subject:"CSEIS Immune system booster\?"


Why don't you say, it allows the immune system to rest,
as in, not work so hard?...

Dan


Ian Davies wrote:

I have heard and read on many occasions that EIS boosts the immune system,
as I found out last weekend, that is not desireable for some people. We had
a visitor staying the weekend who suffers from Reumatoid Arthritis, I
suggested that EIS might help for avoiding things like colds and flu. The
term boost which I used in my description of EIS put her off immediately,
you don't want to give strength to something that is attacking you.
I would think that EIS does NOT boost the immune system, it simply deals
with infections etc which the immune system would have to deal with if EIS
was not used. Please correct me if I wrong!!!
The argument may sound like picking too much at details or use of vocabulary
but as I found out the word boost is not always desireable and I would
like to think that what EIS does is to give you a secondary immune system
and not boost the one we have which ultimately is the only cure for many
ailments like the common cold. The boost that EIS gives to the immune
system would be to reduce the workload but not to affect it directly.
I would appreciate any comments and or clarification.

Thank you
Ian in Spain





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Re: CSEIS Immune system booster?

Are you sure it is not from the effects formaldehyde 
poisoning, similar to that experienced by the Katrina 
victims in their new FEMA trailers?


Dan

You wrote:
had just moved into a beautiful new flat



Kirsteen Wright wrote:

On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:


Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
condition that none of my doctors can figure out. This condition M.E.
sounds a lot  like what I have



Hi Scott

You could try http://www.mechat.co.uk/  there's a lot of links there.
Unfortunately, over here, the psychiatric brigade hijacked the funding for
research and of course won't let go so there's very little biomedical
research done on it.

We're still frequently told it's all in our heads and all we need is some
CBT to persuade us we're not ill and we'll be fine. Despite that we're not
allowed to donate organs or blood and the changes in the brain stem are
showing up on autopsies and it can now officially be given as a cause of
death. If you can afford the private tests you can also show the
degeneration in the mitochondria, and the ATp / Awhatsits imbalance.

As there is so little real research, there are many theories about what
causes it but no real proof, therefore no real treatment. Lumping M.E. in
with cronic fatigue also blurs the edges since fatigue can occur in so many
totally unrelated conditions from depression to post viral illness etc.

When I was struck down by it (and I really was felled) I was healthy,
exercised regularly, was in a challenging job I loved, ate a wholefood,
mainly organic diet, carefully supplemented, practised the Silva method of
postive thinking had just moved into a beautiful new flat and generally
adored life.

Within a couple of weeks I was virtuall housebound, frequently bedbound with
horrendous vertigo and a whole catalogue of digestive, cognative and motor
complaints. That was 18 months ago, in many ways I'm worse now and haven't
worked since. I'm extremely limited in my abilities and any attempt to push
the boundaries leads to such loss of muscle control that I can't even stay
upright but have to be picked off the floor and carried to bed.

On a really good day I might make it out but I'll pay for it by being
bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst
affected, there are a lot of people an awful lot worse off with it than me.
And there has been some improvement on the cognative side. At first I
couldn't read more than a paragraph or watch more tan 10 minutes of tv. Now,
although I'm nowhere near the level of academic research I used to do for
fun, on a good day, I can manage things like emails and sometimes watch a
whole program. Just don't ask me to remember it afterwards :-)

Hope you find someting useful

Kirsteen





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Re: CSEIS Immune system booster?

2008-02-24 Thread Wayne Fugitt


Morning Dan,

At 11:48 AM 2/24/2008, you wrote:


Why don't you say, it allows the immune system to rest,
as in, not work so hard?...


  Normally, I respect your wisdom and agree with most of it, ..

  however I wonder about the immune system resting or taking a break.

  Considering all the bad things man does, the bad news in the 
winds,  people traveling all over the world, .. just when should 
the immune system rest or take a break?


 I think, if it rests for long one will catch the flu or something worse.

 Wayne




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Re: CSEIS Immune system booster?

2008-02-24 Thread Clayton Family

The katrina victims have a different problem than just formaldehyde. Dr 
Shoemaker went down there to help with the inevitable mold problem that 
was sure to erupt after the flooding, and he found many many people 
suffering from mold toxin related illness, before the trailers even got 
there.  I am sure that many of them are unaware of the mold connection.


There is a reliable, safe, simple vision test that will tell if a 
person has a biotoxin problem. Dr Shoemaker has it on his website, and 
has to have a nominal charge to cover his webcosts. It is only 15.00.


On Feb 24, 2008, at 12:10 PM, Dan Nave wrote:

Are you sure it is not from the effects formaldehyde poisoning, 
similar to that experienced by the Katrina victims in their new FEMA 
trailers?


Dan

You wrote:
had just moved into a beautiful new flat



Kirsteen Wright wrote:
On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com 
wrote:
Hi, Kirsteen. My name is Scott and I have been diagnosed with a 
myalgic

condition that none of my doctors can figure out. This condition M.E.
sounds a lot  like what I have



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Re: CSEIS Immune system booster?


Afternoon Wayne,

If you habitually walk around carrying a 100 pound knapsack, 
and I remove 50 pounds out of it to carry myself, isn't that 
equivalent to giving you a rest?...


Dan



Wayne Fugitt wrote:

Morning Dan,

 At 11:48 AM 2/24/2008, you wrote:


Why don't you say, it allows the immune system to rest,
as in, not work so hard?...


  Normally, I respect your wisdom and agree with most of it, ..

  however I wonder about the immune system resting or taking a break.

  Considering all the bad things man does, the bad news in the winds,  
people traveling all over the world, .. just when should the 
immune system rest or take a break?


 I think, if it rests for long one will catch the flu or something worse.

 Wayne




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Re: CSEIS Immune system booster?

You may be correct about a mold problem for some, however 
you are incorrect to negate the issue of formaldehyde 
exposure due to outgassing from manufactured items used in 
the home, particularly new or remodeled homes.


Not everything is a mold problem...

Dan

Clayton Family wrote:
The katrina victims have a different problem than just formaldehyde. Dr 
Shoemaker went down there to help with the inevitable mold problem that 
was sure to erupt after the flooding, and he found many many people 
suffering from mold toxin related illness, before the trailers even got 
there.  I am sure that many of them are unaware of the mold connection.


