as much as I miss it!  A while back a few 
of us were writing but that soon ended.  I think some are communicating on 
Facebook but I have not.
I miss reading information, personal experiences, and also participating with 
questions or comments, but have failed to do so for some time.  Part of my 
reason/excuse is that I am caring for elderly parents which takes part of each 
day.

Well, that is my answer to your question.  There's little or no activity on the 
list but maybe it will get going again. Anyway, Jim,it was nice to hear from 
you.  All  that you have done and are doing for the cause ot TM is appreciated. 

Gary
NIles, MI

Re: [TMIC] tmic-list group

[Barbara H.]

Every now and then there's a few emails here but it's mostly quiet.

Barbara H.

Sent from my iPad

 On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote:
 
 is anyone still using the tmic-list@eskimo.com?
 

Re: [TMIC] Unidentified subject!

[Pat]

Dalton,
I will be having my bone density test soon.  I've had osteopenia since before 
TM and developed jaw bone problems after one of the early osteo drugs given to 
women years ago.  I think that med was removed from the market and I have 
gently refused any of the new meds since.  I'll have to make a decision again 
when my new PCP gets my report.  However, I'll feel more comfortable discussing 
it this time, because I chose a female doctor who may also face the same 
decision as she ages.  Keep us informed and if anything changes I'll post an 
update.

Patti - Michigan



 On Jan 26, 2015, at 9:13 AM, Suerdlagpunga suerdlagpu...@gmail.com wrote:
 
 Friends,
 
 I am doing alright, but have developed new problems related to osteopenia, 
 which is thinning of bones, and one step before osteoporosis.
 
 I have cracked a vertebrae—L2—and this causes discomfort.  But the real 
 problem is my right hip, which just sings a deep pain all up and down my leg. 
  Also, at night I seemed to have developed restless leg syndrome or something 
 of the sort, because it is impossible to get comfortable, and now I don’t 
 sleep more than about 45 minutes at a time.
 
 My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, 
 that I try Prolia, an injection given in the Dr’s office every 6 months, for 
 bone health.  It is very pricy and the copay is stiff.
 
 Has anyone had experience taking any kind of osteo medicine, and what were 
 the side effects?
 
 Thanks,
 Dalton
 Dalton Garis
 Flushing, Queens
 New York, USA
 (718) 838-0437
 
 
 
 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:
 
 Betty, while in hospital after TM hit, I described this awful discomfort I 
 was experiencing as feeling like having bands of steel under my skin.  The 
 neurologist said nothing, just looked at me as though I was deranged!!  Of 
 course, I later learned for myself that it was commonly referred to as 
 banding.
 
 Iris UK
 
 Sent from my iPad
 
 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many 
 speak about banding.  In six years I have had some very slight improvement 
 in other areas but the banding is always with me, intensifying with 
 changes in the weather.  I have accepted that it is a permanent part of my 
 life.  Strangely, it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad
 

Re: [TMIC] Unidentified subject!

[Pat]

Baclofen reduces banding greatly for me.  I remember Rob's posts when he made 
the decision to try the Baclofen pump, the operation, and the dosage changes.  
Rob, I wish it had continued to work for you without having other 
complications.  Continue your group leadership. I know your group has been 
successful.

Patti - Michigan



 On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
 about banding.  In six years I have had some very slight improvement in other 
 areas but the banding is always with me, intensifying with changes in the 
 weather.  I have accepted that it is a permanent part of my life.  Strangely, 
 it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad

Re: [TMIC] Unidentified subject!

[Sam Melville]

Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will 
help as well. Good luck!

Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote:

 Baclofen reduces banding greatly for me.  I remember Rob's posts when he made 
 the decision to try the Baclofen pump, the operation, and the dosage changes. 
  Rob, I wish it had continued to work for you without having other 
 complications.  Continue your group leadership. I know your group has been 
 successful. 

 Patti - Michigan 



  On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: 
  
  
  Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
  about banding.  In six years I have had some very slight improvement in 
  other areas but the banding is always with me, intensifying with changes in 
  the weather.  I have accepted that it is a permanent part of my life.  
  Strangely, it never bothers me when I am in bed. 
  Regards 
  Iris UK 
  
  Sent from my iPad 

Re: [TMIC]

[Pat]

Your son was very active on here (along with many of us).  I couldn't have 
survived those early days without the information, encourage, and friendship I 
received from this Email group.  I thank God for Jim Lubin's work behind the 
scenes for this and the old TM Forum. My Neuro was pleased that I was 
involved with this support group, although, he had never heard of it before I 
told him things I was learning from the group.  Mrs. R, it's nice to hear from 
you.  



 On Jan 26, 2015, at 12:50 PM, wrabal...@gt.rr.com wrabal...@gt.rr.com 
 wrote:
 
   It has been a pleasant surprise to see so many people doing email.. I 
 started following you all 12 years ago when my son, Dennis ,came down with 
 TM. 
 I hope more of the people that were connecting before face book will come 
 back to the original site. Good luck to all of you. My prayers and thoughts 
 are with all of you.
 Rebecca
 

Re: [TMIC] Unidentified subject!

[Janice Nichols]

Okay – I am dealing with something else then.Wonder what causes this 
problem.Told my doc about it and he just said to stretch it out – which I 
do.  Only lasts about a day or so at a time.
Janice


From: Robert Pall 
Sent: Wednesday, January 28, 2015 10:12 AM
To: jannic...@gmail.com ; malugss...@me.com ; nmacleo...@yahoo.co.uk 
Cc: i.whidd...@icloud.com ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Unidentified subject!

Banding to me does not mean painit means  tightness! Like a rubber band 
being pulled to its limit! The baclofen pump is used to reduce banding and 
spasticity.

Rob in NJ


-Original Message-
From: Janice Nichols jannic...@gmail.com
To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk
Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com
Sent: Wed, Jan 28, 2015 10:30 am
Subject: Re: [TMIC] Unidentified subject!


Okay, as long as we are talking about this, when you all talk about banding 
pain, is it like very sharp pain?Every few weeks I have severe sharp 
pain at the top of my rib cage where it is almost hard to breathe.
Is that banding?
Janice


-Original Message- 
From: Dalton Garis
Sent: Wednesday, January 28, 2015 7:03 AM
To: Nikki Macleod
Cc: Iris Whiddett ; tmic-list@eskimo.com
Subject: Re: [TMIC] Unidentified subject!

It is the same thing MS people get.  They call it “the MS Hug”, and for them 
it can be an almost constant annoyance and discomfort, especially when 
trying to fall asleep.

Dalton

 On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

 Hi Iris,

 I also hope it continues.

 Nikki, UK

 Sent from my iPhone

 On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote:

 Well done Nikki for triggering this flurry of activity on TMIC.  I hope 
 it continues.

 Iris

 Sent from my iPad

 On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

 Hi,

 I also suffer from 'banding', the neurologist didn't speak about it but 
 I learnt what it was from other people TM had hit.

 Nikki, UK

 Sent from my iPad

 On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote:

 Betty, while in hospital after TM hit, I described this awful 
 discomfort I was experiencing as feeling like having bands of steel 
 under my skin.  The neurologist said nothing, just looked at me as 
 though I was deranged!!  Of course, I later learned for myself that it 
 was commonly referred to as banding.

 Iris UK

 Sent from my iPad

 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:

 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.

 Sent from my iPad

 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com 
 wrote:


 Hi Rob, sorry to hear that things have been so bad for you.  Not many 
 speak about banding.  In six years I have had some very slight 
 improvement in other areas but the banding is always with me, 
 intensifying with changes in the weather.  I have accepted that it is 
 a permanent part of my life.  Strangely, it never bothers me when I 
 am in bed.
 Regards
 Iris UK

 Sent from my iPad

Re: [TMIC] Unidentified subject!

[Janice Nichols]

Okay, as long as we are talking about this, when you all talk about banding 
pain, is it like very sharp pain?Every few weeks I have severe sharp 
pain at the top of my rib cage where it is almost hard to breathe.

Is that banding?
Janice


-Original Message- 
From: Dalton Garis

Sent: Wednesday, January 28, 2015 7:03 AM
To: Nikki Macleod
Cc: Iris Whiddett ; tmic-list@eskimo.com
Subject: Re: [TMIC] Unidentified subject!

It is the same thing MS people get.  They call it “the MS Hug”, and for them 
it can be an almost constant annoyance and discomfort, especially when 
trying to fall asleep.


Dalton


On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

Hi Iris,

I also hope it continues.

Nikki, UK

Sent from my iPhone


On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote:

Well done Nikki for triggering this flurry of activity on TMIC.  I hope 
it continues.


Iris

Sent from my iPad


On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

Hi,

I also suffer from 'banding', the neurologist didn't speak about it but 
I learnt what it was from other people TM had hit.


Nikki, UK

Sent from my iPad


On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote:

Betty, while in hospital after TM hit, I described this awful 
discomfort I was experiencing as feeling like having bands of steel 
under my skin.  The neurologist said nothing, just looked at me as 
though I was deranged!!  Of course, I later learned for myself that it 
was commonly referred to as banding.


Iris UK

Sent from my iPad


On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:

I, too, have banding. When I asked the neurologist about it, he asked, 
what's that?

I tried to explain it to him.

Sent from my iPad

On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com 
wrote:



Hi Rob, sorry to hear that things have been so bad for you.  Not many 
speak about banding.  In six years I have had some very slight 
improvement in other areas but the banding is always with me, 
intensifying with changes in the weather.  I have accepted that it is 
a permanent part of my life.  Strangely, it never bothers me when I 
am in bed.

Regards
Iris UK

Sent from my iPad

Re: [TMIC] Unidentified subject!

[Robert Pall]

Banding to me does not mean painit means  tightness! Like a rubber band 
being pulled to its limit! The baclofen pump is used to reduce banding and 
spasticity.
 
Rob in NJ
 
 
-Original Message-
From: Janice Nichols jannic...@gmail.com
To: Dalton Garis malugss...@me.com; Nikki Macleod nmacleo...@yahoo.co.uk
Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com
Sent: Wed, Jan 28, 2015 10:30 am
Subject: Re: [TMIC] Unidentified subject!


Okay, as long as we are talking about this, when you all talk about banding 
pain, is it like very sharp pain?Every few weeks I have severe sharp 
pain at the top of my rib cage where it is almost hard to breathe.
Is that banding?
Janice


-Original Message- 
From: Dalton Garis
Sent: Wednesday, January 28, 2015 7:03 AM
To: Nikki Macleod
Cc: Iris Whiddett ; tmic-list@eskimo.com
Subject: Re: [TMIC] Unidentified subject!

It is the same thing MS people get.  They call it “the MS Hug”, and for them 
it can be an almost constant annoyance and discomfort, especially when 
trying to fall asleep.

Dalton

 On Jan 26, 2015, at 3:04 PM, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

 Hi Iris,

 I also hope it continues.

 Nikki, UK

 Sent from my iPhone

 On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote:

 Well done Nikki for triggering this flurry of activity on TMIC.  I hope 
 it continues.

 Iris

 Sent from my iPad

 On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote:

 Hi,

 I also suffer from 'banding', the neurologist didn't speak about it but 
 I learnt what it was from other people TM had hit.

 Nikki, UK

 Sent from my iPad

 On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote:

 Betty, while in hospital after TM hit, I described this awful 
 discomfort I was experiencing as feeling like having bands of steel 
 under my skin.  The neurologist said nothing, just looked at me as 
 though I was deranged!!  Of course, I later learned for myself that it 
 was commonly referred to as banding.

 Iris UK

 Sent from my iPad

 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:

 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.

 Sent from my iPad

 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com 
 wrote:


 Hi Rob, sorry to hear that things have been so bad for you.  Not many 
 speak about banding.  In six years I have had some very slight 
 improvement in other areas but the banding is always with me, 
 intensifying with changes in the weather.  I have accepted that it is 
 a permanent part of my life.  Strangely, it never bothers me when I 
 am in bed.
 Regards
 Iris UK

 Sent from my iPad




 

Re: [TMIC] Unidentified subject!

[Robert Pall]

Everybody,
I had the baclofen Pump inserted in June 2013. Before the pump could be 
inserted I first had to do a trial at the hospital to determine if the pump was 
right for me. My neuro felt that the banding in my legs is caused by spasticity 
and not weakness. The reason I went with the pump is because I could not 
tolerate taking baclofen orally. To cut to the chase .I am considering 
removing the pump because the dosage required to help the banding also has 
caused me to have heart palpitations,nausau and a feeling of bloatedness. In 
addition it has made me lose my appetite causing me to lose 30 lbs. This is 
after my doing all possible due diligence.
Therefore even though the pump has somewhat improved my banding the side 
effects eliminate the positives. 
God I hate TM
Rob in NJ
 
 
-Original Message-
From: Sandra Melville luth...@comcast.net
To: Pat p...@voorheissigns.com
Cc: robthecfo robthe...@aol.com; tmic tmic-list@eskimo.com; Iris Whiddett 
i.whidd...@icloud.com
Sent: Wed, Jan 28, 2015 1:10 pm
Subject: Re: [TMIC] Unidentified subject!



Everybody,


Pat just reminded pointed out that I miss-spoke in my last post.


Please excuse me, Baclophen is a muscle relaxant and anti-spasm med.


 It is NOT an anti-seizure med. 


One should never substitute one for the other without talking to one's doc! 
Dangerous effects could occur!


Everybody, please don't take meds on the information of somebody on-line for 
just this reason-someone may mis-speak!


Pat, I thank you!


































This message is intended for the use of the person(s) to whom it may be 
addressed. It may contain information that is privileged, confidential, or 
otherwise protected from disclosure under applicable law. If you are not the 
intended recipient, any dissemination, distribution, copying, or use of this 
information is prohibited. If you have received this message in error, please 
permanently delete it and immediately notify the sender. Thank you.







 Original message 
From: Sam Melville luth...@comcast.net 
Date:01/28/2015  9:20 AM  (GMT-05:00) 
To: Pat p...@voorheissigns.com 
Cc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett 
i.whidd...@icloud.com 
Subject: Re: [TMIC] Unidentified subject! 


Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will 
help as well. Good luck!

Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote:

 Baclofen reduces banding greatly for me.  I remember Rob's posts when he made 
 the decision to try the Baclofen pump, the operation, and the dosage changes. 
  Rob, I wish it had continued to work for you without having other 
 complications.  Continue your group leadership. I know your group has been 
 successful. 

 Patti - Michigan 



  On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: 
  
  
  Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
  about banding.  In six years I have had some very slight improvement in 
  other areas but the banding is always with me, intensifying with changes in 
  the weather.  I have accepted that it is a permanent part of my life.  
  Strangely, it never bothers me when I am in bed. 
  Regards 
  Iris UK 
  
  Sent from my iPad 

Re: [TMIC] Unidentified subject!

[Sandra Melville]

Everybody,

Pat just reminded pointed out that I miss-spoke in my last post.

Please excuse me, Baclophen is a muscle relaxant and anti-spasm med.

 It is NOT an anti-seizure med. 

One should never substitute one for the other without talking to one's doc! 
Dangerous effects could occur!

Everybody, please don't take meds on the information of somebody on-line for 
just this reason-someone may mis-speak!

Pat, I thank you!

















This message is intended for the use of the person(s) to whom it may be 
addressed. It may contain information that is privileged, confidential, or 
otherwise protected from disclosure under applicable law. If you are not the 
intended recipient, any dissemination, distribution, copying, or use of this 
information is prohibited. If you have received this message in error, please 
permanently delete it and immediately notify the sender. Thank you.





div Original message /divdivFrom: Sam Melville 
luth...@comcast.net /divdivDate:01/28/2015  9:20 AM  (GMT-05:00) 
/divdivTo: Pat p...@voorheissigns.com /divdivCc: robthe...@aol.com, 
tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com 
/divdivSubject: Re: [TMIC] Unidentified subject! /divdiv
/divSome of the neuroleptics (anti-seizure meds), which is what Baclofen is, 
will help as well. Good luck!

Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote:

 Baclofen reduces banding greatly for me.  I remember Rob's posts when he made 
 the decision to try the Baclofen pump, the operation, and the dosage changes. 
  Rob, I wish it had continued to work for you without having other 
 complications.  Continue your group leadership. I know your group has been 
 successful. 

 Patti - Michigan 



  On Jan 25, 2015, at 5:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: 
  
  
  Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
  about banding.  In six years I have had some very slight improvement in 
  other areas but the banding is always with me, intensifying with changes in 
  the weather.  I have accepted that it is a permanent part of my life.  
  Strangely, it never bothers me when I am in bed. 
  Regards 
  Iris UK 
  
  Sent from my iPad 

[TMIC] Regarding (Jude) Judy Hoops

[Pat]

I saw that someone inquired about Jude.  I know she was recently on Face Book 
for the first time in a long time.  I received a short message from her husband 
when I commented on a post.  I lost track of Jude for almost a year, but I know 
she has been thru additional illness. 

Patti - Michigan

Re: [TMIC] Unidentified subject!

[Suerdlagpunga]

Friends,

I am doing alright, but have developed new problems related to osteopenia, 
which is thinning of bones, and one step before osteoporosis.

I have cracked a vertebrae—L2—and this causes discomfort.  But the real problem 
is my right hip, which just sings a deep pain all up and down my leg.  Also, at 
night I seemed to have developed restless leg syndrome or something of the 
sort, because it is impossible to get comfortable, and now I don’t sleep more 
than about 45 minutes at a time.

My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, 
that I try Prolia, an injection given in the Dr’s office every 6 months, for 
bone health.  It is very pricy and the copay is stiff.

Has anyone had experience taking any kind of osteo medicine, and what were the 
side effects?

Thanks,
Dalton
Dalton Garis
Flushing, Queens
New York, USA
(718) 838-0437



On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:

 Betty, while in hospital after TM hit, I described this awful discomfort I 
 was experiencing as feeling like having bands of steel under my skin.  The 
 neurologist said nothing, just looked at me as though I was deranged!!  Of 
 course, I later learned for myself that it was commonly referred to as 
 banding.
 
 Iris UK
 
 Sent from my iPad
 
 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
 about banding.  In six years I have had some very slight improvement in 
 other areas but the banding is always with me, intensifying with changes in 
 the weather.  I have accepted that it is a permanent part of my life.  
 Strangely, it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad
 

Re: [TMIC] Unidentified subject!

[Nikki Macleod]

Hi Sam, 

That information in very useful, thanks.

Nikki, UK 

Sent from my iPad

 On 26 Jan 2015, at 14:47, luth...@comcast.net wrote:
 
 Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some 
 of you may remember me- Sam from Boston.
 
