Re: [QUAD-L] AD?

[Bobbie Humphreys]

Greg,
  I wish I could help you but I just don't know. I hate to say this but 
everyone is different.
  Today I just found out I have a stage 4 wound on my butt.
  We all shouldn't have to go through all this crap for the rest of our lives.
Bobbie 

"Be the change you want to see in the world". Gandhi

> On Mar 28, 2018, at 3:45 PM, Greg  wrote:
> 
> When you get an AD Headache, does the pain stay in your head, or does your 
> chest cramp too? This morning, for no know reason, just getting dressed, I 
> thought my head was going to explode out my left eye. But my chest cramped so 
> hard it hurt too. Then my abdomen area starts to groan. As it groans, the 
> pressure starts to release.
> 
> Greg

Re: [QUAD-L] AD?

[Jeffrey Gaede]

It's a temporary medicine. Not sure what it's called but I kept it around at 
one time. You might ask a doctor. It's only for "emergencies".

  From: Greg 
 To: quad-list@eskimo.com 
 Sent: Wednesday, March 28, 2018 5:28 PM
 Subject: Re: [QUAD-L] AD?
   
 It could be gas, has been before. but not much going on now.
 When I get AD I do spasm a lot.
 Most of the time on me, its bowel or bladder.
 Or touching my crotch area when I get a yeast infection.
 As long as I can sit up, it goes away quickly.
 I fear taking lower blood pressure meds to lower it, since most of the time 
I'm dealing with low blood pressure. 
 
 Greg
 
 On 3/28/2018 2:33 PM, Jeffrey Gaede wrote:
  
  To me, A.D. involves increased blood pressure, thus the pounding in your head 
and perhaps the cramping in your chest.  If it gets to that point I'd either 
have a drug on hand to lower blood pressure, call 911, or take your chances… 
And I have had it stay in my head for a  while after the cause of it all has 
been eliminated.  Could have been gas? 
 
From: Greg 
 To: quad-list@eskimo.com 
 Sent: Wednesday, March 28, 2018 12:46 PM
 Subject: [QUAD-L] AD?
  
   When you get an AD Headache, does the pain stay in your head, or does your 
chest cramp too? This morning, for no know reason, just getting dressed, I 
thought my head was going to explode out my left eye. But my chest cramped so 
hard it hurt too. Then my abdomen area starts to groan. As it groans, the 
pressure starts to release. Greg
   
 
  
 
 

   

Re: [QUAD-L] AD?

[Greg]

It could be gas, has been before. but not much going on now.
When I get AD I do spasm a lot.
Most of the time on me, its bowel or bladder.
Or touching my crotch area when I get a yeast infection.
As long as I can sit up, it goes away quickly.
I fear taking lower blood pressure meds to lower it, since most of the 
time I'm dealing with low blood pressure.


Greg

On 3/28/2018 2:33 PM, Jeffrey Gaede wrote:
To me, A.D. involves increased blood pressure, thus the pounding in 
your head and perhaps the cramping in your chest.  If it gets to that 
point I'd either have a drug on hand to lower blood pressure, call 
911, or take your chances… And I have had it stay in my head for a 
while after the cause of it all has been eliminated.  Could have been gas?




*From:* Greg 
*To:* quad-list@eskimo.com
*Sent:* Wednesday, March 28, 2018 12:46 PM
*Subject:* [QUAD-L] AD?

When you get an AD Headache, does the pain stay in your head, or does 
your chest cramp too? This morning, for no know reason, just getting 
dressed, I thought my head was going to explode out my left eye. But 
my chest cramped so hard it hurt too. Then my abdomen area starts to 
groan. As it groans, the pressure starts to release.

Greg

Re: [QUAD-L] AD?

[Jeffrey Gaede]

To me, A.D. involves increased blood pressure, thus the pounding in your head 
and perhaps the cramping in your chest.  If it gets to that point I'd either 
have a drug on hand to lower blood pressure, call 911, or take your chances… 
And I have had it stay in my head for a while after the cause of it all has 
been eliminated.  Could have been gas?

  From: Greg 
 To: quad-list@eskimo.com 
 Sent: Wednesday, March 28, 2018 12:46 PM
 Subject: [QUAD-L] AD?
   
  When you get an AD Headache, does the pain stay in your head, or does your 
chest cramp too? This morning, for no know reason, just getting dressed, I 
thought my head was going to explode out my left eye. But my chest cramped so 
hard it hurt too. Then my abdomen area starts to groan. As it groans, the 
pressure starts to release. Greg
 

   

[QUAD-L] AD?

[Greg]

When you get an AD Headache, does the pain stay in your head, or does 
your chest cramp too? This morning, for no know reason, just getting 
dressed, I thought my head was going to explode out my left eye. But my 
chest cramped so hard it hurt too. Then my abdomen area starts to groan. 
As it groans, the pressure starts to release.


Greg

[QUAD-L] AD while urinating update & life insurance question

[Todd Daugherty]

Hi all,

After a few bowel movements over a two day period my symptoms have gone
away.  I am still going to the urologist but reschedlued it for a later
date.

As for the insurance, at my work I have about 450k of life insurance and am
trying to get another 500k 15-20yr term but my quote from Zander was denied
by everyone.

Any ideas on how to get another 500k so I can be at the recommended 10-12x
your income number?

Thanks

Todd D
43 yrs old, incomplete
ᐧ

RE: [QUAD-L] AD during urination

[Joan Anglin]

Velcro J

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, July 15, 2015 4:58 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD during urination

 

I say sew it on and seal it with plumbers putty. Can't feel it.so what the 
heck! Worth a shot! :):):):) ha

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Gail Holmes 
Date: July 15, 2015 at 7:43:30 PM EDT
To: "John S." 
Cc: "wheelch...@aol.com" , "todd.daughe...@gmail.com" 
, "quad-list@eskimo.com" 
Subject: Re: [QUAD-L] AD during urination

Umm, perhaps it was just me but I didn't quite understand the directions which 
prevent the external catheter from blowing off at night.

Could you please repeat the placement procedure for one of those nurses whose 
education was deficient in the mechanical and engineering sciences?

Sent from my iPhone




On Jul 15, 2015, at 2:22 PM, John S.  wrote:

 

A small tip, be sure your urine line never hangs down and then goes up to your 
bed bag. Put a coil of line beside you on the bed. This eliminates hydrolic 
back pressure and helps keep your external catheter from blowing off at night.

 

Fwd: [QUAD-L] AD during urination

[Larry Willis]

I say sew it on and seal it with plumbers putty. Can't feel it.so what the 
heck! Worth a shot! :):):):) ha

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Gail Holmes 
> Date: July 15, 2015 at 7:43:30 PM EDT
> To: "John S." 
> Cc: "wheelch...@aol.com" , "todd.daughe...@gmail.com" 
> , "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] AD during urination
> 
> Umm, perhaps it was just me but I didn't quite understand the directions 
> which prevent the external catheter from blowing off at night.
> 
> Could you please repeat the placement procedure for one of those nurses whose 
> education was deficient in the mechanical and engineering sciences?
> 
> Sent from my iPhone
> 
>> On Jul 15, 2015, at 2:22 PM, John S.  wrote:
>> 
>> A small tip, be sure your urine line never hangs down and then goes up to 
>> your bed bag. Put a coil of line beside you on the bed. This eliminates 
>> hydrolic back pressure and helps keep your external catheter from blowing 
>> off at night.
> 
> 

Re: [QUAD-L] AD during urination

[Gail Holmes]

Umm, perhaps it was just me but I didn't quite understand the directions which 
prevent the external catheter from blowing off at night.

Could you please repeat the placement procedure for one of those nurses whose 
education was deficient in the mechanical and engineering sciences?

Sent from my iPhone

> On Jul 15, 2015, at 2:22 PM, John S.  wrote:
> 
> A small tip, be sure your urine line never hangs down and then goes up to 
> your bed bag. Put a coil of line beside you on the bed. This eliminates 
> hydrolic back pressure and helps keep your external catheter from blowing off 
> at night.

Fwd: [QUAD-L] AD during urination

[Larry Willis]

I cath twice a day, getting up and going to bed. I pull the cath out slowly, in 
tiny increments, to get the residual in the bottom of the bladder. Every once 
in a while my bladder will feel very sore and spastic. It usually lasts 3-4 
days and gives me sweats and headache. I'll bet it is where the cath has 
irritated or caused a sore. I had never really thought of that before. I use 
Azo pills for the pain. They help but make you pee orange. I'm praying that I 
can maintain this routine for the number of days I have left. The sun shines 
bright on my old Kentucky home today. Tis beautiful on my front porch! Health, 
happiness, love, and Gods blessings to all my courageous quad peeps. You are 
all heroes.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Danny Hearn 
> Date: July 15, 2015 at 4:42:11 PM EDT
> To: "John S." , "wheelch...@aol.com" 
> , "todd.daughe...@gmail.com" , 
> "quad-list@eskimo.com" 
> Subject: Re: [QUAD-L] AD during urination
> Reply-To: Danny Hearn 
> 
> I'm sorry I read it wrong--thought you had to be cathed. dan
> 
> 
> 
> 
> On Wednesday, July 15, 2015 2:22 PM, John S.  wrote:
> 
> 
> Have you ever tried cathing for residual urine after you urinate. You may be 
> holding too much and not voiding enough. I know it may mean going back to 
> bladder training but it beats a stroke. A small tip, be sure your urine line 
> never hangs down and then goes up to your bed bag. Put a coil of line beside 
> you on the bed. This eliminates hydrolic back pressure and helps keep your 
> external catheter from blowing off at night.
> Strangely enough, nurses are forced to take courses like English lit and 
> European history but never any basic mechanical or engineering sciences.
> Best Wishes, 
> John s.
> 
> 
>  Original message ----
> From: wheelch...@aol.com 
> Date: 07/15/2015 12:34 PM (GMT-05:00) 
> To: todd.daughe...@gmail.com, quad-list@eskimo.com 
> Subject: Re: [QUAD-L] AD during urination 
> 
> any abrasion of the internal skin can/would cause that.  Perhaps that is why 
> your Uro wants a look see of your urethra. I hope its clear and nothing 
> serious.
> Best Wishes
>  
> In a message dated 7/15/2015 9:48:20 A.M. Central Daylight Time, 
> todd.daughe...@gmail.com writes:
> Hi all,
> 
> I am C6 inc post 26 years, switched over from cath to external condom cath 
> about 12 years ago. Recently, during urination I am getting AD symptoms, 
> headache, bp is going up, and as soon as I am done it goes away.  
> 
> Culture came back clean, no uti, and I have a urologist appointment next 
> week.  My bowels are completely clean and I'm not sure what to cherk next and 
> worried of they find nothing I will just be dealing with this for an extended 
> period of timewhich seems unbearable to think about.  
> 
> Thanks for your input.  
> 
> Todd D
> ᐧhave 
> 
> 

Re: [QUAD-L] AD during urination

[Danny Hearn]

I'm sorry I read it wrong--thought you had to be cathed. dan
 


 On Wednesday, July 15, 2015 2:22 PM, John S.  wrote:
   

 Have you ever tried cathing for residual urine after you urinate. You may be 
holding too much and not voiding enough. I know it may mean going back to 
bladder training but it beats a stroke. A small tip, be sure your urine line 
never hangs down and then goes up to your bed bag. Put a coil of line beside 
you on the bed. This eliminates hydrolic back pressure and helps keep your 
external catheter from blowing off at night.Strangely enough, nurses are forced 
to take courses like English lit and European history but never any basic 
mechanical or engineering sciences.Best Wishes, John s.

 Original message 
From: wheelch...@aol.com 
Date: 07/15/2015 12:34 PM (GMT-05:00) 
To: todd.daughe...@gmail.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] AD during urination 

any abrasion of the internal skin can/would cause that.  Perhaps that is why 
your Uro wants a look see of your urethra. I hope its clear and nothing 
serious.Best Wishes In a message dated 7/15/2015 9:48:20 A.M. Central Daylight 
Time, todd.daughe...@gmail.com writes:
 Hi all, 
 I am C6 inc post 26 years, switched over from cath to external condom cath 
about 12 years ago. Recently, during urination I am getting AD symptoms, 
headache, bp is going up, and as soon as I am done it goes away.   
 Culture came back clean, no uti, and I have a urologist appointment next week. 
 My bowels are completely clean and I'm not sure what to cherk next and worried 
of they find nothing I will just be dealing with this for an extended period of 
timewhich seems unbearable to think about.   
 Thanks for your input.   
 Todd D ᐧhave 


  

Re: [QUAD-L] AD during urination

[John S.]

Have you ever tried cathing for residual urine after you urinate. You may be 
holding too much and not voiding enough. I know it may mean going back to 
bladder training but it beats a stroke. A small tip, be sure your urine line 
never hangs down and then goes up to your bed bag. Put a coil of line beside 
you on the bed. This eliminates hydrolic back pressure and helps keep your 
external catheter from blowing off at night.Strangely enough, nurses are forced 
to take courses like English lit and European history but never any basic 
mechanical or engineering sciences.Best Wishes, John s.

 Original message 
From: wheelch...@aol.com 
Date: 07/15/2015  12:34 PM  (GMT-05:00) 
To: todd.daughe...@gmail.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] AD during urination 


any abrasion of the internal skin can/would cause that.  Perhaps that 
is why your Uro wants a look see of your urethra. I hope its clear and nothing 
serious.
Best Wishes
 

In a message dated 7/15/2015 9:48:20 A.M. Central Daylight Time, 
todd.daughe...@gmail.com writes:

  Hi all, 
  

  I am C6 inc post 26 years, switched over from cath to external condom 
  cath about 12 years ago. Recently, during urination I am getting AD symptoms, 
  headache, bp is going up, and as soon as I am done it goes away.  
  

  Culture came back clean, no uti, and I have a urologist appointment next 
  week.  My bowels are completely clean and I'm not sure what to cherk next 
  and worried of they find nothing I will just be dealing with this for an 
  extended period of timewhich seems unbearable to think about.  
  

  Thanks for your input.  
  

  Todd D
  ᐧhave 

Re: [QUAD-L] AD during urination

[Danny Hearn]

Yep, Wheel is right you can have an abrasion or raw spot inside...I was 
cathed 3 times a day, but after about 3 years I started getting ( strichters ) 
which means blockage inside me, they removed it twice but it kept coming back 
so my Urologist told me to get a Supra-pubic indwelling type catheter, best 
deciscion me and wife made we have had this method 15 years now and we both 
love not having to cath anymoreshe just drains my urine in the morning and 
at night at bedtime. good luck ! Dan H.** 


 On Wednesday, July 15, 2015 11:34 AM, "wheelch...@aol.com" 
 wrote:
   

 any abrasion of the internal skin can/would cause that.  Perhaps that is why 
your Uro wants a look see of your urethra. I hope its clear and nothing 
serious.Best Wishes In a message dated 7/15/2015 9:48:20 A.M. Central Daylight 
Time, todd.daughe...@gmail.com writes:
 Hi all, 
 I am C6 inc post 26 years, switched over from cath to external condom cath 
about 12 years ago. Recently, during urination I am getting AD symptoms, 
headache, bp is going up, and as soon as I am done it goes away.   
 Culture came back clean, no uti, and I have a urologist appointment next week. 
 My bowels are completely clean and I'm not sure what to cherk next and worried 
of they find nothing I will just be dealing with this for an extended period of 
timewhich seems unbearable to think about.   
 Thanks for your input.   
 Todd D ᐧ


  

Re: [QUAD-L] AD during urination

[wheelchair]

any abrasion of the internal skin can/would cause that.  Perhaps that  is 
why your Uro wants a look see of your urethra. I hope its clear and nothing  
serious.
Best Wishes
 
 
In a message dated 7/15/2015 9:48:20 A.M. Central Daylight Time,  
todd.daughe...@gmail.com writes:

Hi all,  


I am C6 inc post 26 years, switched over from cath to external condom  cath 
about 12 years ago. Recently, during urination I am getting AD symptoms,  
headache, bp is going up, and as soon as I am done it goes away.  


Culture came back clean, no uti, and I have a urologist appointment next  
week.  My bowels are completely clean and I'm not sure what to cherk next  
and worried of they find nothing I will just be dealing with this for an  
extended period of timewhich seems unbearable to think about.  


Thanks for your input.  


Todd D
ᐧ

[QUAD-L] AD during urination

[Todd Daugherty]

Hi all,

I am C6 inc post 26 years, switched over from cath to external condom cath
about 12 years ago. Recently, during urination I am getting AD symptoms,
headache, bp is going up, and as soon as I am done it goes away.

Culture came back clean, no uti, and I have a urologist appointment next
week.  My bowels are completely clean and I'm not sure what to cherk next
and worried of they find nothing I will just be dealing with this for an
extended period of timewhich seems unbearable to think about.

Thanks for your input.

Todd D
ᐧ

Re: [QUAD-L] AD issues still

[Quadius]

I was recently in the hospital and they were taking my blood pressure at
least twice a day. While I was in there I was taking regular stole
softeners twice a day and I noticed my blood pressure was almost normal all
the time. Sure it dropped when I got up, but it didn't go high like it does
at home.

I've only been home for three days and my blood pressure is 150/90 in bed.
I need to get back on the stool softeners.

On Friday, September 19, 2014,  wrote:

>  Greg, as you know, I've preached for daily bowel movement for years.
> Most people empty their bladders 5 or more times a day... and urine is
> almost sterile.  Feces is another matter.  Some people go twice a day,
> because feces is waste and waste produces... gas.
>
> Best Wishes
>
>  In a message dated 9/19/2014 2:40:55 P.M. Central Daylight Time,
> g...@eskimo.com  writes:
>
> My UTI and Yeast infection are gone, but the high BP and headaches keep
> coming back. It's just got to be my soft stool. When my body spasms, it
> must be spasming around my intestines that have some gas in them or
> something. Once I sit up and my stomach groans a bunch, my headache goes
> away. I've had soft stool since my UTI started.
> Greg
>
> > I'm having a similar problem. Sometimes my BP shoots up to 180/100.
> >
> > On Tuesday, September 2, 2014, Fragile  > wrote:
> >
> >> been having the same problem for about 2 years, don't know what
> >> is causing it, and Drs aren't interested in finding out
> >>
> >>
> >> On Tue, Sep 2, 2014 at 4:26 PM,  > wrote: I'm
> >> still having the A.D. issue. High blood pressure and pounding
> >> headache when I lay down or when washing my crotch area. While in
> >> the E.R (i.e. my last message) they CAT Scanned my head to make
> >> sure I didn't have a stroke. They also CAT Scanned my groin area
> >> again. I just had that done the night before at their sister
> >> hospital. First time they found nothing, this time they found a
> >> fluid filled cyst in my scrodum. They said it's common, and
> >> should not be painful. But they also found a yeast infection
> >> later. Probably from all the antibiotocs from my UTI. That seems
> >> to be the cause. I hope, it's been over a week now.
> >>
> >
> >>> Bad few weeks, 3 ER visits.
> > Greg
>
>

Re: [QUAD-L] AD issues still

[wheelchair]

Greg, as you know, I've preached for daily bowel movement for years.   Most 
people empty their bladders 5 or more times a day... and urine is almost  
sterile.  Feces is another matter.  Some people go twice a day,  because 
feces is waste and waste produces... gas.
 