There is a reliable, safe, simple vision test that will tell if a person 
has a biotoxin problem. Dr Shoemaker has it on his website, and has to 
have a nominal charge to cover his webcosts. It is only 15.00.


On Feb 24, 2008, at 12:10 PM, Dan Nave wrote:

Are you sure it is not from the effects formaldehyde poisoning, 
similar to that experienced by the Katrina victims in their new FEMA 
trailers?


Dan

You wrote:
had just moved into a beautiful new flat



Kirsteen Wright wrote:

On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:

Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
condition that none of my doctors can figure out. This condition M.E.
sounds a lot  like what I have



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Re: CSEIS Immune system booster?

2008-02-24 Thread Kirsteen Wright

On Sun, Feb 24, 2008 at 2:12 PM, Dee d...@deetroy.org wrote:

Did you have chicken pox as a child though?  If you did, this is the
 herpes virus which then lays dormant sometimes throughout someone's life,
 and then manifests itself as shingles sometimes.  I think it is what is
 behind things like fibromyalgia or 'mystery nerve pain' as my doctor called
 it.  Dee

Actually yes I've had chicken pox 3 times. Apparently I don't build up an
immunity to it. I misunderstood you. I thought you were relating M.E. to the
herpes virus, not fibromyalgia. I'm lucky I don't have fibro. I know,
however that fibro has very specific points in the body it attacks (You'll
find loads of charts if you google it). When you had your pains was it those
points it was in or was it more generalised.

Kirsteen

Re: CSEIS Immune system booster?

2008-02-24 Thread Kirsteen Wright

On Sun, Feb 24, 2008 at 6:10 PM, Dan Nave na...@comcast.net wrote:

 Are you sure it is not from the effects formaldehyde
 poisoning, similar to that experienced by the Katrina
 victims in their new FEMA trailers?


Ok I know I said a lovely new flat but actually it's not a new build. It's a
really old one. It was probably built about the 1900s. I can't imagine there
would be any formaldehyde and it's all my own stuff I took into it. I did
have it checked and luckily there's no mold either.

Kirsteen

Re: CSEIS Immune system booster?

2008-02-24 Thread Scott

This looks like a great way of helping people out. I am going to take the test 
when I get my next check. I wonder if there is someone on the West Coast, here 
in California, that is familiar with Dr. Shoemaker's protocol? Maryland is a 
long ways to travel and costly. Anyhow, thanks for the info.


Clayton Family clay...@skypoint.com wrote: The katrina victims have a 
different problem than just formaldehyde. Dr 
Shoemaker went down there to help with the inevitable mold problem that 
was sure to erupt after the flooding, and he found many many people 
suffering from mold toxin related illness, before the trailers even got 
there.  I am sure that many of them are unaware of the mold connection.

There is a reliable, safe, simple vision test that will tell if a 
person has a biotoxin problem. Dr Shoemaker has it on his website, and 
has to have a nominal charge to cover his webcosts. It is only 15.00.

On Feb 24, 2008, at 12:10 PM, Dan Nave wrote:

 Are you sure it is not from the effects formaldehyde poisoning, 
 similar to that experienced by the Katrina victims in their new FEMA 
 trailers?

 Dan

 You wrote:
 had just moved into a beautiful new flat



 Kirsteen Wright wrote:
 On Sat, Feb 23, 2008 at 4:03 PM, Scott  
 wrote:
 Hi, Kirsteen. My name is Scott and I have been diagnosed with a 
 myalgic
 condition that none of my doctors can figure out. This condition M.E.
 sounds a lot  like what I have


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-
Never miss a thing.   Make Yahoo your homepage.

Re: CSEIS Immune system booster?

2008-02-24 Thread Dee

Well, as I understand it, they call 'mystery nerve pain'  fibromyalgia for
want of a better word.  In other words, no-one is really sure what causes it
or what it is.  There are many theories but nothing for sure, so as I had
this and it went when I followed a regime to get rid of herpes, I have
assumed that this is what it is.  I had stabbing pains in the flabby parts
under the upper arm; round my ribs and in the upper part of my back, coming
round into my waist (at its worst).  However, I could get it in my legs as
well.  This also caused my skin to be so tender I couldn't touch it.  All I
know is, it hurt like hell!  Following the anti-herpes regimen it has gone,
so I have assumed that is what it was.  Dee 

---Original Message---
 
From: Kirsteen Wright
Date: 24/02/2008 19:23:10
To: silver-list@eskimo.com
Subject: Re: CSEIS Immune system booster?
 



On Sun, Feb 24, 2008 at 2:12 PM, Dee d...@deetroy.org wrote:




Actually yes I've had chicken pox 3 times. Apparently I don't build up an
immunity to it. I misunderstood you. I thought you were relating M.E. to the
herpes virus, not fibromyalgia. I'm lucky I don't have fibro. I know,
however that fibro has very specific points in the body it attacks (You'll
find loads of charts if you google it). When you had your pains was it those
points it was in or was it more generalised.
 
Kirsteen

Re: CSEIS Immune system booster?

2008-02-24 Thread Clayton Family

Yeah,  I hear you. I actually did not see him, I just used some of his 
ideas and substituted other protocols and substitutes for healing. I 
use his test from time to time to monitor my situation.


I was given great advice from other people who have suffered from this. 
Much of the cadida protocols can be modified and are very helpful, 
since candida is a form of mold... yeast.   I had better results when 
combining ideas from different drs and other sources.


Good luck and best wishes,Kathryn

On Feb 24, 2008, at 1:49 PM, Scott wrote:

This looks like a great way of helping people out. I am going to take 
the test when I get my next check. I wonder if there is someone on the 
West Coast, here in California, that is familiar with Dr. Shoemaker's 
protocol? Maryland is a long ways to travel and costly. Anyhow, thanks 
for the info.



Clayton Family clay...@skypoint.com wrote:
Shoemaker went down there to help with the inevitable mold problem 
that

was sure to erupt after the flooding, and he found many many people
suffering from mold toxin related illness, before the trailers even 
got

there. I am sure that many of them are unaware of the mold connection.

There is a reliable, safe, simple vision test that will tell if a
person has a biotoxin problem. Dr Shoemaker has it on his website, and
has to have a nominal charge to cover his webcosts. It is only 15.00.