 Remember that MS and TM are cousins, and on the same demyelinization 
 spectrum. TM can be thought of as being MS of the spinal cord. If you have 
 a symptom that you can't explain or understand, or that you need to know 
 about, look up the symptoms and occurrences of MS and you likely will find it 
 there. The banding, the fatigue, the depression, the heat and cold 
 sensitivities, are all common to MS and are discussed in articles about MS. 
 Medications that are used to treat MS are also frequently used to treat 
 Transfers Myelitis.
 
 You also will find resources and explanations here: Google and join the 
 Transverse Myelitis Association:
 
 http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923
 
 Here you will find tremendous resources and support for you, and professional 
 information for your physician. 
 
 Maintain your hope! If you look for them, you will find that there are always 
 positive things in your life, starting with the people on this mail string, 
 who are here 24hrs per day to support you.
 
 Sam from Boston
 
 
 -Original Message-
 
 From: suerdlagpu...@gmail.com
 To: i.whidd...@icloud.com
 Cc: tmic-l...@eskimo.net,vasso...@gmail.com
 Sent: 2015-01-26 09:17:03 GMT
 Subject: Re: [TMIC] Unidentified subject!
 
 Friends,
 
 I am doing alright, but have developed new problems related to osteopenia, 
 which is thinning of bones, and one step before osteoporosis.
 
 I have cracked a vertebrae—L2—and this causes discomfort.  But the real 
 problem is my right hip, which just sings a deep pain all up and down my leg. 
  Also, at night I seemed to have developed restless leg syndrome or something 
 of the sort, because it is impossible to get comfortable, and now I don’t 
 sleep more than about 45 minutes at a time.
 
 My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, 
 that I try Prolia, an injection given in the Dr’s office every 6 months, for 
 bone health.  It is very pricy and the copay is stiff.
 
 Has anyone had experience taking any kind of osteo medicine, and what were 
 the side effects?
 
 Thanks,
 Dalton
 Dalton Garis
 Flushing, Queens
 New York, USA
 (718) 838-0437
 
 
 
 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:
 
 Betty, while in hospital after TM hit, I described this awful discomfort I 
 was experiencing as feeling like having bands of steel under my skin.  The 
 neurologist said nothing, just looked at me as though I was deranged!!  Of 
 course, I later learned for myself that it was commonly referred to as 
 banding.
 
 Iris UK
 
 Sent from my iPad
 
 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
 about banding.  In six years I have had some very slight improvement in other 
 areas but the banding is always with me, intensifying with changes in the 
 weather.  I have accepted that it is a permanent part of my life.  Strangely, 
 it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad
 
 
 
 

Re: [TMIC] Unidentified subject!

[Nikki Macleod]

Hi,

Dalton sorry to hear that you are in so much pain. Personally, I the only 
experience of osteo meds is being prescribed extra CalciChew for my bones and 
Lidacane patches for the pain. Hope you get sorted soon.

Nikki, UK 

Sent from my iPad

 On 26 Jan 2015, at 14:47, luth...@comcast.net wrote:
 
 Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some 
 of you may remember me- Sam from Boston.
 
 Remember that MS and TM are cousins, and on the same demyelinization 
 spectrum. TM can be thought of as being MS of the spinal cord. If you have 
 a symptom that you can't explain or understand, or that you need to know 
 about, look up the symptoms and occurrences of MS and you likely will find it 
 there. The banding, the fatigue, the depression, the heat and cold 
 sensitivities, are all common to MS and are discussed in articles about MS. 
 Medications that are used to treat MS are also frequently used to treat 
 Transfers Myelitis.
 
 You also will find resources and explanations here: Google and join the 
 Transverse Myelitis Association:
 
 http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2Fdm_redirected=true#2923
 
 Here you will find tremendous resources and support for you, and professional 
 information for your physician. 
 
 Maintain your hope! If you look for them, you will find that there are always 
 positive things in your life, starting with the people on this mail string, 
 who are here 24hrs per day to support you.
 
 Sam from Boston
 
 
 -Original Message-
 
 From: suerdlagpu...@gmail.com
 To: i.whidd...@icloud.com
 Cc: tmic-l...@eskimo.net,vasso...@gmail.com
 Sent: 2015-01-26 09:17:03 GMT
 Subject: Re: [TMIC] Unidentified subject!
 
 Friends,
 
 I am doing alright, but have developed new problems related to osteopenia, 
 which is thinning of bones, and one step before osteoporosis.
 
 I have cracked a vertebrae—L2—and this causes discomfort.  But the real 
 problem is my right hip, which just sings a deep pain all up and down my leg. 
  Also, at night I seemed to have developed restless leg syndrome or something 
 of the sort, because it is impossible to get comfortable, and now I don’t 
 sleep more than about 45 minutes at a time.
 
 My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, 
 that I try Prolia, an injection given in the Dr’s office every 6 months, for 
 bone health.  It is very pricy and the copay is stiff.
 
 Has anyone had experience taking any kind of osteo medicine, and what were 
 the side effects?
 
 Thanks,
 Dalton
 Dalton Garis
 Flushing, Queens
 New York, USA
 (718) 838-0437
 
 
 
 On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:
 
 Betty, while in hospital after TM hit, I described this awful discomfort I 
 was experiencing as feeling like having bands of steel under my skin.  The 
 neurologist said nothing, just looked at me as though I was deranged!!  Of 
 course, I later learned for myself that it was commonly referred to as 
 banding.
 
 Iris UK
 
 Sent from my iPad
 
 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
 about banding.  In six years I have had some very slight improvement in other 
 areas but the banding is always with me, intensifying with changes in the 
 weather.  I have accepted that it is a permanent part of my life.  Strangely, 
 it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad
 
 
 
 

Re: [TMIC] Unidentified subject!

[luthyen]

Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- "Sam from Boston."Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being "MS of the spinal cord." If you have a symptom that you can't explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here:  Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpu...@gmail.comTo: i.whidd...@icloud.comCc: tmic-l...@eskimo.net,vasso...@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebraeL2and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my leg. Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I dont sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Drs office every 6 months, for bone health. It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton
Dalton GarisFlushing, QueensNew York, USA(718) 838-0437


On Jan 26, 2015, at 2:34, Iris Whiddett i.whidd...@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad

Re: [TMIC] Unidentified subject!

[Nikki Macleod]

Hi Iris,

I also hope it continues.

Nikki, UK

Sent from my iPhone

 On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote:
 
 Well done Nikki for triggering this flurry of activity on TMIC.  I hope it 
 continues.
 
 Iris
 
 Sent from my iPad
 
 On 26 Jan 2015, at 07:56, Nikki Macleod nmacleo...@yahoo.co.uk wrote:
 
 Hi,
 
 I also suffer from 'banding', the neurologist didn't speak about it but I 
 learnt what it was from other people TM had hit.
 
 Nikki, UK 
 
 Sent from my iPad
 
 On 26 Jan 2015, at 07:34, Iris Whiddett i.whidd...@icloud.com wrote:
 
 Betty, while in hospital after TM hit, I described this awful discomfort I 
 was experiencing as feeling like having bands of steel under my skin.  The 
 neurologist said nothing, just looked at me as though I was deranged!!  Of 
 course, I later learned for myself that it was commonly referred to as 
 banding.
 
 Iris UK
 
 Sent from my iPad
 
 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many 
 speak about banding.  In six years I have had some very slight 
 improvement in other areas but the banding is always with me, 
 intensifying with changes in the weather.  I have accepted that it is a 
 permanent part of my life.  Strangely, it never bothers me when I am in 
 bed.
 Regards
 Iris UK
 
 Sent from my iPad
 

[TMIC]

[wrabalais]

   It has been a pleasant surprise to see so many people doing email.. I 
started following you all 12 years ago when my son, Dennis ,came down with TM. 
I hope more of the people that were connecting before face book will come back 
to the original site. Good luck to all of you. My prayers and thoughts are with 
all of you.
Rebecca

Re: [TMIC] Unidentified subject!

[Sam Melville]

Iris,
I found that there are several different FB pages, one is "people living with transverse myelitis" that seemed to be very helpful. You might look at that one ;-) Glad you are finding support!
Cheers!
Sam
On Jan 26, 2015 11:33 AM, Iris Whiddett i.whidd...@icloud.com wrote:Thanks Sam, you are so right about this Group.  Ive tried facebook but I dont feel it compares to the help and support and useful information always to be found here.  Iris UKSent from my iPadOn 26 Jan 2015, at 14:47, luthyen@comcast.net wrote:Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- Sam from Boston.Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being MS of the spinal cord. If you have a symptom that you cant explain or understand, or that you need to know about, look up the symptoms and occurrences of MS and you likely will find it there. The banding, the fatigue, the depression, the heat and cold sensitivities, are all common to MS and are discussed in articles about MS. Medications that are used to treat MS are also frequently used to treat Transfers Myelitis. You also will find resources and explanations here:  Google and join the Transverse Myelitis Association:http://m.myelitis.org/?url="">Here you will find tremendous resources and support for you, and professional information for your physician. Maintain your hope! If you look for them, you will find that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpunga@gmail.comTo: i.whiddett@icloud.comCc: TMIC-LIST@eskimo.net,vasso9.s@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vertebrae—L2—and this causes discomfort.  But the real problem is my right hip, which just sings a deep pain all up and down my leg.  Also, at night I seemed to have developed restless leg syndrome or something of the sort, because it is impossible to get comfortable, and now I don’t sleep more than about 45 minutes at a time.My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, that I try Prolia, an injection given in the Dr’s office every 6 months, for bone health.  It is very pricy and the copay is stiff.Has anyone had experience taking any kind of osteo medicine, and what were the side effects?Thanks,Dalton
Dalton GarisFlushing, QueensNew York, USA(718) 838-0437


On Jan 26, 2015, at 2:34, Iris Whiddett i.whiddett@icloud.com wrote:Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin.  The neurologist said nothing, just looked at me as though I was deranged!!  Of course, I later learned for myself that it was commonly referred to as banding.Iris UKSent from my iPadOn 26 Jan 2015, at 00:25, Betty Shaffer vasso9.s@gmail.com wrote:I, too, have banding. When I asked the neurologist about it, he asked, whats that?I tried to explain it to him.Sent from my iPadOn Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whiddett@icloud.com wrote:Hi Rob, sorry to hear that things have been so bad for you.  Not many speak about banding.  In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather.  I have accepted that it is a permanent part of my life.  Strangely, it never bothers me when I am in bed.RegardsIris UKSent from my iPad

Re: [TMIC] Unidentified subject!

[Janice Nichols]

I have never really been bothered by banding  -  sometimes I can feel it, 
but really no problem. My worst problem is spondolosis/arthritis down 
low in my back that is aggravated by TM.   Also, the never
going down the backs of my calves.   That can knock me to the floor when it 
hits. Otherwise, I'm pretty good.

Janice


-Original Message- 
From: Iris Whiddett

Sent: Sunday, January 25, 2015 4:10 PM
To: robthe...@aol.com
Cc: tmic
Subject: [TMIC] Unidentified subject!


Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
about banding.  In six years I have had some very slight improvement in 
other areas but the banding is always with me, intensifying with changes in 
the weather.  I have accepted that it is a permanent part of my life. 
Strangely, it never bothers me when I am in bed.

Regards
Iris UK

Sent from my iPad 

Re: [TMIC] Unidentified subject!

[Iris Whiddett]

Betty, while in hospital after TM hit, I described this awful discomfort I was 
experiencing as feeling like having bands of steel under my skin.  The 
neurologist said nothing, just looked at me as though I was deranged!!  Of 
course, I later learned for myself that it was commonly referred to as banding.

Iris UK

Sent from my iPad

 On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote:
 
 I, too, have banding. When I asked the neurologist about it, he asked, 
 what's that?
 I tried to explain it to him.
 
 Sent from my iPad
 
 On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 
 Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
 about banding.  In six years I have had some very slight improvement in 
 other areas but the banding is always with me, intensifying with changes in 
 the weather.  I have accepted that it is a permanent part of my life.  
 Strangely, it never bothers me when I am in bed.
 Regards
 Iris UK
 
 Sent from my iPad

Re: [TMIC] Hey everybody,

[Janice Nichols]

Glad to hear from you.   Hope you keep us up with how you are doing and good 
luck trying to improve your situation.
Janice


From: Robert Pall 
Sent: Sunday, January 25, 2015 3:13 PM
To: jannic...@gmail.com ; malugss...@gmail.com 
Cc: skle...@cox.net ; mic...@hotmail.com ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Hey everybody,

Hi everyone. It has been 17+ years for me and at the beginning you were my only 
support. 
As for me things have been lousy for almost 2 years (especially lousyit 
is always plain lousy) coincidentally this is the period I have had the 
Baclofen Pump. I am not saying that it has not helped my legs (banding) 
somewhathowever either the pump or the combo of it with m7y other meds have 
been making me feel lousy. I am lowering my dosage from the pump to see if that 
helps and if so I will have the pump removed and go on as I have for the 
previous 15 years.
I am the support group leader for NJ and we try to get together 3 times a 
year. It is nice to see my old friends online again...I am either to old or to 
computer illiterate to use facebook. I am really glad the group here is getting 
together...I have missed it!

Rob in NJ 



-Original Message-
From: Janice Nichols jannic...@gmail.com
To: Dalton Garis malugss...@gmail.com
Cc: Susan Kleinz skle...@cox.net; amy shultz mic...@hotmail.com; Tmic 
tmic-list@eskimo.com
Sent: Sun, Jan 25, 2015 3:21 pm
Subject: Re: [TMIC] Hey everybody,


Dalton, maybe TM later on in life?
Janice


From: Dalton Garis 
Sent: Friday, January 23, 2015 1:51 PM
To: Janice Nichols 
Cc: Susan Kleinz ; amy shultz ; Tmic 
Subject: Re: [TMIC] Hey everybody,

Incredible story! 

I still remember Love Canal and all that.

Behind our house and across the street was the rail yard and a great big pile 
of coal that was used for the trains, but I used it for play.  It was great fun 
climbing up to the top of the pile then jump off as far as I could go, hit near 
the bottom of the pile and slide around in that slippery coal.  My mother would 
throw me in the bath and there would be a black ring around it about 8” deep.

Trouble is, that there is a lot of mercury in coal, which we also used to heat 
our home.  We had a large room in the cellar with a window for trucks to send 
coal into it down a chute.

I think all that play in the coal especially exposed me to too much mercury, 
and that it gave me all sorts of problems growing up, including reading 
difficulties, concentration, sleep, growth difficulties maybe, and now TM.

d.

Dalton Garis
Flushing, Queens
New York, USA
(718) 838-0437

On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote:


  WOW!!What a story.   So glad you are doing so much better, but how long 
will you need to keep taking the treatments?Surely you are about through.   
So sorry you have had to go through this, but you were so smart to come up with 
this testing. Keep up with the good improvement.
  Janice


  From: Susan Kleinz 
  Sent: Friday, January 23, 2015 9:30 AM
  To: Janice Nichols 
  Cc: amy shultz ; Tmic 
  Subject: Re: [TMIC] Hey everybody,

  Hello ™ friends: 

  This is Susan Kleinz, Phx, AZ.  This group was extremely important to me 5 
years ago when I relapsed and spent my time in bed or the lazy boy outside 
(tacky, I know).  After trying everything I could find to help me get better 
(acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) 
I decided to have a food allergy test and toxic heavy metals test.  I was only 
allergic to bananas, yogurt and whey.  No big deal.  However my heavy metals 
test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from 
MRI'S)  After my first set of chelation, which is an IV solution that pulls the 
metals from your body, I felt
  bizarre results.  I could do so much more!  I can walk so much better, no 
longer in bed, worked for 7 months straight in my father's store, and basically 
feel like I have so much of my life back.  I am now on my 31st treatment.  Most 
people only needs 6.  I have a heavy body burden of toxic metals.  Our family 
home was built on the Motorola dumping ground.  20 years of toxic wastes dumped 
into the ground and into our water.  Our whole neighborhood is sick with 
cancer, immune issues, ms…etc.)  It is expensive to do this treatment… $155 
per.  My husband has wiped out our savings to help me get better.  I feel that 
the reason I contracted ™ is because of this poisoning.  I used to lay in bed 
and feel I was being poisoned.  Every day I felt like this.  I even dreamed 
that my husband was poisoning me… I passed these metals on to two of my three 
children who were able to detox with 6 treatments only.

  This treatment may be available soon under insurance, but mine does not cover 
NMD -Naturepaths (sp?).
  I even feel and look more like myself!

  I am always thinking about all of you.

  Susan  
  On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote

[TMIC] Unidentified subject!

[Iris Whiddett]

Hi Rob, sorry to hear that things have been so bad for you.  Not many speak 
about banding.  In six years I have had some very slight improvement in other 
areas but the banding is always with me, intensifying with changes in the 
weather.  I have accepted that it is a permanent part of my life.  Strangely, 
it never bothers me when I am in bed.
Regards
Iris UK

Sent from my iPad

Re: [TMIC] Hey everybody,

[Janice Nichols]

Dalton, maybe TM later on in life?
Janice


From: Dalton Garis 
Sent: Friday, January 23, 2015 1:51 PM
To: Janice Nichols 
Cc: Susan Kleinz ; amy shultz ; Tmic 
Subject: Re: [TMIC] Hey everybody,

Incredible story! 

I still remember Love Canal and all that.

Behind our house and across the street was the rail yard and a great big pile 
of coal that was used for the trains, but I used it for play.  It was great fun 
climbing up to the top of the pile then jump off as far as I could go, hit near 
the bottom of the pile and slide around in that slippery coal.  My mother would 
throw me in the bath and there would be a black ring around it about 8” deep.

Trouble is, that there is a lot of mercury in coal, which we also used to heat 
our home.  We had a large room in the cellar with a window for trucks to send 
coal into it down a chute.

I think all that play in the coal especially exposed me to too much mercury, 
and that it gave me all sorts of problems growing up, including reading 
difficulties, concentration, sleep, growth difficulties maybe, and now TM.

d.