Best Wishes
 
 
In a message dated 9/19/2014 2:40:55 P.M. Central Daylight Time,  
g...@eskimo.com writes:

My UTI and Yeast infection are gone, but  the high BP and headaches keep 
coming back. It's just got to be my soft stool.  When my body spasms, it must 
be spasming around my intestines that have some  gas in them or something. 
Once I sit up and my stomach groans a bunch, my  headache goes away. I've had 
soft stool since my UTI started.
Greg


> I'm having a similar  problem. Sometimes my BP shoots up to 180/100.
>
> On Tuesday, September 2,  2014, Fragile  wrote:
>
>> been having the  same problem for about 2 years, don't know what
>> is causing it, and  Drs aren't interested in finding out
>>
>>
>> On Tue, Sep 2, 2014  at 4:26 PM,  wrote: I'm
>> still having the  A.D. issue. High blood pressure and pounding
>> headache when I lay  down or when washing my crotch area. While in
>> the E.R (i.e. my  last message) they CAT Scanned my head to make
>> sure I didn't have  a stroke. They also CAT Scanned my groin area
>> again. I just had  that done the night before at their sister
>> hospital. First  time they found nothing, this time they found a
>> fluid filled cyst  in my scrodum. They said it's common, and
>> should not be  painful. But they also found a yeast infection
>> later. Probably  from all the antibiotocs from my UTI. That seems
>> to be the cause. I  hope, it's been over a week now.
>>
>
>>> Bad few weeks,  3 ER visits.
>  Greg

Re: [QUAD-L] AD issues still

[greg]

My UTI and Yeast infection are gone, but the high BP and headaches keep coming back. It's just got to be my soft stool. When my body spasms, it must be spasming around my intestines that have some gas in them or something. Once I sit up and my stomach groans a bunch, my headache goes away. I've had soft stool since my UTI started.
Greg
> I'm having a similar problem. Sometimes my BP shoots up to 180/100.
>
> On Tuesday, September 2, 2014, Fragile  wrote:
>
>> been having the same problem for about 2 years, don't know what
>> is causing it, and Drs aren't interested in finding out
>>
>>
>> On Tue, Sep 2, 2014 at 4:26 PM,  wrote: I'm
>> still having the A.D. issue. High blood pressure and pounding
>> headache when I lay down or when washing my crotch area. While in
>> the E.R (i.e. my last message) they CAT Scanned my head to make
>> sure I didn't have a stroke. They also CAT Scanned my groin area
>> again. I just had that done the night before at their sister
>> hospital. First time they found nothing, this time they found a
>> fluid filled cyst in my scrodum. They said it's common, and
>> should not be painful. But they also found a yeast infection
>> later. Probably from all the antibiotocs from my UTI. That seems
>> to be the cause. I hope, it's been over a week now.
>>
>
>>> Bad few weeks, 3 ER visits.
> Greg

Re: [QUAD-L] AD issues still

[Quadius]

I'm having a similar problem. Sometimes my BP shoots up to 180/100.

On Tuesday, September 2, 2014, Fragile  wrote:

> been having the same problem for about 2 years, don't know what is causing
> it, and Drs aren't interested in finding out
>
>
> On Tue, Sep 2, 2014 at 4:26 PM,  > wrote:
>
>> I’m still having the A.D. issue. High blood pressure and pounding
>> headache when I lay down or when washing my crotch area. While in the E.R
>> (i.e. my last message) they CAT Scanned my head to make sure I didn’t have
>> a stroke. They also CAT Scanned my groin area again. I just had that done
>> the night before at their sister hospital. First time they found nothing,
>> this time they found a fluid filled cyst in my scrodum. They said it’s
>> common, and should not be painful. But they also found a yeast infection
>> later. Probably from all the antibiotocs from my UTI. That seems to be the
>> cause. I hope, it’s been over a week now.
>> Bad few weeks, 3 ER visits.
>> Greg
>>
>>
>

Re: [QUAD-L] AD issues still

[Fragile]

been having the same problem for about 2 years, don't know what is causing
it, and Drs aren't interested in finding out


On Tue, Sep 2, 2014 at 4:26 PM,  wrote:

> I’m still having the A.D. issue. High blood pressure and pounding headache
> when I lay down or when washing my crotch area. While in the E.R (i.e. my
> last message) they CAT Scanned my head to make sure I didn’t have a stroke.
> They also CAT Scanned my groin area again. I just had that done the night
> before at their sister hospital. First time they found nothing, this time
> they found a fluid filled cyst in my scrodum. They said it’s common, and
> should not be painful. But they also found a yeast infection later.
> Probably from all the antibiotocs from my UTI. That seems to be the cause.
> I hope, it’s been over a week now.
> Bad few weeks, 3 ER visits.
> Greg
>
>

[QUAD-L] AD issues still

[quadmail]

I’m still having the A.D. issue. High blood pressure and pounding headache when 
I lay down or when washing my crotch area. While in the E.R (i.e. my last 
message) they CAT Scanned my head to make sure I didn’t have a stroke. They 
also CAT Scanned my groin area again. I just had that done the night before at 
their sister hospital. First time they found nothing, this time they found a 
fluid filled cyst in my scrodum. They said it’s common, and should not be 
painful. But they also found a yeast infection later. Probably from all the 
antibiotocs from my UTI. That seems to be the cause. I hope, it’s been over a 
week now.
Bad few weeks, 3 ER visits.
Greg

[QUAD-L] AD med

[Gah17582]

 
Hello fellow quads,
 
I'm just going to throw this one out there and we'll ponder over any  
replies.
 
I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post  SCI
have occasions where my blood pressure will be skyhigh in two minutes later 
 in the basement.
 
An example that I can use happen two months ago, just before we call the  
ambulance, my blood pressure with 80/50, after the ambulance arrived in less  
than five minutes my blood pressure went to 22?/13?.  In about 10 minutes  
into the transport it started fluctuating almost normal, 13?/8?.
 
Normally within about two weeks things would settle them, much more very  
low blood pressure then high blood pressure, then we would return to  normal.
 
This time, two months after the incident, my blood pressure remains high,  
at times reaching more than 200/13?.  In the evening I would go to sleep,  
wake up in about two hours with a fever of 100 plus and my heart would be  
elevated to 90 to 100.  My normal temps run in 97° range, normal heartbeat  
48, this morning my temperature was 95.6°.
 
Sound familiar?  What meds are you using if you get something  similar?
 
Later,
 
Glenn

[QUAD-L] AD med

[Gah17582]

Hello fellow quads,
 
I'm just going to throw this one out there and we'll ponder over any  
replies.
 
I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post  SCI
have occasions where my blood pressure will be skyhigh in two minutes later 
 in the basement.
 
An example that I can use happen two months ago, just before we call the  
ambulance, my blood pressure with 80/50, after the ambulance arrived in less  
than five minutes my blood pressure went to 22?/13?.  In about 10 minutes  
into the transport it started fluctuating almost normal, 13?/8?.
 
Normally within about two weeks things would settle them, much more very  
low blood pressure then high blood pressure, then we would return to  normal.
 
This time, two months after the incident, my blood pressure remains high,  
at times reaching more than 200/13?.  In the evening I would go to sleep,  
wake up in about two hours with a fever of 100 plus and my heart would be  
elevated to 90 to 100.  My normal temps run in 97° range, normal heartbeat  
48, this morning my temperature was 95.6°.
 
Sound familiar?  What meds are you using if you get something  similar?
 
Later,
 
Glenn Henry

RE: [QUAD-L] AD

[nichole rohling]

 

yes I agree!  I took the new blood pressure med last night after blood pressure 
was 152/110 after just putting the sling under me to transfer to the bed……this 
morning while getting up it was 154/115 but once I was in my chair it was 
73/52…….my norm is 90/60 J

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Monday, February 10, 2014 8:47 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

these doctors are guessing at best. they need to read about the definition of 
autonomic dysreflexia and maybe they could begin to comprehend. in any case 
nurse you hemmroids and get them well. keep emergency blood pressure meds close 
in case of a spike, but don't get your body all messed up by taking them 
everyday. high blood pressure isn't your problem, the prob is whats triggering 
the dysreflexia.

 

ron

keep From: Danny Hearn 
To: nichole rohling ; "quad-list@eskimo.com" 
 
Sent: Monday, February 10, 2014 6:40 PM
Subject: Re: [QUAD-L] AD

 

Nicki, after bowel routine have hemorrohid creme put on to help shrink them 
down and see if that helps at all, if you have not been trying that, good luck !

 

From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 6:34 PM
Subject: RE: [QUAD-L] AD

 

no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**

 

From: nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD

 

I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD

 

Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 

 

I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)

 

Nicki

 

 

 

RE: [QUAD-L] AD

[nichole rohling]

have an appt the 25th J

 

From: Rene Bullard [mailto:moip...@yahoo.com] 
Sent: Monday, February 10, 2014 7:32 PM
To: nichole rohling
Subject: Re: [QUAD-L] AD

 

I know its going to be time down but you need the the butty fixed then it well 
all go back to the old you...

 

 

On Monday, February 10, 2014 7:03 PM, nichole rohling  
wrote:

we’ve been doing it the night before J once we push it back in I’m good to go 

thanks

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 6:40 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Nicki, after bowel routine have hemorrohid creme put on to help shrink them 
down and see if that helps at all, if you have not been trying that, good luck !

 

From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 6:34 PM
Subject: RE: [QUAD-L] AD

 

no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**

 

From: nichole rohling we do it at night

I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD

 

Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 

 

I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)

 

Nicki

 

 

 

Re: [QUAD-L] AD

[Danny Hearn]

I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**

 


 From: nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
  


I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.
 
From:nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
 
Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 
 
I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)
 
Nicki

Re: [QUAD-L] AD

[RONALD L PRACHT]

these doctors are guessing at best. they need to read about the definition of 
autonomic dysreflexia and maybe they could begin to comprehend. in any case 
nurse you hemmroids and get them well. keep emergency blood pressure meds close 
in case of a spike, but don't get your body all messed up by taking them 
everyday. high blood pressure isn't your problem, the prob is whats triggering 
the dysreflexia.

ron


 keep From: Danny Hearn 
To: nichole rohling ; "quad-list@eskimo.com" 
 
Sent: Monday, February 10, 2014 6:40 PM
Subject: Re: [QUAD-L] AD
  


Nicki, after bowel routine have hemorrohid creme put on to help shrink them 
down and see if that helps at all, if you have not been trying that, good luck !
 


 From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 6:34 PM
Subject: RE: [QUAD-L] AD
  


no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!
 
Nicki
 
From:Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
 
I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**
 
From:nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
 
I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.
 
From:nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
 
Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 
 
I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)
 
Nicki

Re: [QUAD-L] AD episodes

[Quadius]

Yes. Ended up having an urostomy procedure done. I still have some pain, but I 
don't have the bouts with AD like I used to.
My recovery was pretty long and difficult, but all in all for me it was the 
only option other than continuing on with dysreflexia and other problems.
Q

Sent from my iPad

> On Feb 7, 2014, at 9:43 AM, Fragile  wrote:
> 
> Did you find a solution for bladder atrophy and the bladder wrapping around 
> the catheter?
> 
> 
>> On Thu, Feb 6, 2014 at 5:34 PM, Quadius  wrote:
>> I had some problems with pain and AD whenever I've had my suprapubic. I 
>> found that a lot of the problems were occurring because the catheter was 
>> rubbing against the back of the bladder. Have you tried tethering the 
>> catheter to your belly so that it doesn't slide into the bladder too far? 
>> You might also have a problem with bladder atrophy. Mine was pretty severe 
>> and it would happen at least once or twice a day that the catheter would 
>> stop draining  because the bladder had wrapped around the catheter.
>> Q
>> 
>> 
>> Sent from my iPad
>> 
>>> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
>>> 
>>> I've been having trouble with AD for the past 14 months after having a SP 
>>> cath put in.  The first few days after the catheter is changed, AD occurs 
>>> every 10 minutes or so.  Transferring in and out of my chair also sets it 
>>> off.  When getting dressed, any contact to the groin area also sets it off. 
>>>  The only thing that gets rid of it is to lay on my side. Blood pressure 
>>> gets up to 180/120.  Local Doctors are clueless.  The supposed "good" 
>>> doctors are 3 hours away, I'm afraid of trying to travel that far.
>>> 
>>> 
 On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
 I had a very bad AD "episode" back in 1986 before anybody knew what it was 
 and what he signs are.
 I was hospitalized for severe headache's, they ended up putting an elderly 
 woman who was almost complexly deaf in my room. Every person who came to 
 communicate with her had to SHOUT!
 It ended up having a full blown stroke on my right side. I couldn't speak 
 or move my left arm. Then I threw-up bile which was a clear indicator that 
 my gallbladder was very bad. After they removed it I got my speech back 
 and could move my left arm again ... I am SO LUCKY!
 As a result of the stroke I have some long-term memory loss.
 Bobbie
 
 Smile Everyday
> 

Re: [QUAD-L] AD episodes

[Quadius]

My primary physician mentioned that this might be an alternative for me. Trying 
to find something I can use to control spasms. They think my medication for 
bladder spasms might be causing spikes in my blood pressure. I'm not sure 
anymore. I have ceased taking the medication most of the time and I'm still 
spiking whenever I am in bed, but having normal blood pressure any other time.
Q


Sent from my iPad

> On Feb 7, 2014, at 9:58 AM, wheelch...@aol.com wrote:
> 
> For some, botex injections, inside the bladder, can help with bladder spasms. 
>  Not for everyone, it is best to check with your Uro to determine if you are 
> a candidate for this procedure.  Its also successfully used to prevent 
> bladder spillage with older/seniors with bladder issues.
> Best Wishes
>  
> In a message dated 2/7/2014 8:37:55 A.M. Central Standard Time, 
> swl...@gmail.com writes:
> Any time the catheter moves it triggers dysreflexia, so I keep it taped down. 
>  Draining the collection bag also triggers a very short episode of 
> dysreflexia, so I wonder if something is going on inside the bladder.  I 
> started using the duette catheter, so far it hasn't made any difference.
> 
> The only pain killer I've tried is aleve, unfortunately it hasn't helped.
> 
> The constant dysreflexia goes away after a couple of days following changing 
> the catheter.  Then it only hits during transfers, or draining the bag. 
> 
> 
>> On Thu, Feb 6, 2014 at 5:34 PM, Quadius  wrote:
>> I had some problems with pain and AD whenever I've had my suprapubic. I 
>> found that a lot of the problems were occurring because the catheter was 
>> rubbing against the back of the bladder. Have you tried tethering the 
>> catheter to your belly so that it doesn't slide into the bladder too far? 
>> You might also have a problem with bladder atrophy. Mine was pretty severe 
>> and it would happen at least once or twice a day that the catheter would 
>> stop draining  because the bladder had wrapped around the catheter.
>> Q
>> 
>> 
>> Sent from my iPad
>> 
>>> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
>>> 
>>> I've been having trouble with AD for the past 14 months after having a SP 
>>> cath put in.  The first few days after the catheter is changed, AD occurs 
>>> every 10 minutes or so.  Transferring in and out of my chair also sets it 
>>> off.  When getting dressed, any contact to the groin area also sets it off. 
>>>  The only thing that gets rid of it is to lay on my side. Blood pressure 
>>> gets up to 180/120.  Local Doctors are clueless.  The supposed "good" 
>>> doctors are 3 hours away, I'm afraid of trying to travel that far.
>>> 
>>> 
 On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
 I had a very bad AD "episode" back in 1986 before anybody knew what it was 
 and what he signs are.
 I was hospitalized for severe headache's, they ended up putting an elderly 
 woman who was almost complexly deaf in my room. Every person who came to 
 communicate with her had to SHOUT!
 It ended up having a full blown stroke on my right side. I couldn't speak 
 or move my left arm. Then I threw-up bile which was a clear indicator that 
 my gallbladder was very bad. After they removed it I got my speech back 
 and could move my left arm again ... I am SO LUCKY!
 As a result of the stroke I have some long-term memory loss.
 Bobbie
 
 Smile Everyday
> 

Re: [QUAD-L] AD

[Don Smith]

Check for ingrown toenails, cather placement any broken bones below injury.  
Just a few thoughts, hopefully some help.




 From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:34 PM
Subject: RE: [QUAD-L] AD
 


no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!
 
Nicki
 
From:Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
 
I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**
 
From:nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
 
I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.
 
From:nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
 
Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 
 
I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)
 
Nicki

RE: [QUAD-L] AD

[nichole rohling]

we’ve been doing it the night before J once we push it back in I’m good to go 

thanks

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 6:40 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Nicki, after bowel routine have hemorrohid creme put on to help shrink them 
down and see if that helps at all, if you have not been trying that, good luck !

 

From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 6:34 PM
Subject: RE: [QUAD-L] AD

 

no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**

 

From: nichole rohling we do it at night

I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD

 

Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 

 

I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)

 

Nicki

 

 

Re: [QUAD-L] AD

[Danny Hearn]

Nicki, after bowel routine have hemorrohid creme put on to help shrink them 
down and see if that helps at all, if you have not been trying that, good luck !

 


 From: nichole rohling 
To: 'Danny Hearn' ; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 6:34 PM
Subject: RE: [QUAD-L] AD
  


no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!
 
Nicki
 
From:Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
 
I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**
 
From:nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
 
I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.
 
From:nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
 
Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 
 
I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)
 
Nicki

RE: [QUAD-L] AD

[nichole rohling]

no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**

 

From: nichole rohling 
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD

 

I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD

 

Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 

 

I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)

 

Nicki

 

RE: [QUAD-L] AD

[nichole rohling]

I'm so frustratedwent to dr today and they're putting me on a high blood
pressure medicine (beta-blocker) because they think my headaches are causing
the high blood pressureif that were the cause then shouldn't we be
treating the headache and not the symptom...I so wish I lived close to a SCI
hospital.

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD

 

Just curious if anyone has had a bad case of AD and then experience
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and
now just putting the sling under me, unbuttoning my pants, coughing, taking
my shoes off, pulling wedge out from under my feet causes my blood pressure
to sky rocket. 