On Feb 24, 2008, at 12:10 PM, Dan Nave wrote:

 Are you sure it is not from the effects formaldehyde poisoning,
 similar to that experienced by the Katrina victims in their new FEMA
 trailers?

 Dan




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Re: CSEIS Immune system booster?

2008-02-24 Thread Clayton Family

no it isn't but unless you take the test for biotoxins (which are not 
all mold either) you will not know if it is or not. He has done a huge 
service in making this test available to the general public. 
Formaldehyde is a huge issue, and for people already suffering from 
mold exposure like nearly all Katrina sufferers, it is much worse.


In my experience, most people suffering from mold will not admit it 
until they are faced with incontrovertible evidence to the contrary. I 
think a large part of this is due to the biological proclivities of the 
fungus and it's specific toxins effects on certain specific areas of 
the brain.  I did some reading awhile back about neurotoxins used by 
wasps and other things that cause many behavioral changes in thier 
victims. It really sheds some light on why, when we should be able to 
control our lives, and think we are doing so, yet remain unable to 
effect certain changes without a herculean effort.  Kinda scary 
reading.


On Feb 24, 2008, at 1:06 PM, Dan Nave wrote:

You may be correct about a mold problem for some, however you are 
incorrect to negate the issue of formaldehyde exposure due to 
outgassing from manufactured items used in the home, particularly new 
or remodeled homes.


Not everything is a mold problem...

Dan

Clayton Family wrote:
The katrina victims have a different problem than just formaldehyde. 
Dr Shoemaker went down there to help with the inevitable mold problem 
that was sure to erupt after the flooding, and he found many many 
people suffering from mold toxin related illness, before the trailers 
even got there.  I am sure that many of them are unaware of the mold 
connection.
There is a reliable, safe, simple vision test that will tell if a 
person has a biotoxin problem. Dr Shoemaker has it on his website, 
and has to have a nominal charge to cover his webcosts. It is only 
15.00.

On Feb 24, 2008, at 12:10 PM, Dan Nave wrote:
Are you sure it is not from the effects formaldehyde poisoning, 
similar to that experienced by the Katrina victims in their new FEMA 
trailers?


Dan

You wrote:
had just moved into a beautiful new flat




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Re: CSEIS Immune system booster?

2008-02-24 Thread Kirsteen Wright

On Sun, Feb 24, 2008 at 8:56 PM, Dee d...@deetroy.org wrote:

Well, as I understand it, they call 'mystery nerve pain'  fibromyalgia
 for want of a better word.  In other words, no-one is really sure what
 causes it.

Yes there are a lot of theories but no definitive research but a diagnosis
of fibromayalgia requires that at least a majority of the fibro points are
extremely tender when pressed.

There are 2 at the base of the skull,2 at the front of the neck, 2 on top of
the shoulders sort of half way out, 2 on the shoulder blades at the front, 2
at the back either side of the spine, 2 at the elbows on the top of te arm,
2 inside the knees, 2 sort of at the top of the gluteus maximus and 2 nearer
the outside of the hips. You really need a reliable chart to identify them.
Many unidentified pains are referred to as myalgia but true fibromyalgia
always involves these points.

Kirsteen

CSEIS Immune system booster?

2008-02-23 Thread Ian Davies

I have heard and read on many occasions that EIS boosts the immune system,
as I found out last weekend, that is not desireable for some people. We had
a visitor staying the weekend who suffers from Reumatoid Arthritis, I
suggested that EIS might help for avoiding things like colds and flu. The
term boost which I used in my description of EIS put her off immediately,
you don't want to give strength to something that is attacking you.
I would think that EIS does NOT boost the immune system, it simply deals
with infections etc which the immune system would have to deal with if EIS
was not used. Please correct me if I wrong!!!
The argument may sound like picking too much at details or use of vocabulary
but as I found out the word boost is not always desireable and I would
like to think that what EIS does is to give you a secondary immune system
and not boost the one we have which ultimately is the only cure for many
ailments like the common cold. The boost that EIS gives to the immune
system would be to reduce the workload but not to affect it directly.
I would appreciate any comments and or clarification.

Thank you
Ian in Spain

Re: CSEIS Immune system booster?

2008-02-23 Thread Dee

I heard that it helps stem cell growth.  Dee 

---Original Message---

From: Ian Davies
Date: 23/02/2008 12:50:37
To: silver-list@eskimo.com
Subject: CSEIS Immune system booster?

I have heard and read on many occasions that EIS boosts the immune system,
as I found out last weekend, that is not desireable for some people. We had
a visitor staying the weekend who suffers from Reumatoid Arthritis, I
suggested that EIS might help for avoiding things like colds and flu. The
term boost which I used in my description of EIS put her off immediately,
you don't want to give strength to something that is attacking you.
I would think that EIS does NOT boost the immune system, it simply deals with 
infections etc which the immune system would have to deal with if EIS was not 
used. Please correct me if I wrong!!!

Re: CSEIS Immune system booster?

I think Boost is  the totally appropriate word for something that provides 
support and assistance in protecting the body.  I do not think that your own 
immune system would attack you unless you had AIDS or something.  Your friend 
is splitting hairs.Faith G.

  - Original Message - 
  From: Ian Davies 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 7:50 AM
  Subject: CSEIS Immune system booster?

  I have heard and read on many occasions that EIS boosts the immune system, as 
I found out last weekend, that is not desireable for some people. We had a 
visitor staying the weekend who suffers from Reumatoid Arthritis, I suggested 
that EIS might help for avoiding things like colds and flu. The term boost 
which I used in my description of EIS put her off immediately, you don't want 
to give strength to something that is attacking you.
  I would think that EIS does NOT boost the immune system, it simply deals with 
infections etc which the immune system would have to deal with if EIS was not 
used. Please correct me if I wrong!!!
  The argument may sound like picking too much at details or use of vocabulary 
but as I found out the word boost is not always desireable and I would like 
to think that what EIS does is to give you a secondary immune system and not 
boost the one we have which ultimately is the only cure for many ailments like 
the common cold. The boost that EIS gives to the immune system would be to 
reduce the workload but not to affect it directly.
  I would appreciate any comments and or clarification.

  Thank you
  Ian in Spain

Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 1:56 PM, faith gagne jitte...@gis.net wrote:

  I think Boost is  the totally appropriate word for something that
 provides support and assistance in protecting the body.  I do not think that
 your own immune system would attack you unless you had AIDS or something.
 Your friend is splitting hairs.Faith G.