Dalton Garis
Flushing, Queens
New York, USA
(718) 838-0437

On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote:


  WOW!!What a story.   So glad you are doing so much better, but how long 
will you need to keep taking the treatments?Surely you are about through.   
So sorry you have had to go through this, but you were so smart to come up with 
this testing. Keep up with the good improvement.
  Janice


  From: Susan Kleinz 
  Sent: Friday, January 23, 2015 9:30 AM
  To: Janice Nichols 
  Cc: amy shultz ; Tmic 
  Subject: Re: [TMIC] Hey everybody,

  Hello ™ friends: 

  This is Susan Kleinz, Phx, AZ.  This group was extremely important to me 5 
years ago when I relapsed and spent my time in bed or the lazy boy outside 
(tacky, I know).  After trying everything I could find to help me get better 
(acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) 
I decided to have a food allergy test and toxic heavy metals test.  I was only 
allergic to bananas, yogurt and whey.  No big deal.  However my heavy metals 
test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from 
MRI'S)  After my first set of chelation, which is an IV solution that pulls the 
metals from your body, I felt
  bizarre results.  I could do so much more!  I can walk so much better, no 
longer in bed, worked for 7 months straight in my father's store, and basically 
feel like I have so much of my life back.  I am now on my 31st treatment.  Most 
people only needs 6.  I have a heavy body burden of toxic metals.  Our family 
home was built on the Motorola dumping ground.  20 years of toxic wastes dumped 
into the ground and into our water.  Our whole neighborhood is sick with 
cancer, immune issues, ms…etc.)  It is expensive to do this treatment… $155 
per.  My husband has wiped out our savings to help me get better.  I feel that 
the reason I contracted ™ is because of this poisoning.  I used to lay in bed 
and feel I was being poisoned.  Every day I felt like this.  I even dreamed 
that my husband was poisoning me… I passed these metals on to two of my three 
children who were able to detox with 6 treatments only.

  This treatment may be available soon under insurance, but mine does not cover 
NMD -Naturepaths (sp?).
  I even feel and look more like myself!

  I am always thinking about all of you.

  Susan  
  On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote:


Amy
Glad to hear you are doing much better. Is what you had similar to what 
I had in the hospital where I had a UTI infection, but, of course, I didn’t 
feel it.   Then it went systemic and
I nearly died too.No fun.
Janice


From: amy shultz 
Sent: Thursday, January 22, 2015 5:34 AM
To: Tmic 
Subject: Fwd: [TMIC] Hey everybody,

I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't 
seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad 
summer up till Oct 31st when I almost died. The doctors said my body took a big 
hit.  I had severe sepsis and septic shock. Since my hair is falling out really 
bad and nails are splitting and peeling and breaking. Real fragile. I even take 
6000mcg of Biotin a day and have for a couple years. So IDK what's going on. 

Amy Shultz 
Ohio


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: suerdlagpu...@gmail.com 
Date:01/21/2015 9:47 AM (GMT-05:00) 
To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net 
Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki 
Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com 
Subject: Re: [TMIC] Hey everybody, 


Good story. Very instructive. 

Thanks

Dalton

Sent from my BlackBerry 10 smartphone.
  Original Message  
From: Pat
Sent: Wednesday, January 21

Re: [TMIC] Hey everybody,

[Iris Whiddett]

Hello Susan

Thank you for sharing your interesting and really quite shocking story.  It 
would be good to think this could not happen in these more enlightened times 
but the cynic in me doubts this, especially with building land at such a 
premium here in the UK.   I'm so pleased you have made such an improvement and 
all down to your own persistence!  Thank goodness you had those tests, for the 
sake of your children also.
Very best wishes for the future.
Iris UK

Sent from my iPad

 On 23 Jan 2015, at 15:30, Susan Kleinz skle...@cox.net wrote:
 
 Hello ™ friends:
 
 This is Susan Kleinz, Phx, AZ.  This group was extremely important to me 5 
 years ago when I relapsed and spent my time in bed or the lazy boy outside 
 (tacky, I know).  After trying everything I could find to help me get better 
 (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt 
 therapy…) I decided to have a food allergy test and toxic heavy metals test.  
 I was only allergic to bananas, yogurt and whey.  No big deal.  However my 
 heavy metals test showed me in dangerous levels of lead, mercury, cadmium, 
 gadolinium(from MRI'S)  After my first set of chelation, which is an IV 
 solution that pulls the metals from your body, I felt
 bizarre results.  I could do so much more!  I can walk so much better, no 
 longer in bed, worked for 7 months straight in my father's store, and 
 basically feel like I have so much of my life back.  I am now on my 31st 
 treatment.  Most people only needs 6.  I have a heavy body burden of toxic 
 metals.  Our family home was built on the Motorola dumping ground.  20 years 
 of toxic wastes dumped into the ground and into our water.  Our whole 
 neighborhood is sick with cancer, immune issues, ms…etc.)  It is expensive to 
 do this treatment… $155 per.  My husband has wiped out our savings to help me 
 get better.  I feel that the reason I contracted ™ is because of this 
 poisoning.  I used to lay in bed and feel I was being poisoned.  Every day I 
 felt like this.  I even dreamed that my husband was poisoning me… I passed 
 these metals on to two of my three children who were able to detox with 6 
 treatments only.
 
 This treatment may be available soon under insurance, but mine does not cover 
 NMD -Naturepaths (sp?).
 I even feel and look more like myself!
 
 I am always thinking about all of you.
 
 Susan  
 On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote:
 
 Amy
 Glad to hear you are doing much better. Is what you had similar to what 
 I had in the hospital where I had a UTI infection, but, of course, I didn’t 
 feel it.   Then it went systemic and
 I nearly died too.No fun.
 Janice
  
  
 From: amy shultz
 Sent: Thursday, January 22, 2015 5:34 AM
 To: Tmic
 Subject: Fwd: [TMIC] Hey everybody,
  
 I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't seen 
 her anywhere. Or heard from her. This is Amy Shultz. I had a really bad 
 summer up till Oct 31st when I almost died. The doctors said my body took a 
 big hit.  I had severe sepsis and septic shock. Since my hair is falling out 
 really bad and nails are splitting and peeling and breaking. Real fragile. I 
 even take 6000mcg of Biotin a day and have for a couple years. So IDK what's 
 going on.
  
 Amy Shultz
 Ohio
  
  
 Sent from my Verizon Wireless 4G LTE smartphone
 
 
  Original message 
 From: suerdlagpu...@gmail.com 
 Date:01/21/2015 9:47 AM (GMT-05:00) 
 To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net 
 Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki 
 Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com 
 Subject: Re: [TMIC] Hey everybody, 
 
 Good story. Very instructive. 
 
 Thanks
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
   Original Message  
 From: Pat
 Sent: Wednesday, January 21, 2015 9:23 AM
 To: Susan Kleinz
 Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 I'm here and on Face Book. I haven't had any changes in my TM, but I do have 
 an interesting story about a suspected relapse. 
 
 In December, 2013, I thought I had a TM relapse or a stroke and went to ER 
 walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs 
 showed nothing new had happened and I recovered fine. My doctors and I were 
 stumped. 
 
 In December 2014, I woke up one morning feeling my TM normal with the 
 start of a cold. I went thru my routine of meds, reading, and coffee. I had 
 difficulty standing up, my walking was bad and felt drunk when I started for 
 another cup of coffee. I again wondered if I was having a TM relapse. 
 
 I sat and compared the two relapses. I didn't want to go thru another 36 
 hour observation in ER. I felt and walked and talked as if drunk both times. 
 I had the start of a cold both times. I had taken cough syrup both times, 
 but the bottle was almost empty so it couldn't be that. 
 
 I didn't have a relapse

[TMIC] Group

[Janice Nichols]

It was really good hearing from all of you in the TM group.Lets try to keep 
in touch.

Janice

Re: [TMIC] Hey everybody,

[Janice Nichols]

WOW!!What a story.   So glad you are doing so much better, but how long 
will you need to keep taking the treatments?Surely you are about through.   
So sorry you have had to go through this, but you were so smart to come up with 
this testing. Keep up with the good improvement.
Janice


From: Susan Kleinz 
Sent: Friday, January 23, 2015 9:30 AM
To: Janice Nichols 
Cc: amy shultz ; Tmic 
Subject: Re: [TMIC] Hey everybody,

Hello ™ friends: 

This is Susan Kleinz, Phx, AZ.  This group was extremely important to me 5 
years ago when I relapsed and spent my time in bed or the lazy boy outside 
(tacky, I know).  After trying everything I could find to help me get better 
(acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) 
I decided to have a food allergy test and toxic heavy metals test.  I was only 
allergic to bananas, yogurt and whey.  No big deal.  However my heavy metals 
test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from 
MRI'S)  After my first set of chelation, which is an IV solution that pulls the 
metals from your body, I felt
bizarre results.  I could do so much more!  I can walk so much better, no 
longer in bed, worked for 7 months straight in my father's store, and basically 
feel like I have so much of my life back.  I am now on my 31st treatment.  Most 
people only needs 6.  I have a heavy body burden of toxic metals.  Our family 
home was built on the Motorola dumping ground.  20 years of toxic wastes dumped 
into the ground and into our water.  Our whole neighborhood is sick with 
cancer, immune issues, ms…etc.)  It is expensive to do this treatment… $155 
per.  My husband has wiped out our savings to help me get better.  I feel that 
the reason I contracted ™ is because of this poisoning.  I used to lay in bed 
and feel I was being poisoned.  Every day I felt like this.  I even dreamed 
that my husband was poisoning me… I passed these metals on to two of my three 
children who were able to detox with 6 treatments only.

This treatment may be available soon under insurance, but mine does not cover 
NMD -Naturepaths (sp?).
I even feel and look more like myself!

I am always thinking about all of you.

Susan  
On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote:


  Amy
  Glad to hear you are doing much better. Is what you had similar to what I 
had in the hospital where I had a UTI infection, but, of course, I didn’t feel 
it.   Then it went systemic and
  I nearly died too.No fun.
  Janice


  From: amy shultz 
  Sent: Thursday, January 22, 2015 5:34 AM
  To: Tmic 
  Subject: Fwd: [TMIC] Hey everybody,

  I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't seen 
her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer 
up till Oct 31st when I almost died. The doctors said my body took a big hit.  
I had severe sepsis and septic shock. Since my hair is falling out really bad 
and nails are splitting and peeling and breaking. Real fragile. I even take 
6000mcg of Biotin a day and have for a couple years. So IDK what's going on. 

  Amy Shultz 
  Ohio


  Sent from my Verizon Wireless 4G LTE smartphone


   Original message 
  From: suerdlagpu...@gmail.com 
  Date:01/21/2015 9:47 AM (GMT-05:00) 
  To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net 
  Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod 
nmacleo...@yahoo.co.uk, tmic-list@eskimo.com 
  Subject: Re: [TMIC] Hey everybody, 


  Good story. Very instructive. 

  Thanks

  Dalton

  Sent from my BlackBerry 10 smartphone.
Original Message  
  From: Pat
  Sent: Wednesday, January 21, 2015 9:23 AM
  To: Susan Kleinz
  Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
  Subject: Re: [TMIC] Hey everybody,

  I'm here and on Face Book. I haven't had any changes in my TM, but I do have 
an interesting story about a suspected relapse. 

  In December, 2013, I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed 
nothing new had happened and I recovered fine. My doctors and I were stumped. 

  In December 2014, I woke up one morning feeling my TM normal with the start 
of a cold. I went thru my routine of meds, reading, and coffee. I had 
difficulty standing up, my walking was bad and felt drunk when I started for 
another cup of coffee. I again wondered if I was having a TM relapse. 

  I sat and compared the two relapses. I didn't want to go thru another 36 
hour observation in ER. I felt and walked and talked as if drunk both times. I 
had the start of a cold both times. I had taken cough syrup both times, but the 
bottle was almost empty so it couldn't be that. 

  I didn't have a relapse at all. I had a reaction to taking a full dose of 
cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an 
empty stomach. 

  What

Re: [TMIC] Group

[Susan Kleinz]

Ditto!

Sent from my iPhone

 On Jan 23, 2015, at 12:29 PM, Iris Whiddett i.whidd...@icloud.com wrote:
 
 I agree Janice.  It has been great this week hearing news of old friends in 
 the group.
 
 Iris UK
 
 Sent from my iPad
 
 On 23 Jan 2015, at 19:05, Janice Nichols jannic...@gmail.com wrote:
 
 It was really good hearing from all of you in the TM group.Lets try to 
 keep in touch.
  
 Janice

Re: [TMIC] Hey everybody,

[Dalton Garis]

Incredible story!

I still remember Love Canal and all that.

Behind our house and across the street was the rail yard and a great big pile 
of coal that was used for the trains, but I used it for play.  It was great fun 
climbing up to the top of the pile then jump off as far as I could go, hit near 
the bottom of the pile and slide around in that slippery coal.  My mother would 
throw me in the bath and there would be a black ring around it about 8” deep.

Trouble is, that there is a lot of mercury in coal, which we also used to heat 
our home.  We had a large room in the cellar with a window for trucks to send 
coal into it down a chute.

I think all that play in the coal especially exposed me to too much mercury, 
and that it gave me all sorts of problems growing up, including reading 
difficulties, concentration, sleep, growth difficulties maybe, and now TM.

d.

Dalton Garis
Flushing, Queens
New York, USA
(718) 838-0437

On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote:

 WOW!!What a story.   So glad you are doing so much better, but how long 
 will you need to keep taking the treatments?Surely you are about through. 
   So sorry you have had to go through this, but you were so smart to come up 
 with this testing. Keep up with the good improvement.
 Janice
  
  
 From: Susan Kleinz
 Sent: Friday, January 23, 2015 9:30 AM
 To: Janice Nichols
 Cc: amy shultz ; Tmic
 Subject: Re: [TMIC] Hey everybody,
  
 Hello ™ friends:
  
 This is Susan Kleinz, Phx, AZ.  This group was extremely important to me 5 
 years ago when I relapsed and spent my time in bed or the lazy boy outside 
 (tacky, I know).  After trying everything I could find to help me get better 
 (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt 
 therapy…) I decided to have a food allergy test and toxic heavy metals test.  
 I was only allergic to bananas, yogurt and whey.  No big deal.  However my 
 heavy metals test showed me in dangerous levels of lead, mercury, cadmium, 
 gadolinium(from MRI'S)  After my first set of chelation, which is an IV 
 solution that pulls the metals from your body, I felt
 bizarre results.  I could do so much more!  I can walk so much better, no 
 longer in bed, worked for 7 months straight in my father's store, and 
 basically feel like I have so much of my life back.  I am now on my 31st 
 treatment.  Most people only needs 6.  I have a heavy body burden of toxic 
 metals.  Our family home was built on the Motorola dumping ground.  20 years 
 of toxic wastes dumped into the ground and into our water.  Our whole 
 neighborhood is sick with cancer, immune issues, ms…etc.)  It is expensive to 
 do this treatment… $155 per.  My husband has wiped out our savings to help me 
 get better.  I feel that the reason I contracted ™ is because of this 
 poisoning.  I used to lay in bed and feel I was being poisoned.  Every day I 
 felt like this.  I even dreamed that my husband was poisoning me… I passed 
 these metals on to two of my three children who were able to detox with 6 
 treatments only.
  
 This treatment may be available soon under insurance, but mine does not cover 
 NMD -Naturepaths (sp?).
 I even feel and look more like myself!
  
 I am always thinking about all of you.
  
 Susan 
 On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote:
 
 Amy
 Glad to hear you are doing much better. Is what you had similar to what 
 I had in the hospital where I had a UTI infection, but, of course, I didn’t 
 feel it.   Then it went systemic and
 I nearly died too.No fun.
 Janice
  
  
 From: amy shultz
 Sent: Thursday, January 22, 2015 5:34 AM
 To: Tmic
 Subject: Fwd: [TMIC] Hey everybody,
  
 I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't seen 
 her anywhere. Or heard from her. This is Amy Shultz. I had a really bad 
 summer up till Oct 31st when I almost died. The doctors said my body took a 
 big hit.  I had severe sepsis and septic shock. Since my hair is falling out 
 really bad and nails are splitting and peeling and breaking. Real fragile. I 
 even take 6000mcg of Biotin a day and have for a couple years. So IDK what's 
 going on.
  
 Amy Shultz
 Ohio
  
  
 Sent from my Verizon Wireless 4G LTE smartphone
 
 
  Original message 
 From: suerdlagpu...@gmail.com 
 Date:01/21/2015 9:47 AM (GMT-05:00) 
 To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net 
 Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki 
 Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com 
 Subject: Re: [TMIC] Hey everybody, 
 
 Good story. Very instructive. 
 
 Thanks
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
   Original Message  
 From: Pat
 Sent: Wednesday, January 21, 2015 9:23 AM
 To: Susan Kleinz
 Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 I'm here and on Face Book. I haven't had any changes in my TM, but I do have

Fwd: [TMIC] Hey everybody,

[amy shultz]

I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't seen 
her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer 
up till Oct 31st when I almost died. The doctors said my body took a big hit.  
I had severe sepsis and septic shock. Since my hair is falling out really bad 
and nails are splitting and peeling and breaking. Real fragile. I even take 
6000mcg of Biotin a day and have for a couple years. So IDK what's going on.

Amy Shultz
Ohio


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: suerdlagpu...@gmail.com
Date:01/21/2015  9:47 AM  (GMT-05:00)
To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net
Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod 
nmacleo...@yahoo.co.uk, tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

Good story. Very instructive.

Thanks

Dalton

Sent from my BlackBerry 10 smartphone.
  Original Message
From: Pat
Sent: Wednesday, January 21, 2015 9:23 AM
To: Susan Kleinz
Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

I'm here and on Face Book. I haven't had any changes in my TM, but I do have an 
interesting story about a suspected relapse.

In December, 2013, I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed 
nothing new had happened and I recovered fine. My doctors and I were stumped.

In December 2014, I woke up one morning feeling my TM normal with the start 
of a cold. I went thru my routine of meds, reading, and coffee. I had 
difficulty standing up, my walking was bad and felt drunk when I started for 
another cup of coffee. I again wondered if I was having a TM relapse.

I sat and compared the two relapses. I didn't want to go thru another 36 hour 
observation in ER. I felt and walked and talked as if drunk both times. I had 
the start of a cold both times. I had taken cough syrup both times, but the 
bottle was almost empty so it couldn't be that.

I didn't have a relapse at all. I had a reaction to taking a full dose of cough 
syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty 
stomach.

What a relief! I saw my PCP yesterday for my RX renewals and I think she was as 
relieved as I was. That means no TM relapses in 11 years. Praise the Lord!

Patti - Michigan.







 On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote:

 Me too. On a trip but will be responding. ! So glad someone is still out 
 there in our tm group

 Sent from my iPhone

 On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:

 I'm still here also.

 Dalton

 Sent from my BlackBerry 10 smartphone.
 Original Message
 From: Janice Nichols
 Sent: Saturday, January 17, 2015 12:33 PM
 To: Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,

 Hi Nikki,
 I remember you! The old group has pretty well disbanded and gone to
 Facebook , etc. I have had TM for 8 years and there is always
 something improving. You have to work hard at it and keep moving, but it
 really pays off. Once in a while the bladder even improves for a
 hile - and then to the usual, but I will take what I can get. I really
 wish doctor's would not give a time limit on improvement - we all go at
 different paces with
 different problems to deal with. You sound great and I am really
 proud of all your accomplishments. It couldn't have been easy for you.
 Keep in touch.

