[TMIC] Georgia members

Is there anybody living in Georgia that is on this list? Please let me know. I would like to set up some sort of meeting in April. Thanks! Debbie dnca...@gmail.com P BE GREEN! Please consider the environment before printing this e-mail

RE: [TMIC] Families

Nikki, Below is a link to a very good article regarding pregnancy and TM. We have heard many (wonderful) stories of women having children after having an attack of TM. One woman was paralyzed at age 12, and she has lead a productive life, got married, works full time, and her son is now 19 years

RE: [TMIC] Re: Provigil for TM?

Here are some informative articles about fatigue and TM, and the use of Provigil. http://www.myelitis.org/newsletters/j2/journal-2-10.htm http://www.myelitis.org/newsletters/v5n1/newsletter5-1-02.htm The above articles from the TMA Journals address fatigue issues for patients with TM.

Re: [TMIC] Foot Surgery

I have not had the achilles tendon procedure; however, I have had a few other surgical procedures on my foot because of the residuals of TM. The first one was to have all my toes (bones) fused to prevent them from curling from atrophy. One day in the surgical center and then a few weeks'

Re: [TMIC] Re: 10th!

I "celebrated" my 14th on December 30, two days after I celebrated my 34th anniversary with my husband:-) Debbie -Original Message- From: bobby jim Sent: Feb 3, 2011 7:07 PM To: Lori Biehler , TMIC Cc: Neil McNeil

RE: [TMIC] Returns

I know several millionaires who would not agree with you - if money could buy ability to walk, they would all be walking without aid of wheelchairs. When I had to learn to walk again and was released from the hospital in Minnesota to return to care in California, I could not get the new neuro to

[TMIC] Cindy McLeroy

Hi, I just got off the phone with Cindy. She is in better spirits now that they have her infection under control, but is not out of the woods yet. She could use a lot of thoughts and prayers and even a card or two. I am sure she would love to hear from her friends on the list, so here is her

RE: [TMIC] OT:Asking My Politician for Help

Hi Barbara, I totally agree with you. Knowing Cindy, she has a heart of gold and she goes out of her way to help others out of bad situations. She did apologize for her error, and all we can do is accept her apology and move on. All information that Cindy provides is information that she

RE: [TMIC]

Folks, You need to understand that the email address in the from line is NOT the actual sender of the email! Their computer has been hacked, or you can say that their address book has been hijacked by a spoofer who then sends out mass emails to everybody in their address book with these links.

RE: [TMIC] Symposium

Hi Regina, The symposium was in Dallas, and about 150 TM'ers and their caregivers attended, which made it a success. I met Linda from Idaho there, Todd Tarno and Cora were there. Those were the only people that I recognized from the tmic list. It will take a few weeks for the videographers to

[TMIC] Mike Hammond

I saw this great article about Mike Hammond who passed away recently, and who had been an active member on this list. http://www.heraldnet.com/article/20101010/NEWS01/710109909 He was such a nice guy. I met him first at the Seattle TMA Symposium in 1999. Take care, Debbie dca...@earthlink.net

RE: [TMIC] 18 year Anniversary

For those of us who are NOT fortunate enough to know Cindy personally, you need to know that she is confined to a wheelchair, but does not let the wheelchair confine her. She leads a very active life, serves on the board of an independent living center, runs the Southern California TM support

RE: [TMIC] Anyone else in Hawaii

According to the directory, there are about a half dozen TMA members in Hawaii. From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, September 29, 2010 8:18 PM To: James Berg; tmic-list@eskimo.com Subject: Re: [TMIC] Anyone else in Hawaii As far as I remember, I think you

[TMIC] Dallas Symposium

I am leaving for the symposium in Dallas in a few days. I hope to meet many of you there! Take care, Debbie

RE: [TMIC] Fw: Delivery Status Notification (Failure)

Because of the subject line, I had thought that somebody needed technical assistance, and/or was having difficulties submitting messages to the tmic list. I was mistaken. It seems to have nothing to do with that. From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, August 31,

RE: [TMIC]

Is it actually that you had MS and now you have TM, or just that the doctors speculated that you might have MS, and then after a while determined that your actual diagnosis is TM due to the results of your testing? Some doctors are very conservative in their diagnoses while others jump the gun