 

I've been taking a lortab and clonidine an hour before my aid gets here but
I'm still getting AD (this morning all I did was move my arm to get my water
and it made me have a throbbing headache)

 

Nicki

[QUAD-L] AD

[nichole rohling]

Just curious if anyone has had a bad case of AD and then experience
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and
now just putting the sling under me, unbuttoning my pants, coughing, taking
my shoes off, pulling wedge out from under my feet causes my blood pressure
to sky rocket. 

 

I've been taking a lortab and clonidine an hour before my aid gets here but
I'm still getting AD (this morning all I did was move my arm to get my water
and it made me have a throbbing headache)

 

Nicki

Re: [QUAD-L] AD episodes

[Fragile]

I asked the urologist about botox, he doesn't use it.  I'd have to travel
to ABQ, long rough trip.  Every bump in the road hurts.  Also been having
trouble with AD just from sitting up for a couple of hours.


On Fri, Feb 7, 2014 at 7:58 AM,  wrote:

>  For some, botex injections, inside the bladder, can help with bladder
> spasms.  Not for everyone, it is best to check with your Uro to determine
> if you are a candidate for this procedure.  Its also successfully used to
> prevent bladder spillage with older/seniors with bladder issues.
> Best Wishes
>
>  In a message dated 2/7/2014 8:37:55 A.M. Central Standard Time,
> swl...@gmail.com writes:
>
> Any time the catheter moves it triggers dysreflexia, so I keep it taped
> down.  Draining the collection bag also triggers a very short episode of
> dysreflexia, so I wonder if something is going on inside the bladder.  I
> started using the duette catheter, so far it hasn't made any difference.
>
> The only pain killer I've tried is aleve, unfortunately it hasn't helped.
>
> The constant dysreflexia goes away after a couple of days following
> changing the catheter.  Then it only hits during transfers, or draining the
> bag.
>
>
> On Thu, Feb 6, 2014 at 5:34 PM, Quadius  wrote:
>
>>  I had some problems with pain and AD whenever I've had my suprapubic. I
>> found that a lot of the problems were occurring because the catheter was
>> rubbing against the back of the bladder. Have you tried tethering the
>> catheter to your belly so that it doesn't slide into the bladder too far?
>> You might also have a problem with bladder atrophy. Mine was pretty severe
>> and it would happen at least once or twice a day that the catheter would
>> stop draining  because the bladder had wrapped around the catheter.
>> Q
>>
>>
>> Sent from my iPad
>>
>> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
>>
>>  I've been having trouble with AD for the past 14 months after having a
>> SP cath put in.  The first few days after the catheter is changed, AD
>> occurs every 10 minutes or so.  Transferring in and out of my chair also
>> sets it off.  When getting dressed, any contact to the groin area also sets
>> it off.  The only thing that gets rid of it is to lay on my side. Blood
>> pressure gets up to 180/120.  Local Doctors are clueless.  The supposed
>> "good" doctors are 3 hours away, I'm afraid of trying to travel that far.
>>
>>
>> On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
>>
>>> I had a very bad AD "episode" back in 1986 before anybody knew what it
>>> was and what he signs are.
>>> I was hospitalized for severe headache's, they ended up putting an
>>> elderly woman who was almost complexly deaf in my room. Every person who
>>> came to communicate with her had to SHOUT!
>>> It ended up having a full blown stroke on my right side. I couldn't
>>> speak or move my left arm. Then I threw-up bile which was a clear indicator
>>> that my gallbladder was very bad. After they removed it I got my speech
>>> back and could move my left arm again ... I am SO LUCKY!
>>> As a result of the stroke I have some long-term memory loss.
>>> Bobbie
>>>
>>> Smile Everyday
>>>
>>
>>
>

Re: [QUAD-L] AD episodes

[wheelchair]

Ooops.  I meant to say  BOTOX
Best Wishes
 
 
In a message dated 2/7/2014 8:43:24 A.M. Central Standard Time,  
swl...@gmail.com writes:

Did you find a solution for bladder atrophy and the bladder  wrapping 
around the catheter?


On Thu, Feb 6, 2014 at 5:34 PM, Quadius <_quadius@gmail.com_ 
(mailto:quad...@gmail.com) > wrote:


I had some problems with pain and AD whenever I've had my suprapubic. I  
found that a lot of the problems were occurring because the catheter was  
rubbing against the back of the bladder. Have you tried tethering the  catheter 
to your belly so that it doesn't slide into the bladder too far?  You might 
also have a problem with bladder atrophy. Mine was pretty severe  and it 
would happen at least once or twice a day that the catheter would  stop 
draining  because the bladder had wrapped around the  catheter.
Q





 

Re: [QUAD-L] AD episodes

[wheelchair]

For some, botex injections, inside the bladder, can help with bladder  
spasms.  Not for everyone, it is best to check with your Uro to determine  if 
you are a candidate for this procedure.  Its also successfully used to  
prevent bladder spillage with older/seniors with bladder issues.
Best Wishes
 
 
In a message dated 2/7/2014 8:37:55 A.M. Central Standard Time,  
swl...@gmail.com writes:

Any time the catheter moves it triggers dysreflexia, so I keep it  taped 
down.  Draining the collection bag also triggers a very short  episode of 
dysreflexia, so I wonder if something is going on inside the  bladder.  I 
started using the duette catheter, so far it hasn't made any  difference.

The only pain killer I've tried is aleve, unfortunately it  hasn't helped.

The constant dysreflexia goes away after a couple of  days following 
changing the catheter.  Then it only hits during  transfers, or draining the 
bag. 



On Thu, Feb 6, 2014 at 5:34 PM, Quadius <_quadius@gmail.com_ 
(mailto:quad...@gmail.com) > wrote:


I had some problems with pain and AD whenever I've had my suprapubic. I  
found that a lot of the problems were occurring because the catheter was  
rubbing against the back of the bladder. Have you tried tethering the  catheter 
to your belly so that it doesn't slide into the bladder too far?  You might 
also have a problem with bladder atrophy. Mine was pretty severe  and it 
would happen at least once or twice a day that the catheter would  stop 
draining  because the bladder had wrapped around the  catheter.
Q



Sent from my iPad
 
 

On Feb 5, 2014, at 9:34 AM, Fragile <_swlabr@gmail.com_ 
(mailto:swl...@gmail.com) > wrote:




I've been having trouble with AD for the past 14 months after  having a SP 
cath put in.  The first few days after the catheter is  changed, AD occurs 
every 10 minutes or so.  Transferring in and out  of my chair also sets it 
off.  When getting dressed, any contact to  the groin area also sets it off.  
The only thing that gets rid of it  is to lay on my side. Blood pressure 
gets up to 180/120.  Local  Doctors are clueless.  The supposed "good" doctors 
are 3 hours away,  I'm afraid of trying to travel that far.



On Tue, Feb 4, 2014 at 7:59 PM, Gmail <_bobbiehumphreys7@gmail.com_ 
(mailto:bobbiehumphre...@gmail.com) > wrote:

I had a very bad AD "episode" back in 1986 before  anybody knew what it was 
and what he signs are.
I was hospitalized  for severe headache's, they ended up putting an elderly 
woman who was  almost complexly deaf in my room. Every person who came to 
communicate  with her had to SHOUT!
It ended up having a full blown stroke on my  right side. I couldn't speak 
or move my left arm. Then I threw-up bile  which was a clear indicator that 
my gallbladder was very bad. After they  removed it I got my speech back and 
could move my left arm again ... I  am SO LUCKY!
As a result of the stroke I have some long-term memory  loss.
Bobbie

Smile  Everyday

Re: [QUAD-L] AD episodes

[Fragile]

Did you find a solution for bladder atrophy and the bladder wrapping around
the catheter?


On Thu, Feb 6, 2014 at 5:34 PM, Quadius  wrote:

> I had some problems with pain and AD whenever I've had my suprapubic. I
> found that a lot of the problems were occurring because the catheter was
> rubbing against the back of the bladder. Have you tried tethering the
> catheter to your belly so that it doesn't slide into the bladder too far?
> You might also have a problem with bladder atrophy. Mine was pretty severe
> and it would happen at least once or twice a day that the catheter would
> stop draining  because the bladder had wrapped around the catheter.
> Q
>
>
> Sent from my iPad
>
> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
>
> I've been having trouble with AD for the past 14 months after having a SP
> cath put in.  The first few days after the catheter is changed, AD occurs
> every 10 minutes or so.  Transferring in and out of my chair also sets it
> off.  When getting dressed, any contact to the groin area also sets it
> off.  The only thing that gets rid of it is to lay on my side. Blood
> pressure gets up to 180/120.  Local Doctors are clueless.  The supposed
> "good" doctors are 3 hours away, I'm afraid of trying to travel that far.
>
>
> On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
>
>> I had a very bad AD "episode" back in 1986 before anybody knew what it
>> was and what he signs are.
>> I was hospitalized for severe headache's, they ended up putting an
>> elderly woman who was almost complexly deaf in my room. Every person who
>> came to communicate with her had to SHOUT!
>> It ended up having a full blown stroke on my right side. I couldn't speak
>> or move my left arm. Then I threw-up bile which was a clear indicator that
>> my gallbladder was very bad. After they removed it I got my speech back and
>> could move my left arm again ... I am SO LUCKY!
>> As a result of the stroke I have some long-term memory loss.
>> Bobbie
>>
>> Smile Everyday
>>
>
>

Re: [QUAD-L] AD episodes

[Fragile]

Any time the catheter moves it triggers dysreflexia, so I keep it taped
down.  Draining the collection bag also triggers a very short episode of
dysreflexia, so I wonder if something is going on inside the bladder.  I
started using the duette catheter, so far it hasn't made any difference.

The only pain killer I've tried is aleve, unfortunately it hasn't helped.

The constant dysreflexia goes away after a couple of days following
changing the catheter.  Then it only hits during transfers, or draining the
bag.


On Thu, Feb 6, 2014 at 5:34 PM, Quadius  wrote:

> I had some problems with pain and AD whenever I've had my suprapubic. I
> found that a lot of the problems were occurring because the catheter was
> rubbing against the back of the bladder. Have you tried tethering the
> catheter to your belly so that it doesn't slide into the bladder too far?
> You might also have a problem with bladder atrophy. Mine was pretty severe
> and it would happen at least once or twice a day that the catheter would
> stop draining  because the bladder had wrapped around the catheter.
> Q
>
>
> Sent from my iPad
>
> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
>
> I've been having trouble with AD for the past 14 months after having a SP
> cath put in.  The first few days after the catheter is changed, AD occurs
> every 10 minutes or so.  Transferring in and out of my chair also sets it
> off.  When getting dressed, any contact to the groin area also sets it
> off.  The only thing that gets rid of it is to lay on my side. Blood
> pressure gets up to 180/120.  Local Doctors are clueless.  The supposed
> "good" doctors are 3 hours away, I'm afraid of trying to travel that far.
>
>
> On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
>
>> I had a very bad AD "episode" back in 1986 before anybody knew what it
>> was and what he signs are.
>> I was hospitalized for severe headache's, they ended up putting an
>> elderly woman who was almost complexly deaf in my room. Every person who
>> came to communicate with her had to SHOUT!
>> It ended up having a full blown stroke on my right side. I couldn't speak
>> or move my left arm. Then I threw-up bile which was a clear indicator that
>> my gallbladder was very bad. After they removed it I got my speech back and
>> could move my left arm again ... I am SO LUCKY!
>> As a result of the stroke I have some long-term memory loss.
>> Bobbie
>>
>> Smile Everyday
>>
>
>

Re: [QUAD-L] AD episodes

[Quadius]

I had some problems with pain and AD whenever I've had my suprapubic. I found 
that a lot of the problems were occurring because the catheter was rubbing 
against the back of the bladder. Have you tried tethering the catheter to your 
belly so that it doesn't slide into the bladder too far? You might also have a 
problem with bladder atrophy. Mine was pretty severe and it would happen at 
least once or twice a day that the catheter would stop draining  because the 
bladder had wrapped around the catheter.
Q


Sent from my iPad

> On Feb 5, 2014, at 9:34 AM, Fragile  wrote:
> 
> I've been having trouble with AD for the past 14 months after having a SP 
> cath put in.  The first few days after the catheter is changed, AD occurs 
> every 10 minutes or so.  Transferring in and out of my chair also sets it 
> off.  When getting dressed, any contact to the groin area also sets it off.  
> The only thing that gets rid of it is to lay on my side. Blood pressure gets 
> up to 180/120.  Local Doctors are clueless.  The supposed "good" doctors are 
> 3 hours away, I'm afraid of trying to travel that far.
> 
> 
>> On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:
>> I had a very bad AD "episode" back in 1986 before anybody knew what it was 
>> and what he signs are.
>> I was hospitalized for severe headache's, they ended up putting an elderly 
>> woman who was almost complexly deaf in my room. Every person who came to 
>> communicate with her had to SHOUT!
>> It ended up having a full blown stroke on my right side. I couldn't speak or 
>> move my left arm. Then I threw-up bile which was a clear indicator that my 
>> gallbladder was very bad. After they removed it I got my speech back and 
>> could move my left arm again ... I am SO LUCKY!
>> As a result of the stroke I have some long-term memory loss.
>> Bobbie
>> 
>> Smile Everyday
> 

RE: [QUAD-L] AD episodes

[nichole rohling]

Do you take any kind of pain medicine. You might even try Tylenol. This week
I've been taking 1 Lortab and a Clonidine about an hour before I get up and
it has helped tremendously.

 

Nicki

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Wednesday, February 05, 2014 12:16 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD episodes

 

There is a good chance the ad will lessen as time goes on. just make sure
you have meds to lower your bp if you start getting a pounding headache.

 

Ron

From: Fragile 
To: quad-list  
Sent: Wednesday, February 5, 2014 8:34 AM
Subject: Re: [QUAD-L] AD episodes

 

I've been having trouble with AD for the past 14 months after having a SP
cath put in.  The first few days after the catheter is changed, AD occurs
every 10 minutes or so.  Transferring in and out of my chair also sets it
off.  When getting dressed, any contact to the groin area also sets it off.
The only thing that gets rid of it is to lay on my side. Blood pressure gets
up to 180/120.  Local Doctors are clueless.  The supposed "good" doctors are
3 hours away, I'm afraid of trying to travel that far.

 

On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:

I had a very bad AD "episode" back in 1986 before anybody knew what it was
and what he signs are.
I was hospitalized for severe headache's, they ended up putting an elderly
woman who was almost complexly deaf in my room. Every person who came to
communicate with her had to SHOUT!
It ended up having a full blown stroke on my right side. I couldn't speak or
move my left arm. Then I threw-up bile which was a clear indicator that my
gallbladder was very bad. After they removed it I got my speech back and
could move my left arm again ... I am SO LUCKY!
As a result of the stroke I have some long-term memory loss.
Bobbie

Smile Everyday

 

 

Re: [QUAD-L] AD episodes

[RONALD L PRACHT]

There is a good chance the ad will lessen as time goes on. just make sure you 
have meds to lower your bp if you start getting a pounding headache.

Ron
 


 From: Fragile 
To: quad-list  
Sent: Wednesday, February 5, 2014 8:34 AM
Subject: Re: [QUAD-L] AD episodes
  


I've been having trouble with AD for the past 14 months after having a SP cath 
put in.  The first few days after the catheter is changed, AD occurs every 10 
minutes or so.  Transferring in and out of my chair also sets it off.  When 
getting dressed, any contact to the groin area also sets it off.  The only 
thing that gets rid of it is to lay on my side. Blood pressure gets up to 
180/120.  Local Doctors are clueless.  The supposed "good" doctors are 3 hours 
away, I'm afraid of trying to travel that far.




On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:

I had a very bad AD "episode" back in 1986 before anybody knew what it was and 
what he signs are.
>I was hospitalized for severe headache's, they ended up putting an elderly 
>woman who was almost complexly deaf in my room. Every person who came to 
>communicate with her had to SHOUT!
>It ended up having a full blown stroke on my right side. I couldn't speak or 
>move my left arm. Then I threw-up bile which was a clear indicator that my 
>gallbladder was very bad. After they removed it I got my speech back and could 
>move my left arm again ... I am SO LUCKY!
>As a result of the stroke I have some long-term memory loss.
>Bobbie
>
>Smile Everyday
>

Re: [QUAD-L] AD episodes

[Fragile]

I've been having trouble with AD for the past 14 months after having a SP
cath put in.  The first few days after the catheter is changed, AD occurs
every 10 minutes or so.  Transferring in and out of my chair also sets it
off.  When getting dressed, any contact to the groin area also sets it
off.  The only thing that gets rid of it is to lay on my side. Blood
pressure gets up to 180/120.  Local Doctors are clueless.  The supposed
"good" doctors are 3 hours away, I'm afraid of trying to travel that far.


On Tue, Feb 4, 2014 at 7:59 PM, Gmail  wrote:

> I had a very bad AD "episode" back in 1986 before anybody knew what it was
> and what he signs are.
> I was hospitalized for severe headache's, they ended up putting an elderly
> woman who was almost complexly deaf in my room. Every person who came to
> communicate with her had to SHOUT!
> It ended up having a full blown stroke on my right side. I couldn't speak
> or move my left arm. Then I threw-up bile which was a clear indicator that
> my gallbladder was very bad. After they removed it I got my speech back and
> could move my left arm again ... I am SO LUCKY!
> As a result of the stroke I have some long-term memory loss.
> Bobbie
>
> Smile Everyday
>

[QUAD-L] AD episodes

[Gmail]

I had a very bad AD "episode" back in 1986 before anybody knew what it was and 
what he signs are.
I was hospitalized for severe headache's, they ended up putting an elderly 
woman who was almost complexly deaf in my room. Every person who came to 
communicate with her had to SHOUT!
It ended up having a full blown stroke on my right side. I couldn't speak or 
move my left arm. Then I threw-up bile which was a clear indicator that my 
gallbladder was very bad. After they removed it I got my speech back and could 
move my left arm again ... I am SO LUCKY! 
As a result of the stroke I have some long-term memory loss.
Bobbie 

Smile Everyday

Re: [QUAD-L] AD

[Mike Mills]

Not sure, I'll ask at my next visit. 