 Janice
 Missouri


 -Original Message-
 From: Nikki Macleod
 Sent: Saturday, January 17, 2015 6:37 AM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hey everybody,

 Hi everyone,
 It's been a while since I've been in here and I was wondering how everyone
 was doing. Any improvement. The last time I posted I was really messed up
 mentally. Suicidal and really low, a horrible time in my life. My life has
 changed dramatically since then, me and my fiancé of nearly 10 years broke
 up and I never though I'd say this but it was for the best. I am much
 happier. I live in my little bungalow with my dog Finlay who I've had since
 before TM and have 24/7 care. My depression is much better, it is now stable
 and under control. I am getting out and about much more especially since I
 recently got my new powered wheelchair. I am starting to not only love life
 again but love myself again. I also have more positive news, I have recently
 been experiencing some weird sensations in my left hand and some of my
 fingers which I can only describe as what feels like pins and needles. I
 figured this is a good thing considering it is numb until I get these
 episodes. I've also had episodes of feeling as though the soles of feet are
 burning like they are on fire. TM struck me on 15/02/2011. Doctors told me
 after a certain period of time that would be the end of the improvement. I
 believe that you may continue to improve way after that (I have). Has anyone

Re: Fwd: [TMIC] Hey everybody,

[Janice Nichols]

Amy
Glad to hear you are doing much better. Is what you had similar to what I 
had in the hospital where I had a UTI infection, but, of course, I didn’t feel 
it.   Then it went systemic and
I nearly died too.No fun.
Janice


From: amy shultz 
Sent: Thursday, January 22, 2015 5:34 AM
To: Tmic 
Subject: Fwd: [TMIC] Hey everybody,

I am here and on FB too.  Does anyone know how Jude Hoops Is? I haven't seen 
her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer 
up till Oct 31st when I almost died. The doctors said my body took a big hit.  
I had severe sepsis and septic shock. Since my hair is falling out really bad 
and nails are splitting and peeling and breaking. Real fragile. I even take 
6000mcg of Biotin a day and have for a couple years. So IDK what's going on. 

Amy Shultz 
Ohio


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: suerdlagpu...@gmail.com 
Date:01/21/2015 9:47 AM (GMT-05:00) 
To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net 
Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod 
nmacleo...@yahoo.co.uk, tmic-list@eskimo.com 
Subject: Re: [TMIC] Hey everybody, 


Good story. Very instructive. 

Thanks

Dalton

Sent from my BlackBerry 10 smartphone.
  Original Message  
From: Pat
Sent: Wednesday, January 21, 2015 9:23 AM
To: Susan Kleinz
Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

I'm here and on Face Book. I haven't had any changes in my TM, but I do have an 
interesting story about a suspected relapse. 

In December, 2013, I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed 
nothing new had happened and I recovered fine. My doctors and I were stumped. 

In December 2014, I woke up one morning feeling my TM normal with the start 
of a cold. I went thru my routine of meds, reading, and coffee. I had 
difficulty standing up, my walking was bad and felt drunk when I started for 
another cup of coffee. I again wondered if I was having a TM relapse. 

I sat and compared the two relapses. I didn't want to go thru another 36 hour 
observation in ER. I felt and walked and talked as if drunk both times. I had 
the start of a cold both times. I had taken cough syrup both times, but the 
bottle was almost empty so it couldn't be that. 

I didn't have a relapse at all. I had a reaction to taking a full dose of cough 
syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty 
stomach. 

What a relief! I saw my PCP yesterday for my RX renewals and I think she was as 
relieved as I was. That means no TM relapses in 11 years. Praise the Lord! 

Patti - Michigan. 







 On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote:
 
 Me too. On a trip but will be responding. ! So glad someone is still out 
 there in our tm group
 
 Sent from my iPhone
 
 On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:
 
 I'm still here also. 
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
 Original Message 
 From: Janice Nichols
 Sent: Saturday, January 17, 2015 12:33 PM
 To: Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 Hi Nikki,
 I remember you! The old group has pretty well disbanded and gone to 
 Facebook , etc. I have had TM for 8 years and there is always 
 something improving. You have to work hard at it and keep moving, but it 
 really pays off. Once in a while the bladder even improves for a 
 hile - and then to the usual, but I will take what I can get. I really 
 wish doctor's would not give a time limit on improvement - we all go at 
 different paces with
 different problems to deal with. You sound great and I am really 
 proud of all your accomplishments. It couldn't have been easy for you. 
 Keep in touch.
 
 Janice
 Missouri
 
 
 -Original Message- 
 From: Nikki Macleod
 Sent: Saturday, January 17, 2015 6:37 AM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hey everybody,
 
 Hi everyone,
 It's been a while since I've been in here and I was wondering how everyone 
 was doing. Any improvement. The last time I posted I was really messed up 
 mentally. Suicidal and really low, a horrible time in my life. My life has 
 changed dramatically since then, me and my fiancé of nearly 10 years broke 
 up and I never though I'd say this but it was for the best. I am much 
 happier. I live in my little bungalow with my dog Finlay who I've had since 
 before TM and have 24/7 care. My depression is much better, it is now stable 
 and under control. I am getting out and about much more especially since I 
 recently got my new powered wheelchair. I am starting to not only love life 
 again but love myself again. I also have more positive news, I have recently 
 been experiencing some weird sensations in my left hand and some of my 
 fingers which I can only describe as what feels like pins

Re: [TMIC] Hey everybody,

[Janice Nichols]

Patti - you really had an eye opener!Sometimes it only takes 1 
unsuspected drug to do the trick.I have had similar feelings - just 
chalk it up to good old TM!!!

Janice


-Original Message- 
From: Pat

Sent: Wednesday, January 21, 2015 8:23 AM
To: Susan Kleinz
Cc: malugss...@gmail.com ; Janice Nichols ; Nikki Macleod ; 
tmic-list@eskimo.com

Subject: Re: [TMIC] Hey everybody,

I'm here and on Face Book. I haven't had any changes in my TM, but I do have 
an interesting story about a suspected relapse.


In December, 2013,  I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor.  CT, MRI's, and Labs 
showed nothing new had happened and I recovered fine.  My doctors and I were 
stumped.


In December 2014, I woke up one morning feeling my TM normal with the 
start of a cold.  I went thru my routine of meds, reading, and coffee.  I 
had difficulty standing up, my walking was bad and felt drunk when I started 
for another cup of coffee.  I again wondered if I was having a TM relapse.


I sat and compared the two relapses.  I didn't want to go thru another 36 
hour observation in ER.  I felt and walked and talked as if drunk both 
times.  I had the start of a cold both times. I had taken cough syrup both 
times, but the bottle was almost empty so it couldn't be that.


I didn't have a relapse at all. I  had a reaction to taking a full dose of 
cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an 
empty stomach.


What a relief!  I saw my PCP yesterday for my RX renewals and I think she 
was as relieved as I was.  That means no TM relapses in 11 years. Praise the 
Lord!


Patti - Michigan.








On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote:

Me too. On a trip but will be responding.  !   So glad someone is still 
out there in our tm group


Sent from my iPhone


On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:

I'm  still here also.

Dalton

Sent from my BlackBerry 10 smartphone.
 Original Message
From: Janice Nichols
Sent: Saturday, January 17, 2015 12:33 PM
To: Nikki Macleod; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

Hi Nikki,
I remember you! The old group has pretty well disbanded and gone to
Facebook , etc. I have had TM for 8 years and there is always
something improving. You have to work hard at it and keep moving, but it
really pays off. Once in a while the bladder even improves for a
hile - and then to the usual, but I will take what I can get. I really
wish doctor's would not give a time limit on improvement - we all go at
different paces with
different problems to deal with. You sound great and I am really
proud of all your accomplishments. It couldn't have been easy for you.
Keep in touch.

Janice
Missouri


-Original Message- 
From: Nikki Macleod

Sent: Saturday, January 17, 2015 6:37 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hey everybody,

Hi everyone,
It's been a while since I've been in here and I was wondering how 
everyone

was doing. Any improvement. The last time I posted I was really messed up
mentally. Suicidal and really low, a horrible time in my life. My life 
has
changed dramatically since then, me and my fiancé of nearly 10 years 
broke

up and I never though I'd say this but it was for the best. I am much
happier. I live in my little bungalow with my dog Finlay who I've had 
since
before TM and have 24/7 care. My depression is much better, it is now 
stable
and under control. I am getting out and about much more especially since 
I
recently got my new powered wheelchair. I am starting to not only love 
life
again but love myself again. I also have more positive news, I have 
recently

been experiencing some weird sensations in my left hand and some of my
fingers which I can only describe as what feels like pins and needles. I
figured this is a good thing considering it is numb until I get these
episodes. I've also had episodes of feeling as though the soles of feet 
are
burning like they are on fire. TM struck me on 15/02/2011. Doctors told 
me
after a certain period of time that would be the end of the improvement. 
I
believe that you may continue to improve way after that (I have). Has 
anyone

else experienced anything like this?

Nikki, Durham, UK.

Sent from my iPad

Re: [TMIC] Hey everybody,

[suerdlagpunga]

Good story. Very instructive. 

Thanks

Dalton

Sent from my BlackBerry 10 smartphone.
  Original Message  
From: Pat
Sent: Wednesday, January 21, 2015 9:23 AM
To: Susan Kleinz
Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

I'm here and on Face Book. I haven't had any changes in my TM, but I do have an 
interesting story about a suspected relapse. 

In December, 2013, I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed 
nothing new had happened and I recovered fine. My doctors and I were stumped. 

In December 2014, I woke up one morning feeling my TM normal with the start 
of a cold. I went thru my routine of meds, reading, and coffee. I had 
difficulty standing up, my walking was bad and felt drunk when I started for 
another cup of coffee. I again wondered if I was having a TM relapse. 

I sat and compared the two relapses. I didn't want to go thru another 36 hour 
observation in ER. I felt and walked and talked as if drunk both times. I had 
the start of a cold both times. I had taken cough syrup both times, but the 
bottle was almost empty so it couldn't be that. 

I didn't have a relapse at all. I had a reaction to taking a full dose of cough 
syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty 
stomach. 

What a relief! I saw my PCP yesterday for my RX renewals and I think she was as 
relieved as I was. That means no TM relapses in 11 years. Praise the Lord! 

Patti - Michigan. 







 On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote:
 
 Me too. On a trip but will be responding. ! So glad someone is still out 
 there in our tm group
 
 Sent from my iPhone
 
 On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:
 
 I'm still here also. 
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
 Original Message 
 From: Janice Nichols
 Sent: Saturday, January 17, 2015 12:33 PM
 To: Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 Hi Nikki,
 I remember you! The old group has pretty well disbanded and gone to 
 Facebook , etc. I have had TM for 8 years and there is always 
 something improving. You have to work hard at it and keep moving, but it 
 really pays off. Once in a while the bladder even improves for a 
 hile - and then to the usual, but I will take what I can get. I really 
 wish doctor's would not give a time limit on improvement - we all go at 
 different paces with
 different problems to deal with. You sound great and I am really 
 proud of all your accomplishments. It couldn't have been easy for you. 
 Keep in touch.
 
 Janice
 Missouri
 
 
 -Original Message- 
 From: Nikki Macleod
 Sent: Saturday, January 17, 2015 6:37 AM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hey everybody,
 
 Hi everyone,
 It's been a while since I've been in here and I was wondering how everyone 
 was doing. Any improvement. The last time I posted I was really messed up 
 mentally. Suicidal and really low, a horrible time in my life. My life has 
 changed dramatically since then, me and my fiancé of nearly 10 years broke 
 up and I never though I'd say this but it was for the best. I am much 
 happier. I live in my little bungalow with my dog Finlay who I've had since 
 before TM and have 24/7 care. My depression is much better, it is now stable 
 and under control. I am getting out and about much more especially since I 
 recently got my new powered wheelchair. I am starting to not only love life 
 again but love myself again. I also have more positive news, I have recently 
 been experiencing some weird sensations in my left hand and some of my 
 fingers which I can only describe as what feels like pins and needles. I 
 figured this is a good thing considering it is numb until I get these 
 episodes. I've also had episodes of feeling as though the soles of feet are 
 burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
 after a certain period of time that would be the end of the improvement. I 
 believe that you may continue to improve way after that (I have). Has anyone 
 else experienced anything like this?
 
 Nikki, Durham, UK.
 
 Sent from my iPad
 
 

Re: [TMIC] Hey everybody,

[Pat]

I'm here and on Face Book. I haven't had any changes in my TM, but I do have an 
interesting story about a suspected relapse.  

In December, 2013,  I thought I had a TM relapse or a stroke and went to ER 
walking and talking as if I was in a drunken stupor.  CT, MRI's, and Labs 
showed nothing new had happened and I recovered fine.  My doctors and I were 
stumped. 

In December 2014, I woke up one morning feeling my TM normal with the start 
of a cold.  I went thru my routine of meds, reading, and coffee.  I had 
difficulty standing up, my walking was bad and felt drunk when I started for 
another cup of coffee.  I again wondered if I was having a TM relapse.  

I sat and compared the two relapses.  I didn't want to go thru another 36 
hour observation in ER.  I felt and walked and talked as if drunk both times.  
I had the start of a cold both times. I had taken cough syrup both times, but 
the bottle was almost empty so it couldn't be that. 

I didn't have a relapse at all. I  had a reaction to taking a full dose of 
cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an 
empty stomach. 

What a relief!  I saw my PCP yesterday for my RX renewals and I think she was 
as relieved as I was.  That means no TM relapses in 11 years. Praise the Lord! 

Patti - Michigan. 




  


 On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote:
 
 Me too. On a trip but will be responding.  !   So glad someone is still out 
 there in our tm group
 
 Sent from my iPhone
 
 On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:
 
 I'm  still here also. 
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
  Original Message  
 From: Janice Nichols
 Sent: Saturday, January 17, 2015 12:33 PM
 To: Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 Hi Nikki,
 I remember you! The old group has pretty well disbanded and gone to 
 Facebook , etc. I have had TM for 8 years and there is always 
 something improving. You have to work hard at it and keep moving, but it 
 really pays off. Once in a while the bladder even improves for a 
 hile - and then to the usual, but I will take what I can get. I really 
 wish doctor's would not give a time limit on improvement - we all go at 
 different paces with
 different problems to deal with. You sound great and I am really 
 proud of all your accomplishments. It couldn't have been easy for you. 
 Keep in touch.
 
 Janice
 Missouri
 
 
 -Original Message- 
 From: Nikki Macleod
 Sent: Saturday, January 17, 2015 6:37 AM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hey everybody,
 
 Hi everyone,
 It's been a while since I've been in here and I was wondering how everyone 
 was doing. Any improvement. The last time I posted I was really messed up 
 mentally. Suicidal and really low, a horrible time in my life. My life has 
 changed dramatically since then, me and my fiancé of nearly 10 years broke 
 up and I never though I'd say this but it was for the best. I am much 
 happier. I live in my little bungalow with my dog Finlay who I've had since 
 before TM and have 24/7 care. My depression is much better, it is now stable 
 and under control. I am getting out and about much more especially since I 
 recently got my new powered wheelchair. I am starting to not only love life 
 again but love myself again. I also have more positive news, I have recently 
 been experiencing some weird sensations in my left hand and some of my 
 fingers which I can only describe as what feels like pins and needles. I 
 figured this is a good thing considering it is numb until I get these 
 episodes. I've also had episodes of feeling as though the soles of feet are 
 burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
 after a certain period of time that would be the end of the improvement. I 
 believe that you may continue to improve way after that (I have). Has anyone 
 else experienced anything like this?
 
 Nikki, Durham, UK.
 
 Sent from my iPad
 
 

Re: [TMIC] Hey everybody,

[Susan Kleinz]

Me too. On a trip but will be responding.  !   So glad someone is still out 
there in our tm group

Sent from my iPhone

 On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:
 
 I'm  still here also. 
 
 Dalton
 
 Sent from my BlackBerry 10 smartphone.
   Original Message  
 From: Janice Nichols
 Sent: Saturday, January 17, 2015 12:33 PM
 To: Nikki Macleod; tmic-list@eskimo.com
 Subject: Re: [TMIC] Hey everybody,
 
 Hi Nikki,
 I remember you! The old group has pretty well disbanded and gone to 
 Facebook , etc. I have had TM for 8 years and there is always 
 something improving. You have to work hard at it and keep moving, but it 
 really pays off. Once in a while the bladder even improves for a 
 hile - and then to the usual, but I will take what I can get. I really 
 wish doctor's would not give a time limit on improvement - we all go at 
 different paces with
 different problems to deal with. You sound great and I am really 
 proud of all your accomplishments. It couldn't have been easy for you. 
 Keep in touch.
 
 Janice
 Missouri
 
 
 -Original Message- 
 From: Nikki Macleod
 Sent: Saturday, January 17, 2015 6:37 AM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hey everybody,
 
 Hi everyone,
 It's been a while since I've been in here and I was wondering how everyone 
 was doing. Any improvement. The last time I posted I was really messed up 
 mentally. Suicidal and really low, a horrible time in my life. My life has 
 changed dramatically since then, me and my fiancé of nearly 10 years broke 
 up and I never though I'd say this but it was for the best. I am much 
 happier. I live in my little bungalow with my dog Finlay who I've had since 
 before TM and have 24/7 care. My depression is much better, it is now stable 
 and under control. I am getting out and about much more especially since I 
 recently got my new powered wheelchair. I am starting to not only love life 
 again but love myself again. I also have more positive news, I have recently 
 been experiencing some weird sensations in my left hand and some of my 
 fingers which I can only describe as what feels like pins and needles. I 
 figured this is a good thing considering it is numb until I get these 
 episodes. I've also had episodes of feeling as though the soles of feet are 
 burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
 after a certain period of time that would be the end of the improvement. I 
 believe that you may continue to improve way after that (I have). Has anyone 
 else experienced anything like this?
 
 Nikki, Durham, UK.
 
 Sent from my iPad 
 

Re: [TMIC] Hey everybody,

[Gary Thomas]

It was good to see your email, Nikki.  Almost like the olden days when I 
may have 5, 10, 15  or mail messages on email daily.  It was good to hear 
from Janice and Dalton, also.


It was over 10 years ago that I was hit with TM.  Fortunately I do not 
have some of the worst lingering symptoms.  I am glad that you are doing 
much better than in the past, Nikki.


Again, I was so glad to hear from you.