Actually there are now quite a number of auto-immune diseases where the
bodies own defence systems do get out of kilter and attack the body itself.
For instance I've been well warned that I can no longer take echinacea or
any immune bosster like that. I have to say, however, that I've never had
any trouble with CS and rely on it regularly.

Kirsteen

Re: CSEIS Immune system booster?

Hi Kristeen.  Who warned you?  what happens to you if you take something?  I 
forget what echinacea does.   Faith G.

  - Original Message - 
  From: Kirsteen Wright 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 9:19 AM
  Subject: Re: CSEIS Immune system booster?

  On Sat, Feb 23, 2008 at 1:56 PM, faith gagne jitte...@gis.net wrote:

I think Boost is  the totally appropriate word for something that 
provides support and assistance in protecting the body.  I do not think that 
your own immune system would attack you unless you had AIDS or something.  Your 
friend is splitting hairs.Faith G.

  Actually there are now quite a number of auto-immune diseases where the 
bodies own defence systems do get out of kilter and attack the body itself. For 
instance I've been well warned that I can no longer take echinacea or any 
immune bosster like that. I have to say, however, that I've never had any 
trouble with CS and rely on it regularly.

  Kirsteen

Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 2:34 PM, faith gagne jitte...@gis.net wrote:

  Hi Kristeen.  Who warned you?  what happens to you if you take
 something?  I forget what echinacea does.   Faith G.


I have M.E. and to be honest the jury is still out on whether that is an
auto immune disease or not.  I was warned by several people I know, who also
have M.E. that they reacted badly to echinacea with a dramatic rise in their
symptoms. I'd mentioned that I used to take it along with massive doses of
Vit C at the onset of a cold (that was pre CS days) I couldn't swear to it
offhand but I believe the problems were highlighted by Dr Sarah Myhill.
She's the UK expert on M.E. and has been so helpful to sufferers
recommending alternative supplements, diets etc over drugs that the General
Medical Council are trying to get her struck off.

I've never tried echinacea (it's a herb that boosts the immune system) since
I developed M.E. so I've no firsthand knowledge. I reckon why risk it when
CS works so effectively with no side effects. I do have a friend with lupus
and one with R.A. who both report a complete flare up in symptoms if the
take echinacea. they've both been told by doctors that their immune systems
are already in overdrive so anything that strengthens them will only make
them worse.

I don't know exactly how CS works but it certainly doesn't have any adverse
effects on me for which I'm extremely grateful.

Kirsteen

Re: CSEIS Immune system booster?

Okay, what is M.E.?  thanks.  Faith G.

  - Original Message - 
  From: Kirsteen Wright 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 10:03 AM
  Subject: Re: CSEIS Immune system booster?

  On Sat, Feb 23, 2008 at 2:34 PM, faith gagne jitte...@gis.net wrote:

Hi Kristeen.  Who warned you?  what happens to you if you take something?  
I forget what echinacea does.   Faith G.

  I have M.E. and to be honest the jury is still out on whether that is an auto 
immune disease or not.  I was warned by several people I know, who also have 
M.E. that they reacted badly to echinacea with a dramatic rise in their 
symptoms. I'd mentioned that I used to take it along with massive doses of Vit 
C at the onset of a cold (that was pre CS days) I couldn't swear to it offhand 
but I believe the problems were highlighted by Dr Sarah Myhill. She's the UK 
expert on M.E. and has been so helpful to sufferers recommending alternative 
supplements, diets etc over drugs that the General Medical Council are trying 
to get her struck off.

  I've never tried echinacea (it's a herb that boosts the immune system) since 
I developed M.E. so I've no firsthand knowledge. I reckon why risk it when CS 
works so effectively with no side effects. I do have a friend with lupus and 
one with R.A. who both report a complete flare up in symptoms if the take 
echinacea. they've both been told by doctors that their immune systems are 
already in overdrive so anything that strengthens them will only make them 
worse.

  I don't know exactly how CS works but it certainly doesn't have any adverse 
effects on me for which I'm extremely grateful.

  Kirsteen

Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 3:28 PM, faith gagne jitte...@gis.net wrote:

  Okay, what is M.E.?  thanks.  Faith G.


Myalgic Encephomeyelitis. In USA I believe they call it Chronic Fatigue
Syndrome which to be honest totally trivialises it since fatigue is the very
least of it. As someone (I can't remember who) put it, calling M.E. chronic
fatigue is like calling type 1 diabetes cronic sweet tooth.

Kirsteen

Re: CSEIS Immune system booster?

2008-02-23 Thread Clayton Family

Yes, I hear that.   I have been called chronic fatigue, but what causes 
it is toxicity. In my case it is primarily mold toxicity, although 
chemicals can also cause the symptoms. My symptoms matched what is 
called ME over there.  The CS works well for me too, although it has 
caused some exacerbation of symptoms which are probably due to it 
killing off some fungal infections. I had to take it very slow, and 
increase it bit by bit.


On Feb 23, 2008, at 9:35 AM, Kirsteen Wright wrote:




On Sat, Feb 23, 2008 at 3:28 PM, faith gagne jitte...@gis.net wrote:

Okay, what is M.E.?  thanks.  Faith G. 
Myalgic Encephomeyelitis. In USA I believe they call it Chronic 
Fatigue Syndrome which to be honest totally trivialises it since 
fatigue is the very least of it. As someone (I can't remember who) put 
it, calling M.E. chronic fatigue is like calling type 1 diabetes 
cronic sweet tooth.

 
Kirsteen


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Re: CSEIS Immune system booster?

2008-02-23 Thread Scott

Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic 
condition that none of my doctors can figure out. This condition M.E. sounds a 
lot  like what I have and I would like to know more about it. Do you have any 
information or links that would be helpful for me. I, too, take colloidal 
silver and it has kept me from getting real sick like I used to. Anyhow, I am 
very interested to hear more regarding this disease and what can/is being done 
for it. Thank you much.

Looking For Answers,
Scotty 

Kirsteen Wright kirsteen.falcons...@gmail.com wrote: 

 On Sat, Feb 23, 2008 at 2:34 PM, faith gagne jitte...@gis.net wrote:
   Hi Kristeen.  Who warned you?  what happens to you if you take something?  I 
forget what echinacea does.   Faith G.