 From: "wheelch...@aol.com" 
To: blackwood4...@yahoo.com; quad-list@eskimo.com 
Sent: Wednesday, March 13, 2013 8:42 PM
Subject: Re: [QUAD-L] AD
 

Ok, Understood.  That is what I thought but wanted to make sure.
Removing that muscle, leaves the bladder wide open and the Texas Cath 
Kit.  It sounds like your urethra collaped or scar'ed, requiring your 
present indwelling Foley.
Do they use Zylocaine?
Best Wishes 
 
In a message dated 3/13/2013 4:45:31 P.M. Central Daylight Time, 
blackwood4...@yahoo.com writes:

>
>My sphincter is completely removed. I wore a external condom for  over 30yrs, 
>but could no longer void my bladder. This led to hydronephrosis,  which almost 
>caused my kidneys to shut down. I started intermittent cath. 4  times a day, 
>but this caused numerous infections. Dr recommended a  sphincterotomy, 
>unfortunately I still could not void enough, so came the  foley.        
>
>
>
>
>
>
>
> From: "wheelch...@aol.com"  
>To: quad-list@eskimo.com 
>Sent: Tuesday, March 12, 2013 6:49  PM
>Subject: Re: [QUAD-L]  AD
>
>
>Interesting challenge Blackwood.  What is the condition of your  sphincter?  
>Is it intact and does it flex or rigid?
> 
>Best Wishes
> 
>In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time,  
>blackwood4...@yahoo.com writes:
>Once every 4 weeks. Started about a year ago.
>>
>>
>>
>>
>> From: nichole rohling  
>>To: 'Mike Mills'  ; "Quad-List@Eskimo. Com"  
>> 
>>Sent: Tuesday, March 12, 2013 3:01  PM
>>Subject: RE: [QUAD-L]  AD
>>
>>
>> 
>>Mike,
>> 
>>How  often do you have to change your catheter? 
>> 
>>Nicki
>> 
>>From:Mike Mills  [mailto:blackwood4...@yahoo.com] 
>>Sent: Tuesday, March 12, 2013  8:14 AM
>>To: nichole rohling; lwillis...@yahoo.com;  Quad-List@Eskimo. Com
>>Subject: Re: [QUAD-L]  AD
>> 
>>If I ever get to  the point were my Foley needs removing, I would need to see 
>>my Uro. in order  to replace it. Due to Urethral Sphincterotomy, I now have 
>>some type of  blockage (stricture). In order to replace Foley; a metal rod is 
>>inserted  into Foley, then slide into bladder with some force and a twist, 
>>leaving me  bleeding and stinging. Its not as bad as it sounds, but something 
>>else will  need to be done.
>>     
>> 
>>  
>> 
>>
>>
>> 
>>From:nichole rohling 
>>To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com"  
>>Sent: Monday, March 11, 2013 7:08 PM
>>Subject: RE:  [QUAD-L] AD
>>
>>
>>
>>I’m tellin’ you, I really was thinking I was going to  stroke out! I would 
>>get severe AD in the first year and the it just has  always been mild. I 
>>still have a bit of a headache and it’s been over 5 ½  hours ago.
>>Wouldn’t wish it on my worst enemy!
>>Nicki
>> 
>>From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
>>Sent: Monday, March 11, 2013 5:51 PM
>>To: quad-list@eskimo.com
>>Subject: Fwd: [QUAD-L] AD
>> 
>>Whew! I can feel your misery, Nikki. There is nothing  else in the world like 
>>it. Take care of yourself. Our old puny bodies can't  take much of that.
>>
>>Sent from my iPad
>>
>>Begin forwarded message:
>>Resent-From:quad-list@eskimo.com
>>>From: "nichole rohling" 
>>>Date: March 11, 2013, 3:28:18 PM EDT
>>>To: "Quad-List@Eskimo. Com" 
>>>Subject: [QUAD-L] AD
>>Wow! Nothing like a big dose of AD to start my week  off.  
>>> 
>>>My catheter has been stopping up so I went to dr 8  weeks ago (I’m sure I 
>>>have a bladder stone).  He ordered CT scan and  I’ve had to reschedule it 3 
>>>times in 6 weeks because of weather, getting  it done tomorrow (thank God).  
>>>My home health nurse told me not long  ago that when my cath stops up have 
>>>someone remove it until she gets here  and urine will flow out.  Normally, 
>>>(over the course of the last  almost 15 yrs) urine spasms out around cath so 
>>>I have never done  that.  UNTIL TODAY! Urine wasn’t leaking out, I was 
>>>having spasms in  my back, face and neck were fire engine red, my head was 
>>>POUNDING.  I  thought “here we go, I’m gonna have a stroke” before she gets 
>>>here! Then I  remembered, get the catheter out! My mom was able to get it 
>>>out and sure  enough, urine leaked out. Hated to pee in my pants but when AD 
>>>is that  bad……….it really didn’t matter!
>>> 
>>>Just wanted to share that if no urine is leaking out  remove the catheter 
>>>because it’s stopping up the body’s natural route for  urine to come out! 
>>>May have saved me from stroking out  today!!
>>> 
>>>Nicki
>>>c5/6
>> 
>>
>>
>
>

Re: [QUAD-L] AD

[wheelchair]

Ok, Understood.  That is what I thought but wanted to make sure.
Removing that muscle, leaves the bladder wide open and the Texas Cath  Kit. 
 It sounds like your urethra collaped or scar'ed, requiring your  present 
indwelling Foley.
Do they use Zylocaine?
Best Wishes 
 
 
In a message dated 3/13/2013 4:45:31 P.M. Central Daylight Time,  
blackwood4...@yahoo.com writes:

 


My sphincter is completely removed. I wore a external condom for  over 
30yrs, but could no longer void my bladder. This led to hydronephrosis,  which 
almost caused my kidneys to shut down. I started intermittent cath. 4  times 
a day, but this caused numerous infections. Dr recommended a  
sphincterotomy, unfortunately I still could not void enough, so came the  
foley.






 
  

 From: "wheelch...@aol.com"  
To: quad-list@eskimo.com 
Sent: Tuesday, March 12, 2013 6:49  PM
Subject: Re: [QUAD-L]  AD



 
Interesting challenge Blackwood.  What is the condition of your  sphincter? 
 Is it intact and does it flex or rigid?
 
Best Wishes
 
 
In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time,  
blackwood4...@yahoo.com writes:

 
Once every 4 weeks. Started about a year ago.



 
  

 From: nichole rohling  
To: 'Mike Mills'  ; "Quad-List@Eskimo. Com"  
 
Sent: Tuesday, March 12, 2013 3:01  PM
Subject: RE: [QUAD-L]  AD


  
 
 
Mike,
 
How  often do you have to change your catheter? 
 
Nicki
 
 
 
From: Mike Mills  [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013  8:14 AM
To: nichole rohling; lwillis...@yahoo.com;  Quad-List@Eskimo. Com
Subject: Re: [QUAD-L]  AD


 
 
 
If I ever get to  the point were my Foley needs removing, I would need to 
see my Uro. in order  to replace it. Due to Urethral Sphincterotomy, I now 
have some type of  blockage (stricture). In order to replace Foley; a metal 
rod is inserted  into Foley, then slide into bladder with some force and a 
twist, leaving me  bleeding and stinging. Its not as bad as it sounds, but 
something else will  need to be done.

 
 


 
 

 


 
 
 
  

 
From:  nichole rohling <_zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net) >
To:  _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com) ; 
"_Quad-List@Eskimo. Com_ (mailto:Quad-List@Eskimo.%20Com) " 
<_quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com) >  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE:  [QUAD-L] AD





 
 
 
I’m tellin’ you, I really was thinking I was going to  stroke out! I would 
get severe AD in the first year and the it just has  always been mild. I 
still have a bit of a headache and it’s been over 5 ½  hours ago.

 
Wouldn’t wish it on my worst enemy!

 
Nicki

 


 
 
 
From:  _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com)  
[_mailto:lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com) ]  
Sent: Monday, March 11, 2013 5:51 PM
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Fwd: [QUAD-L] AD



 


 
 
Whew! I can feel your misery, Nikki. There is nothing  else in the world 
like it. Take care of yourself. Our old puny bodies can't  take much of that.

Sent from my iPad


 
 

Begin forwarded message:



 
 
Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
From:  "nichole rohling" <_zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net) >
Date:  March 11, 2013, 3:28:18 PM EDT
To: "_Quad-List@Eskimo. Com_ (mailto:Quad-List@Eskimo.%20Com) " 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Subject:  [QUAD-L] AD




 
 
Wow! Nothing like a big dose of AD to start my week  off.  

 


 
My catheter has been stopping up so I went to dr 8  weeks ago (I’m sure I 
have a bladder stone).  He ordered CT scan and  I’ve had to reschedule it 3 
times in 6 weeks because of weather, getting  it done tomorrow (thank God).  
My home health nurse told me not long  ago that when my cath stops up have 
someone remove it until she gets here  and urine will flow out.  Normally, 
(over the course of the last  almost 15 yrs) urine spasms out around cath so I 
have never done  that.  UNTIL TODAY! Urine wasn’t leaking out, I was having 
spasms in  my back, face and neck were fire engine red, my head was 
POUNDING.  I  thought “here we go, I’m gonna have a stroke” before she gets 
here! 
Then I  remembered, get the catheter out! My mom was able to get it out and 
sure  enough, urine leaked out. Hated to pee in my pants but when AD is that 
 bad……….it really didn’t matter!

 


 
Just wanted to share that if no urine is leaking out  remove the catheter 
because it’s stopping up the body’s natural route for  urine to come out! 
May have saved me from stroking out  today!!

 


 
Nicki

 
c5/6






 

Re: [QUAD-L] AD

[Mike Mills]

My sphincter is completely removed. I wore a external condom for over 30yrs, 
but 
could no longer void my bladder. This led to hydronephrosis, which almost 
caused my kidneys to shut down. I started intermittent cath. 4 times a 
day, but this caused numerous infections. Dr recommended a sphincterotomy, 
unfortunately I still could not void enough, so came the foley.        





 From: "wheelch...@aol.com" 
To: quad-list@eskimo.com 
Sent: Tuesday, March 12, 2013 6:49 PM
Subject: Re: [QUAD-L] AD
 

Interesting challenge Blackwood.  What is the condition of your 
sphincter?  Is it intact and does it flex or rigid?
 
Best Wishes
 
In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time, 
blackwood4...@yahoo.com writes:
Once every 4 weeks. Started about a year ago.
>
>
>
>
> From: nichole rohling  
>To: 'Mike Mills'  ; "Quad-List@Eskimo. Com"  
> 
>Sent: Tuesday, March 12, 2013 3:01  PM
>Subject: RE: [QUAD-L]  AD
>
>
> 
>Mike,
> 
>How  often do you have to change your catheter? 
> 
>Nicki
> 
>From:Mike Mills  [mailto:blackwood4...@yahoo.com] 
>Sent: Tuesday, March 12, 2013 8:14  AM
>To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo.  Com
>Subject: Re: [QUAD-L] AD
> 
>If I ever get to  the point were my Foley needs removing, I would need to see 
>my Uro. in order  to replace it. Due to Urethral Sphincterotomy, I now have 
>some type of  blockage (stricture). In order to replace Foley; a metal rod is 
>inserted into  Foley, then slide into bladder with some force and a twist, 
>leaving me  bleeding and stinging. Its not as bad as it sounds, but something 
>else will  need to be done.
>     
> 
>  
> 
>
>____
> 
>From:nichole rohling 
>To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com"  
>Sent: Monday, March 11, 2013 7:08 PM
>Subject: RE:  [QUAD-L] AD
>
>
>
>I’m tellin’ you, I really was thinking I was going to  stroke out! I would get 
>severe AD in the first year and the it just has always  been mild. I still 
>have a bit of a headache and it’s been over 5 ½ hours  ago.
>Wouldn’t wish it on my worst enemy!
>Nicki
> 
>From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
>Sent: Monday, March 11, 2013 5:51 PM
>To: quad-list@eskimo.com
>Subject: Fwd: [QUAD-L] AD
> 
>Whew! I can feel your misery, Nikki. There is nothing  else in the world like 
>it. Take care of yourself. Our old puny bodies can't  take much of that.
>
>Sent from my iPad
>
>Begin forwarded message:
>Resent-From:quad-list@eskimo.com
>>From: "nichole rohling" 
>>Date: March 11, 2013, 3:28:18 PM EDT
>>To: "Quad-List@Eskimo. Com" 
>>Subject: [QUAD-L] AD
>Wow! Nothing like a big dose of AD to start my week  off.  
>> 
>>My catheter has been stopping up so I went to dr 8  weeks ago (I’m sure I 
>>have a bladder stone).  He ordered CT scan and  I’ve had to reschedule it 3 
>>times in 6 weeks because of weather, getting it  done tomorrow (thank God).  
>>My home health nurse told me not long ago  that when my cath stops up have 
>>someone remove it until she gets here and  urine will flow out.  Normally, 
>>(over the course of the last almost 15  yrs) urine spasms out around cath so 
>>I have never done that.  UNTIL  TODAY! Urine wasn’t leaking out, I was having 
>>spasms in my back, face and  neck were fire engine red, my head was POUNDING. 
>> I thought “here we  go, I’m gonna have a stroke” before she gets here! Then 
>>I remembered, get  the catheter out! My mom was able to get it out and sure 
>>enough, urine  leaked out. Hated to pee in my pants but when AD is that 
>>bad……….it really  didn’t matter!
>> 
>>Just wanted to share that if no urine is leaking out  remove the catheter 
>>because it’s stopping up the body’s natural route for  urine to come out! May 
>>have saved me from stroking out  today!!
>> 
>>Nicki
>>c5/6
> 
>
>

Re: [QUAD-L] AD

[jume9999]

That happens to me a lot, usually it is an infection. How does one determine if 
it is blocked? 

- Original Message -
From: "nichole rohling"  
To: jume9...@comcast.net, "Quad-List@Eskimo. Com"  
Sent: Wednesday, March 13, 2013 8:55:32 AM 
Subject: RE: [QUAD-L] AD 




Meredith, 



I get chills and when there is no urine in my bag we know it’s blocked. The 
headache is a result of blood pressure skyrocketing. 



Nicki 









From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: Tuesday, March 12, 2013 8:22 PM 
To: quad-list 
Subject: Re: [QUAD-L] AD 




How did you know that you were blocked? Was it headaches? It sounds awful. 

Meredith 
- Original Message -


From: "Mike Mills" < blackwood4...@yahoo.com > 
To: "nichole rohling" < zoocr...@windstream.net >, " Quad-List@Eskimo. Com " < 
quad-list@eskimo.com > 
Sent: Tuesday, March 12, 2013 3:41:56 PM 
Subject: Re: [QUAD-L] AD 



Once every 4 weeks. Started about a year ago. 









From: nichole rohling < zoocr...@windstream.net > 
To: 'Mike Mills' < blackwood4...@yahoo.com >; " Quad-List@Eskimo. Com " < 
quad-list@eskimo.com > 
Sent: Tuesday, March 12, 2013 3:01 PM 
Subject: RE: [QUAD-L] AD 







Mike, 





How often do you have to change your catheter? 





Nicki 







From: Mike Mills [ mailto:blackwood4...@yahoo.com ] 
Sent: Tuesday, March 12, 2013 8:14 AM 
To: nichole rohling; lwillis...@yahoo.com ; Quad-List@Eskimo. Com 
Subject: Re: [QUAD-L] AD 







If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done. 




















From: nichole rohling < zoocr...@windstream.net > 
To: lwillis...@yahoo.com ; " Quad-List@Eskimo. Com " < quad-list@eskimo.com > 
Sent: Monday, March 11, 2013 7:08 PM 
Subject: RE: [QUAD-L] AD 









I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago. 



Wouldn’t wish it on my worst enemy! 



Nicki 









From: lwillis...@yahoo.com [ mailto:lwillis...@yahoo.com ] 
Sent: Monday, March 11, 2013 5:51 PM 
To: quad-list@eskimo.com 
Subject: Fwd: [QUAD-L] AD 








Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that. 

Sent from my iPad 





Begin forwarded message: 






Resent-From: quad-list@eskimo.com 
From: "nichole rohling" < zoocr...@windstream.net > 
Date: March 11, 2013, 3:28:18 PM EDT 
To: " Quad-List@Eskimo. Com " < quad-list@eskimo.com > 
Subject: [QUAD-L] AD 








Wow! Nothing like a big dose of AD to start my week off. 







My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a 
bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 
weeks because of weather, getting it done tomorrow (thank God). My home health 
nurse told me not long ago that when my cath stops up have someone remove it 
until she gets here and urine will flow out. Normally, (over the course of the 
last almost 15 yrs) urine spasms out around cath so I have never done that. 
UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and 
neck were fire engine red, my head was POUNDING. I thought “here we go, I’m 
gonna have a stroke” before she gets here! Then I remembered, get the catheter 
out! My mom was able to get it out and sure enough, urine leaked out. Hated to 
pee in my pants but when AD is that bad……….it really didn’t matter! 







Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!! 







Nicki 



c5/6 

RE: [QUAD-L] AD

[nichole rohling]

Meredith,

 

I get chills and when there is no urine in my bag we know it’s blocked. The 
headache is a result of blood pressure skyrocketing.

 

Nicki

 

 

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: Tuesday, March 12, 2013 8:22 PM
To: quad-list
Subject: Re: [QUAD-L] AD

 

How did you know that you were blocked? Was it headaches? It sounds awful.

Meredith

  _  

From: "Mike Mills" 
To: "nichole rohling" , "Quad-List@Eskimo. Com 
<mailto:Quad-List@Eskimo.%20Com> " 
Sent: Tuesday, March 12, 2013 3:41:56 PM
Subject: Re: [QUAD-L] AD

Once every 4 weeks. Started about a year ago.

 

  _  

From: nichole rohling 
To: 'Mike Mills' ; "Quad-List@Eskimo. Com 
<mailto:Quad-List@Eskimo.%20Com> "  
Sent: Tuesday, March 12, 2013 3:01 PM
Subject: RE: [QUAD-L] AD

 

Mike,

 

How often do you have to change your catheter? 

 

Nicki

 

From: Mike Mills [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013 8:14 AM
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com
Subject: Re: [QUAD-L] AD

 

If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done.




 


  

 

  _  

From: nichole rohling 
To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com 
<mailto:Quad-List@Eskimo.%20Com> "  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE: [QUAD-L] AD

 

I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago.

Wouldn’t wish it on my worst enemy!

Nicki

 

From: lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD

 

Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: "nichole rohling" 
Date: March 11, 2013, 3:28:18 PM EDT
To: "Quad-List@Eskimo. Com <mailto:Quad-List@Eskimo.%20Com> " 

Subject: [QUAD-L] AD

Wow! Nothing like a big dose of AD to start my week off.  