Gary Niles, MI

- Original Message - 
From: Nikki Macleod nmacleo...@yahoo.co.uk

To: tmic-list@eskimo.com
Sent: Saturday, January 17, 2015 7:37 AM
Subject: [TMIC] Hey everybody,


Hi everyone,
It's been a while since I've been in here and I was wondering how everyone 
was doing. Any improvement. The last time I posted I was really messed up 
mentally. Suicidal and really low, a horrible time in my life. My life has 
changed dramatically since then, me and my fiancé of nearly 10 years broke 
up and I never though I'd say this but it was for the best. I am much 
happier. I live in my little bungalow with my dog Finlay who I've had since 
before TM and have 24/7 care. My depression is much better, it is now stable 
and under control. I am getting out and about much more especially since I 
recently got my new powered wheelchair. I am starting to not only love life 
again but love myself again. I also have more positive news, I have recently 
been experiencing some weird sensations in my left hand and some of my 
fingers which I can only describe as what feels like pins and needles. I 
figured this is a good thing considering it is numb until I get these 
episodes. I've also had episodes of feeling as though the soles of feet are 
burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
after a certain period of time that would be the end of the improvement. I 
believe that you may continue to improve way after that (I have). Has anyone 
else experienced anything like this?


Nikki, Durham, UK.

Sent from my iPad 

[TMIC] Hey everybody,

[Nikki Macleod]

Hi everyone,
It's been a while since I've been in here and I was wondering how everyone was 
doing. Any improvement. The last time I posted I was really messed up mentally. 
Suicidal and really low, a horrible time in my life. My life has changed 
dramatically since then, me and my fiancé of nearly 10 years broke up and I 
never though I'd say this but it was for the best. I am much happier. I live in 
my little bungalow with my dog Finlay who I've had since before TM and have 
24/7 care. My depression is much better, it is now stable and under control. I 
am getting out and about much more especially since I recently got my new 
powered wheelchair. I am starting to not only love life again but love myself 
again. I also have more positive news, I have recently been experiencing some 
weird sensations in my left hand and some of my fingers which I can only 
describe as what feels like pins and needles. I figured this is a good thing 
considering it is numb until I get these episodes. I've also had episodes of 
feeling as though the soles of feet are burning like they are on fire. TM 
struck me on 15/02/2011. Doctors told me after a certain period of time that 
would be the end of the improvement. I believe that you may continue to improve 
way after that (I have). Has anyone else experienced anything like this?

Nikki, Durham, UK.

Sent from my iPad

Re: [TMIC] Hey everybody,

[Janice Nichols]

Hi Nikki,
I remember you!   The old group has pretty well disbanded and gone to 
Facebook , etc.I have had TM for 8 years and there is always 
something improving.   You have to work hard at it and keep moving, but it 
really pays off. Once in a while the bladder even improves for a 
hile  -  and then to the usual, but I will take what I can get.I really 
wish doctor's would not give a time limit on improvement - we all go at 
different paces with
different problems to deal with. You sound great and I am really 
proud of all your accomplishments.It couldn't have been easy for you. 
Keep in touch.


Janice
Missouri


-Original Message- 
From: Nikki Macleod

Sent: Saturday, January 17, 2015 6:37 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hey everybody,

Hi everyone,
It's been a while since I've been in here and I was wondering how everyone 
was doing. Any improvement. The last time I posted I was really messed up 
mentally. Suicidal and really low, a horrible time in my life. My life has 
changed dramatically since then, me and my fiancé of nearly 10 years broke 
up and I never though I'd say this but it was for the best. I am much 
happier. I live in my little bungalow with my dog Finlay who I've had since 
before TM and have 24/7 care. My depression is much better, it is now stable 
and under control. I am getting out and about much more especially since I 
recently got my new powered wheelchair. I am starting to not only love life 
again but love myself again. I also have more positive news, I have recently 
been experiencing some weird sensations in my left hand and some of my 
fingers which I can only describe as what feels like pins and needles. I 
figured this is a good thing considering it is numb until I get these 
episodes. I've also had episodes of feeling as though the soles of feet are 
burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
after a certain period of time that would be the end of the improvement. I 
believe that you may continue to improve way after that (I have). Has anyone 
else experienced anything like this?


Nikki, Durham, UK.

Sent from my iPad 

Re: [TMIC] Hey everybody,

[malugssuak]

I'm  still here also. 

Dalton

Sent from my BlackBerry 10 smartphone.
  Original Message  
From: Janice Nichols
Sent: Saturday, January 17, 2015 12:33 PM
To: Nikki Macleod; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,

Hi Nikki,
I remember you! The old group has pretty well disbanded and gone to 
Facebook , etc. I have had TM for 8 years and there is always 
something improving. You have to work hard at it and keep moving, but it 
really pays off. Once in a while the bladder even improves for a 
hile - and then to the usual, but I will take what I can get. I really 
wish doctor's would not give a time limit on improvement - we all go at 
different paces with
different problems to deal with. You sound great and I am really 
proud of all your accomplishments. It couldn't have been easy for you. 
Keep in touch.

Janice
Missouri


-Original Message- 
From: Nikki Macleod
Sent: Saturday, January 17, 2015 6:37 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hey everybody,

Hi everyone,
It's been a while since I've been in here and I was wondering how everyone 
was doing. Any improvement. The last time I posted I was really messed up 
mentally. Suicidal and really low, a horrible time in my life. My life has 
changed dramatically since then, me and my fiancé of nearly 10 years broke 
up and I never though I'd say this but it was for the best. I am much 
happier. I live in my little bungalow with my dog Finlay who I've had since 
before TM and have 24/7 care. My depression is much better, it is now stable 
and under control. I am getting out and about much more especially since I 
recently got my new powered wheelchair. I am starting to not only love life 
again but love myself again. I also have more positive news, I have recently 
been experiencing some weird sensations in my left hand and some of my 
fingers which I can only describe as what feels like pins and needles. I 
figured this is a good thing considering it is numb until I get these 
episodes. I've also had episodes of feeling as though the soles of feet are 
burning like they are on fire. TM struck me on 15/02/2011. Doctors told me 
after a certain period of time that would be the end of the improvement. I 
believe that you may continue to improve way after that (I have). Has anyone 
else experienced anything like this?

Nikki, Durham, UK.

Sent from my iPad 

[TMIC] Long Island NY support group

[Robert Pall]

Can anyone tell me if their is a support group in Long Island...if not how 
about a phone # for New York City?
Thanks
Rob in New Jersey

[TMIC] myasthenia gravis

[Regina]

As if I didn’t have enough problem with the residual stuff from MS, the neuro 
is now checking me for myasthenia gravis.  Weird symptoms affecting my eyes.  
Difficulty in focusing, droopy one lid, etc.  Would like to hear from some of 
you who live with this diagnosis, and how you handle it.  Thanks much.  R

Re: [TMIC] myasthenia gravis

[Susan Kleinz]

I have ™ but recently I found out I have Lead poisoning, big time and Mercury 
and several others.   I guess it's always going to be something.  Best of luck, 
Susan 
On Jun 7, 2014, at 5:14 AM, Regina regina...@sbcglobal.net wrote:

 As if I didn’t have enough problem with the residual stuff from MS, the neuro 
 is now checking me for myasthenia gravis.  Weird symptoms affecting my eyes.  
 Difficulty in focusing, droopy one lid, etc.  Would like to hear from some of 
 you who live with this diagnosis, and how you handle it.  Thanks much.  R

[TMIC] CBD

[James Berg]

Has anyone tried this?  I am on day 3 test of CBD as made by Bluebird
pharmaceuticals, 15 drops twice a day.  It's been on CNN as a product that
stops seizures in children.  CBD is one of twentysome thing dirivatives of
cannabis.  It is non psychoactive and legal in all 50 states with out any
special license.  This is a 21.6 percent CBD, with 0.67 percent THC
product.  It is made from special cannibis plants that have been bred to
delete THC from the plant.  So far no results except a bad taste in my
mouth, something like lawn grass.  Anyone else tried this?

[TMIC] Fw:

[robthe...@aol.com]

Hi! People say it works: http://barkormuhendislik.com/mjfr/like.php
 
robthe...@aol.com

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[James Berg]

Pat--You misunderstood what I wrote.  I was taking 150mg twice a day and I
consulted with Sandy because my leg spasms had ceased.  Sandy had me
consult with my GP since I don't have a neuro.  Sandy did not act as a
doctor.


On Thu, Mar 13, 2014 at 4:59 AM, Dalton Garis suerdlagpu...@gmail.comwrote:

 Patti;

 Have you heard of River Pharmacy?  www.riverpharmacy.ca   it makes it
 possible to take what you need for much less money.

 Dalton


 From: Pat Voorheis pjv1...@chartermi.net
 Date: Wed, 12 Mar 2014 20:05:27 -0400
 To: James Berg molokai...@gmail.com
 Cc: Janice Nichols jannic...@gmail.com, Dalton Garis 
 malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse
 myelitis tmic-list@eskimo.com

 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Wed, 12 Mar 2014 15:57:30 -0700 (PDT)

 James,
 Please tell me why you want to reduce to 50mg twice daily after consulting
 with Sandy.  I was taking 100mg 3 times daily for about a year, but reduced
 to twice daily due to cost, not due to medical reasons.  Is there something
 about Lyrica Sandy made you aware of that I should be concerned about?  As
 you both have stated, we learn more from the TM Association than we learn
 from our doctors and Neuro's.

 Patti - Michigan

 On Mar 12, 2014, at 3:34 PM, James Berg molokai...@gmail.com wrote:

 Hey Dalton and everyone else, Aloha.  I just want folks to  know that
 thanks to Dalton letting me know about Lyrica, I've gotten control of my
 leg spasms.  I'm taking 150mg. 2 times a day and suddenly a week ago my
 spasms stopped!
 Not having a neuro so consult with Sandy, yes our Sandy, has been
 counseling  me about stopping the Lyrica and after discussing it with my GP
 I am doing a gradual reduction and will soon be down to the 50mg. Dalton
 has reduced to.
 Lyrica has been a god send to me.  Thanks Dalton.

 Jim



 On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols jannic...@gmail.comwrote:

 Dalton  -  not offended!!
 So glad you are doing so well.Isn't it strange the things we discover
 ourselves that help us?Doctors can still be so clueless about some
 things  -  on the other hand, they can
 save our lives!

 Janice


 *From:* Dalton Garis malugss...@gmail.com
 *Sent:* Wednesday, March 12, 2014 11:26 AM
 *To:* Linda Egli le...@sbcglobal.net ; tmic-list@eskimo.com
 *Subject:* Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

 Say, Folks!

 Nice to hear a voice crying in the wilderness.  I am still here, also.

 By the way, someone hacked my Facebook so had to change my name, to
 Abdu'l-Hanif Al-Shukri - let them try to hack that one!  So, if you
 remember me, for instance Meiling, and you want to friend me, I'm still
 out there.

 Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of
 trying.  Can't go below that amount, discovering that is what is actually
 required to cover most of the pain.  My memory is better and am less
 anxious about losing my mind to fog and dopiness.

 And went 28 days without a seizure, the longest time since getting the
 first one in 22 April 2010.  Want to know what reduced their frequency? -
 not taking all those vitamin supplements anymore.  It seems the minerals in
 them were interfering in some way with the nerves, especially magnesium.
 Visiting my mother in Massachusetts - she's 97 - I forgot to bring any and
 went without for a week.  Returning home I realized that I hadn't had any
 seizures, and guessed that the only change was in not taking all those
 vitamin supplements.  So I stopped, and sure enough, the seizures became
 very infrequent.  Who knew?

 Now is the Baha'i month of the Fast, when Baha'is go without food and
 drink during the hours when the sun is in the sky, for 19 days, the last
 month of our year.  (In our calendar there are 19 months of 19 days, with 4
 or 5 inter calendar days just before the month of the Fast).  We eat and
 drink after sunset or before sunrise but not during the hours of sunlight.
 Smoking is also prohibited, as it is considered a form of drink.

 The sick, the traveling, those nursing or pregnant, or under the age of
 15 or older than 70 are not bound by the Fast; neither are those engaged in
 heavy labor.  It is for those in good health, but others are not bound to
 it.

 While not bound by the Fast I am going without food during the hours of
 fasting but drinking tea or coffee or water whenever I feel the need.  It
 is going OK, and does change the relationship to the material world and
 increase nearness to God.  I am grateful to participate at even this level.

 I hope it doesn't upset anyone if I talk openly about God.  It seems our
 America is conspiring to wipe any mention of Him from any public discourse
 - a kind of propaganda in its own right if you think about it.  I
 apologize, though, if anyone here is offended.

 Love and prayers,
 Dalton
 Abdu'l-Hanif Al-Shukri

 *Dalton Garis*
 *Flushing, Queens*
 *New York, USA*


 From: Linda Egli le

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[James Berg]

I am still trying to find Meiling Caperton: Does anyone have contact with
her?


On Fri, Mar 21, 2014 at 10:58 AM, James Berg molokai...@gmail.com wrote:

 Pat--You misunderstood what I wrote.  I was taking 150mg twice a day and I
 consulted with Sandy because my leg spasms had ceased.  Sandy had me
 consult with my GP since I don't have a neuro.  Sandy did not act as a
 doctor.


 On Thu, Mar 13, 2014 at 4:59 AM, Dalton Garis suerdlagpu...@gmail.comwrote:

 Patti;

 Have you heard of River Pharmacy?  www.riverpharmacy.ca   it makes it
 possible to take what you need for much less money.

 Dalton


 From: Pat Voorheis pjv1...@chartermi.net
 Date: Wed, 12 Mar 2014 20:05:27 -0400
 To: James Berg molokai...@gmail.com
 Cc: Janice Nichols jannic...@gmail.com, Dalton Garis 
 malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse
 myelitis tmic-list@eskimo.com

 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Wed, 12 Mar 2014 15:57:30 -0700 (PDT)

 James,
 Please tell me why you want to reduce to 50mg twice daily after
 consulting with Sandy.  I was taking 100mg 3 times daily for about a year,
 but reduced to twice daily due to cost, not due to medical reasons.  Is
 there something about Lyrica Sandy made you aware of that I should be
 concerned about?  As you both have stated, we learn more from the TM
 Association than we learn from our doctors and Neuro's.

 Patti - Michigan

 On Mar 12, 2014, at 3:34 PM, James Berg molokai...@gmail.com wrote:

 Hey Dalton and everyone else, Aloha.  I just want folks to  know that
 thanks to Dalton letting me know about Lyrica, I've gotten control of my
 leg spasms.  I'm taking 150mg. 2 times a day and suddenly a week ago my
 spasms stopped!
 Not having a neuro so consult with Sandy, yes our Sandy, has been
 counseling  me about stopping the Lyrica and after discussing it with my GP
 I am doing a gradual reduction and will soon be down to the 50mg. Dalton
 has reduced to.
 Lyrica has been a god send to me.  Thanks Dalton.

 Jim



 On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols jannic...@gmail.comwrote:

 Dalton  -  not offended!!
 So glad you are doing so well.Isn't it strange the things we
 discover ourselves that help us?Doctors can still be so clueless about
 some things  -  on the other hand, they can
 save our lives!

 Janice


 *From:* Dalton Garis malugss...@gmail.com
 *Sent:* Wednesday, March 12, 2014 11:26 AM
 *To:* Linda Egli le...@sbcglobal.net ; tmic-list@eskimo.com
 *Subject:* Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

 Say, Folks!

 Nice to hear a voice crying in the wilderness.  I am still here, also.

 By the way, someone hacked my Facebook so had to change my name, to
 Abdu'l-Hanif Al-Shukri - let them try to hack that one!  So, if you
 remember me, for instance Meiling, and you want to friend me, I'm still
 out there.

 Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of
 trying.  Can't go below that amount, discovering that is what is actually
 required to cover most of the pain.  My memory is better and am less
 anxious about losing my mind to fog and dopiness.

 And went 28 days without a seizure, the longest time since getting the
 first one in 22 April 2010.  Want to know what reduced their frequency? -
 not taking all those vitamin supplements anymore.  It seems the minerals in
 them were interfering in some way with the nerves, especially magnesium.
 Visiting my mother in Massachusetts - she's 97 - I forgot to bring any and
 went without for a week.  Returning home I realized that I hadn't had any
 seizures, and guessed that the only change was in not taking all those
 vitamin supplements.  So I stopped, and sure enough, the seizures became
 very infrequent.  Who knew?

 Now is the Baha'i month of the Fast, when Baha'is go without food and
 drink during the hours when the sun is in the sky, for 19 days, the last
 month of our year.  (In our calendar there are 19 months of 19 days, with 4
 or 5 inter calendar days just before the month of the Fast).  We eat and
 drink after sunset or before sunrise but not during the hours of sunlight.
 Smoking is also prohibited, as it is considered a form of drink.

 The sick, the traveling, those nursing or pregnant, or under the age of
 15 or older than 70 are not bound by the Fast; neither are those engaged in
 heavy labor.  It is for those in good health, but others are not bound to
 it.

 While not bound by the Fast I am going without food during the hours of
 fasting but drinking tea or coffee or water whenever I feel the need.  It
 is going OK, and does change the relationship to the material world and
 increase nearness to God.  I am grateful to participate at even this level.

 I hope it doesn't upset anyone if I talk openly about God.  It seems our
 America is conspiring to wipe any mention of Him from any public discourse
 - a kind of propaganda in its own right if you think about it.  I
 apologize, though

Re: [TMIC]

[Barbara H.]

I did see that he had passed away mentioned on a Facebook page a while
back. I was so sorry to hear of it. I do remember him participating here in
the past. I can only imagine what you are going through - it was hard to
lose my mother several years ago, but I think to lose a son or daughter
would be that much harder because we expect that they'll outlive us. I pray
for God's grace and comfort for you.

Psalm 119:76: Let, I pray thee, thy merciful kindness be for my comfort,
according to thy word unto thy servant.

Barbara H.


On Wed, Mar 12, 2014 at 4:57 PM, wrabal...@gt.rr.com wrote:

 I just realized I had not seen much activity. I am not sure this is going
 to the group, I hope so. Some of you were probably friends with Dennis
 Rabalais. He passed away on Jan. 29, 2014. He had been sick for so many
 years, I know he is in a better place. But as a mother I surely do miss
 him. Today for no reason I have cried all day. I feel like my heart is
 broken and it is painful. I thank all of you that talked to Dennis for
 being his friend. I will try to keep an eye out for any of your post.


 Bless all of you,
 Rebecca Rabalais

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Dalton Garis]

Patti;

Have you heard of River Pharmacy?  www.riverpharmacy.ca   it makes it
possible to take what you need for much less money.

Dalton


From:  Pat Voorheis pjv1...@chartermi.net
Date:  Wed, 12 Mar 2014 20:05:27 -0400
To:  James Berg molokai...@gmail.com
Cc:  Janice Nichols jannic...@gmail.com, Dalton Garis
malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse
myelitis tmic-list@eskimo.com
Subject:  Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Wed, 12 Mar 2014 15:57:30 -0700 (PDT)

 James,
 Please tell me why you want to reduce to 50mg twice daily after consulting
 with Sandy.  I was taking 100mg 3 times daily for about a year, but reduced to
 twice daily due to cost, not due to medical reasons.  Is there something about
 Lyrica Sandy made you aware of that I should be concerned about?  As you both
 have stated, we learn more from the TM Association than we learn from our
 doctors and Neuro's.
 