RE: [TMIC] just wondering

I believe that there is a talk by one of the Doctors at one of the symposia that is posted on the website that you could view on that subject. If it is not a video presentation, it will be a power point presentation. Please check the website at www.myelitis.org and click on symposiums. I do

[TMIC] Victory Junction

Hi All, I have returned from Victory Junction Camp in Randleman, North Carolina. I was one of the volunteer camp counselors for our Transverse Myelitis family week that the Nascar Petty family has promised to sponsor once every two years for our kids. (I have been home and back to work for a

Re: [TMIC] Linda Needs Some Help

From what I have learned, it should be taken in conjunction with Chondroitin and MSM to help the body absorb the better parts of it. I also have a gel that comes in a tube that I rub onto my knees and other "achy" areas so it doesn't even go into the bloodstream, thus preventing the risk of too

[TMIC] Fw: TMA meeting in VA August 15, 2009

I am forwarding this message to the list for a dear friend of mine who is the support group leader in the Southwest Virginia area. If any of you live nearby, she would love to meet you! Dear TMA members, ( all rare Neuro diseases we advocate for) My name is Drema and I live in Pulaski, VA.

Re: [TMIC] UNSUBSCRIBE PLEASE

Title: UNSUBSCRIBE PLEASE Please note that there is a different address that you need to send your email to in order to unsubscribe. The reason that we on the list see so many of these people unsubscribing is that they are all sending it to the wrong address. Please refer back to the website

Re: [TMIC] Transverse Myelitis Network

Ihave a membershipat Costco, and at Sam's Club. Why? Because I like one store for certain items which I can't get at the other store, and vice versa. Should I quit one membership and stay "loyal" to only one of the stores? Or can I go to both stores if I like? -Original Message- From:

Re: [TMIC] Transverse Myelitis Network

I have to respectfully add to Grace's comment below. She is absolutely correct when she states that the groups are formed to spread awareness of TM, ADEM, NMO and the other neuroimmunologic disorders. The TMA was not formed to hold a monopoly on support groups. It was formed as a non-profit

[TMIC] Re: Future Symposiums

Currently, there are no large symposia planned for the near future. The last one in 2008 was very energy, money and time draining, and so many of the TMA patients are unable to spend the money to attend, so the program is going to be re-vamped. There will most likely be smaller and more frequent

[TMIC] TENS Unit

Hello All, I thought I might mention this regarding the TENS unit. If you are going to be investing in this, you might want to consider the EMS unit instead. A TENS unit is for nerve stimulation to help with pain. The EMS unit is a muscle stimulator, used to waken up sleeping muscles or

[TMIC] Victory Junction

Hi Everybody, I know there are a few parents on the list who have children between the ages of 6-16. I sure hope that you have signed up to go to Victory Junction Family Camp this summer. The deadline to apply is in March. Everything is free for the week, you can also bring siblings, it is

[TMIC] Re: BONE-ROTTING DRUGS....

I forwarded the message on to Bob Cook, and he sent me this response to forward to the list. I HAVE NOT BEEN ON THE LIST IN QUITE A WHILE, BUT, YES, I HAVE HAD THE PROCEDURE REFERRED TO AS ABALATION FOR ATRIAL TACARDIA. IT WAS ABOUT 80 % SUCCESSFUL AND I WAS ABLE TO QUIT TAKING THE

[TMIC] Support Group Meetings

Anybody else been there?Hi Rob, Since my husband has become more involved in attending our TMA symposia, and has attended a few of the support group meetings in other states, he has become MUCH more enlightened! I can recall when he used to actually accuse me of taking illicit drugs, because I

Re: [TMIC] California Fires

Over 500 mobile homes destroyed in a mobile home park in the San Fernando Valley, with about 5 active fires right now, the evacuation toll was up to about 18,000 or more, but many people (who still have homes) are able to return. Cindy McLeroy is closer to the Anaheim Hills fires. I am more

[TMIC] Sarcoidosis

Check out Dr. Carlos Pardo's presentation at the 2008 Seattle Symposium at this page: http://www.myelitis.org/rnds2008/index.htm It is about Sarcoidosis. Dr. Pardo works for Dr. Doug Kerr at Johns Hopkins. Hope this helps. Take care, Debbie - Original Message - From: [EMAIL