 

My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a 
bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times in 6 
weeks because of weather, getting it done tomorrow (thank God).  My home health 
nurse told me not long ago that when my cath stops up have someone remove it 
until she gets here and urine will flow out.  Normally, (over the course of the 
last almost 15 yrs) urine spasms out around cath so I have never done that.  
UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and 
neck were fire engine red, my head was POUNDING.  I thought “here we go, I’m 
gonna have a stroke” before she gets here! Then I remembered, get the catheter 
out! My mom was able to get it out and sure enough, urine leaked out. Hated to 
pee in my pants but when AD is that bad……….it really didn’t matter!

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

 

 

Fwd: [QUAD-L] AD

[lwillis821]

When I got hurt back in 71, no one at my rehab had ever heard of AD. If they 
knew, it was never shared with me. When the sweat poured off my face, they 
would park me by the air conditioner which just tripled my misery. Does anyone 
know when AD was first diagnosed?

Sent from my iPad

Begin forwarded message:

> From: "nichole rohling" 
> Date: March 11, 2013, 7:08:32 PM EDT
> To: , "Quad-List@Eskimo. Com" 
> Subject: RE: [QUAD-L] AD
> 
> I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
> severe AD in the first year and the it just has always been mild. I still 
> have a bit of a headache and it’s been over 5 ½ hours ago.
> Wouldn’t wish it on my worst enemy!
> Nicki
>  
> From: lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
> Sent: Monday, March 11, 2013 5:51 PM
> To: quad-list@eskimo.com
> Subject: Fwd: [QUAD-L] AD
>  
> Whew! I can feel your misery, Nikki. There is nothing else in the world like 
> it. Take care of yourself. Our old puny bodies can't take much of that.
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
> Resent-From: quad-list@eskimo.com
> From: "nichole rohling" 
> Date: March 11, 2013, 3:28:18 PM EDT
> To: "Quad-List@Eskimo. Com" 
> Subject: [QUAD-L] AD
> 
> Wow! Nothing like a big dose of AD to start my week off. 
>  
> My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have 
> a bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times 
> in 6 weeks because of weather, getting it done tomorrow (thank God).  My home 
> health nurse told me not long ago that when my cath stops up have someone 
> remove it until she gets here and urine will flow out.  Normally, (over the 
> course of the last almost 15 yrs) urine spasms out around cath so I have 
> never done that.  UNTIL TODAY! Urine wasn’t leaking out, I was having spasms 
> in my back, face and neck were fire engine red, my head was POUNDING.  I 
> thought “here we go, I’m gonna have a stroke” before she gets here! Then I 
> remembered, get the catheter out! My mom was able to get it out and sure 
> enough, urine leaked out. Hated to pee in my pants but when AD is that 
> bad……….it really didn’t matter!
>  
> Just wanted to share that if no urine is leaking out remove the catheter 
> because it’s stopping up the body’s natural route for urine to come out! May 
> have saved me from stroking out today!!
>  
> Nicki
> c5/6

Re: [QUAD-L] AD

[diannal767]

lol, dave doesn't do hair either. he refuses to try!

my ex also changed my cath when needed but was by far the best hair dresser 
ever……….and I’m serious!
Nicki




-Original Message-
From: nichole rohling 
To: diannal767 ; Quad-List@Eskimo. Com 

Sent: Tue, Mar 12, 2013 9:24 pm
Subject: RE: [QUAD-L] AD



my ex also changed my cath when needed but was by far the best hair dresser 
ever……….and I’m serious!
Nicki
 

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Tuesday, March 12, 2013 6:40 PM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Thank you W. Yes, a nurse is suppose to do it here (Ohio). It's done on 'his 
time'. That is how my care plan is written. Care Star, the program through Ohio 
that deals with Medicaid Waivers and home health care is actually paying 
Independent Care Providers to change foleys and bowel programs. He hasn't 
submitted the paperwork. They consider an aide different because an an agency 
would never permit that.

He's a wonderful caregiver but certainly no angel! (smiling)


Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.


-Original Message-
From: wheelchair 
To: diannal767 ; quad-list 
Sent: Tue, Mar 12, 2013 6:53 pm
Subject: Re: [QUAD-L] AD

Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.

 

Best Wishes

 


In a message dated 3/12/2013 5:36:02 P.M. Central Daylight Time, 
diannal...@aol.com writes:


I have been very fortunate. My ex-husband (Dave), lives with me and has been my 
only long-term care-giver. We tried a few agencies but the help wasn't 
adequate. He changes my cath twice a month. He's been around the few times I 
went in to A.D. (blocked foleys). Those headaches are so bad one can not move 
fast enough to relieve the pain. I always get sleepy after AD. He's a 
independent health care provider.

22 yrs post.


Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.

Best Wishes

 


In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:


Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  




-Original Message-
From: wheelchair 
To: zoocrew1 ; quad-list 
Sent: Mon, Mar 11, 2013 4:57 pm
Subject: Re: [QUAD-L] AD

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.

Best Wishes

 


In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:


Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  

 


From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD


 


Nicki, I'm glad to read your story ending and hopefully the issue gets better.


 


Remember, when changing an indwelling cath... even in an emergency.. one 
has to maintain a sterile or clean area to remove the old cath and allow urine 
to pass and then install a new sterile cath.  I'm sure you will agree with that.


Best Wishes


 



Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!



 

Nicki

c5/6







 

RE: [QUAD-L] AD

[nichole rohling]

my ex also changed my cath when needed but was by far the best hair dresser 
ever……….and I’m serious!

Nicki

 

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Tuesday, March 12, 2013 6:40 PM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Thank you W. Yes, a nurse is suppose to do it here (Ohio). It's done on 'his 
time'. That is how my care plan is written. Care Star, the program through Ohio 
that deals with Medicaid Waivers and home health care is actually paying 
Independent Care Providers to change foleys and bowel programs. He hasn't 
submitted the paperwork. They consider an aide different because an an agency 
would never permit that.

He's a wonderful caregiver but certainly no angel! (smiling)

Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.

-Original Message-
From: wheelchair 
To: diannal767 ; quad-list 
Sent: Tue, Mar 12, 2013 6:53 pm
Subject: Re: [QUAD-L] AD

Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.

 

Best Wishes

 

In a message dated 3/12/2013 5:36:02 P.M. Central Daylight Time, 
diannal...@aol.com writes:

I have been very fortunate. My ex-husband (Dave), lives with me and has been my 
only long-term care-giver. We tried a few agencies but the help wasn't 
adequate. He changes my cath twice a month. He's been around the few times I 
went in to A.D. (blocked foleys). Those headaches are so bad one can not move 
fast enough to relieve the pain. I always get sleepy after AD. He's a 
independent health care provider.

22 yrs post.

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.

Best Wishes

 

In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  

-Original Message-
From: wheelchair 
To: zoocrew1 ; quad-list 
Sent: Mon, Mar 11, 2013 4:57 pm
Subject: Re: [QUAD-L] AD

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.

Best Wishes

 

In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com 
<mailto:wheelch...@aol.com?> ] 
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Nicki, I'm glad to read your story ending and hopefully the issue gets better.

 

Remember, when changing an indwelling cath... even in an emergency.. one 
has to maintain a sterile or clean area to remove the old cath and allow urine 
to pass and then install a new sterile cath.  I'm sure you will agree with that.

Best Wishes

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

Re: [QUAD-L] AD

[jume9999]

How did you know that you were blocked? Was it headaches? It sounds awful. 

Meredith 

- Original Message -
From: "Mike Mills"  
To: "nichole rohling" , "Quad-List@Eskimo. Com" 
 
Sent: Tuesday, March 12, 2013 3:41:56 PM 
Subject: Re: [QUAD-L] AD 



Once every 4 weeks. Started about a year ago. 





From: nichole rohling  
To: 'Mike Mills' ; "Quad-List@Eskimo. Com" 
 
Sent: Tuesday, March 12, 2013 3:01 PM 
Subject: RE: [QUAD-L] AD 





Mike, 

How often do you have to change your catheter? 

Nicki 



From: Mike Mills [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013 8:14 AM 
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com 
Subject: Re: [QUAD-L] AD 



If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done. 












From: nichole rohling < zoocr...@windstream.net > 
To: lwillis...@yahoo.com ; " Quad-List@Eskimo. Com " < quad-list@eskimo.com > 
Sent: Monday, March 11, 2013 7:08 PM 
Subject: RE: [QUAD-L] AD 







I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago. 

Wouldn’t wish it on my worst enemy! 

Nicki 





From: lwillis...@yahoo.com [ mailto:lwillis...@yahoo.com ] 
Sent: Monday, March 11, 2013 5:51 PM 
To: quad-list@eskimo.com 
Subject: Fwd: [QUAD-L] AD 




Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that. 

Sent from my iPad 



Begin forwarded message: 




Resent-From: quad-list@eskimo.com 
From: "nichole rohling" < zoocr...@windstream.net > 
Date: March 11, 2013, 3:28:18 PM EDT 
To: " Quad-List@Eskimo. Com " < quad-list@eskimo.com > 
Subject: [QUAD-L] AD 






Wow! Nothing like a big dose of AD to start my week off. 



My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a 
bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 
weeks because of weather, getting it done tomorrow (thank God). My home health 
nurse told me not long ago that when my cath stops up have someone remove it 
until she gets here and urine will flow out. Normally, (over the course of the 
last almost 15 yrs) urine spasms out around cath so I have never done that. 
UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and 
neck were fire engine red, my head was POUNDING. I thought “here we go, I’m 
gonna have a stroke” before she gets here! Then I remembered, get the catheter 
out! My mom was able to get it out and sure enough, urine leaked out. Hated to 
pee in my pants but when AD is that bad……….it really didn’t matter! 



Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!! 



Nicki 

c5/6 

Re: [QUAD-L] AD

[diannal767]

Thank you W. Yes, a nurse is suppose to do it here (Ohio). It's done on 'his 
time'. That is how my care plan is written. Care Star, the program through Ohio 
that deals with Medicaid Waivers and home health care is actually paying 
Independent Care Providers to change foleys and bowel programs. He hasn't 
submitted the paperwork. They consider an aide different because an an agency 
would never permit that.
He's a wonderful caregiver but certainly no angel! (smiling)

Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.




-Original Message-
From: wheelchair 
To: diannal767 ; quad-list 
Sent: Tue, Mar 12, 2013 6:53 pm
Subject: Re: [QUAD-L] AD


Diannal, your husband is also an angel.  I hear they come in various shapes, 
sizes and sexes. I applaud him for accepting the responsibility to change your 
cath.  In most areas, only registered nurses are allowed to do that, not health 
aides.  Just let him know that cath'ing males is still easier.
 
Best Wishes
 

In a message dated 3/12/2013 5:36:02 P.M. Central Daylight Time, 
diannal...@aol.com writes:
  
I have been very fortunate. My ex-husband (Dave), lives with me and has   been 
my only long-term care-giver. We tried a few agencies but the help wasn't   
adequate. He changes my cath twice a month. He's been around the few times I   
went in to A.D. (blocked foleys). Those headaches are so bad one can not move   
fast enough to relieve the pain. I always get sleepy after AD. He's a   
independent health care provider.
  
22 yrs post.
  
  

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  
I'm sure you were barking out orders while she was doing her best.  Men, 
come with instructions and a landing strip.  Women sitting have a fort with 
bunkers all the way around.  Again, not an easy task, but I'm glad 
everything worked out.

Best Wishes

 


In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

  
  
Yes   I would normally agree but today we had no choice but to deflate the  
 balloon and get it out while I was sitting in my chair. My mom is 68 and   
recently had wrist surgery (no possible way to get me to the bed and keep   
me elevated because of blood pressure) so sometimes, you do what you have   
to and clean up later J


  
  
  
  
-Original   Message-
From: wheelchair 
To: zoocrew1   ; quad-list   
Sent: Mon, Mar 11, 2013 4:57 pm
Subject:   Re: [QUAD-L] AD

  
  
Your Mom is an Angel.  That deed was not easy from all sides of the   issue.  
I'm sure you were barking out orders while she was doing her   best.  Men, come 
with instructions and a landing strip.  Women   sitting have a fort with 
bunkers all the way around.  Again, not an easy   task, but I'm glad everything 
worked out.
  
Best Wishes
  
 
  
  
In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:
  


Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep 
me elevated because of blood pressure) so sometimes, you do what you have 
to and clean up later J  

 



From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD


 


Nicki, I'm glad to read your story ending and hopefully the issue gets 
better.


 


Remember, when changing an indwelling cath... even in an emergency.. 
one has to maintain a sterile or clean area to remove the old cath and 
allow urine to pass and then install a new sterile cath.  I'm sure you will 
agree with that.


Best Wishes


 



Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! 
May have saved me from stroking out today!!

  
  
 
  
Nicki
  
c5/6





 

Re: [QUAD-L] AD

[wheelchair]

Diannal, your husband is also an angel.  I hear they come in various  
shapes, sizes and sexes. I applaud him for accepting the responsibility to  
change your cath.  In most areas, only registered nurses are allowed to do  
that, 
not health aides.  Just let him know that cath'ing males is still  easier.
 
Best Wishes
 
 
In a message dated 3/12/2013 5:36:02 P.M. Central Daylight Time,  
diannal...@aol.com writes:

I have been very fortunate. My ex-husband (Dave), lives with me and has  
been my only long-term care-giver. We tried a few agencies but the help wasn't 
 adequate. He changes my cath twice a month. He's been around the few times 
I  went in to A.D. (blocked foleys). Those headaches are so bad one can not 
move  fast enough to relieve the pain. I always get sleepy after AD. He's a 
 independent health care provider.
22 yrs post.
 
Your Mom is an Angel.  That deed was not easy from all sides of  the issue. 
 I'm sure you were barking out orders while she was doing  her best.  Men, 
come with instructions and a landing strip.  Women  sitting have a fort with 
bunkers all the way around.  Again, not an  easy task, but I'm glad 
everything worked out.
Best Wishes
 
 
In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

 
Yes  I would normally agree but today we had no choice but to deflate the  
balloon and get it out while I was sitting in my chair. My mom is 68 and  
recently had wrist surgery (no possible way to get me to the bed and keep  me 
elevated because of blood pressure) so sometimes, you do what you have  to 
and clean up later J   








-Original  Message-
From: wheelchair 
To: zoocrew1  ; quad-list  
Sent: Mon, Mar 11, 2013 4:57 pm
Subject:  Re: [QUAD-L] AD


Your Mom is an Angel.  That deed was not easy from all sides of the  issue. 
 I'm sure you were barking out orders while she was doing her  best.  Men, 
come with instructions and a landing strip.  Women  sitting have a fort with 
bunkers all the way around.  Again, not an easy  task, but I'm glad 
everything worked out.
Best Wishes
 
 
In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

 
Yes  I would normally agree but today we had no choice but to deflate the 
balloon  and get it out while I was sitting in my chair. My mom is 68 and 
recently  had wrist surgery (no possible way to get me to the bed and keep me 
elevated  because of blood pressure) so sometimes, you do what you have to 
and clean  up later J   

 
 
From: _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
[_mailto:wheelchair@aol.com_ (mailto:wheelch...@aol.com?) ]  
Sent: Monday, March 11, 2013 3:36 PM
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] AD


 
 
Nicki,  I'm glad to read your story ending and hopefully the issue gets  
better.

 


 
Remember,  when changing an indwelling cath... even in an emergency.. 
one has to  maintain a sterile or clean area to remove the old cath and allow 
urine to  pass and then install a new sterile cath.  I'm sure you will 
agree with  that.

 
Best  Wishes

 


 
 
Just  wanted to share that if no urine is leaking out remove the catheter 
because  it’s stopping up the body’s natural route for urine to come out! 
May have  saved me from stroking out today!!


 

Nicki
c5/6

Re: [QUAD-L] AD

[wheelchair]

Interesting challenge Blackwood.  What is the condition of your  sphincter? 
 Is it intact and does it flex or rigid?
 
Best Wishes
 
 
In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time,  
blackwood4...@yahoo.com writes:

 
Once every 4 weeks. Started about a year ago.



 
  

 From: nichole rohling  
To: 'Mike Mills'  ; "Quad-List@Eskimo. Com"  
 
Sent: Tuesday, March 12, 2013 3:01  PM
Subject: RE: [QUAD-L]  AD


  
 
 
Mike,
 
How  often do you have to change your catheter? 
 
Nicki
 
 
 
From: Mike Mills  [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013 8:14  AM
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo.  Com
Subject: Re: [QUAD-L] AD


 
 
 
If I ever get to  the point were my Foley needs removing, I would need to 
see my Uro. in order  to replace it. Due to Urethral Sphincterotomy, I now 
have some type of  blockage (stricture). In order to replace Foley; a metal 
rod is inserted into  Foley, then slide into bladder with some force and a 
twist, leaving me  bleeding and stinging. Its not as bad as it sounds, but 
something else will  need to be done.

 
 


 
 

 


 
 
 
  

 
From:  nichole rohling <_zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net) >
To:  _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com) ; 
"_Quad-List@Eskimo. Com_ (mailto:Quad-List@Eskimo.%20Com) " 
<_quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com) >  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE:  [QUAD-L] AD





 
 
 
I’m tellin’ you, I really was thinking I was going to  stroke out! I would 
get severe AD in the first year and the it just has always  been mild. I 
still have a bit of a headache and it’s been over 5 ½ hours  ago.

 
Wouldn’t wish it on my worst enemy!

 
Nicki

 


 
 
 
From: _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com)  
[_mailto:lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com) ]  
Sent: Monday, March 11, 2013 5:51 PM
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Fwd: [QUAD-L] AD



 


 
 
Whew! I can feel your misery, Nikki. There is nothing  else in the world 
like it. Take care of yourself. Our old puny bodies can't  take much of that.

Sent from my iPad


 
 

Begin forwarded message:



 
 
Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
From:  "nichole rohling" <_zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net) >
Date:  March 11, 2013, 3:28:18 PM EDT
To: "_Quad-List@Eskimo. Com_ (mailto:Quad-List@Eskimo.%20Com) " 
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Subject:  [QUAD-L] AD




 
 
Wow! Nothing like a big dose of AD to start my week  off.  

 


 
My catheter has been stopping up so I went to dr 8  weeks ago (I’m sure I 
have a bladder stone).  He ordered CT scan and  I’ve had to reschedule it 3 
times in 6 weeks because of weather, getting it  done tomorrow (thank God).  
My home health nurse told me not long ago  that when my cath stops up have 
someone remove it until she gets here and  urine will flow out.  Normally, 
(over the course of the last almost 15  yrs) urine spasms out around cath so I 
have never done that.  UNTIL  TODAY! Urine wasn’t leaking out, I was having 
spasms in my back, face and  neck were fire engine red, my head was 
POUNDING.  I thought “here we  go, I’m gonna have a stroke” before she gets 
here! 
Then I remembered, get  the catheter out! My mom was able to get it out and 
sure enough, urine  leaked out. Hated to pee in my pants but when AD is that 
bad……….it really  didn’t matter!