 Patti - Michigan
 
 On Mar 12, 2014, at 3:34 PM, James Berg molokai...@gmail.com wrote:
 
 Hey Dalton and everyone else, Aloha.  I just want folks to  know that thanks
 to Dalton letting me know about Lyrica, I've gotten control of my leg spasms.
 I'm taking 150mg. 2 times a day and suddenly a week ago my spasms stopped!
 Not having a neuro so consult with Sandy, yes our Sandy, has been counseling
 me about stopping the Lyrica and after discussing it with my GP I am doing a
 gradual reduction and will soon be down to the 50mg. Dalton has reduced to.
 Lyrica has been a god send to me.  Thanks Dalton.
 
 Jim
 
 
 
 On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols jannic...@gmail.com wrote:
 Dalton  -  not offended!!
 So glad you are doing so well.Isn¹t it strange the things we discover
 ourselves that help us?Doctors can still be so clueless about some
 things  -  on the other hand, they can
 save our lives!
  
 Janice
  
  
 From: Dalton Garis mailto:malugss...@gmail.com
 Sent: Wednesday, March 12, 2014 11:26 AM
 To: Linda Egli mailto:le...@sbcglobal.net  ; tmic-list@eskimo.com
 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
  
 Say, Folks!
  
 Nice to hear a voice crying in the wilderness.  I am still here, also.
  
 By the way, someone hacked my Facebook so had to change my name, to
 Abdu¹l-Hanif Al-Shukri ­ let them try to hack that one!  So, if you remember
 me, for instance Meiling, and you want to ³friend me, I¹m still out there.
  
 Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of
 trying.  Can¹t go below that amount, discovering that is what is actually
 required to cover most of the pain.  My memory is better and am less anxious
 about losing my mind to fog and dopiness.
  
 And went 28 days without a seizure, the longest time since getting the first
 one in 22 April 2010.  Want to know what reduced their frequency? - not
 taking all those vitamin supplements anymore.  It seems the minerals in them
 were interfering in some way with the nerves, especially magnesium.
 Visiting my mother in Massachusetts ­ she¹s 97 ­ I forgot to bring any and
 went without for a week.  Returning home I realized that I hadn¹t had any
 seizures, and guessed that the only change was in not taking all those
 vitamin supplements.  So I stopped, and sure enough, the seizures became
 very infrequent.  Who knew?
  
 Now is the Baha¹i month of the Fast, when Baha¹is go without food and drink
 during the hours when the sun is in the sky, for 19 days, the last month of
 our year.  (In our calendar there are 19 months of 19 days, with 4 or 5
 inter calendar days just before the month of the Fast).  We eat and drink
 after sunset or before sunrise but not during the hours of sunlight.
 Smoking is also prohibited, as it is considered a form of drink.
  
 The sick, the traveling, those nursing or pregnant, or under the age of 15
 or older than 70 are not bound by the Fast; neither are those engaged in
 heavy labor.  It is for those in good health, but others are not bound to
 it.
  
 While not bound by the Fast I am going without food during the hours of
 fasting but drinking tea or coffee or water whenever I feel the need.  It is
 going OK, and does change the relationship to the material world and
 increase nearness to God.  I am grateful to participate at even this level.
  
 I hope it doesn¹t upset anyone if I talk openly about God.  It seems our
 America is conspiring to wipe any mention of Him from any public discourse ­
 a kind of propaganda in its own right if you think about it.  I apologize,
 though, if anyone here is offended.
  
 Love and prayers,
 Dalton
 Abdu¹l-Hanif Al-Shukri
  
 Dalton Garis
 Flushing, Queens
 New York, USA
  
  
 From: Linda Egli le...@sbcglobal.net
 Reply-To: Linda Egli le...@sbcglobal.net
 Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT)
 To: tmic-list@eskimo.com tmic-list@eskimo.com
 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Wed, 12 Mar 2014 07:45:20

[TMIC] Meiling Caperton, Kanohe, Hawaii

[James Berg]

Meiling, if you are still in Hawaii, please give me a holler--I thought I
was alone here.

Jim

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Janice Nichols]

You are not alone here.  I am still here, but it sure is quiet! Hope 
you are doing well.
Janice – from Missouri


From: James Berg 
Sent: Wednesday, March 12, 2014 1:52 AM
To: tmic-l...@eskimo.net 
Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii

Meiling, if you are still in Hawaii, please give me a holler--I thought I  was 
alone here.

JimwlEmoticon-smile[1].png

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Linda Egli]

Another TMer still here too. I miss the people that used to use this site. Stay well.Linda - TexasFrom: Janice Nichols jannic...@gmail.com To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net  Sent:
 Wednesday, March 12, 2014 9:39 AM Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii   




You are not alone here.  
I am still here, but it sure is quiet! Hope you are 
doing well.
Janice – from Missouri





From: James Berg 
Sent: Wednesday, March 12, 2014 1:52 AM
To: tmic-l...@eskimo.net 
Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii



Meiling, if you are still in Hawaii, please give me a holler--I thought 
I was alone here.

Jim

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Dalton Garis]

Say, Folks!

Nice to hear a voice crying in the wilderness.  I am still here, also.

By the way, someone hacked my Facebook so had to change my name, to
Abdu¹l-Hanif Al-Shukri ­ let them try to hack that one!  So, if you remember
me, for instance Meiling, and you want to ³friend me, I¹m still out there.

Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of
trying.  Can¹t go below that amount, discovering that is what is actually
required to cover most of the pain.  My memory is better and am less anxious
about losing my mind to fog and dopiness.

And went 28 days without a seizure, the longest time since getting the first
one in 22 April 2010.  Want to know what reduced their frequency? - not
taking all those vitamin supplements anymore.  It seems the minerals in them
were interfering in some way with the nerves, especially magnesium.
Visiting my mother in Massachusetts ­ she¹s 97 ­ I forgot to bring any and
went without for a week.  Returning home I realized that I hadn¹t had any
seizures, and guessed that the only change was in not taking all those
vitamin supplements.  So I stopped, and sure enough, the seizures became
very infrequent.  Who knew?

Now is the Baha¹i month of the Fast, when Baha¹is go without food and drink
during the hours when the sun is in the sky, for 19 days, the last month of
our year.  (In our calendar there are 19 months of 19 days, with 4 or 5
inter calendar days just before the month of the Fast).  We eat and drink
after sunset or before sunrise but not during the hours of sunlight.
Smoking is also prohibited, as it is considered a form of drink.

The sick, the traveling, those nursing or pregnant, or under the age of 15
or older than 70 are not bound by the Fast; neither are those engaged in
heavy labor.  It is for those in good health, but others are not bound to
it.

While not bound by the Fast I am going without food during the hours of
fasting but drinking tea or coffee or water whenever I feel the need.  It is
going OK, and does change the relationship to the material world and
increase nearness to God.  I am grateful to participate at even this level.

I hope it doesn¹t upset anyone if I talk openly about God.  It seems our
America is conspiring to wipe any mention of Him from any public discourse ­
a kind of propaganda in its own right if you think about it.  I apologize,
though, if anyone here is offended.

Love and prayers,
Dalton
Abdu¹l-Hanif Al-Shukri

Dalton Garis
Flushing, Queens
New York, USA


From:  Linda Egli le...@sbcglobal.net
Reply-To:  Linda Egli le...@sbcglobal.net
Date:  Wed, 12 Mar 2014 07:45:18 -0700 (PDT)
To:  tmic-list@eskimo.com tmic-list@eskimo.com
Subject:  Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Wed, 12 Mar 2014 07:45:20 -0700 (PDT)

 Another TMer still here too.  I miss the people that used to use this site.
 Stay well.
 Linda - Texas
 
   
  
  
  
 
From: Janice Nichols jannic...@gmail.com
  To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net
  Sent: Wednesday, March 12, 2014 9:39 AM
  Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
   
  
 
 You are not alone here.  I am still here, but it sure is quiet! Hope
 you are doing well.
 Janice ­ from Missouri
  
  
 From: James Berg mailto:molokai...@gmail.com
 Sent: Wednesday, March 12, 2014 1:52 AM
 To: tmic-l...@eskimo.net
 Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii
  
 Meiling, if you are still in Hawaii, please give me a holler--I thought I  was
 alone here.
  
 Jim
 
 
  
  
   


inline: wlEmoticon-smile[1].png

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Janice Nichols]

Dalton  -  not offended!!
So glad you are doing so well.Isn’t it strange the things we discover 
ourselves that help us?Doctors can still be so clueless about some things  
-  on the other hand, they can
save our lives! 

Janice


From: Dalton Garis 
Sent: Wednesday, March 12, 2014 11:26 AM
To: Linda Egli ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

Say, Folks!

Nice to hear a voice crying in the wilderness.  I am still here, also.

By the way, someone hacked my Facebook so had to change my name, to 
Abdu’l-Hanif Al-Shukri – let them try to hack that one!  So, if you remember 
me, for instance Meiling, and you want to “friend me, I’m still out there.

Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of 
trying.  Can’t go below that amount, discovering that is what is actually 
required to cover most of the pain.  My memory is better and am less anxious 
about losing my mind to fog and dopiness.

And went 28 days without a seizure, the longest time since getting the first 
one in 22 April 2010.  Want to know what reduced their frequency? - not taking 
all those vitamin supplements anymore.  It seems the minerals in them were 
interfering in some way with the nerves, especially magnesium.  Visiting my 
mother in Massachusetts – she’s 97 – I forgot to bring any and went without for 
a week.  Returning home I realized that I hadn’t had any seizures, and guessed 
that the only change was in not taking all those vitamin supplements.  So I 
stopped, and sure enough, the seizures became very infrequent.  Who knew?

Now is the Baha’i month of the Fast, when Baha’is go without food and drink 
during the hours when the sun is in the sky, for 19 days, the last month of our 
year.  (In our calendar there are 19 months of 19 days, with 4 or 5 inter 
calendar days just before the month of the Fast).  We eat and drink after 
sunset or before sunrise but not during the hours of sunlight.  Smoking is also 
prohibited, as it is considered a form of drink.  

The sick, the traveling, those nursing or pregnant, or under the age of 15 or 
older than 70 are not bound by the Fast; neither are those engaged in heavy 
labor.  It is for those in good health, but others are not bound to it.

While not bound by the Fast I am going without food during the hours of fasting 
but drinking tea or coffee or water whenever I feel the need.  It is going OK, 
and does change the relationship to the material world and increase nearness to 
God.  I am grateful to participate at even this level.

I hope it doesn’t upset anyone if I talk openly about God.  It seems our 
America is conspiring to wipe any mention of Him from any public discourse – a 
kind of propaganda in its own right if you think about it.  I apologize, 
though, if anyone here is offended.

Love and prayers,
Dalton
Abdu’l-Hanif Al-Shukri

Dalton Garis
Flushing, Queens
New York, USA


From: Linda Egli le...@sbcglobal.net
Reply-To: Linda Egli le...@sbcglobal.net
Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT)
To: tmic-list@eskimo.com tmic-list@eskimo.com
Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
Resent-From: tmic-list@eskimo.com
Resent-Date: Wed, 12 Mar 2014 07:45:20 -0700 (PDT)


  Another TMer still here too.  I miss the people that used to use this site.  
Stay well.
  Linda - Texas


--
  From: Janice Nichols jannic...@gmail.com
  To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net 
  Sent: Wednesday, March 12, 2014 9:39 AM
  Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii


  You are not alone here.  I am still here, but it sure is quiet! Hope 
you are doing well.
  Janice – from Missouri


  From: James Berg 
  Sent: Wednesday, March 12, 2014 1:52 AM
  To: tmic-l...@eskimo.net 
  Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii

  Meiling, if you are still in Hawaii, please give me a holler--I thought I  
was alone here.

  Jim


wlEmoticon-smile[1].png

Re: [TMIC]

[Janice Nichols]

So sorry to hear of his passing.   May God help you through this  -  I am 
sure you have been through so much.

Janice


-Original Message- 
From: wrabal...@gt.rr.com

Sent: Wednesday, March 12, 2014 3:57 PM
To: tmic-list@eskimo.com
Subject: [TMIC]

I just realized I had not seen much activity. I am not sure this is going to 
the group, I hope so. Some of you were probably friends with Dennis 
Rabalais. He passed away on Jan. 29, 2014. He had been sick for so many 
years, I know he is in a better place. But as a mother I surely do miss him. 
Today for no reason I have cried all day. I feel like my heart is broken and 
it is painful. I thank all of you that talked to Dennis for being his 
friend. I will try to keep an eye out for any of your post.



Bless all of you,
Rebecca Rabalais

Re: [TMIC]

[Pat]

My condolences to you.  Dennis was loved and appreciated by his TM family and 
has been and will continue to be missed. I was aware of Dennis' passing thru 
our TM Facebook page and I'm glad to see that you shared it here on the TMIC.  
Now, when we remember Dennis, we will remember a Mom who will continue to cry 
when she remembers her son and our friend.  

Sincerely,

Patti - Michigan
 On Mar 12, 2014, at 4:57 PM, wrabal...@gt.rr.com wrote:
 
 I just realized I had not seen much activity. I am not sure this is going to 
 the group, I hope so. Some of you were probably friends with Dennis Rabalais. 
 He passed away on Jan. 29, 2014. He had been sick for so many years, I know 
 he is in a better place. But as a mother I surely do miss him. Today for no 
 reason I have cried all day. I feel like my heart is broken and it is 
 painful. I thank all of you that talked to Dennis for being his friend. I 
 will try to keep an eye out for any of your post. 
 
 
 Bless all of you,
 Rebecca Rabalais
 
 
 
 

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[Pat Voorheis]

James,
Please tell me why you want to reduce to 50mg twice daily after consulting with 
Sandy.  I was taking 100mg 3 times daily for about a year, but reduced to twice 
daily due to cost, not due to medical reasons.  Is there something about Lyrica 
Sandy made you aware of that I should be concerned about?  As you both have 
stated, we learn more from the TM Association than we learn from our doctors 
and Neuro's.

Patti - Michigan

 On Mar 12, 2014, at 3:34 PM, James Berg molokai...@gmail.com wrote:
 
 Hey Dalton and everyone else, Aloha.  I just want folks to  know that thanks 
 to Dalton letting me know about Lyrica, I've gotten control of my leg spasms. 
  I'm taking 150mg. 2 times a day and suddenly a week ago my spasms stopped!
 Not having a neuro so consult with Sandy, yes our Sandy, has been counseling  
 me about stopping the Lyrica and after discussing it with my GP I am doing a 
 gradual reduction and will soon be down to the 50mg. Dalton has reduced to.
 Lyrica has been a god send to me.  Thanks Dalton.
 
 Jim
 
 
 
 On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols jannic...@gmail.com wrote:
 Dalton  -  not offended!!   
 So glad you are doing so well.Isn’t it strange the things we discover 
 ourselves that help us?Doctors can still be so clueless about some 
 things  -  on the other hand, they can
 save our lives!
  
 Janice
  
  
 From: Dalton Garis
 Sent: Wednesday, March 12, 2014 11:26 AM
 To: Linda Egli ; tmic-list@eskimo.com
 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
  
 Say, Folks!
  
 Nice to hear a voice crying in the wilderness.  I am still here, also.
  
 By the way, someone hacked my Facebook so had to change my name, to 
 Abdu’l-Hanif Al-Shukri – let them try to hack that one!  So, if you remember 
 me, for instance Meiling, and you want to “friend me, I’m still out there.
  
 Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of 
 trying.  Can’t go below that amount, discovering that is what is actually 
 required to cover most of the pain.  My memory is better and am less anxious 
 about losing my mind to fog and dopiness.
  
 And went 28 days without a seizure, the longest time since getting the first 
 one in 22 April 2010.  Want to know what reduced their frequency? - not 
 taking all those vitamin supplements anymore.  It seems the minerals in them 
 were interfering in some way with the nerves, especially magnesium.  
 Visiting my mother in Massachusetts – she’s 97 – I forgot to bring any and 
 went without for a week.  Returning home I realized that I hadn’t had any 
 seizures, and guessed that the only change was in not taking all those 
 vitamin supplements.  So I stopped, and sure enough, the seizures became 
 very infrequent.  Who knew?
  
 Now is the Baha’i month of the Fast, when Baha’is go without food and drink 
 during the hours when the sun is in the sky, for 19 days, the last month of 
 our year.  (In our calendar there are 19 months of 19 days, with 4 or 5 
 inter calendar days just before the month of the Fast).  We eat and drink 
 after sunset or before sunrise but not during the hours of sunlight.  
 Smoking is also prohibited, as it is considered a form of drink. 
  
 The sick, the traveling, those nursing or pregnant, or under the age of 15 
 or older than 70 are not bound by the Fast; neither are those engaged in 
 heavy labor.  It is for those in good health, but others are not bound to it.
  
 While not bound by the Fast I am going without food during the hours of 
 fasting but drinking tea or coffee or water whenever I feel the need.  It is 
 going OK, and does change the relationship to the material world and 
 increase nearness to God.  I am grateful to participate at even this level.
  
 I hope it doesn’t upset anyone if I talk openly about God.  It seems our 
 America is conspiring to wipe any mention of Him from any public discourse – 
 a kind of propaganda in its own right if you think about it.  I apologize, 
 though, if anyone here is offended.
  
 Love and prayers,
 Dalton
 Abdu’l-Hanif Al-Shukri
  
 Dalton Garis
 Flushing, Queens
 New York, USA
  
  
 From: Linda Egli le...@sbcglobal.net
 Reply-To: Linda Egli le...@sbcglobal.net
 Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT)
 To: tmic-list@eskimo.com tmic-list@eskimo.com
 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Wed, 12 Mar 2014 07:45:20 -0700 (PDT)
  
 Another TMer still here too.  I miss the people that used to use this site.  
 Stay well.
 Linda - Texas
  
 From: Janice Nichols jannic...@gmail.com
 To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net 
 Sent: Wednesday, March 12, 2014 9:39 AM
 Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
  
 You are not alone here.  wlEmoticon-smile[1].pngI am still here, but 
 it sure is quiet! Hope you are doing well.
 Janice – from Missouri
  
  
 From: James Berg
 Sent: Wednesday, March 12, 2014 1:52 AM
 To: tmic-l...@eskimo.net

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

[suerdlagpunga]

May I jump in here? 
My memory was becoming totally unreliable and my relatives were starting to 
worry. I read up on it and discovered that Lyrics causes memory lapses and a 
fight mind. So I cut down until I couldn't any more. My memory is better now. 