[TMIC] re:dr. kerr

Donna was a speaker at our Seattle symposium with Dr. Kerr as the moderator (he wrote the foreword in her book). Donna was ill, so could not attend at the last minute, but we set up a web-cam conference with her from her home so that she could still speak to our group. It was very

[TMIC] Response regarding symposium

Hi, For some reason the original response was getting rejected by the tmic list server, so I am creating a new email with the response in this one. So far there are 97 people signed up to attend the symposium in Seattle. I hope that more people on the west side of the U.S. will be able to

Re: [TMIC] Re. Update for Janet

AOL EmailKen Oliver's address is in the TMA Membership Directory if you would like to mail him cards. He lives in New Mexico. Because of privacy issues, I will not publicly post his address without his permission. Take care, Debbie [EMAIL PROTECTED] - Original Message - From:

[TMIC] Incredible Site

Hello Everybody, I am posting this message at the request of a very sweet lady that I met in Montana last fall. She has TM and has such a positive attitude and outlook on life. Uyen has set up a website where she has listed items that she has created, mostly Asian artwork and beautiful

Re: [TMIC] Drug testing

Since I know Lori, and I know that she has a very important job that requires a lot of brainwork, I felt that I needed to comment on this. I manage a medical clinic that also does urinalysis testing for drugs. Companies send their potential employees in to us to be tested. We interview the

[TMIC] California Symposium

Just a reminder - for those of you who are waiting until the last minute - if you are mailing in check payment, the deadline for sending in check payment to Paula Lazzeri is February 15 for the Symposium in Anaheim. This is because Paula will be flying down to Anaheim a few days before the

[TMIC] California Symposium

Hello List, Just a reminder about the TMA California Symposium. The symposium will be on Saturday, February 23. It will be one day only. The cost for registration is $50.00. Our wonderful doctors from Johns Hopkins will be there for you to meet. The famous celebrated author Allen Rucker

[TMIC] For Sue Mattis

If Sue Mattis is out there, could she please send me an email? It seems to have changed, and we do not have her new email address. Thanks! Debbie [EMAIL PROTECTED]

[TMIC] TMA So. California Symposium

The arrangements have been finalized, the contracts have been signed. We are going to have a one-day symposium in Southern California! Chitra Krishnan, Dr. Kerr, Dr. Kaplin, Dr. Pidcock, and Dr. Levy will all be at the Paradise Pier hotel, next door to the Disneyland Hotel in Anaheim,

Re: [TMIC] IMPORTANT REMINDER

Jim has posted a very important message to us all. I have been subscribed to the tmic list for almost 11 years, and I can attest to the fact that if you post to the list, your information will be there for the world to share. I have used most search engines and typed in my own name, and now

[TMIC] zanaflex warninf-fda

I was asked to forward this to the list for those concerned, and for those who are using this medication. Dangerous Drug Interaction with Zanaflex (tizanidine) Use of Zanaflex with CYP1A2 inhibitors can lead to side effects such as severe hypotension and sedation...

[TMIC] Fw: FDA MedWatch: April 2007 Monthly Safety Labeling Changes Posted on Website

I was asked to forward this message to the list for anybody interested: From: CDER MEDWATCH LISTSERV [EMAIL PROTECTED] To: [EMAIL PROTECTED] Date: 7/17/2007 3:30:34 PM Subject: FDA MedWatch: April 2007 Monthly Safety Labeling Changes Posted on Website MedWatch - The FDA Safety

[TMIC] Fw: Allen Rucker on Montel Williams Tuesday June 12

For those of you who feel that nobody is working on contacting talk show hosts to get the word out about transverse myelitis, please read the following message. Also, please let all your friends and family know that Montel Williams show will be aired, and that they need to watch the show.

Re: [TMIC] #2 from Michigan!

Hi Deb, and those of you who responded to my plea for help, So far, we have the following states represented: Washington Louisiana Hawaii Ohio Idaho California North Carolina Pennsylvania New Jersey Maine Texas Michigan Georgia Maryland New York But Jim is now in sixth place with only 42

Re: [TMIC] It's a great time to give!