  
 I have M.E. and to be honest the jury is still out on whether that is an auto 
immune disease or not.  I was warned by several people I know, who also have 
M.E. that they reacted badly to echinacea with a dramatic rise in their 
symptoms. I'd mentioned that I used to take it along with massive doses of Vit 
C at the onset of a cold (that was pre CS days) I couldn't swear to it offhand 
but I believe the problems were highlighted by Dr Sarah Myhill. She's the UK 
expert on M.E. and has been so helpful to sufferers recommending alternative 
supplements, diets etc over drugs that the General Medical Council are trying 
to get her struck off.
   
 I've never tried echinacea (it's a herb that boosts the immune system) since I 
developed M.E. so I've no firsthand knowledge. I reckon why risk it when CS 
works so effectively with no side effects. I do have a friend with lupus and 
one with R.A. who both report a complete flare up in symptoms if the take 
echinacea. they've both been told by doctors that their immune systems are 
already in overdrive so anything that strengthens them will only make them 
worse.
   
 I don't know exactly how CS works but it certainly doesn't have any adverse 
effects on me for which I'm extremely grateful.
  
 Kirsteen

 

   
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:

 Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
 condition that none of my doctors can figure out. This condition M.E.
 sounds a lot  like what I have


Hi Scott

You could try http://www.mechat.co.uk/  there's a lot of links there.
Unfortunately, over here, the psychiatric brigade hijacked the funding for
research and of course won't let go so there's very little biomedical
research done on it.

We're still frequently told it's all in our heads and all we need is some
CBT to persuade us we're not ill and we'll be fine. Despite that we're not
allowed to donate organs or blood and the changes in the brain stem are
showing up on autopsies and it can now officially be given as a cause of
death. If you can afford the private tests you can also show the
degeneration in the mitochondria, and the ATp / Awhatsits imbalance.

As there is so little real research, there are many theories about what
causes it but no real proof, therefore no real treatment. Lumping M.E. in
with cronic fatigue also blurs the edges since fatigue can occur in so many
totally unrelated conditions from depression to post viral illness etc.

When I was struck down by it (and I really was felled) I was healthy,
exercised regularly, was in a challenging job I loved, ate a wholefood,
mainly organic diet, carefully supplemented, practised the Silva method of
postive thinking had just moved into a beautiful new flat and generally
adored life.

Within a couple of weeks I was virtuall housebound, frequently bedbound with
horrendous vertigo and a whole catalogue of digestive, cognative and motor
complaints. That was 18 months ago, in many ways I'm worse now and haven't
worked since. I'm extremely limited in my abilities and any attempt to push
the boundaries leads to such loss of muscle control that I can't even stay
upright but have to be picked off the floor and carried to bed.

On a really good day I might make it out but I'll pay for it by being
bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst
affected, there are a lot of people an awful lot worse off with it than me.
And there has been some improvement on the cognative side. At first I
couldn't read more than a paragraph or watch more tan 10 minutes of tv. Now,
although I'm nowhere near the level of academic research I used to do for
fun, on a good day, I can manage things like emails and sometimes watch a
whole program. Just don't ask me to remember it afterwards :-)

Hope you find someting useful

Kirsteen

Re: CSEIS Immune system booster?

2008-02-23 Thread Dee

I had heard that it was a B12 and or folic acid deficiency can cause this. 
My own theory is that it is a manifestation of the herpes virus as I had a
fairly bad case of this, although not nearly as bad as you Kirsteen.  I had
awful 'stabbing' pains in various places; under the flabby bit of my arm;
around my ribs, and across my middle back.  The pain was quite excruciating
and my skin would be so tender I couldn't touch it.  My doctor said it was
shingles, which I poo-poohed as I had no lesions at all.  I had to live on
pain killers and amitriptylene an anti depressant which doctors use for this
condition.  I now think he was right as when I *did* get shingles i.e. With
lesions, I used tons of CS plus l-lysine and all the vits and minerals I
could ingest!  I also had a bad case of sciatica, which also went with this
regime.  Dee 

---Original Message---
 
From: Kirsteen Wright
Date: 23/02/2008 16:42:08
To: silver-list@eskimo.com
Subject: Re: CSEIS Immune system booster?
 



On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:

Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
condition that none of my doctors can figure out. This condition M.E. sounds
a lot  like what I have 
 
Hi Scott
 
You could try http://www.mechat.co.uk/  there's a lot of links there.
Unfortunately, over here, the psychiatric brigade hijacked the funding for
research and of course won't let go so there's very little biomedical
research done on it. 
 
We're still frequently told it's all in our heads and all we need is some
CBT to persuade us we're not ill and we'll be fine. Despite that we're not
allowed to donate organs or blood and the changes in the brain stem are
showing up on autopsies and it can now officially be given as a cause of
death. If you can afford the private tests you can also show the
degeneration in the mitochondria, and the ATp / Awhatsits imbalance.

Re: CSEIS Immune system booster?

2008-02-23 Thread Smitty

 Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic
 condition that none of my doctors can figure out. This condition M.E. sounds
 a lot  like what I have and I would like to know more about it. Do you have
 any information or links that would be helpful for me. I, too, take
 colloidal silver and it has kept me from getting real sick like I used to.
 Anyhow, I am very interested to hear more regarding this disease and what
 can/is being done for it. Thank you much.

 Looking For Answers,
 Scotty 

Here's something for you to read =

http://curezone.com/forums/fm.asp?i=368594

Smitty


--
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Re: CSEIS Immune system booster?

2008-02-23 Thread Scott

Kirsteen,

Thanks for getting back to me and so quickly. I am being looked at by the 
medical folks as a hypochondriac even though my complaints are legitimate. It 
seems as though they either do not know what this stuff is or they aren't sure 
how to treat/prevent it. It's pretty sad when after being with same doctor for 
15 years he decides that he cannot continue to see me and my family any more 
due to our losing insurance but still able to be cash patients. Stated that we 
would be considered new cash patients and he is not taking on any more cash 
patients. Anyhow, the doctor I am now with seems to be a little less 
narrow-minded and so I want to direct him to whatever information that he could 
glean to simplify both of our lives.
I am sorry that your country has decided to drop funding for the research on 
this stuff. I was reading a bit ago that over 90% of North Americans have one 
of the viruses that can cause M.E. yet the doctors seem oblivious to it. Don't 
want to call it a conspiracy but are they truly that ignorant? I just don't 
know. Anyway, I will look at these links you sent me and glean as much info as 
possible for myself and my doctor. It is the closest diagnosis I have seen thus 
far. 
I was also wondering if there is a Yahoo Group that has members dealing with 
M.E. or the like? Please let me know.