 


 
Just wanted to share that if no urine is leaking out  remove the catheter 
because it’s stopping up the body’s natural route for  urine to come out! 
May have saved me from stroking out  today!!

 


 
Nicki

 
c5/6






 

Re: [QUAD-L] AD

[Mike Mills]

Once every 4 weeks. Started about a year ago.




 From: nichole rohling 
To: 'Mike Mills' ; "Quad-List@Eskimo. Com" 
 
Sent: Tuesday, March 12, 2013 3:01 PM
Subject: RE: [QUAD-L] AD
 

Mike,
 
How often do you have to change your catheter? 
 
Nicki
 
From:Mike Mills [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013 8:14 AM
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com
Subject: Re: [QUAD-L] AD
 
If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done.
    
 
  
 



From:nichole rohling 
To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com"  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE: [QUAD-L] AD


I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago.
Wouldn’t wish it on my worst enemy!
Nicki
 
From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD
 
Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad

Begin forwarded message:
Resent-From:quad-list@eskimo.com
>From: "nichole rohling" 
>Date: March 11, 2013, 3:28:18 PM EDT
>To: "Quad-List@Eskimo. Com" 
>Subject: [QUAD-L] AD
Wow! Nothing like a big dose of AD to start my week off.  
> 
>My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have 
>a bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times in 
>6 weeks because of weather, getting it done tomorrow (thank God).  My home 
>health nurse told me not long ago that when my cath stops up have someone 
>remove it until she gets here and urine will flow out.  Normally, (over the 
>course of the last almost 15 yrs) urine spasms out around cath so I have never 
>done that.  UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my 
>back, face and neck were fire engine red, my head was POUNDING.  I thought 
>“here we go, I’m gonna have a stroke” before she gets here! Then I remembered, 
>get the catheter out! My mom was able to get it out and sure enough, urine 
>leaked out. Hated to pee in my pants but when AD is that bad……….it really 
>didn’t matter!
> 
>Just wanted to share that if no urine is leaking out remove the catheter 
>because it’s stopping up the body’s natural route for urine to come out! May 
>have saved me from stroking out today!!
> 
>Nicki
>c5/6

Re: [QUAD-L] AD

[diannal767]

I have been very fortunate. My ex-husband (Dave), lives with me and has been my 
only long-term care-giver. We tried a few agencies but the help wasn't 
adequate. He changes my cath twice a month. He's been around the few times I 
went in to A.D. (blocked foleys). Those headaches are so bad one can not move 
fast enough to relieve the pain. I always get sleepy after AD. He's a 
independent health care provider.
22 yrs post.

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.
Best Wishes
 

In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:
  
  
Yes   I would normally agree but today we had no choice but to deflate the 
balloon   and get it out while I was sitting in my chair. My mom is 68 and 
recently had   wrist surgery (no possible way to get me to the bed and keep me 
elevated   because of blood pressure) so sometimes, you do what you have to and 
clean up   later J  






-Original Message-
From: wheelchair 
To: zoocrew1 ; quad-list 
Sent: Mon, Mar 11, 2013 4:57 pm
Subject: Re: [QUAD-L] AD


Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.
Best Wishes
 

In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:
  
  
Yes   I would normally agree but today we had no choice but to deflate the 
balloon   and get it out while I was sitting in my chair. My mom is 68 and 
recently had   wrist surgery (no possible way to get me to the bed and keep me 
elevated   because of blood pressure) so sometimes, you do what you have to and 
clean up   later J
  
 
  
  
  
From:   wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March   11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re:   [QUAD-L] AD

  
 
  
  
Nicki,   I'm glad to read your story ending and hopefully the issue gets   
better.
  
  
 
  
  
Remember,   when changing an indwelling cath... even in an emergency.. one 
has to   maintain a sterile or clean area to remove the old cath and allow 
urine to   pass and then install a new sterile cath.  I'm sure you will agree 
with   that.
  
  
Best   Wishes
  
  
 
  
  
  
Just   wanted to share that if no urine is leaking out remove the catheter 
because   it’s stopping up the body’s natural route for urine to come out! May 
have   saved me from stroking out today!!
  


 

Nicki

c5/6



 

RE: [QUAD-L] AD

[nichole rohling]

Greg,

15 minutes is a long time when having severe AD.I had to wait about 30 
minutes yesterday..it was truly an emergency! Had CT scan this morning, I'd 
bet my life I have a bladder stone! I only made it a week and a half between 
cath changes this time! Ready to get it resolved!!

Nicki 

-Original Message-
From: greg [mailto:g...@eskimo.com] 
Sent: Tuesday, March 12, 2013 2:16 PM
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] AD

I only got that bad a few times.

Once when I was intermittent cathing. I was only a few years post injury and 
happened to be at the hospital visiting my former nurses. I was in the 
cafeteria and started sweating. I thought I'd last until we got home, but 
within minutes my head was going to explode. We rushed to the Rehab floor, but 
they had no caths there. They have a "Cath Team" that rotates around cathing 
people on a schedule. Or you have to page them. So I had to wait another 15 
minutes for someone to show up. At that time I never leaked. I was clamped 
tight. I went like 5 years and never leaked. Not until they were taking stones 
out and got one stuck in my urethra. It actually broke through the urethra wall 
before they got it out. After that I had to use condom caths. Until my SP. Now 
I try to always have a cath kit in my van.

Once from gas while doing my B-program. It lasted so long and so bad, I had to 
call 911 while still going... Embarrassing.. It was vary am-bare-assing at the 
time.

I think twice from a hip injury. It took like a week to find the cause. Ended 
up in the ER again.

Greg

> I'm tellin' you, I really was thinking I was going to stroke out! I 
> would get severe AD in the first year and the it just has alwaysI been 
> mild. I still have a bit of a headache and it's been over 5   hours 
> ago.I only got that bad a few times

RE: [QUAD-L] AD

[greg]

I only got that bad a few times.

Once when I was intermittent cathing. I was only a few years post injury and 
happened to be at the hospital visiting my former nurses. I was in the 
cafeteria and started sweating. I thought I'd last until we got home, but 
within minutes my head was going to explode. We rushed to the Rehab floor, but 
they had no caths there. They have a "Cath Team" that rotates around cathing 
people on a schedule. Or you have to page them. So I had to wait another 15 
minutes for someone to show up. At that time I never leaked. I was clamped 
tight. I went like 5 years and never leaked. Not until they were taking stones 
out and got one stuck in my urethra. It actually broke through the urethra wall 
before they got it out. After that I had to use condom caths. Until my SP. Now 
I try to always have a cath kit in my van.

Once from gas while doing my B-program. It lasted so long and so bad, I had to 
call 911 while still going... Embarrassing.. It was vary am-bare-assing at the 
time.

I think twice from a hip injury. It took like a week to find the cause. Ended 
up in the ER again.

Greg

> I'm tellin' you, I really was thinking I was going to stroke out! I
> would get severe AD in the first year and the it just has alwaysI
> been mild. I still have a bit of a headache and it's been over 5 ½
> hours ago.I only got that bad a few times

RE: [QUAD-L] AD

[nichole rohling]

Mike,

 

How often do you have to change your catheter? 

 

Nicki

 

From: Mike Mills [mailto:blackwood4...@yahoo.com] 
Sent: Tuesday, March 12, 2013 8:14 AM
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com
Subject: Re: [QUAD-L] AD

 

If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done.




 


  

 

  _  

From: nichole rohling 
To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com 
<mailto:Quad-List@Eskimo.%20Com> "  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE: [QUAD-L] AD





I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago.

Wouldn’t wish it on my worst enemy!

Nicki

 

From: lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD

 

Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: "nichole rohling" 
Date: March 11, 2013, 3:28:18 PM EDT
To: "Quad-List@Eskimo. Com <mailto:Quad-List@Eskimo.%20Com> " 

Subject: [QUAD-L] AD

Wow! Nothing like a big dose of AD to start my week off.  

 

My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a 
bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times in 6 
weeks because of weather, getting it done tomorrow (thank God).  My home health 
nurse told me not long ago that when my cath stops up have someone remove it 
until she gets here and urine will flow out.  Normally, (over the course of the 
last almost 15 yrs) urine spasms out around cath so I have never done that.  
UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and 
neck were fire engine red, my head was POUNDING.  I thought “here we go, I’m 
gonna have a stroke” before she gets here! Then I remembered, get the catheter 
out! My mom was able to get it out and sure enough, urine leaked out. Hated to 
pee in my pants but when AD is that bad……….it really didn’t matter!

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

 

Re: [QUAD-L] AD

[Mike Mills]

If I ever get to the point were my Foley needs removing, I would need to see my 
Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some 
type of blockage (stricture). In order to replace Foley; a metal rod is 
inserted into Foley, then slide into bladder with some force and a twist, 
leaving me bleeding and stinging. Its not as bad as it sounds, but something 
else will need to be done.
    


  



 From: nichole rohling 
To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com"  
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE: [QUAD-L] AD
 

I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago.
Wouldn’t wish it on my worst enemy!
Nicki
 
From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD
 
Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad

Begin forwarded message:
Resent-From: quad-list@eskimo.com
>From: "nichole rohling" 
>Date: March 11, 2013, 3:28:18 PM EDT
>To: "Quad-List@Eskimo. Com" 
>Subject: [QUAD-L] AD
Wow! Nothing like a big dose of AD to start my week off.  
> 
>My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have 
>a bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times in 
>6 weeks because of weather, getting it done tomorrow (thank God).  My home 
>health nurse told me not long ago that when my cath stops up have someone 
>remove it until she gets here and urine will flow out.  Normally, (over the 
>course of the last almost 15 yrs) urine spasms out around cath so I have never 
>done that.  UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my 
>back, face and neck were fire engine red, my head was POUNDING.  I thought 
>“here we go, I’m gonna have a stroke” before she gets here! Then I remembered, 
>get the catheter out! My mom was able to get it out and sure enough, urine 
>leaked out. Hated to pee in my pants but when AD is that bad……….it really 
>didn’t matter!
> 
>Just wanted to share that if no urine is leaking out remove the catheter 
>because it’s stopping up the body’s natural route for urine to come out! May 
>have saved me from stroking out today!!
> 
>Nicki
>c5/6

RE: [QUAD-L] AD

[nichole rohling]

I’m tellin’ you, I really was thinking I was going to stroke out! I would get 
severe AD in the first year and the it just has always been mild. I still have 
a bit of a headache and it’s been over 5 ½ hours ago.

Wouldn’t wish it on my worst enemy!

Nicki

 

From: lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD

 

Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: "nichole rohling" 
Date: March 11, 2013, 3:28:18 PM EDT
To: "Quad-List@Eskimo. Com <mailto:Quad-List@Eskimo.%20Com> " 

Subject: [QUAD-L] AD

Wow! Nothing like a big dose of AD to start my week off.  

 

My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a 
bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times in 6 
weeks because of weather, getting it done tomorrow (thank God).  My home health 
nurse told me not long ago that when my cath stops up have someone remove it 
until she gets here and urine will flow out.  Normally, (over the course of the 
last almost 15 yrs) urine spasms out around cath so I have never done that.  
UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and 
neck were fire engine red, my head was POUNDING.  I thought “here we go, I’m 
gonna have a stroke” before she gets here! Then I remembered, get the catheter 
out! My mom was able to get it out and sure enough, urine leaked out. Hated to 
pee in my pants but when AD is that bad……….it really didn’t matter!

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

Fwd: [QUAD-L] AD

[lwillis821]

Whew! I can feel your misery, Nikki. There is nothing else in the world like 
it. Take care of yourself. Our old puny bodies can't take much of that.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "nichole rohling" 
> Date: March 11, 2013, 3:28:18 PM EDT
> To: "Quad-List@Eskimo. Com" 
> Subject: [QUAD-L] AD
> 
> Wow! Nothing like a big dose of AD to start my week off. 
>  
> My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have 
> a bladder stone).  He ordered CT scan and I’ve had to reschedule it 3 times 
> in 6 weeks because of weather, getting it done tomorrow (thank God).  My home 
> health nurse told me not long ago that when my cath stops up have someone 
> remove it until she gets here and urine will flow out.  Normally, (over the 
> course of the last almost 15 yrs) urine spasms out around cath so I have 
> never done that.  UNTIL TODAY! Urine wasn’t leaking out, I was having spasms 
> in my back, face and neck were fire engine red, my head was POUNDING.  I 
> thought “here we go, I’m gonna have a stroke” before she gets here! Then I 
> remembered, get the catheter out! My mom was able to get it out and sure 
> enough, urine leaked out. Hated to pee in my pants but when AD is that 
> bad……….it really didn’t matter!
>  
> Just wanted to share that if no urine is leaking out remove the catheter 
> because it’s stopping up the body’s natural route for urine to come out! May 
> have saved me from stroking out today!!
>  
> Nicki
> c5/6

Re: [QUAD-L] AD

[wheelchair]

Ohhh The Nurse.  I thought your Mom cath'd you  (smiling).
So the nurse did the work in reinstalling your cath and filling the  bulb.
 
I've done but male and female cath changes and prefer males, as it is so  
much easier.  With females ya need a flashlight and a road map of the  female 
anatomy map. (females should have TATS with instructions) smiling
Best Wishes
 
 
In a message dated 3/11/2013 4:21:28 P.M. Central Daylight Time,  
zoocr...@windstream.net writes:

 
yes  she is. however, before she realized just how serious it was (like I 
said  earlier, normally urine leaks out) she told me “just don’t get it on 
your  sheets, I hate washing sheets twice a week”)…..lol 
when  she saw how red my face was and me holding my forehead because of the 
 headache, she was going to try to get the sling under me and transferred 
to  the bed, I had to insist she wasn’t doing it, I did not want her to mess 
up  her wrist! 
I  was giving orders for sure! She had everything out and ready for the  
nurse………J   Oh the books we all could write! 
I’m  sure ready for my CT scan, results, and get whatever done to fix my  
problem! 
Nicki 
 
 
From:  wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March  11, 2013 3:57 PM
To: zoocr...@windstream.net;  quad-list@eskimo.com
Subject: Re: [QUAD-L]  AD

 
Your  Mom is an Angel.  That deed was not easy from all sides of the  
issue.  I'm sure you were barking out orders while she was doing her  best.  
Men, 
come with instructions and a landing strip.  Women  sitting have a fort 
with bunkers all the way around.  Again, not an easy  task, but I'm glad 
everything worked out.
 
Best  Wishes
 

 
 
In a  message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

 
Yes  I would normally agree but today we had no choice but to deflate the 
balloon  and get it out while I was sitting in my chair. My mom is 68 and 
recently  had wrist surgery (no possible way to get me to the bed and keep me 
elevated  because of blood pressure) so sometimes, you do what you have to 
and clean  up later J
 
 
From:  _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
[_mailto:wheelchair@aol.com_ (mailto:wheelch...@aol.com) ]  
Sent: Monday, March 11, 2013 3:36 PM
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] AD

 
Nicki,  I'm glad to read your story ending and hopefully the issue gets  
better.
 

 
Remember,  when changing an indwelling cath... even in an emergency.. 
one has to  maintain a sterile or clean area to remove the old cath and allow 
urine to  pass and then install a new sterile cath.  I'm sure you will 
agree with  that.
 
Best  Wishes
 

 
 
Just  wanted to share that if no urine is leaking out remove the catheter 
because  it’s stopping up the body’s natural route for urine to come out! 
May have  saved me from stroking out today!!

 
Nicki 
c5/6

RE: [QUAD-L] AD

[nichole rohling]

thanks Shirley, I was almost in tears my head hurt so badhadn't had that
in probably 14 yrs...only mild dysreflexia.

 

Nicki 

 

From: shirley bell [mailto:sbell...@cox.net] 
Sent: Monday, March 11, 2013 3:48 PM
To: nichole rohling
Subject: Re: [QUAD-L] AD

 

sorry to hear this. glad you are ok.

Best,
Shirley Bell

 

www.ShirleyBellDesigns.com

- Original Message - 

From: nichole rohling <mailto:zoocr...@windstream.net>  

To: Quad-List@Eskimo. Com <mailto:Quad-List@Eskimo.%20Com>  

Sent: Monday, March 11, 2013 3:28 PM

Subject: [QUAD-L] AD

 

Wow! Nothing like a big dose of AD to start my week off.  

 

My catheter has been stopping up so I went to dr 8 weeks ago (I'm sure I
have a bladder stone).  He ordered CT scan and I've had to reschedule it 3
times in 6 weeks because of weather, getting it done tomorrow (thank God).
My home health nurse told me not long ago that when my cath stops up have
someone remove it until she gets here and urine will flow out.  Normally,
(over the course of the last almost 15 yrs) urine spasms out around cath so
I have never done that.  UNTIL TODAY! Urine wasn't leaking out, I was having
spasms in my back, face and neck were fire engine red, my head was POUNDING.
I thought "here we go, I'm gonna have a stroke" before she gets here! Then I
remembered, get the catheter out! My mom was able to get it out and sure
enough, urine leaked out. Hated to pee in my pants but when AD is that
badit really didn't matter!

 

Just wanted to share that if no urine is leaking out remove the catheter
because it's stopping up the body's natural route for urine to come out! May
have saved me from stroking out today!!

 

Nicki

c5/6

RE: [QUAD-L] AD

[nichole rohling]

yes she is. however, before she realized just how serious it was (like I said 
earlier, normally urine leaks out) she told me “just don’t get it on your 
sheets, I hate washing sheets twice a week”)…..lol

when she saw how red my face was and me holding my forehead because of the 
headache, she was going to try to get the sling under me and transferred to the 
bed, I had to insist she wasn’t doing it, I did not want her to mess up her 
wrist!

I was giving orders for sure! She had everything out and ready for the 
nurse………J  Oh the books we all could write!

 

I’m sure ready for my CT scan, results, and get whatever done to fix my problem!

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March 11, 2013 3:57 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Your Mom is an Angel.  That deed was not easy from all sides of the issue.  I'm 
sure you were barking out orders while she was doing her best.  Men, come with 
instructions and a landing strip.  Women sitting have a fort with bunkers all 
the way around.  Again, not an easy task, but I'm glad everything worked out.

Best Wishes

 

In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Nicki, I'm glad to read your story ending and hopefully the issue gets better.

 

Remember, when changing an indwelling cath... even in an emergency.. one 
has to maintain a sterile or clean area to remove the old cath and allow urine 
to pass and then install a new sterile cath.  I'm sure you will agree with that.