 Original message 
From: Pat Voorheis pjv1...@chartermi.net 
Date:03/12/2014  20:05  (GMT-05:00) 
To: James Berg molokai...@gmail.com 
Cc: Janice Nichols jannic...@gmail.com,Dalton Garis 
malugss...@gmail.com,Linda Egli le...@sbcglobal.net,transverse myelitis 
tmic-list@eskimo.com 
Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii 

James,
Please tell me why you want to reduce to 50mg twice daily after consulting with 
Sandy.  I was taking 100mg 3 times daily for about a year, but reduced to twice 
daily due to cost, not due to medical reasons.  Is there something about Lyrica 
Sandy made you aware of that I should be concerned about?  As you both have 
stated, we learn more from the TM Association than we learn from our doctors 
and Neuro's.

Patti - Michigan

On Mar 12, 2014, at 3:34 PM, James Berg molokai...@gmail.com wrote:

Hey Dalton and everyone else, Aloha.  I just want folks to  know that thanks to 
Dalton letting me know about Lyrica, I've gotten control of my leg spasms.  I'm 
taking 150mg. 2 times a day and suddenly a week ago my spasms stopped!
Not having a neuro so consult with Sandy, yes our Sandy, has been counseling  
me about stopping the Lyrica and after discussing it with my GP I am doing a 
gradual reduction and will soon be down to the 50mg. Dalton has reduced to.
Lyrica has been a god send to me.  Thanks Dalton.

Jim



On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols jannic...@gmail.com wrote:
Dalton  -  not offended!!   
So glad you are doing so well.    Isn’t it strange the things we discover 
ourselves that help us?    Doctors can still be so clueless about some things  
-  on the other hand, they can
save our lives!
 
Janice
 
 
From: Dalton Garis
Sent: Wednesday, March 12, 2014 11:26 AM
To: Linda Egli ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
 
Say, Folks!
 
Nice to hear a voice crying in the wilderness.  I am still here, also.
 
By the way, someone hacked my Facebook so had to change my name, to 
Abdu’l-Hanif Al-Shukri – let them try to hack that one!  So, if you remember 
me, for instance Meiling, and you want to “friend me, I’m still out there.
 
Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of 
trying.  Can’t go below that amount, discovering that is what is actually 
required to cover most of the pain.  My memory is better and am less anxious 
about losing my mind to fog and dopiness.
 
And went 28 days without a seizure, the longest time since getting the first 
one in 22 April 2010.  Want to know what reduced their frequency? -  not taking 
all those vitamin supplements anymore.  It seems the minerals in them were 
interfering in some way with the nerves, especially magnesium.  Visiting my 
mother in Massachusetts – she’s 97 – I forgot to bring any and went without for 
a week.  Returning home I realized that I hadn’t had any seizures, and guessed 
that the only change was in not taking all those vitamin supplements.  So I 
stopped, and sure enough, the seizures became very infrequent.  Who knew?
 
Now is the Baha’i month of the Fast, when Baha’is go without food and drink  
during the hours when the sun is in the sky, for 19 days, the last month of our 
year.  (In our calendar there are 19 months of 19 days, with 4 or 5 inter 
calendar days just before the month of the Fast).  We eat and drink after 
sunset or before sunrise but not during the hours of sunlight.  Smoking is also 
prohibited, as it is considered a form of drink. 
 
The sick, the traveling, those nursing or pregnant, or under the age of 15 or 
older than 70 are not bound by the Fast; neither are those engaged in heavy 
labor.  It is for those in good health, but others are not bound to it.
 
While not bound by the Fast I am going without food during the hours of fasting 
but drinking tea or coffee or water whenever I feel the need.  It is going OK, 
and does change the relationship to the material world and increase nearness to 
God.  I am grateful to participate at even this level.
 
I hope it doesn’t upset anyone if I talk openly about God.  It seems our 
America is conspiring to wipe any mention of Him from any public discourse – a 
kind of propaganda in its own right if you think about it.  I apologize, 
though, if anyone here is offended.
 
Love and prayers,
Dalton
Abdu’l-Hanif Al-Shukri
 
Dalton Garis
Flushing, Queens
New York, USA
 
 
From: Linda Egli le...@sbcglobal.net
Reply-To: Linda Egli le...@sbcglobal.net
Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT)
To: tmic-list@eskimo.com tmic-list@eskimo.com
Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii
Resent-From: tmic-list@eskimo.com
Resent-Date: Wed, 12 Mar 2014 07:45:20 -0700 (PDT)
 
Another TMer still here too

Re: [TMIC]

[Kim Harrison]

I can’t imagine the pain you are feeling from losing your son. We did see on 
one of the Facebook pages that Dennis had passed and so many of us feel the 
loss of our TM brother. Dennis was a kind soul and we all looked forward to 
seeing his posts and pictures. We are always here for you and can lean on us 
anytime you need.
Prayers for your heart to heal and strength to carry on.
Thank you for keeping in touch and letting us know how you are doing.
Kim
 


 From: Pat p...@voorheissigns.com
To: wrabal...@gt.rr.com wrabal...@gt.rr.com 
Cc: tmic-list@eskimo.com tmic-list@eskimo.com 
Sent: Wednesday, March 12, 2014 7:48 PM
Subject: Re: [TMIC] 
  

My condolences to you.  Dennis was loved and appreciated by his TM family and 
has been and will continue to be missed. I was aware of Dennis' passing thru 
our TM Facebook page and I'm glad to see that you shared it here on the TMIC.  
Now, when we remember Dennis, we will remember a Mom who will continue to cry 
when she remembers her son and our friend.  

Sincerely,

Patti - Michigan
 On Mar 12, 2014, at 4:57 PM, wrabal...@gt.rr.com wrote:
 
 I just realized I had not seen much activity. I am not sure this is going to 
 the group, I hope so. Some of you were probably friends with Dennis Rabalais. 
 He passed away on Jan. 29, 2014. He had been sick for so many years, I know 
 he is in a better place. But as a mother I surely do miss him. Today for no 
 reason I have cried all day. I feel like my heart is broken and it is 
 painful. I thank all of you that talked to Dennis for being his friend. I 
 will try to keep an eye out for any of your post. 
 
 
 Bless all of you,
 Rebecca Rabalais
 
 
 
 

Re: [TMIC] This is amazing and every paraplegic should get one from Medicare!!!

[Pat]

Bernie, 
I don't use a wheel chair, but I watched the video yesterday and think it is a 
much needed item for some of our TM friends.

Patti - Michigan

 On Jan 21, 2014, at 4:56 PM, Bernie Pelow bpe...@austin.rr.com wrote:
 
 This is amazing and every paraplegic should get one from Medicare!!!
 
 http://www.wimp.com/newdevice/
 
 
 When will the Tek RMD be available?
 
 We expect that the Tek RMD will begin shipping by the end of 2013. We are 
 currently taking reservations.
 How do I reserve a device?
 
 Reserve your Tek RMD online at our reservation page.  A reservation requires 
 a down payment, which is fully refundable should you change your mind at any 
 point before we ship.  Once we begin shipping the Tek RMD in the United 
 States, we will fulfill reservations in the order in which they were 
 received.  You will pay the remaining balance on your device approximately 
 two weeks prior to shipping.If you have any questions or concerns about the 
 reservation process, please contact us by phone at 1.630.447.8263 or by email 
 at i...@matiarobotics.com.
 How much does the Tek RMD cost?
 
 We expect the final price to be approximately $15,000 US not including 
 shipping charges.

[TMIC] This is amazing and every paraplegic should get one from Medicare!!!

[Bernie Pelow]

*This is amazing and every paraplegic should get one from Medicare!!!*

_http://www.wimp.com/newdevice/_


   When will the Tek RMD be available?


   We expect that the Tek RMD will begin shipping by the end of 2013.
   We are currently taking reservations
   http://www.matiarobotics.com/reservation.html.


   How do I reserve a device?

Reserve your Tek RMD online at our reservation page.  A reservation 
requires a down payment, which is fully refundable should you change 
your mind at any point before we ship.  Once we begin shipping the Tek 
RMD in the United States, we will fulfill reservations in the order in 
which they were received.  You will pay the remaining balance on your 
device approximately two weeks prior to shipping.If you have any 
questions or concerns about the reservation process, please contact us 
by phone at 1.630.447.8263 or by email at i...@matiarobotics.com 
mailto:i...@matiarobotics.com.



   How much does the Tek RMD cost?

We expect the final price to be approximately $15,000 US not including 
shipping charges.

[TMIC] Re: rewalk tools

[Jim Lubin]

If you are looking into a home unit, this is another company that I know of
http://www.restorative-therapies.com/home




On Fri, Jan 17, 2014 at 12:12 PM, James Berg mauiji...@gmail.com wrote:

 Just wanted to  share my explorations

 -- Forwarded message --
 From: Pete Escallier p...@argomedtec.com
 Date: Thu, Jan 16, 2014 at 9:48 AM
 Subject: RE: rewalk tools
 To: James Berg mauiji...@gmail.com


  Hello James,

 Thanks for  your inquiry about the ReWalk. The ReWalk was created for use
 by people with lower limb impairment, and has been used mostly with spinal
 cord injury patients, most of them with complete paralysis. It requires the
 ability to tolerate standing, and core strength and arm strength to use the
 arm crutches you see when viewing videos of its use. Your doctor can
 determine if this technology is appropriate.

 We have rehabilitation centers throughout the USA, and they are listed in
 our website www.rewalk.com “Locations”. Contacting these centers to
 discuss using the REWalk for rehabilitation is the best step after your
 doctor clears you. The ReWalk is only cleared by the FDA for use in rehab
 centers now, but we expect the Personal version to be cleared for market
 soon. Once available, someone interested in owning the Personal ReWalk
 would purchase it for approximately $65,000, which will include training of
 about 30 hours or more at the Rehab center to become proficient enough to
 take it home. Unfortunately, new technology is not covered by Medicare or
 other insurance carriers, and won’t be until studies are published showing
 it is an improvement to the user’s health or more cost efficient, and that
 will take several years.

 We are planning to announce to everyone when we get clearance to market
 the ReWalk in the US, and at that time, if interested, you should contact
 one of our rehab centers to first determine if the ReWalk is right for you
 and to do some training in rehab to determine if you want to purchase it.
 As we add new locations they will be added to our website, our closest
 sight to you now is in Long Beach. Please continue to check our site at
 www.rewalk.com to learn the latest on availability and where we have new
 ReWalk rehab centers.

 Best of luck,

 Pete



 *From:* James Berg [mailto:mauiji...@gmail.com]
 *Sent:* Wednesday, January 15, 2014 1:52 PM
 *To:* Contact
 *Subject:* Fwd: rewalk tools



 Please respond

 -- Forwarded message --
 From: *James Berg* mauiji...@gmail.com
 Date: Fri, Jan 10, 2014 at 5:02 PM
 Subject: rewalk tools
 To: cont...@rewalk.com

   My names is James Berg and I live on the island of Kauai in Hawaii.  I
 have viewed your video and would like more information on  your product,
 the training required, the cost, etc.

 I am 66 years old and have transverse myelitis which has left me with no
 feeling in my legs.  I have been  in this condition for 4 years.

 Please send me all the information you have so I can make a decision if
 this equipment will help me get around again.

 thank you,



 Jim

RE: [TMIC] End of birthday lists

[Dalton]

And hell Linda!
Nice to hear from you, too.  Yes, seizures are suddenly much less. And how are 
you now?  What are you doing? And how is your family?
Dalton 

 Original message 
From: Linda Cherpeski cherp...@msn.com 
Date:01/04/2014  02:35  (GMT-05:00) 
To: Dalton Garis malugss...@gmail.com 
Cc: TM List tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 

Well my goodness hello Dalton,  you are so right.  We have been blessed for 
many years, Barbara and want to thank you.  I sure do miss this forum (TMIC) 
and hope that people will keep coming back.  I believe they will.  Dalton, your 
seizures are less from avoiding magnesium. That is great to hear.    Had to 
snicker about birthdays as we get older  I'm right there with you!!  So nice 
to see all of you on here. Happy New Year!  May we all have better health and 
peace to all!
 
Linda (Boise, ID)
 
Date: Fri, 3 Jan 2014 07:07:36 -0500
Subject: RE: [TMIC] End of birthday lists
From: malugss...@gmail.com
To: mic...@hotmail.com; p...@voorheissigns.com; tmic-list@eskimo.com

You've done a great job, Barbara;
Actually, the quietude here goes through stages. As for Facebook, or Faceplant, 
as I have recently come to call it, it is unsafe and prone to being hacked, as 
mine was, which led to my taking my accound and pages down. Possibly, after a 
few more hacking scandles, more will apprexiate the more secure email 
communication.
Dalton
PS: I went over to tea from coffee and now avoid magnesium, and the seizures 
are far less.
D.
Butbas we get older I pay less attention to birthdays. 



 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014 03:16 (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 


I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio

CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com

Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 

Patti - Michigan 

On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

Hello all,

Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.

I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)

3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.

So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.

Love,

Barbara H.

RE: [TMIC] End of birthday lists

[Dalton]

And remember,
Not to put your tongue on the flagpole or the swing!
D.

 Original message 
From: Linda Cherpeski cherp...@msn.com 
Date:01/04/2014  02:35  (GMT-05:00) 
To: Dalton Garis malugss...@gmail.com 
Cc: TM List tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 

Well my goodness hello Dalton,  you are so right.  We have been blessed for 
many years, Barbara and want to thank you.  I sure do miss this forum (TMIC) 
and hope that people will keep coming back.  I believe they will.  Dalton, your 
seizures are less from avoiding magnesium. That is great to hear.    Had to 
snicker about birthdays as we get older  I'm right there with you!!  So nice 
to see all of you on here. Happy New Year!  May we all have better health and 
peace to all!
 
Linda (Boise, ID)
 
Date: Fri, 3 Jan 2014 07:07:36 -0500
Subject: RE: [TMIC] End of birthday lists
From: malugss...@gmail.com
To: mic...@hotmail.com; p...@voorheissigns.com; tmic-list@eskimo.com

You've done a great job, Barbara;
Actually, the quietude here goes through stages. As for Facebook, or Faceplant, 
as I have recently come to call it, it is unsafe and prone to being hacked, as 
mine was, which led to my taking my accound and pages down. Possibly, after a 
few more hacking scandles, more will apprexiate the more secure email 
communication.
Dalton
PS: I went over to tea from coffee and now avoid magnesium, and the seizures 
are far less.
D.
Butbas we get older I pay less attention to birthdays. 



 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014 03:16 (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 


I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio

CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com

Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 

Patti - Michigan 

On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

Hello all,

Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.

I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)

3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.

So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.

Love,

Barbara H.

Re: [TMIC] End of birthday lists

[Goat Dodders]

Hi all,

Glendon here. Sorry to hear about your change of heart Barbara. I raise a
glass to you and everyone on this list for staying together. I appreciate
your efforts, though I admit to not being a strident email chatterbox, my
efforts of communication have been focused on my blog;
www.bloodywishfulthinking.blogspot.com ; that reads as,
bloody-wishful-thinking! It reflects my hopes and my feelings, as I go
along my journey with TM. Please - take a look, become a member, leave a
comment, I would be very obliged. Happy New Year to you all from a little
Aussie-battler!

Cheers,
Glendon


On Sat, Jan 4, 2014 at 10:43 PM, Dalton malugss...@gmail.com wrote:

 And remember,
 Not to put your tongue on the flagpole or the swing!
 D.


  Original message 
 From: Linda Cherpeski
 Date:01/04/2014 02:35 (GMT-05:00)
 To: Dalton Garis
 Cc: TM List
 Subject: RE: [TMIC] End of birthday lists

 Well my goodness hello Dalton,  you are so right.  We have been blessed
 for many years, Barbara and want to thank you.  I sure do miss this forum
 (TMIC) and hope that people will keep coming back.  I believe they will.
 Dalton, your seizures are less from avoiding magnesium. That is great to
 hear.Had to snicker about birthdays as we get older  I'm right there
 with you!!  So nice to see all of you on here. Happy New Year!  May we all
 have better health and peace to all!

 Linda (Boise, ID)

 --
 Date: Fri, 3 Jan 2014 07:07:36 -0500
 Subject: RE: [TMIC] End of birthday lists
 From: malugss...@gmail.com
 To: mic...@hotmail.com; p...@voorheissigns.com; tmic-list@eskimo.com

 You've done a great job, Barbara;
 Actually, the quietude here goes through stages. As for Facebook, or
 Faceplant, as I have recently come to call it, it is unsafe and prone to
 being hacked, as mine was, which led to my taking my accound and pages
 down. Possibly, after a few more hacking scandles, more will apprexiate the
 more secure email communication.
 Dalton
 PS: I went over to tea from coffee and now avoid magnesium, and the
 seizures are far less.
 D.
 Butbas we get older I pay less attention to birthdays.



  Original message 
 From: amy shultz mic...@hotmail.com
 Date: 01/03/2014 03:16 (GMT-05:00)
 To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com
 Subject: RE: [TMIC] End of birthday lists


 I completely understand Barbara. It seems this has gotten very very quite
 here. Although I am feeling more and more of an alien amongst the other TM
 groups this one has been okay. I appreciate ALL you have done to keep them
 coming. Hopefully 2014 will be a bigger and brighter AND healthier year for
 us all. I am struggling day in and day out each and every day and am really
 run down!!  I hope EVERYONE of you has a VERY Happy New Year and that all
 your dreams come true!!  I will remain here for any messages but do offer
 my best to each and everyone of you!!!

 Amy SHultz
 Columbus Ohio

 --
 CC: tmic-list@eskimo.com
 From: p...@voorheissigns.com
 Subject: Re: [TMIC] End of birthday lists
 Date: Tue, 31 Dec 2013 15:03:09 -0500
 To: barbara...@gmail.com

 Thanks Barbara.  You are correct in all your reasons. I'm still here on
 TMIC as well as on FBk and that's where I try to remember to send birthday
 greetings.

 Patti - Michigan

 On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

 Hello all,

 Some of you may remember how the birthday lists started many years ago.
 Someone found an online site that would send e-cards to others as a support
 for a charity, so many of us sent in our names and birthdays so as to use
 the site to raise funds for the TMA. Not surprisingly, the site died after
 a while. A girl on the TMIC named Carrie and I had accumulated the birthday
 names and lists, and after she left the list, I continued to send them out
 once a month.

 I've decided to stop doing so, for a number of reasons.

 1) Not many people are here any more. Many are on Facebook and it is easy
 to send birthday greetings there.

 2) I don't think many (if any) people use the birthday list to send
 individual greetings to anyone on it. (A few of you have faithfully sent
 happy birthdays on TMIC to those celebrating each month as a whole, and I
 have appreciated that.)

 3) Since all mail that goes through the TMIC is archived online, I have
 wondered if it is a problem to have lists of names and e-mails there, if
 that increases anyone's spam content.