Kirsteen Wright kirsteen.falcons...@gmail.com wrote: 

 On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:
 Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic 
condition that none of my doctors can figure out. This condition M.E. sounds a 
lot  like what I have
 Hi Scott
  
 You could try http://www.mechat.co.uk/  there's a lot of links there. 
Unfortunately, over here, the psychiatric brigade hijacked the funding for 
research and of course won't let go so there's very little biomedical research 
done on it. 
   
 We're still frequently told it's all in our heads and all we need is some CBT 
to persuade us we're not ill and we'll be fine. Despite that we're not allowed 
to donate organs or blood and the changes in the brain stem are showing up on 
autopsies and it can now officially be given as a cause of death. If you can 
afford the private tests you can also show the degeneration in the 
mitochondria, and the ATp / Awhatsits imbalance.
   
 As there is so little real research, there are many theories about what causes 
it but no real proof, therefore no real treatment. Lumping M.E. in with cronic 
fatigue also blurs the edges since fatigue can occur in so many totally 
unrelated conditions from depression to post viral illness etc.
   
 When I was struck down by it (and I really was felled) I was healthy, 
exercised regularly, was in a challenging job I loved, ate a wholefood, mainly 
organic diet, carefully supplemented, practised the Silva method of postive 
thinking had just moved into a beautiful new flat and generally adored life.
   
 Within a couple of weeks I was virtuall housebound, frequently bedbound with 
horrendous vertigo and a whole catalogue of digestive, cognative and motor 
complaints. That was 18 months ago, in many ways I'm worse now and haven't 
worked since. I'm extremely limited in my abilities and any attempt to push the 
boundaries leads to such loss of muscle control that I can't even stay upright 
but have to be picked off the floor and carried to bed. 
   
 On a really good day I might make it out but I'll pay for it by being bedbound 
for 2 or 3 days after it. But, hey, I'm by no means the worst affected, there 
are a lot of people an awful lot worse off with it than me. And there has been 
some improvement on the cognative side. At first I couldn't read more than a 
paragraph or watch more tan 10 minutes of tv. Now, although I'm nowhere near 
the level of academic research I used to do for fun, on a good day, I can 
manage things like emails and sometimes watch a whole program. Just don't ask 
me to remember it afterwards :-)
   
 Hope you find someting useful
  
 Kirsteen

 


Scotty (Beam me up, Captain!)


   
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

Re: CSEIS Immune system booster?

And shingles is a viral conditon as is herpes.  Too bad you didn't have CS at 
the time.

Faith G.

  - Original Message - 
  From: Dee 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 12:19 PM
  Subject: Re: CSEIS Immune system booster?

I had heard that it was a B12 and or folic acid deficiency can cause 
this.  My own theory is that it is a manifestation of the herpes virus as I had 
a fairly bad case of this, although not nearly as bad as you Kirsteen.  I had 
awful 'stabbing' pains in various places; under the flabby bit of my arm; 
around my ribs, and across my middle back.  The pain was quite excruciating and 
my skin would be so tender I couldn't touch it.  My doctor said it was 
shingles, which I poo-poohed as I had no lesions at all.  I had to live on pain 
killers and amitriptylene an anti depressant which doctors use for this 
condition.  I now think he was right as when I *did* get shingles i.e. With 
lesions, I used tons of CS plus l-lysine and all the vits and minerals I could 
ingest!  I also had a bad case of sciatica, which also went with this regime.  
Dee 

---Original Message---

From: Kirsteen Wright
Date: 23/02/2008 16:42:08
To: silver-list@eskimo.com
Subject: Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:

Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic 
condition that none of my doctors can figure out. This condition M.E. sounds a 
lot  like what I have 

Hi Scott

You could try http://www.mechat.co.uk/  there's a lot of links there. 
Unfortunately, over here, the psychiatric brigade hijacked the funding for 
research and of course won't let go so there's very little biomedical research 
done on it. 

We're still frequently told it's all in our heads and all we need is 
some CBT to persuade us we're not ill and we'll be fine. Despite that we're not 
allowed to donate organs or blood and the changes in the brain stem are showing 
up on autopsies and it can now officially be given as a cause of death. If you 
can afford the private tests you can also show the degeneration in the 
mitochondria, and the ATp / Awhatsits imbalance.

Re: CSEIS Immune system booster?

I formerly had a lot of trouble with cold sores and sun blisters in my lips 
(herpes virus) until years ago a naturopathic doctor prescribed 500 mg capsules 
of l-lysine.  I took a maintenance dose of one capsule a day unless I had an 
outbreak of sores or blisters.  Then I would increase  the dose to 8 capsules a 
day:  3 in the am, 2 at noon, and 3 more in the evening.  This worked well, 
shortening the duration of painful blisters considerably and the maintenance 
dose worked quite well at keeping me free of blisters.

The doctor explained to me that l-lysine creates a climate in the body that the 
virus doesn't like and the virus  will withdraw into its hiding place in the 
body and stay there.   L-lysine did a good job of keeping the virus under 
control but it did not get rid of the virus.  

CS had gotten rid of the virus like a charm until recently when it seemed to 
stop working.  I was just dabbing CS on the sores with a cotton ball.  Then I 
discovered that if I used CS straight from the brown bottle instead of the 
little plastic sprayer I had been using, the CS worked like a charm again.  It 
was the plastic sprayer that  made the CS ineffective.  Faith G.


  - Original Message - 
  From: faith gagne 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 1:05 PM
  Subject: Re: CSEIS Immune system booster?


  And shingles is a viral conditon as is herpes.  Too bad you didn't have CS at 
the time.

  Faith G.

- Original Message - 
From: Dee 
To: silver-list@eskimo.com 
Sent: Saturday, February 23, 2008 12:19 PM
Subject: Re: CSEIS Immune system booster?