Best Wishes

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

Re: [QUAD-L] AD

[wheelchair]

Your Mom is an Angel.  That deed was not easy from all sides of the  issue. 
 I'm sure you were barking out orders while she was doing her  best.  Men, 
come with instructions and a landing strip.  Women sitting  have a fort with 
bunkers all the way around.  Again, not an easy task, but  I'm glad 
everything worked out.
Best Wishes
 
 
In a message dated 3/11/2013 3:49:10 P.M. Central Daylight Time,  
zoocr...@windstream.net writes:

 
Yes  I would normally agree but today we had no choice but to deflate the 
balloon  and get it out while I was sitting in my chair. My mom is 68 and 
recently had  wrist surgery (no possible way to get me to the bed and keep me 
elevated  because of blood pressure) so sometimes, you do what you have to 
and clean up  later J
 
 
From:  wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March  11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re:  [QUAD-L] AD

 
Nicki,  I'm glad to read your story ending and hopefully the issue gets  
better.
 

 
Remember,  when changing an indwelling cath... even in an emergency.. 
one has to  maintain a sterile or clean area to remove the old cath and allow 
urine to  pass and then install a new sterile cath.  I'm sure you will 
agree with  that.
 
Best  Wishes
 

 
 
Just  wanted to share that if no urine is leaking out remove the catheter 
because  it’s stopping up the body’s natural route for urine to come out! 
May have  saved me from stroking out today!!

 
Nicki 
c5/6

RE: [QUAD-L] AD

[nichole rohling]

Yes I would normally agree but today we had no choice but to deflate the 
balloon and get it out while I was sitting in my chair. My mom is 68 and 
recently had wrist surgery (no possible way to get me to the bed and keep me 
elevated because of blood pressure) so sometimes, you do what you have to and 
clean up later J  

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD

 

Nicki, I'm glad to read your story ending and hopefully the issue gets better.

 

Remember, when changing an indwelling cath... even in an emergency.. one 
has to maintain a sterile or clean area to remove the old cath and allow urine 
to pass and then install a new sterile cath.  I'm sure you will agree with that.

Best Wishes

 

Just wanted to share that if no urine is leaking out remove the catheter 
because it’s stopping up the body’s natural route for urine to come out! May 
have saved me from stroking out today!!

 

Nicki

c5/6

Re: [QUAD-L] AD

[wheelchair]

Nicki, I'm glad to read your story ending and hopefully the issue gets  
better.
 
Remember, when changing an indwelling cath... even in an emergency..  
one has to maintain a sterile or clean area to remove the old cath and allow  
urine to pass and then install a new sterile cath.  I'm sure you will agree 
 with that.
Best Wishes
 
 
Just wanted to share that if no urine is leaking out remove the  catheter 
because it’s stopping up the body’s natural route for urine to come  out! 
May have saved me from stroking out today!!

 
Nicki 
c5/6

[QUAD-L] AD

[nichole rohling]

Wow! Nothing like a big dose of AD to start my week off.  

 

My catheter has been stopping up so I went to dr 8 weeks ago (I'm sure I
have a bladder stone).  He ordered CT scan and I've had to reschedule it 3
times in 6 weeks because of weather, getting it done tomorrow (thank God).
My home health nurse told me not long ago that when my cath stops up have
someone remove it until she gets here and urine will flow out.  Normally,
(over the course of the last almost 15 yrs) urine spasms out around cath so
I have never done that.  UNTIL TODAY! Urine wasn't leaking out, I was having
spasms in my back, face and neck were fire engine red, my head was POUNDING.
I thought "here we go, I'm gonna have a stroke" before she gets here! Then I
remembered, get the catheter out! My mom was able to get it out and sure
enough, urine leaked out. Hated to pee in my pants but when AD is that
badit really didn't matter!

 

Just wanted to share that if no urine is leaking out remove the catheter
because it's stopping up the body's natural route for urine to come out! May
have saved me from stroking out today!!

 

Nicki

c5/6

[QUAD-L] AD

[stillspara]

Video presentation and information about Autonomic Dysreflexia (AD), what it 
is, why it happens, how to treat it, etc.  

http://sci.washington.edu/info/forums/reports/autonomic_dysreflexia.asp 



Lots of other videos on a variety of SCI topics at: 
http://sci.washington.edu/info/forums/forum_videos.asp 



On Thu, 28 Jun 2012, John S. wrote: 

> Date: Thu, 28 Jun 2012 09:47:50 -0700 (PDT) 
> From: John S. < alcibiat...@yahoo.com > 
> To: quad-list@eskimo.com 
> Cc: " quad-list@eskimo.com " < quad-list@eskimo.com > 
> Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey 
> Resent-Date: Thu, 28 Jun 2012 09:52:41 -0700 
> Resent-From: quad-list@eskimo.com 
> 
> From what I've been reading, you are right about AD being a problem for many 
> paras, too. 
> 
> Bobbie, the easiest explanation of AD (autonomic dysreflexia) was this. Your 
> bowel and bladder and sex organs function 
> attached to your sympathetic nervous system as well as the central nervous 
> system. When something is wrong your sympathetic 
> nervous system begins to malfunction causing your heart to race, your blood 
> pressure to go up and breathing difficulties as 
> well as spasms. 
> AD also occurs when pain is severe enough to overwhelm your entire nervous 
> system. Untreated it can lead to stroke (hence 
> the severe headache) and heart attack. Some people have told me tthey 
> couldn't catch their breath. This is due to the heart 
> beating to fast and irregular for blood to get oxygen as it passes thru the 
> lungs. 
> As my doctor, (Randall  Bradom) told me years ago, a stuffy nose can be a 
> preliminary symptom. Last I heard, he was head of 
> rehab at Columbia University Hospital. 
> I read where there was a study about pneumonia triggering AD. Most quads 
> loose half to two thirds lung capacity just from 
> the injury. I get my flu shots and pneumo-vax regularly. I've never had a 
> cold, but pneumonia once. Avoid snotty children 
> and adults that just can't get rid of a cough. 
> Practice using an inspirometer,(the tube with a hose that you inhale slowly 
> from) and cough when you can. Maybe an aid will 
> help you by doing the Hiemlich manuvre. 
> Since the blood clot hit my lung I only draw .8 litres of air. I use to draw 
> 2.4 litres. I have 2 different inhalers and a 
> nebulizer 4 times a day, oh yeah, in bed I use an oxygen machine. There is 
> absolutely no space left in my bedroom. 
> Go to 
> http://www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453413/k.5E2A/Autonomic_Dysreflexia.htm
>  
> And read up. I don't think I gave you bad advice, but they can describe it so 
> your understanding is much more detailed. 
> Quality of life is what we all look for, so do what you must so you can do 
> what you want. 
> Best Wishes, Bobbie, 
> john 
> 
> From: Bobbie Humphreys < bobbie...@aol.com > 
> To: Bob Vogel < rhvsh...@pacbell.net > 
> Cc: John S. < alcibiat...@yahoo.com >; " quad-list@eskimo.com " < 
> quad-list@eskimo.com > 
> Sent: Tuesday, June 26, 2012 10:39 PM 
> Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey 
> 
> What is AD?   Bobbie 
> 
> 
> 
> Sent from my iPad 
> 
> On Jun 26, 2012, at 2:34 PM, Bob Vogel < rhvsh...@pacbell.net > wrote: 
> 
>   Hi John, 
> From  SCI nurses and physicians I've spoken with--  AD can hit anybody with 
> SCI of T6 and above, and is possible in 
> people with SCI as low as T10. 
> 
> Bob V 
> 
> On Jun 26, 2012, at 11:10 AM, John S. wrote: 
> 
>   I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and 
>lyrica for 5. Because my bones 
>   deteriorate and fracture from simple lifts I either take my npain meds 
>or suffer from AD. I broke a 
>   multitude of bones in my original accident and many never healed right. 
>I have deformed so badly that 
>   Dr.s have said it hurts to look at my X-rays. Now, my bones and 
>floating organs make lifting and moving 
>   in my chair almost unbearable. 
> Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you 
> shouldn't have AD. This doesn't mean 
> you have no pain issues. You might try a physiatrist. 
> bw, 
> john 
> 
> From: Derrick < whe...@cvn.net > 
> To: quad-list@eskimo.com 
> Sent: Sunday, June 24, 2012 3:59 PM 
> Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey 
> 
> I've been on 5mg (2x/day) narcotic for over 10 years. 
> I've been having more pain and asked my latest doc(very rural town) if she 
> would up my meds. 
> She told me that "narcotics are not prescribed to parapelgics" and the only 
> reason she writes me a script 
> because I've been on them so long. 
> 
> I disagree with her. I would like to hear how many on this list do or do not 
> take narcotics. If do, how many 
> pills&mg? 
> 
> I built a quick survey with 3 questions. You can see results at end of 
> survey. 
> http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ 
> Thanks in advance, 
> Derrick W 
> 
> By the way, I'm a C5/6 quad, not a para. Not only h

[QUAD-L] AD

[lindakrn]

Good articles on AD, it's hard to believe everyone hasn't had AD. Like everyone 
has said the headache you will never forget & sweating profuse ly. 

I usually take one vicodin 500 mg during day, not every day. 

Lindaf 

Re: [QUAD-L] AD - once is enough

[DiannaL767]

 
In a message dated 1/13/2011 6:39:14 PM Eastern Standard Time,  
hellodav...@aol.com writes:

she'd hurry - bumped me up ahead of everyone on her  schedule.  I gotta do 
something nice back, any  ideas?


I don't think you need to do anything. She was doing her job. Your  
condition was serious! If you feel a need, give her some cookies.  :-)

Re: [QUAD-L] AD - once is enough

[DiannaL767]

In a message dated 1/13/2011 5:12:06 PM Eastern Standard Time,  
lorilivin...@gmail.com writes:

Having  said that, if I have missed it before... do you pay for your 
caregiver (s) 24  hours a day or???
No,,, a relative.

Re: [QUAD-L] AD - once is enough

[DAANOO]

Flowers are always nice.
Dana
 
 
In a message dated 1/13/2011 5:51:50 P.M. Central Standard Time,  
wheelch...@aol.com writes:


A pound of Fannie May  turtles might be the answer
Best Wishes
 
 
In a message dated 1/13/2011 5:39:15 P.M. Central Standard Time,  
hellodav...@aol.com writes:

I knew something was not right when I got out of bed - nothing in night  
bad, stiff legs, minor discomfort.  I WAS going to irrigate it, but  thought 
it was gas and would go away.  when being out in 50 degree rain  felt good, I 
knew I was in trouble.   My son was here but - you  know.. so I called 
the nurse around noon.  I was just about to go  outside and just cut the 
Foley off so I could pass water naturally but she  said she'd hurry - bumped me 
up ahead of everyone on her schedule.  I  gotta do something nice back, any 
ideas?
AZDAVE
 
 
 
In a message dated 1/13/2011 3:46:22 P.M. US Mountain Standard Time,  
lissw...@hotmail.com writes:

I  know exactly what you're talking about Dave, the same thing  
happened to me about a year ago and my mom had to learn very
quick how to change my catheter, since the nurse who used  to 
change it for me couldn't come right away, but it felt horrible,  I
thought I was going to die too. I'll never let that happen again.


Anisette  Whitehead
_www.lissettesgoaltowalk.synthasite.com_ 
(http://www.lissettesgoaltowalk.synthasite.com/) 
_www.lwgripgloves.com_ (http://www.lwgripgloves.com/) 





 

From:  hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To:  quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough

I had a plugged Foley a week ago - in about 12 hours I was talking to  God 
- making arrangements for my departure/arrival.  I called my  visiting nurse 
who does monthly changes for me and she heard the stress in  my voice.  She 
was here in about the longest 45 minutes I have ever  spent - well with 
maybe 1 exception of when they inserted my traction in  '67.   She swapped out 
my tube and I felt instant relief from  the pounding head and gut crushing 
pressure.  AD is certainly nothing  to mess with.   My sympathies to any who 
have to deal with AD on  a regular basis.
AZDAVE


=

RE: [QUAD-L] AD - once is enough

[William Willis]

I don't think my whole message made it through. Here tis again.
 




From: lwillis82...@msn.com
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] AD - once is enough
Date: Thu, 13 Jan 2011 17:17:59 -0500




I have had two very serious episodes of AD that resulted in ambulance rides. 
The sad and scary
 part was that nobody at the hospital knew anything about it. My bp was 180/120 
and all they did
 was keep me for observation for about 5 hrs. until I calmed down. I truly 
thought I was going to
 die. We never found a direct cause, but our best guess is impacted bowel --  
10 lbs. of poop in
 a 5 lb. sack.  Larry Willis, c-5, 1971
 




From: diannal...@aol.com
Date: Thu, 13 Jan 2011 16:59:09 -0500
Subject: Re: [QUAD-L] AD - once is enough
To: hellodav...@aol.com; quad-list@eskimo.com



In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time, 
hellodav...@aol.com writes:
 She was here in about the longest 45 minutes I have ever spent 

I didn't know we could survive 45 minutes of that! I've been in A.D. from 
plugged foleys and I felt like I was going to stroke out any minute from the 
headache. Once we put on a new leg bag on that did not have a slit in it for 
the urine to drain. We always check them now...even Bard products can 
malfunction :-) I'm one of the lucky ones who has a caregiver 24/7. When those 
moments arise you REALLY APPRECIATE him/her!!!
Glad your ok, Dave.
Dianna

Re: [QUAD-L] AD - once is enough

[wheelchair]

A pound of Fannie May  turtles might be the answer
Best Wishes
 
 
In a message dated 1/13/2011 5:39:15 P.M. Central Standard Time,  
hellodav...@aol.com writes:

I knew something was not right when I got out of bed - nothing in night  
bad, stiff legs, minor discomfort.  I WAS going to irrigate it, but  thought 
it was gas and would go away.  when being out in 50 degree rain  felt good, I 
knew I was in trouble.   My son was here but - you  know.. so I called 
the nurse around noon.  I was just about to go  outside and just cut the 
Foley off so I could pass water naturally but she  said she'd hurry - bumped me 
up ahead of everyone on her schedule.  I  gotta do something nice back, any 
ideas?
AZDAVE
 
 
 
In a message dated 1/13/2011 3:46:22 P.M. US Mountain Standard Time,  
lissw...@hotmail.com writes:

I  know exactly what you're talking about Dave, the same thing  
happened to me about a year ago and my mom had to learn very
quick how to change my catheter, since the nurse who used  to 
change it for me couldn't come right away, but it felt horrible,  I
thought I was going to die too. I'll never let that happen again.


Anisette Whitehead
_www.lissettesgoaltowalk.synthasite.com_ 
(http://www.lissettesgoaltowalk.synthasite.com/) 
_www.lwgripgloves.com_ (http://www.lwgripgloves.com/) 





 

From:  hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To:  quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough

I had a plugged Foley a week ago - in about 12 hours I was talking to  God 
- making arrangements for my departure/arrival.  I called my  visiting nurse 
who does monthly changes for me and she heard the stress in  my voice.  She 
was here in about the longest 45 minutes I have ever  spent - well with 
maybe 1 exception of when they inserted my traction in  '67.   She swapped out 
my tube and I felt instant relief from the  pounding head and gut crushing 
pressure.  AD is certainly nothing to  mess with.   My sympathies to any who 
have to deal with AD on a  regular basis.
AZDAVE


=

Re: [QUAD-L] AD - once is enough

[hellodaveoc]

I knew something was not right when I got out of bed - nothing in night  
bad, stiff legs, minor discomfort.  I WAS going to irrigate it, but thought  
it was gas and would go away.  when being out in 50 degree rain felt good,  I 
knew I was in trouble.   My son was here but - you know.. so I  called 
the nurse around noon.  I was just about to go outside and just cut  the 
Foley off so I could pass water naturally but she said she'd hurry - bumped  me 
up ahead of everyone on her schedule.  I gotta do something nice back,  any 
ideas?
AZDAVE
 
 
 
In a message dated 1/13/2011 3:46:22 P.M. US Mountain Standard Time,  
lissw...@hotmail.com writes:

I know  exactly what you're talking about Dave, the same thing  
happened to me about a year ago and my mom had to learn very
quick how to change my catheter, since the nurse who used to 
change it for me couldn't come right away, but it felt horrible, I
thought I was going to die too. I'll never let that happen again.


Anisette Whitehead
_www.lissettesgoaltowalk.synthasite.com_ 
(http://www.lissettesgoaltowalk.synthasite.com/) 
_www.lwgripgloves.com_ (http://www.lwgripgloves.com/) 





 

From:  hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To:  quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough

I had a plugged Foley a week ago - in about 12 hours I was talking to God  
- making arrangements for my departure/arrival.  I called my visiting  nurse 
who does monthly changes for me and she heard the stress in my  voice.  She 
was here in about the longest 45 minutes I have ever spent -  well with 
maybe 1 exception of when they inserted my traction in  '67.   She swapped out 
my tube and I felt instant relief from the  pounding head and gut crushing 
pressure.  AD is certainly nothing to mess  with.   My sympathies to any who 
have to deal with AD on a regular  basis.
AZDAVE


=

RE: [QUAD-L] AD - once is enough

[Lissette Whitehead]

I know exactly what you're talking about Dave, the same thinghappened to me 
about a year ago and my mom had to learn veryquick how to change my catheter, 
since the nurse who used to change it for me couldn't come right away, but it 
felt horrible, Ithought I was going to die too. I'll never let that happen 
again.