Hi Everybody, I am writing to say that I am just slightly disappointed at the lack of response to Jim's request to participate in this fundraiser. Out of the 100-plus people that are signed up with this list, only about 5-6 have responded. Jim has slipped into second place in the contest.

[TMIC] OT Fw: Dane's Story.

Hello Everybody, This is the latest update on Errol's grandson. Just click on the link to read the article of what little Dane went through. He is home now with his family. Errol wishes to thank all of you for your kind thoughts and prayers. Good afternoon folks, In our state newspaper

[TMIC] OT - Update on Errol's Baby

Good news from Australia! The baby is doing well and may be coming home soon! If anybody would like a picture of the baby, please let me know and I will send it to you privately. Errol thanks everybody who sent prayers and positive wishes their way. Prayers were answered and the nurses at

[TMIC] OT-Fw: Dane is Progressing.

I know that Mavis in Australia will be having a great birthday celebration, as her grandson is improving now. I have forwarded the latest update on Dane for all of you: Hello Everybody, Dane is out of ICU as of yesterday anddown in the high dependancy section of the childrens ward. He

Re: [TMIC] Fw: CAUSES OF TM --CHECK OUT THE RED HIGHLITES

Yes, we already knew this. I believe that Victoria is trying to link moldy walls to fungal infections, which are a totally different thing. Do a web search for "fungal infections" and it will show you exactly what a fungal infection is - no mention of mold. Ido not wishto dispute that

[TMIC] OT - Fw: Update on Dane White.

More good news from down under: Good evening everyone, We managed to get down to see Danetoday (Saturday) and it was so great to see him again. He is now six weeksold, had his first operation and is healing gradually. While I was at hiscot side, the doc and nurses removed his breathing

[TMIC] OT - GOOD NEWS!.

Hello, Errol's grandson had his surgery and all is looking well so far. Please read the below message from Errol. Thank you for all your prayers and well wishes, they reached Australia! Hello Everyone, Dane had his operation today. He was taken to the theatre at 7:30am and the procedure

[TMIC] OT: Little Dane White.

Hello all, If any of you are not interested in receiving information about Errol's grandson, please let me know. This information does not pertain to TM, but it does concern a member of our group that we love dearly, so I feel it important to keep you updated. If anybody feels this is

[TMIC] Fw: Latest re Dane White.

Hi Everybody, I am copying the latest information on Errol's grandson. Poor little guy needs a lot of help. Saturday, yesterday saw Mavis and myself drive down to see Dane in hospital. Dane is looking reasonably good, having regained his birth weight, he is allowed to breast feed each day

[TMIC] OT: Update on Errol

Hello again, Errol in Australia has so many friends on this list, and he wants me to pass on his many thanks for all of your prayers and kind thoughts. As his entire family is consumed by little Dane's health problems, he has not had a chance to thank you all individually, and until all is

[TMIC] Update on Errol

Actually this is an update on his tiny grandson. Errol asked me to pass along a message to all of you that he thanks you for all your kind thoughts and prayers during this trying time. I am copying excerpts of his message for all to read: - Original Message - From: Errol White

[TMIC] Baltimore Symposium

How many people will I be having the privilege of meeting or seeing againduring the TM symposium in Baltimore? I am really looking forward to it! Debbie[EMAIL PROTECTED]

[TMIC] Fw: An opportunity from Sandy

Hello Everybody, I am forwarding to you an email that I received from Sandy Siegel, the President of The Transverse Myelitis Association. I was going to just let you know of a wonderful opportunity to raise money for research of TM and to raise awareness of TM, but I could not improve on

[TMIC] Help

I am looking for the following people. If you know how I can contact them, please let me know, or if you are one of these people, please send me a private reply. Neil and Wendy Ross (Cole's Mom and Dad) Larry Throne from Oklahoma Glen Winkel If any of you know how to contact them, please

[TMIC] Loss of a Friend

Hello List members, I know that there are several of my friends who have been subscribed to the list for the past 9 or more years, who have had the opportunity to meet and get to know Dick and Deanne Gilmur, the parents of a young child who was diagnosed with transverse myelitis when she was