  I had heard that it was a B12 and or folic acid deficiency can cause 
this.  My own theory is that it is a manifestation of the herpes virus as I had 
a fairly bad case of this, although not nearly as bad as you Kirsteen.  I had 
awful 'stabbing' pains in various places; under the flabby bit of my arm; 
around my ribs, and across my middle back.  The pain was quite excruciating and 
my skin would be so tender I couldn't touch it.  My doctor said it was 
shingles, which I poo-poohed as I had no lesions at all.  I had to live on pain 
killers and amitriptylene an anti depressant which doctors use for this 
condition.  I now think he was right as when I *did* get shingles i.e. With 
lesions, I used tons of CS plus l-lysine and all the vits and minerals I could 
ingest!  I also had a bad case of sciatica, which also went with this regime.  
Dee

Re: CSEIS Immune system booster?

CS kills viruses.   Faith G.
  - Original Message - 
  From: Scott 
  To: silver-list@eskimo.com 
  Sent: Saturday, February 23, 2008 12:25 PM
  Subject: Re: CSEIS Immune system booster?

  Kirsteen,

  Thanks for getting back to me and so quickly. I am being looked at by the 
medical folks as a hypochondriac even though my complaints are legitimate. It 
seems as though they either do not know what this stuff is or they aren't sure 
how to treat/prevent it. It's pretty sad when after being with same doctor for 
15 years he decides that he cannot continue to see me and my family any more 
due to our losing insurance but still able to be cash patients. Stated that we 
would be considered new cash patients and he is not taking on any more cash 
patients. Anyhow, the doctor I am now with seems to be a little less 
narrow-minded and so I want to direct him to whatever information that he could 
glean to simplify both of our lives.
  I am sorry that your country has decided to drop funding for the research on 
this stuff. I was reading a bit ago that over 90% of North Americans have one 
of the viruses that can cause M.E. yet the doctors seem oblivious to it. Don't 
want to call it a conspiracy but are they truly that ignorant? I just don't 
know. Anyway, I will look at these links you sent me and glean as much info as 
possible for myself and my doctor. It is the closest diagnosis I have seen thus 
far. 
  I was also wondering if there is a Yahoo Group that has members dealing with 
M.E. or the like? Please let me know.

  Kirsteen Wright kirsteen.falcons...@gmail.com wrote:

On Sat, Feb 23, 2008 at 4:03 PM, Scott scottie592...@yahoo.com wrote:

  Hi, Kirsteen. My name is Scott and I have been diagnosed with a myalgic 
condition that none of my doctors can figure out. This condition M.E. sounds a 
lot  like what I have 

Hi Scott

You could try http://www.mechat.co.uk/  there's a lot of links there. 
Unfortunately, over here, the psychiatric brigade hijacked the funding for 
research and of course won't let go so there's very little biomedical research 
done on it. 

We're still frequently told it's all in our heads and all we need is some 
CBT to persuade us we're not ill and we'll be fine. Despite that we're not 
allowed to donate organs or blood and the changes in the brain stem are showing 
up on autopsies and it can now officially be given as a cause of death. If you 
can afford the private tests you can also show the degeneration in the 
mitochondria, and the ATp / Awhatsits imbalance.

As there is so little real research, there are many theories about what 
causes it but no real proof, therefore no real treatment. Lumping M.E. in with 
cronic fatigue also blurs the edges since fatigue can occur in so many totally 
unrelated conditions from depression to post viral illness etc.

When I was struck down by it (and I really was felled) I was healthy, 
exercised regularly, was in a challenging job I loved, ate a wholefood, mainly 
organic diet, carefully supplemented, practised the Silva method of postive 
thinking had just moved into a beautiful new flat and generally adored life.

Within a couple of weeks I was virtuall housebound, frequently bedbound 
with horrendous vertigo and a whole catalogue of digestive, cognative and motor 
complaints. That was 18 months ago, in many ways I'm worse now and haven't 
worked since. I'm extremely limited in my abilities and any attempt to push the 
boundaries leads to such loss of muscle control that I can't even stay upright 
but have to be picked off the floor and carried to bed. 

On a really good day I might make it out but I'll pay for it by being 
bedbound for 2 or 3 days after it. But, hey, I'm by no means the worst 
affected, there are a lot of people an awful lot worse off with it than me. And 
there has been some improvement on the cognative side. At first I couldn't read 
more than a paragraph or watch more tan 10 minutes of tv. Now, although I'm 
nowhere near the level of academic research I used to do for fun, on a good 
day, I can manage things like emails and sometimes watch a whole program. Just 
don't ask me to remember it afterwards :-)

Hope you find someting useful

Kirsteen

  Scotty (Beam me up, Captain!)

--
  Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Re: CSEIS Immune system booster?

2008-02-23 Thread Dee

I did, but as I didn't know that it could help I didn't use it, thinking
that what I had was 'something to do with nerves' or 'mystery nerve pain' as
my other doctor called it.  I also didn't realize that sciatica could be a
viral condition either, but now I know differently.  Touch wood, I haven't
had the stabbing pains at all since using the CS and l-lysine etc., whereas
I have had them all the time on and off for quite a few years.  Dee 

 
- Original Message - 
From: faith gagne 
To: silver-list@eskimo.com 
Sent: Saturday, February 23, 2008 1:05 PM
Subject: Re: CSEIS Immune system booster?


And shingles is a viral conditon as is herpes.  Too bad you didn't have CS
at the time.
 
Faith G.

Re: CSEIS Immune system booster?

2008-02-23 Thread Smitty

 I was also wondering if there is a Yahoo Group
that has members dealing with M.E. or the like?
Please let me know.

Ther are some M.E. groups here =

http://groups.yahoo.com/search?query=myalgic+encephalomyelitis+

Smitty


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Re: CSEIS Immune system booster?

2008-02-23 Thread Craig Chamberlin

Hi Kirsteen and all,

There have been posts by Brooks Bradley in the past about CMO
(cetylmyristoleate) and degenerative arthritic conditions. A piece of
this statement from one of those posts:

"...that a majority of degenerative arthritic conditions share a common cause. to wit: the T-Cells in the synovial fluid of the articulating joints lose their ability (usually starting around age 55) the distinguish between healthy, live, tissue.and dead, necrotic tissue! and these abnormally-responding T-cells begin to attack the living tissue within the joint capsule. These attacks can, in many cases, be inflicted on both cartilaginous and ligamentous tissue. These T-cells are, literally, consuming the exposed layers of living tissue. CMO does not chemically attack the errant T-cellsit merely effects a condition which TURNS THEM OFF. This allows the body's normal immune/reconstruction system to begin restoring the challenged joint."