 4) I have been sending out individual birthday greetings to everyone on
 the list, and more and more of them are returned to me because the address
 is no longer active.

 5) For those who are no longer on the TMIC, I don't know if they welcome
 the birthday greetings or if they don't want me to bug them any more.

 So for all of those reasons, plus the amount of time involved, I have
 decided to stop sending the birthday lists out each month. I've just
 finished updating it with the latest

[TMIC] SSDI - Doc

[cindy mcleroy]

Year's ago an attorney from Texas wrote a message on how to qualify for SSDI.  
He gave the section of the SSDI rules that would allow many of us to qualify 
first time.  Does anyone remember the message and how I can find it again.

Thanks,
Cindy McLeroy

Re: [TMIC] End of birthday lists

[Janice Nichols]

I also will always keep this website and I check it a couple of times a day.
I love this bunch and feel there are still quite a few “listening in”.Any 
messages sent get read.
We have hit a “quiet” time, but sparks may get flying again.I will always 
feel a part of this great group and won’t give up on us.
Janice


From: Linda Egli 
Sent: Friday, January 03, 2014 8:45 AM
To: Dalton 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] End of birthday lists

I agree with you Dalton.  I always check for posting from this site.  I also do 
not trust Facebook.  I have too many concern about privacy  hacking to use the 
site.  Maybe talk here will increase sometime.
Linda E.





From: Dalton malugss...@gmail.com
To: amy shultz mic...@hotmail.com; Pat p...@voorheissigns.com; TM group 
tmic-list@eskimo.com 
Sent: Friday, January 3, 2014 6:07 AM
Subject: RE: [TMIC] End of birthday lists


You've done a great job, Barbara; 
Actually, the quietude here goes through stages. As for Facebook, or Faceplant, 
as I have recently come to call it, it is unsafe and prone to being hacked, as 
mine was, which led to my taking my accound and pages down. Possibly, after a 
few more hacking scandles, more will apprexiate the more secure email 
communication.
Dalton
PS: I went over to tea from coffee and now avoid magnesium, and the seizures 
are far less.
D.
Butbas we get older I pay less attention to birthdays. 



 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014 03:16 (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 



I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio




CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com


Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 

Patti - Michigan 

On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:


  Hello all,


  Some of you may remember how the birthday lists started many years ago. 
Someone found an online site that would send e-cards to others as a support for 
a charity, so many of us sent in our names and birthdays so as to use the site 
to raise funds for the TMA. Not surprisingly, the site died after a while. A 
girl on the TMIC named Carrie and I had accumulated the birthday names and 
lists, and after she left the list, I continued to send them out once a month.


  I've decided to stop doing so, for a number of reasons. 

  1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.


  2) I don't think many (if any) people use the birthday list to send 
individual greetings to anyone on it. (A few of you have faithfully sent happy 
birthdays on TMIC to those celebrating each month as a whole, and I have 
appreciated that.)


  3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.


  4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.


  5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.


  So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.


  I'm still here on the TMIC and plan to continue to be. I wish all of you a 
very happy and healthy 2014.


  Love,


  Barbara H.

Re: [TMIC] SSDI - Doc

[Pat Voorheis]

Was It  available on Jim Lubin's site?  I read the FBk post of the lady who 
can't get qualified and didn't feel that I had anything to add.  It seems like 
there was something about having two limbs that are effected.  I'll look too, 
however, I know you have so better chance of finding it than I do. 

Patti - Michigan

 On Jan 4, 2014, at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com wrote:
 
 Year's ago an attorney from Texas wrote a message on how to qualify for SSDI. 
  He gave the section of the SSDI rules that would allow many of us to qualify 
 first time.  Does anyone remember the message and how I can find it again.
  
 Thanks,
 Cindy McLeroy
  

Re: [TMIC] SSDI - Doc

[cindymcleroy]

Thanks Pat and Barbara for getting back to me.  I used Doc's instructions along 
with the section of the disability law # and qualified first time for SSDI.  I 
was hoping to find it to share with some of the facebook people.  Doc had it 
nailed.  Gosh, I bet it's been at least 10 years or more since he passed away.

I don't think the TMIC is being maintained any longer.  It's available for use 
but think some fees started to pop up for archiving the emails.  I'm just 
guessing.

I just tossed my paperwork about a month ago, after all I think 10 years was 
long enough to hold on to it.

Happy New Year to everyone.

Cindy



--- Pat Voorheis pjv1...@chartermi.net wrote: 

=
Was It  available on Jim Lubin's site?  I read the FBk post of the lady who 
can't get qualified and didn't feel that I had anything to add.  It seems like 
there was something about having two limbs that are effected.  I'll look too, 
however, I know you have so better chance of finding it than I do. 

Patti - Michigan

 On Jan 4, 2014, at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com wrote:
 
 Year's ago an attorney from Texas wrote a message on how to qualify for SSDI. 
  He gave the section of the SSDI rules that would allow many of us to qualify 
 first time.  Does anyone remember the message and how I can find it again.
  
 Thanks,
 Cindy McLeroy

Re: [TMIC] SSDI - Doc

[Pat Voorheis]

The link Barbara gave is the one I was thinking of. I even had a copy of it in 
my 5 to 10 year old notebook.  The highlighted info is what gave me hope when I 
applied.  It also has a statement about two extremities being impaired.  

Patti

 On Jan 4, 2014, at 6:06 PM, Barbara H. barbara...@gmail.com wrote:
 
 There used to be - I was poking around the site just now and couldn't find 
 it. A man named Roger (I can't remember his last name) who went by Doc on 
 here before he passed away made up a list of very specific tips for applying. 
 
 There is a section on the forum for dealing with disability, and I found this 
 link there - not sure if it is Doc's but it looks helpful:
 http://myelitis.org/resources/disabilityapp.htm
 
 Something else that's odd - I don't see any link to the TMIC on the TMA web 
 site. There is a link for individual state support groups and the message 
 board, or forum, at myelitis.org/forum, but not this list. 
 
 Barbara H.
 
 
 On Sat, Jan 4, 2014 at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com 
 wrote:
 Year's ago an attorney from Texas wrote a message on how to qualify for 
 SSDI.  He gave the section of the SSDI rules that would allow many of us to 
 qualify first time.  Does anyone remember the message and how I can find it 
 again.
  
 Thanks,
 Cindy McLeroy
  
 

Re: [TMIC] SSDI - Doc

[Lori Biehler]

You can find the updated nomenclature on the SSDI site in the Blue Book. You 
just need to look on the neurology section. 
Lori

Sent from my iPhone

 On Jan 4, 2014, at 7:42 PM, Pat Voorheis pjv1...@chartermi.net wrote:
 
 The link Barbara gave is the one I was thinking of. I even had a copy of it 
 in my 5 to 10 year old notebook.  The highlighted info is what gave me hope 
 when I applied.  It also has a statement about two extremities being 
 impaired.  
 
 Patti
 
 On Jan 4, 2014, at 6:06 PM, Barbara H. barbara...@gmail.com wrote:
 
 There used to be - I was poking around the site just now and couldn't find 
 it. A man named Roger (I can't remember his last name) who went by Doc on 
 here before he passed away made up a list of very specific tips for 
 applying. 
 
 There is a section on the forum for dealing with disability, and I found 
 this link there - not sure if it is Doc's but it looks helpful:
 http://myelitis.org/resources/disabilityapp.htm
 
 Something else that's odd - I don't see any link to the TMIC on the TMA web 
 site. There is a link for individual state support groups and the message 
 board, or forum, at myelitis.org/forum, but not this list. 
 
 Barbara H.
 
 
 On Sat, Jan 4, 2014 at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com 
 wrote:
 Year's ago an attorney from Texas wrote a message on how to qualify for 
 SSDI.  He gave the section of the SSDI rules that would allow many of us to 
 qualify first time.  Does anyone remember the message and how I can find it 
 again.
  
 Thanks,
 Cindy McLeroy
 

Re: [TMIC] SSDI - Doc

[cindymcleroy]

lori, thanks.  This info is very close to what Doc had written.  I seem to 
remember some of the #'s.  I'm going to post it to facebook.  I think some of 
the people applying for SSDI would find it valuable.

Thanks again.
Cindy

 Lori Biehler lbieh...@earthlink.net wrote: 

=
You can find the updated nomenclature on the SSDI site in the Blue Book. You 
just need to look on the neurology section. 
Lori

Sent from my iPhone

 On Jan 4, 2014, at 7:42 PM, Pat Voorheis pjv1...@chartermi.net wrote:
 
 The link Barbara gave is the one I was thinking of. I even had a copy of it 
 in my 5 to 10 year old notebook.  The highlighted info is what gave me hope 
 when I applied.  It also has a statement about two extremities being 
 impaired.  
 
 Patti
 
 On Jan 4, 2014, at 6:06 PM, Barbara H. barbara...@gmail.com wrote:
 
 There used to be - I was poking around the site just now and couldn't find 
 it. A man named Roger (I can't remember his last name) who went by Doc on 
 here before he passed away made up a list of very specific tips for 
 applying. 
 
 There is a section on the forum for dealing with disability, and I found 
 this link there - not sure if it is Doc's but it looks helpful:
 http://myelitis.org/resources/disabilityapp.htm
 
 Something else that's odd - I don't see any link to the TMIC on the TMA web 
 site. There is a link for individual state support groups and the message 
 board, or forum, at myelitis.org/forum, but not this list. 
 
 Barbara H.
 
 
 On Sat, Jan 4, 2014 at 4:22 PM, cindy mcleroy cindymcle...@socal.rr.com 
 wrote:
 Year's ago an attorney from Texas wrote a message on how to qualify for 
 SSDI.  He gave the section of the SSDI rules that would allow many of us to 
 qualify first time.  Does anyone remember the message and how I can find it 
 again.
  
 Thanks,
 Cindy McLeroy

RE: [TMIC] End of birthday lists

[amy shultz]

I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio

CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com

Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 
Patti - Michigan 
On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

Hello all,

Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.


I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.


2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)


3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.


4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.


So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.


I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.

Love,

Barbara H.


  

RE: [TMIC] End of birthday lists

[Dalton]

You've done a great job, Barbara;
Actually, the quietude here goes through stages. As for Facebook, or Faceplant, 
as I have recently come to call it, it is unsafe and prone to being hacked, as 
mine was, which led to my taking my accound and pages down. Possibly, after a 
few more hacking scandles, more will apprexiate the more secure email 
communication.
Dalton
PS: I went over to tea from coffee and now avoid magnesium, and the seizures 
are far less.
D.
Butbas we get older I pay less attention to birthdays. 

 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014  03:16  (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 
 
I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio

CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com

Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 

Patti - Michigan 

On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

Hello all,

Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.

I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)

3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.

So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.

Love,

Barbara H.

Re: [TMIC] End of birthday lists

[Linda Egli]

I agree with you Dalton.  I always check for posting from this site.  I also do 
not trust Facebook.  I have too many concern about privacy  hacking to use the 
site.  Maybe talk here will increase sometime.
Linda E.




 From: Dalton malugss...@gmail.com
To: amy shultz mic...@hotmail.com; Pat p...@voorheissigns.com; TM group 
tmic-list@eskimo.com 
Sent: Friday, January 3, 2014 6:07 AM
Subject: RE: [TMIC] End of birthday lists
 


You've done a great job, Barbara;
Actually, the quietude here goes through stages. As for Facebook, or Faceplant, 
as I have recently come to call it, it is unsafe and prone to being hacked, as 
mine was, which led to my taking my accound and pages down. Possibly, after a 
few more hacking scandles, more will apprexiate the more secure email 
communication.
Dalton
PS: I went over to tea from coffee and now avoid magnesium, and the seizures 
are far less.
D.
Butbas we get older I pay less attention to birthdays. 


 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014  03:16  (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 



I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio




CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com


Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 

Patti - Michigan 

On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:


Hello all,

Some of you may remember how the birthday lists started many years ago. 
Someone found an online site that would send e-cards to others as a support 
for a charity, so many of us sent in our names and birthdays so as to use the 
site to raise funds for the TMA. Not surprisingly, the site died after a 
while. A girl on the TMIC named Carrie and I had accumulated the birthday 
names and lists, and after she left the list, I continued to send them out 
once a month.

I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)

3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.

So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a 
very happy and healthy 2014.

Love,

Barbara H.

RE: [TMIC] End of birthday lists

[Linda Cherpeski]

Well my goodness hello Dalton,  you are so right.  We have been blessed for 
many years, Barbara and want to thank you.  I sure do miss this forum (TMIC) 
and hope that people will keep coming back.  I believe they will.  Dalton, your 
seizures are less from avoiding magnesium. That is great to hear.Had to 
snicker about birthdays as we get older  I'm right there with you!!  So nice 
to see all of you on here. Happy New Year!  May we all have better health and 
peace to all!
 
Linda (Boise, ID)
 
Date: Fri, 3 Jan 2014 07:07:36 -0500
Subject: RE: [TMIC] End of birthday lists
From: malugss...@gmail.com
To: mic...@hotmail.com; p...@voorheissigns.com; tmic-list@eskimo.com

You've done a great job, Barbara;Actually, the quietude here goes through 
stages. As for Facebook, or Faceplant, as I have recently come to call it, it 
is unsafe and prone to being hacked, as mine was, which led to my taking my 
accound and pages down. Possibly, after a few more hacking scandles, more will 
apprexiate the more secure email communication.DaltonPS: I went over to tea 
from coffee and now avoid magnesium, and the seizures are far less.D.Butbas we 
get older I pay less attention to birthdays. 


 Original message 
From: amy shultz mic...@hotmail.com 
Date: 01/03/2014  03:16  (GMT-05:00) 
To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com 
Subject: RE: [TMIC] End of birthday lists 
 

I completely understand Barbara. It seems this has gotten very very quite here. 
Although I am feeling more and more of an alien amongst the other TM groups 
this one has been okay. I appreciate ALL you have done to keep them coming. 
Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I 
am struggling day in and day out each and every day and am really run down!!  I 
hope EVERYONE of you has a VERY Happy New Year and that all your dreams come 
true!!  I will remain here for any messages but do offer my best to each and 
everyone of you!!!

Amy SHultz
Columbus Ohio

CC: tmic-list@eskimo.com
From: p...@voorheissigns.com
Subject: Re: [TMIC] End of birthday lists
Date: Tue, 31 Dec 2013 15:03:09 -0500
To: barbara...@gmail.com

Thanks Barbara.  You are correct in all your reasons. I'm still here on TMIC as 
well as on FBk and that's where I try to remember to send birthday greetings. 
Patti - Michigan 
On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote:

Hello all,

Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.


I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.


2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)


3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.


4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.


So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.


I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.

Love,

Barbara H.



  

[TMIC] End of birthday lists

[Barbara H.]

Hello all,

Some of you may remember how the birthday lists started many years ago.
Someone found an online site that would send e-cards to others as a support
for a charity, so many of us sent in our names and birthdays so as to use
the site to raise funds for the TMA. Not surprisingly, the site died after
a while. A girl on the TMIC named Carrie and I had accumulated the birthday
names and lists, and after she left the list, I continued to send them out
once a month.

I've decided to stop doing so, for a number of reasons.

1) Not many people are here any more. Many are on Facebook and it is easy
to send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send
individual greetings to anyone on it. (A few of you have faithfully sent
happy birthdays on TMIC to those celebrating each month as a whole, and I
have appreciated that.)

3) Since all mail that goes through the TMIC is archived online, I have
wondered if it is a problem to have lists of names and e-mails there, if
that increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the
list, and more and more of them are returned to me because the address is
no longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome
the birthday greetings or if they don't want me to bug them any more.

So for all of those reasons, plus the amount of time involved, I have
decided to stop sending the birthday lists out each month. I've just
finished updating it with the latest information I have - if anyone else
wants to take it over, I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a
very happy and healthy 2014.

Love,

Barbara H.

[TMIC] Happy New Year

[Nikki Macleod]

Hi everyone just a quick message to wish you all a very happy new year and best 
wishes for 2014. I hope you all had a lovely Xmas and have managed to avoid any 
health problems. I've noticed it's been rather quiet but I expect everyone is 
so busy at this time of year.
Best wishes,
Nikki
UK.

Sent from my iPhone

Re: [TMIC] Happy New Year

[fatimah shehadeh]

Happy new year to all.
Tima


On Tue, Dec 31, 2013 at 9:00 AM, Nikki Macleod nmacleo...@yahoo.co.ukwrote:

 Hi everyone just a quick message to wish you all a very happy new year and
 best wishes for 2014. I hope you all had a lovely Xmas and have managed to
 avoid any health problems. I've noticed it's been rather quiet but I expect
 everyone is so busy at this time of year.
 Best wishes,
 Nikki
 UK.

 Sent from my iPhone

Re: [TMIC] End of birthday lists

[Janice Nichols]

Barbara,

Thank you for all the work you went to to supply the birthday list.   I fully 
understand why you are not continuing with it.I also will always have this 
website open to whatever
comes up.   Maybe we have all said pretty much how we feel – physically, 
mentally, and emotionally – on the site. Anyway, thank you and I will catch 
any messages that come
on this website.

Janice


From: Barbara H. 
Sent: Tuesday, December 31, 2013 7:46 AM
To: tmic 
Subject: [TMIC] End of birthday lists

Hello all,


Some of you may remember how the birthday lists started many years ago. Someone 
found an online site that would send e-cards to others as a support for a 
charity, so many of us sent in our names and birthdays so as to use the site to 
raise funds for the TMA. Not surprisingly, the site died after a while. A girl 
on the TMIC named Carrie and I had accumulated the birthday names and lists, 
and after she left the list, I continued to send them out once a month.


I've decided to stop doing so, for a number of reasons. 

1) Not many people are here any more. Many are on Facebook and it is easy to 
send birthday greetings there.


2) I don't think many (if any) people use the birthday list to send individual 
greetings to anyone on it. (A few of you have faithfully sent happy birthdays 
on TMIC to those celebrating each month as a whole, and I have appreciated 
that.)


3) Since all mail that goes through the TMIC is archived online, I have 
wondered if it is a problem to have lists of names and e-mails there, if that 
increases anyone's spam content.


4) I have been sending out individual birthday greetings to everyone on the 
list, and more and more of them are returned to me because the address is no 
longer active.


5) For those who are no longer on the TMIC, I don't know if they welcome the 
birthday greetings or if they don't want me to bug them any more.


So for all of those reasons, plus the amount of time involved, I have decided 
to stop sending the birthday lists out each month. I've just finished updating 
it with the latest information I have - if anyone else wants to take it over, 
I'll be happy to send you the list.


I'm still here on the TMIC and plan to continue to be. I wish all of you a very 
happy and healthy 2014.


Love,


Barbara H.