Lissette Whitehead
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com




From: hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough








I had a plugged Foley a week ago - in about 12 hours I was talking to God - 
making arrangements for my departure/arrival.  I called my visiting nurse 
who does monthly changes for me and she heard the stress in my voice.  She 
was here in about the longest 45 minutes I have ever spent - well with maybe 1 
exception of when they inserted my traction in '67.   She swapped out 
my tube and I felt instant relief from the pounding head and gut crushing 
pressure.  AD is certainly nothing to mess with.   My sympathies 
to any who have to deal with AD on a regular basis.
AZDAVE

Re: [QUAD-L] AD - once is enough

[wheelchair]

And now ya know why they call it waste.  Unless you are getting paid  
interest, its not worth holding, storing or saving (my sick humor, i know)  
 
WHAT'S IN YOUR BOWEL
 
Best Wishes
 
 
In a message dated 1/13/2011 4:18:34 P.M. Central Standard Time,  
lwillis82...@msn.com writes:

I truly  thought I was going to die. We never found a direct cause, but our 
best guess  is impacted bowel --  10 lbs. of poop in a 5 lb. sack.  Larry  
Willis, c-5, 1971

 

RE: [QUAD-L] AD - once is enough

[William Willis]

I have had two very serious episodes of AD that resulted in ambulance rides. 
The sad and scary part was that nobody at the hospital knew anything about it. 
My bp was 180/120 and all they did was keep me for observation for about 5 hrs. 
until I calmed down. I truly thought I was going to die. We never found a 
direct cause, but our best guess is impacted bowel --  10 lbs. of poop in a 5 
lb. sack.  Larry Willis, c-5, 1971
 


From: diannal...@aol.com
Date: Thu, 13 Jan 2011 16:59:09 -0500
Subject: Re: [QUAD-L] AD - once is enough
To: hellodav...@aol.com; quad-list@eskimo.com




In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time, 
hellodav...@aol.com writes:
 She was here in about the longest 45 minutes I have ever spent 

I didn't know we could survive 45 minutes of that! I've been in A.D. from 
plugged foleys and I felt like I was going to stroke out any minute from the 
headache. Once we put on a new leg bag on that did not have a slit in it for 
the urine to drain. We always check them now...even Bard products can 
malfunction :-) I'm one of the lucky ones who has a caregiver 24/7. When those 
moments arise you REALLY APPRECIATE him/her!!!
Glad your ok, Dave.
Dianna

Re: [QUAD-L] AD - once is enough

[DiannaL767]

 
In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time,  
hellodav...@aol.com writes:

She was here in about the longest 45 minutes I have  ever spent 


I didn't know we could survive 45 minutes of that! I've been in A.D. from  
plugged foleys and I felt like I was going to stroke out any minute from the 
 headache. Once we put on a new leg bag on that did not have a slit in it 
for the  urine to drain. We always check them now...even Bard products can 
malfunction  :-) I'm one of the lucky ones who has a caregiver 24/7. When 
those moments arise  you REALLY APPRECIATE him/her!!!
Glad your ok, Dave.
Dianna

Re: [QUAD-L] AD - once is enough

[hellodaveoc]

you remember birth?
azdave
 
 
 
In a message dated 1/13/2011 2:07:53 P.M. US Mountain Standard Time,  
scampe...@yahoo.com writes:

I well second that. my foley got pinched in my waistband  one morning and 
was unaware of it till I was in a meeting for work 4  hours later, my dr.s 
office was  across the street, by the time I  got there and got the nurse to 
undo my pants, I filled 2 18 oz. legbags  in a matter of seconds.  My head 
hurt for  3 days  afterwords.   Not sure which is worse the head pain from 
A.D.,  the installation of the halo or birth. 

--- On Thu, 1/13/11,  hellodav...@aol.com  wrote:


From:  hellodav...@aol.com 
Subject: [QUAD-L]  AD - once is enough
To: quad-list@eskimo.com
Date: Thursday,  January 13, 2011, 12:42 PM


I had a plugged Foley a week ago - in about 12 hours I was  talking to God 
- making arrangements for my departure/arrival.  I  called my visiting nurse 
who does monthly changes for me and she heard  the stress in my voice.  She 
was here in about the longest 45  minutes I have ever spent - well with 
maybe 1 exception of when they  inserted my traction in '67.   She swapped out 
my tube and I  felt instant relief from the pounding head and gut crushing  
pressure.  AD is certainly nothing to mess with.   My  sympathies to any who 
have to deal with AD on a regular basis.
AZDAVE

[QUAD-L] AD - once is enough

[hellodaveoc]

I had a plugged Foley a week ago - in about 12 hours I was talking to God - 
 making arrangements for my departure/arrival.  I called my visiting nurse  
who does monthly changes for me and she heard the stress in my voice.  She  
was here in about the longest 45 minutes I have ever spent - well with 
maybe 1  exception of when they inserted my traction in '67.   She swapped out  
my tube and I felt instant relief from the pounding head and gut crushing  
pressure.  AD is certainly nothing to mess with.   My sympathies  to any who 
have to deal with AD on a regular basis.
AZDAVE

Re: [QUAD-L] AD and no heart condition....

[t crook]

Yes it is- I was afraid I was going to create a heart condition worrying about 
it.

Tim
WhoopieKat.com

--- On Thu, 2/5/09, Dan  wrote:

From: Dan 
Subject: Re: [QUAD-L] AD and no heart condition
To: quad-list@eskimo.com
Date: Thursday, February 5, 2009, 11:12 AM


That, my friend, is GOOD news!

Dan

At 11:45 AM 2/5/2009, t crook said something that elicited my response:
 

Last month I posted- "I was just recently diagnosed with inherited 
Cardiomyopathy." My diagnosis came when I went to the hospital for being really 
short of breath and in atrial fib; I was just getting over an upper respiratory 
virus, my bronchial tubes were plugged in the left lung and allowed it to 
collapse. The echo I had while in the hospital showed my heart being enlarged. 
My recent echo showed that my heart was in real good shape; my heart appeared 
enlarged do to autonomic dysreflexia (AD) and the collapsed lung. I rebounded 
quickly after a bronchoscopy for the collapsed lung; I had only one night in 
the hospital. 
My heart doctor is teaching a class at Mayo this month and is taking my echo's 
to show what a quad's heart with AD and a lung collapse looks like.
It feels good to know what condition my condition is in woohoo!

 
Tim c5-c6, 20 yrs.post
www.geocities.com/onemofortom
WhoopieKat.com



  

Re: [QUAD-L] AD and no heart condition....

[Dan]

That, my friend, is GOOD news!

Dan

At 11:45 AM 2/5/2009, t crook said something that elicited my response:

Last month I posted- "I was just recently diagnosed with inherited 
Cardiomyopathy." My diagnosis came when I went to the hospital for 
being really short of breath and in atrial fib; I was just getting 
over an upper respiratory virus, my bronchial tubes were plugged in 
the left lung and allowed it to collapse. The echo I had while in 
the hospital showed my heart being enlarged. My recent echo showed 
that my heart was in real good shape; my heart appeared enlarged do 
to autonomic dysreflexia (AD) and the collapsed lung. I rebounded 
quickly after a bronchoscopy for the collapsed lung; I had only one 
night in the hospital. "urn:schemas-microsoft-com:office:office" />
My heart doctor is teaching a class at Mayo this month and is taking 
my echo's to show what a quad's heart with AD and a lung collapse looks like.

It feels good to know what condition my condition is in woohoo!


Tim c5-c6, 20 yrs.post
www.geocities.com/onemofortom
WhoopieKat.com

Re: [QUAD-L] AD / Oxygen

[John S.]

Lol, ats it exactly! aside from killing you, it is damnned uncomfortable!

john


- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Wednesday, November 7, 2007 11:18:40 PM
Subject: Re: [QUAD-L] AD / Oxygen


I used saline down my trach it a mucus is thick, but I usually take a breathing 
treatment also and that will loosen up the mucus with albuterol.  Do you?. I 
have been up oxygen at night at home,  when  my  oxygen levels were low , but 
that was usually after bronchitis.I really hate wearing oxygen tubing, it is so 
uncomfortable.  
Dana




 






See what's new at AOL.com and Make AOL Your Homepage.

__
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

Re: [QUAD-L] AD / Oxygen

[DAANOO]

 
I used saline down my trach it a  mucus is thick, but I usually take a 
breathing treatment also and that will  loosen up the mucus with albuterol.  Do 
you?. I have been up oxygen at  night at home,  when  my  oxygen levels were 
low , 
but that was  usually after bronchitis.I really hate wearing oxygen tubing, 
it is so  uncomfortable.  
Dana








** See what's new at http://www.aol.com

RE: [QUAD-L] AD / Oxygen

[Greg]

Yes, I do all the time.
It's like heavy exercise every time I eat...
Greg


---
Does anyone else feel out of breath when eating?... I do really bad.

Hec

Re: [QUAD-L] AD / Oxygen

[Hec]

Does anyone else feel out of breath when eating?... I do really bad.

Hec

RE: [QUAD-L] AD / Oxygen

[Silas Shelburne]

Hello everybody, 

I too suffer from the feeling of not getting enough oxygen, its worse when I
lay down and when I'm to hot.  My stats cane be normal but I still feel
panic, zanx helps and a breathing treatment helps with the tight feeling in
my chest.  I keep oxygen on hand but seldom use it, glad to have input on
this subject I thought I was the only one that suffered with this.  Oh yea!
I use saline down my track to, it loosens up the secretions.  

Silas 

 

From: Greg [mailto:[EMAIL PROTECTED] 
Sent: Monday, November 05, 2007 10:46 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD / Oxygen

 

I had a bad morning. I got overheated during the night, not much sleep. Then
just as I got up, my nose got stuffed up from allergies.  Though I wasn't in
AD (autonomic Distraflexia), I had that same kind of feelings. Like not
getting enough oxygen, your too hot, your too cold, you want to get up, but
the  you want to lay down, almost a panic feeling. The more you think about
it, the worse it gets. My blood pressure, heart rate, temps, all ok, just
the feeling of not getting enough oxygen.

 

This ever happen to you?

 

I feel like I'd like to have an oxygen take close by, just for those bad
days. I know it's all in my head, but I wonder if it would help.

 

Greg

Re: [QUAD-L] AD / Oxygen

[Lori Michaelson]

Hey Greg (and Dan),

 Well, I just spent 15 minutes dictating and correcting an e-mail to
you and the whole computer shut down.  Try number two!

 I have had asthma since I was very little (hereditary).  But it is
only triggered by a three or four things.  These are animal dander,
humidity, the powder found in latex gloves, and sometimes nerves. >
Although very rarely the latter.

Living here in the desert with such low humidity has never triggered
an asthma attack.  But I remember when we lived in Virginia seven
years ago my room would get stuffy and I would take a puff of
albuterol from my inhaler many mornings before my husband went to work
 when I would be alone.  That brought nerves into it a little.

I don't think I would go to the extreme of having an oxygen tank
unless you were diagnosed with some type of lung problem.  Perhaps
 when you do get overheated (stufy room too maybe) along with anxiety
you are experiencing a form of asthma.  Like Dan, just a puff for two
of albuterol from my inhaler helps me breathe better no matter what
the case.  I have not used it in a long, long, long time but it is
always in my backpack just in case.

 Lori Michaelson
 C4/5 complete quad, 28 years post
 Tucson, AZ
>
>
>
> On Nov 5, 2007 11:30 AM, Danny Hearn <[EMAIL PROTECTED]> wrote:
> > GregI also forgot to mention that I keep a small hand held Albuteral
> > spray with my meds and usually during summer months , if I overheat or can't
> > get enough oxygen ... I just inhale a couple of sprays thru my mouth and in
> > a short time feel much better.Dan H.
> >
> >
> >
> > Danny Hearn <[EMAIL PROTECTED]> wrote:
> > Hi,  Greg...I know exactly what you mean, this happens to me also at times.
> > Luckily for me my wife sleeps by me and can help by turning me or getting me
> > a med to help relax me.  Dan H.
> >
> > Greg <[EMAIL PROTECTED]> wrote:
> >
> > I had a bad morning. I got overheated during the night, not much sleep. Then
> > just as I got up, my nose got stuffed up from allergies.  Though I wasn't in
> > AD (autonomic Distraflexia), I had that same kind of feelings. Like not
> > getting enough oxygen, your too hot, your too cold, you want to get up, but
> > the  you want to lay down, almost a panic feeling. The more you think about
> > it, the worse it gets. My blood pressure, heart rate, temps, all ok, just
> > the feeling of not getting enough oxygen.
> >
> > This ever happen to you?
> >
> > I feel like I'd like to have an oxygen take close by, just for those bad
> > days. I know it's all in my head, but I wonder if it would help.
> >
> > Greg
> >
>



-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

Re: [QUAD-L] AD / Oxygen

[wheelchair]

 
Believe me that Oxygen is dispensed by RX only.  You a script from a  doctor 
for even a small amount, so be aware before hand.
 
Check out this website and let me know what you think.
 
_www.hqinc.net_ (http://www.hqinc.net) 
 
It's just the tool necessary for any Quad.  
 
Best Wishes
 
 
 
In a message dated 11/5/2007 10:47:55 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

 
I had a bad morning. I got  overheated during the night, not much sleep. Then 
just as I got up, my nose  got stuffed up from allergies.  Though I wasn’t in 
AD (autonomic  Distraflexia), I had that same kind of feelings. Like not 
getting enough  oxygen, your too hot, your too cold, you want to get up, but 
the  
you  want to lay down, almost a panic feeling. The more you think about it, 
the  worse it gets. My blood pressure, heart rate, temps, all ok, just the 
feeling  of not getting enough oxygen. 
This ever happen to  you? 
I feel like I’d like to have an  oxygen take close by, just for those bad 
days. I know it’s all in my head, but  I wonder if it would help. 
Greg



 



** See what's new at http://www.aol.com

Re: [QUAD-L] AD / Oxygen

[Oconnelldb]

 
Too warm in bed brings this on in me.   Also,  Mirapex (for restless legs - 
spasms) seems to have something  to do with it as does Melatonin (for sleep).  
Maybe I'll switch back to  booze.  I REALLY hate the panic attacks.  I have to 
get up and sit in  front of a fan or go outside in the open.  Glad I'm not 
alone.
Dave
 
 
 
In a message dated 11/5/2007 9:47:55 A.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
I had a bad morning. I got  overheated during the night, not much sleep. Then 
just as I got up, my nose  got stuffed up from allergies.  Though I wasn’t in 
AD (autonomic  Distraflexia), I had that same kind of feelings. Like not 
getting enough  oxygen, your too hot, your too cold, you want to get up, but 
the  
you  want to lay down, almost a panic feeling. The more you think about it, 
the  worse it gets. My blood pressure, heart rate, temps, all ok, just the 
feeling  of not getting enough oxygen. 
This ever happen to  you? 
I feel like I’d like to have an  oxygen take close by, just for those bad 
days. I know it’s all in my head, but  I wonder if it would help. 
Greg



 



** See what's new at http://www.aol.com

Re: [QUAD-L] AD / Oxygen

[Dan]

Did you guys ever consider a pulse/ox device? That way you would know if 
you truly were short of oxygen.


Dan


Danny Hearn wrote:
*GregI also forgot to mention that I keep a small hand held 
Albuteral spray with my meds and usually during summer months , if I 
overheat or can't get enough oxygen ... I just inhale a couple of 
sprays thru my mouth and in a short time feel much better. Dan H.*


*/Danny Hearn <[EMAIL PROTECTED]>/* wrote:

*Hi, Greg...I know exactly what you mean, this happens to me also
at times. Luckily for me my wife sleeps by me and can help by
turning me or getting me a med to help relax me. Dan H.*

*/Greg <[EMAIL PROTECTED]>/* wrote:

I had a bad morning. I got overheated during the night, not
much sleep. Then just as I got up, my nose got stuffed up from
allergies. Though I wasn’t in AD (autonomic Distraflexia), I
had that same kind of feelings. Like not getting enough
oxygen, your too hot, your too cold, you want to get up, but
the you want to lay down, almost a panic feeling. The more you
think about it, the worse it gets. My blood pressure, heart
rate, temps, all ok, just the feeling of not getting enough
oxygen.
This ever happen to you?
I feel like I’d like to have an oxygen take close by, just for
those bad days. I know it’s all in my head, but I wonder if it
would help.
Greg

Re: [QUAD-L] AD / Oxygen

[Danny Hearn]

GregI also forgot to mention that I keep a small hand held Albuteral spray 
with my meds and usually during summer months , if I overheat or can't get 
enough oxygen ... I just inhale a couple of sprays thru my mouth and in a short 
time feel much better.Dan H.

Danny Hearn <[EMAIL PROTECTED]> wrote:  Hi,  Greg...I know exactly what you 
mean, this happens to me also at times. Luckily for me my wife sleeps by me and 
can help by turning me or getting me a med to help relax me.
  Dan H.

Greg <[EMAIL PROTECTED]> wrote: I had a bad morning. I got 
overheated during the night, not much sleep. Then just as I got up, my nose got 
stuffed up from allergies.  Though I wasn’t in AD (autonomic Distraflexia), I 
had that same kind of feelings. Like not getting enough oxygen, your too hot, 
your too cold, you want to get up, but the  you want to lay down, almost a 
panic feeling. The more you think about it, the worse it gets. My blood 
pressure, heart rate, temps, all ok, just the feeling of not getting enough 
oxygen.
   
  This ever happen to you?
   
  I feel like I’d like to have an oxygen take close by, just for those bad 
days. I know it’s all in my head, but I wonder if it would help.
   
  Greg

Re: [QUAD-L] AD / Oxygen

[John S.]

AD can be varied in the symptoms. Sounds like you had it in a more mild form. 
When you become a quad you don't control your hypothalmus like you should, if 
at all. This puts out hormones that let you survive in a wide range of 
temperatures. It does other stuff too. When you become hypothermic and 
hypersensative at the same time, you got AD going. Once I passed out in a 
hydrotherapy tank. The lady in charge was really upset and I slept for 3 days. 
I'm sure glad your not still cooking. 


Best wishes
john


- Original Message 
From: Greg <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Monday, November 5, 2007 11:46:11 AM
Subject: [QUAD-L] AD / Oxygen


I had a bad morning. I got overheated during the night, not much sleep. Then 
just as I got up, my nose got stuffed up from allergies.  Though I wasn’t in AD 
(autonomic Distraflexia), I had that same kind of feelings. Like not getting 
enough oxygen, your too hot, your too cold, you want to get up, but the  you 
want to lay down, almost a panic feeling. The more you think about it, the 
worse it gets. My blood pressure, heart rate, temps, all ok, just the feeling 
of not getting enough oxygen.
 
This ever happen to you?
 
I feel like I’d like to have an oxygen take close by, just for those bad days. 
I know it’s all in my head, but I wonder if it would help.
 
Greg

__
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around 
http://mail.yahoo.com 

Re: [QUAD-L] AD / Oxygen

[Danny Hearn]

Hi,  Greg...I know exactly what you mean, this happens to me also at times. 
Luckily for me my wife sleeps by me and can help by turning me or getting me a 
med to help relax me.  Dan H.

Greg <[EMAIL PROTECTED]> wrote:I had a bad morning. I got 
overheated during the night, not much sleep. Then just as I got up, my nose got 
stuffed up from allergies.  Though I wasn’t in AD (autonomic Distraflexia), I 
had that same kind of feelings. Like not getting enough oxygen, your too hot, 
your too cold, you want to get up, but the  you want to lay down, almost a 
panic feeling. The more you think about it, the worse it gets. My blood 
pressure, heart rate, temps, all ok, just the feeling of not getting enough 
oxygen.
   
  This ever happen to you?
   
  I feel like I’d like to have an oxygen take close by, just for those bad 
days. I know it’s all in my head, but I wonder if it would help.
   
  Greg