I have successfully used CMO for knee/joint pain ( I am 60); my daughter-in-law's mother (she was 68) eliminated her arthritis with a 10 day course; my sister-in-law same thing (she is 44). No recurrences over varying time periods.

I asked Brooks about Degenerative Disk Disease and CMO and he suggested that it would be worth trying. That trial hasn't happened, yet.

However, CMO is supposed to (this is extracted from literature from some suppliers) useful for:

1) Blood sedimentation in Lupus patients
2) Reduces insulin requirements in diabetics
3) Reverses prostate inflamation
4) Relieves some of the symptoms of multiple sclerosis
5) Correct's Chron's disease
6) Reverses fibromyalgia
7) Regulates blood pressure
8) Generally benefits ailments with autoimmune components

"CMO is a general remedial immunomodulator that acts upon memory T-cells which control the autoimmune processes..."

"...CMO acts only upon memory T-cells and doesn't inhibit the activities of any of the several other types of T-cells that are responsible for combating infective microorganisms or invading substances."

If I had any of these other things I would definately try CMO, it isn't real expensive and is derived from beef tallow (a fatty acid ester), so relatively benign, unless you are taking immune suppressents, then you need to study the literature on CMO.

I am not making any claims other than the results that I have seen personally, and those are anecdotal reports only.

FWIW,

Craig

I have M.E. and to be honest the jury is still out on whether
that is an auto immune disease or not.I was warned by several
peopleI know, who also have M.E. that they reacted badly to echinacea
witha dramatic rise in their symptoms. I'd mentioned that I used to
take it along with massive doses of Vit C at the onset of a cold (that
was pre CS days) I couldn't swear to it offhand but I believe the
problems were highlighted by Dr Sarah Myhill. She's the UK expert on
M.E. and has been so helpful to sufferers recommending alternative
supplements, diets etc over drugs that the General Medical Council are
trying to get her struck off.

I've never tried echinacea (it's a herb that boosts the immune
system) since I developed M.E. so I've no firsthand knowledge. I reckon
why risk it when CS works so effectively with no side effects. I do
have a friend with lupus and one with R.A. who both report a complete
flare up in symptoms if the take echinacea. they've both been told by
doctors that their immune systems are already in overdrive so anything
that strengthens them will only make them worse.

I don't know exactly how CS works but it certainly doesn't have
any adverse effects on me for which I'm extremely grateful.

Kirsteen

--
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Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 5:19 PM, Dee d...@deetroy.org wrote:

I had heard that it was a B12 and or folic acid deficiency can cause
 this.

Some sufferers have low folic acid and B12 others it's high. Personally I've
always had mine supplemeted with injections as I've pernicious aneamia but
all blood tests show it's remained high throughout this illness.


  My own theory is that it is a manifestation of the herpes virus as I
 had a fairly bad case of this, although not nearly as bad as you Kirsteen.
 I had awful 'stabbing' pains in various places; under the flabby bit of my
 arm; around my ribs, and across my middle back.  The pain was quite
 excruciating and my skin would be so tender I couldn't touch it.

Have you found any research that suggets this. I've never found anyone
relating herpes to M.E. I'm lucky I've never had herpes or shingles.

Kirsteen

Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 5:25 PM, Smitty papad...@gmail.com wrote:



 Here's something for you to read =

 http://curezone.com/forums/fm.asp?i=368594

Thank you so much for posting this. I nearly cried when I read it as it's so
rare to read something which so exactly describes it.

Thank you

Kirsteen

Re: CSEIS Immune system booster?

2008-02-23 Thread Smitty

   Here's something for you to read =
  http://curezone.com/forums/fm.asp?i=368594

 Thank you so much for posting this. I nearly cried when I read it as it's so
 rare to read something which so exactly describes it.
 Thank you
 Kirsteen

You are welcome. . . glad to help. . . . .

Smitty


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Re: CSEIS Immune system booster?

On Sat, Feb 23, 2008 at 5:25 PM, Scott scottie592...@yahoo.com wrote:

 Kirsteen,

 Thanks for getting back to me and so quickly. I am being looked at by the
 medical folks as a hypochondriac even though my complaints are legitimate.


Unfortunately tis appens to a lot of people. The first occupational doctor i
was sent to by my work told me he didn't believe in M.E. so why was i
comlaining I was too tired to work when there was nothing wrong with me, tis
was on a day i was in tears at the effort of trying to sit in an upright
chair :-(


 It seems as though they either do not know what this stuff is or they
 aren't sure how to treat/prevent it.


Some doctors genuinely don't believe in it others are totally frustrated at
being unable to treat or 'cure' it.


 It's pretty sad when after being with same doctor for 15 years he decides
 that he cannot continue to see me and my family any more due to our losing
 insurance but still able to be cash patients. Stated that we would be
 considered new cash patients and he is not taking on any more cash patients.



That sounds horrendous.


 Anyhow, the doctor I am now with seems to be a little less narrow-minded
 and so I want to direct him to whatever information that he could glean to
 simplify both of our lives.
 I am sorry that your country has decided to drop funding for the research
 on this stuff. I was reading a bit ago that over 90% of North Americans have
 one of the viruses that can cause M.E. yet the doctors seem oblivious to
 it. Don't want to call it a conspiracy but are they truly that ignorant? I
 just don't know. Anyway, I will look at these links you sent me and glean as
 much info as possible for myself and my doctor. It is the closest diagnosis
 I have seen thus far.


You could also try this site

 http://www.ahummingbirdsguide.com/whatisme.htm it has a lot of excellent
information

as does

http://www.investinme.org/index.htm

and for a more personal approach

http://fatigue.wikispaces.com/

this site has a lot of leaflets you can download which help explain it

http://www.leger.me.uk/

If I can dig up any others I'll let you know.

I'm a member of mecha...@listserv.aol.com, but it's a distinctly Uk group.


cfallia...@yahoogroups.com is a more USA based group. I came off it as so
many people on it actually suffer from fibromyalgia rather than M.E. but
there there are some ME sufferers on it so it might be of some help.

hope some of tis helps

Kirsteen

Re: CSEIS Immune system booster?